History

Monday, June 28, 2010 8:59 PM CDT

Not sure how many folks check in anymore, but here is another quick update. Lindy had another set of scans on Friday and they look good - no evidence of recurrence. She has one test that will take a few weeks to get back, but the main results look great. We've been at the beach celebrating the good news.

We just got a message from one of Lindy's former nurses - she's pregnant and will be naming her little girl Lindy. Our Lindy had a very big impact on her life and she wanted us to know. We're very touched and once again so proud of Lindy, and so fortunate to watch her grow and live her life with such energy and zest. Everyday is a miracle.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

We hope all of you have a safe and wonderful summer.

Love

Robbie & Lynn

Monday, December 21, 2009 7:36 AM CST

Quick update. Dr. Gold called this morning and Lindy's scans look good - no evidence of recurrence. She has one test that will take a few weeks to get back, but the main results look great. We're breathing a little easier today and getting ready for a happy holiday. We hope all of you have a safe and wonderful holiday season.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

Love

Robbie & Lynn

Thursday, December 17, 2009 8:27 AM CST

Hope everyone is having a wonderful holiday. Just a quick update for those still checking in. Lindy goes in for scans tomorrow at UNC. We'll post an update as soon as we have results.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

Love

Robbie & Lynn

Thursday, June 18, 2009 5:43 PM CDT

Good News. Lindy's scans came back clean - no evidence of disease. We'll have to wait about two weeks for everything to come back, but the scan results and blood labs looked good. She handled everything well - she's gotten very mature about the whole thing and just knows what to do. We're very proud of her and blessed to have these results. Time to go to the beach.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

Love

Robbie & Lynn

Tuesday, June 2, 2009 7:13 PM CDT

Hi. Quick update for those still checking in. Lindy is scheduled for scans June 18. They're decreasing all that has to be done so we're planning to get everything done in one day - which will be great for Lindy because she'll only have to be under anesthesia once. As always, we're getting nervous about the scans coming up - I'm sure we'll create some kind of project soon. She looks great. We'll update as soon as we have results.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

Love

Robbie & Lynn

Saturday, December 20, 2008 9:04 PM CST

Thanks for checking in. Lindy has just completed her 6 month scans. Dr. Gold called yesterday with good news - no evidence of disease. Her scans were clean and things went fairly well as far as needles and anesthesia go. Lindy was very brave and as tolerant as a six year old can be with medical procedures. We hate and dread these scans every six months, but it is always so reassuring to get good news. I know it sounds odd to need reassurance that your child is healthy every six months - but after the battle she's had we haven't yet gotten to the point of comfortably assuming that everything's ok.

Another thing about scans is it pulls us back into that world. We see familiar rooms and machinery, familiar wonderful doctors and nurses, familiar procedures, familiar looks on parents faces, familiar children. We always leave scans remembering how incredibly fortunate and blessed we are to be looking at a healthy Lindy who is vibrant and happy and carefree.

Thanks so much for continuing to check in. Although we don't update often, we do check messages and check in on other friends frequently. Please remember to send thoughts and prayers to all of our friends and all the other families fighting these battles with their kids.

Love

Robbie & Lynn

Wednesday, November 5, 2008 8:15 PM CST

Just checking in to say hi. Lindy is doing great - growing and enjoying being a little girl. We just finished an oyster roast fundraiser for Neuroblastoma research - big success. The NB research program at UNC is doing great things. The goal is to get a better, less painful, more effective treatment - particularly with relapse kids - which are very tough to treat. Hopefully, this is not something we'll ever need, but we know lots of folks who do need it - and now. Lindy is in the first grade (Kate - 5th) where did the time go? They're both growing up so fast. Lindy will be scheduled for another set of scans in December. Please pray for continued clean scans and procedures that go as smooth and pain-free as possible. We'll keep you posted on results as soon as we get them.

Thanks so much for keeping up with Lindy, we truly appreciate all of the thoughts and prayers. Also thanks for continuing to send thoughts and prayers to all of our friends from UNC and Duke. We've met so many wonderful and strong families - and we are constantly thinking about them. Lindy sends her love to everyone.

Take care everyone.

Love,

Robbie & Lynn

Saturday, June 28, 2008 4:46 AM CDT

Good news. Lindy's scans came back clean with no signs of relapse. We are watching a spot on her left collar bone that scared us a few weeks back, but it does not appear to be neuroblastoma related. We've been told to just keep an eye on it to make sure it doesn't grow or change. More likely a bone spur or something of that nature.

Lindy did great during her scans and tolerated everything well. Thursday was a very long day at the hospital and she was under anesthesia for a long time. We kept her home Friday to rest and relax - she did a lot of sleeping. She perked up Friday afternoon and seems her old self again. As of last night she is running around at the beach with what seems like an army of children and she is as happy as can be.

Thanks so much for keeping up with Lindy, we truly appreciate all of the thoughts and prayers. Also thanks for continuing to send thoughts and prayers to all of our friends from UNC and Duke. We've met so many wonderful and strong families - and we are constantly thinking about them. Lindy sends her love to everyone --- have a great summer.

Love,

Robbie and Lynn

Wednesday, June 25, 2008 2:55 PM CDT

Hi. A quick update. We're at UNC today and Thursday for Lindy's six month scans. Today went well. Lindy was very brave and handled everything like a champ. We have an MRI and MiBG tomorrow. We'll update again as soon as we get results.

It's a little tough being back in that environment, with all of the same equipment, sounds, and smells that were always present during Lindy's treatment. We see folks that we know are having relapses or just beginning their fight and our heart just breaks for them. Please send your thoughts and prayers their way.

Thanks for continuing to check in. We'll get info to everyone as soon as we know something.

Love,

Lynn and Robbie

Monday, April 28, 2008 7:07 PM CDT

Hi...It's been quite a while since our last update....Lindy continues to do well....She's so full of energy and spunk...And so funny!!....We're enjoying our time - spending lots of time at the beach when we can....Both girls are growing up so fast - it's a joy to watch, but we want to slow them down.....Lindy's next set of scans will be in late June - after she's done with Kindergarten (what a big girl - can you believe it).....Hope all is well with everyone...We continue to meet folks who have been touched by our little girl and it never ceases to inspire us and remind us how unbelievably fortunate we are......Our thoughts constantly drift back to all of the families and friends from the hospitals .....please continue to send strength and prayers their way.

Look for updates in June when scan time comes...Lynn and I seem to always get ourselves involved in some major project about scan time - no doubt to distract us from the scans....I don't think I can take another remodel project - the last set of scans brought a new kitchen.....Again - hope everyone is doing well...thanks for continuing to check in and offer strength and prayers - you'll never know how much they mean to us all...take care..

love,

Robbie and Lynn

Friday, December 21, 2007 1:03 PM CST

Hi - quick update. Lindy's scans came back clean - no evidence of disease / recurrence. We're breathing better. As always, the folks at UNC were wonderful and enjoyed seeing Lindy happy and growing. We have so much to be thankful for this holiday... Have a wonderful Christmas

Saturday, December 15, 2007 9:15 PM CST

Hi everyone....I know it's been a while since the last update....Lindy has been doing great...We have scans at UNC next week (19th and 20th)....Pray that all goes well without much discomfort, and most of all that the results are good.....Thanks for continuing to check in on Lindy - she really is a special little girl...her strength and energy amaze us everyday.....

Thanks for your continued thoughts and prayers...Also thanks for remembering all of our friends and those that are dealing with childhood cancer and all that goes with it..

We'll update again when we get some results...

Take care...

Robbie and Lynn

Saturday, December 15, 2007 9:15 PM CST

Hi everyone....I know it's been a while since the last update....Lindy has been doing great...We have scans at UNC next week (19th and 20th)....Pray that all goes well without much discomfort, and most of all that the results are good.....Thanks for continuing to check in on Lindy - she really is a special little girl...her strength and energy amaze us everyday.....

Thanks for your continued thoughts and prayers...Also thanks for remembering all of our friends and those that are dealing with childhood cancer and all that goes with it..

We'll update again when we get some results...

Take care...

Robbie and Lynn

Tuesday, October 9, 2007 6:51 PM CDT

Hi. A quick update. Lindy is feeling much better. Fever gone, she's back in school and rambling around like her old self....Thanks for checking in...Take care..

Thursday, September 27, 2007 8:35 PM CDT

Hello to all. Hope this message finds you all happy and healthy. A quick update....Lindy spiked a fever Tues, got better Wed., and then spiked another fever late Wed. night...Turns out she has pneumonia...Nothing to be too alarmed about...she has started a round of antibiotics and we're hoping things will clear up soon....she's missed a few days of school, which she is not happy about, but this is small potatoes compared to what she's been through....Grammy Barb and Grandaddy Mike are in the air on their way to Australia to visit Aunt Courtney....Grammy Frances is at home with a broken leg....Lindy is adequately distracted from being sick because of all these things....She's so full of funny little questions and comments, the entertainment never stops......We truly are blessed.

Thank you all so much for your continued thoughts and prayers...we love you for it......As always, we ask that you also send strength to all of our friends and families that we've met during Lindy's fight -- those that are linked on this page and so many others..... they all are so special and we think about them all of the time.

Again, thanks for checking in and take care everyone.....We'll post again soon and include some new pictures.

Love, Robbie and Lynn

Thursday, September 27, 2007 8:35 PM CDT

Hello to all. Hope this message finds you all happy and healthy. A quick update....Lindy spiked a fever Tues, got better Wed., and then spiked another fever late Wed. night...Turns out she has pneumonia...Nothing to be too alarmed about...she has started a round of antibiotics and we're hoping things will clear up soon....she's missed a few days of school, which she is not happy about, but this is small potatoes compared to what she's been through....Grammy Barb and Grandaddy Mike are in the air on their way to Australia to visit Aunt Courtney....Grammy Frances is at home with a broken leg....Lindy is adequately distracted from being sick because of all these things....She's so full of funny little questions and comments, the entertainment never stops......We truly are blessed.

Thank you all so much for your continued thoughts and prayers...we love you for it......As always, we ask that you also send strength to all of our friends and families that we've met during Lindy's fight -- those that are linked on this page and so many others..... they all are so special and we think about them all of the time.

Again, thanks for checking in and take care everyone.....We'll post again soon and include some new pictures.

Love, Robbie and Lynn

Wednesday, September 5, 2007 7:34 PM CDT

I know..it's been a while since the last update.....Things continue to go well with Lindy....She started Kindergarten last week --- she's definitely a big girl now; going to school with her big sister Kate (4th grade !!!) and even riding the bus home (!)....So far she's adjusting quite nice, although she usually crashes late afternoon into a pretty deep nap....It may take a while for her to get used to going all day everyday......We all had a wonderful summer that was highlighted by clean scans in late June !!!! No more scans until December....Lindy now points to her scars and talks about it being from when she HAD cancer.....She's definitely moving on with life and not giving any of this much thought ...which is exactly as it should be and we hope and pray that it will continue to be...

Thank you all so much for your continued thoughts and prayers...we love you for it......As always, we ask that you also send strength to all of our friends and families that we've met during Lindy's fight -- those that are linked on this page and so many others..... they all are so special and we think about them all of the time.

Again, thanks for checking in and take care everyone.....We'll post again soon and include some new pictures.

Love, Robbie and Lynn

Wednesday, July 11, 2007 7:47 PM CDT

Per request - we've uploaded some updated photos in the picture album section. See how much Lindy has grown !!!

Friday, June 29, 2007 7:58 PM CDT

Just a brief update of good news....Lindy's scans show no evidence of recurrence....She was a very brave little girl and did great throughout the two days...thanks for all of the thoughts and prayers....we really appreciate it...take care everyone.

Monday, June 25, 2007 6:05 AM CDT

Hi. I know - it's been forever since we last updated. Things have been... well.. normal - which is wonderful.....Lindy continues to grow and celebrate life - graduating from preschool, and the big fifth birthday (June 21).... We couldn't be more proud of her....She's been to Grammy and Grandads for a week to ride horses and play in the mountains - plus a trip into DC...and of course lots of beach time....she's been getting cool packages from Australia (thanks Aunt Courtney).....she has her very last day of preschool on Tuesday - which is a little sad - they've been so good to us and have stuck with Lindy throughout her battle...

Medically...we go in for scans this week...Lindy will go to clinic on Wednesday and then she's scheduled for an MiBG and MRI on Thursday...At this point Dr. Gold is not scheduling a bone scan...as long as the other scans look good...this makes Lindy's experience a little easier and it's one less time that she has to be put under anesthesia...Please pray that the IVs go quickly and most of all - that her scans show no evidence of recurrence.....

We really appreciate all of the continued thoughts and prayers...You're wonderful and we can't thank you enough....Keep sending strength and prayers to all the friends we've met along the way - I'm sure they appreciate it as well....take care

Love,

Robbie and Lynn

Friday, June 29, 2007 7:58 PM CDT

Just a brief update of good news....Lindy's scans show no evidence of recurrence....She was a very brave little girl and did great throughout the two days...thanks for all of the thoughts and prayers....we really appreciate it...take care everyone.

Monday, June 25, 2007 6:05 AM CDT

Hi. I know - it's been forever since we last updated. Things have been... well.. normal - which is wonderful.....Lindy continues to grow and celebrate life - graduating from preschool, and the big fifth birthday (June 21).... We couldn't be more proud of her....She's been to grammy's and grandad's for a week to ride horses and play in the mountains - plus a trip into DC...and of course lots of beach time....she's been getting cool packages from Australia (thanks Aunt Courtney).....she has her very last day of preschool on Tuesday - which is a little sad - they've been so good to us and have stuck with Lindy throughout her battle...

Medically...we go in for scans this week...Lindy will go to clinic on Wednesday and then she's scheduled for an MiBG and MRI on Thursday...At this point Dr. Gold is not scheduling a bone scan...as long as the other scans look good...this makes Lindy's experience a little easier and it's one less time that she has to be put under anesthesia...Please pray that the IV's go quickly and most of all - that her scans show no evidence of recurrence.....

We really appreciate all of the continued thoughts and prayers...You're wonderful and we can't thank you enough....Keep sending strength and prayers to all the friends we've met along the way - I'm sure they appreciate it as well....take care

Love,

Robbie and Lynn

Monday, June 25, 2007 6:05 AM CDT

Hi. I know - it's been forever since we last updated. Things have been... well.. normal - which is wonderful.....Lindy continues to grow and celebrate life - graduating from preschool, and the big fifth birthday (June 21).... We couldn't be more proud of her....She's been to grammy's and grandad's for a week to ride horses and play in the moountains - plus a trip into DC...and of course lots of beach time....she's been getting cool packages from Australia (thanks Aunt Courtney).....she has her very last day of preschool on Tuesday - which is a little sad - they've been so good to us and have stuck with Lindy throughout her battle...

Medically...we go in for scans this week...Lindy will go to clinic on Wednesday and then she's scheduled for an MiBG and MRI on Thursday...At this point Dr. Gold is not scheduling a bone scan...as long as the other scans look good...this makes Lindy's experience a little easier and it's one less time that she has to be put under anesthesia...Please pray that the IV's go quickly and most of all - that her scans show no evidence of recurrence.....

We really appreciate all of the continued thoughts and prayers...You're wonderful and we can't thank you enough....Keep sending strength and prayers to all the friends we've met along the way - I'm sure they appreciate it as well....take care

Love,

Robbie and Lynn

Friday, April 27, 2007 11:04 AM CDT

Hi....It's been a while since our last update...Things are still good with Lindy on the medical front.....She got some good test results last week, and had some more "re-immunizations" this week....She's growing and happy and absolutely enjoying life....We're still missing all of our friends who aren't here anymore....

Lindy will have a set of scans at the end of June....So keep the positive thoughts and prayers coming....Don't think that they go unnoticed.....Please remember to keep sending thoughts and prayers to Rebecca's family, as well as all of the other families and friends that we've gotten to know; and to those we have never met but are stuck with this fight.....We know they all are as appreciative as we are....take care and we'll update again soon....

Love,

Robbie and Lynn

Monday, February 26, 2007 7:52 PM CST

As many of you know, Rebecca passed away Friday. She has been such a wonderful example of faith and strength for us all. As we've said before, it's just not up to us to define a miracle; it's just that we will miss her so much and we want her here with us. Please send thoughts and prayers to the Simpson family. There couldn't be a better example of how a family should deal with a child fighting such a terrible illness. We can only hope that our children will grow and follow Rebecca's example of thankfulness and grace. I saw her recently and what struck me was that...despite the obvious struggle she was in, she was still polite and thankful....extraordinary. Her life is truly one to celebrate.

Thank you all for continuing to check in. We'll update again when Lindy gets closer to her next set of scans or clinic visits. As always, please remember all of our friends and families that have touched us and Lindy along the way. There are those that are particularly close to our hearts because we know them, but also remember those we've never heard of.....there are so many and I'm sure they appreciate your thoughts and prayers as much as we do.

Love,

Robbie & Lynn

Monday, February 26, 2007 7:23 PM CST

As many of you know, Rebecca passed away Friday. She has been such a wonderful example of faith and strength for us all. As we've said before, it's just not up to us to define a miracle; it's just that we will miss her so much and we want her here with us. Please send thoughts and prayers to the Simpson family. There couldn't be a better example of how a family should deal with a child fighting such a terrible illness. We can only hope that our children will grow and follow Rebecca's example of thankfulness and grace. I saw her on Tuesday and what struck me was that...despite the obvious struggle she was in, she was still polite and thankful....extraordinary. Her life is truely one to celebrate.

Thank you all for continuing to check in. We'll update again when Lindy gets closer to her next set of scans or clinic visits. As always, please remember all of our friends and families that have touched us and Lindy along the way. There are those that are particularly close to our hearts because we know them, but also remember those we've never heard of.....there are so many and I'm sure they appreciate your thoughts and prayers as much as we do.

Love,

Robbie & Lynn

Friday, February 16, 2007 10:29 AM CST

Hi. Hope this entry finds you happy and healthy. Lindy continues to grow stronger and is doing very well. Every day is a blessing. Thanks for all of the thoughts and prayers.

We'd like to ask that you all especially think of Rebecca (see link below) and her family in your thoughts and prayers. Rebecca has been fighting her battle since before Lindy was even diagnosed and she has always been our example of faith and strength. They've recently gotten some bad news and we just want to offer as much strength and love to them as possible.

As always, please remember all of our other friends and families that we've met along the way. You all have really been great. Thanks

Love,
Robbie & Lynn

Tuesday, January 23, 2007 3:22 PM CST

Today is Lindy's "New Beginnings Day", which is the anniversary of her stem cell transplant. It's a big deal in our house and Lindy is quite excited. Tonight we'll go out and let her choose dinner and find the largest chocolate sunday in Raleigh.......It's hard to believe that three years ago Lindy was so sick.....It was very difficult then to think three years ahead, even three days ahead....We are so thankful to be here now and looking at this healthy happy child that is so full of energy and spunk......She'll celebrate hard today and she deserves it....

