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Monday, October 17, 2011 9:07 PM CDT Wow, it's been so long since we have updated. Kayleigh has been working since April and has been so busy !!!! She works at Sesame place, she's a few of the well known furry monsters !!!! I posted some new pictures !!!! The one with the girl with the wreath is a friend we met, going through breast cancer. So we decided for kays 5 year remission, we would throw a party and she wanted people to donate. Just to help her out a bit....It's going to be an extremely busy year, it already started !!!! Her wisdom teeth were pulled, she ended up with dry socket. missed school... She wasn't a happy camper.....She seems to be caught up now !! She'll continue to work till Christmas !!!! She is still dancing, 4 classes now !!!!
School is going very well, except way to much homework !!! and already so many projects.....
She passed for her permit, now we have to find time to teach her how to drive !!! Scary !!!
Jr.Prom is right around the corner,she's getting ready for that. So excited, her dress is beautiful !!!
Godbless
The Wilkes
Thank you Dave for always writing !!!!
Sunday, September 5, 2010 11:30 AM CDT Hey everyone !
I got home from Germany on August 19th. It was the best time of my life, ever. I had such a great time. Everything was beautiful and the food was awesome! I want to go back in the future, and I also would love to host! We went to Koeln, Bremen, Hamburg, Berlin. Berlin was my favorite. I had my birthday there and it was great! They made me cut my own cake, and they had a little table set up with tiny presents. A couple of days after I got home, I had a surprize thrown by my mom and my friend Taylor. I had a blast. On September 1st i started school. I love my classes. I'm taking Digital Photography, and I'm really excited.
That's all for now,
Love Kayleigh :)
Sunday, July 25, 2010 1:13 PM CDT Hi Everyone,
Kayleigh is doing wonderful, she'll be leaving for Germany this week. She can't wait !!!! she is going with 6 other students from her school and her teacher. When she gets there she will go with her host family over night then leave on a train to go to Berlin for the weekend. They will stay in a hotel, then go out as a group, sightseeing !!! Then when they return to Oldenburg she'll stay with her host family. I know she be busy for the rest of the week, because on Friday she will be going to school for the remainder of her trip. This will be such a great learning experience for her.
It's been such a hot crazy summer so far, we have been so busy since school let out. We had a family reunion, a big 90 th birthday for my grandmom. Some shore time, not as much as last year. When Kayleigh returns we will only have a week or so then she will return to school. This summer is just going way to fast.
Thanks for everyone who still comes by and checks up on kayleigh when she returns I'm sure she'll have some great picture's and wonderful stories......
Love
The Wilkes
Saturday, April 3, 2010 7:44 AM CDT HAPPY EASTER !!!!!!!
Kayleigh continues to do well , very busy in school and out. We have scans coming up. The past four years have been so busy. I guess Kayleigh knows the true meaning of live everyday to the fullest.
I think of families everyday that are going through the very struggles that we had gone through. My prayers are with them. Families that have lost the battle my heart goes out to them.
GodBless
The Wilkes
Wednesday, February 17, 2010 4:43 PM CST Hi Everyone,
Everything is going well.Kayleigh has straight A's , So proud of her. She just went to her Freshman formal, so exciting!!!! She continue's to be busy with dance in a few short months her recital will be here.
We had some crazy weather this year, tons of snow!!!! Now we just want spring to be here !!!!
Godbless
The Wilkes
Friday, December 25, 2009 9:28 AM CST Ich Wuensche euch Frohe Weihnachten und ein frohes, gesundes neues Jahr.
Liebe,
Kayleigh Wishing Everyone a very Merry Christmas And A Happy new Year !!!!!!!
Kayleigh is doing wonderful, Busy with dance and school. Kayleigh will be going to Germany this summer. So we are working extra hard to save money to send her. It's just been a very busy year....
Love
The Wilkes
Sunday, December 6, 2009 6:09 PM CST
Friday, September 25, 2009 10:10 AM CDT Hello Everyone,
Been crazy, busy back to school, Kayleigh loves it !!!!I'm back to driving the school bus and working 3 nights at the legion. Our weeks have been pretty full. The past weekend we went to Maine, My cousin got married . We had a wonderful time. Went on a whale watch, didn't see any whales. The ride was fun anyways and of couse the landscape is beautiful.
Busy again this week-end Kayleigh is planning a birthday party for a freind, and now its all about going to the football games.
Kayleigh went back to ballet and now is in Jazz !!!!
Here are a few Maine Picture's Enjoy......
Praying for The Churchill Family.....Our Thoughts and prayers go out to you....
GODBLESS
The Wilkes
Friday, August 7, 2009 10:19 AM CDT Hi Everyone,
Hoping everyone is having a great summer. Kayleigh and I are cramming as much fun as we can. She'll be going to camp soon of course she is always excited about that. Her birthday is coming up also, planning something for that ....Not sure yet but we'll let you know. I'm thinking she goes back to school on the 31st, kinda put that in the back of my mind. We won't talk anymore about that.....I'll update a few pitures of summer fun , enjoy !!!!!
GODBLESS
The WILKES
Friday, June 12, 2009 11:31 AM CDT Hi Everyone,
With school coming to and end and all end of school activities, We've been incredibly busy.
I put a few of Kayleigh's dress rehearsal picture's up a little blurry , sorry..... it's just really hard to see and adjust the camera.
She is dancing to a Westside story number, She is Maria !!! So exciting !!!! She is with a truly amazing dance company {Downstage dance} What an innovative recital. It is a show stopper. The owner is a dancer herself. They use actors and singers, I really can't even begin to explain. One dance is better then the next and all put together its breathtaking. Even Kevin loves and enjoys it......So tonight and tomorrow are the big opening nights.
We have a few more days of school left . Kayleigh is excited about moving on to high school next year , another journey. I know she will miss all her teacher's as she still thinks about her elementary school teachers. She has been trying to go see them. So if your reading Kayleigh says hi. She'll try to stop by maybe next week.
Hoping to head to the beach soon, we have a graduation party and a benefit coming up. Kayleigh will be taking part in a play this summer. So until then have a wonderful summer !!!!!!
Godbless All
Linda
Saturday, May 9, 2009 8:10 PM CDT Hi everyone,
Clear Scans !!!!! We don't have to go back for a year.....whoosh !!!!!
I'm just going to be putting some random Picture's up of the things Kayleigh has been doing.
This week she has her Spring concert and Honor's Choir. Thats Monday and Tuesday.Tuesday afternoon she has the Fashion show. Then friday she'll be going to Great Adventure for fun after they sing at another school with the honor's choir.
GodBless
The Wilkes
Sunday, May 3, 2009 8:39 AM CDT Hi everyone,
I know it's been a while. Kayleigh has had so much going on and so much more coming up. Last night was honor's choir, the setting was the chapel at Princeton University. It was absolutely beautiful. It was all the kids from her school district {Pennsbury} 500 kids from middle school to high school. I just couldn't even explain how beautiful it sounded, and with all the beautiful surrounding's
She'll have her spring concert coming up at her school that is for ensemble and chorus. She is in both, singing her little heart out. There will be a fashion show coming up, raising money for habitat for humanity. She is working a carnival at school also that also raises money for the same. Then she'll sing at the Pennsbury High School again. Then they all get to go to Great Adventure to sing and have fun all day.
Field day is coming up, That's always a lot of fun....Sprit week. The 8th grade picnic also is coming up.
Her ballet recital is in June....Guess what????? They are doing it to Westside Story And guess who is Maria. Yup Kayleigh is, she is so excited.
She tried out for a play during the summer, and she got a part, we don't know what yet.......
Scans are coming soon .....next week, we had to try to fit that in there . I had to look to see if she was free a month ago. Trying to make this appt with everything going on was a nightmare. And between dentist appt. and test , I was getting a little overwhelmed.
We might go check out to see if we can help with the prom, anyone who doesn't know . The Pennsbury prom is the only one that has it at the school { they wrote a book about it} And everyone helps community wise along with mom's and the kids that go there. They do an awsome job, you wouldn't even know that it is a school. They start the parade at around 5:00 to go into the school . People lineup all over to watch the kids going to the prom. Anyways we have a few years for that....wosh....
