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Thursday, May 3, 2007 5:26 PM CDT


6th of May tis my BIRTHDAY!!!


On sunday Kaitlyn will be turning 8................wow, and this also means that we have made it to 4 years off treatment..yay!!!

We hope to celebrate her birthday with family and freinds on sunday which will be nice.

Tonight she is having a sleepover with 3 freinds, boy is that going to be fun.

As far as her back pain, we did all blood, urine, ultrasound and xray. The blood come back with inflamation marker up. But nothing else showed, so we just have to conclude that she has done something that may have triggered muscle spasms, or somthing of that nature, to give her this intense, spasmotic pain, whenever and whereever.

Wish you all a wonderful weekend, love Yvette


Sunday, April 29, 2007 10:36 PM CDT

We have just been in contact with a lovely bunch of people here in Australia that are raising money for cancer awareness, research and Camp Quality.

I just want to share it with you all and i will put the link on for the website, and if you can all go and have a look, and if you are able, sponser these people who are doing the bike ride to raise money.

If not, just for a read would be great.

http://www.tourdecure.com.au/

Thankyou all Yvette


Saturday, April 28, 2007 5:29 AM CDT

How are you all?

Things have been busy. Last weekend we went for a small aircraft flight over the coast of Tasmania north. It was wonderful, I even got to fly for 5 min (mum that is. Thankyou to Camp Quality for this wonderful day.

Kaitlyn and Olivia have just finished school holidays (well an easter break) and have settled back into school.

For the past five weeks Kaitlyn has been complaining of a sore back. Not just a little sore back, but occasionally she will be in severe pain. Panadol eases the pain, but it will return at any time / any moment/ for any length of time. This is concerning me a little.

We have taken her to the gp, done bloods, urine, gone to the Pead and done xray and bloods(which we are waiting for results for) and next week a repeat ultrasound (just had one 8 weeks ago). I am telling myself not to worry too much, as so far there is nothing unusual showing up...........BUT what puts a 8 year old child in soooo much pain. We have had her in that much pain that she is shaking.

Well for now we are just keeping a mental diary on when / and where it is happening and waiting to hear from the Pead.

Please pray that there is nothing, or if there is it is only minor. (it is not constipation or growing pains) already asked the Pead that. Does anyone else have any suggestions as to what might be happening, please let me know.

Thankyou all LOve Yvette and Family


Wednesday, March 21, 2007 4:25 PM CDT

We hope that this letter finds you all in generally good health. It has been a long while since we have updated you all on the goings on.

Things have been busy (as always). Kaitlyn has had her 12 months scans, ultrasound, xray, bloods etc and SHE IS ALL CLEAR..............................we are at the 4 year mark, 4 years off treatment. I remember when we were told that she will need to be checked till she is nine, and yearly for her kidney for life, and thinking man 9 that is going to take ages. But she is nearly 8 and we have one more year of 'cancer checkups' and she will be given the 'allclear'. What a marvel. She is doing very well at the moment, very healthy, 28kg and 128.8 cm tall.....she is on par with everything. The dr she saw yesterday is going to refer us to the Peadatric Ongologist in Hobart for next year, so that on our last visit (checkup) we can discuss any questions etc that we may have....God has given us many blessings, and one is that he continues to care for kaitlyn and keep her well.

Olivia is doing wonderfully. She is excelling at school, but goes about it very quietly. She just soaks it all up, and then comes home, doesnt say much but all of a sudden she is able to do this and that. Her reading is really good. We are very proud of her.

THe school has just had their swimming carnavel, the girls did there absolute best and that is all we can ask of them. Kaitlyn's not the most athletic, but she gave it her best shot, we did swimming lessons over the summer period and that helped alot. Olivia is coming along well too. THey had a great day, so great that Olivia fell asleep at 4pm that day, till 5...........totally bombed.

Mark is loving his new job.....he goes to work every day dressed up, in shirt and jeans, and comes home nice and clean......hehe......he is an office boy now.. Nah seriously he could not be happier, and he is learning so much there....its a good challenge.

Mack is doing ok, he is not very well at the moment, last weekend was a longweekend and we had our church picnic, he started to not be well then, when we got home, checked his temp and it was up, there is a barking cough going around at the school and sure enough he got it. By last sunday he was getting better, slowly mind you, and then yesterday he was walking around saying oww oww, and his temp went high so i got to the dr, he has a chest and ear infection poor little thing......last night could not get his temp below 38.2 (with panadol) he is still alseep now, so we will see how he goes.

Well apart from that, we are waiting for Emma to have her baby which is due on Saturday, and next saturday we have Marks sisters wedding - Claire, which we are all looking forward to, hoping the weather will be nice, as it is in the garden at Mum and Dad Hidding.... I am sure it will all turn out well.. Olivia is going to be flowergirl for Claire, so as soon as we have photos, i will email them.

Well that is about all folks, till next time, hoping this finds you all well, and keep in touch.
Prayers and Thoughts Mark and Yvette Kaitlyn OLivia and Mack




Monday 27th Feb 2007

Wow it has been a while again.

Well we are all good....The girls have finally started back at school and doing quiet well considering..Bit tired to start with but doing ok.. Olivia is full time this year and kaitlyn is in grade 2 this year. She is doing leaps and bounds and seems to be concentrating a little more at the moment, so that is good.

The news this week is, that Kaitlyn has scans on FRIDAY...eeekk. It has been a year since the last ones. A couple of weeks ago we went to see a pead because she has some large and unuasual moles on her head....we had them checked out and need to go back in 2 months again for another check on them. Friday involves, ultrasounds, xrays and bloods and urine. I do not get results till the end of March, unless of course there is something wrong. Please keep us in your prayers, as again this is something that turns my stomach, even though you tell yourself that she is healthy, she is fine, she is happy, but 10f your brain, doesnt allow you to have that 100he will be alright!!!!
She is asking alot of questions lately about her ordeal, what it means for her, why did she get it? She does not remember alot of the time in hospital which i think is beautiful, the things she remembers are so trivual to us, nice nurses names, the craft that she got to do etc. We as parents and adults seem to only remember the bad / sad things that went on and forget the happy things. She is growing into a mature young girl...

She is starting flute lessons today, we will see how she goes, we had a introduction to it last week, and she got a pure note out. Which was absolutley excellent....I will be learning the french horn alongside her, so we can practise together. Which will keep both of us motivated.

Please keep us in your prayers,

Love Yvette hidding


Saturday, November 11, 2006 6:50 PM CST

Things have settled down since Nanna and Poppa were here and the wedding is over.

Two weeks ago we got to go on a camp with some Camp Quality parents and children. It was wonderful and we met some really nice families and children. We enjoyed the couple of days that we had and we enjoyed talking to other parents who are going through the hard times.

We got to go on a Jet Boat ride, and a river cruise for breakfast, swimming in a heated pool and dining at a resturant. We were spoilt and we would love to thank CQ and Jeff and Sandra for running the camp.

Things are ok on the home front, Kaitlyn has had a cough for over 6 weeks now, it is just a dry continuous cough and seems to get worse when she is running. I am a little curious as to whether it is some form of mild asthma?! Any suggestions anyone!
Kaitlyn has her christmas function with CQ very soon and then in the summer holidays she has her next camp.

Well apart from that, not much is happening, it is quiet on the test front and scans, we do not have anything till MARCH....eeekk fair way away, and i will be hanging out for that. On the 7th of December it will be 4 years since Diagnosis!!!!!!!!!


Wednesday, October 18, 2006 10:05 PM CDT

Yes we had Demis wedding, and oh what a wonderful day. We had such a good day together and she is now Mrs Brouwer. Kaitlyn did a wonderful job and had such a good time, and doesnt she just look wonderful......brings a tear to your eye.

Next week we have been asked to go on a camp with Camp Quality. Should be a good camp and an oppurtunity to meet some more families around the area. We are going south to a place called Huon. I have never been there so it is a new thing for us all. Should be good, cross fingers no one gets sick between now and then. (still alot of gastro going around).

Kaitlyn is doing well, doing well at school. we have just had nanna and poppa here for 2 and a half weeks, they are now flying back to western australia to pick up their caravan to travel around australia, before they come back to Tasmania to settle. Kaitlyn and Olivia really enjoyed having them here.

Kaitlyn gets her report from school on Friday (will let you all know how she goes.

Thankyou all for checking in Love Yvette and Family


Thursday, August 31, 2006 11:14 PM CDT

Well the silly month is all over with, and Today is SPRING...how nice to know the weather will warm up, and already over the last couple of days it has been warmer, the flowers are coming out the leaves are already growing on the trees...WOnderful how nature works.

Well all the birthdays have come and gone, so now we can try and get some routine, till of course demis wedding, which i must say is not all that far away. Next week is the girls last week at school and then two weeks holidays, which is just as well as the girls are getting rather tired (again) seems to happen every time just before the holidays are due. At shcool they are always busy with something, an activity an outing a play, or a fundraiser, they are very active within the school.

During these holidays Nanna and Poppa are coming for a holiday, and that is all that the girls can talk about at the moment, they are here for the wedding, so it is all go go from now till then with organising hens nights, kitchen teas, shoes, outfits etc...all good fun. But it is all exciting too....

Well the family is not all that well at the moment, Mack has been rather sick with a flu, ear infections, conjunctivitis and just miserable, for over a week now. It is taking along time for him to get better, he usually sleeps in till around 11 in the morning and then back to bed at around 1 for another three hours and then to bed by 7. He is a poor little mite, he is not eating alot either, but he is drinking his milk so that is ok. Olivia has had it all too, but not quite as bad, today Kailtyn is home, with the snots, cough and lethargy....so ohh well keeps me out of mischief i guess looking after the kids, they are ALL in bed having a sleep at the moment, so that is good for them all, they all needed it.

So yes the next couple of weeks is getting a caravan for mum and dad to stay in, school holidays, then the wedding, still more work to do around the house, last week Mark and I planted the front garden, this weekend he needs to do some work at the school, but hopefully next week we can get some top soil and plant the grass, perfect timing, no more frosts and warmer weather with still alittle bit of rain, the side fence on the driveway side has also been done in the last week, so we are getting there slowly...When my mum and dad come we will be taking care of their dog Mambo, so it would be nice to have some grass starting to be ready for that.

Anyway i had better get off this and check the children, sorry it has been a while since updating, but better now then never.

Love Mark Yvette and kids


Friday, July 7, 2006 8:08 PM CDT

Well it has been a month since i last updated...TOO LONG....life is just too busy.

Well Kailtyn went on her camp with Camp QUality. She loved every bit of it, aparently they had Ice age 2 a fireworks night, they did loads of craft in the craft shed they got treats and the list goes on. She came back very happy and Shannon her little freind they enjoyed each others company very much. It is soo nice to see them create freinds and hopefully they remain freinds for life.

School holidays are over and it is back to routine and homework (reading) and getting into bed on time, so she can get up on time in the morning (which i must say in winter it has been a struggle) need to wake her every morning.

One good thing kaitlyn is eating soo well at the moment. She is loving all her food which is nice to see. She is doing so well at the moment , and growing up soo fast. We are having little conversations with her now, she is a joy to have around, but it is scary that she is growing up so fast.

We have settled in nicely to our new home, Mark is busy doing a vege garden for me today. We will just have to wire it off, we have wallabies around here and they like to eat vegetation.

Mack is ok, still slow to gain weight, and today and yesterday he was spiking temps of 39 degrees. And on days like that he doesnt eat. So it is a visious circle. The last month he gained 100 grams. He had a metabolic screen done, something came back elevated so they are running the test again, to make sure it was not a one off. So we will see i see the pead in about a month. He is 11 months old now and 4 weeks time he will be one already.

We have a stream of birthdays in August. 5th - Macks 1st birthday, 6th - my dads birthday, 7th - my sisters 25th birthday, 10th - my 30th birthday, 14th my nephew 5th birthday, 24th my daughter Olivias 5th Birthday. So we will be busy. It will also be shannons birthday (kaitlyn freind) and she is also having a party to celebrate the completion of her treatment!!! YIPPEEEE


Tuesday, May 30, 2006 6:07 AM CDT

Yes we have moved into our new home..


We have settled in nicley after a busy week and weekend!

Last week we had a few tests with Mack Monday ultrasound, result kidneys are smallish but fine.. Wednesday the cardiologists from melbourne ...result, 2 small holes, and pulmory artery valve is thick, but they do not want to see him till he is three and then they will re assess him again, but he is fine other wise ( not blue they said) Friday he went to the dietician and we are giving him calorie powder called polycose, to increase his intake, we are staying with the no milk diet and it seems to be going well, still need to weigh him weekly to see what his weight will do.

The girls are dooing great, we have first term break next week and Mark is taking a week off work also, gives us time in our new house, so he can put the washing line etc up!!!!

Kaitlyn will be off to camp with Camp Quality and her companion Vanessa and her best freind Shannon!! THey should have a blast and they will be dressing up as snow fairies ( I think )

Well we just keep plodding, as things remain stable..Mack Peadatrician rang tonight and wants me to take Mack into the hospital for her students, they are studying 'failure to thrive' and want to use him as a case study...see if we get any results that way hey!


Well that is the latest just a quick update sorry..photo soon..Love Hidding


Thursday, May 11, 2006 5:09 AM CDT

Well things have been busy once again.

After Olivia got sick, Kaitlyn got it on the Sunday night at about 3am..the next day she had temps and was not too well, but by the night she was coming good, she went to bed at 6pm and slept well and got up early the next morning wanting to go to school..
Since then a few more kids at the school have been unwell..great start.

On Friday night she had a little freind sleep over, and saturday morning it was her SEVENTH birthday..>HAPPY BIRTHDAY KAITLYN. she is 7 already. We had a wonderful day in which the family came up for morning tea. And she got spoilt.

Each year that kaitlyn has her birthday it is a new mileston for us. On saturday it will be 3 years that she is off treatment. We have been richly blessed and it is a wonderful feeling that we have been given patience and strength and continue to receive it.

On anther matter...Mack went back to the peaditrician on Wednesday. His test results came back as negetive for cealiac...BUT his blood test for renal function was way out. What this means i am not quite sure we will be getting a ultrasound done on his kidneys and we are also seeing a nutritionist tomorrow at 1pm to talk about intolerance that his body may have, and therefore his kidneys are unable to flush from his system, leaving a level that is too high. We also got him weighed today and he put on 40grams in two weeks....He has to start doing better than that!!!!

Thankyou all for checking in, remember we may not always sign other pages but we are often checking on you all...Love HIddings


Friday, April 28, 2006 1:40 AM CDT

Well things are travelling ok....

The house:

The bricks are done, the painting is done, the arcitraves are done, most of the kitchen in, started tiling, heater is in, electrician is doing his bits and peices. We are not sure of when we will be in yet, but hopefully in the next month and a half. I havent taken photos of the place for a long time (flat batteries) horrible excuse i know.

The girls:

Well we have just had an easter break, which it rained alot throughout, and the girls did get rather bored. We went to the inlaws shack for a couple of nights and the girls got to ride their motorbikes. They are getting rather good at it, and kaitlyn is doing full throddle..and chewing through the petrol...rummen.
Olivia is home at the moment with gastro, she has been throwing up all night and has a temp today. Poor thing, yesterday was their first day back at school.

Kaitlyn is doing well and next week is her 7th birthday..once again we have reached a bit milestone. SHe is currently 3years off active treatment...we have 2 more years to go!!! Again we have been blessed with another year with her and her in wonderful health, we can thank the Lord for his countless blessings and the many prayers that have been answered.
She just got her report and she is doing really well at school..we are thankful for this too.

Mack:

We went to the peadritiacn today and he is not gaining enough weight yet, he is 6.9kg!! he is going so slow. Valerie Hewitt ordered a heap of blood tests today and we need to do a 24 hour urine collection. I go back to her on the 10th of May and go to see the peadatric cardiologists on the 24th of May. They are checking for cealeac ....and have no idea what else, will let you know when we get the results.

Me and Mark:

We are doing well, every spare minute is up at the block...Mark is home with a chest infectino at the moment, he has had 3 days off, so we are a sick bunch at the moment...but we will manage. We have a fair bit on and at times it is a little stressful, but we remember that we are not in control and that we do get help.

We will email some photos of the house very soon, and some of the kids too!!

Thankyou, and God bless Yvette and Mark and kids xxxxx


Saturday, April 8, 2006 5:07 AM CDT

This is just a little update of us all....Well we thought mack was doing well on the tablets, but last week he went
down another 80 grams...so for the month he put on 200grams. He is now
6.6kg...he is doing slowly well!! He is still slipping off the bottom line
on the chart, he is now 8 months old. He has just learnt to sit, but is
finding it difficult to stay that way for too long. He is otherwise a very
happy kid, so no complaints there.

THe girls are doing well....kaitlyn is at a birthday party today. First they are going swimming and then they are going to Macdonalds, she will come home pooped and then we are off to Marks dads place tonight it is his birthday. Olivia is
soo loving school and her and bohdan are bestest buddies. Her teacher asked me the other day what to do about those two, as they have a love hate
relationship/ They are that close they are like brother sister...funny
really...we said just to engnore the fights, and they sort it out...which
they do.

The house is coming along, the plaster is finished, they have started
painting, getting kitchen cupboards in, and the architraves. We hope to be
able to get in there the end of May...how exctiting.. THe brickies will be
there next week..
Apart from that not much else as the house is taking up all our time and energy...Easter break is coming up and we are looking forward to that, the kids have 10 days off and then back to school for 4 weeks and then off for the school holidays! arrhhh...should be good just hope the girls dont fight too much.
We would like to wish you all a safe and happy easter, and talk to you all again soon...Love Mark Yvette and Kids


Wednesday, March 15, 2006 4:39 PM CST

Kaitlyn:

We have the ALL CLEAR once again. She is very healthy and doing well. The checkups are now yearly. It is all sounding better and better. Yesterday the pead introduced me and katilyn to a lady that had wilms tumour 30 years ago, and she is well and happy. So that was a good reassurance that things can get better and kaitlyn is doing well.

Mack:

She did not tell me too much more, but it was good to hear from the peads mouth. He has two small holes. THey are likley to repair them when he is a little older (when that is i am not sure of yet). She cautioned us to infections etc. We will be seeing the cardiologist in May this year.
His weight is still of concern. We are trying a tablet at the moment, which is crushed and given to him to reduce stomach acid..for a inflamed oesophagus. We are trying this for a month, if that doesnt fix the problem they will do a camera down to his stomach to see if there is anything else going on. For now it is a cause of elimination.

So over all we are happy with everything, it is still a little bit of waiting. We do not need to be concerned for Mack with his heart, as he is happy and there are no real symptoms that he is getting regarding the heart..we will wait till May to get more as to when and if they will fix it.

Thankyou all for your prayers and thoughts....Love Mark, Yvette, Kaitlyn Olivia and Mack


Monday, March 6, 2006 3:47 PM CST

Today Mack ...kaitlyns little brother had a echocardiogram...they heard a murmer the last time he was in hospital and wanted to get it checked.

