about CaringBridge  |  home page  |  view guestbook  |  view photos  |  journal history  |  donate to CaringBridge

Click here to go back to the main page.

Monday, December 22, 2008 4:27 PM CST

whasup it's chris this been bad memory of my canswer so i've been doing good and making good friends like:
patrick
taj
victor
cheyeanne
and nicholos.And other friends that are'nt very nice that's why there on thin ice on friendship
ok bbbyyyyy!!!!!!!!!!

Thursday, October 30, 2008 1:57 PM CDT

hello,
Christopher went to boston to follow up with the eye specialist, he has horners syndrome in his right eye. There is nothing they can do for it. He can use his glasses if they are helpful for him. His eye does strain sometimes when he is in school especially. That is when the headaches come in. We also went for the bloodwork for celiac disease. That came back normal wich is excellent news. We wouldn't want to have to switch his diet around. He is still eating his chicken nuggets and french fries. I buy them in bulk. It is getting harder and harder to get him to eat something different. Chris is going for his mri on nov. 29 we are praying for clear scans!!!!! after that test comes back we will be going to see the oncologist for his follow up. Chris has been very busy with all his activities. He just received his belt loops in cub scouts, He also has two badges that he earned. On Thursdays he goes to journalism, On mondays he goes to basketball. He is a very busy young man. He keeps me going. I love every minute of it. Well I will update again soon.

Wednesday, October 15, 2008 5:05 PM CDT

hello,
It has been a while for an update. Christopher is doing good. He is in the 3rd grade this year. He loves school. Christopher has had pink eye for the past couple of days. He will return to school tommorrow. He is going to boston next week on the 22nd for bloodwork to check on celiac disease. He also is going to the eye docter for a follow up. Christopher joined the cub scouts he is really enjoying it. There is lots to do and many friends to be made. We went on a hike last sat at the blue hills. What an adventure that was. He likes to work for his badges. They are always busy. He is still in soccer. that will be ending soon. He is very active in sports. He is getting really big and finally weighs 64 lbs. I will update again soon. Thank You for your support and prayers.

Wednesday, June 25, 2008 12:07 AM CDT

Hello,
Christopher is doing well. He has come home from camp. He really enjoyed himself there. He went fishing and also swimming. He has an award for swimming that he left at camp by accident. He was also part of a talent show. His part was to eat a piece of toast with no hands. That must of been fun to watch. He also showed me something they did at camp called the oreo challenge.. take the oreo apart and lick it, stick it on your forehead and wiggle your face till it falls in your mouth. Interesting???? well they do some fun stuff at camp. He loves going to the hole in the wall gang camp. He is already looking forward to next summer. Chris is enjoying his summer with no school. He did really well on his report card. We are going to go to lazer tag. They give him a free game for his card. In september we are hoping he goes to the charter school. He might have to start the year in the school he has been in until there is an opening. Chris went to six flags with his dad and went on the scream ride. CRAZY... Mom has a hard time with those rides. He will go byhimself he doesn't care. Christopher is a thrill seeker all the way. He even wants to came on the sky scrapper with me. You go about 1200 ft. in the air a bungee down and swing over the park. He really likes that stuff. The older he is getting the more daring he gets. I will be posting more pics soon. We are going to boston for urology and gastro. in july for a check up on the same day. That doesn't happen to often. He is almost off treatment for 4 years. We can't wait till the 5 year mark. We are going to celebrate with him. He will be 9 in sept. When he is 5 yrs. out he will be 10!!!!!! Keep praying every day that the beast does not come back. Well until next time thank you for stopping by.


Lisa

Friday, May 9, 2008 11:45 AM CDT

Hello,
Sorry it has been a while scince I updated. We have been really busy. Christopher is doing well. The Dr. put him on a new medicine for his bladder. Seems to be working well and doing it's job. Christopher is more comfortable. He is doing good in school. He will be going to 3rd grade next year. Christopher enjoys playing baseball. He is also going to start soccer this year. He will be very busy. I posted his new school pic. Christopher is really excited about his big 10th birthday party were going to have for him next year. That will mark his 5 years off treatment!!!!!!!!!!!!!!!!!! He is going to have a d.j. and lots of friends and family to celebrate with him. Time sure does go by fast. Chris is waiting to hear when he will go to camp. He likes to go for the week to camp he enjoys every minute of it. Summer is coming and the fun begins. I will updat again soon. thank you for stopping by.

Saturday, January 26, 2008 7:02 AM CST

Hello,
Sorry it has been a while for an update. We have been busy. Christopher is starting to get over being sick. He cought a nasty bug, He was out of school for three days. Christopher sure did rest on his days off.
The next month is a busy one for all of his follow-ups. It has been a full year for with no scan... Christopher's MRI of the pelvis and abdomen is on Feb.22- MRI of thighs Feb.28. Oncology apt. is also on the 28th. It has been 3 1/2 years off treatment and counting. Christopher has been doing very well in school. Term 2 will be ending soon. He loves to get his report card. In Feb. we will be going snowboarding with Christopher. He has never been before, but he really wants to go. I love to go every year. Now I will have a snowboarding buddy every year. I will post again when i have news on the Dr. apt. Thank you for your support and prayers.

Tuesday, December 18, 2007 8:46 PM CST

Hello,
Just a little update. Christopher went to see the pedi. surgeon last week. He has scar tissue in his belly that has been making him a little uncomfortable. The Dr. thought it was a hernia???? At least we have our answers. Christopher is enjoying school. He is still in karate, he will be getting his 2nd brown belt soon. Christopher wants to go skiing with mom this year... We can't wait for that. I have a skiing partner finally. Christopher loves the snow. We went sledding over the weekend, soon we will go ice skating. When we have further updates I will post them.
Have a safe and Happy Holiday.
Lisa

Thursday, November 29, 2007 8:06 PM CST

Hello,
Christopher is doing very well. He is now in the 2nd grade and he loves school. I posted his new school picture. He is soo very handsome. Christopher went for his physical he is 51 inches and 59 lbs. He is finally gaining wight. He is also getting taller.
This Friday we are going to the hole in the wall camp for a holiday party. Christopher is looking forward to going back to camp. He can't wait to go in the summer time.
On Dec.7 is the On Course for kids at the Expo Center in boston. It is a fundraiser for the Floating Hospital Clinic. It really is a good cause and Christopher enjoys being with the dogs. The names of the dogs are Tony and Shasta. We are looking forward to that.
Christopher is really into pokemon now. He is getting older and into big boy things now. He is signing up for soccer next season. Christopher is now a brown belt in karate, he will have 2nd brown in Feb. 2008. Christopher also is in swimming with his brother. He has been a very busy boy. We are always on the go and have something to do. Thank You for stopping by, until next time....

Sunday, June 24, 2007 9:29 AM CDT

Hello,
Christopher is doing well. He just came home from camp. He was there for a week. He really missed us. He had lots of fun. He went fishing and cought a large mouth bass. He also enjoyed wood working. Christopher was a fish swimming and also went scuba diving. He already wants to go back. What a wonderful camp for these kids. Everybody is so friendly. Christopher made some new friends that have been through what he has gone through.
On Monday he will be going to the hospital to have his nose rebroken. The last week of school he broke his nose. This is only a day surgery. He is a trooper.
We took some nice pictures from Flashes of Hope. they came out awsome. Christopher did so many differnt poses. I will post a couple at a time.
Baseball season is almost over already. we will be getting ready for soccer season. He is very active in sports. Christopher did really well in school this year. He is going to the 2nd grade in sept. He is excited.
Soon it will be christpher's birthday. He is going to be 8 years old. already. The same time he will be 3 years off traetment!!!!!!!! EXCELLENT NEWS-WE CAN BEAT IT!!!! Those are christopher's words. Well until next time have a good day. thank You for the support...

Thursday, June 7, 2007 7:20 PM CDT

Hello,
Christopher is doing well. He only has 6 more days of school left. Christopher was excepted for camp at the hole in the wall gang camp in Conn. this is a camp for children who have had cancer or are in treatment for cancer. He will be there for 7 days overnights. He is enjoying baseball. Christopher has been going to swimming lessons with his Dad. He is doing well with that. In Sept. he will be going into the 2nd grade. This year seems like it went by fast. Christopher's teacher Mr. Ward was great with him. Christopher has a busy summer ahead of him. He will be going to Florida to see his grandparents for a couple of weeks. He is flying by himself and doesn't mind it at all. He gets to have all the soda he wants on the plane. I will be putting new pics up soon. Thank you for stopping by. until next time Lisa and Christopher

Sunday, April 29, 2007 6:39 PM CDT

Hello,
Christopher's scans came back clear!!!!!!! We will be scanned every year now. He will be monitored with echos for his heart. We are going to boston on June 25th for that and to see the gastronologist. Christopher is excited about getting blood drawn once a year now, unless something rises and needs to have it. Christopher started baseball on Saturday. He will be having games on Saturdays. He also started swimming this weekend with his brother Maxx at the YMCA. He seems to enjoy that also. School is almost out. The year went by pretty fast. On Mother's day Christopher and I were asked to go to a Red sox game at Fenway Park. He is very excited about that and so is Mommy. He can't wait to see David Ortiz in person on the feild instead of on T.V. When I get some new pics I will post them. Thank You for all your support. I will keep posting.

Wednesday, April 11, 2007 9:56 AM CDT

Hello,
Christopher is doing well. He will be going to Boston for a MRI scan on Thurs. We are going to take the train there. Christopher loves to take the train. He doesn't like to take the time off of school. He loves school. Chris made the Honor Roll for 2nd term. He is still in karate, in June he will be promoted to 2nd green. April 28th he starts baseball he is on the Bulls team. We are very busy. This summer Christopher is going to his Grandparents house for 2 weeks in Florida. He is flying alone. That scares me but he loves it. He went last year and didn't mind it at all. They give him all the soda he wants.... Mommy doesn't do that. He has been asking for diet soda, which has no sugar in it. Christopher was daring this week and tried to ride his friends mini bike, he didn't do so well. He fell off of it and hurt his hand. I had to tell him that you have to be very careful on motorized bikes. He was thinking that it's like a bicycle. The most important part was to ask permission from Mom first.. Which he didn't. He knows now unfortunatly had to happen that way. He is a boy and I'm sure he will be getting more daring than ever as he gets older. When we hear results from test I will post them. Thank You for your support and prayers.

Thursday, February 22, 2007 6:00 PM CST

Hello,
Sorry it has been a while since I updated. We have been busy. Christopher went for his MRI in Boston on Feb.8 We have not yet heard anything. That is good news. We took Chris to a ice hockey game, he really enjoyed it. He is getting into sports now. On March 2 we are going to see the Monster trucks. He can't wait for that. He is on vacation this week from school. He likes not having to get up early in the morning. He had a sleepover at his friends house from school. He did really well with that. Chris was all excited when we went bowling his score was a 99. That was the best he ever had. School is going good for him. He really is liking the 1st grade. His teacher is excellent. The year is going by really fast. I am soon going to put up new pics. in the album. I will update again soon. Thank You for stopping by.

Tuesday, January 9, 2007 8:02 PM CST

Hello,
Christopher is doing well. He just got over being sick for a couple of weeks with the viruses going around. He had it all. The only thing lingering is the cough. Getting better. Christopher had a very nice Christmas, Santa brought him mostly everything he wanted. he has his skateboard that he does very well on. His other favorite is the Moon sand. He likes to listen to his I-dog.
We are going to be going to see the Providence Bruins play on ice in Feb. Also in March we are going to take him to the Monster trucks. He says he would like going. He is getting older now, we can do so much more. It doesn't take much to make him happy these days.
We are still waiting for our snow to come. Christopher is excited about going sledding. He sure is a dare devil just like Mom. I love to ski. i think I'm going to try to take him with me. Christopher is doing well in karate. In March he will be graduating to his Green belt rank. He is really working to be a Jr blackbelt. That is his goal!!!!
I must be going now. Thank you for stopping by. Until next time.......

Monday, December 11, 2006 9:17 AM CST

I will be posting some new pictures soon. Christopher participated in the On Course For Kids on friday at the Expo Center in Boston. It was a fundraiser for the floating hospital oncology clinic. Agility teams raised 59,000. That was excellent. Christopher was matched up with: Julie and her rescue dog Tony. Doris and her rescue dog shasta. They were great with christopher he really enjoyed this event. He was able to do agility with the dogs and also do some tricks with them for treats. Christopher talks about these dogs daily. He hopes to see them again soon.
School is going well. He has good grades on his report card, which is excellent. He loves to do math and reading. Today he has his christmas store at school. He is able to buy gifts for his family on his own. He really likes that.
Christopher has a 20 inch bike that was given to him. He actually rides this bike with hand brakes. He wants santa to bring him a skateboard for christmas. He is getting to be very daring!!!! Makes me very nervous....
I will be updating the pictures. Thank you for your support. Until next time...

Saturday, November 18, 2006 4:38 PM CST

Hi, Everyone
Sorry it's been a while scince I have updated this journal. We have been really busy. Christopher is loving school in the 1st grade. He is doing wonderful. He also likes his teacher Mr. Ward. Christopher's last scan came up CLEAR!!!!!! He is now going to have a scan every year, which is a little scary at times. He is such a strong boy.
We went to see a pedi. Opthamologist for his eye. Christopher has glasses to wear due to some nerve damage in his right eye. The Doctor says it's from his port-a-cath that he had during treatment. He actually likes his glasses. He doesn't mind wearing them at all. Christopher says he can see so much better. He can read alot faster now than before. I didn't realize that he had a problem with his eye until he complained of headaches everyday after school. His right pupil is really small. Also his right eye will droop at times.
Christopher is going to be performing a play at school next week. The first Thanksgiving. He is a pilgram. Dec. 1st is his karate graduation, he will be getting his 2nd blue belt. He will also be moving to the group of 7-12 yr. olds. I will be putting some new pics. on the page. Stop by to check them out. I want to thank all of you for stopping by. Take care. Until next time Than You for all your support.