Just counting the days till school is out for summer....hey thats an Alice Cooper song, on that note..... I'll be posting those pictures of kayleigh when she met Alice.
GodBless
The Wilkes
Saturday, January 31, 2009 1:11 PM CST Hi ya
Kayleigh is doing great, continues to be her busy self. Play practice after school. Lots of homework and reports . She just finished up with German. That's what she wants to continue on with for high school. She is obsessed with the country and the language.
She went to her black and white dance the other night. said she had a great time. She will be doing a show for valentines weekend with her dance company.
Today her sister took her to disney on ice and out to lunch.
GODBLESS
The Wilkes
Saturday, January 10, 2009 11:49 AM CST Hi Everyone,
Kayleigh continues to be busy, play practice started up for the new year !! She got her braces on right before Christmas, so now her teeth are blue and purple. I put some picture's up of what we did for Christmas day. It was a beautiful day, a bit chilly. A little bit of history for the day, Kayleigh seemed very interested. I was surprised by the amount of people that come out to watch the reenactment.
All and all had a very nice Christmas. Kayleighs grandma was able to come home from the hospital. That was very good news.
My dad will be going in at the end of the month for his operation. Just say a few prayers !!
We had some very sad news for the new years Matthew Epp passed away , Fought long and hard with wilms most of his life. Our thoughts and prayers go out to the epp family.
GodBless
The Wilkes
Tuesday, January 6, 2009 5:58 PM CST Prayers go out to the Epp family.......
Tuesday, January 6, 2009 5:52 PM CST IN MEMORY OF MATTHEW EPP
Saturday, December 6, 2008 9:23 AM CST Merry, Merry, Merry.....
Kayleigh is doing great, of course she is as busy as ever. so it's keeping us very busy. Over the week-end she slept in a box outside, to raise homeless awareness !!! She has been going to youth group at a local church. They sponsored it. There were about 50 kids who participated. Great job !!! I was a little worried, the temperature dropped to 28. She insisted on doing this. I get cold just walking to my car. I picked her up this morning, she said she got some sleep. Now she is cleaning and getting ready to go to a birthday party. She doesn't want to miss this one, the girls are meeting at starbucks, she loves starbucks "said she wanted a giftcard from there for x-mas...too funny !!! Then they are going to have lunch and shop.
We are still working on the house projects, it's going very slow. I'm decorating around it, making it look like a pretty mess oh well.....
On Christmas morning I think we are going to go watch the reenactment of Washington crossing the Delaware. We are only a few miles away. We have gone to the park a few times, never on Christmas morning. Kayleigh is studding the revolutionary war.
GodBless
The Wilkes
Wednesday, November 5, 2008 5:25 PM CST Hi everyone,
Clear scans !!! So glad that is over. they had me a little nervous, they had to send her back to get another set of x-rays !! My stomach started churning. That's what happened the first time. Just don't ever want to do this again. Anyways all is good.
Still working on the house stuff.... It's endless, I used to have some time in between, I'm working 8 hrs now. I also work Friday nights at an American Legion. So now I just have the weekends. Just keep on plugging away on it.
The day before Thanksgiving kayleigh will be play tag football with her teacher's , they call it turkeybowl. She continues to do great in school . Hoping to get some good pictures.
Thanksgiving is around the corner. Hard to believe. There are so many families that lost their loved ones this year. I pray for their families. I know how hard and strong they fought. I know I'm am very thankful everyday!!!
GODBLESS
The Wilkes
Wednesday, October 22, 2008 7:51 PM CDT
Hi everyone,
I know it's been a while since I last updated. Kayleigh has been great, busy back to school stuff. ALL A's for the first marking period. She'll be going for scans Nov. 4th. Both her and I had a stomach virus going on, all better now. We had some plumbing problems going on here. They had to replace all the pipes. A lot of dust and mess. Kay stayed over my sisters for a bit. Now its just putting everything back together again. Just very tiring and it took so long to get it where it was. Oh well !!!! we are enjoying the month of October. Hayrides, Driving up river to see the leaves.
GodBless
The Wilkes
Tuesday, August 19, 2008 5:03 PM CDT Hi Everyone,
Kayleigh's off to camp this week. She left on her birthday, I don't think she really minded much at all. Of course we are missing her. No one to tell me how things are done or to just not do it at all LOL....... I'm planning a little surprise for her when she gets home. It will be the last hoorah for the summer .
It will be time to get in gear soon , back to school and dance and what-ever comes her way. As for me back to work. We really enjoyed our summer. It was the best thanks Dori....We love you !!!!!
As I get some picture's from camp I'll put them up and try to change them .....so grab them while you can MOM & Barb
Kayleigh's grandmom from upstate New York copies them off the site she really looks forward to them . Recently she had a stroke. Kayleigh talked to her before she left. Thinking of you mom . We love you!!! Work hard on that Therapy. Thank you Val and Barb and all , I know what takes to be the caregiver. We love you all......
GodBless
The Wilkes
Friday, August 8, 2008 8:10 AM CDT Hi Everyone,
Kayleigh is doing great!!! We have been away most of the summer. Kayleigh started babysitting. She is doing a great job. We are very proud of her!!!!
Kay had the opportunity to go away with 4 friends. What a great experience for her. I'll be hearing about this for weeks. Thanks to Peggy {Maggie's mom}
Kayleigh's big Birthday is coming up!!! 13....A teen, although she has acted like a teen for-ever!!!!
She'll be at camp on her birthday. She is looking foward to seeing all her friends there.
We still have a few more weeks of summer, It's really sad to see this summer going. We have had the best summer of our lives. I'm hoping we can keep on topping this one!!!!
Well it's time to get busy around here so we can get back to the beach over the weekend !!!!
I need to ask everyone for a huge prayer today for Felicia, she'll be having scans today.
Thoughts and prayers go out to all !!!
Love,
The Wilkes
Friday, July 4, 2008 8:25 AM CDT Hi everyone,
We had a crazy end to the school year. Kay had to see a kidney specialist. Her counts were elevated, then to find out she has low blood pressure , which is good , better then high in this case. She was dizzy and just tired , didn't feel good, she was calling me everyday from school to come get her. Ends up she had a sinus infection. What an ordeal that was with the horse pills they gave her. She couldn't keep them down. they didn't agree with her at all . I called the pharmacy, talked to them about it. Called the Dr. they changed her to another from of meds . Much better now. She was getting very worried , all the symptoms before diagnoses were coming back to her.
Kevin ended up in the hospital, had chest pains again !!!He still has 2 small blockages, they put him on a different med . He'll go back in Sept. for a stress test again and maybe a cath. I guess we will see what then....
Kayleighs recital was just beautiful, I can't even begin to explain. All I can say is that it was very professional, like a Broadway number. We have been going to the shore and staying with my friend Dori, Kayleigh loves the beach. She is a little beach bum !!!!!
Thinking of all our Wilms families, for some it has been such a hard year. Praying for all !!!!!
Thinking of Aunt Barb , Pray that you heal quickly !!!!
Thinking of Uncle Jack, Pray the treatments will work !!!!
Thinking of My dear sweet sister, Praying her Eyes will be fine !!!!
GODBLESS...
THE WILKES
Monday, May 12, 2008 9:09 AM CDT CLEAR SCANS CLEAR SCANS CLEAR SCANS!!!!!! We don't need to go back until November YEAH !!!!
Hi Everyone,
Tomorrow Kayleigh goes for scans. She has been busy with school and ballet stuff. Field day is approaching, Kayleigh is captain she is so excited and honored !!!
Kayleigh just got diagnosed with asthma. She has always been active and after she was kinda out of breath. We just always thought it had something to do with all the chemo or because some of her lung was taken out. She started with a few rashes on her arms and face. We found out that the rash is common with asthma or hayfever. She also has another rash on her knees. She was on a steroid cream, didn't help at all . The new Dr put her on a different cream seems to be working . He said it looks like fugal Warts { common in kids} if it didn't go waway they would biopsy it. Everything else has been great, a few colds , sore throats but really nothing to keep her down. She has been tired latly. I think we all have been and with scans coming up we have a lot of anxieities.
Praying for all our wilms families and all who are battleing the beast.
Love to all...
The Wilkes
Ps..... Denise, we were at CHOP looking for you. Always thinking of you.