Medically, there isn't much to report right now....Most of you all know that our last set of scans at Christmas showed no evidence of disease....Which, despite an awful stomach virus going through our house, made Christmas extra special for the Guptons.....Lindy was such a big girl for her scans...It's been cool watching how she is paying more attention and asking questions.....She's wants to know the whats and whys and she tries hard to be a big girl when the needles come.....

Thank you all so much for continuing to follow Lindy and our family....It's been such a wonderful feeling knowing that there are so many folks thinking and offering strength to our little girl and our family....Please continue to send your thoughts and prayers to our friends and families from Duke and UNC, many of whom are still fighting so hard.....They are all such special folks and we're sure that they appreciate your support and feel your love as much as we do.....Take care...

Love,

Robbie & Lynn

Sunday, December 24, 2006 11:09 AM CST

Merry Christmas everyone....A quick medical update....Lindy had an MRI and an MiBG scan Thursday and all went well....Dr. G reports that her scans show no evidence of reoccurence of neuroblastoma....We still have a bone scan next Thursday, but obviously this news makes Christmas a little extra Merry for the Guptons...Take care and enjoy the holidays.....

Monday, December 4, 2006 6:48 PM CST

Hi everyone....Hope this entry finds you happy and healthy....Life has been very busy for the Guptons the last few weeks....We were in Maryland for Thanksgiving hanging out with Grammy and Grandad....Lindy and Kate had a ball riding horses and playing....Three days after getting home from Maryland, we were off again -- to Louisville, KY for a wedding...It was a wonderful event filled with parties and get togethers and we got to see all of our family there...The girls had a blast dancing at the reception...It was a joy to watch

Lindy and Kate will be special guests at "Dinsey on Ice" this Wednesday...The Make-A-Wish folks called today and gave them the invite....You couldn't imagine two more excited little girls....It's next to impossible to express in words how it feels to see them get excited and play together and just enjoy life ....every day is truely a gift.....

On a medical note...Lindy is scheduled for her next set of scans soon...We have an MRI and MiBG set up for Dec. 21 and a bone scan Dec. 28.....Please pray that the IV's and anesthesia go well and most of all that her scans show no evidence of disease....We're a little nervous because this is the first time we've gone six months without a scan...despite how much we dread them, the scans do provide an odd sense of security and reassurance that everything is ok..... Your continued thoughts and prayers are always appreciated.....

As always, please remember all of our other friends and families continuing to fight and deal with the horrors of pediatric cancer....You all have been so wonderful to continue to offer strength to our family and I know these folks feel and appreciate it as much as we do.....

Love,

Robbie and Lynn

Monday, December 4, 2006 6:48 PM CST

Hi everyone....Hope this entry finds you happy and healthy....Life has been very busy for the Guptons the last few weeks....We were in Maryland for Thanksgiving hanging out with Grammy and Grandad....Lindy and Kate had a ball riding horses and playing....Three days after getting home from Maryland, we were off again -- to Louisville, KY for a wedding...It was a wonderful event filled with parties and get togethers and we got to see all of our family there...The girls had a blast dancing at the reception...It was a joy to watch

Lindy and Kate will be special guests at "Dinsey on Ice" this Wednesday...The Make-A-Wish folks called today and gave them the invite....You couldn't imagine two more excited little girls....It's next to impossible to express in words how it feels to see them get excited and play together and just enjoy life ....every day is truely a gift.....

On a medical note...Lindy is scheduled for her next set of scans soon...We have an MRI and MiBG set up for Dec. 21 and a bone scan Dec. 28.....Please pray that the IV's and anesthesia go well and most of all that her scans show no evidence of disease....We're a little nervous because this is the first time we've gone six months without a scan...despite how much we dread them, the scans do provide an odd sense of security and reassurance that everything is ok..... Your continued thoughts and prayers are always appreciated.....

As always, please remember all of our other friends and families continuing to fight and deal with the horrors of pediatric cancer....You all have been so wonderful to continue to offer strength to our family and I know these folks feel and appreciate it as much as we do.....

Love,

Robbie and Lynn

Monday, November 6, 2006 8:11 PM CST

Hi everyone....We wanted to give a quick update on things....The Oyster Roast fundraiser was a big success....We raised over $2,700.00 in one night....Lindy and Kate had a great time as "hostesses"...In addition, the quilt raffle raised $7,500.00 for the Neuroblastoma Research project....The winner of the quilt was Jessie Miller of Louisville, KY...

On a medical note, Lindy's procedure on her teeth went very smoothly....She didn't have any adverse anesthesia reactions and her teeth look great....She is very proud of them and loves to come up to folks with a big grin to show off her "new teeth".....There shouldn't be any medical news until mid-Decemeber, when we go back in for a full set of scans...As always, your thoughts and prayers are appreciated more than you can imagine....

We have a family that lives close to us that needs your thoughts and prayers...The son and father were in a car accident that has claimed the child's life, while the father remains in critical condition...We ask that you send strength to them as they deal with the loss and stress to come....

As always, please remember all of our other friends and families continuing to fight and deal with the horrors of pediatric cancer....You all have been so wonderful to continue to offer strength to our family and I know these folks feel and appreciate it as much as we do.....

Love,

Robbie and Lynn

Friday, October 6, 2006 8:33 AM CDT

Hi ....Quick update. Lindy continues to do well and is happy and healthy.... We have to go to UNC Oct 17 for some dental surgery due to problems that were related to her chemo....Small potatoes in the big scheme of things, but your thoughts and prayers are always appreciated...She has to have several crowns and possibly some teeth removed, but she'll be under the great care of the anesthesia folks at UNC who know her so well....We'll have scans sometime in December....

I've included a picture in the album of a beautiful quilt that has been handmade and donated for raffle... The drawing will be at the Oyster Roast Nov. 4... All proceeds go to Lindy's research project at UNC to help fund neuroblastoma research. They are getting some promising findings there and we want to continue to support them in any way possible... Raffle tickets will be $5. There are a total of 1,000 tickets... Several folks are selling tickets around the country... Feel free to call us at (919) 854-1993 if you're interested in buying one.....

Thanks for your continued support and prayers for Lindy...You'll never know what that has meant to us...Please continue your support for Rebecca, Gabe, the Lees, and all of our other friends and families dealing with these things that you wouldn't wish on anyone...I know they all appreciate your thoughts as much as we do.... Take care...

Love,

Robbie and Lynn

Thursday, August 24, 2006 10:34 AM CDT

Hi everyone. Thanks for continuing to check in on Lindy. She's doing great. She had a rough week with a virus and some sores in her mouth, but it was all "normal" sickness and she seems to be recovering fine. It's been a fast and furious summer. Lindy has spent time at Disney, in Louisville with cousins, and a lot of beach time. She seems to have grown a couple of inches right before our eyes. It's truly a gift to watch and we're always reminded of just how precious it is to watch your children be healthy and happy. Please continue to send prayers and strength to the families who continue to fight for that gift.

I've included a picture in the album of a beautiful quilt that has been handmade and donated for raffle. All proceeds go to Lindy's research project at UNC to help fund neuroblastoma research. They are getting some promising findings there and we want to continue to support them in any way possible. Raffle tickets will be $5. There are a total of 1,000 tickets. Several folks are selling tickets along the east coast. Feel free to call us at (919) 854-1993 if you're interested in buying one.

Again, thank you for checking in. Our family really appreciates all of the love and support. We also appreciate your continued support of all our friends who continue to fight and heal.

Love,

Robbie and Lynn

Monday, July 10, 2006 7:43 AM CDT

Hi. Sorry for the late update, we've been at the beach and haven't had access. Lindy's scans were all clear. We had a couple of days of anxiety because one scan wasn't the best scan in the world and we had to wait through the weekend to see what the Monday MRI showed. After all was put together, we got the good news from Dr. Gold that everything looked great. Thanks for all of the prayers and support.

Monday, June 26, 2006 8:00 PM CDT

Hi. We're so sorry we haven't updated in a long while.... Where to begin...Our Make-A-Wish trip to Disney was magical...Started out rough, we had to postpone our flight because Lindy was running a fever...But like she always does, she came out of it and we arrived around 1:30 am...After some much needed rest we spent the next six days learning what it must feel like to be famous....These folks were ready for Lindy in every way....She did everything she wanted and never waited in a line for anything.....We can't desribe how energized and humbled we feel after such a wonderful gift...It's enough to renew one's spirit to see such efforts from companies and individuals that just want to make wishes come true for children.....We stayed at the "Give Kids the World" village and they provided Lindy with everthing from unlimited pizza and ice cream to pony rides, Santa, magic castles, a water park, and endless surprises and presents ---- and that was in addition to tickets to Disney, Sea World, and Universal during the week...Sometimes the biggest challenge was getting Lindy to leave our village to go to Disney.....The folks at Disney and the other parks were so great to Lindy and any of the other kids from Give Kids the World.....They would seek them out and make sure they got to do anything or see anyone..right to the front of any line.....The other uplifting thing, we never saw anyone complain...

Lindy's 4th birthday was great..in fact it was magical...There were several parties and lots of singing......She's getting so big...We'll post some Disney pictures so you all can see...

Medical stuff.....We're heading in to UNC Wednesday 6/28, Thursday, and Monday 7/3 for scans...Please pray for the scans to be clean and for everything to go smoothly and as painless as possible....We appreciate so much the prayers and thoughts...We'll post an update as soon as we get some results...

While you're thinking and praying, please remember to offer strength to Rebecca, Gabe and the other families from UNC and Duke....

Thank you all so much for all of your support...we really appreciate it...

Love

Robbie and Lynn

Monday, June 26, 2006 8:00 PM CDT

Hi. We're so sorry we haven't updated in a long while.... Where to begin...Our Make-A-Wish trip to Disney was magical...Started out rough, we had to postpone our flight because Lindy was running a fever...But like she always does, she came out of it and we arrived around 1:30 am...After some much needed rest we spent the next six days learning what it must feel like to be famous....These folks were ready for Lindy in every way....She did everything she wanted and never waited in a line for anything.....We can't desribe how energized and humbled we feel after such a wonderful gift...It's enough to renew one's spirit to see such efforts from companies and individuals that just want to make wishes come true for children.....We stayed at the "Give Kids the World" village and they provided Lindy with everthing from unlimited pizza and ice cream to pony rides, Santa, magic castles, a water park, and endless surprises and presents ---- and that was in addition to tickets to Disney, Sea World, and Universal during the week...Sometimes the biggest challenge was getting Lindy to leave our village to go to Disney.....The folks at Disney and the other parks were so great to Lindy and any of the other kids from Give Kids the World.....They would seek them out and make sure they got to do anything or see anyone..right to the front of any line.....The other uplifting thing, we never saw anyone complain...

Lindy's 4th birthday was great..in fact it was magical...There were several parties and lots of singing......She's getting so big...We'll post some Disney pictures so you all can see...

Medical stuff.....We're heading in to UNC Wednesday 6/28, Thursday, and Monday 7/3 for scans...Please pray for the scans to be clean and for everything to go smoothly and as painless as possible....We appreciate so much the prayers and thoughts...We'll post an update as soon as we get some results...

While you're thinking and praying, please remember to offer strength to Rebecca, Gabe and the other families from UNC and Duke....

Thank you all so much for all of your support...we really appreciate it...

Love

Robbie and Lynn

Thursday, May 11, 2006 8:52 AM CDT

Hi everybody. Thanks for continuing to check in on Lindy. She continues to feel great and is doing her best to run our household. We're getting ready for her Make-A-Wish trip to Disney. Lindy talks about it constantly and is vibrating with excitement. Medically, we don't have much to report except that her next set of scans will be coming in July.

Thank you all so much for the thoughts and prayers being sent to Rebecca and the others from UNC and Duke. We can speak from experience as to the comfort that comes from knowing so many people are thinking and praying for your family.

There are a few new pictures if you want to check those out, and we'll definitely be adding Disney pictures in late June. Take care guys.....and again...Thank you.

Love,

Robbie and Lynn

Wednesday, April 5, 2006 4:14 PM CDT

Hi...Sorry we haven't updated in a long time.....Lindy continues to thrive and is happy and healthy....Thank you all for sticking with us and checking in ever so often...

We need your help....Many of you may know by now that Rebecca (see her website below) has had a relapse.....She has been the model of strength and faith throughout her battle and we owe her so much for all that she has given us....Please send your thoughts and prayers to her as she prepares for chemo and transplant...She is an unbelievably strong girl and we know her to be a real fighter...We also know how powerful your prayers have been for Lindy..

We don't have any medical updates for Lindy at this time....She may have a clinic visit sometime soon, but isn't due for scans again until July....She's getting excited about her Make-A-Wish trip to Disney in June....

Thanks again for continuing to check in and offer support for Lindy and all of our friends at UNC and Duke....You all have been great...

Love,

Robbie & Lynn

Monday, March 6, 2006 11:15 AM CST

Check out the newly added picture of Lindy shaving Dr. Gold's head at the fundraiser. What a great event. It was so nice to see so much support and to see Lindy's nurses and docs and friends from UNC. She had a great time. For medical news...see below.

Friday, February 24, 2006 2:55 PM CST

Dr. Gold called last night to tell us that Lindy's scans showed no evidence of disease (can you hear the huge breath of relief coming from our house). Lindy did wonderful during this round of scans. She was such a big girl....very few tears....and such a big helper for the nurses. She was very observant and didn't potest much at all. She had no adverse reations to the anesthesia, which is a huge blessing....Dr. G thinks we'll try to stretch out the interval between scans, so we're probably not going back in until late June/early July....

Dr. Gold is participating in a fundraiser and is going to get his head shaved March 4....If you'd like to donate, go to www.stbaldricks.org and search "Stuart Gold" under shavee....he's done so much for Lindy and we want to support in any way we can.....Needless to say, Lindy will be there to laugh and cheer as he gets his head shaved.

That's about it for now...Looks like we're headed to Disney June 19.......Thank you all so much for continuing to follow and support our family....You'll never know how much we appreciate the love and strength you've given to Lindy and all of those who love her...Please continue to send strength and prayers to our friends and families at Duke and UNC....If you haven't already, please check out ncchildrenspromise.org and see their feature on Lindy....Take care everyone and again, Thank You.

Love,

Robbie and Lynn

Friday, February 24, 2006 2:55 PM CST

A quick update !!!!!!!

Dr. Gold called last night to tell us that Lindy's scans showed no evidence of disease (can you hear the huge breath of relief coming from our house). Lindy did wonderful during this round of scans. She was such a big girl....very few tears....and such a big helper for the nurses. She was very observant and didn't potest much at all. She had no adverse reations to the anesthesia, which is a huge blessing....Dr. G thinks we'll try to stretch out the interval between scans, so we're probably not going back in until late June/early July....

Dr. Gold is participating in a fundraiser and is going to get his head shaved March 4....If you'd like to donate, go to www.stbaldricks.org and search "Stuart Gold" under shavee....he's done so much for Lindy and we want to support in any way we can.....Needless to say, Lindy will be there to laugh and cheer as he gets his head shaved.

That's about it for now...Looks like we're headed to Disney June 19.......Thank you all so much for continuing to follow and support our family....You'll never know how much we appreciate the love and strength you've given to Lindy and all of those who love her...Please continue to send strength and prayers to our friends and families at Duke and UNC....If you haven't already, please check out ncchildrenspromise.org and see their feature on Lindy....Take care everyone and again, Thank You.

Love,

Robbie and Lynn

Tuesday, February 7, 2006 7:11 PM CST

Hi everyone. We hope this message finds you all happy, healthy, and at peace. We're getting appointments for Lindy's next round of scans. Looks like we have bone scan, MRI, MiBG, and clinic on Feb 22 and 23. Please pray that the IV's go ok, that Lindy tolerates the anesthesia meds and radiation without adverse reactions; and above all pray that all scans are clear with no evidence of disease. We know how good you all are at sending strength through your thoughts and prayers and don't think for one moment that we haven't appreciated every single one of them.

Lindy seems to be feeling good. She has been getting over a cold, but nothing unusual has popped up. She just celebrated her "New Beginnings" day, which was the anniversary of her stem cell transplant. Basically, we spent an entire day doing whatever Lindy wanted. It included restaurants, playing with friends, a big nap, and a huge brownie sunday in the middle of the afternoon. She was completely content and it was a joy to watch. Kate was such a great sport and even declined invitations to play with friends just to be with her sister on her special day. We're proud of both of them (can you tell).

I pulled up some of the journal entries from when we were on the transplant unit at Duke......wow.....she really has come such a long way. What I also saw was all of the messages of love and support from family, strangers, friends both new and old.....it really does illustrate how much good there is around us that we just take for granted...Those messages will always be a part of Lindy's life, we'll make sure of it.

Thank you all so much for continuing to follow and support our family....You'll never know how much we appreciate the love and strength you've given to Lindy and all of those who love her...Please continue to send strength and prayers to our friends and families at Duke and UNC....If you haven't already, please check out ncchildrenspromise.org and see their feature on Lindy....Take care everyone and again, Thank You.

Love,

Robbie and Lynn

Thursday, January 19, 2006 8:59 AM CST

Hi....We hope you all are doing well and enjoying life....Lindy is doing great.....The Make-A-Wish folks came to visit her and had a wonderful time...What a great job they have and do.....It looks like we're going to Disney World.....Lindy has scans in mid-February, so no trips until we get good news there........ Lindy's New Beginnings Day is coming up January 23...That will be the two year anniversary of her transplant....She's come such a long way since then.....We'll celebrate that day at the beach if at all possible....The girls are excited about going to Disney.....Their eyeballs are already spinning with anticipation...Lindy keeps talking about eating at the Princess's house ......It's going to be a true gift to watch them.

Thank you all so much for continuing to follow and support our family....You'll never know how much we appreciate the love and strength you've given to Lindy and all of those who love her...Please continue to send strength and prayers to our friends and families at Duke and UNC....If you haven't already, please check out ncchildrenspromise.org and see their feature on Lindy....Take care everyone and again, Thank You.

Love,

Lynn and Robbie

Thursday, January 5, 2006 12:32 AM CST

Hello from the Guptons....We had a very busy, exhausting, fun, wonderful holiday......we hope yours was the same....Lindy continues to do well.....She just got a letter from Make-A-Wish that they will be coming to see her soon.....She and Kate are going to work on a wish......

We spent Christmas at home and New Years at the beach....In between, the girls made a trip up to Maryland with Grammy and Grandad for some sleding and horse riding....They had a ball.....I couldn't believe how much we missed them for the short time they were gone....every little laugh, giggle, fight..The house was so quiet....It was an abrupt reminder of how terrifying it must be to lose a child ....unimagineable....Our thoughts and prayers always drift to those families we have met and their deep sense of loss......

