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Friday, November 30, 2007 11:15 AM CST
We have touchdown! I am at zero today! Probably sounds rather silly to be excited over being zero but that means my count can only go up! It doesn't happen overnight of course but it's the turning point.
Receiving IV fluids again because I was beginning to dehydrate. Platelets are close to being transfused but have to drop a little more. I lied...they just walked in and said you are getting platelets....ok!
Hooray! Go stem cells go!
Thursday, November 29, 2007 11:19 AM CST
Everything is still going well. My numbers continue to dwindle down but no transfusions necessary yet.
Since I have approximately five days to go before the new cells kick in and grow....I am not going to dwell on numbers and things like that. I'll just let you know all about me! LOL.
I am feeling ok except for this darn sinus thing. Should have brought my sinus teapot with me but forgot it. I do get tired easier and going in the hallway requires a mask now to protect me.
Thank you all for your prayers and kind words. Sharon, if the Pink Sisters can stop the weather for the Holy Father...they surely can help me! Thanks, sweetie!
Wednesday, November 28, 2007 7:46 PM CST
Day One - Post SCT
Today was uneventful. I am feeling more tired and have to rest more often. But all in all it was a good day. I am restricted to my room and the hallway outside it due to the filtering system. I cannot risk being around anyone with germs.
My numbers continue to decline just as they expected. May need platelet transfusions tomorrow or the next day.
At least the only way to go is up.
Tuesday, November 27, 2007 7:38 PM CST
The day finally arrived! The stem cells are infused and ready to multiply!
There were a few tense moments with my BP and oxygen level but they were quick to address that!
Now it's feeling bummy for a few days but that part is over! Thanks for your prayers.
Monday, November 26, 2007 8:36 PM CST
Decided to update this at the end of the day and include any events.
Everything still going as planned. Counts are coming down. Right where they want me to be. Today they told me to get out of the room and walk around the hospital; go to the gift shop or wherever as after tomorrow I will be confined to this back hall. So, I did two times. Imagine manipulating an IV pole in a tiny gift shop but I did and didn't break anything!!!!
My infusion is 10:00 tomorrow morning. Kelly and Jim are coming down too. Funny thing is the preservative they have stored my cells in smells like garlic or canned corn. They will be able to smell it and smell it on me but I most likely will not.....hope not anyway.
The hospital chaplain was here today to "evaluate" my emotional thoughts I guess. We had a nice long visit and he said he would stop by tomorrow too.
Thanks for all your prayers. A few rough days ahead and you may not hear from me but know I appreciate you all!
Sunday, November 25, 2007 9:54 AM CST Day Six Saturday, November 24, 2007 7:52 PM CST Feeling more and more tired as the day moves on. My blood counts are coming down as they should and I may need a transfusion tomorrow. Friday, November 23, 2007 5:21 PM CST Day Four - Friday Thursday, November 22, 2007 1:19 PM CST Day Three: Wednesday, November 21, 2007 1:37 PM CST Day Two at SLU Monday, November 19, 2007 3:34 PM CST Finishing up loose ends here at home so I can be sure everything is covered.
Saturday, November 17, 2007 11:00 PM CST Getting everything in place for Tuesday! Although I have been packed for a few months now.
Thursday, November 15, 2007 6:55 PM CST Woo hoo! My transplant is pre-certified! Wednesday, November 14, 2007 5:31 AM CST I had my pulmonary function test yesterday. While I was going through it my daughter, Kelly decided to call Michelle and politely check what was happening. Monday, November 12, 2007 6:58 PM CST DEFINE FRUSTRATION: Frustration is finding out I will not be admitted tomorrow. Michelle, the same Transplant Coordinator I reamed last May has screwed up royally again. Saturday, November 10, 2007 10:37 PM CST Busy making sure everything here is lined up before I go to the hospital. Tests Monday and Tuesday at SLU.
Friday, November 9, 2007 11:30 PM CST It's all finalized....lab work and CT/PET on Monday. Muga scan and pulmonary function test on Tuesday then admitted. Friday, November 9, 2007 8:12 AM CST Still waiting to hear from SLU on times for scans. Cindy will call me today. Tuesday, November 6, 2007 10:20 PM CST I am getting close! Dr. Richart said my platelets are at 67,000 so we can proceed with planning the transplant! Sunday, November 4, 2007 11:57 AM CST Enjoying beautiful fall weather! Before long it will all change.
Wednesday, October 31, 2007 4:08 PM CDT Good news! My platelets are on the way up! Woo Hoo. Now when they reach their peak they will give me chemo and bring it down again. Makes sense, huh?
Tuesday, October 30, 2007 2:08 AM CDT Ho Hum. Sinuses are getting a smidgen better. Tomorrow is another weekly bloodwork so we can see how the Zevalin is progressing. Next Monday I see the doctor again for his "take" on the Zevalin. I wait. Sunday, October 28, 2007 1:22 AM CDT We had a fantastic time tonight at my nephew's home. Every fall we have a bonfire and fun time for the October birthdays (which also include my nephew!)
Thursday, October 25, 2007 11:53 AM CDT Still waiting...patiently, kind of! Sinuses are improving. I bought the sinus cleanser that I saw on Oprah (Of course that makes it perfect!). But it does work...rinsing out your sinuses can bring results you never thought possible. Kind of yucky but it works!
Tuesday, October 23, 2007 5:13 PM CDT I had my bloodwork today and onco nurse said it looks good. Platelets are down a little but no transfusion needed. Other counts are good. I see the doctor in two weeks so we will see what he says then. Saturday, October 20, 2007 7:31 PM CDT Another beautiful autumn day. Nice and warm too. But I stayed in most of the day. Feeling really tired. Don't know if my platelets are doing it or not. I will find out Tuesday I suppose. Wednesday, October 17, 2007 11:18 PM CDT Blood counts are still good with the exception of platelets. They are low but not low enough to need a transfusion. I have to watch for bruising and/or nose bleeds. Potassium is low again too. YUK. Hate those potassium tablets. But, of course I take them again. Wednesday, October 17, 2007 10:58 PM CDT Still feeling fine. Oh, with the exception of these darn sinuses which are somewhat better but not the best. We'll see what next weeks bloodwork shows.
Monday, October 15, 2007 3:43 PM CDT Tomorrow I go for my weekly blood work. I really think my counts are good as I feel fine. Time will tell.
Wednesday, October 10, 2007 8:55 PM CDT Feeling ok. Apparently my counts have not gone down any yet. Ready to get this transplant over with!!!!
Monday, October 8, 2007 10:07 PM CDT I had my appointment with Dr. Richart today. My blood counts were actually up. They were thinking they would be down so now we wait until next week to see what they have done. Might possibly be up again and if so we can move this transplant along quicker. At this time the transplant could be anytime from one month to three months. Time will tell. Saturday, October 6, 2007 8:11 PM CDT Weather has turned HOT again so I stayed inside. Feel a little tired but not too bad. I see Dr. Richart on Monday and we will see what he says about my counts. Thursday, October 4, 2007 5:43 PM CDT My oncology nurse called on Tuesday to tell me my white count is going down. It has not reached "neutropenia" yet but will by next week. Neutropenia is when the white count is so low the immune system is in danger of germs and developing an illness. So, I will have to be careful to avoid others especially those who are ill. Friday, September 28, 2007 8:38 PM CDT Feeling ok. Noticed I am more tired today but don't know if it is from the treatment or not. I will find out Tuesday when I have the next bloodwork. Wednesday, September 26, 2007 9:40 AM CDT I had my bloodwork yesterday. Everythng still looks good and numbers haven't dropped much yet. Feeling ok just tired and nurse said that is from the radioimmunotherapy so just rest when I feel tired. Not a problem!
Friday, September 21, 2007 11:12 PM CDT Starting to feel the side effects now from the radioimmunotherapy. My red cells must be decreasing and the counts going down. I am very tired and wanting to sleep all of the time. This is a sign of it. I will have bloodwork on Tuesday unless it is necessary sooner. I will try to stay in this weekend to avoid germs. Wednesday, September 19, 2007 9:34 PM CDT Nothing new to report on Tristan. He is out of ICU and in a regular room now. Jessica said the doctors want to keep him there to see if there is any change when the swelling is reduced in his brain. Physically his movements are fine but neurologically they say there is nothing. Please continue to pray for Tristan!
Tuesday, September 18, 2007 10:08 PM CDT I had my infusion today of Zevalin the radioactive drug. It went well and now we wait for it to kill cells and lower my blood counts. Yuk. Sunday, September 16, 2007 8:16 PM CDT No word today on Tristan. We are praying for a miracle. Friday, September 14, 2007 11:01 PM CDT Returned to SLU for another gamma scan. It seems they were wondering why my lungs were showing a thickening with the Zevalin. However, when they found out I had pneumonia in May they realized it was the reason. It had thinned out today so I will go ahead with my infusion on Tuesday. Thursday, September 13, 2007 9:31 PM CDT I went to SLU today for a gamma scan to see if the infusion is attaching itself to the cells. Yes, it is. Now I go back tomorrow for the same thing to see how much it has progressed in 24 hours.
Wednesday, September 12, 2007 9:01 AM CDT I had my infusion of Rituxan yesterday (a chemo drug which I received before) and then Step I of the radioimmunotherapy of Zevalin.
Monday, September 10, 2007 7:04 PM CDT Tomorrow I will have my first infusion of Zevalin the radioactive drug. Following this my blood counts are expected to go down.
Sunday, September 9, 2007 8:41 AM CDT Despite the fact the rain started just as the walk began....we had a fantastic time.
Thursday, September 6, 2007 4:17 AM CDT Wow! How exciting...we did it! I had no doubt my family and friends would come through for us and I am not disappointed!!!!
Wednesday, September 5, 2007 4:10 AM CDT Just a few more days and we will be Lighting the Night! Donations continue to trickle in. Thank you all for helping us!
Sunday, September 2, 2007 11:54 PM CDT Another beautiful day finally! I was able to go to St Louis to see my brother who is a patient at St Joseph's Kirkwood. He is recuperating from a heart attack last week but doing great and going home tomorrow. Friday, August 31, 2007 9:51 PM CDT Beautiful day! Spent the day collecting Light the Night cannisters and calculating the kids totals. We are doing great! Thanks for everyone's help.
Thursday, August 30, 2007 8:14 PM CDT I went out today to collect some of the Light the Night money from paper balloons. Also, had lunch with Tiffany at her school. Whoa....didn't realize how weak my legs were until I climbed all of those steps! More strengthening exercises need to be done. Now walking 8-10 minutes x 2 times a day on the treadmill. I will not be able to walk the two miles in the walk but maybe a wheelchair will be advisable.
Wednesday, August 29, 2007 7:21 PM CDT Another nice day today. I was able to walk to the park this am and pm. I will also walk on the treadmill. Trying to strengthen my legs! Doing ok.
Wednesday, August 29, 2007 4:12 AM CDT Everything is fine. Ankle not quite as tender and I was able to do 1/4 mile on the treadmill last night. I am still regaining my strength....just not as fast as I want it to be!
Tuesday, August 28, 2007 11:23 AM CDT Update: Kian is still in the hospital but doing a little better. It seems the hospitals in Italy are not air conditioned and he has problems with that....but....his mother was going to bring him a fan. I can't imagine! Sunday, August 26, 2007 10:38 AM CDT Yesterday was fun. Lots and lots of grandkids (when did they get so loud though). Nikki, Taylor and Marissa's birthdays. BBQ at Teresa's. Friday, August 24, 2007 11:52 PM CDT My ankle is much better. Still tender and all beautiful shades of blue, purple and green. Thursday, August 23, 2007 7:49 AM CDT I'm doing fine. Foot and ankle are sore but not too bad. It is bruised all over my foot and ankle in lovely colors. Wednesday, August 22, 2007 4:38 AM CDT Last night I lost my balance in the yard. My ankle gave out and I heard this "pop" in my right ankle. I was able to keep myself from going all the way down by using my cane.
Tuesday, August 21, 2007 8:24 AM CDT Now taking one steroid tablet a day. My sleeping patterns are still wierd....waking up at 2 am or so. But eventually they will change back....I hope.
Monday, August 20, 2007 9:03 PM CDT Feeling much better this week. Only a tad bit left of the sore mouth. Strength has improved a little too.
Sunday, August 19, 2007 9:40 AM CDT Yesterday I went to the Sesquicentennial in the small town I grew up in. It was fun seeing a lot of people I hadn't seen in years. Of course, there are more I would like to see but they weren't there. I'll go back again today and maybe they will be there. Weather was beautiful, cool with a breeze. Today is not the same...it's rainy and humid. But I'll give it a try. Friday, August 17, 2007 10:03 PM CDT The weather finally cooled down and I was able o be out and about today. Working on Light the Night donations. Wednesday, August 15, 2007 2:40 PM CDT Sores are healing slowly. Hayfever....who knows. Tuesday, August 14, 2007 7:40 PM CDT Better today. BP still low for me but ok. Mouth sores are better. Some are still there but not as sore. My doctor said it was a virus and it had to run it's course. I still use the mouthwash.
Monday, August 13, 2007 7:29 PM CDT Woke up this morning very cold and dizzy. I immediately took my blood pressure which was 78/59. Not good. So, I turned on the oxygen and started drinking water. Also, ate doritoes thinking the salt would help. It did. I sat in the living for an hour or so and it came up. Monday, August 13, 2007 7:24 AM CDT Today I am off to St Louis U with Kelly for a doctor's appointment. Maybe we will discuss the radioimmunotherapy treatment and see when that will be scheduled. Saturday, August 11, 2007 1:58 PM CDT Another HOT day in paradise. So I stay inside. Friday, August 10, 2007 10:56 AM CDT Sores are improving slowly but at least improving! Foot cramping has returned which is wierd. All of a sudden my foot and ankle totally twist and cramp up. Oh, the joys and woes of chemo side effects. Have I mentioned my toenails? Another time,perhaps. Wednesday, August 8, 2007 3:33 AM CDT The down week continues. Actually end of chemo week I guess you might say.
Monday, August 6, 2007 5:19 PM CDT It's so hot! I can't go outside for sure. Even inside I have had my oxygen on some. Sunday, August 5, 2007 3:43 AM CDT August is here in full swing! It is sooo hot. I was out briefly yesterday am early but early didn't matter as it was HOT. Thank you God for central air! I did have to use my oxygen a few times yesterday too. Friday, August 3, 2007 4:55 PM CDT HAY FEVER HAS ARRIVED! It always hits me hard this time of year and it looks like it is again. Thursday, August 2, 2007 6:17 PM CDT Another hot summer day. Gave me a chance to work on Light the Night though. Wednesday, August 1, 2007 3:52 AM CDT Very tired this week. Still moving though! I went to SLU yesterday for my Neulasta shot. Hopefully the last! Tuesday, July 31, 2007 4:44 AM CDT Final chemo day of infusion went well. Now I finish the week with oral chemo drugs at home. What a relief to be almost done with this phase anyway. Sunday, July 29, 2007 5:46 AM CDT Yesterday was hot! JT's birthday party. I didn't swim as humidity was high as well as mold count. I stayed inside.