The result, he has two holes in the two top chambers of the heart. We are unsure of the size of the holes and what is going to be done next. I have a visit with the peadriatian in a weeks time. THey will be refering him to a peadiatric cardiologist..where he will be reviewed.

It will be an issue...but we have been reassured it is not major, some holes do close on there own but some do not, if that is the case he will need surgery to close it.

Please remember him and us in your prayers, next wednesday we have the visit with the pead..with that visit we get kaitlyns results also.

Thankyou Yvette

" But as for me, I trust in Thee o Lord, I say, "Thou art my GOd". My times are in Thy hand." Ps 31: 14 - 15


Wednesday, February 22, 2006 4:51 PM CST

Good morning all....Firstly we have some new photos of the family.

A week back at school and we are doing well...Kaitlyn has fitted in nicely and loves to go eat morning...although this morning it was a little hard for her to get up...it took her a while to get to sleep as mum left yesterday on the plane..she was a little upset.

My sister, who is getting married in Oct, asked Kaitlyn yesterday to be her flowergirl...she is very excited about that.

Well it is coming up to checkup time again..Kaitlyn will be getting an ultrasound done, this is the first one in 12 months...I am a little aprehensive, as there have been times that kaitlyn has gone, owww....holding her right side of the abdomen...the pain seems to disappear but when it is leading up to the times where you have a check up, you subconcious will always fear. THis morning she said that her chest felt funny.. I know to most of you it all just sounds like paranioa...but We are allowed to be i think. Once the tests are done, and we pray for clear scans, that paranioa will dissapear till next time...Other than that she seems healthy and is very happy at the moment..apart from sibling wars.

Checkup is next wednesday but we do not get results for about a week, unless of course something shows up, so no news will be good news. Love you all, leave a message to let us know that you have popped by.


Wednesday, February 15, 2006 5:33 PM CST

Well today is the first day that Olivia is going to school for the whole day...she went on tuesday just for a trial morning and loved it.
This morning Kailtyn and Olivia hopped on the bus together..how cute....Lets see how she comes home this afternoon, i reckon she will be exhausted.
Kaitlyn is now in Grade 1 over here...she came home yesterday and was all excited about getting 'homework'..Oh i love homework she said, lets see in a couple of years hey. It was reading homework, which she was all to keen to do when she got home.

The house is still getting things done on, this thursday the roofing iron and gutters etc will be delivered, and we will be putting that on on saturday.

Saturday we have Rauol and Demis engagement party at 2-4pm and mum and dad hiddings shack in Clarence Point..It should be a lovely day for them and us.

Mum Buist is over here at the moment, she came over to see Bohdan and Olivia have their first day at school....Ruaol timed the engagement so that she was here for the party, cute hey.

We got Mack weighed yesterday and he has lost 40 grams in two weeks, so now he is 6.16kg..But he has grown 1 cm in that time so they are not too worried as he might gain in the next two weeks..HOPEFULLY...I do not know what else to do, he has 4 milk bottles in the day and has 3 meals of solids a day which he wooffs down and absolutly loves. He is starting to get more active, finally he rolled so that may have something to do with it. He has also been waking in the night for long periods of time in which we have had to do control crying....It seems to be a cycle, one good night and 3 bad ones...so he can sleep through cause he has done it, we will just have to keep persisting.


Sunday, January 22, 2006 5:43 PM CST

How are things everyone...things have been ok here...Last week we had a few illnesses but they are overcome and all is good again.

Mack was admitted to hospital for dehydration he had viral tonsilitis and was not drinking, they admitted him for fluids and we could go home the next day.

Kaitlyn started with temps on the sunday but by monday she was fine, she does not have tonsils anymore so i think that helped in that it did not develop into tonsilitis.

Yesterday and today are soooo hot...we are inside with the airconditioner on...in Tassie you say!! yes in tassie. Mark worked on the house on saturday and that is coming along great.

Kaitlyn has a newfound freind she is from Exeter and her name is Shannon. She has ALL. THey are a lovely family and it is soo nice that kaitlyn has found a little freind so close to home. THey had met at a couple of the Camp Quality camps and get along great. We will be seeing them again this week, and yesterday they spoke on the phone for a half a hour...young girls already yakking on the phone.

Kaitlyn is doing fine we have three weeks left of school holidays and then it is back to school. In Feb we have scans, ultrasounds and bloods....please remember this we will let you know how we go.

Update again soon...Love Yvette and Family


Tuesday, January 10, 2006 7:55 PM CST

Again it has been a very long time....as you all would be aware it is rather busy with a baby.

Well christmas has come and gone, and we had a wonderful break. We went camping for a week with the family and my brother and sister inlaw and their two children.

Kaitlyn has just come back from a camp quality camp..she went from friday to monday. THey had the most wonderful weather and they got up to alot of things. Her companion and her come back tired, but thoroughly enjoyed their time. Kailtlyn has made very good freinds with a little girl called Shannon, she has ALL. She is still on treatment but looks well. I have had a chance to chat to her mum also, and we will be catching up for coffee soon. It is nice as this is the first mum that we have had a chance to talk about 'Cancer' stuff since we have been here. We did meet another couple but they have moved back to the Gold Coast.

Kaitlyn is doing well, and will be starting year one this year. Olivia her sister will be starting kindy this year for two days a week, which will be nice for her also to go to the 'BIG' school as she calls it.

We have finally started to build our new house, we have marked it out and we are getting the channels dug out today.

What else is new, Mack is growing fast, he is 5 months old already...
As far as kaitlyn we have a check up in about 6 weeks time...again a concern for us all, but we are praying all is well, she does look and act well at the moment, it is not very often that she gets sick, her immunity is getting better every 6months.

Also i would like to mention Quilts 4 kids...they have kindly offered to make kaitlyn a quilt. THey get squares stitched and made into a quilt..if any of you would like to offer to make sqaures please go to this website www.quilts4kids.com they would appreciate you checking in, as they have a number of children on a waiting list now for quilts. They are very generous people as they are doing this quilt all voluntary and with LOVE....again thankyou to all those who are joining in in making a quilt for kaitlyn.


Saturday, November 5, 2005 2:59 AM CST

again it has been a while hasnt it..............Things are going well...Mack is now 13 weeks old and is gaining weight slowly.....a couple of weeks ago we were in hospital with him, to try and find the problem and it is Lactose Intolerance, which is what kaitlyn had as a baby too....since putting him on lactose free formula he is doing much better, though still gaining slowly.

Kaitlyn has just had a six month check up....2 and a half years off treatment.....WE ARE ALL CLEAR....with thanks to our heavenly father, who has cared and protected her throughout her short life, and has once again given her a bill of health...are prayers have been answered once again.

We had a family camp last week with the new 'family' in tasmania with Camp Quality. We met some wonderful people and the camp was awesome...it was at a resort, with golf, mini golf, indoor pool, gym, sauna...they had beauticians there who did our hair and facials and massages and the list goes on...we had wonderful meals and we enjoyed our time, we came home very exhausted though as there was always something going on.

Apart from that we have had the most wonderful weather, we have had bbqs, the kids have been swimming, and this is Tasmania that we are talking about,,,wonderful hey!

Well we pray that the other families are ok, and doing well, sorry havent had time to check in on you all lately. Love you all Yvette


Thursday, August 25, 2005 2:02 AM CDT

Sorry it has been such a long time since we have updated.

We have a new addition to the family.....a son born on the 5th of August at 1.30pm. He weighed 6 pound 11 oz. He was placed in ICU for 3 days due to breathing difficulty but was allowed out and is doing really well.

We just had him weighed today and in a week he has put on 320 grams which is excellent, least i know the breastfeeding is going well....didnt have success the previous times.

Ooopssss His name is Mack Adison.

Apart from that the girls are trying to adjust and doing well. We have had a large number of flus and colds pass through the house, but seem to be getting over them slowly.

My mum and dad have been here for 3 weeks holiday from WA and they have enjoyed there time in seeing their new grandson.

That is about all this time, promise to update again SOON.


Thursday, June 23, 2005 6:26 PM CDT

It has been a while hasnt it....they changed all the signing in and i have had trouble getting here.

WEll lots has happened lately.

Kaitlyn went on a camp quality camp first one in Tasmania with her new companion. She had a really good time, but came home rather tired. They went on helicopters and canoeing and sailboating....the weather wasnt the greatest but they still had loads of fun...thankyou Camp Quality.

My sister in law had her baby two weeks ago, it was a 'little' girl named Amaya Ruby...all is going well and she is a blessed child. Last week we had her baptism.

As far as the rest of the family....Kaitlyn is doing great no concerns at all at the moment which is great, we have just bought her a PeeWee 50 and have been out on it on the weekends, she is doing great on it. She is enjoying life and we are really enjoying our family time at the moment.

I am doing great i am now 33 weeks pregnant,the little bubs is getting bigger and stronger, and by the end of the day i am sore and tired, but what doesnt come with being pregnant. The bubs is doing great and i have 6 weeks to go at the most. And counting!!!

Thats about all for now, gotta get back to the housework...YVette


Sunday, May 22, 2005 0:52 AM CDT

Hello all....

We are doing well, settling in nicely to the area and the people.

We have had a busy couple of weeks....2 weeks ago we had kaitlyns birthday which was busy but nice. My grandparents were over for 10 days and we caught up with them a little too.

Last week and the week before we have been busy with a load of dr visits. A couple for me, antenatel and a couple for kaitlyn , for her checkup.

As far as baby, everything is coming along nicely i am now 28 weeks and the growth is matching the dates, and the heartbeat all good. It is wriggling nicely too, which i feel every bit off. At the stage where we can start counting down. Demi my sister and a freind had a shower party for me and Emma (sister in law) who is due in 3 weeks). It was nice and we got rather spoilt. As far as the hospital system in maternity, we are doing the clinic system and it seems to be working well. THe doctors are ok, you just dont get to see the same one each time you go.

Friday kaitlyn needed to go back to the Pead regarding the xrays and blood tests taken the week before. As far as our remission status we are still in remission and she is doing great. The blood tests didnt work. Her spinal xray showed that she was rather blocked up in the bowel department. This is a huge explanation for alot of things, backache, tired irritable, and tummy gramps. I did not think much of it, as she was still a regular goer but never did enough and there became a back log. So as a result she ended up in Launceston Hospital for 30 hours or so. She had to have a nasal gastric tube and got 6 litres of this stuff to make her bowels empty. The last couple of days she has been rather grumpy and tired, as a result of going to the loo quiet a few times over her hospital stay. They also redid the blood tests while we were in there, and the results come back all positive. So hopefully this will fix the problem with the backache and tummy gramps and she is to go on a higher fibre diet and lots of water etc......which i thought i was doing my best at anyways....we go back to the Pead in a week for a review......so as far as all that....we have had a taste of the childrens ward here in tassie, and I must say they are a wonderful mob of nurses, they are soooo caring about the parents....and have sooo much time for you to make sure we are just as comfortable as the kids.....very happy with the service we got.

This week is a little quieter (I hope) I just have our first house rental inspection, which is just more of a pain in the but than anything else.

Olivia has started in a local Playcentre, it is not a daycare it is a playgroup where you can leave them from 9 - 12. She calls it HER school and loves going to it, time out for her and mum.

This is the last week of school and then they have 2 weeks school holidays, it seems like they just had some, but oh well we will see how that goes, as the two girls are starting to get on each others nerves lately. Olivia is good, but is always competing for attention, we have good weeks and bad weeks, when she is good she is very good and when she is bad shes not so pleasant. School holidays i will just have to plan a few day trips around the tassie scenary, and maybe Macdonalds for lunch. Here you do not tend to have takeout much as you are a good 20 min from the nearest takeaway and by the time we would get home it would be cold....so that may be a nice treat for them. We will have to go and see a few sites, as the kids havent really had the feel of the place as much yet.

Nearly every weekend we are taking the quad out, and Olivia is doing soooo well on it, she is actually scary to watch as she doesnt have any fear. She will actually try to get it on two wheels....yeeekk, and does skids on the gravel and whatever else she can think of. She will attempt any terrain, whereas kaitlyn is very causous...which is a good thing!!! But they are having a ball on it, but now that Olivia is getting on it, they dont want to share and want one each!!!! So that is what we are saving for now!!

Anyway i better go and check on the pair they are both fighting again, cause they are both tired again! But we love em!!!! So i better go I think kaitlyn has organised her doggy a party in her room, and i am invited!!

Better go, missing a little of the warmer weather but coping nicely.....Love you all From the Hidding Family


Friday, May 6, 2005 10:19 PM CDT

HAPPY BIRTHDAY SPECIAL GIRL 6 TODAY!!!


Today is kaitlyns birthday and did she get spoilt. We are so thankful that we could be blest with a wonderful healthy year with her. Her birthdays mean soooo much to Mum and Dad, and we thank the Lord for these blessings.

Kaitlyn went to school and then after school had a little party with some family and freinds. After which we had a family dinner of soup and bread. It was very busy and kaitlyn got very spoilt...as they do. By 7pm she was in tears and it was just too much for her. She got a torch for her birthday and wanted to go to bed and play with her torch. Her head hit the pillow and it didnt move!! No playing with the torch.

We thank those who sent cards and well wishes, very much appreciated.

Kaitlyn had her first visit to the Pead in Tasmania on Wednesday. She is a very nice doctor and listened very well to what had happened and what we would like to continue to happen.

Kaitlyn has been complaining of some mid back back pain which i queried the doctor about. At first they didnt want to do scans till July but when i got home the doctor rang and changed her mind and want us to get the xrays and bloods etc done next week and then we get results the week after. I think she just wants to rule out anything suspicious. So that is good, at least we know she is on the ball.

Apart from that kaitlyn is doing really quite well, loves school.

We are all settled and doing well, 13 weeks to go and we will have a little addition to the family. As far as that goes everything is going well too.

We have just had our two grandparents over from western australia visiting..called 'trick' opa and oma...becuase opa does tricks for the young kids. They have had a wonderful time, and it is nice to have them over for a couple of days. (they are 85) not bad for travelling at that age hey!!

Well will check in again soon to let you all know how she is going with her tests etc.


Friday, April 22, 2005 10:01 PM CDT

WEll we have moved into our own house, we have email up and running and a family routine again. Well sort off!

Kaitlyn gets picked up each morning on the bus at 8am and comes home about 3.40pm. She is doing really well at school and has settled in very easily. Her reading has developed soooo much over the last couple of weeks. We are proud of her.

If you looked at her now, you would never tell she was ever ill. Her hair is back to the length it was when she was first diagnosed, she is bounding with health, i still need to pinch myself alot about the big learning curve we went through, and my heart aches for those who are still going through the uncertain, and treatments. We do have a checkup in a week and a half, and we are praying that kaitlyn will have clear scans.

We have linked with camp Quality in Tasmania and hope to meet with them in the next couple of weeks, they sound lovely. It will be good to develop a network and support system over here too.

Thinking and praying for you all
Love Yvette


Wednesday, April 6, 2005 10:14 PM CDT

Things are travelling well...

Kaitlyn started school today and went by herself on the bus at 7.50am, school by 8.30. Not sure how she will go as it will be a long day.

Apart from that we will be moving into our own home on next wednesday which we are all looking forward too, just to have our own stuff would be nice.

The girls are coping well, considering, i am quite proud of them.

Kaitlyn is a bundle of health at the moment, last week she had the sniffles which is the first time i can remember in the last 6 months, she recovered very well too. I think we can finally say that her immune has bounced back and she is a picture of health. In a couple of weeks it will be her sixth birthday. With this we can only thank and praise God that he has looked after our little girl and allowed us to spend some very precious time with her....she is going to be SIX!!! wow how time flies. Also on her birthday it will be 2 years off treatment, which is a major milestone, another thing we can be greatful and thankful for.
Her birthday is on the sixth of May, she has a review on the 4th of May.

Apart from that the weather here is a little colder, something to get use to, and that will take some time, the girls are loving everything over here at the moment, and there really hasnt been too much of a mention of missing too much, except nanna and poppa. They have too many new things to check out, and lots of big boys who are doting on them at the moment, and giving them loads of attention. (which all young kids love).

Baby is kicking lots, Mark has felt it now...things are looking good, and my belly is growing.

So for all that, missing you all lots, and prayers are with all our freinds...Love Mark YVette and girls


Monday, March 21, 2005 3:47 AM CST

Well....to all...

We have safetly made it too Tasmania, there is a fair bit of adjusting to do, weather is rather a bit colder and today we needed to go to Kmart and buy ourselves some more jumpers and tops, as i did not pack enough in the suitcases. We have more in the container which is due to arrive sometime next week.

We have been busy today trying to look for a rental but none of the realestates seem too much in a hurry about things. We will keep trying tomorrow and we have an appointment to view on in the morning. We will see how we go.

The girls are still trying to adjust to the time, they have been having alot of afternoon sleeps, but the last day they didnt. Where we are staying they are required to share a room, which over the last two nights is proving a challenge. (Playing instead of sleeping)

Kaitlyn is good and we have referals to a local peadrictian which we will be seeing on the 5th of May (a day before her birthday) ready for her next checkup.

I had my ultrasound last week and the baby is now 19 weeks old and doing really well. No signs of anything wrong which was worrying me a little this time for some reason.

We will let you know when we are settled which we hope to be soon, just to have our own place and not be sharing with rellies would be nice. Love the reliles but with school starting we would love to get the girls into some sort of routine.

I will email again soon...Love YVette


Friday, February 25, 2005 7:23 AM CST

We have some news!!!!


We have sold the house, we sold it on wednesday, with a settlement for in 3 weeks...SO we need to be out within 2 and half weeks...aaaaaajhhhhhhhhhhhh!!

All is going well, with the packing, and we have booked to move over to tassie on the 18th of March. Things are going to plan, we have the airline tickets, the car is booked on the truck and the container is coming to be packed.

Kaitlyn is very excited about going and her new teacher has sent a class photo over for her, so she know who she is going to and who her teacher is...how cute.

We have bought new suitcases, which the girls love the idea of, they have one each.
All the referal to a peadritian is organised and i have an appointment with them soon after we get to Tasmania.

Today we went to the doctor for mum and bub and all is going well. I have a scan on the 16th of March to see if baby is growing well. We have been lucky to get an appointment with a place that does the 3D ultrasound. We will get to see our little ones face...we are very excited.

To those who live in WA and those who have supported us through the last couple of years, new freinds and old, thankyou sooo much we couldnt have done without your support...colleen and Kaitlyn sorry to leave you, but thankyou for a recent new found freindship, please do not loose contact with us as we will love to know how you and kaity are doing (dont worry i will be checking in on you very regularly) Sam and Zoe we wish you all the very best with the rest of your treatment, we will be checking in on you too. Allie and Brett, wish you all the best, sorry to leave you when you need support and freinds. Amy and Quetin, wishing you all the best and hang on to the support and freinds you have. Karen and Lee and teegan, hope teegan does well, and we will be thinking of you regularly.