Sunday, August 13, 2006 7:07 PM CDT

Hello,
It has been a while since I updated. Christopher is doing well. In Sept. will make 2 years off treatment and counting. He has a check up coming in Sept. at the Oncologist in boston. He will also be getting his shots that he is behind on. School time is coming. Christopher is very excited about going to the 1st grade. His teacher is going to be Mr. Ward. the one that he wanted. His birthday is coming on Sept. 3. He will be having a birthday party with the Monster truck bouncer and a cotton candy machine. He is looking forward to it. He can't wait to turn 7. He enjoys life to the fullest. he has had a excelleny summer. He went to Virginia with us on a family trip to Bush gardens and water country. he also went to Florida to spend a week with his grandparents. he flew all by himself on an airplane he loved every minute of it. We are going to Six Flags next week for the day. Than it's back to school and homework time. Christopher wants everyone to know that he rides his bike now on 2 wheels and he can swim without a life coat on. i will be posting new pics on when I have a chance. Sept1 is his graduation for his blue belt he has his purple now. Till next time Thank you for visiting...

Wednesday, June 7, 2006 2:51 PM CDT

hello,
It's been a while since I updated the journal. Christopher is doing well. He loves school. He made the Honor Roll, he was excited. Christopher also has his purple belt in karate. He is now doing a weapons class. They work on a different weapon every three months. He has only 10 more days of school. He has a very busy summer. We are taking a family trip to Virginia, In July Christopher is going to fly by himself to see his grandparents in Florida. He is really excited about that. He loves to fly. Mommy doesn't like to fly at all. Christopher is due back to clinic in Sept. at that point he will be 2 YEARS out of treatment.. we pray everyday that the big beast doesn't come back. We enjoy everyday as it comes. On June 16 & 17 the Relay for life is at the Somerset High School. Christopher will be walking in the survivor lap for the 3rd year. We like to participate in this event. You meet so many peaople. This summer we will be doing alot of fun stuff. Christopher is really into roller coasters. Well until next time. Thank You for stopping by to visit.


Christopher and Lisa

Thursday, March 2, 2006 8:06 AM CST

Hello,
Christopher is doing well. He is excited about getting his orange belt in karate on Friday march 3, 2006. He has waited so long to get this far. He enjoys the things he does. He also likes school. He has made lots of friends. We were happy to hear that Christopher received a certificate of acheivement from school. His report card was great. Makes a big difference if you like school. He also won 1st place prize for selling the most candy rose pops at school for a fundraiser. He sold a total of 322 roses. He won a limo ride to chuckee cheese on a school day. He loves that idea!!! He is due back in the clinic for a check up on March 9. Check counts and everything that comes with it. He will also be seeing the gastointronologist on March 9. Busy day for him. Christopher MRI scan is scheduled for March 23. We are praying for clean scans!!!!! It has been 18 months Christopher has been off treatment!!!! Well I will be sure to update soon. I will put new pics on also. Thank you for your support and prayers. Please pray for all the other children that have this horrible disease. Until next time....


Lisa and Christopher James

Sunday, January 22, 2006 12:21 AM CST

Hello,
Christopher is doing well. He has now been off treatment for 16 months and going strong. Christopher is due back in Boston for a Gastrointronology apt. in Feb. and an Oncologist apt. in March for a check up. Time sure is going fast. Christopher has been enjoying school to the fullest. He has also been going ice skating. He goes off all by himself. He does really well. This week he will be tested for his 2nd black stripe for karate. March is graduation for his Orange belt. Until next time Thank You for visiting the site.

Thursday, December 8, 2005 3:13 PM CST

Hello,
Sorry it's been a while scince I updated. We have been really busy. Christopher is doing very well. He is enjoying School. Loves to do his homework. Christopher has also just had a graduation for his promotion for his Yellow belt in Karate. He really is excited about this. He has waited long enough to get this. I'm so proud of him. He also lost his front teeth, just in time for School pictures. They came out awsome. Christopher has his 15 month check up on Dec 15. This will be a long day for us. We also have an apt. with the G.I. doctors. Scan time!!!! Please keep Christopher in your prayers for a clear scan. It is so nice to see him enjoying life and being a 6 year old. boy. The issue that we have to work on is his eating. He is soooo very picky when it comes to food. I'm sure hoping he grows out of it. Well I will be updating after his apt. Thank You for stopping by Christophers site. Have a nice Holiday and Stay Safe!!!!
Christopher and Lisa

Sunday, August 28, 2005

Hello,
It's been a while since I updated. Christopher is doing very well. He has made the 1 year mark for being off treatment!!!! He graduated from preschool in June. He will be starting Kindergarten on Sept. 14th. Christopher is really looking forward to going to school. His Birthday is also coming up. He will be 6 Sept. 3rd. Christopher is having a Super Hero Party. He is starting to like big boy toys. Transformers and action figures. I want to say Thank You to all that have left an entry. I will be updating and adding new pictures to the sight.

Saturday, November 27, 2004 5:52 PM CST

Hello,
HAPPY HOLIDAY'S to all. Christopher is doing o.k. right now. He is at his Dad's house for a long weekend. We will be going to the clinic on the 8th of Dec. for a check up. We also have to go to the dentist for a filling on Christopher's tooth. He isn't going to like that very much. He will be o.k. I just have to keep telling him he is a big boy and he can do it. I always reward him after having a hard time in doctors offices. I feel really bad that he has to go often. He really thinks he is better and doesn't understand we need to do testing to be sure nothing comes back. He is doing so well in his walking and running around. He got a new pair of sneakers he was so happy that he can go really fast in them. Christopher is doing well in school. "knock on wood" no sicknesses yet... He enjoys school so much. He loves to go to school. You can't tell him he needs to miss a day, he will get upset that he can't go. Well when I get some info on results from Christopher's CT scan I will post them. Thank You to all for your support and prayers.

Christopher and Lisa (MOM)

Saturday, November 20, 2004 2:36 PM CST

Hello,
We had to take an unexpected trip to Boston on Friday. Christopher was at school on Thursday and had an accident, this is not a normal thing for Christopher. He is fully ptty-trained. He was acting in a stange way. We took him to the Doctors and they had to do some test to rule things out. He did have a urine test to see for infection and that was o.k. They also took his counts those too were good. He had his sugar checked and that to was good. We then went to get an x-ray of his abdomen. That x-ray showed that he is really backed up. The Oncoligist put him on Miralax for chronic constapation. We are contacting the Surgeon on Monday. We need to find out if this is caused from the surgery he had to resect the tumor. At the time of surgery Christopher did not end up needing the colostomy bag. He seems to have been doing well with it but, now there is a concern about this. We are hoping that this will be constapation only and nothing more. Christopher is not happy about wearing the pull-ups in school, because he is a big boy now and he is better. He really doesn't understand that the medicine to clean him out is making him go uncontrolably. In order to go to school it has to contained. We are trying for him not to miss too much school this year. He really want to go to kidnagarten in sept. when he is 6. He has been doing so well with everything now we have this minor set back. We will get through this safe and sound. I just worry for Christopher. He doesn't ever complain of pain. He is so happy and enjoys every day of his life to the fullest. We love him and he will be o.k. Well thank you for all your support and prayers. I will upate again ehen I have more info. Christopher is at his dad's house this weekend. He will be home Sun. night.

Love,
Christopher and Lisa

Monday, November 15, 2004 3:11 PM CST

Hello,
I updated the photo album be sure to go by and check it out. Christopher is doing really well. We went to the clinic on Wed. His counts were good. He gained 2lbs. and grew an inch. He sure is getting big and he now has his hair back. Christopher is very excited about his hair coming back. We are due to go back to the clinic on Dec.8 for a dentist apt. and also to get a check up and to have his port flushed. Christopher will have his next MRI sometime in the begining of Jan. We are hoping and praying for clear scans!!!!! Christopher is going to school everyday. He loves it. He is also getting ready for Santa. We went to the post office today and he mailed Santa a letter. Now we wait for him to respond... Christopher was excited to see the snow fall over the weekend. "he thought it was christmas time" Silly Christopher. On Dec. 4 Christopher was invited to walk in the Christmas parade for Cancer Survivors in Fall River. They also have a tree lighting ceremony at the end. It is put on by the American Cancer Society. Well Thank You to everyone for your support and prayers through all of this. Please keep praying for all the children who are battling this horrible disease. Until next time.


Love, Christopher and Mommy

Saturday, October 30, 2004 8:49 PM CDT

Hello,
There are some new pictures in the photo album. Check them out if you have a chance. Christopher is doing very well. He is really excited that he has his hair back. It looks great. Christopher is doing well in school. He really enjoys going to school. He is only in the 1/2 day program this year. Next Sept. he will go full day to Kidnagarten. Christopher has been waiting patiently for Haloween to come. He will be going trick-or trating with his Dad this year. Christopher's brother is going to be Thomas the train. Well Thank You for all the support and prayers. I will update again after our next Apt. on Nov.10

Tuesday, October 19, 2004 1:05 PM CDT

Hello,
Christopher is doing GREAT!!!!! Good news scans came back clear!!!!! We are now on a monthly scheduale to have his port flushed and check-up. In April he will have an MRI and as long as it looks good the Port-a-cath will come out. Christopher is really enjoying school. He has alot of hair now. He wants to take pictures. I told him that we will go to Wal-Mart this week. He is also gaining weight and really getting taller. There are some new pics in the album. I will be putting more up soon. Christopher decided to be Buzz Lightyear for Halloween. The costume is sooo very cute. He will be going with his Dad this year for trick or treating. This year he is really into it. He is growing up so fast. We are so proud of Christopher for all of his fighting he has done with this horrible disease. He will keep on fighting. He is strong and can beat it. Well until next time. Thank You for all the support and prayers. We really do appriciate all the messages left in the guestbook.

Friday, October 8, 2004 11:23 AM CDT

Hello,
We haven't heard anything about the MRI results yet.
" they say no news is good news " We will just hang in there. Christopher is doing very well. He will be going to his Dad's house for the weekend. When Friday comes he gets really excited. We have nice weather today, Christopher wants to go outside to ride his bike. His walking has come along way. He doesn't have a limp anymore. We love to watch him live everyday happy and full of energy. Well I'm going to go. Thank You to everyone for your support and prayers through Christopher's battle. Please keep praying for clear scans. Until next time.

Wednesday, October 6, 2004 3:36 PM CDT

Hello,
Christopher is doing really well right now. He has been going to school, which he loves. He has made some new friends. Christopher's hair is coming in really good. He is really excited about his hair. " He doesn't even want to get a trim " Well right now that is o.k. We haven't heard anything about the MRI results yet. They say no news is good news. Well Christopher is now 43 in. tall and he is 42 lbs. he sure is growing. I put some new pics in the photo album please be sure to check them out when you have a chance. Christopher can't wait for halloween he's going to be a pirate. He will be going with his Dad this year. Well I will update again. Thank You for all of your support and prayers.

Wednesday, September 29, 2004 8:04 PM CDT

Hello,
It has been a while since I updated the journal. There are some new pictures in the album please check them out. Christopher has had a very busy month. We had his Birthday party which was lots of fun and beutiful weather. The week after we had a 50 mile bike ride for the Cycle for Life, Chris and Steve both rode to support Christopher. Last but not least... Christopher went on his Wish Come True Trip to Florida. We stayed at the Give Kids the World village for a week. Christopher was able to go Fishing in the pond and was very proud to catch a fish. He was also able to visit the Majic Kingdom, which he loved very much. He liked the Big Thunder Mountain Railroad roller-coaster. He also liked the Pirates of the Carribean. Christopher also got to go to Universal Studios, where they film the Nick shows. Christopher played a matching game at the show.. It was lots of fun. We also got to go on the Jimmy Blast from the past, realisic stimulator ride that takes you through a story and to bikini bottom where spongebob lives it's a great ride. " Christopher loves it when it does the chicken dance" He also was able to go to Animal Kingdom, There was a Safari that was great he enjoyed seeing the girraffs and the big lion. We also went to Dino Land, there were a few rides that he did there. Christopher took sooo many pictures I wish I could show them all. He had soo much fun. The whole week he was able to be a kid and not worry about doctors or Hospitals to go to. Christopher is now moving on after treatment. He is doing really well. His hair is coming in good. And he is doing very well in school. Christopher brings sooo much joy into our lives he is a wonderful child we all love him very much. Please keep on praying for Christopher and all the other Children who also are fighting Cancer. A special prayer for our friend Sophie at the clinic. Thank You to everyone for your support. Christopher has a MRI tommorrow the 30th of Sept. I will update again when I have results Thanks....

Wednesday, September 1, 2004 7:24 PM CDT

Hello,
Christopher is doing really well right now. He has been very excited about his birthday party on Sat. We rented a spongebob bouncer for him, we are going to have water play and plenty of games to play. The weather is supposed to be beautiful out in the 80's.
On Sunday night Christopher got to meet the Legendary wrestler Mick Foley. They had a benifit for Christopher. He also got a picture taken with him. He enjoyed himself. Christopher was even in the papers again. I'm going to try to put it on the page.
Christopher has been enjoying himself. He has been riding his bike. He now stand up while pedeling his bike. It makes me so nervous but, I have to let him do it. He is so determined to do something.
We took a trip to the mall recently, and Christopher wanted to try this set up they had. It was a harnest around you. You jump off an air mattress and in the air flipping around and jumping really really high. He also loved doing that.
Christopher also can't wait to start school on the 8th. He enjoys school and likes to play with his friends. Most important he loves to learn. He is so smart. He is determined to go on a school bus instead of me bringing him.
We leave to go to Florida on the 19th of Sept. Christopher is excited. We will be there for a week. I can't wait either. I want to see my son have the most wonderful time he's had in a year. It is his week to enjoy himself and enjoy watching him smile and have fun like a 5 year old. boy. We will take lots of pictures.
In my closing there is a 50 mile bike ride that the Hospital does for fundraising, if you are interested in sponsoring Steve in the ride please e-mail me A.S.A.P. the ride will be held on Sept.11. Thank You much and I will update again Thanks, Lisa and Christopher.

