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MERRY CHRISTMAS!

So sorry everyone has been sick! This time of year is no fun for that! I will be praying for quick recovery and rest for everyone! Hugs!!!

Myspace Graphics

Eli & Fletcher

Get free graphics at BlingyBlob.com!


Love,Eli & Fletcher

p.s. HAPPY ANNIVERSARY Maria & Neil !!

!

HAPPY BIRTHDAY
Happy Birthday!
"If Children have the ability to ignore odds and percentages, then maybe we can all learn from them. When you think about it, what other chance is there but to hope? We have two options, medically and emotionally: give up, or fight like hell".
-Lance Armstrong --LIVESTRONG,

HAPPY ANNIVERSARY, TOO! “Love...It bears all things, believes all things,
hopes all things, endures all things.”
(1 Corinthians 13:7)

Life is fragile. . .
Handle with prayer.

Praying for you, Barb, John, Shawn, Shannon, & Colleen
www.caringbridge.org/page/shannon
The Prayer Bears

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Friday, September 7, 2007 3:43 AM CDT

Hi pretty girl. Sorry to hear about the bigger seizures, it is never fun to have a seizure but to fall down and also hit your head makes it worse. You must know they are coming if you are able to grab Mommy's hand or try to hang onto a chair.

I see you are practicing driving Mom's car for the day you will get your own. Look out boys, here she comes!! Sounds like Mom and Dad are pretty busy with the tournament. I hope you are able to raise lots of money for the cause and that they are able to do the research needed to find a cure. You deserve only the BEST.

We are sending hugs and kisses your way.

Macomb, MI - Friday, April 13, 2007 10:26 AM CDT

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Maria:
I am so sorry to hear that they have decided that Kylie is not a surgical candidate at this time. We were told the same thing 2 years ago and Nicklas just had surgery in Feb...so there is some hope. Never, ever give up hope becasue when you do that you have nothing left. I know this must be terribly difficult right now, but know that you guys are not alone. We feel a little bit of your pain too-but more importantly, you have all of us who are here for you to support you. I know support doesn't stop the seizures-but it helps you get through the days with the seizures.
God Bless!
Michele


Macomb, MI - Friday, April 13, 2007 10:26 AM CDT

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I'm so sorry about your news. Keep your face and hope towards God. Faith is believing what you can't see. Trust in God. He loves Kylie!

In Christ,
Chris Engman <simplefoods@frontiernet.net>
Farmington, MN - Friday, April 13, 2007 9:41 AM CDT

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Maria, I am so sorry about the surgery news. Reading about your hopes & dreams, ups & downs break my heart. I understand your doubts-but please keep trusting Him. I still believe we will get that miracle for Kylie. I will be on my knees tonight lifting your family up in prayer. Caron
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Friday, April 13, 2007 7:14 AM CDT

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Oh, Maria. I am so sorry to hear about this latest news. So many of the things we hear bring so much relief and sadness at the same time. It's just not fair. I'll bring some bananas for your crazy monkey girl and a red nose for your clown. Can't wait to see you tonight!

Nena <nenaelise@yahoo.com>
Superior, WI 54880 - Friday, April 13, 2007 7:08 AM CDT

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I'm sorry about losing the surgery option but like you said, at least you can move forward and know you did everything possible to increase Kylie's chances of living seizure free. I rememeber clear as day when Dr. Ritter told us Ryan is not a candidate for surgery either because he has clinical seizures on one side of the brain and subclinicals on the other and they don't cross. It was depressing but at least we don't hold out false hope anymore for a seizure free life for him. Just know you are in our prayers and thoughts continually. Both your girls are beautiful and it's wonderful to read each week about their "adventures" and to hear the joy they bring you in spite of the tough times. But you know, every one has a cross to bear in this life - some are just more apparent than others. Much love from Nebraska!
Kim - www.caringbridge.org/ne/ryanm <mcclintick6@hotmail.com>
Lincoln, NE - Friday, April 13, 2007 6:55 AM CDT

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Hi Gibbons family,
Grandma Karen shared this with me. We have a grandson with TSC, and I wanted to say, I am so very impressed, with all that you are doing and have done for TSC, and for Kylie.
Keep up the strength, and soon we will find a cure.
Laura Janowicz <onepoleoneczech@yahoo.com>
Essexville, Mi USA - Wednesday, April 11, 2007 11:12 PM CDT

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GIBBONS FAMILY
Hope you Easter was a happy one. I still have some things for the girls at the house, we will have to stop by. Sorry
to hear about Kylie and the seizures.....when will it end????/ My thoughts are always with you all

love jessie
jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Tuesday, April 10, 2007 1:28 PM CDT

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Hi!
I'm so sorry Kylie is sick again. These kids can't seem to catch a break. Have you checked into IVIG? I can't help but think if you can get a dr to do it it may help. We are praying for a quick recovery.

We check in often and are praying!
With Hope, Rachele and Zach <rlaco2001@yahoo.com>
Shakopee, MN - Tuesday, April 10, 2007 9:07 AM CDT

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Hey guys...hope you had a peaceful Easter! We are praying for better days and good news! Hope to see you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Tuesday, April 10, 2007 7:20 AM CDT

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Kylie,
Sending our love and prayers. You look simply lovely in your Easter Dress!

Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Monday, April 9, 2007 11:23 PM CDT

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Poor kiddo!
I hope she gets better soon.
Praying for seizure control.
Love and hugs,
Sami
Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Monday, April 9, 2007 12:15 AM CDT

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Hope you guys had a nice Easter.
All these new pictures that you are putting up of Ky are soo cute. I dont think that the lil doll can take a bad picture!

Take care guys

Steve, Erin and Jason
Erin Mathison (www.caringbridge.org/mn/jasonk) <erqtetrin@aol.com>
st.michael, mn us - Monday, April 9, 2007 8:24 AM CDT

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Happy Easter to the Gibbons Family!
Praying for blessings from above as you celebrate the risen Christ with your family.
Love,
Jen & Shayla

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Sunday, April 8, 2007 10:08 PM CDT

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Happy Easter to Our Sweet Girl,
As I prayed in church today for you, I realized that this is your third Easter with that seizure monster making you so tired. I pray that next year you will get the miracle you deserve and have a seizure free life. I pray you can get stronger on your legs and be able to run and climb and play like every other little girl your age. You are our amazing angel and you are so loved.
Grandma Karen ( Nana)
Karen Ueland <klpu@aol.com>
- Sunday, April 8, 2007 2:38 PM CDT

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Hi Gibbons family! Happy Happy Easter to you. Hope the easter bunny brought lots of treats. Ky, I hope you are feeling better.

Love, Nena and Reese
Nena <nenaelise@yahoo.com>
Superior, WI 54880 - Sunday, April 8, 2007 10:07 AM CDT

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Happy Easter Kylie Jo!!!
Love Auntie Kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Sunday, April 8, 2007 8:13 AM CDT

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We keep reading the caring bridge site - - We keep sending prayers and good wishes - - We are AMAZED at the strength of the GIBBONS' family - - Please know you are in our PRAYERS every day - - and we send much love!!!!
Nordis Schrankler
- Saturday, April 7, 2007 10:26 PM CDT

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Happy Easter!!!! Feel better Kylie (and Ava too)...

Love,
Dawn and family...
Dawn Schultz <dawn_schultz@msn.com>
- Saturday, April 7, 2007 7:49 PM CDT

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Gibbons family,
So sorry the girls are not feeling their best, however we wish you all a Happy Easter and are sending get better prayers your way.
Alicia
Alicia Villegas <alicia.villegas@att.net>
St. Paul, MN USA - Saturday, April 7, 2007 6:42 PM CDT

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Have a Happy, Hoppity, Blessed Easter!!! I pray those seizures disappear and never find their way back!! Love and prayers,
Dorine McNary
Williston, ND - Saturday, April 7, 2007 4:38 PM CDT

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Sorry to hear that Kylie was back in the hospital - glad to hear that it was a short stay and you are home for Easter. I'm sure I'll be seeing pictures of your adorable girls all dressed up in their Easter bonnets. As always - you all amaze me! The strength and faith within your family is incredible. You are an inspiration to many. Take care!
Maureen McGee <maureen.mcgee@isd623.org>
- Friday, April 6, 2007 12:55 AM CDT

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Fingers are crossed and prayers are non-stop!
Happy Easter

The Gibbons Clan
Kelly Gibbons & Family <kelly@allbritesign.com>
Circle Pines, MN - Friday, April 6, 2007 12:16 AM CDT

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Kylie,
I am glad you didn't have too long of stay at the hospital and that you get to celebrate Easter at home.
Jody <jody_prudhomme@yahoo.com>
- Thursday, April 5, 2007 12:24 AM CDT

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So glad to hear you guys are back home - in time for Easter. We will continue to pray for you all, Kylie and her seizures, your brother going to Iraq, and all the other things you are dealing with right now. You are a strong family with lots of love and support behind you. Have faith and be strong - with love and prayers! Lisa, Charlie, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Thursday, April 5, 2007 11:03 AM CDT

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Happy to hear that you are out of the hospital and will be home for Easter!!
Suzie
- Thursday, April 5, 2007 10:22 AM CDT

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We have been thinking about you. Hope you have a fun SEIZURE FREE Easter. Sending Hugs and Kisses your way.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Thursday, April 5, 2007 10:11 AM CDT

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Hey sweet Kylie,
This is Avery! I hope the seizure monster leaves you alone so you can chase the Easter Bunny and look for those eggs! I have been very busy in therapy every day but I am going to walk soon so that I can run up and down the halls too and drive my mommy even more crazy!
love,
Avery Elizabeth

Maria,
Hang in there girl. It will get better! We have no regrets about surgery despite the difficult time we had. Seizure freedom is awesome and I would do it all over again in a heartbeat even if it didn't gaurantee the seizures would go away. There are no guarantees in life, except that seizures suck! Avery is like a totally different little girl, and learns something new every day! I hope the doctors come to an agreement soon, so you can stop waiting and wondering! Have a blessed Easter and know that you will be in our prayers as always,

love and prayers from Kansas,
Lisa
Lisa Hart <lhart520@yahoo.com>
Olathe, KS USA - Thursday, April 5, 2007 7:46 AM CDT

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I am happy that there is a course of action for Kylie now! I hope it all works out. I will pray for her!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, April 4, 2007 11:21 PM CDT

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I am glad to hear that today offered some concrete ideas about how to help Kylie. I hope the new drug works for her and your Doc can laugh all he wants at the nay-sayers! I just have to tell you how cute that picture is at the top of your website! I see her cute little face with her adorable smile and have to say "I just love that little girl!" And I've never even met you guys! Your girls both have a special place in my heart and I will keep on praying for good news! Take care!
Michelle Lunders
Blaine, MN USA - Wednesday, April 4, 2007 11:12 PM CDT

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So glad that you got a plan that you are happy with ;-) I am hoping Kylie is one of the people gabatril works for. Take care and have a great weekend at home!
Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Superior, WI 54880 - Wednesday, April 4, 2007 9:48 PM CDT

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I am praying that everything will improve greatly for Kylie (and the rest of your family). I'm glad that you are home now and hope you all have a joyous Easter! Prayers from South Dakota.
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Wednesday, April 4, 2007 9:27 PM CDT

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Congrats on going home quickly! I was hoping that for you. Enjoy Easter at home!


Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Superior, WI 54880 - Wednesday, April 4, 2007 7:51 PM CDT

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Wow . This has to be the quickest 7940 Kylie discharge ever ! I am so glad you will be home for the Easter Bunny . Many prayers coming your way for the seizure monster to go into eternal hibernation .

Eli & Fletcher
Michele
- Wednesday, April 4, 2007 7:19 PM CDT

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Dear Kylie,
TS really does suck. It just doesn't seem fair! The only thing that keeps us going is knowing that we have such awesome friends like you and your family. I am thinking about my sweet friends in Minnesota constantly! I LOVE you and Miss you!
Sending you the biggest hugs and high fives!

Your Friend
Kierstin
XOXO
Amy Dublinske <dublinske@sbcglobal.net>
Lee's Summit , MO USA - Wednesday, April 4, 2007 5:20 PM CDT

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Hi guys-
Glad Kylie got her wires off and that they were able to get plenty of activity to determine the focus. It was great to see you and Kylie yesterday. She is getting so big! So much for our plan of getting in to see Dr. F. early, we didn't get in until almost 3:30! We should've come back up to the unit and told them to page us when they were ready =)! Hoping you get out before the weekend and that the Doc's come up with a plan to give Kylie some relief from the seizures!
Happy Easter-
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Wednesday, April 4, 2007 1:22 PM CDT

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Sweet Kylie Jo,
Continuing to pray for you sweet girl. Praying for this monster to leave you alone and praying for a wonderful Easter for you and your family. Neil and Maria, praying for strength, peace, comfort, and courage as you endure this yet again. Praying for Kylie.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Wednesday, April 4, 2007 9:09 AM CDT

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Hi Gibbons! So sorry to hear you are back in the hospital. My family continues to pray for your family and especially the little ones. Everyone always asks how Kylie is doing and checks in on the site. She has touched so many lives. Wishing you a Happy Easter! Maria, I know no matter where you are, you and Neil will make it a great holiday for the kiddos. You are fabulous parents!
Love to you all...Rachel
Rachel Groess <rachmn@aol.com>
Woodbury, MN USA - Wednesday, April 4, 2007 7:53 AM CDT

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Easter Prayer
God, give us eyes to see
the beauty of the spring,
And to behold Your majesty
in every living thing.

And may we see in lacy leaves
And every budding flower..
The Hand that rules the universe
with gentleness and power.
And may this Easter grandeur
that spring lavishly imparts
Awaken faded flowers of faith
lying dormant in our heart.
Give us ears to hear, dear God,
the springtime song of birds
with messages more meaningful
than man’s often empty words.
Telling harried human beings
who are lost in dark despair
‘Be like us and do not worry
for God has you in His care.’
(Author Unknown)

Thinking of you this Easter…
PRAYERS LOVE TRUST FAITH
-JESUS -

God Bless,
Stacy
www.caringbridge.org/visit/stacydvorak


Stacy Dvorak
Shakopee, MN USA - Wednesday, April 4, 2007 7:09 AM CDT

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Just checking in on that sweet little Kylie! I will pray for a productive (?) and short hospital stay for you and that the doctors can figure out a way to keep those darn seizures away from you!! You are so cute in those bunny ears! Take care, sweet one!
Michelle Lunders
Blaine, MN USA - Tuesday, April 3, 2007 11:59 PM CDT

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Kylie,
you are so precious. The stories your mom posts about you have sometimes brightened my day. You are so sweet and know that I think you rock! We're cheering you on! In James it says: "As you know, we consider blessed those who have persevered."
Jesus has a plan for you, and you'll never be alone. Know that He's with you every step of the way.

"And the prayer offered in faith will make the sick person well; the Lord will raise him up. If he has sinned, he will be forgiven."
James 5:15
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Tuesday, April 3, 2007 11:17 PM CDT

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Hi Kylie,
I am happy you are still smiling but your eyes look so tired. I can't imagine how all of these seizures must make you feel. You are still our amazing little trooper who makes so many smile. Hope you can have a short stay this time and be home and without seizures for Easter.
Grandma Karen
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Tuesday, April 3, 2007 11:14 PM CDT

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Many, Many prayers coming your way. Praying for you all to be home for Easter. Dear Kylie, we are so sad to hear of these nasty seizures! We are praying really hard for you to get better! We love you!

Love,
Jen & Shayla

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Tuesday, April 3, 2007 10:59 PM CDT

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Hey maria-
I just got back in town and my mom told me that you guys were back in the hosptial. I'm sorry to hear things are going rough again. Let me know if I can help out in any way, I'm on Spring Break this week. I'll give you a call tomorrow.
Nicole Schueller <nicole.schueller@spps.org>
St. Paul, MN USA - Tuesday, April 3, 2007 9:39 PM CDT

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Hoping that this is a short stay for you guys. I'm always thinking of you and praying for sweet Kylie. Please let me know if there is anything that I can do.
Steph B <stephiebecker81@hotmail.com>
White Bear Lake, MN - Tuesday, April 3, 2007 9:27 PM CDT

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One day at a time Gibbons Family!!!

Hugs and prayers coming out to you..........

XOXOXOX
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, April 3, 2007 8:15 PM CDT

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Sorry to hear Kylie is in the hospital again-a real bummer. You guys are all in my prayers that things change for the better so you can all be home for Easter. Much love, Cousin Jane
Jane Dahlin <grammijane@usfamily.net>
Hudson, WI USA - Tuesday, April 3, 2007 7:54 PM CDT

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Dear Gibbons family,

Am praying for the doctors and all to get everything straightened out, and for Kylie to have an identifiable seizure, and quickly, so that they can come up with the best treatment for her and get all of you home, seizure-free, for Easter. I can't blame y ou for wanting to take someone's head off -- it seems like the screw-ups in different facets of Kylie's care, as if you didn't have enough to deal with and worry about! I will pray that everyone gets their act together for your precious girl.

Please know you're in our prayers. hang in there as best you can -- what an amazing girl you have, who can still keep smiling despite all she's been through and is going through.

Sincerely,

Janet McCann
Janet McCann <janet@mccann-family.us>
Austin, TX - Tuesday, April 3, 2007 3:43 PM CDT

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Hi guys,
Still praying for seizure control.
Love and hugs,
Sami

Sami Philippians 4:13 <samlloydmiller@gmail.com>
Minnesota United States - Tuesday, April 3, 2007 12:15 AM CDT

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Maria~ we are here if/when you need anything. We are praying for things to be straightened out with our insurance/msi paperwork, approvals, etc... As well as getting some good information from the eeg today and that this will be as short a stay as possible. I always like the room where you had a view of the cathedral, it has a sense of protection. Love to you all
Josie Bemis <josiebemis@yahoo.com >
- Tuesday, April 3, 2007 11:50 AM CDT

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Hi Cutie
Hoping and praying all goes well today and you and your family gets the answers they need.
Shawn Schlueter <schluetersm@hotmail.com>
- Tuesday, April 3, 2007 10:53 AM CDT

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Prayers are coming your way!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Tuesday, April 3, 2007 7:01 AM CDT

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I am sorry to check in and see that Kylie isn't getting better. I will pray for rest and peace for her. Her body must be so tired! I will be thinking of you and praying for you lots sweet Kylie!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Tuesday, April 3, 2007 3:59 AM CDT

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Sending lots of love from Nebraska tonight. Those nasty seizures can just go to hell where they belong and leave sweet Kylie alone. I'm praying for strength for you all.
Kim - www.caringbridge.org/ne/ryanm
- Monday, April 2, 2007 9:32 PM CDT

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Praying for seizure control!
Love and hugs,
Sami
Philippians 4;!3
Sami <samlloydmiller@gmail.com>
Minnesota United States - Monday, April 2, 2007 2:12 PM CDT

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So sorry to hear things aren't going well. We will pray for you and your family. . .my heart goes out to you.
Lisa, Tori & Makenna <lstudiner@msn.com>
Cottage Grove , MN USA - Monday, April 2, 2007 11:08 AM CDT

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Hi I haven't talked to you in awhile. Sorry to hear things have not been going that great. Give Kylie a big hug for us. I hope you had a good time at your brothers party. Call me sometime this week and let me know if you need anything !!!!
Danielle Philippon <djphilippon@msn.com>
Woodbury, MN - Monday, April 2, 2007 10:05 AM CDT

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Thinking about you and praying for you.
Kelly
Fresno, CA - Monday, April 2, 2007 10:04 AM CDT

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Praying for your family... Love, Dawn
Dawn <dawn_schultz@msn.com>
- Monday, April 2, 2007 8:11 AM CDT

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Praying for you.
Jen
- Sunday, April 1, 2007 7:50 PM CDT

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Sorry to hear that that darn seizure monster is back.You are in my thoughts and prayers.
Flannery Donovan <dono0097@umn.edu>
St Paul , MN USA - Sunday, April 1, 2007 7:26 PM CDT

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Praying for Kylie right now. I hope some answers come soon!
Karen Patterson <Anchormom@comcast.net>
New Castle, DE - Sunday, April 1, 2007 6:39 PM CDT

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I will be praying for Kylie. I can't imagine your feelings right now and I only hope God brings some better news, as well as rest for Kylie. I promise to keep you in my thoughts and prayers!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Sunday, April 1, 2007 4:04 PM CDT

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Oh dear . I am so sorry Kylie's seizures are so uncontrollable . You have every reason to be worried and concerned that she is not walking . I am praying super hard for these dang seizures to stop and that she regain her walking skills she worked so hard to acquire .(((HUGS)))

Eli & Fletcher
Michele
- Sunday, April 1, 2007 2:30 PM CDT

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We have our fingers crossed that things have settled down at your house and no update means that things are uneventful and there were NO MORE SEIZURES at this weekend! Will continue hold good thoughts for our sweet, ever-smiling Kylie--
Katie, Ross and Jack Paitich <katepaitich@yahoo.com>
Rosemount, MN USA - Sunday, April 1, 2007 10:05 AM CDT

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Isn't it just Murphy's Law that Kylie would not have a single seizure during her EEG?! ARGH! You must be so bummed! Sorry things didn't work out and that she has to be admitted to get those darn seizures recorded! Thinking of you and keeping our fingers crossed that today is a better day for Kylie! Hoping to bump into you guys at Dr. Frost's office on Tues...our appt. is at 2:30. Until then, we are sending our love-
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Saturday, March 31, 2007 5:20 PM CDT

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Hey Guys,
Prayers go out to you this weekend....go figure they hook her up and for 4 hours she doesn't seize. Hope you come up with a plan you can agree on. Hugs from us to you.

Nikki Sickmann <hownnik@hotmail.com>
Farmington, - Saturday, March 31, 2007 10:29 AM CDT

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Goodness gracious sweet Kylie! I will be praying for you honey!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Friday, March 30, 2007 10:59 PM CDT

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You know I think this happens to all our kiddos at one time or another. Sometimes I think all the wires interfere with their performance :)... We've had the same thing happen more than once. Hopefully you'll have a plan soon and I'll be praying you have an uneventful weekend. Love ya!!! ~Dawn
Dawn Schultz <dawn_schultz@msn.com>
- Friday, March 30, 2007 9:49 PM CDT

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Leave it to Kylie to be seizure free for the 4 hours she was hooked up. What a stinker!!
Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Superior, WI 54880 - Friday, March 30, 2007 7:35 PM CDT

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Hi Kylie,
I am praying for you today and hope that they find some answers for you and your mom and dad. I am sorry that you haven't been feeling well. I hope we get to see you tomorrow and that you have a better night tonight.
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Friday, March 30, 2007 4:34 PM CDT

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Keeping you in our thoughts and prayers! Good luck with the tests today.

Kristie, Perry, Courtney, Ryan and Tyler Bredeson
Kristie Bredeson <kbredeson_464@comcast. net>
Bloomington, MN USA - Friday, March 30, 2007 9:47 AM CDT

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Hi Sweet Kylie,
I am sorry you have to have all those sticky wires put on your head again. Even though you still look cute in them, it isn't that much fun to have to sit still for four hours when you are only two. I really hope you don't have to stay in the hospital. You are such a sweetie. We love you.
Grandma Karen
Karen Ueland <klpu@aol.com>
- Friday, March 30, 2007 7:41 AM CDT

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Good luck today! Call if you need ANYTHING. I can be down in 2.5 hours.

Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Superior, WI 54880 - Friday, March 30, 2007 6:58 AM CDT

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Good luck with the tests today and hope that Kylie is well enough to make Andy's going away party tomorrow. We are praying for you guys!
Take care and remember that we love you!
Aunt Patti <lismorecor@aol.com>
Cottage Grove, MN USA - Friday, March 30, 2007 6:24 AM CDT

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Checking in on you everyday and hoping all goes well tomorrow! Take care, Sweetie! You've got a lot of people praying for you and thinking of you always!! (Mom & Dad, too!) (((HUGS)))

Michelle Lunders
Blaine, MN USA - Thursday, March 29, 2007 10:57 PM CDT

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I'm so sorry Kylie! That's no fun... :(
Praying for you today and esp. for tomorrow!

Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Thursday, March 29, 2007 10:44 PM CDT

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Good luck tomorrow, we will be thinking of you..
Reen <mprovow@yahoo.com>
Woodbury, - Thursday, March 29, 2007 10:38 PM CDT

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I'm praying, Sweetie!!!
Dorine McNary
Williston, ND - Thursday, March 29, 2007 10:20 PM CDT

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That darn seizure monster! I am praying for your dear Kylie, praying for you to find the answers you need to get her the help she deserves to be seizure free. Just want you to know that your brother is also in my prayers as he will be heading off soon. Thinking of you all!
Love ya,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, - Wednesday, March 28, 2007 7:15 PM CDT

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Hey Kylie!
Sorry your not feeling so good! :( That's a bummer!
I'm praying for you!
Jesus loves you so, so, so, so, so much!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Wednesday, March 28, 2007 12:19 AM CDT

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Hey guys...so sorry to hear the yucky SZ monster reared it's ugly head. Please know you are always in our thoughts and prayers. Hugs to you all and prayers also for your brother. God Bless, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, - Wednesday, March 28, 2007 10:33 AM CDT

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I'll Praise you in this storm / And I will lift my hands / For You are who You are / No matter where I am / Every tear I've cried / You hold in your hand / You never left my side / And though my heart is torn / I will Praise You in this storm. The song is sung by "Casting Crowns", "I Will Praise You In This Storm". Please hold on tight-we're praying for you-lifting you up. Our girl is a fighter!!!

Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Wednesday, March 28, 2007 6:55 AM CDT

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HANG IN THERE MOM!!!!!!!!!!!!! Remember......... Kylie is a FIGHTER!!!!!!!!!!!

XOXOXOXOXOX
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Wednesday, March 28, 2007 5:59 AM CDT

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Praying for all of you during this difficult time. We will continue to keep Kylie in our thoughts and pray the seizures go away, pray for some miracle so she can live a normal, healthy life. She is such an inspiration to many.

We will also keep your brother in our thoughts and prayers as he goes off to fight for our Country.

With Love, Lisa, Charlie, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Tuesday, March 27, 2007 9:07 PM CDT

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Hang in there, Miss Kylie! You can beat these! We will pray for you for Friday...get outta there quick!
We love you!
Love, Kim and Lydia
kim Fiesel <ktfiesel@comcast.net>
Lino Lakes, mn - Tuesday, March 27, 2007 8:42 PM CDT

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So sorry to hear that those nasty seizures are back. Thinking of you guys!
Steph B <stephiebecker81@hotmail.com>
White Bear Lake, MN - Tuesday, March 27, 2007 0:45 AM CDT

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Hey guys,
Sorry the seizures are back... that's no fun :(
I'm praying for all of you and your brother!

"Peace I leave with you; my peace I give you. I do not give to you as the world gives. Do not let your hearts be troubled and do not be afraid."
John 14:27
Julie <Swimjulie9@aol.com>
MN USA - Monday, March 26, 2007 5:12 PM CDT

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Oh, goodness. That was not what I wanted to hear Miss K and not what your mom wanted to write, I'm sure. Hang in there Maria. Good luck with Frost's office today. I'll call you later! Congrats on the climber. Is it the Craigslist one?

Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
Superior, WI 54880 - Monday, March 26, 2007 6:12 AM CDT

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Hi guys,
Sounds like you're all doing pretty well. Good job on your EEG Kylie! You're such a trooper! I hope you continue to do well in PT. I was in PT for a while, it was hard but it helped in the long run.
♥ and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Friday, March 23, 2007 1:46 PM CDT

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Only Kylie can pull off being so cute , while being mummy wrapped in fishnet guaze and 32 wires attached . Now that's true beauty ! Praying for you always ....

Eli & Fletcher


Michele
- Friday, March 23, 2007 8:19 AM CDT

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Hey there,
Wow! A smile with all those wires? Don't you hate what you have to go through for just 4 hours? :o) I am glad that they didn't see anything major! That is good news! It was so good to finally meet Kylie and Ava. Such sweet girls! Hope to see you soon!
Love, Kim and Lydia
Kim Fiesel <ktfiesel@comcast.net>
Lino Lakes, MN - Wednesday, March 21, 2007 10:48 PM CDT

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What a cutie!

Continuing to pray for miracles of healing!

Love to you and the girls,
~Jen


Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Wednesday, March 21, 2007 7:12 PM CDT

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Hi Gibbons Family
I do have one suggestion for an intensive therapy program. It is called PL+US (physically limited, underdeveloped skills program) and they have two locations- one in N. St Paul and another in Burnsville. I worked there with a little guy back when they were called the Minnesota Center for Conductive Education, and I think it would be a great program for Kylie. their website is www.pieofmn.com/physical_impairment/
Just a suggestion, hope this helps!
-Amy Wietgrefe (a former "Karen's Kid")
Amy Wietgrefe <wietgram@mnstate.edu>
Edina, MN USA - Wednesday, March 21, 2007 6:14 PM CDT

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That's a really sweet picture of Kylie!!

Tell your brother and cousin I'm praying for them!

Julie <Swimjulie9@aol.com>
MN USA - Wednesday, March 21, 2007 5:50 PM CDT

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Hey Kylie. Your new picture is verrry cute!!! and thank you for being my number one fan at my basketball games this season. im sure i will be seeing you at my softball games this spring. i miss you, but ill be seeing you this weekend!
love you and ava so so so much!!!!
♥ auntie kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Tuesday, March 20, 2007 10:57 PM CDT

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Dear Maria, Neil, Kylie and Ava,
We are so happy to hear that Kylie is feeling better today and back to her old self! I love the EEG picture~she smiles right through all the yucky stuff she has to go through. We need to get the girls together again soon! We love you guys!!!
Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN - Tuesday, March 20, 2007 9:42 PM CDT

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Yes, only Kylie can pull off looking that cute while hooked up to an EEG monitor. I hope that you get the results that you're hoping for. I've been checking in on you daily and sending up my daily prayers for you.
Steph B <stephiebecker81@hotmail.com>
White Bear Lake, MN - Tuesday, March 20, 2007 9:37 PM CDT

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Gibbons-

My heart aches for you. Thought things were looking up. The good news is you have made it so far, and done so well. Even with this ickiness you have two wonderful girls, and so much love and support. I know it can't replace not having it at all, but lots and lots of people are praying for you. I'll have my girls put their bracelets back on.

Katie Westman <kfiebes@hotmail.com>
Rosemount, mn - Tuesday, March 20, 2007 3:09 PM CDT

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We are praying for Kylie's health. Praying for the doc's to discover where these episodes are coming from so they can take care of them for her. Keeping you close to our hearts and prayers today, and always.
love & hugs to you and your beautiful girl!
~Jen & Shayla

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, - Tuesday, March 20, 2007 2:24 PM CDT

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Maria,
Not knowing what is in store for your children's health is oh so hard. I do it quite frequently with my daughter's asthma and this last month has been so hard on her(bronchitis, sinus infection, many nebs and steroids). It's got to be so much more difficult with all the issues that Kylie has. My heart aches for your whole family and I will continue to pray for answers and a life that is managable for all of you. Kylie and Ava are so totally adorable. You are doing a great job and they have a terrific mommy!
Amy, John, Autumn, Mara, Ian
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Tuesday, March 20, 2007 1:31 PM CDT

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Praying for your sweet baby and hoping the doctors can pinpoint where the seizures are coming from. Such beautiful little girls - praying for peace for all of you!
Michelle Lunders
Blaine, MN USA - Monday, March 19, 2007 11:27 PM CDT

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Sorry to hear about Kylie not having the best weekend. Such a rollercoaster ride! We will be thinking of you guys tomorrow and hoping that the EEG goes well. Glad you heard back from the Dr. early and are hopefully getting a head start on the seizures! Sending lots of hugs-
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Monday, March 19, 2007 8:52 PM CDT

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Hey guys....continued prayers for Miss Kylie and those darn seizures to stop. Call if you need anything.

Nikki Sickmann <hownnik@Hotmail.com>
Farmington, mn - Monday, March 19, 2007 3:26 PM CDT

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Hey guys!
Happy St. Patricks day to all of you!
I'm praying for you, Kylie!

Julie <Swimjulie9@aol.com>
MN USA - Saturday, March 17, 2007 12:09 AM CDT

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Lily & Sarah <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, March 17, 2007 10:53 AM CDT

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An Irish Blessing
May you always have work for your hands to do.
May your pockets hold always a coin or two.
May the sun shine bright on your windowpane.
May the rainbow be certain to follow each rain.
May the hand of a friend always be near you.
And may God fill your heart with gladness to cheer you.

HAPPY ST. PATRICKS DAY!
Thinking of you today and everyday!
God Bless,
your friend Stacy
www.caringbridge.org/visit/stacydvorak

Stacy Dvorak
Shakopee, MN USA - Friday, March 16, 2007 7:50 AM CDT

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Gibbons Family,
So glad to read that you are all doing so well. Continuing to hold you all close in my prayers.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Wednesday, March 14, 2007 8:48 AM CDT

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I love the fun stories about the girls-they are too adorable!! We're still lifting up your family in prayer. We'll be registering for the walk too. In Him who is able. Caron
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Wednesday, March 14, 2007 6:41 AM CDT

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Hey all,

I was at the Disney on Ice with my family because of the Starlight Foundation... I wish we could've seen you guys there!

Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Tuesday, March 13, 2007 4:44 PM CDT

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Hello Gibbon's girls and Neil :) -
I love the new "sweet and innocent" photo of Kylie!! Glad to hear you had a good time at Disney on Ice. Katelyn begged to go and I never got around to buying tickets...I feel awful, as I know she would have loved it! It is a relief to hear that Kylie is getting a nice break from her seizures...wouldn't another 9 month stretch be nice! We have our appt. with Dr. Frost on April 3; Carol mentioned it was right after Kylie's, so it will be good to see you! Until then, we will keep you in our prayers each night-

Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Monday, March 12, 2007 8:58 PM CDT

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Helllo to the Gibbons family! We wanted to let you know we love you very much and we are so happy that you are doing well Miss Kylie! Keep on moving forward- we know you are so smart and you can do it!

Give each other hugs and loves and know that you are in our hearts always!
Love, Amy and the Beecher gang
Amy Beecher <ajbeech@yahoo.com>
West Fargo, ND United States - Monday, March 12, 2007 8:13 AM CDT

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HI - (again) checking in on this neat site - - and thanking you for all the updates!!! The pictures are just SO SPECIAL - We TRULY appreciate being able to keep in touch via this neat site - - and we ALWAYS say "God Bless Dear Kylie & Family" each AM - - We will continue to 'check in' - - thank you for your 'updating' - - and please know you are in our thoughts & prayers!!! NS
Nordis Schrankler
Stillwater, MN - Sunday, March 11, 2007 10:28 PM CDT

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Hi Kylie,
I sure love it when you and Ava come to Grandma and Grandpa's house. You are both the sweetest little girls. I like the way you are being so nice to Ava and giving things to her. You are a great big sister. I just love to watch you discover new things each day. You light up my life!!!
Nana Karen
Karen Ueland <klpu@aol.com>
- Sunday, March 11, 2007 10:18 PM CDT

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Just a quick note to let you know that I'm thinking of you and praying for some peace in your evening. Some time for just you. Take care of yourself and have a great week!

