Thanks for visiting our guestbook!This is an open guestbook. Please feel free to add an entry to the guestbook for others to read.If you do not see your entry after adding - please click on reload/refresh
- your browser may not have loaded the new page. Click here to sign the guestbook. Click here to go back to the main page. Click here to view older guestbook entries. Happy birthday from Olivia....(kids ability) Shena Harrison St Paul, Mn - Sunday, October 16, 2011 1:34 PM CDT Happy belated birthday!!!! I didn't think it possible that you'd get prettier! : ) So proud of you...I was at your new school but you were busy so I'll be by another time. I hope you are having a great time. Always in my heart - Laurie Laurie Johnson <Bulliedogge@msn.com> - Sunday, October 2, 2011 12:17 AM CDT Happy birthday Kylie. Hope you had a great day. We cant wait to celebrate with you. We love you tons! Jody and nattie <Jody_prudhomme@yahoo.com> white bear lake, mn - Tuesday, September 20, 2011 10:21 PM CDT Happy Birthday sweetie pie. You are so amazing. I am so proud of all you can do. You have the best smile and such nice manners. You have come so far. We love you so much. Grandma and Grandp Ueland <klpu@aol.com> - Tuesday, September 20, 2011 9:11 PM CDT i i i i i i i HAPPY BIRTHDAY KYLIE i i i i i i i Happy, happy birthday Kylie, dear; May happy days come to you all year. If I had one wish, then it would be A happy, happy birthday to you from me! i i i i i i i HAPPY BIRTHDAY KYLIE i i i i i i i Angel Smiles and Blessings, Ms. Polly @ Angel Wings Prayer Warriors http://groups.yahoo.com/group/angel_wings Intermountain West, UT USA - Tuesday, September 20, 2011 9:40 AM CDT Happy Birthday Kylie !! I hope you have a wonderful day filled with love and surprises. Special hugs for a special little girl !! MJ/Angel_Wings MJ/Angel_Wings <marijeighn2010@gmail.com> - Tuesday, September 20, 2011 6:18 AM CDT Hey Kiddo! Just checking up on things...I keep your bracelet w/Caringbridge web site here at my desk. Happy but bummed you won't be at summer school. But I get it. You have a fun busy summer planned! I am now a Grandma (can you believe it?!) to a little 6 mo. old girl named Jocelyn. (Trust me, I tried for Kylie - Samantha said that's on the list for next baby if it's a girl). Wanted you to know you were thought of today - like most days. And with your new school - again, familiar friends! :) Enjoy your summer! Laurie Johnson <Bulliedogge@msn.com> Vadnais Heights, MN USA - Saturday, June 18, 2011 9:59 AM CDT Great update! We love you Ky! We look forward to spending time with you this spring. Your friends, Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Monday, April 25, 2011 9:50 PM CDT An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Tuesday April 19 between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. We Are Fighting For Our Children One Prayer At A Time.. If You Have A Specific Prayer Request Or Someone Who Is In Need Of Prayer Please Feel Free To Email Us At The Email Address Below. MJ/Angel_Wings and AngelWingsRemembers marijeighn2010@gmail.com MJ/Angel_Wings <marijeighn2010@gmail.com> Lawrence, MA USA - Sunday, April 17, 2011 7:58 AM CDT Just wanted to say hello. I know your life is busy with 3 children. I guess I just wanted you to know I still think about Kylie and the family and keep you in my prayers. Hope spring has been wonderful for you and that summer will be a delight. Glad Kylie got her dog, too. God bless you all. Beverly Atkins <bevwalks@aol.com> Clayton, NC USA - Friday, April 15, 2011 1:46 PM CDT An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Saturday, March 19th. between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. We Are Fighting For Our Children One Prayer At A Time.. If You Have A Specific Prayer Request Or Someone Who Is In Need Of Prayer Please Feel Free To Email Us At The Email Address Below. Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings <marijeighn2010@gmail.com> - Thursday, March 17, 2011 12:58 AM CDT Kylie~ We were so glad to meet you and your family at GKTW! We pray for you almost every night. Olivia wants me to tell you she loves you. Hope you had a great vaction! Please tell Ava hi for us! Melissa and Olivia Johnson <troymelissa@att.net> Collinsville, OK USA - Friday, March 4, 2011 3:53 PM CST An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Saturday, February 19th. between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. We Are Fighting For Our Children One Prayer At A Time.. If You Have A Specific Prayer Request Or Someone Who Is In Need Of Prayer Please Feel Free To Email Us At The Email Address Below. Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings <marijeighn2010@gmail.com> - Wednesday, February 16, 2011 6:46 AM CST Love to read all the progress Kylie is making. What a breath-taking picture of her! Praying for continued progress and no tumor growth! Chris Engman <christinee@hosannalc.org> - Friday, February 11, 2011 9:40 AM CST What wonderful news about Kylie!!!! We are sending continued prayers for your entire family, including that your toilet can survive! ;) Kari and Justin Ihle Brooklyn Park, MN USA - Wednesday, February 9, 2011 11:23 AM CST What wonderful news about Kylie!!!! We are sending continued prayers for your entire family, including that your toilet can survive! ;) Kari and Justin Ihle Brooklyn Park, MN USA - Wednesday, February 9, 2011 11:19 AM CST Miles looks like he'll be a GREAT addition to the family :) Marianne Donner <mdonner58104@yahoo.com> Fargo, ND USA - Monday, January 24, 2011 5:27 PM CST Maria, Your family is awesome. You are an inspiration to many. Your daughter is so special. Thank you for helping Melanie. The dog story was super neat. Your Mom did foward the link, it was great. Thanks again! judy smith <judysmith22@hotmail.com> st.paul, mn usa - Thursday, January 20, 2011 8:56 PM CST Congrats on your new dog!! Hoping things continue to go well for your family!! You all deserve it! I know I don't check on you as much as in the past, but I think of you often! And I guess, it's good that the updates are fewer and farther between - because you are doing things all children should be doing - going to school, playing with friends/siblings, hanging out with grandmas, grandpas, aunts, & uncles, just living life! Yeah for you! Kylie, I don't know you, but I have followed your story for several years and you will always hold a special place in my heart! Michelle Lunders - Saturday, January 8, 2011 11:24 PM CST Great story!!! What a wonderful addition to your family for Kylie. Love your new picture. They will surely be the very best of friends. God bless you all in 2011. Dawn Rainey <rainey@hbcsc.net> St. Charles, MN USA - Monday, January 3, 2011 1:29 PM CST Hi! Have followed Kylie for years and am so happy that she's doing so well. Loved seeing the video clip about Miles...and...was on CNN.com tonight and Kylie and Miles are on CNN!! Wow! Happy New Year to you guys. I hope 2011 is great for you! Amy Cieslicki Oconomowoc, WI USA - Friday, December 31, 2010 10:08 PM CST Happy Holidays to the Gibbons Family. Congrats on the new dog. My son Jackson Meyer is in Kylies kindergarten class, he has a picture she drew for him hanging on his bedroom door. I just realized after seeing her last name on the notepad Mrs. Kline gave them that Neil and I went to Como High School together. Small world. Kylie is adorarable and she is in our thoughts. Tara Simon <tarasimon18@msn.com> St. Paul, MN USA - Monday, December 27, 2010 11:07 AM CST my family wishes you a very merry christmas and a safe trip to get ms.kylie's dog. the Ksiazek's - Friday, December 24, 2010 7:15 PM CST What a great Christmas gift. Hope the transition goes well. Merry Christmas! Connie F-G LaVista, NE - Thursday, December 23, 2010 11:13 AM CST I am so excited that this is happening for Kylie. I hope Miles is the dog we have been dreaming of for her. It has been a lot of work and a lot of waiting. I hope it is all worth it. What a wonderful Christmas gift we will be getting. Love, Mom Karen Ueland <klpu@aol.com> - Wednesday, December 22, 2010 9:50 PM CST I am so excited that this is happening for Kylie. I hope Miles is the dog we have been dreaming of for her. It has been a lot of work and a lot of waiting. I hope it is all worth it. What a wonderful Christmas gift we will be getting. Love, Mom Karen Ueland <klpu@aol.com> - Wednesday, December 22, 2010 9:50 PM CST Kylie, What a great job you did on your dance performance. Keep up the good work. This thanksgiving Nattie and I are thankful for friends like you. We love you! Jody and Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Wednesday, November 24, 2010 12:33 AM CST An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Tuesday, October 19th. between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. We Are Fighting For Our Children One Prayer At A Time.. If You Have A Specific Prayer Request Or Someone Who Is In Need Of Prayer Please Feel Free To Email Us At The Email Address Below. MJ/Angel_Wings/AngelWingsRemembers Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings <marijeighn2010@gmail.com> - Saturday, October 16, 2010 3:34 PM CDT I wanted to stop by and WISH YOU A VERY HAPPY BIRTHDAY!! Hugs from NY, Danielle / Angel_wings Danielle H <mrshoward12565@yahoo.com> Kingston, NY - Monday, September 20, 2010 6:13 PM CDT Happy Birthday, Kylie you have always held a special place in our hearts. God knew just what he was doing when he gave our family the wonderful gift of you. We love you so much and are so proud of all you can do. I am happy you are "so happy" on your special day. Love, Grandma Karen Ueland <klpu@aol.com> - Monday, September 20, 2010 12:40 AM CDT HAPPY BIRTHDAY KYLIE !!!! I hope you have a wonderful day precious little girl, filled with love and surprises. Special big hugs for a special birthday girl !! MJ/Angel_Wings MJ/Angel_Wings <marijeighn2010@gmail.com> - Monday, September 20, 2010 6:38 AM CDT This is Michelle, who wrote the Bugle article last year about the Spooktacular fundraiser. I wanted to see if Kylie got her dog yet--I'm glad that you are so close to getting it. And I am happy to see that she is doing so well. I have thought of her and you often. Michelle Christianson <mlkchris@comcast.net> Saint Paul, mn usa - Wednesday, September 15, 2010 9:27 AM CDT Hello Gibbons Clan Number 2 I am so happy to hear that things are going so well! That is absolutely wonderful :) Kylie has come so far throughout the years. It's incredible. I can't believe she will be six soon. Ava and Sheamus are also getting so big. Time has flown by. All of your kids are adorable! I hope the new school year got off to a good start and that the girls are doing