Wednesday, August 25, 2004 6:53 AM CDT

Hello,
Christopher is doing well this week. Christopher is very excited that his hair is coming back."peach fuzz" Sept. is a very busy month. Christopher's Birthday Party is the 4th of Sept. The cycle for life bike ride is on Sept.11
That will be a fun event. All proceeds go to the clinic, at the floating hospital. Than the biggest week of all for Christopher is Sept.19 he will be going to Disney World to do whatever he wants. We can't wait to see his big smiles on his face. This is his time to enjoy himself. I will be taking lots of pictures. Well we have been trying to spend as much time outside as possible with the beutiful weather that were having. Christopher went for the biggest bike ride yesterday. I was so proud of him for riding so far. That is really good to help his leg muscles. We also have been going to the park when we can also. He loves to swing from the bars and than say " mom did that make you nervous" and of course that it does. He is very willing to do anything. Especially when it comes to being to daring at times. Well i must go for now. Thank You for all your support and prayers. Christopher is a fighter.

Friday, August 20, 2004 8:50 PM CDT

Hello,
Christopher is doing well now. He had gotton that horrible bug going around this week. He is feeling fine now. Mommy and Steve also cought the bug. Well now the bug is out and hope it stays out. We went to the clinic on Thursday for the MRI. It was a long one very extensive. Christopher had slept through the whole test without moving.We were so very proud of him. Christopher will win his battle with Cancer!!! We also talked to the Oncology Doctor about following up sooner than what the protocol calls for. We are watching to make sure that the " scar tissue" they say is possibly there, does not grow. That would not be good. We are praying and hoping that his MRI comes out clean. We are waiting patiently for the results. Christopher is spending the weekend with his Dad. He will come home on Sunday. Christopher is getting more excited about his birthday party on the 4th of Sept. He deserves to have something nice and party for all the fighting he has had to do. We try to make him as happy as he can be everyday. There is no problem with that, he is always smiling, laghing or telling jokes. Christopher will be starting school on the 8th of Sept.
Christopher is going to receive his wish to go to Disney world in Florida on Sept. 19-25. He is excited about going. We will take lots of pictures. This time is for Christopher to put all the medical stuff aside and to enjoy being a 5 year old. in Disney world seeing and doing whats he really wants. Christopher will have a smile on his face.
On Sept.11 we will be going to the cycle for life bike ride for the floating hospital for children. The money is used for the Child life Sevices for the clinic. This will be held in Marblehead Ma. 50 mile bike ride. Steve has been training to ride in the ride. Also Christopher's Dad and a couple of friends along with many others raising money for the children at the hospital. We have been taking sponsors for the ride. If you are interested in sponsoring Steve's ride e mail Listmeyou2@wmconnect.com. Thank You to everyone who has sponsored already. Thank You also for praying for my son and I will update when I have results from the MRI.

Saturday, August 14, 2004 7:49 PM CDT

Hello,
Christopher is doing well right now. He is spending the weekend with his Dad. I am so happy, Christopher has been going potty and wearing big boy underwear all day. Keep up the good work Christopher.
He loves not getting the GCSF shots. Mommy loves it too. We go back to the clinic on Thursday for counts and for a MRI. We are praying that what was there in the right leg 2 weeks ago is gone and is nothing. Christopher has been doing really well.
He can't wait for his Birthday to come. We are going to have a Spongebob moonwalker for the kids. Hopefully it is good weather Labor Day weekend. Christopher wants a Spongebob Birthday party. I'm also going to pick up a spongebob piniatta and fill it with goodies. Christopher's favorite games he wants to play at his party are musical chairs, and pin the tail on the donkey. What an awsome day that will be 5 years old. Boy time flies by.
On Sept. 8, Christopher will start school. He is ready to go. I am just really nervous, I worry hoping he doesn't get sick. He will be fine. Christopher is going on the 3rd year in preschool. He is very smart. Educationally I don't worry he loves to learn. Well I will update again after the MRI. Thank You for your support.

Tuesday, August 10, 2004 12:36 AM CDT

Hello,
Christopher had a really good weekend at his Dad's house. He was really excited to go with his Dad. Christopher went to the zoo with his brother and had a good time. When he came home on Sunday, I took him to a parade that the city had for Fall River Celebrates America. It is an anual thing that they do. Christopher also went to the carnival he had alot of fun on the rides. He went on the giant slide, dragon roller coaster, flying dino, the fire engine and of course the train. He was so very happy. Christopher said I love to be in the city. He would rather be here than in Boston. He hasn't really been able to go and do much during treatment because of counts or he wasn't feeling hot. Now he is ready to roll. He doesn't need his GCSF shot which is really exciting. Sometimes he kids around and says " MoM you forgot my needle in my leg" than he will say just kidding. Christopher gets a laugh out of it. It is really hot today so we decided to go over a friends house to play. He enjoyed playing with Hunter and Savanah. They are 15 mo. old twins. Christopher enjoys other children. He just can't wait to go to school in Sept. He picked out a spider man lunch bag for school. We are due back to the clinic on the 19th of Aug. for counts and we also have an MRI and a chest x-ray. We are praying that the MRI is clear!!!!! Christopher has been through so much like many other little ones battling Cancer. They are all so very strong and I have to thank my son for also helping me stay strong through this battle also. He is a fighter and will keep on fighting. Thank You all for your support. Be sure to leave a hello in our guestbook. Christopher loves to get his mail.

Thursday, August 5, 2004 9:25 PM CDT

Hello,
We came home from the clinic today. Christopher's counts were good his HCT. 32.2 - Plt. 110,000 - WBC 4,200. The good news is NO MORE GCSF SHOTS. Horray Christopher!!!!
I met with the Doc. today. Christopher's Bone Scan came out CLEAR... His CT Scan showed an abnormality in the soft-tissue and muscle in his right leg. They noticed a tiny size unidentifiable spot in his right leg between the knee and the ankle. We are due for an MRI on Aug.19th. We will see if it stays the same size, goes away or gets bigger which we really don't want. We will keep positive through this. Right now he is doing well. There are no complaints from him. Christopher went down to the carnival in the city, he had a great time on the rides. He really loved every minute of it. Well this weekend Christopher will be going to his Dad's house. We finally have a good week. He is excited. Please keep Christopher on your prayer list. Christopher has fought a tough battle to destroy this beast called CANCER. He will beat it just like Christopher says. All that he has been through he really is a strong boy. He enjoys every day that he has to the fullest. Christopher is excited about starting school in Sept. He wants me to let him go on the Bus. Well that will be a tough time for me. My little boy is going to be 5 years old on Sept.3 time really passes by. Well I gotta go for now. Thank You all for your support and prayers.

Thursday, July 29, 2004 9:00 PM CDT

Hello,
Christopher is doing really well today. He has had a fun day. The weather was beautiful outside today. We went out for a bike ride. That seems to be his favorite especially because of the new wheels. We also were able to find some new dinosaurs in the store today, he was really excited about that. We also found him a little turtle and a frog that he also likes. He is an animal kid. I don't really like them especially if they are real. Christopher really loves to feed is fish in the morning. His name is who,who.
Well we will be going to the clinic tommorrow for a check on his counts. We are hoping that they are up and doesn't need any blood. Christopher knows that there will be no more yukky medicine and looks forward to having no more GCSF shots also. We are hoping to stop the shot tommorrow. If all goes well Christopher will be going over Dad's house for the weekend. He will enjoy seeing his brother maxx.
There are some new pictures be sure to check them out if you have a chance. Thank You for your support!!!!!!!!!!

Wednesday, July 28, 2004 5:45 PM CDT

Hello everyone,
Great News July 22,2003 was Christopher's last treatment for Chemotherapy. He didn't have such a good treatment this time. But he is doing fine now. We are soo happy that there will not be anymore "yukky medicine" right now. Christopher has been such a fighter through all of this. He is my Angel. Christopher also helped Mommy stay strong through all of this also. He never really complained about anything. He will beat this... Christopher will be going back to the clinic on Friday to check counts again. We are hoping that his counts will come up and stay up. Also we are hoping and praying for clear scans on Aug.2
Christopher will have his port in place for another 8 months at least. We can't wait for the day that comes out. Christopher is getting ready for school. He will be going to preschool in Sept. He will be in a 1/2 day program. Christopher really needs to be around children more and get back into a normal routine without the Hospital visits. We will be going to the clinic at least once a week and than every month after that. Than it will be on a yearly visit to the clinic. We will follow with the radioligist every 6 months. Christopher has been going to the library, he joined a reading club. For every 20 books read you move on a map to reach a treasure. When you reach 100 that marks the X you get a pirate flag. He really enjoys it. He loves listening to stories. We also got him some new training wheels for his bike. They are much thicker, makes Mommy feel more comfortable that he won't go over. He really flies around on it now. It is really good excersise for his legs also. Well I will try to update over the weekend. Thank You for all your support and prayers....

Saturday, July 17, 2004 8:17 PM CDT

Hello,
Christopher is doing well. He is spending the weekend with his Dad, Michele and Maxx. Christopher went to the Hospital on Friday to follow up with the Radioligist. He feels that Christopher's problems with his legs and bowels are from the extensive surgery he got back in Dec. We are going to see the surgeon who did Christopher's and see what he thinks we should do. This could be temperary or permanant. There were nurves and muscles involved in the suergery. We hope for the best. Christopher doesn't let anything stop him from running around like a 4 year old.
Christopher is excited that his Birthday is coming. He is going to be 5. We are going to get a bubble machine that continuasly blows bubbles for 6 hours. "he loves bubbles"
I am also looking to get the moonwalkers for children to jump around in. I have to make sure we have clearence for it in the yard. Christopher hasn't decided what theme he wants for his birthday. He still has time. In Sept. christopher will be returning to school. He says he wants to go back,but doesn't want me to stay. That is an awsome sign. It is only for 1/2 days(3 hours). Mommy will be o.k. I am nervous about him going back after ending treatment. He will also still have his line in place. Well he is ready so mommy is ready too. He is getting older and more independant. We love him dearly and are very greatful for the loving and happy son we have. I will be updating this journal during the week. Thank You all for your support and prayers.

Wednesday, July 14, 2004 8:22 PM CDT

Hello,
Christopher is doing well right now. We are due back to the clinic on Friday. We have a radiation follow up, and an apt. with orthopedics for his leg. We are working on getting some physical therapy. We have been trying to enjoy the outdoors. The weather hasn't been that good the past couple of days.
This weekend is a good weekend for Christopher to go to his Dad's house for a couple of days. Christopher's counts are rising and Maxx is feeling better.
Christopher has been telling his own jokes. He is so very funny. The stuff he comes out with. He is growing up so fast. In another 2 months he will be 5 years old. We are going to have a big party for him. Christopher has a treatment on July 22, hopefully this one won't be too bad on him. He always finds the strength to his silly self. We love him so much , he is a fighter. Well I have to go. Thank You for all your support.

Saturday, July 10, 2004 8:48 AM CDT

Hello,
Christopher is doing well today. We are due to go to the clinic on Monday to check counts. Christopher was not able to go to his Dads for the weekend. His counts are not that good and maxx may have strep. We hope he feels better soon. Christopher really misses his brother Maxx. Next weekend will be a good one. Christopher's counts will go up and Maxx will feel better. We are going to the store to get Christopher sneakers. Today we are going to the beach. Were going to wait until later so it can cool off a bit. Christopher loves to throw rocks in the water. He also loves to play in the sand. We went to the park yesterday. He has alot of fun. Christopher was swinging like a monkey on the bars. It makes me nervous but, he is a boy and he is going to swing anyway. I'm there to protect him. He already had the cast on his foot. We don't want another one.
Christopher is still taking the laxitive and it doesn't seem to be working to much. We will follow up on that also this week. They are going to take more x-rays to see how much is still backed up. He doesn't complain much at all so it is difficult to tell when he is bothered by something. Christopher is a very happy and bright child We love him dearly. He is a fighter and we will complete this battle. Thank You for your support and prayers and I will update this journal again next week.

Thursday, July 8, 2004 2:06 PM CDT

Hello,
I would like to ask if you could please pray for Colby Dufour's family. Colby passed away he was 2 years old. fighting cancer. There will be a funeral mass on Sat. that I will be going to pay my respects.
Christopher went to the clinic today. His counts are dropping a little. We have to continue the shot till tommorrow. On Monday we are due back for counts again. We also talked about Christopher's bowel problem. He is going to be on a laxitive for a week. After that they will x-ray him again to see if it had gotten any better. Hopefully it does. If for some reason it doesn't work, they may have to opperate to take the mesh out that he has in him holding his intstines. Our last treatment is coming. We really don't need any complications. We can hope for the best. Christopher is playing with his spider-man toys. That is one of his new themes.
I have been talking to Christopher about starting school in September. He shows signs of not wanting to part from Mommy. He thinks because he is going to be 5 he can go to k with all the others friend he had in class. He has to wait another year because of the way his Birthday falls. If he was born 2 days earlier he would be going to k this year.
He is a smart child. He will do o.k. in school. Well I will be updating this journal over the weekend. Thank You for your support and prayers.

