History

Thursday, December 11, 2008 4:19 AM CST

School Disco time! Kaitlyn loves her xmas fairy outfit!

Tuesday, December 9, 2008

Last week Kaitlyn went to the hospital for root canals on her front teeth. What was supposed to be simple surgery ended up her having to stay overnight. In hindsight we realise it was because her surgery was late in the afternoon, and because the nurses wanted to go home her recovery was rushed, normally she is allowed to sleep it off and recover slowly. I will remember this next time, in 3 - 6 months she requires the rest of her root canals.

Yesterday she had to take the day off school as we had an afternoon appointment to see our baby on scan. Her and Jethro were so excited during the scan I had to "shhh" them because I couldn't hear the sonographer. As requested, here's pics of bubs.

Thursday, November 13, 2008

It's now been over 4 years since Kaitlyn had any treatment for her Neuroblastoma. I can't write enough how grateful I am of where our journey has taken us. As I read daily about children still in the struggle, of little ones losing their lives in such horrid circumstances, I just think of how lucky we truly are. I never stop thinking of Aussie children who touched my heart like Jessica, Kaleisha, Ebony, Kahlilla, Wainey, Lauryn, and little Kyah from New Zealand who will spread her wings anyday now and fly to heaven. Rest peacefully gorgeous girls.

Kaitlyn recently attended an Orthodontist appointment where she was told she'd get wonderful new appliances to help her lower jaw match up to her top jaw. In December she will have her first appointment to get that started. Her Pa has to get "savin da money" to cover the costs.

I haven't weighed Kaity lately, but the way this kid eats, I'm sure she weighs a tonne. She actually eats more than I do at dinner time now.

She constantly has us in fits of laughter, she is definately a great spirit to be around. One thing that I do feel so very torn about, is... she's growing up so quickly. Just last night she proclaimed that she's such a big girl now "nearly turning 10" that she could probably tuck herself into bed! Not in my life time "MISS nearly turning 10!" (keep in mind she only just turned 9 but insists she's nearly turning 10).

Her soft buddies continue to keep her company at school whilst she has a rough time of fitting in. She's noticing so much more now, and even noticed girls whispering and laughing at her. It makes me so sad for her, and I wonder if it was better her just being unaware.

She's also taking so much more of her learning in. Just yesterday her class walked to the local museum. She came home so excited that she'd been given "olden time money", and used an "olden time pen" and learnt how to wash "olden time clothes". She showed us her "Penny and half penny" and knew exactly what she was talking about. I am just thankful that the olden time was even before my time. Apparently it was such a wonderful experience and she even got to stop in at her teachers house to say hello to George the Black Labrador on the way home.

Kaity is so excited that her "Pa" will be working at her school from next week on, and just secretly, Pa is excited that he will get to see Kaity during the day also. Maybe they will both come home for lunch together.

She continues the count down for her baby sibling's arrival. I'm currently suffering from Gestational diabetes, and Kaity has been my saviour, helping me through my numerous finger pricks each day. I've so far managed to control the diabetes with diet, but my levels are rising slowly and I fully expect to be on insulin before bubs arrives, which I'm fine with, except that means delivering bubs in the city hospital in case bubs has difficulties at birth.

Kaity and Jethro have been so busy getting the nursery painted, actually Kaity supervised a lot and Jethro did all the work, but it was quality time spent together none the less and she certainly knows how to boss her Pa around to get the job done just right.

Thursday, October 23, 2008

Well, it's been a while since an update and I apoligise for that.

Kaitlyn turned 9, and is already planning a whole year ahead when she will turn 10. We had a picnic down the foreshore with family and friends, Kaity wasn't feeling "great" because she was suffering the last effects of a cold. But she was spoilt with a birthday cake from Dawn and many presents.

We've visited the dentist, Kaity took a fall at school a while back and slowly the tooth has been discolouring. Looks like a nerve has been damaged and she will be going under GA for a root canal. Her dentist wants her teeth nice and healthy for her upcoming Orthodontist appointment, and hopefully treatment to align her jaws.

Kaity is suffering socially at school. On a recent meeting with her Ronald McDonald Psych at school it was reported that her self esteem has dropped dramatically. Yes our little princess is the victim of bullying, but hardly ever complains to us. It must be so hard to be so different, she seems to take it in her stride and just looks forward to coming home. We go out of our way to make sure she knows she is beautiful, perfect, and important in the running of our household. Her home environment could not be more perfect and it was noted by her psych that we as parents should keep on doing what we've been doing as she has made huge improvements in her learning abilities. Although still not caught up to her peers. It was nice to be complimented on our parenting skills as she also showed NO SIGNS of ODD (oppositional defiance disorder).

Her teacher this year should also be complimented, she listens and is happy to accept Kaity as different but willing to teach Kaity in ways she requires. A blessing for sure.

Kaity's paediatrician would like us to find something to boost her confidence and self esteem, stating she needs to get involved with something she is good at. Unfortunately all sports are out of the question, as she spends only ever second weekend with us at home. I'm thinking maybe pony club after Sunshine is born. Will look into that further. Her physio would like to see her with her own excercise bike or tricycle (she doesn't like the unsteadiness of a normal bike), her leg muscles are extremely poor, which is expected from a child who has had the treatment she has.

Kaity's growing is something I've been surprised with, all that treatment should have stunted growth, and I guess in some respect it has, but she is quickly growing out of her wardrobe season by season. She isn't the biggest in her class, but doesn't look abnormal in height at all.

Baby Sunshine is coming along nicely, or as Kaity puts it "a big fatty boombah". Only 12 weeks to go today. We are hoping Kaity will be close by at the birth, possibly even there when Sunshine comes out. Dawn has offered to be Kaity's "support" person in case all that works out and it is possible. Remembering that the hospital is an hour from us and my labours last two hours. We're hoping for no roadside deliveries on this one and have been told to leave home as soon as contractions begin.

Tash and Kaity, and the Bratz cake from Dawn!

Tash took Kaity on the pedal cars, doesn't she look like a 9yo going on 16yo!!!

Friday, 12th September 2008

Kaitlyn's class performed an assembly item last week, as usual Kaitlyn really didn't join in, but she was happy to dress up as a "Gymnast" as the assembly was all about the Olympics.

You can see how stubborn she can be, she just stood there whilst the other kids sang and did the actions.

Today she has a day off school, her tongue has been hurting for about 4 days now and this morning I looked under it to find she has a nasty looking ulcer underneath, we are off to the doctors to have it checked soon.

So she's had a relaxing day at Care-A-Lot, her favourite place in the world.

Rats RULE! Kaity loves her "Pretty Princess" and cuddling (squishing) her is fun.

Thursday, 21st August 2008

We had a trip to Busselton planned with camp quality for the past weekend. We were excited.

Friday afternoon we made our way to Busselton, despite Kaity having a cold. It was a great car trip down with much singing from Kaity and Jethro. When we arrived we were served Pizza and Kaity couldn't wait to get back to our chalet, so we did that and started settling for the night.

Unfortunately my belly wasn't going to allow us a quiet night, I began having terrible pains, which turned into what felt like slight contractions.

So after a few hours, I decided to ring Healthdirect where I was told to go straight to the hospital and I wasn't to drive myself. ARGH!