great! Praying for you guys always and hoping for the best. Love to you all. God Bless ♥ Kiley Jo Gibbons <gibbonkj@uwec.edu> Circle Pines, MN US - Tuesday, September 14, 2010 9:01 AM CDT Hey Kylie! So proud of you... I am going to miss the start of a new school year without you but so happy that you're starting K! It has been awesome to watch your growth & be a part of your amazing life. You are such an inspiration to me. Crazy windy & chilly outside for your first day. But, I hope it's a fun one! You will see a a couple of familiar faces of friends you've made & that will make you smile. You are a very special girl to me having spent so much time together & you being in the first group of kiddos I had when I started. Cannot believe all of you are in K! I'm hoping when things settle down, I can visit because one thing I'm going to miss most is that beautiful smile!!!! Take care - Love, Laurie Laurie Johnson <Bulliedogge@msn.com> Vadnais Hts., MN USA - Tuesday, September 7, 2010 10:02 AM CDT Glad to hear things are going well - your kids are adorable and you can tell Kylie is a proud big sister! Will continue to keep her in our prayers. You're doing a great job with her! Lisa Studiner <lstudiner@msn.com> Cottage Grove, MN USA - Sunday, August 29, 2010 10:20 PM CDT An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Thursday, August 19th. between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. If you have someone you would like us to pray for or a special request for yourself, please don't hesitate to let us know.. MJ/Angel_Wings/AngelWingsRemembers Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings <marijeighn2010@gmail.com> - Sunday, August 15, 2010 10:11 AM CDT Glad to see everything is going fairly well for your family. I have really enjoyed having the kids over to swim, especially ava...she is a trip.!!!hope the fam can come over soon to cook out!!! jessie gibbons <jessieg@mayflowerdistributing.com> st paul, mn usa - Wednesday, July 28, 2010 9:27 AM CDT Hi Sweet Girl, I enjoyed spending some time this week with you and Ava. I love it that you can tell me you are happy. You are such a sweet little person and I love you very much. Neenama Karen Ueland <klpu@aol.com> - Thursday, July 1, 2010 10:17 PM CDT An Invitation To All Prayer Warriors The Prayer Warriors at Angel_Wings will be holding a Prayer Vigil on Saturday June 19th. between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children,teens and adults who have gained their wings. If you have someone you would like us to pray for who is not on our payer lists please don't hesitate to let us know.. MJ/Angel_Wings/AngelWingsRemembers Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings and AngelWingsRemembers <marijeighn1@gmail.com> - Monday, June 14, 2010 9:04 AM CDT Great job today Maria on another fun event! I hope you get some time to relax now. Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Sunday, May 16, 2010 10:35 PM CDT Hi Kylie! It was so much fun getting to play with you for a bit at the park the other day. We are gearing up for the walk in a week or so. Lets all hope we get a wonderful May day. You are growing up so fast! We love you very much! We are so lucky to have a little friend like you. Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Monday, May 3, 2010 7:58 PM CDT Hi Kylie Just coming by today to say HI and that I hope you are having a wonderful weekend. Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> - Sunday, April 25, 2010 10:27 AM CDT Hello all! I am so happy to hear that things have been going so well for Kylie and the whole family! I'm still keeping you all in my thoughts and prayers and hope that everything continues to go well! Miss you all! Have a good weekend :) Love, Kiley Jo Kiley Jo Gibbons <gibbonkj@uwec.edu> Circle Pines, MN United States - Friday, April 16, 2010 8:47 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Monday, April 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us! Angel_Wings Prayer Warriors AngelWingsRemembers MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings <marijeighn1@gmail.com> - Wednesday, April 14, 2010 12:26 AM CDT Thinking of you, sweetie pie. Angel Hugs and Smiles, Ms. Polly @ Angel_Wings Prayer Warriors http://groups.yahoo.com/group/Angel_Wings - Tuesday, April 6, 2010 8:46 PM CDT Happy Easter to my sweet little girl, Kylie, I love spending time with you. You are an amazing, beautiful, sweet, loving child. I am so happy you are doing so well. We all love you very much. Love, Neenama ( Grandma) Karen Ueland <klpu@aol.com> - Sunday, April 4, 2010 7:43 AM CDT I pray that you and your family have a blessed and joyous Easter. THIS DAY'S GREATEST GIFTS We can't change the past… But we can gather up It's lessons and move on, Stronger and wiser. We can't control the future… But we can send our dreams Ahead of us To help prepare the way. We can live each moment… Heart and soul, And cherish this day's Greatest gift… The gift of now. May peace with the past And faith in the future, Gently guide you through each Precious moment of Today. MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> - Friday, April 2, 2010 7:56 AM CDT Hi there! Just stopping by to let you know I'm thinking about you and praying for all of you tonight. Angel Hugs and Blessings, Ms. Polly @ Angel_Wings Prayer Warriors http://groups.yahoo.com/group/Angel_Wings Heart of North Dakota, ND USA - Saturday, March 27, 2010 8:12 PM CDT Dear Maria, I just read your note to Westin's family in his guestbook. Thank you so much for your compassion and kindness in reaching out to this family. They are so very much in need of your prayers. I am heading to doctor today to seek help with sleep; yesterday, I went through a red light (thankfully in my own neighborhood) with my younger son in the backseat. I was aware of what I was doing, but it didn't register as "wrong" until I had driven through the light. I am so thankful that God protected us, and gave me a sign that it absolutely is time to seek help with sleep. Please pray that it works! I'll bet your kiddos are getting excited for Easter, and for Shae's birthday (still can't believe he's almost one!). I'm sure all three will look absolutely adorable, and I look forward to pics. Am hoping and praying that all continues to go well with Miss Kylie. She is such a cutie pie, and she deserves every happiness life can send her way, for a change -- you all do. You've prepared her so well to bring her own special gifts to the world -- it will be great to come along for the ride and watch her shine in the years to come. Thanks so much again -- see you on FB sometime (I don't have much time to get on there, but I'll look for ya when I do!). Love, Janet Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, March 23, 2010 10:16 AM CDT Hello Kylie, I had fun with you kids this weekend. You are the sweetest little girl. I had tears in my eyes at church yesterday when you said " I yuv baby Jesus" Baby Jesus loves you too, very much. Love, Grandma Karen Ueland <klpu@aol.com> - Monday, March 22, 2010 9:13 PM CDT Hey, Maria, I am thrilled to read your latest update! I am glad everyone is doing so well, especially Miss Kylie. I know February is usually a "jinx" month for seizures, so I am especially happy to see that for once, it did not "curse" you as in the past. I know how you feel about possibly jinking things, but perhaps Kylie's path is finally being carved out for her,so that she can continue to just take off like crazy. Good Lord, it sounds likeyou need at least another pair of hands with that Miss Ava, but Ihave to laugh at her antics and at what comes out of her mouth --easy to , cince I don't have to deal with it, I guess. :) I cannot bellieve that your boy is going to be 1! That just doesn't seem possible. He sounds like he's a real ladies' man, and as adorable as he is, I think tthis is just the beginning with him in that department.... I will pray that kindergarten is a positive experience for Kylie --I have a feeling it will be. Yes, kids can be cruel, no doubt, but they can also be unbelievably sweet, as youhave seeen in your own house. I am glad that she will be close by at school, and am also glad she will bhave one of her therapists working with her again next year. Yes, you will cry when she goes to kindergarten, no matter what --it's one of the rites of passage we moms have to go through -- but I think you will have many happy moments and peace of mind once she settles in. She may be behind, but she is making such great strides. I believe she will do great in the friends department, and will draw those children who will be true, good friends for her. That is a concern every year, I tell you, even when they hit high school, but you just have to do what you can to make THEM be the kind of kid who will attract the right kind oe people, and when you do, that is at least half the battle. I think Kylie is naturally that kind of kid, and you have opened so many doors for her and guided her along the right paths, and I believe she will do just fine. It's never always smooth sailing, but I know you will have many, manymoments when you will be ust bursting with pride about not only what she is able to do, but who she continues to grow and become. Well, it's late and I should sign off, though I know I won't sleep. I do have to share one piece of horrible news for you (which is at the root of why I can't sleep). Three weeks ago today, my precious, beautiful, sweet Westin left us unexpectedly to be with Jesus. It was 8:36 a.m.EST on Friday, Feb. 26. It feels like forever. I flew to SW Virgiinia to be with his family starting the next day. My husband could only stay until Sunday, as he had to be back here for work and our boys' school. I stayed until that Thursday, but a huge part of me has never left..... I have never, ever known grief so great that at times it is hard to breathe. I know what it's like to hold his mother and his sisters ad his grandparents, to whisper promises to him and kiss him while he lies cold and still, and to speak to and about him at his funeral, and even to stand in the falling snow while a prayer is read and balloons are released at his resting place, but still, it doesn't seem real. It just feels like something is terribly, terribly wrong, but there's no way to fix it. Please pray for his family, expecially his mother, in whose arms he died, asking "Help me mommy!" and his litlest big sister and bestest friend, Emma (8), who was his security blanket and who now desperately needs one herself. They are ALL missing him, but it is his mom, Julie, and Emma who were with him the most, 24/7, with his maternal grandparents not far behind. If you have the time, please drop them a note in