Ps Johnathon & Cindy I don't have your E=mail . I called left a message....Kayleigh still wants to see your lips LOL
Tuesday, March 11, 2008 10:25 AM CDT Hi Everyone,
I put some picture's up of Kayleigh in the play. It was amazing. All the kids in the play did such a great job, it was very magical. A lot of talented young kids very professionaly done !!!!! After the show they had a cast party. Kayleigh and I'm sure fun was had by all. When Kayleigh and I got home we were left in the dark..... our power had gone out. It was a bit chilly all night, but we tuffed it out. The power was restored the next day around noon. YEAH !!!!!
Spring is coming so now she'll be busy with courtyard clean up at her school. She really loves helping her teacher from last year. She'll be having her dance recital in a few months and then it's onto the shore days..... She loves the beach!!!!!!Looking foward to warmer days.
GodBless,
The Wilkes
Kayleigh
Tuesday, March 4, 2008 11:23 AM CST Hi Everyone,
Kayleigh is doing and feeling good !!!! We have been so busy. Kayleigh has her play coming up. This year it is Suessical She is a WHO. So between that and dance and friends its just been busy.........
We had gone to a little girl Felicia's benifit. She has Wilms, Stage 5. I know some of you had visited her website , I thank you for that. We Meet Her family and friends it was very nice. I'm posting some picture's of that night. I beleive she'll be having surgery tomorrow. Send some prays thier way.....
GodBless
The Wilkes& Kaybug
Monday, December 24, 2007 8:04 AM CST Merry Christmas,
Yesterday Kayleigh and I went to visit a little girl at Children's hospital. Her name is Felicia Frugoli , She was diagnosed with stage 4 wilms. She has a webpage under caringbridge. They could use some kinds words and prayers. They have been there for a week . Felicia is a little pistol , a true fighter !!! Walking through the hospital I started to hyper ventilate . Just being there brings back all the memories. I was glad we meet her and her family. Through all the rushing around all week and trying to get ready for Christmas, it just gave a whole different meaning being there, knowing that these families are spending thier Chrismas in the hospital. Thinking of all families that lost thier children , praying they find comfort and peace !!!!
Wishing everyone a very Merry Christmas & a Happy New Year
Love The Wilkes
Sunday, December 16, 2007 7:54 PM CST Merry Christmas...............
Everything is going good, of course Kays been busy !!! She went to the Winter Wonder Jam { Life house, Avril, Boys like girls , Simple plan } She had a great time.
They had a Chrismas show last week at her dance , it was really cute.
She has been practicing for the play ( she is a WHO } The Play is Seussical !!!
Kevin had stents put in last week all went well, Its been a year of him not feeling good. So we fired the first Dr's we finaly found someone that didn't mess around. Hoping that he'll be in better health.
God Bless
The Wilkes
Tuesday, November 13, 2007 3:01 PM CST Hi,
Clear scans, yeah !!!!! Kayleigh and I went out and celebrated. We ate Crabs, messy butterey crabs!!! Thats what she wanted. Then came home and watched a movie. She didn't get much sleep the night before and I was up at 4. We all have colds, that time of season!!!!
Kay will be in a little dance show around christmas. And for ballet They are doing a number from the Nutcracker. That won't be untill June , its in the works.
She is trying out for this years play , won't hear anything untill December.
GODBLESS
The Wilkes
Tuesday, November 6, 2007 6:32 AM CST Kayleigh's been busy with school, lots of homework.She loves her teachers, loves school. She is in ensemble and the garden club this year. then in the spring she wants to join soccer. She is still in ballet and doing well. She had to give up a few things this year,she found out that she couldn't make it to everything and keep up with school and friends. I'm glad it came from her and not me telling her.
She had a cold and sore throat a week ago it just seems to be hanging on. We go for scans November 13th.
I've been trying to stay focused on the here and now, it will be 18 months of Kayleigh being in remission. I've been visiting our wilms kids And so many have relapsed, and a few new cases. It's heart crushing and I find myself not being able to move on with my day. I think back when Kay was first diagnosed, reading the journals of maybe 35 children. Now there are some many it's becoming over whelming. Just know that I think of our wilms kids, their smiles are embedded in my mind and in my heart.
The Wilkes
Tuesday, August 21, 2007 2:57 PM CDT Hi everyone,
Clear scans for Kayleigh !!!!!! She has gorwn so much. We almost see eye to eye LOL Thats not hard I'm only 5 foot. She is 90 lbs . She is growing up.
Boy is there a lot of stories from camp And a lot of drama, too funny. I really enjoyed all her stories and after talking with some of the nurses and Dr's that went, It was all coming together......
Praying for everyone,
GODBLESS
THE WILKES
Thursday, August 16, 2007 2:17 PM CDT Hi Everyone,
I'm just going to try to update real fast. Every time I try the cable goes out and I lose everything.
Kayleigh is at camp now i've been trying to grab picture's off the website. The one up above is from camp. Looks like she is having a good time . Of course I can't get to sleep right. We miss her very much. Tomorrow is her Birthday so it's a little hard not being with her . Knowing she is having a good time helps.
Ok Guess I'll update more when she gets home.
GODBLESS
The Wilkes
Tuesday, June 26, 2007 7:19 AM CDT Hi Everyone,
Sorry for such a late update. Our cable company has been doing a lot of work in the area, so the computer has been up and down for the past month.
Kayleigh is doing great, sleeping in since school ended. I can't let her get to used to that. We had her recital this past weekend. she did really good. Our grandaughter's recital was Thursday and Kays was Sat.
I've been trying to get down the shore, it seems that everyday there is something that we have to do to keep us here. We have been painting and just doing a lot of things in our house. It was just long over do...... Almost done!!!!! Hopeing to hit the shore this weekend.
After 4th of July we will be real busy Kev's dad and Anna will be visiting from Flordia. Then we have to get ready for Kev's conferance, This year we will be heading to Ohio. Kayleigh wants to stay here and go with her Aunt and Uncle every year they have a camp out, and Kay would have to miss it if she went with us. They will have a blast, I even miss it.
Kayleigh will be heading for camp in Aug, she can't wait for that. She told me the other night that she likes her busy life.................I'm just trying to keep up!!!!!!
GodBless
The Wilkes
Tuesday, May 8, 2007 8:30 AM CDT Hi everyone,
Kay And I took a break over the weekend. We headed down the shore. A freind has a house a block from the beach and asked us to join her with her kids, Saturday was beautiful, the water was clear and cold. In the pictures, Kayleigh was fully dressed about 10 mins later she had her suit on and swimming. Crazy !!!!! they had a blast....Later we walked the boardwalk and went on rides. Got back to the house and toasted marshmellows around a fire. Had a really nice weekend!!!!
Kayleighs doing really good in school and we have concerts and recitals coming up. 24 more days till school is out!!!!!yeah.............
Kevin and I have been busy with house stuff, it's been a while since we have been able to do anything.
Love,
Kevin & Linda
Kayleigh
Tuesday, April 17, 2007 3:46 PM CDT Great News.................
Clear Scans Yeah !!!!!!!!!!!!!!!!!!!!
We still have to see about the plumonary funtion test. I really think it has to due with the virus she had and also allergy season. I think it's the worse this year, I have all kinds of weeds in my garden that have never been there. I think it's due to the mild winter we had and then all the rain.
Tonight we are off to a Phillies Baseball game. It's going to be real chilly.
We had the bad storm that came through yesterday. Our creek got very high and the golfcourse flooded. Kevin had gone to work earlier because of the weather , it took him 4 hrs. to get there and then they closed all the roads down due to the state emergency. He was able to get home after some of the detours were lifted.
Saying prayers For Virginia Tech. It's just devestating news I worry about Kevin working on campus , you just never know..........
Thinking of all who are battling the beast and all of our angels.
Kayleigh made honor roll again yeah!!!!!!!!!!
She has a spring concert coming up and then piano recital as well as dance.
We are going to spring clean!!!!!! Kev will be putting our wood floor in. Hoping it might make a difference in allergies.
Love,
The WILKES
Wednesday, April 11, 2007 10:53 AM CDT Hi,
Kayleigh had a few days off for the Easter holiday, or what they are calling it now is spring break. she was just glad to have off . She visited her teacher's from elementary school, she really misses you all. She'll visit again.