Tuesday, July 6, 2004 3:01 PM CDT

Hello,
There are some new pictures in the photo album. Check them out if you have a chance. Christopher went to the clinic today. His counts were good, they really haven't fallen yet. We will go back Thurs. to check counts again. They took some X-rays today of his foot. The Doctor removed his cast. What a releif, now it's bath time. Christopher is really excited about that. We also had an X-ray taken to see if he is backed up. He has a large amount of bowel in the colan. He is having movements but they are not solid. He is put on Miralax to help him. We are going to speak to the Surgeon who did his surgery. Hopefully this is something that we can get control of. When he had his surgery in December, The Doctor had him marked for a colostomy bag they really beleived he would need one. Miraculasly Christopher came out of surgery without a bag. We were so very happy about that. Now he is having problems so I'm nervous. I don't want to see Christopher go through anymore battles. He has had enough. We can pray that everything will turn out good. As long as Christopher remains happy I'm Happy. He is all over the place without his cast on. He says "look mom I'm running" He is so cute. Well I have to be going. Thank You for all of your support and prayers.

Saturday, July 3, 2004 6:07 PM CDT

Hello,
Christopher is doing good. He is spending tonight over his Dad's house. He will be coming home tommorrow. We are planning on going to see the fireworks in Fall River on Sunday. Christopher really enjoys them. We walk from our house down to the park. We avoid traffic that way. There are some new pictures in the photo album, please be sure to check them out. Christopher is going to Boston on Tuesday to have his cast removed. We need to go back on Thursday for a radiation follow up apt. He has 2 weeks off from treatment and then his last addmission on July 22. We are looking soo forward to this. We will keep praying for clear scans. Christopher is very strong and such a happy little guy. Well we hope for the best for him. Christopher is scedualed to return back into the pre-k program at the school in Sept. It is really a bummer that he will be 5 years old when school starts, but has to wait till he is 6 to go to k. He missed the cut off by 2 days. We are not to worried about this he is a very smart child. We work with him at home so he will be o.k. Christopher will be the taller one in the class. He really is sprouting up.I will be updating next weeek. Thank You all for your support and prayers.

Friday, July 2, 2004 8:34 PM CDT

Hello,
Christopher is doing well today. We went into the hospital on Wed. to check counts. They ended up addmitting him for his Chemo stay that was suposed to be on Thurs. He had a really tough night after Chemo. He was vommitting quite a bit. The Doctors gave him some extra pre meds to help with vommitting. Christopher bounced back Friday so we were able to come home for the weekend.
July 22 is Christopher's last schedualed treatment. We have test set up for Aug. 6 . He is going to have a CAT scan, MRI, Bone Scan. We will be praying for clear scans. Christopher is a true fighter and he will beat this horrible monster that was in his little body. Christopher has done really well through all he has been through. We are soo very proud of him for his accomplishments he has made in the past year.
We are due to go back to the hospital on Tuesday for a check of counts and to have his cast removed from his foot. We will be soo very happy when that day is here. He wants to go to the beach and throw rocks in the water. He also loves taking bubble baths. The worst thing about the cast is it smells. Christopher keeps trying to put things down in it to scratch an itch. We really have to watch him with that. Well I guess I better be going for now. i will be updating over the weekend. Thank You to everyone for your support and prayers.

Monday, June 28, 2004 12:54 AM CDT

Hello,
Christopher is doing well today. He came home yesterday from his Dad's house. Christopher is due to go to the hospital for an overnight chemo treatment on Thursday. We are hoping everything will turn out smooth. Christopher is still getting around with the cast on his foot. He can't wait till it comes off. I will be trying to update pictures when I have a chance. Be sure to check them out.
One of our little friends passed away. His name is Ian, he lives in New Jersey. Please pray for this family.
www.caringbridge.org/nj/ian.
I will be updating this journal over the weekend. Thank You all for your support and prayers.

Thursday, June 24, 2004 8:37 PM CDT

Hello,
Christopher went to clinic today for his Vincristine Chemo. His counts did drop and they are begining to rise up. His ANC is 650. It needs to be at least 1200 to give the Chemo on Thursday for the 48 hour addmission. Dr. said that they will go up. He is doing better on his foot. He is getting around pretty good with his cast on. It started to itch him today. He wanted to know when it comes off. We have another week to go with it. We went for ice cream today. Christopher loves vanilla ice cream. We also went to the store and he was able to pick out a new DVD movie Land Before Time. He really likes dinosaurs. Well I have to be going. Thank you for your support and prayers.

Wednesday, June 23, 2004 4:33 PM CDT

Hello,
Christopher's counts were really good this weekend and still going good. We had to go back to Boston on Monday because, Cristopher fell and landed the wrong way on his right foot. He was complaining about it all morning. I knew there had to be something wrong he never complains much. Come to find out he had a small Fracture to the foot. The doctors put a cast on it for 2 weeks. He seems to be doing o.k. with it. He is walking much better than before. Other than the injury he is doing really well. We will be going back to the clinic tommorrow for Vincristine chemo. We will be coming back home same day. Next week we have an overnight addmission, than for 2 weeks no chemo than the last schedualed addmission is for July 22,2004. We are sooo very proud of Christopher for doing such a good job and fighting strong. He is truely a hero. We will pray for clear scans. Thank You for your support and prayers.

Saturday, June 19, 2004 8:21 PM CDT

Hello,
Christopher is doing well right now. we went to the clinic on Thursday for his counts and Chemo. His counts were good they didn't fall as much as they normally do at this time after treatment. The Doctor said his bone marrow is working to keep his counts higher. His HCT was 38.4 on Thursday. His PLT were 144,000. His WBC was 2,300. And most important his ANC was 4,000 which is really how they decide if he needs the GCSF shot. Christopher was very happy to hear that his last one this cycle was on Friday. The nurse will come on Monday to draw labs.
On Friday Christopher and I participated in the Greater Fall River Relay for Life at our local High School. We signed Christopher up for the Survivors walk. Soon after they approached me and asked if it was o.k. for Christopher to have the responsibility of cutting the opening ribbon to kick off the walk, for a fundraiser for the American Cancer Society. Christopher also was able to release the dove from his hands. It was a very touching night. Christopher was in the local newspaper. They opened up by saying that "Usually a 4 year old boy and a 88 year old man don't have much in common but, tonight Christopher Litchfield and Hank Harrington are the youngest and the eldest cancer survivors at the sixth annual Relay For Life in Fall River".
This was a really enjoyable night Christopher walked 6 times around the track with breaks in between. He did really well and loved every minute of it. When it was time to come home he fell right to sleep in the car. He was very exhausted from having sooo much fun. I did this for my son and also in memory of my mother who passed away in 1988 of breast cancer. We can beat this. Keep praying and the end of treatment are coming near. Thank You for your support and prayers.

Tuesday, June 15, 2004 7:38 PM CDT

Hello,
Christopher went to the clinic today to check counts. His counts actually went up. Which is unusual for 5 days after a Overnight chemo stay. WBC 12,000. PLT 150,000. and his HCT 38. Christopher's counts might fall over the weekend or they could start to go up. We will have to wait and see. You never can tell. Christopher didn't have to do the GCSF shot today. Christopher will start again tommorrow with GCSF until we go back to clinic on Thursday to check counts and get Vincristine chemo.
There are not many weeks left to the end of the protocol. We will still have to go back weekly to get MRI, CAT scans, spinal taps, and bone marrow test along with bloodwork. At the end of his treatments I will be so very happy for Christopher he is a really stong boy. He makes me very proud. Sometimes it's scary coming to the end of treatment. We just want to pray for clear scans and hope this monster doesn't come back. Until I update again Thank You to everyone for your support.

Saturday, June 12, 2004 6:21 PM CDT

Hello,
Christopher was in the hospital on Thursday for his treatment. This round was very hrd on him. He had alot of vommitting. All day Friday he rested in bed. His legs have been bothering him. The Doctor said that the Vincristine Chemo was causing the leg pain. When he received his Chemo they gave him 1/2 the dose on Vincristine. Sat. morning the bloodwork showed that he needed a blood transfusion. His HCT was 24. His platletts were good. He started his GCSF shot today so when he comes home tommorrow I will continue to that for 5-7 days. We will have a nurse come to the house on Tuesday to check his counts. Hopefully we won't need any more blood. We were really excited to hear that Christopher's last scheduled treatment is July 22, 2004. He will need to get blood the following week, than we can start with being in rimmission. We will keep our prayers going. We are going to be going for a MRI, Cat Scan, and a spinal tap for post treatment. September is Christopher's Birthday he will be 5 years old. We are going to have a big party for him. I'm working on a parade just like he wants. Well I'm going to go for now. Will keep updating. Thank you for your support.

Tuesday, June 8, 2004 9:35 AM CDT

Hello,
Christopher is doing really well. It is a beautiful day out today. Christopher wants to go down to the Battleship Cove to ride his bike. Which is a great idea they even have a feild you can play ball at. Yesterday Christopher and I went to the store he wanted a baseball bat and a ball. He really loves to play baseball. He is getting older now and I find him wanting to play more sports,which I have no problem with it. I just have to worry about him getting hurt. Christopher wants to be able to play like children his age and he is doing really well, considering his legs and feet bother him when he does alot of walking or running. He tries very hard. He is a true fighter. we are so very proud of our little boy. Thank You to all and I will update the journal at the Hospital if I can on Thursday or Friday.

Monday, June 7, 2004 8:31 AM CDT

Hello,
Christopher came home from his Dad's house last night. He had fun, he also felt good. This week is his good week for Christopher. He was excited he really wanted to go to school today, but the teacher told me that there are 3 kids in his classroom that came in this morning not feeling to well. Two of the children have green from the nose which is not a good sign and there was also another child who has a barking cough which they thoght could be croup. I was frustrated because the parents shouldn't be sending there preschoolers to school sick. I decided it would be best for Christopher not to attend. We really don't want him to catch anything that we could help anyway. Christopher goes into the Hospital for Chemo on Thursday. We are now counting our weeks left. We will keep praying for clear scans. Thank You to everyone for your support and prayers.

Saturday, June 5, 2004 10:45 AM CDT

Hello,
Christopher is doing really well right now. He is spending the weekend with Dad, Michele and Maxx. He was sooo very sad yesterday, I forgot the carseat in the car and Steve had left for work. Christopher was crying saying. "I can't go to my Dad's house now MoM" Before Michele came to pick him up she stopped at the store and bought him another carseat. Christopher was so happy that he was able to go this weekend to his Dad's. This is a good week for Christopher. We will be going back on Thursday for overnight Chemo treatment. Christopher has 9 weeks left. We are excited and also scared. We will make it through this. Christopher has been dealing with all this change well.
I went to a meeting at Christopher's school on Friday. He missed the cut off date for grade K. He is going to be in preschool for another year. This will be his 3rd year. He wasn't in school much this year because of illness. The Teacher said if they find he does well form Sept-Dec and is able to attend 1/2 day program M-F they will be able to put him in the intergrated K. If that plan doesn't work we will sign him for K in April so he will be 6 when he goes to K.
Christopher wants to go to K with the rest of the preschool friend but he was born 2 days after the cut-off. He will be o.k. Christopher loves to go. He is such a very happy child. It makes me feel so happy. Thank You to everyone for your support.

Thursday, June 3, 2004 4:50 PM CDT

Hello,
Christopher went to the clinic today. His counts were good. His WBC is 2.5 & platletts is 133.000 & his HCT is 32 which is awsome. Christopher's ANC is 1.000. The Doctor said he wouldn't need the GCSF shot, his counts will continue to rise. Next Thursday we go to the Hospital for an addmission. The time is coming closer to being finished with treatments for the 52 week proacol. Christopher is a true fighter. He is going to be fine. There is this young adult at the clinic that is in need of a bone marrow transplant, his family has gotten tested and nobody is a match. Please add him to your prayers his name is Larry. Well I will be updating this journal tommorrow. We have had a long day at the clinic. Thank You for supporting Christopher and my family.

Wednesday, June 2, 2004 8:48 PM CDT

Hello,
Christopher had a really good day today. He has been feeling good. We go tommorrow to the clinic for the Vincristine Chemo. We will be coming home tommorrow.
When Christopher was diagnosed I put his bed in my room so I can watch him at night. Today Christopher says to me Mommy I want my bed back in my room. I said o.k. we can do that. He is a big boy now. He is now sleeping peacfully in the room. Mommy needs to relax, but I'll be up checking on him at night. Well the good thing is Christopher is ready for it again.
He is such a strong little boy. He sure is a fighter and he will beat this. He has come a long way. We are so very proud of him. Thank you to everyone for your support and prayers.

Tuesday, June 1, 2004 1:11 PM CDT

Hello,
Christopher is doing real well today. The Nurse came this morning to draw his labs. His platletts are 119,000. His HCT is 32. His white blood is 5,000. And his ANC is 4,000. All of these counts are good for him right now. This is the time the counts will rise. He will go to the clinic on Thursday to get his Vincristine Chemo drug. We are sooo very happy that he doesn't need any transfusions this week. He also DOES NOT need his GCSF shot, until next Friday. Christopher is really excited about this. I will update this journal again tommorrow. Thank You for your support and prayers.

Monday, May 31, 2004 6:30 PM CDT

Hello, Everyone
Christopher is doing well. He came home to Mom today after spending the long weekend with Dad. Christopher went to the clinic on Thursday for his Chemo. He also needed to get blood and platletts. The Visiting Nurse will be out to the house tommorrow to take his Labs. The Hospital will call us when the counts come back. I don't think he needs any blood. He seems to have his color. Especially he is moving around like Christopher, that's for sure. We are going to watch a movie tonight. Christopher has a new Thomas The Train Movie. Well I have to be going now. Thank You for your support and prayers.

