Alex sailed through another round of IVIG yesterday. We might have only 8 or so rounds of IVIG to go before they are talking about ending that. We put this round at the ... Read more
Deanna W and Alexander Hays
- Irvine, CA
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About Deanna W and Alexander
Alexander had a BMT in 2009 for DBA and his condition has corrected. He has some damage from lack of oxygen at time of diagnoses. At almost 6 yrs, he's non verbal and more like a 2.5 yr old in in many abilities as dealing with post BMT issues, but he LOVES to have FUN and he's the light of my life!
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Alex and I have yet to go outside today. It's 89 degrees at almost 4pm. I hope that by 5 or so the temp will drop enough so we can walk up the street to the store, but the ... Read more
Alex had a great weekend! Parks and beach.... He's been healthy. We are moving into his last week of Summer Break. He will start school again on Sept 2nd. Alex is ... Read more
Alex has had an awesome day today. We went to this wonderful company called Crescent Solutions to talk to them about Alex. The company has kind of 'adopted' Alex. They ... Read more