She had a pulmonary funtion test yesterday and as I suspected, there is a problem. I don't know all until we see Dr. Julie next week for chest x-ray and an ultra scan.
A few weeks ago she had been coughing and said it was hard to catch her breath. Of course I was worried and thought it was because of a cold, and thought of the lung resection that they took a wegde of. always thought she had a problem with running and stuff she would start coughing after. Well it could be asthma, we just won't know until nest week. the night before the test she ended up getting sick she told us that her belly was so nervous from thinking of going to the hospital for test. Now she has a bad cough and a fever, the flu is still going around hoping thats all it is.
So next week is the big scans!!!!!!!!!!!!!!!
GodBless
Kevin, Linda
&
Kayleigh
Tuesday, March 6, 2007 11:22 AM CST SPRING, SPRING, SPRING........
Looking forward to just some nice spring weather, we are getting so tired of the cold and hibernation.........
Kayleigh has been doing great she made the honor roll. She was very proud of herself and we are of her. She is very busy, has been practicing for the play, cheerleading. She is still doing dance and piano and viola. She hates to give up anything.......It's a real good thing !!!!!!!!!!
Her daddy and her had that stomache virus, it was nasty. They were both pretty sick. I'm glad that is over. Just keeping my fingers crossed for me.
I just want to let everyone know, I do come by and catch up on all the wilms families Sometimes i just can't write. I find that i just get so upset. Then I start thinking of all that we have been though, and some famlies are living it again. There are just so many more on the board, in the 4 years that we have had the site, it has grown !!!!!!!
I think about all the families, I drive a school bus everyday and see smiles that remind me of all our angles.....
Kayleigh has scans coming up in April.We have 2 different days this time. We go on the 4th for the works, Then we will go to the clinic to see Dr. Julie and get all the results on the 10th.
GODBLESS
Kevin, Linda
&
Kayleigh
Monday, January 22, 2007 11:34 AM CST Hi,
Scans all clear!!!!!!Next time she goes she gets the works.
We have just been busy with a lot of school work. Kayleigh has play practice going on also . She was sick last week with a head cold again. She is much better this week. She keeps me pretty busy.
Last week there was a very bad accident at our high school, it was involving a bus and some kids were hurt.Kayleigh's brownie troop leader's daughter was hurt very badly. I just wanted everyone to pray for her and her family at this time, she lost her leg to save her life. So just keep her in your prayers........
I have to get back to work, I'll update later
Love,
The Wilkes
Sunday, December 24, 2006 8:14 PM CST MERRY CHRISTMAS & HAPPY NEW YEARS
LOVE TO ALL
THE WILKES
Monday, December 18, 2006 8:00 AM CST Hi
Sorry for such a late update. Our computer was down for a while.
Kayleigh has been doing great!! She has been fighting a cold, we all are. We had some bad news about Kevin, It looks like he will have surgery in Januray some time. Either a stent or a bypass. We are just taking it one day at a time. Her daddy is her rock!!!!!!
Kayleigh tried out for a part in a play, she was really nervous. She said her legs were like jello. Well she didn't get it, but she did get a small part, more details about that later. Her daddy is calling her an extra. She is still excited about it.....
We took hr to see the Trans-Siberian Orchestra, it was awesome. A really must see show!!!!!!
GodBless,
Happy Holiday's
The Wilkes
Monday, October 30, 2006 10:26 AM CST HAPPY HALLOWEEN!!!!!
Another very busy month...... We had our friends baby's 1st Birthday. Kayleigh had a halloween party to go to this year. We had an Octoberfest party this year. Kev's band played Acoustic sets and we had fire's going to keep us warm, it was a bit chilly out. It turned out to be a very nice night.
Kev's band played a benefit, so Kay was able to go see him for once. She loves watching her daddy play bass. This past weekend we went to a scaryfest at Great Adventure. We had a good time, and went on some rides. Some rides were closed because of the high winds. Kayleigh really likes the crazy rides, I'll go on most but some I'm just a little nervous about.
Other then all the fun, Kayleigh has a lot of homework, reports and test this year. She has been doing a good job keeping up with everything but cleaning her room.......I have to work on that, LOL.
She was having a few problems with her ankles. Twisting them, I would get a call from the school nurse everyday. We will see what happens in the next few weeks.
Love,
Kev, Linda & Kaybug
Tuesday, September 26, 2006 5:35 PM CDT Yeah......
It did turn out to be an awesome day. Kayleigh's scans are all clear. After we got home from eating lunch and goofing off in the mall. Kayleigh and I decided it was such a beautiful day, so we got a blanket out and put it in the grass made some hot stuff to drink, built a fire. Listened to her music while we made picture's out of clouds. It was awesome. Then we had to face it she had homework LOL. I don't know about her but I'm so tired. Oh and kayleigh got her hair done the other day and talked me into a few hi lights, It came out very cute. She loves it.
Thanks everyone for all the thoughts and wishes for Kayleigh.
Pray for all that are fighting the beast!!!!
LOVE,
KEV & LINDA
&
KAYBUG
Monday, September 18, 2006 11:21 AM CDT Hi Everyone,
We have been busy, getting into the swing of a new schedule. Kayleigh loves school, likes all her teacher's. She was going to try-out for basketball, then she decided that she might not be able to fit her homework in. Basketball would be on dance night it would be just to much she said . She is still in viola and wanted to go into chorus also, and somehow ended up in the ensemble. I'll update about that when iI find out more. The teacher said last year the ensemble did the music in french. Should be very interesting.
We are trying had not to think about this, scans are due on the 26th, We felt very free for the summer. Kayleigh is very excited about this year being in middle school, we talked alot about this year it kept our minds of scan time . Now its right around the corner. I can feel the weight around my neck and shoulder's. Kayleigh becomes closer and wants to cuddle. I don't know everything that happened at camp, I really think there was a lot of exchanging stories about what they've been through................I do know she had a great gang of bunk mates and was very excited for us to meet them.
I wanted to just say a pray for Kayleigh's dance teacher's family. They lost thier father to lung cancer, he had relasped in the spring.
Thanks for checking in on Kayleigh !!!!!!
Pray for our wilms families and all who are battleing the beast
All our families of angels watching over us.
Love,
Kev, Linda
&
KAYBUG
Monday, September 11, 2006 12:35 AM CDT Never Forget.
Monday, September 11, 2006 12:30 AM CDT .
Monday, September 11, 2006 12:05 AM CDT Tears Are the Proof of Life
"How long will the pain last?" a broken-hearted mourner asked me.
"All the rest of your life," I answered truthfully.
No matter how many years pass, we remember. The loss of a loved one is like a major operation; part of us is removed, and we have a scar for the rest of our lives.
This doesn't mean that the pain continues at the same intensity. There is a short while, at first, when we hardly believe it. It is rather like when we have cut our hand, we see the blood flowing, but the pain has not yet set in. So when we are bereaved, there is a short while before the pain hits us. But when it does, it is massive in its effect. Grief is shattering.
Then the wound is healed, so to speak, the stitches are taken out...
The scar is still there, and the scar tissue, too. As the years go by, we manage. But the pain is still there, not far below the surface. We see a face that looks familiar, hear a voice that has echoes, see a photograph in someone's album, and it is as though the knife were in the wound again.
But not so painfully. And mixed with joy, too. Because remembering a happy time is not all sorrow; it brings back happiness with it.
"How long will the pain last?"
Tuesday, August 29, 2006 9:54 AM CDT Hi Everyone,
I'm so very sorry about not updating. Kayleigh came home from camp on Saturday the 19th, after hearing all the stories all night long. We decided to stay in and get her rested for the busy week to come. She told us about all her new friends, people she met and all the things she did. She said she really liked rope climbing, up the tree's and the zip lines. She talked alot about the lake and all the water sports. She does like the water!!!!