Love,
Jen

**Shayla had a great time with Kylie today, said she just loved her and her giggles :)

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Sunday, March 11, 2007 8:45 PM CDT

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Hey Maria...congrats on the good news...so sorry you have to deal with PT but in the end if it all works out ok you will hopefully have been no worse for the wear :) You guys are such fighters and we will continue to pray for you. Hope you have a nice weekend. Enjoy the sunshine, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Friday, March 9, 2007 1:58 PM CST

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HANG IN THERE!!!!!!!!!!!!!!!!!

Keep up the great potty training girls!!!

And ewwwwwwwwwww - Ava - dog poo - baaaaaaaaaad!! BLUH!

Lots of hugs and smiles and continued prayers coming from Connecticut!!

XOXOXOX
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Friday, March 9, 2007 5:55 AM CST

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Neil, Maria, Kylie, and Ava,
Praying for you as always. Hoping Ava's ears start to get better and that the doctors have the wisdom to know how to cure the problem. Praying for good days ahead for Miss Kylie.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Wednesday, March 7, 2007 9:39 AM CST

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hope you are feeling well little one. My daughter is currently battling Leukemia and her stepsister has Tuberous Sclerosis. We are thinking of you and praying for good health for you.
Vicki/Angel Wings
Corson/Lamorey Family www.caringbridge.org/visit/morganelizabet
- Tuesday, March 6, 2007 11:30 PM CST

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Neil & Maria,

Just dropping by to say hello & check on how your girls are doing. You are in my prayers. Take care!!!
Monica M Quist <Monica.M.Quist@wellsfargo.com>
St Paul, MN USA - Monday, March 5, 2007 2:47 PM CST

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Yaaaaay Ava and Kylie! Good job!

I'm praying for all of you!
God Bless!

Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Sunday, March 4, 2007 12:42 AM CST

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Hope you guys are having fun in the snow. We had a drift that was over Griffin's head. Happy snowy day!
Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Saturday, March 3, 2007 11:52 AM CST

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Way to go on the pottying front ! Can you imagine the money you will save on diapers when they both are fully trained . You can take that extra money and have another Girls Only Weekend ! I really admire how you 7040 ladies stick together , support each other , and can laugh together . So where's my invite , huh ??? Prayers for continued seizure free days ,cherish those days . Kylie is a beautiful, delicate flower blossoming right before our eyes .

Eli & Fletcher
Michele
- Saturday, March 3, 2007 6:49 AM CST

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Your new picture of "the girls" is wonderful!! You all looked like you were enjoying yourself and hopefully you were all able to relax and HAVE FUN!!!!

Congrats on potty time.......... YAY GIRLS!!
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Friday, March 2, 2007 8:21 AM CST

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Just checking in and continuing to pray for good health and fewer bumps on your journey. Good job Ava! Way to go, Kylie! Potty training, oh, the fun! Keeping your beautiful children in my prayers daily, because of their angel friends, Muffin & Drew.

(((HUGS)))
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, - Thursday, March 1, 2007 10:08 PM CST

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Maria,
I had the pleasure of seeing Miss Kylie at the basketball game last night and I can't even believe her progress. The last time I saw Kylie moving around was Halloween and she was still crawling/walking by furniture. I saw your daughter try to run across the gym floor from your mom. I was amazed! I know that it is difficult for you to see the progress sometimes because all of the difficulties that your family goes through, but it is simply amazing that this little girl went from crawling to running in a matter of months, while enduring hospital stays and countless seizures. If anything is clear, it is that Kylie has decided that she will get through this and enjoy a childhood like every other kid. By the way she seemed much better behaved than my little "Monster" If you think it's tough sometimes have a 2 yr. old boy!!!Just Kidding- Take Care and I hope Kylie enjoys the circus tickets.
Amy Kotzmacher
Amy Kotzmacher <hubes11@hotmail.com>
- Wednesday, February 28, 2007 3:31 PM CST

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Maria,
Its great that you got out of town last weekend. It sounds (and looks) like you have met a great group of ladies. I am glad to hear that there maybe an end to your insurance frustrations for the time being. I look forward to hanging out with you guys tomorrow. Love ya! Jody... of by the way... Way to go AVA!
Jody Prudhomme <jody_prudhomme@yahoo.com>
St. Paul, MN - Tuesday, February 27, 2007 5:34 PM CST

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Just to let you know we are indeed CONSTANTLY checking in on this neat site - Thank you for keeping us 'up to date' - - and (Again) please know our days ALWAYS start with the "God Bless Sweet Kylie, and her neat neat family!!!" - Your strength is SO SUPER!!!! God bless!!! NS
Nordis
- Tuesday, February 27, 2007 2:54 PM CST

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Good girl Ava! Going on the big potty is so much fun! Hopefully your big sister will learn from your example. I'm so glad you all had a good time with your weekend off. As any parent knows, we need a break now and again and they don't come easy when you have a child with a disability. You are very lucky to have Nana who is willing to help you out!

The TS walk sounds like something the Shoen's would be interested in. When you have more information please let us know. Sending hugs and kisses your way.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Tuesday, February 27, 2007 11:55 AM CST

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What a great picture of all the courageous mom's that take care of their wonderful children. All of you are an inspiration to those that follow in your paths. You all deserved the weekend away and to enjoy the company of your friends knowing your children were safe with loved one's.
Dee Lange <gndlange@frontiernet.net>
Apple Valley, MN - Tuesday, February 27, 2007 6:37 AM CST

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Love the new picture! I am totally jealous of your weekend away. Glad we could meet for dinner, even if it was brief. Lots of love to the girls.
Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com>
- Monday, February 26, 2007 8:16 PM CST

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ENJOY YOUR WEEKEND GETAWAY!!! The girls are safe with Grandma!!!!
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Friday, February 23, 2007 10:06 AM CST

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Hi Maria,
Praying the insurance co. and the dr. office will be more forthcoming with payments and results. Praying for sweet Kylie! Have a wonderful weekend at the resort and spa!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Thursday, February 22, 2007 11:58 PM CST

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Hi Kylie,
I love that picture of you too. You have the face of an angel and you are truely our angel. I love the way you make people smile when they meet you. Even if it is for the first time, or many times. You light up so many lives with your smile, your sweetness, your love, and your innocence. You reach out and touch us every day. I don't understand why you have to have this terrible disease and why you have to go through so much. All I know is that I couldn't imagine you any other way. You try so hard to communicate, and walk, and learn. You are making so much progress. We are so proud of you. I am excited to have you and Ava for the weekend. I sure love being with you both. You girls are so much fun.
Love,
Grandma Karen ( Nana)
Karen Ueland <klpu@aol.com>
- Thursday, February 22, 2007 8:49 PM CST

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Hey Maria...I feel for you with the insurance company. I have found, despite all the money we pay, if you don't get mad, they keep pushing you around. I decided nice was not working and became my alter personality "Monster Mommy" before they finally relented. I know eventually they will pay but they think we are too stupid to say anything and that we will start paying. (as if months in the hospital is something you can pay out of pocket without winning the lottery) Go away this weekend and relax and try not to think about stupid insurance. Once you have your strength back, let em' have it!! :) Have a GREAT weekend...I hope you get snowed in on Sunday so you get an extra day of vaca.
Talk to you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Thursday, February 22, 2007 9:56 AM CST

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Maria. Have fun on your girls weekend! You disserve it!
Love ya,
Rachel
Rachel Groess <rachmn@aol.com>
Woodbury, MN USA - Thursday, February 22, 2007 7:43 AM CST

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You deserve to vent!! After all you have been through it really steams me that you are having problems with your insurance company. Enjoy your weekend!!! I will continue to pray for Kylie.
Lori Pietro
Roswell, GA USA - Thursday, February 22, 2007 7:36 AM CST

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I am so sorry to hear you are not getting the answers you need to hear and SHOULD have heard from the start. That is very frustrating, to say the least, and you have every right to be angry about it. I'm hoping you make some progress with the insurance company and the doctors office when you talk to them. Also hoping you enjoy your much deserved break this weekend - I'm jealous, as it sounds like a lot of relaxing fun! Enjoy and take care!
Michelle Lunders
Blaine, MN USA - Wednesday, February 21, 2007 10:15 PM CST

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Maria,
Have a wonderful time this weekend. A little time for yourself is so worth it. It always made me a better Mom, Wife and all round happier person. Ron always says "if your happy we're all happy!" Enjoy!! Love, Reen
Maureen Provow <mprovow@yahoo.com>
Woodbury, - Wednesday, February 21, 2007 8:40 PM CST

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Maria & Kylie~

Vent away, that is what we are here for, to listen and try to offer words of encouragement. Thanks for the note in my angel's gb. Your Kylie reminds me a lot of my Kylie(3). They resemble each other a lot. Kylie is in my prayers!

Good luck with the insurance company and doctor office. It is so frustrating to get the run around, especially when it involves your child. Praying that all of that works out for the best!

Love~ Claire (mommy to Laken in heaven)
www.caringbridge.com/visit/lakenroy



Claire Roy <caffemocha29@aol.com>
Kernersville, NC US - Wednesday, February 21, 2007 8:33 PM CST

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Hope you enjoy your weekend away! Its always nice to get a little pampered!

Good luck with all the dr and insurance stuff.

Erin and Jason
www.caringbridge.org/mn/jasonk
erin mathison <erqterin@aol.com>
st.michael, mn us - Wednesday, February 21, 2007 12:43 AM CST

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Gibbons Family

Good for you Maria a little time away.......have fun you deserve it. Sorry to hear of all the insurance crap and eeg
stuff you have to go through. I'll come over and visit again soon.
jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Wednesday, February 21, 2007 12:28 AM CST

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I'm not sure exactly how I came upon your caringbridge sight but your beautiful girl is on my mind a lot. We pray for you often and wish there was something more I could do to help. God bless you!

Cindy Singer <cindy_singer@msn.com>
Blaine, MN - Wednesday, February 21, 2007 9:43 AM CST

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Have a wonderful, relaxing time this weekend... sounds like a lot of fun! Hopefully you can put this TS monster out of your mind for a few hours... I was thinking about it the other day... we've now been living it for 20 years and it's still never far from my mind... yep it stinks.
Smiles and hugs... Love, Dawn
Dawn Schultz <dawn_schultz@msn.com>
- Wednesday, February 21, 2007 7:47 AM CST

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Maria-please don't ever apologize for venting! The patience, love, fortitude & courage you show are an example to all of us. I can't even imagine walking in your shoes. I read your entries & try & figure out where you find the strength & energy. We're here to pray for you, support you & listen to any & all venting. :)
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Wednesday, February 21, 2007 6:52 AM CST

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You are saying sorry for venting??!!!! Please, Maria! Like you don't have every right on the planet to be upset. You know every other parent who has walked in your shoes has been where you are right now -- wondering what the %@#* is going on with your child. The child you advocate for, care for, love unconditionally, cry over, worry about, laugh with..you get my point. The mother bear is coming out of hibernation and is about to ROAR! Good for you. You know as well as I do as a nurse and a mom of a special needs kid too that if you don't speak up, nothing will get done. I'm just so sorry you have to deal with all the confusion and mixed information. Hang in there and vent away! I think it's good for people to realize that it's a difficult journey and hopefully those who are there around you to support you will go out of their way to support you whether that means making a meal, taking the kids so you can have some free time, cleaning your house, running errands for you, giving you some extra money to help with bills. There are so many things people can do to help out and I hope you are getting that kind of support. Many hugs and prayers from Nebraska!

Kim - www.caringbridge.org/ne/ryanm
Lincoln, NE - Wednesday, February 21, 2007 1:53 AM CST

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Darn seizure monster! I am sorry. Give hugs to Kylie from us!
Sarah &Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Sunday, February 18, 2007 8:40 AM CST

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HUGS!

Thinking of you!!

Praying for your miracle!!


Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Saturday, February 17, 2007 2:53 PM CST

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Gibbons family-
I was in tears this morning when I read that Kylie had a great V-Day this year. 3 days with no seizures is great...let's try to beat her last stretch now! Glad to hear things are getting better for Kylie. I hope Ava starts to feel better. We will keep praying!
Lisa, Leon, and baby Laci <tchngkidz@aol.com>
Red Wing, MN USA - Saturday, February 17, 2007 12:00 AM CST

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Love you Kylie!!!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Saturday, February 17, 2007 0:46 AM CST

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Hooray for three seizure free days!! And for the continued progress! I can't believe it's been almost a year since we met you in 7940... look at how far Kylie has come!! Incredible!! Praying (as always) for all of you....
Hillary Richardson (Canaan's mom) <hillarygeiger@gmail.com>
West Des Moines, IA - Friday, February 16, 2007 10:18 PM CST

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Maria - you and your family have endured so many things these past 2 years, it's amazing how you keep it all together. Those 2 litle girls sure are lucky to have parents like you.

We continue to pray that Kylie will progress in everything she does. Looking at pictures of her and Ava you can see the true sisterly love between them - that in itself is something to always cherish.
You're always in our thoughts and prayers - Lisa, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN 55016 - Friday, February 16, 2007 9:48 PM CST

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So glad to hear the seizures are giving Kylie a break! I'll keep praying that they stay away forever! I just visited Caroline's site and it just broke my heart. Such a sweet little girl. I will continue to pray for her as well. Have a nice weekend! I hope to read more good news for your girls!
Michelle Lunders
Blaine, MN USA - Friday, February 16, 2007 8:45 PM CST

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Kylie, You go girl!!!! Anyday without seizures is a good day! Your good wishes for Valentine's day caught Katelyn a date!! All things your mom and dad have to look forward to! Keep smiling! Lisa and Katelyn www.caringbridge.com/visit/katelynbragg

Lisa Linquist
- Friday, February 16, 2007 5:41 PM CST

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I am so happy for seizure free days! I am glad that St. V actually helped someone this year, and I am grateful that that someone is Miss Kylie. Perhaps I will cut him a tiny bit of slack.

I can't wait to see you again next weekend. Praying, praying, praying for seizure free days from here on until forever!

Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Friday, February 16, 2007 5:39 PM CST

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Happy (late) Valentines day Gibbons family!
You are in my thoughts and prayers!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Thursday, February 15, 2007 1:49 PM CST

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Heather and Ethan
- Wednesday, February 14, 2007 7:12 PM CST

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We Love You Guys Too!
Sending you Love, Hugs, and Smiles from Missouri!

Love,
Dalton & Kierstin
Dalton & Kierstin Dublinske
Lees Summit, MO USA - Wednesday, February 14, 2007 2:41 PM CST

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hey little princess and family,
wishing you a happy valentines day - we are praying for good results for all you have coming up!!!
loves, hugs and prayers to all
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Wednesday, February 14, 2007 2:32 PM CST

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Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia

Rhonda <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, February 14, 2007 2:07 PM CST

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Sending our love on this special day! My prayers are with you and I will keep you in my thoughts
Sarah &Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, February 14, 2007 12:04 AM CST

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Times like this, you put your faith in the Lord and pray he guides the Doctors with one hand on thier shoulder. I am praying for you everyday. I know what it feels like to have run out of options. That is where Aleia is right now. No more options. We just wait for a new medication to be marketed. It is horrible. Thank the Lord you have a Plan A and a Plan B. Take care and have a Wonderful Valentines Day.


Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, February 14, 2007 10:56 AM CST

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Happy Valentines day to the Gibbons Family. I hope you have a loving day with your BEAUTIFUL family. I think your kids have GREAT parents who do their best to make good decisions for their family and despite everything, you still have smiles on your faces. Our bible study prayed for you all yesterday that you might feel some peace with your decisions you are going to have to make. I am excited to see you all on Monday and hope you have a great Valentines day. Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Wednesday, February 14, 2007 8:21 AM CST

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HAPPY VALENTINE'S DAY TO YOU KYLIE & AVA TOO!
Hope you have a great day of giggles, smiles and sweet treats too! I know you'll be giving lots of love to those around you as well as receiving it too!
Continuing to pray for the best for you, Kylie!
Love you,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Wednesday, February 14, 2007 7:53 AM CST

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Dear Kylie,
Happy Valentines Day to the sweetest little girl in the world who is so loved. You give your love unconditionally to everyone you meet. Your smile and the way you touch people both physically and in their hearts is amazing. You are so friendly to everyone and you are always so happy. We are so lucky to have you in our lives. I hope the doctors can find a way to help you a live a life free of seizures. No little girl ( especially you) derserves to be going through this. Grandpa and I love you and your sister very much.
Grandma Karen
Karen Uela nd <klpu@aol.com>
- Wednesday, February 14, 2007 7:34 AM CST

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HAPPY VALENTINE'S DAY!! We are still praying for our Miss Kylie-we are flooding heaven with our prayers! I believe in my heart that better days are coming for your family. Hang in there!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Wednesday, February 14, 2007 7:07 AM CST

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Hey guys-

Thinking about you guys and praying for you. I really hope that Dr. Frost is able to help Kylie the way he has helped Jessi. Jessi says "Happy Valentine's Day" to Kylie.
Sarah, Grace, and Jessi Andreo <lilsarah_99@yahoo.com>
Chippewa Falls, WI - Tuesday, February 13, 2007 10:15 PM CST

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Angel Katelyn’s Mum, Debbie <miraclegirl101@hotmail.com>
Wheatley, Ontario, - Tuesday, February 13, 2007 9:41 PM CST

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Hoping today is a better day for seizures and that Kylie is feeling a little better! I know insurance companies can be real stingy when it comes to the MSI, but usually after the Dr. gets involved, they approve it. It was the MSI that actually ruled out Katelyn having to have the grid placement, so it is a good test to have! Even if Kylie needs the grid, the results will be helpful. Hoping your insurance approves it soon.
I know it is very scary thinking of the "what if's", the surgery, and everything that goes along with it! Waiting and wondering are the worst! We are here for you...you won't go through any of this alone!!
Lots of hugs-
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Tuesday, February 13, 2007 3:36 PM CST

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Hello to the SPECIAL Gibbons' family!!! I do keep REGULARLY checking this fantastic site - - and I thank you for all this information!!! GOTTA tell you again, you all are in my daily 'Please Heal' prayers, and you are also in my 'Thank you for the strength of this family' prayers!!! Know that we are constantly checking, you are constantly in our thoughts & prayers, and we get SO excited when we read good news, we feel SO bad when the news isn't so good!!! But we thank you for your example of strength & love, and we WILL KEEP CHECKING IN!!! NS & RS
Nordis Schrankler
- Monday, February 12, 2007 9:52 PM CST

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Just wanted to say hello..........

I LOVE Ava's one year old pictures!!! SHES SO CUTE!! Love her cheeks!! Andher hair looks like it is getting blonder (like Kylie's!!)

As for the nail polish...... OxyClean.... seems to work on just about anything........

GOOD LUCK!!!!!!!!!

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Monday, February 12, 2007 4:55 PM CST

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I have never tried it on nail polish, but I have found Avon's Skin So Soft great to remove odd things...like when my girls were small and the crayons from Perkins went thru my washer and Dryer... blue, green and red spots on everything but i scrubbed it with SSS and rewashed the clothes, and most of the spots came out. I also used it to remove deck stain from my walls when I wasn't too careful turning on the light switch. Hope this is helpful.
Joyce...mom of 3
Oakdale, Mn - Monday, February 12, 2007 4:47 PM CST

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Hello Maria,

It's been a long time since I have seen you or Neil but saw you on Tori's site & thought I'd drop a hello. I wasn't aware your daughter battle was this rough. I'll be checking in on a regular basis now that I've found your site. She will be in my prayers. You & Neil have such a beautiful family.
Monica M Quist <Monica.M.Quist@wellsfargo.com>
St Paul, MN USA - Monday, February 12, 2007 4:44 PM CST

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Maria,
Just checking in on the girls and hoping that they are feeling better soon. Saw the note about the nail polish and wanted to let you know what I tried on my carpet. I actually spilled wine colored nail polish on my carpet and a friend told me use cascade dishwasher soap. It worked pretty good but it took a couple of days to get it 90 % better. Just scrub in the liquid soap several times and repeat it oh about a hundred times. Just kidding. Sometimes it's so hard being a klutz. Been doing this since I was Kylie's age so I feel for her. Take care. Hope it works. Amy
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Monday, February 12, 2007 1:32 PM CST

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Maria and Neil,
Your strength and attitude never cease to amaze me. Your perspective on life is to be admired. You are so right: nail polish on the microfiber is so insignificant compare to Kylie's battle. Kylie, I am continually praying for this beast to leave you alone. Praying for seizure free days ahead and for your poor ears to heal and be better. Praying for you all.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Monday, February 12, 2007 9:16 AM CST

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Love all the new pictures. Do you guys still get the girls's pictures done at Sadies at the Mall of America? How long of a sitting do you get there?

On the microfiber- try using shout- let it soak in, shout again-let it soak in, wash it out.. do this over and over again for a couple days. Wash it out with hot water. Or try hairspray or even Bug spray, you could also try non-acetone nail polish remover
hope this stuff works if you try it
Erin <erqterin@aol.com>
St.Michael, mn us - Monday, February 12, 2007 8:34 AM CST

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I am always amazed at your sense of humor and finding the positive in every situation! You are an inspiration to everyone! I have been following Kylie for several months and you always sound up-beat even when things seem to be slowly falling apart around you. What faith! I also admired your devotedness to Caroline's mother, that was a long trip for you and Shannon to make. You deserve a medal for just being a great person and super friend (I wish I knew you). Keep up the good work and like Winston Churchill once said: "When you're going through hell, keep going!"
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Sunday, February 11, 2007 6:43 PM CST

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Normal ? What's that ? If you ever figure it out , let me know ! Queen Ava's one year old pics are just darling and so sweet . It must be that Dr. Jeckyl/Mr.Hyde thing for her to be so miserable now . I bet those smiles will return when she's feeling better . Kylie , you little daredevil ! Stay out of the basement girl , there are scary things down there like old prom dresses , pics of bad hairdo's , and even clothes from the '80's . Scary stuff !! I keep you close in my heart and prayers for better days - seizure free !

Eli & Fletcher
Michele
- Sunday, February 11, 2007 4:21 PM CST

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Praying for you all and can't wait to hear good news.
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, February 10, 2007 11:54 PM CST

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Prayers that everything is going well for all of you. Still praying in South Dakota.
Becki Solberg <bslbg@hotmail.com>
M;itchell, SD USA - Saturday, February 10, 2007 9:03 PM CST

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Checking in. Hope all is well for your family today!
Hugs,
Sarah &Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, February 10, 2007 1:58 AM CST

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So glad to hear things are going better for Kylie. Many prayers from South Dakota.
Becki Solberg <bslbg@hotmail.com>
M;itchell, SD USA - Friday, February 9, 2007 11:16 PM CST

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Kylie & Family,
I have come across your site through Drew & McKenna's; I check your site daily and love to read the updates. It is great to hear Kylie has been having fewer seizures. Now if that monster would just stay away. I love all the pictures on your site; your girls are adorable! I continue to keep you in my thoughts and prayers.
Abby
Somerset, WI - Friday, February 9, 2007 1:10 PM CST

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Hi Kylie and Family~
I found your site through Drew and McKennas and have been following for a while and then realized I had never signed. Just wanted you to know we are keeping you in our prayers. You have the cutest girls : )
Christie Fleischhacker <Christie421@hotmail.com>
Greenfield, MN - Thursday, February 8, 2007 9:10 PM CST

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I love all the new pictures. I am happy to hear that Kylie is not having so many seizures. I hope she doesn't get a sinus infection back. Geez... Kylie deserves a break here! Look forward to seeing you and the girls this weekend. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Thursday, February 8, 2007 5:36 PM CST

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Just checking in & saw the new pictures, they're wonderful! How darn cute can you get?! Still praying for seizure free days & nights for Miss Kylie.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Thursday, February 8, 2007 11:48 AM CST

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I am very glad to hear that Kylie had fewer seizures. I love the new pics! Hugs to all of you.
Sarah,Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, February 8, 2007 0:09 AM CST

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Hey Kylie, Sweetie! I just wanted you to know that I have been checking in on you just about everyday. I'm glad your seizures are getting a little better. I hope they go away for good! Good luck to you and your little sister at the Dr.'s office tomorrow. I love your Elmo pictures!! Take care, Cutie Pie!
Michelle Lunders
Blaine, MN USA - Wednesday, February 7, 2007 10:26 PM CST

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LOVE the Elmo pictures!!!!!!!!!

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Wednesday, February 7, 2007 4:20 PM CST

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Felbatol and Amoxicillin.... Never occured to me that they both look alike! Sometimes mistakes are a good thing! I have been meaning to e-mail you, but for a variety of reasons, keep getting sidetracked. I wanted to talk to you about PCA's. Anyway, I check in frequently, and keep all of you in my prayers!
Sarah and Kristin
Roseville, MN - Wednesday, February 7, 2007 1:20 PM CST

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Hi Kylie

I am very happy to hear you got to go home. I hope the seizures stay under control. Mom and I have been checking your updates since we left the hospital. I was your roommate for a night (I was the one with the swollen eye who kept waking you up when I cried all night). We're keeping you and your family in our prayers!


Carry and Joven Langseth <carryann11@hotmail.com>
Apple Valley, MN USA - Tuesday, February 6, 2007 5:10 PM CST

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Just stopping in to say hi. Hope the tubes work for Ava. Aleia is 8 and still has tubes. The ENT (Ears Nose Throat) Doctor told us you can't get an ear infection with tubes in your ears but I know better. Aleia gets them all the time. Usually when she is cutting teeth. Right now she is working on her 8 year molars and keeps getting ear infections which cause her to have more seizures. It is a real bummer. Keep on top of the infections and do your best to keep the ears dry. Does she have ear plugs to keep the water off them? I would recommend getting them specially made, they work better. I wish you luck in that area and also to precious little Kylie for the yucky Seizure Monster to leave her body and mind alone. Take care, love and hugs.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Tuesday, February 6, 2007 1:02 PM CST

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(guess you didnt take my advice and leave the seizure monster AT THE HOSPITAL!!) Oh well.... maybe one day someone will listen.... :-)

I got my Muffin cookbook and the first page I opened up to was one of YOUR recipes!!!! Cant wait to start trying them!!

Hugs and prayers coming your way!!

XOXOXO

(dont worry too much about Ava's ears.... she'll grow out of it (eventually) - you know that saying "this too shall pass" - yea - whoever said that needs a good kick in the BUTT!! I remember when Adam had his first infection with his tubes - ewwwwwwwwww - it literally ran down the side of his face!! BLUH!!!!! his first of tubes were inserted at 7 months old... the second set went in at 5 years old.... he's been fine since.......... (now him just breaks bones!!) - UGG!!!! (sportin a red cast now) - broke his wrist - tripped on his big boxy feet!! (he's 13 - what can I say!)

ENJOY YOUR DAY!!!!!

Smooches to the blue-eyed and brown-eyed cuties!!

Strength for Mom and Dad!!!!

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, February 6, 2007 6:02 AM CST

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Sending lots of love and hugs!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Tuesday, February 6, 2007 0:35 AM CST

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Hi, I have found your site through Drew and Mckenna's. I have been reading your updates and have said many prayers for your family. I just wanted to tell you about something I had heard from a friend at work about tubes, (my 8 month old son, is having them put in next week) she said her son had tubes put in and the infections continued, they brought him to the chiropracter and this helped, they never had another ear infection. I am unsure why this works,or if it always works but thought incase the infections continued this could be something you too could look into.
Mandy <mandy_anderson21@hotmail.com>
EGF, MN - Monday, February 5, 2007 9:31 PM CST

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Incredible . Amazing . Compassionate . Just some words that come to mind when I think of y'all . The way your family really pulls together in times of crisis . And on the very same note , how you can be there for another family while still dealing with your own medically fragile child . When I grow up , I want to be just like you . Prayers for Kylie to get some relief from the endless seizures . Prayers for her to just have a chance to be a typical two year old for once .

Eli & Fletcher
Michele
- Monday, February 5, 2007 9:29 PM CST

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My son had tubes and proceded to get an ear infection within a couple weeks, but after that infection he didn't have another for something like 5 years! So hopefully Ava will do just as good!

Continuing to pray for all of you...
Joy Thienes <jthienes@comcast.net>
Coon Rapids, MN - Monday, February 5, 2007 7:34 PM CST

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Good morning Gibbons Family, It was so good to see all of you the other night. Hope things will get better. Glad you could finally go to The Rain Forestand and try to enjoy dinner.I keep you all in my thoughts every day...and wish things could be alittle easier for you all. Stay strong..

jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Monday, February 5, 2007 9:11 AM CST

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Wow, you are amazing! Kylie is so sick, and still you find time to give comfort to other parents who need you very much right now! You are an amazing person, your girls are very lucky to have you for a mommy! I'm praying for Kylie and Caroline today.
Melissa Shockey <madimel04@msn.com>
- Monday, February 5, 2007 9:08 AM CST

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I am hoping beyond hope that Kylie's seizures are better this afternoon and tonight. I don't want your "day pass" to turn into just that. Thinking of Kylie and sending lots of good thoughts her way.
Nena <nenaelise@yahoo.com>
Superior, WI 54880 - Sunday, February 4, 2007 11:25 PM CST

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Bless you for being with Caroline and her mother for prayers and support. Prayers from South Dakota for Kylie and you too, mom!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Sunday, February 4, 2007 10:35 PM CST

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oh my goodness you have the cutest little girls i think i have ever seen! i continually pray for kylie's health and that there is peace in her body. Have a great week.
((hugs))
Olivia Moore <olmoore1321@mm.rr.com>
Bloomington, MN - Sunday, February 4, 2007 10:26 PM CST

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You and Shannon AMAZE me! You are both so caring and so giving of yourselves. God is using both of you in so many ways. Bless you! I am so glad to hear that Miss Kylie was able to go home and hope that Miss Ava had a wonderful 1st birthday. Praying for Kylie's health to continue to improve. Praying for continued strength and courage for her wonderful parents as well.
Take care,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Sunday, February 4, 2007 9:20 PM CST

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I hate that fear of looking at your daughter and knowing they don't seem like themselves or that something is wrong. Motherly intuition is so good and at the same time, so hard on us. My insides hurt when I read that you had written that. I really understand and am so sorry.
I will pray for you and the girls!

Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Sunday, February 4, 2007 10:35 AM CST

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omg your girls r so cute................
Robyn
rw
ottawa, on - Saturday, February 3, 2007 11:29 AM CST

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I cannot even belive that it has been a whole year since we came to see Ava in the hospital. Happy Birthday Ava! I am so happy to hear that you get to go home! That is great news. Love you all!
Lisa, Leon, and baby Laci <tchngkidz@aol.com>
Red Wing, MN USA - Friday, February 2, 2007 11:27 PM CST

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Happy Birthday Ava!!! I am so happy you are receiving the best birthday present--Kylie coming home from the hospital! Hoping and praying this nasty monster will leave Kylie alone.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, February 2, 2007 10:18 PM CST

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Maria, Neil, Kylie, and Ava, I am so glad to have met you on 7940. I am happy you got to go home on Ava's birthday. What a treat! Take care and we will be in touch!

Nena
Nena Johnson <nenaelise@yahoo.com>
Superior, WI 54880 - Friday, February 2, 2007 8:21 PM CST

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Happy Birthday, Ava!! Wow, I can't believe you are a year old already!! You got the best birthday gift ever...Kylie got to come home from the hospital. Have fun getting your pictures taken...can't wait to see them. Snuggle up and stay warm this weekend. Give Kylie LOTS of hugs!!
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Friday, February 2, 2007 5:23 PM CST

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Hi Kylie,
Thought I would stop by again. I hope you get out of the hospital today that would be great. I hope the seizures continue to decrease and that you will be home for a while.

Happy birthday to Ava!

Love and hugs,
Sami
Sami Philippians 4:13 <samibabi@hickorytech.net>
Minnesota United States - Friday, February 2, 2007 1:33 PM CST

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Happy birthday Ava!
Julie <Swimjulie9@aol.com>
MN USA - Friday, February 2, 2007 1:02 PM CST

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Happy Birthday Ava!!! I'm so excited that you guys are finally breaking out of that hospital and will be able to celebrate Ava's b-day at home. I hope that the photo shoot goes well today, your girls always have the cutest and most beautiful pictures. Praying that the seizures continue to get fewer by the day and that your days at home are filled with lots of smiles and laughter.
Steph Becker <stephiebecker81@hotmail.com>
White Bear Lake, MN - Friday, February 2, 2007 1:01 PM CST

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HAPPY 1st BIRTHDAY AVA!!!!!!!!!!!!!!

YAY KYLIE!!!!!!!! Glad you get to go home!!! Why dont you just leave that seizure monster at the hospital - no need taking it home with you - geesh.........

XOXOXOXO

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Friday, February 2, 2007 12:13 AM CST

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Happy Birthday Miss Ava!!! And Kylie, so glad you're bustin out of there! We're praying you girls & mommy & daddy have a wonderful day & great weekend!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Friday, February 2, 2007 12:06 AM CST

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Happy Birthday to baby AVA!! We're thankful Kylie is springin' out of there, and we'll think positive thoughts for great days ahead. Maria, Your wonderful positive outlook and unending endurance and strength is a gift to us all, we can do nothing but give thanks to God for for you a wonderful Mommy and (Daddy too) and continue to hope for all the best. Keep the faith! Love Jane
Jane Dahlin <grammijane@usfamily.net>
Hudson, WI USA - Friday, February 2, 2007 11:56 AM CST

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HAPPY BIRTHDAY MISS AVA!!!!

...glad to hear you are getting out of there! Hope you all have some much deserved fun at MOA and enjoy your first weekend back home in a while!
Hillary Richardson (Canaan's mom) <hillarygeiger@gmail.com>
West Des Moines, IA - Friday, February 2, 2007 11:52 AM CST

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Happy Birhtday baby av!!!!!! i love you so so so much!!!!
love auntie kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Friday, February 2, 2007 11:40 AM CST

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Happy Birthday Miss Ava~i can't wait to see how your big girl pictures turn out =)

Kylie...Glad to hear that you are showing your wild side. Try to go easy on your mommy though cutie.

Maria, It is great to see the decrease in seizure activity and although they are still going to be a big part of your day, they will be manageable at HOME! I'm glad that you are getting out of there and will be able to all be together.