Westin's guestbook t www.caringbridge.org/visit/westindietz. The support of others, as well as their faith, are all that enable them to move through each moment at this time. Thank you from the bottom of my heart, Maria. Any small comfort that can be brought to them means everything to me. As you know far too well, seeing someone you love in so much pain and not being able to take it away is hell in and of itself, and that's part of my world now..... I'm certain Westin is whole and even happy, but it wasn't supposed to happen like this. I'll bet you he has met Caroliine, and together with her is giving the angels up there a run for their money -- they both were so mischieviousand full of energy that they just have to have met -- but the angels are laughing, even as they must chase after them. Ijust hope Westin hasn't broken too many things up there..... Well, time to try and prepare myself for sleep. Thank you so much again, Maria, and please know I will keep sending up the prayers for all of you -- it makes me so happy to read such a good update, and I pray this is just the beginning for your family. Love, Janet Janet McCann <janet@mccann-family.us> Austin, TX - Saturday, March 20, 2010 1:32 AM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Friday, March 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us! Angel_Wings Prayer Warriors AngelWingsRemembers Shar Longmont, CO - Sunday, March 14, 2010 12:25 AM CDT Hi Kylie, I haven't signed for awhile. I am glad you are doing so well. You and Ava are such good friends, it is nice to see how much you love each other. Shea is lucky to have two such wonderful sisters. Love, Grandma ( Nee-nee ma) Karen Ueland <klpu@aol.com> - Tuesday, March 9, 2010 12:56 AM CST Hi, sweetie pie! We are sending you oodles of angel hugs, praises and prayers. Keep up the good work! You are one beautiful and amazing Princess. ♥ "Trust in Him at all times, O people; pour out your heart before Him; God is a refuge for us." ~~ Psalm 62:8 Angel Hugs and Blessings, Shar and Ms. Polly @ Angel_Wings Ms. Polly @ http://groups.yahoo.com/group/Angel_Wings Heart of North America, ND USA - Monday, March 8, 2010 6:59 PM CST Hi Kylie and Family I am so thankful for your good news for the check up. I will be praying for Kylie to do great in kindergarten and that everyone will see what a precious little girl she is. Ava sounds like she is going to give you a run for your money, chocolate indeed LOL Please know that I am thinking about you all and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings <marijeighn1@gmail.com> - Friday, March 5, 2010 11:44 AM CST Hey, Such great news on the recent update of Kylie. That makes me sad hearing your worries of someone being mean to this sweet little person. Kylie has overcome so many things in her little life. She will do awesome in kindergarten! She was so happy when I saw her today... smilin'... playing Cat in the Hat and laughing. She cheered me right up. You are amazing parents to your little 3 and great friends too. I love you guys. You're the best! Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, March 4, 2010 11:17 PM CST I'm so happy to hear that Miss Kylie is doing so well! I think of my Lexi, being in Kindergarten now, and can't imagine her or really any of the kiddos in her class being mean to a little girl like Kylie. I think for the most part, kids are more sensitive, wanting to help, noticing that they may be needed than the fact that she may need something. Unless of course the parents have already put some negative bug in their mind. I will pray for her, I'm sure she's gonna do great! I can't believe Shea is going to be one already! WOW! Time has gone fast this past year! I remember Shannon carrying him on the walk last year, he was such a little peanut! Lil Ava...she just plain cracks me up! I love her spunk! She will definitely keep you on your toes! Hopefully I'll be seeing you soon ;-) We maybe have some planning to do!! Take care! ~Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, - Wednesday, March 3, 2010 9:44 PM CST Hi Kylie I hope all went well for your tests and that you are well and happy. Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings <marijeighn1@gmail.com> - Wednesday, March 3, 2010 2:29 PM CST The Gift The priceless gift of life is love, For with the help of God above Love can change the human race And make this world a better place- For love dissolves all hate and fear And makes our vision bright and clear So we can see and rise above Our pettiness on wings of love. ~Helen Steiner Rice HAVE A WONDERFUL VALENTINE'S DAY MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Lawrence, Ma - Sunday, February 14, 2010 8:20 AM CST Hi Kylie and Family I pray that all went well for your procedure and that your recovery is going fine. Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Lawrence, Ma - Friday, February 12, 2010 4:57 PM CST Hi Kylie and Family I pray that all went well for your procedure and that your recovery is going fine. Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Lawrence, Ma - Friday, February 12, 2010 4:55 PM CST Ka Ka... Little Nattie was looking for you tonight through her princess pictures! We love you and hope you are having a good night! Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Monday, February 8, 2010 9:43 PM CST Hello there Kylie, Wanted to stop by to let you know that I am keeping you in my thoughts and prayers sweetie. Pray all is going well. Hugs sweetie, Mrs.Shar,Angel_Wings Colorado Shar Anderson Longmont, CO - Monday, February 8, 2010 5:51 PM CST Good Morning Kylie, Stopping by to let you know your in my thoughts and prayers sweetie. I pray all is going well for you. Lots of hugs and prayers. Mrs.Shar, Angel_Wings http://groups.yahoo.com/group/Angel_Wings Colorado Shar Anderson <sharseagelsoar@q.com> Longmont, CO - Friday, January 22, 2010 4:53 AM CST Hi Kylie and family I have been away for awhile and wasnt able to visit but you are always in my thoughts and prayers. Please know that you are surrounded by love and prayers. I hope you are having a wonderful weekend. Hugs and Blessings MJ/Angel_Wings <marijeighn1@gmail.com> Lawrence, Ma - Saturday, January 16, 2010 5:03 PM CST AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Tuesday, January 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us! http://groups.yahoo.com/group/Angel_Wings Shar Anderson <sharseaglesoar@q.com> Longmont, CO - Tuesday, January 12, 2010 7:36 AM CST Hello there Kylie, I am stopping by to let you know that your still in my prayers sweetie. You have such a pretty smile and hope you let the world see that smile daily. I think of you and pray for you often darlin. Sending you Big Gentle Hugs, Lots of Angel Kisses, and Mountains of Prayers. Mrs.Shar, Angel_Wings Colorado Shar Anderson Longmont, CO - Monday, January 11, 2010 12:33 AM CST Dear Gibbons family, Merry Christmas and Happy New Year! I hope your holidays found everyone happy and healthy, and that this new year brings more of the same. Thanks so much for sharing your Christmas card and letter on Miss Kylie's site. The kids are GORGEOUS, and they all seem to be growing up so fast! It may be just me, but I think that little Shae looks like his biggest sister..... It sounds like things have been moving at their usual whirlwind speed around the Gibbons householw, and I am glad that everyone is able to get involved in so many activities and live such a fulfilling life -- Mom and Dad, you do a GREAT job of offering your children so much abd helping thme find paths that their little hearts want to follow -- they are very lucky children, indeed! I am home from Masachusetts (where I grew up) and am bone-tired from a day-long trip (despite it being mostly air travel!followed by a day of winter allergies (only in Austin...) and CFS doday, so I'll be making this short. Please know that all of you remain in my thoughts and prayers each day, evin if I don't always have time to check in on you every day and sign the guestbook. I'll be llooking forward to Kylie's Hope and/or other chances to help you fight TS -- keep me and Kylie's other "fans" up to speed! Wishing you many blessings in the coming year, Janet Janet McCann <janet@mccann-family.us> Austin, TX - Friday, January 1, 2010 10:14 PM CST Happy New Year Kylie Jo! We are wishing you all the best this upcoming year. We love you so much! Keep on smilin! Your friends, Jody, Jeff, and Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Friday, January 1, 2010 10:33 AM CST Hello Kylie sweetie, I wanted to stop by and let you know that I am praying for you sweetie. I hope you had a wonderful Christmas. I pray your day today was a good day. Hugs and Angel Kisses, and Mountains of Prayers I am sending to you. Shar Anderson, Angel_Wings Prayer Warriors Shar Anderson Longmont, CO - Wednesday, December 30, 2009 5:37 PM CST Merry Christmas! Glad all is well. Here's to a great new year! Lisa and Katelyn - Saturday, December 26, 2009 10:46 AM CST Merry Christmas Gibbons Family. I love the card and letter. WOW you are sooo busy! Happy New Year and good luck with the kids' surgeries. Love Christie and Family Christie Fleischhacker <christie421@hotmail.com> - Friday, December 25, 2009 10:08 PM CST Merry Christmas to you all. Love your letter and picture. Your kids are getting so big and Shea looks completely adorable in his glasses. Wishing you a very bright, happy year ahead. Kim McClintick Lincoln, NE - Wednesday, December 23, 2009 3:55 PM CST Hi Kylie- Hope that you are enjoying your holiday season and doing well. Keeping you in my thoughts and prayers. God bless Debbie/Angel_Wings - Sunday, December 13, 2009 7:55 AM CST Happy Thanksgiving Kylie, I am so thankful to have you and your little sister and brother in my life. You are such a little love. Everyone who meets you has a special place in their heart for you. You touch everyone you meet. Love, Grandma Karen Ueland <klpu@aol.com> - Thursday, November 26, 2009 9:57 AM CST HAPPY THANKSGIVING KYLIE AND FAMILY. I hope you have a wonderful, blessed day today with your family and friends. I am so thankful today for our prayer ministry which allows us to meet and pray for so many wonderful children and their families. Thank you so much for sharing your special family with us. Hugs and Blessings to all of you. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Thursday, November 26, 2009 7:35 AM CST Happy Thanksgiving from all of us at Angel_Wings Thank You, God, for everything ... The big things and the small, For "every good gift comes from God" ... The Giver of them all. And all too often we accept Without any thanks or praise, The gifts You send as blessings Each day in many ways. And so at this Thanksgiving time, We offer up a prayer; To thank You, God, for giving us A lot more than our share. First, thank You for the little things That often come our way; The things we take for granted And don't mention when we pray. The unexpected courtesy, The thoughtful, kindly deed, A hand reached out to help us ... In the time of sudden need. Oh, make us more award, dear God, Of little daily graces, That come to us with "sweet surprise," From never-dreamed-of places. Then, thank You for the "miracles" We are much too blind to see, And give us new awareness Of our many gifts from Thee. And help us to remember That the "key" to "life" and "living," Is to make each prayer a "prayer of thanks," And every day THANKSGIVING. ~ Helen Steiner Rice ~ MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner , Ma - Monday, November 23, 2009 12:51 AM CST AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Thursday, November 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us!! Angel_Wings MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings <marijeighn1@gmail.com> Gardner , Ma - Sunday, November 15, 2009 9:33 AM CST Hello, I was searching... and i found yous daughters caringbridge, my daughter also has TS and we have known since she was 8 months old.. she is now 7. Please visit my daughters at www.caringbridge.org/visit/christinamendez She is due for another surgery on the 17th of this month, and i need all the prayers i can get!!! They did surgery last year on one of her tumors, and it grew back plus another one they are planning on taking out... we will be at seattle childrens. Your daughter is so precious!!! oh BTW!!! We noticed our daughter has white hairs, we didnt know until i read your daughter has some as well, it might be linked to the disease...? Thank you Amberly Amberly Mendez <amberly_rose_@hotmail.com> Anchorage , Ak usa - Thursday, November 12, 2009 4:34 AM CST I'm glad to be able to be part of Kylie's journey, even if it's only being a friend to her Mom. Ann Malecha <19peonies@comcast.net> Saint Paul, MN USA - Wednesday, November 4, 2009 6:49 PM CST OH!!!! It is SO great to read your journal!!!! Thank you, Maria, for keeping us posted on the activities of the NEAT Gibbons' family - - and you are ONE BUSY FANTASTIC BUNCH!!!! We are waiting to hear the indeed the dog is going to be a BIG help, how terrific!!!!! SO best wishes are ALWAYS sent your way, and LOTS of love is ALWAYS sent your way!!!!! We'll keep checking in!!! Nordis (& Roger) Nordis Schrankler Stillwater, , MN - Tuesday, November 3, 2009 8:55 PM CST OH!!!! It is SO great to read your journal!!!! Thank you, Maria, for keeping us posted on the activities of the NEAT Gibbons' family - - and you are ONE BUSY FANTASTIC BUNCH!!!! We are waiting to hear the indeed the dog is going to be a BIG help, how terrific!!!!! SO best wishes are ALWAYS sent your way, and LOTS of love is ALWAYS sent your way!!!!! We'll keep checking in!!! Nordis (& Roger) Nordis Schrankler Stillwater, , MN - Tuesday, November 3, 2009 8:54 PM CST Hi guys, It was great to see you on Saturday. What a great turn out! Waiting to see the numbers. Let us know :-) Monica Quist <Mokiemae@yahoo.com> St Paul, MN USA - Tuesday, November 3, 2009 4:25 PM CST kylie and family, it was great to see you all and was awsome that we had everyone show up for your event. Scott Saint Paul, mn USA - Tuesday, November 3, 2009 8:34 AM CST Hi Kylie and Family I hope everything went great for your party!! Please know that I am thinking about you and keeping you close in prayer always. Hugs and Blessings MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Monday, November 2, 2009 10:13 AM CST Hi Maria, I hope those pumpkins work out great for you guys. I didn't get a email so please send it again if possible to both my emails. Mokiemae@yahoo.com See you Saturday. Thanks! Monica Qusit <Monica.M.Quist@wellsfargo.com> St Paul, MN USA - Monday, October 26, 2009 1:47 PM CDT Hi Maria, I hope those pumpkins work out great for you guys. I didn't get a email so please send it again if possible to both my emails. Mokiemae@yahoo.com See you Saturday. Thanks! Monica Qusit <Monica.M.Quist@wellsfargo.com> St Paul, MN USA - Monday, October 26, 2009 1:42 PM CDT Just noticed your birthday ticker still says you are eagerly anticipating baby #3, boy that's a long pregnancy!! = ) Rachel - Tuesday, October 20, 2009 8:32 AM CDT Hi Kylie, I am so happy we got the approval for your siezure dog. I hope we get a lot of people come for our Halloween event to get the money for your dog. I love you so much. Love, Grandma Karen Ueland <klpu@aol.com> - Thursday, October 15, 2009 5:49 PM CDT To All Prayer Warriors The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Monday, October 19th between 8-9 pm EST for all of the families on our Angel Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Please Join Us MJ/Angel_Wings and AngelWingsRemembers Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Wednesday, October 14, 2009 7:21 AM CDT Hi Kylie and Family I am so thankful to hear your vigabatrin has been approved. I hope that Ava will soon like school. Please know that I am thinking about you all and keeping you close in prayer. Hugs and Blessings MJ/Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Tuesday, October 13, 2009 3:12 PM CDT Hi Ka Ka, I miss you! I hope to see you soon! Your friend, Natalou! Jody Prudhomme <jody_prudhomme@yahoo.com> st. paul, mn - Sunday, October 11, 2009 11:40 PM CDT Happy birthday to Kylie, and thanks Mom for reminding us to remeber the blessings of life each and everyone of us have, and sometimes we forget. You were chosen to be Kylies Mom as you are the best-and continue to be a great one for all three of your babies. Proud and still parying for you all. cousin's Jane and Bill Jane Dahlin <dahlinjane@comcast.net> Hudson, WI USA - Thursday, October 8, 2009 6:39 AM CDT happy belated birthday to KYLIE , i'll be by with some balloons soon........... jessie gibbons <jessieg@mayflowerdistributing.com> st paul, mn usa - Friday, October 2, 2009 12:32 AM CDT OMG - I FEEL HORRIBLE!! I completely forgot about Kylie's BIG BIRTHDAY!!!! UGG!!!!!!!!!!! WAAAAAAAAAAAAAAA - you have such a way with words Maria... HAPPY 5th BIRTHDAY KYLIE JO!!!!!! I hope your day was extra special - JUST LIKE YOU!!!! HAPPY 6th ANNIVERSARY MARIA & NEIL!!!! I hope you enjoyed your special day..... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, October 1, 2009 1:42 PM CDT Dear Kylie, Your moms' birthday message brought tears to my eyes. Okay, I copied that from Grandma but it did! Hi Gibbons Clan2 All of last week I was planning on wishing Kylie a happy birthday and totally missed it, so... HAPPY BIRTHDAY!! See you at the spooktacular. The Gibbons Clan Kelly Gibbons <kelly@allbritesign.com; sevengibbs@msn.com> - Wednesday, September 23, 2009 11:55 PM CDT Dear Kaylen ,you may not remember me that well but I go to SPN school im Brandon Bonona. Im in Miss Burns class rome now ,but any ways ,I no it must be tuff having cancer, but just remember that God has a plan for you, he is always with you anywhere , just remember that at St.Philip Neri we are praying for you your friend, Brandon Bonona Brandon Bonona <sonnieh@cox.net> metairie, LA United States - Wednesday, September 23, 2009 7:42 PM CDT HAPPY BIRTHDAY DEAR KYLIE!!! I hope you have had an amazingly fun day! Love you! Happy Anniversary, Neil & Maria! Thinking of you all today! ~Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, mn - Sunday, September 20, 2009 7:14 PM CDT HAPPY BIRTHDAY PRECIOUS KYLIE !! I hope you are having a wonderful day filled with love and surprises. Hugs to a very special birthday girl. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Sunday, September 20, 2009 3:54 PM CDT Hi Kylie, Happy 5th birthday hope it is soo much fun!!!!! We will have to get you something any idea's? Love you!! Molly Raths and Katie Wollmering <mollymouse777@gmail.com> St.Paul, MN USA - Sunday, September 20, 2009 2:47 PM CDT Happy Birthday Kylie!! Have a great day! Debbie/Angel_Wings - Sunday, September 20, 2009 10:03 AM CDT Dear Kylie, Your moms' birthday message brought tears to my eyes. You have indeed brought so much joy and happiness to our family. You are so special and touch the lives of people who know you and love you. The older you get the more beautiful you become. I love your hugs, your smile, your specialness. I hope this year brings you health and happiness always. I think we have all learned not to worry about what you can't do, but to cherish you for the wonderful little girl you are. We love you very much. Grandma and Grandpa P.S. Grandpa does the best Sesame street voices for you doesn't he? Karen Ueland <klpu@aol.com> Saint Paul, Mbn - Saturday, September 19, 2009 9:19 PM CDT Happy Birthday Ky! I hope you have a wonderful, fabulous day tomorrow! Much love to you, Nena, Scott, Griffin and Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN United States - Saturday, September 19, 2009 8:51 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Saturday, September 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Tuesday, September 15, 2009 1:01 PM CDT Maria and family - It was a nice surprise to see you at the parish picnic/school open house yesterday. Everybody looks like they are doing great. The kids are darling and growing so much. You are always in my prayers. Please be sure to have your mom contact us about the fundraiser for Kylie's seizure dog. We would love to help if our schedule permits. Keep growing strong Kylie and bless you and your family. Lynda Lynda Eberhard <lynda.eberhard@cstlaw.com> Roseville, MN US - Monday, September 14, 2009 9:17 AM CDT Hi..we saw you at the fair yesterday! Kylie looked like she was having a great time!! Julie <juliejth@aol.com> Fridley, mn - Tuesday, September 1, 2009 7:58 AM CDT Hi Kylie Thank you so much for the new pictures they are beautiful. I hope you have a great time at preschool. Please know that I am thinking about you and keeping you close in prayer. MJ/Angel_Wings <marijeighn1@gmail.com> - Friday, August 28, 2009 10:06 AM CDT gibbons clan, had a great time at the golf tournement, glad you had a good turn out. molli from Arizona also had a good time.its great to see kylie getting bigger and bigger, she always seems so happy!!! bless you all jessie gibbons <jessieg@mayflowerdistributing.com> st paul, mn usa - Wednesday, August 19, 2009 12:04 AM CDT As a read your entry I can't help but relate... this disease turns our lives upside down... I think most families just watch their kids develop - never giving much thought to when their kids do things, but with TS suddenly we watch even our non-TS kiddos closer. Kaylee has white spots too and they look just like Jonathan's