Sunday afternoon we had an icecream cake for her at my sister's house, a few friends and family. They swam and had fun in the pool. It was a nice afternoon. Monday we just stayed close to home because Tuesday we were going to the big apple. Kayleigh was very excited to go. Her friend Casey had an audition, I don't want to say to much about it, I don't want to jinx her. We took the train into NYC walked around a little bit. We of course went to the 3 story toys r us. We rode the ferris wheel. We went to The American Girl Doll Place. We ate at Planet Hollywood. We walked more, Then it was time for Casey's audition. She didn't get cut and she won't know for a few weeks. WE are very excited for her!!!!!!!!WE got home around 930, we were beat..............Next day we took off for the shore A few friends of mine, all the kids. It was a beautiful day there, the waves were perfect, big puffy coulds, just awesome. Collecting shells and all kinds of creature's. We came home. Kev asked if we wanted to go to the movies to see Pirates Of The Caribbean. So off to the movies we went. Then went for ice cream later. Kay of course took a few of her friends. We had a great night.
Now the summer is at end and it's time to get ready for back to school. Kayleigh start's tomorrow, she is a bit nervous and has a bad head cold. Tonoght we are going to the school to walk around and map it out. So tonight it's early to bed. My schoolbus driving doesn't start until after Labor day, so I have a few days to get Kayleigh off to school, it worked out perfect this year. Thanks to all that have been checking on Kayleigh. She loves all the notes!!!!!!
Love,
The Wilkes
Thursday, August 17, 2006 2:37 AM CDT Happy Birthday Snuggle bunny!!!!!!!!!
Kayleigh is away at camp, from what we have seen on the website, she is having a blast. I miss her and can't wait to hear all the fun things she did and the people she met.
The day she was leaving was funny. She could not wait to get on the bus.
I've been just trying to stay busy. I'm starting a new garden, terrace & walkway. It's my therapy. The new garden will be Kayleigh's. I'm just getting it ready for her to plan and plant things for next year.
It's funny, I just thought about it. I woke up and could not get back to sleep. So i came here to say happy birthday and at this time Kayleigh was born!!!!!!
On that note I'm tired. Thanks everyone for wishing Kayleigh a HAPPY BIRTHDAY.
Pray for all our WILMS families & everyone batteling the beast
Wednesday, August 9, 2006 9:57 PM CDT Hi Everyone,
We are back I haven't had a chance to update. We had a great time in Savannah. A lot of history there!!! I'm so busy getting Kays stuff together for camp. She'll be leaving this weekend.She will be there for her BIRTHDAY, so I decided to have it this week instead of the following week that she came home. We went to Hurricane Harbor, it's at great adventure. I have got to say we had a blast. It was a perfect day!!!!!!
I'll update later when I have a little bit more time.
Pray for all our families that are fighting the beast.....
There is not a day goes by that I think of each and everyone .......
Love,
The wilkes
Monday, July 24, 2006 12:50 AM CDT Hi,
Well we made it through the storms. We did lose power over night, but we were lucky to have it by the next day. Almost lost are gazabo in the backyard and few other things flying around. everything was recovered.
WE are getting ready for our trip down south. We will be stopping along the way to see friends of ours. And hopeing to stop by to see Laurel Rose, another wilms family. We are stopping in Charleston to see my cousin Jen and her husband Mike and then heading on into Savannah Georgia.We can hardly wait. Kayleigh and I have a few nice things planned, we'll let ya all know when we are back.
Love,
The Wilkes
Tuesday, July 18, 2006 10:09 AM CDT Hi Everyone,
I just had to put this picture on!!!!! Kayleigh always peels the skin around her nails and it can infected. It had been a problem throughout chemo. So she said to me one day.If I stop peeling my skin can I have nails, I said maybe. She Won!!!!! She is finding it very hard to keep them on, LOL!!Kayleigh has been keeping busy with friends,swimming sleeping over, just having fun and loving it.
Love,
The Wilkes
Friday, July 7, 2006 3:45 AM CDT Good Morning,
CLEAR SCANS.........
Everything looks pretty good with Kays scans. We can breath for a few months until the next ones. I was a little concerned with her cough but it turned into a sinus thing, now we all have it. we didn't get the creatna level back yet I'm sure Doc Julie will call. We pulled up to the King a Prussia office and Doctor Julie was just getting out of her car, Kayleigh flew out and hugged her for -ever.................
We had a very nice time in New York, So busy with everything. We did have a problem with our truck as soon as we got there it was smoking. Here The oil change I had done before we left, the guys put pin holes in the filter and we were losing oil the whole trip. Everything worked out, and all seems to be fixed. We got back safe no problems.....
We will be leaving for Savannah Georgia in a few weeks, going to stop and visit my cousin Jenny and her husband Mike they live in Charleston SC. And then off to Savannah !!!!! Kayleigh is looking forward to this it will be her first time at her Daddy's conference for work.
Pray for all battleing the beast, all our families in remission and our precious angles in heaven!!!!!!!
Love,
The Wilkes
Monday, June 26, 2006 9:45 AM CDT Hi,
We had a very busy week, Kayleigh had awards and Gratuation on Wenesday. Then followed by dress rehersal, for tap and ballet. Kayleigh's dance were both on Saturday.
Kayleigh got the ballet award she was very excited. Also her dance company made up an award for her in her name to be givin out every year.It's name is the Kayleigh Wilkes award {COUAGEOUS}It was very sweet. Now we will be packing for our trip to New York. We will be busy there also it was a perfect time to go. We'll have a baby shower for our Niece Jess, an Anniversery dinner for his dad and Anna. Mom's birthday. kayleigh will get to see her cousin Austin. It will be nice seeing everyone....
Kevin & our Anniversery was on the 24th, 17 years. We went out to dinner and to a comedy show it was really nice. Altough I have comedy with my husband year round {Funny guy!!!!}
Pray for all our Wilms families fighting this battle. Pray for our Precious Angels in heaven!!!! We think of you everyday...
Love,
The Wilkes
Monday, June 5, 2006 8:39 AM CDT Hi Everyone,
Field day was great, Kayleigh really tried to keep up. I was trying to find shade the whole time, it was so hot and muggy. Great job!!!!!! orange & black.......
Well we just have a few things to do in school.They get out this year late because of the strike.Last day is June 22nd. We will be heading Up-State New York July 2nd. Kev's family lives there. It will be a nice mini vacation. I'm sure we will be kept busy. Looking forward to it, MOM, Val & family.
Kay has her dance recital coming up, She has really done great keeping up with everything. She keeps on adding things to her list of things she wants to do next fall.
Pray for all our wilms families, everyone batteling the beast.
The Wilkes
Wednesday, May 24, 2006 8:35 AM CDT Happy Memorial Day,
Pray for all that are serving our country, Hats off to all Veterans
Kay has been feeling pretty good, we all have the sinus problem. I think everyone has been effected with that.
Kayleigh's 5th grade classes went on their field trip. It was to Philadelphia. They went to see a play first and then onto center city. This year they got to ride the DUCKS. Ducks are vehicles that look like boats they go through town and tell you about the city while they play Loud songs that goes along with what they are telling you about. The kids loved it. Then you go in the water and cruise around the Delaware river.
Kay had her piano recital last weekend She was awesome, we are very proud of her. This week in school they are doing reports on famous people. Kayleigh picked Thomas Jefferson. They have to dress up in caricature like they are in a wax museum, and tell a little about what they did. So of course I didn't get the paper on what they had to do until Monday. I got it all together I even found a 3 pointed hat. We have lots more coming up with the end of the school year. Field day is next, and Graduation from Elementary to middle school. Kayleigh was worried about it but seems to be excited now. A few people told her they had really good lunch, LOL. I'll let everyone what is coming up and update picture's also. Thanks for checking on Kay.
Love,
The Wilkes
Tuesday, May 2, 2006 4:31 PM CDT 
Everything went well. We played Texas hold em to pass some time away. Kevin and Kayleigh love playing that. Then they gave her the giggle juice, boy that takes the edge off. She gets really silly. Then off she went, she woke up from the anesthesia a little to early, she was kicking and screaming. She just didn't know where she was. Kevin went in first, (because she is daddy's little girl) and I stood by the door. I could hear her everytime they opened the door.After the 3rd time a nurse said you can go in. She calmed down and was fine within the Hour, so glad that it's over. I just could not get anything done around here. Just knowing that it was the last puzzle piece. We just have to see the Dr. for a hearing test and a kidney test. She was elevated and they want to test her again.