We had no choice but to wake Kaity, as the other kids had not travelled with us. We took a sleepy girl to the emergency dept. They thought I may have gall stones, so started tests, when they took my bloods, poor Kaity said "Be brave mummy, sunshine needs you to be strong, I know it hurts but it will be over soon as long as you don't move"

After my aches settled down, Jethro and Kaity made their way back to the chalet, but not before Kaity broke down in tears in the car park. My poor little love didn't want her baby sunshine to go to heaven like Chloe. Jethro did a great job settling her down and they arrived back in the morning in time for an ultrasound which showed Baby Sunshine is in perfect health, and they could not find anything wrong.

By the time I was released, Kaity was feeling dreadful with her cold, she didn't even want to go sit on the beach for a dig. We grabbed dinner from Camp Quality and went to bed early, only to pack up in the morning, we decided not to head out to the winery tour as we thought it a good idea to take the trip slowly home with many stops so that Sunshine didn't get all uncomfortable again.

We had a great trip home, although we had to keep dosing Kaity up on panadol, she just wasn't coping well with her cold. We stopped by to see friends, stopped in at an old home town of mine for lunch and visited the Serpentine Falls which are spectacular. Kaity enjoyed trying to catch Butterflies which were everywhere at the falls.

So that was our weekend, I must say that the Busselton Hospital is a great place to land if you need a hospital. They were nothing short of brilliant.

We were glad to get home though.

The stunning Serpentine Falls!

Friday, 8th August 2008

So, what happens when a step daddy takes kids and a dog down to the river for a walk.

First we check out the water from a distance. Keeping the feet dry.

Then, when we think no one is looking, one foot goes in whole. YAY, wet feet.

Eventually the step dad was game enough to bring said child home with extremely wet shoes. In his defence - she had fun.

Wednesday, 30th July 2008

We've had so much rain that the Avon River is overflowing, the river is just two blocks from our house, so we took a bush walk down there for a look.

We were lucky enough to spot a group of 4 kangaroos, who didn't really appreciate our visit and hopped away quickly with their small joey.

It's cold down here.

We love having such beauty right on our door step.

Sunday 27th July

Last Monday was the final day of school holidays. Kaitlyn decided we should all go to see "Kung Fu Panda" at the movies. So we all piled into the car and had lunch in Mundaring followed by the movies.

I thought I was going to have to watch the movie with Kaity on my knee for most of it, every time a scary part came on she would bound into my lap in the pretense of not being able to see.

Afterwards she insisted on a share pack of Maltesers, so we all chomped on Maltesers and drank Orange juice on the way home.

She now practises karate on Brad a lot.

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Wednesday was time for Oncology, so Kaity got a day off school and we headed down to Perth. She had bloods drawn and all were in the normal limits. We then met Dawn and Jan for lunch at Booragoon, and of course Dawn had to spend money with Kaity so she took her shopping for a new Bratz doll.

Thursday, 17th July 2008

Kaity decided she was so bored today she needed to ride.

I saddled Possy up, whilst puffing and panting, my belly is growing fast now.

When we got back we washed Possy down, I walked inside and heard...

"Coco, let's get more mucky!"

In fact no matter what Kaity and Coco do together it can be guaranteed to be trouble.

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Last week we had great news that our bubs is low risk for abnormalities. This news was such a relief for us and we are now enjoying this pregnancy.

Sunday, June 22, 2008

Last night we had a double celebration and I feel old.

Kaity has now lived with cancer for 5 whole years!!!

Rikki-Lea turned 18!!!

So we had a party and Kaity loved having Tash here to spoil her.

All went well but I feel so old and tired.

Friday, May 16, 2008

Kaitlyn believes that one of the best things about being a little sister is being able to steal her big sisters boyfriend. She admits this openly, even to Matt who happens to be Rikki's boyfriend.

Luckily for Kaitlyn, Matt is willing to give her attention even before Rikki and certainly doesn't mind getting in touch with his feminine side.

Matt getting his nails done.

During the last couple of days my parents have stayed, in fact they actually came to install a new oven since our old one died. They are on there way up North on holiday so they brought their caravan to stay in. Kaitlyn enjoyed having brekky with Nan and Pop each morning and made herself comfortable with Pop whilst Nan did all the work.

Tuesday, May 13, 2008

Quite a few great things happening in our house.

Firstly, we are happily once again pregnant. Kaitlyn is very excited and so far so good. She has dubbed the little life inside of me "Sunshine" which we all agree is just such a perfect name. Sunshine is one lucky little sibling, and cops plenty of kisses and cuddles from the big sister. Kaitlyn is scared of Sunshine being too small "just like Chloe" so I am being almost force fed.

Jethro is finally booked in for his surgery and his job prospects look good after recovery. Won't mention too much but it seems he has a job that he will be able to start when he is ready. It's close to home and perfect for his abilities.

We had a perfect mother's day with a visit from very good friends, Marty, Mel and their kids Taj, Flynn and Kiana. Kaitlyn was so excited when she knew they were coming to visit and even though they have only met three times the kids really do kick it off well and the minute they got here they were together constantly.

So we used the opportunity for some pony riding and some quad bike riding.

Here's Flynn and Kaity waiting to take off

Kaitlyn adores Kiana even though there is a big difference in age, Kaity thinks Kiana would make a perfect sister and would like one just like her.

Finally we had to say goodbye. Taj is Kaity's age and always makes Kaity giggle.

Kaity presented Marty with a three leaf clover, and was bashful and giggly when he sang her a four leaf clover song. She certainly didn't hold back when she was saying goodbye though and threw her arms around both Mel and Marty, she hopes they will bring the kids back for her enjoyment again soon.

Thursday, May 8, 2008

Tonight I ask of our wonderful prayer warriors to pray. Not for us, but for friends of a very dear friend of ours.

T @ A are young parents, with a baby boy aged 6 months. For over a month they have been taking their precious boy to doctors with concerns over his well being. They were given pretty much the same answers as we were back in 2003. So they did what we did, the only option available and took their baby to PMH.

He has now been diagnosed with Neuroblastoma, at this stage I am not sure on the staging of little "C's" neuroblastoma, but it's been mentioned their little man may only have a few weeks left in him.

I'm not sure if close friends and family of ours remember Kaitlyn at diagnosis, but she would only have lived another few weeks had we not got her onto chemo.

So here I am, asking you all to pray hard for little C and his young parents. It tears me to the core that another little person is fighting for life from Neuroblastoma.

I am praying that the doctors work out some treatment plan for little C quickly and without fuss.

Friday, April 25, 2008

We've had wonderful weather for our school holidays with plenty of riding time.

Kaitlyn uses her riding time to practice singing, and even does her own song writing.

School is back on Tuesday, the holidays have gone way too quickly.

Friday, April 10, 2008

Sometimes Kaitlyn can be such a nutty kid that we are waiting for what's next all the time. So we weren't that surprised when she came out with texta all over her face and arms. We don't always get a reason as to why Kaitlyn does such nutty things, but yesterday we did. "I'm just like you now Pa!" Which is when we realised it was facial hair she'd drawn and tattoos on her arms.

Slowly her neck is improving, once we realised we needed something which was going to target muscles more than panadol would. Nurofen has helped and this morning she declared "It's almost better!"

Today she was excited to get to school for a BBQ, and she told me it was "Free dress" day, meaning she could pick her own clothes, so she did. However I did manage to see that most (all) of the kids walking to school this morning were wearing school uniform. I'm thinking I've been "had".

Monday, April 7, 2008

You know I have to wonder if my life will ever be as it once was. Yesterday Kaitlyn and I were on our way to hospital to visit the dentist. She was awesome company and we laughed and chatted all day, never a dull moment. Her teeth need two small adjustments (fillings) and will be done next month, along with following up with an orthodontist to begin work on her overbite as she is now about the right age to get that going.