Saturday, July 28, 2007 6:32 AM CDT Doing ok. Too hot to walk this am so I will use the treadmill. We will be going to JT's 4th birthday party today and maybe the pool. YEA. Friday, July 27, 2007 5:45 AM CDT Doing ok. Yesterday mold count was high so I had to stay inside. Couldn't walk as far due to breathing difficulties if I tried. Wednesday, July 25, 2007 9:43 PM CDT Doing ok. More tired this time but after five rounds already that is not unusual. My legs are weaker. Wednesday, July 25, 2007 6:03 AM CDT Doing ok. Little more tired this time than usual but that's most likely all of the steroids working against each other! Tuesday, July 24, 2007 2:28 AM CDT Chemo went well...no unexpected problems or problems at all actually. Kelly and Teresa both went with me and then we had a nice lunch at Applebee's. Also, included a jaunt over to Walmart since it was just right there. Monday, July 23, 2007 6:49 AM CDT Round Six of chemo today! It took a while but we are finally on the last round. Sunday, July 22, 2007 6:22 AM CDT It's beautiful this morning. Going to take my morning stroll to the park. Yesterday there were 12 deer feeding there. Some of them had large antlers but they didn't seem to mind me watching until I got too close. Not close enough for pics though. Maybe today. Friday, July 20, 2007 6:06 AM CDT Doing fine. Tiffany was here yesterday and we went school supply shopping. My feet felt it! But, it was fun. Wednesday, July 18, 2007 7:00 AM CDT Doing ok. Doctor did reduce my steroids some but still breathing ok. Not as jittery as these steroids are strong. Start chemo again on Monday. Researching the immunotherapy they want me to receive and trying to decide.
Monday, July 16, 2007 8:13 PM CDT After a looongg day at SLU I am home. Testing took a while for the Muga Scan of my heart and then Pulmonary Function Test. Monday, July 16, 2007 8:31 AM CDT Hi ho, hi ho...it's off to SLU I go. No oxygen today and feeling good. Sunday, July 15, 2007 7:42 AM CDT Still very tired but breathing a bit better. Guess I'll stay inside today to avoid more heat and fatigue. But, may not either! I do have portable oxygen. Saturday, July 14, 2007 1:58 PM CDT Been feeling good the last few days but today I am short of breath again so the oxygen is on. Not as bad as last weekend. I see the doctor at SLU on Monday. Also, have Echo and Pulmonary Function Test to see if everything is ok. Wednesday, July 11, 2007 9:01 PM CDT Feeling better. Love those steroids. Didn't need oxygen today. Tuesday, July 10, 2007 9:37 PM CDT Feeling better today. No chills or fever. Night sweats last night from new steroid though. Still using oxygen every so often. It was very humid today and especially need it on days like this.
Monday, July 9, 2007 7:19 PM CDT I went to SLU today to check on my aches, pains, shortness of breath and fever. Everything looks ok so far. No blood clots and I will have more tests later this week. Monday, July 9, 2007 7:14 PM CDT I went to SLU today to check on my aches, pains, shortness of breath and fever. Everything looks ok so far. No blood clots and I will have more tests later this week. Sunday, July 8, 2007 2:52 PM CDT Yesterday and today I have been very tired and achy. The neuropathy in my feet seems to be moving up as the balls of my feet feel swollen and tender.
Friday, July 6, 2007 8:08 AM CDT Everything going ok. Just need to stay in out of the heat which isn't easy for me to do!
Thursday, July 5, 2007 9:04 PM CDT So far, so good. Still some shortness of breath but oxygen is close by. Monday, July 2, 2007 5:14 AM CDT Whoa. Neulasta shot has kicked in. Woke up this morning with the pulsuating pain in my hips and thighs. It is regenerating new cells at a high rate of speed again!
Saturday, June 30, 2007 2:52 AM CDT Just a few days left on this cycle of chemo. Yea! Thursday, June 28, 2007 9:54 AM CDT Continuing the week with oral drugs as always. Feeling a little more fatigued but doing fine. Tuesday, June 26, 2007 9:15 PM CDT Chemo went well yesterday. SLU has a much larger infusion clinic than DePaul and the recliners are wonderful! They just grab you and wrap you in comfort! I slept for several hours.
Monday, June 25, 2007 5:42 AM CDT Hi ho, hi ho...it's often to chemo I go...one more time. This is the second week of Round Five. Feeling tired and achy in the bones from week one.
Sunday, June 24, 2007 8:10 AM CDT Still achy at times and wobbly on my feet. Getting prepared for the second week as I have chemo again tomorrow at SLU. I still take the oral meds everyday. Friday, June 22, 2007 12:33 AM CDT Day Five of Round Five of Chemo:
Monday, June 18, 2007 7:37 PM CDT Started Round five today! I now go to St Louis U for my chemo so it was a little different. But it all went well. Sunday, June 17, 2007 9:02 AM CDT Tomorrow chemo starts again! My CT scan last Monday (Lung) showed it to be clear; my oxygen sats are good again and I am ready to start round.
Monday, June 11, 2007 5:02 PM CDT YEA!!! Triple lumen catheter is coming out. I will be able to resume swimming this summer! Oxygen level is back up and chemo resumes next week. I had a CT scan today and waiting for the results but doctor said it looks good.
Thursday, June 7, 2007 6:13 PM CDT Doing ok. Still on oxygen but I do have the small portable tanks now. I use the concentrator all day at home though and that is ok except the line is stretched all across the house and out onto the porch! Tuesday, June 5, 2007 4:54 PM CDT Still using the oxygen and on antibiotics.....pulling this oxygen line around the house is very inconvenient and frustrating! The Home Health Care nurse was here today and will return on Thursday to change the dressing on my catheter. No swimming for me this summer due to the triple lumen catheter having to stay in until after the transplant. Darn! Saturday, June 2, 2007 8:05 AM CDT I am making progress. The Physical Therapist has me walking slowly on the treadmill. Still on oxygen and likely to stay that way a few more weeks. Monday, May 28, 2007 10:55 AM CDT I am home and doing pretty good. I have enough tubing on my oxygen concentrator to go to the porch and enjoy the outside on the screened porch. I can also walk around the house with it. Saturday, May 26, 2007 9:59 PM CDT I am home from the hospital arriving this evening.
Monday, May 21, 2007 5:36 PM CDT My mom wanted me to update her page and let everyone know that she was having problems with low blood pressure and low oxygen levels for over a week. On Friday, she came to the emergency room at SLU hospital, upon recommendation of her oncology nurse. They ran a CT scan, EKG, and did bloodwork. They decided to admit her to the hospital.
Thursday, May 17, 2007 8:06 PM CDT Went to SLU today hoping to have the new port inserted. I have been having BP problems with it being around 84/54. Also shortness of breath.
Sunday, May 13, 2007 1:34 PM CDT Maybe a little better today. Still no stamina. Hopefully they will shoot me full of red shots and white shots tomorrow to get things going. My counts are down after chemo. Saturday, May 12, 2007 2:18 PM CDT maybe a smidgen better but still no energy. Bone pain; leg cramps, wrist cramps very frustrating. Friday, May 11, 2007 12:04 AM CDT Little bit better but still no energy. Walking to the kitchen consumes a lot. I am using my Nebulizer breathing machine for asthma treatments to help me breathe better. Thursday, May 10, 2007 3:55 PM CDT We are back to the week of 5/21 for the harvesting. After Michelle received my message she talked to the doctor. (I bet she did). So next week I will start receiving those wonderful growth factor shots to promote new cells. Wednesday, May 9, 2007 10:07 AM CDT Day 3 of no Prednisone and feeling yucky. Night sweats x2 and mild fever and chills. A few more days and this will be over. Tuesday, May 8, 2007 9:25 AM CDT Feeling better today as the need for Prednisone goes away. Still kind of groggy but no where near as bad as yesterday. Monday, May 7, 2007 5:16 PM CDT I NEED PREDNISONE!!!! Yesterday completed round 4 and the first two days without Prednisone are bad! A complete crash....no energy; shortness of breath; crabby. Sunday, May 6, 2007 0:57 AM CDT Saturday was a hurry up day. I ran to the florist to get a corsage for James friend who had invited him to the prom. Found one! Saturday, May 5, 2007 4:16 AM CDT Still doing ok. Starting to feel a little tired as I wind down on this round 4 of chemo. After I finish this round I will have a reprieve as they begin to harvest the stem cells.
Friday, May 4, 2007 3:39 AM CDT Perking along as normal. Three more days in this round of chemo. Then a two week reprieve! Well, kind of. After those two weeks then harvesting stem cells. Yea! Wednesday, May 2, 2007 10:02 PM CDT Fairly good day today after consuming all of those lovely medications. My friend Kathy stopped by and later in the day my sister in law and brother in law Lois and Jerry came by.
Tuesday, May 1, 2007 8:38 PM CDT Went to the cancer clinic for my Neulasta shot and then a follow up with my primary care physician. Monday, April 30, 2007 10:00 PM CDT Round four of chemo today. It went well. Although I think the nurses overdosed all of us on Benadryl because everyone in the room was snoring away! I do mean snoring! I know I was sleeping and the phone kept ringing....I was wishing someone would answer it! Sunday, April 29, 2007 6:49 PM CDT Woke up this am feeling queasy but drugs squelched that. Also tired probably from the walk yesterday. Saturday, April 28, 2007 8:31 PM CDT Feeling ok with a little bit of bone pain. Today was the Walk for Huntington's Disease which we participate in every spring. Huntington's Disease is a terrible illness which robs the individual of every function. My son in law has been fighting it for over 10 years. Wednesday, April 25, 2007 8:03 PM CDT Day three went well. Prednisone is good stuff!
Monday, April 23, 2007 7:45 PM CDT Started Round #4 today and all went well. My red counts were down and that explains the extreme fatigue. This is quite common in chemo patients. So, I received a shot of Aranesp for the red cells. I receive this every other week.
Sunday, April 22, 2007 4:59 PM CDT Very tired today. I went to drug store and Aldi's and was exhausted. Tomorrow starts Round 4...hooray.
Friday, April 20, 2007 7:06 PM CDT Nice day today. Tired, but usual. Thursday, April 19, 2007 12:29 AM CDT Forget what I said earlier. SLU called and cannot schedule me the way of April 30 for harvesting. Thursday, April 19, 2007 5:56 AM CDT Still waiting for the final confirmation from SLU on harvesting cells next week. When I spoke with them yesterday they were waiting for approval from one doctor. It seems one of his patients has to be rescheduled in order to accomodate me. Confirmation should come today. Wednesday, April 18, 2007 11:15 AM CDT Everything is about the same here. Waiting to hear from SLU as to whether the 30th is a go or not. They were waiting for the transplant coordinator to give them the go ahead. Tuesday, April 17, 2007 8:52 PM CDT Nice day outside. I didn't do much as I wasn't feeling well. Kind of tired. I will have ultrasound on Thursday to see what is going on around my gallbladder. Monday, April 16, 2007 4:28 PM CDT I saw Dr. Richart at SLU today for my usual visit. They are tentatively scheduling the harvest of my cells the week or 4/30....subject to change. Sunday, April 15, 2007 11:41 PM CDT Feeling pretty good today. Still achy and having night sweats. Feet are cramping as are legs from that's neuropathy from the chemo.
Saturday, April 14, 2007 8:11 AM CDT Continuing to climb back up giving me one good week I hope before the next round of chemo. Wednesday, April 11, 2007 12:20 AM CDT Today is 60% better than yesterday. Yesterday I was still filling the effects of coming off of Prednisone. Not good. All I can do is sit in a chair and try to stay awake but most of the time I am dozing off. It is difficult to breathe as my blood platelets are low and just in general....uses my energy. Tuesday, April 10, 2007 7:52 AM CDT No Prednisone yesterday as cycle ended. Big time Prednisone low....no strength .... be back tomorrow
Sunday, April 8, 2007 10:15 PM CDT Great Easter! Of course I ate way too much. Saturday, April 7, 2007 12:08 AM CDT Almost to the end of round 3. Tired today but that's normal. Low grade temp which also seems to be happening at the end of each cycle.
Friday, April 6, 2007 6:21 AM CDT Yesterday was a lot better. My doctor's office called to tell me my potassium is low so I am starting on that. No wonder I am so tired! Wednesday, April 4, 2007 4:05 PM CDT As usual....very tired today from the chemo. So, I just laid around most of the day. Tomorrow will be better.
Tuesday, April 3, 2007 8:28 PM CDT I had the Neulasta shot today to regenerate new white cells. Little queasy today but not bad. Now finish out this week of chemo and round 3 will be done!
Tuesday, April 3, 2007 3:40 AM CDT Part two of chemo 3 in the doctor's office was completed yesterday. Now I finish out the week at home taking Prednisone and Mutulane. Then 14 days off...yea! Well, maybe only 7 as I see the doctors at SLU on the 16th. We may start preparations for the harvesting then. Monday, April 2, 2007 5:54 AM CDT Hi ho, Hi ho......it's off to chemo I go. The second half of round 3 today. Sunday, April 1, 2007 12:17 AM CDT Very, very tired today. Not much energy. I am having a cramp in my right leg today so need to increase the calcium. Otherwise everything is fine! Saturday, March 31, 2007 2:15 PM CDT Feeling pretty good. Bones do hurt but not excessive and kind of achy. Otherwise just tired. Typical chemo responses!
Friday, March 30, 2007 6:15 AM CDT Little more activity in the regenerating of new cells yesterday and last night. My bone pain was a little more intense but no where near as bad as it was the first time. Thursday, March 29, 2007 10:59 AM CDT Day Three: Monday, March 26, 2007 9:38 PM CDT Started Round 3 of chemo today. It went well. Of course, I slept through most of it. Sunday, March 25, 2007 4:02 PM CDT Tomorrow starts round 3 of chemo. Of course I am never looking forward to it but it puts me so much closer to the transplant and new hope. Thursday, March 22, 2007 1:13 PM CDT Today one of the better days. I was able to dust, sweep, go to the library, mall and Walgreens. Wednesday, March 21, 2007 11:02 PM CDT Today was a good day. Felt really good. Wednesday, March 21, 2007 11:02 PM CDT Today was a good day. Felt really good. Wednesday, March 21, 2007 11:02 PM CDT Today was a good day. Felt really good. Tuesday, March 20, 2007 3:10 AM CDT Doing much better. I went to the doctor on Monday for my Aranesp shot to rebuild red blood cells. I will start chemo again on next Monday 3/26. This will be Round 3. Sunday, March 18, 2007 9:12 AM CDT Rough night last night as I developed fever and chills. Fever fluctuated up and down all night long. I now have it under control but it is due to good old mother nature....pollen. Nice little sinus irritation. I go through it every year and along with night sweats from Lymphoma.....really interesting.
Thursday, March 15, 2007 5:48 AM CDT Feeling much better today! Grogginess seems to be gone and now building my strength. Little bit of tummy discomfort but not bad!
Wednesday, March 14, 2007 4:53 AM CDT Slowly returning to "normal", if there is such a thing anymore. My energy level is increasing as the Prednisone slam goes away. Tuesday, March 13, 2007 5:38 AM CDT I made it through Day One of no Prednisone. Wow! It totally sucks every bit of eergy from the body not having that!