APRIL 21
WE HAVE A PORT DATE ...... WITH A VERY AWESOME SURGEON. IT IS SET FOR MAY 2ND
Kayleigh continues to do well in school. She is working hard at the Viola for her school concert. We have so much coming up. Very busy time for her and that's good.
I really would like to thank her school in some way, the teacher's had got together and would bring dinner's over once a week. It was really such a help and sometimes when I just could not decide on anything the decision was made for us We really needed that. The PTO was awesome also.
I rewrote the welcome page I realized how many people come on sometimes looking for answers or they want to know how similar their sons or daughter;s case are.
I go on all the wilms family WebPages and there are really no 2 alike stories. I pray for all are families who have lost their children.I keep all you guys in my heart. I pray for everyone going though chemo and for all families in remission.
If everyone could visit this WebPage....http://www.curesearch.org/
IT just might make a change
Love to All,
The Wilkes
Friday, April 21, 2006 12:36 AM CDT WE HAVE A PORT DATE ...... WITH A VERY AWESOME SURGEON. IT IS SET FOR MAY 2ND
Kayleigh continues to do well in school. She is working hard at the Viola for her school concert. We have so much coming up. Very busy time for her and that's good.
I really would like to thank her school in some way, the teacher's had got together and would bring dinner's over once a week. It was really such a help and sometimes when I just could not decide on anything the decision was made for us We really needed that. The PTO was awesome also.
I rewrote the welcome page I realized how many people come on sometimes looking for answers or they want to know how similar their sons or daughter;s case are.
I go on all the wilms family WebPages and there are really no 2 alike stories. I pray for all are families who have lost their children.I keep all you guys in my heart. I pray for everyone going though chemo and for all families in remission.
If everyone could visit this WebPage....http://www.curesearch.org/
IT just might make a change
Love to All,
The Wilkes
Saturday, April 15, 2006 9:29 AM CDT HAPPY EASTER
Well, we have been waiting and waiting to get Kayleigh's port out. We are supposed to get it out on Monday. Now we don't know. Kayleigh ended up in the hospital Friday, she spiked a fever. Hopefully we will be out for Easter. I will ley everyone know a little later, I can't write much I left my glasses somewhere. I'll come back later to up date more.
GOD BLESS
LINDA, KEVIN
KAYLEIGH
Monday, April 3, 2006 10:15 AM CDT CLEAR SCANS.....
Kayleigh has been feeling pretty good. She gained 6 pounds in 2 weeks, eating everything. She went from a size 8 to 10 and hanging on. Still has bellyaches and tells me she gets shakey I don't know what that is about yet. we haven't heard any news about when the port comes out I guess I have to call.I was hoping very soon. I'll be going back to work as soon as that comes out.
Kayleigh is really catching up with dance and piano, school works seems to be going real well . We will have her recitals coming up for both, and as for viola well she really missed a lot of that. The other day she said she did good so I'll wait to hear the word on that.
Kay went to a birthday party this week-end for her friend Casey. They went in a limo to the city had a great time, Kayleigh was very excited. When they got home she ran over to let us know she was back and was going for icecream. Then came home again said she had to get dark clothes on to play manhunt.Well that was very exciting cause many times while Kay was sick they would be out playing and I know kayleigh would be so sad, it would break my heart.So Kev and I listened for them, finaly it was 9:00 and Kev says to me do you think we should call her to come in..... a few mins. went by and there she was!!!!!! She had a great day. Our little girl is growing up.
HAPPY SPRING
The Wilkes
Thursday, March 16, 2006 6:48 AM CST CHEMO IS DONE......
The past month seem to be really hard on Kayleigh, back and forth to the hospital. She'll be getting scans next week and possible platlets on Friday. Then she can get the port removed, YEAH,YEAH!!!!!!! she says. That is really uncomfortable for her, I think it's because she is so thin.
Kay went back to school yesterday and back to dance also, doing the things she loves the most. She has some catching up to do.
I want everyone to know that we think of all our wilms tumor families, I check on everyone and sometimes its just so hard to write in the guestbooks. When I first started going on to the caringbridge web sites there were only a handful, it has grown. We think of you all the time, Kayleigh always has a lot of questions about everyone.
http://www.acor.org/ped-onc/hp/wilmspages.html
THE REEDS HAVE BEEN THROUGH SO MUCH
WE CELEABRATE YOU KYLE
http://www.caringbridge.org/ia/kyle/
We also need some prayers for a few of our friends:
Casey is Kay's friend. She just had a lympnode removed and waiting for the results to come back, she is in pain and has to have it looked at again it might be infected.
A friend of mine also Paul, has colon cancer and is in advanced stage. Please say a prayer for him, his wife and family.
My brother who is in pain still from a hip replacment.
Pray for Kay's dance teacher's father
CELEBRATE LIFE,
DANCE LIKE NO ONE IS WATCHING
LOVE
THE WILKESTERS
Saturday, March 11, 2006 9:13 AM CST Just an update: Kay has been in the hospital since Wenesday night. We are just waiting for her ANC'S to come back up.She is feeling much better and has no fever now. Now it's just a waiting game.
Hi Everyone,
Well Kayleigh didn't make her dance on Friday night, we ended up in the hospital on thursday morning. Thank god it was just something viral. They treated her with the high doses of antibiotics and by Saturday the fever was going away and her Anc's went from 20 to 40 then to 198, So they let us go.
Kayleigh was very sad about missing her dance and the big week-end up the mountains with her friends. Her grandmom flew in on Friday and that really helped a lot. Kept her real busy, Kay wanted to go to Red Lobster. So Grandmom took us there. Kay had the biggest platter I ever saw, she really enjoyed it for 2 days!!! Thanks Mom.....MIss you Already had a great time with you.
Kayleigh and her Daddy are finishing up with the science fair project, oh guess what they are doing it on Radioactivity. As if we don't know enough!!!!!
Next week it is a chemo week and the Dr's are talking about going on, Kev and I have to talk more about it with them. There are some questons that i had brought up, that We need answers for.
GODBLESS
The Wilkes
Thursday, February 23, 2006 12:29 AM CST Hi Everyone,
Well Kayleigh didn't make her dance on Friday night, we ended up in the hospital on thursday morning. Thank god it was just something viral. They treated her with the high doses of antibiotics and by Saturday the fever was going away and her Anc's went from 20 to 40 then to 198, So they let us go.
Kayleigh was very sad about missing her dance and the big week-end up the mountains with her friends. Her grandmom flew in on Friday and that really helped a lot. Kept her real busy, Kay wanted to go to Red Lobster. So Grandmom took us there. Kay had the biggest platter I ever saw, she really enjoyed it for 2 days!!! Thanks Mom.....MIss you Already had a great time with you.
Kayleigh and her Daddy are finishing up with the science fair project, oh guess what they are doing it on Radioactivity. As if we don't know enough!!!!!
Next week it is a chemo week and the Dr's are talking about going on, Kev and I have to talk more about it with them. There are some questons that i had brought up, that We need answers for.
GODBLESS
The Wilkes
Sunday, February 12, 2006 9:51 AM CST Hi Everyone,
SNOW,SNOW,SNOW.....11 inches and counting. Kayleigh had chemo last week, 7 hr days 5 day chemo, really long days and we weren't able to do much. She was really tired and just wanted to cuddle all the time. I was able to go to the store yesterday before the snow started, every place I went it was mobbed. She said she feels good just a few belly aches here and there. We are kinda snowed in now, hoping to get out and maybe play for a bit. I'm so glad she is feeling well and we don't have to go to the hospital until tues for bloodwork, no doubt she'll need blood by wednesday and by then the roads will be clear. We have been really lucky with the weather, I hope it continues to be that way.
Kayleigh's grandmom is coming in on Friday. I'll be picking her up at the airport. Kay will be excited to see her. Kayleigh has a school dance on Friday, she is really looking foward to that. We were able to make her DARE graduation on monday. She was happy about that!
I visited a little girl last week in the hospital while Kay was in the day hospital. Her name is Grace she has been back and forth to the hospital. She also has wilms. She is this little tiny girl, so cute. The family could use some prayers.Visit the wilms caringbridge site.