Over all, you will all be in our prayers and we will still continuely do regular updates on this site, so please check in to see how we are going, We are going to miss the support network that we have developed over the past few years, and we hope that you all continue to check in, and let us know how you are going. We are going to reconnect with Camp Quality in Tassie and we hope to regain some support over there. Keep Fighting and praying.

For those who want our new contact details please email me and i will be more than happy to give it too you.

Will keep you posted LOve Hidding Family


Thursday, January 27, 2005 7:17 AM CST

In the last week and a half we have been busy..

Last week wednesday we had a regular checkup of scans and ultra sounds and we are pleased to say we are ALL CLEAR. We have a checkup in May and then we will be in the 2 years off treatment. All the doctors are happy for us as we are doing well. They will organise a referal to a Dr in Launceston were we will be relocating too. All kaitlyns blood work and kidney and lungs are really good, and we are nothing but thankful for her health and pray constantly for her ongoing health.

On thursday we had the funeral for our freind Kaleisha, it was the first child funeral that i have attended, it was beautiful but sooooo difficult. I am glad i went and i thank Colleen for sticking by me as i think i couldnt have done it on my own. It was very hard to say goodbye to a wonderful and happy and smart, joyous little girl.

The last week the girls went to adventure world with kaitlyns camp quality companion. We had a wonderful time, but the girls were bombed when we came home.

This weekend we are having a garage sale with my mum and dad, what a load of junk we have accumalated over the past few years. It will be fun to sell some unwanted junk.

We are eager to sell the home, as we are waiting to move to Tasmania. We are more eager then ever now, as we are going to become new parents. I have the wonderful news that i am currently 12 weeks pregnant with number 3. We would love to move and settle before this little miricle is born.

We just continue to be blessed and thankful for everyday that we have with our children and families. Our prayers are heard and we are thankful.


Wednesday, January 12, 2005 6:13 AM CST

Yesterday the 11th of January at 8.30am Kaliesha Siddons, and beautiful 3 year old, passed away.

She was a wonderful little girl and was diagnosed on the 5th December 2002, (2 days before kaitlyn) with Nueroblastoma. She spent alot of time in hospital with many of our other freinds, and fought a long and hard battle. She relapsed in Oct 2004 in her lungs.

Remember Kaliesha playing with your teddy bear in hospital and he was doing 'pop offs' you use to laugh that hard your oxygen levels would go down. But how good was it to see you laugh.

Kaliesha is now at peace and not suffering anymore, and like her nanna said, she is chasing the 18 butterflies that she had just 2 weeks ago. So you go catch them girl!!

You will be sadly missed, but we know you are in a better place.

Our prayers and thoughts go out to her wonderful family and we wish them comfort and peace. Love the Hidding Family


Saturday, December 18, 2004 7:58 PM CST

Well it has been a while again!!

Kaitlyn has finished Pre Primary and school for the year 2004. She has done really well and come home with a wonderful report. We are very proud of her even though she missed out a bit of school she has done really well.

6 more sleeps for christmas, we do not have any plans for what we are going to do yet....probably spend the day at the beach with some nice food and wine. We try to remember what christmas is really about, the Birth of Jesus. So we will be going to church in the morning and then have a nice family day.

We have some big news, we are selling our home and we are going to be moving to Tasmania. Mark, my husband is from there and we are going to show the girls where dadda was brought up, and spend some time with his parents. This is a big move, but we are all really looking forward to it...not the selling house part though.

We wish all of you a safe and blessed christmas and a wonderful school break. Kaitlyn will be starting year one next year!! WOW time goes so fast. As far as her health she is doing really well, we have more scans on the 19th of January and then we will get a referal to a peadiatric Ongologist in Tasmania. We pray for the scans to be clear!!

Love Yvette Kaitlyn Olivia and Mark Hidding


Friday, December 3, 2004 5:44 PM CST

Well the Wiggles were great....we had excellent seats three rows from the front directly in front. Our girls were one fo the first to get out the front and dance and they had a ball doing it.

We did not make it to the picnic of the kids cancer support group as Olivia did have quite a bad cough and we thought it would be best to keep her away from the other children, I did take her to the doctor on the monday, but it isnt in her chest yet...she still has the cough today.

On Thursday we got a parcel all the way from Colorado, and what a suprise the girls got. Kaitlyn got a beautiful fairy outfit from the Olesen family and Olivia got a cheerleader outfit, and me I got a gold chain with two hearts on it, (so that i can carry my two girls hearts close to mine) Isnt that just so thoughtful, and wonderful people....Thankyou very much the Olesen family for that, I will post a photo in her photo album for you all to see.

Mum and dad have just come back from a trip across Australia, they drove across the nullabor to Melbourne and up through Mt Hotham and the Barossa Valley and back home, they had a wonderful time, and came back and spoilt the girls.

Apart from that we have a quiet couple of weeks we will be having a garage sale soon, and christmas is just around the corner, which we have nothing planned for yet, just take it as it comes this year. Enjoy it at home or the beach, with Nanna and Poppa.

Well that is all from us, Love and Prayers Yvette and Mark and Kaitlyn and Olivia


Thursday, November 25, 2004 8:24 PM CST

On Wednesday we had kaitlyns 3 month checkup.

We got the results and it is ALL CLEAR. Well they only did a chest xray and bloods. Her bloods are excellent and her chest is too....We have alot to be thankful for and God has defenitly answered our prayers.

Kaitlyn is doing well, but they couldnt give us an answer to this side pain that she is having, they did some extra tests for the pancreas and liver function...but apart from that they just said that we need to keep an eye on it and if it becomes regular to go back.

Our next visit is end of January.

This weekend we have Kids Cancer Support group Christmas party, which should be good, we will be catching up with some of our freinds.

Also Today Saskia, the play lady from PMH is leaving. Saskia we saw you on Wednesday and told you how much you meant to us, we meant every bit of it and wish you well.

Next week we are off to go and see the Wiggles, which is going to be great. Kaitlyns wish was to see the wiggles last year so to have the opurtunity to go again is wonderful. We have the CHildrens Cancer Institute to thank for that. They do all the research etc, and have offered to send some children to the wiggles. Lucky hey!

Apart from all of that, mmm let me see, Everyone who reads this, like from freinds from caringbridge pages, i do read you all regularly, just do not leave messages in your guestbooks. Why? My computer is sooooo slow and it takes me forever to get into the gguestbooks, especially the big ones...so sorry but i do always see how you are all going and check in on you.

Love Yvette Mark and girls Kaitlyn and olivia


Sunday, November 21, 2004 0:57 AM CST

Things are going ok...sorry we havent emailed for a while.

Two weeks ago Dadda had his 30th Birthday and it was a great night had by all. A fansy coctail party and everyone dressed up.

That week i had a miscarriage....my first and i was 8 weeks pregnant. It was not in the Lords plan for us to carry this baby full term. It was a little sad, but our life continues on and we are doing well.

Last Thursday i picked Kaitlyn up from school and the teacher said she had been crying with side pain...when i got to her she was really crying and it was hard to see. It is the pain that is on the side where she has had the surgery and she has had this pain before. Man does it freak me out each time though,


We have a checkup on the 24th of November that is this coming wednesday, and we are praying for clear scans and i will be asking them about the pain in her side. Could it be scar tissue? Who knows.....

Apart form that we have had multiple family over from Tassie which was great, busy but great.

Well that is all from all of us, we are really enjoying our family time and the motorbikes at the moment.

Love you all Yvette


Wednesday, October 20, 2004 7:13 AM CDT

Last week Kaitlyn had her camp quality..She had a wonderful and exciting time and came home rather tired. Her companion had a wonderful time too, and they seemed to do a lot of things.

While kaitlyn was at camp Olivia got her teeth repaired. She did rather well and slept for most of the day...she was a little grumpy as they were rather sore but she did well.

On Tuesday morning kaitlyns grandparents from Tasmania came over and they will be staying with us for 2 weeks. Also her Uncle and Aunty and cousin Bohdan are also over. (not staying with us though) So for the next couple of weeks we will be busy.. but it is nice to have the In Laws with us for a while and it is great for them to see that kaitlyn is looking a picture of health.

Apart from all of that things are going well..Still thinking of Zoe, a local girl with ALL, and Kaitlyn a local girl with NB, and we are also thinking of Jessica Welsh who is not real well at all, who is suffering from relapse of NB. Another little freind who we knew from PMH who went through treatment of NB the same time as us has just found out that she has relapsed also. 'Grub' or Kelisha Siddons is her name and she needs your prayers.

Love you all and speak to you soon..Yvette


Thursday, October 7, 2004 0:38 AM CDT

Last weekend we had a long weekend...We had a wonderful time we went and camped in the dunes on the beach in lancelin. The girls were great and had a wonderful time playing and motorbike riding.

Mark and I really enjoyed ourselves and it was a great break. Nanna and Poppa came up for one day just to say hi.

Just asking you all to think of our freind Kaity who is having test this week..she also has not been too well...Thinking of you Colleen and Kaity and the kids!! Love ya.

Apart from that school holidays have been fun..Kaitlyn has been busy everyday and last night she had a freind come and have a sleep over.

Next week is the BIG camp which she is counting down the sleeps too. So it will be very quiet here next week. Olivia is getting her teeth repaired next week up in Perth - under GA at a Clinic.

Apart from that we are all healthy and doing rather well..THankyou all for checking in. In the next couple of weeks it may be not so many entries we are getting the inlaws over from Tasmania. (In which case i will be busy)


Tuesday, September 28, 2004 7:21 PM CDT

Well it has been awhile again..

Things are going well...it is nearly the end of another school term...yeah, I love the school holidays no rush to be anywhere and the girls love time at home together.

Kaitlyn is doing well..she has scared us a few times lately...dropping to the floor holding the side where she had the nephrectomy (scar) and falling down screaming....mum mum but then she goes to lye down and it goes away after about 5 min.

I rang PMH the other day becuase i got a real scare...I spoke to Micheala and she said to keep an eye on it, but becuase kaitlyn is well otherwise, eating and no temps etc it doesnt sound concerning. Does anyone know if a scar tissue can cuase pain?

It was a little freind kaitlyns birthday yesterday you can see her page on www.caringbridge.org/ne/kaitlyn and wish her a happy birthday she would love it.

Kaitlyn has her Camp Quality Main Camp in the second week in the holidays...you have no idea how much these people do to get these kids to camp...they do an outstanding job and it moves me everytime i think about the generousity that we have had since kaitlyn got sick...We can never thank them enough for all the volunteer everts and the money that these people do to get a smile on a precious childs face...THANKYOU CAMP QUALITY

After the school holidays we have a load of reletives coming from Tassie...we have my husbands parents, my sister in law (who married my brother)..She is my husbands sister..make sense..and my husbands younger brother and thena few weeks later his older brother...It is Marks 30th Birtdhay in November so what better reason.

My brother is also an artist and he holds an Annual art exhibition here in ROckingham...his name Brendan Buist...if you are ever looking.

Anyway i better go and get ready to do some things...Thankyou all for chekcing in on kaitlyn Love Yvette and Family


Friday, September 10, 2004 7:58 AM CDT

Its been a while again..but that is the way the weeks have been going.

Apart from a cough and common cold that we have all had we are all doing fine.

We bought the girls a four wheel motorbike which we have been taking out on the weekends and the girls are absolutly loving..the are have a wonderful time on it and it is good to see that the girls are having fun together.

We apologise for not checking in to our freinds regularly but my time on the computer has been less now a days due to the good run that we are having.

Thinking of you all and praying for many Love Yvette and Family


Wednesday, August 25, 2004 7:14 AM CDT

OKAY..

It has been ages hasnt it...

Today we had a checkup a three monthly one..AND......we are ALL CLEAR...we would like to thank everyone for their prayers and we Thank the Lord for everything..for Kaitlyns health and the year that has gone by.

Kaitlyns bloods were excellent

White cells 8.3
Hm 125
Platelets 307
Red Cells 4.57
Neutrophils 5.6

We will need to be on three monthly checkup for a while still as Kaitlyn didnt finish her protocol due to toxicity to Actynomicin..I guess they are doing that as precaution..which i am comfortable about anyways. Kaitlyn is doing well in the height and weight...height 112.3 and weight 23.20kg..WOWO

Apart from that the weeks have been busy we have had many birthdays..which we enjoyed celebrating...

The next couple of weeks are quietish..and we hope just to enjoy our time at home and the health that our two daughters have..we are lucky to be enjoying their precious life and we are sooooo thankful for this.

Kaitlyn has just been put to bed and says she doesnt like school cause when she has to colour in between the lines she never has time to finish..heheh (perfectionist)

After a exhausting day...i will say goodnight to all.

Oh caught up with Mitchell and his mum who has had another boy Ethan..congradulations!!

Love to all Yvette


Sunday, August 1, 2004 11:56 PM CDT

Ok, said i would update..just had a busy weekend.

Olivia is doing rather well we are giving her 10ml of Fergon a day and 10ml of Parachoc a day...her poooping is back to normal, and so is she nearly anyway...so that was all a little scare, but hopefully we are back on track...

Thankyou to everyone who was concerned and left us little notes and messages. And thankyou for your prayers...

Kaitlyn has started back at school and today they are having a teddybear picnic..so they had to take a snack to share.

She is good, but very tired after 2 full days at school, well back at school last week after 2 weeks holidays, and not half days any more full days..missing out on her beloved afternoon sleep...when she is home she has a nap everyday still for an hour and a half.

She has wednesdays off, which is good, a quiet day and a sleepy day. On Friday this week she will stay home, as we are going to catch up with Colleen and Kaitlyn at the Funstation, here in Rockingham. We havent seen them since there wish trip and i am looking forward to it. Friday is also Poppas birthday.

Saturday is Aunty Demis birthday, who has now booked to move over to Tasmania she will be leaving on the 15th November for a indefinate stay.

Next tuesday is Mumma birthday...28...oh no..and on the 24th of August it is Olivias birthday.

Please think of us on the 25th August when we go for scan and ultrasounds after this check up it will go to 6 monthly not sure that is a good thing or not.

Thinking of you all....Yvette and Mark


Tuesday, July 27, 2004 7:48 AM CDT

Just a quick one..

Olivia did reall well on her ultrasound, even the guys said she did really well.

Scans were ALL CLEAR, and we are going back to the dr tomorrow about a plan for the anemia.

That has set my mind at ease for now, hopefully we dont end up with any more trouble

Please remeber another local girl ZOE with ALl she is in hospital at the moment with temps.

Also remember Kaitlyns mum Colleen who is not well with the gastro, hope you get better soon Colleen.

Kaitlyn (our kaitlyn) is well and will be starting the next school term on Thursday.

Update tomorrwo after the Doctors.

God Bless Yvette


Saturday, July 24, 2004 5:28 AM CDT

Ok...well this site is becoming abit of Olivias page too...but she is the one who is needing our prayers right now.

Kaitlyn is doing well..she is a little off her food at the moment, and has a cough..but no fevers and generally ok, just on the quiet side. We are planning to go back to school this week, as they have just been on two weeks holidays.

As far as Olivia, well i went to the Peadritrcian (i think i spell that different each time) and we took an xray of her abdomen and her bowels were full and blocked. WE were then admitted to Rockingham hospital to give her 2 litres of this liqued to flush the bowels. They also did blood tests for some virus's etc. The flushing was supposed to take just one day but took two. The blood tests that we have back so far show that she is eneamic, we havent got the other ones back yet. On tuesday they will be doing an abdo ultrasound to make sure nothing else is down there, and then i should get the other test results back..So we need your prayers that there is nothing serious.

As i have said before i seem to be a barer of bad news, it is just the way our lives seem to be panning out. I am not sure what Gods purpose is in all this, except hopefully to make our family unit stronger and we as people stronger in our faith and stronger as people.

Please remember Teegan a freind of ours from PMH she has been spiking temps and has gone back up to PMH for bone marrow tests..they say she has 85% bacteria in her blood when a 'normal' person has ab0ut 10%. Please remeber her.

I will update later in the week hopefuly with some good news..Love Yvette and Family

To Colleen, thankyou for caring and ringing to see how we are..I realllyyyy appreciate it and like i have someone to talk to who understands what we are going through...the fear of a mother..Please do not worry...Love ya!!


Saturday, July 17, 2004 9:15 PM CDT

hello,

I think we had a scare last week with kaitlyns pain in her side..it only lasted that day but it was a little concerning as it was enought for her to not want to do a lot causwe it hurt.

So that has past with no further developments, and i guess we will have to wait till our next scans on the 25th of August..unless..well yes!!

This week Mark took a day off and we took the girls to Scitech and science place where the kids have hands on for everything..they loved it..it just got really busy and the girls were tired by 12.30 so we went home.

Friday night Olivia started vomiting and went every half an hour all night...there are alot of bugs going round at the moment so more than likely it was jut that. I did end up bringing her to the local hospital though cause she has started spiking temps and crys about her bottom all the time...this has been going on for about a week..the pain in her bottom and feeling like she has to poo and doesnt....charming topic...the pain in the knees are still there intermitantly....I WILL be seeing a Peadetritian on Wednesday to see what she says about it all..

Apart from a few sleepless nights things have been ok..Olivia is watchnig tv in bed right now and Kaitlyn is outside playing..

We wish you all the blessed sunday....Love Yvette


Monday, July 12, 2004 7:31 AM CDT

Well not much is happening really, we did a load of painting to the house on the weekend which we were glad to get finished.

We have just started the school holidays which is going to be fun i guess, i will have to plan some visits. Next week i have to make a meal for PMH for the current parents staying there. So that will be my chance to go up and revisit the place...in a eery sense I miss it not so much the place i think just the people who are there, the ones you can talk to and they understand cause they are going through the same, i think it is just the level of understanding that you get from the people you meet on 3B and once you are out, you loose all that, I think that is sad.

Kaitlyn has complained of pain in herright side which has got me a little concerned today, we will be watching her like a hawk tomorrow, and the next day..

Apart from that I pray that you all are coping in your own little way, and May God grant your children the healing they need...Love Yvette


Sunday, July 4, 2004 6:58 AM CDT

Not much to report on lately, Kaitlyn is well. We got her first school report on Friday and may we say we are thrilled. She has done really well considering missing a fair bit of Semester one. We are proud to be her parents.

One more week of school and then we have mid year break up for 2 weeks and then back into the school term..

So from us things are going smoothly..with continued prayer...

I would like you all to remember all the children that are on caringbridge, I have links to very few kids, there are soooo many more out there that are fighting, think of Kaitlyn (our little freind) I think of Cheyenne, who i read the the Children of Promise site, I think of Katia, and there are two little girls from the same hospital that we got to who are trying to battle, Ebony and Jess. I often think of the other children that were in at the same time as us but we have lost contact, Think of baby Mitchell and Kelesha...there are so many of our prescious children who are fighting, and I would like you to know that they are all in our prayers....I wish we were able to mention them all, Only God knows them all by name and is looking over them all.