Sunday, March 11, 2007 5:34 PM CDT End of round two of chemo!!!! Yea! Now I am free for the next two weeks. Saturday, March 10, 2007 1:36 PM CST One more day of oral chemo left! Bone pain minimal at this point....hope that doesn't increase. Thursday, March 8, 2007 10:47 AM CST Feeling tired as usual but otherwise ok. Few twinges in the bones but trying to take Ibuprofin to counter act it. Hopefully we don't regenerate cells at the rate of speed we did last time! Wednesday, March 7, 2007 0:22 AM CST Today I received the Neulasta shot to regenerate the new cells. Now I wait and hope it doesn't kick in like it did last time! Tuesday, March 6, 2007 6:09 AM CST I had chemo again yesterday and it went well. Slept through most of it actually. Today I go back for the Neulasta shot which will regenerate new white cells. I finish out the week with oral meds at home and that will complete Cycle 2 of 6. Sunday, March 4, 2007 7:10 PM CST Still very tired and weak but otherwise ok. Trying to rest as much as possible. Week two of round two starts tomorrow. Friday, March 2, 2007 2:51 PM CST I saw the transplant doctor today at SLU. Good news! The chemo is making the Lymphoma respond to treatment. So we are right on schedule where we want to be! Thursday, March 1, 2007 10:55 AM CST Day 4- Kind of achy today and starting the downward roll. Nausea and queasiness gone....but never did reach a bad place...thank God for meds and your prayers! Wednesday, February 28, 2007 12:28 AM CST Yesterday was the queasy day. Not really sick just queasy but I have meds which counter act the puke monster. So, old Limpy only made it a bit miserable. Monday, February 26, 2007 8:44 PM CST Today started chemo again. It went well with no reactions. Thursday, February 22, 2007 9:01 PM CST Yesterday was very interesting at SLU. We received more information about transplant and met more members of the team. Wednesday, February 21, 2007 6:24 AM CST Today we are going to SLU (St Louis University Hospital) for a transplant information meeting. There will be others who have had the transplant, the transplant team as well as a speaker. Sounds very interesting! Monday, February 19, 2007 7:18 PM CST Still Gout'ing along. Not quite as bad as the motrin helps considerably but walking is a little difficult! Sunday, February 18, 2007 6:20 AM CST Just when I thought it was safe ..... yesterday I woke up with my toe hurting....GOUT! Saturday, February 17, 2007 8:56 AM CST I slept all night!!!!! Woke up at 8:00 a.m. I did get up one time to change my jammies after one episode of night sweats but other than that I did great!
Friday, February 16, 2007 8:08 PM CST After being very weak and tired yesterday I was better today. Still feeling tired and slept a lot this afternoon. But I do feel much better otherwise! Wednesday, February 14, 2007 6:38 AM CST Meet the World's Greatest Grandchildren! MINE! Tuesday, February 13, 2007 8:55 PM CST Some really rough days the last few. The Neulasta shot really knocked me for a loop and pain! Fortunately it was only 12-14 hours.
Sunday, February 11, 2007 12:16 AM CST TODAY IS DAY 14!!! The last day of Prednisone for 14 days and then start all over again. Friday, February 9, 2007 11:43 AM CST Neulasta shot is causing the muscle and bone pain. I am able to tolerate it....Prednisone...prednisone. Wednesday, February 7, 2007 5:02 PM CST Feeling ok. Bone pain but not too bad. My brother is doing fine. Blood work and observation. They will probably do a cardiac cath and stents tomorrow.
Wednesday, February 7, 2007 6:21 AM CST Still on the Prednisone...lovely Prednisone which re-creates my sleep patterns.....and rearranges it to it's liking! Monday, February 5, 2007 8:45 PM CST Chemo much better today. No chills just a nice Benadryl high to put me to sleep for a few!!! Monday, February 5, 2007 7:04 AM CST HO, HO, HO, HO Sunday, February 4, 2007 5:15 PM CST I am feeling better today on the roller coaster ride. Still feeling the aches but not as bad. Sunday, February 4, 2007 7:57 AM CST For those who think I always remain positive.....The following was my journal entry on Friday evening..... Friday, February 2, 2007 7:38 PM CST Chemo effects are starting but nothing unexpected. Guess the good news is we know the chemo is starting it's work because of the side effects. Thursday, February 1, 2007 3:49 PM CST Doing ok today. Little bit more energy but taking it easy just the same. Tuesday, January 30, 2007 6:54 PM CST Day two was much more pleassant than day one. I went for the rest of my chemo and it went well. Monday, January 29, 2007 9:42 PM CST Today was chemo #1. First off the blood machine was not working so after the did the drawing of blood they had to take it to St Luke's Hospital and fax the results. Saturday, January 27, 2007 4:33 PM CST As time draws nearer I become more apprehensive. But I know this is what I need to do and the Good Lord will lead me through it as well as the prayers of all my friends and family. Friday, January 26, 2007 9:52 PM CST Just waiting for Monday and the next chapter to unfold. Sometimes I wonder....."why am I doing this"....but I know why. Wednesday, January 24, 2007 3:11 PM CST I saw my oncologist today. He is going to start my chemotherapy on Monday. I will then go the following Monday for another treatment and then none for 14 days. Monday, January 22, 2007 5:56 PM CST I met with the doctor and transplant team at SLU today. They are wonderful! They sat and talked with us for a couple of hours and explained everything down to the last detail. While it is a lot of info and they realize it....they will continue to explain it as I go along. Saturday, January 20, 2007 7:42 PM CST Just a few more days and I will finally find out what treatment I will receive. Hopefully it will begin shortly after that.
Thursday, January 18, 2007 5:29 PM CST Still waiting. Feeling fine with the exception of tiring easy. I will be glad when I at least know what the chemo will be! Monday, January 15, 2007 4:14 PM CST GREAT NEWS!!!!
Saturday, January 13, 2007 1:01 PM CST We are in the middle of another ice storm! Tree limbs are falling everywhere. We are ok though and still have power!!!! Wednesday, January 10, 2007 8:30 PM CST UPDATE! Monday, January 8, 2007 12:32 AM CST Tired today but to be expected. We drove two hours to see my brother yesterday and two hours back. Of course my sis in law and I had to shop too in Rolla!
Friday, January 5, 2007 10:00 AM CST I am still doing fine. Fatigue a little easier but doing fine.
Sunday, December 31, 2006 11:50 AM CST Happy New Year to all of my family and friends!
Friday, December 29, 2006 9:09 AM CST Christmas is almost over! Soon it will be 2007. Wednesday, December 27, 2006 3:35 PM CST I saw my Oncologist today for results of the biopsies and scans. Sunday, December 24, 2006 11:13 PM CST Merry Christmas! It has been a wonderful holiday so far being closer to the kids and seeing them on Christmas Eve. Friday, December 22, 2006 11:43 AM CST Christmas is drawing closer. Although we had our family Christmas the children still have the big day coming up. Wednesday, December 20, 2006 1:32 PM CST Here's the information we have so far. I DO NOT have any bone marrow involvement this time either. Hopefully if the bone marrow transplant is necessary...I will be able to harvest my own bone marrow.
Monday, December 18, 2006 9:45 AM CST We had an enjoyable Christmas yesterday with my children and their families. It is always great watching the kids.
Sunday, December 17, 2006 6:58 AM CST Today is our Christmas as we always celebrate the Sunday before. The turkey is in the oven and the cookies are baked. Saturday, December 16, 2006 12:03 AM CST Doing ok today. I'm a little sore where they drew the blood marrow....more so than the last time. But the area where they biopsied the lymph node is fine. Friday, December 15, 2006 3:56 PM CST I had my lymph node biopsy and bone marrow biopsy today. The bone marrow biopsy was scheduled for Monday but the doctor said we would do both of them today. Thanks!!! I wasn"t looking forward to it on Monday since I was there today. Thursday, December 14, 2006 7:52 PM CST So many friends and prayers are going out for me. I appreciate this so very much. Wednesday, December 13, 2006 3:10 PM CST Results are back and so is the Lymphoma. It is in my neck and arm pit. Tuesday, December 12, 2006 10:26 PM CST More frustration. The oncologist has to talk to the radiolgist in the morning before he can give me the results. Hopefully by tomorrow I will know something! Tuesday, December 12, 2006 12:55 AM CST Still waiting for test results. Called the office and they are faxing the results to the doctor because he is at St Luke's today. Waiting for that phone call. Monday, December 11, 2006 8:52 PM CST Still waiting for results. I called today and they hadn't received them yet. Waiting is the hard part! Friday, December 8, 2006 5:09 PM CST Today was my PET scan and it went well. I tried to talk the tech into telling me what he saw but he was not cooperative!
Thursday, December 7, 2006 11:49 AM CST Tomorrow is my PET scan. I wish they would give me instant results but it will be early next week until I hear what is going on.
Tuesday, December 5, 2006 1:04 PM CST The ice is melting! Yea!
Sunday, December 3, 2006 3:12 PM CST We just made it through a fantastic ice storm. We did not lose power but our neighbors did.
Thursday, November 30, 2006 12:32 AM CST Day Two
Wednesday, November 29, 2006 5:35 PM CST Today I received the results of my CT scan from last Monday. Thursday, June 22, 2006 12:44 AM CDT Summer is finally upon us with a blast of heat!!!!
Tuesday, June 20, 2006 9:16 PM CDT What a wonderful summer! I've been working in the flowers when I am not cleaning the basement! UGH!
Saturday, January 28, 2006 2:08 PM CST I have requested my records from DePaul Health Center. I want to seek another opinion from a specialist in Lymphoma.
Monday, January 9, 2006 12:20 AM CST Now we wait.......I try to keep my thoughts positive. Waiting is the worst part of this horrible, horrible disease. There are so many things that could be going on.
Saturday, October 1, 2005 12:51 AM CDT I am doing great. I see the doctor again in one week and he will then order a CT scan to make sure everything is still great!
Friday, September 2, 2005 11:56 PM CDT Summer is almost over. I am doing fine. Still a lot of pain in my hip and sometimes excruciating. But I understand that is normal.
Sunday, July 31, 2005 11:09 AM CDT Feeling great! Summertime activities with the grandkids (except I didn't make any baseball games in the heat) are keeping me busy.
Wednesday, July 13, 2005 8:53 PM CDT I saw my oncologist on Monday and all is well. The pain and staggering gait are normal and will still be around for awhile.
Saturday, July 9, 2005 2:08 PM CDT Everything continues to be fine. I see my oncologist on Monday for a check up. I still have the bone pain periodically and some other side effects but I can live with that. Tuesday, June 28, 2005 10:16 PM CDT Feeling great! My energy level is improving and no side effects appear to be around.
Tuesday, June 21, 2005 10:53 PM CDT All is going well. Been busy in the flowers and yardwork. Very hot today.
Thursday, June 16, 2005 11:55 AM CDT Thank you all for your good wishes! But, most of all thank you for your encouraging words and prayers, prayers, prayers.
Sunday, June 12, 2005 7:54 PM CDT Nice weekend. Rainy of Saturday but I felt good. Sunday was beautiful...very warm but I worked in the flowers and had a quiet day.
Friday, June 10, 2005 10:42 PM CDT Today was my PET scan and it went ok. As a matter of fact I slept through it. I will find out on Monday when I see the Oncologist. Tuesday, June 7, 2005 10:24 AM CDT The weekend was beautiful. Weather was great and I went to a Community Wide Garage Sale. All kinds of "junk". Thursday, June 2, 2005 3:45 PM CDT This just in! My doctor called and the CT scan looks good. One area in the abdomen is still swollen but he believes it to be only scar tissue. I will have a PET scan next week to confirm! Keep those prayers coming!!!!! Thursday, June 2, 2005 9:41 AM CDT The shot I received on Tuesday for my red blood cells is once again working overtime. By last night I could hardly walk and the hip and leg pain was quite intense. But today so far not bad. Thank God for Ibuprofin!!!
Wednesday, June 1, 2005 5:26 AM CDT Today is CT Scan day and I am up early. In 30 minutes I get to start drinking that lovely flavored gunk for the scan. (YUK) CT Scan is at 8:00 a.m. and I drink one bottle at 6:00 am and one bottle at 7:00 am. Tuesday, May 31, 2005 7:15 AM CDT Wonderful weekend. Nice weather and family. Sunday, May 29, 2005 11:27 AM CDT Busy weekend. Graduation/Confirmation Party for my grandson, James.....today I am off to visit a friend in the hospital who was diagnosed with Colon Cancer....and then Memorial Day tomorrow. Friday, May 27, 2005 5:51 AM CDT I am working again today. Yesterday went well at work although I was only there 3 hours. Today we will be a little busier but I expect it to be fine. Thursday, May 26, 2005 6:27 AM CDT Back to work today. Feeling ok. I still have some hip pain but that's about it. A little fatigue but I understand it goes away in time. Monday, May 23, 2005 10:36 PM CDT Another beautiful day to be outside.
Sunday, May 22, 2005 11:35 AM CDT Yesterday was a beautiful day and I worked out in my flowers...planting and transplanting. It was kind of warm in the afternoon but not bad. Thursday, May 19, 2005 11:04 PM CDT Today was Fun Day at three of my Grandchildren's School. Jim and I attended and had a great time. I did tire out quickly though and we left probably one hour before it ended. It was also their last day of school before summer vacation.
Wednesday, May 18, 2005 3:20 PM CDT Tonight my granddaughter, Nikki will graduate from 8th grade. She attends Catholic School in Bethalto,IL
Tuesday, May 17, 2005 9:43 AM CDT I went to my doctor yesterday for my blood work and my red count was still low. Another "bee sting" shot! But the rest were really good and that is good news. Sunday, May 15, 2005 6:10 AM CDT Tomorrow I will go for my blood test and shot for my red blood cells. Friday, May 13, 2005 7:17 AM CDT Today I will have guests from Normal, Illinois.
Thursday, May 12, 2005 4:23 PM CDT Prednisone must still be working as I had enough energy to clean the house today. But, then that was all! At least it is done.
Wednesday, May 11, 2005 7:40 PM CDT Another beautiful day! I went to Bunker Hill and had lunch with my granddaughter, Tiffany. It was a surprise for her as she didn't know I was coming today. Picture on the front page of this site!
Tuesday, May 10, 2005 9:47 AM CDT Today starts the downhill spiral. Very, very tired today. I had a bad night with the legs and hips aching. Monday, May 9, 2005 11:16 AM CDT What a nice weekend! Weather was beautiful for Mother's Day. I went to dinner on Saturday evening with three of my daughters and one daughter in law. We do our own "Mother's Day" Dinner...no kids, no husbands. Thursday, May 5, 2005 12:11 AM CDT It's 70 degrees today! Yea. I can go outside again today. Yesterday I didn't think about the fact the sun and Prednisone are not a good combination so my face got a bit too much sun as did my neck. But aloe gel and it was fine. Today I will be prepared with sunblock. More flowers to plant! Wednesday, May 4, 2005 8:14 PM CDT A beautiful day which gave me another opportunity to be outside. Tuesday, May 3, 2005 8:39 AM CDT Chemo #6 is now history! I went yesterday and received it without any problems. I will have a CT scan on June 1. If it shows any scar tissue or possible Lymphoma, my doctor will then order a PET scan so we know for sure. If there are still some Lymphoma I will then receive two more treatments and check again. Monday, May 2, 2005 7:25 AM CDT Hi Ho, Hi Ho; it's off to chemo I go! Saturday, April 30, 2005 6:21 PM CDT Finally! The sun is shining. It was a good day to be outside and I was outside working in the flowers.
Thursday, April 28, 2005 10:50 AM CDT It's raining...it's pouring....again. Another rainy, dreary day. Tuesday, April 26, 2005 6:58 AM CDT Feeling a little better today and not needing to Monday, April 25, 2005 5:51 AM CDT Hopefully today will be warmer than the last two days. It's 43 degrees this a.m. Not much for me to do today. Yesterday I slept most of the day. Saturday, April 23, 2005 10:53 AM CDT BRRRRRRR. It's only 40 degrees today and a good day to stay inside! Rainy, also. Friday, April 22, 2005 2:46 PM CDT Today the mold allergy count is almost 20,000 and I am suffering from it! All I want to do today is sleep, sleep, sleep and it is the reason. Wednesday, April 20, 2005 8:11 AM CDT Another sunny day in St. Louis. Chance of rain will probably keep me inside. Tuesday, April 19, 2005 9:36 AM CDT Rebuilding these blood cells is a chore. This a.m. I did not have the strength to lift my head from the pillow but I am a little better now. Monday, April 18, 2005 8:08 PM CDT I had to get my shot today for my red blood count. Saturday, April 16, 2005 9:00 AM CDT Another beautiful Saturday. It's 55 degrees already and climbing.
