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Thanks for visiting our guestbook!(This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.)IF YOU DON'T SEE YOUR ENTRY AFTER ADDING -- PLEASE CLICK ON RELOAD/REFRESH Click here to sign the guestbook. Click here to go back to the main page. Dear Marianna, Savvas and Dionysos, Our thoughts go out to you, especially this time of year. It's hard too believe that it is already 10 years ago... In remembrance of Hermes and Aristofanis. We love you and think of you! Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Friday, May 31, 2013 2:56 PM CDT Dear friends, another year has passed..We think of you so very often and do know we did especially the end of May and the end of June this year. We will never forget! We hope you are all well and will enjoy a beautiful summer. With love, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Tuesday, July 31, 2012 1:59 PM CDT Dear friends, Just a little note to let you know that you are in our hearts and thoughts! Love Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Thursday, June 9, 2011 1:10 PM CDT Thinking of you all, this time of the year! Love, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Sunday, June 27, 2010 2:54 PM CDT Dear Hermes, Thinking of you and your family. You are in our hearts, Love, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Saturday, June 27, 2009 3:09 AM CDT You are in our hearts, dear Aristofanis! We will never forget! Thinking of you all, Love and hugs, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Friday, May 29, 2009 2:30 PM CDT Hello, Sorry I haven't been by here for a while but I have a new computer and had lost your website. I finally found it today so I had to stop by and say hello. I hope you are all doing well!  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III)  BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>Ione, CA USA - Saturday, November 15, 2008 10:46 PM CST Dear Marianna, Savvas and Dionysos, Just a little note to let you know that you all are in our hearts. Remembering June 25th 2003. Love, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Tuesday, July 1, 2008 3:19 AM CDT Thinking of you, especially today. Five years have passed and still it seems yesterday. Thinking of you Aristofanis! Love and hugs, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Friday, May 30, 2008 9:29 AM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Thursday, February 14, 2008 3:35 PM CST Happy Birthday Dionyssos and best wishes for the New Year to all of you! We hope you received our e-mail! Love and hugs, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Saturday, January 5, 2008 2:40 PM CST Thinking of you all, especially tomorrow Love, Harmen, Hanna, Jan and Jacomien Haren, The Netherlands - Sunday, June 24, 2007 3:27 PM CDT Our thoughts are with you, this time of the year. Four years ago, and still as everything happened yesterday. Love, Harmen, Hanna,Jan and Jacomien Haren, the Netherlands - Thursday, May 31, 2007 5:25 AM CDT Thinking about you today.... Love and hugs, Whitney Whitney <little.whitney@gmail.com> - Wednesday, May 16, 2007 1:48 PM CDT Just thinking about you and wanting to tell you how much I love you and all three of your boys. Hugs, whitney Whitney <little.whitney@gmail.com> Washington, DC - Monday, May 14, 2007 6:03 PM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Sunday, December 31, 2006 9:57 AM CST Hello, I hope that you all had a wonderful day yesterday!  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>- Tuesday, December 26, 2006 10:53 AM CST Dear Marianna, Savvas, and Baby Dionyssos, I just wanted to write a quick note to tell you how much I love you and miss you. You and your boys are always in my heart, and their bright smiling faces continue to be so vivid in my memory. I am looking forward to making it back to Greece as SOON as possible. Love and hugs, Whitney Whitney <jwl7@duke.edu> Washington, DC - Wednesday, August 16, 2006 12:39 AM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Sunday, July 23, 2006 1:32 AM CDT Dear Marianna, Savvas and Dionysos, Just a little note to let you know that we are thinking of you, especially today; in honour of Hermes. Love to you all from us all, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Sunday, June 25, 2006 4:45 PM CDT hello, I just wanted to pop in and let you know that I was thinking about you!  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Friday, June 2, 2006 9:45 AM CDT Dear Marianna and Savvas, Just a little note to let you know that our thoughts are with you, as always, but were, especially last Tuesday May 30th. Three years ago now ..., how time flies. In honour of Aristofanis we leave this message. Love and hugs, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Thursday, June 1, 2006 3:51 PM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Sunday, May 14, 2006 9:05 AM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, April 15, 2006 4:09 PM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, April 8, 2006 11:33 AM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Tuesday, March 28, 2006 2:51 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, March 11, 2006 5:15 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Thursday, March 2, 2006 9:45 PM CST Hi Marianna, Savvas, and Dionyssos! I just wanted to say hi and tell you that I miss you (and Greece) so much! I hope you are all doing well, and that baby Dionyssos is happy and healthy! LOVE YOU! Hugs! Whitney Whitney <jwl7@duke.edu> Washington, DC USA - Wednesday, February 22, 2006 3:31 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, February 11, 2006 8:29 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, December 31, 2005 0:23 AM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Wednesday, December 14, 2005 9:40 AM CST Thank you so much for the pictures, he is so precious!  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> Ione, CA USA - Monday, November 14, 2005 10:31 PM CST Hi Marianna, Savvas, and Dionysos! I was just thinking about you and wanted to tell you I love you and miss you (and Greece)! How are you? I bet Dionysos is getting bigger every day! I have some great pictures of us from my trip to Greece that I have been meaning to send you. I'm sorry I have gotten so forgetful lately! I am going to put them in the mail this week, so keep your eye out for them! I hope the winter goes by quickly so that it will be summer again and I'll be on my way back to Greece (I think it is the closest place to Heaven we have here on earth... paradise!) Lots of love and tons of hugs whitney whitney <jwl7@duke.edu> vienna, VA - Saturday, November 12, 2005 11:15 PM CST  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Monday, October 31, 2005 9:37 AM CST Hello, I just read about the new baby, I am so happy for you both. We think of you often. Love, Nancy and Nolan sam and nancy www.caringbridge.com/co/nolanramsey <samdramsey@comcast.net> Erie, Co - Monday, September 19, 2005 2:53 PM CDT  Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Friday, August 19, 2005 10:45 AM CDT  Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Monday, August 1, 2005 1:57 PM CDT  Alicia, John, Ciara, Hunter, and ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com> - Saturday, July 23, 2005 5:53 PM CDT Hello, Just stopping by to say that I was thinking about you all!  Alicia , John, Ciara, Hunter & ^^Angel^^ Tommy Bennett Children's Journal <mps3mom@hotmail.com> - Sunday, July 10, 2005 12:16 AM CDT Marianna, Savvas, and Baby Dionysos, I was just sitting here at my desk at work thinking about how much I love you and Greece. I can't wait to get back to Greece to see you, and hopefully next year you will get to meet my entire family! They are discussing a big family trip, and we are going to start planning it soon! Missing you tons and tons, hugs and kisses, Whitney Whitney <jwl7@duke.edu> Durham, NC - Friday, July 8, 2005 9:06 AM CDT Dear Marianna, Savvas and Dionysos, This time of year especially reminds us of our time we shared at Duke. You are in our hearts forever and we think of you all. In remembrance of Hermes, today... Love, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Saturday, June 25, 2005 6:40 AM CDT Hi Marianna, Savvas, and Dionysos, I am so lucky to have had the chance to spend so much time with you in Lamia and Athens. I love you so much, and words cannot even begin to express how much you mean to me. I miss you already, but I know that I will be back next year and it will seem like it has only been a few days since I last saw you! Love Always, Whitney Whitney <jwl7@duke.edu> Thessoloniki, Greece - Tuesday, June 7, 2005 2:27 PM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, May 30, 2005 11:05 PM CDT Dearest Marianna, Savvas and Dionysos, You are in our hearts. Know that our thoughts are with you today! It is hard to believe that it is already two years ago that you lost Aristofanis. Life forever changed. We love you, Harmen, Hanna, Jan and Jacomien <jacomienwichers@planet.nl> Haren, The Netherlands - Monday, May 30, 2005 4:56 AM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, May 7, 2005 10:52 PM CDT I am SO thrilled for you guys and the addition to your family! What a wonderful surprise.. I hope this little one brings you much joy. I think of you all often. With love Nurse Latane <lataneh@bellsouth.net> Charlotte, NC - Thursday, April 7, 2005 6:04 AM CDT Congratulations and the blessing of your new baby!!! I am so excited for you. I hope that you will post pictures for us to see soon. Love, Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, Md USA - Friday, April 1, 2005 12:51 AM CST Blessed Marianna and Savvas!! We are so very happy for you both!! Congratulations!! Welcome Dionysos!!! We love you!! And remember - we're invited to the wedding!!! The Nicoll's Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Tuesday, March 22, 2005 8:39 PM CST I do not know if you still view this, but I offer you congratulations on your new son Dionysus. I have heard through Harmen. Patti <mtsummer@yahoo.com> - Sunday, March 13, 2005 10:04 PM CST Oh my goodness!! I read on Harmen's site that you've been blessed with a brand new miracle!! Congratulations on the birth of Dionysos. What a lucky baby to have good health and the love of 2 wonderful parents as well as 2 guardian angels in heaven!! I hope we'll see a picture soon! Love from California Pat <patricia.manning@comcast.net> antioch, CA USA - Sunday, March 13, 2005 10:03 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, February 14, 2005 9:47 AM CST Hello, I hope that everybody is doing well and you are enjoying every minute!  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, January 31, 2005 10:03 PM CST My son transplanted for Hurlers in 2001 and I followed the journey of your boys through the web sites of several others that I came to know. I never knew you had a web site and I am sorry not to have come then to leave my condolences. I am so sorry for your great loss. Love, Anne Anne Himes <arhimes@msn.com www.caringbridge.org/page/andrewh> Boonsboro, md USA - Monday, January 24, 2005 5:50 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, December 31, 2004 11:23 AM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, December 24, 2004 1:35 PM CST My Dear Marianna and Savvas, I think about you so often. Your boys are always in my heart. Helen Carawan <hlncarawan@netscape.net> Raleigh, NC USA - Thursday, December 16, 2004 7:53 PM CST  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Thursday, November 11, 2004 3:36 PM CST Hey...I just wanted to let you guys know that I think about you all the time and I pray that things are going well. I heard some news about you guys and i am so happy for you. alyssa (tommy's friend) <sabiemc@aol.com> orlando ( I just moved from NC ), nc usa - Monday, November 8, 2004 2:18 PM CST  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Friday, October 29, 2004 1:44 PM CDT Aloha Marianna and Savvas, It has been a long time since we have written to you. We think about you both and your special angels. We hope that you are both doing well. We keep you in our thoughts and prayers. God's blessings of peace to you both. Aloha, Greg and Debbie Angel Noah's parents Prichard <noahprichard@yahoo.com> Honolulu, HI USA - Thursday, October 7, 2004 4:43 AM CDT HAVE A GREAT WEEKEND!  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, September 4, 2004 1:30 AM CDT Hi Marianna and Savvas, I am looking forward to seeing you so soon! I miss you and love you very much! If you are able, email me about meeting in Athens! I hope you will still be able to see me and my mom. We are so looking forward to seeing you again! Lots of Love, Whitney Whitney <jwl7@duke.edu> Vienna, VA - Thursday, August 26, 2004 0:05 AM CDT  Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, August 22, 2004 1:00 PM CDT Just dropping by to let you know that I linked your site to mine at MPS Forum.com on the “Links” page. I hope this was okay and thank you for sharing your site with other MPS/ML parents! MPS Angels, gone but never forgotten, you are in my prayers. Love, Jessica (Mom to Kaity~Hurler Syndrome age 13) Jessica Wellman <jessicalw@earthlink.net> Crandall, IN USA - Saturday, July 31, 2004 8:29 AM CDT Marianna & Savvas, Thank You for all your wonderful hi!, thoughts, and encourging words you have left on Annabelle Green's guest book. I am greatful to read your encourging words. Thanks so much. Annabelle is doing good and we will be returning to Idaho in a month, if Annabelle is still doing O.K. Annabelle has been talking, and is improving everyday. We are doing her 100 day studies. I am impressed that you care so much about all the kids having transplants. I am so sorry for your loss of your boys. I can't even began to know the pain you both are in. The transplant was very terifying because Duke has lost so many Sanfilippo kids and as Annabelle's grandmother, I had to make the choice of giving Annabelle a chance for a better life and make the decision for her parents. I wanted to say thanks again for your support, Annabelle and Jennifer thanks you too. Annabelle's mom is going to have her 2nd baby girl in Oct. 10th. and her baby is free from Sanfilippo. I thank God. A few days ago Jennife told me, Thank You Mom, for bringing and getting Annabelle to Duke. Well, take care and sending love from Durham and soon from IDAHO. Christine Barrietua christine Barrietua <barrietua@Velocitus.net> Boise, ID ADA - Sunday, July 25, 2004 0:10 AM CDT  We are so thrilled for you! Please keep us posted on how things are going. Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Tuesday, July 20, 2004 9:13 PM CDT Marianna and Savvas, Thank you for thinking of us on July 11th. Can you believe we've survived a year? Thinking of you always. Love, The Nicolls Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Friday, July 16, 2004 9:45 PM CDT   Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, July 4, 2004 10:39 AM CDT Dear Marianna and Savvas, We just arrived home but still wanted to let you know that we are thinking of you today, the 25th of July, and always.. In memory of Hermes, with love, Harmen, Jan and Jacomien <jacomienwichers@planet.nl> Haren, Groningen The Netherlands - Friday, June 25, 2004 5:02 PM CDT Savvas-Marianna, We are thinking of Hermes and Aristofanis and the pain and loss you must feel during this time. The grief is still so overwhelming (we know). All our love, The Nicolls Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Monday, June 21, 2004 10:20 PM CDT  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, June 21, 2004 0:57 AM CDT Dear Marianna and Savvas, During the last week Hermes and Aristofanis have been heavy on my heart. Close to this time a year ago, we lost two precious angels. I will never forget them and their smiles. Aristofanis always used to laugh and show a huge smile whenever we played with his Sesame Street toy. He had the sweetest little laugh. I will never forget how Hermes loved his tape player and the basketball hoop in the 5200 halls. I had so much fun with them, and I was so blessed to get to meet and know you. I can't wait to see you in Greece soon. I will keep you posted on the travel plans as we finish them. Lots of Love Always, Whitney Whitney <jwl7@duke.edu> Durham, NC - Wednesday, June 2, 2004 5:27 PM CDT Hey this is Alyssa. Alicia and Tommy's best friend. You guys have been on my mind so much lately. I pray that you are doing okay. You guys and your precious little boys are never far from my heart. alyssa <sabiemc@aol.com> carrboro, nc usa - Monday, May 31, 2004 6:32 PM CDT Your boys are our heroes! What Is a Hero? A hero is someone who is proud and brave, A hero is someone who is never afraid. A hero is someone who is never done, Until the battle is fought and won. A hero is someone who is kind and smart, A hero is someone who trusts his heart. A hero is someone who is always unique, A hero is someone you'd like to meet. A hero is someone who will listen to you, A hero is someone who is loving and true. A hero can be tall or small, A hero is not selfish at all. And if you believe that wishes come true, Maybe, just maybe, you will find a hero in you  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Monday, May 31, 2004 4:21 PM CDT Marianna and Savvas, You are in our thoughts and prayers everyday, but especially today. Aristofanis was a darling little boy, who is now healthy and happy in heaven - which doesn't help the pain go away - I know. We will never forget him, or his brother. We miss you and love you dearly. We were on an airplane back to Duke on Mother's Day, and all I could think about is how empty you must have felt on that day, and I so badly wanted to reach out to you and give you a big hug, and somehow make you feel better. But, remember, just as I will always be the mother of 2 boys, so will you. Forever... Love. Tracie Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Sunday, May 30, 2004 8:48 PM CDT Thinking of your little angel today.  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, May 30, 2004 6:51 PM CDT Dear Marianna and Savvas, Today must be a day that will be full of memories. Aristofanis was a brave kid, that suffered an injust fate. We think of you, and of him, today. Take care, Harry and Siena <harry.siena@wolmail.nl> bennekom, Netherlands - Sunday, May 30, 2004 2:29 AM CDT Dear Marianna and Savvas, Our hearts and thoughts are with you constantly, but especially today. It is hard to believe that it is a year ago that Aristofanis passed away. We are honoured to have met him. He was an adorable, brave little boy and we will never forget him. We hope you are doing well, although life isn't the same anymore. With love, Harmen, Jan, uncle Jan and Jacomien <jacomienwichers@planet.nl> Haren, Groningen The Netherlands - Sunday, May 30, 2004 1:58 AM CDT Marianna and Savvas, I miss you very much and think about you all the time! I hope you are doing well! Lots of Love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Sunday, May 16, 2004 10:26 PM CDT  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, May 2, 2004 6:45 PM CDT Savvas and Marianna, Always thinking of you guys. Love, The Nicolls Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Monday, April 26, 2004 9:00 AM CDT Continuing to think of you guys.... Robin Tucker <rtucker@hmsracing.com> - Monday, April 19, 2004 9:21 AM CDT WISHING YOU A HAPPY EASTER  Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, April 11, 2004 0:41 AM CDT .gif?dc=4675458679663459861) Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, April 3, 2004 11:05 PM CST Dear Marianna and Savvas, On Thursday, April 1st, I lost my best buddy Alex. He was 10 years old and had leukemia. He fought a long, tough battle, but he is now with God and healed from his sickness and pain. I am saddened and feel the weight of this loss. But I wanted you to know that on Thursday Hermes and Aristofanis met a new Angel and I think they are all going to be best friends. I know Alex will love them and will take good care of your boys. Now they are all in heaven together playing and I know all three of them are happy. They have eachother to play with and I know your boys welcomed Alex when he arrived in heaven. I miss you so much. Love, Whitney Whitney <jwl7@duke.edu> Vienna, VA - Saturday, April 3, 2004 0:57 AM CST Hi Marianna and Savvas, I hope you guys are doing okay. My heart is so broken, I can't imagine my pain multiplied by 2. We love you very much and keep you in our prayers. Doug, Tracie, Angel Douglas and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Sunday, March 21, 2004 9:23 PM CST Dear Marianna and Savvas, I just wanted to send you lots of hugs!!!! I think about you everyday and you have not been forgotten at Duke. Lots of the nurses on 5200 ask me about you, and I tell them you are doing well but miss your boys- and we all miss your boys so much. Everyone loves you and sends you their best wishes. Lots of Love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Sunday, March 21, 2004 8:05 PM CST Dear Marianna and Savvas, I just wanted to send you lots of hugs and all of my love. I hope it is sunny and warm in Greece! Love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Thursday, February 19, 2004 11:29 PM CST .jpg?dc=4675456402285466342) Alicia & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Saturday, February 14, 2004 8:46 AM CST Dear Marianna and Savvas, I can't imagine the quietness and emptiness you must feel in your home. Each day must be a mountain to climb. I only hope that by each passing day, you can learn to breathe, live and smile once again. I know the pain will never go away... We send you our hearts, our tears and our prayers. We love you!!! Doug, Tracie, Angel Douglas, and Cam <tracienicoll@adelphia.net> Colorado Springs, CO USA - Friday, February 13, 2004 9:30 PM CST Just stopping by to send some  ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net> - Sunday, February 8, 2004 12:17 AM CST Marianna and Savvas, Today I was at the hospital with visiting my best buddy and I noticed there are now two brothers staying in the rooms where Aristophanis and Hermes used to be. For a second I thought I was looking at your boys, and a deep pain emerged in my heart and I began to miss you and your boys so much. There is nothing that can make me feel better or ease the pain and longing. I hope you are doing ok. Lots of Love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Wednesday, February 4, 2004 11:04 PM CST Savvas and Marianna, We wanted to stop by to say hello, and to let you know that we think of you and the boys often. We send our love, thoughts and prayers to you. God bless, Greg and Debbie, Angel Noah's parents www.caringbridge.org/hi/noah Prichard <noahprichard@yahoo.com> Honolulu, HI USA - Tuesday, February 3, 2004 6:24 PM CST  Alicia & ^^Angel^^ Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Tuesday, January 13, 2004 7:45 PM CST Dear Marianna and Savvas, Eventhough several months have passed since I last saw you and your boys, you are still on my mind and in my heart everyday. I just wanted to tell you I was thinking about you and your boys. Lots of love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Monday, January 12, 2004 11:32 PM CST My son was surfing the web looking for information on the Greek God Hermes when we found your site. Your story touched our hearts. Your boys are beautiful angels. May God bless you and give you strength each and every day. Stacey Ga USA - Wednesday, January 7, 2004 10:08 AM CST  Alicia & ^^Angel^^ Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Wednesday, December 31, 2003 3:59 PM CST  Alicia & ^^Angel^^ Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Wednesday, December 24, 2003 2:02 PM CST I wanted to stop by to tell you that I think of you guys often. Please tell your mother thank you for the Christmas Card. It put a smile on my face. May God bless you during this holiday season. Merry Christmas, Brian, Ellen, Simon and Andrew Bowman www.caringbridge.org/page/andrewshope <Ahope4drew@aol.com> - Tuesday, December 23, 2003 7:10 PM CST Dear Marianna and Savvas, We think of you both often and wanted to let you know that you remain in our hearts. Our prayers remain with you. God's blessings of peace to you both, Aloha, Greg, Debbie and Angel baby Noah The Prichard Family <noahrprichard@yahoo.com> Honolulu, HI USA - Wednesday, December 17, 2003 7:08 AM CST Dear Marianna and Savvas, Thank you so much for your lovely Christmas card! You are so thoughful to think of us during the holiday. My mom was also very touched to get your card. She wanted me to email you and tell you that she wishes you a peaceful Christmas season. She thinks of you all the time and hopes everyday is getting a little better for you. She also loves you and cares about you very very much. Eventhough she was only able to spend two days with you, she was very touched by you and your boys. My family sends their love and warm wishes and keep an eye out for a Christmas card from my family! Lots of Love, Whitney and family Whitney <jwl7@duke.edu> Durham, NC - Tuesday, December 9, 2003 11:25 AM CST Dear Marianna and Savvas, I wrote this poem about you and your boys, and how special you are to me eventhough we only spent a little, but life changing, time together. In the quiet, by the light of the moon Upon crashing waves I feel a spirt, a breeze, a whisper Of love so far away but close Memories of soft chubby feet and bright eyes... so vivid Those smiles will never fade They are in my dreams, my every breath, an element of my heart Forever changed by two parents, two babies, infinite love Forever praying for peace and the chance to give them one more hug But then I see them smile at me through the clouds, and I feel their little hands on my heart, and I know they are healthy babies again. I love you and miss you very much. whitney Whitney Little <jwl7@duke.edu> Vienna, VA - Friday, November 21, 2003 10:14 PM CST  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ <Lumberhead@twinwolf.net> - Friday, November 14, 2003 7:46 PM CST Marianna and Savaas, I was thinking of you and your boys and wanted to say hello. I hope that you are all doing ok and that you are remembering to smile each day... I think it was you Savaas that told me that "all good Greeks smile" then you told me I could fit right in! With love and prayers Latane Grove <lataneh@bellsouth.net> Charlotte, NC - Sunday, November 9, 2003 2:55 PM CST I wanted you to know that you remain in my thoughts and prayers. Blessings to you. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC - Saturday, November 8, 2003 4:18 PM CST Marianna and Savvas, Just wanted to let you know that I am thinking about you. I love you both and your boys very much! You will be in my heart forever. Love, Whitney Whitney <jwl7@duke.edu> Durham, NC - Sunday, November 2, 2003 6:20 PM CST Thanks for the email!  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ <Lumberhead@twinwolf.net> - Friday, October 31, 2003 6:28 AM CST Hello, I am popping in to see how you were both doing. If you can, please update your journal so we can all know. Everbody here at Duke thinks about you and the boys all the time and I am sure everbody would like to know how you have been. If not, just send me an email because I would like to know. We miss you and love you!  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ <Lumberhead@twinwolf.net> - Saturday, October 25, 2003 8:14 PM CDT Hi Marianna and Savvas, I just wanted to tell you that I think about you everyday and miss you with all my heart. Anytime I hear or see something beautiful, like the sunset or the sound of a summer rain, I am reminded of your boys and their shining faces. They are part of every miracle in this world. Their spirit is part of me now, and I am gifted to have them in my heart. I hope and pray for you that everyday becomes less painful. I love you very much, Whitney Whitney <jwl7@duke.edu> Vienna, VA - Sunday, October 12, 2003 11:51 PM CDT Savvas and Marianna just letting you know I still check on you all the time and I'm continuing to pray for you both. Lavonne - Monday, October 6, 2003 1:56 PM CDT Marianna and Savvas, We thank you so much for kindly signing Noah's guestbook so often and offering us such uplifting encouragement. You are dear to us and we think & pray for you often. May God continue to bless you with peace, strength, hope, healing and renewal. We value the friendship that we have with you both. You both are truly such special people. Debbie, Greg and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, October 4, 2003 11:10 PM CDT  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ - Wednesday, October 1, 2003 11:42 PM CDT Marianna and Savvas, Just thinking about you and sending you all of the love in my heart. Love always, Whitney Whitney <jwl7@duke.edu> Boston, MA - Wednesday, October 1, 2003 2:57 PM CDT Hello, I was going to say the same thing that Debbie said but she beat me to it. Just wanted you to know that all of us here care about you and think of you and the boys often. Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ <Lumberhead@twinwolf.net> - Saturday, September 27, 2003 5:29 PM CDT Savvas and Marianna, We miss you and care about you both so much like family. We hope that you are doing well and wanted you to know that you are not forgotten, just as Hermes and Aristophanis will never be forgotten. Their memory is still fresh in our hearts and minds. We continue to think and pray for you often. God's blessings of peace, healing and renewal to you both, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Thursday, September 18, 2003 0:32 AM CDT Marianna, I was directed here from another site and I was touched by your boys smiling faces. I am deeply sorry for your loss. Lots of love and god bless!! Lindsey St. Louis , MO - Wednesday, September 10, 2003 4:38 PM CDT Maria, I was directed here from another site and I was touched by your boys smiling faces. I am deeply sorry for your loss. Lots of love and god bless!! Lindsey St. Louis , MO - Wednesday, September 10, 2003 4:37 PM CDT Hi Marianna and Savvas I just wanted to let you know I check the site all the time to see if you have left a entry. I hope you are doing o.k and that maybe the pain is a little less. I will continue to pray for you. May god bless you!!! Lavonne winston salem, nc usa - Monday, September 8, 2003 2:35 PM CDT Savvas and Marianna, We were thinking of you tonight and wanted to drop by on the web page to let you know that we care about you, miss you and are praying for you. We pray that these passing months have allowed for some healing, renewal and a chance to reminisce about the best memories of Hermes and Aristophanis. We miss them so much. God bless you both. Peace, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Thursday, September 4, 2003 11:16 PM CDT Marianna and Savvas, Tomorrow morning I am leaving for Duke and I am so sad I will not be able to see you. My heart still hurts, and my tears continue to burn. I pray that you find peace and still have love in your hearts. Love, Whitney Whitney <jwl7@duke.edu> Vienna, VA - Friday, August 22, 2003 11:43 PM CDT Marianna and Savvas, I just wanted to send you my hugs and love. I am very very sad about going back to Duke and working with a new transplant family. The love I found in your hearts, and saw you giving to your boys, is a rare treasure. I can only pray that one day I will give my children a love as deep as the love you gave your boys. Miss you, Whitney Whitney <jwl7@duke.edu> Vienna, VA - Monday, August 11, 2003 0:50 AM CDT Savvas and Marianna, We just wanted to let you know that you are being thought of today, and that we are still praying for both of you. We miss seeing you both and hope that you are well. God bless, Aloha, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, August 9, 2003 10:00 PM CDT Just thinking about you and the boys. I take comfort in knowing they are in heaven playing together and smiling down on us. May God give you peace. Nurse Megan Durham, NC USA - Saturday, August 9, 2003 4:36 AM CDT I wanted to let you know that I have not forgotten you and your family. I continue to keep you all in my thoughts and prayers. Blessings to you as you continue to go through this incredibly difficult time. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC, - Friday, August 8, 2003 8:42 PM CDT Hello, I just wanted to let you know that we are thinking of you and your sweet little angels. I hope that you are doing well. HUGS!!! Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Thursday, August 7, 2003 11:53 PM CDT Hi! I just wanted to check in on you two and tell you that I think of you often. I miss Hermes and Aristophanie! They were beautiful boys and I am so saddened by your loss. You are wonderful parents who gave the ultimate sacrifice for your children. I was amazed by your love for them, every child should have parents like you. I have the pictures in a photo album of me with each of the boys that you so graciously gave me when they were first admitted. I cherish them!! Take care and please know that we are thinking of you often! Bethany Kistler (Nurse 5200) Elon, NC 27244 - Thursday, August 7, 2003 3:31 AM CDT I was driving down the street the other day during a thunderstorm and was shaken with sadness and grief. Your boys will be in my heart forever. I don't know if I will ever stop grieving. I love you and miss you. I hope we will all find peace. Whitney <jwl7@duke.edu> Boston, MA - Tuesday, August 5, 2003 9:40 PM CDT Working tonight and thinking of you and your boys! I hope that you are doing all right. Please know that we keep you in our thought! With love Latane Grove <lataneh@bellsouth.net> 5200, - Monday, August 4, 2003 5:30 AM CDT  I love snowglobes they are so pretty. Do you like snowglobes? Everyone should love angels I think and I sure do so I wanted to share this snowglobe with you. I love you very much and I am praying for you. Love and hugs, Jessica My Page Please sign my guestbook My new buddy Mitch he has cancer since may 2003 Jessica <barbiegirljessica@netzero.com > - Sunday, August 3, 2003 7:19 PM CDT  Jessica's Site My Guestbook Good morning! I have off work today yeah! So I get to stay home and rest because I am still feeling a little bit sick and icky. I hope you have a great day. I love you. Big angel hugs, and kisses are comming your way. Love & Hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Saturday, August 2, 2003 2:20 PM CDT  Hello guys and how are you doing today? I hope you are all having a good day. I love you very much and am praying for you. Love and Hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com > - Friday, August 1, 2003 9:30 PM CDT I think of you often and hope that you are coping as best as you can. I take comfort in knowing that your boys are together and playing with my daughter, Isobel! God bless you and I will continue to pray for your healing. Cathy Peters <www.caingbridge.org/canada/isobel> - Friday, August 1, 2003 6:47 PM CDT  Hi Marianna and Savvas, I pray for you guys daily and hope you are doing ok. I love you both very much. Love and Hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Thursday, July 31, 2003 10:31 PM CDT  Hello I wanted to stop on in and sign your guestbook. I know when people sign my guestbook I love it and I love to sign yours. I am not feeling well at all today though actually I have been feeling icky since last night. Last night my momma felt my farhead and we found out I had a fever she told me to call off work today but ofcourse stuborn Jessica does not listen! Now that I just got home from work I feel even more icky! The day dragged and it was only six hours! I have about thirty guestbooks to sign and will be putting this message in them. I love you very much but right now I need to go take a nap. I feel very icky and momma works until 10 and it is only 3:30 I need to leave at 9 to pick momma up but I can sleep until then. I plan on setting the alarm and falling asleep. My momma thinks I might have a summer virus or flu. I will come back in your guestbook later on tonight when I wake up. Love and Hugs, Jessica P.S. I love it when you visit my site and I love getting my guestbook signed if you or any of your friends have a moment to spare please come sign my guestbook and if you know how to add pictures please add one I look at them when I am sad which is basically every day lately. This depression is taking alot out of me this summer but hey it is summer and it usually does cause I am lonely and wish my momma did not work so many hours or wish I worked more hours so I was not home alone so much with the two dogs. www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com - Thursday, July 31, 2003 5:48 PM CDT  Hi I just wanted to pop on in and say good night. I hope you sleep well. I am praying for you, I love you and will visit again tomorrow ok? Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Thursday, July 31, 2003 1:03 AM CDT  Hi guys I think about you daily and hope you are holding up allright. I know it is hard to loose both of your little boys but now they are in no more pain! I am praying for you and will be back soon. Love & Hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Wednesday, July 30, 2003 8:41 PM CDT Hi I just wanted to let you know I'm thinking about you and your precoius boys, I hope you are finding some peace. God bless you. sally <sally_torres@lusknet.com> anaheim, ca usa - Wednesday, July 30, 2003 6:31 PM CDT Marianna and Savvas, Was thinking about you and just wanted to send my love. Missing you, Whitney Whitney <jwl7@duke.edu> Boston, MA - Wednesday, July 30, 2003 6:26 PM CDT My Dear Marianna and Savvas, I think of you so often. You and your boys will stay with me forever. I thank you for your E-mail and hope you received mine in return. I hope we can stay in touch, if it is something you wish. Stay strong and touch peace. My Love, Helen Helen Carawan <hlncarawan@netscape.net> Raleigh, NC USA - Tuesday, July 29, 2003 8:12 PM CDT  Hi Marianna and Savvas, I hope you guys are having a nice day. I pray for the both of you every day. Love and Hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Monday, July 28, 2003 9:26 PM CDT Hi Marianna and Savvas, I don't know what to say, just wanted you to know I am thinking about you both and your mom. I wish the outcome had been different of course. We became part of your family while you were here and I enjoyed taking care of your precious boys and sharing wonderful times together. Just wanted you to know that. Mary Townley <Marytownley2003@yahoo.com> NC USA - Monday, July 28, 2003 4:39 PM CDT  Hi my dear friends how are you doing today? I am doing great. I need to get ready for work but I wanted to stop in and say hi first. What is your favorite disney movie? Mine is the lion king. Who is your favorite disney character? Mine is nala from the lion king. I hope you have a great day. I will come into your guestbook again tonight when I get home from work. Love & Hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Monday, July 28, 2003 2:29 PM CDT  Hello my dear friends. It is getting late here it is almost midnight. I wanted to stop by and say good night to your family. I love you. Love and Hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Monday, July 28, 2003 1:59 AM CDT  Hi friends! I am praying for you. I hope your family is doing well. Having a great Sunday I hope. I will be back in to see you soon. Love and Hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Sunday, July 27, 2003 8:11 PM CDT  Dear Prayer Family, Hi it is almost the end of July and I wanted to pop in and say hello from Jessica's Prayer Page. I pray for you every single day and every month you will be recieving a special picture and notice in your guestbook from me. God bless you. I love you. Love and hugs, Jessica http://www.geocities.com/barbiegirljessica2003/pray.html Come visit Jessica's Prayer Page and sign my guestbook sometime please :) Jessica <barbiegirljessica@netzero.com > - Saturday, July 26, 2003 10:20 PM CDT Savvas and Marianna, We just wanted to let you know that you were thought of today, and that we continue to keep you in our prayers. God bless you both. Peace, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Saturday, July 26, 2003 9:34 PM CDT Praying for peace and comfort for you today and in the days ahead. Thank you for sharing your precious children's journey with us. We care... Love & hugs, Hendrick Motorsports Prayer Warriors John and Bonnie Curran <bjcurran@earthlink.net> Concord, NC - Saturday, July 26, 2003 7:09 AM CDT I just wanted to say hi and that I think of you guys often. Sending you hugs! please tell your mom hi for me! Love, Ellen Bowman Andrew's Mom www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> Sweet Home Alabama!, - Tuesday, July 22, 2003 11:19 PM CDT Hi Marianna and Savvas, It was wonderful to hear back from you. I miss you both so much. I think about you everyday and I hope that things are getting more peaceful for you. I am in Boston researching cancer, and I would not be surprised if I end up dedicating my life to kids with cancer. You have made such a huge impact on me and my future. I miss you and love you lots. I'll keep in touch. Love and hugs, Whitney Whitney <jwl7@duke.edu> Boston, MA - Tuesday, July 22, 2003 5:43 PM CDT we have been going through extremely difficult times with ignacio, but have not stopped thinking about you. he is still at the PICU, but hopefully tomorrow they will extubate him. we are waiting for some results that could give the doctors a light to why his protein is so high, and praying that he does not have brain damage. please read his web site, maybe you could help us with information. i always keep you in our prayers. love, denise denise <titicpa@yahoo.com> - Monday, July 21, 2003 12:02 AM CDT Thinking of your and your family often.... I was so glad to read that your sweet angles are now and forever side by side with no pain. Praying that you find smiles and peace instead of tears when you think of your sons. All the best to your family. Robin Tucker <rtucker@hmsracing.com> - Monday, July 21, 2003 11:29 AM CDT Marianna, it was AWESOME to hear from you! I am glad that you updated us on how you and Savvas are doing! I think of you and your boys often.. You may never know the impact your family had on me! With love Latane Grove <lataneh@bellsouth.net> Charlotte, NC - Sunday, July 20, 2003 6:12 PM CDT Hey Marianna & Savvas,  It was so nice to hear from you..I am glad that precious Angel Hermes & Angel Aristofanes are both resting next to each other..they will always have each other forever and they will both have a playmate up in Heaven along with all the other angels.. you are both always in my thoughts and prayers...keep strong! *~Girlie's Page~* *~Janice's Page~* Lots of love, XOXOXOXO Janice Melbourne, Australia - Sunday, July 20, 2003 12:05 AM CDT  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Saturday, July 19, 2003 5:14 PM CDT Marianna and Savaas, I am relieved to hear you are safely back in Greece. I'm sure it was a long, tiring, and sad trip. I have no words to describe the months that I spent with you and your boys. My heart is shattered and I grieve everyday. After meeting you for the first time that night in 5200, you and your boys quickly became my other family. I miss you, and love you. Not a day goes by when I don't think about you and the wonderful times we spent together. So many tears have been shed. Hopefully I will see you in Greece soon. Love, Whitney Whitney <jwl7@duke.edu> Boston, MA - Friday, July 18, 2003 10:01 AM CDT  Hi and how are you today? I am doing good. I just got off work. I am going to go to wet n wild. It is very hot out. I have not gotten the results from the blood test yet. I will let you know the results when I get them. I am praying for you just like always. Love and hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com > - Thursday, July 17, 2003 6:04 PM CDT Thinking of you family and hope you are finding peace. Robin Tucker <rtucker@hmsracing.com> - Thursday, July 17, 2003 2:05 PM CDT  This koala bear and I wanted to come in and say good night to you. We hope you are able to sleep well. We are praying for you every single day. I love you. Love and hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com > - Thursday, July 17, 2003 1:27 AM CDT My greatest sympathies to you and your family in the loss of your little boys. I pray for you all. Kristi Watertown, WI USA - Wednesday, July 16, 2003 7:21 PM CDT I continue to think of you all often and pray that you all are doing better...I know you will not be fine or okay for a long time. I can only imagine your sorrow and pain. I pray that time makes it easier. May you all find peace. Martha White <MWhite6@charter.net> Princeton, WV - Wednesday, July 16, 2003 10:32 AM CDT I just wanted to say hello and let you all know how much I am thinking about you. MY heart aches for your family. I can not begin to imagine you lonliness. Your boys were wonderful and truly a joy to take care of. I'll never forget them! Jennifer Hungate Durham, NC - Wednesday, July 16, 2003 9:58 AM CDT Just wanted to stop by and say hi and let you know that you are thought of and prayed for daily. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Tuesday, July 15, 2003 10:31 PM CDT Hey Marianna & Savvas, I'm glad you are both now home in Greece safe and sound. Please know that you are all very much still in my thoughts and prayers...keep strong! Girlie's Page Janice's Page Hugs & kisses always, XOXOXOXO Janice Melbourne, Australia - Tuesday, July 15, 2003 10:46 AM CDT  Hi I am just doing my evening rounds of signing guestbooks. Did you know I sign about ten guestbooks a day now? But I still keep up on you huh? That is because I love you very much. Have a GREAT NIGHT! love and hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com> - Tuesday, July 15, 2003 2:18 AM CDT I am praying for your families pain.Your children are beautiful. What wonderful parents you must be, to have two wonderful children .Praying as I type, a Christian friend, Bonnie P. St.Louis,mo BONNIE PRINCE <BJPRINCE2> WILDWOOD , MO USA - Tuesday, July 15, 2003 0:08 AM CDT  I love you a bushel and a peck and a peck and a bushel. I hope you have a good day. I am praying for you. Love and hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com> - Monday, July 14, 2003 10:22 PM CDT Savvas and Marianna, You seldom leave my thoughts. I have two baby boys as well. As I watch them my mind frequently drifts to you - that's when I hold them a little longer and hug them a little tighter. Again, I am so very sorry for your loss. I see the guest book entries 'slowing down' a bit -- I think that it's just hard for people to know what to say. Your family is in the hearts, thoughts and prayers of MANY. Most of the sites that I visit have your family on their continued prayer list. I wish there was something I could offer to ease your grief, but that day will be offered by God when your family rejoices together in heaven! I just wanted you to know I'm thinking about you and your family. God Bless. Michelle Strayer Nolan Ramsey's Site The Colony, TX USA - Monday, July 14, 2003 3:26 PM CDT Just wanted you to know that I am thinking of you during the days ahead. I hope you are finding peace in there memories. Robin Tucker <rtucker@hmsracing.com> - Monday, July 14, 2003 10:43 AM CDT  I have been thinking about you. I am listening to a funny movie right now. It is an old movie with Michael Keaton the name of it is Mr.Mom it is so funny. You should watch it sometime. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Sunday, July 13, 2003 8:32 PM CDT Hello, I have been thinking about you alot lately. I hope you are both doing well. I will keep checking your website to see how things are going. Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Sunday, July 13, 2003 2:08 PM CDT  Hi . I love you and wanted to say goodnight, sleep tight, and dont let the bed bugs bite. I will talk to you tomorrow. I also wanted to let you know if you or your friends signed my guestbook my yahoo one it is deleted cause it was taking away some of the messages. So now I have a bravenet one. Please sign it. www.geocities.com/barbiegirljessica2003 love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Sunday, July 13, 2003 2:48 AM CDT Hi...we don't have words to express our sorrow at your loss. We only know the purity of your love for your children,for that is something we share with you. Love is unboundable.. We wish you peace and the strength to never forget but also the strength to keep on. Neal & Maria Fuller <nf@peoplepc.com> Duvall, WA 98019 - Saturday, July 12, 2003 3:52 PM CDT  Your family is very special. I love you all very much. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Friday, July 11, 2003 11:13 PM CDT Savvas and Marianna, I cant come up with the words to express my sorrow. My heart broke into a thousand pieces when I was told about Hermes. He and Aristophanes are VERY special little boys and everyone who met them fell in love! There is one thing that I know for sure and that is that your boys were blessed with two amazing parents who showered them with love and affection every minute of their lives. I want you to know that I think of you often and pray for you daily. Marianna, please tell your mother that I pray for her also. Thank you for the pictures of Hermes, I will treasure them always. Jennifer Walker RN 5200 <d1walker@bellsouth.net> Raleigh, NC USA - Friday, July 11, 2003 9:11 PM CDT Savvas and Marianna, We think of you both often, remembering how special you are and how your family has truly touched our lives. God's blessings to you both, we will continue to keep you in our prayers. Peace, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Friday, July 11, 2003 8:50 PM CDT  Hi I pray for you every day. I know it will probably take you awhile to update on yourself and that is ok. We do not need an update we all understand what you are going through. I love you very much. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Friday, July 11, 2003 2:52 PM CDT You family continues to be in our thoughts and prayers. I hope your finding some peace during this difficult time. Your boys are beautiful! Lisa and Lindsey <www.caringbridge.org/va/lindsey> Va beach, Va Usa - Friday, July 11, 2003 11:50 AM CDT  *HUGS* AUSTRALIA - Friday, July 11, 2003 9:18 AM CDT Just wanted you to know that I was thinking of your family during this difficult time and wishing you peace. God Bless.. Robin Tucker <rtucker@hmsracing.com> - Friday, July 11, 2003 9:13 AM CDT Hi am so sorry to hear of your loss. I have a grandson with Leukemia and know what you have gone through. My prayers are with you. Sandy <tx-sandy60@yahoo.com> Live Oak, TX USA - Friday, July 11, 2003 8:24 AM CDT  Hi I wanted to say good night so here is a hug comming from me to you. You are very special to me. Take care and I will be back on your guestbook tomorrow. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Friday, July 11, 2003 1:54 AM CDT I found your site through Alex's. I just stopped by to say that my heart and sympathy go out to your family. May Angels lift up your family and heal your broken hearts.I will keep you in my thoughts & prayers. Amanda <mrlynr1110@aol.com> - Thursday, July 10, 2003 11:19 PM CDT Hello to both of you, I hope you're doing well, or least as well as you can be considering all you've been through. Please know that you're still thought of often; we're all hoping to hear from you soon. Love, Pat in California pat <patricia.manning@comcast.net> antioch, ca usa - Thursday, July 10, 2003 10:39 PM CDT  Hi and how are you doing today? I am doing great. It is very hot out today. I hope you have a great day. I will talk to you later. How is the weather were you live? Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Thursday, July 10, 2003 6:28 PM CDT Hi I just wanted to stop by and say were still thinking of you and your precouis boys. I know it must be very hard to back home and not see your boys but remember they are in gods arms watching over you. God bless you sally <sally_torres@lusknet.com> - Thursday, July 10, 2003 5:04 PM CDT I just found out about your web page today. We want you to know we are thinking about you and praying for you to have strength in dealing with this very difficult time. We have had many scares with our Madison these past 2 years, but I can't imagine what you must be going through. I wish I knew what to say that might be helpful in some way, but I don't. Just know we love you and will continue to pray for you and your family. Sincerely, Marian and Mike Mitchem Princess Madi's Family <mitchem@wwdb.org www.caringbridge.org/nc/princessmadison> Lake Elsinore, CA - Thursday, July 10, 2003 2:23 PM CDT  Good evening I wanted to tell you about a great thing that happened to me today. Yes you heard me right a great thing actually happened to me. Tonight after work my momma and I went to her boyfriend Ron's house and we took Ron and his daughter Mandy to the San Remo Casino for dinner. I had a dollar in my pocket and wanted to play it on the price is right machine. I know the whole time my mom was thinking I wasted the dollar. Well God spoke to me and he said to use that dollar so I did and I won $179 from that one dollar! Of course I cashed out then we went to eat. Also tomorrow my momma and I are going with Ron to california cause he knows an owner of a car dealership out there and he is going to work there and try to get my mom in so we might be moving in the next six months! My job will transfer me because there are Albertsons in California and plus the car dealership is by Disney Land! Doesn't that sound great. I am so happy right now I am doing flips in my heart and stomach. Thank you God for praying for me and for letting something good happen in my life! Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Thursday, July 10, 2003 3:28 AM CDT Word of God Speak Words and music by Bart Millard and Peter Kipley © 2002 Simpleville Music (ASCAP)/Songs from the Indigo Room/Wordspring Music (SESAC). Administered by Fun Attic Music. All rights reserved. Used by permission. I'm finding myself at a loss for words And the funny thing is it's OK The last thing I need is to be heard But to hear what You would say Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness Word of God speak I'm finding myself in the midst of You Beyond the music, beyond the noise All that I need is to be with You And in the quiet hear Your voice Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness Word of God speak Would You pour down like rain Washing my eyes to see Your majesty To be still and know That You're in this place Please let me stay and rest In Your holiness I'm finding myself at a loss for words And the funny thing is it’s OK Michael Davis <michael_r_davis@sbcglobal.net> Dallas, TX - Wednesday, July 9, 2003 3:23 PM CDT  Good morning! I hope you have a great day. This picture I am sharing with you today is very true. We are all different and unique! We all have a problem doing something noone is perfect. I love you very much and hope you have a tiggerific day. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Wednesday, July 9, 2003 1:17 PM CDT Just wanted to let you know we are all thinking of you. I hope the trip back wasn't very tiring even though the circumstances are tragic. We all love you and miss you. We met in a strange way but we feel very close to you. Take care and if you feel like writing I'll be very happy to hear from you. Polla filakia Giovanna Giovanna <g_koukoulis@yahoo.com> Chapel Hill, NC USA - Wednesday, July 9, 2003 10:41 AM CDT  Hello I just wanted to say good night. Try to sleep well ok? I am praying for you and I love you very much. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Wednesday, July 9, 2003 1:37 AM CDT  Hi I am praying with you and are here for you if you ever want to talk. love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Tuesday, July 8, 2003 10:03 PM CDT Marianna and Savvas, Our thoughts and prayers have been with you and your sons during this most difficult time. We learned of Hermes and Aristophanes through Alex's Website. Our family has prayed for them and for you. We knew of Aristophanes' passing and just learned of Hermes. We cannot imagine what you are feeling but pray that God will give you the strength to carry on. Today is the first time I found your website and learned that you are from Lamia. My grandparents were born in villages near Lamia ... Please know we are thinking of you always and your precious sons at peace with our Lord and Saviour. May their memory be eternal! Paulette and family Paulette <paulette@probus-exec.com> Los Altos, CA., CA USA - Tuesday, July 8, 2003 2:57 PM CDT  Hi I love you. I hope you have a hippity hoppity nice day. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Tuesday, July 8, 2003 11:13 AM CDT I am so sorry for your loss. My thoughts and prayers are with your family. May God give you the comfort and strength you need during this time. Rebekah <mommy2niknethan@aol.com> PA USA - Tuesday, July 8, 2003 7:27 AM CDT  Hiya I just wanted to say sweet dreams. I am very tired it is 12:37 in the morning here. Tomorrow I have off work which is Tuesday and I will go to wet n wild but I will post in your guestbook before I go and when I come back. I love you very much. Good night Sleep tight and Do Not let those bed bugs bite ok? Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com www.geocities.com/barbiegirljessica2003> - Tuesday, July 8, 2003 2:39 AM CDT I am so glad you're back home safely. May God give you strength and courage through these trying times. Our prayers are with you. Lori Eschler <Yodiday@adelphia.net> Colorado Springs, CO USA - Tuesday, July 8, 2003 0:04 AM CDT  I just wanted to let you know that I am praying for you, I love you, and that you are very special. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Monday, July 7, 2003 9:50 PM CDT Dear Marianna and Savvas, I want to let you know you are always in my thoughts and in my heart. You are such great people. I miss seeng you. I hope our paths will meet again. Please send my thoughts to Marianna's Mum, angelica. She touched me with her strength and grace. Peace. Helen Carawan <hlncarawan@netscape.net> Raleigh, NC USA - Monday, July 7, 2003 8:32 PM CDT I am truly sorry for your loss. Just wanted to let you know our family is saying a prayer for you and your loved ones. I had a friend who lost her 15 month old son to AML last year. Now she is the Martini's new neighbor in Seattle. It truly is a small world. Peace be with you during this time of deep sorrow. Susan Miller <swmiller@columbus.rr.com> Dublin, OH USA - Monday, July 7, 2003 6:26 PM CDT I am so heartbroken that you have lost those two beautiful boys. I cannot imagine the unbearable pain that you must endure. There are no words to express the sorrow that I feel for you and the terrible trauma that you have been through in the last few months. The bright spot is your memories of their lives, especially those 40 days before the transplants. The memories will last forever. Take care and I hope that your pain will lessen and you will experience happiness again in the future. Barbara Barbara Vanigli <barbara_vanigli@yahoo.com> Dallas, TX USA - Monday, July 7, 2003 4:52 PM CDT  Good morning. I know Duke will always be apart of your life and your journey to America will be too. I am so sorry you had to end that journey by going home without either of your boys. I know it is hard to lose one child but to lose both of your children I can not even begin to imagine what you guys are going through. All I can do is offer support and I will continue to do that. I am very happy Alex's mom shared your story in Alex's guestbook. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Monday, July 7, 2003 1:49 PM CDT Our thoughts & prayers are with you. We are so sorry to hear of the loss of your precious children. May God heal your hearts in time. BPL & Family Cleveland, OH USA - Monday, July 7, 2003 11:49 AM CDT Dear precious family...I recently lost my son to leukemia and cannot begin to fathom your pain and loss...it is a difficult journey, one we would never ask to go on nor desire to have to live through...but we must. God be bless you all as you find courage and strength to journey on. Sincerely, Kathy Charlton Kathy Charlton <katherino1@aol.com> West Palm Beach , FL USA - Monday, July 7, 2003 10:09 AM CDT I am so sorry about the loss of both of your gorgeous. precious little boys. I cried when I ready your journal entries and I saw the pictures of the children. No parent should ever have to go through the pain you are feeling now. Cherish the moments you had, the memories and be proud that you and the boys fought so valiantly against this awful disease. Jenelle Houston, Texas - Monday, July 7, 2003 8:48 AM CDT Continued thoughts and prayers for you during this most difficult time. Love, Lisa Post <ltjpost@cox.net> South Windsor, CT - Monday, July 7, 2003 7:30 AM CDT Marianna, Glad to hear you made a safe trip home. I am truly sorry about your loss. May God heal your pain. In my prayers. Michelle Zammat <whisperpur@yahoo.com> Belcamp, MD USA - Monday, July 7, 2003 7:04 AM CDT  www.geocities.com/barbiegirljessica2003/pray.html is a new page i made. all my friends i pray for are on it and i am on it too. please check it out and pray for us. god bless you! love and hugs, Jessica Jessica <barbiegirljessica@netzero.com > - Sunday, July 6, 2003 9:10 PM CDT Thinking of you and continuing to pray for comfort and strength for you and your family. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Sunday, July 6, 2003 8:10 PM CDT It is devastating to hear any news such as what your family is going through. You and your family are in my thoughts and prayers. There is a belief that we choose our parents before we come into this world. Your boys must have chosen you for your strength and love and your inner ability to get through these very hard times. They will always be with you. Christi - Sunday, July 6, 2003 7:00 PM CDT Please know you are in my thoughts and prayers. I lost my 4yr. old daughter to leukemia after 2 transplants. I pray that God will comfort you. God Bless you both. Larissa Brewton <larissa@taylorsangels.org> Frisco, TX USA - Sunday, July 6, 2003 6:58 PM CDT  Good afternoon. I just got home from work. I wanted to let you know I am going to make a prayer request page today and add you to it. I will send you the address to it in your guestbook when I am done making it. I love you. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Sunday, July 6, 2003 6:34 PM CDT  I love you. I am praying for you very hard today. I hope you have a nice day and remember you are in my thoughts and prayers every single day. Love and Hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Sunday, July 6, 2003 12:04 AM CDT  Dear Savvas and Marianna, I am happy to hear you are back in Greece and still able to reach us on the internet. I am praying for the both of you daily and I know how much you miss your two little boys. They are not sick or in pain anymore but now your family is in pain and that is very sad. I will keep checking in on you both. Love and hugs, Jessica Jessica <barbiegirljessica@netzero.com> - Sunday, July 6, 2003 2:22 AM CDT There are no words that will ease your sorrow, I know, but I will be praying for God's "peace that passes understanding" for you. Your two beautiful boys have touched a lot of lives. God bless you in your future. Staci Talento <stacitee@yahoo.com> Keizer, OR 97303 - Saturday, July 5, 2003 11:12 PM CDT Oh my dears, I wish I were there to give you both giant, huge hugs... Your precious darlings are with you and watching over you as they rejoice with God, it is for YOUR broken hearts for which I pray. I hold you close in my heart and send you tremendous LOVE and caring ~ Julie South Orange County, CA USA - Saturday, July 5, 2003 10:14 PM CDT I have followed your journey through a link from another website and am deeply saddened by your chilrdren's passing. No parent should have to feel the pain of losing one's child - much less both children. I have cried for you and your family. What beautiful children. My prayers will continue for your family. God Bless. Kristy Columbia, SC USA - Saturday, July 5, 2003 9:23 PM CDT God Bless you and keep you: May His light shine upon you and give you peace. Your two little Angels have a Special Place in Heaven. Your in my prayers Love Linda Linda <grammee@tbaytel.net> Thunder Bay, Ontario Canada - Saturday, July 5, 2003 6:02 PM CDT  Kristal Dickson <kdickson39@aol.com> Wilmer, Al USA - Saturday, July 5, 2003 4:33 PM CDT I read of your loss on Alex's web page. I cry for you both. I pray that God can touch your hearts and heal the holes that your little ones being gone have made. CoralLee Humphrey <corallee@ANTLERVISION.COM> Winnetka, CA USA - Saturday, July 5, 2003 1:27 PM CDT Savvas and Marianna: I just read of your loss on Alex's page. I cannot tell you how terribly sorry I am and how my heart breaks for you. How I wish you had returned home to a long and happy life with Hermes and Aristophanis. My son, Loren, has Hurler Syndrome and went through two bone marrow transplants. By God's grace, and only His, Loren is still alive and the second transplant fully engrafted after more than a year. We nearly lost him so many times before he was fully engrafted, especially shortly after his birth, but even with those close calls, I cannot begin to imagine your heartache. I know that it's very little comfort now, but I know that both boys are eternally at rest and peace with Jesus now. While I can't begin to understand why God let's these things happen, I do know that your actions in trying to save your children were right. I know for a certainty that God does not punish those who, in good faith and believing in Him, embark on a course of action they feel led to follow. He did not take your children home because He felt you were fighting against His will. I think you acted in accordance with His will. I believe with all my heart that both Aristophanis and Hermes were here to give you both the love they gave you; they were also here to teach all of the rest of us what true love and life are really about. The people who prayed and cried with you are closer to God than they ever would have been if Aristophanis and Hermes were not here to help them grow closer to God. I fully believe that they accomplished their mission on earth and were given the joy and rest with Jesus in heaven that they both deserved. Some day, you will all be reunited in Jesus. This, I know, is such very little comfort right now and God knows I wish I coud say or do something to ease your pain, but all I know how to do is pray. So, I pray that the Lord will quickly and swiftly hear this: "Almighty God and Father, You showed Your immeasurable love for us in that You gave Your only Son, Our Lord, Savior and Friend, Jesus Christ, to die on a cross so that we would be able to enter Your presence when we too leave our earthly bodies. Father, You know the pain Savvas and Marianna feel because you lost Your only Son on the cross. Enter into their spirits even now and grant the the peace that comes from the knowledge that both Hermes and Aristophanis are in their true home in heaven with You and will be at peace eternally. Heal them both swiftly so the memories of both children bring smiles to their faces and joy to their hearts. Remind them constantly of the great peace and joy both children now have, which, after all, is the one thing all parents wish for their children. Let them know, just as your servant David knew, that one day they will be reunited in great joy with Aristophanis and Hermes. I ask this, and by Your promise know it will be done, in the name of Jesus Christ, Your Son and our Savior. Amen." I can offer you nothing except the love and prayers of my family and those I offer freely. Jim, Kim, Patrick, Patricia and Loren McClelland <jkm@crystalisland.com> Benton, LA USA - Saturday, July 5, 2003 1:07 PM CDT I am so sorry to hear of the loss of your precious son. You must be devastated and heartbroken. Its a shame, all these little ones with cancer. Please know many people are thinking of you, even if we dont know you. Chris ~ Gooch's Site ~ - Saturday, July 5, 2003 9:59 AM CDT I just heard the news about Hermes. I am soo sorry for all that you have gone through. You and your family brought so many smiles on our unit. I will always remember you and your kindness. I am sorry that I was not able to see you before you left for Greece, but I know that you are relieved to be at home finally. Will be praying for you and your family. God bless you, Marriana and Savvas Nurse Jen Biggerstaff <Jenbiggerstaff@yahoo.com> 5200, NC USA - Saturday, July 5, 2003 2:18 AM CDT Our prayers and thoughts are with you today and in the future.God will grant you the strength you need to deal with this terrible time. We will pray for you. Sincerely John & Diane McClure (Bella's grandparents) Diane mcclure St.Albert, AB Canada - Friday, July 4, 2003 11:23 PM CDT Glukeia mou Mariavva kai kale mou Sabba, Parakolou8oume me kommevn avasa to taxidi sas s'autn tn zwn. Duskolo...Me ti axioprepeia proxwreite omws... Stelvoume tnv agapn mas stov Ermouln kai tov Aristofavn ka8nmeriva, stis proseuxes mas. Eimaste sigouroi pws eivai polu pernfavoi gia 'sas opws eimaste oloi mas. Xeroume pws oi epomeves meres 8a eivai duskoles. Mas avapauei to gegovos oti oi oikogeveies sas 8a eivai kovta sas. 8a eiste pavta stis kardies mas... Filia, Eleni Ts. & George Houston, TX USA - Friday, July 4, 2003 10:07 PM CDT Marianna & Savvas, You've been in my thoughts, and I'm glad you let us all know that you made it home safely. Please remember to take care of yourselves; also know that many of your friends from all over the world will be with you in spirit on Saturday. I am lighting a candle in honor of Hermes & Aristofanes. Love, Pat pat <patricia.manning@comcast.net> antioch, ca usa - Friday, July 4, 2003 10:12 AM CDT Marianne and Savvas, I have been at a loss for words, you and your family made a huge impression on me. I think of you all often and hope that you know that even though your best days weren't spent on 5200 you are loved there very much! Your boys brought smiles to me and so did you all! I hope for a safe return to Greece and pray for you constantly! With love and prayers Latane <lataneh@bellsouth.net> 5200, - Thursday, July 3, 2003 9:06 PM CDT I will continue to pray for strength and healing for you in the days to come, as you try to pick up the pieces of your lives and go on. Brandon Rogers USA - Thursday, July 3, 2003 7:50 PM CDT hope you had a safe trip back home. we pray every day for God to give you the strength you need each and every day. i miss seeing you, please say hello to Angelica. love, denise perez-albert <titicpa@yahoo.com> - Thursday, July 3, 2003 2:26 PM CDT Hoping that you've arrived home in Greece safely. Praying for much strength and comfort for each day. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Thursday, July 3, 2003 0:55 AM CDT Marianna and Savvas, I wish you safe journeys on your travels back to Greece, and in your future. I have missed Hermes and you both at the hospital; it is still painful to walk into the PICU. I hope that we will meet again someday under happier cirumstances. You are in my heart - I miss you all and wish you peace and hope! I will be in touch. Cathron PT <cathronsam@yahoo.com> Durham, NC USA - Wednesday, July 2, 2003 9:09 PM CDT Savvas and Marianna, I am sorry that I did not get to see you before you left. I wanted to thank you again for the picture of me and Hermes, I will always treasure it. I am happy that I got to spend time with your boys while they were at Duke. I am sorry for your loss. Your whole family is in my thoughts and prayers during this difficult time. Jessica Fox, Child Life Intern Durham, NC - Wednesday, July 2, 2003 8:51 PM CDT So very sorry at the loss of your two boys. My thoughts and prayers are with you during this sad time. Amy Advance, NC - Wednesday, July 2, 2003 8:19 PM CDT I received your website from Shawn Coble, Reece Coble's mother, please know that we are praying for you and thinking of you daily...I will not pretend that I know what you are going through, but please know that my thoughts are there and will continue to be.....Please be safe and take care of each other.....Always, Kim & Halee Coe <kcoe_1999@yahoo.com> Mt. Airy, NC USA - Wednesday, July 2, 2003 7:08 PM CDT Marianna kai Sava Anarotieme alithia pos tha mporouse kanis afti tin ora na apalini ton pono sas ,ti na pi horis na gini kinotipos,horis na akousti gelios Dio pedakia pou den eftegan se tipota efigan.Giati afta sigekrimena; Isos gia na mi zousan sto melon kati hirotero Isos gia na dokimasoun to megethos tis agapis ke tis aftaparnisis sas. Isos giati o theos ta agapouse perisotero ke ta ithele konta tou. Isos apla ke mono gia na vrethoun stin agalia ton papou- don pou den prolavan na gnorisoun. Isos,isos.... Ganjothite apo oti nomizete litrotiko afti tin ora min ipologizontas tipota. doste aplohera agapi opou hriazete ke dehthite ana pasa stigmi afti pou sas prosferete apo olous mas ke o hronos, o monos simahos sas afti ti stigmi ektos apo ti sibarasta- si mas tha sas antamipsi. Prospathiste na kanete mia nea arhi opou ke opos borite ke ta ageloudia sas apo psila tha ine panta dipla sas harou- mena ke hamogelasta giati kanate tosa gia afta ke giati o kosmos eki psila mono hara ke agaliasi ,lene,prosferi. To spiti mas sto Marathona dipla sti thalasa ine enas horos oudeteros gia sas.Sas perimeni an nomizete oti esto ke sto elahisto bori na sas voithisi sti diskoli ora tis epistrofis Na kserete ,imaste sinehia dipla sas. Haris Haris Rondogianni <foivi@hol.gr> Athens , Greece - Wednesday, July 2, 2003 3:16 PM CDT Praying you have a safe trip home and for the strength to deal with the days ahead. God Bless Kathy <kmayo42@aol.com> Whitehall, OH - Wednesday, July 2, 2003 11:45 AM CDT Dear Savvas & Marianna, Have a safe trip home, and never forget that you did all that you could possibly do for your 2 little ones. They will always remain in your heart. Let your friends and family in Greece take care of you now; you've been through so much and are very in need of some of the same tender, loving care you gave to the boys. Love from California, PAT Pat <patricia.manning@comcast.net> antioch, ca usa - Wednesday, July 2, 2003 9:09 AM CDT lypamai pou den gnvriza thn yparjh toy site,gia na sas gracv nvritera.eima h adelfh ths lias h katerina,geia sas paidia. apo thn arxh toy agvna sas den perase mera na mhn sas skeftv kai proseyxomoyn ola na pane kala!mauaina kaue mera ta nea sas apo ta paidia....dyskola perigrafeis me logia ayta poy nivueis....nivuv oti ponaw toso poly gia thn tromerh ayth adikia kai fysika kaneis den mporei na fantastei,an den exei eruei sth uesh sas,ton diko sas pono....den uelv na sa koyrasv,apla ayto uelv na sas eyxhuv :na eiste kala,envmenoi opvs eisastan se ayton ton sklhro agvna poy dvsate,etsi na synexisete kai ston agvna toy na breite to" koyragio"!eyxomai kapoia stigmh to xamogelo tvn paidivn sas, poy ua meinei panta sthn mnhmh sas, na fairei to xamogelo kai sta dika sas xeilh! kalh epistrofh sthn patrida. ua ta poyme kai apo konta. me agaph. katerina KATERINA KONTOPIDH <FRO@.DAVOS.GR> PETROYPOLH, GREECE - Wednesday, July 2, 2003 8:49 AM CDT May peace and God's love and strength comfort you through this awful time......this is and has been a hard journey. Safe trip home. E.B. - Wednesday, July 2, 2003 8:41 AM CDT I hope you had a safe trip home. I also hope that you both can make it through this hard time together with the help of friends and family. many comforting thoughts Victoria <www.caringbridge.org/mn/gabesjourney> Mpls, Mn - Wednesday, July 2, 2003 7:57 AM CDT Dear Family-You do not know me, but I've been keeping up with you through Nancy Ramsey. I am deeply sorry for your loss. Words cannot convey a feeling of a hug, I hope many people are around you to hold you and uplift you. I pray that you can rest in the arms of Jesus and be comforted. I'm not very good at this-please know that I will be praying for you. Thank you for sharing your sons with us and sharing your journey with us. Holly Strickland Holly Strickland <hoddyg@ev1.net> Katy, Tx - Wednesday, July 2, 2003 7:54 AM CDT Dear Marriannna and Savva, We are trying to write you in English although we cannot find easily even the Greek words. We follow all your messages which speak directly to our hearts. We knew well your sons,especially Hermes, who were really so sweet. Unfortunately they were both unlucky. You did whatever you could do spending all your physical and inward forces to provide them a better future. It is impressing to hear how many peaple have helped you, another world which is full of love and humanity. Nobody can understand why your dream that we all shared was not realized. In the same way we cannot understand why all children in Vethleem were slaughtered by Herodes who thought that in this way he would kill Jesus, the future king. Why God has taken these children?? But He has taken them with Him, they have become anglels and they are happy for ever. We beleive, more than any other time, that this is really the bitter-sweet answer. Marrianna and Savva, in few hours we expect you back in Greece to give you our love, a small percentage of that which unknow people have given you in USA. Good luck in the future. Athanassios Kontos <akontos@central.ntua.gr> Athens, Greece - Wednesday, July 2, 2003 6:01 AM CDT Marianna, I am the grandmother of a BMT baby and reading your updates as you thank all those you got to know makes me realize what a generours and caring person you are and how much love you must have given your boys. Only through that love did you come here in the hopes of a better and longer life for your boys. Your testimony in your brief time on caring bridge will be felt in years to come for those people you touched.Bless you and Savvas for sharing and touching all of us with your amazing glory and dignity, which will be your gift to your precious boys. Jackie Teichmann <Jackie@padrefoundation.org> Huntington Beach, Ca USA - Wednesday, July 2, 2003 2:21 AM CDT Dear Savvas & Marianna, You are both always in my thoughts and prayers..keep strong...your special guardian angels are ALWAYS watching over you.. Girlie's Page Janice's Page All my love, XOXOXOXO Janice Melbourne, Australia - Wednesday, July 2, 2003 1:14 AM CDT I am reading your journal entries late this evening. A friend of my son's received a bone marrow transplant in January. His name is Carson Arthur. His mother requested prayers for your family. I cried as I read your entries. Your pain must be unbearable. We have two small boys and I pray their memories and support of family and friends will see you through the days and months ahead. Your children will suffer no longer and they will surely be angels in heaven. God Bless and take one day at a time. I will be praying for you tonite. ---Ruby Ricks Ruby Ricks <rubyricks@charter.net> Roanoke Rapids, NC USA - Wednesday, July 2, 2003 0:08 AM CDT We will be praying for you as you return home. God has special blessing to pour out on you and comfort you. He can heal your hearts. We will never forget you and your sweet boys. Love, The Ramsey's Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey) - Tuesday, July 1, 2003 10:37 PM CDT Praying for a safe trip back to Greece. May God grant you the strength you need to face each new day. The grief must be unbearable, be patient with each other, and take each day moment by moment. I will continue to lift your family up in prayer, asking that God give you peace and comfort during this difficult time. Debbie Nagy St. Louis, MO - Tuesday, July 1, 2003 9:43 PM CDT I have been touched by the story of your boys. I was deeply affected by their passing. I can't even begin to imagine or understand the pain you are going through. They say time will help. Only you will be able to know if that is true. I hope you and your husband have a safe journey back to Greece. My only wish is for you to continue on with your lives, and try to enjoy them them best that you can. I truly believe that is what your boys would want you to do. Your family will never be out of my mind. Elaine Killian's Page <greenimpishgrin@aol.com> Micanopy, FL USA - Tuesday, July 1, 2003 9:07 PM CDT My Dear Marianna and Savvos, Hi! This is Helen, the pheresis Tech. I am so saddened by Hermes passing. Words cannot touch how sad and sorry I am for your loss. I would do anything to change your past. Though I cannot. You both are such wonderful people. I will never forget you, nor Hermes nor Aristophenis, though I never met your boys. They will live in my heart forever. Tears are running down my face now. I wish you strength and peace. I am lucky to have met you both, you have made me a better person because you have touched my life. I will miss you. Lve, Helen Helen Carawan <hlncarawan@netscape.net> Raleigh, NC USA - Tuesday, July 1, 2003 8:16 PM CDT Hug, kisses and prayers!! We'll keep in touch! Holding you and your family close to our hearts! Love, Ellen www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> - Tuesday, July 1, 2003 7:36 PM CDT May God grant you peace. Martha White <MWhite6@charter.net> Princeton, WV - Tuesday, July 1, 2003 7:23 PM CDT " Ena pedi kimate.Oli tin imera eklapse.Alla tora hamogelai , kathos i Megali Arktos tou glifi me ti hrisafia tis glossa to xeskepasto podi tou " Kanenas logos, kamia lexi, mono i mirodia twn aggelwn. Eginan 2 perissoteri, gia na mas evodiazoun ke i mana , anavike ton Golgotha ke agiase. Ke o pateras kratise oli ti gi sta heria tou ke antexe. Oli emis i gonis, imaste perifani gia sas,gia ton agona sas ke tora pia ta pedia mas, ine ke dika sas pedia , afou ta aggeloudia sas pleon, prostatevoun ta dika mas. Giorgos & Aggeliki Koniaris <aggeo@ath.forthnet.gr> Athens, Hellas - Tuesday, July 1, 2003 3:49 PM CDT Sorry to hear of your loss. My heart breaks for you. May God comfort you today and everyday. He will give you grace to make it through each day. Just look to God for your everyneed, He will fulfill it. You are in my prayers. Becky Willard <beckyjean6080@aol.com> Mocksville, NC USA - Tuesday, July 1, 2003 1:36 PM CDT Savvas and Marianna, My thoughts and prayers are with you. I want to wish you a safe flight home. I know it must be a mixed blessing to be going home. I very much enjoyed taking care you and the children during your stay on 5200. I only wish that things had turned out differently. They say that the lord has a reason for everything. It would just be so much easier to accept that if we received a magazine with all of the reasons in it daily, but I guess we just have to wait until we met him. If there is anything I can do for you just let me know. With love. Emily Baker RN <EmilyJ910@aol.com> Raleigh, NC - Tuesday, July 1, 2003 11:30 AM CDT God bless you! I know your children are in very good hands, but I wish you could have had them in yours a little longer. Prayers will follow you wherever you are in this great big world that seems to be getting smaller and smaller by the minute. Peace, Sara - Tuesday, July 1, 2003 11:17 AM CDT I am so sorry for your terrible loss. May Their Memory Be Eternal. Plato Alexander <platojohn@yahoo.com> Durham, NC - Tuesday, July 1, 2003 10:39 AM CDT I'm sorry for you loss. My thoughts are prayers are with you. Michele MA - Tuesday, July 1, 2003 8:15 AM CDT I am praying for you! Doreen CF, IA - Tuesday, July 1, 2003 7:27 AM CDT I am praying for you! Doreen CF, IA - Tuesday, July 1, 2003 7:27 AM CDT I read of your web site on some of the other Caringbridge sites and I cannot express how sorry I am to hear of your pain and suffering. Your boys were so beautiful. I will pray for you and your family that you may all have to the strength to make it through this horrible ordeal. God Bless you and your family. Stephanie Conner Cana, Va - Tuesday, July 1, 2003 5:41 AM CDT There are no words to express the sorrow I feel for your family. May God ease your pain and give you peace and comfort. Please know that my prayers are with you. I pray that you have safe travel back to Greece. God bless. Lori Eschler <yodiday@adelphia.net> Colorado Springs, CO USA - Tuesday, July 1, 2003 0:36 AM CDT Dearest Marianna & Savvas,  I am so incredibly sorry for your loss...to lose one child is a tragedy...there are no words to describe losing two. I want to say I know what your pain feels like, but I can't...but I can tell you that I can feel a part of your pain as I lost my mom to cancer last year. I have been checking on baby Noah for awhile now and everytime I read their updates, there was always a little prayer for Aristofanes and Hermes...and because both your little boys were in PICU, I knew that they were in desperate need of prayers...and so I prayed everyday for your boys. I didn't know what they were like, I didn't know what they looked like, I didn't even know what disease they had, but I still prayed and prayed...and then the news came that both of your precious babies passed away...and my heart was instantly broken. The news was all too familiar (so many kids have earned their angel wings lately) but the pain and aching not just for your boys but for you, was so much more intense. I cried for your boys, I cried for you...I felt like I knew your little boys even though you did not have a webpage for them. And when Noah's daddy finally put up an address, I was SO "thrilled"...I could finally see what those precious angels looked like and more importantly I could send the both of you my condolences and to show you that your family has touched the hearts of people whom you've never even met...so many people prayed for your boys...people you didn't even know exist were cheering them on...and now, we are all praying for you..for God to give you all the strength, peace and comfort that you need to get you through this nightmare... Marianna, a couple of updates ago, you said you didn't believe in miracles...as much as I'd like to disagree, I don't blame you...how can you believe in miracles after all that has happened? But I do hope you keep your faith and beliefs in God...He has his own plans for everyone.. your boys are now perfect, normal, healthy and free up in Heaven...and I just know that they will forever be looking down on you, watching over you...you now have not one but two guardian angels...you were such caring, loving and devoting parents...you did the best you could for both your children and I am sure they knew the amount of love you had for them! I pray that you have a safe trip back to Greece...and look forward to your future updates...I know it will be hard to come back to Caringbridge...but do it all in your own time and know that we are always here for you...God bless you always.. Girlie's Page Janice's Page All my love & prayers, XOXOXOXOXO Janice <wine_chic@yahoo.com> Melbourne, Australia - Monday, June 30, 2003 8:32 PM CDT "ke perassan hronoi poli messa se liges meres!" Mpori na girizete me adia agalia , na xerete omos oti i dikia mas agalia kai psihi ine anihtes gia sas . O papous Aristofanis ke o thios Vaggelis sintrofeyoun ta aggelloudia sas gia panta .Makari ke i diki mas agapi na mporessi na anakoufisi ton atelioto pono sas Me ti skepsi mou panta konta sas FIVI Phivi Rondogianni <foivi@hol.gr> Athens, Greece - Monday, June 30, 2003 5:51 PM CDT Even though you go home without your babies, you leave a part of your heart here with them. Know that nothing ever erases their memories from your heart and your life. May God's grace as time passes ease your pain. Sandi Beck <sbeck@eaglesoft.net> Cowden, Il USA - Monday, June 30, 2003 4:58 PM CDT Savva and Marianne, You are in my thoughts and prayers as you prepare for your journey home this week. You won't leave without your babies -- they are safe and secure within your hearts and memories forever! May God be with you both during your difficult trip home and give you strength for the hard days ahead. Michelle Strayer Nolan Ramsey's Site The Colony, TX USA - Monday, June 30, 2003 3:53 PM CDT From you entry it sounds as if you guys are not taking your babies back to Greece with you ....if not I can not image how hard the trip home will be for you knowing that they are here and not with you. Just know that I will pray for you and your family that you will recieve strenght and peace that passes all understanding in the days ahead. God Bless, Robin Tucker <rtucker@hmsracing.com> - Monday, June 30, 2003 2:59 PM CDT It is with great sadness that I write to you. I do not know you, but I feel the loss and the pain that you are going through. I am a little different than you in that I do believe in miracles. At a time like this it is so hard to see that they really do happen, but try to remember that both of your precious babies were miracles in themselves from the day that they were born, and that each day that you spent with them was a miracle. I will pray for you so that you may someday be able to see this and also that you may find some peace in it. I wish you and your family nothing but the best and I hope that your trip home is a safe one. Best wishes to you both and may God Bless You, Li Clark <harliclark2@aol.com> Colorado Springs, CO USA - Monday, June 30, 2003 2:20 PM CDT Thinking of you today, and wishing you continued strength as you continue your preparations for your journey back to Greece. You will remain in our prayers. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Monday, June 30, 2003 1:36 PM CDT I honestly am not sure what words I can write that would begin to ease your pain. The thought of losing one, let alone both of my children takes my breath away and I cannot imagine what you are going through right now. Please know that there are people everywhere thinking of you and praying that somehow you will find the strength to move on. Your beautiful children have earned their wings and are free from the suffering they so bravely endured. May you find comfort in knowing that they have touched the hearts of many. I pray for your safe return to Greece and that the comforts of your home will bring you some peace. God bless. Allison Geary Aurora, CO - Monday, June 30, 2003 12:44 AM CDT I really sorry for you loss. You will be in my prayers and thoughts. Sarah Johnson <sassjj11@yahoo.com> Pleasant Hill, Ca U.S - Monday, June 30, 2003 11:30 AM CDT I am so sorry for your loss. My prayers will be with you. Lisa Atkins - Monday, June 30, 2003 6:41 AM CDT We are so sorry for the loss of your two beautiful children. You will be in our thoughts and in our prayers. Love, Chris, Chasity & Bayley Chasity Clark <Chasity_Clark@hotmail.com> Walhalla , N.D. United States - Monday, June 30, 2003 0:47 AM CDT I am praying for a safe, uneventful trip home. I am so saddened that it is without your precious babies. Susan <parvisfamily02@attbi.com> Sacramento, CA USA - Sunday, June 29, 2003 11:33 PM CDT You are in my thoughts and prayers as you prepare for your long journey home. I can't imagine your anguish, but I can pray to help give you strength to go on without your sweet sons. I will continually pray for you! Cyber hugs from a stranger in Connecticut, Love, Lisa Post <ltjpost@cox.net> - Sunday, June 29, 2003 8:58 PM CDT i can't take you out of my mind, we pray for you everyday, a big hug to Grandma, and both of you. have a safe trip home. love, denise perez-albert <titicpa@yahoo.com> - Sunday, June 29, 2003 8:11 PM CDT Is there no way you could take your boys home with you to Greece to be buried? I feel so badly for you, godspeed to you Heather Canada - Sunday, June 29, 2003 7:04 PM CDT Many prayers and love are being sent your way. We will not forget your beautiful children. Peace be with you. Renee www.caringbridge.com/ny/my2angels <RCurk@aol.com> Liverpool, NY USA - Sunday, June 29, 2003 3:31 PM CDT Although I don't know you, My heart breaks for you. I will pray you find peace. Take care and God bless. Deirdre Antalek <deirdre@rochester.rr.com> Livonia, NY USA - Sunday, June 29, 2003 12:24 AM CDT My thoughts and prayers are with you. I couldn't even begin to imagine...Have a safe trip back home. Beth Anne Biggs bigg6550@bellsouth.net <caringbridge.org/tn/laney> Rogersville, TN - Sunday, June 29, 2003 11:22 AM CDT I feel blessed to have spoken with you, your husband and your wonderful mother so many times this weekend. Thank you for letting me cry with you and your family. May God hold you and your family close for years to come. Please know that you are in our prayers daily. God Bless, Ellen Bowman www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> Northport, AL DUKE - Sunday, June 29, 2003 9:31 AM CDT I am so so sorry for your loss. I can only imagine the depths of your pain. May God and His angels surround you with their love and help you to get thru each day until you may be with your children once again. You will be in my prayers. Hugs, Heather Kline, Mommy to Brianna www.caringbridge.com/ny/mylittlesunshine syracuse, NY USA - Sunday, June 29, 2003 8:04 AM CDT You do not know me as I learned about you from other websites.... My heart breaks for you, there are no other words to say. I lost one son many years ago to another disease and that was so hard, I can not imagine loosing two. You will be in my prayers for a long time to come. May you find some peace in knowing you did everything you could for your boys. I hope you can find some comfort in knowing that many many others care. Sharon <m> Dardanelle, ar usa - Saturday, June 28, 2003 8:39 PM CDT I hope you both find strength and comfort in these enteries.Most people don't know what to say but the fact that they try to say something is magnificent. I lost my sweet 14 year old nephew to a cordblood transplant and the many kind a wonderous words helped ease my pain. My heart aches for you and I hope that the two of you can find the patience love and understanding to go on with out your two sweet boys. bleesings, Victoria Victoria mpls, mn - Saturday, June 28, 2003 8:09 PM CDT I hope you are doing well. I am sorry about your boys, I lost my little girl in December to Hurlers and don't know what I would do if I lost one of my others. My prayers are with you Jennifer Awrey www.caringbridge.org/me/morgan <ammawrey@aol.com> Mesa, AZ - Saturday, June 28, 2003 7:45 PM CDT Oh, Marianna, I can't tell you how sorry I am... This is Kory's mother... I met you, and your mother, and your family during my stay when I visited with my Kory at the BMTU... Your little boys touched SO MANY lives -- as did you -- they will never be forgotten, nor will you. My thoughts and sympathies are with you, as well as mt heart. May you recieve the strength you need to continue to live and love and enjoy your lives. You will be 'with' us always. You taught this angry, depressed, and grieving mother a thing or two about GRACE. Lee Owens Lee Owens <amusingmom@cox.net> Roanoke, , VA USA - Saturday, June 28, 2003 7:16 PM CDT Hoping and praying that in the long days ahead that the memories of your two precious boys, will bring you smiles and happiness instead of tears. May the Lord bless you and keep and make his face to shine upon you and grant you peace during this difficult time. Robin Tucker <rtucker@hmsracing.com> - Saturday, June 28, 2003 5:01 PM CDT You are in my thoughts and prayers...My heart aches for you both.We were on the unit with you but my daughter was very sick at the time and I never ventured out of her room much.I remember seeing you around the clinic before Mckenzie was readmitted back on the unit.Both boys were precious.I guess the only real thing to say to you now is that our children were to perfect for this world and they have gone on to a better place with no pain or suffering.I am sure Reese, Kyle, Mckenzie and all the other transplant kids met the boys at the golden gate and have showed them all beautiful things that await us all.May God give you peace and strenghth.I will stay in touch and I am always here for you! christina schoenleb&Angel Kenzie <caringbridge.org/nc/mckenziefay> cleveland, nc - Saturday, June 28, 2003 4:17 PM CDT dear family: i wanted to say goodbye, but missed you yesterday at the hospital. may God give you strength to go through every day of your life. i have missed seeing you and sharing our special moments at the parents lounge. take care, all my love denise perez-albert (rm 5211) <titicpa@yahoo.com> - Saturday, June 28, 2003 4:00 PM CDT People should not have to endure what your family has - there is no explanation for it, no reason and no answer. Flow on river of time, wash away your pain and heal your mind...Love and peace wished for you both! Kellie Beresh - Jacob's mom - www.caringbridge.org/ne/jakieboy Omaha, NE - Saturday, June 28, 2003 10:34 AM CDT Those who trust in the Lord for help will find their strength renewed. They will rise on wings like eagles: they will run and not get weary: they will walk and not grow weak. ISAIAH 40:31 May you find comfort in one another's arms through these devastating days. May you share tears of love as you journey to healing. Jesus will bring you through it. Trust in Him. Blessings on your way home. Prayers upon prayers from Colorado. Tricia Muehlbauer <writetricia@aol.com> Colorado Springs, CO 80909 - Saturday, June 28, 2003 10:31 AM CDT My heart aches for your loss of your two sweet boys. It is my prayer that God will provide you both the peace and comfort you need today and in the future as only he can do. God Bless You. Shirley (friend of Kelly Brown) Mechanicsville, VA USA - Saturday, June 28, 2003 10:20 AM CDT My thoughts and prayers are with you during this most difficult of struggles in your life.You and your boys are inspirations to us all and truly you are God's angels. I wrote a poem that I would like to share with you. Face to Face Those souls we love Whether they be The tiny children Or the aging parents Those souls we love Are God's gift to us Most precious souls- God's true love apparent To take away the lessons We are to learn From those we love Would be to take away God's gift of love to us For only by seeing God's face In those we love Can we truly see God's face When we come face to face With God and those we love In heaven. Marcia Savage <imspark@yahoo.com> Fort Wayne, IN USA - Saturday, June 28, 2003 9:57 AM CDT Hi.My heart and soul is aching for you.May God bless you and your family in every way.Praying for you.Love,Sheri Clements Sheri Clements <spc4unc@hotmail.com> Roanoke Rapids, NC USA - Saturday, June 28, 2003 9:21 AM CDT My prayers are with your family. May God give you strengh. God bless you all. Sheila, Jordan Horton's grandma Taylorville, il - Saturday, June 28, 2003 7:54 AM CDT I am so, so sorry. You have touched lives everywhere and many hearts are very heavy and sad for the loss of your two beautiful boys. They were so loved by you and they knew each day how loved they were. I hope that knowing that comforts you in some small way. Jane Jane Andersen - Saturday, June 28, 2003 1:46 AM CDT I was so saddened to hear of the loss of Hermes this week. I so enjoyed taking care of both of the boys. They are such beautiful children and are now in the arms of Jesus. My heart truly aches for the two of you. I pray that God will comfort you and give you strength to face the days ahead. Your family has touched my heart and I will never forget you. "Let the little children come to me and do not hinder them, for the kingdom of God belongs to such as these." Mark 10:14 Nurse Megan Durham, NC - Saturday, June 28, 2003 0:08 AM CDT I just heard about you losing your second son. We lost our daughter in 1990. The days do get easier with God's help. I will be praying for you. Denise - Friday, June 27, 2003 10:45 PM CDT I am so sorry to hear that you have lost Hermes, too. You will be in my thoughts and prayers as you journey back to Greece. Take care, Sheila George, mom to Shelby, MPS III <sjgeorge@sbcglobal.net> Spring, TX USA - Friday, June 27, 2003 10:23 PM CDT I cannot imagine the loss you are suffering. Words are insufficient at a time like this, but you know many are praying for you. Only God can provide the comfort you need...lean on Him. I'll pray for your safety as you travel home on Wednesday. God Bless You. A sister in Christ - Friday, June 27, 2003 9:48 PM CDT Savvas and Marianna, My heart hurts as I read about the short joy you had with your sons. My Granddaughter Alli Restemayer has MPS1. Please know that there are a lot of people here in the US that want to help shoulder your grief. I extend my prayers of comfort. Janelle Schumacher Janelle Schumacher <shoe1115@yahoo.com> Fargo, nd cass - Friday, June 27, 2003 9:12 PM CDT Savvas and Marianna, Our goodbyes today were very bittersweet, but we were so pleased that we were able to see you personally before you left the unit; to at least let you know again just how much we care about you both and your sweet angels Hermes and Aristophanis. You have truly touched our hearts, leaving an imprint there forever, and we are so blessed to have crossed paths with you. We remain numb, ...unsure what to say or how to feel about just how unfair this has all been for you both. We could never begin to imagine how you must feel, but the loss of a fellow PBMTU kid with whom we know personally, causes us some sorrow as well. We have certainly felt it lately. You both are so very, very strong...we have told you that before, but even the strongest of people hurt. We offer you our shoulders to cry on, our ears to bend, and you already have our hearts. We will continue to keep you in our thoughts and prayers daily, asking that God will replace your sorrow with peace. Thank you so much for all of the kindness you have shown to us, especially while enduring your own trials. God bless you both, In love and prayers, peace to you both we pray... Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Friday, June 27, 2003 9:03 PM CDT You don't know me but I hoped you might find comfort in knowing that there are so many people praying for you. I am so sorry for your losses. You children are so beautiful and are safe in the arms of Jesus. Travel safe and know that many, many people are praying for you always. With Love, Tracy Rayner Tracy Rayner <TRayner@maine.rr.com> Scarborough, ME - Friday, June 27, 2003 8:31 PM CDT I am a friend of Ellen Bowman's whose son Andrew is at Duke. My heart goes out to you in the pain you have suffered with your children being ill and now losing them. I pray that God will comfort you although you can't understand why such tragedy occurred with your babies. I know God now has your precious sons in his arms and they will suffer no more. Please find peace that you will see them again in heaven and they won't be sick and your sorrows will be no more. Lana Neely <lneely1209@aol.com> Pineville, LA - Friday, June 27, 2003 4:57 PM CDT As you travel back we pray for a safe journey and for continued strength to get through each second, each minute, each hour, each day. I hope that one day reading this guest-book will bring some comfort - to see how many people your precious sons (and you) have touched. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Friday, June 27, 2003 3:56 PM CDT I am so sorry for your losses. I understand your pain. My daughter Rachael had a transplant at the University of Minnesota. She died March 1, 2003. I too do not understand. She was our only child. She was 19. Yes, it is all so unfair and insane. I so hate the doctors that didn't do their best to save her. Your children were beautiful. I am so very sorry for your double loss. Kathie Mayo www.caringbridge.org/mn/rachaelmayo <winkatmayo> Winona, MN USA - Friday, June 27, 2003 3:36 PM CDT Marianna, You do not know us but our son, Jameson, was in 5206 and transplanted on August 15th, 2002. Our children had fatal illnesses. Bone marrow transplants were the only opportunity for our children to have any type of a life. Really, we had no choice. You have done the very best you could have done for your children. Today, this does not ease your pain. But in the years to come you will look back and see that you did, in fact, do all that you could do for your babies. I am so sorry for your grief. The hell on 5200 is like no other. I wish for your the ability to get up every morning, to put one foot in front of the other, and to make it to the end of another day. Debbie Dancy (Jameson's mommy) <jrdjad@aol.com> Charlotte, NC - Friday, June 27, 2003 9:56 AM CDT I am so sorry that you have to go home for this reason. Tommy will be in clinic on Tuesday and I would really like to see you before you leave on Wednesday. Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Friday, June 27, 2003 9:53 AM CDT I, like so many other people, am at a total loss for words. All I can say is that you are in my prayers and your boys are in my heart. They will not be forgotten, they fought the fight to live, and are now in a much safer world. They will feel no more pain ever again, I just hope that thru faith and prayer, your pain lessens more and more everyday. Sarah Thomas <sbnt@qwest.net> Urbandale, Ia USA - Friday, June 27, 2003 9:50 AM CDT god loves us so that he gave his only son so we could live. I will pray for you and your family. Just keep your head up. God bless you. ruby penn - Friday, June 27, 2003 9:48 AM CDT My heart breaks for your family Thinking of you and praying for a safe return home. all may love nicole` <nicole54660@msn.com> Tomah, WI - Friday, June 27, 2003 9:11 AM CDT Your boys are together. Pain-free, disease-free, and care-free. I am sorry for your devastation and cannot imagine the amount of grief you must be feeling. However, take comfort that they are not alone and will always be with you in your heart and soul. I will pray for you and your husband, I compassionately wish for your pain to ease and sadness to lessen. Dottie Philadelphia, Pa - Friday, June 27, 2003 8:18 AM CDT I am very saddened by your loss. Please know that your family is in my prayers. Leigh Ann Pyles Bowling Green, KY - Friday, June 27, 2003 7:58 AM CDT You don't know me, and unfortunately, I have no great words to say to you to take away what has to be the most unbearable pain in the world. My heart goes out to you both. I am so sorry the transplants didn't work. I could sense you felt guilty for going through with them. You would have also felt guilty had you not gone through with them. You went through with it because it was your only hope, and both your children love you for trying to give them that chance, just as they would have had you not. That is what families' are all about...unconditional love. I am so sorry. May their beautiful faces and memories be with you forever. Kelly Seibert <RSeib44725@aol.com> Hillsborough, NC USA - Friday, June 27, 2003 7:07 AM CDT Marianna kai Savva thelo na kserete pos sas agapame kai sas thavmazoume. Ta paidia einai eutihismena kai horis pono ston ourano kai o Theos einai mazi tous alla kai mazi sas. I agapi olou tou kosmou einai mia mikri apodeiksi autis tis alitheias. panta mazi se oles tis stigmes tis zois. Eirini <irini_bebli@hotmail.com> Athina, Ellada - Friday, June 27, 2003 2:56 AM CDT I am so sorry for your loss. They are with you and with each other and there is no pain in heaven. They are not alone and they can be with you also. It is so hard not to touch the ones you love anymore. It is so hard to even believe in anything. Have faith: for goodness exists and there will again be a time when you will sense them. Love is eternal as are our souls. God will protect you all. maggie lunsky santa monica , ca. USA - Friday, June 27, 2003 2:07 AM CDT So sorry about your loss. You and your family are in my prayers. Flo Dickens <floaston@up-link.net> Benton, Ar Saline - Friday, June 27, 2003 1:21 AM CDT I am at a loss for words. My heart goes out to you and I pray that God gives you strength. Please know there are so many people who care about you. I know the pain must be so unbearable. God bless you - Hermes and Aristofanis will live in your hearts forever and you will be together again. Love, Diane <thevezz@aol.com> San Francisco, CA USA - Friday, June 27, 2003 0:58 AM CDT I'm so sorry for your loss. An American who cares - Friday, June 27, 2003 0:45 AM CDT Our hearts are filled with so much sadness with the news that your two most precious boys are now dear little angels in Heaven. A gentle heart guided us to your website through Noah Prichard's site. After reading your journey and of the joyful souls of your beautiful sons we feel so much LOVE and so much HAPPINESS for the beauty of life that Hermes and Aristofanis breathed into you and the lives of so many others, including ourselves. We feel lifted by LOVE. Thank you and bless you both for sharing your LOVE, your laughter, your tears, your hopes, your joys and your very souls with everyone so freely. We lost our daughter Chloe to Krabbe disease almost 7 months ago and the longing to touch her, to feel her, to kiss her is still as strong as it was on the day she received her most precious wings. We won't say that we can even imagine what you are going through right now, but please know how much you have been blessed and how much you and your beautiful angels will continue to bless others. Sending you our love, Lisa & Frank (mommy & daddy to Angel Chloe Isabel) xoxoxoxoxoxoxoxoxoxoxoxoxoxo http://www.chloeisabel.com the Fedoraks <clffedorak@shaw.ca> Vancouver, BC CANADA - Friday, June 27, 2003 0:10 AM CDT I am so sorry for your loss. It is just heartbreaking and I cannot even imagine what you are facing. I really don't have words to express myself to you but I don't want that to stop me from expressing my care and prayers for you. Love, Tracy Visit Katia's Page and sign her guestbook:) (Leukemia AML M4)  Tracy and Katia - Thursday, June 26, 2003 11:40 PM CDT My heart goes out to you and I am sending up a prayer for your family. Holly <caringbridge.org/mi/mayam> MI - Thursday, June 26, 2003 10:55 PM CDT Hermes and Aristophanes, Thank you for sharing your beautiful story today. You are beautiful angels and will be missed beyond comprehension by all the people's lives you have touched, but especially your parents and immediate families. Jesus loves the little children, all the children of the world and that, of course, includes you both. Father God, put your loving arms around these parents, grandparents, aunts, uncles, cousins, friends, and caregivers today as they need You more than any of them may know. Keep them safe in their travels, Lord. We thank You God for speaking to all people through Your Word. Acts 2:4 "All of them were filled with the Holy Spirit and began to speak in other tongues as the Spirit enabled them." God Bless you little darling angels. Jerri McKinley and Kaden Mellema <pakrfan1@msn.com> Sioux Falls, SD USA - Thursday, June 26, 2003 10:54 PM CDT I will never forget these two sweet brothers. Even though I met you just today Even though I met you just today , you've changed my life. Even though I never met you in person,I will never forget you. Even though my heart is aching for your family my heart knows that you are not in pain. Even though I want this not to be true,I know that it is . Even though you both are together does'nt make it right. Even though I never met the two of you I know the strength you had. Even though I never met your parents I know the strength and love they have for you. Even though you don't know me I feel the ache of your heart and the doubt and pain in your mind. Even though I am a stranger I send my heart to you. If I could take it all away,and bring them back I would,I am so sorry..................... Victoria <www.caringbridge.org/mn/gabesjourney> Mpls, Mn - Thursday, June 26, 2003 10:37 PM CDT Dear Savvas and Marianna, My heart goes out to you and you will be in my prayers. Cheryl Lynn Horton Durham, NC - Thursday, June 26, 2003 10:22 PM CDT I pen this writing with a great deal of sorrow for your loss. Posibily because in my heart of hearts I know I could be there in a heart beat. My name is Bert and I am Alicias dad and Tommys grandpa. As a parent you know that you made the best educated choice available when you went to Duke to help those precious boys. Glo's and my prayers are with you. as you know we are in for a third transplant in July and it scares me to death. stay in touch and GOD BLESS Bert and Glo <BERTFROMCA@WEBTV.NET> Ione, Cal Amador - Thursday, June 26, 2003 10:22 PM CDT Our hearts and prayers go out to you. We lost our three year old son to Leukemia (AML) on June 3rd. There are no words that we can say to help ease your pain, but please just know that we are here if you need someone to talk to. Please know too that you did the right thing. Like you said, you were desparate parents in a desparate situation. You did the only thing you could do; you tried to save your children. We would have done the same thing had our son made it that far. Thinking of you, Jeff and Cari Holt <caringbridge.org/mn/ryanholt> Buffalo, MN USA - Thursday, June 26, 2003 10:08 PM CDT Dear Marianna, I understand how you feel, I lost my cousin Isobel Peters to Hurlers. Sometimes Gods plans don't make sense, but in the end it will all work out for the best. I know it doesn't make sense now, but it will soon. I'll be praying for you and your family. Meghan Schroeder <CV051@cv.wolfcreek.ab.ca> Red Deer, AB Canada - Thursday, June 26, 2003 9:50 PM CDT I am at a loss for words. I cannot even imagine the pain you are going through at this very very sad time in your life. I can't even begin to comprehend WHY... Why do these little children have to suffer so? Why are such good people on this earth put to such horrible tests... Why can't we just find an absolute cure for these diseases? How many more have to suffer the hearbreak of loosing a child/ loved one who is fighting with all their might to live and to know there are so many people out there throwing their lives away on DRUGS! IT just does NOT make sense to me....I watch this each day when I drive through the beautiful streets of Hawaii. Makes my stomach turn! I pray that you are able to someday find comfort knowing your preciuos little boys are together and now without suffering! They will ALWAYs have a place in MY heart! I AM SOOOO Beyond Very sorry for your loss! Dawn Rios <lpn1026@yahoo.com> Wahiawa, Hi - Thursday, June 26, 2003 9:44 PM CDT Savvas and Marianna, I am shocked to hear about Hermes. He fought so hard. My thoughts and prayers are with you and you entire family. To have travelled so hard and fought so hard for your boys. I can only imagine how you are feeling at this time. Take peace in the knowledge that they are with God now. If there is anything that I can do for you please let me know. Emily Baker, RN from 5200 <EmilyJ910@aol.com> Raleigh, NC USA - Thursday, June 26, 2003 9:36 PM CDT You saw your children happy for a time. Use those memories to get you through. You did all you could do for them, so have no regrets. Life is not fair, you were dealt a bad hand & have every right to feel bitter. But take those wonderful memories you have & know that they are no longer suffering. This world is not long for any of us & soon you will see your precious babies again. Have a safe return home, you will be in the thoughts & prayers of many! Judy <hibb00@yahoo.com> Dallas, GA USA - Thursday, June 26, 2003 9:32 PM CDT Marianna & Savvas, I could not believe it when I heard the news today. I am so sorry. The boys are in God's hands and are being well cared for. You have been through so much and have been so strong throughout all of this, I don't know even have the words to express how sorry I am. Who knows why things happen the way they do. Just know I am thinking of both of you and praying that you will be able to get through this. Sameeya 5200 RN Durham, NC - Thursday, June 26, 2003 9:20 PM CDT My heart goes out to you and prayers and love to your family Karla Kwist <karlakk@aol.com> Las Vegas, Nv usa - Thursday, June 26, 2003 8:35 PM CDT Dear Marianna & Savvas, My heart aches for your family. I pray our Father surrounds you with His loving arms and brings you healing peace, and comfort. Darla <D6318_@hotmail.com> Illinois - Thursday, June 26, 2003 8:12 PM CDT My prayers are with you at this very sad time. God be with you. Jan oh - Thursday, June 26, 2003 8:05 PM CDT I learned about your loss from Noah's website, I'm so sorry for your loss of your 2 precious boys, just think they are no longer in pain and one day you will see them again without the pain... I will keep you guys in my prayers.. Love In Christ Deanna Climer & Family Springfield , Mo USA - Thursday, June 26, 2003 7:43 PM CDT My heart breaks for you. May God bless your precious sons and may they live in the hearts of others forever. Pam Lahr Chesterfield, MI - Thursday, June 26, 2003 7:21 PM CDT I have no words to comfort the sorrow and sadness you both are feeling. I just wanted to thank-you both for sharing your precious boys with me. Although I only got to meet them while they were sick, they touched my heart deeply. I wish I could explain why such a terrible thing could happen to such wonderful peolpe, but I can't. I try and remember how much joy they brought to anyone around them and how they taught everyone so much about life. It is amazing that two little boys could give so much to life and to others. I was and am amazed at the strength and courage you both have caring for them as well as letting them go. You did everything you could for you boys. You gave them every possible thing and every possible chance. I know deep down that there is a greater plan for your boys and although they were here for just a short while, their stay here was meaningful and full of life. They accomlpished and experienced more in their short lives than most people will ever experience in ten lives. I will always remember them and they will always have a special place in my heart..as will the rest of your family. I will think of them and smile remembering the joy they brought to everyone everytime I put on my running shoes. If you need anything or if I can do anything for you- ANYTHING- please call me (919)933-7896, (919)414-6134. You are all in my thoughts and in my heart. Love, Julie (PICU nurse) Julie Bergenser <jbergenser@hotmail.com> - Thursday, June 26, 2003 7:18 PM CDT We got your website from Noah's journal entry. We are so sorry for your tremendous loss. We will keep you in our prayers. Love & hugs, Hendrick Motorsports Prayer Warriors John and Bonnie Curran <bjcurran@earthlink.net> Concord, NC - Thursday, June 26, 2003 7:12 PM CDT I read of your son's passing on Noah's website. I'm sorry seems like such a shallow word to use for something of this magnitude. But I am sorry, no one should have to go through this. Do know that I am praying for the both of you, praying that you will find strength and comfort in the arms of our Heavenly Father. Michelle <faithgirl_65@yahoo.com> Broken Arrow, OK USA - Thursday, June 26, 2003 7:04 PM CDT I am so sorry for your loss. I can not even imagine what you are going through. We face my sons mortality every day because he was dx with an inoperable brain tumor..but can not really imagine actually losing him. You have felt that loss infinitely more. I am praying that God gives you the strength necessary to make it through this....You are in my thoughts and prayers. Warmly, Susan and Jakey Bear Griffin www.caringbridge.com/page/jakegriffin jupiter, fl usa - Thursday, June 26, 2003 6:45 PM CDT I pray that the Lord wraps His around you both during this sad time. Jesus wanted His little lambs to come home to be with him - where there is no pain, illnesses, suffering just happiness and joy. Always keep your trust in Him!! Chris Googas <grk4chrst@yahoo.com> Coconut Creek, FL USA - Thursday, June 26, 2003 6:06 PM CDT Your boys are beautiful. I am so sorry to hear about your terrible loss. May Peace be with you during this difficult time. Katie Erie, CO - Thursday, June 26, 2003 5:44 PM CDT I read about your terrible loss with the death of your two children on Jordan Horton's website. Though I cannot begin to understand your pain, I offer my prayers that God will be with you now and forever and that you will use Him as a source of strength through what must be the most difficult time in your lives. Please know that even though we have never met, my heart is full of pain for the tragedy you have just experienced. May God bless you now and forever. Cindy Furrow Forsyth, IL - Thursday, June 26, 2003 5:43 PM CDT I am sorry to hear of your tremendous loss. Though your hearts are broken and your arms are empty, may you find comfort in knowing that your little guys are safe in the arms of Jesus--they will never experience pain or discomfort again. I hope you will feel His comfort in a special way that will amaze you. God bless you. Nancy Fetterhoff <lfetter@mail.itwebs.com> Mexico, MO USA - Thursday, June 26, 2003 5:11 PM CDT Dear Family, I heard of your sons passings through Noah's website. There is no words that will ease your pain, but please know that my heart aches for you and that I am praying for peace and stength to get you through this most difficult. time. Penny Collins <pennycollins@hotmail.com> Canada - Thursday, June 26, 2003 5:01 PM CDT