Take care
Josie Bemis <josiebemis@yahoo.com>
Somerset , WI - Friday, February 2, 2007 11:20 AM CST

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Happy Birthday Ava! I'm so glad your sister is bustin' out of the hospital and will be able to celebrate with you!! Always thinking about your family and sending lots and lots of prayers! Stay warm!!
Amanda Drown
Wood Lake, MN - Friday, February 2, 2007 11:11 AM CST

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Hi Kylie! I'm a friend of your grandme Kat's and all the family. It's really fun to see the pictures of you and your sister and animals! All your friends at St. John's are holding you up in prayer. And all your other friends! You are surrounded by angels! Love, Robbin
Robbin Clamons
St. Paul, MN Ramsey - Friday, February 2, 2007 10:33 AM CST

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Happy 1st Birthday Ava. Hope that Kylie can go home today so you can all enjoy Ava's birthday as a family
Erin <erqterin@aol.com>
St.Michael, mn us - Friday, February 2, 2007 9:24 AM CST

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Hi Kylie and Family! I was brought to your site from the Olson's site. I must say Kylie and Ava are such adorable little girls!!! I have two little boys the same ages as Kylie and Ava and we have been saying a prayer for Kylie every night that she gets better soon and gets rid of those seizures for good!!! We check the site daily for updates...keep fighting Kylie!
Erika FitzPatrick <befitz@frontiernet.net>
Rosemount, MN - Friday, February 2, 2007 9:08 AM CST

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Happy Birthday Ava,
I have enjoyed our time together while Kylie has been in the hospital. You are so sweet and fun to be with. I hope your sister can come home today and have fun with you for your birthday. I can't believe how fast this year has gone by. We love you very much.
Grandma Karen
Karen Ueland <klpu@aol.com>
- Friday, February 2, 2007 8:07 AM CST

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Happy Birthday Av. We love you!!

Rand, Shannon & Cam and our angels too

shannono olson <shannonolson914@yahoo.com>
lakeville, mn usa - Friday, February 2, 2007 7:44 AM CST

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HAPPY BIRTHDAY AVA !!! I am so glad to hear Kylie is doing somewhat better and you should be getting out of 'jail' today . Incredible news to hear how getting off Depakene has revealed the hidden wild & crazy Kylie :-) You all continue to be in our thoughts and prayers during this difficult journey called Tuberous Sclerosis .

Eli & Fletcher
Michele
- Friday, February 2, 2007 6:33 AM CST

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I'm so glad to hear kylie's doing better!
Happy Birthday Ava!
Amanda Schuck <aschuck@ilbnc.com>
- Friday, February 2, 2007 5:26 AM CST

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I'm so glad to read that Kylie is doing better. She's such a sweetheart. Her smile is delightful. I hope that you guys get to go home this morning and that I'll be able to play with her next week.
Pat Marcroft <pat.marcroft@moundsviewschools.org>
- Friday, February 2, 2007 5:14 AM CST

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HI Kylie and family,

I am one of Shannon Olson's friends and want to let you know I think about your family and situation almost daily. You are often in my prayers. I know a bit of what your going through as our son Jeffery battles the sz. monster with maybe a good 8 day stretch in-between. Keep an eye on God and keep asking him to speak to us loudly.

Cindy Petersen


Cindy Petersen <dpetersen@morgantheeler.com>
mitchell, SD us - Thursday, February 1, 2007 9:44 PM CST

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Kylie and family.
I am so happy to hear that you are doing better today. That is definitely a good thing to hear. :) Hopefully all goes well and you will beable to go home for Ava's birthday. I cant believe how old you two are getting. Good Luck and love to all.
love ♥ Kiley Gibbons

p.s. im happy to hear the elmo trip went good!
Kiley Jo Gibbons <sevengibbs@msn.com>
Circle Pines, MN United States - Thursday, February 1, 2007 6:44 PM CST

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I am so relieved to hear that Kylie is having fewer seizures today!! You must be so happy to see that she has found her "spunk" and spirit again...especially after days of endless seizing. You go, Kylie - be wild and crazy!! Glad to hear the Elmo visit was a hit...more precious memories!! Hope you get to go home tomorrow...it is so true that there is "no place like home"! I feel horrible that I haven't gotten a chance to come and visit you guys. We are all just getting over the "crud" that is going around. Please know that you have been in my thoughts and prayers, so much!
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Thursday, February 1, 2007 6:38 PM CST

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Kylie,
Stay naughty, crazy and wild! I pray for you every night and check in every day! Hugs!
Sarah, Lily's Mom <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, February 1, 2007 5:29 PM CST

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Hi Kylie and Family
My name is Jenna and I came across Kylie's site. What an inspiration she is. She is beautiful inside and out. She is in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Thursday, February 1, 2007 5:19 PM CST

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Hi Kylie,
I can't wait to come and see you tonight. I am so happy you are doing better. I hope you can go to the Mall tomorrow with Mom and Dad and Ava for her birthday. It is so good to hear you making so much noise. You are a funny girl.
Grandma Karen
Karen Ueland <klpu@aol.com>
- Thursday, February 1, 2007 3:50 PM CST

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I am so happy to hear that things are starting to look better and that you may be able to be home for Ava's birthday. I hope things continue to go well for you guys. I wish I could be there to visit you in the hospital, but baby Laci is still keeping me from doing a whole lot. I hope we can see you soon! We continue to pray for you every day! Love you guys!!
Lisa, Leon, and baby Laci <tchngkidz@aol.com>
Red Wing, MN USA - Thursday, February 1, 2007 2:58 PM CST

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Hi,
It was really nice to visit with all of you last night. Kylie sure was going well. Hope things keep going in the right direction!! Take care. Reen
Maureen Provow <mprovow@yahoo.com>
Woodbury, Mn - Thursday, February 1, 2007 7:59 AM CST

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I'm thinking that Kylie and Fletcher's brains are twins - kinda like Arnold and Danny Devito [smile] . There are options , but no guarantees . I pray for wisdom as you weigh the pro's and con's of each . Is it a fair trade off to control the seizures , but ultimately risk losing Ky's personality , cognitive function , motor function etc..? On the other hand , what quality of life is there to continue to seize uncontrollably on a daily basis ? There are so many variables to consider that people don't realize . There's no easy answers . A mother's heart can only take so much heartache . I pray for you and hold you all close in my heart . I unfortunatly understand and feel your pain all too well . I wish I lived closer to be a shoulder to lean on and to wipe the tears . (((HUGS)))

Eli & Fletcher
Michele
- Thursday, February 1, 2007 7:17 AM CST

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I am so sorry to hear what you guys are dealing with - Maria, you are such a strong person, it amazes me. It breaks my heart to hear what Kylie is struggling with. Tori checks the website daily and prays for Kylie each night. Makenna looks at it and says "Kylie no owie in her head". We will continue to pray for you guys. . .you are an amazing family and Kylie has touched so many people in so many different ways.

My Mom and I were talking about how little Miss Kylie has made us look at our lives differently. She truly is an inspiration and it's amazing how she always has a smile on her face. I can only hope and pray that something stops the seizures soon and they find a cure for TS. I've got the article from the paper and some pictures from the cousins party that I will put in the mail for you.

With Love, Lisa, Charlie, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Wednesday, January 31, 2007 9:34 PM CST

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Prayers are all I have to offer since I live so far away. Just remember that there are many prayers for Kylie coming from South Dakota!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Wednesday, January 31, 2007 8:49 PM CST

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Hey little girl,I miss you. I hope you get rid of those nasty seizures. The dogs, cat and I think even the fish are missing you. I saw your dad tonite and he said you were OK with Elmo. Way to go girl! I hope to get up there soon and do some hugging and kissing and reading and walking with you. I'm praying for you! See you later alligator, love you!
Grandma Sue <ssalmon@chcars.net>
Falcon Heights, MN - Wednesday, January 31, 2007 5:32 PM CST

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Hi I haven't been by in a while. I am so sorry to hear what Kylie is going through. My prayers are with you and hopefully the med change will help.

www.caringbridge.org/visit/sophiawinters

Nicole <nicole.weber@state.mn.us>
WSP, MN - Wednesday, January 31, 2007 2:54 PM CST

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Kylie,Prayers heading your way.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
port orchard, wa usa - Wednesday, January 31, 2007 12:40 AM CST

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I am heartbroken at what Kylie is having to deal with. I pray that her and your family's strength continues on. You are all amazing. A date with Elmo!!! Lovely. I can't wait to see the pictures!
Sarah (Lily's Mom) <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, January 31, 2007 12:40 AM CST

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Miss Kylie,
Just thinking of you this morning and hoping your visit with Elmo goes well. What a lucky girl you are and I will continue to pray for you to go home soon! Happy early Birthday to your little sis Ava! Take care and God bless your family.
Amy, John, Autumn, Mara, Ian
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Wednesday, January 31, 2007 11:43 AM CST

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{{{{{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}}}}}

thinking about you....

HANG IN THERE KYLIE!!!!!!!!!! (maybe someone can sneak the seizure monster in Elmo's back pocket so he can take it FAAAAAAAAAAAAAAAAAAAAAAAAR AWAY!!)

*smooches* to you sweet baby girl!!

YOU CAN DO THIS!!

XOXOXO
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Wednesday, January 31, 2007 10:32 AM CST

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I'm sorry to hear the seizures are making you fall. Mom and Dad must be on pins and needles. It's a good thing you have a new bigger helmet to protect your head. Hopefully you won't keep getting owies on your beautiful face.

What I can't figure out Maria is why the Doctors keep changing their minds on Kylie's medication plan. It is frustrating enough to have a sick child and be in the hospital with them. Hopefully their decisions are guided by the knowledge given them by God.

I bought something for Kylie but need your address so I can send it. You can e-mail it to me and I will send it right out.

Your family is in our thoughts and prayers! Sending you all hugs and kisses.




Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, January 31, 2007 10:15 AM CST

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Maria, Neil, Kylie and Ava-

Praying for you guys, hoping that Kylie will be out of the hospital by friday for Ava's 1st Birthday.
Hope you enjoy seeing Elmo tonite Kylie!- we all hope to see pictures of you with him!

Take care

Steve, Erin and Jason
www.caringbridge.org/mn/jasonk
Erin <erqterin@aol.com>
St.Michael, mn us - Wednesday, January 31, 2007 9:11 AM CST

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Kylie, Ava, Maria and Neil: I usually check the website a few times a day. Hoping for good news for Kylie and that all of you can get back to "normal" and go back home. Hope that Elmo is fun today. Ask him to do the same moves that "Tickle Me Elmo" does, and hope that Kylie appreciates him :-)). I am off to Florida to see Great Grandma and Grandpa Perlt. We will keep watching the website and praying for good news.
Aunt Patti <lismorecor@aol.com>
Cottage Grove, MN USA - Wednesday, January 31, 2007 5:39 AM CST

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Hi Kylie,
I am so glad you had a better night. You are so lucky to have so many people pray for you and love you. You do bring out the best in people. I can't believe how one small little girl can change so many people's lives. I really hope your visit with Elmo is fun. I know you love the little guy on the T.V. screen but Santa made you scared. The big furry guy might seem a bit scary to you too. It is so nice that your mom's friend thought of you and asked Elmo to come see you. It was so nice of Muffin and Drew's mommy to come see you again and give you a bath and snuggle. I know how hard that had to be for her and how much she misses her angels. I think we are so lucky to have you as our angel who is living with us. God has blessed you and we can see him in you. We are really asking him to heal you and let you play and not have to stop to wait until your seizure stops to continue playing. No little girl should have to go through it so many times in a day. Although it is painful for us to watch, you make it easier by keeping your smile and giggle even as you come back to us ,each and every time. What a special little person you are.
Love,
Grandma (Nana) Karen
Karen Ueland <klpu@aol.com>
Saint Paul, Mn - Wednesday, January 31, 2007 0:30 AM CST

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Dear Gibbons Family,
I am so very sorry that I haven't been on here in the longest time. Although I didn't know that Kylie's seizures had started up again, I have still been praying daily. Obviously I checked out the site and it got me thinking a lot today. Thinking why does this have to happen to Kylie? What did she do to deserve it? Or better yet, what did you and Neil do to deserve all the pain. I really just don't get it. So many people in this world think that their lives are just dull and no good. Even I think that about my own sometime. I just wish we could realize how lucky we are. I know our families aren't exactly the closest pair on this planet, but do know that if you EVER need help with anything our family is here for you 100%. You are the strongest people I have ever met and I look up to you guys daily. I even wrote about you guys on my ACT essay. Hopefully I passed. :) I am so proud of what Kylie has been through. A ton of surgery and seizures. CRIPES! What else could go wrong. Please know that you guys aren't alone on this one. You have so many friends and family that are here to support you guys. And remember that God did this to your family for a reason. All of this is making each one of you stronger individually and as a family. You have inspired so many people in this world. He will help you get through this, no matter how long it takes. I really hope that Kylie's seizure monster fades away quickly and that everything is back to normal and that you can spend your days with Kylie at home again. I'm sure the Olson kids will be looking down on Kylie through every operation and helping you. Both the girls are getting so big and so beautiful. You must wake up with a smile every morning, being able to see them two and hold them. A special thanks to Neil and Kylie for coming to my hockey game. It was very nice to see you guys and I wish you could have stayed and talked. Sorry so late on saying thank you but hopefully soon again you all will be able to come. My family and I continue our prayers and we will always be thinking of our Gibbons' families. You all mean the world to us. Remember were just a phone call away. God Bless. and love to you all. Hugs and Kisses. Kylie is so lucky she gets to see Elmo tomorrow. Very exciting as he has always been one of my favorite. Hope to see you all soon. STAY STRONG!!!!
Love always ♥ Kiley Jo

p.s. Happy early birthday Ava. You also are getting so old and so strong. You are a VERY lucky girl to have parents like Marie and Neil and a very beautiful sister. February birthdays rock as mine is on the 17th. :)
Kiley Jo Gibbons <sevengibbs@msn.com>
Circle Pines, MN United States - Tuesday, January 30, 2007 11:04 PM CST

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The Gibbons family,
I wish I had something insightful and comforting to write. I'm searching for the right words and all I can say is that I hope and pray for all of you. If there is anything I can do to help please let me know. Take Care.
Maureen Provow <mprovow@yahoo.com>
woodbury, mn - Tuesday, January 30, 2007 10:36 PM CST

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Dear Gibbons family,

Just wanted to let you know I'm praying for all of you, and praying for the Olson angels to help make those horrible seizures leave your adorable little girl alone. I am so glad Shannon and Cam Olson were able to sit with Kylie for you -- it is a testament to the strength of the bond between your families, as it must have been very difficult for them to be back there. I know your families are very special to each other, and it stems from each of you having such beautiful, special children, be they here on earth or in heaven.

May God give you the strength to continue on, and may He guide Kylie's doctors in QUICKLY getting those seizures under control, or better yet, bye-bye.

Thinking of you most sincerely,

Janet McCann
Janet McCann <janet@mccann-family.us>
Austin, TX - Tuesday, January 30, 2007 9:03 PM CST

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Maria, I am so deeply sorry that the "normalcy" is on a hiatus from your life (and praying it is only a brief hiatus). I am praying so hard for the seizure monster to leave sweet Kylie alone! Praying for you Maria; for your sweet girl to be healed; for your life to return to normal; for a happy birthday (with a seizure free Kylie) for Ava.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Tuesday, January 30, 2007 8:34 PM CST

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We have been checking in on you everyday and we have been praying that those seizure monsters go away and you get back home. I am so sorry for all your pain, I just wish I had a magic wand to cure all these kids. kylie is such a beautiful little girl, and you are such a loving and GREAT mommy. We will continue to pray that the dr's can find a way to control them.
Rachele and Zach <rlaco2001@yahoo.com>
Shakopee, MN - Tuesday, January 30, 2007 8:22 PM CST

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Kylie,
I pray that you are doing better today. It was lots of fun seeing you yesterday but it also broke my heart seeing you have those yucky seizures. I was fighting back tears on the way out. You are the sweetest kid. Your energy simply amazes me. I am praying extra extra hard for you and that you can go home seizure free. Love you!
Jody <jody_prudhomme@yahoo.com>
St Paul, MN - Tuesday, January 30, 2007 8:13 PM CST

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Maria,
I do not have any words of wisdom to share with you. Only hope and prayers for Kylie, you, Neil, your family and for the Doctors to make the right decisions. We all know Kylie has beaten this monster before, she CAN and WILL do it again. It just may take some more time. Know that you are not alone,you have such a great support system in you family and friends. Dr. Frost might be away for a while, but he truely cares for Kylie and it is his mission to help her. Sometimes a break will result in a new beginning / fresh ideas. Your heart is breaking and I can relate to that feeling, we had our set backs to. You are probably asking why her, it is not fair, someone, anyone help Kylie. I did. Your family is in our nightly prayer. You are such a caring, loving mother and father. You are an inspiration to so many. You were chosen for a reason to be a mommy and daddy to a very special girl(s). Hope you and the girls have fun with Elmo tomorrow, the letter really touched the cast and crew. If you need anything, even and ear to yell in, call me.
LaVonne Sicard
Woodbury, MN USA - Tuesday, January 30, 2007 6:09 PM CST

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Gibbons Family - I am Jess Beecher's grandma (we have met on serveral ocassions in the hospital). I have been reading your entries Maria and have been praying for all of you. Seizures are so unpredictable and upsetting - yes heartbreaking and I am praying that Kylie Jo will soon stop and that you can have that "normal" time back. You all continue to be in our prayers.
kathy haugen <kjoyhaugen@yahoo.com>
Dilworth, MN USA - Tuesday, January 30, 2007 4:11 PM CST

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Many, many continous prayers from South Dakota. If I lived closer I'd be more than happy to help you out. I can't imagine how tough it is to watch your child go through all this. Many, many prayers to stop all the seizures!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Tuesday, January 30, 2007 2:50 PM CST

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Praying for the seizure monster to go away !!! Amy Miller
Amy Miller <vikesfan2224@msn.com>
New Richmond , WI 54017 - Tuesday, January 30, 2007 12:44 AM CST

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Prayers are with you.
Corella Thorbeck <cthorbeck@aol.com>
Plymouth, MN - Tuesday, January 30, 2007 11:50 AM CST

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I stop to think of you guys several times through out the day... I hope you get home soon. Wish we could come see you !!!!! Love you Danielle
Danielle <djphilippon@msn.com>
Woodbury, MN - Tuesday, January 30, 2007 11:40 AM CST

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*big sigh*

wishing and praying and hoping...............

and thinking of you all...........

STRENGTH AND PEACE!!!!

XOXOXOXOXO

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, January 30, 2007 9:48 AM CST

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Maria and Neil, I have been thinking of you two an awful lot lately and have been saying so many prayers. Praying that Kylie's seizures will go away, that she will continue to grow and flurish and smile, and that you two will feel the presence of God during your weakest hour. That you will feel God in the phone call that helped chear you, or the visitor that you haven't seen in a while, or through the wonderful nurse that is caring for Kylie. I am praying for the docotors, that God will guide them and the decisions they make for Kylie. I love you guys and can't wait until you all come home.
Love, Auntie Andrea
Andrea Ueland <angelannie11@hotmail.com>
Saint Paul, MN USA - Monday, January 29, 2007 10:25 PM CST

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Praying hard for the seizure monster to go away!!
Becca Andrews <andre149@msu.edu>
Haslett, MI - Monday, January 29, 2007 9:50 PM CST

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Thinking of you and praying today was a better day!! I hope your Mommy takes lots and lots of pictures when Elmo comes to visit you. What a surprise that will be!! Enjoy, laugh, and have fun...you deserve a happy day!!!!!
Lots of love-

Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Monday, January 29, 2007 6:48 PM CST

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Hi Kylie,
I know you love the hospital and think it is one big party and you are the hostess, but enough is enough. Your mom and dad want you back home. I want to take you on dates on Thursday nights again. The basketball fans want to see you at another game. They miss you. Ava wants you to take her toys away and pull the pacifier out of her mouth. The cat wants you to pull her tail, and stick your finger down into her ear. Buster and Bailey want to sleep in your bed with you. The fish are hungry because you aren't there to remind people to feed them with your little "eat " sign at the aquarium. Grandma Sue misses her hug, smile, and giggle after her long day at work. The T.V. and VCR miss you sticking your hand in and pushing the buttons. The house just isn't the same when you aren't there. So hurry up and get those nasty seizures out of your head and get yourself home where you belong. WE LOVE YOU!!!!!
Grandma (Nanna) Karen
Karen Ueland <klpu@aol.com>
St. Paul, MN - Monday, January 29, 2007 2:09 PM CST

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So glad to hear that Kylie had a slightly better day! Know that I am thinking of you all and praying for Kylie. She is so precious!
Love & FROG,
Heather
Duckworth Family <dhkduck@aol.com>
Lithia, FL - Monday, January 29, 2007 10:19 AM CST

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Glad the seizures are slowing down and giving you a little break. I hope your appointment with the Surgeon goes good and they are able to remove some of the tubers causing your seizures. We think about you and pray for you every day. I hope you enjoy Elmo when he comes to visit. Make sure Mom lets us know all about it. Sending love and hugs.

Shawn, Rhonda, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Sunday, January 28, 2007 8:27 PM CST

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Hey Kylie, I am actually signing your book today. I had fun fun visting you today. I know you had a lot of fun on the walk to the gift shop. I am looking forward to watching you tommorow.
Uncle Andy
Andy Ueland <Au31pipes@aol.com>
Saint Paul, MN USA - Sunday, January 28, 2007 8:13 PM CST

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Checking in to see how the Princess is doing today . It is just heartbreaking to know how these seizures have just consumed her brain relentlessly . I pray , I plead , I beg God to give precious Kylie a break . The buck stops here ! NO more seizures ! (((HUGS)))

Eli & Fletcher
Michele
W-S, NC - Sunday, January 28, 2007 5:21 PM CST

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Dear Family,
KYLIE IS SPECIAL,
KYLIE IS SWEET,
KYLIE KICK SEIZURES,
RIGHT IN THE SEAT!!!!!!!
AUNTY ROSE
Rose
Lakeland, MN USA - Sunday, January 28, 2007 11:42 AM CST

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Continued well wishes for a healthy Kylie!!!

Ouch - Im having a visual of Ava with rug burn on the side of her head!!! OOOOOOOO - that's not gonna feel good!!! Poor lil beaner!!! She'll be up and walking before you know it!!!!

COME ON K-K - KICK THAT SEIZURE RIGHT OUT OF THAT PRETTY LIL HEAD OF YOURS BABY!!!!!

XOXOXO

Always know.... I am here - thinking of you!!


Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Sunday, January 28, 2007 5:40 AM CST

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Kylie - I hope you feel better soon. I love the scarf you are wearing in the picture. I look at your pictures every day and remember playing with you at the cousins party in December. I hope to see you again soon. Feel better so you can go home and play. I'm blowing you a kiss and hug right now. . .Love Makenna
Makenna Studiner <lstudiner@msn.com>
Cottage Grove, NB USA - Saturday, January 27, 2007 6:31 PM CST

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Kylie-your smile lights up a room, I'm praying with all my heart that the seizure monster will go away & leave you alone. Father God-please be with Kylie tonight & give the doctors wisdom in finding the right meds to control the seizures. In Jesus name we pray-Amen
Caron Tweet <rickcaron@juno.com>
Cottage Grove , MN USA - Saturday, January 27, 2007 6:02 PM CST

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Kylie,

I am sending multitudes of hugs and prayers right now. I am so sorry you've had to deal with the seizure monster. You're a brave and beautiful soul!
Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, January 27, 2007 5:46 PM CST

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Sweet Princess Kylie,
I am storming Heaven with prayers, praying for this seizure monster to go away! Praying Dr. Frost will find the right combination of drugs to make the seizures stop. Praying for you sweet girl!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Saturday, January 27, 2007 3:26 PM CST

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We were sent here through Tori Roth's site. Meg said you were in need of prayers, consider us praying for both your little girls and the rest of your family as you go through such a difficult time!
Molly, Josh and Riley Schuster
Champlin, MN - Saturday, January 27, 2007 3:13 PM CST

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praying for you all!
shelby <americaneagle517@aol.com>
oviedo, fl - Saturday, January 27, 2007 10:03 AM CST

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Good morning Kylie,
Lets try hard to not let that nasty monster in your head today. We need to play and have fun with no silly interuptions every few minutes. Maybe we should get cookie monster to eat up that seizure monster and you will be all better.
Love Grandma Karen ( Nana)
Karen Ueland <klpu@aol.com>
St. Paul, MN - Saturday, January 27, 2007 8:28 AM CST

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Maria:
I am sorry Kylie and you guys are going through this. It is madness and doesn't make sense at all (just like TSC!). Know that we are keeping you in our prayers.

Michele Bardeleben <michele.bardeleben@thyssenkrupp.com>
- Saturday, January 27, 2007 6:24 AM CST

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Maria - I know you "think" you like taking the elevator to work in AWESOME.... but Im sure you would much rather be DRIVING!!!!!!!!

HUGS AND STRENGTH to you!!!!

KYLIE - GET BETTER!!!!!

Im assuming Ava is fine and dandy from her ear surgery? After my son had his first surgery - the doctor said he should be able to hear the grass grow..... :-)



Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Friday, January 26, 2007 7:32 PM CST

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Dear Kylie- I look at you and just cannot imagine the seizures that your precious being endures! We are praying for some relief for you and are so proud of all that you have accomplished!! You are an inspiration to Sarah! I am in love with your will to overcome - you can do it!!!

Dear Maria- I am in awe with how well you get through these hospital stays. Your strength is admirable. We are saying prayers for your continued strength and some answers!

Amy Quintana
Mom to Sarah, almost 2 with TSC
www.caringbridge.org/visit/sarahquintana
Amy Quintana
Summerfield, NC - Friday, January 26, 2007 2:39 PM CST

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My thought and prayers are with you and your family !!!! Amy Miller (New Richmond WI.)
Amy Miller <ammatm@rapidcable.com>
New Richmond , WI 54017 - Friday, January 26, 2007 2:01 PM CST

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I keeping checking Kylie's page a few times a day hoping to read you guys are heading home :( One good thing about being there is that hopefully you will get some answers really soon! Kylie has so many angels watching over her, she will pull through this round with flying colors!
Angela Selb-Sack <angela.selb-sack@spps.org>
Vadnais Heights, MN - Friday, January 26, 2007 12:51 AM CST

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Hi Kylie,
I am new to your page and thought I would stop by. Aleia is my friend and I saw that you visited her page. I hope the seizures stay away for you, I know how hard they are to deal with. I will add you to my prayers and continue to visit your page.
With love and hugs,
Sami
Philippians 4:13
Sami <samibabi@hickorytech.net>
., Minnesota United States - Friday, January 26, 2007 12:21 AM CST

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Sending BIG hugs your way. I have been checking up on your progress everyday. I know the seizures will get better, you have a lot of people praying for you. I tell all my friends how cute you are and how I pray everynight for the seizure Monster to leave our children alone. I will continue to pray for you (Mom, Dad, Ava and the rest of the family too). When our children are sick it affects the entire family. Love and miss you tons.


Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN 56031 - Friday, January 26, 2007 11:55 AM CST

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Hi we are new to Caringbridge. I came across your daugther's site threw a friend. Our son Tyler has seizure's really badly too, he also has Epilepsy. So if you ever need someone to talk to we are here. I hope your daughter gets better soon!!! here is my son's site if you wish to visit it. www.caringbridge.org/visit/tylermulligan
Carrie <clemy55@hotmail.com>
Woodstock, Ont Canada - Friday, January 26, 2007 10:33 AM CST

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Im glad that you are improving Kylie, all these prayers for you must be working! I cant wait to see pictures of you with Elmo.

Take care

Jason, Steve and Erin
Erin Mathison (www.caringbridge.org/mn/jasonk) <erqteriN@aol.com>
St.Michael, mn us - Friday, January 26, 2007 10:22 AM CST

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I am so glad that you got a little break from the seizures yesterday. I hope that today there aren't any at all! We are really praying that you get to go home very, very soon!

Lots of love to all of you,
Abigail
Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Friday, January 26, 2007 9:35 AM CST

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Maria, So glad to hear that you all got a good break from the seizures yesterday, we'll pray that more come your way and they start getting longer. Those breaks are good for everyone. Kylie...you are such a movie star, keep dishing out those famous kisses and remember to do it star style, both cheeks =)
Josie Bemis <josiebemis@yahoo.com>
Somerset , Wi - Friday, January 26, 2007 8:55 AM CST

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So glad to hear that things are improving for your little cutie! She is a little princess!
Continuing to pray for good health!

~Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Friday, January 26, 2007 8:03 AM CST

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Thinking of you and hoping the nasty seizure monster goes away! Take care!!
Kathy <kathyhendricks@frontiernet.net>
- Thursday, January 25, 2007 10:55 PM CST

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Many prayers from South Dakota that those old seizures will stop! You and all the other children that suffer from seizures do not deserve them! I will keep praying for a seizure-free life!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Thursday, January 25, 2007 6:04 PM CST

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Hi Kylie
Checking on you many times a day and praying for good news. I see that prayers have been requested on Asher and Jacob's site so you'll have even more prayers coming your way. God is listening and his timing is always perfect although it never seems like it at the moment. It's hard for me to see so many children suffering so I try to pray for you. Elmo is awesome and can't wait to here about his visit!!
Shawn Schlueter <schluetersm@hotmail.com>
- Thursday, January 25, 2007 1:29 PM CST

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Hi, this is Tori. I was one of the people who helped make blankets in honor of Kylie. I'm so sad that she is sick again. I want to do another project for Children's Hospital. I was really fun knowing you did something for someone. I think it made everyone feel good. I hope Kylie gets better. Sorry you had to miss elmo live.
Tori
Cottage Grove, MN USA - Thursday, January 25, 2007 1:02 PM CST

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Prayers for strength, answers and solutions.
Corella Thorbeck <cthorbeck@aol.com>
Plymouth, MN - Thursday, January 25, 2007 12:37 AM CST

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Kylie,
I'm glad you liked the scarf I bought you. You do look like a Movie Star. I love to see the sparkle back in your eyes today. I hope you get better soon so you can get back home with your dogs, cat, fish, and little sister Ava. She misses you but is being a good girl at grandma's daycare.
Love,
Grandma Karen
Karen Ueland <klpu@aol.com>
- Thursday, January 25, 2007 12:01 AM CST

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I am so sorry that you guys are dealing with the seizures again, and that they can't seem to get them under control. Just know you are all in our thoughts and prayers.
Missy Berg <bergmm3@yahoo.com>
St. Paul, MN - Thursday, January 25, 2007 10:53 AM CST

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Elmo you rock ! It just goes to show there are still a few good people left in this crazy world . My heart breaks and my gut bubbles just thinking of the neverending seizures Kylie is enduring . What the heck is going on with all our kids ? Is there something in the water ? Is it a full moon ? Prayers for a decrease in seizures , but also praying for your strength - emotional and physical . (((HUGS)))

Eli & Fletcher
Michele
- Thursday, January 25, 2007 9:17 AM CST

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Hi Maria & Kylie,

I'm praying for you sweet girl! Praying for a complete healing. Lord, I ask you to guide the doctor's hands. Let them know the best way to take care of Kylie. Give peace to Neil & Maria and their family. Wrap your loving arms around this family.

In your precious son Jesus' name, I ask these things.
Chris Engman <christinee@hosannalc.org>
- Thursday, January 25, 2007 9:16 AM CST

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I am so sorry that you all have to go through this. I wish that there was something more that I could do besides pray. Please let me know if you need anything. Hoping and praying for seizure free days!
Steph B
- Thursday, January 25, 2007 8:59 AM CST

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We're praying for you guys...our hearts are heavy for you. Your story (and your strong spirit) has encouraged us from the beginning of our journey with Maija. When you visited us on 7040, it was such a blessing to connect with another "live" TSC mom after feeling so isolated in Nebraska. Tim, Corinna, Maija, Josiah, & Jonah
Tim Majorins <majorinsmail@yahoo.com>
Lincoln, NE USA - Thursday, January 25, 2007 8:14 AM CST

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Hi Kylie, we miss your smiling face. You are sweet and precious, and we loved how you would climb up on our laps to share your love. Rhonda laid in bed and cried this morning because she missed you. We are praying that the meds will become effective, and that God will give the doctors the knowledge to be able to help you.

Aleia continues to do well, and is going back to school tomorrow. No seizures in 6 days. YEAH!! If there is anything we can help you with please don't be afraid to ask. We are excited for you to see Elmo, give him lots of hugs and be sure to add pictures to your page so we can see your big smile when you get to meet him.


Shawn & Rhonda Shoen <rshoen6@frontiernet.net>
Fairmont, MN USA - Wednesday, January 24, 2007 10:39 PM CST

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My prayers go up for Kylie all through the day. Has anyone figured out why Valentine's Day seems to egg this monster on? In the mean time let's just pray that awful monster out of here!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Wednesday, January 24, 2007 10:09 PM CST

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I am so sorry to read that Kylie still continues her battle. I will continue to pray for her and for all of you for this to stop, and for guidance for her doctors to provide LASTING treatment that will work quickly and safely for her. I know her buddies Drew and McKenna are looking out for her....

God bless the woman who is bringing your special girl Elmo, and God bless Elmo for coming -- what a bright spot that you all need!

Keeping you in prayer,

Janet McCann
Janet McCann <janet@mccann-family.us>
Austin, TX - Wednesday, January 24, 2007 9:11 PM CST

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Im so glad Elmo is coming for a visit!! I hope Kylie is able to enjoy his visit!!!!

Hoping and Praying those D*MN monsters GO AWAY!!!!! :-(

Im so sorry.............

STRENGTH FOR YOU!!!!!

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Wednesday, January 24, 2007 8:45 PM CST

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Just wanted to say good night.. That is so fun that Elmo is coming to the hospital. Hope tonight is alot less eventful. Let me know if I can help with Ava. We're all thinking of you. Love you guys The Philippons !!!!! xxxooo
Danielle <djphilippon@msn.com>
Woodbury, MN - Wednesday, January 24, 2007 7:06 PM CST

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So sorry to hear the seizures are back at it. I just hate TS!!!!!! I know how hard it is to go so long without seizures only to have them return. We are praying that surgery is an option for Kylie and that God will make the choice clear to your family. I am so happy to hear about Kylie's special guest... how cool... how many 2 year olds can say Elmo came just for them.

Sorry I've been out of touch for so long. I ended up in the hospital over a month... this time not for the kids, but for me... finally feeling somewhat normal again.