Thanks for continuing to check in on us..... Lindy will have a clinic visit coming sometime soon, and scans will probably come in February ......Please continue to send your thoughts and prayers to our friends and families at Duke and UNC..... We'll keep everyone posted on any updates... Take care everyone...

Love,

Robbie and Lynn

Friday, December 16, 2005 8:21 AM CST

Friday, December 9, 2005 8:40 AM CST

Hi...Sorry we haven't updated in a while....Lindy is doing well and we're all still floating from our last set of scans.....If you didn't know, all of Lindy's scans showed no evidence of disease....We shouldn't be back at UNC for about six or seven weeks.....We really do have much to be thankful for....She really is a joy to watch...There is an energy and strength about her that is hard to describe, but so inspiring to see.

We hope you all are doing well and enjoying the season.....Please remember to send thanks and peace to our friends and families at UNC and Duke who continue to battle their illnesses and to those families who have lost a loved one....We think of them constantly.

Rebecca and Gabe are working on collecting toys for Christmas for the kids at UNC who find themselves in the hospital Christmas morning....Anything you can provide would be appreciated....Their websites are below.....Also, the MeFine foundation continues to do wonderful things.....You can check on their activities through Folden's website below.

Thank you all so much for continuing to check in on our little fighter and support our family....It really is a blessing to feel so much support and kindness from friends and strangers....There really is a lot more good than bad in the world and you all are a perfect example...Take care and have a wonderful Christmas.

Love,

Robbie & Lynn

p.s. If you haven't seen it yet, Lindy is featured on the NC Children's Promise website - which raises money for UNC Children's Hospital. Their website is ncchildrenspromise.org....

Friday, December 9, 2005 8:40 AM CST

Hi...Sorry we haven't updated in a while....Lindy is doing well and we're all still floating from our last set of scans.....If you didn't know, all of Lindy's scans showed no evidence of disease....We shouldn't be back at UNC for about six or seven weeks.....We really do have much to be thankful for....She really is a joy to watch...There is an energy and strength about her that is hard to describe, but so inspiring to see.

We hope you all are doing well and enjoying the season.....Please remember to send thanks and peace to our friends and families at UNC and Duke who continue to battle their illnesses and to those families who have lost a loved one....We think of them constantly.

Rebecca and Gabe are working on collecting toys for Christmas for the kids at UNC who find themselves in the hospital Christmas morning....Anything you can provide would be appreciated....Their websites are below.....Also, the MeFine foundation continues to do wonderful things.....You can check on their activities through Folden's website below.

Thank you all so much for continuing to check in on our little fighter and support our family....It really is a blessing to feel so much support and kindness from friends and strangers....There really is a lot more good than bad in the world and you all are a perfect example...Take care and have a wonderful Christmas.

Love,

Robbie & Lynn

Monday, November 21, 2005 7:26 AM CST

Hi....A quick update....We have gotten results from two of Lindy's scans and they show no evidence of disease....We have not yet heard from her MRI, which was yesterday, but we're hopeful that it will also bring good news....Lindy did well for most of her scans....Wednesday was a little tough because she had an adverse reaction to some of the sedation drugs; and of course she's no big fan of needles....Thursday and Friday went just as planned...The folks at UNC take such good care of Lindy....It's nice to see the smiles and hugs that greet her when she walks into the room....We can tell that the doctors, nurses, and technicians there genuinely care about our daughter..... To that end, we'd like to remind everyone that the Radiothon is coming up this Thursday to raise money for UNC Children's Hospital....It will be broadcast on all Curtis Media radio stations as well as Time Warner Cable TV channel 14.....For more information, you can check their website ...ncchildrenspromise.org.....

Thanks for all of the support....especially over the last week....We get a little freaked out when it gets scan time...thanks again for the support and understanding....Take care everybody...we'll update again soon.

P.S
Just a quick addition....Lindy's MRI came back clean....We have a lot to be thankful for this holiday.

Love,

Robbie & Lynn

Tuesday, November 15, 2005 10:53 AM CST

Tuesday, November 8, 2005 10:20 AM CST

Hi everyone. Thanks for checking in. The oyster roast was a success. It looks like we raised a little more than 3,000 dollars for the Neurolastoma Research program at UNC. It was good to see so many familiar faces. If you didn't get a chance to get there and still want to make a donation, you can go to ncchildrenspromise.org and make your donation. Be sure to include Lindy's Project or NB research project in the comments section of your donation. Donations marked for the NB program go directly to research -- no administrative costs are covered from donations.

We're also hearing about "Lindybug" parties popping up in lots of places. These are basically parties that folks can host and the forms for donations are already provided so that donors can get tax receipts and thank you notes from UNC and Lindy. If you'd lile more information on Lindybug parties, you can email Barbara Kelly at barbandmike@webtv.net. It's a great way to tie something meaningful to any type of gathering without having to hassle with the legal issues of taking donations and providig tax credit. UNC has done that work for us.

An update on Lindy --- We have scans scheduled for Wednesday, Thursday, and Monday. If all goes well Wed. and Thurs., we're going to get down to the beach for some de-stressing before returning for an MRI on Monday. Thanks for the continued prayers and thoughts... they really mean a lot to our family. We'll let you all know results as soon as we hear.

Also thanks for continuing to offer prayers and strength for our friends and families at UNC and Duke. It really is a constant source of strength.

Love,

Robbie and Lynn

Thursday, November 3, 2005 7:35 AM CST

Hi. Sorry we haven't updated in a while. Lindy's clinic visit went well, except for the needle parts. Her next series of scans will be Nov. 9th, 10th, and 14th. She's been playing hard and enjoying school, sister, and friends. She's even been playing hard and laughing this weekend as the rest of our family fights a stomach virus. Hopefully Lindy will be able to stay virus-free and healthy. If so, this wouldn't be the first time that we've all gotten sick and she's managed to smile and laugh at us. She's been very patient with us and is doing a great job of "helping" everyone. She's even asked us if we need to see her Dr. Gold to get better.

Please continue to send thoughts and prayers to the other kids and families at Duke and UNC, as well as the others battling Cancer. You all have been so wonderful about sticking with us and we know the other families appreciate it as well.

Don't forget to check out the NC Children's Promise website for UNC Children's Hospital. There is a feature on Lindy right now. Their site is ncchildrenspromise.org. ....Again, thanks to everyone for your support...you'll never know what it has meant to our family.

Love,

Robbie & Lynn

ps..... We've added some new pics....enjoy.

Saturday, October 29, 2005 2:22 PM CDT

Monday, October 17, 2005 7:23 AM CDT

Just a quick add-on update. We have a clinic appointment on Wednesday. We'll let you all know how things go and if we know more about the next set of scans. Thanks for the thoughts and prayers... Take care.

Friday, October 7, 2005 7:36 AM CDT

Hi. All is still well with Lindy right now. For the most part, she's been happy and healthy. She will be dealing with some dental issues for a while. Apparently chemo is pretty detrimental to healthy tooth development. She will have to lose some teeth, but they are baby teeth and will come back one day. In the grand scheme, it's small potatoes. We haven't gotten any schedules for scans yet....but we'll let you all know when we get some details.

We're getting ready for the big oyster roast fundraiser for Neuroblastoma research. It was a success last year and we're hoping things go well again. It looks like Nov. 5 will be the date. Give us a call or email if you want more information.

Please continue to send thoughts and prayers to the other kids and families at Duke and UNC, as well as the others battling Cancer. You all have been so wonderful about sticking with us and we know the other families appreciate it as well.

Don't forget to check out the NC Children's Promise website for UNC Children's Hospital. There is a feature on Lindy right now. Their site is ncchildrenspromise.org. ....Again, thanks to everyone for your support...you'll never know what it has meant to our family.

Love,

Robbie and Lynn

Friday, October 7, 2005 7:36 AM CDT

Hi. All is still well with Lindy right now. For the most part, she's been happy and healthy. She will be dealing with some dental issues for a while. Apparently chemo is pretty detrimental to healthy tooth development. She will have to lose some teeth, but they are baby teeth and will come back one day. In the grand scheme, it's small potatoes. We haven't gotten any schedules for scans yet....but we'll let you all know when we get some details.

We're getting ready for the big oyster roast fundraiser for Neuroblastoma research. It was a success last year and we're hoping things go well again. It looks like Nov. 5 will be the date. Give us a call or email if you want more information.

Please continue to send thoughts and prayers to the other kids and families at Duke and UNC, as well as the others battling Cancer. You all have been so wonderful about sticking with us and we know the other families appreciate it as well.

Don't forget to check out the NC Children's Promise website for UNC Children's Hospital. There is a feature on Lindy right now. Their site is ncchildrenspromise.org. ....Again, thanks to everyone for your support...you'll never know what it has meant to our family.

Love,

Robbie and Lynn

Monday, September 26, 2005 8:23 AM CDT

Hi everybody. Not much new to report right now. Lindy is feeling great, enjoying school, and playing with reckless abandon. She is eating well and seems to be growing in front of our eyes. We have a clinic visit coming up in October and will be scheduled for another round of scans soon. We'll let you know when we have more details.

Please continue to send thoughts and prayers to the other kids and families at Duke and UNC, as well as the others battling Cancer. You all have been so wonderful about sticking with us and we know the other families appreciate it as well.

Don't forget to check out the NC Children's Promise website for UNC Children's Hospital. There is a feature on Lindy right now. Their site is ncchildrenspromise.org. ......Again, thanks to everyone for you support...you'll never know what it has meant to our family

Monday, September 12, 2005 12:36 AM CDT

Hi guys. Hope everyone is doing well. Just wanted to give a quick update. Lindy is feeling much better and is back in preschool. She got better just in time to have a fun-filled weekend with Grammy, Grandad and all of her cousins at the beach. Both girls were none too happy to come home from the beach, but are glad to get back to school and friends.

Medically -- there's not much to report until October, when Lindy will go to clinic and get her scans scheduled. We'll let you know when we know all of the details.

Please continue to send thoughts and prayers to the other kids and families at Duke and UNC, as well as the others battling Cancer. You all have been so wonderful about sticking with us and we know the other families appreciate it as well.

Don't forget to check out the NC Children's Promise website for UNC Children's Hospital. There is a feature on Lindy right now. Their site is ncchildrenspromise.org. ......Again, thanks to everyone for you support...you'll never know what it has meant to our family.

Love,

Robbie and Lynn

Tuesday, September 6, 2005 12:19 AM CDT

Hi everyone. A quick update. Lindy is not feeling very good right now. She has foot & mouth virus. The good news is it isn't cancer related. She is going to run into these issues as she goes back to school because her transplant sort of wiped out previous exposures. Right now her main problem is with blisters in her mouth and throat, which is frustrating when she tries to eat. She'll probably be at home for the rest of the week. This should run it's course and be done in a few days. Please pray that this is the case -- we don't want any suprises. She is really excited about seeing her cousins next week at the beach -- so she has to get better soon.

If you haven't checked, NC Promise has featured Lindy on their website to raise money for UNC Children's Hospital. There's a nice little story by her Grammy --- with some cute photos.

Please remember to continue to send thoughts and prayers to the children and families fighting cancer and other illnesses. It seems like weekly we hear of someone we know or know of who has lost their child. Please continue to send them strength. I know they feel it and appreciate it -- as do we.

Take care everyone and we'll update again soon.

Love,

Robbie and Lynn

Monday, August 29, 2005 10:00 AM CDT

Hi everybody. Just checking in to report that things are going well for Lindy these days. She started back to preschool last Monday. She loves it. In fact, she got mad at me Tuesday because I picked her up too early. She gets to go to school on Monday, Tuesday and Wednesday; and then stays home to play with Mom Thursdays and Fridays. Kate thinks she's ready for college now that she's a big second grader. We all stayed in town this weekend and had a rather busy schedule. We'll be going to the beach for the next three weekends --

Lynn's extended family will be at the beach in two weeks and the girls are getting very excited. It's a big gathering that lasts a week. We'll get to be there for the weekends and may pull Kate out of school a day to get some extra time with the Louisville crowd. Lindy and kate are already talking about it. There's lots of little cousins so it will definitely be entertaining.

Medically there's not much to report right now. Lindy will have her next round of scans in October. We'll get more details as they get closer. She seems to be feeling great, outside of the recurring "itchy" that she still gets from one of her old meds.

Thank you all for continuing to check in on Lindy and our family. It has really meant a lot to us. You are a constant source of strength. Please remember to send your positive thoughts and prayers to the other friends and families at UNC and Duke.

In case you didn't know, NC Promise has featured Lindy on their website to help raise funds for Neuroblastoma research. Their site is: ncchildrenspromise.org. They are affiliated with UNC Children's Hospital and do a lot for research and family support for all of the pediatric programs there.

Thanks again for checking in and we'll update again soon. Take care everyone.

Love,

Robbie and Lynn

Sunday, August 21, 2005 7:07 PM CDT

Well, it's taken us two years, but Lindy starts back to preschool tomorrow. She's been re-immunized and she is as excited as she can be to go back to "big girl" school. She'll only go three days a week, which I'm sure will be plenty for the daycare. I'm not sure what Mom and Dad will do to get through the day, but I'm betting Lindy will play as hard as possible until we drag her away.

Medically, things should be pretty calm until sometime in October when a new set of scans will be due.....We just got back from the beach and will be home for two weeks before going back.. .The girls had a great time, but seem glad to be thinking about school, friends, and a routine....

We also wanted to let you all know that NC Promise has featured Lindy on their website to help raise funds for Neuroblastoma research. Their site is: ncchildrenspromise.org. They are affiliated with UNC Children's Hospital and do a lot for research and family support for all of the pediatric programs there.

Please continue to send positve thoughts and prayers to all of our friends and families at Duke and UNC. Also remember all of the wonderful docs and nurses there... they are angels on Earth and we appreciate them more than they could ever know.....

Take care everyone and we'll update again soon.

Love,

Robbie & Lynn

Friday, August 19, 2005 2:30 PM CDT

The journal entry hasn't changed, but we wanted to let you all know that NC Promise has featured Lindy on their website to help raise funds for Neuroblastoma research. Their site is : ncchildrenspromise.org. They are affiliated with UNC Children's Hospital and do a lot for research and family support for all of the pediatric programs there.

August 1

Wow ..... What a July.... Clean scans, trips everywhere, the beach, the beach, the beach.......The girls have had a great summer.... we just got back from the beach and they are tired but smiling.....The trip to Grammy and Grandad's was cool too... They rode the horses and played with all of the animals....fun, fun, fun......Thanks to eeryone for checking in now and then....It really feels good to see that folks still call or check the journal just to make sure things are going well....You all mean a lot to us and we really appreciate your thoughts and prayers....

No medical news really...Lindy will start getting re-immunized to get ready for preschool...she'll be going three days a week beginning late August....Kate also starts back to school late August....There'll still be time for weekend beach trips.....

Please keep sending positive thoughts and prayers to the families at UNC and Duke, as well as all of the other wonderful places helping children battle their illnesses...that positive energy helps.

Check the new pictures...we've changed to show you some of the girls' summer..

Take care everyone and we'll update again soon.

Monday, August 1, 2005 8:13 AM CDT

Wow ..... What a July.... Clean scans, trips everywhere, the beach, the beach, the beach.......The girls have had a great summer.... we just got back from the beach and they are tired but smiling.....The trip to Grammy and Grandad's was cool too... They rode the horses and played with all of the animals....fun, fun, fun......Thanks to eeryone for checking in now and then....It really feels good to see that folks still call or check the journal just to make sure things are going well....You all mean a lot to us and we really appreciate your thoughts and prayers....

No medical news really...Lindy will start getting re-immunized to get ready for preschool...she'll be going three days a week beginning late August....Kate also starts back to school late August....There'll still be time for weekend beach trips.....

Please keep sending positive thoughts and prayers to the families at UNC and Duke, as well as all of the other wonderful places helping children battle their illnesses...that positive energy helps.

Check the new pictures...we've changed to show you some of the girls' summer..

Take care everyone and we'll update again soon.

Monday, July 18, 2005 9:26 PM CDT

Hi everybody. Things are going well here. All of Lindy's scans were clear with no evidence of disease -- music to our ears. The scans themselves weren't particularly smooth for Lindy --- she had an especially nasty reaction on Wednesday afternoon, but she got over it after a while and Thursday went much better. It doesn't get easier -- each time you just hold your breath and pray for the right results. Dr. Gold tells us that Lindy will have scans again in about three months. There'll be a few clinic visits in between there, but nothing major from a medical perspective. Sorry we didn't update sooner, but we don't have access at the beach. We're home for a coupleof days now and then it's off to Maryland to see Grammy and Grandad and all the animals. The girls are getting pretty excited about the trip.

Thanks you all for the encouraging messages and calls -- we really appreciate the strength and prayers ---- especially during scan time. Also please continue to remember all of the other families in your thoughts. At last check I think most of our friends were doing ok --- some have had a really tough road. It's difficult to put into words what one sees when you hang out at Duke and UNC pediatric oncology clinics ---- the word "inspiration" doesn't seem to do justice to what these kids provide for everyone. Their strength and determination to be happy is amazing.

Again, thanks for all of the prayers and thoughts -- we really do appreciate you guys. Take care. We'll try to update again in a week or so.

Love,

Robbie and Lynn

Monday, July 11, 2005 1:45 PM CDT

Hi everyone. Sorry we haven't updated in a while --- we're being beach bums. Lindy's days a full of fun in the sand and at the park. She even is enrolled in art camp this week every morning. They are really enjoying their summer. Lindy has several scans this week on Wednesday and Thursday. We're pretty anxious right now and there's really no way to get rid of the anxiety except to get through the scans and get good news. Please pray that the IV's and procedures go as smooth as possible for Lindy and most importantly, that her scans show no evidence of disease ---- that's the goal.

Also please continue to send thoughts and prayers to our friends and families from Duke and UNC. Sadly we've lost a few little ones over the last few weeks and I know these families can use all of the support they can get. I know it's not for us to define the miracles for these kids -- they fight so hard and are such inspirations to everyone --- it's just natural to be selfish and want them here with smiles and good health. We are so very thankful that Lindy's fight has gone well so far and pray continuously that things will keep moving in the right direction.

Thanks for the messages and calls -- you all have meant more to us than you could ever imagine.

Take care everyone and we'll update once we have scan news.

Love,

Robbie and Lynn

Wednesday, June 22, 2005 7:21 AM CDT

Hi everyone. Yesterday was Lindy's 3rd birthday --- can you believe it? ....This past weekend we had family over for a big celebration.... She seemed to grow up more as the day went by.....There was a constant smile on her face....Such a sweet little smile.... Last night we went out to eat and ran into her surgeon - Dr. Phillips.....What are the chances....He seemed genuinely touched to see her with hair and health on her birthday....He really was a blessing for us and we'll always be thankful for his, Dr. Gold's and all of the other team members' expertise and determination in making this little girl better....We're going to try to get to the beach this weekend...