and some are in the same extact spots as his. She tests negative - still mskes me stop breathing every time I see the spots ... can't help but question the test results. But... I've also noticed that lots of other kids have the same spots and their parents don't even know to worry - they're lucky in a way - I mean that they don't know enough to worry. I guess it's really out of our control... just wish no parent ever had to hear the words your child has Tuberous Sclerosis. Thanks for all you do to promote a cure... Have a wonderful tourney!!! Dawn <dawn_schultz@msn.com> - Thursday, August 13, 2009 9:11 AM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Wednesday, August 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Angel_Wings Debbie/Angel_Wings - Thursday, August 13, 2009 9:08 AM CDT Hi Gibbons Clan! I am so happy to hear that Kylie has been doing well, at least according to your last journal entry. She is getting so big and beautiful, as are your other two children! I am coming home early from camp and am so thrilled that I get to go to the golf tourney now! I can't wait to see you all! I am continuing to pray for you guys daily. God Bless and love you all! See you soon. ~Kiley JO Kiley Jo Gibbons <GIBBONKJ@uwec.edu> Circle Pines, MN United States - Wednesday, August 5, 2009 10:43 AM CDT I'm glad you don't have much to report - must be a relief. Looking at the new picture of the two of you - there's no baby left in Kylie. She is definitely a little girl, that was a strange realization for me when mine did that! Hope all is well, and continues that way. Maybe mom and dad will get some sleep? Katie <kfiebes@hotmail.com> - Monday, July 27, 2009 1:55 PM CDT Hi! Just dropping in to see how our girl is doing. I love the picture, mom & daughter are adorable!! It's also great to hear how well the other two are doing. You have a beatiful family! We're still praying for you in Cottage Grove. Hugs & Prayers-Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Monday, July 27, 2009 9:25 AM CDT Morning Kylie Just wanted to say good morning and to let you know that I am thinking about you beautiful little girl and keeping you in my prayers always. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner , Ma - Friday, July 24, 2009 8:39 AM CDT Hi Gibbons Family! I know I will see you tommorrow but I still like checking in. Kylie, I can't tell you what a joy it is to see you almost every day during the week. You always seem to be greeting people at the door with a big grin on your face. Sometimes we are lucky enough to get kisses too! We are blessed to have a friend like you in our lives! Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, July 16, 2009 10:40 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Sunday, July 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us!! Angel_Wings MJ/Angel_Wings and AngelWingsRemembers MJ/Angel_Wings and Angel Wings Remembers <marijeighn1@gmail.com> Gardner, Ma - Tuesday, July 14, 2009 8:24 AM CDT Hi Kylie and Family Just dropping in to say HI !! Hope you are having some fun times this summer. Hugs precious young lady. Please know that I am keeping you in my thoughts and prayers. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, - Tuesday, July 14, 2009 8:24 AM CDT Thinking of you all tonight. Much love from us in Northern MN! Nena and boys www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Thursday, July 2, 2009 10:56 PM CDT Hi guys-just dropping to say hi! Love the picture of big sister holding little brother. Have a great 4th of July. Hugs & love from Cottage Grove. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, June 30, 2009 11:19 AM CDT Hello Kylie and family, I´m from Germany, my daughter Franzisca has TSC to. She looks like you. www.repage3.de/member/franzisweg Doris <patlu78@aol.com> - Monday, June 29, 2009 12:26 AM CDT Just stopping by to say HI. Have a happy Sunday. Hugs~ Casey caringbridge.org/visit/littleandrewspage Casey Shaffer <butterflycasey88@aol.com> Boardman, Oh - Sunday, June 28, 2009 2:48 AM CDT HI GUYS!!!!!! Sounds like you are all doing GREAT!! and Shea..... you are just OH SO CUUUUUUUUUTE!! (and huge too!) hee hee hee........... Kylie... lovin your smile sweet girl - I cant believe how GROWN UP you are becoming... Ava... hee hee hee... I JUST LOVE YOU!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, June 26, 2009 12:27 AM CDT Prayers for your family. Corella Thorbeck Plymouth, MN - Wednesday, June 24, 2009 9:31 PM CDT I am happy to hear things are going well. Take care and enjoy the summer. http://www.caringbridge.org/visit/deanmangan Mary Mangan <mary.mangan@lssmn.org> St Paul, MN USA - Wednesday, June 24, 2009 7:54 AM CDT Hi Kylie, Ava, And Shea!!! It was so nice to see you and Ava at grandma's house on Friday!! I hope the bastism went good! Have fun with your brother and sister this summer! Molly ;] Molly <mollymouse777@gmail.com> St. Paul, MN USA - Sunday, June 21, 2009 8:29 PM CDT Hi Kylie! I am glad you are doing so well! I check in on you once or twice a week. I have been following your story since your little sister Ava was born. You two (and now three, with your new little brother!) are the most adorable sweethearts! I love your mommy's journal entries - they always give me a chuckle! I have 3 girls of my own who are a bit older than you and we all love to follow your story. I feel like I know your family personally, even though I've never met you. I keep waiting for the day I run into your family somewhere and then I start talking to you like you know me or something! "Mom, who is this crazy lady who thinks she knows me?" Always wishing you the best! Keep up that positive attitude, kiddo! It's catchy! Michelle Lunders Blaine, MN USA - Wednesday, June 17, 2009 11:00 PM CDT Hi Kylie I am so thankful you are doing so well and having fun. Please know that I am thinking about you and keeping you close in prayer. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Wednesday, June 17, 2009 3:30 PM CDT Hi Kylie, and all your family. Such fun to have a little sister and now a baby brother. I am your great grampa Ron's cousin, and have followed your story since you were but a wee baby.Your story the past few years has been one of great strength, faith and courage. We all admire you, and send our prayers upward each and every day! Your Mommy and Daddy must have been chosen especially for you as they are too special people, full of patience and energy beyond belief.May Godd continue to bless you and your family, bring healing, and joy. Jane and Bill Jane Dahlin <dahlinjane@comcast.net> Hudson, WI USA - Wednesday, June 17, 2009 12:58 AM CDT Kylie- I've been reading about you for a very, very long time now, since long before Ava was born. You've come so far and it's a joy to watch you grow up! Just Me - Monday, June 15, 2009 10:53 PM CDT Just a quick hello to all. Kylie, you are amazing! You make me want to be a better person. You are so brave and it's amazing how many people love you. It sounds like everything is going well and you, your sister and brother are keeping your Mom busy. Don't forget to give Mom a hug once in a while because she is such a great Mom. I keep you in my prayers every night. Beverly Atkins <bevwalks@aol.com> Clayton, NC USA - Monday, June 15, 2009 2:32 PM CDT Kylie- You are such an amazing little girl. You learn new things ever day and can't wait to show them off. Keep smiling! It's been so much fun to work with you. Heather Haider <heatherhaider@hotmail.com> - Saturday, June 13, 2009 10:34 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Friday, June 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us!! Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, Ma - Friday, June 12, 2009 1:14 PM CDT Hi Kylie- I love coming and checking on you every week! Your smile just brightens my day every time, never fails! I am so proud of all the successes you have accomplished in your almost 5 years here!!! WOW!! I hope you have a fabulous summer playing with you new little brother and Ava! I will check back next week! April Ruud Vadnais Heights , mn 55127 - Friday, June 12, 2009 9:51 AM CDT Hello, Kylie & family: You don't know me, but I've been reading your site for probably 2 years now, and am always amazed by your sweet smile, even through the constant activity and challenges. You have a beautiful family, and I wish you nothing but the best. Keep smiling! A Friend you Haven't Met WI - Wednesday, June 10, 2009 10:47 AM CDT Maria - Thanks for always updating the site. My head spins when I read all the activities and appointments and stuff you and your family has going on. How you still find time to update this is beyond me. That said I'm grateful that you do so I can keep up on Kylie (and Ava & Shea too)! You are an amazing mom, don't ever forget it. Kylie - Good luck in summer school! I can't wait to hear of all your adventures. You are such a sweet girl, you bring such joy to not only your family, but everyone who meets you. Hugs, Jill Jill Sinner <jill5677@yahoo.com> Fargo, ND - Wednesday, June 10, 2009 9:50 AM CDT Hi Kylie! I do not sign your guestbook often, but I always stop by to check on you. Hope you have a splendid summer and tell your little sister to behave! Stephanie Ideker Harrisburg, SD - Wednesday, June 10, 2009 9:29 AM CDT Hi Gibbons family and welcome to the newest member. Sorry I have been out of touch for a while. I also missed the walk this year - life just a little too busy for words. I know you can relate to that! Your pictures as usual are awesome - you have the most adorable children. Hope your summer is off to a good start. Take care! Maureen McGee <maureen.mcgee@isd623.org> Roseville, MN USA - Monday, June 8, 2009 1:30 PM CDT Just saying HI, and letting you know that I follow your progress and check in on you often. I found you through the Olson site when they took Muffin to Disney World and have been praying for you all ever since. I am so very glad you are doing so well!! Keep it up. Elena <nels2236@umn.edu> Minneapolis, MN USA - Sunday, June 7, 2009 8:26 PM CDT Glad to hear the news on her vision! Hope the walk went well for you today and so happy that you had nice weather! Love Christie Christie Fleischhacker <Christie421@hotmail.com> Greenfield, MN - Saturday, May 30, 2009 3:58 PM CDT Appreciating what I learn from your family's continued strength and movitation. Corella Thorbeck Plymouth, MN - Friday, May 29, 2009 9:11 AM CDT Hi Kylie, Good news about your vision. Just wanted to stop in and say that I would love to watch you anytime so that your Mom can get a break... even if it was for an hour or so. You can have all the treats and snacks you want at Jody's house :-). Maybe in the next couple of weeks! I look forard to the TS