Hang in their Maria! Love, Dawn
Dawn Schultz <dawn_schultz@msn.com>
- Wednesday, January 24, 2007 5:06 PM CST

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I'm sooooo excited for you little girl-she will still get to see ELMO!! And have one on one time with him! That was so great of Angela (and Elmo :O)--Can't wait to see Kylie's face and the other children's when he arrives! thinking of you always!!
Suzanne Thompson <suzanne_fahey@hotmail.com>
- Wednesday, January 24, 2007 4:20 PM CST

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Praying so hard for the seizures to go away. I too have a son that battles seizures, so as a mom I feel your NEED for the want for the seizures to go away and to be able to control them and them not control you.
Angie <afrakes@charter.net>
Rosemount, MN - Wednesday, January 24, 2007 3:52 PM CST

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Sorry to hear that the nasty seizure monster just wont go away. I will say many prayers that things improve quickly and you can all go home. It does not seem fair that after doing so well for so long things go on a downward spiral. Keep your head held high and keep your faith she is a strong girl !!! message for Kylie: Your are such a beautiful girl and so full of life and energy! keep fighting you can do it. Many hugs and prayers to you all
Liela Waibel <Lielaaron@yahoo.com>
buffalo, MN USA - Wednesday, January 24, 2007 2:01 PM CST

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Hi Guys....it is SO exciting about Elmo....Kylie will be the coolest girl on the block!! :) (as if she isn't already...heeheehee) It was so nice to grab a cuddle in the middle of a bad day, despite everything, you have the sweetest, cutest, cuddliest little girls. They truly are beautiful! I continue to pray for the ugly, yucky monster to leave Kylie alone. Here's hoping for seizure free days and Elmo dreams at night! Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, MN - Wednesday, January 24, 2007 2:00 PM CST

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GIBBONS FAMILY,
My thoughts are always with you, sorry to hear this is happening again.........just know that if you need any help
i'm there.........stay stong.....bless

jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Wednesday, January 24, 2007 2:00 PM CST

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Sorry to hear that you have to miss Sesame Live and Elmo! It just doesn't seem fair....Seizures suck!! That seems to be a common theme for so many kids right now! I am glad to hear that Kylie will get to see Elmo in person...one on one! That probably wouldn't have happened at the show, so that is pretty cool. I know she will love that.
Katelyn is home from school today with a fever/cough, so it doesn't look like we will make it for a visit today, either. We will wait until everyone is healthy...the last thing you need is for Kylie to get sick on top of all of the seizures!! In the meantime, call if you want to chat or if you have any questions about the MSI. I'd be happy to fill you on on what to expect.
Take care and hang in there!! We are praying for a better tomorrow-
Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Wednesday, January 24, 2007 1:25 PM CST

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Brings tears to my eyes that you can't go see Elmo tomarrow, but brings happy tears that Elmo is going to visit you! Maybe you should go on Make A Wish and wish to meet the Elmo, Cookie Monster(maybe cookie monster can eat away the seizure monster), Big Bird, Zoe, and so on..

Wishing You the best Kylie. Stay Strong

Hugs and kisses from Jason
Erin Mathison <erqterin@aOL.COM>
st.michael, mn us - Wednesday, January 24, 2007 1:15 PM CST

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Many prayers are with you today and in the coming days. I am so sorry your family finds itself in this reality again. I have been following Kylie's website for a while, which I found through Angels Drew & McKenna, but I don't know that I have signed your guestbook before. Your family is so inspiring. Your love for your girls is so evident in every entry. Kylie has made such amazing progress, and while much of it is a result of her amazing spirit and courage, she also could not have done it without such determined and dedicated parents. Hang in there, and I hope Elmo's visit brings smiles and laughter to your little princess...what a GREAT surprise!

Amy <amyscotland@hotmail.com>
Maplewood, MN - Wednesday, January 24, 2007 1:01 PM CST

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I was reading your site and wondering if you have ever researched Vagal Nerve Stimulation or (VNS). I'm not sure if your daughter would be a candidate, but I've personnally seen this work for 2 people. One went from 1-2 seizures a day for years, to 1 a month. And the other had even better results. It's typically recommended for people when medications don't work. Again, not sure if your daughter is a cadidate, but might be worth researching.
Good Luck,
Tricia Mumma
Tricia Mumma <tnsmumma@yahoo.com>
Columbia, mo usa - Wednesday, January 24, 2007 8:47 AM CST

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Continuing to lift you and your Beautiful Kylie up in prayer...

Jen
Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Wednesday, January 24, 2007 8:43 AM CST

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Sending prayers your way again today! I'll be thinking about you all day tomorrow and will check in tomorrow night. I hope to see nothing but good news! Take care!
Michelle Lunders
Blaine, MN USA - Tuesday, January 23, 2007 10:23 PM CST

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Kylie and family. I am so sorry to see that the seizure monster is back. I haven't been to the site lately and was sad to hear you have been having a rough time. However it sounds like Kylie is still her beautiful self. You are all in my prayers...
Rachel
Rachel Groess <rachmn@aol.com>
Woodbury, MN USA - Tuesday, January 23, 2007 8:36 PM CST

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Dear Maria, Neil, Kylie and Ava,
We are praying SO, SO hard for those nasty seizures to leave Kylie alone. You are constantly in our thoughts. Mary sends big hugs to her dear friend Kylie. XXOO
Love,
Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN - Tuesday, January 23, 2007 7:49 PM CST

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Not much I can do but to stop by and say Im thinking of you and praying for your miracle!!!

XOXOXOXO


Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, January 23, 2007 3:45 PM CST

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Continuing to pray for Kylie and the seizure monster to go away.
Lynn Miller <lymiller01@comcast.net>
Anoka, MN USA - Tuesday, January 23, 2007 3:05 PM CST

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We are praying for you guys. Kylie is such a sweetie and such an inspiration. Our church has the article about her up on the board - we'll add her to the prayer list too. Hang in there Kylie. . .we're all thinking of you and sending hugs your way. Lisa, Charlie, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Tuesday, January 23, 2007 1:15 PM CST

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kylie is in my prayers
sara
lagrange, ga usa - Tuesday, January 23, 2007 1:01 PM CST

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Neil, Maria.....
Praying for Kylie, I start Vacation tomorrow till the 5th of Feb, so if you need me to do anything please let me know....Payton and I will be down tomorrow, as he went out of town with school till then, and he wants to see Kylie.....hugs and kisses.....kathi
grandma kathi <katgibbons@hotmail.com>
st paul, mn usa - Tuesday, January 23, 2007 11:57 AM CST

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Our whole family is sending lots of prayers your way every day. Hoping you are well soon and able to go home. We will be praying extra hard to keep those seizure monsters away.
Kristie, Perry, Courtney, Ryan and Tyler Bredeson
Kristie Bredeson <kbredeson@mn.rr.com>
Bloomington, MN USA - Tuesday, January 23, 2007 10:10 AM CST

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Many prayers that Kylie has a good day today and the seizures decrease so she can go home!!
(((Hugs)))
Amy and Katelyn

Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Tuesday, January 23, 2007 10:02 AM CST

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Thinking about you! Praying the seizure monster will GO AWAY!!!!
Amanda Drown
Wood Lake, MN - Tuesday, January 23, 2007 10:01 AM CST

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My thoughts and prayers are with you and your family!
Monica Jampsa (Family Friend, Kat's) <mvee@mchsi.com>
Plymouth, MN US - Tuesday, January 23, 2007 9:21 AM CST

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Hi Miss Kylie
Hope you're doing better today sweetie pie!
Shawn Schlueter <schluetersm@hotmail.com>
- Tuesday, January 23, 2007 9:16 AM CST

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Maria-I know Jesus is faithful. Prayers are coming your way from Cottage Grove & TN. And I know Angels Drew & McKenna are giving Kylie butterfly kisses. Hang in there-we're praying harder than ever!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Tuesday, January 23, 2007 7:05 AM CST

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My heart breaks for what your family is going through. You little girl is such a charmer (both of them, actually!) and I just can't imagine how hard it is to see her with that ugly seizure monster. I am praying and praying for them to go away and leave your sweet baby alone! Your family is being thought of 24/7. Thanks for keeping us updated. Wishing there was more I could do...
Michelle Lunders
Blaine, MN USA - Monday, January 22, 2007 10:41 PM CST

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So sorry to hear about Kylie. There will be many prayers for her from South Dakota. We will really try to pray that old monster away! We don't want him to ever come back!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Monday, January 22, 2007 8:21 PM CST

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Oh I hate hearing that there are seizures again. Those eyes may be tired in the picture but that smile is so fabulous and genuine. What a precious little girl.

Praying you find answers and are home, seizure-free VERY soon.

Hugs,
Connie Frisby-Griffin <cdlfg@comcast.net>
Colorado Springs, - Monday, January 22, 2007 6:58 PM CST

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Thinking of you and praying even harder........

XOXOXOXO
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Monday, January 22, 2007 6:47 PM CST

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Thinking of you all often and praying like crazy!
Megs ~ Mother of Tori
Megs Roth <willanmeg@aol.com>
Cottage Grove, MN - Monday, January 22, 2007 6:32 PM CST

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Hang in there Kylie! Your doing great!

Here's an amazing verse for all of you:

James 5:15
And the prayer offered in faith will make the sick person well; the Lord will raise him up. If he has sinned, he will be forgiven.
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Monday, January 22, 2007 12:53 AM CST

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Kylie, I was happy to see you the other day. You are such an amazing kid. Even through everything you have been going through you still greated me with a smile.
Thinking of you and your family today. I hope you will be able to go home soon.
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Monday, January 22, 2007 12:38 AM CST

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Dear Gibbons family,

I am so saddened to read that the seizure monster continues to plague Kylie. She is so precious. I am praying every single day that this will STOP and you can get her back to how well she was doing before this came back. Lean on everyone and everything you can to help you get through this.

Most Sincerely,

Janet McCann
Janet McCann <janet@mccann-family.us>
Austin, TX USA - Monday, January 22, 2007 12:35 AM CST

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Maria, Neil, Miss Kylie and Ava- We are so sad that this is not getting under control! Why does this have to happen? I ask God that a lot and pray for answers for you and us. We love you so much and hope that these seizures slow down and Miss Kylie can be back to playing and smiling and making everyone else smile soon. Love, The Beechers
Amy Beecher <ajbeech@yahoo.com>
West Fargo, ND United States - Monday, January 22, 2007 11:59 AM CST

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Hi MAria-
I have been thinking about you and Kylie a lot this past weekend. I'm very sorry that you are back in the hospital. Thinking about you and your family. Prayers going to Kylie.
Nicole
Nicole Schueller <nicole.schueller@spps.org>
ST.Paul, MN USA - Monday, January 22, 2007 11:47 AM CST

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Praying for a better day today and no seizures!!!!!
Karen Patterson <Anchormom@comcast.net>
New Castle, DE - Monday, January 22, 2007 8:19 AM CST

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Kylie , I am sending up prayers for your seizures to be controlled quickly so you can still make it to Sesame Street Live . You have been through so much , you deserve to go see Big Bird ! (((HUGS)))

Eli & Fletcher
Michele
- Monday, January 22, 2007 5:29 AM CST

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Kylie
I am praying for you. I know that Drew and McKenna are watching over you and doing everything they can to get those seizure monsters away. I got your sticker and picture and have it on my desk. I love it!
You are always in our prayers.
Nikki & Hailey <nkfrakes@msn.com>
Inver Grove Hts, MN USA - Sunday, January 21, 2007 11:06 PM CST

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Maria, I'm so sad for your dear Kylie. I keep coming to her page to check on her with hopes of seeing a new update telling us that she's doing GREAT, I'm so sorry that things are not going well at all. You are right, TS SUCKS, BIG TIME! It's not fair or right, no matter how anyone looks at it. I will continue to pray for your sweet girl. Praying for that seizure monster to LEAVE HER ALONE! Praying for God to bless your little one.

Sending love & hugs your way,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Sunday, January 21, 2007 9:45 PM CST

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I miss my snuggles with you today Ky......hoping for a break. Go away bad seizure monster, go away.
We love you!!
The Olson's and our angels too.
Shannon Olson <shannonolson914@yahoo.com>
Lakeville, mn usa - Sunday, January 21, 2007 9:32 PM CST

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Praying so hard for the seizures to stop. Your girls are so adorable! I was directed to your site by Shannon Olson and will continue to pray for your sweet little girl.
Tricia Dietrich <dietric1@frontiernet.net>
Burnsville, MN - Sunday, January 21, 2007 9:25 PM CST

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Thinking of you guys and praying that Kylie will once again get a break from the seizure monster.
Steph B <stephiebecker81@hotmail.com>
- Sunday, January 21, 2007 6:47 PM CST

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Keeping you in our prayers. It breaks my heart to hear that Kylie is having so many seizures! I wish someone could just figure out ALL the answers to the human brain and "fix" all of our kids and make the seizures go away forever! Josie and I are trying to work out a time that we might be able to stop up and see you guys on Monday. Let us know if you need us to bring anything!
(((Hugs)))
Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Sunday, January 21, 2007 3:35 PM CST

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I'm thinking about you and praying for you guys!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Sunday, January 21, 2007 3:02 PM CST

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Hey Sorry to hear you are still there, crossing my figures for thursday... Elmo .... Give hugs to both the girls.. Love Danielle
Danielle <djphilippon@msn.com>
Woodbury, mn - Sunday, January 21, 2007 2:37 PM CST

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Thinking of you......

{{{{{{{{{{{{{{{HUGS}}}}}}}}}}}}}}}
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Sunday, January 21, 2007 1:43 PM CST

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Maria, I am so sad that seizure monster is back!! You guys were all coming along so well,but with your continued positive attitude, and lots of prayers, it will get better, we all believe that. Hugs to all of you. Jane
Jane Dahlin <grammijane@usfamily.net>
Hudson, Wi usa - Sunday, January 21, 2007 1:05 PM CST

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Dear Family
Kylie had such good seizure control for so long and that is very encouraging. I can't believe how well she has done and all the things she has accomplished for all the medications and things she has gone through.
She will overcome this too. She is one SPECIAL kid!!!!!
Just to see her smile, talk and walk is living proof of her strong character. What a courageous child. Thank God for her and for her very special parents.
Love Aunty Rose
Aunty Rose
- Sunday, January 21, 2007 11:23 AM CST

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Hi guys, pardon my icky words but that all just plain sucks!I will continue to keep you all in my prayers! I have to say that it totally amazes me to see how you guys all work together and the huge connections you have made, it is such an awesome thing that you have so many wonderful family members and friends to walk through this *&#! with you. Kylie touches so many peoples lives, but it is also so great to see that you do as well!!! I wish the circumstances were so different of course but you have inspired so many people and I just wanted you to know that!!! We hope Ava is feeling better too!
Julie, Joel, Shane, Cody, Angel Maddie, Emalee Kate and Will <sallyj082@yahoo.com>
- Sunday, January 21, 2007 8:35 AM CST

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Hello Maria,
I have checked this website, but I don't know if I have ever signed it. I am Eileen's friend, and Mary and my daughter, Lydia are friends from school. I am so sorry to hear what Kylie has been going through the past week. Not to mention what you are going through. Lydia has been seizure free for a while, and everyday I wonder if they will ever return. With everything that Kylie has been through, she sound like a magnificent fighter. I am praying for you each day, and I think about Kylie often. Please let me know if you need anything!!! Give Kylie a huge hug from Lydia. Maybe one of these days we can all get our girls together!
Kim Fiesel <ktfiesel@comcast.net>
Lino Lakes, MN - Saturday, January 20, 2007 11:33 PM CST

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Maria,
Just when you think that life is going good! Boom! TS kicks ya right in the butt again! UGGH! I am so sorry that precious little Kylie has to start with this all over again!We are thinking about you guys and praying for Kylie's miracle!

Tell Kylie that Kierstin is sending her hugs and high fives!
We are with you in this journey Every step of the way!

Love and prayers!
Amy Dublinske
Lees Summit, MO USA - Saturday, January 20, 2007 10:57 PM CST

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We are so sorry to hear you're going through this - it must be so difficult. Tori was so sorry to hear Kylie is struggling and Makenna looks at the pics and just says Play with Baby Kylie and Baby Ava. I told her Kylie is sick and she got all quiet, then kissed the screen. Hope you know we are praying and you're always in our thoughts. The confirmation class is also praying for Little Miss Kylie. Lisa, Charlie, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Saturday, January 20, 2007 10:08 PM CST

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Remember, Kylie, that we have a date on Tuesday, and since I haven't seen you in so long, I am especially looking forward to it. Praying for the medications to work and for you to come home soon!


Angi Ault <ted.ault@comcast.net>
- Saturday, January 20, 2007 9:44 PM CST

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I am so sorry that Kylie is having seizures again and in the hospital. It breaks my heart, as I am certain it is yours. I will be praying for you!
Sarah (Lily's Mom) <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, January 20, 2007 8:56 PM CST

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Dear Gibbons family,

I am SO sorry you are all going through this again, after Kylie was doing so well and making so much progress. Your description of the seizures as a monster certainly seems to fit.

I was led to Kylie's site last summer through the Olsons' site (to which I was led by my little chemo buddy, Westin Dietz's site) just after McKenna passed, and read all of your stories from start to finish. I pray for Kylie and your family every night, and check in you (and the Olsons and a few others each day). Please know prayers are being said for your precious girl, and for Miss Ava's ear tube surgery to go without a hitch.

Hang in there sounds so useless to say, but I don't know what else to say except I care, and I will be praying, praying, praying. TS most definitely does suck.

Most sincerely yours,

Janet McCann
Westin Dietz's ChemoAngel
www.caringbridge.org/visit/westindietz
Janet McCann <janet@mccann-family.us>
Austin, TX - Saturday, January 20, 2007 8:41 PM CST

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I just wanted to stop by and let you know we are praying for you guys . I am so sorry that now you have to be traveling down the scary resection road . Many are praying for you Kylie .

Eli & Fletcher
Michele
W-S, NC - Saturday, January 20, 2007 2:00 PM CST

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Hey maria-
Hang in there. i'm sorry to hear that you are back in the hospital. Please keep us updated. Let me know if you need anything.
Nicole
Nicole <nicoleschueller15@hotmail.com>
St. Paul, MN USA - Saturday, January 20, 2007 9:29 AM CST

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Dear Gibbons family........ Im so sorry to hear about Kylie being in the hospital!!!! MONSTERS GO AWAY!!!!!!! :-(

Wishing you strength!!

Glad to hear Ava did well with her surgery!!

Smooches to the girls!!!!

GOD BLESS YOU!!!!!!
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Saturday, January 20, 2007 7:08 AM CST

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Sending bunches of hugs and prayers to you, dear sweet, Kylie! You must get better so you can go see Elmo LIVE!
love you,
Jen
Jen Berkner <berknerjen@yahoo.com>
Wanamingo, mn - Friday, January 19, 2007 5:41 PM CST

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Dear Maria and Neil--We are so sorry that Kylie is back at the unit. I just can't believe that these stupid things have come back after 10 wonderful months. But, just as she has done in the past, Kylie will beat these seizures and show everyone around her how incredibly strong she is. We are praying for you and are here for anything you need--call day or night. We love you guys.
Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, Mn - Friday, January 19, 2007 4:46 PM CST

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You are in "Caroline's" room! Check out the duck on the door that she left there. May it watch over you and bring you lots of peace as Dr. Frost tries to get everything worked out. You are in good hands. Lots of love-
Abigail
Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Friday, January 19, 2007 4:44 PM CST

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So incredible sorry to hear that Miss Kylie is back in the hospital. You will be in my prayers.
Hillary Richardson (Canaan's mom) <hillarygeiger@gmail.com>
West Des Moines, IA - Friday, January 19, 2007 3:47 PM CST

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Dear Maria, I am sorry to hear that Kylie is back in the hospital. I am praying for her and for all of you. God bless her!!
Kate Shelton <kateshel@hotmail.com>
New Brighton, Mn USA - Friday, January 19, 2007 3:39 PM CST

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We we knocking on wood on Monday night that we had all managed to stay away from 7940 for awhile?! This sucks, Maria. I hope that they can get this to stop quickly and get the tests ordered and done so that Kylie can get on her way to the next step - a cure! She has come so far in the last year and we know that she can do so much more, if only those seizures would go away.
We are paraying for you all today, as always. Wish we could come visit, but if there is anything you need - just let me know and we'll do it!
((HUGS))) - Abigail
Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Friday, January 19, 2007 2:40 PM CST

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Oh, rats (I'd rather use a different term, but I better not!) So sorry that you are getting admitted to the unit. I know it will be tough going back up there, after the pleasure of being away for so long!! Praying they will get Kylie's seizures under control quickly and it will be a very quick visit! We will try to get up to see you. Many hugs-

Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Friday, January 19, 2007 2:33 PM CST

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Hi Neil, Maria and girls! I was saddened to hear that seizures had returned. I hadn't checked to sight for awhile so did enjoy catching up on pictures, etc. You have two beautiful girls - who obviously have many loyal fans! Know that you are in my prayers and thoughts and as I've told you before I am in awe of you as parents!! Take care - I'll check in soon!
Maureen McGee <maureen.mcgee@isd623.org>
- Friday, January 19, 2007 1:59 PM CST

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Hi Gibbons Fam... It just doesn't seem fair that Miss Kylie has to go through this. I am thinking of you guys today. I hope Ava does well today also. Lots of prayers sending your guys' way. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Friday, January 19, 2007 12:00 AM CST

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Gibbons family,
I'm so so sorry to hear that the "seizure monster" is back. I'l be praying that it stops!

Philippians 4:13
"For I can do everything through Christ who gives me strength."
Julie <Swimjulie9@aol.com>
MN USA - Friday, January 19, 2007 10:46 AM CST

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Hi Miss Kylie! I have been following your website for some time now (was sent here by the Olson angels) but have never signed. My heart broke when I checked in on you today and saw that the seizure monster is back. I hope he leaves you alone and you are back to your smiley self very soon! You and your family are in my thoughts and prayers! Take care!
Amanda Drown
Wood Lake, MN - Friday, January 19, 2007 9:43 AM CST

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Maria We will continue to keep Kylie in our thoughts and prayers. I am so sorry she is batteling the seizure monster again it just breaks my heart to hear this news. I know that brain surgery is not an easy thing to think of but if it will help Kylie like it has helped our Emma it is all worth it.
God Bless
Joy Leist mom to Emma 3 years w/ts and hydrocephalus

Joy Leist <joyleist@bresnan.net>
Casper, WY - Friday, January 19, 2007 7:24 AM CST

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Maria-we've got prayer chains going from Cottage Grove, MN to Chattanooga, TN for Kylie & Little Miss Avery. Please know that God's people are praying for 2 very special little girls. I had an email from the "TN families", they asked me to let you know they are praying that the seizures will stop.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Friday, January 19, 2007 6:51 AM CST

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Oh, your poor little baby Kylie! I am so sorry she is having to go through this again. My heart breaks for you and I hope the doctors can figure out how to help her. I will keep praying for her and will continue to proudly display my "Kylie's Hope" bumper sticker! Get better, you sweet little girl! Elmo is waiting to meet you next week!
Michelle Lunders
Blaine, Mn USA - Thursday, January 18, 2007 11:17 PM CST

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Hi Kylie,
People at Kari's basketball game tonight were asking where my sidekick was tonight. As I told them about you having siezures again, they felt so bad. You have made such an impact on so many. You have many fans in the stands who have been charmed by you. The way you smile at people, touch their face, and even try to look at their bellies, makes people realize what a sweet little girl you are. They have watched you progress from coming to the first game with leg braces and wobbly legs holding on to my hand to make it across the gym, to last week when you were walking from one end of the gym to the other all by your self with the biggest smile on your face. You only stopped from time to time to touch someone's leg and look up at them with your trademark smile. I hope that silly seizure monster will leave you alone again so we can go back to our date nights and go to more games to see your friends. The little boy whose lap you sat on during one game was looking for you tonight too. He missed you, as did I.
Love, Grandma Karen
Karen Ueland <klpu@aol.com>
St. Paul, - Thursday, January 18, 2007 10:33 PM CST

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Thinking of you all. I check in everyday on Kylie and was not expecting to read your update about the monster being back. Give Kylie a big squeeze, she is such a sweetheart. Miss Ava too. Your girls are so beautiful. I will be praying tonight for the monster to go away and leave her alone. Hope you have a uneventful night tonight.
Trina Pauly <ntjcp@yahoo.com>
- Thursday, January 18, 2007 10:00 PM CST

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Maria
I'm so sorry that Kylie is struggling again. So glad though that she is a surgical candidate. I'll be praying for all of you.
Cindy Blackard <cblackard@yahoo.com>
Waukee, Ia - Thursday, January 18, 2007 9:56 PM CST

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Maria,
I just read your update, and my heart is just broken for your family and Miss Kylie. It has been a rough day here in Cinci for Miss Avery and it was so incredibly thoughtful of you to put her up for prayer on your page. I can't believe how many people are checking up on her and praying for her. You are so sweet!

Maria, I know you have dreaded this surgery, but I promise you, as bad as it is, (I'm sitting in my baby's hospital room as I write this and she fights for her life from this nasty post-op infection) if you have lived with the seizures for so long, you CAN make it through this surgery. It will be soooo worth it! I truly believe in my heart that in a few years multiple med combos will be a thing of the past, and surgery will be a first line treatment, because it can and does work! I know we've both heard the many stories of unsuccessful resection surgeries and the seizure monster striking again. . . but when you watch your baby seize over and over, you know that you will do ANYTHING and everything it takes to give them a chance at the best possible life.

Kylie will kick the seizure monster's butt, and Miss Avery will beat this infection and then somehow we will have to get together and close down some hotel lobby at 2 am like we did in Chicago!

Don't get discouraged. This thing is beatable and Kylie will show the world with her strength and courage what it means to overcome adversity. She has amazing parents and family to help her!

God bless you and your sweet family,
much love and many prayers,
Lisa (Avery's mom 13 months w/TS)
Lisa Hart <lhart520@yahoo.com>
Olathe, KS - Thursday, January 18, 2007 8:16 PM CST

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Hey guys...so sorry to hear the yucky seizure monster has returned. I think it stinks...as I'm sure you do too. We will continue to pray for Kylie...she is such a little trooper. I will call you soon to see if you need anything. Take care....Love, Nikki :)
Nikki Sickman <hownnik@hotmail.com>
Farmington, mn - Thursday, January 18, 2007 7:38 PM CST

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Gibbons-
So sorry to hear that Kylies seizures have come back. We are praying that they disapear soon!
Stay tough Kylie.

Erin, Steve, and Jason

p.s. What day are you guys going to sesame street live? We will be going to the Thursday the 24th 7:30 show.
Erin <erqterin@aol.com>
St.Michael, mn us - Thursday, January 18, 2007 6:29 PM CST

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Maria, Neil, Ava and Miss Kylie- We are overwhelmed to hear of the return of the seizures for Kylie. It just makes you realize that this ugly disease can rear its ugly head anytime, and catch you off guard. You are so very special to our family and we think of you many times a day. Jason is gone today and when I told him about your updates he was so sad. We love you very much and hope that we do not see each other in the near future on 7940!

Love, The Beechers
Amy Beecher <ajbeech@yahoo.com>
West Fargo, ND United States - Thursday, January 18, 2007 6:17 PM CST

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Oh Maria-
Tears are rolling down my face as I read your latest update. I am SO sorry that the seizures have returned in such force!! It sucks!! The shock and pain you must be in after having so many months away from all of this-my heart goes out to you!! I know the surgery is scary and not any fun to think about. Please know that us other Mommy's in the group are here for you anytime, day or night!! If you have ANY questions about the MSI or surgery, call me...we've been there! I will be praying extra, extra hard for Kylie and you.
Many hugs coming your way-
Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, M - Thursday, January 18, 2007 5:11 PM CST

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Miss Kylie-
I am so sorry that this horrible disease is taking it's toll on you right now. You are too sweet for words. I so enjoy reading your updates and seeing your cute smile on the photos. I will continue to pray for you. For the doctors that treat you and for continued guidance for your incredible parents. God bless you little one.
Amy, John, Autumn, Mara, and Ian
Amy Wilkie <anwilkie@charter.net>
Lakeville, - Thursday, January 18, 2007 3:01 PM CST

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Maria-
Words are hard to find after reading that. As I feel more and more like a mother every day, I can almost begin to understand that it must be the world's worst feeling to watch your baby struggle. I pray that you continue to find the strength that you need in these days ahead. You guys will certainly be in my prayers. We had good days before and we will get them back again.
Lisa, Leon, and baby Laci (wating to play with Miss Kylie this summer) <tchngkidz@aol.com>
Red Wing, MN USA - Thursday, January 18, 2007 1:55 PM CST

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Well that just plain sucks and there's really no better way to say it. I've loved hearing how much you have enjoyed the relief and freedom from seizures for so long now and am so sad it's gone! I guess it's one more thing to add to my prayer list. No parent wants to put their child through brain surgery but it sure seems like your best option as an outsider. And knowing other TS kids who have been through it was success, I'm hoping for the best for Kylie! She is such a doll - Ava too. Such cute kids - it's so unfair to see them suffer. I'm really sorry for you all. Hang in there - thank God you have such a strong network of support. Not that it makes life easier, but there is that added bit of comfort knowing others care and are here to support you along the way.

Kim - www.caringbridge.org/ne/ryanm <mcclintick6@hotmail.com>
Lincoln, NE - Thursday, January 18, 2007 1:03 PM CST

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I am so sorry to hear the seizures are back, it has to be very frustrating. We will pray for Kylie to get better and the seizures to go away. You are all in our thoughts. Lisa
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Thursday, January 18, 2007 8:58 AM CST

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You are all in my thoughts and prayers!! My stomach is doing summer-salts reading all that you are going through. I really feel for you guys! Thanks for updating so we all know how things are going.
Take care, Megs ~ Mother of Tori
Megs Roth <willanmeg@aol.com>
Cottage Grove, MN - Thursday, January 18, 2007 8:56 AM CST

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GIBBONS FAMILY,
I'm so sorry about the seizures coming back, she was doing so well.........My thoughts are with you all..........

jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Thursday, January 18, 2007 8:44 AM CST

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Hi Maria and family. I'm so sorry to hear about Kylie's seizures. My heart goes out to you all. I will continue to pray for good health!
Andrea Gerlach <nickndre@yahoo.com>
Woodbury, MN - Thursday, January 18, 2007 8:16 AM CST

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My heart sank when I read your entry :( I am so sorry everything has started again. I hope everything goes well with the tests, she has made it so long without a seizure and that shows there is hope for and end to the seizure monster!! Lots of prayers your way!
Angela Selb-Sack <angela.selb-sack@spps.org>
Vadnais Heights, MN - Thursday, January 18, 2007 8:15 AM CST

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Maria-I wish I was a poet or someone who can write wonderful words of wisdom-but I'm not. But I can pray & I do. I remember a Good Friday sermon a long time ago when my old pastor said "it's Friday, but Sunday is a comin". Maria-it's Friday right now, but I know in my heart that Sunday is coming. We'll be praying & with you in spirit. Our girl will be alright-I know she will. Lots of love & hugs coming your way from a mom/grama in Cottage Grove.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Thursday, January 18, 2007 6:57 AM CST

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I'm so sorry to hear that your dear, sweet girl is having to deal with the seizure monster again. That just plain sucks! Please know that I'm praying for her each and every day, and I know her angel friends, McKenna & Drew are watching over her always. Sending you my love and Prayers,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Thursday, January 18, 2007 6:50 AM CST

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Oh my gosh Maria ! This is NOT the update I was expecting to read . I am so, so sorry that Kylie is seizing so much again . This is like a recurring bad nightmare , but in reality it's life . This just breaks my heart . She was doing so well and then boom . This stupid Tuberous Sclerosis is so unpredictable . Now you begin the journey into resection surgery . I know your nerves have got to be a total wreck right now . I wish I was closer to help out , and just give you a shoulder to cry on . You know I'm praying for Kylie , but keeping you and Neil covered too . This is so hard on everyone . (((HUGS)))

Eli & Fletcher


Michele
- Thursday, January 18, 2007 6:47 AM CST

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I hope Kylie has a better day today. I'm so sorry to hear that the seizers are back. I'm praying for your family.
Amanda Schuck <aschuck@ilbnc.com>
- Thursday, January 18, 2007 5:39 AM CST

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Hi-
I found your site through another and just read your whole story. I know brain surgery is scary, but want to encourage you that it can be ok! Our story is a little different, John Lawson had a stroke in utero, diagnosed at 9 months. He was having 50-60 seizures a day until we did brain surgery 1 year ago in December - a hemispherectomy (disconnected 1/2 of the brain). He is doing so much better now. I was so encouraged that Kylie is walking. John Lawson was born in July, 2004 and is finally pulling up on furniture - we are waiting for those first steps! Anyway, surgery can be a great thing and you will make it through! Praying for your family.
Gini Florer
http://www.caringbridge.org/visit/johnlawsonflorer
Gini Florer <gini_florer@swbell.net>
Dallas, Texas - Wednesday, January 17, 2007 11:44 PM CST

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Dear Maria and Neil,
It seems like this whole nightmare is starting all over again. It just doesn't seem fair that our sweet girl is doing this again. The thought of brain surgery scares me to death, but if it gives her a chance for a normal life, it will be worth it. It is so nice that Dr. Frost loves her so much too. I know he will make sure she gets the best of care. I hope and pray that tomorrow is a better day for everyone.
Love, Mom
Karen Ueland <klpu@aol.com>
St. Paul, MN - Wednesday, January 17, 2007 11:13 PM CST

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Maria-I am So sorry to hear that Kylie's seizures are back. It breaks my heart that she (as well as you and your family) have to go through this. I"ll be thinking of you and obviously praying for you in the days to come. Please let me know if there is anything that you need that I can help with.
Steph B <stephiebecker81@hotmail.com>
White Bear Lake, MN 55110 - Wednesday, January 17, 2007 10:16 PM CST

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So sorry to hear the seizures are back. We will pray for Kylie.
Maureen Provow <mprovow@yahoo.com>
Woodbury, Mn - Wednesday, January 17, 2007 10:08 PM CST

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Oh my, so sorry to hear about those old seizures! Our neighbor had surgery for his and it helped, a whole lot! I do hope Kylie will benefit from this, too. Many prayers from Mitchell, South Dakota.
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Wednesday, January 17, 2007 10:06 PM CST

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Maria and Neil--I'm so sorry that Kylie's seizures are back. It's just not fair for that sweet girl. Please let us know if you need anything. We're around if you need someone to watch Ava or to bring a meal or something.
Jessica Pratt <djwjepratt@comcast.net>
St. Paul, MN USA - Wednesday, January 17, 2007 9:55 PM CST

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We will keep you all in our prayers. Our son had surgery for seizures over ten years ago. Dr. Frost was also our doctor. I remember how I felt when he first mentioned surgery, but we finally realized that was our only option. Our son did not have the same diagnosis as Kylie, but failed several tries of medicine. Dr. Dunn was our surgeon and was excellent. We wish you nothing but the best. We know you are in good hands.
Cheryl
Milroy, MN - Wednesday, January 17, 2007 9:38 PM CST

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Oh Maria, we are sending you and Kiley all our postive thoughts and prayers, prayers, prayers. Katelyn's even having some sympathy seizures for you last night and today as well. There is nothing more helpless than watching the go through this and wondering about everything but we are here for you and I hope it may be some comfort knowing that there are people out there who share your pain. Try to get some rest and hug your babies tight. They are such a special gift. Thinking of you, Lisa and Katelyn
Lisa Linquist <llinquist@stroberts.com>
- Wednesday, January 17, 2007 8:48 PM CST

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Sending big Hugs to a precious little girl. We too visit 7940 with our daughter Aleia. Maybe some day we will be there at the same time and can meet. We just had an appointment yesterday with Dr. Ritter and he is doing a rapid increase on Aleia's Lamictal. If it doesn't work she will be admitted for 24 hour EEG and an MRI. We've done this several times but he told us at the rate things are going, if we don't get her GTC seizures under control, she will start losing all her skills. It was a horrible thing to hear. But I have faith in the Lord that she will be OK. If you ever have questions or just want to talk, send me an e-mail. I've been dealing with Intractable statis seizures for 8 years. Not an expert but an ear to listen.
Rhonda, Shawn, Lee, Kelvin, Corey, Drew, Ian & Aleia <rshoen6@frontiernet.net>
Fairmont, MN - Wednesday, January 17, 2007 4:07 PM CST

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Gibbons family,
Just checking in with all of you....glad to hear kylie is doing so well, she always looks soooo happy. Lion got his first job and he's handling it pretty well. We will have to stop over soon!!!!!!

love you all
jessie
jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Wednesday, January 17, 2007 9:20 AM CST

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Maria, Your journal entries bring tears to my eyes as well. I am so amazed and proud of the progress sweet Kylie has made. I can see why you are such a proud Mama! I just love reading all the stories about your beautiful girls. Continuing to pray for the seizure monster to stay away.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Tuesday, January 16, 2007 7:57 AM CST

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Kylie-I just got done watching the "Kylie Can Walk" video your Grandma emailed. My eyes filled with tears as I watched you walk! I am so very proud of you!! Keep it up, sweetie! Glad to hear you are enjoying more of those seizure free days. You are always in our prayers-
Amy - Katelyn's mom <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, MN - Sunday, January 14, 2007 3:02 PM CST

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You go girl ! Continue to amaze everybody with your progress . We are so proud of you . Hoping and praying you feel better and to keep those stupid seizures far far away . (((HUGS)))

Eli & Fletcher
Michele
W-S, NC - Sunday, January 14, 2007 8:49 AM CST

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~Kylie~

I am so glad to hear you are out of the hospital, and thank your family for sharing that precious video with us all. What GREAT progress, I am so proud of you!! I have a Kylie too, she turned 3 years old October 09, 2006.. She has the same eye and hair color, and skin complexion as you!! Lifting you in prayer sweet girl! Praying for more continued progress!