We have another special request... Our friend Angel passed away this weekend....He was four years old...The family needs all the strength and prayer you can give....this is the second child they have lost and words can't really express the feelings....we keep reminding ourselves that it is not for us to define the miracle...the kids are all miracles regardless of how their fight finishes...but we're selfish and we want them here and healthy.....

As far as medical updates on Lindy...we are starting to get appointments for scans....Looks like clinic on July 5...Then a full series of scans the week of July 11....We'll get back to you with more detail later...Here comes the anxiety....

Please remember to send positive thoughts and prayers to all of our friends and families from Duke and UNC...I know they all appreciate it...

Take care everybody and we'll update again in about a week...

Love,
Robbie & Lynn

Monday, June 13, 2005 8:54 AM CDT

Hi everybody. All is going well with the Guptons. Lindy spent the weekend playing on the beach. She ends most days saying "Daddy -- I had fun today". You can't imagine the joy it brings us to hear that. We had a chance to spend the weekend with a child from an orphanage in Belarus --- very close to where the Chernobyl accident occured many years ago. There remains a very high rate of birth defects and orphaned children there. He didn't speak any English, but was able to communicate and follow things pretty well. Lindy and Kate played a lot with him. Kids don't really need language do they? We think it was his first trip to the ocean and it was pretty cool to watch him play with the waves. He is staying with friends of ours and they are doing a wonderful job. What a difference location makes. Lindy would almost certainly not be alive had she been born in his area. We are so very thankful to live in a place so rich in resources and wonderful facilities like UNC and Duke hospitals.

Medically -- life for Lindy has been uneventful --- which has been great. We have clinic coming up and then there will be more scans in late July/early August. That'll be about the time we start some kind of distraction... I mean project.. at the house.

In case you didn't see it, Afleet Alex won the Belmont this weekend -- which is good news for pediatric cancer research and Alex's Lemonade Stand. What a great story.

Please send thoughts and prayers to the Lees, Ashworths, Joiners, Gabe, Rebecca, and Angel (our newest friend); as well as to all of the other children and families fighting ---- I know they appreciate it.

There are new pics if you haven't checked in for a while. Thanks everyone for continuing to follow Lindy and offer strength and support -- we can't tell you all how much it has meant. Take care and we'll update again in a couple of weeks.

Love,

Robbie and Lynn

Monday, May 23, 2005 7:29 AM CDT

Good morning. We're happy to report that all is moving smoothly with Lindy and the Guptons. We spent the last weekend at the beach and Lindy played about as hard as we've ever seen her. We're starting to feel (hope) that we're at the other end of this nightmare. Please pray that this is the case.

In case you all aren't horse fans, Afleet Alex won the Preakness this weekend --- this is the horse that helps raise money to fight Pediatric Cancer in honor of a little girl who had Neuroblastoma (Alex's Lemonade Stand). He stumbled at the end, but managed to pull it together to finish strong --- what a metaphor.

It really is mind-boggling to reflect back on the last 22 months (has it really been that long ?). We are so unbelievably proud of Lindy and her strength and determination to enjoy life. Additionally, we're so proud of all of the other children and families that we've met who face each day and challenge with a positive energy that is hard to put into words. Despite words like chemotherapy, neutropenic, mucousitus, radiation, transplant.... these kids still look forward to the next day with a firm belief that it will get better. We could all learn from their example -- no matter what the outcome.

We're going to start printing out all of the messages to give to Lindy on her 3rd birthday (June 21). It'll be a reminder to her of how much love and support we all had during her battle.

Medical updates -- Lindy will have clinic in about 4 weeks, I guess that's when we'll learn when her next scans will be (no fun there).

Please continue to send prayers and positive energy to the Lee and Ashworth families, and to Gabe, Rebecca and all of the other inspiring kids and families that are out there. Also, if you have kids who are healthy, occasionally watch them play, and say a word of thanks for the blessing that they are.

Take care everyone -- we'll update again in a few weeks.

Love,

Robbie and Lynn

Thursday, May 12, 2005 7:47 AM CDT

No new news to report --- which is a good thing. We went to the Rainbow of Heroes Walk at Duke this weekend..... It was a bittersweet day. We were glad to catch up with old friends, doctors, and nurses from the transplant unit. I think the nurses were very happy to see Lindy running around playing games and screaming in delight on the big inflatable slide. It really is an inspiring event.

Some of our old friends are back at Duke because of relapses or complications from transplant -- please send them your positive thoughts and prayers of strength. The good news there is that if they are back, they're still fighting.

All of Lindy's counts look good from her clinic visit. I think Dr. Gold is going to give us a longer break before the next visit. We don't know details yet, but we're guessing it will be scan time again sometime in July/August. Until then the plan is to play play play play.

Take care everybody -- thanks for continuing to check in and for sending good thoughts to all of our friends from UNC and Duke. It means a lot to us. We'll keep putting new pictures on the picture page so you can see the girls as they grow.

Love,

Robbie and Lynn

Thursday, May 5, 2005 9:16 AM CDT

Hi everyone. Everything is going well here. Lindy had a clinic visit Tuesday and it went fine. She only cried a little when they stuck her. She was a very brave girl. She had fun with the clown, who made her a Winnie the Pooh out of balloons !!! She was captivated. They do such a great job of helping the kids be happy while at clinic. It's really inspiring to watch. Thanks for the calls and messages. They are always welcome.

One favor. We have some friends who just lost their son unexpectedly. They are some of the best parents we know and will need a lot of support for some time. We know how good you all are at sending strength through positive thoughts and prayer, so please keep them in mind.

As far as our friends and families from Duke and UNC, we think everyone is doing ok and making progress. I'm sure they appreciate your support as well.

We're going to participate in the Rainbow of Heroes walk at Duke this weekend. Lindy will get to see some of her old Duke PBMTU nurses and friends. It will be great to see them and some of the other families under less stressful circumstances. There will also be some sadness for those that aren't there.

Also, if you don't already have a favorite, pull for Afleet Alex in the Kentucky Derby this weekend. Part of his winnings go to Alex's Lemonade Stand, a national fundraiser that was started by a very brave little girl who battled Neuroblastoma. This fundraiser continues to grow stronger in her honor.

Take care everyone. We'll update again soon.

Love,

Robbie and Lynn

PS. There are some new pictures in the photo album

Thursday, May 5, 2005 8:58 AM CDT

Hi everyone. Everything is going well here. Lindy had a clinic visit Tuesday and it went fine. She only cried a little when they stuck her. She was a very brave girl. She had fun with the clown, who made her a Winnie the Pooh out of balloons !!! She was captivated. They do such a great job of helpiing the kids be happy while at clinic. It's really inspiring to watch. Thanks for the calls and messages. They are always welcome.

One favor. We have some friends who just lost their son unexpectedly. They are some of the best parents we know and will need a lot of support for some time. We know how good you all are at sending strength through positive thoughts and prayer, so please keep them in mind.

As far as our friends and families from Duke and UNC, we think everyone is doing ok and making progress. I'm sure they appreciate your support as well.

We're going to participate in the Rainbow of Heroes walk at Duke this weekend. Lindy will get to see some of her old Duke PBMTU nurses and friends. It will be great to see them and some of the other families under less stressful circumstances. There will also be some sadness for those that aren't there.

Also, if you don't already have a favorite, pull for Afleet Alex in the Kentucky Derby this weekend. Part of his winnings go to Alex's Lemonade Stand, a national fundraiser that was started by a very brave little girl who battled Neuroblastoma. This fundraiser continues to grow stronger in her honor.

Take care everyone. We'll update again soon.

Love,

Robbie and Lynn

PS. There are some new pictures in the photo album.

Monday, May 2, 2005 6:55 AM CDT

Hi everyone. Sorry we haven't updated since our scan results. We're still kind of floating. Lindy continues to thrive. She plays very hard all day, and gets her second wind about the time Kate gets home. We're starting to talk about maybe starting school part-time (2 to three days per week) in August. We probably have to do some re-immunizations first. Lindy really likes playing with her same-aged friends when she gets the chance, going to preschool will be good for her. We have a clinic visit next week, and hopefully no more scans until July or August.

Thank you all so much for your prayers and support. It's been wonderful hearing from old and new friends and seeing the love and support that's out there for our little girl. The journal entries will be such a positive gift for Lindy when she gets older. Occasionally, we get nervous, waiting for the other shoe to drop...wondering if we really are getting through this ok. That's when your support really is felt. Again, Thank you.

Please remember to send strength and positive thoughts to the others at Duke and UNC. It sounds like Gabe and Rebecca are doing well. We touch base with the Lee's and Ashworth's occasionally, and they're hanging in there and staying positive. There seem to be new families at Duke and UNC constantly,... amazing. Please keep them and all of the wonderful docs and nurses in your thoughts and prayers as well.

Love,
Robbie and Lynn

PS. There are a few new pictures --- check them out.

Tuesday, April 26, 2005 12:38 AM CDT

Hi everyone. Sorry we haven't updated since our scan results. We're still kind of floating. Lindy continues to thrive. She plays very hard all day, and gets her second wind about the time Kate gets home. We're starting to talk about maybe starting school part-time (2 to three days per week) in August. We probably have to do some re-immunizations first. Lindy really likes playing with her same-aged friends when she gets the chance, going to preschool will be good for her. We have a clinic visit in two weeks, and hopefully no more scans until July or August.

Thank you all so much for your prayers and support. It's been wonderful hearing from old and new friends and seeing the love and support that's out there for our little girl. The journal entries will be such a positive gift for Lindy when she gets older. Occasionally, we get nervous, waiting for the other shoe to drop...wondering if we really are getting through this ok. That's when your support really is felt. Again, Thank you.

Please remember to send strength and positive thoughts to the others at Duke and UNC. It sounds like Gabe and Rebecca are doing well. We touch base with the Lee's and Ashworth's occasionally, and they're hanging in there and staying positive. There seem to be new families at Duke and UNC constantly,... amazing. Please keep them and all of the wonderful docs and nurses in your thoughts and prayers as well.

Love,
Robbie and Lynn

PS. There are a few new pictures --- check them out.

Tuesday, April 26, 2005 12:22 AM CDT

Hi everyone. Sorry we haven't updated since our scan results. We're still kind of floating. Lindy continues to thrive. She plays very hard all day, and gets her second wind about the time Kate gets home. We're starting to talk about maybe starting school part-time (2 to three days per week) in August. We probably have to do some re-immunizations first. Lindy really likes playing with her same-aged friends when she gets the chance, going to preschool will be good for her. We have a clinic visit in two weeks, and hopefully no more scans until July or August.

Thank you all so much for your prayers and support. It's been wonderful hearing from old and new friends and seeing the love and support that's out there for our little girl. The journal entries will be such a positive gift for Lindy when she gets older. Occasionally, we get nervous, waiting for the other shoe to drop...wondering if we really are getting through this ok. That's when your support really is felt. Again, Thank you.

Please remember to send strength and positive thoughts to the others at Duke and UNC. It sounds like Gabe and Rebecca are doing well. We touch base with the Lee's and Ashworth's occasionally, and they're hanging in there and staying positive. There seem to be new families at Duke and UNC constantly,... amazing. Please keep them and all of the wonderful docs and nurses in your thoughts and prayers as well.

Love,
Robbie and Lynn

Friday, April 15, 2005 10:15 AM CDT

We got the word this morning. Dr. Gold tells us that Lindy's scans look great. You can imagine the relief. Our minds have been playing tricks on us the last few days, so this is definitely a welcome feeling. Lindy did well during her scans, not too much pain or discomfort -- other than being hungry and thirsty from being NPO. She really gave Dr. Gold a rough time during her exam -- she told him he was rude for trying to look in her ears and mouth. He loved it and fought back with her -- much to her delight.

Thanks for all of the words of encouragement and prayer over the last few days... They have been a constant source of strength. Please continue to send prayers to those from Duke and UNC as they continue their battle.

Take care everyone --- we'll update again soon.

Love,
Robbie and Lynn

Monday, April 11, 2005 9:35 AM CDT

Hi guys. We're getting prepared for scans. Lindy will have an injection Tuesday, an MiBG scan Wednesday, and an MRI and Bone Scan on Thursday. Please pray that everything goes as smoothly as possible and that the scans come back clean and clear of any signs of Neuroblastoma. Lindy seems to be feeling great. She had a wonderful weekend at home, the weather was perfect. I think she played outside almost all day Saturday -- followed by 12 hours of sleep Sat. night.

The Me Fine golf tourney was fun. There were some familiar faces from Duke and UNC there. It was good to see so many people contributing to help others.

We're doing fine --- other than holding our breath this week. It'll be better once we get through the scans. We changed some of the pictures on this site, so check them out.

Please remember the others from Duke and UNC in your thoughts and prayers. Kate and Lindy send their love. Take care.

Love,

Robbie and Lynn

Wednesday, March 30, 2005 11:12 AM CST

Hi. Hope everyone had a wonderful Easter. We spent all of last week at the beach and it was great. Lindy started feeling better while off of her meds, and she was going all day everyday. She and Kate loved playing with their "beach friends" and spending a lot of time with Grammy and Grandad. It was good to see everyone.

We're starting to feel the anxiety creep in as we get ready for the next set of scans. Lindy is set for an MRI, Bone Scan, and MiBG on April 13 & 14. Please pray that she'll tolerate the scans and IV's well, and that her scans will come back normal and clean. We're doing all we can to distract ourselves over the next two weeks.

We'll be at the Me Fine golf tournament next Friday -- it will be good to see the Lee family. There will surely be a couple of beach trips for distraction, as well as some projects around the house just to stay busy. Idle time is definitely not good for Lynn and I when we're getting ready for scans.

Thank you all for taking time to check in on us --- we really appreciate all that you have done for our family. You are a constant source of strength.

Please continue to offer strength to the other children and families from Duke and UNC. Take care everyone and we'll update again in about a week.

Love,

Robbie and Lynn

Tuesday, March 29, 2005 10:28 AM CST

Hi. Hope everyone had a wonderful Easter. We spent all of last week at the beach and it was great. Lindy started feeling better while off of her meds, and she was going all day everyday. She and Kate loved playing with their "beach friends" and spending a lot of time with Grammy and Grandad. It was good to see everyone. We're starting to feel the anxiety creep in as we get ready for the next set of scans. Lindy is set for an MRI, Bone Scan, and MiBG on April 13 & 14. Please pray that she'll tolerate the scans and IV's well, and that her scans will come back normal and clean. We're doing all we can to distract ourselves over the next two weeks. We'll be at the Me Fine golf tournament next Friday -- it will be good to see the Lee family. There will surely be a couple of beach trips for distraction, as well as some projects around the house just to stay busy. Idle time is definitely not good for Lynn and I when we're getting ready for scans. Thanks you all for taking time to check in on us --- we really appreciate all that you have done for our family. You are a constant source of strength.

Please continue to offer strength to the other children and families from Duke and UNC. Take care everyone and we'll update again in about a week.

Tuesday, March 15, 2005 10:12 AM CST

Hello from the Guptons. Not much has changed. Lindy is not feeling great right now because she is 11 days into her two week med cycle. So we're just waiting for Thursday night when this cycle ends. Hopefully, she'll start feeling better after a few days of rest. It's not really that bad compared to the things she's had to endure, she just gets grumpy and has a fair amount of skin problems when she's taking the cisretinoic acid. We have gotten appointments for our next set of scans --- looks like we're doing MRI, MiBG, and Bone scans April 13, 14 and 15. I'm sure we'll probably update again before then, but pray that she starts feeling better and is strong for her scans; and that her scans come back clean. Assuming Lindy starts feeling better, we're all planning on going to the beach next week -- Kate is on Spring Break and we can't let a chance for R & R pass by. Grammy and Grandad will be there too, so we're sure the girls will be more than adequately entertained.

Once again, we want to thank you all for the support and prayers. You'll never know what they have meant to us. We also appreciate your thoughts and help for our friends from Duke and UNC -- I know that they feel supported as well.

Take care everyone. We'll update again soon.

Love,
Robbie and Lynn

Thursday, March 3, 2005 12:23 AM CST

Hi guys. Lindy's clinic visit went relatively well yesterday. She fussed at us during her lab draws, but was otherwise happy to see Dr. Gold and the gang. Her labs look good. It looks like the plan for now is to do one more cycle of cisretinoic acid treatment, which will begin today. After this two-week cycle, we are basically going to let her rest for three to four weeks and then do a new round of scans. It will be a little nerve-racking to just do nothing for a month. Despite our anxiety through Lindy's treatment, we've taken comfort in knowing that we were constantly doing something to attack or suppress any recurrence. This will be the first time that we're not doing that. Lindy's docs say that this is usually a hard time for families because most feel some security and sense of control from actively treating their child. We agree. Our next set of scans will be scheduled for sometime in April.

Non-medical updates. Lindy is really growing. Her vocabulary is expanding everyday -- which is usually a good thing. She is starting to feel more comfortable arguing with her sister, it's really kind of fun to watch. Her fighting spirit really comes out during these little conflicts --- which are not that frequent. Most of the time they are just enjoying each other's company and play together a lot. Kate is doing well in first grade and is really gaining confidence with her reading. No surprise being a child of ours that she seems to be a really good math student, but struggles more with reading. We're really proud of how hard she has been working -- and Lindy loves pretending to read with big sissy.

Once again, we want to thank you all for the support and prayers. You'll never know what they have meant to us. We also appreciate your thoughts and help for our friends from Duke and UNC -- I know that they feel supported as well.

Take care everyone and we'll update in about a week.

Love,
Robbie and Lynn

Thursday, March 3, 2005 7:46 AM CST

Hi guys. Lindy's clinic visit went relatively well yesterday. She fussed at us during her lab draws, but was otherwise happy to see Dr. Gold and the gang. Her labs look good. It looks like the plan for now is to do one more cycle of cisretinoic acid treatment, which will begin today. After this two-week cycle, we are basically going to let her rest for three to four weeks and then do a new round of scans. It will be a little nerve-racking to just do nothing for a month. Despite our anxiety through Lindy's treatment, we've taken comfort in knowing that we were constantly doing something to attack or suppress any recurrence. This will be the first time that we're not doing that. Lindy's docs say that this was usually a hard time for families because most felt some security and sense of control from actively treating their child. Our next set of scans will be scheduled for sometime in April.

