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Welcome to Maxwell's Space.
It has been designed to help keep you informed of his progress and to communicate with his parents and family.
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Journal

Tuesday, June 16, 2009 10:04 AM CDT

Sorry I haven't written in so long. Been crazy around here.

We still haven't gotten the van fixed, had to work on the jeep.

But we've been visiting Max and he's doing really well post surgery.

Dr. was very impressed with his incision healing well.

Max hasn't been eating orally very well though these last few days. He's got allergies that have been bugging him.

We found a dentist for special needs kids here in town that will be wonderful. He actually works out of St. Cloud and also goes to Gillette. So he knows his kids.

Saw him yesterday and I like him alot just from the first visit and his explanation of what he likes to do for the kids such as Max.

Max did get a little wiggy on the say back to Sugar Lake and once we got him in bed he calmed down.

I was talking to him about some things that is going on around here at home and why we've been preoccupied with that. Max has heard this before each time I go out there and when I was telling him again he let out this big sigh like sound as if to say to me "Geez mom do you have to keep explaining this over and over to me? I know"

I think he was really trying to sleep and I kept talking to him and he'd make some other loud (can't explain exactly) noises that I've never heard before or at least not very often that's for sure.

Almost more verbal like he's trying to say things.

The girls at Sugar Lake had a hawain like party for the kids at the end of May. Pictures looked like they had fun.

So, for the most part all is well for him. Wish he'd eat orally better. This is why I would like to get him home to play/work with him when I feel I have more time cuz that's the reason for bring him home is to pay all my attention to him.

When I go out there I feel like it's just a visit and don't feel comfortable doing things with him really. I just like him at home and it's been so long since he's been home. It feels normal I guess to have him here when I feel it's only me to do things with/for him.

But I am so gratful that Max is at Sugar Lake getting the care that he needs.

Shoot I better go, the day is flying by.

I'll try and keep updates sooner then later.

Lisa

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E-mail Author: gosewischj@aol.com

 
 

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