Wednesday, June 23, 2004 3:58 AM CDT

Sorry its been a while again and i am not getting the chance to checkup on all my freinds as regularly as i would like..So i am sorry about that but do not doubt that i am not thinking of you all...I tend to loose track of time quite quickly.

I took Olivia to the doctor on Monday with conguntivitis, and asked again about the pain behind her leg...he refered me to a physio...so today we went to the physio and she said there is something wrong even with her walking she seems to be throwing her legs forward....and she said we cant help i will refer you to a childs physio...so who knows how long that is going to take...throught the public health system..i am convinced it is not muscular though, but not sure what else it could be..Olivia did have a club foot when she was younger maybe that is all related...who knows...I wouldnt mind seeing a peadatrician i think and maybe getting a blood test to make sure nothing else is going on!!!!

Apart from that Kaitlyn is really good...been attending school everyday possible and quite cherpy...she is missing out on a few afternoon sleeps and seems to be handling that quite well too. She is happy and enjoying being healthy i think.

Like i said before i am thinking of you all just havnet had time to check up on you all...i will keep you updated with all...Our prayers are with all the parents who are helping their children through difficult situations and health problems...Love Yvette


Saturday, June 12, 2004 6:02 AM CDT

Sorry it has been a week since update..time flys and before you know it you are a week behind.

This week Kaitlyn is doing well and is at school ...her trip to the zoo went well and the weather was quite kind just a few showers.

Apart from school and a bit of a weird week we are doing fine. My husband fell of a boat he was building on Wednesday and landed on concrete, from about the hight of the roof...the doctor thought he had broken his ribs and his knee cap...but after xrays all is fine it is all just very bruised and he is quite sore still today. He will be back at work on Monday on light duties.

On Thursday my sister and her fiance broke up after 6 years of going out..The wedding was to be in December but has been called off. We have had her here alot this week as i want her to be 'looked' after and have some tlc. She is not coping the best and we are taking one day at a time.

Then Friday i came down with another urinary infection, ouch!! I went to the doctor early as this is the third one in as many months. he is doing blood tests to make sure nothing else is going on..I am a little concerned as i have NEVER had these before and now am getting them regularly. If any one else suffers from them regularly please let me know and how to 'fix' it.

Then Friday afternoon, you are going to say WHAT NEXT...Olivia came down with a fever and has been complaining of pain behind the knees...does anyone know if there are glands there? Or what it could be...she is a bit beside herself today and has been a bit of a handful...I am praying that it is nothing serious and that it could just be a viral thing.

So that has been my week...so that is why i havent really had the time to sit here and update...I am also sorry to all my freinds for not checking in and leaving messages as i have not had the time this does not mean that i am not thinking of you all as i do this alot.

I would like to congradulate my Oma on her birthday tomorrow and may GOd give you many more.

Please remember our freind Kaitlyn who is still on treatment and has just been on her Make a Wish...Hoep you had fun guys..and hope you treasured every moment.

So that is about all from me it is time to sit back and have a coffee and some chocolate i think...love YVette


Thursday, June 3, 2004 7:47 AM CDT

Not much to report on today..things are going well and Kaitlyn started back at school. She has a trip to the zoo tomorrow but they are forcasting storms so not sure if she will be going.

Please remember our freind kaity who is going on her wish and will be leaving tomorrow morning at 10.30 with her mum and brothers and sister and a few family freinds...please remember them and pray that they have a safe and wonderful trip. All the best Kaitlyn!!!

Apart from that we are thankful that Kaitlyn is getting better and better and pray that she will only go from strength to strength now..The Lord has been close to us and has blessed us in many ways..

Remembering you all in our prayers..Love Yvette and Family


Sunday, May 30, 2004 9:05 PM CDT

Monday Morning..

We were up and out of the house by 7.30am we had an appointment with the ENT specialist this morning in Armadale at 8.15am.

He removed another big 'worm' as we will call them from her nose and she is on antibiotics for another week ..that makes it 4 weeks now on that stuff. BUT she is allowed to go to school. And seeing he was on time this morning we got back to Rockingham at 9am and i dropped her off at school straight away...boy was she happy to be there.

Yesterday we went to Kaitlyns make a wish..she got all her tickets and had a animal farm at her house...we went there for a little while and wished them a safe and happy trip...Please remember Kaitlyn in your prayers..she is still on treatments...they are going on a much deserved break.

Apart from that we visited some freinds from church after for coffee and my mum and dad came up at night for a coffee...but other than that that was my weekend...Oh i did see my sister for a little while on Saturday and she took Olivia for a swim at the heated pools.

Today is pretty miserable weather and cold..but i am just sitting at home, and doing some things before i need to pick Kaitlyn up from School..Thankyou all for your ongoing support and prayers..Yvette


Thursday, May 27, 2004 5:31 AM CDT

Things are getting better for us all...On Monday night Mark and I cleared out kaitlyns nose as the GP couldnt do it again she was screaming in his ear...so Mark got a suringe and a tube and we sucked it out..since then she has been eating well and drinking...she is getting a better night sleep as she is sleeping through the night.

All in all she is getting better everyday and we are thankful she is healing hopefully next week we are ready to go to school.

Her teacher gave her some work to do at home which is nice to have.

Wishing everyone a wonderful weekend and prayers and thoughts to all who are having a difficult time at the moment.

Love Yvette


Sunday, May 23, 2004 11:12 PM CDT

Ok bit of an update..It is monday lunchtime here....On saturday we took kaitlyn to the doctor...she was starting to get quite smelly, and sleep an extra lot. He said she had a secondary infection and gave us antibiotics. Then sunday morning she had a big BLOB in her nose we went back to the doctor as her smell was getting alot worse. Dr Jose removed a 4 cm large blob of muck (it looked like a worm) from her nose. She had a nose bleed after it and all seemed fine.
After her afternoon sleep she had another one in the other nostril...AAnd she was starting to smell again.

This morning I had an appointment with the specialist, who was running an hour late. When i asked him to remove the other one he had one little try and kaitlyn was kicking and screaming and he said oh she will just have to blow it out. MMM, not likely she cant even blow through her nose at the moment. So i have rung my mother in law who is a ex nurse and she said i should go to the GP to get it removed as it is an infection in the nostrils and that is what is causing the smell. Kaitlyn has to have another week off school and at home..Oh fun! She is pretty tired and not eating a great deal, although she did eat a sandwich at my mums a moment ago which is the first bit in a while.

Will keep you posted..Love Yvette


Friday, May 21, 2004 7:45 PM CDT

We are doing well...Kaitlyn is pretty good and eating quite well. She has not been on pain relief for about 24 hours now, and is coping rather well.

We do get some 'angry' moments where everything is just too much and she has a paddy. Who can blame her though. She is resting well at night and resting alot during the day.

Man am i getting sick of the house walls though...not being able to go out is difficult..the 2 girls are starting to fight a little too.

Oh well just the weekend and then we go to the specialist on Monday at 9.40 to see how things are going. Overall she is doing really well.

Thoughts and prayers to all, Yvette


Wednesday, May 19, 2004 9:13 AM CDT

We are home and the operation went well. Kaitlyn had surgery around 1.30pm and was in recovery around 2.30pm. They put her asleep via the drip rather than the gas and she came out rather well. Her stats were a little low so they had her on oxygen for about 2 hours. After that she woke up and wanted chips and cheeseburger.

The nurses were not going to let her but then they said the worst thing that can happen is that she will vomit. She DIDNT. The nurses kept walking in laughing cause they NEVER get kids who have had their tonsils out eating with in 2 hours post op. She then had a restful sleep and was woken at 6am by the nurses 'unplugging' her drip as she had drunk well through the night.

We were in with 2 other girls a little older and they did not cope so well. One was vomiting and the other was in alot of pain.

All in all Kaitlyn did really well and slept for 3 and half hours this afternoon and was ready for bed by 7pm. She is eating reasonably well (even if it is just coco pops and jelly) and drinking well. WE just have to keep up the Painstop and try make her rest.

Thankyou all for your prayers and thinking about Kaitlyn. She is a little fighter and i think she has a high pain threshold / or she is just so use to having pain / sore throats and being around nurses and doctors. Again we remember that God is looking after us always and again he has looked after kaitlyn. Keep you posted. Love Yvette


Sunday, May 16, 2004 9:40 PM CDT

MONDAY 17TH MAY 2004

Today Kailtyn is doing alot better...the temps have gone so it looks like we will be going ahead with the tonsilectemy tomorrow...Yeh hah! I am so relieved about that.

Please remember the cancer kids especially Teena who will be going for a 3 month check up on Wednesday and please remember Kaitlyn who is currently doing battleing with NB and mum Colleen also needs the support. Also remember Kaitlyns brother who has just broken his collar bone.

Please also Remember Teegan a freind of ours and her mum Karen from Orelia who doesnt have a site but she is still struggling with health issues as a result of her treatments...

Also Shaun and his mum who are currently going through treatment at PMH thinking of you also.

Better go and get the washing of the line before the next lot of rain...Thinking of you all...Yvette


Friday, May 14, 2004 0:18 AM CDT

Well this morning kaitlyn has woken up with more high temps...and you guessed it TONSILITIS..all white pussy spots on her tonsils..(sorry about the details) AGAIN...I am a little down today cause kaitlyn is quite upset that she has it again...it was only 4 weeks ago since the last..she just gets sooo sick with it and i am praying that the antibiotics will work for her today and that she doesnt need to be in hospital this time.

The other bugger is that on tuesday she was suppose to be going to get them out..they wont do it if she has a temp.!! So i am praying that by tuesday the temp is gone so that we can get these rotten things out.

I told her today that her tonsils keep getting sick and that the doctor needs to give her a small operation to take them out so that she never gets tonsilitis again..she was quite happy about that, that they were going to take them out. I explained that she will have a sore throat, but whats unusual for her anyways...

Keep you posted..Love Yvette


Wednesday, May 12, 2004 11:21 PM CDT

Well you could have guessed it kaitlyn is sick again....

Olivia her sister has a snotty nose and a cough and kaitlyn has caught it...but with hers she has temps of around 39 degrees...Nothing is ever just simple with kaitlyn...this afternoon we are going to the aneathetist (however you spell it) about next tuesday.. I just hope that they dont say that they cannot do the surgery now cause she is not 100%. Do they do that? Or is it if they are really sick...I just pray it is not Tonislitis AGAIN! Not sure what they will do then.

Apart from that they are just laying around watching video it took out from Blockbuster yesterday..now they are both in bed...I will update more later...Love Yvette

Please remember Connor, Kaitlyn (NB), Masons family, and all the others who are battling with sick children. Prayers and thoughts!!


Saturday, May 8, 2004 1:01 AM CDT

Well we got the scan results back on Thursday and the ultrasound is ALL CLEAR...we can breathe a sigh of releive for another 10 weeks..she has one more three month checkup in August and then we got to 6 month checkups....

She had a wonderful birthday that was filled with love and loads of pressies...she got heaps of 'girly' things which she absolutuly loved.

Last night we were guests at a make a wish fundraiser, at the Mandurah Greyhounds...Kaitlyn had a ball and danced away into the night, we left there at around 10pm, (which for kaitlyn i think is the latest she has ever been out), but she had a ball. We did too and bombed it when we got home, I was very tired as we have had a busy week.

Monday we are back at the ENT specialist to organise the paperwork for kaitlyns surgery next week Tuesday.

Please remember all the mums out there this weekend and i am just wishing you all a wonderful mothers day...AND you are all doing a wonderful job and a loving job caring for your sick children....God be with you all and give you strength to continue..

Love Yvette


Wednesday, May 5, 2004 7:51 PM CDT

Thursday Morning 6th may


HAPPY BIRTHDAY KAITLYN....Today is her 5th birthday...she recieved lots of pressies and has a little party this morning..I will let you know how it goes tomorrow,

Yesterday we had clinic and a 3 month checkup...Her bloods are great and all in the normal range..her chest xray was CLEAR!!!!! and we are just waiting on the ultrasound results which i should get them this morning Dr Mackayla was going to ring me this morning...So so far it all looks good...I talked to Marks mum and she said if there was anything going on it would show up in the blood..

But i will confirm it all tommorrow or tonight...But We are truly thankful that God has blessed us with another year with kaitlyn..although we have had some up and downs we are thankful for a 'better; year without the chemo...we thank God that he has given kaitlyn this year and pray for many more like it..

Praise the LORD...

'Praise the LORD, Oh Give thanks to the Lord, for he is Good! For his mercys endure for ever. Who can utter the mighty acts of the Lord? Who can declare all His Praise?"

Psalm 106: 1 -2


Monday, May 3, 2004 6:29 AM CDT

This morning we had to go to Armadale a half hour drive to see the specialist the Ear nose and throat...our appointment was at 9.30 so we left at around 8.45am.

Dr Sakrapani was his name...and he went through kaitlyns history and i explained everything..he then examined her and agreed that her tonsils need to come out...See tonsilitis can cause an inflamation of the kidneys too if it is not treated right away or it gets servere and cause she has only one left the doctor did not want to risk it..they need to come out so that she doesnt get it again.

He also looked up her nose...charming!! and her nostils are very narrow and congested..he will be 'burning' them at the same time to help her breathe through them..

We are going in on the 18th of May 2004..yes in two weeks time to have it done..It will be an overnight stay and a week at home with no contact with people for the chance of secondary infections. Mmmmm! Oh well i prefer it get done then not!

Will keep you up to date and let you know how wednesday goes. (her 3 month checkup and scans)...Love Yvette


Friday, April 30, 2004 10:23 PM CDT

The week just gone kaitlyn has not been feeling the best..quite tired and pale..not sure what it is..on Tuesday she did not go to school cause she had a croupy cough..but has been ok since then.

I sent her to school on Friday and the teacher said she did not want to do much..so i will keep an eye on her this weekend..she is VERY teary as well everything seems to upset her stuff that would never upset her.

Please pray for us this week...Monday i need to go to an ENT specialist and Wednesday we have a 3 month checkup and scans for the wilms...I hate these days and I pray with all the others that it is all clear as the next day THURSDAY 6th May is Kaitlyns 5th Birthday. We hope we have good news and that will be the best birthday present we can give her.

Actually the other day she said to me" I wonder what Jesus is going to give me for my birthday a sunny day or a cloudy day...and we left it at that and then she came back soon after and said" Mum you know that bestest birthday present i am going to get is that JESUS LOVES ME FOREVER." That brought tears to my eyes. And made me so proud of her and like we are told to have childlike faith...She inspires me!

Please think of Craiggy, Kaitlyn, Laura, and all the other children who are suffering..I havent had a chance lately to check all the sites out i iwll do that soon...Love Yvette


Friday, April 23, 2004 0:00 AM CDT

This morning we went to visit our freind Kaitlyn...It was so nice to see her again with her hair starting to grow back...Colleen..your children are a true credit to you...they are wonderful!


Apart from that the school holidays are nearly over..I myself have got a job over the holidays at Kaitlyns school as a teacher assistant to a special needs child..Kym her name is and she is 12 and has Otahara Syndrome...It is one day a week and will be a challenge but a great reward!!

Apart from that we have been quite around home and just doing not much....

Thinking of you all and wishing you all the very best...We have a long weekend this weekend for the ANZACS...Lest we forget!!


Friday, April 16, 2004 8:26 AM CDT

Not much to report on which is great...

Tomorrow we need to go and do a SHORT speach for the make a wish foundation..We are invited to the Mandurah bowling club and they are going to have an auction to raise money to help others get there wish..

Apart from that we do not have anything else planned but hopefully an enjoyable and relaxing weekend.

Please remember our little freind Kaitlyn in your prayers she is currently in hospital with a bug in her line..they removed it today..so we pray she gets better soon.

Also i have added some new links to some children..Andrew, Josh, Logan with Wilms tumours and Jack and Alexander..feel free to check in on them and see how they are going!!

Love you all

"Your word is a lamp to my feet and a light to my path" Psalm 119:105


Wednesday, April 14, 2004 8:02 PM CDT

Well i havent done any updating lately on what was happening last year...just have been too busy. But i may do some this afternoon while Olivia is in bed for her nap.

We went to the ENT specialist on tuesday and they have decided to do a tonsillectimy...the waiting list is 10 months so i rang a private surgeon who is 30 minutes away and his waiting list is alot shorter so i will be going to hime for a second opinion anyways..

Apart from that Kaitlyn is doing well at the moment..we have a checkup of scans etc on the 5th of May a day before her 5th birthday so that will be a blessing if all is clear.

I have now got a job at the school that kaitlyn goes to as a teacher assistant to a special needs child...I am thrilled and i start the job after the school holidays it is just one day a week for now but that will keep me busy...Anyway keep you updated love Yvette


Thursday, April 8, 2004 7:43 AM CDT

Well where do i start...Tuesday pm after kaitlyns afternoon sleep she was quite distressed...she was having difficulty swallowing and i could not get her temps down with Panadol and Nurophen..I took her back to her GP and he refered me onto PMH hospital..Because we have been off treatement for some time now we have to go back through emergency.

Well that is a story in itself..It took 4 hours and we got a 'ditz' doctor...he didnt really know what he was on about really and was going to send us home as an outpatient and on NO antibiotics cause he claimed it to be Glandular Fever!!!!!!! We asked for a second opinion and we got it we were admitted on IV penicillin and IV fluids as she was dehydrated.

She slowly got better but even today once we are home she is still running low grade fever of 37.8 degrees and still has pussy tonsils..they say that it should slowly get better and have sent us home with oral antibiotics..

While we were in hospital they heard a heart murmer which they checked out and it only appears to be a flow murmer...she started to have diahrehha due to the antibiotics.

We have been sent home for some rest and she has to be encouraged to keep up the fluids..On Tuesday we see a specialist to see what we do next.

Please remember Kaitlyn our freind at www.caringbridge.org/ne/kaitlyn who is currently having tests...and many of the other children who we know at PMH who are going through treatment or learning of relapes.

Love Yvette


Monday, April 5, 2004 9:32 PM CDT

Tuesday morning...Kaitlyn is still not any better...she is having trouble swallowing so i hope and pray the antibiotcis kick in soon..poor little thing.


" He heals the broken hearted and binds up their wounds" Psalm 147 : 3

This is in memory of Darren Woonings who has battled for years with problems..he was born with a heart problem and had a heart transplant..he has since suffered from many problems and was doing well..On sunday he passed away and was taken to the Lord..May you rest in peace Darren and know you will be missed but you are with your heavenly Father now and for us here we are comforted by that.

This is also in memory of my Oma (dutch for grandma) who passed away peacefully in her sleep this morning..She is resting in peace in heaven now."

Lord be with the Woonings family and grant them peace with the loss of their son...we are thinking of them.
Lord thankyou that you have taken Oma and releived her of her sufferings..thankyou that she is now at peace with you..she was strong in her faith and trusted you.


Sunday, April 4, 2004 8:38 PM CDT

Last night..Sunday Kaitlyn started with a headache and a temp..throughout the night she has been spiking temps and panadol is struggling to keep it down.