We did a quick visit down to 3B also, where we saw the gorgeous Miss Immie and her mum Fiona who was patiently waiting for chemo. Kaity had made her some playdough to keep her busy.

This morning, she has awoken with a very stiff and painful neck which is not getting any relief from panadol. Of course this could be a very normal childhood ailment, she could have slept wrong, but being a cancer mum will forever taunt me and of course in my weary mind it could be tumour on her neck again.

Thankfully she is happy and playing, but walking around quite strangely with her neck on the side.

Thursday, April 3, 2008

I feel that this picture depicts Kaitlyn's "attitude" perfectly. Or as her teacher calls it "Kaitlyn strops".

Then in the next moment it's all smiles again.

Tuesday, April 1, 2008

Last Thursday and Friday night we had bad nights with Kaitlyn not being able to sleep, she was using what we thought was every trick in the book to stay up including toilet breaks every 5 mins.

On Friday afternoon we drove down to Perth to drop her off and it came to our realisation something wasn't quite right with her toilet breaks. She was busting one minute but couldn't go when we'd stop the car.

I did ask her dad to get her into a doctor as she was spending the weekend with him, but it didn't avail, probably not in the job description of BIOLOGICAL FATHER.

So first thing yesterday morning I made an appointment with a doctor, the earliest appointment was today. She was excited to get out of school for an early lunch and thought it was a great bonding activity for her and I to catch a wee. It went something like "Quick mum, here it comes, catch it, YAY, you did good mum!" I am sure it was overheard by the whole waiting room.

So, our GP tested the caught specimen and .... Yep, she has a UTI which she is now on antibiotics for.

After a few lunch boxes came back from school still full we've also been enjoying school lunch breaks at home. Kaitlyn loves to come home for lunch to a cooked dinner, and I believe she functions much better on a full tummy.

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One of the best experiences in the cancer world are the people we meet. During Kaitlyn's "relapse" last year we were so blessed to meet in person a little girl we had heard so much about. Her name is Imogen. She's so sweet and her mum Fiona is just the loveliest liveliest person you could wish to meet.

We were even lucky enough to be able to watch Immie at Adventure World sliding adventurously down the slides with not a care in the world, laying on her back with her eyes closed. SO CUTE!

Today, we heard the terrible news that little Immie has relapsed with NB.

It's so unfair!!!!! Immie will have a broviac placed by surgery on Friday and will restart chemo on Monday. We will be thinking of this beautiful family as they embark on another path in their journey. Immie will not be far from our thoughts and prayers.

If you'd like to visit our gorgeous little friend her website is

http://www.theholmesgang.blogspot.com

Wednesday, March 26, 2008 4:35 AM CDT

Kaitlyn was watching her photo montage that her big brother Brad made and came up with a good idea. She decided we should do an up to date photo of her with her care bears on the stairs.

Just for fun, here's the one we did a few years ago (2004)

Tuesday, March 18, 2008 10:08 PM CDT

For the fun of it I've entered Kaitlyn's picture into a competition. You can vote for it here

http://www.bonds.com.au/bumpsandbaby/BabyPhotoGallery.aspx

Just click on "Sort by last name" and her name is Kaitlyn August. They are viewed back to front so hers is close to the end, just scroll through.

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Kaitlyn had been telling us for a few weeks that there was a new baby in my tummy. We eventually did a home pregnancy test and sure enough she was correct. Unfortunately, it seems we have now lost this little one too. We're ok. Just tired.

Thursday, February 7, 2008

On the way to hospital.

So... I guess you are all wondering how results went?!?!?!

Yep you guessed it, just like so many people have commented on in the guestbook, she LOOKS GREAT!

SHE IS GREAT!

Her scans have improved!!!!!!!!!!!!!!!!!!!!!!

No idea how, why or what, but thankful just the same. Our oncologist said she doesn't need to come back for another 6 months. YAHHOOOOOOOOOOOOOOO!

Again, thankyou all for your thoughts, prayers, and support.

Monday, February 4, 2008

Just a quick note, hectic house :)

First day of grade two was fantastic.

Kaity told us her teacher is from England (I was told she's been brought over to teach due to shortages here), and that she talks with an "England voice".

She's very nice, introduced herself to us and said she knows Kaitlyn's history.

It's going to be a good year.

Friday, February 1, 2008

Today was the easiest day so far.

We arrived at hospital and Kaity and Jethro went straight into the Nuclear Med Room. Her MIBG scan went smoothly for one hour and 15 minutes. Kaity and Jethro watched THE WHOLE "Tigger Movie", I managed to read ALL the magazines in the waiting area.

Our Brave girl getting close and personal with the MIBG machine.

All important job of watching movies whilst staying still.

After the scan was done, we headed off to Nanny and Poppy's house for a long overdue visit. Some serious playing was required, although Kaity wanted to ring her cousin's to tell them to come over, we didn't have enough time for that though.

After our visit we headed off to another hospital, this time for Jethro, he had a long awaited MRI booked. Kaity was the super nurse and helped Jethro brave it through, telling him that it's super important to lay still. She did a great job of not being the patient this time and waited in the waiting room and read ALL the kids books.

Thursday, January 31, 2008

We arrived at the hospital for 10:30am. Unfortunately the tracer was running late, and we were told the plane from America would most likely arrive around 12 noon. So we gave them our number and headed to King's Park to have a picnic. They finally called and said to be back at 1pm.

Once again I waited in the waiting room, and could hear Kaity's cries, they inserted an IV and she was injected with radioactive nuclear dye. Once again they came out hand in hand and all was forgiven and forgotten.

Kaity wanted to go mouse shopping again, we had to say no this time, she really loves her mice and couldn't wait to get home to play with them.

Let's go this way!

Just plain cute!

On top of the trees on the treetop walk.

Unfortunately the flash was on for this pic but you can see the city in the background.

Wednesday, January 30, 2008

Yesterday we had a CT booked. Kaitlyn was so happy, she drank her lemonade and contrast quickly and quietly, and we waited... and waited...

Then Jethro and Kaitlyn went into the CT room, both were nervous (Jethro's first scan and needle stick). They did the first scan and then Kaity had to have an IV inserted for more dye to be injected. Kaity cried and Jethro's heart broke.

I could hear Kaity from the waiting room.

Thankfully they came out hand in hand and cheered up quickly and we went off to a hearing appointment, where I found out that even though Kaity's hearing loss does not warrant hearing aides she would probably benefit from an FM hearing system in the classroom as the background noise probably makes hearing hard in that scenario.

On the way home they decided we needed pet mice. So, we called into a pet shop and Kaity made fast friends with one of the ladies working there, having a good old chat about absolutely everything. So Alvin, Simon, Theodore and Claire all came home with us. We think Claire is pregnant so Mr BoJangles will be happy. As for Simon and Theodore, we hope they get pregnant for Mr Bojangles too.

Today Kaity has spent a fair amount of time with her mice, and playing play doh, we made home made play doh the other day and she LOVES it. This afternoon we made chocolate crackles, Kaity is really enjoyed cooking lately.

Thursday, January 24, 2008

Thanks to Chevron and Camp Quality for an awesome day at Adventure World!!

Kaity always has to have a go on the Peddle cars in the sky first before anything else!

Let's go down the slides.

Down we go.

Loving crocodile Lake!