Wednesday, May 26, 2004 1:41 PM CDT

Hello,
Christopher is doing o.k. today. He had a rough night last night. We took him to the local Hospital St. Annes to be checked from his fall down the stairs. He has a bruise on his right side, he also has a couple of bruises on his head. The Hospital took x-rays and said that there was nothing wrong. Luckily he just has bruises. It was very scary to actually see my son falling down the stairs. I did grab him as fast as I could. He is doing o.k. today. We are due to go to the clinic tommorrow to get blood and maybe platletts. He also will be getting the Vincristine drug. It will be a long day. 10 more weeks for his last treatment. We'll keep on praying. Thank You for all the support.

Tuesday, May 25, 2004 10:51 AM CDT

Good Afternoon,

This a good day for Christopher. we had the Nurse draw his blood this morning. The Doctors called and said to stop his Gcsf shot today and continue tommorrow. His WBC is 9,000. His Platletts are 72,000. and his HCT is 24. Christopher is due to go back to the clinic on Thursday. He is scedualed to get the Vincristine Chemo. Christopher may need to get Wht Blood and Platletts transfusion. We will see. Christopher is acting really energetic, he also has an appitite to eat. Well I gotta go for now. Christopher wants me to play with him. I will be updating this journal tommorrow. Thank You for your suppot.

Monday, May 24, 2004 5:34 PM CDT

Hello,
Christopher is doing really well today. The weather isn't that nice so we have been just hanging out indoors. Hopefully we get some good weather soon. The Nurse will be coming tommorrow morning to draw his Labs. We are not sure if he will be needing any blood. Christopher is bouncing off the walls, very active eating and drinking well. I really don't think he will need blood. As for the platletts he hasn't been bruising from the shot or bleeding at the gums so again to me it looks like he will not need anything. Which would be really good for us. We won't have to be back until Thursday to get his Vincristine chemo drug in the clinic. Things could change we just sit and hope for the best. There are exactlly 11 more weeks of treatment. Time is getting closer and closer. Thank You to everyone for your support for our son Christopher. Keep on praying please.

Sunday, May 23, 2004 9:26 AM CDT

Hello,

Christopher has been discharged from the Hospital. He is spending the day with his Dad. He is doing really well. There are exactly 11 more weeks of treatments left. I am also very happy and I thank God every day that my little Christophers MRI he had showed that the fluid in the surgery area is going away and it is not a mass. That was the greatest news I heard. When I was at the hospital I ran into the Surgeon Dr. Gilcrest. He looked at me and told me that Christopher was special, the surgery he performed on him was difficult. He is so proud to see Christopher running around the way he is. He also was happy to hear that Christopher doesn't have any problem moving his bowels. That avoides having to have a colostomy. I felt really good touching base with him. He looked at me and said that I removed it all plus some. To me Dr. Gilcrest has an angel over him. We are due back to the clinic on Monday for blood counts. I will update this journal tommorrow. Thank You for your support and prayers.
My new e-mail address is listmeyou@wmconnect.com

Friday, May 21, 2004 9:43 AM CDT

Hello,
Christopher came into the Hospital on Thursday for his overnight Chemo treatments. We are at the playroom right now. Christopher is playing the Tonka Game on the computer. Christopher has only had a couple of episodes of vommitting. He is getting plenty of pre meds to help with the sickness. Christopher did break out with his normal rash on his cheeks. He also has some red dots on his body. The Doctor's say that it is part of the rash. So far he is doing pretty good. Possibly we will go home on Sat. He will also need to start his GCSF shot today and continue for about 5 days. Hopefully by next week he will have another good week. Well I have to go for now. Thank You for your support and prayers.

Monday, May 10, 2004 8:20 AM CDT

Good Morning,
Christopher is doing well today. The Visiting Nurse is coming over this morning to draw labs from the port. We are hoping he is not going to need any blood today. He's looking good, eating, drinking and he is not tierd at all. He is a very energetic little boy. He sees the sun out today and wants to go outside on his bike. I told him we have to wait to see what his counts are. It is a beutiful day. We are going to make the best of it and enjoy. Next weekend Christopher is going to Bear in the Big Blue House.He is really excited about that. He is going with Dad, Michele and Maxx. He will have lots of fun. It is very hard to plan things for Christopher to do. We have to make sure his counts are good before we take him anywhere there is alot of people. The week before he is due to get his 48 hour Chemo stay is usually his best week of the month. Well I have to go now. I will update again to let everyone know how his counts are today. Thank You for your support and prayers.

Friday, May 7, 2004 8:59 PM CDT

Hello,
Christopher had to go back to the Hospital today to get another platlett transfusion. His counts are on the low side. Christopher is going to have to get the GCSF shot for another 3 days till we go back to check our counts again. Today we spent most of the day in Boston. When we got home Christopher wanted to play outside with the kids. He did he had fun, we came upstairs took a nice warm bath. We ate some chicken and read stories. Christopher has been wanting to go to bed all on his own. He has some hard long days. Christopher is a very outgoing child. All day he is non stop especially with his talking. He has such an imagination of his own. When he goes outside on his bike, he will stop at one part of the fence and get off the bike to pump his gas. It's so cute he does it every time. This weekend Christopher will be spending with me, Maxx isn't feeling too well so Dad is going to come over and hang out with Christopher for a little. Christopher was soo excited he made me a Mother's Day flower. It's beutiful I Loved It.
Thank You for your suppot.

Thursday, May 6, 2004 9:28 AM CDT

Hello,

Christopher went to the Hospital yesterday for his MRI. We haven't heard anything yet. Hopefully the begining of next week. His counts were really low yesterday so he needed to get red blood transfusion and also platletts. It was a really long day for us. Christopher came home feeling good. He was getting a little bit of leg pain last night, besides that he is doing well right now. Christopher sees that the sun is out and it is warm, so he wants to go out and ride his bike. Christopher has been doing really well with going to the potty. He said he wants to get a horn for his bike so people can hear him. He's too cute. We all LOVE him very much. He looked at me last night after stories and said " mommy I Love you, you take care of me when I'm sick" That really touched me. He is such a brave little boy. Well gotta go for now. Thank You for your support.

Monday, May 3, 2004 4:18 PM CDT

Hello,

Christopher has had an excellent day today. This morning Christopher decided to put on BIG boy underwear. He said he wants to go on the potty, because he's a BIG boy now. He has been dry all day today. I'm sooo excited. Christopher is too. Another excellent thing today is Christopher wanted to sit there and watch me prepare his GCSF shot. I told him it's o.k. if you want to you can. We were sooo very proud of him come shot time, he actually didn't move at all. He didn't even shed a tear, Christopher actually smiled at me and said I LOVE YOU MOMMY. I was sooo very thrilled my little boy is growing up and handling things sooo well. We are very,very proud of Christopher. Keep up the good work. Well we go to the Hospital on Wed. to do another MRI. Pray for clear scans. We will also have his counts checked to see if he needs to continue the shot. Have a great day and Thank You for all the support.

Sunday, May 2, 2004 3:31 PM CDT

Hello,
Christopher came home to mommy today. He is doing well. Christopher is not to happy with the GCSF shot, but it needs to be done. He was extremly excited about his new bike. We had an o.k. morning with the weather, so we went around our nighborhood for a ride. He did really well. I'm so proud of him for all his acomplishments he's made. He is so very strong going through his treatments. He is a fighter and we will beat this. It started raining so were going to hang out the rest of the day in the house. I will update this journal tommorrow. Thank You for your support.

Saturday, May 1, 2004 6:37 PM CDT

Hello,

Christopher was discharged from the hospital today. He is going to spend the night at Dad's house and come home tommorrow. He did o.k. with this treatment. His counts when we left the Hospital were good. His ANC was 4080. He will get his GCSF shot for about 5 days. Which will help keep his counts up. We go back to the Hospital on Wednesday for his MRI , They will check his counts then to see if he will need a transfusion. We are going to the store to buy him a bigger bike. He is getting taller he is 42 inches tall. The bike he has is the one he got for his 2nd Birthday. The new bike will have training wheels. Hopefully the nice weather will stay and we can enjoy the outdoors more. Today was a beautiful day. Well gotta go for now. I will be updating tommorrow. Thank You for your support.

Wednesday, April 28, 2004 9:29 PM CDT

Hello,

I'm just leaving a little note to say that Christopher's quilt is done I have the web site for anyone who would like to drop by. http://quiltsoflove.com/quilt_2004/christopherJL/christopher.html.
Thursday morning we leave to go to the Hospital for Chemo. I will update the journal to let you know how he is doing. Thank You for your support.

Wednesday, April 28, 2004 1:47 PM CDT

Good Afternoon,

Christopher is having another good day. We are going to go outside in a little while to ride his bike while he can. It is beautiful weather out today. Tommorrow we go back to the Hospital for his overnight Chemo treatments. I'm hoping his body handles good and he can enjoy home again. This week has been an excellent week for Christopher. Two weeks in a row before, Christopher was in the Hospital for Temps. and his counts were too low. Christopher gets all excited if his counts are up. Especially when it's the weekend and he wants to go to his Dad's house. He really loves to play with his brother Maxx. Well we have to get going outside. Thank you for all your support and prayers. Christopher will beat this battle with Cancer!

Tuesday, April 27, 2004 3:41 PM CDT

Hello,

Christopher is doing well today. We went outside today to enjoy the fresh air. Christopher rode his bike to the park and back. He did very well. He also enjoyed playing at the park. He sure is getting good at the monkey bars. We are very happy that Christopher will not be needing his shot until 24 hours after Thursday's Chemo. We will be in the Hospital probly until Sat. if everything goes well.
There is a women that is going to be making Christopher a photographic quilt on the computer. The address to it is www.quiltsoflove.com. They make these quilts for the children with life threatning illnesses. A few of them have Rhabdomyosarcoma just like Christopher. I have been talking to people all over the U.S. that are going through what we are. There is one boy who had his port removed on April 9. He was thrilled, they had a party for him. He was able to keep his port. That means the end of treatment. God Bless him he faught a battle for 1 year. If you have the chance check out the different quilts on the web. Thank You for all the support. I will update tommorrow.

Sunday, April 25, 2004 10:50 AM CDT

Hello,
Christopher is doing well. He has been staying with his Dad for the weekend. He will be home tonight. Christopher is due to go back to the Hospital on Thursday for his Chemo treatments. If everything goes good this week. We just have to watch his bruises that he is getting. If he keeps bruising like this we will probly have to go back to the clinic to get platletts. That is what clotts your blood. Besides that Christopher is feeling good. He doesn't even have to take his shot until the weekend. Which he is very excited about. He really needs a break once in a while from the shot. I just try to keep telling him that it is medicine to keep his counts up so we can be home longer instead of being in the hospial. He does really well. He is a strong little boy. He is fighting this Cancer. He will beat it!!!!!!!!! Keep on praying for my son. The prayers are working. Thank You.

Friday, April 23, 2004 7:23 PM CDT

Hello,
Christopher went to the clinic on Thursday. We were very happy to hear that Christopher's counts went up to 50,000. Which is extremly high, but that's o.k. The GCSF shot is what did it, because he has been taking it since we got discharged from the Hospital on Monday. After clinic on Thursday we decided to take the kids to the Boston Aquarium. They had a great time. Kaylee and Josh were with us also. Christopher loved seeing all the different kinds of fish. He also liked the Jelly Fish. Another favorite was the play area they had for the kids. After that we also went to Quincy Market Place also in Boston. We walked around and then stopped for an ice cream. Christopher loves eating ice cream. We are due to go back to the Hospital on Thursday for our overnight chemo treatment. This weekend Christopher is staying with his Father. He loves spending time with his brother Maxx. I want to Thank everyone for your support and prayers.

Wednesday, April 21, 2004 10:19 AM CDT

Hello,
Christopher is having a good day today. We went out for a walk. Christopher wanted to ride his bike. He did really well. He also loves to ride fast. We have been enjoying this nice weather we have been having. Christopher goes back to the clinic tommorrow. Just to check his counts, so we will know if we can stop the shot. Only until next week.
He is due on Thursday to get his 3 chemo drugs overnight for 48 hours. Time sure does fly by. Christopher is hanging in there being a true fighter he will beat this. One day at a time. Until next time thank you for your suppot.

Monday, April 19, 2004 6:13 PM CDT

Hello,
Christopher went to his Dad's house on Friday. They had a nice weekend planned, nice weather for a change. Christopher got a temp of 101 at night so his Dad had to bring him to the Floating Hospital in Boston. Because it was late they had to go to the Emergency room. They ended up addmitting him to the Hospital and teated this like it was infection to take praucation. They had him in isolation until the cultures came back. Which were normal. Christopher's last temp was on Sat. at 400 pm. We finally was able to come home today. Christopher is sure happy to be in his house. We went for nice walk today to enjoy this good weather we have. Well Christopher is surely a strong little boy. He is going to keep fighting this. I just hope and pray that Christopher's counts will stay good. So he can enjoy the everyday things that little boys do. He loves playing outside. Which is something he's not able to do while being at the Hospital. Well gotta go for now. Until next time Have a good night. Thank You.

Wednesday, April 14, 2004 9:07 AM CDT

Good Morning,
Christopher is having another good day today. He woke up this morning in a very happy mood. It's a rainy day today, were just going to hang around. Thursday we have to go to the clinic and get Chemo and check his counts. We are hoping that he will not need his shot for the weekend. Hopefully we get some sunshine soon so we can play outside. Well gotta go for now. Thank you for supporting Christopher.