This morning i took her to the doctor and she has tonsilitis AGAIN..I think this is the 7th time in the past year...I am going to buy Nurophen as i can alternate panadol and Nurophen that way we can keep the temp down, cause that is making her feel miserable.

I now have some antibiotics so we hope that kicks in pretty quick..last time it took 5 days!!

Well thats my week planned for me and next week we start school holidays for 2 weeks...

Well i will keep you all posted...Love Yvette


Wednesday, March 31, 2004 11:04 PM CST

No news is good news!!

Well Mark and i went to Melbourne for 5 nights and my mum and dad looked after the girls..They had a wonderful time..It was the first time since kaitlyns dx that we have left them alone for FIVE nights!!

We had a good break and now are back to normal life. Kaitlyn is doing well...

Please remember Savannahs family...On the 29th March Savannah past away from Wilm Tumour...Please remember her family in your prayers and the many others who are suffering from cancer...Also remember Craiggy who is currently having scans...And Kaitlyn who is finishing her treatments for NB and has scans soon.


Prayer is a powerful thing let us all unite together...


Monday, March 22, 2004 6:57 AM CST

Sorry havent written for a while.

Last Friday night we went late night shopping in Perth..Just Kaitlyn and i..My sister is getting married in Dec and Kaitlyn is the flower girl..so we went there to try on dresses..and she loved every minute of it.

Apart from that not much has been happening..we are trying to stay cool as the last 2 days have been 40 and 42 degrees celsius..So it is rather hot..lucky for airconditioning.

Tonight we went to the beach for a swim which the girls absolutly love doing..it is hard to get them home for dinner.

Today we had a visit from Kaitlyns preprimary teacher..Kaitlyn is doing really well..The teacher was happy with her progress. The teacher asked if Kaitlyn has been affected by what she went through last year..I wasnt too sure how to answer that but i guess it has changed and affected all of us..I think Kaitlyn has become quite a sensetive person to other peoples feelings and has become very aware of her surroundings..eg different people strange places..she always is weary of what people are doing and will always question things..I think that is from her time in hospital when they are bombarded with strangers and strange things are happening to her. She is very aware of sick children but is very compassionate to them also...She is proud to be part of Camp Quality and shares her stories with her class mates. So I am proud of my little girl who has matured a great deal over the past 12 months.

The teacher is also interested in getting the puppets from Camp Quality to do a little play for the kids at the school so that they understand 'cancer'.

Kaitlyn I love you sweety..and I love your little sister Olivia too..You are a brave and wonderful daughter...and yes we thank the Lord everyday for the wonderful things that he grants us and provides us with.


Tuesday 25th Feb 2003

Yesterday they needed to give her blood too! Forgot to write that.

Hb 112
Pl 127
Nt 3.0
Crp 9


Monday 24th Feb 2003

Well today i am glad that we have put the NG tube in...The doctors have come around ordering an abdo ultrasound and xray. The ultrasound showed large amounts of fluid in her abdo.

Yesterday they took a urine sample and it showed large amounts of protein and low albumin (which helps you urinate)..These counts are like this cause her body was starting to starve and feed of itself..sounds horrible but it is true. They have since given her albumin and more lasix to help her get rid of the fluid in her belly.

Her abdomen is that distended that they are going to weigh her twice a day and measure the circumference of the abdo twice a day to make sure that it is on the decrease.

We started feeding at 45ml her and 50ml per hour overnight. They will be checking her urine over the next 12 hours to make sure the protein decreases. And we are told not to worry...seeing our child like this and by now i am quite angry with the whole system..Its like they start by putting chemicals in there body and slowly one thing after another starts to go wrong and slowly they have to try and fix it..I know that they do not have any other choice but to treat the cancer..but it is like a snowball effect that this poor little child of ours has to endure..I know God is there watching over us but human nature is too worry and ask why!


Sunday 23rd Feb 2003

Hb 71
Plt 30
Nt 4.3
Crp 36

This morning Kaitlyn was complaining of tummy aches again....mmmm!! Mark came up at around 10am and by then she was coughing alot!

The doctors examined her again and say that she is carring alot of 'loose' fluid in her abdomen quite alot..they are giving her 2 things to help her flush the fluid out..one is lasix. She has a few sores in her mouth now so we need to make an extra effort with the mouth care.

This afternoon the NG tube went in..AND SHE IS NOT HAPPY!! We are trying to explain to an angry girl that this is to help her and that then she doesnt have to eat then if her tummy is feeling yukky. But she doesnt want to understand yet maybe tomorrow. Now i am doubting myself wondering if we have done the right thing!


Saturday 22nd Feb 2003

Hb 82
Plt 24
Nt 6.7
Crp 32

Got there around 8.45 this morning...she was awake but went back to sleep around 9am...My sister came this morning with Olivia and we went to the RMHouse till 10 am cause i wanted to catch up with the doctors this mroning to see what was going on..I am starting to get a little fed up with all of this!!

They came around and i asked them about the dates that seem to be working in a bit of a cycle..They agreed that the liver has to be considered now cause her Liver Function Test is abnormal..and they have decided to decrease the Actinomycin.

Kaitlyn is still not eating today and we are considering a nasal gastric tube for night feeding..they are trying to tell me that it is pretty traumatic and that i should consider it carefully...all i can say is that i see my daughter fading away and not thriving and i would rather now that she is getting some nourishment rather than none.


Wednesday, March 17, 2004 0:55 AM CST

Not much to report on at the moment..my sister had a dr visit on MOnday and the TB has come back all clear..she is no going to be tested for Giardia and if that comes back clear i dont know what they are going to do..will find out more on Friday probably..

Well please remember all our little cancer freinds and remember them in our prayers..God Bless you all..

YVette



Friday, March 12, 2004 10:12 PM CST

I am asking everyone that reads this to remember my sister Demi in your prayers..She is 23 and has had tummy cramps and pains for a while now.

In the last week she has become short of breath and a sick feeling and full tummy feeling..they did tests and on the ultrasound they founds some spots on her spleen..They are also doiong a chest xray and they are testing her for Teberculosis or TB...but with that she hasnet been complaining of a cough etc..So on Monday she will find out whether it is TB and if not they will need to do further tests...

Please God be with her and comfort her and Ben (her fiance) Give us all the strength to be patient and pray the news is not too bad...AMEN


Friday, March 12, 2004 7:07 AM CST

Today was the worlds biggest shave..(and tomorrow too) But Mark my husband and a group of his mates coloured there heads to raise money for cancer...he shaves his head every couple of weeks so we decided to colour it instead..It is a bright fluro blue!! Kaitlyn put a streak of blue through her hair too...it was cute she wanted to be a part of raising money as well.

We raised so far about $ 200 ourselves which i didnt think was too bad..That along with lots of other people doing the same thing i am sure we raised a good amount..Thankyou to all who participated!!

I will put a photo of it on the webpage soon..Dont have a digital so i will have to go to a freinds house to scan it!!

Apart from that we are all doing fine..thanks to God for looking after us and caring for us and giving us health again...Love Yvette


Wednesday, March 10, 2004 11:20 PM CST

Please remember all the children with cancer and remember them in your prayers.

Please remember

Kaitlyn who is going through radiation at the moment and remember her mum and family as times are tough

Brooke who is currently recovering from surgery to her kidneys

Dokota who is currently going through chemo

Erin who is also currently going through chemo

Jackson who currently on treatment for ALL

Savannah who is currently fighting a wilms relapse

Please remember these children..

If you visit this page please be not afraid to leave a message in the guestbook..I would love to know who is visiting and i will try to reply to them...Please remember all the cancer children and their families...Love Yvette


Monday, March 8, 2004 0:45 AM CST

Well the antibiotics have worked well on all of us..Kaitlyn is good..still a little tired but her infections have cleared up..

My UTI has cleared up but the antibiotics have given me thrush and the rest...By the way i did try heaps of yoghart and those YUKULT drink with the good bacterias in them and nothing seemed to help. But they are finished now and i feel fine.

We had a new kitchen put in on Saturday so things in the house were upside down..dust and rubble.

Sunday I was feeling sick with a head cold and so we all just stayed home and took things easy.

Kaitlyn went to school today for the first time in a while..and she was glad to go.

She is wonderful at the moment..she keeps letting us know that she loves us and sometimes i wonder why she is saying it all the time..does she know something we dont!! She said the other day that she would love to go to heaven cause it is a better place then down here...i then explained to her that God will take her there when he is ready to have her...It just amazes me how children have such a innocent understanding of Jesus and our Lord. She is only 4 and half and already wants to pray herself even at the dinner table..and it is soo cute!!!


Wednesday, March 3, 2004 10:51 PM CST

Sorry everyone for not updating the last couple of days.

A number of reasons one a stupid mistake of mine...our internet provider sent me a warning the account hadnt been paid (the credit card was full) so i needed to go and pay that today so that i could get back on line and second

I have been washed out with a urinary infection that has left me very tired and lethargic..the antibiotics are not agreeing with my bowels either...

Kaitlyn on the other hand was at the doctor on Monday (a public holiday) and there is only one doctor surgery open in Rockingham on that day..with an ear infection and sinusitis (think that is how you spell it) she is now on antibiotics and the nose and ear have cleared up but she still has a nasty cough..We will have to just keep an eye on that...just dont want it going down to the chest!!

So that has really been our week we have been home and resting up..Kaitlyn has not been at school and dont think she will go till next week..so that is two weeks off..what a good start to the year hey!!

Well that is all today...Love Yvette and Kaitlyn


Friday, February 27, 2004 7:52 AM CST

Today we had preprimary and i was parent helper at the school this morning..kaitlyn is still not much better but she hasnt been to school for a week so i thought i would take her in with me and just do a morning..

By lunchtime she was beside herself and so tired..I had dropped Olivia off at my mums so we picked her up and then went home and we all went for a sleep..Kaitlyn is sleeping around 3 hours at the moment in the afternoon and then is back in bed by 7.30pm..Should i be concerned? I dont know! should I..her cough is still not getting any better but it is not getting any worse yet either..guess we just hang in there.

Tonight we had dinner at mum and dads which was nice as we hadnt done that in a long while..Much appreciated MUM!! Tomorrow is going to be a quite day and try and get kaitlyn rested and well again..Yvette


Wednesday, February 25, 2004 0:12 AM CST

Well Kaitlyn is better today..still coughing but much better..we went and saw my cousins new baby 'Seth' today..and then we came home and the girls are no in bed fast asleep..peace and quite

Just want to share this with you..for all those who related too or know someone suffering cancer you will find this a good read (it is rather funny)

This lady has put this on her sons webpage:
'You know when your a cancer parent when...' Have a read of this on www.caringbridge.org/page/gooch - sufferer of ALL

Please remember Micheala who is suffering a relapse and is not too well at all at the moment.. Please remember her.

Also please rememeber our little freind kaitlyn who next week is starting 12 rounds of radiation..Please pray for them!

Thats all folks till next time


Monday, February 23, 2004 5:48 AM CST

Just added another special child her name is Zoe..her mother had 'adopted' my daughter on the Share the Love site..this is a wonderful site where people put there children on so that you get a regular visit from someone...very much worth a look and maybe adopting a child yourself...www.sharethelove.org


Sunday, February 22, 2004 5:48 AM CST

Well today we had a quite day at home..Mark went to church this morning and i went this afternoon.

The two girls are not well..they have something just snotty nose and last night Olivia had a touch of croup so we gave her a nebuliser...Kailtyn has also got a barking cough and just cannot stop..I have even tried a stubborn cough mixture...her temp is on the rise tonight too so we will see what tomorrow brings..no school for her though! which she will not be impressed with.

The start of a new week tomorrow..And i would just like to let all those who are reading this and they have ill or sick children or a family member that you are in our prayers and we pray that you have the strength to carry on one day at a time..

Have a peaceful night sleep and talk to you again soon


Saturday, February 21, 2004 7:25 AM CST

Today there is not much to add..

There are some special children who i have added to the front of my webpage that i think are worth special mention..over the course of time i will be adding more to it.

Brock who recently lost his battle with a wilms tumour and is now in the best place..

Kaitlyn who has become good freinds with us is currently battling with Neuroblastoma

Savannah is currently battling with Wilms Tumour and has had a couple of relapses

Kate who is a six year old and is also just finished treatment of a wilms Tumour

And Micah who is suffering from Apalstic Anemia

Please remember these and many other who are suffering and recovering from cancers..Let us remember them in our prayers..

"Everyday I will bless you, and I will praise you name forever." Psalm 145:2


Wednesday, February 18, 2004 7:50 AM CST

This morning started at around 4.30am...Kaitlyn woke up with a temp of 39 degrees and complaining of lower tummy pain...SHIT

Then we were up early to beat the heat and traffic into Perth to get the three month checkup done. We had to go and drop Olivia off at a freinds house and then pick dadda up from work.

We arrived in Perth at 9.45am (after a long traffic jam on the freeway)..we went to Ward 3B to pick up the paperwork for the thumb prick..Kaitlyn is brave she doesnt even wimper with it anymore..makes it more 'pleasurable'. From there we needed to go to the Renal Specialist..see Kaitlyn only has one kidney and during her chemo she had a few problems with Urinary Tract Infections..

We spoke to him about our concerns with the way she is feeling today wondering if maybe it was another UTI...so far urine sample doesnt show anything.

From there we went to the Ultrasound and Chest xray..once that was all done (finally) we went back done to ward 3B.

Earlier today we met some new freinds..Kaitlyn and her mum Colleen...please visit there site at caringbridge.org/ne/kaitlyn I am sure that they would love to hear from you all...I went to say goodbye to them later but Colleen was not around... We did however manage to catch up with Saskia (the playleader) and a few other freinds from the ward....baby Mitchell who was diagnosed with NB at 8 weeks of age (who is now 18 months and doing well) and Kelisha another young girl 3 years of age diagnosed with NB..great to see that they are doing well.

We went into see the doctor about the results..he gave us the blood results;

Hb 118
Pl 265
WC 13.2 (which explains the fever)
Nt 10.2 (too high for a well child)

He did not have the results for the ultrasound back yet but the xray came back clear..so he sent us home...Man i hate that..you go there expecting results and then they send you home saying we will ring you (yeh right)

At around 4pm i gave outpatients a ring and i got the desk lady..she siad oh you will not be getting them till Monday..My reply was yeh right i am not waiting that long..so i asked for Dr Mickala (wonderful person) She in return gave me a ring and said that the full report was not in on the ultrasound but it generally looks fine..she was a little concerned about the high nutrophils mentioning that it generally tells us there is something brewing..(explaining temp). She was going to get the urine cultured and speak to me tomorrow..more at length about the results... So for now it is generally clear.

We would like to thank all of you for caring and thinking and praying for us today..we can see that God is with us through all walks of life and he has been by Kaitlyns side..please continue to pray for all the other wonderful children out there who are suffering...once again thankyou..Love Mark Yvette and Girls

" Rejoice always, pray without ceasing, in everything give thanks; for this is the will of God in Christ Jesus for you" 1 Thess 5 : 16 - 18


And if one memeber suffers, all members suffer with it' or if one member is honored, all members rejoice with it' 1 Cor 12:26


Monday, February 16, 2004 6:51 AM CST

Just like to let you all know who are reading this that i havent written for over a week cause we contracted the MYDOOM virus and our computer was out of action for a week.

Please remember Kaitlyn in your prayers this week as we go for a 3 month checkup on Wednesday...And dont worry i will let you all know the results asap.

Love Yvette


Friday, February 6, 2004 8:07 AM CST

Today Kaitlyn spent her first whole day at school..it is a big thing for her cause up till now she was still having a afternoon sleep every day (she is 4 and a half)

I just thought i would add this address to this sight for those others who know or are interested in Wilms Tumours.

This site has information on alot of cancers and treatments..it also has a support network for those who are looking for support groups
www.acor.org/mailing.html?/=w
www.acor.org/support.html

Also please remember a little girl named Kaitlyn who could return home for a couple of days after a stem cell transplant...she is always remembered in our prayer and her family..her webpage is www.caringbridge.org/ne/kaitlyn

God bless you all


Thursday, February 5, 2004 7:43 AM CST

Today was Kaitlyns first day at Pre Primary..and did she look grown up.. What a better start to the year we have this year..I pray it stays that way.

I will be posting a photo on this page soon of her in her uniform..what a proud moment as a parent!

We do hope you all think of Kaitlyn and pray for her we have a checkup on the 18th of Feb and we need your prayers that all will be okay and they dont find anything on the scans!!

thankyou all!


Wednesday, February 4, 2004 8:06 AM CST

Please remember a little girl named Kaitlyn she is currently in hospital with NB.. i know her parents and her alike would appreciate a visit to her site and maybe leave a few words of comfort and support..

www.caringbridge.org/ne/kaitlyn


Wednesday, February 4, 2004 7:17 AM CST

On the 7th Dec 2002 Kaitlyn was diagnosed with Wilms Tumour Stage 2..during that time i was not aware of caringbridge nor did i have the time or energy to keep a website alive..i did however write a journal everynight in my diary and now the time has come to write it all on here so that i can share our journey with you all...Wish you all well.

Please remember another little girl whose name is also Kaitlyn who is suffering NB and is PMH at the moment having a stem cell transplant...her family and her gorgeous little self need all the prayers and support at the moment.
caringbridge.org/ne/kaitlyn/


Friday 21st Feb 2003

Weight 17.45kg ( with hydration)

HB 91
crp 18
Pl 5 (VERY LOW)
Nt 5.1
WCC 7.2


Swabs were taken of her vagina this morning as it is that red and sore that she wont sit.

My mum came this morning with olivia and stayed for a while...Feeling rather giddy myself today i think i am just stressing cause kaitlyn is not real good and the dr dont have an answer for it yet.

Waiting for the Platelets when they arrived they went in with no problem she had no reaction to them. After her sleep she woke up complaining of a bad tummy ache and then threw up...Poor thing i had to leave the room as i got the shakes and started stressing..They gave her some Ond. Tonight we had to force 150ml of fluids into her

There seems to be a bit of a pattern happening with when she gets Actynomcin and then when she starts with the tummy pain..I am glad i am keeping a diary cause then i can check back on it.

Wed 22nd Jan - recieved Actynomcin
Tues 28th Jan - compaining of tummy aches and vomiting..Now this si a trend...It seems to happen about a week after her chemo is given!! Will ask the drs tomorrow


Thursday 20th Feb 2003

Weight 16.95kg

Tammy came in this morning my carer, and i stayed home this morning and watch kaitlyn...there is something not right she is very lethargic and not eating and now is not drinking and complaining of tummy pain.
In the end i rang the doctor at PMH and they said that they want to see her..so i rang mark and packed our bags once again..I am getting good at this and it is not taking me long to pack the things we need and i am not forgetting anything any more.

Today we put an advert in the paper for the dog..our dog SAM needed to go to a home where someone could look after him..we are not home enough to do that.

Took the nurses ages to hook kaitlyn up and get things sorted finally at 8pm we were 'settled' in. They took swabs of her mouth ulcers and anal swab and checked the wcc again.