Love~ Claire (Mommy to Amber(12) Kylie(3) and ^Laken^(would be 9 months today~but is our angel in heaven)

www.caringbridge.com/visit/lakenroy
Claire Roy <caffemocha29@aol.com>
KERNERSVILLE, NC US - Saturday, January 13, 2007 11:48 AM CST

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Im so thankful that Kylie is progressing how she is. Her video of her walking that you sent me is TOO CUTE! Her smile at the end of the video is adorable. She smiled like she was soo happy that she made it to you!


Take care you guys, we think about you all the time

Erin Mathison
www.caringbridge.org/mn/jasonk
Erin <erqterin@aol.com>
st.michael, mn us - Friday, January 12, 2007 11:08 AM CST

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Way to go Kylie!!!! Answers to prayer-YES!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Friday, January 12, 2007 7:09 AM CST

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hello ms. kylie, maria and family,
just stopped in to say hello and check how you are all doing - so glad you are out of the hospital and seem to be doing better now.... i am so proud of you little lady, on your walking - it must be a wonderful feeling for you and your family... the running will come, just takes time... keep up the good work little one....
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Thursday, January 11, 2007 12:45 AM CST

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Way to go with the walking, Kylie! My 3 yr old is just now walking all over at home although he won't walk anywhere else - it's a sensory issue related to his autism I'm sure. But my point is that it's exciting no matter what age it happens at; I think you just appreciate and celebrate it more when it comes at a later age and you realize how hard they work to do it. But Kylie is getting so big! She is really turning into a mature young lady and learning so much. How exciting! I am rejoicing with you in all her progress. And I will continue to prayer for control over the seizures and that the talking, signing and walking continue to improve every day. I have a group of kids I follow here on Caring Bridge and every day as I check up on them all, I say a prayer for each one. Glad to know I can thank God for progress for Kylie lately!

Kim - www.caringbridge.org/ne/ryanm <mcclintick6@hotmail.com>
Lincoln, NE - Wednesday, January 10, 2007 9:50 AM CST

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I'm glad to hear everyone's feeling better. I pray that Kylie would continue to be seizure free and that she would continue blossoming! What beautiful girls you have!
Chris Engman <christinee@hosannalc.org>
- Wednesday, January 10, 2007 9:21 AM CST

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Just checking in to see how you're doing. Hope and pray you are feeling much better very soon!

~Jen

jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Tuesday, January 9, 2007 6:32 PM CST

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Just sending hugs and prayers your way!! Hope everyone is hanging in there and getting better! Always thinking of you guys and hope this year brings wonderful surprises and many smiles.
Angela <angela.selb-sack@spps.org>
Vadnais Heights, MN USA - Tuesday, January 9, 2007 10:51 AM CST

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Jason loves you Kylie!

As I got onto your website today i said Jason heres Kylie and he ran into the room and he said Oh cute! I want to kiss! and i said you want to kiss her? and he said yeah! and i lifted him up and he kissed Kylie on the face and then i kept scrolling down to other pictures and he said I want to kiss again!

Someone has a little crush on miss Kylie!

Hope you are doing well. We are praying that the seizure monster is staying away.
Erin Mathison (www.caringbridge.org/mn/jasonk) <erqterin@!aol.com>
St.Michael, mn us - Tuesday, January 9, 2007 9:48 AM CST

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Hoping like crazy that old seizure monster stays away!! We're glad your feeling better and hope for many good days to come! Thinking about you all! Lisa and Katelyn
Lisa Linquist and Katelyn
- Sunday, January 7, 2007 9:31 PM CST

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Hi Kylie,
I can't help but smile when I see your pictures. Your smile lights up a room. You are the sweetest, happiest little child. I am so happy you are feeling better. Even though you seem a bit tired, you are still sweet and happy. God put you here for a reason, sweatheart. You are teaching so many to see the joy in life!!! We love you so much! Grandpa has a lot of fun playing with you girls yesterday. He can't believe how much you can eat for a little kid. Can' wait to see you today.
Love,
Grandma Karen
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Sunday, January 7, 2007 10:11 AM CST

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Kylie you are such a cutie! i had so much fun playing dress up with you tonight! you looked so cute! but ill see you bright and early tomorrow. love you lots!
Love auntie kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Sunday, January 7, 2007 1:12 AM CST

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Oh...wow, I haven't checked on you in a few days...things can change in a blink of an eye!! I am SO sorry to hear it has been such a rough week for you and that you have been in the hospital!!! Glad Kylie is back home and praying she is feeling much better. Hoping the new seizure meds helps return you guys to that blissful "seizure free" zone again!!
Many, many prayers for a better week coming up.
Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw>
Cottage Grove, - Saturday, January 6, 2007 3:50 PM CST

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{{{{{{{{{HUGS}}}}}}}}}}}

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Saturday, January 6, 2007 3:20 PM CST

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Hey there Miss Misery :)
Here's hoping that the weekend improves....I brought you some cookies yesterday but learned you signed out....go figure. You know, chocolate heals all wounds (at least as far as mommies are concerned) :) Prayers as always for you guys, Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Saturday, January 6, 2007 11:11 AM CST

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No No No! This was not the way the new year was supposed to start! Maybe you all should move to your own private island with no germs. Then Kylie could have water therapy too. Hang in there, although it's hard to go back to ground zero, isn't it? I'm sending good thoughts your way, and Claire prays every night for everyone in the hospital or who is sick to get better, so you're covered no matter where you are. Hopefully sleep is headed your way...
Katie Westman <kfiebes@hotmail.com>
- Saturday, January 6, 2007 10:26 AM CST

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Hey Gibbons family- so sorry to hear what a rough week you have been having! I hope you are all able to get some much needed rest this weekend and start the new week feeling much better! As always, keeping you all in my prayers.
Hillary Richardson (Canaan's mom) <hillarygeiger@gmail.com>
West Des Moines, IA - Saturday, January 6, 2007 9:17 AM CST

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I am sorry to hear that the girls are not feeling well. I am hoping you were able to get a good nap in after that tylenol and that everyone feels better quick.
Flannery Donovan <dono0097@umn.edu>
St. Paul Park, MN USA - Friday, January 5, 2007 11:06 PM CST

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Hi Neil & Maria,
This is not a good way to start the year, hope all gets better and stays better. Extra special prayers for Kylie's Hope are on the way!
The Gibbons Clan <kelly@allbritesign.com>
Circle Pines, MN - Friday, January 5, 2007 9:25 AM CST

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Glad to hear you are at home..what a scare!! Many prayers for you and your family!
Megs Roth <willanmeg@aol.com>
Cottage Grove, MN - Friday, January 5, 2007 8:50 AM CST

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So glad you're better Kylie! Jesus answered our prayers! Hugs & kisses coming from a grama in Cottage Grove to you!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Friday, January 5, 2007 7:00 AM CST

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I pray that Kylie is feeling better. I visit Drew and McKenna's website often and that is how I know about Kylie. My son is 3 1/2 and he has epilepsy. We live in Cloquet which is by Duluth. We have been on 7940 a few times and we also see Dr. Doescher and Dr. Ritter. It is so hard when they are in the hospital and I will keep your little one in our prayers. I hope she will be home soon. Erin Antus. www.caringbridge.com/visit/evanantus
Erin Antus <antusc@aol.com>
Cloquet, MN USA - Friday, January 5, 2007 6:13 AM CST

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So glad that you are home and that Kylie is feeling better. Hopefully that seizure monster stays away. Always thinking of you guys and keeping you in my prayers. By the way, I love the new pictures. They are just the sweetest, most beautiful little girls.
Steph Becker <stephiebecker81@hotmail.com>
White Bear Lake, MN - Friday, January 5, 2007 0:31 AM CST

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So glad to hear the Kylie is feeling better. We will keep praying and thinking good things for her. Take Care, you are both such great parents and she has such a loving family. Also an terrific Grandma!!
Maureen Provow <mprovow@yahoo.com>
Woodbury, Mn - Thursday, January 4, 2007 10:24 PM CST

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Hey there Kylie! Glad to hear that you are doing better today. I've been so worried about you! I'm sure your angel friends, McKenna and Drew are watching over you. I'll keep on praying for you to get better and for the docs to figure out the best plan and care for you.

Love and Hugs,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Thursday, January 4, 2007 9:05 PM CST

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Kylie, You always crack me up! So glad you were able to find that shoe! I was so sad to read that you had to be admitted. Hoping things get back on track. Continuing to keep you in my thoughts and prayers. Love the pictures. It looks like you had a wonderful Christmas and a good New Year's celebration. Feel better soon, Kylie.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Thursday, January 4, 2007 4:40 PM CST

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Sweet Kylie , we hope you feel better soon ! I swear if it's not one thing it's another , this disease sucks big time . Have I mentioned lately that I HATE Tuberous Sclerosis ? I hate what it does to Kylie , I hate what it does to my boys . You are always in our thoughts and prayers . (((HUGS)))

Eli & Fletcher
Michele
W-S, NC - Thursday, January 4, 2007 2:56 PM CST

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Hi Kylie
I check on you and your sister almost daily but I haven't signed in a long time. I had just checked in on you then went to the Olson's as I so often do and found out you are in the hospital. Keep smilin that great smile. Love you and only met you and your Grandma Karen briefly at McKenna's party!
Shawn Schlueter <schluetersm@hotmail.com>
Janesville, - Thursday, January 4, 2007 1:20 PM CST

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Hang in there sweetie! I know you are going to be just fine. McKenna will make sure you stay strong and keep on fighting! We will pray very hard that you start feeling better soon!
Melissa Shockey <madimel04@msn.com>
- Thursday, January 4, 2007 11:47 AM CST

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Hello Gibbon's Family! I was brought to your site from Drew and McKenna's site and wanted to let you know that someone that doesn't even know you is praying for your family and especially Kylie. What adorable girls you have!!! God Bless you all!
Erika FitzPatrick
Rosemount, MN - Thursday, January 4, 2007 11:01 AM CST

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I have followed Kylie's story from knowing the Olson's and have never signed the guestbook, but check it almost daily.I think about her often and love to look at her pictures, that smile of hers can make anyone smile. I hope she gets to feeling better very soon!! Your family is in my thoughts and prayers!!

Angie Frakes <afrakes@charter.net>
Rosemount, MN - Thursday, January 4, 2007 10:39 AM CST

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Get well soon Kylie! sending you lots of kisses

Jason Kukowski

www.caringbridge.org/mn/jasonk
Erin Mathison <erqterin@aol.com>
St.Michael, mn us - Thursday, January 4, 2007 10:25 AM CST

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Get well soon Kylie!
I'm praying for you guys!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Thursday, January 4, 2007 9:19 AM CST

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Sorry to hear you are in the hospital sweetie,hope you are feeling better soon. I have never signed before but I check in on Kylie everyday. My kids also love to check out the adorable pictures of Kylie and Ava. We will be keeping you all in our prayers and hoping for a speedy recovery.
Kristie, Perry, Courtney, Ryan and Tyler Bredeson
Kristie Bredeson <kbredeson@mn.rr.com>
Bloomington, MN USA - Thursday, January 4, 2007 8:52 AM CST

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So sorry to hear Kylie is not feeling well. We will pray for a speedy recovery and hope it was just the flu. On another note, your little girl made the paper! It's a really cute picture of her - here's the link if you want to check it out: http://www.swcbulletin.com/

Hang in there Kylie, you're an inspiration to many.
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Thursday, January 4, 2007 8:24 AM CST

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Dear Sweet Amazing Kylie~my angels are with you, every second of every day. They are kissing you, loving you, holding you. Maria, they are with you too, when you feel weak, look to the sky and know that they walk with you every step of the way. We love you all. You will never be alone.
The Olson's
P.S. Cam sends Kylie lots of kisses.
Shannon Olson <shannonolson914@yahoo.com>
Lakeville, MN USA - Thursday, January 4, 2007 7:27 AM CST

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I'm so sorry Kylie isn't feeling well. You are not alone, Prayer Warriors are lifting up Kylie in prayer. We're in your corner, Caron
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Thursday, January 4, 2007 6:53 AM CST

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Kylie,
Sorry to hear that you are feeling crummy and in the hospital - prayers and good vibes are being sent your way!
P.S. Say hi to your mom for me.
Angi Ault <ted.ault@comcast.net>
- Wednesday, January 3, 2007 11:48 PM CST

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Hey Kylie-
I'm sorry to hear that you are not feeling good. I had fun playing and having lunch with you. See you soon. P.S. Happy New Year
Noah





















Noah Schueller <nicole.schueller@spps.org>
St. Paul, MN USA - Wednesday, January 3, 2007 6:46 PM CST

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Hey Miss Kylie, it was exciting to see your picture in the Cottage Grove newspaper, and a nice story too. Hope this New Year brings lots of good days for you and your family!Still keeping you in prayers for healing and miracles.Jane and Bill
Jane Dahlin <grammijane@usfamily.net>
Hudson, WI USA - Wednesday, January 3, 2007 6:14 PM CST

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Again, (we)I keep checking the Kylie website, and OH WHAT JOY it does bring!!! Wishing the FANTASTIC Gibbons' family a BLESSED, BLESSED 2007 - It is just SO NEAT to check this site, and to see ALL THE SMILEY pictures!!! GOOD GOOD luck, HAPPY NEW YEAR!!! AND will keep checking in!!!
Nord & Rog
- Tuesday, January 2, 2007 11:09 PM CST

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Happy New Year Kylie Jo! Wishing you a year of wonderful things for a very special girl. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Tuesday, January 2, 2007 12:12 AM CST

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Kylie, So happy to read about your progress. You never cease to amaze me. I am praying for a blessed New Year for you and your family. Praying that seizure monster will leave you alone. Praying sweet girl!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Monday, January 1, 2007 11:27 PM CST

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Happy New Year Kylie,
Keep up the good work you are doing with your walking, smiling, learning new things. Lets hope the New Year brings nothing but good things for your family. We love you and your little sister so much. What joyfull little people your are.
Love,
Grandma Karen
Karen Ueland <klpu@aol.com>
St. Paul, MN - Monday, January 1, 2007 2:44 AM CST

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HAPPY NEW YEAR, KYLIE & FAMILY!
Wishing you the best of blessings in the coming year!
Continuing to pray for you, because of your angel friends, McKenna & Drew.

Love & HUGS,
Jen

Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Monday, January 1, 2007 0:55 AM CST

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Wishing you all a blessed and happy 2007! Kylie, you go girl! We can't wait to hear about all the progress Kylie makes in the new year- and about little Miss Ava too! Be well- God bless!!!
Hillary Richardson (Canaan's mom) and family <hillarygeiger@gmail.com>
West Des Moines, IA - Sunday, December 31, 2006 10:34 AM CST

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Gibbons Family - We wish you a very happy 2007, we will continue to pray the seizures stay away and Kylie progresses in everything. It's amazing how Kylie's story has touched so many peoples lives, she is a wonderful little girl with the gift of bringing smiles to everyone around her. I make sure my girls hear and know everyday how much they are loved. You have been blessed with two wonderful girls, hold them tight, love them and enjoy 2007! Lisa, Tori & Makenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Saturday, December 30, 2006 10:04 PM CST

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Good Job Kylie! I don't know any two year-old that has started the alphabet!
Your doing awesome!
Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Saturday, December 30, 2006 6:45 PM CST

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Karen, I visited your site after seeing you post on Andrew Kinards...Im a nurse. I work with mentally and physically challanged folks.....some who have severe seizures...There is a new proceedure that can be done called a vagus nerve stimulator. Several of our most severe folks have had it done..the vagus nerve stimulator is a small device implanted under the skin near your collarbone. A wire (lead) under the skin connects the device to the vagus nerve in your neck. The doctor programs the device to produce weak electrical signals that travel along the vagus nerve to your brain at regular intervals. These signals help prevent the electrical bursts in the brain that cause seizures.
Once implanted, the battery-powered device can be programmed from outside by your doctor. a handheld magnet to turn the device on if you feel a seizure about to start.
It takes approximately 2 hours to surgically implant the VNS device in the chest....the device has not yet been approved for use in children, initial studies show that it may be as effective in children as in adults. VNS also improved independence, mood, and learning in some children....early studies suggest that it may significantly benefit children with difficult-to-treat forms of epilepsy.....In a few our patients we have been able to decrease dosage of their seizure medications

I realize Kylie is VERY young....This may or may not be something worth while to discuss with her Dr....

I will keep her in my prayers.
God bless you all




Melissa Norris <Freebirdsnsc@gmail.com>
Whitmire, SC USA - Saturday, December 30, 2006 3:44 PM CST

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Hi Gibbons family! Wow! It sounds like Kylie is doing great! Except for those nasty seizures...Hopefully they would stick around for long. I'm glad you had a wonderful Christmas and I wish your family a HEALTHY, happy New Year! See you soon.
Andrea Gerlach <nickndre@yahoo.com>
Woodbury, MN - Thursday, December 28, 2006 9:43 PM CST

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We received our "Kylie's Hope" bumper sticker in the mail today! YEAH! And thank you for including the ADORABLE picture of your sweet girls! That just made my day! I will be displaying the bumper sticker with pride! Wishing you all a very happy new year! Take care!
Michelle Lunders
Blaine, MN USA - Wednesday, December 27, 2006 11:11 PM CST

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Kylie and her mom:
Of course I will hold every one tight that is near and dear to me. I don't have kids of my own, but I do think of lots of them. I used to work in daycare, so I know how precious these sweet things are to us.
I wanted to sign and say that I will be thinking of and praying for you, now that I know who you are and what you are going through.
I have mild Cerebral Palsy. I don't have too much trouble with it, except that I have some balance issues and sometimes I feel pain around my hips. I once got diagnosed as having a seizure pattern in my EEG brain waves. Doctors were sure I would seizure when I was a child. I didn't but then they said I would when I got to be in my early twenties. That didn't happen either, but then I got these dizzy spells at 19 and they thought that was the precursor to them. I just want you to know that I know how scary the word "seizure" would seem sometimes. Happy to report that my EEG scans are normal, but I think I can imagine how scary that must be for you sometimes.
I hope you had a good Christmas and I wish you a bright promising New Year that will get the seizures out of there!
Cindy Schlicht
Burnsville, MN USA - Wednesday, December 27, 2006 9:07 PM CST

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Merry Christmas ( a little belated) and Happy New Year from our family to yours! We pray for Miss Kylie that she continues her success and that the nasty seizure monster stays away! Know love and kisses are coming your way! Miss you! Talk to you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Wednesday, December 27, 2006 12:36 AM CST

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MERRY CHRISTMAS GIBBONS FAMILY!!!!

wishing you a 'peaceful' and HAPPY new year!!

XOXO
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, December 26, 2006 5:55 PM CST

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Merry Christmas! I've been praying for Kylie for months now, I'm so happy she's walking & signing!! I had my own Christmas miracle. My son (he's 27) hasn't come to Christmas Eve service or Christmas for years. He beat his addiction!! He stood next to me in church Sunday night-it was the best Christmas gift ever! We are so blessed-I will continue to pray your family in the new year. Blessings, Caron
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Tuesday, December 26, 2006 10:02 AM CST

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Merry Christmas to the entire Gibbons family!
Lots of love,
Abigail and Caroline and family
Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Monday, December 25, 2006 10:51 AM CST

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Merry Christmas to all of you! I am so happy with the progress Kylie is making. By next Christmas she will be running and talking up a storm. We love you all very much.
Mom
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Monday, December 25, 2006 8:22 AM CST

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Merry Christmas Kylie Jo!!!!!!!!
Love you so so so much!!
♥ Auntie Kari
Kari Ueland <Karikake@aol.com>
St,Paul, MN - Monday, December 25, 2006 1:46 AM CST

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Merry Christmas Gibbons Family!!! We hope that you and your two beauties have a wonderful Christmas weekend! Maria-I am so grateful for our friendship! I get choked up thinking about how comforting it is to talk to someone going through all the "stuff" that we have to deal with. Let's definitely plan a night for dinner very soon! We would love to have you over! We love you guys!
Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN - Sunday, December 24, 2006 8:13 PM CST

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Merry Christmas Gibbons family,
Wishing your family a Very Merry Christmas and Happy New Year. Looking forward to a HAPPY and HEALTHY 2007. Congratulations on the walking, Kylie.
Prayers for your family over seas to keep safe and a quick return.
LaVonne Sicard <j_lsic@yahoo.com>
Woodbury, MN USA - Sunday, December 24, 2006 12:42 AM CST

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Wishing your family a very Merry Christmas and
a New Year that's filled with our Lord's many
blessings..
Trish/Angel_Wings <Kngboyer@aol.com>
Kingston, TN USA - Sunday, December 24, 2006 12:38 AM CST

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Wishing your family peace and love on Christmas. We will pray that Kylie's seizures go away. What a sweet and blessed girl. It's so neat that she's signing and walking! A miracle!



With love,
Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Sunday, December 24, 2006 9:59 AM CST

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Merry Christmas Kylie and Ava,
Such sweet, happy girls you are. Hoping and praying for you today and always. Take care.
Amy, John, Autumn, Mara, Ian
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Sunday, December 24, 2006 9:35 AM CST

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Angel Katelyn’s Mum, Debbie <miraclegirl101@hotmail.com>
Wheatley, Ontario, - Saturday, December 23, 2006 10:31 PM CST

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Hope you guys have a great Christmas and wishing you a happy and healthy New Year.

Erin, Steve and Jason
www.caringbridge.org/mn/jasonk
Erin Mathison <erqterin@aol.com>
St.Michael, mn us - Friday, December 22, 2006 9:14 PM CST

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We wanted to wish you and your family a very Merry Christmas, and hopes for a wonderful, happy, healthy New year too. Have a safe and blessed holiday weekend!

Love~ The Roy Family
Jason, Claire, Amber, Kylie and angel Laken
www.caringbridge.com/visit/lakenroy

Claire Roy <caffemocha29@aol.com>
Kernersville, NC US - Friday, December 22, 2006 5:59 PM CST

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Merry Christmas to the Gibbons family!! I am so relieved to hear that Kylie has not had any more seizure episodes and pray that things will remain quiet again. Hoping the tubes can bring little Ava some relief...she'll probably start talking up a storm once they are in!! I checked the Cottage Grove paper for Kylie's article...nothing yet. Can't wait to read it. I'll mail you a copy once it prints.

Looking forward to seeing you soon, for some sledding at Zoey's house! Wishing you a New Year filled with health, happiness and hope!
Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, - Friday, December 22, 2006 7:54 AM CST

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From our family to yours , we wish you a Merry Christmas and the best dang 2007 there ever was ! Praying for you always .

Eli & Fletcher
Michele
W-S, NC - Friday, December 22, 2006 7:24 AM CST

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I am really hoping that the girls get some rest from difficulty for awhile, and that you all have a peaceful Christmas. I check in every day!
Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Tuesday, December 19, 2006 11:00 AM CST

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Hi Gibbons Family,
Look forward to seeing you all tuesday night.Thanks so much for the beautiful xmas card of the girls. They are always in my thoughts. Hopefully they both will be feeling better.
If you want me to bring anything just give a call...

love you all!!!
jessie gibbons <jessieg@mayflowerdistributing.com>
ST PAUL, mn - Monday, December 18, 2006 3:35 PM CST

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Hi Maria,
Thanks so much for the living room makeover. I love it! I guess that old wallpaper was a bit dated. I had so much fun with the girls yesterday. Ava was a trooper even though she wasn't feeling that great. Kylie really likes to go to Kari's basketball games to visit the crowd. She has to be the friendliest little person I know. What a sweetheart. She just loves to meet new people and melt their heart with her charm. I hope she gets back to trying to walk more. She just doesn't seem to be as interested lately. Not sure if weakness in her legs, or what. I guess time will tell. It really doesn't seem to bother her any. She gets where she needs to go just fine. I tried to get her to walk at the mall holding her fingers. It was a slow process with stopping every few steps to visit someone new.
Mom
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Sunday, December 17, 2006 11:40 PM CST

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Hi there! I have been following Kylie for a while now, but do not sign the guest book too often. I just wanted to let you know I was driving around today by the National Sports Center in Blaine and in front of me was a truck with "Kylie's Hope" on the bumper. My daughter asked if that was "our" Kylie (meaning YOUR Kylie!) and I told her I thought it was. I couldn't wait to get home and check the website to make sure. It was a small thing, but we thought it was pretty exciting that we "knew" who Kylie was, even though we've never actually met you! Your little girl is being prayed for a little extra today! Good luck with the continuing med wean. Your sweetheart is always in our hearts!
Michelle Lunders
Blaine, MN USA - Sunday, December 17, 2006 4:19 PM CST

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Praying for sweet Kylie and your beautiful family! May the Christmas spirit touch your lives this year, more than ever!
Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Saturday, December 16, 2006 1:21 PM CST

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Kylie, Praying those "questionable episodes" do not continue. Keeping you very close in my prayers Kylie. Praying for Ava and for the fevers to go away.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Saturday, December 16, 2006 12:19 AM CST

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A new sign should hang on the front door of the Gibbons home "NO SEIZURE MONSTERS ALLOWED"

Wishing you happy and HEALTHY days for the remainder of 2006 and a wonderful start to 2007!!

GOD BLESS!!!!!

Ann Paradis <aparadis@travelers.com>
- Saturday, December 16, 2006 8:32 AM CST

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I have been meaning to thank you for the birthday wish. Thank you very very much. I hate to hear of the little ones being sick. Hope everyone feels better soon and that you all have an enjoyable weekend. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Friday, December 15, 2006 12:33 AM CST

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I hope poor Miss Ava is feeling better tomorrow. I felt so bad for her tonight burning up in your arms. As far as Miss Kylie is going, I have been thinking the same thing, that I am seeing things too lately. Not as dramatic as before but just the feeling that something isn't quite right. She also seems to be weaker in her muscle tone these past few days. She just doesn't seem as interested in trying to walk. Laura noticed it too. She was her usuall sweet self tonight at the basketball game, making friends with the fans in the stands. Hope tomorrow is better. I sure love those girls!! Grandma Sue thinks they are pretty special too. It is so great to have such a great neighbor, who loves those kids like we do!
Mom
Karen Ueland <klpu@aol.com>
- Friday, December 15, 2006 0:42 AM CST

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Wishing you guys a happy and healthy 2007 and praying that the seizure monster stays away
much love your way

Steve, Erin and Jason
Erin Mathison <erqterin@aol.com>
st.michael, mn us - Monday, December 11, 2006 8:46 PM CST

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Gibbons Family:
I'm glad to hear that Kylie has been doing well and that you actually get to spend your time at home for Christmas this year. I'm still praying for the seizure monster to stay away. Stay strong through everything. Happy Holidays. Hope all is well. Oh by the way, I love the x-mas card. the girls look beautiful. they're angels. miss you all.
hugs and kisses!
love always ♥,kiley jo
Kiley Jo Gibbons <sevengibbs@msn.com>
Circle Pines, MN United States - Monday, December 11, 2006 6:22 PM CST

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Miss Kylie,
Keeping you in my prayers during the holidays! I hope you are doing all the fun things that go along with the Christmas season: visiting Santa, getting lots of presents, making Christmas cookies, etc.

Gibbons Family, keeping you close in my prayers. Praying the seizure monster continues to stay away and bless your family with a joyful holiday.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, December 8, 2006 10:25 PM CST

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Hello all,
I want to wiah you ALL a very Merry Chirstmas and Happy new year. May Kylie continue to be healthy and happy in 2007.

Scott Ksiazek <sdksiazek@gmail.com>
- Thursday, December 7, 2006 8:03 PM CST

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Hey cutie pie, You keep that seizure monster far, far away!!! I pull up your website at my school and all my students love to check out your darling smile and your "bling"! Katelyn just did a report on TS for her child development class at school. You definately touch more people than you will probably ever realize! Take care of your mommy, daddy, and adorable baby sister, too. Hugs~Lisa and Katelyn
Lisa Linquist
- Wednesday, December 6, 2006 9:14 PM CST

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We'll keep praying for you Kylie - you're a sweet kid. Makenna can't wait to play with you again. Sending hugs your way from Kenna.
Lisa, Charlie, Makenna & Tori <lstudiner@msn.com>
Cottage Grove, MN USA - Wednesday, December 6, 2006 3:37 PM CST

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Hang in there Kylie!
Philippians 4:13
"I can do all things through Him who gives me strength."

Julie <Swimjulie9@aol.com>
- Monday, December 4, 2006 11:16 PM CST

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Your girls are so beautiful. I will continue to pray for healthy and happy days for your family. I truly hope the seizures stay far, far away. Enjoy your Christmas with those bundles of joy. Amy

Amy Wilkie <anwilkie@charter.net>
Lakeville, Mn - Monday, December 4, 2006 1:16 PM CST

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How adorable is the new picture of the girls waiting for Santa!! My husband & I were @ the Michaal W. Smith concert Saturday night, some of the songs made me think of the kids who need our prayers. You & your family were on our hearts Saturday night, as were Drew & McKenna. Thinking of you this holiday season.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Monday, December 4, 2006 7:03 AM CST

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It was so much fun to see you all at the Christmas party on Friday night. I haven't seen Kylie since the party 2 years ago except for on this page. She is an awesome little girl, so friendly and full of smiles for all. Thank you for bringing her to see us.
Jannie <jlgm00@AOL.COM>
Mahoney, MN - Sunday, December 3, 2006 6:48 PM CST

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Such good news coming off the wean ! Wow , who could've predicted she'd be talking up a storm AND taking steps on her own AND still seizure free !! I believe in miracles , Kylie is one of them .

Eli & Fletcher
Michele
W-S, NC - Sunday, December 3, 2006 3:52 PM CST

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We love the new picture! What beautiful girls! :)
Christmas will be lots of fun this year!!
Hillary Richardson <hillarygeiger@gmail.com>
West Des Moines, IA - Sunday, December 3, 2006 8:38 AM CST

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LOVE the new pictures!!!

God Bless You Gibbons Family!!

Wishing you a healthy and very special holdiay season!!

XOXO
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Saturday, December 2, 2006 11:23 AM CST

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Sending you lots of hugs!
Sarah & Lily <SMKLCR@hotmail.com>
Fort Collins, CO USA - Wednesday, November 29, 2006 6:19 PM CST

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Hi
My name is Kelli and I have been following Kylie's "story" for the last year. She is such a sweet little girl and a true fighter. I am writing now because I have some significant medical problems and need to go to Mayo this winter, but my insurance doesn't cover it. I know you have had some successful fundraisers/benfits for Kylie and I was wondering if you could help me figure out how to set one up. My e-mail is froggirl55110@yahoo.com

Thanks for any help you can offer,
Kelli
Kelli Kaetterhenry <froggirl55110@yahoo.com>
Vadnais Heights, MN - Tuesday, November 28, 2006 1:32 PM CST

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Just stopping by to say hello. Sounds like you had a WONDERFUL Thanksgiving and an even better Black Friday!! WOOT WOOT!!!!!!!!!!!! GO MARIA!!!!!!!!!!! Shop til ya drop!! that's my motto!!