Non-medical updates. Lindy is really growing. Her vocabulary is expanding everyday -- which is usually a good thing. She is starting to feel more comfortable arguing with her sister, it's really kind of fun to watch. Her fighting spirit really comes out during these little conflicts --- which are not that frequent. Most of the time they are just enjoying each other's company and play together a lot. Kate is doing well in first grade and is really gaining confidence with her reading. No surprise being a child of ours that she seems to be a really good math student, but struggles more with reading. We're really proud of how hard she has been working -- and Lindy loves pretending to read with big sissy.

Once again, we want to thank you all for the support and prayers. You'll never know what they have meant to us. We also appreciate your thoughts and help for our friends from Duke and UNC -- I know that they feel supported as well.

Take care everyone and we'll update in about a week.

Love,
Robbie and Lynn

Wednesday, February 23, 2005 11:02 AM CST

Hi. Sorry we haven't updated lately. Lindy and Kate are both getting over colds, but nothing major. We went to Maryland this weekend and the girls got to see Grammy, Grandad, and the horses. They had a blast and were absolutely exhausted when we came home. We're planning on being at the beach this weekend. Lindy continues to feel pretty good outside of some cold symptoms. It seems a little wierd to be dealing with normal illness like colds and coughs. Her next clinic visit is March 2. At that time we may be planning the next set of scans. It's been really nice to not have that looming in the back of our heads, but it's a must to do them regularly for now.

Thank you all for continuing to check in on Lindy and leaving her messages. We promise, one day she'll get to read them for herself. Also thanks for the continued support for the families and children at Duke and UNC. We are forever thinking about the Lee's, Ashworths, and Joiners. Gabe and Rebecca seem to be doing ok and we're sure that they appreciate your prayers and support as well. Take care everyone..... we'll update again later.

Love,
Robbie and Lynn

Wednesday, February 9, 2005 6:36 AM CST

Hi. Not much new to report these days. Lindy is doing well, she has started another round of her meds, which will make her grumpy in a few days, but it will pass. It's really nothing compared to the things she has had to endure. We spoke at a fundraiser at NC State Saturday. As you might imagine, Lindy ran right up on stage with me and proceeded to make her presence known to everyone in the crowd. It was a funny moment. She also had a great time dancing with all of the college kids (it was a dance marathon for UNC Children's). The best part was getting to see Gabe and Rebecca and their mothers as well as Folden's mom Lori. It was refreshing to see everyone in a non-hospital setting. Lindy doesn't have anything scheduled until her next clinic visit on March 1. Kate has a cold with fever, please pray that it goes away quickly and doesn't turn into a fever for Lindy.

Thanks for the prayers, support, and donations to UNC and Duke. We can't think of two better places to give time and money. You all have really been wonderful.

Remember to send strength and prayers to the Lee's, Ashworth's, Joiner's and other families from Duke and UNC. Also, please continue to support Gabe, Rebecca, and the other children as they fight and recover.

Take care everyone and we'll update again soon.

Love,
Robbie and Lynn

Friday, February 4, 2005 9:07 AM CST

Lindy's clinic visit went well. She got a topical steriod for her rashes, which seems to have helped. Her labs look great. Dr. Gold said she had made his year. She and Kate are playing hard. Lindy even got to go to tot gymnastics -- amazing. One year ago today we were begging for some cells to grow, she was looking really bad; and now she's rolling around and giggling in Gymnastics. I added some new pictures so check them out.

Thanks for the prayers, support, and donations to UNC and Duke. I can't think of two better places to give time and money. You all have really been wonderful.

Remember to send strength and prayers to the Lee's, Ashworth's, Joiner's and other families from Duke and UNC. Also, please continue to support Gabe, Rebecca, and the other children as they fight and recover.

Monday, January 31, 2005 8:44 AM CST

Hi guys. Not much new to report. Lindy is feeling much better now that she has a little break from her meds. Unfortunately, she has to start another cycle on Thursday. We have a clinic visit tomorrow with Dr. Gold, so we may have more information about her next set of scans. The girls are really enjoying each other and their puppy.

Thanks for the prayers, support, and donations to UNC and Duke. I can't think of two better places to give time and money. You all have really been wonderful.

Remember to send strength and prayers to the Lee's, Ashworth's, Joiner's and other families from Duke and UNC. Also, please continue to support Gabe, Rebecca, and the other children as they fight and recover.

Take care and we'll update again soon.

Love,
Robbie and Lynn

Friday, January 21, 2005 9:26 AM CST

Hi everyone. Sunday (1/23) will be a very special day for Lindy and our family. It is Lindy's "new beginning" day. The anniversary of her transplant. What a difference a year has made. We remember last year at this time so vividly, and hope to never forget the details so that we may continue to realize just how truly blessed we are to continue to watch this little girl grow and thrive --- and fight her disease (remember "Grow Cells Grow !!!").

Lindy is doing well. She has finished her rotation of cisretinoic acid, so now she'll get two weeks for her skin and body to recover before beginning another rotation. The meds make her skin very irritated and sometimes supress her apetite, but really minor stuff compared to what she's been through. We're still riding a high from Lindy's last scan results. It's great to be in remission land, the goal now is to stay there. We haven't heard from Dr. Gold about when the next set of scans will be, but we're hoping for a two to three month break. We have a clinic visit coming up in about two weeks, so we'll get more info. then.

Thank you all for your continued support and encouragement. We love the notes, they'll be a great gift for Lindy someday to see how many people encouraged her during her battle. Please remember to keep sending prayers and strength to Gabe, Rebecca, and the other kids at UNC and Duke. Also, we ask for you to keep sending thoughts and prayers to the Lee, Ashworth, and Joiner families, as well as all of the others who have had to sacrifice so much.

Take care everyone and stay safe during the ice and snow.

Love,
Robbie and Lynn

Thursday, January 13, 2005 9:18 AM CST

Hi everyone. All three of Lindy's scans came back clean. We're breathing a little easier today. We're hopeing to get a twelve week break from scans, but it may be eight weeks -- it's up to Dr. Gold and we will do whatever he says. Her scans are getting tougher. She's getting older and now can figure out what's going to happen the minute we hit the parking lot. Where she used to be happy right up until they stuck her, she now starts saying "no ouchy today" and "home daddy" as soon as she sees the hospital.

Lindy is feeling OK right now, her medication is starting to make her feel bad, but she'll be done with this cycle on Thursday of next week. Her skin doesn't look so great (also because of the meds), but she is still happy and playful .... and working her Mom and Dad day and night. It really is a priveledge and we love every minute of it. Lindy still occasionally stops and looks around and says "I happy" ----- that's what it's all about.

Please remember to offer strength and support for Gabe, Rebecca and the other kids in treatment and recovery. Also continue to send prayers to the Lee, Ashworth, Joiner and other families from Duke and UNC.

You all have been so great -- We can't thank you enough. We'll update again soon.

Love,
Robbie and Lynn

Thursday, January 6, 2005 9:18 AM CST

A quick note for everyone. Lindy's MiBG scan yesterday was clean. Dr. Gold seemed very encouraged. One down, two to go. We'll update again next week after we get all results from the rest of her scans.

Sunday, January 2, 2005 9:47 PM CST

Where to begin. It's Sunday night and we've just now stopped to take a breath. What a Christmas and New Year. Not because of presents or trips, but because of family, friends, laughter -- still hearing "I happy". We just got back from the beach, where we had a get together with some of the families we met there over the summer. Christmas was remarkable, Lindy got to spend time with cousins and grandparents, not to mention countless friends. What a difference a year makes !!!! She's happy -- and absolutely full of energy.

An update on medical stuff -- Lindy has an MiBG scan on Wednesday, followed by an MRI and Bone Scan next week. Please pray that she'll be clear of any signs of tumor activity; and that she'll tolerate the IV's, sedation, and radiation exposure without any ill effects. We'll keep you all posted as soon as we know results.

Once again we want to say thank you to everyone who helped with the toy drive for UNC and who donated to the neuroblastoma research project. You'll just never know how much your help means to us and other families battling childhood cancer. If you need any updated information to make future donations, feel free to drop us an email. Also, you can check out the MeFine foundation set up in honor of Folden. They are doing great things for families dealing with the stress and demands of caring for a child with some terrible illness or condition. Right now I think their main focus has been on families at Duke PBMTU --- we can't think of a better place to start.

Please continue to pray for Rebecca, Gabe, and the other children and families at Duke and UNC --- and also please remember to offer strength to the Lees, Ashworths, Joiners, and other families that have had to endure the unimaginable. I think we mentioned in an earlier journal, there are so many faces, smiles, laughs -- that are still so very fresh in our memories ---- I can only imagine what these families feel every day.

Take care everyone and we'll update again soon.

Love,

Robbie and Lynn

Sunday, January 2, 2005 9:47 PM CST

Where to begin. It's Sunday night and we've just now stopped to take a breath. What a Christmas and New Year. Not because of presents or trips, but because of family, friends, laughter -- still hearing "I happy". We just got back from the beach, where we had a get together with some of the families we met there over the summer. Christmas was remarkable, Lindy got to spend time with cousins and grandparents, not to mention countless friends. What a difference a year makes !!!! She's happy -- and absolutely full of energy.

An update on medical stuff -- Lindy has an MiBG scan on Wednesday, followed by an MRI and Bone Scan next week. Please pray that she'll be clear of any signs of tumor activity; and that she'll tolerate the IV's, sedation, and radiation exposure without any ill effects. We'll keep you all posted as soon as we know results.

Once again we want to say thank you to everyone who helped with the toy drive for UNC and who donated to the neuroblastoma research project. You'll just never know how much your help means to us and other families battling childhood cancer. If you need any updated information to make future donations, feel free to drop us an email. Also, you can check out the MeFine foundation set up in honor of Folden. They are doing great things for families dealing with the stress and demands of caring for a child with some terrible illness or condition. Right now I think their main focus has been on families at Duke PBMTU --- we can't think of a better place to start.

Please continue to pray for Rebecca, Gabe, and the other children and families at Duke and UNC --- and also please remember to offer strength to the Lees, Ashworths, Joiners, and other families that have had to endure the unimaginable. I think we mentioned in an earlier journal, there are so many faces, smiles, laughs -- that are still so very fresh in our memories ---- I can only imagine what these families feel every day.

Take care everyone and we'll update again soon.

Love,

Robbie and Lynn

Tuesday, December 14, 2004 11:10 AM CST

Hi everyone. Hope you all are doing well and enjoying the season. Thank you all for the response regarding toys for kids at UNC. Lynn and Lindy delivered four very large bags of assorted new toys yesterday. They'll be given out Christmas morning to the kids who are in the hospital. Once again, you have been such a great source of strength for us and continue to be for the families fighting childhood cancer.

Lindy is doing great, she is having some minor issues with her oral meds (they sometimes make her feel bad), but it's really small potatoes compared to what she's been through. Looks like we'll have scans after the holidays, but no dates yet. We went to the beach this past weekend and visited the aquarium at Fort Fisher. Lindy really enjoyed the ferry ride over and had a blast yelling at all the big fish.

Especially at this time of year our minds are constantly on those families that we've met at UNC and Duke who haven't been as fortunate. I know we have to have faith that it's part of a bigger plan, but we really miss Folden, Amber, Ross, Trevor, Alex, Jacob, Joshua and the other friends. Their smiles and laughs are still very fresh in our memories. Please keep their families in your thoughts and prayers during Christmas.

Also, we continue to ask friends to send positive thoughts and prayers to Rebecca, Gabe, Derek, and the other children as they continue their treatment and recoveries. Their families are an inspiration and need all the support you can give.

If you haven't already, we have posted some new pics, so check them out. Take care everyone and we'll update again in about a week.

Love,
Robbie and Lynn

Tuesday, December 14, 2004 8:35 AM CST

Hi everyone. Hope you all are doing well and enjoying the season. Thank you all for the response regarding toys for kids at UNC. Lynn and Lindy delivered four very large bags of assorted new toys yesterday. They'll be given out Christmas morning to the kids who are in the hospital. Once again, you have been such a great source of strength for us and continue to be for the families fighting childhood cancer.

Lindy is doing great, she is having some minor issues with her oral meds (they sometimes make her feel bad), but it's really small potatoes compared to what she's been through. Looks like we'll have scans after the holidays, but no dates yet. We went to the beach this past weekend and visited the aquarium at Fort Fisher. Lindy really enjoyed the ferry ride over and had a blast yelling at all the big fish.

Especially at this time of year our minds are constantly on those families that we've met at UNC and Duke who haven't been as fortunate. I know we have to have faith that it's part of a bigger plan, but we really miss Folden, Amber, Ross, Trevor, Alex, Jacob, and the other friends. Their smiles and laughs are still very fresh in our memories. Please keep their families in your thoughts and prayers during Christmas.

Also, we continue to ask friends to send positive thoughts and prayers to Rebecca, Gabe, Derek, and the other children as they continue their treatment and recoveries. Their families are an inspiration and need all the support you can give.

If you haven't already, we have posted some new pics, so check them out. Take care everyone and we'll update again in about a week.

Love,
Robbie and Lynn

Tuesday, December 7, 2004 10:40 AM CST

Hi everyone. Sorry we haven't checked in for a while; just trying to enjoy the season. I found a CD the other day with pictures of Lindy from the Duke Transplant Unit. I guess it was because we spent every minute with her and the change was gradual, but it surprised me how sick she looked during that time. We really have come a long way. We've spoken to other parents from Duke and UNC and are having the same problem they have. It's difficult to not stay tense, waiting for the other shoe to drop. It's hard to relax and even dare to think that we're getting through this OK.

Lindy looks GREAT, her hair is getting longer and she is learning new words daily. I don't know what we'd do if we couldn't hear her talk to us each day. We spend a lot of time thinking about the families we've met that haven't been as fortunate. Please keep them all in your thoughts and prayers during Christmas.

The folks at UNC are having a little difficulty with the toy drive this year. Feel free to give us a call at (919)854-1993 if you would like to make a donation of a new toy, CD... or a gift card so they can provide gifts for the children on Christmas morning. We'd be glad to take your donation when we go to clinic. As you might imagine, anything you can do will be greatly appreciated by the kids and families that are in the hospital at Christmas. Lindy has a clinic appointment tomorrow, but I'm sure scans are coming up soon; so we'll be going back to UNC a few times before Christmas.

Please continue to send prayers and strength to the Lee, Ashworth and Joiner families, as well as to Gabe, Rebecca, and the other kids and families at UNC and Duke. Take care everyone and we'll check in again in about a week.

Love,

Robbie and Lynn

ps. we'll be updating with new pictures soon.

Monday, November 29, 2004 10:53 AM CST

Happy Thanksgiving everyone... There is so much to be thankful for...Last year at this time, we were gearing up for Lindy's second big surgery...It seems so long ago...Please remember those families in the hospital during the holidays, we know all to well how difficult that is...Lindy is doing well, she has a clinic appointment coming up next week, with new scans to be scheduled soon...She is still tolerating her oral meds fairly well and talks nonstop, just like her sister...We went to Maryland for Thanksgiving and the girls loved their time with Grammy and Grandad, not to mention the horses, the dogs, the cats, and the mountains...It was beautiful and a great time to reflect...Through this experience and through our jobs Lynn and I see so many people who, through no choice of their own, are simply born into bad situations... Whether it be a neglectful home or a life threatening or debilitating illness, these children and adults so often find the strength to remain optimistic, smiling, and inspirational...If you had the good fortune to be born healthy and in a happy home, please remember to count that as one of your blessings this season...I know we will...Another thing that we are and will be eternally grateful for is you all, our friends and family who have been such a constant source of strength for our family through this battle --- Thank You, you'll never realize what it means to us to have you as our "extended" family...Take care and we'll update in about a week...

Love,

Robbie and Lynn

Thursday, November 18, 2004 6:33 PM CST

Hi guys. Not much new to report these days. Lindy seems to be getting stronger and is enjoying life to the fullest. With the exception of some skin irritation, she really hasn't had many negative side effects from her oral meds. We'll begin to schedule her re-immunizations soon, which is pretty weird but necessary because of her transplant. Lindy and Kate are spending a lot of time together these days. Words can't express the feeling we have watching them play. It's even fun to see them disagree from time to time. It's amazing how an experience like this hightens your appreciation for the everyday normal parts of life. Thanks to everyone who is participating in the fundraiser activities for Neuroblastoma research and the Duke PBMSCTU family support program. Lots of good things are happening and we want you all to know how much we appreciate it. If you haven't been involved with one of these activities, there are plenty of others out there who are actively rasing money and awareness for pediatric cancer and family support --- please get involved. You can check out Folden's website (link below) and get involved in the Me Fine Foundation, they are doing great things. Until we get to the next phase of scans, we'll probably only update once a week, so please remember to check in from time to time. Also, please post a message for Lindy. We're going to start printing them out to keep for her so she can read them for herself when she's older -- what a gift it should be for her to see how much love and support she had during her battle.

As always, we ask everyone to send positive thoughts and prayers to the Joiner, Ashworth, and Lee families, who we think about constantly. I know it's not for us to define miracles and we have no choice but to accept it, but we still have a hard time talking about Folden, Amber, Ross and Trevor without choking down tears. Their impact on us and our children, as well as those around our family, will be felt forever. Also, please continue to offer strength and support for Rebecca, Gabe and the other children at Duke and UNC Children's. They are all such an inspiration.

Take care everyone and we'll update in about a week unless there is news to report.

Love,

Robbie and Lynn

Thursday, November 18, 2004 1:58 PM CST

Hi guys. Not much new to report these days. Lindy seems to be getting stronger and is enjoying life to the fullest. With the exception of some skin irritation, she really hasn't had many negative side effects from her oral meds. We'll begin to schedule her re-immunizations soon, which is pretty wierd but necessary because of her transplant. Lindy and Kate are spending a lot of time together these days. Words can't express the feeling we have watching them play. It's even fun to see them disagree from time to time. It's amazing how an experience like this hightens your appreciation for the everyday normal parts of life. Thanks to everyone who is participating in the fundraiser activities for Neuroblastoma research and the Duke PBMSCTU family support program. Lots of good things are happening and we want you all to know how much we appreciate it. If you haven't been involved with one of these activities, theres plenty of others out there who are actively rasing money and awareness for pediatric cancer and family support --- please get involved. You can check out Folden's website (link below) and get involved in the Me Fine Foundation, they are doing great things. Until we get to the next phase of scans, we'll probably only update once a week, so please remember to check in from time to time. Also, please post a message for Lindy. We're going to start printing them out to keep for her so she can read them for herself when she's older -- what a gift it should be for her to see how much love and support she had during her battle.

As always, we ask everyone to send positive thoughts and prayers to the Joiner, Ashworth, and Lee families, who we think about constantly. I know it's not for us to define miracles and we have no choice but to accept it, but we still have a hard time talking about Folden, Amber, Ross and Trevor without choking down tears. Their impact on us and our children, as well as those around our family, will be felt forever. Also, please continue to offer strength and support for Rebecca, Gabe and the other children at Duke and UNC Children's. They are all such an inspiration.