Wednesday 19th Feb 2003

WCC 11.8
Hb 127
Pl 42
Nt 8.8

CHEMO DAY

Had to wake kaitlyn up this morning to head off to the hospital..Chemo went well..althougth she is not herself today..she is VERY tired and passing urine alot and complaining of abdo pain..We got home after chemo and she slept for 2 hours and then just layed on the couch..NOT herself today at all.

She also complained of a sore throut (the one she gets just before she is going to vomit)...Gave her ond and she was in bed at 7.15pm again after waking up at 4pm..They did not (the doctors)that her WCC is going up again so they took another urine sample.


Monday 17th Feb 2003

WCC 9.6
Pl 154
Nt 6.9
Hb 110


Kaitlyn slept through last night and i needed to wake her at 8.30am..she ate a weetbix this morning which was exciting..I am keeping up the Ond every 6 hours as that seems to be helping.

We had an appointment at 10.30 with nuclear medicing as they are going to check out her kidneys..they tried to put in a drip so they could give it to her and of course they couldnt get the drip in. So off we went down to 3B and they had to inject her port so that the nuclear medicine could be put throught there. We had to wait 3 hours for the stuff to work so we went back tto the RMHouse.

The renal doctor is on holidays so we will get the results on wednesday ..they sent us home with oral antibiotics and left the port needle in got packed and ready to go home by 5pm.


Sunday 16th Feb 2003

Hb 132
PL 318
Nt 2.9



This morning she had to go up to the hospital for a blood test..we all slept into 9am which was nice and then we went up to the hospital.. Today she ate half a donut and half a fish finger.

She is drinking though so that is the most important..Still no bowel movements. This afternoon we went to Kings Park and to the WEstern Power park only for one hour and that was enough she was tired after that..

WE had to go up to the hospital again at 2pm for some more antibiotics and then the last chemo as they have been doing it over 5 days this time. Lets hope she doesnt get sick ove rthe next couple of days.


Saturday 15th Feb 2003

Weight 17.30kg

Hb 116
Pl 325
Nt 1.9
crp 7

Went up early to see kaitlyn this morning and let Mark have a sleep in...Kaitlyn is not eating today so we gave her some Ond. at 9am

The dr came round and told us that Kaitlyn could go but as long as we stay at the RMHouse and she was excited that we could go there and she could SLEEP there!!

Still we didnt get any food down today even with poppa and nanna here this pm i thought it might be a distration but it didnt help


Friday 14th Feb 2003

VALENTINE DAY

Yeah wooppy!!!

Weight 17.25kg
HB 120
Pl 358
Nt 2.2
crp 7
WCC 45

By myself today ...Kaitlyn was good and was wanting to dance and sing songs..It was a long day cause she was getting better and more active and being confinded to a room..mm

Poppa came for a visit and Dadda and I left at around 8pm tongith we are tired and ..well not much else to write tonight.


Thursday 13th Feb 2003

Bh 123
Nt 4.0
Pl 404
crp 12
wcc 7.3


Kailtyn didnt eat much this morning..we had some visitors today ..my cousin renae and Aunty Betty and another reli Natalie and her son Rueben..It was great it just broke the morning up and they dropped a few meals off which was also great.

At luchtime i told kaitlyn that i was going to go to the RMH and have some lunch and that she should have a rest..so i put a video on and went for a break.

Well today she did the biggest and most smelliest poo...right before my dad come in to see her...PHEW!!! This afternoon was a long afternoon Kailtyn was busy making things and wanting help with everything.

The doctors came round this afternoon i reckon about 10 of them..they discussed Kaitlyn and decided to keep her in till sunday and put her on some IV antibiotics for the swollen kidney!


Wednesday 12th Feb 2003

Hb 120
Plt 400
Nt 9.5
crp 11
Wcc 12.4

Made porridge for Kailtyn this morning and then drove home..fed the dog and checked the emails and collected some clothes for Olivia and dropped them off at my mum...Rang to see how Kaitlyn was and she was ok for now.

She had an ultrasound done and it had shown a swollen Kidney ...at the moment she has a very distended tummy and it is really looking quite stretched across her incision mark where they did the operation..I questioned the Nurse.

Kaitlyn has been getting that much parachoc etc that it is starting to work through her TOO much she is marking all her knickers and it has given her the total other effect of constipation poor little thing!!


Tuesday 11th Feb 03

Hb 117
Nt 4.2
Pl 397
crp 11

Made Kailtyn porridge this morning again and she ate it quite well..her bloods are looking good and they cancelled the nuclear medicine today and they decided they wanted to wait for another 3 - 6 months..She has to stay in till thursday..Today she has a cough that she cannot stop and it is just exhausting me!!

Today Aunty alice came to visit and Kaitlyn was quite grumpy about it all..she slept this afternoon for 3 hours.

Today i am feeling a little down..well rather alot...see right in the beginning when Kaitlyn was diagnosed I got all these phone calls of support and etc and now that has all stopped and i dont get that at the moment..I am stuck up here at the hospital and nobody to share my stories and my ups and downs with...I am just having one of those days i guess i will get over it...My dad sensed this on me today when he rang so he came and popped in with a big box of Chocolates. Today Aunty Alice is going to try and organise a busy bee at our house just to tidy up the gardens etc.


Monday 10th Feb 2003

Hb 115
Pl 370
Nt 3.6
crp 32


Kaitlyn is doing good today..ate some porridge...Helena the play lady organised a bag full of goodies for Kaitlyn to play and do..we were busy most of the morning..Today they changed the antibiotics that Kailtyn is on cause the bug she has in her urine is resistant to the stuff she was on...They also have moved her to a confined room so nobody else gets the bug cause it makes you resistant to other antibiotics (does all that make sense?)

Mum came this morning and i took Olivia to the shop and had some lunch..and did some washing..Mark came home from work and went up to Kaitlyn and then i went and made us some dinner.


Sunday 9th Feb 2003

crp 52
Hb 77
Nt 3.2
Pl 372

They needed to give her blood today!!

WEnt to Kaitlyn at around 8.30 and this morning i thought i wont bring porridge cause yesterday she didnt eat it...and guess what she wanted this morning...PORRIDGE! and then she had a Kaitlyn moment cause i was not allowed to make it Mark did!!

So off we went back to the RMH and made her porridge..She still was having slight temps overnight and her urine is showing a urine infection - AGAIN this is the 3rd time..They are going to check her kidneys for kidney reflux..this is when the urine back tracks into the kidneys!

This afternoon i slept for 3 hours!!!I didnt mean too..i then made mark and myself some dinner and it was a pretty quite day actually..She still has not had a bowel motion and now has to take Lactolose 15ml x 2 and Parachoc 15mll x 2.


Saturday 8th Feb 2003

Hb 77
Nt 2.5
PL 187

Weight 17.30kg

She has not done a stool for a couple of days and we are puting her on 15ml of parachoc a day..

She had a temp overnight again and Mark went to work this morning..I made some porridge for kaitlyn hoping that she would attempt to eat it.

The doctors did there round this morning and said kaitlyn will be in for a while..This morning she slept from 9 - 10.30 am..By 11am she was really tired again and at 12pm Mark came from work and kaitlyn slept till 3.30...I am emotionally and physically drained at the moment all this tooing and froing to the hospital..I went and had a 2 and a half hour sleep at the ronald macdonald house..

My mum and dad came this afternoon with olivia...and the doctors came around and said that they have found soemthing in her urine..mmmm!!

The Ronald Macdonald house was putting on a bbq tonight and we went down there with olivia , while Kaitlyn rested with Nanna and Poppa.


Friday 7th Feb 2003

Hb 83
Nt 1.8
crp 20

Weight 17.25kg

I called my mum this morning as i was not feeling too well...Olivia had had a croup cough all last night and had kept us up and kaitlyn has had a slight temp since 4am..

Mum stayed a while and i did a few erins like go to the chemist ...a regular stop at the moment.

By 10am Kaitlyns temp was up to 39.4...I called sister Lee and she said to bring her in. So i called Mark from work and he took Kaitlyn in..At 2.30 the minisher from our church was going to visit kaitlyn so he took me up in his car..

Kaitlyn seemed ok with panadol but when her temp went up she was not too happy..Urine sample was taken.


Thursday 6th Feb 2003

Kailtyn was complaining of leg cramps at 8 am and then of tummy pain that was that bad she would double over and fall to the floor at 8.30 and 11.30 this morning..i gave her panadol and some Ondan.

She hasnt done a bowel motion for 3 days so i think that may have something to do with.

Today has seemed like a long day with the girls not really having good rests and i am just mentally exhausted i think. Carol dehaan stopped by to drop a meal off which was really nice.

Lord give me strength and patience to continue this,..take all my worries and concerns away..please bless kailtyn with health ..we all have colds at the moment and we would prefer kaitlyn not get sick..Bless Kaitlyn with a restful sleep and please releive her of her tummy pain.

We also pray for Darren Woonings..some freinds of ours hows boy is up at PMH at the moment for test..make things well so that they may return home to Albany..Lord please take care of our finances so that is one thing that we do not need to worry about..Thnakyou for everything that you have blest us with over the last couple of weeks and thankyou for answering our prayers..continue to work in our hearts and show us the way..AMEN


Wednesday 5th Feb 2003

CHEMO DAY

They seem to come around so fast..Dropped Olivia off at my mum and dads..she had a very snotty nose this morning and was a bit miserable.

Made the drive up to PMH and did the regular routine of the finger prick and wee sample..Kailtyn is slowly getting use to it all..Slowly!!

Spoke to the doctor today cause we had never been told about what the prognosis is IF it comes back..and how it comes back and where.

It usually comes back on the other kidney or the lungs in which case radiation will be needed and it is not a good outcome..if the other kidney is attacked you are looking at a kidney transplant etc!!...I do not like the outcomes but i am glad that i know now!

Kaitlyns blood is better today HB 99
Nt 0.3
Pl 377 (wow)

They are a little concerned about her liver..they are now saying that the previous vomiting and pain and fevers are related to the liver function. They are now going to give actinomycin over a 5 day period so that means the original dose is divided over 5 days so that the liver can function better..and hopefully no side effects..They will watch her and moniter her liver function (via blood tests) and keep her well hydrated..with this we will stay up at the Ronald Macdonald house.

We got home at 1pm today and i was sooo tired i went for a sleep ..a meal got dropped off at our house today which was nice cause i didnt have to think about that.


Tuesday 4th Feb 2003

This morning i only had kaitlyn and she was quite well behaved and ate her brekky good..Tammy the carer came around and i did my grocery shopping and then picked up Olivia from my mums..saw her for the first time in a couple of days..Kaitlyn is eating well but i spoke to the nutritionist the other day and she suggested that i add butter to everything and powder milk to anything with milk in it 2 tbl per cup of milk..just to try and add some weight to her (alot of you think she is probably at a good weight but she is a tall girl and with what she has started with to what she is now !!)

Today she started doing mouthcare herself and it made me realise how grown up she is.


Monday 3rd Feb 03

Weight 17.40 kg
Nt 0.1
Hb 79

This morning mark had to drop of Oma at the airport..I went up to Kailtyn at the hospital at 7.50am they had already woken her up to take bloods..apparently last night she woke up and asked if she could watch tv...she has the nurses wrapped around her little finger hey!

She was in a good mood today and i decided to buy her something special..it was just some paint but it meant the world to her. The doctors came around this morning and said we could go home..(as long as we avoid people contact).

Got home and my mum had cooked us a roast dinner..she was going to keep olivia tonight which was great to have that one extra night with kaitlyn and settle her back in at home. The disruption of moving backwards and fowards and palming your children off and them not having routine is sooooo much worse than what i expected it too be..(they never write a book about that do they)

Tonight kaitlyn was complaining of a tummy ache again!!!


Sunday 2nd Feb 2003

Weight 17.35kg
Hb 77
Nt 0.1
crp 32

Got to Kaitlyn around 8am..bloods had already been taken and she was in a good mood today..The doctors did there round at about 10am and wanted her to keep her temps down for another 24 hours and to see her counts coming up..they are not going to give her blood they want to see if they come up on their own. Again they do not have an answer for her fevers..after this i went back to the house for a rest and kaitlyn went to sleep and so did mark...

Kaitlyn decided to paint her nails today mm mmm! lovely!
This afternoon she did some painting for her cousins in tasmania so that Mum hidding could take them back to show them.

Kaitlyn is now classed as Nutropenic (which they said would probably not happen in kaitlyn protocol) but it has so they have given us all the stuff to do mouth care with which we have to do four times a day..you should smell this stuff..yeuk! This means no shopping centres no kindy until her counts come up.


Saturday 1st Feb 2003

Weight 17.85kg
Hb 77
Pl 67
NT 0.2
crp 59

Kaitlyn was up at 7.30 am and she was in a good mood today..No panadol needed and her temp hovered around 38..Mood was pretty good and Mark came around 11am.

Kaitlyn has been a little worried about the slightest things the last couple of days..wondering if things are going to hurt..even having a bath she questioned if it was going to hurt..(I think she has had enough things that hurt you over a childhood lifetime)

Met Sandra Woonings at the hospital she had a son Darren who was in there a while ago..I know them cause darren was born with heart problems ( she use to attend Rockingham Church) no lives in Albany..it was nice to catch up with her again.

kaitlyn got a couple of fairies from the girls that run the circus..see we got tickets to go but we couldnt make it so they sent these fairies in with my mum.

Monday mum hidding is leaving so she came up to stay at Ronald Macdonald house with us and then on Monday Morning mark will take her to the airport


Friday 31st Jan 2003


Hb 80
Nt 0.7
Pl 34

crp 80 (shows infection somewhere)
I got up to the hospital around 9.45am and kaitlyn was ok..She is still spiking fevers and has done all day..They took some more blood cultures and started her on a new antibiotic cause the last ones dont seem to be doing all that much..but this gave her a rash all over her body so they gave her some Phenergan..she slept for 4 and half hours this afternoon and then was back asleep by 6.30pm

They will be keeping an eye on her for a couple more days her nutrophils are on the decrease and have to increase before she goes home..tomorrow they will give her blood as her Hb is low..She is still not eating or drinking and complaining of tummy pain..(they are now waiting for a stool sample)


Thursday 31st Jan 2003

Hb 83 (low)
pl 31 (low)
Neut 1.6

Last night i had to sleep in the parents retreat..had an ok sleep and i heard kaitlyn sooking at 5.30am but went back to sleep..Kaitlyn woke up around 8am and was real sleepy and went back to sleep from 9 -11..during this time i didnt have much to do so i rested in the parents retreat.

She was awake for an hour or so and then went back to sleep from 1 - 3pm..Mum came and popped in this afternoon and brought her some things she had got at the shop.

They did an ultrasound this afternoon and everything appeared to be normal..liver kidney etc..nothing really showed up..Her bloods were pretty low and tomorrow will probably be lower.

Mark stayed the night and i went home to my bed.


Wednesday 29th jan 2003

CHEMO DAY

Heamoglobin 111
Plat 69
Neutr 2.1

This morning was another early start to get up to the hospital..they were running on time this morning and they had her hydrated by 1pm (4 hours hydration)..they then gave her the chemo and we were sent home..Got home around 4pm and she was just lying there on the couch. That is usually a warning sign number one.

So i checked her temp and it was 39.1 and i rang the hospital and we had to go back ..MAANNNNN!!

They had to prick her port without the emla cream tonight cause it had already been pricked today and if they put the emla on it could cause infection.

She slept reasonably tonight..temp hovering around 41.2 degrees.


Tuesday 28th Jan 2003

Not much to write about today except Kaitlyn has been getting lots of leg cramps and bad tummy aches..She vomited tonight so she slept with mark in our bed..had a very restless night


Monday 27th Jan 2003

Kaitlyn ate weetbix again this morning..and today is Australia day and we were invited to go to the beach by some freinds..so we lathered the girls in sunscreen and went for about an hour.

Kaitlyn has a little freind Shania..who didnt even flinch that kaitlyn has no hair..she is the same age as kaitlyn and i think that that is probably a good age cause they dont notice things like that yet!! We left the beach about 11am they had a wonderful time but were very tired by the time we left so we gave them a bath and put them to bed.

After that we went to Target and bought the girls a 'clam' sandpit one side and water the other side..we got it home and all the girls would do is play in the new sandpit..

Tonight Mark and I got our chance to go out for dinner We went to the Last Drop (counter meal) and then went for a really nice drive along the beach front. Nice and relaxing and some much needed time out i think.


Sunday 26th Jan 2003

this morning Mark and I went to church we had a lovely sermon from Rev Pot on Luke 16:19 - 31.

For those who are interested we go to the Free Reformed Church of Rockingham www.frca.org.au click on Rockingham.. After church we went to drop Marks mum off in Armadale so that she could visit her brother. In the afternoon we had another attempt at trying to fly this kite and we went to my mum and dads for dinner.

Kaitlyn has been eating ok again today lots of applesauce which is not bad i guess..she is on no medications today.


Saturday 25th January 2003

Well one day at a time hey! Today is a new day and Mark is good enough to go to work. Kaitlyns appetite is back today but i am still giving her regular ondas. Went to my mum and dads for coffee this morning and she ate weetbix for the first time in about 8 weeks..then at lunchtime she ate a sandwich with hundreds and thousands on it and a ham and mayo sandwich..

We all then went for a nice sleep and then went to the toyshop..

For dinner they ate pumpkin soup and toast. We then went to the park for a while to 'try' and fly a kite.mmmm!! She ate really well today cause at 8pm she had another two sandwiches.

Mum was going to babysit tonight and we were going to go out for a meal but silly ol me got a panic attach and ended up in bed with the shakes and feeling sick.. Which i am so annoyed at but at the moment there is not much i can do to control it as it is all related to what we are going through at the moment..I have recieved some medication from Rockingham Mental Health to help me through.

I pray that the Lord takes all my fears away and gives me the strength to cope and helps me understand all of this..I pray that he gives me the ability to cope and be well for my family who need me to be well.


Friday 24th January 2003

What a morning where do i start? If it is not one chucking it is the other..this morning i woke up at 6am with my husband asking for a bucket..and off he went..He must have gastro..Great i have a fear of vomiting and it has been in may face for the last 2 days.

So my stomach is up the poop...Marks mum (who is staying with us at the moment) is not feeling the best today either..So today we all hung out at home all feeling rather miserable

By lunch time mark was feeling a bit better and the girls have been rather good considering..but today is a day i would rather forget...Just not coping feeling sick in the tummy and finding it hard to relax and eat..so really not sure if i am ill or sympathy for everyone else.


Thursday 23rd Jan 2003

What a morning...Early rising after Kaitlyn didn t go to sleep till after 10pm!! Olivia woke up crying and grumpy and they think waking up like that and i am suppose to have a good day.

My mum came this morning for a coffee and we tried to stretch olivia out for her morning sleep but she ended up going to bed at 11am.