Thursday, January 17, 2008 7:50 AM CST

It's hot again here, so we're inside the airconditioning and we're baking cookies!

First batch out of the oven.

The all important taste test!

YUMMMMMMMMM........

Wednesday, January 16, 2008

Mr BoJangles went missing, we searched and searched and then found him

WITH KAITLYN!!!!!!!!!!!

Saturday, January 12, 2008

My beautiful new Bratz bed.

Tuesday, December 25, 2007

Merry Xmas to you all. Thankyou for visiting Kaitlyn's page and continuing your support for her always. She's our hero and such a special little girl.

I've put together a short clip of our year in photos, it's been a big year for us.

Monday, December 24, 2007

So Santa brought us a new pool table yesterday, and we've been busy playing pool.

Then today, Kaitlyn's tooth fell out so we are expecting SANTA AND THE TOOTH FAIRY IN ONE NIGHT!!!!

Also, because Kaity has been such a BIG girl and sleeping in her own bed she was allowed to visit her favourite shop lady "Helen" and spend some money.

She picked FACE PAINTS as her prize! Guess what Kaity spent the day doing?

Unfortunately Rikki was working, we missed her. She came to see us at home in her lunch break and called us "Freaks!" She didn't allow Kaity to paint her face, but just wait until she's asleep next!!!

Sunday, December 22, 2007

We got a phone call from Santa and he said he is having one of our presents delivered today because it won't fit into his sleigh. So it's a good time to sit at Jethro's new bar and play chess.

Wednesday, December 19, 2007 8:53 PM CST

On Wednesday we headed off to the end of year Presentation night, we weren't sure if we were going to be able to make it but Kaity was insistent, and she organised to go to Karlee's house to get ready there.

Firstly all grade one children were presented with a Book, then they started on the "special" book awards, to my amazement I heard Kaity's name called out for........

"CWA Awards - In recognition of the children who show a sense of responsibility, caring and trustworthy attitude and exhibit a sense of community."

I raced out of my chair snapped pics of Kaity, and sat back down, to then hear Brad's name called out for the next CWA award. So I raced back up to the front to snap pics.

I am so proud that Kaitlyn was not only a winner of this award but she was also the ONLY grade one child to be presented with a special award, she's grown and matured so much in this year.

Kaitlyn with her grade one teacher Ms Gault.

Kaitlyn with her two books.

My other pictures are all blurry, unfortunately I was unaware of the awards the kids were receiving so wasn't ready and prepared for pictures.

So Kaity is now ready to begin grade two next year when school returns. She's loving the idea of school holidays and is also looking forward to Xmas.

Saturday, December 8, 2007

BIG NEWS!!!!

Kaitlyn has now slept on her "new" big girls bed for 4 nights straight.

I was lucky enough to score a free second hand four post bed which I've converted into a Bratz bed with all the trimmings, it's still not complete but it's doing the job perfectly and our princess is so happy in her bed.

I'll get a pic as soon as I've finished the whole look, just waiting for some more timmings to come in the mail from EBAY.

Today we visited Santa who came to town, unfortunately Kaity had a bad experience the other day with Santa (not in our company) and now believes because she was "naughty" the other day that he won't be visiting her on xmas eve. We've been gently explaining to her that refusing a photo with Santa IS NOT NAUGHTY AT ALL. So hence this year we may not get a Santa pic.

Tuesday, December 4, 2007

Life is busy as normal.

Mummy got a new (secondhand) love swing and I certainly do love it.

I call our house Care-a-lot and my Pa got this sign made just for our house.

Tess let's me love her puppies.

and I love teaching them to "sit"

One of my most favourite things in the world is SAND.

Monday, December 3, 2007

Tiny Kayla has become an angel. Visit Kayla's page

Monday, November 19, 2007

Happy 12th birthday to Travis. Where have those years gone?

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Just a quick funny from Rikki, this may not mean much to our US friends but our Aussie mates will understand how funny this is.

Rikki - "I think John Howard is going to win this year"

Kaitlyn - "Do you?"

Rikki - "Yeah, who do you think will win Kaity?"

Kaitlyn - "Chris Judd!"

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For our US friends quite obviously John Howard is our Prime minister, Chris Judd - a footballer!!!

Kaitlyn never fails to make us laugh. She's growing so fast and we've decided she's NEVER leaving home!!!!

Friday, November 16, 2007

On Wednesday Kaity had an ultrasound. The results of that were that her liver disease is indeed stable.

She had to endure a blood test from the arm and was a champ, the results of those tests were, NORMAL. Even her liver counts were normal.

Her oncology team will be discussing her results and her future on Monday.

We've been so busy on the home front. Our beautiful girl dog "Tess" had delivered puppies. It was an extremely emotional night for us as we relived our memories from 8 weeks ago. Unfortunately we lost the first pup the next morning due to her being a water birth, meaning she had no sac when she was born, and apparently she may have been helped by flicking her upside down at birth. 36 hours after what we thought was a finished labour Tess then delivered a stillborn pup. Brad stayed up all night and witnessed every single pup being born and was a brilliant midwife for Tess. It was a long night!!

So we have 7 gorgeous little pups who are growing extremely fast and looking oh so cute!! Anyone want a pup?

Kaity loves the pups and can't wait for them to open their eyes.

Since we've had good news on Kaity's ultrasound we will continue our journey to try and conceive a sibling for her. So we're praying for an excellent 2008!!!!!!

Tess and her pups

The little girl who the kids (and Jethro) are begging to keep.

Saturday, November 3, 2007

Please don't forget to go visit one of our nurses from hospital. Rochelle is doing "Shave for a Cure" to raise funds for the very hospital and ward we are treated at. Rochelles blog

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Last weekend we went away to Camp Quality in Burekup. It certainly was the break we all needed.

OK I think we go this way guys!

During the week I had an early morning appointment to attend and left the guys in charge of getting Kaity to school. I laid out the clothes to make it easier and thought they would manage ok.

Well, after school when Kaity came home I had to burst out laughing. The poor little girl had gone to school with her "skorts" backwards. Of course Jethro blamed Brad and visa versa.

Kaity is doing well, she has scans coming up soon.

Wednesday, October 31, 2007

I've become aware of two Neuroblastoma angels in an many days.

Rest peacefully Jesson and Grace

I'd like to send you to a webpage to have a look. One of the nurses from Kaity's hospital is doing a "Shave for a Cure" to raise funds for the very hospital and ward we are treated at. Rochelles blog

Some of you may remember me mentioning a Neuroblastoma mum called Fiona. I spoke to Fiona by telephone and email before I actually met her in person. We met in person at the hospital during discovery of Kaitlyn's relapse. Fiona is the type of girl I could easily be best friends with, she's the life of the party, friendly, and has a beautiful personality all over. Immie, her daughter is just as amazing and gorgeous.

Fiona sent me this email about a very good friend of theirs and I'd like to share it with you all in hope you can offer some thoughts their way.

------------------------------------------
Blake needs our help!!

Hi all

It is with a very heavy heart today that I sent you this email...Most of you will know about our new friends Cherrie and Dean and there beautiful boys Blake and Kai.

Blake turned 1, last Thursday and has been fighting a huge battle with cancer - Atypical Teratoid Rhabdoid Tumour.

Blake has had two operations to remove the tumour, one so huge he can no use his left arm and took 12 hours to complete.

Another he had just recently - keyhole to remove a tumour of his lung. These both were successful. Blake has been doing chemo, on and off for the last 7 months and has reached the levels of chemo his body can take, so he can no longer have some of the chemo drugs again.