Take care everyone and we'll update in about a week unless there is news to report.

Love,

Robbie and Lynn

Friday, November 12, 2004 8:08 AM CST

Hi everybody. I guess you can tell from our messages that Lindy's scan on Wednesday came back clean. We're definitely taking a breath and feeling a little lighter today. Dr. Gold feels good about her progress. She will continue the cisretinoic acid treatment, and we'll be set to go for more scans in a few weeks. We haven't heard yet exactly when her next set of scans will be, as you may recall this scan was actually a scan that we tried to get four weeks ago but couldn't get an IV. As far as prognosis goes, her docs are still somewhat guarded. They say they'll feel a lot better when she gets about two years out from treatment. Neuroblastoma is just a weird cancer and her docs are being very cautious and making sure we don't let up on attacking it, whether we can see it or not. Basically the clean scans mean that she is tumor-free, or in remission. However, they are still actively treating her with the oral meds to make sure we minimize any chance of recurrence. Statistically, that chance (approx. 50%) is greatest in the first two years post-treatment.....

Lindy seems really happy these days. She's talking all the time and plays every waking moment. She absolutely adores Kate and copies everything her big sister does. We're heading to the zoo this weekend.

As always, please remember to send positive thoughts and prayers to the Ashworth, Joiner, and Lee families; as well as Rebecca, Gabe, and the other children at Duke and UNC.

Take care everyone and we'll update again soon.

Love,

Robbie and Lynn

Monday, November 8, 2004 8:02 PM CST

Hi everybody. A quick update. We're getting ready for Lindy's MiBG scan Wednesday. She goes in tomorrow for clinic and injections for the scan. Then the scan is scheduled for Wednesday morning. We were talking to a mother in another state the other day and realized just how lucky we are to be able to have this scan done at UNC every 8 weeks. This family has to make trips to Philadelphia for the MiBG scan. I don't think we'll ever move from this area. We're always meeting people who are really having to pull up roots and move to get treatment that is 30 miles from our house. Lindy and Kate are doing well these days. It's strange that you can look at Lindy now and never know how sick she was. Her doctors are still feeling good, but are guarded about prognosis until we get two years removed from treatment. Right now we're still considered "in treatment" because of the meds that Lindy takes; so we still have a ways to go. Thanks to everyone who has been involved in the fundraisers for Neuroblastoma Research at UNC - I think a lot of money and awareness has been raised. There have also been a lot of folks involved in helping the family support program at Duke PBMSCTU. You can also check Folden's website for updates on his foundation, they are doing some great things. We just can't thank you all enough for your messages of support - they really help when you start to feel that the marathon doesn't stop. Thanks also for your prayers and please continue to send them.

Also, please remember the Ashworth, Joiner, and Lee familes; as well as Gabe, Rebecca and the other children at Duke and UNC.

Take care everyone.

Love,

Robbie and Lynn

Tuesday, October 26, 2004 8:34 AM CDT

Hi everyone... Not much new to report right now... Lindy's MiBG scan has been scheduled for Nov. 9 and 10... Hopefully, things will go well this time and we'll get a clean scan... Lindy seems to be doing well right now... She's really starting to talk A LOT... She doesn't seem to mind telling us what she thinks about things... Big sister Kate is really enjoying having the whole family home consistently... We're getting ready for an oyster roast fundraiser for Neuroblastoma research... It should be fun... Lindy and Kate have a new little sister - her name is Sandy and she is of the four legged canine variety... Lindy is getting a lot of exercise chasing the puppy around... It's funny to watch them both get exhausted and collapse into a nap together... Words can't really express the feeling we get seeing the two girls happy and playing together... It's something that we'll not take for granted... Please keep sending prayers and positive thoughts as we get ready for her next scan... Also, remember the Lee and Ashworth families, Rebecca, Gabe, and the others at Duke and UNC Children's... We hope you all know how much we have appreciated your support and encouragement -- you really have been a constant source of strength... Take care and we'll update again soon.

Thursday, October 14, 2004 1:57 PM CDT

Hello again...Lindy was not able to get her MiBG scan... After many attempts (or torture ) we were not able to access a vein for her IV... Sometimes after getting a lot of sticks, Lindy's veins will react and constrict... We tried many places, but her little body wasn't going to allow it... Even her veins are strong willed... Dr. Gold is going to postpone the MiBG scan for 4 weeks...He's not too worried because the other two scans were normal...We'd sleep better with a clear MiBG because it's the most sensitive scan for Neuroblastoma, but we'd rather wait than put her through another afternoon of needles...So we're off to the beach, not much sense sitting around and worrying over things beyond our control...Lindy will go back to clinic soon and we'll update then...Hopefully we'll see her counts come up a little...

Please remember to send strength to the Lee, Ashworth, and Joiner families; to Gabe, Rebecca, and the others at Duke and UNC Children's. Take care everyone and we'll touch base soon.

Thursday, October 14, 2004 1:38 PM CDT

Hello again...Lindy was not able to get her MiBG scan... After many attempts (or torture ) we were not able to access a vein for her IV... Sometimes after getting a lot of sticks, Lindy's veins will react and constrict... We tried many places, but her little body wasn't going to allow it... Even her veins are strong willed... Dr. Gold is going to postpone the MiBG scan for 4 weeks...He's not too worried because the other two scans were normal...We'd sleep better with a clear MiBG because it's the most sensitive scan for Neuroblastoma, but we'd rather wait than put her through another afternoon of needles...So we're off to the beach, not much sense sitting around and worrying over things beyond our control...Lindy will go back to clinic soon and we'll update then...Hopefully we'll see her counts come up a little...

Please remember to send strength to the Lee and Ashworth families, to Gabe, Rebecca, and the others at Duke and UNC Children's. Take care everyone and we'll touch base soon.

Monday, October 11, 2004 7:52 AM CDT

Hi guys. A quick update... Friday was a long day for Lindy, but her MRI and Bone Scan came back clear... Her counts are a little low and we don't really have an explanation for that, but Dr. Gold said he wasn't worried about them; and we've learned to listen to Dr. Gold.....Lindy will have an MiBG scan on Wednesday, which is probably the most sensitive scan she gets, so keep the positive thoughts and prayers coming... If all goes well Wednesday, we're going to head down to the beach Thursday night... Once I get my computer working correctly again, I'll put up plenty of new pictures...Please remember positive thoughts and prayers for the Lee and Ashworth families, Gabe, Rebecca, and all of the other children and families at Duke and UNC...Take care and we'll update again when we get more results.

Monday, October 4, 2004 10:57 AM CDT

Hi everybody... Lindy had a good weekend at the beach... We will begin our next set of scans on Friday...We'll also have some scans next Wednesday... We can feel the stress of upcoming scans start to creep in, but we feel like Lindy is looking and feeling as good as ever going into the week... We probably will not know any results until the later part of next week, so keep the positive thoughts and prayers coming...Also, please remember to send prayers and thoughts for strength to the Lee (Folden) and Ashworth (Amber) families, to Rebecca and Gabe, and to the other families dealing with childhood cancers...Every time we go back to Duke or UNC we are abrubtly reminded of how difficult and stressful these illnesses can be for families... That's about it for now, we'll get back in touch soon.

Wednesday, September 22, 2004 10:24 AM CDT

Hi guys. Lindy got to spend some time last week at the beach with a lot of family (3 houses full). It was great, Lindy was in the hospital at reunion time last year, so we got to see some folks for the first time in a couple of years. She had a ball. I'll try to get some pictures up soon. Our scans have been scheduled for 10/8 and 10/13. Lindy will get an MRI, Bone Scan, and MiBG this time around; or at least that's all we know about right now. She also has a clinic visit coming up. Please keep sending positive thoughts and prayers for the scans to go smoothly for Lindy and for tumor-free results. She hates scan days, but it's worth it when the news is good. It's been really exciting to see the impact that Lindy, Folden, Gabe, Rebecca, and the others have had on people's lives. There are countless plans to help raise awareness and to support children and families. It's good to know that their journeys have led to so many positive things. Keep checking in, we'll get new pics posted soon. Take care everyone.

Thursday, September 9, 2004 9:10 AM CDT

Hi everyone. Sorry we haven't updated in a while. Lindy went to clinic yesterday and her counts are looking good. We're still not yet at a point where her counts are normal for an average kid, but the docs are pleased with how things are going so far. They are beginning to schedule Lindy's next set of scans. We'll let you all know when they are; and ask that everyone send positive thoughts and prayers for good results. Lindy still has to be on a rotation of cisretinoic acid and Septra, but she seems to be tolerating it well. We visited with Folden's family on Friday. There is such a mix of extreme emotions there that it is hard to comprehend. Please continue to pray for strength for the Lee family. Rebecca and Gabe both appear to be doing well and making progress. I'm sure they all appreciate your support. Also, please remember to offer strength and support for all of the families at Duke PBMSCTU and UNC Children's. If you haven't checked recently, there are some new pics of Lindy. Take care everyone, we'll try to be better about updating more frequently.

Thursday, September 2, 2004 6:34 AM CDT

Hi everyone. Still not much new to report on Lindy right now. She continues to feel good and play hard. We will be continuing with her current schedule and should be starting a new set of scans in several weeks. Our hearts are very heavy right now, Folden passsed away yesterday morning. There are no words to express these feelings. The Lee family has been such an inspiration to us. Folden's dad and I grew up together, and they were the first family we spoke to when Lindy was admitted at UNC. We ask that you please say a special prayer for Folden's family. We know he's happy and healthy now, but we're still feeling selfish -- we want him here. It is not our place to define the miracle, we simply have to have faith.

Take care everyone, we'll update again soon.

Saturday, August 28, 2004 3:22 PM CDT

Not much new to report right now. Lindy is feeling good and playing about as hard as a little girl can play. We did get one test result back late that was clean. This is significant because it's the one test that we have trouble getting conclusive results from each time we go through a round of scans and tests. We feel really fortunate to be at this point. We'll keep going with cisretinoic acid treatment and scans every 8 weeks. Lindy is eating well and starting to gain some weight. As long as we can stay fever free and keep her counts up, Lindy may not have overnight hospital stays for a long time.

We ask everyone to please send a special prayer of strength to Folden and his family. He is struggling and they've had such a long fight. Even when things are going well, the Bone Marrow Unit is a tough place to hang out. We think of the Lee family and the others that are on that unit constantly.

Also, please send positive thoughts to Rebecca and Gabe, who are both making progress, and to all of the other children and families at Duke and UNC. Take care everyone and we'll try to update again soon.

Monday, August 16, 2004 8:51 AM CDT

Good morning everybody. Lindy had a long but successful day Friday. Our MRI turned into an MRI, a bone scan, a chest x-ray, a urinary catheter, and blood work. She was not a happy camper. Basically, all of this is part of her protocol and has to be done at certain points during treatment. She had not been allowed to eat since the previous evening, so most of her grumpiness was due to hunger and not understanding why we wouldn't let her eat. As soon as she woke up from scans, got the IV taken out, and got some food, she perked right up and was ready to play. By the time we got home Friday evening, Dr. Gold had already left several messages of good news on our answering machine. All of Lindy's scans look normal. We are continuing the cisretinoic acid treatment and will go through another set of scans in about 8 weeks. In addition, Lindy will need to go to clinic weekly to monitor her levels, etc... This is going to be our routine for a while (8 weeks of ret. acid, then scans). So we're not celebrating, just taking a breath every 8 weeks and focusing on the next clinic visit or the next set of scans. We were told at the very beginning of this process, which was over a year ago, that this is a marathon rather than a sprint. Hopefully, we'll celebrate in a few years. However, in a lot of ways every day is a celebration with Lindy and we're thankful for that. Take care everyone and we'll update again soon.

Please remember to send prayers and strength to Folden, Rebecca, Gabe and the others at UNC and Duke. They are always in our thoughts and provide constant inspiration.

Tuesday, August 10, 2004 9:23 AM CDT

Good morning everyone. Things are going well here. Lindy's MIBG scan last Wednesday was clean (no signs of neuroblastoma activity). She has an MRI Friday. Please pray for her to get another good scan Friday and for her to be able to tolerate the needles; she's not a fan of those things. We have a clinic visit coming tomorrow and start another round of cisretinoic acid on Thursday. Kate started first grade today, she didn't seem to mind going. Lindy, however, threw a fit when Kate left for school without her. She's really attached to her big sister now that she's home more consistently. Take care and we'll update again when we get scan results.

Please say a special prayer for Folden, Rebecca, and Gabe. In addition, please remember to send strength to all of the other families at Duke and UNC, there are so many strong children and families at both places that are having to deal with incredible stress. We think of them constantly.

Sunday, August 1, 2004 7:28 PM CDT

Hi everyone. Lindy continues to feel good. Her counts from clinic on Wednesday were much higher than they have been since last summer. We were very excited to seem some counts approaching normal. We were blessed this week to have contact with the Ashworth family (Amber's parents)and continue to find them as a source of strength. Our next set of big scans begins this week. Lindy will have an MIBG scan Wednesday, followed by an MRI the following Friday. Hopefully, we'll see clear scans with no signs of tumor activity. Thanks for all of the positive messages, Lindy will surely cherish one day being able to read them and see how much you all cared. Please pray for good scans and we'll get back with you once we have some results.

Also, please say a special prayer for Folden, Rebecca, and Gabe. In addition, please remember to send strength to all of the other families at Duke and UNC, there are so many strong children and families at both places that are having to deal with incredible stress. We've met many and can tell you they are all walking miracles.

Tuesday, July 27, 2004 3:38 PM CDT

Hello everyone. Lindy seems to be doing well. We have clinic tomorrow and it will not be fun. They'll have to stick Lindy for the first time in months. No more broviac line to draw labs from, so it's going to be a little more unpleasant to go to clinic. Lindy's next set of scans are set up for the second week in August. Please pray for clean scans. Our hearts are heavy. One of our dear friends, Folden, isn't doing well. This family really helped us when Lindy was first diagnosed and our families (fathers' sides) go back a couple of generations. One of the strange things that families have to deal with in this is the mixed emotions of celebrating positive steps while at the same time being torn apart watching another child and family struggle. This was really a problem for us when we were on the transplant floor at Duke, and it again hits home pretty hard. Please send special prayers and positive thoughts to the Lee family. Also, remember to offer strength to Rebecca and Gabe, as well as the other families at UNC and Duke. Every kid at those places is a walking miracle, regardless of what happens to them.

Take care and we'll update in a few days or within a week.

Friday, July 23, 2004 9:28 AM CDT

Last August we couldn't imagine ever getting this central line out, but the day has come. Lindy had her central line taken out yesterday. She is at home recovering and seems quite happy. It's pretty strange to have her walk around without worrying about where her lines are, or what they might catch on. The downside to having the line taken out is that we will now have to take blood and do scans the hard way (with needles and IVs). But that shouldn't have to happen more than every few weeks, so it's worth it. Lindy seems really strong right now. She's playing a lot and eating well. Her next set of scans have been scheduled during the first two weeks in August. She is still taking the cisretinoic acid, which is supposed to decrease the chances of recurrence. Thanks for all of the journal entries, we really enjoy reading them to Kate and Lindy. If you haven't done so, check out some of Lindy's new pics, and her new hair.

Please remember to offer strength to Folden, Rebecca, Gabe, and the other children and families at UNC and Duke. We've met so many wonderful and strong people along the way and we find ourselves constantly thinking about them. Take care and we'll update again soon.

Sunday, July 18, 2004 7:42 AM CDT

Hi everyone. Things are moving right along here. Lindy is scheduled to FINALLY get out her central line on Thursday. It's a fairly simple surgery and nothing big compared to what she's been through. After she recovers from that, we'll begin to get ready for the next set of scans. It's encouraging to us that the docs feel good enough about the scans so far that they're OK with taking out the Broviac line. We really appreciate all of the messages from you all. You'll never know how much it has meant to us. Please also remember Folden, Rebecca, Gabe, and the other kids at UNC and Duke.

Check out some of Lindy's new pictures if you get a chance. Notice the new hair. She can actually get bed head now. Take care and we'll update again soon.

Saturday, July 17, 2004 8:29 PM CDT

Monday, July 12, 2004 8:15 PM CDT

Not much to report right now. Lindy continues to feel good and play hard. We're on the road a lot and haven't gotten the chance to check in for a while. Lindy has clinic on Wednesday at UNC. Soon we'll be gearing up for another round of scans. I guess we'll eventually get used to these scans every 6 - 8 weeks. The docs have decided to keep Lindy's central line in until we can get a set of perfect scans. She doesn't seem to mind, except when we have to change her dressing. We still hear her say "I happy" quite a bit, it warms our hearts.

Again we ask that everyone remember thoughts and prayers for all of the other children and families at UNC and Duke. Folden seems to be doing well and is on schedule at Duke (you all may not know this, but Folden's father and I were childhood friends, and so were our parents; what are the odds). Rebecca and Gabe seem to be doing well also. There are countless others, it really makes you count your blessings to see all of these children and families and what they have to go through. That's enough for now, we'll update again after clinic. Take care everyone.

Sunday, July 4, 2004 4:32 PM CDT

Happy 4th of July everybody. Sorry we haven't updated, the test results were a little delayed and we're at the beach without easy access to the internet. Lindy's bone marrow came back clean, so we're relieved that things aren't hiding in there. We didn't get the overwhelming clear result from the other test, it's still inconclusive. Dr. Gold isn't concerned at this point. Bottom line, all scans are clean and bone marrow is clean, so there really isn't any place where Neuroblastoma could be hiding. The docs say we should relax a little for now and then get ready for the next round of tests in a few weeks. Lindy will keep her Broviac line in for a while, maybe until after the next round of tests. We'll probably learn a little more in that area at our next clinic visit.

Please remember Folden, Gabe, Rebecca, and all of the other children at UNC and Duke. I know we constantly think of those folks. Again, everyone have a wonderful holiday. Take care and we'll update again soon.

Sunday, June 27, 2004 4:09 PM CDT

Hi everyone. Dr. Gold called Friday and wants us to come in Tuesday for a bone marrow aspiration. One of Lindy's routine tests has come back positive. He thinks there is a decent chance that this is a false positive, so he wants to re-test and take marrow to look more closely. We're staying optimistic and trying to keep going with Lindy's routine. This is very possibly nothing to be concerned about, but after this year it's hard not to get scared by small chances that things may be wrong. Please keep up the positive thoughts and prayers that Lindy will continue to show clear scans and tests. We're not sure when we will know the results of the tests, but we'll try to get you updated as soon as we know something.

Also please remember to offer prayer and support to Folden, Rebecca, Gabe, and Trevor; as well as the other children and families at UNC and Duke. Take care.