Gave Kaitlyn some Liquigisic this morning and then she did a big vomit..mm that didnt go down well.

Giving her ondansatron every 6 hours..so far the hydration and onda is proofing to do quite well..At lunchtime she ate some crackers and pate and cheese..but she did feel sick after that so i settled her down for an afternoon sleep.

After that she was really quite and I am having trouble getting her to drink..keep having to remind her and then she will only take a sip.


Wednesday 22nd January 2003

Chemo Day today!!

Up early to head off to the hospital..Bit of a mad rush to get there but we eventually get there on time.

Got the thumb prick done and got an xray done..(they forgot to organise the ultrasound..grrrr!

Today they wanted to hydrate kaitlyn for 4 hours before they gave the chemo to see if that would help with her geting sick.

Was a long day at the hospital but we got home at around 4pm.

We went and got Macdonalds again for dinner cause that is what Kaitlyn wanted..She threw up half way through and then kept eating..made us all have a chuckle.

We gave her Ondansatron 6hourly to help her through.

Hb 77
Pl 422
Nt 2.5

More tomorrow!!


Tuesday 21st Jan 2003

Last night i had a big chat with Mum Hidding..just on how the family over in Tassie is feeling with all this and we talked about some other issues that were bothering me..which is just about everything really!

Today i feel quite good my stomach is not in knots and not having that sick feeling in my tummy..I think it is all related to stress and anxiety..

Kaitlyn got a visit from a freind this morning and it was the first time she has seen kaitlyn without hair..the poor little girl was a bit shocked and for the first little bit she was too shy to even talk to kaitlyn. But in the end it ended in a nice visit. After that Kaitlyn went for another sleep for 2 hours today and again when she woke up she did some much loved craft with her oma.

Kaitlyn had to have nuggets and chips from maccers tonight..so what do we do we go and get them...i pretty much jump at anything she says she wants to eat..cause the quantities are so little and are irregular i jump at any occasion when she says that she feels like something..sometimes i find myself going to the shop a few times a day.

Then tonight we went and sat on the beach for a while and Olivia and Kaitlyn tucked into the crackers and pate. Once Home kaitlyn refused to go to sleep till 9.30pm..which worried me abit cause tomorrow is a big day.

I am quite anxious about it cause i dont really fancy her getting too sick with it..just have to wait and see!!


Monday 20th Jan 2003

Kaitlyn ate a peanut butter sandwich for breakfast and has started the day drinking well..today olivia is off to daycare an we are oof to spotlight to get some craft. Kaitlyn ate another peanut butter sandwich for lunch..must be the like of the day..

She is having funny habits too..today she wanted to sleep in the walk in robe on her fold out couch..and what she wants she gets and she slept for an hour and a half..after her sleep she was happy enough to sit there with Oma and do some craft.

For dinner she ate mashed veges with mince..(try and keep the iron levels up) Then at Nanna and Poppas she later ate some chocolate mousse and some cashews..so a good day all round..Tonight we went to poppas house cause he promised to shave his head when kaitlyn lost all her hair..his hair is rather long and grey so it was a bit of a shock to all of us..but it lifted Kaitlyns spirits for a long while..and that is always worth seeing.


Sunday 19th Jan 2003

Today we woke up with Mum Hidding the girls call her Oma (dutch for nanna) They got a stack of gifts from all the rellies in Tassie.

My Opa and Oma Buist came for a visit and played some tricks for kaitlyn..

This afternoon mum hidding babysat while mark and i went to church..It was nice but i didnt want to talk to anyone and didnt want the questions or the fuss..So i walked straight to the car but people still managed to catch up with you.

Tonight Kaitlyn ate dinner well she ate applesauce and sugar rice.might i mention she had cheese and gerkins for breakfast this morning ..mmmm!!

Lord i pray that you give us all the strength over the next few days..Wednesday is Chemo day again and we place Kaitlyn in your care and give her physical and mental strength to deal with this week.
Please remember those who are in Canberra at the moment and have those terrible fires be with the families.


Sunday 19th Jan 2003

Today we woke up with Mum Hidding the girls call her Oma (dutch for nanna) They got a stack of gifts from all the rellies in Tassie.

My Opa and Oma Buist came for a visit and played some tricks for kaitlyn..

This afternoon mum hidding babysat while mark and i went to church..It was nice but i didnt want to talk to anyone and didnt want the questions or the fuss..So i walked straight to the car but people still managed to catch up with you.

Tonight Kaitlyn ate dinner well she ate applesauce and sugar rice.might i mention she had cheese and gerkins for breakfast this morning ..mmmm!!

Lord i pray that you give us all the strength over the next few days..Wednesday is Chemo day again and we place Kaitlyn in your care and give her physical and mental strength to deal with this week.
Please remember those who are in Canberra at the moment and have those terrible fires be with the families.


Saturday 18th Jan 2003

Last night i stayed with Kaitlyn..she has been still a bit chucky but they gave her some more Ondansatron and we needed to encourage fluids..with that we could go home.

Weight 17.75kg (hydrated)
Hm 104
Nt 1.0

I spoke to Dave the nurse and he said that it could be from the stomach cramps she is having and to give her regular ondansatron and liuigesic and to make sure she has regular bowel movements.

On the way home she did a few funny coughs..threatening to throw up..but we think she might be feeling a little car sick..next time we will put her in the front seat so she can see where we are going.

We got home and she had a few peices of bacon and then went to bed..Tonight mark needed to pick up his mother from the airport..she was flying in from Tassie..i didnt want to sit at home on my own so i got an aunty to come..but i was not feeling to well (panic attacks) so i went to bed while she stayed up.


Friday 17th Jan 2003

Well soon after i had written that not much had happened today Kaitlyn woke up screaming and vomiting...This was just not the normal vomiting once of and thats it...she was vomiting non stop..like enough to get a few breaths and thats it..And scream she has never done that before..not like she did..I was that concerned i rang PMH and they said that if i was concerned to bring her in.

They put her in for hydration and started her on Ondansatron.

They will watch her till tomorrow.

Weight 17.3kg
Hb 126
Pl 385
Nt 1.8

Today i have not been feeling all that well either..bit yuk in the stomach..Not sure whether it is cause Kaitlyn was so sick or whether i have something..(see i have a phobia of vomiting) Bit of a bummer when that is what i am confronted with everyday at the hospital hey!!


Thursday 16th Jan 2003

Not much happened today...Shaved marks head tonight and did Kaitlyns as well. Just a lovely day at home


Wednesday 15th jan 2003

CHEMO DAY

Blood counts

Hm 124
Pl 357
Nt 1.5

Had to wake up early for a trip into Perth..Made a cheese and Mayo toasty for Kaitlyn to eat in the car..we got to Perth by 9am..

Do the 'routine' first the finger prick then down to the waiting room where kaitlyn ate some smarties. Then the visit to the doctor..I asked him about the stomach cramps that Kaitlyn has been getting alot of..He said give her panadol for that ?!!! Then i asked about her mood swings?!!

We need to watch Kaitlyns Nutrophils over the next week as they are getting on the lowish side..Once all the chemo was finished we went up to the 'Rainbow room' Level 7 the starlight room.

We got home and that is when the spats started to happen..kailtyn was just that tired she didnt know what to do withherself..eventually i got her to sleep and she slept till 3.30pm. Woke up and had a little dinner and then dadda took her to the beach..She loves that at the moment some quality time with her dadda.

I am just praying for some normality and routine...but i guess that wont happen for a while..i am just mentally exhausted..i have to get my head around so much at the moment. But i thank God that he is watching our family and being with us one day at a time.


Tuesday 14th January 2003

Today not a good day..Last night mark and i got a heap of things out in the open..(i guess you can expect tensions to run high). We realise that we need to work together through all this..so today i am tired and drained and finding it hard to cope with the girls..

They are fighting alot and Kaitlyn is irrational and gets grumpy quickly.

Kailtyns hair is falling out real fast..and by the end of the day she thinks it is a big joke..tonight in the shower she had a little toy bucket and was pulling out chunks of hair and filling the bucket up. So by the weekend i think she will not have any hair left at all..well by then i think we will shave the whispy bits off..i think they make her look sickly.

Nerves are setting in as tomorrow is Chemo day again!!


Monday 13th Jan 2003

Today was a sad day..this morning i dropped Olivia off at daycare and then Kaitlyn and i went to Traceys place.

We have been finding lots of hair around the place all over her pillow and when we brush it is coming out fast..so i got Tracey to give her a haircut..mmmm Her hair looks rather cute short well it is still about 10cm long but it curls up.

Later in the day we went and bought a scrap book to put all her cards in and a box so that we could keep a lock of hair and all her hospital bands etc in.

Kaitlyn was hungrey at 4pm so i gave her dinner then..then went to pick up Olivia.
And we had another 'Kaitlyn moment' about the shower..she did not want to hop in and then wanted too..I think she is just over tired.

Today I am wondering how to be more devoted to God and wondering if he is hearing our prayers..I want God to read this with me and help me with my worries and help me with my everyday needs / and Kaitlyns.


Sunday 12th Jan 2003

The girls ate well this morning and kaitlyn ate half a weetbix and a crumpet with vegemite?..She is haveing some wierd tastes and dislikes at the moment. Mark went to church this morning and i just had a quite morning at home.

Just before kaitlyn was to have her pm sleep she had a 'Kaitlyn moment'..i think cause she is not eating much she is getting grumpy cause as soon as she has even just a little bit of food..which we eventually forced down she calms down and settled for a sleep.

This afternoon i went to church and then after that we went to my mum and dads for dinner..Kailtyn woofed down some mashed potato and carrots and corn with cheese sauce. (something else that i found out she likes) She then stayed up to 9.30 tonight.


Saturday 11th Jan 2003

I have been forgetting to give Kaitlyn her parachoc ..and she is starting to have trouble going to the toilet...this morning i gave her 15ml..boy am i glad that she doesnt mind the stuff..you wouldnt get me drinking parafin oil disguised by flavouring..yek!

Today i am really tired..grumpy kids and not having a chance to sit down and have a coffee..kailtyn is always needing something.

Tonight is a easy meal we are having steak on the bbq..later tonight my sister is taking me to the movies which would be nice i need to have some time out..i seem to say that alot dont i but i really do and with something like an hour walk etc just restarts the rational brain again.


Friday 10th Jan 2003

Olivia woke up fine today..no sign of anything just a grumpy bum...I was going to visit a freind tracey this morning cause olivia had a temp.

Guess what? After Kaitlyns pm sleep she woke up with a temp of 38..it soon settled to 37.5 so we will just hang in there.

Took Kaitlyn on the weekly visit to the video shop to get some dvds and some m & ms..Her favourite thing the last couple of days..She is soo going through food fads it is hard to keep up with..She will eat something and then i think yeh she is eating so i go to the shop and buy 10 of whatever it is and then she wont eat it the next day...so at the moment my pantry is filling up with stuff.


Thursday 9th January 2003

Girls woke up early today 6.40..so it was a long day...by 9am i had baked a cake done 2 loads of washing cleaned the floors.mmm mad i think!

Today a freind from kaitlyn daycare is coming to see her..i have never met his mum..she is a pharmasist and wanted to know everything about kaitlyn and what medications etc she was on..

Today Kaitlyn is getting frustrated with everything..cause she feels people are always doing things to her..she came out with"you are not listening to me, nobody is listening to me" Poor thing.

This afternoon we went and had fish and chips on the beach..then went home and put the girls to bed..Olivia woke up shortly after with a temp of 40.1..Gave panadol and it went down...wait for tomorrow bet kaitlyn will have a temp!!


Wednesday 8th Jan 2003

CHEMO DAY

First i want to share a story with you

On the way home from hospital kaitlyn said" When i am sad are you sad mum?" i replied "Yes"
"WHen they squeeze me I cry cause i am sad and when they stop i stop crying and i am not sad anymore i am happy..Are you happy when i am happy?"

I just thought that was remarkable for a 3 and a half year old to think like that and it tore through my heart..she has feelings too and they are soo real even though she is still so little.

I mentioned to her that maybe next time not to cry when they sqeeze her and then she wont be so sad she replied "Good idea"

We were up early this morning to get to the hospital by 9am..(with the traffic to Perth and all)
Got there and she had finished a whole bottle of juice which was good cause she needed to be well hydrated for the procedure of chemo.
Did the finger prick blood counts as follows;

White cells 6.0
Hm 133
Pl 111
Neutro 2.5

They got her ready with the ema cream and we saw the doctor..we mentioned about her feeling so sick and he prescribed Zantac (anti acid)
She has been getting alot of cramps in her legs and that apparently is all due to the vincristine.

Weight 17.75kg

I went and talked to the social worker today and she mentioned i will need to take one step at a time. During this time her dadda took her in to get her chemo done..see i am still battling with going in with that..only cause she gets so upset and it breaks my heart.

Today they gave Kaitlyn a doll and some tweezers and stickies and taps and syringes to play with so that she can so some role play at home and get use to the whole thing. (dont blame her if she doesnt ever get use to it).


Tuesday 7th Jan 2003

Kaitlyn wanted a cheese and white sauce (Mayonnaise) toasty for breakfast..Tammy the carer came in and i did the grocery shopping.

I came home and kailtyn ate 2 cookies, half a sandwich, meusli bar, chippies and some nuts (wow)

Kaitlyn then sat and watched snow white..told her that tomorrow she needs to go back to hospital for some medicine.

Over the past few weeks we have been recieving lovely dinners from alot of people in the church..it has been wonderful as that is the last thing that i want to think about..But tonight we didnt get one..so we had scrambled eggs.

The girls were in bed early and i went for a walk for some time out


Monday 6th Jan 2003

This morning Kailtyn did not want to eat or drink..she was gagging on her peanut butter sandwich..I didnt want to force the issue.

This morning Kaitlyn went to her Nannas while Olivia was at daycare...while she was there i went and did some things (like buying nappies etc).

She ate a sandwich at mums but then started complaining of a yukky tummy. I rang outpatients and they said that she shouldnt be feeling like that.

She went for a sleep in the lounge today and then woke up and watch snow white.

I have been feeling a bit nervy today..I just say a little prayer if things are getting a little tough..I just get on edge when she starts complaining of a sick tummy..i am on edge and there is a bowl whereever she sits.

Mark came home early today and took Kaitlyn to the beach for a little while..they watched the sunset.

Today she had 2 doses of Ondan at 8am and 4pm.


Sunday 5th January 2003

4 WEEKS TODAY!!

Girls were up early this morning 7am (that is early for me) I made the girls picklets for brekky (im trying everything at the moment. Kaitlyn wanted vegemite on hers and then didnt eat them.

I went to church this morning and spoke to some people.

Today i am feeling rather tired so i had a sleep this afternoon.

Kailtyn ate a good dinner today and then a vegemite sandwich at 8pm.


Saturday 4th January 2003

The girls were up at 8am..Mark had gone off to get some more crays..came home with two so we invited some freinds round for that afternoon to help us eat it.

In the meantime mark just mowed the lawns. Kaitlyn had another dose of ondansatron this morning cause her appetite is poor...I can notice it now cause she is not even eating lollies..or sweet things.

Matt and Wilma came in the afternoon for an hour and kaitlyn was happy to have someone to play with.

Kaitlyn ate dinner today for the first and we think we are onto a good thing..she loves white rice with applesauce..(so now i am going to buy up big on applesauce i think)

Today Olivia has been a bit of a handful..must be the age 18months But kaitlyn has been resonable..at 4pm another dose of Ondansatron.

Lord we thankyou for letting us have a lovely day at home today and let us be blessed by the preaching when we go to church tomorrow!!


Friday 3rd January 03

Weight 17.6kg

In the morning the two girls slept till 9am...and so did we!!

Didnt do much this morning just encouraged Kaitlyn to drink and eat and stay inside as it was very hot today..

Brushed Kaitlyns hair today and alot was on the brush when i had finished with it..this is just the start.

Olivia was alsleep and Mark was just about to take Kaitlyn out when she vomited everywhere..rang the hospital and they wanted to see her right away.

So off Mark went and they did bloods and urine ..no gastro detected..They say that this is what happens when they havent eaten for a couple of days and they all of a sudden eat well..the stomach just cant handle the break down...the stomach gets irritated!

Her liver has a high number of something (Mark couldnt remember) so she needs to drink alot of fluids to flush it. Actynomicin causes it..Later we have lots of trouble regarding this!!!!


Thursday 2nd january 2003

Girls woke up at 8am again so we get a little sleep in in the morning. I have a carer in and she looks after the girls while i do my own thing for a while..she is there from 930 - 1230. This morning mark and i went to the salvage yard cause my dad had made Kaitlyn a cubby house and it needed some decking for out the front.

Today i went to the Doctor to discuss some fears that had arisen..all about CANCER!! I got him to check all my sunspots and asked him about Breast cancer and Bowel cancer runs in my mums side..so i was just checking when i needed to get all them checked. Im okay for a couple of years yet!!

Kaitlyn is not eating much today! This afternoon we went to the beach for a little while and then we went to bed at 8.30pm thought we would catch an early night.


Wednesday 1st january 2003

Happy New Years to you all!!

Mark got up early and pulled in some craypots...Girls got up at 8am so we got a sleep in. My mum and dad came around to see what we had done to kailtyns room..they stayed for a while.

After that i did (what became a weekly thing) we went to the video shop to get some dvds..and that is all she has been doing today is watching tv and eating a couple of cheese and bacon cheetos and drinking green poptops.

No more ondansatron was given today.


Tuesday 31st December 2002

I had a reasonable sleep last night..it is just soo cold in those rooms..

This morning was the first time that they took blood from her port she was a little aprehensive but okay..but midday she was very proud of her port showing it off to all the nurses..

This morning my husband was off getting craypots up and got to perth at around 9am. When he got there we did some painting with kaitlyn (whom she gave to Rosmary the Nurse Liason)

This afternoon i went for a quick nap and during this time they told mark that kaitlyns heamoglobin was too low (79) and that she required a blood transfusion. Before that they were going to give her her actinomycin and vincristine..she then fell asleep..They hooked her up at 2pm with blood (B Negetive) and told us it was going to take 3 HOURS!!!

We are very quickly getting use to the boredom of the hospital wards and patience is becoming an understatment..you are alway waiting for medication..doctors rounds..chemo and the list goes on..I must say they do a marvelous job and they have so many patients that they need to attend to...but as a parent it just sometimes just a little boring!

Kaitlyn woke up at around 3.30 and then by 5.30 we were allowed to go home. On the way home Kaitlyn was not feeling all that well..threatening to vomit (i dont think the car trip helps all that muchh either).

We were going to spend a news year dinner at my mum and dads but kaitlyn just wanted to go home and go to bed..we went to bed at 10.30 and didnt even see the new years in!


Monday 30th December 2002

Weight 18.05kg

Plt 687
hm 91
Red blood 3.47
Nt 5.0


Today we are going to paint her room a hot pink and a light pink we thought it would be special for her to come home to a new room...she loves fairies at the moment so i am going to make a doona cover with hot pink fairies.