Hello my Friends! My name is Hermes and this is my brother Aristophanes next to me. He is busy enjoying a beverage at the moment, so I'll talk to you. We arrived in this world only a few years ago in a little country known as Hellas (Greece). Our loving parents, Savvas and Marianna, are elementary school teachers in the city of Lamia. They raised us providing everything we ever needed, especially their parental love. It was not a long time ago that we were both diagnosed with the San Filippo syndrome. The doctors told our parents that there is no treatment available. They couldn't believe it, but they didn't give up. With the help of other family members, they found a place where kids with the same syndrome are being treated. This was the only hope. We started a long journey and we arrived at the Duke University Hospital on January 24th, 2003. Eight kids had been treated before us. We were going to be the 9th and the 10th cases. We received our cordial blood transplants on March 13th, 2003. The next few months were very difficult. It was a long fight. At times, we seemed to be making progress, at other times we seemed to not be doing well. A number of people stood by to help us and our parents. Our grandmother, Angelica, traveled all the way from Greece to be with us at this difficult moment. My little brother Aristophanes unfortunately lost the battle on Friday, May 30th, 2003. He joined all those kids, our brothers and sisters, who depart early from this world and become angels. He never stopped talking to me, encouraging me to continue the battle. I did. I received a second transplant on June 4th, 2003. I fought. Mom and Dad and Grandma were constantly next to me. People at different places in the world prayed. But it was meant to be otherwise. Today, on this sunny day, June 25th, 2003, I departed to join my little brother. We are now together, so close to each other. I know, you all feel very sad, but please don't cry. We all go through this mystery: birth, life, death. For us, the journey through life was short, but nevertheless it was so meaningful. Don't forget us, as we will never forget you. Mom and Dad, we have no words to express our gratitude for everything you did for us. We love you. Both of us wanted to be with you, to grow strong, to make you happy, but it was not meant for us to be together for long. We will be watching you from up above and we will be waiting for you. One day we will all be one loving family again, eternally united. Dear Relatives, Doctors, Nurses, Friends, known and unknown, close and distant, we thank you all for everything you have done for us. We will remember you. Please, don't forget us. One day we will meet again. We love you all! Hermes and Aristophanes *********************************** - Thursday, June 26, 2003 4:39 PM CDT I read with much sadness about the passing of your other little angel, and I pray that someday, you will truly know the peace of the Lord, for He is Good, and He does love us so! So many of us here have loved ones that are sick and dying from disease...I ask you both to please, please do not lose your hope in the Lord, for one day He will bless you and get you past this difficulty. Please do not give up on Him...for He does care for you. Annette Greenville, NC USA - Thursday, June 26, 2003 4:26 PM CDT Such sad news. May God give you strength and surround you with love. Praying for you. Patti - Thursday, June 26, 2003 4:14 PM CDT My heart goes out to you and your family. I am so very sorry for the loss of your beautiful sons. I pray that God will surround you with love. Jeannette Winston-Salem, NC - Thursday, June 26, 2003 3:54 PM CDT My deepest sympathies at the loss of your two beautiful boys! Justine Madison, WI USA - Thursday, June 26, 2003 3:50 PM CDT My heart aches for your family and prays for your spirits during this dark and turbulent time. I am so sorry for your loss and pray that your sons' souls are dancing in the heavens - free from pain, machines, illness. Cherish the memories of your sons. You did everything in your power to help them. Never regret any of your decisions. Peace be with you! Lillian HI USA - Thursday, June 26, 2003 3:48 PM CDT Marianna kai Savva, Eisastan mazi me ton Ermi kai ton Aristofani olo auto ton kairo sth skepsh mas kai sthn kardia mas, an kai den eixame thn timh na sas gnwrisoume. Eimaste suntetrimenoi me to xamo twn paidiwn sas. Autes tis stigmes ta logia miazoun polu mikra, omws prepei na eiste perhfanoi giati kanate toses 0usies gia ta paidia sas kai tous dwsate tosh agaph kai frontida oso ligoi goneis. 0eloume na 3erete oti o Ermis, o Aristofanis kai eseis 0a eiste panta sthn kardia mas kai 0a exete thn agaph mas. Thanasis, Despina kai Giorgos <thanos@ams.ucsc.edu> Santa Cruz, CA USA - Thursday, June 26, 2003 3:14 PM CDT I have heard your sons' names mentioned through other kids' websites, but today is the first day I have visited your site myself. My heart breaks as I read about your boys... I know the heartbreak of burying your own child and I can't even begin to imagine it happening twice. My son died post-BMT for Hurler Syndrome (MPS-I) almost 2 years ago. Grief is something that never completely goes away but I have found that with God's grace, each day is a little bit easier than the day before. I have no words of comfort to offer except to tell you that God will sustain you. Even though you have many unanswered questions, my prayer is that someday you will believe in miracles, because that is what these children are... they come here to teach us and change us and the love they give can't be compared to any other thing, even if they are only with us for a short time. May God bless you and your family and give you comfort during this difficult time. Cameron's Page Love from Alabama, Emily Martin <esmw72@yahoo.com> Anniston, AL USA - Thursday, June 26, 2003 3:12 PM CDT My heart is breaking for you. I cannot begin to understand your pain, but I share your grief. Grief spans all cultures and I pray that in the sharing you will find some small comfort or encouragement. You said that you do not believe in miracles, and after what you have been through I can surely understand, but I hope that you do believe in a loving and faithful God. These losses would shake the faith of many, but hold on and cry out to God, because He will prove himself faithful to you...He is the only one that can comfort you right now....He is your only hope....you will not be disappointed by Him. I am so amazed by the strength of the children and parents like you that endure so much...still it is too much to bear without Christ. He truly does understand your tremendous grief. I am praying for you. Mary <svdbygrac3@aol.com> Greenville, SC USA - Thursday, June 26, 2003 3:09 PM CDT I am so very sorry for your loss. I can't find the words to express how my heart aches for you and your husband. MPS is a terrible disease. I will be praying for you and your family. Love, Jennifer Restemayer Jennifer Restemayer www.caringbridge.org/nd/allison <jennmarie@bis.midco.net> Bismarck, ND Usa - Thursday, June 26, 2003 2:50 PM CDT I am a friend of Noah Prichard's Grandmother Karen. I have kept a close watch on Noah and have kept up with so many of the other children. I am so heartsick to hear about the loss of your boys. I can't even imagine what you are going through. I pray that you will be able to find peace and comfort. You are in my thoughts and prayers. May God keep you close so you can feel His love and recognize His arms around you. Kathy Thompson Salt Lake City, Ut - Thursday, June 26, 2003 2:48 PM CDT Dear Savvas and Marianna, We are truly at a loss for words. We are so very sorry for all the pain and suffering that you and your babies have had to go through. With the diagnosis of our children, we are left with no choice but to bring them here and give them a chance. The disease itself is so very cruel, but for you to lose both your children through transplant is more pain and suffering than anyone should ever have to face. We are so sorry. Please call us if there is anything we can possibly do for you. 309-7762 Doug, Tracie, Douglas, Cameron and Mama Jane <www.caringbridge.org/co/nicollbrothers> Colorado Springs, CO USA - Thursday, June 26, 2003 2:47 PM CDT Wanting you to know that even though we've never met you, we are praying that somehow you will find God's peace and feel lifted up by the prayers of so many. Kelly Charlotte, NC - Thursday, June 26, 2003 2:39 PM CDT I am so very sorry for you and your whole family. May you find some sort of peace in the days (months, years) to come. Sara Kilkenny Boston, MA USA - Thursday, June 26, 2003 2:16 PM CDT Dearest Mommy and Daddy.... When you wonder the meaning of Life and Love Know that we are with you, Close your eyes and feel us kissing you In the gentle breeze across your cheek. When you begin to doubt that you shall ever see us again, Quiet your mind and hear us, We are in the whisper of the Heavens Speaking of your love. When you lose your identity When you question who you are and where you are going, Open your heart and see us We are the twinkle in the stars shining down upon you Lighting the path for your journey. When you awaken each morning Not remembering your dreams But feeling content and serene Know that we are with you-- Filling your night with thoughts of us. When you linger in the remnant pain Wholeness seeming so unfamiliar Think of us and Know that we are with you, Touching you through the shared tears of a gentle friend ......Easing the pain. As the sunrise illuminates the morning sky In the breathtaking glory, awaken your spirit Think of our time, all too brief, but ever brilliant. When you were certain of us, together When you were certain of your destiny. Know that God created that moment in time, ************Just for US************ Dearest Mommy & Daddy , We are with you ALWAYS. I got your site info from Noahs site.... MY thoughts & prayers are with your family.... I have read your journal entries and my heart is aching for you family... There are no words to comfort you... but please know others are thinking about you and sending prayers.... God Bless! ((( ANGEL HUGS ))) Chemo Angel Sheryl Sheryl Gunzenhauser <mik181@mchsi.com> Winnebago, Mn - Thursday, June 26, 2003 2:00 PM CDT I am so sorry victoria <www.caringbridge.org/mn/gabesjourney> mpls, mn - Thursday, June 26, 2003 1:55 PM CDT Words cannot express my sorrow for your loss and can certainly bring you no relief from your pain. I will hold your family up in prayer that you will begin to find sense and purpose in your life as you pick up the pieces and grieve your loss. Tammy Rajabi Katy, TX USA - Thursday, June 26, 2003 1:35 PM CDT I cannot even imagine the pain of losing one child...much less two in such a short time. how very sad. And you are SO right--how VERY UNFAIR. I want you to know that I will continue to pray for your family. I wish I could do more but I know that I can't and I know that prayer is the only thing that can help. I will continue to check on you here. Please know that you are cared for by so many. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC, - Thursday, June 26, 2003 1:34 PM CDT The only words I can find are I'm so sorry. I lost my only child in January, I have some idea of your grief. May God bless you. jan livingstone (Andy's Mom forever) - Thursday, June 26, 2003 12:55 AM CDT There are no right words or answers to WHY but a great deal of pain that I can't imagine will ever truly go away. Please know that even though we have never met you are & have been in our most special prayers & thoughts. What ever God's plan is ; we have to believe it includes filling your deepest needs at this time of greatest despair. You have two angels watching over you until you are reunited in heaven. They would want you to find peace & strength to carry on until then. With Sincere Sympathies, www.caringbridge.org/page/shannon Barb - Thursday, June 26, 2003 12:54 AM CDT Agapimenoi mou Marianna kai Savva, prospathw na skeftw tis katalliles lekseis pou isws tha mporousan na apalunoun ligo ton pono sas ma oti ki an mou erxete sto mualo moiazei toso ligo... Lene oti o ponos moiazei elafruteros otan ton moirazesai... Tha 'thela na kserete oti o dikos sas ponos einai kai dikos mas,giati zisame mazi sas, sas ponesame kai sas agapame. O Ermis ki o Aristofanis eginan meros kai tis dikias mas zwns kai tha briskovtai pavta mesa stin skepsi kai stin kardia mas. Thumamai to gluko xamogelo tou Aristofanakou kai ta megala omorfa matia tou Ermi. Thumamai me posi latreia se koitousan otan tous xamogelouses kai me posi truferotita kai agapi tous frovtizate. Auto to fwteino xamogelo sou tha theloun na blepoun kai twra eikei pou briskovtai mazi. Min to ksexnas auto. Prepei na sunexisete...etsi tha to thelan ta gluka mas agorakia...me to idio tharos kai tin idia gennaiotita pou edeiksan ki auta stin megali pali pou eixan n'avtimetwpisoun. Ki auta tha briskovtai pavta dipla sas. Isws oxi me ton tropo pou tha thelame emeis, alla me ton diko tous monadiko tropo. Sas agapame pavta. Anna Konidari <annak@duke.edu> Durham, NC USA - Thursday, June 26, 2003 12:46 AM CDT Words cannot express how sorry I am to hear of your loss. I am praying you will find peace and comfort during this difficult time. Shannon Huntersville, NC USA - Thursday, June 26, 2003 12:24 AM CDT I am so sorry for your loss. My thoughts and prayers are with you and your family at this difficult time. Patty R Plainfield, NH - Thursday, June 26, 2003 12:20 AM CDT I am sitting here with tears in my eyes as I read the news on your site today. Words can not begin to help you cope with the loss you are experiencing right now. Know that you are in my thoughts and prayers. Lisa Seattle, WA USA - Thursday, June 26, 2003 11:52 AM CDT Our thoughts and prayers are with you. We are so saddened and sorry that this horrible disease has taken your beautiful boys. We will be thinking of you now and always... Deepest Sympathies ~ Melanie, Steve, Jacob (www.caringbridge.org/wa/jacobirish), and Matthew The Irish's <mairish@hotmail.com> Marysville, WA USA - Thursday, June 26, 2003 11:51 AM CDT No words I can offer can ease the pain in your heart. I have also been there and never imagined not coming home without my son, it was just not an option. He also was happy, running and just being Kyle! He endured so much and always still made us laugh. When we got down, he would say "Don't Cry Mommy". To lose both of your children I cannot even imagine your pain. I have no great words of wisdom only just to let you know that we did the only thing that we could for our children! There is not one other option out there for Sanfilippo Children! Again, my heart breaks for you, as this brings back a lot of painful memories for us also. If you every want to talk, please know I am here, I have no great words of wisdom, but I can cry with you. The Cottey's, Tom, Angie, Casey & "Angel" Kyle <cottey@gte.net> Sumner, WA USA - Thursday, June 26, 2003 11:41 AM CDT My condolence to you and your family during this terrible time. You are in the thoughts and prayers of many. Peace be with you. Kim Broomfield, CO USA - Thursday, June 26, 2003 11:40 AM CDT Just wanted to let you guys know how sorry I am for your loss!!! You guys are such WONDERFUL people and this has indeed shocked me!!! Just know that you are continuously in my thoughts and prayers!! Nurse Jamie (5200) - Thursday, June 26, 2003 11:38 AM CDT I can't believe what has happened to your family- I can't express the words. We lost our daughter in April due to transplant complications. She has Hurler syndrome or MPS1. I hate MPS so much, what a waste!!!! I will pray for your comfort and I know that my daughter and your sons are together and will suffer no more. I am so sorry! Cathy Peters Cathy Peters <www.caringbridge.org/canada/isobel> - Thursday, June 26, 2003 11:34 AM CDT My heart hurts for you...may God give you strength for the hard days ahead. Karen Martin Karen Martin <marco@mexicomo.net> Mexico, MO USA - Thursday, June 26, 2003 11:29 AM CDT I am so very sorry. I know there are no words to be said to ease your pain, just know that I will be praying for you. May God give you strength, peace and comfort during this difficult time. Debbie Nagy St. Louis, MO - Thursday, June 26, 2003 11:27 AM CDT I am so sorry for the loss of your two precious Angels! There are no words to make it any easier for the pain but just please know there are so many people praying for you and your family. We will keep you all in our thoughts and prayers. Annette <agolding@triad.rr.com> Mount Airy, NC USA - Thursday, June 26, 2003 11:14 AM CDT I learned of your journey thru Noah's site. I just don't know what to say. I am just so sorry for your loss. Please find strength in each other thru this terrible worst time in your lives. Pam Genaro <pamela.a.genaro@boeing.com> Auburn, WA USA - Thursday, June 26, 2003 11:11 AM CDT Words do not describe the pain we feel for you both. I have watched your beautiful family throughout the BMT's and have prayed for you daily. Your children have touched so many people. I wish there were words to make this pain bearable. Please know so many people are praying for you. Love and Hugs, Tami Slawson <TLSlawson@aol.com> La Verne, CA - Thursday, June 26, 2003 11:07 AM CDT I can't imagine the pain you feel, but my heart is heavy and my eyes are full of tears. I am so sorry for the passing of your 2 beautiful sons. Your in our prayers and thoughts, I wish I could say or do more, I just want you to know so many of us do care and want to offer what little support we can through our mere words. Love, The Coe's <caringbridge.org/va/trevorco> - Thursday, June 26, 2003 11:06 AM CDT To the parents of Hermes and Aristofanis, I am so sorry for you loss. As a mother my heart hurts for you so bad right now that I just can not find the right words to say. I can not imagining losing one child, and you lost two within a month, I would be angry to! I know there is nothing anyone can say to ease this pain but know that there are many people who will continue to pray for you and ask the Lord to give you answers. I will pray that today and the days ahead that the Lord will grant you a peace that passes all understanding. To the two beautiful Angels, Hermes and Aristofanis, sweet boys please let you parents know that you are near. God Bless your family, Robin Tucker <rtucker@hmsracing.com> - Thursday, June 26, 2003 11:00 AM CDT Savva and Marianne, It is with a very heavy, heavy heart that I send my love less than 24 hours after I met your beautiful sons on this site. 2 Corinthians 1:3-4 "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles so that we can comfort those in any trouble with the comfort we ourselves have received from God." Lord come in Your power, come in Your comfort, come in Your wisdom, come with the balm of Gilead to touch and heal the shattered, broken, crushed hearts of these beautiful parents. God Bless you as you travel back to Greece with only the memories of your 2 beautiful sons. Love in Christ, Jerri McKinley and Kaden Mellema <pakrfan1@msn.com> Sioux Falls, SD USA - Thursday, June 26, 2003 10:47 AM CDT PROSEYXOMASTE GIA TA DYO AGGELOUDIA POU EFYGAN APO KONTA SAS KAI KONTA MAS . ENA MEGALO KOURAGIO SAS STELNOUME KAI THN AGAPH MAS GIA TIS DYSKOLES ORES POU PERNATE. ME EKTIMHSH ZOH BASILHS GIANNAKHS ZOH MAYROMATH <zoemav@yahoo.com> HAMPTON, VA USA - Thursday, June 26, 2003 10:34 AM CDT Dear Marianna and Savvis, I'll keep you in my prayers and send love and light to you from the center of my heart. Tom Spector <spectors@mindspring.com> Durham, NC USA - Thursday, June 26, 2003 10:29 AM CDT Marianna and Savvas, You do not know me (I learned of your boys through Noah's site), however, I am aching for you today. I am so very sorry that your boys had to leave you this way. It's probably a small comfort to know that they are together and playing as they should. You will be in my thoughts and prayers. I am so sorry. Love, Lisa Post <ltjpost@cox.net> South Windsor , CT - Thursday, June 26, 2003 10:26 AM CDT Words are so inadequate right now. My heart is broken for you and the loss of your two beautiful sons. I will keep you in my prayers. Mikie TN - Thursday, June 26, 2003 10:22 AM CDT I am so very sorry for your loss... I can't imagine the pain and anger that must surround you.. Again I am so sorry.. I will continue to pray for you and think about your sweet angels. Pam <lakenormanheat@yahoo.com> Denver, NC USA - Thursday, June 26, 2003 10:19 AM CDT I got this website from Noah Prichard's site. I read your story and I am so sorry. I too lost my daughter 8 months ago from Krabbe's disease at 11 months old. She was not a candidate for transplant and we returned from Duke last April. Losing her was and is very difficult everyday, but we have no choice but to move on. People will say to you "I understand how you feel", but in reality they don't. Just know they mean well. God has a plan, sometimes it's not fair, but maybe someday we will all find out. Just know our thoughts and prayers are with you. You had 2 beautiful children and always will. www.caringbridge.org/me/edenskyy Tiffany, Ron and Angel Eden Benson <edenskyy@xpressamerica.net> Biddeford, , ME - Thursday, June 26, 2003 10:13 AM CDT I have been following your family through some of the other children's sites and have been praying for your boys for the last two months. My heart goes out to you and your husband. My prayer has now changed. Your two beautiful little boys are sufffering no more. You did everything you could do to offer then their best hope for a life here on earth. My prayers will now be for you and your husband to find the strength to go on, to find peace and healing that only time can bring. To let all the wonderful memories of your beautiful babies be what you remember instead of the days on the unit and in PICU. I will continue to lift your family up. A praying friend who has been there Fl - Thursday, June 26, 2003 10:11 AM CDT I would just like to say that i am very sory for your loss of your children. nicole <rhea-sami@adelphia.net> pico rivera, ca us - Thursday, June 26, 2003 10:05 AM CDT I am so sorry for your loss. Angela Nash <anash@desaint.com> Bowling Green, KY USA - Thursday, June 26, 2003 10:02 AM CDT I so wish that I could do something or write something that would ease the horrendous pain you are feeling. It is not fair and it is not right! You are the mother of two beautiful boys and I believe that God wanted you to bring your boys to Duke to have that chance. YOu were not wrong to do so. You made the best choice as a mom. I do not believe that He is mad at you or your family. I don't think that you would have learned about their disease if He didn't want you to take the chance to fight it. I can't make it better for you and I can't begin to imagine what it feels like to be in your shoes. Still my heart breaks for you and I pray for both of you for the strength and desire to continue on. I care. Tiffany Kansas USA - Thursday, June 26, 2003 10:00 AM CDT You and your beautiful boys will always remain close to my heart! I pray for some comfort in your lives and know that you are thought of very fondly in my mind. May your travels be safe. With love Nurse Latane <lataneh@bellsouth.net> 5200, - Thursday, June 26, 2003 10:00 AM CDT I am so sorry for your loss. Your family will continue to be in my prayers. Susan <parvisfamily02@attbi.com> Sacramento, CA USA - Thursday, June 26, 2003 9:55 AM CDT I came across your page through a couple of different people and I just wanted to say that my heart and prayers go out to you losing two boys. I don't understand and will probably never will why any child gets sick! I will be praying for the little angles in heaven and for your family and all the families around the world that have to experience pain like yours. Dawn <lilsis214@aol.com> Boyds, MD USA - Thursday, June 26, 2003 9:47 AM CDT Our thoughts and prayers are with you.... Lisa and LIndsey Va beach, va - Thursday, June 26, 2003 9:28 AM CDT I'm sure of the fact that their is nothing I can say to make your sadness any better. I'm GREATLY sorry for your loss. No one should ever have to go through what you've gone through. I want to let you know that you are in my thoughts and prayers. Please take care of yourselves, if not for your sake do it for your sons. They would want that. I'm so sorry. Carrie CO - Thursday, June 26, 2003 9:28 AM CDT Prayers, hugs and love to you and your husband. I can not even begin to imagine your pain. I lost my only daughter Tiffanie on 12-15-01. It is and will continue to be the greatest pain in my life. One that does not get easier. Tolerable yes but not easier. It is a pain that I can not put into words. To go through that pain twice is unimaginable to me. Remember that your precious children are angels in heaven together. We will be with them again in heaven when God calls us home.... Love and Prayers Mom to Tiffanie Salvadia Forever in Heaven www.caringbridge.org/page/tiffanie Deneen Gethouas <dgethouas@aol.com> Enola, PA USA - Thursday, June 26, 2003 9:26 AM CDT Dear Family, I do not know you but Greg Prichard gave us your web site. I wanted to come and offer my sincere sympathy to both of you. I was very sad to read your entry and my heart goes out to you. I will keep you in my Prayers. Please know that your thought about, and May God help you through the days and weeks ahead. Julie Ritchie Julie Ritchie <theritchies@xpressamerica.net> Me USA - Thursday, June 26, 2003 9:25 AM CDT I sit here with tears filling my eyes because my daughter, only 3 years old faces possibly the same fate as your young beautiful sons. Her name is Kamryn and was diagnosed with cancer on February 3, 2003. I only know what it feels like to have saying goodbye to your child as an option, and my heart breaks for you to have had to have this become your reality. Just please know that if you had not tried the cell transplants your sons would have had no chance for survival, and because you are the parents you are you opted to give your sons the only chance they had! I pray for you that you can get through these trying times with the strength of knowing that your sons are your angels now looking over you each day. Please visit Kamryn's site: www.caringbridge.org/az/kamryn Much love.... Salina Daste Salina Daste <salinadaste@msn.com> Lake Havasu City, az usa - Thursday, June 26, 2003 9:17 AM CDT I am so sorry for your horrible loss. You will always be in my prayers. Jodi <jodisgreen@aol.com> Bloomfield, NJ USA - Thursday, June 26, 2003 9:15 AM CDT A parents worse nightmare, twice over. WHY,WHY,WHY???????? Sandra,,and Gemma Sicily, Italy - Thursday, June 26, 2003 8:57 AM CDT I learned of your loss through Noah's website. I am so sorry. You are in my prayers. Ginny - Thursday, June 26, 2003 8:57 AM CDT Marianna, Savva ,and Aggeliki. All your patriotes from Chicago are very saddened about the loss of your children. May Agia Faneromeni give you the strength and courage to go on. Your