Wednesday, June 23, 2004 6:56 AM CDT

Good morning. Not much to report since our clean scan. Lindy has been celebrating for two weeks. 6/21 was her 2nd birthday, so that adds to the reasons to celebrate right now. We've been spending a decent amount of time at the beach. We have to come back for clinic visits, but so far they've been pretty routine stuff (counts, ...) Hopefully, the docs will decide to remove Lindy's Broviac line soon, which I think will make her pretty happy. She is still taking the cisretinoic acid and will have another set of scans in a few weeks. Please pray that those scans are clean. Lindy still stops playing occasionally and looks around with a smile and says "I happy"; it's become our new rally phrase.

Please remember to offer prayer and support for Folden, Rebecca, Gabe, Trevor, and all of the other children and families from UNC and Duke as they continue to face challenges with incredible strength. Take care and we'll check back in soon.

Thursday, June 10, 2004 7:56 AM CDT

Last night we got the call we've been waiting for since August. Lindy's MIBG scan was clean. This is a very sensitive scan that is used to monitor Neuroblastoma activity. Lindy has gotten pretty good MRI scans before, but this is the first clean MIBG scan she's ever had. In August '03, we were told that Lindy's particular diagnosis had a pretty poor prognosis; we kept hearing 30% survival rate. Needless to say, words can't express how we feel about finally getting a clear scan. Dr. Gold was happy. We will continue on her protocol of ret. acid, followed by scans every four to six weeks. We know we're not completely out of the woods, but it's nice to get over that first hurddle towards recovery. We met a Grandmother yesterday who's grandson was having the same scan and had a similar diagnosis as Lindy four years ago. She told us it doesn't really get easier at scan time, but you learn to relax a little between tests --- we look forward to that. I know we've said it before, but we want each of you to know how very much we appreciate your support, prayers, and positive comments. If you've left a message on this website, please know we've read it at least fifty times; especially when things seemed overwhelming and we just needed to know we're not alone. Hearing from old friends, family, sometimes strangers, and even parents who have been through similar times has truely been a blessing. What a gift it will be to Lindy when she's older to be able to look back and read these messages and see all of the love and support for her during her battle. We want you to continue to check in from time to time, as we will keep updating Lindy's pictures and treatment. For now, we're going to the beach. Lindy has a new phrase, she periodically will stop playing and just look around and say "I happy". Again, words can't express the feeling that gives us.

All of these kids are incedible. Even though there is a lot of trauma and stress to families, this really is about these special children who are fighting with such bravery and spirit. It has forever changed our lives to see how happy these children can be despite their circumstances. We ask that you continue to offer prayer and support for all of them. Please remember Folden (website below), Gabe (website below), Rebecca (website below), and Trevor (caringbridge.org/tx/joinerboys) who are all in different phases of treatment and recovery; and who continue to face challenges with incredible strength and a positive energy that is a model for us all. Take care and we'll check in again soon.

Thursday, June 10, 2004 7:05 AM CDT

Last night we got the call we've been waiting for since August. Lindy's MIBG scan was clean. This is a very sensitive scan that is used to monitor Neuroblastoma activity. Lindy has gotten pretty good MRI scans before, but this is the first clean MIBG scan she's ever had. In August '03, we were told that Lindy's particular diagnosis had a pretty poor prognosis; we kept hearing 30% survival rate. Needless to say, words can't express how we feel about finally getting a clear scan. Dr. Gold was happy. We will continue on her protocol of ret. acid, followed by scans every four to six weeks. We know we're not completely out of the woods, but it's nice to get over that first hurddle towards recovery. We met a Grandmother yesterday who's grandson was having the same scan and had a similar diagnosis as Lindy four years ago. She told us it doesn't really get easier at scan time, but you learn to relax a little between tests --- we look forward to that. I know we've said it before, but we want each of you to know how very much we appreciate your support, prayers, and positive comments. If you've left a message on this website, please know we've read it at least fifty times; especially when things seemed overwhelming and we just needed to know we're not alone. Hearing from old friends, family, sometimes strangers, and even parents who have been through similar times has truely been a blessing. What a gift it will be to Lindy when she's older to be able to look back and read these messages and see all of the love and support for her during her battle. We want you to continue to check in from time to time, as we will keep updating Lindy's pictures and treatment. For now, we're going to the beach. Lindy has a new phrase, she periodically will stop playing and just look around and say "I happy". Again, words can't express the feeling that gives us.

All of these kids are incedible. Even though there is a lot of trauma and stress to families, this really is about these special children who are fighting with such bravery and spirit. It has forever changed our lives to see how happy these children can be despite their circumstances. We ask that you continue to offer prayer and support for all of them. Please remember Folden, Gabe and Rebecca, who are all in different phases of treatment and recovery; and who continue to face challenges with incredible strength and a positive energy that is a model for us all. Take care and we'll check in again soon.

Monday, June 7, 2004 6:53 PM CDT

So far so good. We seemed to have cleared the first hurdle with Lindy's scans. Her MRI Friday showed no evidence of tumor activity. Dr. Gold was excited, but guarded. He wants to continue with the MIBG scan on Wednesday, which is a scan that is particularly sensitive to Neuroblastoma cells. The retinoic acid treatment that Lindy is currently taking is supposed to decrease the chances of recurrence. The important thing is to do the scans regularly enough that if Neuroblastoma is found, it would not be very widespread. The key is not to allow it to hide undetected. After the MIBG on Wednesday, Lindy will be scheduled for regular MRI and MIBG scans over the next few months to closely monitor any activity. If the scan Wednesday is clear, the docs are considering removing her central line to decrease any risk of infection. We are excited about the clean MRI scan and hope to continue to give you all good news as scans come and go. We'll try to update soon after her MIBG on Wednesday. We spent the weekend at the beach and the girls are worn out from playing so hard.

Once again, don't forget to continue to offer strength and comfort to our friends from UNC and Duke. Folden is preparing for transplant at Duke. Gabe and Rebecca continue their progress at UNC. We are constantly thinking of these folks. We know that they too have felt the warmth and support from everyone, it is a blessing. Take care and we'll update again soon.

Monday, June 7, 2004 12:33 AM CDT

So far so good. We seemed to have cleared the first hurdle with Lindy's scans. Her MRI Friday showed no evidence of tumor activity. Dr. Gold was excited, but guarded. He wants to continue with the MIBG scan on Wednesday, which is a scan that is particularly sensitive to Neuroblastoma cells. The retinoic acid treatment that Lindy is currently taking is supposed to actually accelerate the growth of any Neuroblastoma, which will make it easier to detect by scans. The important thing is to do the scans regularly enough that if Neuroblastoma is found, it would not be very widespread. The key is not to allow it to hide undetected. After the MIBG on Wednesday, Lindy will be scheduled for regular MRI and MIBG scans over the next few months to closely monitor any activity. If the scan Wednesday is clear, the docs are considering removing her central line to decrease any risk of infection. We are excited about the clean MRI scan and hope to continue to give you all good news as scans come and go. We'll try to update soon after her MIBG on Wednesday. We spent the weekend at the beach and the girls are worn out from playing so hard.

Once again, don't forget to continue to offer strength and comfort to our friends from UNC and Duke. Folden is preparing for transplant at Duke. Gabe and Rebecca continue their progress at UNC. We are constantly thinking of these folks. We know that they too have felt the warmth and support from everyone, it is a blessing. Take care and we'll update again soon.

Thursday, June 3, 2004 6:39 AM CDT

Good morning. Things are continuing to move along with Lindy. We are getting ready for a series of important scans over the next week. Lindy will have an MRI tomorrow morning, followed by an MIBG scan Wednesday. Hopefully, these two scans will show no tumor activity. Her docs will continue to run tests on alternating weeks to watch for precursors to cancer cells and any after-effects from radiation. Right now our big focus is on getting through the scans successfully. Lindy continues to be happy and energetic. We've been going down to the beach quite a bit, she and Kate have really enjoyed playing in the sand. We continue to be amazed at the messages of strength and support from everyone, please know how much we appreciate you all. One day we'll get in touch with each of you individually, but that will take a while.

Don't forget to continue to offer strength and comfort to our friends from UNC and Duke. Folden is preparing for transplant at Duke. Gabe and Rebecca continue their progress at UNC. We are constantly thinking of these folks. We know that they too have felt the warmth and support from everyone, it is a blessing. Take care and we'll update again soon.

Wednesday, May 19, 2004 9:52 AM CDT

Good morning everybody. Not much new to report. Lindy is still looking strong and her counts continue to rise. She has an MRI June 4 and an MIBG scan June 9. If they look clear, Doctor Gold wants to remove her broviac line soon afterward. They will continue to closely monitor for recurrence with regular scans and watch for radiation after-effects on her kidneys, liver and spinal growth. Be sure to check out some of the new pictures of Lindy and Kate.

Please remember to offer strength and prayer for our friends from Duke and UNC. Folden, Rebecca, and Gabe continue their treatments and follow-up. I'm sure they appreciate all of the love and support. Also, please offer a special prayer for Amber's family as she passed away last week. She was very special to Lindy and our family and we will always be inspired by her strength and the smile that was ever present. We will update again soon. Take care everyone.

Friday, May 7, 2004 10:38 AM CDT

Good Morning everyone. Lindy continues to show signs of recovery. There has been a slight change in plans from our last journal entry. The docs have decided to leave her Broviac line in until after her June 4 MRI. This will be helpful for anesthesia as well as administering any other meds without having to stick her. She's definitely growing back her hair and eyelashes, and seems to be gaining some weight. All of her counts are actually approaching normal levels, which is a first since last July. Many of her contact restrictions have been removed. Doctor Gold wants to keep a regular schedule of MRI and MIBG scans to closely monitor things. They'll be looking very closely at her left adrenal gland area, as that area showed some uptake in the previous scans. The prevailing theory is that the area lighting up is just an overactive adrenal gland that may be compensating for the lack of a right adrenal gland, which was taken in her first surgery in August. We'll also have to continue to monitor for after-effects of her radiation (growth rate, kidney and liver functioning...) In short, there is still a lot to do, but we really couldn't imagine being at this point when we started this journey in August. We kept hearing 30% survival rate in August, so we're ecstatic to be at this point in her protocol. It seems like years have gone by since August, and yet we still have our little happy toddler following around her big sister.

Once again we ask everyone to please remember all of Lindy's friends at Duke and UNC, they are all very special people. Folden, Rebecca, Gabe, Amber and the others continue their journeys as do we, and I'm sure they too have been fortunate enough to feel the overwhelming love and support of others. It is a blessing. Take care, we'll update again soon.

Sunday, May 2, 2004 9:19 PM CDT

Lindy says "hi" to everyone. She's really beginning to talk a lot these days. Things are going well here. Unfortunately, we missed our big trip to the Duke fundraiser. It was really odd, everyone in the house got sick with a stomach virus, EXCEPT LINDY!!! How about that !!!!! Go Lindy Go !!!! Thanks to Aunt Courtney, who happened to come into town this weekend, Lindy was well entertained and everyone was cared for. We had some friends who went to the Rainbow of Heroes Walk at Duke with their nephew (a former PBMSCTU patient), it sounds like everyone had a great time for a great cause. We definitely plan to be there next year. Lindy continues to show signs of recovery, she's eating well and her counts look good. Dr. Phillips, her surgeon, has scheduled to remove her broviac line on May 11. This is definitely a milestone. She has an MRI planned for June 1, with an MIBG scan soon after that. We'll still have weekly clinic visits for some time. Each week they'll be looking for any indicators which might suggest a relapse. We feel comforted that they are watching her so closely. We also feel comforted by the continuing encouragement and prayers of everyone. You all will never know how much you have helped us. Thank you.

We ask everyone to please remember all of Lindy's friends at Duke and UNC, they are all very special people. Folden, Rebecca, Gabe, Amber and the others continue their journeys as do we, and I'm sure they too have been fortunate enough to feel the overwhelming love and support of others. It is a blessing. Take care, we'll update again soon.

Wednesday, April 21, 2004 12:48 AM CDT

You should see Lindy these days... She's growing hair, eating, and playing with reckless abandon... We took her to the beach this weekend, she and Kate were out of control - it was fun to watch... She's tickled pink to be a kid again... Her counts are on the rise and we should begin retinoic acid treatment soon... The treatment and it's side effects aren't bad at all compared to what she's been through to this point... Dr. Gold is beginning to talk about taking out her central line... From where we started in August, it was hard to imagine ever getting to this point... We will do scans again in a few weeks to make sure there is no new tumor activity... Keep the thoughts and prayers coming.

Please remember Folden, Gabe, Rebecca, Amber and the other Duke 5200 and UNC 5 Children's families. I know they appreciate your thoughts and prayers. Take care and we'll update again soon.

Tuesday, April 13, 2004 10:58 AM CDT

Hello all. Lindy is home and seems to be feeling great. Her counts are down a little, and we're keeping a close eye for any signs of infections. She looks happy and energetic and is beginning to eat a little, which will help get her off the IV nutrition. Her scans looked pretty good. There is one area that the docs are not sure what to think of, but Dr. Gold said now is not the time to worry about it. We'll do more scans in about six weeks to lok again. Lindy got out of the hospital Thursday and has a clinic appointment tomorrow morning. We'll soon begin retanoic acid treatment, which is the last part of her protocol. It's not too bad from what we hear, so we're hoping that she's through the worst part of treatment. Please remember Folden, Gabe, Rebecca, Amber and the other Duke 5200 and UNC 5 Children's families. I know they appreciate your thoughts and prayers. Take care and we'll update again soon.

Tuesday, April 13, 2004 10:49 AM CDT

Hello all. Lindy is home and seems to be feeling great. Her counts are down a little, and we're keeping a close eye for any signs of infections. She looks happy and energetic and is beginning to eat a little, which will help get her off the IV nutrition. Her scans looked pretty good. There is one area that the docs are not sure what to think of, but Dr. Gold said now's not the time to worry about it. We'll do more scans in about six weeks. Lindy got out of the hospital Thursday and has a clinic appointment tomorrow morning. We'll soon begin retanoic acid treatment, which is the last part of her protocol. It's not too bad from what we hear, so we're hoping that she's through the worst part of treatment. Please remember Folden, Gabe, Rebecca, Amber and the other Duke 5200 and UNC 5 Children's families. I know they appreciate your thoughts and prayers. Take care and we'll update again soon.

Wednesday, April 7, 2004 11:06 AM CDT

Hello all. Things are moving along here at UNC. Lindy has been in the hospital since Sunday afternoon with an infection in her line. She doesn't act like anything is wrong at all. In fact she has been hard to keep up with because she feels so good. We should be out of here in a day or so once they isolate the infection and get some negative cultures from her line. We can't thank you all enough for your generosity and donations for Duke and UNC. Many things are happening. I hear there is a plan to build a house in Louisville to benefit Neuroblastoma research at UNC (WOW). There is a penny drive in Raleigh for the DUKE PBMSCTU Family Support program. Lindy's picture may be appearing soon in newspapers in various areas (as far off as Detroit) to raise awareness for Neuroblastoma. We have to say that despite the nigthmare of Lindy's illness, it's lessons and your generosity and encouragement have left a life-long impression on our family. We thank you from the bottom of our heart. Please remember Folden, Rebecca, Gabe, Amber and our other friends at Duke and UNC in your thoughts and prayers. Believe me, there are a lot of families in those places that are in need of suport and encouragement. Don't forget to sign Lindy's guestbook. We'll print out all of her messages so that she can cherish them later in life. Take care and we'll update again soon.

Monday, April 5, 2004 9:56 AM CDT

Hi everyone. Lindy has had a slight setback. We're in the hospital at UNC with an infection in Lindy's central line. The docs are running tests to try and identify the infection. Lindy is getting antibiotics and seems to be feeling pretty good. She spiked a fever Saturday night, then got better. Tests came back positive for an infection Sunday afternoon and here we are. We're hopeful that this is no big deal and we'll be home around Thursday. She remains active and happy and doesn't seemed to stressed to be back in the hospital. Hopefully, we caught this pretty early and it will be no major issue to treat the infection. They are watching her pretty closely. Dr. Gold plans to meet with us this afternoon with some scan results. Thanks for your thoughts and prayers. Please remember Folden, Rebecca, Gabe, Amber and our other UNC and Duke friends. We'll update again soon.

Wednesday, March 31, 2004 12:29 AM CST

So far so good. Lindy is now four days out from her radiation treatment and seems to be feeling great. The docs have decreased her IV nutrition slightly to see if we can jump start her apetite. We are getting scans this week, then next week a few more tests and a bone marrow aspiration. Once everything is in, we'll be able to see how Lindy has responded to her protocol. Doctor Gold seems encouraged by what he has seen so far. Thank you all so much for the messages and phone calls, they have really been a source of strength for us. Neuroblastoma has a pretty aggressive relapse rate, so keep praying and sending strength; and please remember all of Lindy's friends at UNC and Duke. We get a lot of compliments about our wonderful friends and families that reach out to the other kids. You all have been amazing. Thanks again. We'll keep you posted on how things are going. Take care.

Friday, March 26, 2004 9:16 AM CST

Lindy finished her last round of radiation this morning. She is feeling strong and is enjoying time at home. She is particularly excited today because Grammy and Grandad are in town for Kate's birthday. Overall, radiation went without any major side effects. Lindy will have several key scans on Monday and Friday of next week, then a bone marrow aspiration to see how things are going. If all goes well, we should be getting time to take a breath and enjoy not having to go somewhere everyday. Duke PBMSCT has released us back to UNC and Dr. Gold seems to feel things are going as planned. Thank you all so much for your support, we couldn't have gotten this far without you. Please remember to offer strength for Folden, who starts his transplant protocol this week; as well as Rebecca, Amber, Gabe, and the other Duke and UNC families. Also please offer a special prayer of strength for Josh's (Duke) family as they seek comfort. We'll be back in touch sometime next week. Take care.

Robbie

Saturday, March 20, 2004 6:04 AM CST

Sorry we haven't updated in a while, we've been pretty busy running back and forth to Duke and UNC. Lindy has finished seven sessions of radiation and is feeling pretty good at this point. She's having some problems with rash and low counts, but nothing unpredicted. We get to be home today without any visit to clinic. We'll go to Duke clinic tomorrow, and may need transfuseing in the next couple of days. Lindy's counts are low, but about where expected for radiation. She's had to start back on GCSF to help her white count, so she may be starting to have some bone pain. Overall, she is still strong and playful and smiles a lot. Nausea has not been a major problem and we're thankful for that. Her anesthesia and radiation team have done a wonderful job, she hasn't seemed too anxious or stressed for any of the sessions. We're looking forward to getting her off the TPN and med pumps soon after radiation ends. Thanks again for your engouragement; and please remember to offer strength for our friends and families at Duke and UNC. We'll update again soon.