Thursday, April 14, 2005 10:57 PM CDT Today was another beautiful spring day so I was outside taking advantage of it. Wednesday, April 13, 2005 9:12 AM CDT It's a rainy, dreary day today but it will at least keep me inside! Tuesday, April 12, 2005 10:08 AM CDT FIVE DOWN AND (HOPEFULLY) ONE TO GO! Sunday, April 10, 2005 9:31 AM CDT Friday, April 8, 2005 8:23 AM CDT Still feeling the effects of spring in the air and pollen causing misery. Wednesday, April 6, 2005 9:52 AM CDT Tuesday, April 5, 2005 7:34 AM CDT Yesterday was another beautiful day. I worked outside and accomplished a lot. Probably more than I should! Saturday, April 2, 2005 8:38 PM CST I did work yesterday and I was very tired. I came home and went right to the couch to watch tv. That didn't last long as sleep came quickly. Thursday, March 31, 2005 11:09 PM CST OOOOPS. The weather has been so beautiful and I have been enjoying it outside....forgot to update the page. Tuesday, March 29, 2005 5:07 AM CST Yesterday my cough became worse once again. I did call my primary care physician and he immediately ordered an antibiotic and I went to the lab for blood work. I will hear from him today regarding the lab work. If my counts are down, I will have to have a shot again to bring them up. Monday, March 28, 2005 8:57 AM CST I had a nice Easter. We went to my son's for dinner and several others were there too. Sunday, March 27, 2005 7:56 AM CST Happy Easter! Friday, March 25, 2005 12:54 AM CST Feeling a little better today. Still kind of congested a smidgen. I'm using the nebulizer and it's helping. This is not unexpected from chemo as time goes by. I will rest again today. No work for me today. Thursday, March 24, 2005 8:09 AM CST Cough is back but not as bad. I am using the nebulizer and it is breaking up. I am staying inside and taking it easy to stay away from other germs! Wednesday, March 23, 2005 2:50 PM CST Cold, dreary day today. My cough is returning but I have my nebulizer up and going! Feeling pretty typical for 3 days after chemo. Tired and achy. So, I am going to rest today. Monday, March 21, 2005 5:45 PM CST Chemo #4 was today. Everything went well. Received my shot to rebuild my red blood cells. Tomorrow I will go in for the shot to rebuild my white blood cells. Monday, March 21, 2005 7:26 AM CST Today is chemo #4! Hopefully, we are closing in the end of them! Saturday, March 19, 2005 11:01 AM CST Brrrr. It's 41 degrees but it's a cold 41 degrees as the wind is whipping! Friday, March 18, 2005 6:11 PM CST Today I went back to work. It wasn't too bad. We were busy but made the day fly by. Thursday, March 17, 2005 5:06 PM CST Another beautiful day. No complaints today. Tomorrow I will work and get ready for Monday. Chemo #4! Wednesday, March 16, 2005 3:57 PM CST Another beautiful day! I did work outside for a little bit. Probably shouldn't have because of the pollen and dust but I couldn't resist. I am tired now but that's to be expected. It's time for a breathing treatment. Tuesday, March 15, 2005 10:01 AM CST Today it's 39 degrees and the sun is shining. I so bad want to work in the yard but it's still too early. Monday, March 14, 2005 11:45 AM CST The sun is shining and it's 43 degrees. I hope I can sit outside later. Saturday, March 12, 2005 2:24 PM CST It's a beautiful day outside today. I did go out and visit with my neighbor. Also trimmed a few bushes and quit. My strength has not returned for that yet. I can't wait until I can get outside and dig in the dirt again to see the flowers come up. Friday, March 11, 2005 9:36 AM CST I continue to recuperate at home. Few muscle spasms again this time but not as severe as before. Thursday, March 10, 2005 12:48 AM CST I am feeling so much better today. I've been to my oncologist this a.m. and all of my blood counts are back to normal. So, I have been watching the latest Michael Jackson fiasco.
Wednesday, March 9, 2005 4:35 PM CST The chemo last week took it's effect on Sunday. I did not feel well but I attributed it to the same old thing...sinuses. That was it partially. But by 6:00 a.m. on Monday I was having labored breathing and felt really bad.
Saturday, March 5, 2005 10:01 AM CST Five days after Chemo and starting to feel a few side effects. Last night I had leg aches but no where near as bad as last time! These were no where as intense as last time. Good old heating pad helped. But, as usual the sinuses are in full force today as I woke early coughing and coughing and coughing. Kind of feel a smidgen "yucky" today from that and tired but that is to be expected after coughing that much.
Friday, March 4, 2005 5:33 AM CST Day five of the Prednisone! Yea. Now I will be able to return to earth until my next treatment. It gives me a Prednisone high which is good as I really get moving but it also increases my appetite and causes wierd food cravings. Glad it's done for this time. Thursday, March 3, 2005 12:11 AM CST Tomorrow I will finish my five days of Prednisone for this chemo treatment. The Prednisone puts me on a high for a while and really messes up my sleep pattern. Wednesday, March 2, 2005 11:57 AM CST So far....so good. Tuesday, March 1, 2005 12:16 AM CST My day isn't too bad. Some nausea feeling but that is due to the Prednisone I take for the next five days. (Today is Day two of that so three more days). I was able to go to Wal-Mart though so all is not lost! Monday, February 28, 2005 5:34 PM CST Three down..........three to go! After my next chemo I will have another CT scan to see what is happening.
Sunday, February 27, 2005 9:35 AM CST My sinus whatever has returned but it is now a way of life with me! Knowing a large percentage of the population is suffering with it also helps me feel relief.
Friday, February 25, 2005 10:20 PM CST Another beautiful day. I wish it was really spring! Thursday, February 24, 2005 7:57 PM CST Great day today. It snowed last night and the snow was beautiful this a.m. No aches, pains or problems. I worked 10:00 a.m. to 5:30 p.m. and did fine. Wednesday, February 23, 2005 10:12 PM CST Another good day. Tomorrow I work 10:00 a.m. to 6:00 p.m. and Friday 7:00 a.m. to 6:00 p.m. My sinuses seem to be getting better. Tuesday, February 22, 2005 6:44 PM CST Today I had lunch with my grandchildren, Brandon and Gabrielle. My daughter, Kelly joined us as she brought lunch for Brandon and I brought lunch for Gabrielle. Monday, February 21, 2005 3:13 PM CST The news was good. My red count is up to 11.7 and they like it to be 12. I did receive the injection for the count to continue increasing but if it is there next week, I won't need another injection provided it doesn't fall again. Monday, February 21, 2005 8:26 AM CST I had a better night last night as I didn't cough as much. As much, but still coughed a lot. This sinus drainage has affected everyone so I am not an exception.
Sunday, February 20, 2005 10:29 AM CST Sinus whatever is back. I woke up this a.m. coughing, coughing, coughing. I see the doctor tomorrow and I will tell him it stayed away until the antibiotic ran out.
Saturday, February 19, 2005 9:51 PM CST Good day today. Baby shower for my new great-grandson and is a cutie! He slept the entire time with the exception of feeding time. And, he has a head of hair so fat chance he will go bald for Nana! Friday, February 18, 2005 11:29 PM CST I worked today. The doctor's office called and said my potassium level was low and started me on some huge, huge horse pills. I had been having leg cramps the last two days and they feel that will help. Thursday, February 17, 2005 5:37 AM CST Ready for another day. The muscle spasms seem to have moved away for this time.
Wednesday, February 16, 2005 6:52 AM CST Much more restful night last night. Spasms seem to have gone into remission at this point! Tuesday, February 15, 2005 9:33 AM CST Last night was the worst ever! Those muscle spasms did not stop all night. I was awake and up and down all night long. Finally about 5:00 a.m. I was able to lay down and sleep for a while.
Monday, February 14, 2005 5:53 PM CST My sweetheart and I went to lunch today at Casa Gallardo for a special day. We then went to DePaul for my Echocardiogram. The weather today was beautiful but bad weather returns tomorrow. Sunday, February 13, 2005 11:55 PM CST It was a great day with my children and grandchildren.
Sunday, February 13, 2005 9:12 AM CST I am so thankful for Vick's VapoRub! When my mother used to rub my chest with it I thought it was the most horrible torture known to a child. But, as an adult........I know it works! My congestion is so much better today....loosened up and such. With the antibiotics from the doctor and the Vick's.........this might work!
Saturday, February 12, 2005 5:38 PM CST Muscle spasms and aches much decreased today. But, my sinuses have gotten worse so I called Dr. Cuevas. He immediately returned my call and told me he was going to call in an antibiotic. Even though I was not having an elevated temp he still wanted me on antibiotics. I am so blessed to have such a caring physician. Friday, February 11, 2005 9:24 PM CST Today the chemo decided to take a vengenance. My muscles ached all day. One of the advantages of working in a Physical Therapy clinic is having hot packs readily available. So I did take advantage of that but when we closed early I didn't take long to leave. The ache is intense at times and moves through my shoulders, down my back and into my hips. Then it goes down my legs. But, it means the chemo is doing what it's supposed to be doing. Friday, February 11, 2005 5:37 AM CST Today is Day 5 of the Prednisone for this treatment. Yea! I have to take 5 tablets daily of Prednisone for 5 days after treatment and it is one thing I dislike the most. At least now I am finished for another 3 weeks. Thursday, February 10, 2005 10:32 PM CST I worked six hours today. It went well. Everything about the same. Body joints ache and spasm. Wednesday, February 9, 2005 5:11 PM CST Little more nausea today but not too bad. One of my friends suggested using anti-nausea bands such as the ones for motion sickness. I'll try anything so I will send Jim on a shopping trip. He's so good to me though so I know he won't mind. Tuesday, February 8, 2005 5:27 PM CST Nausea is gone today. I should say feeling of nausea as it was just that...queasiness....for awhile. But, it has left. I had a few aches in my joints this afternoon but I slept most of the afternoon. I first had to return to the cancer center for my day after shot but other than what I mentioned today was not bad.
Monday, February 7, 2005 5:39 PM CST Two down and four to go! My red blood count was down so I had to have an injection to raise that level. I will go for the shot every other week until it has gone up. Monday, February 7, 2005 7:42 AM CST Today is my second treatment of chemotherapy. My oldest daughter, Teresa will be joining me. I expect it to go as well as the first and with all of the prayers being offered for me, I am certain it will. Saturday, February 5, 2005 9:33 PM CST The guys did it! As the pictures show they shred their locks in support of me. They are wonderful, wonderful nephews. I have two sons-in-law that are joining in as well as one grandson who would like to but Mom is not sure.
Saturday, February 5, 2005 9:54 AM CST Good morning:
Thursday, February 3, 2005 12:31 AM CST Yes, today is the day of the Great Shaving. Thursday, February 3, 2005 9:35 AM CST I didn't have to work today. That was good news. Our patient census is extremely low and my co-workers gave me the day off. I really don't mind as I am still coping with the sinus whatever. Tomorrow I will work and it will be a ten hour day. Wednesday, February 2, 2005 10:20 PM CST My sinus infection is so much better. Maybe the Vicks? Maybe the four quarts of water I drink everyday. Maybe the over the counter meds but most of all my immune system has apparently stopped from it going any further. That's great news for someone with Non Hodgkins Lymphoma.
Tuesday, February 1, 2005 10:52 PM CST Still on the uphill climb. Feeling very close to normal today. I am suffering like the rest of the population with sinuses though but that's allowable. Monday, January 31, 2005 9:32 PM CST Another day! Not a bad one either. Just a few aches and pains. I had phone calls today from friends. One in Australia; Greg Clark a friend who spent a month with us last autumn and my neighbor who checks on me. Sunday, January 30, 2005 10:31 PM CST Today was a good day. Jim and I went to Cracker Barrel for lunch and then Wal Mart. But, unfortunately by the time we got to Wal Mart the muscle spasms in my shoulders and back were getting intense. I didn't spend as much time as I wanted at Wal Mart but I did get what I needed.
Saturday, January 29, 2005 12:12 PM CST It snowed last night! It's the perfect snow for building a snowman, too. Darn the luck and I can't make snow angels or a snowman this year.
Friday, January 28, 2005 8:09 PM CST I worked today also. We were very busy but it does help the day go fast!
Thursday, January 27, 2005 12:14 AM CST Slept great. Good blood pressure this a.m. Good breakfast and lunch.
Wednesday, January 26, 2005 10:23 PM CST Today was a much better day. Plenty of energy. I even cleaned the bedroom!
Wednesday, January 26, 2005 10:34 AM CST I have blood pressure today!!!! 104/78! Tuesday, January 25, 2005 8:46 PM CST This morning my BP was 90/75. A little better. I drove my daughter to her doctor's appointment a few miles away.
January 24, 2005 Where did my energy go? My blood pressure had really dropped (one of the side effects) but we are talking 74/50. Yes, I had a pulse. January 20, 2005 So far, so good. I know there is still more yet to come. But, I rested. On Thursday afternoon I returned to work and worked a full day on Friday. A full day for me is 10 hours. January 18, 2005 I had my first chemo yesterday and it went well. Kelly went with me and stayed there so we talked for about six hours through the chemo. They ran the drugs slowly to see if I would have any reaction or side effects and I did not. So, next time it will not take as long. January 11, 2005 Dr. Hoehn today. He checked my incision and said it was fine. He scheduled me for the porta-cath on Monday. Now I am getting scared. January 10, 2005 Today starts the tests. Bone Marrow Biopsy today. At least the one that hurts the most will be out of the way first! I am apprehensive but I know this has to be done. I am concerned with the outcome but I can’t focus on that right now. There are still more to go. I am up early to drink my Diet Coke! January 9, 2005 What a wonderful Sunday. Spent the day with my grandchildren and children. I love them all so very much and I know they are all worried too. As if Steph needed this right now. January 8, 2005 Spoke with Amy an old friend from SCH. She had Hodgkins Lymphoma and was a great help. She made me feel so much better and gave me a lot of resources to check out. I’m so glad I know someone personally who has gone through this! January 7, 2005 I went back to work. Hard to keep my mind on things at times. January 6, 2005 January 3, 2005 January 3, 2005 12/27/04 Today I had surgery for what was hopefully a hernia. However, it was not. When the doctor told me, there are treatments to take care of this....I knew what he meant without a pathology report.
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Chemo is over!!! Last bag is down and dumped in the trash! Did have some gastrointestinal rumblings and then showing up during the night though! Wouldn't be a nurse for anything!!!!
I'm receiving the blood transfusions they said I would need as we speak. Hope this peps me up.
At least that is all behind me now and I have the next week to go through!!!!!
I have two bags of chemo to go and that will be over. Then after reaching Ground Zero we go back up.
I'll try to update as much as I can. Thanks for your prayers and good wishes!
Continuing to progress through everything ok. The doctor has said Sunday will probably be the turn around day when my immunity has been shot. I have 24 hours left of chemo.
The fluids are continuing but I have lost 5# of the retention. The nurse told me I had over 7 litres of fluid that was out put.
Thanks for your prayers!
Little more tired today but to be expected. Appetite not as good either but still have gained 12# since I came in! They are pumping fluid in me 24/7 including chemo 2 x a day so that's why. They did give me Lasix this am and a lot of fluid has come out!
No word on the catheter yet but my Doctor is not here today. We'll see what happens tomorrow.
Happy thanksgiving!!!!
I am having chemo 2 x a day now for five days. It is going fine. Been able to get up and about in the hallway and use their computer.
Mine works at times but there is a lot of interference also so I get on when I can.
Thanks for your prayers.
Tomorrow is the big day when I am admitted and start intense chemotherapy for five days. Then the transplant 11/27.