His family have been working towards getting to proceed to mega therapy and a stem cell rescue (info about stem cell)

http://www.cancerhelp.org.uk/help/default.asp?page=3954

Which is a huge road for this little boy to take, involving months of hospital stay.
Yesterday this was all ripped away from them, when they went in for more routine scans and discovered the other query spot on blakes lung is now a lesion. They now have to wait for another chest x ray next tuesday to see if he will able to start the mega therapy and stem cell rescue.

This is their last hope, of kicking this cancer, though as you may imagine it comes with many odds against them and will be a hard road.

All we ask of you is to put Blake and his family in your thoughts, prayers or vibes (whatever you believe in) and forward this on as many people as you know. To give them the help they need to stay strong, make these impossible decisions a parent should never have to make and help Blake to keep battling this monster.

Thankyou so much for your help and support,

Love to all
Fiona and Jason Holmes, Imogen's mum and dad

To visit Blakes website Click here

---------------------------------------

Friday, October 12, 2007 11:31 AM

School holidays in pictures.

Home made pure fruit icy poles - Yummo

Race ya home! After an early morning bush walk - in PJ's!

Our Museum tour guide.

Do Dinosaurs eat people?

Monday, October 1, 2007

Kaitlyn's birthday was a lot harder emotionally than I really expected, by the end of the day I was a bit of an emotional mess and just wanted to cry it all off.

Kaitlyn on the other hand was ready to party and even slapped a big kiss on a little boy's cheek when he gave her a present.

Saturday we had a nice quiet day which I really needed, with a big day of Sailing planned for Sunday we had an early night. The kids managed to keep us in fits and giggles all the way to Perth EARLY Sunday morning, where we "caught" (in Kaity's words) a sailboat for a beautiful sail on the Swan River.

Today we've spent a glorious Public holiday in York where they are celebrating the "Jazz Festival". Although none of us really wanted to go and complained and carried on (None of us were looking forward to Jazz music) Jethro talked us into the car and we finally did admit we were glad we went. We had stuffed spuds on the lawn listening to Pink Floyd (SO NOT JAZZ). Kaity managed some retail therapy with the multiple stores and the sun was just so relaxing.

On the way home e stopped by a river spot and strolled along the boardwalk.

Kaity decided to get out the camera once home and has declared she'd like to be a photographer when she grows up.

Kaitlyn kissing Corey!

Bratz cake and Friends!

Sisters and sparklers.

Kaitlyn and Karlee onboard the "Nexus"

Kaitlyn went below deck and made herself comfy

Strolling in the bush.

Two of my most favourite people in the world.

AND FINALLY - SOME OF KAITY'S PHOTOGRAPHY

Friday, September 28, 2007

Guess who turns 8 today!?!?

The princess awoke to brekky in bed.

Home laid eggs, on home made bread, with home grown and squeezed orange juice. Luxury in my books.

She's just toddled off to school with a number 8 birthday cake to share with class mates. After school we've arranged a birthday party with 5 of her friends, I really couldn't handle many more than that at this stage. Only one has replied so far so it could be a nice quiet afternoon with two little girls playing bratz and eating junk food, or it could end up with 6 friends running amok.

Kaity has missed her Brad this week, he has been away all week competing in soccer for "country week". I did get a phone call to say they have made it into the finals which are today, but most importantly (to Kaity) he comes home later today.

We have a nice weekend planned so will update after that.

HAPPY 8TH BIRTHDAY MISS KAITY!!!!!!

Sunday, September 23, 2007

For as much heart ache as I've personally endured this last week I am also relishing the fact that I must be the luckiest girl alive.

This weekend we officially became a step family. We now have a full time step daddy in our house! We are ALL overjoyed. Today the love of my life and my second born son went to pick me some flowers to garnish our table. How lucky am I?

I've met, fallen in love and am now going to spend the rest of my life with my soul mate, best friend and most amazing man I could ever have wished for. How lucky am I?

My amazing miracle girl wrote on the calendar for this weekend "PA IS OURS!". She welcomed him with open arms and hasn't left him alone since. How lucky am I?

My soul mate, best friend and lover tells me constantly that he is the happiest man alive. How lucky am I?

Of course my emotions are still running crazy. My nights are usually filled with tears, nights were the time when I could feel our precious Chloe kicking up a storm in the past. At least now I have the consolation of being able to hold my man tight when I need to cry.

Tomorrow we collect Chloe's ashes. Another emotional day I expect, but we will be together.

Friday, September 21, 2007

Kaitlyn has had a very emotional week, from having "accidents" to "melt downs" to getting sent home from school.

Tonight we convinced her to go to the "Freaky Friday" disco at school. Buying matching outfits for her and Karlee helped! Can anyone say "Mini Bratz!"

Best friends!

Thankyou all for your messages. We are missing our baby Chloe very much. Although born still we all had a chance to hold and cuddle and kiss Chloe, Kaity enjoyed lots of kisses, she was so so tiny, she weighed 300grams and was 24cm long (tall like daddy!), and her perfect little nose was a splitting image of her daddy's nose. Tonight is a whole week since she was born at 8:20pm.

Not in our arms but in our hearts forever. We love you Chloe, and a big thankyou to Kaitlyn for being such a great big sister and picking you such a special name.

Saturday, September 15, 2007

Our much wanted and much loved little Pocahontas flew to heaven Friday 8:20pm, Chloe Jade (as Kaitlyn has so aptly named her) was born still at 20 weeks 2 days gestation.

We love you precious baby.
Our hearts are broken.

A beautiful group of ladies I am friends with online sent us a bear with Chloe's details on. I took a photo of the bear holding Chloe's footprints and handprints.

Sunday, August 26, 2007 8:19 PM CDT

Introducing our perfect little bundle.

Thursday, August 23, 2007 10:40 PM CDT

Uncle Troy and I revving it up.

Travis and I play everyday on our four wheeler. Travis let's me drive and I'm CRAZY!!!

Thursday, August 23, 2007 10:58am

I had my amnio on Monday, I was terrified.

I also had a blood test due to Rhesus negative and a jab in my butt - just in case.

We got a beautiful picture of our baby before they asked if we'd like to go through with the amnio, structurally they could not find anything wrong with our baby. We agreed to go ahead and once I saw the needle I could not open my eyes again.

It was very uncomfortable and at first they could not retract any fluid. Eventually they managed three vials and withdrew the needle with was the most uncomfortable bit.

After our hospital visit I was told to rest up for the rest of the day and Jethro was definately to cook dinner that night

We waited for our FISH results which came through at lunch time Wednesday. Our initial risk was 1:62. Prelim results are - all clear for Trisomy 13, 18 and 21

We still have to wait for our other results which will include the sex of our baby, but we are now comfortable and happy to enjoy the rest of this pregnancy. They are wanting to watch and scan regularly due to my hormone levels being low, they think there may be a problem with my placenta that they need to watch for.

-----------------------

Kaitlyn is good and enjoyed being looked after by nanny and poppy. Today she dressed up for book week as a little chinese girl (Mulan possibly). I also got a text message from Karlee's mum telling me Kaity got a certificate today at assembly, I was unaware.

Friday, August 17, 2007 10:37am

Poor little princess fell asleep at her desk in class, so needless to say I got a phone call asking for me to pick her up from school.

She's toughing a cold but I think what really made the difference is that Karlee got sent home yesterday and didn't return today. The first thing Kaity said to me was "I need Karlee!"