Wishing the girls lots of smiles this coming holiday season!!
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, November 28, 2006 5:43 AM CST

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Sounds like you had a great Thanksgiving. Here's hoping the med wean continues to go well. Thanks for your help lately Maria....your insight is helpful! You are a great Mommy and sounds like you are all hanging in there. Talk to you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Monday, November 27, 2006 10:51 AM CST

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Thanksgiving Day is DEFINITELY a Day to GIVE Thanks!!! And each time I look at the NEAT NEAT beautiful photos of Beautiful Kylie and Beautiful Ava, I gotta give thanks!!! AND each time I read the journal, with the positive messages, I gotta give thanks!!! SO: Thank you for giving us EXTRA reasons to give Thanks!!! And we will 'keep checking' - we will indeed keep the Dear Gibbons' family in our thoughts & prayers!!!
Nord & Rog <rnschran@pressenter.com>
- Thursday, November 23, 2006 8:37 PM CST

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Happy Thanksgiving Kylie and Family! We love you so much. We are thinking of you today and I am very thankful we get to be a part of your life. You are a very special little person. Have a wonderful day everyone!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Thursday, November 23, 2006 12:08 AM CST

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HAPPY THANKSGIVING KYLIE JO!!!!!!
Love you so much!
Auntie Kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Thursday, November 23, 2006 11:46 AM CST

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Happy Thanksgiving to the Gibbons family! We are so thankful to have your love, support, and friendship in our lives. I am continually amazed at how much progress Kylie is making. I can't wait to see her walking in person! You are an amazing girl, Ky!
Lots of love,
Abigail abd Caroline and family

Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Thursday, November 23, 2006 9:21 AM CST

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Angel Katelyn’s Mum, Debbie <miraclegirl101@hotmail.com>
Wheatley, Ontario, - Wednesday, November 22, 2006 10:01 PM CST

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We are so thankful for you!! Kylie, we are so proud of you and of all that you have accomplished. Maria, I'm so thankful for you, thank you for making me laugh, helping me through the bad times but most of all for loving my babies. I know that you will never forget them and that means the world to me. We love you guys!!
shannon <shannonolson914@yahoo.com>
lakeville, mn usa - Wednesday, November 22, 2006 9:18 PM CST

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Maria and Neil: As we get ready to celebrate Thanksgiving with all of you tomorrow, we will remember to be thankful for all of the miracles that have occured this year. I think you can truely say, that there is Kylie's hope!
Aunt Patti <lismorecor@aol.com>
Cottage Grove, MN - Wednesday, November 22, 2006 8:56 PM CST

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It's great to hear your story. We also had a son with a seizure disorder about 10 years ago. Dr. Frost was our doctor as well. You are at a great place. Our son ended up having surgery and has been seizure free since. We will continue to keep you in our prayers and hope all turns out well. Have a great Thanksgiving.

Cheryl
Milroy, MN - Wednesday, November 22, 2006 4:33 PM CST

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GIBBONS FAMILY

So glad to hear Kylie's doing well, Also glad she loves her elmo vaccum!!!!Ava is getting soooo big, sorry I missed their costumes for halloween, they look adorable.!!!! Hope your Thanksgiving is great, we are all going to neil's mom's for the first time!!!!! Stop over !!!!!!!! Please plan alittle time with us on xmas eve, making dinner etc...... miss you guys and want to hear about the hunting Neil's been doing....love you guys
jessie
jessie gibbons <jessieg@mayflowerdistributing.com>
ST PAUL, MN USA - Wednesday, November 22, 2006 10:01 AM CST

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It was so awesome to see you guys the other day...even if it was a short visit. Kylie looks great and as usual, she is such a cute little girl...such a GREAT smile. I am so glad your seizure monster has been banished....I pray it stays that way. You have such a special family Maria and you should be so proud. You are such an awesome mom. We pray you have a great Thanksgiving and we KNOW you are thankful...we are glad it is so. Much love, Nikki and the Sickmann boys
Nikki Sickmann <hownnik@hotmail.com>
farmington, mn - Wednesday, November 22, 2006 9:37 AM CST

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What great news! Kylie truly is a miracle. Our family has so much to be thankful for this year. What a turn around from last year at this time. I am so happy for you and all the love and devotion you have given to Kylie. I can only hope to be as good a mother for my baby as you have been for your girls. I am so happy for you!
Lisa Kleven <tchngkidz@aol.com>
Red Wing, MN USA - Wednesday, November 22, 2006 7:33 AM CST

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The tears are flowing, but they are happy tears!! Way to go Kylie!! It gives tomorrow a special meaning doesn't it? What an answer to prayer!! Caron, one of Kylies prayer warriors.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Wednesday, November 22, 2006 6:42 AM CST

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So glad to hear that Kylie's appt. went so well, and that so many prayers have been answered. I hope that you and your family have a wonderful Thanksgiving. As always, keeping you in my prayers!
Steph B <stephiebecker81@hotmail.com>
White Bear Lake, MN - Tuesday, November 21, 2006 10:54 PM CST

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Glad to hear Kylie continues to do well and amaze everyone - she is an inspiration. We will continue to pray for Kylie and your family. I'll let you know when we deliver the blankets and toys to Children's - we have shared Kylie's story with our confirmation class and they too will add her to their prayer list. Lisa
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Tuesday, November 21, 2006 3:23 PM CST

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Im glad things are going well for you guys!
Have a good thanksgiving!

Erin Mathison
Erin (www.caringbridge.org/mn/jasonk) <erqterin@aol.com>
St.Michael, mn us - Tuesday, November 21, 2006 2:20 PM CST

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Maria,
You entry brought tears to my eyes. Kylie truely is a miracle. That day I was at the car wash last spring, she made friends with an African American man who was waiting for his car. As we chatted and I told him her story he looked at me and said, "I can see it in her eyes, she has been healed by Jesus". Turns out he is a pastor, and he predicted her miracle. Let's pray for this miracle to continue and for Kylie to grow and learn and be all she can.
Mom
Karen Ueland <klpu@aol.com>
- Tuesday, November 21, 2006 1:12 PM CST

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Hi Kylie and family-
How did your visit with Dr. Frost go? I bet he was really surprised to see how much you have progressed! Way to go!!

It was exactly a year ago that we met you up on 7940. Time goes so fast!! We are greatful to have gotten to know you guys and are so happy that you are still getting a break from those yucky seizures!! Wishing you all a very happy and healthy Thanksgiving!!
Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Tuesday, November 21, 2006 10:05 AM CST

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hey there sweet kylie
just a note to say hi and see your smilin face.....
take care guys
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Monday, November 20, 2006 9:38 PM CST

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I'm praying for you.
Ann Watts/Angel Wings <bubbasoldlady@cebridge.net>
Jacksonville, AR USA - Monday, November 20, 2006 3:02 PM CST

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I check on you almost every day with the other sweeties I know. I must say the girls are way too cute; their pictures always bring a smile to my face. I often feel like I'm reading about my own life as you watch and wait for Kylie to really start walking and I understand the excitement and anticipation of it. It's a big deal; Ryan is three now and is finally walking 10 feet across the room. Wishing you a wonderful Thanksgiving and hoping you are able to enjoy lots of fun times with those you love as you think about all you have to be thankful for.
Kim - www.caringbridge.org/ne/ryanm
Lincoln, NE - Monday, November 20, 2006 9:12 AM CST

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Hey Gibbons Family,

Last weekend of hunting??? Bet Maria is excited about that:) Sounds like you had an interesting trip to the grocery store. Maria, you are such a good brave mommy.

Can you believe this week is Thanksgiving? Kylie has taught us that there is so much to be thankful for.

Wishing you all a wonderful week.

Love ya!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Sunday, November 19, 2006 7:57 PM CST

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Glad your feeling better Kylie! I'm praying for you guys!
Julie <Swimjulie9@aol.com>
Burnsville, MN - Sunday, November 19, 2006 2:50 PM CST

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Hello Gibbons Family, I haven't checked the site for a while but when I came today I was so happy to read that Kylie has begun to walk! Yeah! Hope the wean continues to go smoothly & all the knocks help! The girls were ADORABLE on Halloween, hope you all had fun!
Molly Manley <mojala21@hotmail.com>
St. Paul, MN - Friday, November 17, 2006 10:52 AM CST

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Maria,

I see you post on the TS listserve but this is the first time I've visited your caringbridge sight. You have beautiful girls and the photo montage to music brought tears to my eyes. TS in itself is so much to deal with but I'm so sorry that Kylie has to endure so much on top of that. Wishing you continued success with the med weans and a healthy winter. Just wanted to let you know how much your site touched me.
LIz Saadoun (mom to Maya 7 1/2 w/TS) and Jacob (4 no TS)
Phila, PA - Thursday, November 16, 2006 1:48 PM CST

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Hi Gibbons!
Just letting you know that I'm praying for you guys. Remember Jeremiah 29:11, it's a pretty special verse!

Julie
MN - Wednesday, November 15, 2006 4:06 PM CST

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Hi kylie,
It was so fun to see you at the gym today. I love the way your face lights up when you see other kids. I only wish you could walk and run and play with them. I know you will someday, but it makes me sad that is so hard for you. I liked the big kiss you planted on my cheek. It really made my day.
Love,
Grandma Karen
Karen Ueland <klpu@aol.com>
- Wednesday, November 15, 2006 1:36 PM CST

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Count on me to help with anything for Kylie. We should invent a 1 point brownie...that way we can eat tons! :)
Nikki
- Wednesday, November 15, 2006 7:52 AM CST

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Maria
I admire your willingness to do more in addition to the walk and the golf tournament. I'm so thankful for people like you. My friend here in Des Moines had to practically pull my teeth to get me to help with our walk. So I say "hats off to you" for your dedication!!
Cindy Blackard <cblackard@yahoo.com>
waukee, Ia - Tuesday, November 14, 2006 11:16 PM CST

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You are an inspiration to me. When McKenna went to be with Drew & Jesus I begged Jesus for answers-I was so sure he would heal her. I don't have any answers yet-but lives are being changed-faith is growing. There are those of us who want to help-we can offer prayer, support & help at the hospital-please let us know how we can help & make life a bit easier for the parents who are going thru so much. A prayer warrior for the little ones & their families, Caron
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Tuesday, November 14, 2006 7:33 AM CST

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I'm praying for your sweet Kylie.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Monday, November 13, 2006 9:40 PM CST

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So glad to hear Kylie is doing well walking. Our confirmation class is making the blankets this week for the kids on 7940 - they are so excited to be doing something in honor of Kylie. We hope to see you and the girls on December 1st. We will continue to keep you all in our prayers.
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Monday, November 13, 2006 6:39 PM CST

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Haven't signed this for awhile, so sorry. I have been very busy with hockey starting but i just wanted to make sure all was well with the family. I miss you all very much and hope to see you soon. The girls are growing up to be so beautiful. You and Kylie's friends will always be in my prayers. Remember that God is there for you and will help you get through this along with your friends and family.
Hugs and Kisses to all and God bless.
Kiley Jo Gibbons <sevengibbs@msn.com>
circle pines, mn united states - Sunday, November 12, 2006 12:37 AM CST

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Hello Miss Kylie~
We are so proud of you for walking and signing more and more... Way to go! Zoey can't wait for it to snow so that you all can come out and go sliding with us. Praying you feel better soon and your cold goes away.
Josie Bemis <josiebemis@yahoo.com >
somerset , WI - Sunday, November 12, 2006 12:05 AM CST

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Just to tell you that indeed I keep checking into this Site - - - and OH how neat the pictures are!!! And OH how neat to read all the Journal entries!!! What a remarkable story, and family!!! Will continue to send our prayers, our wishes for JUST THE BEST for the Gibbons' family!!! Beautiful 'little girls' - and Love to ALL!!! (You are in our thoughts and prayers!!!!) ( we will continue to 'check in' OFTEN!!!)
Nord & Rog <rnschran@pressenter.com>
Stillwater, MN - Saturday, November 11, 2006 7:27 PM CST

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Praying for you Miss Kylie!
Have an awesome night Gibbons!


Julie <Swimjulie9@aol.com>
Burnsville, MN USA - Saturday, November 11, 2006 4:52 PM CST

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Hello Gibbons Family!
So sorry to hear about Miss Kylie's sinus infection and thrush. I hope both clear up soon. Sounds like the girls are really best friends. I love reading about the fun times they have together. Thank you for updating. It's so fun to see new pics. Love the Halloween costumes! Keeping you all in my thoughts and prayers!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, November 10, 2006 4:26 PM CST

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Hey you guys! Once again while checkin up on you Jason is speachless when the pictures show up on the screen.

Have a good day

Erin and Jason
Erin Mathison <erqterin@aol.com>
st.michael, mn us - Wednesday, November 8, 2006 9:00 AM CST

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Hey Guys...GREAT pics. Hope all is well! Love, Nikki :)
Praying for good days to continue!
Nikki Sickmann <hownnik@hotmail.com>
Farmington, mn - Wednesday, November 8, 2006 7:48 AM CST

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hello princesses,
just a note to say hello and let you know we were thinking of you - hope youre feeling better...
take care
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Tuesday, November 7, 2006 11:52 AM CST

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Maria,
I too had fluffy little ones that took their sweet time to get moving.My middle child didn't walk till 16 months old even. However,my youngest (a boy)didn't crawl till he was 9 months old and then started walking at 10 1/2 months old. Not much time to get used to the idea of him getting into everything. They all do it in their own timing. Even Miss Kylie (the cutest little thing) had her own timing. I am so glad she is making such great strides! God bless you all!
Amy
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Tuesday, November 7, 2006 0:10 AM CST

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Hi Kylie!! I love the new pictures. You look so cute in your Halloween costume!! Have you eaten all your candy, yet?! Sorry to hear that you have another sinus infection. Hopefully, it will clear up soon, so you are all better for the holidays. It is hard to believe that nearly a whole year has passed, since we met you and your terrific family, up on 7940 over Thanksgiving. We are so happy that you are still getting a break from your seizures and pray that it lasts forever!! Have a good week-
Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Monday, November 6, 2006 2:46 PM CST

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The girls are adorable-what cute pictures! You are so strong & such a good mom. Hang in there. There are lots of us praying for you!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Monday, November 6, 2006 7:22 AM CST

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please know im thinking of you
Jay Angel _Wings <lovebabysnugles@yahoo.com>
Bluffton, IN - Sunday, November 5, 2006 7:44 PM CST

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Princess,
I hope you are having a wonderful day
honey filled with smiles and laughter..
Trish/Angel_Wings <Kngboyer@aol.com>
Kingston, TN USA - Sunday, November 5, 2006 1:12 PM CST

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If looks could kill...Ava's scowl in the wagon photo is priceless ! The new photo's are just beautiful, as usual . Miss Kylie has an unforgettable smile and charm . Praying for smoother days ahead and a succesful wean .

Eli & Fletcher
Michele
W-S, NC - Sunday, November 5, 2006 12:21 AM CST

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Dear Kylie,

You are an inspiration to me! We are cheering you on "every step of the way!"

Hugs and High Fives!
Love,
Your Pal Kierstin
Kierstin Dublinske <dublinske@sbcglobal.net>
Lee's Summit, MO USA - Saturday, November 4, 2006 1:24 AM CST

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I hope you had fun i the classroom Kylie!
Aubrey <Opiegurl33@aol.com>
- Friday, November 3, 2006 3:30 PM CST

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Hi Maria,
I can't help but smile when I look at the pictures of the girls. We are so lucky to have them in our lives. That Kylie is such a joyful child. She is the friendliest little person I have ever met. I hope her iron infusion isn't too stressful for her. I know she is always such a trooper but at some point you would think she would get scared of doctors and medical people. It is nice she isn't, but I hope that day doesn't come. It will make things harder for everyone involved in her care. It is fun to see her making so much progress in her development these days. She is so determined to learn and walk, she is amazing!!!
Mom
KarenUeland <klpu@aol.com>
St. Paul, Mn - Friday, November 3, 2006 10:05 AM CST

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Love the new pictures. Kylie and Ava are adorable.

Jason said "babies, cute" then gave the computer screen kisses at EVERY picture of the girls.... so i guess you could say that Jason is sending kisses your way!

Have a good weekend

Erin
Erin Mathison(www.caringbridge.org/mn/jasonk) <erqterin@aol.com>
St.Michael, mn us - Friday, November 3, 2006 9:32 AM CST

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Hi Maria, I love the new pictures! Your girls are so pretty. I hope all continues to go well with Kylie. Take Care, Dawn
Dawn Violette <dwviolette@yahoo.com>
Woodbury, MN 55125 - Friday, November 3, 2006 8:00 AM CST

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Hey Gibbons. You "chicks" are so cute. Glad you had a fun, healthy Halloween. It's always great to hear all of the new fun things Kylie and Ava are into. Kylie is really starting to look a lot like her mommy. See you soon.
Rachel
Rachel Groess <rachmn@aol.com>
Woodbury, MN USA - Thursday, November 2, 2006 2:46 PM CST

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Hey Maria...so glad to hear things are going well. We continue to pray that sweet Kylie will tear up your house with her walking (and running) abilities VERY SOON. Hope Halloween was great for you. I'll call after we get in the new house on Friday. Love, Nikki :)
p.s. hugs and kisses to the beautiful girls from the 3 monsters at our house
Nikki Sickmann <hownnik@hotmail.com>
rosemount, mn - Wednesday, November 1, 2006 12:28 AM CST

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What a cute picture!
You two are so blessed to have such cuties!
Julie A <Swimjulie9@aol.com>
Burnsville, MN USA - Wednesday, November 1, 2006 10:52 AM CST

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Maria, you are such a lucky momma to have such sweet pink princesses! Hope you guys stayed warm and had a lot of fun last night.
Josie Bemis <josiebemis@yahoo.com >
Somerset , WI USA - Wednesday, November 1, 2006 10:41 AM CST

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The "duckies" are too cute!!!!!! What fun it must be to dress your girls :)
Dawn <dawn_schultz@msn.com>
- Wednesday, November 1, 2006 8:49 AM CST

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HAPPY HALLOWEEN!

Love,


Pink Lady Lily! <sarah@thelilyfoundation.org>
- Tuesday, October 31, 2006 2:44 PM CST

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Happy Halloween Kylie and Ava!!! I can't wait to see pictures of you two sweeties as duckies. Have fun today!!!

Smiles from the Schultz family!!!
Dawn Schultz <dawn_schultz@msn.com>
- Tuesday, October 31, 2006 10:32 AM CST

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Hope you guys have a fun and safe halloween.. Stay warm its going to be a chilly one!

Erin
Erin Mathison <erqterin@aol.com>
St.Michael, mn us - Tuesday, October 31, 2006 9:28 AM CST

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Continue walking up a storm Kylie!!!! YAY!!!

Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Monday, October 30, 2006 1:06 PM CST

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Maria and family,
I am so glad to hear that your little pumpkin is making such great strides these days. She is so adorable! You are so blessed with these precious girls and I know they have wonderful parents. I will keep praying for her weaning to go well and for her body to stay healthy.
Amy
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Monday, October 30, 2006 4:02 AM CST

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Maria, So so so happy to hear of Miss Kylie's progress! She never ceases to amaze me. Her it sonds like her personality really shines through, even when she is working so hard on walking! Praying so hard for your family, and keeping the Olson's close in prayer as well. I know Kylie is blessed to have 2 sweet and amazing Angels with her every day.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Sunday, October 29, 2006 7:46 PM CST

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Kylie,
We are so glad you are doing so well. Keep up the good work baby.
Love from Oklahoma!
Chris, Amanda, Kyler, Greyden, and Colby Burchfield <manda_k1978@yahoo.com>
Blanco, OK - Sunday, October 29, 2006 7:35 PM CST

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Hi there,

Praying for Kylie to continue to thrive. Also for God to protect her from any seizures. She's so beautiful and you would never know there's a thing wrong with her by her sweet attitude. Both of your girls are beautiful.

Blessings to your family!
Chris Engman <christinee@hosannalc.org>
- Friday, October 27, 2006 8:33 PM CDT

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How wonderful and exciting that Kylie is walking. She is a doll. Thank you for sharing her with me and for visiting Lily's site! God bless you all. My heart is warmed!

Sarah & Lily www.thelilyfoundation.org <SMKLCR@hotmail.com>
Fort Collins, CO USA - Thursday, October 26, 2006 5:31 PM CDT

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Maria -

I know it's been awhile since I last wrote, but I check the website everyday. I have been praying for Kylie all along. My daughter, Stephanie, prays for her at school in their prayer circle time. She adores Kylie. It brings tears to my eyes to know that she is really starting to walk. In my mind, she is a miracle and I will continue praying for more.
Take care,

Lynda Eberhard <lynda@nrslaw.com>
Roseville, mn US - Thursday, October 26, 2006 11:32 AM CDT

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yaaaay kylie!!!!!!!!! im coming over tomorrow to see this! im so excited! good job ky!!
love you and ava so so so much!
love your auntie kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Wednesday, October 25, 2006 9:19 PM CDT

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WOW, We have a walking princess. I can't tell you how thrilled I am to hear the good news!!!!!!!!Hope you can keep cutting the meds and we will have a walking and talking princess........Glad to hear Miss Ava is a kissing kid.....always special to get those precious kisses...
Love Aunty Rose
Rose
- Wednesday, October 25, 2006 8:37 PM CDT

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Well well Miss Kylie Jo!
Congratulations on your walking! It's fun isn't it?
I've been following this caringbridge site for months and feel like I know you personally!
Keep walking! Your doing so good!
Julie A <Swimjulie9@aol.com>
Burnsville, MN USA - Wednesday, October 25, 2006 4:52 PM CDT

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Yay Kylie!! Keep On walking girl and you can get into even more trouble!!

Erin Mathison
Erin <erqterin@aol.com>
St.Michael, mn us - Wednesday, October 25, 2006 9:51 AM CDT

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You go girl ! Whoo - hoo ! Keep up those good walking skills . I loved reading about a day in the life being Ava ...ha-ha . Soon enough she will be able to hold her own against big sister . Still praying for you during the wean .

Eli & Fletcher


Michele
W-S, NC - Tuesday, October 24, 2006 9:35 PM CDT

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An Angel Walks Beside Me
An angel walks beside me, I feel her everyday. She helps me through lifes ups and downs, and whatever comes my way. She guides me down the road of life, and lights the darkest roads. She picks me up and carries me when I can not bear the load. She helps to ease the pain I feel, she mends my spirit, to. She holds my hand and shelters me, and gives me courage and strength too. She speaks to me with words of love and she listens to my pleas. She was sent here from the lord above, to guide and comfort me. I know she's always watching, though her form I cannot see. It's a peace I feel deep in my heart that leads me to believe. An angel walks beside me, I feel blessed everyday that the presence of this angel, will never go away.
~Tonya Moneck

XOXOXO
Your Angel, McKenna
MUFFIN & DREW TOO!! <shannonolson914@yahoo.com>
Heaven, - Tuesday, October 24, 2006 8:54 PM CDT

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WOOO HOOOO Kylie. We are so excited for you. You are going to be the fastest duck in town on Halloween. We love you bunches!! Praying to our angels to take your hands, help you walk, kiss your cheeks and give you strength!!! I know they are whispering in your ear, "Go Kylie, Go!!"
The Olson's
Rand, Shannon, Cam & Our Angels; Drew&Muffin
Shannon Olson <shannonolson914@yahoo.com>
lakeville, mn usa - Tuesday, October 24, 2006 8:29 PM CDT

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Good job Kylie. Pretty soon we can play tag.
I love you.
Cam

Cameron Olson <shannonolson914@yahoo.com>
lakeville, mn usa - Tuesday, October 24, 2006 8:26 PM CDT

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Way to go Kylie- we are so proud of you. And we are so happy for you Maria and Neil. Finally a victory for all of the therapy you help Kylie with everyday. Pray for Jess to do the same soon- We love and miss you all- Amy and the gang
Amy Beecher <ajbeech@yahoo.com>
West Fargo, ND - Tuesday, October 24, 2006 1:02 PM CDT

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Way to go, Kylie!
Angi Ault <ted.ault@comcast.net>
- Tuesday, October 24, 2006 10:29 AM CDT

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Maria-
How exciting that Kylie is taking steps. You'll be chasing her before you know it! See you soon!
Lisa Kleven <tchngkidz@aol.com>
Red Wing, MN USA - Tuesday, October 24, 2006 7:38 AM CDT

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OH MY - I FORGOT TO SAY...............

YAY KYLIE!!!!!!!!!!!!! One step at a time baby!!!!


Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, October 24, 2006 7:32 AM CDT

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HA HA HA HA (sorry - couldnt resist) - just reading your last entry about Kylie and Ava....... reminds me of MY girls at that age....... my girls at 15 months apart!!

I'll make you a deal....... I'll switch mine for yours right now........ oh yea.... MY GIRLS.... are now 17 and 18 YEARS OLD!!!!!!!!!!

ENJOY THESE TIMES WHILE YOU CAN!!!!!

Smooches for each of you.......
XOXOXOXOX
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Tuesday, October 24, 2006 7:31 AM CDT

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Wow Kylie! I can't wait to have you walk or even run into my arms. I know you are trying so hard to walk and seven steps is amazing. Keep up the good work.
Grandma Karen
Karen Ueland <klpu@aol.com>
- Tuesday, October 24, 2006 6:48 AM CDT

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Great job Kylie!!! You can do it!!!
Dawn Schultz <dawn_schultz@msn.com>
Moorhead, - Monday, October 23, 2006 9:53 PM CDT

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hello gibbons family,
just a note to say hello and let you know im thinking of you. take care and hurray on the decrease in meds....
loves, hugs and prayers
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Monday, October 23, 2006 3:22 PM CDT

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Go Kylie Go! We hope and pray for LOTS of seizure free days (like forever) despite the wean!! Know we think of you ALL THE TIME!! Talk to you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Monday, October 23, 2006 11:30 AM CDT

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just wanted to let you know I was thinking about you and wishing you strength to make it through the next few days AND to be seizure free!!!

Im sure the things you will be teaching Kylie - will automatically be learned by Ava - awwwwwwwww - maybe Ava can even HELP her big sister!!! HOW COOL WILL THAT BE!!!!!


Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Sunday, October 22, 2006 12:21 AM CDT

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Hey girls! Katelyn wants to say thanks for thinking about her so much! We enjoyed almost a week without seizures:-) We are SOOO hoping your med wean goes well and that seizure monster stays away! Those meds are a double edged sword! We are thinking about you often!!! Lisa and Katelyn www.caringbridge.com/visit/katelynbragg
Lisa Linquist
Omaha, NE - Sunday, October 22, 2006 11:46 AM CDT

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Hi there Gibbons family!

I had lots of fun with the girls the other night. I would watch them anytime. I don't know how you do it... kids are hard work. They are very much worth it though. Kylie is the sweetest kid. I just love it when she laughs. I was doing all I could to keep those giggles going. She has such a bright spirit in her. Little Ava is a sweetie pie too. You have such a beautiful family. We missed you today but you could probablly used some rest in between your work schedule. Anyhow, talk to you soon. Love you guys!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Saturday, October 21, 2006 3:04 PM CDT

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Kylie:

Praying for you today and always,
Love
Charlene and BECKY
OWC and Angel_Wings

.*.*.*.*.*.*.*.*.*.*.*. <cb_withowcandaw@yahoo.ca>
- Friday, October 20, 2006 4:03 PM CDT

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Still praying! Have a happy weekend! Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Friday, October 20, 2006 12:25 AM CDT

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please know im thinking of you all

Jay Angel _Wings <lovebabysnugles@yahoo.com>
Bluffton, IN - Thursday, October 19, 2006 8:40 PM CDT

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Praying for your family!!
Lori
Brainerd, MN - Thursday, October 19, 2006 2:37 PM CDT

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Praying that all goes well with weaning off this med. I'm sure it's quite scary not knowing what may happen, your little Kylie will be in my prayers.
Checking in and praying for you, because of your angel friends, McKenna and Drew.
sending (((hugs))) to you, Kylie!
~Jen


Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Thursday, October 19, 2006 7:34 AM CDT

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Maria,
It will be o.k. We have to get her off some of those meds and we've talked alot about this one and its definately time for her to start the wean. Try not to worry, I'm with ya sista, every step of the way! You will never walk alone.
Kylie, my sweet girl, I love you and my angels are smiling down on you, blowing you kisses in the wind.
Saying extra prayers for you tonight!
We love you all!!!
The Olson's
www.caringbridge.org/mn/drewolson
shannon olson <shannonolson914@yahoo.com>
lakeville, mn usa - Wednesday, October 18, 2006 10:39 PM CDT

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UGG!!!!!!! Im so sorry you may have to go through the seizure monsters again....... Im sure you are SCARED TO DEATH!!!!! Hoping and prayer everything goes well.
AnnParadis <aparadis@travelers.com>
Bristol, CT 06010 - Wednesday, October 18, 2006 6:20 PM CDT

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Praying that the seizure monster stays away as you begin to wean the med. I think of you guys daily and appreciate the updates on Kylie's page. You guys are an inspiration to so many people and your girls bring so much happiness into this world, not only for you but for all who are privilaged to know them. Thank you for sharing them with us. Hope to see you soon Maria!
Steph <stephiebecker81@hotmail.com>
White Bear Lake, MN - Wednesday, October 18, 2006 1:53 PM CDT

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Kylie and Family~

You continue to be in our prayers- we will be praying extra hard while you are weaning! We know it is a scary process but you'll never know if that is what is causing all that other nasty stuff till you try!!! Good Luck!!
Hillary Richardson (Canaan's mom :) <hillarygeiger@gmail.com>
West Des Moines, IA USA - Wednesday, October 18, 2006 1:41 PM CDT

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Praying that everything goes alright with the med wean.

Jason blows you kisses Kylie!! and he says Cue (cute)and blows more kisses.. Looks like your Jasons little crush!!

Have a good week and weekend guys

Erin Mathison
Erin (www.caringbridge.org/mn/jasonk) <erqterin@aol.com>
St.Michael, mn us - Wednesday, October 18, 2006 11:03 AM CDT

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Hey Miss Kylie,

We will pray so hard for you (even more than usual) that your wean is successful. We don't want you to have to battle the yucky old seizure monster again. We wish we could wrap you in a big safe hug and let you know that our prayers and hopes are coming your way. God bless you sweet little girl! Love, Nikki and the Sickmann boys
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Wednesday, October 18, 2006 10:30 AM CDT

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Dear Maria,
Last night when you went to work out, Neil gave Kylie her iron medicine. I have to tell you that it was the most disgusting smelling stuff, I can't believe she was even willing to swallow it. She was in my arms rocking and started to retch and then projectile vomit about 3 times. The thing that amazed me is that she didn't get upset. She just layed in my arms looking miserable and must have had the most horrible taste in her mouth but no tears, or even hint of being upset. She is amazing!! What a little trouper she is. I hope they can figure a different method of getting iron in her, if she can't keep it down, how can it be helping?
Mom
KarenUeland <klpu@aol.com>
- Wednesday, October 18, 2006 7:19 AM CDT

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I came to you through another caringbridge page and wanted to take the time to sign in. Our daughter has epliepsy and is also on numerous meds. She too was once on Zonegram but it didn't work for her. We know the anguish of weaning off the meds. Seizures always get worse for us too. We are praying for healing and we'll come by again. (www.caringbridge.org/nj/saraswalk)
Barbara Hoffman <jbashoffman@earthlink.net>
Califon, NJ - Tuesday, October 17, 2006 10:06 PM CDT

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Our family will pray harder tonight for the safe weaning of Kylie's meds. She is so beautiful.