We had our Thanksgiving yesterday and we certainly do have a lot to be thankful for!
My love and prayers to you all and thank you all so much!
Tomorrow we will have our Thanksgiving as we always have our celebration the Sunday before the holiday. That way my children are free to celebrate the holiday with their in-laws. Makes it a lot better for everyone!
Of course Michele did not let me know until an hour after my onco nurse notified me! Go figure.
I will be admitted Tuesday; have my Hickman line inserted and start intense chemo.
I hope!
Michelle had tons of excuses and lots of double talk as to why I wasn't admitted. However, Kelly did not back down. When Michelle would say something Kelly would answer...and you will be doing that within the hour...correct? Or when Michelle said she couldn't have information requested that day....Kelly would say would you like for me to place that call for you? Kelly told her the confusion and anxiety we were all going through due to her lack of communication.
All in all Kelly handled it well and repeatedly told Michelle she was to call as soon as she had the pre-certification. As it stands now I will tentatively be admitted on Tuesday 11/20 and have the transplant 11/27.
Of course Michelle was blaming everyone else but Kelly did not lighten up on her.
Thanks for all of your messages and concerns!
She did not have the transplant pre certified with the insurance company. Now of course she offers several excuses which are not acceptable.
Therefore my Hickman catheter will not be put in tomorrow. I will have the Pulmonary Function Test tomorrow and hope to be admitted soon.
I sent word to my doctor I was very ticked (actually I used another word) and did not want to wait until December. He is going out of town next week until 12/3. He said I wouldn't have to wait until December and any of the other doctors could also do the transplant. Fine with me.
As for Michelle.....after my transplant....she may be looking for a new job.
Finally......we have reached the transplant!
Tuesday they will start my intense chemo (five days). The following Tuesday 11/20 I will have the transplant. I am SO ready to get this completed.
I will be having a PET/CT scan on the 15th to make sure all of those little devils are gone.
When the date for the transplant is scheduled I will enter SLU for several days of intense chemotherapy before the transplant!
I see Dr. Richart tomorrow and hopefully we will have a better idea how close we are to the transplant.
My sinuses seem to be improving (seem being the keyword).
Please pray for my friend, Kian from Italy. As I have said before he has been fighting this beast for over 10 years and is now only 27. He will be having tests and scans soon to see if his Leukemia is gone. Kian is a wonderful person and has not had the life most young people are able to enjoy.
At any rate we are closer to the transplant. I see the doctor on Monday and we'll see what Dr. Richart says then.
It was chilly but the bonfire made it better.
Pictures soon.
Today marks the 16th anniversary of my son, Tim joining his father in heaven. While the emptiness remains the strength I have gained during those 16 years is tremendous. Knowing he is in his father's care as well as God's care has eased the pain.
Did manage to go to Sears but that wore me out. So.....
Otherwise things are going fine....just waiting...waiting...
Please continue to pray for Tristan and the family. He is now at Ranken Jordan Pediatric Hospital in St Louis. He will remain there until the new baby arrives and is settled in at home. He will then return home.
Tristan is now residing at Ranken-Jordan a pediatric hospital in St Louis for children such as Tristan is as well as a Rehabilitation Hospital. He will remain there several weeks.
My red count is ok this week as are my platelets. So no transfusion at this time.
I may have to start having bloodwork 2 x a week.
Planning a quiet weekend.
No news on Tristan.
Tristan is being moved from St Louis Children's Hospital to Ranken Jordan Center for Children in St. Louis. This will be a transition for him and will allow Jessica time to prepare for the new baby and then get the new baby settled before Tristan comes home. His scans all show there is very little brain function left and what he has will only keep him alive. Pray for the family and let God's will be done. Thanks.
Tristan has developed vomiting and they are not sure why. They are not able to keep him calm. Jessica went to the hospital around 6 pm. I am waiting to wear what is transpiring.
I am fine today. Actually went to the post office and was afraid the sensors would go off but they didn't. It will be a few days before my blood counts go down.
Funny thing though...they gave me a letter from St Louis U Hospital and told me I have to carry it with me everywhere. It seems the increased security in our country has placed sensors on overpasses and bridges and I could set the sensors off with the amount of radioactivity I carry! Who would have thought? I can see it now...feds with guns drawn coming to my door! They told me to not even consider going to the airport for awhile.
No word on Tristan today. He is swallowing as well as coughing which they did not expect him to do. He is breathing on his own also which they did not expect. Miracles can happen!
Still having neuropathy in my fingers which makes them very cold...so I wear gloves! It is only 65 degrees you know.
Tuesday will be the large infusion of Zevalin immunotherapy...so I will be radioactive for a week.
Thank you all for your prayers.
Tristan continues to show no progress and does have extensive brain damage. A difficult decision has been made by his parents and the angels will be coming soon. Please remember him and his family in your prayers.
Tuesday will be the big infusion that actually contains the drug to kill whatever is left.
This is the diagnostic infusion and contained very little radiation. It is to seek out the cells and attach itself to them. I have a Gamma scan tomorrow to see if it is doing just that. If so, then next Tuesday I will receive the therapuetic infusion of Zevalin which is very radioactive.
If it has not attached itself the way it is supposed to they will not continue with the Zevalin but move on to another step toward the transplant. No need to infuse more radiation, if not needed.
I feel fine. Just still kind of loopy from the Benadryl they always give me!
Please continue to pray for Tristan as he still has not regained consciousness. Thank you!
One week later I will have a normal dosage of it and it will be checked on a gamma scan to make sure it is doing what it is supposed to do.
I cannot begin to tell you the warm feeling I experienced seeing all of those red balloons (families and friends) who came out to support those of us with blood cancer. It meant so much. There were white balloons for us survivors as well as gold for "memory of". Fantastic!
Knowing these people took the time and cared......I can't explain the feeling!
Our grand total was $3,270.50. THANK YOU!
Friday night is the walk and I am ready!
I do have a sinus infection starting but I already had a regular appointment with my PCP tomorrow anyway. So, maybe he will give me something to quench this yucky feeling.
No matter what I will be Lighting the Night!!!!
Kian is now home from the hospital and doing well. Thank you for your prayers. My friend, Melissa who had the stem cell transplant earlier this year continues to develop other problems. She has shoulder problems which were to be helped by surgery this week however she now has developed a blood clot. Please keep her in your prayers also.
Thank you all for my prayers. I know God will bring us through this with flying colors!
Five days until Light the Night!!!!
Please remember Kian in your prayers. He is doing better but still in the hospital in Italy. No a/c either!
Otherwise I feel fine!
I am having computer problems so if I am not on here that would be the reason. I will try to use Jim's computer, if that happens.
I am doing ok. Sinuses are suffering as mold is high and my ankle is more tender than it was but hey! I can survive!
Thanks for your prayers for me and Kian!
My ankle is doing better. Whole foot is different colors but not painful.
Everything else seems to be going ok. I notice lack of strength in my legs though so it's time to start exercising those legs again.
My blood pressure was low today and I had no energy. Slept most of the day. Also have some sinus issues contributing to it.
Tomorrow will be better.
Lymphoma wise I am doing fine. My blood counts are good.
Having had experience in this before I put an ace wrap on it, elevated my foot and had ice standing by. It is sore today but no real damage I don't think. It will get better.
Kelly is picking me up today and we are going to lunch with her old team from Target. They meet every Wednesday.
Pictures are old childhood friends I reunited with over the weekend. That does not include everyone but the cream of the crop! LOL.
Next phase of treatment will start 9/11 so thats good. A little more time to get strong so they can tear it down again.....lol
By BP is good today and so is my breathing.
Feeling good. Blood pressure normal (for me) now. Mouth sores are improving but some still there.
It is sooo hot! I did go out to run errands early but by the time I finished it was really hot. Not that it was cool to begin with......summer, August...global warning...whatever.
Trying to psych myself up for next week. Won't be bad.
Thanks for your prayers.
Saw the doctor today and they have no idea why. My blood counts are very good. Potassium is good. So it may have been an isolated thing.
I will start my first infusion of Radioimmunotherapy a week from tomorrow. The following week I have one more and then we wait 4-6 weeks or more.
Thank you for your prayers.
Feeling ok. Mouth sores are better but not completely gone. Allergies/sinus or whatever gunk this is still there. Normal at this time of year though.
I was on my oxygen all weekend so they need to see what's up with this too.
Looking forward to Light the Night!
My mouth sores are improving. Still there in places but much better.
Actually short of breath today and on the oxygen. I see the doctor again on Monday so he will make sure everything is ok. No fever.
The bone pain has stopped from the Neulasta shot but I still have the horrible mouth sores. Yes, these usually do occur earlier in chemo but I was blessed without them at that time.
The finger and toe neuropathy is still there but not as bad at times. At times, that is...
But we are at the end of that part of treatment and moving ever so closer to the transplant in a few months.
Thank you all or your support and prayers.
Bone pain has subsided somewhat now. Still on Dexamethasone for steroids to keep me breathing. Otherwise doing ok.
Hay fever continues to be the story but I am using the Nebulizer for breathing treatments as well as Allere D.
My Neulasta shot was Tuesday and it is regenerating new cells quickly with a bit of pain in my hips. I do have an over abundance of white cells now already so this is packing more in there causing the pain. I will need them in a few weeks though for the Radioimmuotherapy as it will start killing them off again.
My onco nurse Cindy is a saint though and she has sent me tons of Allegre D. She also just called to make sure I received it.
So, it's stay inside time and unfortunately the oxygen has been back on....and off....and on...for now.
Feeling ok. Just finishing up the chemo so we can move on to the next step.
The weather is very hot and doesn't help as far as the fatigue. I did go to the mall last night with Tiff, Steph and Tiff's friend. Too much walking though which is frustrating for me!
Few more days or oral chemo and then we are done for now!
Yea!
Then we wait. Maybe 2-3 weeks and I will have the radioimmunotherapy. And, of course then we wait again.
Thank you all for your continued prayers.
Otherwise feeling ok. Just normal after chemo little things.
One more week of chemo.....round six.
Othewise everything is right on key.
So, I am just chilling for a day or two (in a/c).
Tiff is here today and we will go to the mall for a little while...she has gift cards to the book store.
Now as always I continue to the chemo orally at home for the next 14 days. The steroids are working overtime tonight though as they are doubled now.
The family room is clean though!
I have 14 days of this and then 14 days off. They will then give me the Radioimmunotherapy drug Zevalin. I've been reading a lot about it and doing research. Sounds extremely positive although there are side effects just like anything.
I do feel less apprehension regarding it now though and I will be meeting with the radiation oncologist to find out more information also.
Thanks for your thoughts and prayers.
Feeling fine....just wired .... of course. Tomorrow is chemo again.
I will begin chemo again on Monday so I have my chemo drugs lined up and ready to start again.
Thank you all for your continued prayers and support. I pray God blesses you all for it.
My heart is functioning at 50% which they like it to be 50-65% so that is good. Lung function has improved also so we are moving along.
I saw the doctor finally. He had a very long family consultation which held us up for a while but I surely understand that happening.
Doctor says resume chemo on Monday and we are continuing on schedule for the transplant sometime this fall.
I will have the tests today and go from there.....maybe chemo next week.
I see the doctor tomorrow.
No chemo next week. I have my echocardiogram and Pulmonary Function Test on Monday. They do not want me to start another chemo until they know for sure the Procarbazine is not causing lung problems. Me, too!
Still waiting for the tests to be scheduled....probably will be on Friday.
I am beginning to feel better but still need the oxygen.
I am begging to feel better but still need the oxygen.
Just laid around today as I felt cold and achy. I will call the doctor in the am. I probably need an Aranesp shot.
Chemo has once again affected my toenails as they are becoming dark. But otherwise I'm doing fine!
We had a nice fourth and I was able to swim, finally! But I did get exhausted quickly and by bedtime I just fell into bed!
Please pray for my friend, Melissa as well as her father who had a stroke last week.
Of course the fact the squirrels woke me up jumping from the roof to the trash cans did not help! There is a conspiracy, I know there is from them!
Yesterday was my last day on Prednisone for this cycle so today I crash and that means it's not a good day to have this pain or squirrels!
Two more days of Prednisone and then I crash. Big time. Huge......just in time for the 4th of July. At least the crash usually only lasts a day or so before my body realizes no more Prednisone for 14 days. Deal with it.
I am having more bone pain this time than normal but it means my body is generating more cells to replace the ones killed by the chemo.
The neuropathy in my fingers and toes has been really bad the last few days. It is "touchy" and painful at times and also makes it difficult to type or do any fine motor activities.
So, it's the old hang in there....we can do this...we can do this...we can...........
Your prayers and support are so wonderful. I thank you all and ask God's blessings on you!
My potassium was low so I also had to have an IV for that which took two hours.
Today I went back for my Neulasta shot and I will finish out the week on meds at home.
Round six should be the last one! Yea. Then it's on to immunotherapy to prepare for the transplant in the fall.
Once again thanks for your prayers and encouraging words. I knew we were approaching the hard part and you are all so helpful! Thanks!
Feeling some of the side effects such as bone pain and fatigue. It's very hot too and that doesn't help. The neuropathy in my fingers is very strong today causing the finger tips to feel like pins and needles sometimes.
But it's that much closer to getting this over with!
Also had the dressing changed where my hickman central line was and it is healing nicely.
Back on prednisone so be prepared for long emails!
4...oops I mean round 5! The Hickman catheter they used for the harvesting of stem cells was removed on Friday so I will be able to swim in a few days. Yea!
My Home Health nurse was here today and changed the dressing on my catheter. Physical Therapy will be back next week.
My friends Kay and Joyce brought dinner last night and that was so nice of them. We had a long visit and enjoyable time.
Other friend Joy had brought meals last week as well as a delicious jello salad this week. That helps so much not having to cook. I enjoy seeing them so much too as we have all been friends since childhood.
Otherwise doing fine and waiting for chemo to resume. Now all of my chemo treatments will be at St Louis University instead of my oncologist at DePaul. This close to the transplant they have requested them to be at SLU.
Seems like the pneumonia is fairly well clear. I see the doctor again on 6/11. He'll make some decisions then.
I am still weak and nap occasionally but my strength is coming back slowly.
My kids have been great and hope to see my oldest daughter and youngest son today. It's always great seeing them and the grandchildren as well.
Thank you all for your prayers and cards.
My BP is now back to normal but my oxygen level continues to be low without oxygen. So, I am on 2.5 litres of oxygen 24/7 at home now. Hopefully with breathing exercises I will be able to get rid of it soon.
I had a ton of tests and they were not able to conclude why all of this happened. It most likely was a viral type pneumonia I contacted since my immune system was so low after the last chemo. They are not sure.
I did have my Hickman catheter put in and completed my stem cell harvest. The doctor wanted at least 5.0 stem cells and would settle for 2.5, if necessary. I harvested over 6.3 in 3 days and everyone was excited! So now that is done but I still have the Hickman catheter untl after the transplant. A little uncomfortable but a Home Health nurse will be coming out to change the dressing on that.
Glad to be home and thanks everyone for your prayers, cards and emails!
On Saturday she received 2 units of blood, to try and help her counts.
On Monday, her blood pressure finally is back to normal, however her oxygen level is still low and she continues to recieve oxygen. They were able to begin harvesting her stem cells today and she had no complications.
The doctors still can't figure out why she is having problems with her oxygen level, they keep doing more tests.
On Tuesday she will have a pulminary function test,echo cardiogram, and then start her second day og harvesting her stem cells.
First surgeon said we can't do it with all of your low vitals. They then decided they would do it without anesthetic otherwise it would be too dangerous. But they wanted to admit me because of the low BP and 02.
They did insert it while I listened and sent me home. My oncologist and his nurse want me to come back tomorrow to ER and have a CT scan. They know I need a transfusion which will raise the blood pressure but are concerned about my oxygen level.