Right now Kaity is tucked up in my bed watching DVD's.

Wednesday, August 15, 2007 8:38 PM CDT

Long day, got home about an hour ago.

Basically, we drove two hours, spent half an hour looking for a parking spot, waited two hours in the waiting room...

To be told in a five minute consult....

"The disease which has presented in the liver is stable and has not spread to her abdomen, come back for another scan in 3 months!"

She could tell I was pretty upset about having to wait another three months of hell and brushed me aside and saw us out.

I'm disappointed that no blood work was taken, and no urine sample done. We had a long day for a consult which could have taken place over the phone.

NOT HAPPY!!

But on another note we did get to meet the charming little Immie. A delightful little 3yo who has just finished her treatment for Neuroblastoma. Immie's mum Fiona kept me occupied and my mind clear during our wait... THANKS FIONA.

Tuesday, August 14, 2007 12:11pm

Landing on her nose yesterday wasn't enough for Kaitlyn. She's just tried to stop herself falling with her chin!

I'm scared to take her to hospital tomorrow, looking like she's all busted up! Her nose is extremely BIG and sore looking. She didn't go to school today because her neck is sore and she had a head ache, most likely from the fall yesterday.

But she's happy to know that Karlee is coming over after school and will have dinner, a sleep over and come to hospital with us tomorrow.

Let's hope she can stay on her feet until then!

Monday, August 13, 2007 3:51pm

I got a call today from school.

Kaitlyn fell on her nose!

It's swollen but she will live.

She was more concerned about the doll she was holding at the time, it belonged to Karlee and was her very best and favourite doll.

Saturday, August 11, 2007 7:25pm

For the first time in her life Kaitlyn is grounded. No extra playing with friends, no going out.. GROUNDED.

She was spotted being a bully at school, not by teachers but someone closer to home who happened to mention it, she was made to apologise to the little girl and is GROUNDED. Kaitlyn has trouble realising she is able to have more than one friend, another little girl wanted to sit with them at lunch and Kaitlyn threw the little girls lunch box away. Plain naughty and bullying.

We've discussed the incident a lot and I am sure we won't have it happening again.

In Kaitlyn's current "bored" mode she found some lipstick and spent 30 mins chasing us all around giving us lippie kisses! Of course the lippie was applied in true Kaitlyn style (All over her face). I even sport a big lip kiss on my belly where pocahontas received a big smacking kiss.

Kaitlyn is feeling really good and we wonder how on earth she has the energy to be first out of bed and jumping on ours each morning. She's promised me brekky in bed tomorrow.. can't wait!

We are currently waiting on results, next week. So keep those prayers coming.

Monday, August 6, 2007 7:18pm

Despite my good intentions and thinking I had our appointments under control, we arrived at our appointment and somehow, I handed over the wrong appointment letter. I was told that appointment was next week. Scratching my head I really thought I was losing the plot and the events of the last week were finally getting to me.

So, with no appointment at 11am we had some time to kill and made our way to do some birthday shopping for Brad, he is now 15!!!!

Karlee (Kaity's best friend) came along to the appointment with us so the girls were in fine form and happy to be together, wearing matching shirts and carrying matching bears, AND missing a day of school.

We eventually made our way back to the hospital for our 3pm appointment and ultrasound. Karlee was excited to see Kaity has rainbows inside her tummy (pretty colours on the sonography screen). I was disappointed to see some measurements being taken on two "things" inside her tummy. Jethro was so proud of Kaity and how she laid so still for her scan.

On arrival home much later I discovered I did indeed have our appointment times correct and will now have to ring the hospital to work out what we missed. Pleased to not be losing the plot afterall!

We have some busy days ahead with many appointments for both Kaity and Pocahontas, so it's quite annoying we missed that one when we were actually there.

Kaity and Karlee decided when Karlee's dad arrived to pick her up that whilst Jethro was keeping him busy chatting... THEY WOULD HIDE!! It's amazing the connection these two little girls have, and it takes all our power to sometimes not giggle with them when they do something they "shouldn't".

Monday, July 30, 2007 9:45pm

Whilst Kaity is doing GREAT we have had scary news on our little Pocahontas.

Pocahonatas has one chance in sixty two of being a trisomy 13 and 18 baby. We will be undergoing further testing to see if our little one is ok.

Saturday, July 28, 2007

Hi Friends & Family! My friend Nikki is hosting the 2nd Annual Blogathon for a Cure on Saturday, July 28, 2007! Kaitlyn will be featured at 9pm (US time)

What is a Blogathon?
It is a fundraiser for the Children�s Neuroblastoma Cancer Foundation. Nikki will be blogging every � hour for 24 hours. People may pledge her hourly or via lump sum directly to the charity after the conclusion of the 24 hours, just like any other fundraiser!

How can I help?
There are many ways you can support her effort to raise money for all Neuroblastoma Warriors!

1. Send this poster out to all of your friends in your address book via email! The more people that know about this, the more money is raised for NB Research!
2. Post one of the attached images & link Nikki�s sponsorship address and/or blogging website on your personal website!
3. Tell your friends and family, via word-of-mouth
4. SPONSOR NIKKI! This is by far the most important thing you can do. A small pledge of $5 can go a long way! All donations are made directly to the charity the week following the Blogathon!

Important Links
Blogging for a Cure: http://www.bloggingforkids.shebecameabutterfly.net

Sponsor Nikki here:
http://www.blogathon.org/pledge.php?blogid=541

Thursday, July 26, 2007 8:40pm

Today Kaitlyn went to school for the very first time in weeks.

Arriving at the gate we were met by a little boy named Corey, he was so gorgeous insisting on carrying Kaity's schoolbag, of which I was actually carrying, he eventually took it off me and carried it the rest of the way.

Kaity and Corey chatted about the snake skin Kaity was taking for news, yep, Mr BoJangles shed his skin in time for Kaity to take to school.

We got to class and Kaity was a bit upset that Karlee wasn't at school, unbeknown to us Karlee was actually in her mum's car insisting she wasn't going to school because Kaitlyn would not be there!

After school I met with Kaity's phys ed teacher who said Kaity actually joined in today (rare thing) but was concerned about the not using the arm thing, I explained it's an injury we are conquering.

Class teacher said Kaity had a great day! SO pleased.

Tonight she's been busy making "Kaity art". She's used the rose she snuck home from the pub on Saturday night (actually the publican said she could take it). Isn't this just devine art!!!!

Thursday, July 26, 2007 9:52am

During the school holidays I went to a small farm with my best friend Karlee and her family.

Wednesday, July 25, 2007 8:41am

So after seeing the wonderfully amazing rainbow on our trip home we arrived to discover....

The neighbours tree had fallen across our powerline and we had no power, along with the tree blocking our drive way.

I'd just done our food shopping and was in a panic as to how the cold stuff was going to stay cold and if we would lose everything in our freezer, and how to cook with no power/

Rikki-Lea cheered us up by shouting us to dinner. Only that was marred by me forgetting I can't eat prawns and ordered garlic prawns. I realised before our dinner came to us and Rikki decided we could swap dinners. All good, Rikki couldn't eat it all so Jethro finished off the garlic prawns.

They were both up vomiting all night.

So our luck continued and Kaity fell off the kitchen stool. She still hasn't used that arm but it is improving.

Monday we went for our scan for Pocahontas, all looked good and we got a good show with bubby moving around quite well. Kaity could not attend as originally planned because of her sore arm, instead she cuddled up with cousin Bryce at Nanny's house.