Monday, April 12, 2004 6:13 PM CDT

Hello,
Christopher went to the clinic today. He is feeling much better today. His counts were up to 25,000. Which is good. The Doctor's stopped his GCSF shot today, but will resume it tommorrow. By Thursday they expect his counts to drop from the Chemo. His HCT was 24.4 They usually like to see that above 25. They are going to wait to Thursday to decide of any Transfusions. In the mean time if he feels to tierd besides the normal he will go in sooner. We are 24 weeks into treatment. We have 28 more weeks left to this protical. Keep our fingers crossed that in Sept.Christopher can have a Birthday bash for his 5th Birthday. Cancer free!!
Christopher really wants a parade for his birthday. Were going to see what we can do. Anything to put a glowing smile on my son's face. Well gotta go. Thank You.

Sunday, April 11, 2004 3:22 PM CDT

HAPPY EASTER,
Christopher is not feeling well today. He has had some episodes of vommitting, can't hold anything down. He is very tierd. I beleive his counts are dropping low. He had his Chemo on Thursday. We expect them to drop. He may need to have a blood transfusion on Monday. He may also need Platlets. Which is what clots your blood. He has some really dark bruises. We also had to give him his GCSF shot today, which he did not like. Who would? He has been napping throughout the day, We had an Easter Egg hunt yesterday with the kids. Kaylee and Joshua slept over. They really enjoyed the Egg hunt. Happy Easter to everyone, Until next time. Thank You for your support.

Thursday, April 8, 2004 1:00 PM CDT

Good Afternoon,
We are at the hospital. Christopher did his MRI, CT scan his follow up radiation apt. and he also was sent for a cardiogram test for the heart. The Doctors noticed that his heart murmur sounded louder than before. They need to check that because the Citoxin Chemo that Christopher gets could dammage his heart. He was addmitted over night for Hydration fluid. They started the Chemo treatments this morning. He is doing well so far. Were at the playroom. Christopher is playing a game on the computer. If everything goes well today from Chemo. he could go home tommorrow afternoon. Keep on praying for my little guy. He is very strong and will pull throgh this. I will update again when I get the test results back. Thank You for your support.

Sunday, April 4, 2004 7:35 PM CDT

Hello,
Christopher is doing well right now. We are home. Christopher was able to go to his Dad's house this weekend. He was also able to go to our friends twins 1st birthday party. He had lots of fun with the other children. He played musical chairs with the other children. I love seeing Christopher doing the things that children should do when there are 4 . When his counts are up I try to do as much as we could, because we never know what could happen from one day to the next with his counts. He is a fighter and he is continuing to fight this battle. We go for our follow up radiation apt. on wednesday and also a MRI and CAT SCAN. After all the testing we will be admitted for his 48 hour Chemo treatments. This will be a very busy day for us. Well I have to go now. Thank You to everyone for your support and prayers.

Tuesday, March 30, 2004 8:59 PM CST

Hello,
Christopher has had a tough weekend. I took Christopher to the clinic on Thursday for some blood. We came home on Thursday. Friday morning Christopher came down with a temp of 104.0 so I called the clinic and they said to bring him right in. I did that. We ended up having to stay Friday, Sat. Sun. Mon. and Tues. The Doctors did blood cultures on him that came back Neg. Which was a good sign. His ANC count was at 000 for four days finally his counts went to 300 which they like to see 500 or higher. This time after Chemo his counts took a while to recover. Christopher's body is getting tierd from the treatments so his body is taking longer to recover his counts. We will be monotoring him with his counts. He needs to continue his GCSF shot everyday until his counts come up. We really have to be cautious about christopher being exposed to anyone who might have a cold or has been exposed to something. We don't want Christopher back in the Hospital. He is doing o.k. tonight he's sleeping so peaceful right now. Tommorrow is another day hopefully he is going to have a good day home and enjoy his own surroundings for a little bit till we go back to the Hospital. Well hope to upate this journal soon. thank You for your support and prayers.

Thursday, March 25, 2004 6:58 PM CST

Hello,
Christopher went to clinic today. He received his Vincristine Chemo Drug. His counts are low. His White Blood Count is 200. That's what fights infection. His HCT was 17 that too was low. He has a heart murmer they noticed has been getting louder due to his HCT count. His heart was actually working too hard. They gave him a Blood Transfusion. His PLT were 70,000 which is good. That is what clots your blood. Christopher has been running around and being his happy energenic self. You would not be able to tell today that his counts were that low. Christopher shows that he is fighting and will get rid of this nasty germ forever. One Day At A Time. Well for now Thank You.

Tuesday, March 23, 2004 8:06 PM CST

Hello,
Christopher is doing well. He has been going to school. Christopher takes a bus. He loves it alot. Christopher can't wait to go back to school tommorrow. This morning was a tough morning for Christopher, he lost most of his hair overnight. I assured him it will come back and that he is a very strong, brave boy. He is soooo handsome. We go back to the Clinic on Thursday for a check on counts and his Vincristine Chemo Drug. We will be coming home the same day. Most likely we'll still have to give him his GCSF shot for another 5 days or so. That part Christopher really doesn't like very much. I don't blame him for that. Mommy doesn't like it very much either. I do the best I can to make him as comfortable as possible while going through the treatments. He is a fighter and we will win this battle with Cancer. Thank You for your support and prayers.

Sunday, March 21, 2004 8:30 AM CST

Good Morning,
Christopher came home from the hospital on Friday. He did good with his Chemo this week. There were only a couple episodes of vommitting. Cristopher went to his Dad's house on Sat. He will be coming home today. We will be going to the clinic on Monday to check his counts. Christopher may need a Blood Transfusion his HCT was 24 when we left the Hospital that is on the low side. This week Christopher's counts will start to drop. He will also need to get his GCSF shot everyday for 5 days until his count go back up. Besides that Christopher is doing very well. He is staying strong and still fighting this battle with Cancer. For Christopher's 5th Birthday in Sept. he wants a parade! I'm going to see what I can do to make a parade for him. That is around the time where he should be in Remmission. We will have a BIG PARTY for that. Well until next time Thank You for your support and prayers.

Tuesday, March 16, 2004 7:38 PM CST

Hello,
Christopher is doing well. He has been going to school. He enjoys it very much. He didn't even cry. He was very happy to see his friends again. We will be going to the hospital for our overnight stay for Chemo treatments. Hopefully we will be out after a couple of days. We also have a follow up apt. with radiation on Thursday. Christopher is doing really well. He is such a happy little boy. He is also very strong. We will beat this!!!!!!!! Well until next time Thank You for your thoughts and prayers.

Thursday, March 4, 2004 8:36 PM CST

Hello,
Christopher went to Boston today. We went to the clinic to get Chemo and check counts. His Platlets was 40,000. today dropped from 106,000 on Tuesday. His WBC which is what fights infection was 2,300 today dropped from 22,000 on Tuesday. This is normal about a week after Chemo is givin that counts are lower than usual. The Visiting Nurse is going to come to the house on Sat. to draw some Blood. This is the first time that Christopher is getting acsessed at home. He will be getting a needle in his port to draw the blood for anybody who does not know what acsessed means. Even though Christopher's counts are on the lower side he is still so happy and ready to go. Christopher is very strong. He might not like getting the needles, but he knows it's the medicine that makes you better. He is an ANGEL. Thank You Until Next Time.

Wednesday, March 3, 2004 2:10 PM CST

Hello,
Christopher is having another good day. We went out today for a walk. Christopher wanted to go to the BIG TOP playland that they have in our city. We went in we were the only ones there with Jessicca and Ethan. They are our neighbors. Christopher had lots of fun. He went on some rides, played some games, won some tickets and got to pick out some surprises with them. He picked a few little dinosaurs. He was very happy and excited. I love to see him with a smile on his face. Everyday that goes by we try to make sure Christopher is happy, comfotable and of course to do things that he is able to do on that day. He lives life to the fullest. Thank You for your support and prayers.

Tuesday, March 2, 2004 4:39 PM CST

Goog Afternoon,
We went up to Boston today to have Christopher's blood checked. His counts were good they havn't dropped yet. By Friday his counts will be low. Usually it takes 5-7 days before the counts start to drop. At that time is when you need to be causious of GERMS. We will be going back on Thursday to check counts again and also get his Vincristine Chemo drug. We will be returning home on Thursday. This weekend Grandma Del comes to stay for a little bit. Christopher is excited about that. He wants to go to the train station to pick her up. Well I gotta go. Until next time.Thank You for your support.

Monday, March 1, 2004 2:07 PM CST

Hello,
Christopher is having a good day today. We went to the park for a little while today, he had fun. Cristopher was enjoying the nice sunny day and fresh air. There were also other children at the playground, so Christopher was able to play with them. Tommorrow we go to the clinic to have Christopher's counts checked. We will go back on Thursday for the Chemo. Well gotta go for now. until next time. Thank You.

Sunday, February 29, 2004 2:51 PM CST

Good Afternoon,
Christopher is doing well today. He had to start the GCSF shot today. He really isn't to happy about that. After it's all done he goes to the treasure box for a prise, which usually makes things alot smoother. Christopher will go back to the Hospital on Tuesday to check his blood counts. We will also go back on Thursday for his Vincristine Chemo drug, which is just a push so we will be coming home that day. We have been through alot and Christopher is doing so well. We still have to fight this battle until about Aug. 2004. Christopher is a strong little angel and he will beat this!!!!!!!!!!!!! Thank You to everyone for your support and prayers.

Saturday, February 28, 2004 9:01 AM CST

Good Morning,
We are home from the hospital. Christopher had an o.k. night. He woke up this morning with a little belly ache. He seems to be doing good. He went to spend the day with his Dad. Christopher enjoys seeing his brother Maxx and Michelle. He will be home tommorrow. We are due to go back to the Hospital on Tuesday to check his counts. They will start to drop this week, which means he could need a blood transfusion. The week after he gets his Chemo is tough. But we have a real tough guy here that handles things very well. Christopher is very strong and he will beat this!!!!!!! Thank You for your support.

Friday, February 27, 2004 9:09 AM CST

Good Morning Everyone,
Christopher is doing well this morning. He came into the hospital yesterday for his Chemo treatments. Overall he had a good night. There were only a couple of times that Christopher vommitted last night. I was also very happy to hear that Christopher did not get a temp either last night. Usually every time he gets Chemo he gets a temp. That means we could possibly leave to go home today sometime. Christopher is such a strong little boy. There are about 28 more weeks left of treatment. As every dat passes I look at Christopher and let him know how strong he is and that he is an angel in Mommy's eyes. I Love him so much. He really is a great child. Well I have to go. We are at the playroom passing some time. Christopher is playing the Tonka Game on the Computer. Thank You to everyone for your support.

Tuesday, February 3, 2004 2:45 PM CST

Hello,
Christopher is doing well today. We went for our radiation treatment today. After his recovery we went to the Super Bowl Parade. Steve came up to watch it with us. Christopher really enjoyed himself. He said he wants a trophy like the patriots. I told him maybe someday he will get one. That was a really nice experience. Mommy enjoyed it also. Go PATS!!!!!!! We took some really good pictures of them up close. We are at the playroom right now. But there going to be closing for the day. We are going to go back to the Neely House. See ya for now until next time. Thank You for your support.

Monday, February 2, 2004 6:33 PM CST

Good Evening,
Christopher is spending time with his Dad, so I can update the Journal. Christopher has had a really good y today. We are so excited about finishing the Radiation Therapy soon. Tommorrow after his treatment we are planning on going to the Super Bowl Parade that Boston is having on Tuesday. The parade is actually going by the Hospital area so Depending on the weather we will be goin enjoy that event. It will be goood for Cristopher to attend. It is something different for him. On Sunday there is going to be a Wrestling Benifit for Christopher that we will also be attending, again depending on how his counts are that day and how he is doing with the Chemo therapy. That should be a fun event. There is also going to be Spongebob attending the show for Christopher James. The Mayor of Fall River with be singing for the opening show. There will also be Proffessional wrestlers entertaining the event. well I'm going to go now. Thank You to everyone for your support and prayers for our little angel Christopher James, he sure is a real fighter and a trooper through all of this.

Monday, February 2, 2004 2:32 PM CST

Hello,
We are at the playroom right now. I have a few minutes to update the page. Christopher is down to 5 more treatments with radiation. He will be getting Chemo on Thursday. He is doing really well right now. We went outside today for a walk. It's nice out today. Christopher enjoyed watching the Super Bowl with Mom last night. GO PATRIOTS!!!!! Well I gotta go now. Thank You to everyone for your support.

Thursday, January 29, 2004 10:34 AM CST

Hello,
Christopher is doing well today. We went to see Dora the Explorer last night he had alot of fun. We are at the playroom again for a little while. We went for radiation this morning. Everything is coming along good so far. Christopher is really a strong boy. We are going to have a party for him after his last radiation treatment on Feb.9, 2004. They buy him a cake and balloons and he also gets a certificate for completing his radiation treatment. That should be lots of fun. We have 7 more days and than we start our weekly visits to the hospital for Chemo treatments. After treatment on Friday we will be going home for the weekend. Hopefully we can come back after Super Bowl. GO PATRIOTS!!! Well gotta go Until next time. Thank You for your support and prayers. To Christopher keep up the good work!!!!!!!!!

Wednesday, January 28, 2004 10:32 AM CST

Hello,
Christopher is doing well. We are at the playroom for a little while. Christopher has 1 week and 3 days left to radiation than we go home to Fall River. We will be having an admission on every 3rd week for Chemo. Christopher is really excited about tonight. We are going to see Dora The Explorer Live at the Wang thearter near the Hospital. He will really enjoy this event. Christophers counts went up to 20,000 so as of now we don't need the GCSF shot. Until the next Chemo treatment. Thank You for your support.