So I will go back tomorrow and hopefully we find out why!
We are having Mother's Day today at Kelly and Stephen's as well as James 16th birthday. We will BBQ hamburgers and hot dogs and everyone will bring something.
Tomorrow it's down to SLU to start the week long episodes of growth factor shots and to ave the triple infusion port inserted. Fun.
Tomorrow is Mother's Day.
Monday it's back to SLU and get the blood work done so we can see what is going on.
Hopefully this will improve soon.
Still coming of of the prednisone and very, very tired. I hope that all passes soon.
The transplant coordinator from SLU called this am to tell me she still does not have a definite date for the harvest. This after my doctor told me different the last time I was there.
Needless to say this transplant coordinator does not understand:
a: she does not know who she is dealing with
b: I have had no Prednisone
c: she does not want to deal with me
d: she now has a new a-hole after the message I left.
Stay tuned.
Just the normal after chemo dragginess and minor pain as the cells regenerate.
Tonight I go to the Employee Recognition Dinner at Saint Anthony's for retirees and long time employees. That will be fun seeing old friends.
Hope tomorrow is better!
Jim and I went to Bunker Hill to see both boys off to Prom.
It is actually Jake's senior prom. His guest was a friend, Hannah. Of course, "no more pictures!" but we did manage some anyway.
Such an exciting time in their life.
I made it through the day quite well.
Neulasta shot is kicking in tonight with pain in my hips generating new cells. But, that's what we want!
Joanne and I spent today going to garage sales and in and out of the rain. Even so it was fun!
Did all necessary grocery shopping, etc. yesterday. Jim and I celebrate our 11th Anniversary today...quietly...at home. Actually Jim will be at home....Joanne and I are hiting garage sales today!!!! Jim and I went to dinner yesterday!
No problems today with chemo.
I went shopping with my teenage grandson and son in law for an outfit for prom. Now I remember how much I miss shopping with teenagers....NOT AT ALL! But we found him an outfit and he is all set now....3 hours later!
He suspects I have developed an ulcer due to the chemo and stress. (Stress, what stressssss?) So, now I will be taking Prevacid. Potassium is back up but doctor says now I have to go back on Calcium. So trading one huge pill for another.
Just another day in paradise! But at least I am here!
Otherwise it went well. A little groggy when I left but Kelly and I had lunch at Olga's and that definitely helps!
Next event will be the harvesting of cells during the week of 5/21.
We went to Rachel's First Holy Communion today. She is Chris's fourth child. She looked so pretty and reminded us she is not a girly girl!
Felt better late in the day. Chemo round 4 continues again tomorrow.
It was a great day for a walk and over 700 walkers turned out.
I went to lunch with Kelly and shopping. It as fun being out for awhile. Visited with a friend in Bunker Hill also.
Everything going fine so far. Thanks for your emails and prayers.
I started Prednisone also so that will give me some energy as you all well know! Here we go again!
But, that much closer to killing this stuff!
I had guests this afternoon. Old school friends in town for a "mini" reunion tomorrow. It was great visiting with them.
I pick up the dreaded drugs tomorrow for another two weeks of Prednisone highs! YUK
So, I will go the week of May 21. That means I will start chemo again on Monday. I was really looking forward to a break but it's not in the cards right now.
I guess it will work out and maybe it was meant to be this way.
BY THE WAY! Melissa was discharged from the hospital yesterday and today her blood counts were high enough she is able to go home completely! She lives in Springfield, MO. Thanks for your prayers!
Today I go to DePaul for an ultrasound of my abdomen. They want to rule out gallstones or gallbladder disease. Why not?
I am feeling ok and looking forward to not having chemo for two weeks!
My friend Melissa is doing great. Her counts are coming back up really well and she may get to leave the hospital tomorrow! Praise the lord!
I will not start my regular chemo on Monday (oh, darn) in the event we start harvesting.
It will not be easy but has to be done.
Also visited with my friend Melissa. She is 2 1/2 weeks post transplant and just starting to see her blood counts increase. She has suffered with throat sores and stomach pain. Please continue to pray for her as she continues healing.
Tomorrow we go to SLU to see what the next step is going to be.
Update on Melissa:
She has developed bad sores in her throat causing pain and not being able to eat. She also has some stomach pain as the mass was located in her abdomen.
But she is getting up some and walking. She has had blood transfusions and platelets which is normal after the transplant.
Please continue your prayers for her!
Monday I go to SLU to see what the next procedure will be prior to harvesting my cells.
My sinus cold is not much better and very aggravating! I went to DePaul on Thursday for xrays, bloodwork, urinarlysis, etc as some wierd things were going on in my abdomen. Felt like someone had aa binder around my waist and pulling it tight. They don't know for sure what it ws but are leaning toward it being a gallstone lodged somewhere. Of course.
Since my platelets are low now I have a large bruise on the bottom of my foot. I have no idea where it came from.
But just another bend in the road. It will be ok.
My Neulasta shot has kicked in today causing some bone pain but being with children and grandchildren today helped alleviate that!
My special chemo blanket is done and it is awesome. The picture is on the page.
Tomorrow to doctor for the red cell shot.
Otherwise....almost there at round 3 complete!
UPDATE ON MELISSA:
The PET/CT scan from head to toe found no cancer in her body. The bone marrow test was also negative. She had her stem cell infusion yesterday and it was rough. She was nauseous all day, could not keep anything down until supper when she had a bowl of chicken noodle soup. We are thanking and praising God for a second miracle in Melissa's life. The first one was after the first surgery when the surgeon said she would not leave the hospital alive. That was one year ago April 16. God is good!!!
Went to an Easter pagent last night that was very enlightening. Beautifully done.
Please remember my friend Melissa as she undergoes her stem cell transplant.
At any rate...we have reached the half way point of the chemo....pre-transplant.
A young woman we met at the Transplant Meeting is now undergoing her treatment at SLU also. They are replacing her stem cells today, I believe. Please, please keep her in your prayers. Her name is Melissa. She is a 40 year old single mom of a 10 year old. Her Lymphoma is much more severe than mine and she has been fighting it for a number of years. So severe as a matter of fact she has knocked at death's door a few times already and this is her last opportunity to defeat the beast.
Please pray for her as she undergoes this treatment. Thanks!!!!!
Feeling better than yesterday though. Up and going early today.
In two weeks we will find out when they start harvesting my stem cells for the transplant.
The weather is gloomy too though and that doesn't help.
Weather is beautiful and I am able to be on the screened porch more so that helps!
Starting to feel the effects today. Very tired and achy. A good day to spend in the recliner and rest. But as I have been told it means the chemo is doing it's job and pushing and popping those cancer cells away. All of them actuallly but whatever it takes!!!!!
Now we go through another two weeks of Prednisone highs.
But 1/2 way through the chemo regime after this and start thinking about harvesting those stem cells!
Good weekend as it gave me the opportunity to work outside in my flower beds. Always helps me feel better.
Next round of chemo starts Monday.
May be starting to harvest my stem cells around the week of 4/23. Not sure yet.
May be starting to harvest my stem cells around the week of 4/23. Not sure yet.
May be starting to harvest my stem cells around the week of 4/23. Not sure yet.
Still having bad night sweats which mean changing night clothes 2-3 times. Comes with the territory though.
By late afternoon all I could do was sit in the recliner and just zone off. My temp elevated and I started drinking lots of water and took ibuprofin for the achy feelings.
But I made it through the night (after 3 jammie changes due to the night sweats) and starting to feel better this am.
Prednisone is rough when you stop suddenly!
The bone pain was not as severe this time. It was intense at times but no where near as bad as Round one! Thank you for your prayers to help with it.
Two rounds down and four to go. The hard part is still ahead but we will forge ahead!
It's beautiful today .... 57 degrees so I sat outside a lot today. Ready for spring!
I am so blessed with family and friends. One of my childhood friends called and said, "have you had your dinner?" "If not, I am bringing it to you" and bring she did.....a delicious roast with carrots, potatoes, onions....simply wonderful! We will enjoy it again tomorrow too! Thanks, Joyce....my long time, childhood friend. I am so very blessed and I thank God every night for everyone of you!
This was the harder part last cycle (the end week of the cycle) as everything goes downhill and back up again. Thanks for your prayers!
I thank you all for your prayers!
Hanging in there!
Today I am tired which is normal and with my red counts being down that is why.
But I'm off to the Social Security Office to apply for disability. May as well...it is mine!
My red blood count was down to 9 and it should be at least 12 so I had to receive an injection of Arasept (sp)? The red blood cells carry oxygen so when it is low it will cause shortness of breath and excessive yawning. So now you know when you yawn it isn't because you are tired but need oxygen.
We were told it is most likely I will need blood transfusions while there but mostly platelets. Anyone can donate platelets and it doesn't matter your blood type. However, don't rush out and volunteer yet. When it is time they will let us know and anyone can to SLU to donate. Also, if you want to donate at the American Red Cross my doctor can sign a form and they would be transported to SLU.
The rooms are very small but one person can spend the night in the room, if necessary. I will be able to have visitors during my stay as the floor is filterd. However, no one should come if they aren't feeling well. Children under 14 can visit but also a form has to be completed by the parents. There is a beauutiful sun room to visit in.
I will be able to take my laptop computer and they will hook me in to the hospital system for internet. Everyone was so nice.
Once again, I have no idea when this will be as it depends on how the treatments go.
I start chemo again this Monday, 2/26.
No flowers, balloons or plants are allowed due to the dust. However, you can bring in food for me. They also stated I could bring an answering machine to answer calls that I may miss.
Friday is PET scan day.
This is getting to be funnier by the minute. I did find out this is common in Lymphoma where there is a big turnover of cells. And can also come from the chemo drugs.
Could they not turn over quieter?
I am icing it and waiting for the next foot to drop!
Have some sinus issues going on but otherwise feel good at the moment!
My children were able to get all of their children together on Sunday (with the exception of two that live out of town, two-great and two bonus grandchildren) for this picture.
I love them so much!
The 14 day Prednisone ended and I crashed big time yesterday. When I wasn't passed out on the couch I was crying from the low.
But today started out better so maybe we are coming back up from this round.
Thank you all for your prayers and concerns.
I don't know if I am actually relieved or not. Since Day 12 started the Neulasta side effects I think the Prednisone was helping alleviate some of the pain using the anti inflammatory.
The bone pain and electrical shocks have been excruciating. It honestly was not a good night....all night....long. But, we made it through. I didn't know for sure if we would but we did....Jim and I that is.
At 6 am I spoke with one of the oncologists in the medical group and he assured me it is in indeed from the Neulasta shot.
Neulasta is given to me the day after chemo therapy to help rebuild the white blood cells chemo tears down. In order for them to rebuild they are regenerated in the bone marrow....neck, chest, hips. And regenerate they do with such force it feels like a constant electric shock.
There were many times last night I was ready to say forget it.......but it also made me realize what my dear brother went through for almost 10 years with Rheumatoid Arthritis.....daily...and I was being a baby about one night?
Still getting a few hours of sleep at a time. I am taking several naps during the day.
Two more days of Prednisone then two weeks off. Hooray!!!
My daughter donated 10" of her hair to Locks of Love yesterday and I had my head buzzed. Our mother/daughter bonding day....not that we need to you understand!
I will not be going to the hospital tomorrow. I will pray from home!
But, I am doing fine and that is the key! Some of the bone pain is starting from the Neulasta shot I had yesterday. The shot is to rebuild and regenerate cells so it is doing it's job.
Please keep my brother in your prayers. He had a heart attack yesterday and is at St Josephs in Kirkwood, MO. He had a quadruple by pass around 8 years ago. Hopefully a p acemaker will be all that is required this time.
Chemo went well and Kelly and I had lunch at Casa LaGarda! Tomorrow is the Neulasta shot which hurts like a bee sting. But it's necessary.
Thanks for your prayers
It's off to chemo I go.........
again today and then a two week break! YEA! Two week break after I finish my medication this week of course.
My granddaughter Tiffany was here with me this weekend and what a delight! She is so much help and such a loving child. I am truly blessed.
Not only blessed with a wonderful family but friends and extended family and friends I haven't even met yet.
Thank you all.
OK tonight I am fed up! Fed up with cancer. Fed up with the fact I have to go through this crap again.
My bones are aching and muscles are cramping. There are little men inside my body (I know they are men because a woman would have it all organized and pain free) who have ice picks and are picking away at my chest, back and hip.
I can't sleep. It's now 3:27 am and I am on a damn Prednisone high! That is why I am eating a salami on toast and cottage cheese.....Prednisone! There is no one on the internet to chat to as everyone else is sleeping in the world.
Why do I have to go to through this again? At this moment I would like to throw the computer on the floor and stomp on it but the computer did not cause my DNA to go haywire and develop wild lymphocytes in my body. Neither did I....or did I?
This too shall pass. I will realize this is a spit in the ocean to what some cancer patients go through. My throat hurts, I have sores in my mouth and I am only 4 days into the chemo so far.
Do I want a stem cell transplant. Not tonight, I don't. I want to feel sorry for Judy instead. I want to rid the world of cancer.........I want to teach the world to sing.....in perfect harmony. Wrong subject.
OK, I feel better now. I can cancel the party, curl up with my library book, listen to Jim snoring in the bedroom, listen to the car down the street with his bass on as high as possible.....and maybe sometime go to sleep.
But, I just answered my own dilemma. Yes, I can do those things...yes I am alive and I will keep fighting! I just wanted a pity party of my own for awhile!
Hanging in there and just taking it easy.
At 3:00 a.m. I was ready to chuck it all though. I woke up nauseated and said forget this chemo crap. After a few hours I called my best friend, Joanne and asked if there was any way she or Gary could bring me some Sprite. Gary presented with two bottles. They are so wonderful!
So after a few hours of my pity party I knew I had to get over it .... suck it up and drive on....so off to chemo I went.
Speaking of best friends....about 30 minutes ago Gary and Joanne showed up on my doorstep with bags of groceries for us. They went shopping and thought of us and it is a welcome gift! End of the month and fixed income is draining when you have to buy more drugs then expected and more copays. But at least we do have good insurance!
Thanks to all of you for your prayers and concerns.
Therefore, I did not get started on my chemo until almost 11:00 a.m. They begin my injecting benadryl to alleviate any side effects, hopefully. Zap that put me to sleep. While I was receiving the drug Rituxan I became very cold and began having chills which is a side effect. When I started shivering they stopped the drug for a while and gave me more Benadryl. After approximately one hour and 8 blankets, one stocking cap and one coat later...I had thawed! So they resumed the chemo with no more problems.
Since it took so long for the chemo I was unable to receive the other two drugs but I will go back in the morning for those to be given by IV. Probably a two hours episode.
After meeting them and they meeting me....we discussed the chemotherapy and transplant. They have told me if I want to participate in it, I am a candidate for it.
Let me explain. The first section is six rounds of chemotherapy slightly different from before. During this time CT scans, PET scans, etc to make sure everything is going as it should. The chemo will be given at DePaul as before.
Then prep for the transplant will include weekly trips to SLU to prepare me with growth shots to help increase the blood cell growth, and prepare further by additional chemo therapy and immunotherapy in the hospital. Then the transplant.
So we are looking at six months approximately in prep give or take. Then 3 weeks in the hospital and another 12 weeks of recuperating at home. So for the better part of the next year I will be involved.
I can stop it at any time, if I want to. I will have more info as time goes by but I wanted to let you know what I found out. I see my doctor on Wed and will most likely start chemo next week.
No transplant!!! The doctors at SLU said I would not be a candidate with the low grade Lymphoma. However, they do have a recommended protocol of Chemotherapy for it.