Tuesday we got home to a very large telephone bill from during our hospital stay.

With having to have given up work again because of Kaity being ill I just don't know how things will go from here financially and I hate to whinge about it but it is quite worrying.

We now have an ultrasound appointment booked for 6th August, but will not receive results for more than a week after that.

Ps - My friend Brad did manage to save all my photo's but I have lost all other information from my computer, eg - email addy's, so you may need to drop a line.

Sunday, July 22, 2007 1:10pm

Friday night we visited the Fremantle Jail and were taken on a candelit night tour. With many ghosts haunting us throughout the night, it was a very educational visit.

Yesterday we made our way home and were delighted with a beautiful rainbow which we stopped to "snap".

This is close to home looking over a farm.

This morning the princess woke with a sore arm. That sick feeling was in my stomach until she started using the arm again, then ironically she fell off the kitchen stool onto her other arm and is now complaining A LOT about that arm, it's the same arm she has broken before so we will see how we go today.

Tuesday, July 17, 2007 9:51am

If it doesn't rain it hails.

My computer died and I haven't done backup of my photo's in a long long long time.

Tomorrow I will take it to my old boss and friend Brad to see if he can save the photos.

Wish me luck.

Monday, July 15, 2007 12:29pm

Justa quick conversation between Kaity and I.

Kaity - Humming away as she paints

Me - Gee whiz you are so beautiful

Kaity - Me?

Me - Yep

Kaity - Cos I sing?

Me - Yep.

Thursday, July 12, 2007 1:27pm

With a long trip to Perth ahead of us and the whole reason for the trip playing on my mind I woke with an extreme head ache.

Kaitlyn obviously felt the tension and went into defiance mode.

My wits were short and my temper harsh.

I tried consoling and reasoning with an aptly named new care bear "Hopeful Heart" bear. This worked for the trip.

As we got closer to our destination my legs started to feel like jelly along with my arms and I was feeling the pangs of nausea growing in my belly.

Parking was a nightmare, not even able to get a park at the Ronald Mcdonald House. Our sweet Jethro met us there and we made our way inside. By now Kaity's mood was slightly improved.

After a few hours of waiting the doctor finally called us in and promptly Kaity's defiance returned. She refused to open her mouth for a check, so the doctor decided to count to three and held Kaity's nose after the count of three. This isn't a popular move with Kaity and the mood was made right then. She kicked and screamed and the rest of the visit was basically trying to hear what the doctor was telling us with Kaity making noises and kicking off boots etc.

So, what I know......

- Kaity has had lesions show up on CT and Ultrasound which have NEVER been there before, one particular lesion was about the same size as a small mandarin.

- Kaity's Bone marrow biopsy was normal.

- Kaity's Bone scan was normal.

- Kaity's urines were normal.

- Kaity's MIBG scan was normal.

We were left with two options.

1. Book another ultrasound for 4-6 weeks time.

or

2. Do a Liver biopsy which was explained was a risk.

Kaity is otherwise happy and healthy, and eating and playing well, so for now, we will wait for the ultrasound.

In some way I received my wish, the only difference is they didn't insist on the liver biopsy but rather talked us out of it.

So basically the oncologists still believe the cancer is in the liver but want to wait for it to "declare" itself by other means (scans or tests other than the CT and Ultrasound). The normal tests so far do not give PROOF that it is cancer.

Their suggestion to wait 6 weeks will not change the "outcome" (this was clearly outlined to me) or the treatment if/when the cancer "declares" itself.

Tuesday, July 10, 2007 7:20 AM CDT

Ok here's what I want to hear tomorrow. I'd like for them to tell me they cannot find any other lesions or disease other than what they see in the liver. They will then insist on doing a biopsy to which I will agree and they will then tell me the biopsy shows that these areas are fatty tissue or cirrhosis. I have spoken to two parents who have dealt with liver lesions and ended with the same theory.... so FINGERS CROSSED!

I can always HOPE!

Sunday, July 8, 2007

The other day we had a great visit from family.

With all the cousins in one place we decided on an update picture of them all. Now these are kids of all ages and a whole nine of them to boot, so this picture was a bit difficult to snap.

We got a letter in the mail from our electricity supplier that we needed to lop a tree away from our power lines, yesterday Pop (my dad) decided to clear the tree. Today Kaity helped clean up a bit.

I'm the boss

I like to climb

I'm a good helper

Come here Mr BoJangles

I wanna be just like Bindi

Let's kissssssssssssssssssss!

Wednesday, July 4, 2007

Yesterday Kaity had her hip bones drilled for a Bone Marrow biopsy, she now sports bruises and bandaids which can't be wet for 48 hours.

She also had an injection of Nuclear Dye which remains radioactive for 3 days. Hence I've been advised in my pregnant state to not have close contact with her in this time. Thanks Dawn for taking charge of her care whilst at the hospital. I've dropped her at grandma's and poppy's during her radioactive stage.

Today she had her MIBG scan and remained still for the whole hour.

No results with these until next Wednesday. One doctor mentioned her bone scan looked normal but this isn't confirmed.

Kaity remains happy.

Monday, July 2, 2007

Thanks to Grandma for this photo of Kaity before her best friends birthday party yesterday.

Today we had a big visit from my brothers and families.

I will update with pics from today when I get back from hospital Thurs/Fri.

Tomorrow she goes under GA for a bone marrow aspirate and injection for MIBG. Wednesday she has an MIGB Scan.

Saturday, June 30, 2007

The last few days have been the hardest we've endured in over two and a half years.

Kaitlyn has relapsed but I've been unable to write about that until my other children were told.

Tonight I've done that.

Kaitlyn has lesions all over her liver and will undergo further testing to see if it's anywhere else.

She remains happy and cheeky.

Friday, June 29, 2007 4:36pm

Kaitlyn has been allowed out for the weekend, as she poo'd!!!

She is spending tonight and tomorrow night with her daddy and family and will make her way to Karlee's party on Sunday. She will then come home to us for Sunday night.

We've been through a heap of testing.

She's had an ultrasound, a CT, and a bone scan.

Results will come next week after a bone marrow biopsy and an MIBG scan.

Uncle Kel and Aunty Ness visited all the way from Hong Kong, Kaity loved them playing with her and helping with her homework.

Uncle Troy came to Karaoke and won Kaity a prize!!! Unfortunately we only got to see Uncle Troy sing one song before we had to dump him and run for our bone scan. Thanks Uncle Troy for making our day!! He is so naughty and comes up with all sorts of bad ideas, but makes us laugh.

Kaity is completely happy and cheeky and is loving the social life of being on ward 3B.

We've had lot's of visits from old staff who knew her when she was so little.

Please keep praying for Kaitlyn.

Monday, June 25, 2007

Hello everyone,

It's Rikki-Lea here. I am just updating the page on behalf of Mum because she is unable to. Kaitlyn has been sent to the oncology ward to have some tests done to see why she has a sore stomach and has been feeling sick, so Mum and Kaitlyn are currently at hospital in Perth.

Rikki-Lea.

Friday, June 22, 2007

Last night to celebrate four amazing years we decided to accept an invitation from Camp Quality to attend Circus Joseph Ashton in Joondalup.

When we arrived it was a pleasant surprise to meet some West Coast Eagles Players.

Kaitlyn with Adam Selwood.

Kaitlyn with Beau Waters.