Wednesday, January 21, 2004 5:01 PM CST

Hello everyone,
Christopher wants to type and say hi!!! cvwdfcffcvfcrxxc.
chriistopher lhtechrfcvhecccf.
Christopher is doing well today. We went for our Radiation treatment today. We have 2 more days and we complete our 2nd week. Four more to go and Christopher is still fighting this like a real trooper. Christopher wrote everybody a little of his typing to say hi. We will be going home to Fall River for the weekend. His counts will be on the low side, but we will take our precausions that we need to take. Christopher's Dad, Michelle and Max will be coming over to visit as long as everybody is doing well. Also if everything is well with Kaylee and Joshua they will also be over. We really can't be exposing Christopher to the crowded places. Or even to our friends that may be feeling sick. With his Radiation and Chemo it could really complicate things if he gets sick. Sorry for any inconvienience to anyone. Remember this web site is here for all of you to leave messages if you would like. Thank You to everyone oryour support and prayers. I will try to keep this Journal updated regually.

Monday, January 19, 2004 4:38 PM CST

Hello Everyone,
Christopher is doing well today. There was no Radiation therapy today because of the holiday. We will be resuming Radiation Tuesday. There will be no Chemo treatments for 2 weeks. That gives Christopher some time to enjoy everyday things. The only thing he really needs now is his pain meds and his GCSF shots on a daily basis for 7-10 days after Chemo treatments, so his counts don't drop too low. We will be going to the Clinic this week to check his counts. Today we had fun. We went for a walk with Steve, Auntie Cristie, and Uncle Scott to the store to get some special treats for being such a brave Boy with his shot today. After his Rdiation treatment on Friday we will be going home for the weekend. We can spend some time in our own home. Christopher is also going to go to the Fish store to get a new fish, his fish Kay,Kay swam down the drain to find his Dad. "just like what happened to NEMO" Christopher took thenws o.k. he wants to get a green fish that is Kay,Kay sister. Well until next time Thank You for your support and prayers te really do work. This child is livig proof. He will keep on fighting this battle and we wil be here for him every step of the way!!!!!!!!!!!!!!!

Thursday, January 15, 2004 9:31 PM CST

Helo everyone,
Christopher did his 4th radiation treatment today which went well. We also went to follow up with the surgeon and everything looks well there also. Our last stop was at the clinic to get blood work and than to be admitted for his 12th week of Chemotherapy which is a 48 hour stay. At 8:15 p.m. they started the Chemo. The doctors pre medicated him with three different drugs to try to subside the vommitting and nausea. They also decided to stop the one drug called Acetimicine which is a Chemo drug, because that drug with radiation could cause burns. Which we really don't want that. After his 6 weeks of radiation they will resume that drug again with the other two drugs. As of 9:30 p.m. Christopher was sleeping comfortably. Hoping he has a good night. I am staying at the Neely house tonight to get some rest the week has been a tough one for us. Christopher's Dad is staying in the hospital room with him tonight. Our little guy is such a trooper and is very strong. We are so very proud of him as everyday that goes by. He keeps a good attitude and will fight this battle. We are here with him to fight it together. " Christopher I Love you so much keep up the good work" Your doing excellent!!!!!!!!!!!!!
Well until next time Thank You for all your support.

Thursday, January 15, 2004 9:31 PM CST

Helo everyone,
Christopher did his 4th radiation treatment today which went well. We also went to follow up with the surgeon and everything looks well there also. Our last stop was at the clinic to get blood work and than to be admitted for his 12th week of Chemotherapy which is a 48 hour stay. At 8:15 p.m. they started the Chemo. The doctors pre medicated him with three different drugs to try to subside the vommitting and nausea. They also decided to stop the one drug called Acetimicine which is a Chemo drug, because that drug with radiation could cause burns. Which we really don't want that. After his 6 weeks of radiation they will resume that drug again with the other two drugs. As of 9:30 p.m. Christopher was sleeping comfortably. Hoping he has a good night. I am staying at the Neely house tonight to get some rest the week has been a tough one for us. Christopher's Dad is staying in the hospital room with him tonight. Our little guy is such a trooper and is very strong. We are so very proud of him as everyday that goes by. He keeps a good attitude and will fight this battle. We are here with him to fight it together. " Christopher I Love you so much keep up the good work" Your doing excellent!!!!!!!!!!!!!
Well until next time Thank You for all your support.

Wednesday, January 14, 2004 6:25 PM CST

Hello,
I finally have a chance to update the journal. Christopher is doing good right now. He received his 3rd radiation treatment today so far so good he is not getting sick from it or tired yet. The doctors say he could as time goes on. Because the radiation is localized the chances on getting side effects from it are slim. Thursday will be a tough day for him. In the morning we go for radiation after recovery we go to the clinic for blood work than we will be getting addmitted to the hospital for 48 hours for his 12th week of Chemo treatments. With the Chemo and the radiation it is possible that he will be very sick for a few days. Christopher is very stong and will beat this battle that he has. He sure does keep me going strong with his attitude. This is the toughest time right now for us being away from our home. we are staying at the Neely house for Cancer patients. It is really nice here. You have all the comforts of home. With a little one it is still tough for us all because Christopher misses being in his own enviroment. Mom sure misses it to. Christophers Dad came over tonight to spend time with him which is good to give Mommy a break away. I want to say Thank You to everyone for your support and prayers. Especially Steve for being there when we need him.

Friday, January 9, 2004 8:22 PM CST

Hello,
Christopher is doing well. He is recovering from surgery pretty quickly like we all thought he would. He was discharged from the Hospital on Thursday. We had a walker for Christopher delivered to our house when we got home. Christopher ajusted well to it and begain walking. The awsome news is that after spending the two days walking and leg excersises Christopher started to walk without the walker and said I don't need my walker no more. I was so excited to see that. It made me very,very proud of him for his accomplishments through all of this he is going through or went through already. Christopher is very strong and a BRAVE little boy he is our Angel!!!! He will spend the weekend home and return for Radiation therapy on Monday. On Thursday he will also start his Chemo drugs also. Our little guy is still in for alot but, he will pull through all of this he is strong. Well until next time Thank You very much for your support.

Tuesday, January 6, 2004 9:47 AM CST

Good Morning,
Christopher is doing good today. He is off his Morphine. The Doctors put him on Codine to control his pain. He is also off of the iv fluids. Christopher is drinking plenty of fluids on his own. christopher is doing very well with the physical therapy and ocupational therapy. They gave him a walker this morning and he took about 10 steps with support which is excellent for him. He is at the playroom right now enjoying time away from his room. The doctors removed his dressings yesterday they look really good. Because he is in diapers they are continuing to put dressing on to prevent anything from seeping into his insisions. We are all so very proud of him for staying strong and being happy little Christopher. Until next time Thank You to everyone for your support. Prayers do work so please keep on praying for Christopher and he will fight this battle. Thank You!!!!!!

Saturday, January 3, 2004 9:35 AM CST

Good Morning

Well it's a great beginning to a new year, Christopher went in for his operation on 12/31/03. The doctors told us they would have to do alot more than expected, things like removing his rectum and putting in a colostomybag and flapping muscles over so there would not be as much as a deffect. Well to make a long story awsome, he went in for the operation around 8:00am 12/31/03 and was out around 12:30pm and they did not have to do any of those unexpected things, the doctors removed the tumor and tested the margin around the tumor and he had no signs of cancer. The muscle in his buttocks is still in good shape. So the cancer is out now it's just time for radiation for 7 weeks and then to continue on with chemo. Dad,Mom and Christopher thank you for all the support coming from everywhere, THANK YOU,THANK YOU.

Monday, December 15, 2003 12:55 AM CST

Hello,
Christopher is doing well today. He is very excited about being home for christmas, he can't wait for Santa Clause to come. He knows there is 10 days left. All he wants is Hungry hungry hippos, trains and cars. He will be with me on Christmas day until about 4:00pm then he will go with his Dad. Were trying to make things as smooth as possible for Christopher with his surgery coming right after Christmas. We will be going to clinic on Thursday for his MRI and Cat Scan. He will have his Blood levels checked to. We will probly be there all day on Thursday. Until next time Thank You for your support.

Friday, December 12, 2003 8:31 PM CST

Hello,
Christopher is doing good today. We went to the clinic on Thursday for the last Vincristine drug for the first round. On the 18th of Dec. we go for the MRI and the CAT SCAN. His surgery is scedualed for the 30th of Dec. We will be staying at the Kneely House the day before because surgery is early in the morning. Christopher will be in the Pediatric Intensive Care Unit for a few days after surgery then moved to the 7th floor where he can get visitors. He will spend 3 weeks recovering fully from surgery before starting Radiation Therapy, it is scedualed to start Jan. 12,2004. We will spend 4-6 weeks in Radiation then get to come home and go regually for Chemo treatments to the clinic. We have a road still ahead of us. But we are still staying strong and making everyday the best it could be. Christopher will be going to his Dad's house Sat. He's looking forward to seeing his brother Maxx. The only thing I really wanted for Christmas is for my son to be home, and he is going to be that makes me really happy. Until next time Thank You for your support.

Tuesday, December 9, 2003 2:19 PM CST

Hello,
Christopher is doing o.k. today. We went to the clinic for platlets yesterday. That is what clotts your blood. We have to go back on Thursday for the Vincristine Chemo drug and another possible Blood transfusion and some platlets. On Dec. 18 he will be going for another MRI, Cat Scan, and also going to speak with the Surgen to sceduale sergery. We are hoping that we will be able to be home for Christmas. If not we will make the best of it. Well until tommorrow thank you for your support and prayers.

Sunday, December 7, 2003 5:04 PM CST

Hello,
Christopher is doing well today. We had another fun day in the snow. We went in our yard and made a hill for the kids to ride down. Christopher really enjoyed himself sleding with Mom. Today I also gave him his GCSF shot and that worked out good. Tommorrow we will be going up to Boston to get his blood levels checked to see if he would need a transfusion this time. As of now I really don't think he needs one. He has been acting normally even being cut down from Morphine. O.K. till next time Thank You for your support.

Thursday, December 4, 2003 4:20 PM CST

Hello Everyone,
It's been a few days scince I updated the journal. I appoligize for that, We have been busy.
We went to the clinic today for his Vincristine chemo drug. He also got his Flu shot. He didn't get his GCSF shot today because his counts were o.k. Christopher will start the GCSF back up on Friday through the weekend. We will be going back to the clinic on Monday for a possible blood transfusion. Next week is when his counts will be on the lower side. Christopher is still staying strong through all of this. He is a FIGHTER and he will BEAT THIS!!!!
Until next time Thank You for supporting our son through all of this.

Thursday, November 27, 2003 11:01 AM CST

Happy Thanksgiving,
I talked to Christopher today, he sounds good. He is spending Thanksgiving at his Dad's house. Today is Maxx birthday he is 2 years old. Christopher is very excited about his brother's birthday. We went to the store the other day, he wanted to buy the no. 2 candle for his brothers birthday cake. Friday we will be going to Boston for another 48 hour stay for his Chemo treatment. I will try to update this journal over the weekend. Thank You for all your support for my son.

Thursday, November 27, 2003 10:45 AM CST

HAPPY THANKSGIVING
Christopher is doing good today. He slept over his Dad's house for the Holiday. He is also going to enjoy his brother Maxx birthday party. Maxx is 2 today. I will be seeing Christopher tommorrow morning at clinic. I will try to keep this updated through the weekend, but sometimes it's tough with Christopher being sick at the hospital. Until then Thank You to everyone for your support.
HAPPY THANKSGIVING





















HAPPY THANKSGIVING

Christopher is spending the holiday with his Dad. Today is Christopher's brother Maxx birthday. He is 2 years old.
I talked to Christopher this morning on the phone, he sound like he's having fun. Friday is the day to go to Boston for a 24 hour stay for Chemo. I will try to update this journal in the hospital over the weekend. Until then Tank You to everyone for your support and prayers.

Tuesday, November 25, 2003 8:25 AM CST

Good Morning,
Today is a good day for Christopher. He is feeling good. We were playing this morning there are no complaints from him. Which is excellent news. His doses of Morphine are getting cut down. Which really makes a difference in his attitude and behavior. He has been acting like himself alot more. This is his good week before he goes for his next 48 hour Chemo treatment on friday. He will be in over the weekend. Well until tommorrow have a good day. Thank You to all for your suppot, prayers and also journal enteries.

Saturday, November 22, 2003 9:35 AM CST

Good Morning,
Today Christopher is at his Dads house. He will be spending the weekend there. Today he is going for Holiday pictures with Maxx. They love taking pictures together. I talked to Christopher this morning he sounds good. He slept all night. We don't have to be at the Hospital until Friday
for his 48 hour Chemo treatment. This week will be a little break for Christopher with no poking and no nurse coming to the house to give a GCSF shot. Well until tommorrow Thank You to all our friends and family for your support.

Friday, November 21, 2003 12:14 AM CST

Hello,
Christopher is having a good day so far. He woke up this morning in a good mood. We went to get some lunch today, he ate really well. He wanted to come home and rest. So we came home. He has been relaxing on the couch with his favorite blanket. Tonight he is going to his Dad's house. He can't wait to spend some time with his brother Maxx. He misses him alot. Christopher's counts are good so he is able to spend the weekend with his Dad. There will be no nurse visiting the house to give a GCSF shot so Christopher is very excited about that. Well until tommorrow Thank You all for you support.

Thursday, November 20, 2003 7:17 PM CST

Heelo Everyone,
We came home from clinic today, Christopher's counts went up from Monday's visit to the clinic. Christopher did receive his Vincristine Chemo drug today. He is doing o.k. from it, his eyes are a little on the droopy side from the medication. His next visit to the Hospital is next Friday for a 48 hour stay. His plt count which clotts his blood went from 46,000 to 248,000. His WBC is to fight infection went from 2.3 to 7.1 which is good. His ANC count went from 1348 to 3400 which is also good he doesn't have to be so cautious. The excellent news is that for a week Christopher does not need to take his GCSF shot because his count are good. We are seeing a pattern in his counts dropping after 48 hour treatment. Then the counts rise up a week before his next 48 hour treatment. Christopher is still fighting this and will keep fighting. We will BEAT THIS!!!!!!!!
Until tommorrow Thank You Again for your support.