I will meet with the doctor at SLU next Monday and then my doctor on Wednesday of next week.
I will be able to receive my chemo at my oncologist's office like before!
My doctor called today. The multidisciplinary team has agreed my Lymphoma is follicular B cell which is low grade as the doctor thought
Now, he will contact the Transplant Team at St Louis University Hospital to see if they feel I am a candidate for the transplant.
He said sometimes they do the transplant on low grade Lymphomas and he wants to be sure which way to go.
I continue to wait and thank all of you for your prayers.
Two years ago I faced cancer treatment at this same time. Once again I am preparing for it but I know with your love and prayers and my strong determination we will kick it once again!
Last time was practice.......this time we will get it right. I control Cancer.....Cancer does not control me!
I am feeling fine. With the exception of the fatigue occasionally I am feeling good.
Thank you all for your concern and prayers!
The lymph node in my arm pit is follicular which means slow growing or indolent Lymphoma. However, there are some questionable cells that may be fast growing or aggressive. He wants a second opinion so he is presenting it at the Cancer Board Meeting on 1/9 for their opinion and is also sending the slides to St Louis University Hospital for the pathologist there to give an opinion.
If it it slow growing I will still receive chemo but it will be a different type. If it is the aggressive, I will receive chemo and most likely a stem cell transplant.
I see him again on 1/17 unless I start feeling really bad and then I go in immediately and start chemo.
My brother in law passed away on Friday and we will celebrate his life on Wednesday.
On a softer note, my brother in law Bob is in the hospital and is preparing to see Jesus. Bob was diagnosed with lung cancer earlier this year and now has Pneumonia which they do not seem able to control. His family is with him and allowing him to die with dignity.
I do once again have B Cell Follicular Lyphoma which was what I had before. I will write an explanation of it all later.
My doctor is on vacation this week but his nurse Cathy was kind enough to have another doctor review my reports. I will see my doctor next Wednesday 12/27/04 which will be the two year anniversary of finding out I had Lymphoma!
Yesterday was the 40th anniversary of their father and I meeting. What a great celebration!
Feeling tired today but expected.
It is always a great day. Today is special as it was 40 years ago today I met my first husband...the father of my children.
So ready to get going on this but for now going to kick back and enjoy Christmas!
Both biopsies were virtually pain free. What a great team doing it!
Now we wait.....again.
I understand the bone marrow transplant has great success in defeating Lymphoma. I know of two women personally who have success stories. They are helping me too!
Tomorrow is the Lymph Node biopsy. No problem!
I will have biopsies this week and next and then begin chemo. Following the chemo I will have a bone marrow transplant.
Hopefully that will end this nightmare!
Now we wait until the beginning of next week to see what it shows. I'm just ready to get in there and kick butt again!
Then the oncologist will schedule an ultrasound and biopsy. Thanks for all of your prayers.
Yesterday I felt great...today I am very tired. Good days and bad days.
Friday will be my PET scan. Then after that they will schedule the ultrasound and biopsy.
Couldn't have the PET scan on Friday but will this Friday. Hanging in there!
We are having extreme winter weather today. Rain, sleet, ice and snow.
I was unable to be on the schedule for a PET scan tomorrow. It will be next Friday 12/8. Another week to wait.
But wait I will.
Everyone is so comforting and if it's time to kick butt again....we'll kick butt again!
I have some new swollen lymph nodes in my left arm pit.
I will have a PET scan this week and an ultrasound and biopsy next week.
If necessary, we will kick butt again!
It doesn't keep me inside though as I am so thankful I am able to work in my flowers and yard. It keeps me busy.
I no longer work at SSM Rehab and I enjoy being totally retired!
Good results from the CT scan in May have given me added energy. Lots more hair this summer and now I remember that I did enjoy being bald!
My doctor says the PET scan shows no activity in the lymph nodes that are swollen so it is most likely scar tissue.
However, I think it is wise to get another opinion!
It was cold last winter going through days and nights with no hair....but if need be....I will do it again.
Jim, however, is another story. He suffered a stroke last Monday and is a patient at DePaul Health Center.
He was very fortunate as it was light and only has left sided weakness and some slurred speech. The doctors have told him he will make a full recovery.
He also has a website at caringbridge.org. You then click on visit a page and his is jimotto.
I see my oncologist on Tuesday for my monthly check up. He will probably order another CT scan. Hooray! Not.
I am working again and enjoying every day!
I see my doctor again next week.
I will see him again in one month. I am a bit anemic but not enough for him to be concerned.
I've added some new pictures to the home page.
Once again, thank you for your prayers!
I will see my doctor on 7/11 for my monthly check up. I will continue to report in here for all of you!
Thank you all so much!
I have been investigating local chapters of the Leukemia/Lymphoma Society. I found out there is a walk in the fall, September 10 to be exact, in St Louis which will raise funds for Lymphoma and Leukemia. Light the Night where the walkers carry illuminated balloons. I will be contacting everyone I know to either walk or donate or both.
A lot of people have not heard of Non Hodgkins or Hodgkins and it's time to get the news out about it.
This truly exhibits the power of prayer and friendship.
NEVER in a million years can I express the thankfulness for each and every one of you. Each night I ask God to bless you and your families.
Tomorrow is the day I see my oncologist and hopefully he will have the results of the PET scan.
I worked today and now I am tierd. Good night
Now the weather is HOT and it keeps me inside. Been pretty tired this week so just taking it easy. Also, bones are regenerating so that is painful.
I will not have the results from the CT scan until probably Monday but I will post them immediately. Thank you all for your prayers.
I will be offline until Sunday evening so don't worry. My computer needs some downtime! See you then.
I had my blood tests yesterday and the red count was still a little low so I received the bee sting shot. The nurse did tell me the counts are almost where they need to be and this could be the last shot I need.
I will have the results from the CT scan in a few days. Hopefully I am finished with chemo but if not, at least I know what to expect.
I'm feeling great. Today I go in for my blood counts and possibly another shot depending on the counts.
I am then going to work for a few hours as no one is in the office today and I know they will need help.
Tomorrow is CT Scan day.
I am going to work a few hours on Tuesday and then Wednesday is my CT Scan. It will be a few days before the results on that are in though.
Feeling ok and ready to move on!
My back and hips are really bothering me. Also, another side effect is causing my toenails to lift and then eventually come off. I consider it to be a small price to pay for recovery.
Just waiting for June 1.
I went to my Grandson's Eighth Graduation tonight. As always the gym was full and very warm but we got through it. Hardly seems possible he is going to High School next year.
I am feeling ok. Just a few pains in my hips but no where near as bad.
My hips still bother me some but no where near as bad as before. Today I am off to a baby shower for my Great-Niece. It is a cloudy, dreary day.
I was very tired and my legs were hardly moving when we got home. But Ibuprofen to the rescue.
Tomorrow I will work and it will go ok!
I was worried whether I would be able to attend as I have had a bad, bad headache all day. But it's better somewhat and we will be there!
I stayed in all day due to the headache and the cottonwood flying through the air. Bad combination.
The weather is beautiful so I can be outside. Worked in the flowers, of course.
My hips are bothering me with pain but not as bad as last time.
Today we will have dinner with two of my children and their families and then go visit with some of the others.
My friend since childhood, Carol and her husband Victor as well as Carol's mother, Ann will be visiting. Carol and I were neighbors as well as best friends for our entire life. It will be great to see her. They have been two of my greatest supports as well as members of their church who have prayed for me through this journey.
Hip pain not as bad this a.m. but some fatigue has set in.
The weather has turned very warm and humid. But this is the midwest.
My hips are aching some today and I am a little tired.
I am beginning to feel some pain in my hips but no where near as bad as last time!
This is the fatigue most likely induced by the blood counts going down.
But a few bad days and I will be fine. At least I am alive.
Sunday we went to visit my brother and sis in law in Rolla, MO. That was nice as we hadn't seen them since Christmas. My brother had surgery two days after I had mine.
I am finished with the Prednisone and doing ok so far.
My hair is coming back although right now it is still just fuzz. Can't tell if it is blonde, gray or white but one of the three. Doesn't matter. I have grown to enjoy not having hair as strange as it seems. Not enough though to keep my head shaved but maybe short. Color doesn't matter to me as I will take what I am given. However, curl would be nice!
Blood counts are starting to drop as my energy level is declining today. I have had both of my shots so they will come back up. Just takes patience.
Not too bad today. Pain in hips not as bad but now sternum pain from the bone marrow regenerating there. No where near as bad as hip pain had been.
The main thing is I am alive!
If everything is fine, I will continue seeing my doctor every 4-6 weeks with a few CT scans every 4-6 months for one year.
He did tell me to prepare for this chemo to be more difficult than the others. The hip pain is very common as the bone marrow regenerates new white cells.
My chemo has not been as bad as some. I have met so many people with cancer much worse than mine and I feel blessed to have been shown the tribulations of others.
I sincerely hope with all my heart....this might be the last one. I've braced up for the possibility it may be the worst one yet. But no matter I'm going anyway.
Yesterday was beautiful and I got to see my new granddaughter. I was there when she was born but I hadn't seen her since. I posted her picture on the front page. Ryenne Grace born 4/21. I saw several of the other grandchildren yesterday too. It was a great day.
Work yesterday was tiring as I expected it to be. Still it is great being with my co workers and patients I haven't seen in a while.
Monday will be chemo #6. I so hope it is the last one. My hips are still very sore from the bone marrow regenerating and it is difficult to walk especially on uneven terrain. But, I will see my children and grandchildren tomorrow anyway.
The pain in my hips continues as well as my sinus infection. When I awake each morning I have to manually open my eyelids. Since I have no eyelashes at the moment removing the "sleep boogers" from my eyes takes some expertise. But the key to this is at least I awake each morning!
Tomorrow I will return to work. It should be interesting since I haven't worked for two weeks but I can make it through one day.
sleep as much. Still having difficulty walking
as my left hip is very sore.
Yesterday the oncology nurses told me that my
chemo #6 will be even more difficult than this
particular chemo has been.
I pray it is the last!
If it is nice enough, I will go outside today and soak up some sunshine.
My hip is somewhat better but still not back to par. We went to dinner with friends last night and had an enjoyable evening.
Announcing the birth of grandchild #22....Ryeann Grace Lahey was born on Thursday 4/21 to Patrick and Jessica. She weighed in at 7#3oz. and 19" long. Everyone is doing great!
My hips are better. Not quite as tender as they were but of course the cough is still there. Otherwise I feel much better!
My hip pain is increasing now and an occasional spasm slows me down considerably. I will call the doctor's office this a.m. as it is getting difficult to walk.
My energy level is starting to increase now so my counts must be on the way up again.
But, I am alive and should not complain!
Just keep trudging....trudging...trudging....
Both white and red counts are down as well as platelets. So they gave me a double dose of the shot today. My white count is lower then it was when I went in the hospital. They told me to take it easy.
Today was better than yesterday so I think it had already started to rise before the shot.
Work was not too bad yesterday as we were not busy. I worked in the flowers last night and had an enjoyable evening with a few muscle aches.
Today I am taking it easy.
Starting to wear down a bit from this week's chemo but still going.
Tomorrow I will work. I haven't worked all week and have cut down to one day a week. It's working out pretty good this way.
Still doing ok since Monday. Prednisone day #3 now. Usual cough is still here but Nebulizer does help.
Thank you for your prayers.
Yesterday was chemo #5 and after a two hour delay went well. The equipment which is used for the blood counts was malfunctioning so we had to wait while they ran the vials to the St Luke's Office.
But everything went well during the chemo and then Kelly and I treated ourselves to Applebee's. Yesterday evening was fine.
My oncologist said after the next chemo we will do another CT scan and hopefully we are done with chemo! I certainly hope so as it is taking it's toll.
Also, it's been raining here so the mold count must be very high. I can really feel it today!
Today I will rest all day. Thanks for your prayers.
Another beautiful day yesterday and today! Worked in the yard off and on yesterday. Felt pretty good.
Today we will go see the children and grandchildren in Illinois.
Chemo #4 tomorrow.
I worked yesterday for 3 hours and that was more than enough.
I was scheduled to work today but ran a low grade temp (99.8) all night and decided it wasn't worth taking a chance.
The chemo is definitely beginning to take it's toll on me as I am very tired. If I don't make a journal entry daily now, that is the reason. Please continue to pray and hopefully there will be only 2 more chemos.
Still suffering with my sinuses but that's normal! Otherwise doing ok and hanging in there. Monday is another chemo day.
I went to the oncologist yesterday for my red blood cells shot. It really helped. I could tell they were low as my energy level bottomed out on the weekend.
Today it's off to lunch with the neighbor ladies.
Today was another beautiful day. I woke up with sinuses goofy and me coughing. But, it didn't keep me from enjoying being outside!
Two friends came by to see me. It was great as we haven't visited in quite awhile.
I am doing fine. The antibiotic is working against my cough. Tomorrow I will return to work after two weeks. Then one more week and chemo again.
The antibiotic has started to kick in already and my cough is much less. My body is sore from the coughing and now the muscle spasms are back again. Not as bad as before.
Chemo is such fun. NOT!
I was tired but feeling well enough to go in spite of the sinuses starting in
Today I am coughing but it's from the sinuses...nothing serious. I plan to lay low and continue recuping from chemo.
I had a good night last night. I am coughing this a.m. but I haven't had my breathing treatment yet. That will help.
Plan to lay low until afternoon then go to my son's house for dinner. I'm bringing the ham. Still extremely tired but that comes with the territory.
Don't really feel too bad just tired as usual.
My doctor wants to wait until I have another chemo to do a new CT scan. Yea. I can put off drinking the pina colda gunk for awhile! Since the CT scan I had in the hospital showed the Lymphoma's getting smaller, we'll wait.
He also wants to make sure the chemo doesn't tear my blood cells down again this time. If it does, he will have to lower the dosage on my chemo. Time will tell.
So now five more days of a Prednisone high and lots and lots of water to drink.
Yesterday was a nice day. I saw as many of my kids and grandkids as health allowed. One grandson, JT was running a fever and had the "puke monster" and one daughter was harboring a cold so I steered clear of their homes.
I feel fine today. I am going to lunch with my sister in law, Lois and her husband, Jerry.
Monday is another chemo.
I'm very tired this evening though and will hit the sack early. Otherwise everything is going great. Chemo again on Monday.
I feel good today. Still very tired, of course but I think I will venture out to the Thrift Store. It's Senior Citizens Day today!
Just a few aches and pains but that comes with my age, too!
Still very worn out. I can do a few things and then I have to rest. But, that is to be expected.
No new aches, pains or side effects. The breathing machine is really helping and I am so glad I was able to get it.
I know I can't push myself now. But it's disheartening to run out of power that quickly.
My doctor sent me home with an albeuterol inhaler which helps since I no longer am receiving the breathing treatments.
I'm staying inside and watching television occasionally. I do not like daytime t-v. Probably one of very few but do not like it just the same.
Thanks for your prayers and kind words of encouragement.
There was great news while I was in the hospital though. My CT Scan showed the Lymphomas in my chest are getting smaller!!!!!
I woke Jim and told him I needed to go to the emergency room at DePaul. They immediately started running tests, EKG, Xrays, blood work, and a CT Scan. The x-ray had shown something in my chest and they wanted to rule out a blood clot.
Long story short, I had pneumonia and was admitted. Breathing treatments, antibiotics and lots of TLC helped considerably and now I am home again. Much refreshed and ready to go ahead.
When I reached the hospital my white blood count was 1.4 (normal is 10). Apparently when I had the chemo was week and then my shot that follows....the chemo immediately attacked the shot and then I had no resistance. Today my count is back where it needs to be. My red blood cells were down also and I received a shot for that. Thank God DePaul is only 15 minutes from here!