Well, we have to meet with the Dr's soon they recieved an E-mail from a Dr. Grundy, I believe he studies wilms. They are asking that we continue the chemo. We just have to meet with them and find out all we can. I can't say to much, we need all the facts out on the table. I was talking to one of Kay's Dr's and she was saying that they are opening another protocal, she really could not say much about it only that it might change a little.I guess over the years the studies have come a long way. We really have nothing to compare it to everybody is different. When I read all the stories it seems that there are no cases alike. So we go on living in fear of the unknown. I wish we could sit down with the people that do these studies so we can understand more.
That's all for now, take care and God Bless
The Wilkes Family
Monday, January 16, 2006 2:47 PM CST Hi everyone,
Sorry for such a late update. Kayleigh had an awesome Christmas. A friend at my work has a "get together" to honor her father, he had passed away from cancer and she had asked if they could put a benefit wishing well in Kays name. I thought it was a very sweet gesture. They raised money and brought it to Kay , she was very excited. She went x-mas shopping for everyone. I think she bought herself one thing.
Thank-you Mary Ellen And MOM
And Family
We have been pretty busy with school work. Book reports and holiday sing, Dare graduation is coming up. The Science Fair is also coming up and she wants to be in everything, its good for her, sometimes she starts to get a little withdrawn from school and friends at school. She feels a little left out. I really have to push her sometimes. I feel really good when she feels good. I can get so much done when she is in a good mood and feeling better.
We went to the mountains for the New year, it alot of fun. Very pretty and peaceful. It snowed also, that made it perfect. After New years we had chemo so that was a bummer, she just had the ct scan done and all is still clear. We are right on track just wishing the days away.
This week we are just running for bloodwork. Kay had platlets and blood on friday, Most likely she get one or the other this week also.
GodBless
Kevin, Linda & Kayleigh
Friday, December 9, 2005 5:56 AM CST Hi everyone,
Kayleigh finished radiation yesterday. The first few days seemed to be fine, she was going to school and then by friday she started getting sick. She had the sore throat they said she might get, and then she got the cough, head cold. We had to get stocked up with tissues. So glad to get the radiation done and over with. What an ordeal everyday going there. We had a few issue's with the radiation team. People being aressted in the hospital, Kay asked me why they hancuffed that lady, the parking lot guy said I didn't tip him enough. Oh and Kayleigh getting sick down the hallway she did not want to go into the bathroom " she said it smelled" Ok done behide us!!!!!
Chemo will start next Monday it will be the 5 day chemo, Kayleigh screams yeah I don't get as sick on the 5 day chemo Hmmmmmmmmmm????
It is snowing here I know Kayleigh might want to go out and play in it, we'll see. Well maybe not I just checked it is turning into sleet. So glad we don't have to go anywhere today that would be a nightmare.
GODBLESS,
The Wilkes
Tuesday, November 22, 2005 10:00 AM CST
Happy Thanksgiving,
Sorry it's been a while on an update after the last chemo. Kayleigh didn't bounce right back it took a little longer this time.The past week has been better although we had a lot of Doctors to see. Radiation is being set for the 29th.
Kayleigh is back at school today.The strike is over they still do not have a contract. They will only have Thanksgiving off and back to school. Kayleigh will try to be in school as long as she can, she loves school.
I'll be taking a leave at work, flu season will be here.
She'll be out more then she'll be in. Hopefully won't get hit with it at all.
Have a very Happy Thanksgiving
GODBLESS,
The WILKES
Tuesday, November 1, 2005 8:41 AM CST UPDATE...Kays counts were up and she got her chemo today,(carboplatin and etoposide) she did really well, and is just now (5:00) starting to feel kinda crumby...
Hi Everyone,
Kayleigh was delayed for Chemo last week. Platlets would not come up. She had a reaction to the platlets and they had to stop, she had 10 minutes so it was just enough to get her counts up. They said something about a single donor instead of multi donors.
It's chemo week this week.We were able to go today instead of yesterday. Kay would of missed halloween.
Kayleigh's school is on strike, so she had no school last week. She was busy with friends. She went to a costume party over the weekend that her friend Peyton had, said she had a great time. Thanks Peyton! She then stayed over my sisters house and her neighbors had a driveway party for the football game, Kay played with friends over there and when I came to get her and she told me to come back later and of course I did. She was having way to much fun. Thank-you Dan,Carol and Paul,and Aunt Deb & Uncle John for having her. You guys always make it fun. We carved pumpkins last week with her friend Sara and had an awesome dinner, Kays favorite...Steak.The weather has been pretty nice so we had gone on a hayride and got pumpkins. Kayleigh and her friend Catlin picked out the biggest pumpkins of course and guess who had to try to carry them. Halloween was fun, we met up with her cousin Emily, walked 3 streets and our feet started hurting and was getting very cold. We made it to grandmom and grandpops house and got a ride home.
Kevin just called we are waiting to see if her counts are high enough for chemo I'll update later.
We are suppose to start radiation on the 21st. They said it could be changed. I'll update about that later also.
Thank-you everyone for you prayers and love.
Godbless
The Wilkes
Wednesday, October 19, 2005 9:28 AM CDT Hi Everyone,
CLEAR SCANS......
This was awesome news. We can exhale. The Dr's Were very excited to give us that news.The mass in the diaphragm is gone.The only thing that show's up is a clip and a scar on her lung.Of course they say it's not 100% over, It is still hope she is responding well.
We have been so crazy here since Kayleigh got out of the hospital.She wasn't able to go to school all last week and we had to go to 3 different Dr, app. took a lot of last week up.She was up and running for the weekend.Baking with her Grandmom,Playing with friends.Oh yeah and she signed herself up for dance,too funny. Kayleigh took ballet and tapp a few years back,she started feeling sick so she couldn't continue. She bugged me for years about going back well her freind that lives accross the street still goes,so one day she went with her to see her old teacher Miss Jess and told her she was coming back,begged me, well what could we say..........
She missed 2 classes already.She went to ballet over the weekend,Miss Donna the ballet teacher said she was awesome and remembered everything,We are very pround of you Kayleigh.Thank-you Jess and Donna from VanZants Dance Acadamy.
Kayleigh is also in Piano her teacher At piano works very hard with her. Thanks Jess
Well This week started off crazy also she needed platlets Monday.A transfusion Tues and back again on thurs for platlets again.The Docs say she will be delayed for chemo next week and could be delayed the week after.....
Well anyways we are going to be real busy then doing everything we can. Enjoying life as it is one day at a time. On that note I have to get back to work soon.....
Thanks to everyone who checks in on us I do check on everyone I don't leave messages all the time I pray for all the families battling the beast and the children that are lost....
GODBLESS,
THE WILKES
Tuesday, October 11, 2005 10:20 AM EST Hello All....
Sorry about the delay in the update (I seem to be saying that alot lately)
Anyway, as you can tell this past wed. when we showed up for chemo, I pointed a few bumps out to Kays oncologist and about 2 minutes later we were in an isolation room, started an antibiotic IV and made admission plans for CHOP.
Between Linda and I taking turns working and staying with Kay, they finally "sprung" her on Sunday. It was awesome to be home. Kay is doing ok, but the antibiotic makes her feel kinda icky. She has to take it for 15 days, and then will start chemo again right after.
For the most part, she is not in any pain, and hopefully will be able to return to school in the next few days. I'll try to update a bit more often.
Thanks for checking in!
Kevin - Daddy
Tuesday, October 11, 2005 10:20 AM EST Hello All....
Sorry about the delay in the update (I seem to be saying that alot lately)
Anyway, as you can tell this past wed. when we showed up for chemo, I pointed a few bumps out to Kays oncologist and about 2 minutes later we were in an isolation room, started an antibiotic IV and made admission plans for CHOP.
Between Linda and I taking turns working and staying with Kay, they finally "sprung" her on Sunday. It was awesome to be home. Kay is doing ok, but the antibiotic makes her feel kinda icky. She has to take it for 15 days, and then will start chemo again right after.
For the most part, she is not in any pain, and hopefully will be able to return to school in the next few days. I'll try to update a bit more often.
Thanks for checking in!
Kevin - Daddy
Tuesday, October 4, 2005 1:30 PM EST Sorry about such a long delay in an update, Kay was feeling pretty good last week so we did alot of stuff and were not home alot. She started round 3 of chemo yesterday and felt pretty crumby last night...
She is there today with mom, and she called and said she was feeling abit better.
