Christopher's Journey

This year marks fifiteen years of hospitals. He is remarkable. Christopher accepts everyday and makes the best of it. Always,he worries about others. Maybe this is our lesson, for those of us who know and will come to know Christopher; he is on a pathway and a journey. When Chris was born, he was visited everday by a nun named Sister Laura. She prayed over his bassinet. When we left the hospital she warned me that he was a special child and to "watch" him. I didn't think much about that conversation until Christopher was diagnosed with ALL,(leukemia), at 3 years old. I went back to St.Agnes Hospital to find Sister Laura; she had been transferred.
Throughout the pain and hard times, we meet and come in contact with special people that touch our lives. Christopher is leading the journey...by the Grace of GOD, and with his own laughter.

Journal

Sunday, November 2, 2008 11:17 AM CST

It certainly has been a while since I even opened up this page. I am sorry. I was so happy to see the messages, thank you.
I saw Christopher yesterday and Thursday. Thursday he had the EMG and met a new endocrinologist that specializes in metabolic disorders as well. We shall see. The doppler and EMG were good. He is fine. So now we have a baseline.
His weight is up a little by about 8-10 pounds. Not good because it may mess up his insulin or could be because his insulin is off.

I am frustrated. The home takes such pains to make sure the diet is right...it just isn't yet. Too many white carbs and the proportion of protein to carb is off. Not their fault at all. I frankly have no idea what the dietician is doing. I have spoken with her several times and was supposed to once meet with her but she never showed. I hope he gets put back on the Metformin to regulate him. I just can't understand why it is so difficult to get the support for the home that they need. The direct care staff is so good. Christopher is happy. He does want to come home still; he still feels pretty bad alot more.

I am thinking of ways for a fundraiser or something in the future. The dishwasher up there broke- apparently it can't be fixed. That will have to come in time. Way too many things going on right now.

Chris turns 19 on November 22. It is just amazing to me.
Again thank you for the messages.

Hospital Information:

Oberkirch Children's Residence

Lake Katrine, NY

Links:

E-mail Author: ldgallagher@optonline.net