Chris, Amanda, Kyler, Greyden, and Colby Burchfield <manda_k1978@yahoo.com>
White Hall, AR - Tuesday, October 17, 2006 9:35 PM CDT

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Hello Miss Kylie-
By the looks of your therapy schedule, it sounds like you are going to be a very busy girl!! It is great that they are able to come out to your house to help you. I know that you will work very hard!
Hoping your fevers go away soon and that the Dr.'s find a simple explanation. What a blessing to hear that you are still getting a break from your seizures!!
Your new pictures are beautiful - you are getting so big! Ava is an absolute doll, too!
We continue to pray for you and your family, each and every day. Take care!
Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Tuesday, October 17, 2006 12:36 AM CDT

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Thanks so much for signing Jacob's guestbook - and encouraging us along the way! Kylie (and her sister, too) are just beautiful - I love the pictures! I am so sorry she has to deal with so many health complications - but by the smile on her face - you would never know she was sick. Children are so amazing - and so is KYLIE! Please know that many prayers are being said for her and your family. May God hold you all close.
Love & FROG,
Heather
Amazing Jacob
Duckworth Family <dhkduck@aol.com>
Lithia, FL - Tuesday, October 17, 2006 7:59 AM CDT

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Hey guys... Haven't written in a while but I check in on ya. Hope you had a good weekend. Looking forward to watching the girls this weekend. Talk to you soon!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Monday, October 16, 2006 5:56 PM CDT

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Hi Kylie
My name is Jenna and I came across your website. You are a cutie and so is Ava. You are a fighter and a trooper. I hope Ava is feeling better soon. You are in my thoughts and prayers. www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Saturday, October 14, 2006 11:54 PM CDT

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hey maria and all -
greetings from baltimore - i am hoping you can make it to the caringbridge get together for halloween------ maria, i was going to tell you to look at our guestbook and go onto the site signed by makayla g. i dont know the site off hand, but i know she does hippo (horseback) therapy and has been thrilled with it - if you look through the journal - it should have lots of info - i will email you when i get home - just fyi..... take care of those little princesses as you always do........
loves and hugs
tanya
tanya <myg@frontiernet.net>
- Saturday, October 14, 2006 3:26 PM CDT

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Maria,
Hi, I'm so happy to hear that things are going well for all of you!! Jackie volunteered a few years at River Valley Riders doing therapy riding she also worked at Camp Courage one summer as the horse therapy person She thinks it is wonderful. Not only does it help with balance but gives some kids such a feeling of freedom. I watched a few times and the kids loved it. I hope it works for you. Take care. Reen
Maureen Provow <mprovow@yahoo.com>
- Thursday, October 12, 2006 8:14 AM CDT

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Neil, Maria, Kylie, and Ava,
Just wanted to let you know I am praying for you all! Hoping you are having a good fall. Sweet Kylie, you keep up all the good work that you do! I am so proud of you. I don't think I know of many parents who could love a child more than yours love you!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Wednesday, October 11, 2006 2:51 PM CDT

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Hey Maria....you have such beautiful little girls...their pictures just bring a smile to my face. I so wish I could have come on Saturday..it sounds like you had fun. I'm so glad to hear things are still plugging along a your house. I pray that the seizure monster stays away forever...you all deserve it. Thank you so much for sharing your difficult journey and beautiful girls with us...they bring sunshine to a cloudy day. Hope to talk to you soon, Love, Nikki :)
Nikki Sickmann <hownnil@hotmail.com>
Rosemount, mn - Wednesday, October 11, 2006 9:59 AM CDT

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I love the new picture of Kylie on your homepage. She is such a beautiful little girl with such a contagious smile. Praying for more healthy days filled with lots of smiles and laughter.
Steph Becker <stephiebecker81@hotmail.com>
- Tuesday, October 10, 2006 8:25 PM CDT

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Hi Gibbons family! Thank you very much for the fun time on Saturday night! It was fun to hang out with everyone outside of work. It was so nice of you to have everyone over with your hectic schedule! Thanks again!
Andrea Gerlach <nickndre@yahoo.com>
- Monday, October 9, 2006 9:21 PM CDT

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Hi Kylie,
I had so much fun spending time with you girls tonight. Ava is such a sweetie pie too. She seems to really like grandma's house. She is so patient with you. I guess she is used to being poked in the eye and sat on. She really loves you big sister.
Love,
Grandma Karen
Karen Ueland <klpu@aol.com>
- Sunday, October 8, 2006 11:46 PM CDT

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Dear Gibbons Girls and Dad
I sure know what you mean about how lucky you are to have Kylie. To hold and love her and have that smile of hers is the depth of love. She has truly been blessed, just as you have.
I can not think of a better mommy and daddy for Kylie. Ava too is part of that circle of love and family.
Sounds like your doctor is going to get everyone working together to coordinate Kylie's care. That is a big step forward.....
Love and Hugs and lots of prayers
Aunty Rose

Aunty Rose
- Sunday, October 8, 2006 10:31 AM CDT

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Sweet Little Kylie, It has been awhile since I last visited your site. I love all the new pictures! You're such a little doll! I hope you and Miss Ava continue to have fun together. Keeping you in my prayers!
Chrissy/Angel_wings <cvanberkum@yahoo.com>
Vermillion, SD - Sunday, October 8, 2006 9:47 AM CDT

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hello sweet princess - just a note to say hello and tell you we think of you often and always include you in our prayers..... keep up the good work and we will check back in on you in a couple of weeks.....
loves and hugs
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Saturday, October 7, 2006 3:23 PM CDT

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Hi Maria,
I wish everyone who reads this site could meet Kylie in person. She truely is our angel on earth. Even the kindermusic teacher who met her the first night picked her up when we were dancing and said to me, " oooooh, she really is a love isn't she?" She is so sweet and friendly to everyone she meets. I have been around so many kids over the years and have yet to meet one like Kylie. God may have not graced her with much speech, or coordination, and is taking longer for her to learn, but he has graced her with the most beautiful spirit I have ever known. For all she goes through with that smile on her face is amazing. I can't believe she still actually likes medical people. You would think she would be scared of them by now. I think that is why they love her so much too. Someone can be trying to stick a needle in her and she is reaching out to touch them and smiling away. I also feel we are so lucky to have her in our lives. She is teaching so many about what is important in life. What a gift we have recieved with Kylie.
Love,
Mom ( Grandma Karen)
Karen Ueland <klpu@aol.com>
St. Paul, MN - Saturday, October 7, 2006 9:15 AM CDT

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Hello Maria and Kylie,
I stopped by to see your site. I hope this message finds you all well. I love all the pictures. Kylie is beautiful. But, you guys already know that. It sounds like you guys have been through so much. I know how it feels to have a child in and out of the hospital all the time. I hope you can figure out the chronic infections. I will be thinking and praying for you. Maria you can email anytime if there is anything I can do or questions to try to answers. Stay strong! God Bless!
www.caringbridge.org/visit/matthewfranson
Matthew's Mom-Natalie
St Paul, MN - Saturday, October 7, 2006 1:20 AM CDT

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hi ms. kylie
just a note to say hi to you and your family - hope things start getting a little better sweetie - you are in our prayers.
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Friday, October 6, 2006 2:01 PM CDT

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Maria, I haven't seen you for a long time but I read Kylie's site everyday. You guys have been thru so much and I wanted to send a little more hope your way. At the new clinic I work at, I work with a doc that has TS and his 2 kids do as well, as if Kylie will ever want to step into a hospital willingly-- but I see MD in her future:) Take care and I miss you and the UH group!!
Sara Meyer <matsarmey@aol.com>
Prior Lake, MN - Thursday, October 5, 2006 12:21 AM CDT

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Hi, I'm a friend of Lori's and she had mentioned you had a caringbridge site. So when I was on updating my dads today I thought I'd check yours out. First of all, wow your site is very amazing and without ever having met Kylie I really understood how great this little girl must be and why everyone loves her so much. What a brave young child. My thoughts and prayers really go out to your family! God bless.
Katrina Paul <Katrin1224@yahoo.com>
Woodbury, MN US - Monday, October 2, 2006 5:28 PM CDT

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Dear Kylie and family
I have been following your story for so long now and every day say a prayer that the good Lord above will take care of you all. I am sorry to hear that Kylie has been dealing with these icky feevers and has not been feeling well. I hope they can figure out what is causing them soon and she can get back to being the precious playfull girl that she is. I will continue to say prayers for her and all of you . Thank you so much for sharing your journey with so many people and letting us all into your lives. God Bless and many hugs
Sincerly
Liela Waibel
Liela Waibel <lielaaron@yahoo.com>
Buffalo, MN USA - Sunday, October 1, 2006 6:31 PM CDT

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Here's to hoping you find out where these fevers are coming from.....
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Sunday, October 1, 2006 8:23 AM CDT

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WOW! I love the new pics & the slideshow. I have been praying so hard that that icky monster stays away and I will keep praying, even harder, that there isn't anything really serious with her frequent temps. I hope she starts to feeling a little better and keeps up the good walking, before you know it she will be all over and Ava will be crawling and you won't be able to keep up with them, hopefully they don't doubleteam you! Keeping you in all my prayers!
Molly Manley <mojala21@hotmail.com>
St. Paul, MN - Saturday, September 30, 2006 9:42 PM CDT

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First of all , Kylie's new pictures are so adorable ! You have every right to be concerned about those fevers . It doesn't make any sense for them to keep recurrring like that and nobody has an answer . I'm praying for the Dr. to treat Kylie as if it was her own child , leaving no stone unturned until there is an answer .

Eli & Fletcher
Michele
W-S, NC - Saturday, September 30, 2006 9:30 PM CDT

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I found your site through Drew and McKenna's. You have two of the most beautiful little girls. Our family prays nightly for your family to have the strength to fight this horrible disease.
Faith, Hope and Love!!
Stay strong.

Amanda Burchfield <manda_k1978@yahoo.com>
White Hall, AR - Friday, September 29, 2006 11:42 PM CDT

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HAD AGREAT TIME AT THE BIRTHDAY PARTY ON SATURDAY...Kylie's pictures are soooooooocute what a special little girl.
Eva is getting so big, neil has done a great job with the fountain in the yard and glad to see day care is going great. check ya later
jessie gibbons <jessieg@mayflowerdistributing.com>
st paul, mn usa - Thursday, September 28, 2006 1:38 PM CDT

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I love the new pictures! I can't believe how much older Ava is looking these days. She sure loves her big sister. Her face lights up when she sees Kylie. I know she will always love Kylie and take good care of her.
Love,
Mom
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Tuesday, September 26, 2006 11:05 PM CDT

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Hello there Miss Beautiful Fairy Tale Princess, I am so sorry to hear that you have been feeling icky, but hope you will feel better soon. Hopefully the doctors can get to the bottom of the fever situation. Praying for you all.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Tuesday, September 26, 2006 8:34 AM CDT

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Kylie,
Wow! You are an absolutely beautiful fairy tale princess. So beautiful! I hope you had a wonderful birthday and ate lots of cake and received lots of great presents. Keeping you in my prayers.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, September 22, 2006 8:40 AM CDT

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I love the picture of Kylie dressed up as a fairy! That is so precious! Happy second birthday Kylie and I hope you have many more.

(((((HUGS)))))
Shannon Rosenthal <softball3332@yahoo.com>
Inver Grove Heights, MN USA - Thursday, September 21, 2006 10:50 PM CDT

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What a beautiful picture of you Kylie!!!! Hope you had a good 2nd b-day.!!!
Trina <ntjcp@yahoo.com>
Monticello, - Thursday, September 21, 2006 10:21 PM CDT

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Happy belated birthday Kylie, hope everythings going well their these days.
Love you guys, God Bless kylie and the fam for another year.

Dan Ponsolle <danponsolle@yahoo.com>
Maplewood, MN USA - Thursday, September 21, 2006 10:05 PM CDT

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Kylie, I hope that you had a wonderful day! Neil and Maria- Happy Anniversary! Sending you lots of Prayer Bear hugs
Kristina Glidewell <Kristina_1409@hotmail.com>
Stoutland, MO USA - Thursday, September 21, 2006 5:26 PM CDT

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Hey Guys-
I hope you all had a great day yesterday! The video clip is so cute and Kylie has grown so much over the last year. See you this weekend.
Love, Nicole, Jay, and Noah
Nicole Schueller <nicole.schueller@spps.org>
St. Paul, Mn USA - Thursday, September 21, 2006 4:54 PM CDT

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Happy Birthday Kylie! You are growing up to be such a beautiful little girl. I love your new picture!
alyssa werth <soccer12b@aol.com>
circle pines, mn usa - Thursday, September 21, 2006 3:39 PM CDT

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Hi Neil & Maria,
Our Anniversary wish for you is that you can enjoy the terrific twos' seizure free! And a great big Happy Birthday to Miss Kylie Jo.
The Gibbons Clan
Kelly Gibbons <kelly@allbritesign.com>
- Thursday, September 21, 2006 2:02 PM CDT

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THAT is just the CUTEST pixie princess ever!!!!!!!!! I hope you enjoyed your birthday!!!!!!!!
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Thursday, September 21, 2006 9:42 AM CDT

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Happy 2nd Birthday Kylie! You are just a princess! Praying that the seizure monster stays away for forever!
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove, MN USA - Thursday, September 21, 2006 9:27 AM CDT

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Happy Birthday Kylie! I love your princess picture. You are just gorgeous!

Hope you had tons of fun on your special day!

Dawn
Dawn Hartwig <Spirit_Crosses@yahoo.com>
Hutchinson, MN - Thursday, September 21, 2006 8:47 AM CDT

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Happpy Birthday big girl! Sorry I am a day late, things have been crazy at school. I thought about you all day and I have 20 wonderful fourth graders who have been saying prayers for you every day! They now know how to visit your website and check in on you whenever they want! I hope you had a great birthday and enjoy your elmo chair. I'm sorry Leon and I couldn't make it up to see you last weekend...we are so busy. We both love you very much. I hope you had a great day!
Lisa Kleven <tchngkidz@aol.com>
Red Wing, MN USA - Thursday, September 21, 2006 8:37 AM CDT

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HAPPY 2ND BIRTHDAY KYLIE!! YOUR VIDEO IS SO CUTE!! YOU ARE A BEAUTIFUL SWEET GIRL!! WE ARE SO HAPPY THAT YOU ARE DOING WELL!!
KATIE WEYANDT <KATHRYNWEYANDT@YAHOO.COM>
HUGO, MN UNITED STATES - Thursday, September 21, 2006 0:24 AM CDT

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HAPPY BIRTHDAY KYLIE JO!
Only 2 years old and look at everything you have gone through. I am soo very proud of you. You are such a brave little girl and you deserve it all. I hope Kylie had a great birthday and i hope too see you all soon. i miss the wonderful gibbons family. Happy aniversary to you maria and neil. good bless and hugs and kisses to all :)
love always♥ kiley jo
Kiley Jo Gibbons <sevengibbs@msn.com>
circle pines, mn united states - Wednesday, September 20, 2006 10:14 PM CDT

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Sending birthday wishes to Kylie and Anniversary wishes to Maria & Neil.
Lanette & Greg Nitti
- Wednesday, September 20, 2006 9:46 PM CDT

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Happy Birthday Kylie!!!
We miss you!
The Beechers
Fargo, ND - Wednesday, September 20, 2006 9:16 PM CDT

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Happy Birthday Kylie

Kristi Pendergast <Kristipe651@aol.com>
St.Paul, MN. - Wednesday, September 20, 2006 8:02 PM CDT

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Happy Birthday Kylie!!! And happy anniversary Maria & Neil.
Janelle Tupy <janelle@integra.net>
MN - Wednesday, September 20, 2006 7:22 PM CDT

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Happy Birthday Kylie! We love you! Lots of hugs and stop by for your present when you get a chance.

Lots of love - Caroline
Abigail Vetter <abvetter28@yahoo.com www.caringbridge.org/visit/carolineruby>
West Fargo, ND - Wednesday, September 20, 2006 7:11 PM CDT

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Congrats!!
Pat Hoff <phoff@mn.rr.com>
- Wednesday, September 20, 2006 4:41 PM CDT

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Kylie and family,

A very Happy Birthday to Kylie. Give my love to your Grandma Karen and Grandpa Tom.

Sandy, Kris and Tom
Sandy Eppolito <sandy@gallaghermedia.net>
St. Paul, MN USA - Wednesday, September 20, 2006 4:40 PM CDT

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HAPPY 2ND BIRTHDAY KYLIE JO!
Samantha Bowlin <softballplaya461@netscape.net>
Maplewood, MN USA - Wednesday, September 20, 2006 4:09 PM CDT

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Kylie and family - What a wonderful day for you! I wish you all the happiness that you can possibly squeeze into one day! I have been following your progress and got your site from Drew and McKenna's site. Their great uncle and aunt are my friends here in Mitchell, SD. I am definitely praying that your seizures are DONE and that you will learn to walk and RUN to celebrate many, many birthdays!
Becki Solberg <bslbg@hotmail.com>
Mitchell, SD USA - Wednesday, September 20, 2006 4:05 PM CDT

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HAPPY 2ND BIRTHDAY KYLIE!!! We hope you have a great day! Mary sends big hugs and kisses to you!!

Happy Anniversary Maria and Neil!! We pray for health and happiness for your beautiful family!

Love, Jim, Eileen and Mary
Eileen Hable <ehable@hotmail.com>
Lino Lakes, MN - Wednesday, September 20, 2006 3:57 PM CDT

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HAPPY BIRTHDAY KYLIE
PRAYING THAT YOU HAD A GREAT BIRTHDAY.
KEEPING YOUR FAMILY VERY MUCH IN MY THOUGHTS & PRAYERS ALWAYS.

PAM STURGILL www.freewebs.com/prayerbears <psturgill@bellsouth.net>
- Wednesday, September 20, 2006 3:05 PM CDT

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HAPPY 2nd BIRTHDAY KYLIE!!!!! Have a great day. We continue to lift you up in prayer and ask that those seizures stay far far away from you!!!!!

Love,
The Ciannello Family
Jenny, Luke, John, and Juliana
The Prayer Bears
http://www.caringbridge.org/visit/jamesciannello
Jenny Ciannello <jlciannello@optonline.net>
Basking Ridge, NJ - Wednesday, September 20, 2006 2:53 PM CDT

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HAPPY BIRTHDAY TO YOU!
HAPPY BIRTHDAY TO YOU!
HAPPY BIRTHDAY DEAR KYLIE!
HAPPY BIRTHDAY TO YOU!!!
Faith Clark/Angel_Wings <taurigirl@triad.rr.com>
Liberty, NC USA - Wednesday, September 20, 2006 2:45 PM CDT

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Kylie- Happy Birthday to you!! i got hooked on this web site through my brother derek Novotny. he was talking about you and gave me the web site to follow. so- here I am. I am glad to hear that you have been monster free for 6 1/2 months now and my wish for you is to monster free for life!! you are a beautiful girl and have alot of life to live. i wish you the best day today and always!! also i want to wish your mommy and daddy a very happy 3 years!!!
tracy novotny <TRACY.NOVOTNY@CO.RAMSEY.MN.US>
st. paul, MN U.S.A - Wednesday, September 20, 2006 2:43 PM CDT

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Happy 2nd Birthday Kylie! and Happy Anniversery Neil and Maria. I hope you all have a fun filled day!

Love,
Doug, Michelle, Brandan & Ben
Michelle Peterson <itispeterson@msn.com>
Stillwater, mn usa - Wednesday, September 20, 2006 2:24 PM CDT

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HAPPY 2ND BIRTHDAY KYLIE!!!!!!!!!!!!!!!!!!!!
AND HAPPY ANNIVERSARY MARIA AND NEIL. I AM SO GLAD THAT WE GET TO BE APART OF YOUR LIFE AND WERE ABLE TO BE THERE ON THE DAY YOU TWO WERE MARRIED. I REMEMBER THAT DAY LIKE IT WAS YESTERDAY, IT WAS A GREAT DAY. AND THE FOLLOWING YEAR THAT SWEET ANGEL WAS BORN, THAT TOO WAS A GREAT DAY. I AM TRUELY HAPPY FOR ALL OF YOU, YOU HAVE A WONDERFUL FAMILY. HAVE A GREAT DAY.!!!!!!!!!!!!!!!!!!!!!!!!!!!
LOVE,
ALICIA, LILIANA, AND JOE
ALICIA <alicia.villegas@att.net>
ST. PAUL, MN - Wednesday, September 20, 2006 1:45 PM CDT

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happy birthday princess kylie - happy anniversary mom and dad - what a fantastic day..... hope you have a great time at underwaterworld ----- will check back soon.....
take care guys
loves and hugs
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Wednesday, September 20, 2006 12:48 AM CDT

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Happy Brithday Kylie! Jason gave you a kiss (litterally on the cpmputer screen) and he keeps giggly saying cuu, which i think means cute.
Hope you enjoy your 2nd birthday!

Happy Anniversary Neil and Maria, hope you enjoy this day with your two beautiful girls

Erin
www.caringbridge.org/mn/jasonk

Erin and Jason <erqterin@aol.com>
St.michael, mn us - Wednesday, September 20, 2006 11:26 AM CDT

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Happy birthday, Kylie. It really is the best day for a birthday, I should know :) Have a fun adventure at the mall today! See you soon!
Jess, Davey, Will, James and Eva Pratt <djwpratt@msn.com>
St. Paul, MN USA - Wednesday, September 20, 2006 11:25 AM CDT

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Happy Birthday Kylie,
Such a precious little girl. I loved looking at the video that was put together for your birthday. To see you in the hospital and all the stuff you had to go through it really makes me sad that little children go through so much. You stay heatlhy for your mom and dad. Have a great day and give mom, dad and Ava big kisses. Happy Birthday. Also Happy Anniversary To your Mom and Dad
Donna
Donna M Jacobs <Donna.M.Jacobs@seagate.com>
Burnsville , Mn - Wednesday, September 20, 2006 11:24 AM CDT

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Happy 2nd Birthday Kylie! I hope you have fabulous day. I pray that you continue to do well this year. Also, Happy Anniversary to Maria and Neil. The two of you brought a beautiful family in to this world. I hope you all have a perfect day together. Love you guys!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Wednesday, September 20, 2006 10:09 AM CDT

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Happy Birthday to you, Happy Birthday to you,
Happy Birthday dear Kylie, Happy Birthday to you.

Happy Birthday beautiful girl...2 is such a fun age.
Here's prayers that the seizures stay away and that you
continue to be smiley and happy. God bless you little girl,
you are such a special little girl.

Love, Nikki and the Sickmann boys

P.S. Happy 3rd Anniversary Maria and Neil
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Wednesday, September 20, 2006 9:55 AM CDT

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HAPPY 2nd BIRTHDAY KYLIE!!!!!!!!!!!! I hope you enjoy your special day!!

Happy Anniversary Neil and Maria!! May God Bless your family with peace and happiness and HEALTH!!! Always!!!

LOVE LOVE LOOOOOOOOOOOOOOOOOOOOVE THE SLIDESHOW!!!!

Ann Paradis <aparadis@travelers.com >
Bristol, CT USA - Wednesday, September 20, 2006 9:30 AM CDT

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Miss Kylie, Happy Birthday sweet girl!! I hope you have a wonderful birthday celebration! So happy you have been seizure free for such a long time. Praying this will continue forever! Neil and Maria, Happy Anniversary! Hoping you all have a wonderful day!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Wednesday, September 20, 2006 8:53 AM CDT

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Happy birthday to you! Happy birthday to you dear Kylie!! You stole my heart the first time I saw your picture here!! Have a great day and Happy Anniversary to your mommy and daddy! They deserve it!

Sbawn Schlueter <schluetersm@hotmail.com>
- Wednesday, September 20, 2006 8:43 AM CDT

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Happy Happy Birthday Kylie - you are an amazing little girl. We wish you all the best and a very special birthday! Have fun!

Happy Anniversary to your Mom & Dad too! Kylie & Ava are blessed to have you as parents.
Lisa, Charlie, Tori & Makenna <lstudiner@msn.com>
Cottage Grove, MN USA - Wednesday, September 20, 2006 8:36 AM CDT

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HAPPY BIRTHDAY SWEET KYLIE, WHAT A WONDERFUL GIFT 6 1/2 MONTHS WITH NO SEIZURES! YOU HAVE A GREAT DAY AND SEE YOU SATURDAY......MARIA AND NEIL HAPPY ANNIVERSARY, HOPE YOUR YEARS TO COME ARE FILLED WITH ALL THE JOYS AND DREAMS YOU WISH FOR! LOVE YOU ALL..........MOM (KATHI)
KATHI <katgibbons@hotmail.com>
ST PAUL, MN USA - Wednesday, September 20, 2006 8:29 AM CDT

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HAPPY BIRTHDAY LITTLE GIRL!!!!
I can't go into how much you and your family have changed my life, but I will say I have never seen a more loving or caring family. Your mom and dad have included me in this cirle and I can't thank them enough for letting me share in your life. Someone asked me why I didn't sign in the guestbook, and I thought, why. Anytime I need a Kylie or Ava fix, I run next door and just to see you smile or even sleeping, makes my day. So, I will see you soon for my fix, and don't eat too much cake today.....save room for the "ICE CREAM"! Love you, see you later alligator! Remember to work on your TWO!!!!
sue salmon <Sue.Salmon@ps.net>
falcon hgts, mn ramsey - Wednesday, September 20, 2006 7:59 AM CDT

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Happy Birthday sweet Kylie!!! And Happy Anniversary Neil and Maria!!! What a day!!! Smiles, hugs and lots of love!!! ~Dawn
Dawn Schultz <dawn_schultz@msn.com>
- Wednesday, September 20, 2006 7:45 AM CDT

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Happy birthday sweetie! I hope you have the best two-year-old birthday that can be had!

Happy anniversary to Mom and Dad too.
Lis Geoghegan/Angel Wings <liveinspirit@aol.com>
Cabot, AR - Wednesday, September 20, 2006 7:44 AM CDT

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Happy Birthday Kylie!! We love you. Sending birthday smooches to you today~the sloppy ones are the best!! Whenever you feel something on your cheek today, know its my angels giving you birthday kisses, right from heaven!! Happy Anniversary Neil and Maria! It's a hard road but together you do it sooooo well!
Love,
The Olson's
Rand, Shannon, Cam and our 2 angels....
shannon olson <shannonolson914@yahoo.com>
lakeville, mn usa - Wednesday, September 20, 2006 7:40 AM CDT

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HAPPY 2nd BIRTHDAY KYLIE!


Amanda Schuck <aschuck@ilbnc.com>
Maplewood, MN 55109 - Wednesday, September 20, 2006 7:16 AM CDT

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HAPPY BIRTHDAY TO YOU, HAPPY BIRTHDAY TO YOU,
HAPPY BIRTHDAY DEAR, KYLIE
HAPPY BIRTHDAY TO YOU!
Wishing you a day filled with sunshine, smiles, giggles and lots of love!

To Maria and Neil, HAPPY ANNIVERSARY TO YOU BOTH!
You have been through so much in such a short time, and yet you come out strong, with faith, hope and love.
Truly and inspiration to us all.

Praying for a wonderful day for your BEAUTIFUL family, because of angels, Drew and McKenna.

Sincerely,
Jen




Jen Berkner <berknerjen@yahoo.com>
Wanamingo, MN - Wednesday, September 20, 2006 6:59 AM CDT

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Happy Birthday Kylie. You are so beautiful and have such a lovely smile. Have a great day. I am keeping you in my prayers
Jennifer Iljazi Angel_Wings <jzee1664@optonline.net>
- Wednesday, September 20, 2006 3:21 AM CDT

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Happy birthday Kylie. I hope you have a wonderful day sweetheart.
Jennifer A from the prayer bears aned ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Wednesday, September 20, 2006 3:17 AM CDT

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Well I never thought that by our 3rd wedding anniversery we would have two kids, and also be sharing our day with a birthday. I guess it is true, they say when you have a kid (kids) they take over your lives, they realy do. But I can't complain, I just hope one day when both Kylie and Ava grow up they can be half of what there mommy is today. I don't know how some days you can even walk up the stairs to go to bed. But some how you do it. On September 20th 2004 on our 1st annaversery we both got the best gift that any one could ask for, also on Feb. 2nd 2006. So thank you for the past years and thank you for giving me the gift of being the father of Kylie and Ava, and being your husband and some day we will add a boys name to the list.
So HAPPY ANNAVERSERY Maria and HAPPY BIRTHDAY Kylie
I Love you all, Neil
Neil Gibbons <gib2514@aol.com>
- Wednesday, September 20, 2006 1:34 AM CDT

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Dear Kylie,
I wasn't sure how much time I would have tomorrow to write and wish you Happy Birthday, so I am about an hour and 1/2 early. I was there when you took your first breath and have loved you ever since. You are the most cherished and amazing little person I have ever known. You have always been incredibly sweet, happy, good natured and loving. No matter what you have gone through, you are always happy. Your eyes sparkle, and your smile melts my heart. I never knew how much I would enjoy being a grandma until you and your sister came into my life. I hope during this next year you will learn to walk all by yourself, start talking (say Grandma!) and not have to go to the hospital for anything. Even though this past year and one half has been hard, being the sweet little girl you are has been a blessing. I am looking forward to our Thursday night dates. Happy Birthday Sweetheart, I LOVE YOU!!!!!!!!!!!!
Grandma Karen
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Tuesday, September 19, 2006 10:43 PM CDT

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HAPPY BIRTHDAY KYLIE JO!!!!!!well almost,im so excited to go to underwaterworld for both of our first times tomorrow! but i love you sososo much and hope you have a wonderful 2nd birthday!!!! o and happy anervirsey to maria and neil.
love your FAVORITE auntie kari
Kari Ueland <Karikake@aol.com>
St.Paul, MN - Tuesday, September 19, 2006 10:23 PM CDT

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Happy 2nd Birthday Kylie! I absolutely loved your photos with music. It brought tears to my eyes. You definately have a very special little girl. Happy Anniversary Maria and Neil.

Andrea Gerlach <nickndre@yahoo.com>
Woodbury, MN - Tuesday, September 19, 2006 9:32 PM CDT

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Happy Birthday Kylie. We love the pictures! God bless all of you. Yogi and Judy Smith
Judy Smith <judysmith22@hotmail.com>
St. Paul, MN USA - Tuesday, September 19, 2006 8:30 PM CDT

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Happy (almost) second Birthday Miss Kylie.......When I think of how such a tiny bundle of baby has touched the hearts of so many I have to smile. You are a special gift to all. I watched your birthday video that your Grandma made three times and each time I see something new.
First I saw all the love from your family, then I saw all the love you give with all those smiles....There you are cute as a button and smiling even with all the procedures, medications and changes in your life. Then I saw how much you have grown and learned despite everything. You have came a long way... May God bless you and keep you healthy.
Love and Kisses
Great Aunty Rose
Great Aunty Rose <rueland@comcast.net>
Lakeland, MN - Tuesday, September 19, 2006 3:02 PM CDT

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Happy Birthday Kylie...from all your friends at Keys Cafe..
Hope you had a spectacular Birthday!!!!!!!!!
Jeannie Collyard <Jcollyard@aol.com>
Roseville, MN USA - Tuesday, September 19, 2006 12:31 AM CDT

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HAPPY BIRTHDAY, KYLIE!!! I love the slideshow...you are such a cutie! Have fun tomorrow, sounds like you have a BIG day planned. I bet you will love Underwater World! We'll be thinking of you and celebrating your life!! Many continued prayers for you and your family-
Amy - Katelyn's mom <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Tuesday, September 19, 2006 11:15 AM CDT

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Happy Birthday to Kylie! You sure do have two beautiful little girls.
Chari Warner <millymango40@yahoo.com >
Alpharetta, GA USA - Tuesday, September 19, 2006 9:24 AM CDT

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Happy Birthday Kylie! The slide show is wonderful and the pictures do a great job of showing her personality. She is such a joy and what a trooper. Still smiling through pokes, pulls, prods, etc. The t-shirt that says "Lover" is perfect. She is a lover and loved by soooooooo many. Although you don't mean to be, you truly are an inspiration to all those that have met/read/seen anything to do with your trials and triumphs over the last two years. "Kylie's Hope" carries countless prayers, enormous love and tremendous hope. We are all blessed by knowing it. Lots of love!!
Bridget Berigan <bkberigan@comcast.net>
St. Paul, MN USA - Tuesday, September 19, 2006 8:56 AM CDT

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Kylie and family,
What a beautiful slide show. Kylie is so adorable and it broke my heart to see her hooked up to wires and crying her little eyes out. She is such a precious child and I am so glad that she has such wonderful parents to cherish her like you both do. You can tell she is loved by the sparkle in her eyes. Hope your birthday is great-enjoy the cake!!
Amy (just a mommy who prays and cares for you)
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Monday, September 18, 2006 11:33 PM CDT

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HAppy Birthday to you Kylie! What an exciting day to turn 2 years old. Have a fun day with all your little friends and family. Love, Jane
Jane Dahlin <Grammijane@usfamily.net>
Hudson, WI USA - Monday, September 18, 2006 10:43 PM CDT

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Cute little movie of Kylie. My how much her little sister looks like her! Happy b-day Kylie! Such a big girl. Maria.. I just had to bust out lauging at your story about the cat urine on her shirt! Oh how we love our husbands!!! Have a wonderful week..I will be thinking of you all!
Trina (a daily reader) <ntjcp@yahoo.com>
Monticello, - Monday, September 18, 2006 10:39 PM CDT

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Happy birthday, Kylie!!!!
Carrie and Mau Reyes <mommamau2@sbcglobal.net>
- Monday, September 18, 2006 9:58 PM CDT

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Dear Kylie and family..
Happy Second Birthday Kylie! You don't know me yet, but I will meet you the day after your second birthday at Kindermusik Class. I just know we are going to have a wonderful time together! I love your pictures! I am just waiting to meet you! I will see you soon!
Ms. Peggy:)
Peggy Doeksen <kindermelodies@comcast.net>
Stillwater, MN USA - Monday, September 18, 2006 9:39 PM CDT

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Happy Birthday Kylie!!! I realize that you don't really know us (your cousins!) but we have kept track of you and your beautiful life through your mom's journal and your Grandma's photos. You continue to be such and inspiration to us all! And Kylie, never doubt the love of your family - your mom and dad are Super Man and Super Woman and I know they love you but continue to amaze everyone with their strength, their attitude, and their faith. On your second birthday, we all PRAY for continued miracles and thank GOD for you!!!! Happy Birthday - Love, Lisa, Steve, Hannah and Sarah Farley from Indianapolis
Cousin Lisa Farley <lisaannfarley@yahoo.com>
Indianapolis, IN USA - Monday, September 18, 2006 5:38 PM CDT

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Happy Birthday! You are such a special person Kylie. I really enjoyed meeting with you at grandma Uelands the other day. I am so excited for you to enjoy your second birthday events. I look forward to this next year of growth for you in your speech area. I hope I can help you with talking and expressing your desires. It will be an honor to share time with you. Blessings as you continue to grow and understand about this big world.
Margie <clmjsouthward@aol.com>
Afton, MN USA - Monday, September 18, 2006 5:15 PM CDT

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Happy Birthday,Kylie! Your pictures are fabulous and your smile is a gift - it really lifts my spirits to see!! Our prayers and thoughts are with you often and there is a whole community praying for you here at Saint Bernard's School. Your family continues to inspire us all with their faith and strength. You have been blessed with a great family and I can see they have been blessed by you. Hope your birthday is wonderful! Lots of love and prayers.
Jennifer Cassidy <jcassidy@saintbernards-school.org>
St. Paul, MN USA - Monday, September 18, 2006 4:01 PM CDT

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Happy Birthday Sweetie,
Hope that you have a wonderful Birthday.
You are always in our prayers.
Love LaKota, and her mom Debbie.
http://www.caringbridge.org/mn/laplafcan <LaKotaDeb@hotmail.com>
St.Cloud, MN - Monday, September 18, 2006 3:58 PM CDT

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Happy Birthday Miss Kylie! I loved the video with all your beautiful pictures in it. This is such an exciting time for you and your wonderful family to be celebrating...you're turning two, no seizure monsters for quite some time now, and you're getting ready to show everybody how you can walk. I think about you all daily and will continue to pray for good things to come your way.

Steph <stephiebecker81@hotmail.com>
White Bear Lake, MN - Monday, September 18, 2006 3:53 PM CDT

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Happy, Happy Birthday, Kylie! And Happy Anniversary, Maria and Neil! You guys are truly special!
Janine - TS Alliance
Silver Spring, MD - Monday, September 18, 2006 3:11 PM CDT

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Happy 2nd birthday Kylie.... What a beautiful treasure you are.
Jean
Jean <JeanieB506@aol.com>
St. Paul, MN - Monday, September 18, 2006 3:07 PM CDT

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hey guys ! I LOVED the picture video , it really showed how Ms. Kiley has grown up and also some of the horrible stuff she's been through . But in the end she still comes out smiling . Happy almost Birthday Kiley ! and Happy almost Anniversary Maria & Dad ! I better go ahead and say it now or I might forget , that's what happens when you get old (>30) .

Eli & Fletcher
Michele
W-S, NC - Monday, September 18, 2006 1:10 PM CDT

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YAY...maybe by Halloween, Kylie can go it alone :) but if not, what better thing than to be holding the hand of a loving Mommy!! You are an awesome Mom with patience of a saint! Prayers to you and yours for a GREAT week! Hugs, Nikki and the boys :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Monday, September 18, 2006 7:31 AM CDT

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Kylie,
So so so happy to hear about you walking! All accomplishments are great; large and small. I'm so proud of you girly! Keeping you in my prayers, sweet beautiful girl. Cam is lucky for such a pretty girl to have a crush on him! Praying for you all.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Sunday, September 17, 2006 10:23 PM CDT

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Way to go Kylie!!! That's great news on the walking. Nothing is a "little" accomplishment. I'm so happy for you guys. We'll keep on praying for continued improvement, and that the ugly seizure monster stays away!
Sarah, Jessi, and Grace Andreo <lilsarah_99@yahoo.com>
Chippewa Falls, WI - Saturday, September 16, 2006 11:31 PM CDT

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You bring smiles and laughs to me each day, as you allow us to share your days with your family. Your girls are such darlings and Kylie is so close to walking, and "Fluffy" baby is a cutie. Continued prayers for Kylies's Miracle. Lots of love is sent your way. Jane
Jane Dahlin <grammijane@usfa,ily.net>
Hudson, WI USA - Saturday, September 16, 2006 1:34 PM CDT

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hey there
just a note to congratulate you on the "small steps". i couldnt agree more, some wouldnt/couldnt understand, but i like you will take any steps at all - i love the 1st birthday picture - too cute..... take care guys and keep up the EXCELLENT work.......
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Friday, September 15, 2006 9:50 PM CDT

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Hi there,
My daughter, Lydia, is friends with Mary Hable, and Eileen keeps me updated on Kylie. Plus I check this website almost daily. I am so excited to hear about no seizures for 6 months!!!! Yay, Kylie!!! It is always nice when they go away!!! Just wanted to let you know that little Kylie and Ava are in our thoughts and prayers. Hope to meet you someday soon.