I am sure all of your prayers helped me come through this little episode. Thank you so much!!!!
BUT, at least I don't have to deal with the Prednisone for another few weeks! The Prednisone high is gone for awhile!
I continue receiving cards and good wishes from friends and I thank you all. Reading all of your notes and knowing you are following me through the site are very heart warming. God bless you all!
Otherwise I am doing fine so far. Nothing out of the ordinary with last Monday's treatment. Hope it continues this way.
Otherwise everything is fine. I am off to work this afternoon.
My sinuses are really bad again today but the nurse told me Monday chemo plays havoc with sinuses. Thank you. Now I know why they get so bad each time!
So today is a rest up time as I work tomorrow.
Thanks for your notes and prayers. I feel they are working.
I am tired today and have a few leg aches. Now I'm off for my day after chemo shot.
Today went well with no problems with my porta cath whatsoever. Kelly and I had lunch following it at Casa Gallardo and then went to the new Dollar Tree Store. So, as you can see.......we were able to keep going even after chemo.
Hopefully there will be no bad side effects this time.
Tomorrow will be chemo #3 and I'm ready to get it over with and move on.
Today is my granddaughter Gabrielle's 7th birthday and I will be off to Bunker Hill later this a.m. I have to show up as I am picking up the cake (she so kindly reminded me last night). And, of course, the gift.
I felt fine today and had a good day at work. I plan to rest up this weekend as I have chemo again on Monday.
Sunday I will see my grandchildren and children. That makes it all worthwhile.
Monday will be another chemo day.
Lots of energy today. I visited the people I worked with at Saint Clare's today also. It's good to see them and let them see me.
Sinuses seem to be improving! I hope it stays that way.
My white count is great and of course that is due to the shot I receive after Chemo. My platelets were great, too.
So, I am now home relaxing. My cough has decreased today also.
Today I am off to the oncologist to have a shot to rebuild my red blood cells. Other than that I will hang low and rest.
I did see my grandchildren yesterday and they were, of course, perfect in every way! (Poor little Brandon's mother did not agree with that but he was perfect to me!)
The potassium pills are HUGE! I'm managing them but it is a challenge.
Contemplating whether to see the grandchildren today or not. I may just stay home and talk to them on the phone.
My legs were aching in the evening though. I have started the Potassium so maybe that will help the spasms and cramps go away.
Tomorrow it's off to Bunker Hill to visit my other children and grandchildren.
Mouth sores are still there but not as bad. I'm on the 10 days back up now.
Tomorrow I will meet my first great-grandchild, Alex Doerr. It will be a great day for both of us!
However, the newest side effect has shown itself. Sores in my mouth have developed. I keep trying to convince myself it means the Chemo is doing it's job but there are times I wonder if I am convincing myself!
The salt/baking soda mouthwash the doctor suggested is being used and hopefully that will clear this newest addition up in no time.
It could be worse....it could be worse....it could be worse.......
My sinus infection is hanging on but not as bad as it was before. The sun is coming out this morning and maybe that is a good sign.
As I have said before, looking around the chemo treatment room I always see someone else much worse off than I am. I hurt for them.
My doctor's office wants me to have blood work today to make sure my potassium level is ok.
Muscle spasms in my back and hips are really bad today. It feels like someone is constantly shocking me with an electric prod. Heat hasn't helped so I have switched to ice packs. Tomorrow will be better.
The pictures tell the story. Judy Myatt, who is the mother of my son-in-law, Stephen gave so generously to my "boys". Judy has a home based business dealing with sewing and special techniques. I had asked her to price hats for the boys and adding a little special to them.
She so generously gave of her time and profit by supplying everyone with the hats. Thanks to you, Judy.
So, I laid around most of the day going only to the library for a new book to read.
All in all not that bad though. I am blessed with caring family and friends who are so encouraging!
Cold day today so I just stayed inside and rested. Tomorrow I will work 1/2 day so I needed to rest for that.
Crazy food cravings continue after this chemo treatment also. Last time it was hard boiled eggs and baked potatoes. Today I was craving the extra long foot long coney dogs from Sonic. I have checked with other survivors and they tell me this is not unusual.
I'm going to curl up with my library book for a while and relax some more now.
Two more joined Nana's Tough Guys last night when my 13 year old grandson shaved his head and my son, Patrick did the same. I will have pictures of them this weekend to post as will I have them of my 16 year old grandson.
I have ordered stocking caps for them all that will have "Nana's Tough Guys" on them. It will also contain the lime green ribbon for Lymphoma.
My porta-cath did not want to cooperate for about the last hour so I suggested putting an IV in my arm. At that point I would drink the solution, if necessary! They did put in the IV and finished and it went well also. The porta cath is now back to normal and ready for the next time.
So now I am home and am going to rest for awhile.
It was a great day with the guys! They are very loving individuals.
Great-Nana today! My oldest grandson, John and his wife Cathy delivered a whopping 9 lb. 6 oz. baby boy yesterday in Farmington, MO. John Alexander Doerr has arrived! I won't be able to see him for awhile yet but I'm waiting for pictures as I am sure Nana Diane was there with her camera!
Yesterday went well at work. However, Josh decided my pink stocking cap with the Playboy Bunny might not be appropriate for work. Keep in mind, Josh is the one who purchased the cap. So, after some good humored kidding...I told him I had brought another headpiece to change into.
I am beginning to like this hair style! If it weren't for the shock factor to family and friends, I would leave it this way and go hatless!
Today I am off to visit my great-great nephew on his first birthday. His daddy and his Uncle Thomas are ready for the Great Shave-0ff today. Pictures will follow.
As the morning has worn on the hair continued to fall into my eyes as wisps and in my hand, if I rubbed my hand through it. So it was time to go to Great Clips.
After shocking the receptionist at Great Clips by announcing I wanted my head shaved I sat down for the great shave off.
The stylist also was named Judy and we had a great conversation. She usually did not work at this particular location so she asked me if I would help her scare everyone there. I am always ready for a joke or two. So, after the clippers went over my head for the final swoop she said, "I don't know this is very short". To which I replied, "Oh, my Gosh! You took all of my hair." Needless to say the manager of Great Clips almost collapsed right there. She and I started laughing and then they all knew it was a joke!
But the greatest happening of all was upon my departure. Leaving at the same time was a woman about my age and with a short hair style. We walked out together and she asked if I minded telling her what type of cancer I am being treated for. I told her Non Hodgkins Lymphoma. She said, "oh, my husband had that three years ago and has been cancer free ever since". So the conversation continued only to find out we have the same oncologist, our original symptoms were the same and it was in the same locations in our bodies.
Next she started telling me her husband had suffered several heart attacks but was doing good and had the best Cardiologist in St. Louis. Yep, same cardiologist Jim had for his heart attack.
It was great as we hugged and went our ways. Only God in his wisdom knew to place me at Great Clips today when this woman would be there. She definitely gave me the encouragement I needed. Thank you, God!
P.S. My nephews are on their way to the barber shop in Miami, FL at this moment!
The hair is thinning and thinning and thinning. Now it has reached the point more than a few strands appeared on the towel this a.m. after my shower. So, my decision to make today is "do I go to Great Clips and have a Greater Clip or wait?" I'm thinking the Greater Clip is ready. My nephew asked me about my hair on Tuesday. He needs to get a haircut and he has so generously started a movement in our family for the male members to shave their heads when my hair goes. (Pictures of all of us will appear on this website, stay tuned) So, Thomas, you have a head shaving coming up. Or as they say in his old home state of Oklahoma.........."ya better be fixing to shave your head, boy".
I'm hanging in there and waiting for my next chemo on Monday.
I am continuing to be amazed by the emails from friends. You are all too great! Thanks, I appreciate it so much.
I tried mom's old treatment of rubbing down with Vick's and thought it was going to kill me! Now, how did mom do it so well? Or did I really smell that bad but knew mom would just reapply it, if I removed it? Maybe it will work as it definitely opened my sinuses! Poor Jim! His mother never blessed him with the vapors. He just shakes his head when I do this.
Emails too. Without all of the good wishes........I might feel sorry for myself but I am blessed with friends and family!
One more week and then treatment number two! I'm ready to plunge ahead.
The heat pad works so well on these spasms. At least they are not as bad as last week but I keep telling myself...it means the chemo is going where it needs to be.
My grandchildren were here last night and that helps cure any ills! They were so good and Gabrielle seems to be doing great with the idea Nana can't do as much as she did before.
Very tired today. My sinuses are not helping each other. But, I went to the store and fixed lunch. Grandchildren later today. YEA
Also, met my new Primary Care Physician since mine retired 12/31/04. I am not impressed and will seek out another physician. This one does not seem to listen or take the time to try to listen. After waiting in an exam room for an hour.......no doubt.
Tomorrow I will see two of my grandchildren. However, some of the others are ill so I can't be around them.
Few body aches and pains today but they are ok. Muscle spasms/twinges in my lumbar are a little more severe though but hopefully Tylenol will help.
I'm going to work today! Almost a welcome relief. I will work four hours today and probably a full 10 hour day tomorrow with the exception of time out for a doctor's appointment.
Lots of emails from caring, loving friends!
Muscle aches are still there and tonight were more of muscle spasms. But, nothing I can't deal with.....Tylenol and I can't deal with!
Tomorrow I plan to work 4 hours in the afternoon. No matter what the bills still want to be paid!
Thanks for such a response to the page.
Last night was probably the best night of sleep I have endured since 12/27!!!
My survivor friends told me the importance of eating....so eat I did last night and that included salad, baked potato and lots of water.
Each day is a new adventure..........kind of like Six Flags!
I wasn't sure about it but when she walked in I thought she looks as bad as I do so we can help one another!
By 10:00 a.m. I was starving! We went to Applebee's. The nice waiter Chris, came over and said the Soup of the Day is chicken dumpling. I immediately answered I'll take one now.
My appetite is good; dealing with the aches and pains and I feel if this is the worst it gets, I'll be lucky.
I'm so blessed with family and friends who keep sending me little reminders of "hang in there"; "you can do it"; "we are praying". They will never know how much this means to me!!!!
Drink lots of fluids and then drink more the nurse told me so I did and I also started eating foods to bring it up. My fatigue level had bottomed out! Body aches, yes. Flu like symptoms, yes. Tylenol, yes!
Saturday..........Nana was tired! But still dealing with the little things coming my way.
We went to see my children and grandchildren. I had warned everyone germs are very important right now and lots and lots of handwashing is important. Also, Nana can't be around a lot of germs. They were great.
They had suggested eating breakfast and snacking during the chemo as well as drinking lots of fluids. So, I did that and I was not sick at all. Water logged later in the evening though!!!
Today I went in for the shot to rebuild my white blood cells and saw the doctor. He said the lymphoma is in my neck, chest, abdomen and of course, pelvis. Thankfully it is not in my bone marrow nor is it attached to any organs. He did say it is an aggressive type as is the chemo I will receive. He was very positive about the whole situation and feels we are on the best treatment for what I have.
So, in three weeks I will receive my next chemo treatment. While I am not looking forward to it, I know it's what it is going to take to get me well. I have been wondering why me for a few weeks now. Today, I realized one of God's reasons for it. While I was waiting for Kelly to come in from parking the car I spoke with some people in the lobby and realized how lucky I am for having what I have.....one lady walking through was suffering with cancer on her face and not much was left. Another lady with breast cancer said her doctor just gave her a prescription that was going to cost her $600 a month and she is on Medicare. She said she just wouldn't take it then. At least I knew to suggest she check with her physician as many pharmaceutical companies will give you the drug through your physician's office. I also suggested she contact the State as well as the Department of Aging. Realizing there are some people who have to go to chemo every week instead of my every three weeks and even receive much more treatment than I do. It certainly has humbled me already. For years and years I would not donate to the Cancer Society as I felt a cure could have been found years ago. Now I realize they have found "cures" as such and are working harder and harder for more. I now know I am right where I need to be at this time in my life. A little different than I expected but I see God's reasoning more clearly.
I cut my hair short and the girls and I went wig shopping on Saturday. They all agreed on one that was frosted blonde on top and strawberry blonde the rest. They said, it's a good time to try something different! I also have turbans and one of my high school classmates made me several scarves and mailed them to me. I'm ready and I hope my hair comes in curly like Amy Schuler's did!
Dr. Cuesae said they will start chemo Monday. I don’t know if I am ready for that or not. Very, very apprehensive.
The test went great. Virtually painfree. I was so psyched for pain and unpleasant experiences but the radiology staff was fantastic. We had lunch and were out of there. Everyone is so interested and keeps sending emails and prayers. Thank you.
I took my cookies and shared with the kids. They were all excited about the cookies. Me, too as I couldn’t get rid of them otherwise! I love these kids so much.
Brie and JT were sleeping when I got there but I left them a cookie. Talked to the princess later and she thanked me for leaving her a cookie!
Next Saturday the girls and I are going to lunch somewhere and then just take some time for us.
Josh (co-worker) told me he would buy me a Playboy Bunny stocking cap, if I would wear it. I told him of course I would just bring it in!
So by 5:30 starting to get a little tearful but bluffed through it. Josh noticed but he didn’t really say anything.
By the time I got in my car I broke down. I sat for 15 minutes and cried. Finally came on home, crying all the way. Reached a total melt down when I got home and it went on for a few hours. But my sister in law Dot called and that helped and one or two of my kids called. My cousin, Saundra called as she had been picking up my thought waves and wanted to know what was wrong. She was definitely what I needed!
I also found websites to check out and even chat rooms for NHL. I even ordered some turbans to be prepared. It was great to chat with people who were either there or had been there.
I know this will be a roller coaster ride with a lot of peaks and valleys.
Kelly came down and went to the Oncologist’s office with me. I am so glad. Once I sat down in the lobby I began to realize what this really means. But we met Dr. Cuzae and we both liked him. The entire staff was very nice and explained things over and over to be sure we understood. I’m glad Kelly was there because she can remember more than I can. But at least I can drink my diet coke before and during chemo!!!!!
Next comes testing. Lots of testing as a matter of fact. That frightens me because what if it shows it’s worse than we thought? I certainly do not want to die. Although I realize death brings a new life and no pain I still do not want to die.
Dr’s office scheduled all testing for me. Next week the fun begins.
When we arrived at home there was a card from Cookies by Design. Someone had sent me a bouquet but we didn’t know where he left it. Another fiasco began until I finally found it was left with the Police Officer next door.
After waiting over an hour for Dr. Hoehn and wondering if I would even see him, he arrived in the office. (Emergency surgery held him up). He calmly checked me and told me so tenderly that I have Lymphoma. Cancer of the lymph glands. He suggested an Oncologist and I agreed. I trust Dr. Hoehn’s decisions. As I left the doctor’s office, I called the Oncologist and scheduled an appointment. It is Thursday, January 6. The waiting continues.
Mixed feelings going on here but I am notifying family and friends. They are all praying for me. I don’t think the full impact has struck as yet. Nancy (m co-worker)suggests no chemo since it made her sick. I will do what the doctor says.
After waiting over an hour for Dr. Hoehn and wondering if I would even see him, he arrived in the office. (Emergency surgery held him up). He calmly checked me and told me so tenderly that I have Lymphoma. Cancer of the lymph glands. He suggested an Oncologist and I agreed. I trust Dr. Hoehn’s decisions. As I left the doctor’s office, I called the Oncologist and scheduled an appointment. It is Thursday, January 6. The waiting continues.
Mixed feelings going on here but I am notifying family and friends. They are all praying for me. I don’t think the full impact has struck as yet. Nancy (m co-worker)suggests no chemo since it made her sick. I will do what the doctor says.
See him in one week he told me. That was the longest week of my life
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