friends from Lefkada Lefkadion Society, of Chicago Chicago, IL - Thursday, June 26, 2003 8:53 AM CDT I have prayed for you today. May God give you the strength that you need. God Bless. Janell Yount - Thursday, June 26, 2003 8:52 AM CDT I learned of your family through Noah's webpage. I am very sorry for your loss. Thoughts and prayers are with you today. Maria NJ - Thursday, June 26, 2003 8:48 AM CDT I am so sorry. Although we've never met you have been in my prayers for a while. My daughter Misty told me of your family when Trey was first admitted to the BMTU 5/8/03. She kept me updated while there and since I have been keeping up through Noah and Jack's sites. I am so very sorry for your loss. I wish I could be there just to give a hug or hold a hand. I will continue to pray that God will give you strength to face the days ahead. Susie Morris Trey's granny, sharingthoughts@hotmail.com < www.caringbridge.org/va/trey > Dry Fork, Va. - Thursday, June 26, 2003 8:21 AM CDT Hi, we do not know each other, but I've been reading about your boys struggle through the other pages. I was very saddend this morning to hear of you losing Hermes, too. I'm so sorry. Please know that there are so many people out there who care and pray for you, even those who will never meet you. I do not know if you believe in God, but we can't always understand His will. You have a right to be sad, angry but know that God will always love you and he will take care of your boys now that they are not sick anymore. I think of this Bible verse when bad things happen in my life "trust in the Lord with all your heart, lean not on your own understanding. In all your ways acknowledge Him and he will make your paths straight." Someone who prays for you NC - Thursday, June 26, 2003 8:21 AM CDT My heart goes out to you. I cannot begin to imagine the pain you are going through. I just pray that God will comfort you as only He can. Cindy Wright - Tennessee - Thursday, June 26, 2003 8:16 AM CDT I saw this poem on Kyle Cottey's web page that his mother posted on Tuesday. Kyle had MPSIII and passed away in December 23, 2002 from complications due to Transplant. I wanted to share this poem that Angie holds close to her heart with you. Like Kyle, your boys will never be forgotten. Your Family is in our prayers. In Christ, Ellen Bowman "I Cry" I Cry not for you, but I Cry for me. I Cry not because you are gone from me, But because you left me behind. I Cry because, I don't know the beauty and love that you feel and see. I Cry not because I think your sad, but because I am sad. I Cry not because the love is gone, but I Cry because my love for you is so strong. I Cry for me because I wasn't quite ready to give you up. I Cry not because your not here with me, but because I'm not there with you. I Cry not that your soul was lifted up to heaven. I Cry because you left us here on this earth so full of emptiness without you. I Cry for me every time I think of you. I Cry for your Dad and your Brother. I Cry for all of those who loved you so dearly. I Cry not for you, for where you are. I Cry for us, for where we are, and that we are not with you. Every tear drop that falls from my eyes, are tears of joy and of gladness that you were such a wonderful part of my life. I Cry not to be with you, to experience the beauty, the splendor, and the abundance of things wonderful. To know what it's like for everything to be simply perfect..................... by: Nancie L.White Walkinbeauty www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> - Thursday, June 26, 2003 8:12 AM CDT My thoughts & prayers are w/ BOTH of you @ this TERRIBLE time of loss. I can't imagine what u are going through and I won't even attempt it. PLEASE know you are in MANY of our thoughts & prayers. huge hugz~ Jolene <TrentNSaydsMama@aol.com> OH USA - Thursday, June 26, 2003 8:05 AM CDT Many thoughts and prayers from Texas. I am so sorry! Maggie Mager <magers@amaonline.com> Amarillo, TX - Thursday, June 26, 2003 7:54 AM CDT I heard of your family from Noah's website. I am so sorry that both Aristophanis and Hermes have died. I can't imagine how empty your arms and hearts are. Let the healing tears flow. May the good, happy, wonderful memories of your beautiful boys sustain you in the days and months and years ahead. Blessings, Kirsten Petty Warsaw, IN - Thursday, June 26, 2003 7:54 AM CDT We are so sorry for what has happened. Our thoughts and prayers are with you during this diffuclt time. Just keep your eyes toward the heavens. God bless you. Jason, Angie, Luke, & Hope Hinson <hinsonfamily@surry.net> Dobson, NC 27017 - Thursday, June 26, 2003 7:47 AM CDT My thoughts and prayers are with you. Nicole Wanke <nicole54660@msn.com> Tomah, WI - Thursday, June 26, 2003 7:46 AM CDT You do not know me, nor do I know you - personally; however, I have followed you a bit through Noah's web page. I am a Best Buddy with the PBMTU and was the Best Buddy of another Sanfillipo patient that lost his battle as well (before you even arrived in the US). I just wanted to let you know that you are being lifted up in prayer. I pray that you will feel all of the encouragement through the Holy Spirit. Connie Hemric - a Best Buddy <constance.hemric@duke.edu> Durham, NC USA - Thursday, June 26, 2003 7:44 AM CDT I have been following your journey through Alex and Noah's pages and my heart breaks for you!!! I will pray for both of you. Jessie Nisswa, Mn - Thursday, June 26, 2003 7:38 AM CDT We are so very sorry to hear of your loss. May God bless you and keep you during this time of sorrow. Randy, Robin, Jake & Grace Boger Lewisville, NC - Thursday, June 26, 2003 7:23 AM CDT I pray for God's comfort for your family during this difficult time. I am very sorry for your loss. God Bless. Kris Klenke <kris@mpssociety.org> Worden, IL USA - Thursday, June 26, 2003 7:12 AM CDT My thoughts and prayers are with you as you grieve your beautiful boys. I can't begin to imagine your pain. May God give you strength in the days and weeks ahead. Sandra Ruoff Piscataway, NJ - Thursday, June 26, 2003 7:12 AM CDT My prayers will be said specifically for you tonight. Jane Trimper Stanton, MI - Thursday, June 26, 2003 7:06 AM CDT All our prayers are with you. May God give you the strength to endure this terrible heartache. Carol/Volunteer Hunter's Hope <Blsfn12@aol.com> Le Roy, NY - Thursday, June 26, 2003 7:04 AM CDT What handsome boys! We are so sorry for the loss of your two boys. Please now that we are praying for you during this difficult time. Love & prayers, Jeff, Gretchen, Megan & McKenzie Woods St. Louis, MO USA - Thursday, June 26, 2003 7:04 AM CDT We were so very saddened to learn that Hermes had passed away. Know that you and your family are in our prayers. Nancy and Ed Aman <nancyaman@charter.net> Sanford, NC - Thursday, June 26, 2003 6:56 AM CDT We cannot understand your loss, but as parents, our hearts are breaking. We pray for God's comfort for you and your family during this difficult time. Praying Friends from Michigan. - Thursday, June 26, 2003 6:54 AM CDT My heart is breaking for the loss of both your boys. Deb Prichard has kept all of us who visit Noah's site informed about your sons. I will keep you in my prayers as you face the next few days, months and longer without your precious beautiful boys. Christine LeRoy, NY USA - Thursday, June 26, 2003 6:50 AM CDT Marianna & Savva My son Jeremiah was on the floor at 5200 with your boys. My heart weeps for your loss. You will all remain in our prayers to heal your broken hearts. Peggy & Jeremiah <caringbridge.org/ia/jeremiah> Davenport, IA USA - Thursday, June 26, 2003 6:27 AM CDT Dearest Marianna and Savva, Back in Holland Jacomien called me and told me about the loss of Hermes. It came as a terrible shock. You are in my mind all the time. You absolutely did the right thing to come to Duke and fight for your boys; like we you didn't have any other choice. I wish you the faith and the strength to carry on. Love, Jan Jan Prakken <apotheekdiephuis@hetnet.nl> Groningen, Gr Netherlands - Thursday, June 26, 2003 6:06 AM CDT I came in contact about your family through Noah's web page. I don't know you or Noah, but I know the one who does. I am praying for God to give you the peace and comfort that only He can give. Love in Christ.... Pat Reed Maryville, Tn. U.S.A. - Thursday, June 26, 2003 5:42 AM CDT May God give you peace and comfort. We are so sorry for your loss. We continue to keep you in our prayers. Chris & Noreen <talkntalkn@aol.com> - Thursday, June 26, 2003 5:00 AM CDT Marriana kai Savva, therma syllipitiria. Sas agapame poli kai thaumazoume ton agona pou dosate me to soma kai ti psichi. Gia ti sinexia antliste dinamis apo tin agapi sas tous gonis sas t adelfia sas kai .... Kalh tixi apo do kai pera. sas xriazete. Thanassis-Aggeliki <akontos@central.ntua.gr> Athens, Greece - Thursday, June 26, 2003 3:36 AM CDT   Hello I am so sorry for your loss. I am an online friend and supporter of Alex M's family. Alex has been to duke many times. She is five and has relasped from leukemia six times! Andrea Alex's mom asked us all to come and pay our respects to your family. I know you had a long journey to Duke and most likely it was a hard one. I am sorry you will need to go back to Greece without your boys I do not know how hard that must be but please know an awful lot of people are praying for you. Love and hugs, Jessica www.geocities.com/barbiegirljessica2003 Jessica <barbiegirljessica@netzero.com las vegas, nv usa - Thursday, June 26, 2003 2:11 AM CDT Dear Savvas and Marianna, The horrible news knocked us out completely. But at least you have been fighting trying to save your children! All four of you are in our hearts forever. Keep your head up! Harry and Siena <harry.siena@wolmail.nl> Bennekom, Netherlands - Thursday, June 26, 2003 1:34 AM CDT Just know that I am yet another stranger who has been following you through other people's websites, and your own. I am praying for you, and just know that you are in my thoughts all the time. Keep the faith, and know that God is in control. Meg - Thursday, June 26, 2003 1:20 AM CDT Dearest Marianna and Savvas, I can't even imagine what you are both going thru and I am just in shock. I can't believe that both of you beautiful little boys are gone. Please let me know if there is anything that we can help you with, anything at all. Rock-a-Bye, Sweet Angel... Shelter him, Dear Lord, I pray, and keep him in Your care... show him heaven’s beauty, as laughter fills the air. Give him all my love to keep, and sing him lullabies... Rock-a-bye sweet angel, sleep well in heaven’s skies. May The love of God enfold you, as He cradles you tonight... while cherubs dance by softly, with their halos glowing bright. Rock-a-bye sweet angel, too precious for this place... you were here for just a moment, but your memory, I embrace. Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Thursday, June 26, 2003 1:01 AM CDT Marianna and Savvas, Words cannot express the feelings of sorrow that I feel for you and your loss. I cannot imagine what you must be feeling at this time. I do know that I admire the courage and the dedication that you two have shown throughout your sons’ ordeal. Although we have not gotten to know each other all that well I feel that I am a better person having known you. I hope that you find peace in knowing that your sons’ suffering has ended and that God loves them and will take care of them until you see them again in Heaven. Your boys were fortunate to have such devoted and caring parents and I believe that the two of you as parents have set the standard for others to follow. I will not forget you or your mother Angelica or how the lounge always came to life whenever you were all there. You will always have a friend here. Good luck, and know that your boys are smiling down on you from above. May God bless you! Steve Bishop <Stevieb0163@cs.com> Roanoke, VA USA - Thursday, June 26, 2003 0:32 AM CDT I am so sorry for the loss of your 2 beautiful boys. May the Lord give you strength during this difficult time in your lives. May your memories of the boys help fill the hole in your heart. God bless you and keep you. Lori <lhasler@insightbb.com> Louisville, Ky USA - Thursday, June 26, 2003 0:13 AM CDT I have followed your sons' progress through Nolan's page and am so sorry to learn of your loss! May God give you strength to face these difficult and sad days. May you feel His loving arms around you, as He leads you one day at a time. Winona Foley Garland, TX USA - Wednesday, June 25, 2003 11:40 PM CDT I do not have any words to express the grief I feel for you. My heart is broken. Just broken. I pray that God will wrap his arms around you and hold you CLOSE. You are in our prayers! In Christ, Ellen, Brian, Simon and Andrew Bowman www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> - Wednesday, June 25, 2003 11:37 PM CDT Have been following your sons through Noah and Andrew's pages. May God watch over and keep you during this most difficult time. There are definitely two beautiful angels up there watching over us all. Martha White <MWhite6@charter.net> Princeton, WV - Wednesday, June 25, 2003 11:17 PM CDT I am so sorry to hear about your loss. Please know that many are praying for you at this very difficult time. Trueda - Wednesday, June 25, 2003 11:06 PM CDT I can't begin to express my heartfelt sympathy- I met you at Duke right before the boys were to be transplanted- you were so kind and the boys were beautiful- I have prayed for you and will continue to do so- my heart aches for you and I can't begin to imagine what you must be going through- our love, thoughts, and prayers are with you always- wendy and carson (www.caringbridge.org/nc/carson) - Wednesday, June 25, 2003 10:57 PM CDT I am so sorry to hear of the passing of both your precious babies. I learned of you all through Noah's page and wanted to come here and express my heartful sorrow for you and all your family. Please know that there are many of us out here that check on families like yours and we appreciate that you have shared your babies with us. Bless you. Rae <rfbocritter@yahoo.com> Tulsa, OK - Wednesday, June 25, 2003 10:17 PM CDT Our dearest friends, Marianna, Savva, and Aggeliki. Words cannot describe the sorrow we are feeling for little Ermouli. The strength and courage you have shown during this difficult time in your lives is an inspiration to all parents. May God continue to give you stength to continue on. ..Zoe se sas. Love, Patty and George Gazis Patty Gazis <pgazis26@hotmail.com> Skokie, IL USA - Wednesday, June 25, 2003 10:02 PM CDT My thoughts and prayers are with you and your family during this most difficult time. Crystal Johnson <cjlsv@yahoo.com> Pleasant Hill, CA - Wednesday, June 25, 2003 10:00 PM CDT There are no words - but many prayers for comfort for you and all who loved your sons. Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Wednesday, June 25, 2003 9:46 PM CDT May God bless you & your family in your time of such a great loss. Judy <hibb00@yahoo.com> Dallas, GA USA - Wednesday, June 25, 2003 9:41 PM CDT My son Jordan and I have seen you many times while we were taking walks on the unit, but we've never really spoken. I want you to know how sorry we are to hear about both of your children. My heart breaks for your loss. I pray that God comforts you in your time of sorrow. Carrie, Patrick, & Jordan Horton (cellmates 5206) <iteach2u@hotmail.com> - Wednesday, June 25, 2003 9:30 PM CDT There are no words that seem adequate at this time, but know that you are thought of and prayed for. Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Wednesday, June 25, 2003 9:18 PM CDT As I sit here this evening my thoughts and prayers go out to you and your angel babies. Barbara Tampa, FL - Wednesday, June 25, 2003 9:15 PM CDT Prayers and love from Georgia, USA. Dagny Powder Springs, Ga USA - Wednesday, June 25, 2003 9:09 PM CDT I am so sorry to hear of your losses, and can't imagine what I could ever say to comfort you! But know that you are in my prayers, and that God will watch over and care for you during this dark time. Take care of yourselves! Andrea Erie, CO - Wednesday, June 25, 2003 9:09 PM CDT May God give you peace and comfort. We are so sorry for your loss. No matter how tough things got Marianna, you always had a friendly smile for Jack and I. www.caringbridge.org/mo/jackshuler Gina Shuler - Wednesday, June 25, 2003 8:53 PM CDT To Mommy & Daddy with love from Aristofanis and Hermes XOXO We have not turned our backs on you, So there is no need to cry. We're watching you from Heaven, Just beyond the morning sky. We've seen you almost fall apart, When you could barely stand. We asked the Lord to comfort you, And watched him take your hand. He told us you are in more pain, Than we could ever be. He wiped his eyes and swallowed hard, Then gave your hand to us. Although you may not feel our touch, Or see us by your side. We've whispered that we love you, While we wiped each tear you cried. So please try not to ache for us, We'll meet again one day. Beyond the dark and stormy sky, A rainbow lights the way. Pat <patricia.manning@attbi.com> antioch, ca usa - Wednesday, June 25, 2003 8:44 PM CDT Words can not express the sorrow we feel for you. We will be praying for comfort, strength and peace for the days ahead. You were the first people we meet in Durham when we arrived and were so kind to us, please remember if there is anything we can do for you do not hesitat to ask. Love, The Ramsey's Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey) <samdramsey@msn.com> - Wednesday, June 25, 2003 8:35 PM CDT Dear Savvas and Marianna, I was just devasted to hear about Aristophanis and now to hear about Hermes is just to much. My heart goes out to you both. It's hard enough to imagine losing one child but to lose two is just unbelievable. I'm sorry....just doesn't seem enough. I am truly sorry and will continue to pray for you both that GOD will bless you with Peace and a Healing that only he can give. Please know we love you both and we will continue to place you in our daily prayers. Love, Traci and Cody Sharp Traci Sharp <SharpT24@wmconnect.com> Salisbury, NC USA - Wednesday, June 25, 2003 8:33 PM CDT I am very sorry. I will pray for your family. Jo <jvon557@aol.com> FL - Wednesday, June 25, 2003 8:30 PM CDT There are no words to express how sorry I am for your loss, both of them. I can only say that it is simply not fair. I am praying for you and your family. alyssa - Wednesday, June 25, 2003 8:24 PM CDT I have no words to say that could possibly offer you comfort...I am so very sorry for your loss...My family and I have been praying for your family since you came to Duke...I so hoped and prayed for your children to be healed here on earth with you...I will keep you all in our utmost prayers. In Love & Prayer...Eleasha & Cody & Greg & Riley & Jeremy <www.forcody.org> - Wednesday, June 25, 2003 7:44 PM CDT I am so sorry for your loss. May God grant you strength and peace during this difficult time. Becki Cost Bellevue, WA USA - Wednesday, June 25, 2003 7:00 PM CDT I pray for you! I lost my little Reese on March 10 this year at Duke. I never had the opportunity to meet you or your boys but I know, in my heart, that they were very special. I had a hard time making myself understand that I did what, at the time, was best for Reese and you have to know that you also did what was best for your precious babies. I can't imagine the pain, hurt, and anxiety you must be going through but you have many, many people praying for you. I know Reese met your children at the gates and has already shown them around. God only takes the best!!! Shawn Coble (www.caringbridge.org/nc/reesecup) <selboc@aol.com> Mount Airy, NC - Wednesday, June 25, 2003 6:48 PM CDT My prayers and sympathies are with you and your family. Love from California Jan <anjrosen@yahoo.com> Agoura Hills, CA USA - Wednesday, June 25, 2003 6:34 PM CDT So many things happened in the last twenty five days and there are no words to express how we fill about this terrible tragedy. There are only tears for the smile of beautiful Ermoulis that we will never see again. Lia Kontopidi <lkontopidi@sch.gr> Athens, Greece - Wednesday, June 25, 2003 6:30 PM CDT I am so sorry to hear that Hermes passed away. My sincere condolences go out to you. I don't have any words right now...just tears! Kathy <kmayo42@aol.com> Whitehall, OH - Wednesday, June 25, 2003 6:18 PM CDT My mother works with Noah Prichard's grandmother and I have been interested in his condition when I read about your son Hermes. I am almost 15 years old and I don't think I could handle what you have handled. God's plan is perfect, he just needed two more angels. John 14:27 says, "Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid." I believe that little Hermes and his brother are safe and at peace, and I will pray for you and your family. I love you! Stephanie <lilstephie007@hotmail.com> Clovis, CA USA - Wednesday, June 25, 2003 6:10 PM CDT I have been hearing updates about your precious boys from Noah's site. It hit me pretty hard to find out that Hermes didn't make it. I will be thinking of you and your boys often. I know that there isn't anything I can say to make things better. Just know that my heart goes out to you. Elaine Whiting <greenimpishgrin@aol.com> Micanopy, FL - Wednesday, June 25, 2003 5:42 PM CDT I am very sorry for the loss of your boys........God Bless you with strength and peace. E.B. - Wednesday, June 25, 2003 5:39 PM CDT I'm sorry to hear about Hermes. My thoughts and prayers are with you. Linda Shelby, MI - Wednesday, June 25, 2003 5:35 PM CDT all our thoughts and prayers for your boys. the collier's tampa, fl - Wednesday, June 25, 2003 5:29 PM CDT My heart just sanked right now when I read your entery. I'M SO0000 SORRY. Having to go see your first son pass then today your other son. I don't know what to say. I know there are no words that can be said to make you feel better. But please know that I will be praying for you. Again I'm deeply sorry. Your boys are reunited now both in the arms of Jeses. Gold bless you sally <sally_torres@lusknet.com> anaheim, ca usa - Wednesday, June 25, 2003 5:10 PM CDT Dear Mariana and Savva, We are so sorry .. We are keeping you in our prayers. God has two little angels. Joelle, Bernard and Randy Ramsey Waco TX Joelle Andree Ramsey <trramsey@swbell.net> Waco, TX USA - Wednesday, June 25, 2003 5:08 PM CDT I am so sorry for your loss. I cannot imagine the pain you are feeling. May God comfort you in this time of sorrow. You will be in our prayers. God Bless you. Edith Heilhecker (Nolan Ramsey's Grammy) Abilene, TX USA - Wednesday, June 25, 2003 4:25 PM CDT I am so sorry for your loss of both of your boys. I am a friend of Greg, Debbie & Noah Prichard's and read about your site on theirs. I too had a son like Noah with Krabbe, my son passed away at 15 months old 4 years ago. I truly am sorry for your loss. May you find peace and comfort in knowing your boys are pain free living with our Heavenly Father. God Bless, Kelly Brown Kelly Brown <kellysue@mindspring.com> Durham, NC - Wednesday, June 25, 2003 4:19 PM CDT I am sorry for your loss. May God hold you in the palm of His hand. Lisa USA - Wednesday, June 25, 2003 4:15 PM CDT God Bless you and your husband and your Angels. I am so sorry for your losses......I know that God will help you through these times.....remember that your babies are happy together and at peace. God Bless. lori dietz <nevlor_2000@yahoo.com> baldwin park, ca usa - Wednesday, June 25, 2003 4:13 PM CDT May God draw you nearer to Him during this time of sorrow. A friend in Christ USA - Wednesday, June 25, 2003 4:06 PM CDT Marianna and Savva, I had checked on you this morning and wanted to check back in to see if perhaps there was an update on little Hermes. I fear the worst after reading through the guestbook entries. I am so, so sorry for your loss. To have lost both of your sons to this illness -- my heart aches for your loss and the grief that you carry. I'm praying for you and for your family. Michelle Strayer The Colony, TX USA - Wednesday, June 25, 2003 3:58 PM CDT Dear Marianna and Savvas, Words fail to express the sorrow of the heart at moments of such great loss. May the little, bright Souls of Hermes and Aristofanes rest in peace. My deapest and most sencere condolences. Eleni Eleni <emylona@uoft02.utoledo.edu> Toledo, OH USA - Wednesday, June 25, 2003 3:57 PM CDT Marianna and Savva You are in our hearts and minds this dreadful time of losing Hermes. May you find the inner strength to look forward to the future during this time of the ultimate sorrow a parent can face. You did whatever was humanly possible to save your boys and your bravery in the face of such adverse