Mark rang at about 12.30 saying that it was all done and they were back in their room..and Kaitlyn was not happy.

My dad picked me up and took me to the hospital and i got there around 3pm and kaitlyn was fast asleep..

Normally we sit with kaitlyn till she goes to sleep and tonight all she wanted to do was rest with the tv off..it was getting late and i told her i wanted to rest and i had a milo then went and slept in the parents rooms which they have on the ward.


Sunday 29th December 2002

Tomorrow Kaitlyn is due to have her port put in.

This morning was nice she wanted to come to church with me so i took her..and after my mum and dad came up for coffee

We had a nice afternoon Kaitlyn ate quite well today..and we had visitors up for dinner and guess what the phone rang..It was the hospital saying that they wanted Kaitlyn to come up tonight so that they can take bloods to make sure everything is ok before surgery...by this stage it was 8pm and by the time Mark and her got to PMH it was 9.30pm..aparently they didnt end up getting bloods till 10.30pm poor little mite had to be kept awake till then.

kaitlyn was a bright button tonight she was talking openly about how she has cancer in her tummy and how she needs medicine to make it all go away and that it is making her feel sick. They pick up on sooo much dont they?


Saturday 28th December 2002

Just an average morning...Mark put a cd player in my sisters car and that was about it for us this morning..in the afternoon we went to the beach and it just tired the two girls out.

Kaitlyn was over tired..and previous to all of this happening she use to have a problem that if she cried too much she would gag on phlem and throw up..and it happened tonight..she just chucked the biggest woopy and threw up..that was just the end of the straw for me so i took the car and went for a drive for some time out..I just pray that i have the strength to start all over again tomorrow


Friday 27th December 2002

Kaitlyn spent time at Nannas house today which she really enjoyed..after a bit of time spent there we went to the beach..That is about all that happened today really..it was just a nice normal day which i cant say we have had in a while..i got some shopping done..and i cooked dinner!!


Thursday 26th December 2002

Today was a quite day at home...oh it is lovely to just be at home..the girls are a good brekky!

I just potted around in the vege garden and cleaned the car..we had a few visitors which was nice.

Both girls had a sleep today and then we went to the beach for a swim this afternoon..It is just soooo good to see kailtyn out and about and enjoying her life and herself..things that we use to take for granted are now such a big deal.

Still getting a little anxious at times...i think it all just catches up with you and the realism of it all starts to sink in..and the poor ol brain gets an overload!! I keep getting this sick feeling in my tummy too and i find that eating small amounts regularly helps..(doesnt help the weight gain though)...Is there anyone else that has this and what did you do to help it?

Just pray that the Lord give us the strength to carry this through and we pray that Kaitlyn can fight this ugly thing!!


Wednesday 25th December 2002

Merry Christmas to you all!!

God blessings for all the families and we pray that the year ahead be filled with hope and happiness!!

We are glad to be home..the girls could be at home and open their christmas pressies..
This morning kaitlyn came to me and tapped me on the sholder and said..Mumma i think santa left me some presents.

Just a few comments that kaitlyn has made over the last couple of days (which makes her a real little miss)

A nurse came in and said " Well arent you a little angel" NO she said " I am a person"

As short as the time has been that she has been in contact with doctors and nurses she is already role playing with her poppa...."Poppa, Im just going to take blood and put in a drip..it wont hurt okay"

We had a lovely lunch with the family today then we ALL went for a sleep this afternoon..then went to nanna and poppa for a BBQ.


Tuesday 24th December 2002

Hm 88
Pl 148
Neutrophils 3.5
CRP (white blood cells) 83 (shows infection)

Today she was due for her Vincristine 0.9ml

After that the doctor said we could GO HOME...her temps have been good for the last 12 hours..so they did her temp and then took her drip out (after administering Vincristine)...Today she recieved a teddy from a little boy who was going around the ward handing them out to all the children..yesterday we recieved a massive christmas hamper from the Ronald Macdonald House..Nice to be able to go home on Christmas eve and we pray that we have a lovely day with our family tomorrow..


Monday 23rd December 2002

Today was not the best day for me...cause i last night i am having a few problems..anxiety etc...i need to get a hold of the problem and rest a little more i think.

Kaitlyns temps are coming down today and she actually ate some chips so that was good..

We left at lunchtime for kaitlyn to have a rest ...funny you know they soon adapt to the clunks and crying and talking of everyone else in the room..seeing they are usually put in the room with 3 other children..sometimes it did bother Kaitlyn and she would get angry cause she was that tired and there was just too much noise..

Well she woke up at 3.30 and her temp had dropped to 36.9..the lowest yet..
Today she received a teddy from the Police Force...the generosity of the people in our state is just unbeleivable!!

Report from my mum is that Olivia is not handling all of this the best...for one the heat at the moment is unbearable..and she is feeling left out also..only being able to come and visit for an hour at a time every other day (meaning not very often) Then when we get her back she lets us know about it and lets her moods show what she really thinks..Times like this are hard!!

Hm 95
Neutrophils 9.7
Platelets 226

Wieght 18.30kg (hydration from the drip)


Sunday 22nd December 2002

Kaitlyn still had high temps throughout the night. The doctors have decided to alternate Nurophen and Panadol to try and keep her temps down..her platelets are fine at the moment so they can afford to do that..

At 9.30 this morning she was tired so we left to let her sleep...at 11.30 she woke up and she was soooo grumpy.

They have decided they want to run some more blood tests cause the antibiotics she is on is not doing anything as yet...around 6pm they came back and concluded that she has tonsilitis as well..

Tonight i tried to watch them take blood from kaitlyn it was 8pm and i hadnt eaten..kaitlyn was screaming and i had to leave the room feeling quite ill...i felt like such a fool and angry cause i couldnt do it..they later reassured me that it happens alot..But i just wanted to be there for my daughter and i couldnt do it...but like they said i am there for her all day everyday and this is just one thing i couldnt do and that i shouldnt be so hard on myself...but as a mother you know what we are like and we are just trying to do the best for our children!!

Heamoglobin 86


Saturday 21st December 2002

Stayed home last night and dropped olivia off at my mums this morning and drove to the hospital this morning (hour drive in good traffic)...

Got there and Kaitlyns temp was still high..it was ranging from 39 - 40.6 degrees..Panadol wasnt doing much..they sent her for a ultrasound and chest x ray and they came back all clear..Did another urine sample too today...they put in a IV line today and started her on some antibiotics...by 10.30 this morning she was really tired and wanted to go back to sleep.

They eventually had to bring in a fan to try and cool Kaitlyn down..Nothing else was working...this afternoon was soo hard to see you lying there moaning and there was nothing that i could do except sit and watch and try to keep you cool.

The doctor came in around 6pm for a review and gave her some Nurophen..they cant give too much of that cause it causes the Platelets to drop..after that we sponge her down and she settled for the night.

God be with our baby Kaitlyn tonight and grant her a good night sleep.

Heamoglobin 82
Weight 17.65kg


Friday 20th December 2002


Weight 17.85kg

Kaitlyn woke up not well this morning..didnt want to eat or drink and wanted to go back to bed about an hour after being up.

Kaitlyns temp was 38degrees at around 9am..by 11.30 it was 39. Rang the hospital and they said i could give her 10ml panadol and take her straight in..so to find a babysitter for the little on again! Got to the hospital around 1pm and they straight away did a blood and urine test.

Urine test came back around 4pm she had a urine infection..gave her 15ml of Liquigesic (pain releif) and some antibiotics...Later that night she was vomiting (which apparently can happen with a urine infection)...settled well for the night


Thursday, 19th December 2002

Well not much of a different day...kaitlyn was having a moment..which i will call them and they lasted a while and she was not a happy camper..Today Olivia has woken up with a temp of 38.8 so not sure what is going on but she has been sleeping alot today.

I rang the hospital today cause kaitlyn has never had moods like this and asked if it was a side affect of chemo and they said no it is just behavioural and to be stern with her..difficult to do when they are sick though dont you think?


Wednesday 18th December 2002

First day home and tensions were running high today..

Went and did the groceries this morning and went to Rockingham Mental health..For those who dont know last year i was suffering from Postnatel Depression and with such a big thing in my life i wanted to go and talk to someone and get my medication checked so that i dont fall in a big heap again...I am doing this more for kaitlyn cause she needs me for the next 6 months and i need to have my head straight and on top of things.

This afternoon was crap if i may say so!! Couldnt please anyone..Olivia was grumpy and kaitlyn was chucking the biggest spats..And of top of that Mark and I finally lost the plot with each other..was bound to happen we had kept it together all week and i think it just all got too much.


Tuesday17th December 2002

At 10.30 today we recieved the first dose of the Vincristine..No sickness with this one just constipation which we are expecting cause she had trouble with that before all this..therefore we are giving her 15ml parachoc once a day.

Today we sorted out some stuff with the social worker..the parking pass..carers allowance and discussed how we were feeling etc. Today we packed up all kaitlyns stuff and we gave her balloons away to other sick children in the ward.

Again mixed feelings today..sooo happy she is coming home but you loose the security of the hospital. We got home and had dinner at nanna and poppa and then went home and settled in for the night.

Thank God that we could return home and pray that he continues his care!


Monday 16th December 2002

Today was a better day all round...Kaitlyn was in a good mood still a little naseaous..they gave her some more Ondan.

Got there this morning and she just layed there and didnt want the tv on! Very unusual...ate cocopops for brekky.

On thursday we asked if we could see the tumour that they removed from kaitlyns body..i wanted to do this as a closure to the chapter and see that they actually removed something...they all thought it was a rather unusual request and said it had never been done before..but they allowed us to and we went there at 10am this morning. (If any of you have the stomach for it i personally thought it was good and informative and a closure) We saw photos of the cancer when it was removed and then they disect it and put a die through it so they can find out whether it has broken the skin or not..we saw the actual kidney too. The doctor then came and showed us the CT scan and showed us the size of the tumour..It took up her whole right abdomen.

We went up to the megazone for 1/2 hour made a candy raindeer. Still threatening to vomit all pm though so they gave her some more medicine.

Weight 18kg


Sunday 15th December 2002

Today it is finally just feeling all too much!!

As far as surgically Kaitlyn is doing well..but today has an anticlimax cause it is the start of Chemo..up to now i was feeling ok about things..today it just all seems unfair and i am questioning Why? Does God have a purpose in all of this? If so What?

I know we should put our trust in God and I tell kaitlyn that God will help the doctors make her better.

All day today i have been feeling sick in the tummy cause the idea of them putting chemicals into my little girls body..such an innocent body..and they are going to make her sick..makes me sick!!

They had to put emla on at 10 oclock cause they needed to put in another line..this one had to be a good one cause the chemo was going into it..they were having a hard time and she was screaming so i left.

Came back and they had given her ondansatron and at 1pm the Actinomycin...17ml! I couldnt watch today..couldnt watch them put chemicals into my baby.

Kaitlyn if you ever read this the reason why mumma couldnt sit with you was that mumma loves you and couldnt stand seeing you in tears and pain..Remember I love you!!.

Because they had so much trouble putting the drip in they are considering putting in a port..another operation! But it will save the stress and heartache in the long run.

About 2 hours after the chemo Kailtyn was getting rather naseaous...gagging all the time and not eating dinner and not drinking..before she went to sleep tonight they gave her some more Ondansatron.

I pray that God will be with Kaitlyn and give her a good night rest..I pray that the doctors do what they can to help her so that she may get better..I pray that God gives us strength to cope and keep us strong.


Saturday 14th December 2002

Today was a quite day just some visits from nanna and poppa and her little sister Olivia..

As always and we learned to have alot of patience with waiting around the wards..we waited for the dr rounds..today the drip came out and she could walk around..they encouraged her to get out of bed and do a little walking..We had a little visit to the Starlight room which we were told to make the most of cause later if her counts get too low during the course of her chemo she was not allowed to go up there.

Kaitlyn went for a sleep so i thought that was a good chance to go and have a coffee..just got a coffee and the phone rang Kaitlyn was all upset..Got to her and calmed her down and took her for a little walk outside..She is drinking well so that is good..still loosing weight! (something i learned later to get use to)

Weight 18.15kg


Friday 13th December 2002

Mark left the house at 6am..thinking the cath was coming out this morning and of course that didnt happen..she was VERY of the planet this morning she had been given 20ml of morphine over the past 12 hours..her eyes were rolling back so they stopped that..cause of that she was in alot of pain today.

10am today we moved from the surgical ward down to the cancer ward.
Weight 18.9kg
Height 104cm. (she was in that much pain she couldnt stand properly for the height measurement

Got all the details today Wilms Tumour Stage Two (had broken the skin)
Just over 5 months of chemo 2 drugs used Actinomycin (think that is how you spell it correct me if i am wrong) and Vincristine
All this will involve weekly visits including blood tests etc. they give her a 90 % cure.

They needed to start Kaitlyn on Parachoc today as she is getting a little constipated..Not eating very well yet..tonight she wanted a bath so we taped her 'strippy' her incision mark which i might add was right across the middle of her belly, so she could enjoy a shallow bath.


Thursday 13th December 2002

Another good night sleep..Kaitlyn was very comfortable last night...Today Mark and i are rather relaxed and this morning we had some special time with kaitlyn cuddles on the bed and 'I love you mumma and dadda'

We gave her a wash and she had some jelly and icecream for brekky..She was sitting up well today and doing some painting..still on the epigural though so that is numming the pain around the abdomen.

Ward 3 B lady came to show us around ..we then went to the RMD House to see where we would be staying.

Kailtyn ate a big lunch and had an hour nap. We got shown around the cancer ward this afternoon and man are we thrown in the deep end..that is alot to take in when just last week i had never been to a childrens hospital let alone seeing all of these sick children!

Later we noticed a lump around the site of the epidural..I queried it and they had to take it out and put her on morphine infusion. Tomorrow at 6am they are going to take the cathatur our.

We are praying lots and thank the Lord for all the miricles so far..he has helped us and strengthened us...we pray this is ongoing!


Wednesday 12th Dec 2002

Overnight Kaitlyn could tolerate some lemonade...although it does come straight out of the tube that is running into her tummy...she has woken up very tired and angry and not happy with any of us.

Urine is good and the epigural is working well..she is constantly asking for something to drink and angry that we cant give anything to her. She had a 4 hour sleep today and when she woke up they needed to take blood and the drip sight was looking red and sore.

Spoke to the doctor today and he said we will get the lab results on Friday!!!! She had been pesting us all day for something to eat they finally rang the registrar and said it was ok for her to eat icecream and jelly..if that stayed down she could eat tomorrow.

The minister from our church came today and it was a nice visit he gave kaitlyn a little story about a sick little girl and even though Jesus is so far away he can still look after her and make her better.


Tuesday 11th December 2002

Nervous today, but we know lots of prayers are with us today. They have put a drip in ready for surgery. At 9.45 they came and got her and mark took her into the recovery room where they put her under. I waited in the freindship room. We had an appointment with the welfare officer to organise the Ronald Macdonald house, so that took up some time.

They told us the operation would take about 2 - 3 hours..At 1.30 the doctor walked in to tell us that everything went okay and they just needed to 'close her up' we were called to recovery at around 2.30pm

We will know later this pm the peliminary results.

When she came out she had a cathatur and epigural a drip and a nasal gastric tube and was not a happy camper.

All she wanted to do was drink but she was not allowed to till the next day..
Her tummy was starting to ache...the epigural had a block in itthey flushed it and gave her a bolos of morphine.

While she was sleeping we met with the people of the 3B cancer ward..at the end of today i am just glad that the cancer is out!!

Possibly stage one, 520gram tumour 10cm in diam.

Tonight she had a low output in urine..all a little worried cause we had no idea what all this meant..by the time we left it was correcting itself (saying she lost a lot of blood during surgery so the fluid they were pumping in at 100ml /per /hour was just replacing lost fluid)


Monday 10th December 2002

Went to my mums this morning to drop some stuff off. She was looking after my other daughter who was 18months at the time Olivia!

I went past kaitlyns daycare to let them know.

Today was the longest day ever..we had to wait till 4pm for the CT scan and with that they need to fast the child of all food only clear fluids..so you can imagine.

We took kaitlyn up to the Starlight room for a while but she was in that much pain that she could not even stand up straight.

A GA was given for the CT scan..she was not happy about all of that is was teritory that she had never been to before. The CT confirmed what the dr had thought and they made sure that there were not any spots anywhere else like on her chest. The surgery has been booked for Tuesday 10am to remove the kidney.

I stayed with kaitlyn tonight and that was not a good night anxious about the operation


Sunday 9th December 2002

This morning Mark went to church..and soon after he left Kaitlyn was screaming in pain she was beside herself and really like angry with the pain..again i rang Marks mum and made an appointment with Woodbridge Medical Centre..Dr by the name of Dr Koo..her appointment was @11 but we couldnt wait that long so i just took her in..(screaming)

Dr Koo saw her straight away and thought it was appendix so he gave her some Maxalon and morphine and refered us to PMH.

We drove straight there with kaitlyn laying in the back..kailtyn was good and soo sweet being on the morphine she was in no pain. We were seen pretty well straight away...but the Bell no 1 was that the dr was not sure and called the surgeon..they all assumed it was appendix so they arranged surgery for 4pm that afternoon. Prior to surgery it is routine to do an ultrasound..they were very quite during the whole thing umming and aaring (Bell no 2)

They brought us back to the room and soon after the dr came back in to tell us that the appendix looked fine BUT..... the most dreaded news any parent would want..there was a large lump on her right kidney.

Now what are you suppose to think with that? Things went wizzing through my head at 100m/p/hr..all upset i left the room.

The dr came to discuss some things with me..but i had these questions that he could not answer. What was it? Was it cancer or benign? Would she die? Shock Shock Shock.

The worst thing was not knowing what was next and they couldnt tell us any more till the next day when they did the MRI and a CT Scan. So i went home not happy and praying to God that all will be well and to give kaitlyn a good night rest. Mark stayed with her..all they gave her was panadol for the night which didnt help and she had a restless night.

Weight 19.8kg


Saturday 8th December 2002

Kaitlyn woke up this morning complaining of a owies tummy...she was holding her right lower abdomen...I then rang my husbands mum at this stage very worried.

I brought kaitlyn to the emergency department at Rockingham Hospital..( and of course we waited for hours). They examined her and said that if it were appendicitis it was not bad enought and to take her home and come back..but being the weekend and all that was the last thing that i wanted to do.

We watched her closely but there wasnt much changing..no appetite..and pretty miserable..she had a restless night.


Friday 7th December 2002

This day was just the beginning that would change our world and our lives forever!!

At around 5pm today kaitlyn complained of a sore tummy..we were at the park and having dinner and she didnt want to eat or walk..we were sitting there eating our dinner when she did a small vomit..she was then grasping her right side.

At this stage i was in a panic thinking it was appendicitis.. we got home and i gave her panandol and put her to bed..then i rang the 1800 health direct number.

This nurse told me to see how she went through the night and go to a dr in the morning.






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