I'll update more soon...check back tomorrow.
Dad...
Thursday, September 22, 2005 11:00 AM EST PHOTO ABOVE: Kayleigh and friends hanging out at the benefit
QUICK UPDATE SEPT.23rd 10:20 AM EST
Kays platelet count was 63, so we don't have to go for platelets. On the other hand her ANC (white cells) and still very low, so we wave to watch for fevers, infection and sick people.
They have put an order in for 5 more days of Neupogen (accelerates white cell growth)so that should help.
Kevin
Hello all,
It's been a pretty eventful week, Kayleighs blood counts took a pretty big dip when we had her blood tests done on Tuesday. Her hemoglobin dropped to the point that she had to have a transfusion. We were at the clinic yesterday at 12:30 and had her port accessed. They started the transfusion right away and we were on our way home by 4:00
It went pretty good and Kay and I played Tekken Tag (Kays favorite PS2 game) pretty much the whole time so it passed quickly. Her platelet count is also low and we have to go for blood tests tomorrow morning, if her platelet count is 20 or below (they are 82 as of yesterday) then we will have to go to the clinic for platelets tomorrow afternoon.
Other than that, Linda and I had back to school night and met Kays teacher and guidence counselor. Both are very happy with Kayleighs eagerness to be in school and her positive attitude. They are working with us to make sure that she "keeps up" and gets what she needs to stay current with the school work.
Kayleighs other site will be going through some changes, while I'll be doing the work, she will be designing it. I told her to "go crazy"....so get ready to see just what Kayleigh wants it to look like.
Also...some friends and family have set up a raffle for a very unique piece of glassware. Check out this link for details.
http://www.kayleighwilkes.com/KaybugPlanetRaffle.htm
Well, thats all for now...
I'll update tomorrow when we find out if kay needs platelets or not.
Take Care,
Kevin "Daddy"
P.S. New Photos from the benefit should be coming soon!
Monday, September 19, 2005 9:05 AM EST PHOTO ABOVE: Kayleigh and friends hanging out at the benefit
Hello all...
Last week was pretty rough, and I went with Kay on Friday for the last chemo of that week. It went pretty well, and we kept the Zofran steady.
Saturday she started feeling better in the afternoon, but was very tired, we relaxed most of the day and tried to get her to eat. By early eveniing she was rested, but still tired and it was off to the Beef and beer Benefit. When we got there Linda, Kayleigh and I were very suprised to see how many people were there....over 300!!!!
Even more suprising...my Mom, my sister and brother in law, my nephew and cousin had all driven down from upstate NY. Friends from North Carolina had also made the trip.
Between the 3 bands, the items on the "silent auctions" and other entertainment, it looked like everyone was having a good time.
One of Kayleighs friends Ashly sang...absolutely incredible!!! Her fiend Casey did a ballet routine dedicated to Kayleigh, and an entire cheerleading squad came in and did an awesome routine...complete with girls flying in the air!!!!!
There was so much going on it was hard to know what was going on, But Kayleigh managed to mill about and talk to everyone. At around 10:00, she started to run out of gas, and went out to the car to rest for a bit. I told Linda to go ahead and take her home, but Kayleigh refused to leave. She didn't want to miss my band, that played last. She slept through the whole thing, but she wanted to be there.
All in all....it was an awesome night and I want to thank every person that attended, and especially everyone that organized it(I can't name them all for fear that I may miss someone and that would be a tragedy)...It was a HUGE success!!!!
Thank You all so much,
Kevin
P.S. New pics will be up soon on both this site and www.kayleighwilkes.com
Tuesday, September 13, 2005 12:05 PM EST Been a rough couple of days....We are having a really hard time keeping the nausea away. Kay has gotten sick alot, and has been feeling run down. Her appetite hasn't been very good either and at her weigh in she was down 3 pounds.
Since the last update, her hair has all but fallen out, but that doesn't bother her at all. What little was left, she told me to "clipper" off because it was itchy.
Hopefully her blood counts won't go too low so she can attend her benefit this weekend. We are a bit concerned, because the Dr. said she will definatly be getting a transfusion this time, just hope it's after the weekend.
Well, it's late and my insomnia still hasn't gone away, so I'm gonna go watch some boring TV to see if it will make me tired (QVC usually works)
God Bless and take care....say a prayer for
all those going through the Katrina aftermath. I wish there was more I could do for them.
Kevin (Daddy)
Monday, September 5, 2005 7:27 AM CDT UPDATE!!!!!!(Sept 6th 10:00 AM EST)
They called this morning and said that from the cross and type testing, that her blood counts are up and the transfusion isn't nessessary at this time!!! Kays at school today and feeling pretty good.
Hi all,
Kayleigh has been doing pretty well.She started school and was very happy about that. She met her new principal, a new guidance councelor, as well as her teacher.They made the beginning of a rough year feel very comfortable.
THANK-YOU OXFORD VALLEY
Kayleigh had a fever on Tues, it was low grade 100.1 and was gone the next day when she went to get bloodwork. Her anc counts were at 112. When she started they were 5400. Dr Julie set it up to get a cross and type on Sunday at CHOP, so we would be set up to come back on Tuesday to King of Prussa and get platelets and a transfusion. King of prussa is a clinic for Chop, the nurses are awesome there. They do sing-alongs and dance and just make the long days go fast, not that the staff at chop aren't awesome its just a whole different atmosphere. It is standing room only at CHOP.
Kay woke up a few times last night saying she felt itchy and creepy crawly. Her hair is falling out in chunks. So we brushed it and put it back and she fell asleep. Well, I waited for the crack of dawn to do some much needed work outside.
Well now its time for me to vent about my work situation. MY BOSS, DAN LEWIS OF FIRST STUDENT says I don't qualify for the family leave act. I have 1080 hrs, and I need 1250 hrs. While I know this, My husband and I were working this out so I could work in the morning and then go to king of prussa on chemo weeks and just take one in a half days off. Well I get 9 sick days and then I could take 5 more days off without getting into trouble.If I go over those days I would get 5 points against me and 20 will get me fired. So I would have to take a leave of absence before that. I just needed to work when I could and was really trying to work this out. Oh and that is after they gave me a jacket that is 4 times to big for me for excellent driving.LOL
I'm very proud of Kayleigh and her playing piano. She missed a few weeks but got right back into it. She learned SOMEWHERE OVER THE RAINBOW, its sounds great. Our neighber Pat plays it on his guitar. They need to jam, I love that song, I cry evertime I watch that movie and that part comes on.
We are praying for all the people that got hit with Katrina. It's very, very sad I can't even watch anymore.
Our thoughts and prayers are with all the families battleing this beast.Thank-you for signing the guestbook
GODBLESS YOU ALL,
The Wilkes
BUGHUGS FROM KAY
Monday, August 29, 2005 10:43 AM CDT Hello all,
Kayleigh has completed her first week of chemo and now we have 2 weeks off. She did pretty good except for the first day because we weren't sure on times for the Zofran (anti-nausea med)and she ended up getting sick on tuesday morning. Since then we have figured out a good schedule to keep her from getting nauseous and keep her appetite up.
We started her Neupogen injections on Sat. and lets say that it went ok, but Kay was pretty upset about it. Yesterday it went quite abit better, and we are setting up a "system" to make it as comfortable as possible.
Kayleigh is haveing blood counts done right now as I type this. We aren't expecting too much of a change after this first round, but they still need to be done twice a week between treatments.
Well, Thats all for now, I'll do a quick update later with the blood count results.
God Bless,
The Wilkes Family
{This song is how I knew I was pregnant with Kay}
these are days you'll
remember
never before and never since, I promise
will the whole world be warm as this
and as you feel it, you'll know it's true
that you are blessed and lucky
it's true, that you are touched by something
that will grow and bloom in you
these are days you'll remember
when May is rushing over you with desire
to be part of the miracles you see in every hour
you'll know it's true, that you are blessed and lucky
it's true, that you are touched by something
that will grow and bloom in you
these are the days
that you might fill with laughter
until you break
these days you might feel a shaft of light
make its way across your face
and when you do
you'll know how it was meant to be
see the signs and know their meaning
you'll know how it was meant to be
hear the signs and
know they're speaking to you
to you
Song by NATALIE MERCHENT
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