When we sat to watch the circus Brad was happy to have the Eagles players sit next to him and chat! Adam Selwood particularly was kind to Brad and made his night. Brad is a BIG Eagles supporter and paces and stresses each weekend before the game, and if the Eagles happen to lose, we don't get any conversation from Brad all weekend. So as you can see the Eagles are a big part of our life!

The circus was amazing! Kaity and I were just sitting there saying "wow" a lot! They even have a tiny little baby as a part of the act and he knows exactly what to do along with a beautiful little girl who Kaity called the "Little Ballerina". Such talent from the whole circus. They are in Joondalup all weekend and I highly recommend the show!

A big thankyou to

Camp Quality
Circus Joseph Ashton
and
West Coast Eagles.

Click the banner's below to view their website.

Thursday, June 21, 2007

Four years ago today.............

CONGRATULATIONS MISS KAITY!!!!!!!

Our little miracle has survived four years.

Four years ago today I first heard the words "tumour in your daughters abdomen"

Four years ago today I met an oncologist and learnt about chemo.

Four years ago today I met some really really cute and adorable bald kids and was told my daughter would also be bald soon.

Four years ago today I was told my daughter would live to her next birthday but maybe not the next one after that.

And here we are.

Today!!!!!!!

I'm so proud of my little champion. Tonight we're off to the circus where Kaity will do a photo shoot for camp quality to use in a magazine article.

Kaitlyn with her best friend Karlee.

Thursday, June 14, 2007

On our last night in NSW my mummy was acting real weird. She decided to do wee wee on a stick. I've done some strange tests before but never one like this!! How disgusting! Anyway, I saw the stick and it had two lines like this

When mummy asked me what the lines meant I threw my arms around mummy and Jethro and yelled "We're having a baby!!" Adults are so weird cos they were nearly crying.

The next morning we told Opa and Oma, they asked me if we want a boy or girl, what a silly question, I said "It's a girl!" so they asked if we had any names for our baby, I don't know if I was sposed to tell but I told them "Pocahontas".

Oma and Opa drove us to the airport. I was sad to say goodbye and gave Opa and Oma kisses.

This is me on the plane getting ready for take off, I suck chuppa chups so my ears don't hurt as much and I even had TV right in front of me AND the window right next to me. How lucky was I???

Thursday, June 14, 2007

This is me running away from "Puff" the dragon who kept spitting water at us! He lives in a blow hole at Kiama and he'd been eating McDonalds and just threw his rubbish away too!

Opa had NO idea of which way to go, so I had to show him on the map. I happen to LOVE maps so it was all good. Of course I think Opa just got confused!

Opa and I spotted something good to look at after we worked out the map!

Tuesday, June 12, 2007

Riding the ferry to Manly was fun! I sat on the beach and made sandcastles.

Sunday, June 3, 2007 11:49 PM CDT

I love playing hide and seek and the opera house has lots of good hiding spots!!

Friday, June 1, 2007 4:38pm

I've wanted to see the Opera house for SOOO long, I even got to touch it once we climbed all the stairs!
Did you know there's a big opera house and a baby opera house?!?! I went inside the big one.

Thursday, May 31, 2007 6:37 AM CDT

This is the very first Lighthouse I've seen in real life, and I LOVE lighthouses. I ran around and around this one!!! It was windy in Wooloongong, but we spent a really nice day for Mother's day on the beach.

Friday, May 25, 2007 3:59 AM CDT

A long day at the Taronga Zoo, with Opa and Oma. We rode the sky rail which was scary the first time and this was my first glance at the Opera house and bridge. I was pretty tired by the time we finished looking around the zoo so it was lucky we hired a stroller so I could just sit and relax.

My wombat's name is Millie, I bought her at Fitzroy Falls and loved her every minute, she kept me warm and safe at night and we even saw her brothers and sister's at the zoo.

Thursday, May 24, 2007 7:55 AM CDT

Me and Mummy having cuddles waiting for our flight right after I ate my big muffin at the airport. I LOVE those muffins.

Tuesday, May 22, 2007 1:26pm

Just a quick note to let you all know we have arrived home from Sydney.

Will update with pictures as soon as I get a chance... so much to do!

Just quicky I will add in the URL for a video Brad made for a school project last year, I finally managed to add it to YouTube -

http://www.youtube.com/watch?v=20psz_FCul8

Copy and paste that URL into your browser. Let me know if it's not working for you.

Friday, May 11, 2007 10:23am

We're Off!!!

Sydney here we come.

Thursday, May 10, 2007 4:19pm

Only two more sleeps until we fly to Sydney. Kaity is very excited.

Unfortunately she "may" have been exposed to chicken pox so she is spending the next two days away from school to prevent further exposure. Please concentrate your prayers on this in particular as we don't want to be spending our time away with her sickly. She's wanted to go to Sydney for a long while and we intend on making it an enjoyable holiday for her.

Some good news. I have a job! When I return from Sydney I will be working daily, and have been this week. Kaitlyn came to work with me today (Thankfully a good boss) and will tomorrow.

Some more good news. Kaitlyn has been approved for an aide one day a week at school through the government, and we applied to the Ronald McDonald learning programme who have approved Kaitlyn for help for a couple of hours each week, they provide a teacher to come and do lessons with her.

Monday, May 7, 2007 6:32 AM CDT

5 Sleeps and we are off to Sydney.

Kaitlyn is looking forward to this trip, we will be away for 9 days so we have plenty of time to have a good look around without pushing Kaity to hard.

On the weekend we went for a bushwalk, I wish I took the camera as we had a few muddy kids by the time we got back home. We followed he river which is not wet just yet, other than a few holes of water, but we managed to walk all the way from our house to the bridge close to town. It took us about an hour and Kaity only complained once, considering it was truly a bush walk with climbing she did really well, and I bet her muscles were getting some toning (along with her mouth muscles because she talked pretty much the whole time).

The kids showed us adults the "old" jail which is a bit derelict, Kaity enjoyed looking at a jail even if it's falling down in places, she was even game enough to go into one of the cells and pretend to close the big iron door.

Monday, April 30, 2007 3:42pm

Look at my new baby. She's called Bekky

and this is one of my chick babies (I have 4) This one's called Mirayna.

Thanks Lorna for Kaity's newest pets.

Thursday, April 26, 2007

Today I took on the challenge of cleaning Kaitlyn's study, no small feat I can tell you, can you imagine a mummy's delight of finding something as precious as this note.

and then after more cleaning I came across another note pad and this note.

I feel so blessed, and proud that I have at least shown my children love and how to love.

Aren't they just amazing little humans.

Sunday, April 22, 2007 1:27pm

Kaitlyn went on holiday with grandma and poppy.

Here's her diary.

I saw the cows being milked by my cousins Kayla and Amy. I fed the chooks.

I fed the fish. I held the bunny rabbits, he is grey and brown. I picked Lemons for grandma.

Pop helped me with lots of things. I fed the goats lettuce.

I went and saw my gnome at gnomesville and grandma found it.

I saw some kangaroos and big trees.

I went to a park and had a swing.

Ferguson Farmstay has 2 ponies. The white one is called Fred and the brown Pony is called Charlie. I fed them lots of hay.

Queenie the mother cow eats lots and lots of hay. My cousins rode on the pony called Fred.

I love my big sister SO much!!!!

Tuesday, April 17, 2007 6:16pm

Kaitlyn is currently on school holidays and this week will go on a farm stay with her grandma and poppy.

In just over three weeks we will be heading off to Sydney, Kaitlyn is quite excited!

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