cirmustances will be an inspiration to all of us. Your little angles will be looking after you and they will always be alive in your hearts and minds. Our cincerest condolences. Theodosia, Apostolis and Elli <theodosiag@netzero.net> Durham, NC - Wednesday, June 25, 2003 3:41 PM CDT May you gain strength from the prayers being said for you. God Bless. I am so very sorry for you loss and the pain that you are suffering. A Friend Tampa, - Wednesday, June 25, 2003 3:32 PM CDT Our thoughts and prayers are with you in this time of your loss. Janet Krawitz <j_krawitz@swbell.net> Springfield, MO - Wednesday, June 25, 2003 3:29 PM CDT Marianna and Savvas, My family is so sorry for your loss. We are continuing to pray for your family and your well being during this rough time. You both are incredible parents. Please know that in your hearts you did everything you could for your children. Your family is in our thoughts and prayers. Stephen, Melissa, and Manny <www.caringbridge.org/sc/mannymiramontes> Duke University PICU, NC - Wednesday, June 25, 2003 3:25 PM CDT So sorry to hear about your loss. It is indescribable and the best I can do for you is pray. Karin Mika <karin.mika@law.csuohio.edu> Berea, Ohio USA - Wednesday, June 25, 2003 3:21 PM CDT I'm so very sorry- I cannot imagine the pain you and your family are experiencing. May God heal your wounds and help you find peace. Brandi Albuquerque, NM - Wednesday, June 25, 2003 3:13 PM CDT I am so sorry to hear about you losing Hermes as well. I can't begin to imagine how you are feeling right now, losing both your boys. I will keep your family in my prayers. Danielle Santa Clarita, CA USA - Wednesday, June 25, 2003 2:51 PM CDT Ermes kai Aristofanes, It has been only a short time since I first met you. From the first moment though, I admired the currage and perceverance that you and your Parents', Savvas and Marianna, showed. Little Aristofanes, you left us early to go to the beautiful place where we all would like to go one day. May your Soul rest in peace! Little Hermes, I pray to God that you will be a winner during this time of battle. Savva and Marianna, the only thing I can say about you is that if God blesses me with children one day I would like to be as a wonderful, loving, caring and patient Parent as you are! Love... Eleni Eleni Mylona <emylona@uoft02.utoledo.edu> Toledo, OH USA - Wednesday, June 25, 2003 2:39 PM CDT There are no words that I can think of that will help at this time. Just know that you did everything humanly possible (and then some) for your boys. Unfortunately, it was out of your hands. As you return to your home in sadness, don't lose sight of the fact that as much as they'd want to be here with you, your little boys are together once again, forever shining down on their mom and dad. They are SO proud of you and love you SO much. You were the best parents that they could have had. I'll keep you in my thoughts and in my heart. Love, Pat Pat <patricia.manning@attbi.com> antioch, ca usa - Wednesday, June 25, 2003 2:36 PM CDT I came to your site through several other caringbridge sites. I just read on baby Noah's site that your sweet boy is at peace and forever out of pain. I am so sorry for the loss of your precious little ones. Please know we will be lifting your family up in our daily prayers. Kristi in Iowa - Wednesday, June 25, 2003 2:27 PM CDT I want for you all to know that I am down on bended knee praying for your family. I am so sorry to hear this news. Maybe something that will bring you peace is knowing that your sweet precious boys are now together, looking out for you, just as you once looked out for them. They now have new, healthy bodies...no more hospitals, no more pain and suffering. You all will remain in my thoughts and prayers. I pray that God strenthen you all and give you peace and comfort. God bless you all. Leah Wilson NC - Wednesday, June 25, 2003 2:27 PM CDT dear marianna, savvas and angelica: i have just learned about hermes, i cannot express my feelings at this moment of such sorrow, there are some things that have no explanation, and this is one of them. i cannot imagine the pain that you all carry inside, but with time you will have sweet memories of both your kids. God has different plans for us that we sometimes do not understand, only he knows the why and the when. what do we do to deal with such pain? i have no idea, i think you are very strong and with the support of all your family and friends you will get through it. i have identified with all of you since the moment we met, we have shared some funny and sad times that i will never forget. i think you have a great family, i wish i could communicate more with "grandma". i will never forget how she was always trying to feed me and everybody at the unit. thank you for your friendship and your support, i think you are all very strong and special family and wish we can stay in touch. even if marianna says she's not very good with computers,we can write via email. you will always be in our prayers. take care. we love you denise, carlos, camila, javier and ignacio perez-albert <titicpa@hotmail.com> - Wednesday, June 25, 2003 2:20 PM CDT Hermes darling, I have come to know you through other caringbridge sites. I am Jerri and I have a healthy 6 year old grandson, Kaden. We pray for many, many kids and their families daily and we will add Hermes and angel Aristonphanes to our list. There have been angels in my life. While they haven't arrived with a blast of trumpets or a rustle of wings, I've known them just the same. They performed their acts in human guise, sometimes borrowing the faces of family and friends, sometimes posing as well-meaning strangers. You have known them, too, when just the right word was needed, when a tiny act of kindness made a great difference...or perhaps you heard a voice whispering in a night of sorrow, the words not quite clear but the meaning unmistakable--"THERE IS HOPE...THERE IS HOPE." Father God, be with Hermes and his parents at what must be the hardest time in their lives imagineable. They need Your loving arms tight around them as they mourn the passing of their little angel. They need Your guidance, understanding, love, patience, trust,joy, peace, and above all Your healing for Hermes. Please Lord take away the pain, the swelling, the mucusitis, and breathing difficulties from Hermes' little sick body and make him whole again. Be with his parents who are so far away from home and all the comfort that comes with being in familiar surroundings. Bless them with each day being better than the last and show them in a big way that You are the Great Physician. Lord, hear their pleas and grant them rest in the middle of this horrible storm. When the storms come, O Lord, we will trust in you. When the giants look down upon us, we will trust in You. For You are our rock, our salvation, our mighty fortress. So we will not be afraid. We will trust in you, knowing that you love us more than we can know. Help us also to hear you calling us to new directions, to cross over to other shores where we might come to new service for You and grow closer to You. Amen Peace to you all. You are magnificent parents with a beautiful son and perfect angel. God speaks to you and to all people through His Word! Psalm 33:11 "But the plans of the Lord stand firm forever." Love in Christ Jerrri and Kaden <pakrfan1@msn.com> Sioux Falls, SD USA - Wednesday, June 25, 2003 2:00 PM CDT I'm sending more prayers & love to you and your family. Hermes is in good hands, and he knows how much you love him. Love, Pat pat <patricia.manning@attbi.com> antioch, ca usa - Wednesday, June 25, 2003 1:52 PM CDT Savvas and Marianna, and family, Our hearts are aching for you as you continue to endure so much pain. We could never imagine the sorrow that fills your hearts at this very moment, but we want you to know that you all have touched our hearts dearly, and we consider you an extended family. Please know that we will never forget the kindness that you have shown us, nor will we forget your beautiful boys and the strength & courage that they showed throughout their extremely short lives. We will pray for you and your family and you try to search for some answers and attempt to make sense of it all. May your sorrow and pain that fills your hearts now, one day be replaced with warm memories and peace. You remain forever in our hearts and on our minds...God bless you both! Aloha, Greg, Debbie and baby Noah The Prichard Family <www.caringbridge.org/hi/noah> Honolulu, HI USA - Wednesday, June 25, 2003 1:51 PM CDT I am praying for Hermes that he lives through this and is healthy and strong. I am so sorry for your loss of Aristophanes. I pray that the Lord Jesus Christ will comfort you both right now and give you peace for your little boy. Luke 18:1 Carolyn Wyman <sythismom@yahoo.com> Belding, MI - Wednesday, June 25, 2003 1:40 PM CDT our prayers are with you!! In HIS love, Ellen www.caringbridge.org/page/andrewshope - Wednesday, June 25, 2003 1:27 PM CDT Hello Savvas, Marianna and Hermes.... I am glad you have a website now. We ask about you often. I know this is a very hard time, but please keep in mind we are thinking and praying for your daily. We wish you all the best and most of all we wish for you....Devine Healing and Devine Health. My GOD bless each one of you ten fold. All Our LOVE Traci and Cody Sharp Traci Sharp <SharpT24@wmconnect.com> Salisbury, NC USA - Wednesday, June 25, 2003 1:17 PM CDT I have heard of your family as I have checked on others, and have included them in prayers for all the children. While I have 2 sons who are diagnosed with MPS6, they are in relatively good health and I can only imagine the pain you are feeling. In checking on the other kids, on June 2 I read on Noah's site www.caringbridge.org/hi/noah about a immunosuppresent drug FK506 that was causing several problems with him and others. His Dad made the doctors stop giving this drug (the doctors were convinced about an infection/virus). I do not know what the labs were saying, but Noah is back out of PICU after 4 weeks, his swelling is down, and his breathing is better (still some mucus that is suctioned). Some of the side effects of this FK506 that Noah was experiencing were sudden & dramatic drop in Hemoglobin, difficulty breating, vision problems, unexplained weight gains--causing fluid to leak into the lungs in Noah's case, and swelling. The most severe reactions came whn weaning steroids due to allowing more of the FK506 chemical to bond with tissues. I do not know if your son is taking this, or if any of this is related, I just thought you should be aware of some of the possible problems that have been exhibited in others taking this FK506 if you were not already aware. I will pray for healing for your family. Darla <D6318_@hotmail.com> Illinois - Wednesday, June 25, 2003 12:56 AM CDT I've been hearing about your boys for some time now and was so sorry to hear of your loss of Aristophanis. I continue to pray for Hermes and for his family and what you are going through. May God keep his arms around you and give you the comfort and strength you need to get through this horrible time. Keep your faith strong. God Bless You!! Kim Barron <kbarron@ibsa.com> Rowlett, TX USA - Wednesday, June 25, 2003 12:55 AM CDT I found your website while visting another...I can not image the pain your are dealing with! As a mother my heart hurts so bad for you...All I can say or do for you is pray! May the Lord bless you and keep you and may he grant you peace during these difficult days. Robin Tucker <rtucker@hmsracing.com> - Wednesday, June 25, 2003 12:21 AM CDT SOU EYXOMAI ERMOULH NA GINEIS MESA APO THN KARDIAS MAS KAI TIS EYXES MAS GRHGORA KALA. KOURAGIO POLY STOU GONEIS SOU DINEI O THEOULHS KAI H AGAPH TOUS SE SENA. ENAS FILOS APO HAMPTON VIRGINIA GIANNAKHS VASSILAKOPOULOS. KAI APO TOUS GONEIS MOU POLES EYXES ZOH KAI BASILHS ZOH BASILAKOPOULOU <zoemav@yahoo.mail> HAMPTON , VA USA - Wednesday, June 25, 2003 12:09 AM CDT I just wanted you all to know that I was thinking of you and praying for Hermes and his family. I can not begin to imagine what you guys are going through. Hermes is a fighter- I've had to give him lots of medicines and personally know how strong he is! My thoughts are of you all. Jennifer (the nurse) Jennifer Hungate Durham, NC - Wednesday, June 25, 2003 12:04 AM CDT May the healing warmth of love fill your hearts and bring strength and comfort. God Bless, Cathy Sky <cathysky@intrex.net> Chapel Hill , NC USA - Wednesday, June 25, 2003 11:48 AM CDT Ermouli, Marianna, Sava, Kiria Aggeliki. You are all constantly in our thoughts and prayers. I have been in contact with Dina Palouris on a regular basis and have been finding out about Ermouli. We can only hope for Ermouli to get better soon so you can all return back home. We love all of you! Patty and Georgos Patty Gazis <pgazis26@hotmail.com> skokie, il usa - Wednesday, June 25, 2003 11:41 AM CDT Savvas and Marianna, I am Nolan Ramsey's aunt. You have weighed heavy on the hearts of Sam and Nancy and they have asked our family to pray for you and your children. I'm sorry to read that little Hermes is worse today. I'm praying for each of you and carrying Hermes close in my heart. It's so hard to see our children suffer, but as "tragic" and painful as it is for you, don't lose sight of God - continually seek HIS guidance and have strong faith! The Lord provides for us in our time of need. Repeat that to yourselves when you've reached your breaking point. When the days and nights seem to melt together and there's never a time to relax and breathe... maybe you're there now. Maybe you've been there and managed to keep going... God is right there with you. Thank you for sharing your beautiful sons with us. They are angels, no doubt! God has truly blessed you with them and blessed them with you! Michelle Strayer Nolan's Site The Colony, TX USA - Wednesday, June 25, 2003 11:27 AM CDT Kalhmera kai stous dyo, i hope Ermis' conditions remain stable. Marianna, yesterday we didn't have the chance to see you at all. We'll come back one of the next days so that we can talk more. Savvas I hope i din't upset you too much yesterday, it wasn't my intention. I wish Hermes gets better. I know he is very strong and having you both at his side, gives him even more strength. I admire you as parents and as people. You are teaching us how we should face the difficulties that life sometimes presents us. Even in the hardest moments you've always been kind and smiling. Thank you and best of wishes to Ermouln. Polla filia kai kouragio Giovanna <g_koukoulis@yahoo.com> Chapel Hill, NC USA - Wednesday, June 25, 2003 11:04 AM CDT I read about your boys from one of the other caringbridge websites. You are all in my prayers. I am glad you have a site of you own now. I can check in daily and see how he progesses. From what I have read from other parents, you have tremendous strength and faith. The other parents in the hospital with you are a great source of comfort and knowledge and from what I read they lean on each other all the time. It will be one of your greatest assets while you are on this leg of your journey. You will have an adoptive family away from home and for years to come. I will keep you near in my thoughts and prayers. Carol Burgess Conway, NC USA - Wednesday, June 25, 2003 10:56 AM CDT we pray for you every day, for the Lord to give all of you strength and faith. your neighbors at 5211, the perez-albert family - Wednesday, June 25, 2003 10:46 AM CDT Know that we are praying for Hermes and your family during this very difficult time. It must be so very hard going through all this and being away from home at the same time. May God give you the strength you need. Nancy & Ed Aman <nancyaman@charter.net> Sanford, NC - Wednesday, June 25, 2003 10:04 AM CDT Dear Mariana and family, We have been praying for your family for several months now. We will pray that he is better today. All our best, Vickie and family Vickie Whicker NC - Wednesday, June 25, 2003 9:48 AM CDT Ermouli, get well very soon. We think of you every day. It was very touching seeing how many people in USA pray for you. When your 5-year old cousin Aristophanis saw your photo in the web, he said: "Glikie mou Ermi". Your aunt Lia. Lia Kontopidi <lkontopidi@sch.gr> Athens, Greece - Wednesday, June 25, 2003 4:51 AM CDT You and your family are in my prayers! Trueda Seattle,, WA - Tuesday, June 24, 2003 11:54 PM CDT Hello, I am glad that you have a website now so I can check on Hermes everyday. I ask Ellen about him when I talked to her. Our daughter has Sanfilippo and we were at Duke just before Andrew was admitted for transplant. We were there to have our daughter evaluated, but it was decided the disorder had progressed to far for her to benefit. I check on all the MPS kids who have gone or are going through transplant. I am so sorry that Aristophanis (I apologize if I spelled his name wrong) passed away. I will be thinking of all of you and praying for Hermes to get out of PICU soon and for the mucocitis to clear up. Take care, Sheila George <sjgeorge@sbcglobal.net> Spring, TX USA - Tuesday, June 24, 2003 10:49 PM CDT Savvas and Marianna, I am so glad to see you have a website. We have been praying for you always. I pray for your strength and comfort. Please know how much we care and if you need anything please let us know. Love, The Ramsey's Nancy and Sam (Nolan Ramsey MPS-1-H www.caringbridge.org/co/nolanramsey) - Tuesday, June 24, 2003 9:41 PM CDT I am glad to see your website and read of all the support you have! Savvas and Marianna, it has been a pleasure to get to know you even in this difficult time, and I have very much enjoyed working with and playing with your beautiful boys. I have tremendous respect for the strength and character of you all. You are in my thoughts and prayers every day - Cathron Donaldson Durham, NC USA - Tuesday, June 24, 2003 8:58 PM CDT I'm so sorry for the loss of your son Aristophanes and will be praying for the complete healing of Hermes. Brandi NM - Tuesday, June 24, 2003 7:37 PM CDT I'm so glad to see that you have a website now! I have seen you guy's mentioned on other websites and have been praying for your beautiful little boys. I was so sad to hear about your little ^i^ Aristophanes ^i^ passing away. Praying for little Hermes to get better soon. Will keep checking on you! Kathy <kmayo42@aol.com> Whitehall, OH - Tuesday, June 24, 2003 5:43 PM CDT Hi got your website from Tommy's and wanted to let you know that we've been praying for you for awhile now because other caringbridge families have asked. We will keep praying for little Hermes and we send condolences on the passing of Aristofanis Jacqueline <leticiaci@yahoo.com> Grand Cayman, Cayman Islands - Tuesday, June 24, 2003 5:40 PM CDT Dear Marianna and Savvas, Let me begin by saying that your whole family has been in our prayers and thoughts daily! We were so saddened to hear ofts Aristophanes' passing. We pray that you are finding the strength and support you need. We will look forward to following Hermes' journey now with your website. Luke and I will be back at Duke the last week of July. We'll be sure to get in touch with you. God bless you all! Athena Sarantinos and family <georgeathena@msn.com> Seattle, WA - Tuesday, June 24, 2003 5:00 PM CDT Hi My family are glad to to your new website. I meet you a couple of times in the clinic. My daughter was the 5th transplant patient for Sanfilippo. We left for home about a month ago. It has been difficult for us to keep track of your boys. We are so sorry about the passing of your little guy. I hope all goes well for your family. I am sure Hermes will be out of the picu soon. It is a scary place to be as you know. We will be checking for updates and thinking of you everyday. Lots of love and prayers The Fitzpatrick's www.caringbridge.org/oh/jill Michelle Fitzpatrick <jillandmichelle@juno.com> Medina, Oh - Tuesday, June 24, 2003 2:40 PM CDT Dear Hermes (down here with us) and Aristofanes (up there with the angels), I am very glad that you now have such a nice website. I was always hoping to make one for you, but I never managed to do it. Anyway, this one is way better than anything I ever thought of. Remember that your parents, your friends, and many other people (known and unknown) around the world love you from the bottom of their hearts. I wish and I pray for the best! Thank you for showing us the meaning of true Love. Thank you Savva and Marianna for being role models of parental love and patience. Michalis MIchail G. Lagoudakis <mgl@cs.duke.edu> Durham, NC USA - Tuesday, June 24, 2003 2:39 PM CDT Geia sou Ermouli, Se agapame poli. Na mas gineis grigora kala. Leonidas <la5@duke.edu> Durham, NC USA - Tuesday, June 24, 2003 2:35 PM CDT Hi Hermes, Savvas and Marianna! No matter how large the physical distance, we are with you in our thoughts! Great that you have a website now, so we can follow your adventures and express our hopes directly! Don't give up! Harry and Siena <harry.siena@wolmail.nl> Bennekom, Netherlands - Tuesday, June 24, 2003 1:52 PM CDT Hi there! I met you up on the unit next week when Ellen, Andrew, Simon and I came by to visit. Just wanted you to know that I am keeping your entire family in my thoughts and prayers. Blessings and I will check back in on you soon. Khalita My Caringbridge Site Duke Peds BMT Aplastic Anemia <khalita@hecaresonline.org> Lexington, NC, - Tuesday, June 24, 2003 1:47 PM CDT GEIA SOY BRE MARIANNA MOY! MONO ME TO DIADIKTYO LEEI 8A TA LEME TWRA? STO THLEFNWO DEN SAS BRISKW PIA, KAI LEIPW SYNEXEIA! KAI AYTO TO SABBATOKYRIAKO 8A EIMAI EKTOS. SAS SKEFTOMAI SYNEXEIA, KAI H8ELA NA SOY PW OTI EIDA ENA POLY GLYKO ONEIRO ME TON ERMH XTES TO BRADY! TELEIA POY BRHKA THN EYKAIRIA NA STO PW, PRIN TO KSEXASW! MALLON 8A PERASOYME TO BRADY OMWS! FILIA POLLA D Dimitra <_dimitra_@yahoo.com> Chapel Hill, NC USA - Tuesday, June 24, 2003 12:47 AM CDT I'm glad to see you have a website, I've seen other caringbridge families ask for prayer for you family. I'm so sorry about the passing of you little boy. I will keep praying hard for Heremes that he gets out of PICU soon and they he will have a full recovery. God bless you sally <sally_torres@lusknet.com> anaheim, ca usa - Tuesday, June 24, 2003 11:30 AM CDT Praying for your sweet boy. I hope you can get out of the PICU real soon. God bless you all In my prayers Nicole <nicole54660@msn.com> Tomah, WI - Tuesday, June 24, 2003 10:22 AM CDT I want you to know that we are praying for you guys! I'm gladto see the website up and going!! Hugs, Ellen, Simon and Andrew PS Your Mother is WONDERFUL So sweet!! I'm glad that you have her here with you. www.caringbridge.org/page/andrewshope <AHope4Drew@aol.com> - Tuesday, June 24, 2003 8:50 AM CDT Praying for your baby. Jo <jvon557@aol.com> Crestview, FL - Tuesday, June 24, 2003 5:55 AM CDT Eiste sunexeia sto mualo kai ti skepsi mas. Ermouli se agapame polu kai perimenoume na guriseis dunatos konta mas. Thanasis <tronto@space.noa.gr> Athens, Greece - Tuesday, June 24, 2003 3:53 AM CDT I am so glad you have a website now. I have only been able to glean bits and bobs from other sites. I will be checking in daily and remebering you to my Father everytime we talk. You are loved!!! Susan <parvisfamily02@attbi.com> Sacramento, CA usa - Tuesday, June 24, 2003 0:09 AM CDT Hello. This is Alyssa, a good friend of the Bennett's. I have met you and your boys several times up on the ward. I am so very sorry to hear about the passing of your little boy. I hope and pray everyday that your other son will get better soon. Not a day goes by that you guys are not in my thoughts. Take care alyssa <sabiemc@aol.com> - Tuesday, June 24, 2003 0:07 AM CDT I am praying for your sweet little boy. I have read so many sweet things about both of your boys from some of the other PBMT families' websites. I am sorry for the loss of your son. Please know that so many "strangers" are keeping you in their thoughts and prayers. Sincerely, Liz <lizzymama@hotmail.com> Durham, NC - Monday, June 23, 2003 11:57 PM CDT Hugs and prayers coming your way from California!! Pat pat <patricia.manning@attbi.com> antioch, ca usa - Monday, June 23, 2003 11:40 PM CDT YEAH! I am so happy that you have a website now. Everybody always asks me how you are all doing so I will pass your website on to everybody else. Please let me know if there is anything I can do, you have my phone number.  Alicia & Tommy Bennett http://caringbridge.org/ca/bennettboys/ and www.helpachild.net <Lumberhead@twinwolf.net> - Monday, June 23, 2003 7:33 PM CDT Good Luck Ermouli. We love you very much!!! Anna Konidari <annak@duke.edu> Durham, NC USA - Monday, June 23, 2003 6:44 PM CDT |
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