Kim Fiesel <ktfiesel@comcast.net>
Lino Lakes, MN - Thursday, September 14, 2006 10:03 PM CDT

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So happy to hear 6 months. Way to go Kylie. Keep it up. As far as the talking and walking goes. It will come. With Elaina it was like sone flipped a switch with the talking about 2 weeks ago, she really started talking (understanding the meaning of things) Our ped siad she has kids over 2 that barely say anything. My boss sin was 3 before he talked. I think they know when and will do it on thier terms. Continued seizure months ahead. Praying for your families return to home safely. We have had 2 cousins go and they both made it back, thank God. My friend is over there now.
LaVonne Sicard
Woodbury, MN - Thursday, September 14, 2006 7:41 PM CDT

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KNOCKING REAL HARD ON WOOD FOR YOU TOO GIBBONS FAMILY!!!!!

YAY KYLIE JO!!!!!!!!!!!!!! Congratulations on reaching your latest milestone!! Here's to continued success and HAPPY DAYS ahead!!

XOXO
Ann Paradis <aparadis@travelers.com>
Bristol, CT USA - Thursday, September 14, 2006 7:15 AM CDT

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YAY 6 MONTHS!! Keep it up Miss Kylie! Here's hoping the crying stopped as it is almost 8 pm :) Many prayers for your GREAT family!! Hugs, Nikki and the boys :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Wednesday, September 13, 2006 7:50 PM CDT

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Hi Maria,
Sorry to hear Kylie was crying. That is so not like her. Poor kid, she must have something really bothering her. She always amazes me with her happy disposition. Hope nothing serious is going on.
Mom
Karen Ueland <klpu@aol.com>
- Wednesday, September 13, 2006 5:45 AM CDT

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Hey Maria...I LOVE to read your entries...you have more energy than anyone I know...you are an awesome mommy! I am so glad Kylie is going up the steps...here's hoping she walks soon on the flatland! Have fun this weekend and I hope to talk to you soon! Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Tuesday, September 12, 2006 10:09 PM CDT

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maria tonight was so much fun with you, going to the cault store and all. and i LOVE spending time with kylie and ava.kylie seems so much older and is so much fun to play with. i really thought she was going to walk today but i think after her first step she noticed i wasnt holding her hand anymore and freaked and fell, but i really do think she will be walking soon. and ava is soooo cute, i love it how she gets so excited when you walk up to her and she gets the biggest grin on her face. but im going to go to bed.have fun taking the girls shopping tomorrow,o and i promise me and you will go to a movie really soon!
love kari
Auntie Kari <Karikake@aol.com>
st.paul, mn - Monday, September 11, 2006 11:09 PM CDT

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Hi Maria, I was laughing out loud at your journal entry today. I don't know how you have all the energy! See you soon! Love, Andrea G.
Andrea Gerlach <nickndre@yahoo.com>
Woodbury, MN - Sunday, September 10, 2006 9:21 PM CDT

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Neil and Maria,
I am so thrilled that Ms. Kylie was walking up the stairs. I can't wait for the day when you post saying she is walking on her own. I'm sure it is hard to see other kids younger than Kylie doing all the things Kylie is working so hard to do. I wish she didn't have to deal with TS, but I cannot imagine a greater satisfaction for you all when she finally does reach those milestones. It will be an even greater accomplishment. I know Kylie will do it when she's ready:) She's such a special little girl and I'm so lucky to have found her website. I am praying for you all, especially your babes, Kylie and Ava. What a beautiful family you have. Keeping working Kylie; I know you'll continue to accomplish great things.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Sunday, September 10, 2006 3:48 PM CDT

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Glad to hear you're all doing ok. Makenna loves checking out the new pictures - she always talk about Kylie and baby Ava. Would love to get your address so we can send a b-day card to Kylie, you can email me (lstudiner@msn.com) if you want. Continue to pray for seizure free days - your girls are so cute. Reading all you and others have been through makes me cherish things even a little more. The spilled juice can be cleaned (or we can get new carpet), the permanent markers eventually fade away and all the 'stuff' all over just means we are having fun in life. Thanks for making us look at life a little differently. You and your family are always in our thoughts and prayers! Lisa, Charlie, Tori & Kenna
Lisa Studiner <lstudiner@msn.com>
Cottage Grove, MN USA - Friday, September 8, 2006 7:28 PM CDT

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Oh.. by the way. I have a magnant on my fridge that reads "I'm not fat, I'm just fluffy". I laughed out loud when I read today's journal entry. I don't have little ones but I do have a very sweet "FLUFFY" cat named Dudley.
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Thursday, September 7, 2006 9:32 PM CDT

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Hey guys...
Just doing homework and wanted to drop by and say hi. It was fun seeing the girls today. I want to take you up on a babystitting adventure. Maybe I can watch the girls for you and Neil around your anniversary or whenever. I promise that if I feed Ava I will find someone to hold her hands down and if I play with Kylie outside I WON'T let her eat rocks... like I did today:-) Hee. Hee. Have a good day tomorrow and weekend. Love you guys.
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Thursday, September 7, 2006 9:28 PM CDT

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Hello beautiful little girls...we are praying for a speedy recovery from your ear infections and for those smiles and giggles to return to the Gibbon's house! We hope the beautiful weather has been good for you all and we hope to see you soon! Miss those cute smiles and sticky fingers...kisses and hugs, Nikki :)

P.S. Fluffy babies are the best kind because they are absolutely HEAVENLY to squeeze!! :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Thursday, September 7, 2006 8:49 PM CDT

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Kylie and Ava, Hoping you both get over those ear infections soon! Maria and Neil, hoping the therapy in Hudson is worth the drive and that sweet Kylie will continue to progress. What wonderful parents you are to both those sweet girls! Keeping your entire family in my prayers.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Thursday, September 7, 2006 7:52 PM CDT

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Kylie Jo,
It has been two months since I met you sweet girl. I was sitting by the fountain in church when you and your daddy walked up. Shortly after that I met your mommy and little sister (Ava). What a neat family and you little girls are loved so much by your mommy and daddy. Maria and Neal for such a young mom and dad I can't believe how much you two have been through. You all are in my prayers. Kylie and Ava you both stay healthy and happy and give your mommy and daddy a lot of kisses and hugs.
Donna
DonnaJacobs <Donna.M.Jacobs@Seagate.com>
Burnsville, Mn USA - Wednesday, September 6, 2006 10:36 AM CDT

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Maria:
I don't know you but I saw your post on Randon Miller's page so I jumped over to your site and I have been reading your journal for a couple of hours. I just want to thank you for sharing your journey -- and salute you for what a daily challenge it is. Don't know how to pray for you but will hold up your entire family to our loving God, who must have a plan in all this, although it's hard to comprehend.
Godspeed
Holly <hhoxeng@att.net>
Denver, - Wednesday, September 6, 2006 0:17 AM CDT

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Saw another Kylie out there and had to stop by~! We will keep you all in our prayers. Give Kylie and Ava big smushes from all the Monica kids in NJ.
Kylies Journey
Heather Monica <tenkids2dogs@aol.com>
Toms River, NJ - Tuesday, September 5, 2006 11:14 AM CDT

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hey there ms. kylie - are you just darling with your sister or what - tell mom im wishing her better luck with the school district than what i have had - i was brought packing peanuts one week and shredded paper the next time - she comes 1x per month for 1 hr - -age inappropriate?? 13 mos????? - yes, mn is the worst for 0-3 programs - im still trying though so i will defenatly tell your momma if i come across something - take care you beautiful little lady./....
loves and hugs and prayers
tanya - nick www.caringbridge.org/visit/nicholasdeyo
tanya <myg@frontiernet.net>
- Tuesday, September 5, 2006 7:35 AM CDT

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Miss Kylie and Miss Ava,
I sure love the new pictures of you! You are both incredibly beautiful little girls! Too cute! Kylie, I am praying for you! Hoping the therapy is going well and that you'll be walking and cauing your mom and dad even more grief very soon! Just be sure to take it easy on them!
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Monday, September 4, 2006 10:03 PM CDT

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Hi girls,
It was so nice to spend the day with you girls yesterday. You were both so good. Kylie was so sweet and fun at the wedding. She is so friendly to everyone. I am sorry they are not feeling well today with colds. Hopefully Kylie will get over her cold quick with no complications.
Love,
Mom
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Sunday, September 3, 2006 1:56 PM CDT

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Hi Gibbons family!
I just wnted to check in and say hi. Kylie's new pictures are so cute! She is a beautiful little girl! Praying for good health and a good weekend! Have a relaxing labor day weekend!
Alyssa Werth
Alyssa Werth <Soccer12b@aol.com>
Circle Pines, MN USA - Saturday, September 2, 2006 11:45 AM CDT

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Hey Maria...sounds like you are having a trying time with the terrible two's...we know ALL ABOUT that at our house! Just remember, two is actually fun and three is the PITS! As you said though....we are truly lucky to have our children in whatever capacity they come and however they choose to be. Please, don't ever feel bad if you need to vent about your frustrations...Lord knows, all mommies do! You have a different situation and you deserve the right to vent every once in a while, that's why we are all here, so we can support you when you are down and cheer when you are good! You guys have been dealt a difficult hand and you are dealing with it with such grace and patience that you look like a saint to me :) I pray that God continues to watch over Miss Kylie and keep her seizure free and smiling! I just know that He will keep her safe and guide her and soon, when she is walking and then running, you will remember that once, when she crawled, you could catch her :)(heehee) Hope you are having a wonderful Friday and I will stop up to see you tomorrow morning before I go to work!! Give the girls a smooch for me and pinch those fat little baby cheeks for Ethan who would tell her, "Oh, you're so cutie patootie" Love and hugs, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Friday, September 1, 2006 1:38 PM CDT

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Hey! We also went to the fair yesterday and man, was in gorgeous out! Jason loved it. We continue to pray that little miss kylie stays seizure free.

There was a girl that just died that i graduated with that died from a seizure. She started having seizures when she was in 8th grade and would have them off and on. At the end of July of the summer she was at her parents house taking a shower when she had another seizure and it clogged up the drain, when her parents realized it they called 911 and she got rushed to the hospital, she then died the next morning. Her brother also has seizures, but hasnt had one is years. They dont know what kindof seizures they are though.

Take care you guys.

Erin Mathison
www.caringbridge.org/mn/jasonk

Erin <erqterin@aol.com>
St.Michael, mn us - Friday, September 1, 2006 9:41 AM CDT

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Kylie and Family, as we stopped by the Zoey household for their fundraiser sale for 7940, we thought of you miss Kylie. We stop by often, don't always sign, but always in our heart, and Prayers.
Beth Fahey, mommy to Ryan, www.caringbridge.org/visit/ryanf

Beth Fahey <Ryan4Smiles@aol.com>
MN USA - Thursday, August 31, 2006 6:14 PM CDT

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Hi Kylie,
I hope with all of your new therapy starting, you will be walking and talking so much we have trouble catching you. You have to be the best natured little girl I have ever met. I love spending time with you and Ava. Ava is pretty patient with you when you pull her hair and poke her eyes. Some day she may get back at you, so you better watch out. I love being your Grandma so much!
Grandma Karen
Karen Ueland <Klpu@aol.com>
St. Paul, Mn - Thursday, August 31, 2006 1:41 PM CDT

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Hi Gibbons,
It is refreshing to read the journal and hear so many normal things going on with your family. I love to hear about Kylie and Ava and I am happy for you that life has become somewhat normal. Thanks for keeping us updated on the life and times of the Gibbons Crew!

Take Care...Rachel
Rachel Groess <rachmn@aol.com>
Woodbury, MN USA - Wednesday, August 30, 2006 12:34 AM CDT

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I found your site thru the Olsons site. I work with a friend of Shannon's sister. Until I started following Drews story over a year ago & then McKenna's journey I didn't know about all the children & their families on Caring Bridge sites needing our love, support & encouragement. You & Shannon are inspirations to us all! Kylie is adorable-what a smile! I just wanted to let you know that I have been praying for your family & will continue to do so. And I'm not the only one here at work doing so-there are many of us checking on "our kids & their families" each day. Thank you for sharing with us. We can't ease your frustrations & pain-but we can lift you up in prayer, attend fundraisers & balloon launchings. In Him, a grama in Cottage Grove.
Caron Tweet <caron.tweet@transportamerica.com>
Cottage Grove , MN USA - Wednesday, August 30, 2006 7:18 AM CDT

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dear kylie,
theres a big red surpise for you. i'm too big for it but you will love it. my mom is bringing me to your house so i can give it to you. i'll make you another present to go with it. bye.
love
cam
camolson <camdogolson@yahoo.com>
lakeville, mn usa - Tuesday, August 29, 2006 2:39 PM CDT

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Hey guys... 18,000? That's awesome! I was so glad to be a part of such a wonderful event. I already look forward to next years tounament. Miss Kylie Jo is such a sweet girl... and has a wonderful spririt! I will do all that I can to help support the Tuberous Sclerosis Alliance in the future. Talk to you soon!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Monday, August 28, 2006 6:02 PM CDT

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yayy for more then 18,000 dollars. that is soo amazing. and i know that we will be finding a cure. :)
love you all.
when are we getting togeter?
kiley jo <sevengibbs@msn.com>
circle pines, mn united states - Sunday, August 27, 2006 10:11 PM CDT

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Hey Maria! I just wanted to let you know how happy I am that Kylie is doing so well! I've been checking your website often to keep up with Kylie's adventures!!
--Terri B.
Terri Buratczuk <mbtb@comcast.net>
Woodbury, MN - Sunday, August 27, 2006 5:59 AM CDT

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Wow that is a super turn out for the golf tourney. I hope this really helps the research on finding a cure. Love all the great pictures that you have up on the web. Kylie is such a ham for the camera, she's so cute
Love, Nikki
Nicole Schueller <nicole.schueller@spps.org>
St. Paul, MN USA - Friday, August 25, 2006 9:17 PM CDT

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So happy to hear the golf tourney was a success and that sweet Kylie is doing well. A daybed, how fun:) Hoping the home therapy will work out. Praying for Miss Kylie as always.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Thursday, August 24, 2006 10:04 PM CDT

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So glad to hear Kylie is doing well - we will continue to pray for seizure-free days. We will continue to keep you all in our thoughts & prayers. Lisa, Charlie, Tori & Makenna
Lisa Studiner <yolisao@comcast.net>
Cottage Grove, MN USA - Tuesday, August 22, 2006 8:07 PM CDT

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Hi Gibbons Family, so glad to hear the golf tourney was a success. Miss Kylie, I'm so glad you are feeling better and pray that health follows you ALWAYS. Maria...hugs to you for being such an awesome Mommy, your girls are lucky to have such wonderful parents. Hoping to see you soon, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Monday, August 21, 2006 11:56 PM CDT

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Gibbons Family:
wow what a success we had on saturday. that was amazing and you guys had so much help from everyone. im glad we were able to raise so much and i know that there soon will be a cure for miss kylie jo. i really do love the picture of her and me. it turned out great. if you could get me a copy i would love that. i hope to be seing you soon. we really do need to get our families together. to bad we didnt win that prize. :) well im continuing my prayers. good bless and good luck with the little ones.
love always♥ kiley jo
Kiley Jo <sevengibbs@msn.com>
Circle Pines, MN United states - Monday, August 21, 2006 10:04 AM CDT

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Congrats on your success! I hope things continue to go smoothly.

God Bless,
Susan
Susan Bernhardt http://www.caringbridge.com/mn/zacharybern <desbernhardt@msn.com>
Zimmerman, MN USA - Monday, August 21, 2006 6:30 AM CDT

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Congrats on the successful golf tourney and benefit !! I thank you on behalf of my son Elijah for raising awareness of TS and money for research . You go girl !

Eli & Fletcher
Michele
W-S, NC - Sunday, August 20, 2006 8:46 PM CDT

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Hoping you are feeling better Kylie and that your golf tournie turns out great!! You are the cutest little cowgirl I've seen around. Keep smiling, always praying for you and your family.
Amy
Amy Wilkie <anwilkie@charter.net>
Lakeville, MN - Saturday, August 19, 2006 9:59 PM CDT

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Dear Gibbons Family,
Good luck tomorrow! I hope that your goals are surpassed! I would like to be there but I have to go pick up my big boys from my moms house! Here's praying for good weather, good friends and for the sparkle to return to Kylie's eyes! Miss you guys and as always, praying for healthy days and happy babies! Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Saturday, August 19, 2006 7:51 PM CDT

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Gibbons family,
Good luck with the golf tournament and dinner, I hope you all have a great time. Sorry I can't be there, but I am stuck at work. I will be wishing you guys good weather and good thoughts for health.
alicia
alicia <alicia.villegas@att.net>
st paul, mn - Saturday, August 19, 2006 9:24 AM CDT

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Dear Neil and Maria,
Hope the golf tourney today is as successful as last year. I really admire both of you for undertaking such a task while raising two babies who don't walk, working full time, and dealing with a sick child. That would be enough on most people's plate. I know how many hours Neil has put in and his cousing Kelly has done so much. It is nice to see all of the support and love coming from so many family and friends. Kylie really has touched so many lives. She is such an amazing child, she may has TS, but it certainly doesn't have her. I, in all honesty have never met a little soul who is so loving, happy, and sweet. Any time I spend with her always leaves me in awe. I wish everyone knew her the way we do. Hope she is feeling well today and has fun meeting some of her fans.
Love,
Mom ( grandma Karen)
Karen Ueland <klpu@aol.com>
St. Paul, Mn - Saturday, August 19, 2006 8:26 AM CDT

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Hello Mom & Dad of dear Kylie - and Ava - - - Just want you to know we are CONSTANTLY 'checking in' on you guys!!! We are SO THANKFUL for each bit of GOOD NEWS!!! We are ALWAYS including this dear family in the special "God Bless" part of our prayers!!!! AND we will keep 'in touch', and thank you for this neat way to keep up with the 'news'!!! The Gibbons family is INDEED SPECIAL!!!!! Nord & Rog
Nord & Rog <RNSCHRAN@PRESSENTER.COM>
Stillwater, MN - Friday, August 18, 2006 11:40 PM CDT

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I hope Kylie is feeling better, you guys have a big day tomorrow! I hope all goes well with the tourney, it certainly looks like you and Neil have put a lot of work into it. It know it will be a big success!
Andrea Gerlach <nickndre@yahoo.com>
Woodbury, MN - Friday, August 18, 2006 5:15 PM CDT

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Kylie, Hoping the fevers go away and you start feeling better. Hope the golf tournment is a huge success and that you have tons of fun. Keeping you close in my thoughts and prayers.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, August 18, 2006 3:36 PM CDT

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Maria-
I will stop by and see you at Sensers on Saturday....say hi to My little Kylie Jo!
Nikki
Nikki
- Friday, August 18, 2006 12:27 AM CDT

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Hope that Kylie's temps stay down and that the seizure monster stays away. Hoping for a beautiful day for you guys on Sat. I'm sure that it will be tons of fun. Will continue to pray for seizure free days with lots of smiles and laughter.
Steph <stephiebecker81@hotmail.com>
White Bear Lake, MN - Thursday, August 17, 2006 4:42 PM CDT

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Hello Gibbons family... you might be onto something with the fevers. When we were going through things after the move I came across one of the notebooks that I used to keep track of Jonathan's daily stats when he was little. It reminded me of how often he spiked high temps. I remember they mentioned something about his hypothalamus (sp???). He spiked temps almost daily until he was about 3 1/2 and then things gradually got better. We also did end up removing his tonsils and adnoids around his 3rd birthday, so that might have been it as well, but perhaps it is TS related. Have you asked about it on the parent list??? I hope Kylie is feeling better today and that your golf tourney goes great!!! Love, Dawn
Dawn Schultz <dawn_schultz@msn.com>
- Thursday, August 17, 2006 9:21 AM CDT

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Hey guys...just want you to know that we are praying for you all! Hope the seizure monster won't rear it's ugly head! Miss Kylie...stay well so you can be thwe star everyone KNOWS you are!! Hugs from the Sickmann clan! Love, Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, MN - Thursday, August 17, 2006 7:33 AM CDT

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hello to you all.
yes isnt it amazing there are to kiley,kylie jo gibbons in our family. i am most definetly looking forward to the golf tourney this weekend :) should be very exciting. and i know that we can raise more money than last year. i just know it. hopefully you will have your camera, im sure you will, because i would love to get a new picture with kylie jo the two of us :) im bringing my friend katie. shes like a family memeber to us. you will love her. i read your entry today and your very welcome for all the help. when you said that you could win a babysitting and dinner... well i was thinking maybe you should just give that prize to our family. my parents could use it. sicne its been quite busy with all the sports around here and my grandma having a hard time. or instead our families could just get together because i would love to get to know you and the family better. and have kylie being able to recognize me. or you and neil and my mom and dad could all go out to eat and we take care of the kids and if anything your mom can come help us. im very excited to see both your babies on saturday. good bless and im still praying every night and for no seizures yayyy knock on wood. dont i sound like you :) well see you saturday love to you all.
love always. kiley
Kiley Jo Gibbons <sevengibbs@msn.com>
circle pines, mn united states - Tuesday, August 15, 2006 11:23 PM CDT

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Just wanted to wish all of you luck this weekend for the Kylie's Hope events!! Hopefully the weather will be as beautiful as it is today. Your family continues to bless our prayers each day in hopes that Kylie's amazing seizure free stretch continues. Both of your girls are just precious...it was good to see them at the Stroll. They have both gotten so big! Little blessings!
We'll be thinking of you this weekend...have lots of fun!
Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Tuesday, August 15, 2006 3:14 PM CDT

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Hello Girls,
Hope the girls let you get something done today. If not, enjoy their company. They are the sweetest babies I know.
Love,
Mom
Karen Ueland <klpu@aol.com>
- Tuesday, August 15, 2006 9:24 AM CDT

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Hey Gibbons family...
Checking in to see how you are doing. Hope you had a wonderful weekend and I look forward to seeing you at the tournament. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Monday, August 14, 2006 6:31 PM CDT

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Maria,
Just stopping in to say hi. Hope everything is going well.
Thinking of all of you everyday and praying Kylie stays healthy. Give the girls a big hug for me.
Donna
Donna M Jacobs <Donna.M.Jacobs@Seagate.com>
Burnsville, Mn - Monday, August 14, 2006 4:57 PM CDT

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Just thinking of you and your sweet, beautiful little girls hope everyone is doing great. Miss you and hope to see you around Love Stacey
Stacey Smith <SAllin1498@comcast.net>
Burnsville, MN USA - Sunday, August 13, 2006 9:07 PM CDT

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Kylie,Just stopping by to say hi and wishing you a wonderful summer.

God bless,love & hugs,Linn,Daniel & Ariel
The Marrero's <gillinn7@msn.com>
Port Orchard, wa usa - Thursday, August 10, 2006 0:47 AM CDT

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To get meds into LaRae when she was little, we used cotton candy flavored yogurt. NASTY!! But, she loved it and it covers the taste of medication pretty well. We know because we used it to cover prednisone.

Glad things are going so well!

Hugs,
Connie F-G <cdlfg@adelphia.net>
Colorado Springs, - Wednesday, August 9, 2006 8:15 PM CDT

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Maria and family. I got to meet you at the epilepsy walk last Thursday. I waslked with Drew's Crew and little Miss Kylie is absolutley beautiful. I did see Rand holdng her all eveing. I am sure they miss holding a baby, which is totally understandable. I will pray that she walks soon and that speech therapy goes well. Also praying for no more seizures.
take care
Lynn Miller <lmiller@businesscredit.com>
Anoka, MN USA - Wednesday, August 9, 2006 12:52 AM CDT

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Hi Neil and Maria

We got to meet your girl's at Justin's graduation party. Your mom and Kari brought them for a little while. They are both so beautiful and they were really happy. Hope to see you soon.


Jean Schrankler
Stillwater, MN - Wednesday, August 9, 2006 10:33 AM CDT

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Hi Kylie!!! Just wanted to let you know that I continue to pray daily for you and your family!!!! Keep Smiling :)


Jenny Ciannello- The Prayer Bears
http://www.caringbridge.org/visit/jamesciannello
Jenny Ciannello <jlciannello@optonline.net>
Basking Ridge, NJ - Tuesday, August 8, 2006 9:34 PM CDT

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Hello Gibbons family! Just writing to say I am thinking of you all and hoping you have a happy day!
Andrea Ueland <angelannie11@hotmail.com>
- Monday, August 7, 2006 3:35 PM CDT

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You're little girls are just beautiful. Thank you for your support during our diffucult new journey. We are adding you to our prayer list.
www.caringbridge.org/visit/skyler

Jamie Steinkamp <jlstei2@uky.edu>
- Friday, August 4, 2006 2:01 AM CDT

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Hi Maria and Kylie, I came across your site from Drew and McKenna's site and I have checked in to see Kylie's cute new pictures and updates for a month or so but this is my first time writting. I was so happy to meet her in person tonight at the walk. (We were part of Drew's crew also.) She was with Rand and she was holding on oh so ever tight to her elmo. I hope she is feeling better. I will keep you all in my thoughts and prayers.

Trina <ntjcp@yahoo.com>
Monticello, - Thursday, August 3, 2006 9:13 PM CDT

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Kylie,
Hope you are feeling better. I love your new pictures with the cowboy hat! Praying for you!


Your Friend, Kierstin Dublinske 14 months with TS <dublinske@sbcglobal.net>
Lees Summit, MO USA - Monday, July 31, 2006 9:48 PM CDT

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Kylie , hope you perk up soon honey . Maria , you need a rendevouz with a king size pillow ! Keeping you all close in my thoughts and prayers .

Eli & Fletcher
Michele
W-S, NC - Monday, July 31, 2006 7:57 PM CDT

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Hey guys, hope you are feeling better soon Kylie.
I work at kohls and this weekend (friday, saturday and sunday) there is a friends and family shop day where you get an extra 15% off. I was just wondering if you guys would like a coupon to go shoppin. If so, E-mail me back at ERQTERIN@aol.com with your address

Thanks! Erin
Erin mathison <erqterin@aol.com>
st.michael, mn us - Monday, July 31, 2006 2:15 PM CDT

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Kylie, So sorry to hear the heat wasn't treating you well. I hope you are starting to feel better so you can give your mom some big, happy smiles. Keeping you in my prayers.

Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Monday, July 31, 2006 10:45 AM CDT

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Maria... I am sorry to hear about your Grandma. I am praying that she is doing better. Gee, your family just can't get a break... please let me know if I can do anything. I will give you a call in the morning. Take care. Love you!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Friday, July 28, 2006 11:57 PM CDT

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Maria,
Hoping your Grandmother gets well......Also the hair cut story, Neil took Kelly on the golf course when they were like 3 yaers old, scissors in hand and cut his bands up to the very top of his forehead! Needless to say Jessie was not to happy!!!!! Hope you also can get some sleep.......such cute pictures of both the girls.......
Grandma-Kathi
Kathi <katgivvons@hotmail.com>
st paul, mn usa - Friday, July 28, 2006 2:52 PM CDT

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I started to read about Kylie awhile ago and although I don't know your family personally, I can tell the girls are in one, big loving family!! I have 3 young children myself but I often laugh out loud with the shenanigans your girls pull. Maria, you have a great sense of humor through this all! Keep up the good work!
Elizabeth Osborne <ejosborne@msn.com>
brooklyn park, mn - Friday, July 28, 2006 2:29 PM CDT

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Maria,
Sorry to hear about your grandmother Perit. Hope she comes out of it okay. I will keep her in my prayers. Hope Kylie stays healthy. Her cowgirl picture is so cute. Looks like she really loves to wear it. Little Ava is really growing fast. What a cutie. Sounds like you are not getting a lot of sleep. I pray that you don't run yourself down and get really sick. That would not be good. So make sure you take time to take care of yourself. Your family and grandmother are in my prayers. Take care. God Bless
Donna
Donna Jacobs <Donna. M. Jacobs@Seagate.com>
Burnsville, Mn USA - Friday, July 28, 2006 12:14 AM CDT

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Maria-
Prayers coming your way for your Grandma. I hope she is doing better today and will recover quickly. As always, our many thoughts are with Kylie and your family. Hoping you can get caught up on some sleep this weekend!!

Amy - Katelyn's mom <awoehnker@comcast.net (www.caringbridge.org/visit/katelynw)>
Cottage Grove, MN - Friday, July 28, 2006 11:03 AM CDT

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Maria...thoughts and prayers for your Grandma! I know you are struggling for sleep...I hope you find some soon! As for hair cuts...I got a buzz once when Hayden was a baby...NOT on purpose! I cried but as it was said somewhere else in your guestbook, LUCKILY hair grows! Here's hoping for quick hair growth, I know Kylie prides herself on her appearance! :) I'll come look for you tonight before I go home if I don't double! Gav is having fevers right now....going on 102 x 3 days but the doctor told me to wait one more day...we'll see. I have 2 friends whose kids are doing the same thing so hopefully, Kylie just caught the bug and it doesn't induce some fevers in her! As always we keep you in our prayers! Love and hugs, Nikki :)
Nikki Sickmann
Rosemount, mn - Friday, July 28, 2006 10:25 AM CDT

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LaRae was 15 months when she got the worst bang cut of her life! The guy put her bangs in between his fingers and I figured that looked good for trimming BELOW his fingers.....he cut above! It was horrible!!! Didn't have to take her in to get her bangs trimmed for months!

Remember, hair grows! Thank goodness you had that fabulous portrait taken BEFORE the bad hair cut.

Have a peaceful and restful weekend.

Hugs,
Connie F-G <cdlfg@adelphia.net>
Colorado Springs, CO - Friday, July 28, 2006 9:02 AM CDT

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Maria, Praying for your Grandma Perlt and a full recovery from the stroke. Continuing to keep sweet Kylie in my thoughts and prayers. Sending huge prayers that you will be able to get a good night's sleep.
Chrissy/Angel_Wings <cvanberkum@yahoo.com>
Vermillion, SD - Friday, July 28, 2006 8:46 AM CDT

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Kylie, Jason loves to look at you, smile, kiss the compter screen, and point and say girl, girl.. When i say can you say kylie, he says Ky. You two will have to have a play date some time. You two definately have the same personalities.
Erin and Jason <erqterin@aol.com>
St.Michael, mn us - Thursday, July 27, 2006 7:51 PM CDT

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Hey Maria...sounds like things are going well! I have to say though....if you are enjoying low key days and you are THAT busy, you need vacation! :) Here is hoping all stays ok at your house! Zoo anytime soon? Miss you! Nikki :)
Nikki Sickmann <hownnik@hotmail.com>
Rosemount, mn - Tuesday, July 25, 2006 1:40 PM CDT

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LOVE the new pictures Kylie is getting soo darn cute :)

Scott Ksiazek <sdksiazek@gmail.com>
Saint Paul, Mn - Tuesday, July 25, 2006 10:58 AM CDT

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It is great to read about all of the fun stuff you are doing and how you are enjoying every moment even in the midst of the teething. We will pray they come in quickly also.
My name is Susan and I met you at Hosanna! where we got to pray for Kylie. We are still praying and if you ever need us or have any specific prayer requests or want us to come and pray please contact me. You can reach me at the info. below. Have a wonderfully blessed week.
Susan Fannon <Susanf@hosannalc.org >
Lakeville, MN USA - Tuesday, July 25, 2006 9:32 AM CDT

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Hey Kylie!
I just found your site and thought I'd say hi!! You're a cutie!

With love,
Joanne and the Dream Team
~Simply Joanne~
~Bridge of Dreams ~
~The Prayer Bears Website~
Ones Who Care, SOEW




Joanne <joanne173@gmail.com>
Singapore, Singapore - Tuesday, July 25, 2006 0:42 AM CDT

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Maria- I Love the new pictures. You have got the cutest little girls in the world, they are so precious!
Steph <stephiebecker81@hotmail.com>
- Monday, July 24, 2006 9:45 PM CDT

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OH MY GOSH, I DIDNT KNOW IT WAS POSSIBLE FOR YOU TO GET ANY CUTER, BUT YOU SURE HAVE.... YOU ARE JUST BEAUTIFUL MS. KYLIE - SOUNDS LIKE YOU ARE BEING A LITTLE GIRL, JUST AS YOU SHOULD - ISNT AMAZING HOW WE LEARN TO APPRECIATE THE SMALL THINGS???? TAKE CARE SWEET GIRL -
LOVES AND HUGS
TANYA - NICKS MOM WWW.CARINGBRIDGE.ORG/VISIT/NICHOLASDEYO
TANYA <MYG@FRONTIERNET.NET>
- Monday, July 24, 2006 2:28 PM CDT

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Kylie, Maria~ what a beautiful picture of Kylie. She is such a sweetie! We have not signed lately, but have kept up. We send continued Prayers. We thought about when we visited Kylie, and also Zoey, and Caroline, and McKenna, when we were on 7940 this past week with Ryan. Maria, The strength you have as a mother is truly amazing. I had a difficult time with a couple days, and to think of the weeks,months, what amazing Strength and Grace you have. Many Prayers for Kylie's health. We pray for Shannon, and her family, what an emotional loss, although she has some great people helping her through. You are really sweet to extend a hand, when you have Kylie, and Ava, and all. Blessings, and Prayers to the Gibbons! Hugs and Smiles from Ryan, and Beth www.caringbridge.org/visit/ryanf

Beth Fahey
MN - Sunday, July 23, 2006 5:03 PM CDT

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HI Kylie, Just stopping in to let you know you are in my thoughts and prayers today and always. Prayers and bearhugs Love, Marci The Prayer bears
http://www.freewebs.com/prayerbears
http://www.caringbridge.org/visit/bryanandmark

Marci Connell <mac093@bellsouth.net>
Valdosta, GA USA - Sunday, July 23, 2006 1:17 PM CDT

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Hey Kylie, Ava, Maria, and Neil,
The new pictures are my most favorite. What a beautiful family you have. The girls look so cute! Lovin' the cowgirl boots. I hope you all have a great rest of the weekend. Take care!
Jody <jody_prudhomme@yahoo.com>
St. Paul, MN - Saturday, July 22, 2006 10:08 PM CDT

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Hi Maria,
The new pictures are cute. Hope work went well last night.
Mom
Karen Ueland <klpu@aol.com>
- Saturday, July 22, 2006 10:39 AM CDT

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