Wednesday, November 19, 2003 6:58 AM CST

Good Morning,
Christopher had a good night last night. He slept all night comfortably, this morning he is still sleeping. It's good for him to get his rest. Christopher will be very happy to hear that the nurse isn't coming today to give him his GCSF shot. They have to stop the shot 24 hours before Chemo is given to him. We go up to Boston on Thursday. We are also meeting with the Radioligist on Thursday to discuss that part of treatment coming in a few weeks. We will beat this!!!!! Thank You for your support and prayers.

Monday, November 17, 2003 1:28 PM CST

Good Afternoon,
Christopher went up to Boston today, he had some bloodwork done. They decided to wait to Thursday to do transfusions, they want to see how much his counts drop after receiving the Chemo. Today his plt 46 (204-405).WBC 2.3 (5.3-11.5), HCT is 27.5 (31.7-37.7), these counts are supposed to drop after Chemo. Next week should be his better week with counts being up to his normal. He eyes are starting to be droopy which they say Vincristine causes that to happen. Overall today he is doing ok he is staying strong and someday we will beat this!!!!!! Until tommorrow thank you for your support.

Sunday, November 16, 2003 5:01 PM CST

Hello,
Christopher is doing good today. He spent the night over is Dads house last night.He had lots of fun playing with his brother Maxx. Tommorrow we go up to Boston in the morning for a possible plt transfusion and check on counts. I will be updating this journal tommorrow. Thanks again for your support.

Friday, November 14, 2003 9:45 AM CST

Hello,
Christopher had a good night sleeping. He did have one episode of vommiting, but that subsided. He is doing o.k. this morning. He's playing with legos building towers. This afternoon the nurse will be here to give him his GCSF shot.
Christopher is in a good mood right now, he is dancing to spongebob and acting like his silly self. Were going to visit PaPa today. Tommorrow Christopher will be going to his Dad's house to spend some time with them. He really misses his brother Maxx. Until tommorrow Thank You for your support for our son.

Thursday, November 13, 2003 2:20 PM CST

Good Afternoon,
We came back from the clinic today. Were a little on the tierd and cranky side today. Christophers WBC count dropped from 5000 to 1400 which is not to bad right now. His PLt is 84 it should be higher so thier going to wait to see us on Monday for possible PLt transfusion. His PHOSPHORUS level is 3.3 which is low it should be 4.1-5.4 so they have him eating high Phosphorus foods (chocolate,cola,ice cream,yogurt) hopefully it will go up so no medication will be needed. The good thing today which Christopher is happy to hear is no GCSF shot today. He is sleeping right now,but doing o.k. until tommorrow thank You all for your support.

Thursday, November 13, 2003 5:32 AM CST

Good Morning,
Christopher is going to clinic today to get his Vincristine drug. He woke up this morning sad. He said his legs were hurting him, which could either be from the Vincristine or the GCSF shot that hes been getting. He is better now that he has some pain meds, it makes him feel better.I talk to the Doctor yesterday and she said to stop the mouthcare because his soars are bleeding to much.We will find out today what we can do for it. All I want is for Christopher to be happy and in no pain. Were doing everything to make him as comfortable as possible. Being home is a plus, hes able to do is everyday thins. Yesterday he had fun playing with legos, coloring pictures, playing with his play-dough and watching some movies. Until later Thank You for your support.

Tuesday, November 11, 2003 3:20 PM CST

Hello everyone,
Christopher is doing o.k. today. His pain has been under control except for the discomfort from the mouth soars. There is some special mouth care that we are doing. The nurse came today to give him his GCSF shot and he did very well with it. We got out today and enjoyed the day. We also went out to get something to eat. Christopher enjoyes being home because he has his trains and comfort of being in his own home. Until tommorrow Thank You to everyone for thier support.

Monday, November 10, 2003 6:56 PM CST

Hi Everyone,
Christopher got discharged today from the hospital.He is doing o.k. His swelling in his eyes went down all the way, he does look better today. He sure is glad to be home. Sometimes I think alot of his frustration is because he spends alot of time in the hospital. When he is home things seem to be somewhat normal to him, He is receiving some pain medicine orally to control his pain. Tommorrow the nurse will start to come to the house to give him his GCSF shot, which makes his WBC to rise a little. He is going to take a nice warm bath and relax in his home tonight. Tommorrow I will update this journal. Thank You again to everyone who is praying and supporting Christopher through all of this.

Sunday, November 9, 2003 6:02 PM CST

Hello everybody,
Christopher is still in the hospital today. He is getting his blood transfusion. If everything goes o.k. over night he can possibly go home tommorrow. Christopher is doing better today, he is just a little crabby because he is tierd. Christopher's swelling in his eyes are going down. The Doctor said his eyes will be droopy from the Chemo drug that he gets. There are alot of side effects that Christopher is getting. The doctors are working on a better plan to make him more comfortable when he does get his Chemotherapy. Christopher is still a fighter and will beat this!!!!!!!!!!!!!
I will update this journal on Monday. Thank you for your prayers and support.

Saturday, November 8, 2003 8:00 PM CST

Hello,
As of today christopher will be in the hospital until Monday or Tuesday. Christopher is still retaining fluids in his face and eyes. His blood counts came back today with a Hct of 24 which means tommorrow is a possible blood transfusion. Besides all of this that Christopher is going through, he really is a strong little boy and he is a true fighter. Christopher was happy today to see Max, Joshua, and Kaylee. They were able to go to the hospital to spend some time with him. Thank you again for all your support I will be updating this journal again on Sunday.

Saturday, November 8, 2003 8:00 PM CST

Hello,
As of today christopher will be in the hospital until Monday or Tuesday. Christopher is still retaining fluids in his face and eyes. His blood counts came back today with a Hct of 24 which means tommorrow is a possible blood transfusion. Besides all of this that Christopher is going through, he really is a strong little boy and he is a true fighter. Christopher was happy today to see Max, Joshua, and Kaylee. They were able to go to the hospital to spend some time with him. Thank you again for all your support I will be updating this journal again on Sunday.

Friday, November 7, 2003 12:50 AM CST

Hello everyone, Christopher was addmitted into the hospital on Thursday November 6 for his 48 hour Chemo treatment. At around midnight Christopher became sick. He has been vommiting from the medicine. The docors have been giving him some Zofran medication to stop the vommiting. This morning Christopher's temp was up to 101.3 he was given some Tylenol for that. He also broke out with a rash on his face and legs. The doctors are not sure what that is from. He also is retaining some fluid on his eyelids and feet, they are monitoring him closely. Today he has been sleeping most of the day. He is resting and looks like a little angel. The doctors have been giving him morphine for the pain. We hope and pray that he feels better soon. The doctors say he will be here till Sunday or Monday. When Christopher is feeling better he will be back to his Happy self. Thank You to everybody that has given your support and prayers. I will be updating this Journal Saturday.

Friday, November 7, 2003 12:50 AM CST

Hello everyone, Christopher was addmitted into the hospital on Thursday November 6 for his 48 hour Chemo treatment. At around midnight Christopher became sick. He has been vommiting from the medicine. The docors have been giving him some Zofran medication to stop the vommiting. This morning Christopher's temp was up to 101.3 he was given some Tylenol for that. He also broke out with a rash on his face and legs. The doctors are not sure what that is from. He also is retaining some fluid on his eyelids and feet, they are monitoring him closely. Today he has been sleeping most of the day. He is resting and looks like a little angel. The doctors have been giving him morphine for the pain. We hope and pray that he feels better soon. The doctors say he will be here till Sunday or Monday. When Christopher is feeling better he will be back to his Happy self. Thank You to everybody that has given your support and prayers. I will be updating this Journal Saturday.

Saturday, October 18, 2003 9:12 AM CDT

Hi everyone, Christopher is the hospital for his routine chemo treatment. This time he stays for 48hrs. Chistopher is doing awsome so far, he is beginning to understand what is going on and is dealing with situation very well. I think the worst part for Christopher is pulling off the tape and bandaids. I will update asap, we have to go downstairs now. Thanks everyone for your support, WE CAN BEAT IT!!!!!!

Tuesday, October 7, 2003 6:36 PM CDT

Hi everyone, Christopher was admitted into the hospital again on Oct 6, his white cell count is down to .4 it should be around 5.0 to 15.0, this is the cell that helps fight infections, the doctors are giving him a blood transfusion to help boost his cell counts back up. Christopher has been tired and he is very upset about what is going on, who would'nt be? The low cell counts and his condition should be like this in 4 or 5 weeks, not now. I believe he is room 758 at the same hospital, I dont have all the info for you right now but when I do I will let everybody know. Thank you everyone for your support and prayers. WE CAN BEAT IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Friday, October 3, 2003 11:33 AM CDT

Good morning everybody, we are in Boston today for Christopher's first clinic session. This will involve putting a line into the port the doctors put in his chest, drawing blood and testing the blood cells and giving a dose of Vincristine it's a medicine to treat certain types of cancer. The process is about 4 or 5 hrs. He is doing fantastic since he has been out of the hospital. A few side effects have been effected him but nothing that will slow the little man down. He has been running,jumping,spinning and glunkasunkiing like a crazy man. We thank everybody for your support and WE CAN BEAT IT!!!!!!

Monday, September 29, 2003 2:29 PM CDT

We just got the news we can get the heck out of here. We will still be coming to the hospital for Christopher's chemo treatment once a week for 2 weeks and on the 3rd week we stay for a 48hour treatment, this will continue for a year. After the year is up Christopher will be better. Christopher is doing awsome today, he has not stopped moving. Your support has been a blessing,thank you all and we will keep this journal updated. Just remember one thing
WE CAN BEAT IT!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!!

Monday, September 29, 2003 8:50 AM CDT

Good morning it's Sept.29 2003. It's a beautiful sunny day outside and we think Christopher will be going home. It all depends on test results and if he is able to stay hydrated. Christopher is acting very silly this morning, I think he is going to turn into a box of Cheerio's he eating so much. This weekend was a little rough for him with the naseua and other side effects, but overall he did very well dealing with it. It seems to be he gets a little sick only at night, during the day he is like your typical 4 year old boy,crazy and goofy. Well I just looked at the clock and it's almost 10:00am and if you been following Christopher's progress you should all know it's PLAYGROUND time!!! Christopher is yeeling "it's 10 it's 10 time for the playground" We love you all for your support and prayers. Christopher wants to spell something for you ccccccccccccccccccchhhrriiiiiiiiiisssssssssssssssssssssssttttoooopphheerrr55

Saturday, September 27, 2003 9:11 AM CDT

Yesterday, September 26th, at 5:00, we were told that chemotherapy would start tomorrow, September 27th. It'll be 14 weeks of chemotherapy. Hopefully the tumor will shrink so they can remove it. If so, he will have daily radiation treatments for 3 weeks. Once done, the chemotherapy will resume until he's had a year's worth of chemotherapy. The doses of chemotherapy are not high doses, which means the side effects will be less than what some people will think. He will still have hair loss and nausea, and a few other side effects. He's a strong little man who has not let this effect him in any way. We think he understands what's going on. We ask him about the port in his chest and he always says it's for the doctor's to make his bum better. In the long run, it's a positive outlook. The tumor will be gone and the cancer will be cured. Today, September 27th, he's spending the day with his family and friends. He's happy
and silly and keeps us all strong. Thank you to all the good friends and family that have visited this site and signed the guestbook. Strength in numbers. We've added a few pictures to the album. Check it out when you get a chance. Thank you so much.

Friday, September 26, 2003 9:31 AM CDT

Sept.26 2003 Yesterday Dr. Grodman the Oncologist told us the Aspirate fluid(from the bone)came back with no cancer, we are still waiting for the bone marrow biopsy results. The results from all testing should be completed today, if they are completed they will start Chemothrapy today. Christopher had so many friends and family come to see him and he was very excited to them. Thanks Auntie Robyn for the Thomas magnets and board with so many pieces, FYI they do make toy's with one piece. We love you all and thank you for the support and I will update this afternoon.

Thursday, September 25, 2003 9:23 AM CDT

Sept.24 2003 Christopher had a port put into his chest for the process of chemotherapy and radiation, the recovery went well and he is back to his silly tricks and of course watching Thomas The Tank Engine. He has a new room(750)all to himself, the nurses hooked up the oxygen sensor to Christopher's bigtoe and it glows red, Christopher does not like that at all. The doctors are still working on type and stage of the Rhabdomyosarcoma, when they get the results back they will know how to attack the tumor.
Sept.25 2003 Christopher slept like a rock through the night, he had no pain and no discomfort. Christopher was taken off all monitors and no wires or hoses hanging from him as soon as that happend he took off like a 4 year old boy. Christopher is so strong and that is going to help him through the therapy. Support is coming from everywhere, his Karate class is having a big raffle and Domino's Pizza is getting involved with the Caner Society to raise money in Christopher's name, thankyou everybody. I will update this journal everyday.

Wednesday, September 24, 2003 9:43 AM CDT

On Sept.22 2003 Christopher was diagnosed with Rhabdomyosarcoma. The state and type are unknown,Cscans and bone scans came back with no sign of cancer. Christopher has been so strong and happy through all the testing and poking of needles. I think he know's something is wrong and he needs to get better. Sept.24 2003 he went into surgery to have a tube installed for the process of theropy. This type of cancer is BEATALBE and we will beat it. Thank you to all friends and family that have been giving the wonderful support.

Click here to go back to the main page.

----End of History----