Robbie

Monday, March 15, 2004 10:58 AM CST

So far so good. Lindy has now had three radiation sessions and she seems to be tolerating it well. The docs tell us she will begin to have some fatigue over time, but we certainly haven't seen that yet. Her medications have done well at preventing nasuea to this point. The schedule is manageable, except on some days when we have to go to Duke after radiation at UNC. When radiation is the only thing on her schedule, UNC has been great about getting her in first thing in the morning so she doesn't have to spend the day waiting. She smiles a lot and contiues to play with great zest. She really is enjoying being home with her family. As always, thanks for the prayers and positive thoughts; and please remember to continue to think of Folden, Gabe, Rebecca, Amber and all of the other families at UNC and Duke. Take Care.

Robbie

Wednesday, March 10, 2004 10:56 AM CST

We start radiation therapy at UNC tomorrow. We're a little nervous about some areas, but are feeling like the docs are on top of it. Lindy has had two very good days. Duke has taken her off of some of the meds and she seems to be having less stomach problems. She is still not eating enough to be free of IV nutrition, and will not likely be taken off of TPN until after radiation. Managing her pumps and meds has gotten easier with the decrease in antivirals and antibiotics. Lindy had to be transfused Saturday because of low counts, but that is not unexpected at this stage. Overall, her counts have done well after trasnplant. We're really glad to be feeling well post-transplant, that is defintely not always the case. Please continue to pray for the families at Duke PBMSCTU, I can't imagine how it must feel for some of the families that we met there. It's just a tough place to be. Also, please remember to send positive thoughts to Folden, Gabe, Rebecca, and Amber; as well as our other UNC friends. Take care and we'll keep you all posted.

Thursday, March 4, 2004 10:58 AM CST

Hi everybody. We had our meeting with UNC yesterday to begin planning radiation therapy. It's going to be pretty intense. The plan is to start next Thursday. Lindy will have sessions Thursday and Friday, and then Monday through Friday for the next two weeks for a total of 12 sessions. The main concerns are her liver, right kidney and spinal column. They have to radiate the area that had tumor tissue or tested positive in the beginning to insure that they get every little cancer cell. The problem is that the initial large tumor had moved some organs; now that it is gone the organs have gotten back into place, but are now in the path of radiation. They will be monitoring her very closely, especially the liver and right kidney. Lindy will have to go through anesthesia each time to insure that she lies perfectly still. As has been the norm, every time we go to an intitial meeting we leave scared. They have to tell you all of the things that might happen. We feel good about the docs and know that they are being very careful with Lindy. They say she will probably be nasueated during this time, so we are planning on keeping her on TPN because she likely will not begin eating during radiation. She seems to be feeling good and happy right now and is managing pretty well at day 41 post-transplant. She still has bouts of nasuea and fatigue, but smiles a lot and is ejoying her time at home. If all goes as planned, we'll be able to stay at home throughout the radiation. I guess we just have to get back to reality and start focusing on this next phase of treatment. She is a strong little girl and has held up great through all of this. Take care and we'll keep you all posted.

Saturday, February 28, 2004 10:28 PM CST

Hi everyone. It's great to get some time at home. We've gotten adjusted to managing Lindy's pumps and meds at home and have settled into a routine. Lindy is absolutely giddy to be in her house. She plays with reckless abandon, which is occasionally a challenge when she's hooked up to pumps. Kate is having a great time with her little sister back home. So far our clinic visits haven't been bad. Lindy is currently having some frustration with bone and joint pain. She feels great and wants to go as fast as possible, but then feels pain when she tries to move too much. The pain is most likely from her body forcing so many cells from the marrow (a good thing), which is accelerated by GCSF - which stimulates cell growth. The docs are going to decrease the GCSF and see how things go. She's still not eating, so her TPN (I.V nutrition) will continue for a while longer. We go to UNC Wednesday to meet with Dr. Gold and begin planning for radiation therapy. It will be hard to transition back to thinking about intense treatment after having some time to get away from it. Even so, we're happy to be through the transplant. She's feeling pretty strong right now, so we're ready for the next phase. What a tough little girl - amazing. Please remember to send prayers and strength to Folden, Rebecca, and Gabe; as well as the other UNC and Duke families. Keep the messages coming, they really do help. We'll keep you all posted.

Tuesday, February 24, 2004 9:22 AM CST

Good morning everybody. Lindy's counts continue to rise and she gets more energetic everyday. She's starting to walk quite well and pretty much smiles every waking hour. Home life is great, but a little hectic keeping up with meds, pumps, and clinic. As she begins to eat again, the docs will decrease her IV nutrition. They will also be decreasing some of her IV meds soon. So far, every clinic visit has gone well. They have it set up so that post-transplant kids go straight back to a special area, so no long stays in the waiting room. Pretty soon we'll go back to UNC to begin radiation therapy. Lindy is looking very strong and we're optimistic about her ability to tolerate this next phase of treatment. Please remember to send prayers and positive thoughts to Folden, Gabe, Rebecca, and the other kids at UNC and Duke. Take care, Lynn and I will continue to post updates. Grow Cells Grow.

Friday, February 20, 2004 6:39 AM CST

WE ARE HOME !!!!! Lindy is smiling and happy. She just stares at things like it's Christmas. Kate is quite excited, Mom and Dad also. Things are going fairly well. Lindy's counts are dropping slowly, but that is to be expected. There is quite a bit of work to do once you are out of the unit. Lindy is still on a decent amount of IV medication and pumps, and she has to be seen at Duke's Day hospital everyday. The day visits will vary in length depending on what she needs that particular visit. She will still have to wear her mask and stay away from crowds for 3 - 6 months. Right now our goal is to get her eating enough so that she can be taken off of TPN (nutrition), which is a 12 hour IV; that will make life more manageable. It looks like we'll get some time of home and fun before beginning her radiation therapy. We'll keep posting updates and look forward to continuing to check on all the wonderful messages. We simply can't put into words how much your messages have meant to us. Thank you. Please remember to continue to offer prayer and positive thoughts to Folden, Rebecca, Gabe and the families at Duke PBMT and UNC Children's, there are a lot of strong families there that need encouragement. We'll get back to you all soon. GROW CELLS GROW !!!!!

Monday, February 16, 2004 2:01 PM CST

Hurray!!!! We're definitely leaving tomorrow. We're headed to an apartment for a few days, at least until the sno wand ice clear. We'll have to go to clinic daily for a few weeks, then taper off our visits and begin radiation therapy. Lindy is quite happy to be up and about. Her first words after a nap Friday were "shoes, out". She's walking better and seems ready to play. She is getting transfused today to help boost her counts. You all have really touched our hearts with your messages. Lindy's website had over 4,000 hits in less than a month. I'm sure one day she will treasure all of the encouraging thoughts and payers. Our plan is to keep the website open throughout her treatment, so keep checking in. If all goes well, we'll actually be home in a few days and Lindy can play in HER room with HER toys. It will be fun to watch. Kate can barely contain herself. We'll keep updating the website and adding new pictures. Take care everyone. Grow Cells Grow !!!!!!

Saturday, February 14, 2004 10:37 AM CST

Happy Valentine's Day everybody. Things are moving right along in transplant land. Lindy's WBC has stabilized, which is good considering that they have decreased her GCSF (which stimulates cell growth) by half. Last night at 11:30, she got up from her bed and pointed to the door. She didn't fuss about wearing the mask and went for a walk in the halls of the unit -- this is a first in about a month. She's been on a few outings recently, but has needed us to carry her. Although keeping up with her lines and pole is now going to be more challenging, we were very excited to see her walking around without needing much help. She's definitely getting her strength back. She seems to be getting past her withdrawal symtpoms. Her counts (outside of WBC) are a little low, so she may get transfused in the next day or so, but that's pretty normal stuff around here. It looks like Tuesday is disharge day, we're still not sure about home or apartment; believe it or not, it partialy depends on the weather. Please remember to send postive thoughts and prayers to Folden & Rebecca, as well as the children and families on this unit. There are no easy cases up here and some of the families have been here for a long time. Have a great weekend and we'll update again soon. Grow Cells Grow.

Friday, February 13, 2004 9:07 AM CST

Good morning everyone. Lindy is doing pretty good these days. Just to update you, she was having some difficulty with withdrawal from decreasing or eliminating some of her medications. She had som eproblems with nasuea and shaking, but seems to be getting through it at this point. Her counts have come down slightly, most likely due to a decerase in the GCSF, which helps stimulate cell growth. Right now we'll be watching to make sure the counts don't drop too far. If all goes well this weekend, we may be getting out of here by Tuesday. There is a lot of training that we have to go through to learn how to work the pumps that Lindy will need for a while when she gets home. Right now, the docs are leaning towards letting us go straight home as long as counts look good and our daily clinic visits go well. She is in good spirits this morning and is smiling and playing. She's had a few outings outside of the unit to see the fish and play ball. She seems to really enjoy these trips, except for putting on the mask. We'll stay in touch. Grow Cells Grow!!!!!

Tuesday, February 10, 2004 3:41 PM CST

Lindy's counts are continuing to climb. She finally got to leave the room today and see other things besides her four little walls. She hated wearing the mask (we're considering super glue), but loved playing ball with Kate in front of the giant fish tank. It was fun to watch. I think the fish enjoyed it too. We may be leaving the floor soon. No word yet on whether we're heading home or to other arrangements for a while. Be sure to see her new pictures. Grow Cells Grow !!!!!!

Monday, February 9, 2004 2:25 PM CST

Hello everybody. Lindy is feeling a little better each day. Her WBC is up to 2.6 now. She's not up and walking yet, but she's playing more in the bed and is becoming more interested in food. Right now she's pretty sore (bone pain) from some of the meds and from having her body produce so many cells from her new bone marrow. It's amazing stuff. The docs are encouraged and are beginning to talk to us about training for leaving the unit. We're a little nervous, but excited; you get used to having access to docs and nurses all the time. We'll try to get new pictures up soon, Lindy is really starting to show that spunk of hers again and we'd like to put up some new pics. Hope everyone is doing well. Keep the messages coming, Lynn and I have really enjoyed hearing from everyone. Grow Cells Grow !!!!!!!

Saturday, February 7, 2004 9:11 AM CST

Good morning everyone. Lindy's counts continue to slowly rise. Her White Blood Count is at 0.5 now, which is significantly improved from 0.0 a few days ago. She seems to be in very good spirits. She played a lot yesterday with Mom and Dad, and had as much book and toy time as she wanted. We haven't gotten her to walk yet, I'm sure she's not very confident on her feet after being in the bed for so long; but she'll get there. Docs plan to decrease some of the meds today. They tell us that even after we get home she'll probably have to hook up to a pump (for meds) each day, but at least she wont be tethered to a pole 24 - 7 like she is now. She slept well last night, even though the sleeping didn't start until 1:00 AM. It's hard to keep accurate track of time after being in the room for so long. Lynn and I have really enjoyed watching Lindy return to her normal self over the last 48 hours. It's been wonderful watching that little smile return and have her sit up in bed and start pointing to toys and books. She still enjoys giving the docs and nurses a hard time, but she'll flash them a smile ever so often. Kate is very excited about Lindy getting better and is ready to burn a trail to the hospital for some serious playtime. You all have a good weekend and we'll keep you posted. Grow Cells Grow !!!!!!!

Thursday, February 5, 2004 1:39 PM CST

"That which does not kill us makes us stronger" ---- (Nietzsche). Lindy's counts have begun to creep up. Her White blood count today was 0.2, which is very low, but .2 higher than it has been for the last few weeks. This is the sign the docs were waiting for. It indicates that she is beginning to engraft new cells. She has been playful and very attentive today, and has even waved to a few nurses without baby profanity. We're told if things continue we should be going home in a few weeks. If Lindy's counts look very good at that time, they're going to let us go directly home; rather than an apartment 5 minutes away, which is standard procedure here. We'll have to make daily visits to Duke for a while, but at least Lindy will get to be at her house. We feel very fortunate to have this as an option, so long as Lindy continues to show progress and no infections. Unfortunately, most families don't get such an opportunity because they live too far from Duke. We never realized what a blessing it is to live so close to such world-class facilites as Duke and UNC Hospitals. But that's putting the cart before the horse, right now we're focusing on continued cell growth and helping Lindy get strong again. You should see her smile. Keep up the messages - they've been a constant source of strength.

Wednesday, February 4, 2004 1:12 PM CST

Lindy woke up this morning, sat up in bed and demanded toys and books. Her labs still show no counts yet, but we're convinced that there ARE cells growing in there. This morning was a welcome relief. We have kept the journal entries positive, but Lindy has had to deal with quite a bit of pain the last few days. I can't tell you how nice it was to see her smile and play for the first time in about two weeks. The short play time wore her out and she's now napping. We think we'll have some positive cell counts in a few days. Thanks you all so much for the positive messages. Lynn and I have really enjoyed checking in and hearing from folks. Keep them coming. Our next phase of treatment is radiation, which will be a few months after disharge from transplant. Right now the docs expect to disharge us from the transplant unit at the end of February. We'll continue to try and keep you all posted. Grow Cells Grow !!!!!!!!!

Monday, February 2, 2004 1:20 PM CST

Greetings from transplant land. Well, if Lindy's protest of her confinement is any indication of feeling better, I'd say we're on our way. She seems to look better and have more energy, and she's using that newfound energy to let us know how she feels about being sick. The docs are encouraged and amused at this and say it's an indication that she feels good enough to fight them off. No counts yet, but we hope it won't be long before she begins engrafting her new cells. She still has some fever and an accelerated heart rate, but the concensus is that she is still battling some pain from mucusitis and that is causing her heart to beat faster. We'll keep you all posted. GROW CELLS GROW !!!!!!!

Sunday, February 1, 2004 11:40 AM CST

Hi everyone. Things are slowly moving forward here. Lindy's fevers have leveled off at around 100, which is good. She seems to be having less trouble with nausea and has a little more energy today. In fact, she seems more agitated today, which is probably a good thing. She is getting tired of feeling bad and fighting to feel better. The docs continue to be encouraged with her on day +9. We keep her updated on who has sent her messages. We'll send another update soon. Take care and Grow Cells Grow !!!!!

Friday, January 30, 2004 2:12 PM EST

Hi everybody. Things are moving right along here. Lindy continues to have some problems with sores and nausea related to her mucusitis. However, the doctors are encouraged and expect to see some recovery of her counts early to mid week next week. They are impressed with her level of expression and activity to be at day 7. This is usually the point where she should be at rock bottom, so any activity is a good sign. They have been giving her platelets to help deal with bleeding associated with mucusitis, and it seems to have helped some. She is a little more verbal and alert today, which is nice to see. We are hoping to see this trend continue, but are told that it's ok if her activity level is inconsistent over the next few days. Take care. Grow Cells Grow.

Thursday, January 29, 2004 1:20 PM EST

Lindy says hello to everyone. She is still having a pretty rough time right now. Her mucusitis has gotten a little worse and she's starting to have some trouble with sores in her GI system, which is causing her some pain. She's had a fairly consistent fever, but not extreme. The doctors aren't worried, they say she is doing great for day +6. She had a rough night last night, but seems more verbal and alert today. We know that one day Lindy will cherish the messages of love and support posted on this website. At the end of this process we will print them all out and put them in a special book for her to remember the silver lining of this experience. Lynn and I really enjoy taking a break once in a while to come in and check Lindy's messages. You all have been a constant source of strength. Thanks. Take care and we'll keep you posted.

Tuesday, January 27, 2004 11:29 AM CST

Hello everyone. Things are pretty much unchanged at this point. Lindy is not feeling her best these days as she is in the worst part of the chemo after-effects. One of the biggest issues right now is avoiding infections because she doesn't have an immune system to fight off anything. She got a blood transfusion last night to help keep her counts up. Her pain medication is helping her stay comfortable, but the doctors want to be careful not to sedate her because this would increase risk of pneumonia. Right now her main problems are with mucusitus, nausea, and some pain. Despite all this, she still manages to smile every once in a while and likes laying next to mom or dad and watching her cartoons. We're hopeing that her transplanted cells will begin to grow soon and she'll begin to feel better. We seem to be on course and everything she is experiencing is part of the transplant process. We'll keep you all updated. Thanks so much for the positive thoughts and prayers on this web page, they have been wonderful.

Sunday, January 25, 2004 12:36 AM CST

Hi everyone. Lindy is having a fairly rough time of it right now. She started spiking fevers during the night and continues to have periodic boughts of nausea. Again, the docs tell us this is part of the obliterative chemo process, she has to go way down before coming up. Right now she's not interested in much but looking around some and sleeping. The fevers may likely be a normal reaction to her counts dropping and the new cells being introduced to her body. They are taking cultures to make sure there are no new infections. We're just focusing on keeping her comfortable and expect this to go for a few days before she starts showing evidence of engrafting cells. We'll keep you all posted. GROW CELLS GROW !!!!

Saturday, January 24, 2004 12:09 AM CST

Hello everyone. Lindy is doing ok today. She has started pain medication to manage the after-effects of the chemo. She will likely need increasing doses over the next few days, so we expect it to get worse before getting better. Doctors expect that her levels and after-effects will be at their worst over the next week or two, then she will begin to climb upward as her body starts to engraft her new cells. She is a tough little girl and still sits up in bed to play with her books and toys. Take care everyone, we'll be updating the journal and photos soon.

Friday, January 23, 2004 10:31 AM CST

Hurray. Lindy received her transplant this morning and everything went well. The entire process only took about 30 minutes and she slept through it all. At this point there doesn't appear to be any complications. The docs say she should begin engrafting her new cells in 7 to 15 days. The did say she will probably feel her worst in a couple of days as the obliterative chemo will have it's strongest after-effects then.

Thursday, January 22, 2004 5:10 PM CST

Hi everyone. Thanks for all of the encouraging messages and prayers, they have truely been a source of strength. Lindy is doing ok today. She has experienced a little more nausea and is beginning to show some signs of mucusitis (sp.), which is a common after-effect of the chemo that is characterized by mucus and sores in her mouth and through the G.I. system. This is not unexpected and the team has a plan for helping her deal with pain and nausea. She still seems to be fairly happy most of the time, playing often and enjoying her toys in her room. She was very happy today to get a visit from Kate. Tomorrow is her transplant (Grow cells Grow)!!!

Wednesday, January 21, 2004 11:44 AM CST

Hello everyone. Lindy seems to be feeling good today. She will just be getting fluids and antibiotics for the next few days before her transplant on Friday. She is in good spirits right now and is playing hard. Make sure to check out the photo album, we just learned how to add pictures and will be updating them occasionally.

Tuesday, January 20, 2004 10:45 AM CST

Lindy just finished her obliterative chemotherapy round, which we hope is her very last round of chemo. She is scheduled to have her transplant on Friday. She is tired and somewhat nauseated, but smiles often and still plays quite a bit.

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