walk this weekend. GO TEAM KYLIE'S HOPE! Looks like the weather will be nice for it! Yahoo! Love you! Your friends, Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, May 28, 2009 11:39 PM CDT I have checked in on your many, many times. You are just such a beautiful little girl and I am so happy that you are doing so well. God Bless you and I hope things continue to go well with you. Have a fun summer! Grandma Kay Baldwin, Wi - Thursday, May 28, 2009 6:26 PM CDT Hi Kylie, I have been checking in on you for quite some time now, but I don't think I have ever left a message. I'm not even sure anymore how I came upon your Caringbridge sight, but you stole my heart right from the start. You are such a sweetie, with the cutest smile and sparkly eyes. I cannot believe the obstacles you have overcome in your short little life, and I love to read about how well you are doing. It sounds like you've been a little spitfire lately...keeping your mom & dad on their toes! That's okay. That must mean you are feeling good and that makes everyone happy. By the way, congratulations on your new little brother and now a new little cousin. I have 3 children. Two boys who are 27 and a girl who is 22. Even though they're grown up, they still love being together and they still love seeing their cousins too. I hope you and your family have a wonderful summer full of lots and lots of fun times! Dawn Rainey <rainey@hbcsc.net> St. Charles, MN USA - Thursday, May 28, 2009 3:32 PM CDT Hi Kylie! I have a daughter w/ TS too and have been checking in on your site for a long time now! You are a beautiful girl and an ecouragement to our family! Kim Stewart <kjgstewart1@windstream.net> Wilmore, KY US - Thursday, May 28, 2009 8:13 AM CDT Hi kylie,Ava,and Shea, I love the new pictures you guys are soooo cute!! Hope everything is well! Molly Molly <mollymouse777@gmail.com> St.Paul, MN USA - Wednesday, May 27, 2009 5:48 PM CDT Hi Kylie i am new to your site and will be praying for you you are such a pretty little girl. http://www.caringbridge.org/visit/angelonwheels Jennifer - Sunday, May 24, 2009 8:28 PM CDT Hi Ky... we are hoping no changes in those beautiful peepers of yours! See you tomorrow! Love you! Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Wednesday, May 20, 2009 9:20 PM CDT ALWAYS checking in on the NEAT Gibbons' family - - Kylie & Ava such special 'big sisters' to Shea!!!! Blessings to the family, and thank you for keeping us updated!!! What sweet 'little ones'!!! Love, Nord & Rog Nordis Schrankler Stillwater, MN USA - Friday, May 15, 2009 11:22 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Tuesday, May 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank you for joining us!! Angel_Wings MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, MA - Thursday, May 14, 2009 12:32 AM CDT Hi Honey Just stopping by to see how you are doing. I love the picture of all of you. Keeping you close to my heart and in my prayers. Darcy Rice Albert lea, MN - Tuesday, May 12, 2009 12:01 AM CDT Happy Mothers Day! I have some fun news. You gave me permission to use Kylies name for my Fantasy Nascar League team. I named my team "Kylies Hope". Kylies Hope is in FIRST PLACE out of 32 teams!! Tears came when I saw it. I will continue to pray each & every day for our girl & the rest of the family too. Love you guys, Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove , MN USA - Monday, May 11, 2009 7:24 AM CDT *******HAPPY MOTHERS DAY MOMMY******** *************WE LOVE YOU************** KYLIE, AVA, AND SHEAMUS <KAS@123.COM> FALCON HEIGHTS, MN 55113 - Sunday, May 10, 2009 7:48 AM CDT HAPPY MOTHER'S DAY MARIA! THANK YOU FOR THE BEAUTIFUL GRANDCHILDREN......AND THANK YOU AND NEIL FOR THE WONDERFUL FLOWERS! KATHLEEN PLASCH <KPLASCH@QWEST.COM> ST PAUL, MN USA - Friday, May 8, 2009 1:02 PM CDT Hi Precious Kylie I just love the picture of you three, Please know that I am thinking about you and keeping you in prayer always. Hugs MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, MA - Friday, May 8, 2009 10:26 AM CDT Boy does your update remind me of my house just a few years ago! The oldest three were all born within 3 yrs and 3 months and it was tough! Then Ryan came along when Trevor was 2 yrs old and Trevor was a monster. He flushed everything down the toilet - toys, underwear, socks, paper. And he was known to throw things in the garbage too and we went without phones, remotes, etc. He also climbed on everything and nothing was safe from his reach - even things on top of the fridge - plus he could escape from anywhere. And there was the mastitis, constant nursing, sick kids, no sleep, Ryan having days and nights mixed up... You'll get through it somehow - a bit dazed and confused I'm sure from lack of sleep - but it will pass like everything else. I'm thinking of you and praying hard for some sleep. I wish I lived closer; I'd bring you some meals over. Your picture of the three is sure cute! Kim McClintick Lincoln, NE - Thursday, May 7, 2009 6:32 AM CDT Hi Sweetie Love the picture of you and your new brother. Hope you are feeling better. Keeping you close to my heart and on my prayers. Sending you smiles and sunshine. Darcy/Angel_Wings Albert Lea, MN USA - Saturday, April 25, 2009 10:38 AM CDT Hi Kylie, I love the new picture of you with your new brother. He is so lucky to have such a nice big sister. I hope your Owie is getting better. I love you. Mumma(Gee-ma) Karen Ueland <klpu@aol.com> - Friday, April 24, 2009 12:47 AM CDT Hi Kylie I hope you are feeling better today. Please know that I am thinking about you and keeping you close in prayer. Hugs special little girl. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, MA - Sunday, April 19, 2009 5:31 PM CDT Oh Maria - I am so sorry Kylie is having such a hard time!!!! UGG!!!! Smooches to our lil girl... Hugs for Ava - cause WE ALL KNOW... hers needs it!! And tickles and giggles for Shea... only cause hims new.... hee hee hee.... Sure hope you are keeping your chin up..... GOD BLESS YOU!!!! *MUAH* XOXOXO Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, April 17, 2009 8:03 AM CDT Hi Ky... I am so sorry to hear that you are back in the hospital. If you are still there tomorrow Nattie and I would love to come visit you and your Mommy in the morning. Lots of Love and prayers coming your way. We are thinking of you all tonight. We hope and pray that your icky infection heals quickly! Love you! Jody, Jeff, and Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, April 16, 2009 9:28 PM CDT AN INVITATION TO ALL PRAYER WARRIORS The Prayer Warriors at Angel_Wings are holding a Prayer Vigil on Sunday, April 19th, between 8-9 pm EST for all the families on our Angel_Wings Prayer Lists and our Angel families of children, teens and adults who have gained their angel wings. Thank-you for joining us. Austin/Angel_Wings. Austin Wilson <wilhope@nb.sympatico.ca> Moncton, NB Canada - Thursday, April 16, 2009 3:55 PM CDT Maria~ I am so sorry that you are having to go through this with your sweet girl and new baby boy. Prayers to all of you! Christie Fleischhacker <christie421@hotmail.com> Greenfield, MN - Thursday, April 16, 2009 3:34 PM CDT Congratulations on your new little bundle of joy! He is precious!! Lots of prayers and blessings being sent to you! Love, The Dublinske's Amy Dublinske <dublinske@sbcglobal.net> Lees Summit, MO USA - Wednesday, April 15, 2009 2:59 PM CDT Hey Kylie!!! Congratulations on being a new big sister!!! You are so lucky to have a little brother!! May the Lord's blessing keep raining down on this precious family..CONGRATULATIONS!!!! Kym/Angel_Wings <mississippiqueen7966@yahoo.com> FLOWOOD, MISSISSIPPI usa - Wednesday, April 15, 2009 8:18 AM CDT Hi Kylie!! I just love the new picture and I know you are going to be a wonderful big sister. Please know that I am thinking about you and keeping you in prayer always. Hugs special little girl. MJ/Angel_Wings <marijeighn1@gmail.com> Gardner, MA - Wednesday, April 15, 2009 7:27 AM CDT Hi Ky, We miss you! What a big sister you are... love the photo! HUGS AND KISSES... Your friends, Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Tuesday, April 14, 2009 7:52 PM CDT Congrats! He's adorable and I'm so thankful all went well. That adjustment home is always hard but at least the girls can play together which will hopefully be helpful to you! Kim McClintick Lincoln, NE - Thursday, April 9, 2009 10:13 PM CDT CONGRATULATIONS !!! So you finally got some extra testosterone around the house , huh . I LOVE Shae's name ! He is so darn cute . Sorry to hear about the ERG results . uugh . I swear if it's not one thing it's another dealing with this crappy disease . Hang in there girlfriend . You make the impossible , look oh so easy . (((hugs))) Michele Gist - Thursday, April 9, 2009 4:25 PM CDT Congratulations!We'll keep you in our prayers for good news next month. Try to get some rest. Lisa and Katelyn Lisa Linquist - Tuesday, April 7, 2009 6:05 PM CDT Congratulations on the new baby! Kylie, Ava, and Shea all look absolutely beautiful. You guys were definitely blessed with three amazing kids. I am still keeping you all in my prayers and that Kylie's next eye appointment will go over well. She has been through enough and they need to give her a break. Remember God is with you every step of the way and so are all your family and friends. :) Miss you and God Bless. Kiley Jo Gibbons <kyehockey7@aim.com> Circle Pines, MN United States - Monday, April 6, 2009 10:17 PM CDT Congrats!! I love the picture of Shae & the girls! You've been in my thoughts & prayers often as Shae's birth approached. Have a wonderful day!!! Hugs & prayers from Cottage Grove, Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Monday, April 6, 2009 9:52 AM CDT Congratulations! We are very happy for you. Will he be playing golf by August? The Gibbons Clan Kelly Gibbons <kelly@allbritesign.com> - Monday, April 6, 2009 9:22 AM CDT Congrats! Can't wait to meet the lil' guy! And I will pray for Kylie too! Love you guys! Kim Kim Fiesel Lino Lakes, MN - Sunday, April 5, 2009 6:53 PM CDT I have been checking this site about three or four times a day waiting to see when you posted the news! Welcome to the new SON!!!!!!!! It is a precious picture of the girls and Shae. I can hardly wait to hear the stories you tell about all of them together. Kiss them all and Thanks for making the world a better place....... Love and Hugs Aunty Rose Aunty Rose Lakeland, MN - Sunday, April 5, 2009 8:47 AM CDT Congratulations on the little guy - you guys must be so excited. We will keep all of you in our prayers. Lisa, Tori & Makenna Lisa Studiner <lstudiner@msn.com> Cottage Grove, MN USA - Sunday, April 5, 2009 0:40 AM CDT Congradulations to all of you, I am so happy that Kylie and Ava got a little brother to love up. He does look a lot like Kylie. Let's hope he gets a bit of her sweet disposition. I pray her next eye test is better and she isn't losing vision. After spending a couple of days with her when you were in the hospital, I am still amazed by what a sweet, loving little girl she is. She may be behind kids her age, but she makes up for it by being so special. I just wish more people could know her. I am blown away and amazed by her whenever I am with her. What a love! Mom Karen Ueland <klpu@aol.com> - Saturday, April 4, 2009 5:32 PM CDT Thinking of you guys tonight! Good luck to you in the next couple of days! Love you all bunches! Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Tuesday, March 31, 2009 10:05 PM CDT Hi Kylie! I'm so sorry you haven't been feeling well. I hope you're feeling better now. And we're praying for you & mommy too. Lots of love, hugs & prayers from Cottage Grove! Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Friday, March 27, 2009 7:25 AM CDT Get better soon, Kylie, so you can be ready for that new baby! Get some rest, Maria. You deserve it! Lisa and Katelyn www.caringbridge.com/visit/katelynbragg Lisa - Thursday, March 26, 2009 10:21 PM CDT Hi Neil & Maria, Good luck with the new baby! The kids are done with hockey and would love to baby sit if you're in a pinch. Kiley can even drive now. (kind of) As always, our prayers are with you. The Gibbons Clan Kelly Gibbons <kelly@allbritesign.com> - Thursday, March 26, 2009 8:33 AM CDT Dear Kylie, I hope you start feeling better soon. You are so sweet, even when you have a fever of 105 you say Thank you. I love you so much. I hope you don't have to have more surgery to get your new port out. Love, Grandma ( Muh-Muh or Gee Ma) Karen Ueland <klpu@aol.com> - Wednesday, March 25, 2009 2:46 PM CDT Wow, sounds like things have been hectic at your house. You guys would fit into my house-hold and could join the "CROWD" Waiting to hear your in active labor and the girls are offering leg support! Aunty Rose Rose Lakeland, MN Washington - Friday, March 20, 2009 12:15 AM CDT Hi Sweetie Dropping by to let you know your in my thoughts and prayers. Sending you smiles and laughter. Keeping you close to mt heart. Darcy /Angel_Wings Clarks Grove, MN 56016 - Friday, March 20, 2009 12:12 AM CDT I check on Kylie and Ava all the time and never write in the guestbook. I could not pass up letting you know what a hoot I think little Ava is. I just love her perspective. I'm sure your Mom does too! You have two beautiful little girls and I keep Kylie in my prayers as well as your whole family. Can't wait to see the little one - I'll be thinking about you! Thanks for sharing your life with all of us! Beverly Atkins <bevwalks@aol.com> Clayton, NC - Friday, March 20, 2009 10:36 AM CDT Maria, You just make me chuckle and appreciate each and every day! I can't believe the adventures your family has, and you guys are so strong, what great parents. Ava's chat with Gram Karen was hilarious.Keep the faith! Jane Jane Dahlin <dahlinjane@comcast.net> Hudson, WI USA - Friday, March 20, 2009 7:22 AM CDT WOW! I really don't know how you do it all with out going completely insane! Thinking of you, praying for a nice weekend with your gals, and for labor to come quick and painless as possible :-) And of course for a healthy little one! Can't wait! Take care! ~Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Thursday, March 19, 2009 8:12 PM CDT I LOVE the new picture of Kylie on the front page - I LOVE THAT LIL GIRLS SMILE!!!! Poor Kylie having to have yet another port surgery - hopefully everything will be fine with this one. Poor Ava... Im sure once the baby is here she will be TOTALLY FINE!!! Grandma Karen... hee hee hee.... good thing Ava is CUTE!! HUGS AND KISSES TO ALL OF YOU!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, March 19, 2009 2:03 PM CDT Hi Kylie, I am glad your bad week is over. I hope this week is much better. It will be fun tonight to learn how to be a big sister. You and Ava will be such good big sisters. I can't wait to meet your new little one. Gee-ma Karen Ueland <klpu@aol.com> - Thursday, March 19, 2009 7:10 AM CDT Hi Kylie Just dropping in to check on you. Keeping you close to my heart and in my prayers. Darcy/Angel_Wings Darcy - Thursday, March 12, 2009 12:04 AM CDT Just checking in to say hi, love you guys & still praying. Ky's antics on the desk cracked me up! I remember all those "moments" when my kids were little & I had to hold my breath while watching them. Both girls are so full of love, laughter & life, it's wonderful! And we're praying for a healthy baby-we'll be watching for news. Always-Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Monday, March 9, 2009 11:29 AM CDT Hi, Maria. I can't remember the last time I signed this thing! Been thinking about you all up there in MN. Hopefully you are doing OK; I'll be praying for a healthy baby and mommy too. And that the girls will stay healthy as well. I'll tell you, I personally thought going to #3 was much easier than going to #2 because the older two can play together and entertain themselves while you nurse, tend to baby, whatever. Hopefully you'll find that to be true as well. Take care! Kim McClintick Lincoln, NE 68516 - Saturday, March 7, 2009 11:36 PM CST Hey there Gibbons family! Been thinking of you lots lately. I have the walk on my calendar, so unless there's craziness around our house, we'll be there! Sending much love your way, Nena and boys www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown , MN - Friday, March 6, 2009 12:29 AM CST We have just now found kylies site and want to let you know we are lefting her up in much prayer God Bless rainbow kids and babys prayer ministry http://www.rainbowkidsandbabys.org April <rainbow_kids_04@yahoo.com> Des moines, ia USA - Monday, March 2, 2009 7:25 AM CST Dear Maria, I hope you get to feeling better (and no one else gets sick for a change, at least for a few days!) quickly -- you have enough stress on your body with the baby, and don't need to have illness factored into the equation. As for Kylie's speech -- way to go, girl!! You guys are must be so very proud of her (and you can pat yourselves on the back for providing this for her as well). It just goes to show that she is a smart girl as well as sweet. I bet she will be the perfect little mommy's helper when the bsby comes. I suspect you might get some rebellion from Miss Ava, as she has been the baby so long, but her sweet spirit and love she shows for her sister will inevitatbly be showered on the new baby as well. I know it's far more easier said than done, but try to make these last few weeks until the bigday as stress-free and as easy on your body as you can. Well, it's lae and I gotta go. Praying for a good race to the finish line for you, and hat Kylie continues to have only mild seizures (I really pray for none). Hang in there -- you're in the home stretch now! Sincerely, Janet McCann Westin Dietz's ChemoAngel www.carigbridge.org/visit/westindietz (His neuroblastoma reappeared in Nov 20 scan, so he's on chemo, and so far scans have shown he is able, but we would like a "no glow" PET scan in a few weeks, so if you have time, please pray for my little buddy. He feels great -- no side effects, and we are all so thankful for that. good night! P.S. : For what it's worth,I'm still predicting boy.... :) P.S.S.: I have seen only a few flakes of snow in five years, and it sounds like you could spare a few feet, so see what you can do. Of course, our warmest Feb on record is supposed to get even warmer this week. So much for "seasons." (sigh). High-five your girls for me -- they are so precious! Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, February 24, 2009 0:13 AM CST hello, I just wanted to say hello and hope you have a great weekend. Scott Ksiazek <sdksiazek@gmail.com> Saint Paul, Mn - Saturday, February 21, 2009 10:16 PM CST Hello Kylie, Grandpa and I are having fun in Florida, we miss you and Ava. Hope you are being good. Love Geema Karen Ueland <klpu@ol.com> - Thursday, February 19, 2009 8:28 AM CST Happy Valentine's Day !!!! Keeping you in my thoughts and prayers and close to my heart. With Love and Angel Hugs, Julie----Angel_Wings Julie Price <angel_collector@yamail.com> - Saturday, February 14, 2009 8:03 PM CST Attention Prayer Warriors!!! PLEASE JOIN OUR PRAYER VIGIL THURSDAY, FEBRUARY 19 TH, 2009 BETWEEN THE HOURS OF 8-9 PM. EST. FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS Happy Valentines Day Kylie!! Keeping you in our daily prayers! God bless you Angel_Wings Debbie/Angel_Wings - Saturday, February 14, 2009 12:46 AM CST hello everyone, I just wanted to say hello and hope you all get over whatever is going around. Scott Ksiazek - Saturday, February 14, 2009 11:52 AM CST Dear Maria, I hope all of you get to feeling better soon -- you need a healthy house for that new baby! I'm so sorry to read you have gestational diabetes, but am thankful it was caught in time. I am also thankful for no signs of TS, and will continue to pray for that and for the health of all of you. I know February can be an awful month for the seizure community, and I have my fingers crossed and my hands pressed together in prayer for the monster to take this year off. I can't wait to hear more about the pending arrival; in the meantime, get well, put your feet up when you can, and get that nursery ready! Sincerely, Janet McCann Westin D's ChemoAngel www.caringbridge.org/visit/westindietz (P.S.: My little buddy has been battling a recurrance of his neuroblastoma since late Nov., but is doing GREAT, and last scan showed slight improvement -- please pray for clear scans -- they'll be coming up some time in the coming weeks. Thanks!!) Janet McCann <janet@mccann-family.us> Austin, TX - Wednesday, February 11, 2009 11:06 PM CST HAPPY BIRTHDAY AVA!!!!!!!!!! I hope you have a GREAT day!!! Maria... I LOVE that new picture at the top of the page - ITS PERFECT!!!!!!!!!!!!!! What a great smile that girl of yours has........ Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Monday, February 2, 2009 5:43 AM CST I am keeping you all in my prayers and just wanted to stop by and say hi. I pray you are having a blessed weekend and everyone is doing well. God bless each of you. With love and hugs, Tammy/Angel_Wings - Sunday, February 1, 2009 9:04 PM CST Hi Guys- We were so happy to celebrate with you at The Taste of the Twin Cities on Thursday night. We were honored to be a part of your special award that you received, you deserve it. Maria and Neil were given an award for all their work, time, and energy they put into helping raise money and awareness for TS. Kylie and all the other TS children/adults are lucky to have special people like you in their lives. Love, Nicole and Jay Nicole Schueller <nicole.schueller@spps.org> Saint Paul, Mn USA - Saturday, January 31, 2009 9:25 AM CST Hello Kylie, It was so much fun having you and Ava over last night. I can tell how all of the classes, therapy, and school you are going to is really helping you. Your mom and dad love you so much and are working so hard to get you the help you need to go as far in life as you can. They also are amazing that they are working to help other kids who have your disease by organizing the walk and the golf tournament. Not everyone would be willing to do that. They are raising two beautiful children,expecting another, working two jobs, and still take the time to help others. I am proud of them that they recieved an award for Volunteers of the Year. They deserve it and I am proud of them. I am also very proud of you and Ava and I love being your Gee-Ma. The photo on the front page captures the real you. That is the the way you look everyday. You have the most amazing smile, soul and disposition. I am happy that your story and photos will be on the national campaign. Your beautiful face will be seen by even more. I hope people give and help find a cure for TSC and no other child or family would have to suffer and go through what you kids go through. Love, Gee-ma. Karen Ueland <klpu@aol.com> Saint Paul, Mn - Friday, January 30, 2009 5:57 PM CST Hi Kylie Jo! Just your friends Jody and Nattie writing to say hello! You bring sunshine to our day when we get to see you. I love the photo on your website. It is perfect! Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Tuesday, January 27, 2009 9:44 PM CST Hi Gibbons Family, I am thinking of your family and keep you in my heart and prayers each day. I pray all is going well and you are having a blessed weekend! Sending love and hugs, Tammy/Angel_Wings - Saturday, January 24, 2009 3:50 PM CST Wow! What a beautiful picture! Hope all is well. Chris Engman <christinee@hosannalc.org> Burnsville, MN - Friday, January 23, 2009 8:43 AM CST What a beautiful picture!!! Love it. Hope your girlies are better! Christie Fleischhacker <christie421@hotmail.com> Greenfield, MN - Thursday, January 22, 2009 1:39 PM CST Dear Maria, Just getting to the latest update today. I hope by now that Kylie is all better, and that you are finding some solutions to the Vigabatrum (sp?) access problem. Geez, it's always something!!!! I will pray that works itself out without you guys having to pay through the nose, or God forbid, Kylie having to go without it for any amount of time. I hope you are feeling well, too, as you get closer to your due date (now comes the uncomfortable part, huh?). I am so excited to see in several weeks if you have another girl or if you even out the household a little bit for Neil. :) Well, I have a ton of e-mails in my box, so I'd better get going. Just wanted to check in and say hi. Take care, Janet McCann Westin Dietz's Angel Janet P.S.: Just when I think you can't top the picture you put on the welcome page, you go ahead and do it! I swear, the new picture is so beautiful -- it looks like it should be on the cover of a book or something -- WOW! Of course, having great subject matter helps.... :) Good night! Janet McCann <janet@mccann-family.us> Austin, TX - Wednesday, January 21, 2009 9:26 PM CST LOVE LOVE LOVE the pic on the homepage!!! Absolutely BEAUTIFUL!!! Hope you are all on the mend from the bad cold/flu bugs of January! Take care! Jen <berknerjen@yahoo.com> Wanamingo, MN - Tuesday, January 20, 2009 7:59 AM CST Hi Maria, I love the picture of Kylie holding your hands. Hope you are well. Congrats on the new baby! Dawn Violette <dwviolette@yahoo.com> Woodbury, MN USA - Monday, January 19, 2009 7:37 PM CST Keep checking in on this neat CaringBridge site - - and OH how I (we) love all the positives!!!! OH how I (we) dislike the 'not-so-positives'!!! But again: What a TERRIFIC family, with SO MUCH love and support!!! SO: just know: we are 'with you', and we will ALWAYS continue to 'check in' - - We will ALWAYS send you SO MUCH love & prayers & support!!! And 'we are keeping in touch'!!! Take care, Dear Gibbons' family!!!! Nordis &( Roger) Nordis Schrankler - Monday, January 19, 2009 7:36 PM CST JUST STOPPING IN-I LOVE THE PICTURE "HOLDING ON TO HOPE". THAT FACE!! HOW BEAUTIFUL! I LAUGHED SO HARD AT THE "STAND ON THE SIDEWALK" & WATCH REMARK-WHAT A LITTLE HAM. LOVE YOU GUYS-CARON CARON TWEET <caron.tweet@transportamerica.com> COTTAGE GROVE, MN USA - Monday, January 19, 2009 9:11 AM CST Good morning Gibbon's Family, I was thinking of you this morning and wanted to stop by to say hi. I'm so sorry to hear Kylie is sick. Sounds like the nasty cold that's flying around the country has found her! Darn it!!! I'll be saying extra special prayers and hope she is feeling back to normal soon. I'll also be praying it doesn't find it's way to the rest of you. God bless you. Sending love and hugs, Tammy/Angel_Wings - Sunday, January 18, 2009 7:16 AM CST Hello Gibbons Clan, Just checking in to see how everyone is doing. I was just looking at the pictures and my favorite is the first one! The girls look so beautiful and grown up. Seeing their smiles makes us realize how lucky we are to have them in our lives. I hope everything is going great and that everyone is healthy now! Hopefully you guys can make it out to one of my hockey games soon! Remember God is always with us. Love to you all. Kiley Jo Gibbons <kyehockey7@aim.com> Circle Pines, MN United States - Thursday, January 15, 2009 6:54 PM CST just checking in - sending many loves, hugs and prayers to all!!! tany a- nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Monday, January 12, 2009 10:54 AM CST ATTENTION PRAYER WARRIORS!!! PLEASE JOIN OUR PRAYER VIGIL MONDAY, JANUARY 19TH, 2009 BETWEEN THE HOURS OF 8-9 PM. EST. FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS. Angel_Wings Prayer Warriors Kym/Angel_Wings <klewis@laborchex.com> FLOWOOD, MISSISSIPPI usa - Monday, January 12, 2009 7:39 AM CST Hey, Maria and family, I sure hope you are feeling better! The stomach bug is the worst as far as I'm concerned, and if memory serves, is doubly nasty when you're pregnant.... I'm glad you guys had a good Xmas, and am thrilled about the FDA news. It still sucks that it'll be about 8 mos before it REALLY becomes available here, but that IS such good news -- finally they are doing something right, huh? Sounds like the girls are going great guns, and the video sure shows how cute they are! I'm excited for you for the arrival of baby number three, and am wondering if you'll get a boy (my first guess at your pic in the video has me thinking girl, though.....). As long as it is healthy, which it will be, that is all that matters, although your poor hubby may feel surrounded by all that estrogen, huh? :) Well, gotta go. One of my boys has a sore throat and is getting another round of Cedar Fever (Austin allergies), so I need to tend to him. I pray that you have a quick recovery and good tail end of the pregnancy -- almost in the last trimester, right?! Happy New Year to all of you, Janet McCann Janet McCann <janet@mccann-family.us> Austin, TX - Friday, January 9, 2009 7:37 PM CST So happy to hear your year was so great! I loved the idea of taking the babies away because they needed a mommy to take care of them, not a baby and babies don't wear makeup, only big girls. I'll have to remember that if someone has that problem. Prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD USA - Thursday, January 8, 2009 5:28 PM CST I'm grinning from ear to ear reading about your year! Good times! Thanks for the update & smiles. Always praying for you all. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, mn usa - Thursday, January 8, 2009 8:19 AM CST Hi sweet Kylie and family, Happy New Year. I'm so glad you had such a nice Christmas and the new computer is such a joy for you. It sounds like you're doing great and I love that you are even drawing shapes. Good job! I'm sorry to hear you haven't been feeling well the past few days. I'll be sending up extra prayers for no more seizures and the sinus problem to go away soon. God bless each of you. Sending hugs and angel hugs, Tammy at Angel Wings <jraphafaith@yahoo.com> - Sunday, January 4, 2009 10:48 PM CST Happy New Year! We will continue to pray for you! www.caringbridge.org/mn/nikki www.caringbridge.org/visit/karenfieseler Kevin, Karen, Nikki, & Kyle <spllamas59@aol.com> Eyota, MN - Saturday, January 3, 2009 4:35 PM CST Happy New Year Kylie Jo! We are wishing you everything wonderful for 2009! Love you! The Prudhomme Family <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, January 1, 2009 9:29 PM CST Hi Kylie.. I'm glad that you had a great Christmas and that you are doing so well. Keeping you in my thoughts and prayers. God bless Debbie/Angel_Wings - Wednesday, December 31, 2008 3:16 PM CST Wishing you a Happy and Blessed New Year! You have 2 such beautiful Princesses!! Dorine McNary Williston, ND - Wednesday, December 31, 2008 1:46 PM CST Merry Christmas Gibbons Family! We hope you are having a wonderful day and hope to see you soon. We love you guys! Jim, Eileen and Mary Eileen Hable <ehable@hotmail.com> Lino Lakes, MN - Thursday, December 25, 2008 2:46 PM CST Merry Christmas Kylie, Kylie you continue to amaze me with your beautiful soal. I know you aren't like kids your age. You are always happy, you are always smiling, you love everyone you meet. You don't judge people, you like to greet everyone with a hi! and a big grin. So many people love you, those who have never met you, but especially those of us who get so see you on a regular basis are so lucky. You make the world a brighter place. God gave us a beautiful gift when he gave you to us. We love you and Ava so much. I hope you have fun Christmas this morning with all of your Santa gifts. I can't wait to see you and Ava tonight. Love, Gee-ma Karen Ueland <klpu@aol.com> - Thursday, December 25, 2008 8:54 AM CST Merry Christmas to all of you! Christie Fleischhacker <christie421@hotmail.com> Greenfield, MN - Wednesday, December 24, 2008 1:22 PM CST We wish you a mErRy ChRiStMaS and a HaPpY nEw YeAr !! www.caringbridge.org/visit/gistboys Michele - Wednesday, December 24, 2008 12:54 AM CST MERRY CHRISTMAS!!! loves, hugs and prayers tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Wednesday, December 24, 2008 9:34 AM CST We enjoyed the slideshow!! Katelyn and I couldn't stop laughing when we got to the one with the Christmas tree on the floor! Never a dull moment, huh?! Thinking of you guys and sending wishes for a Merry Christmas- Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Tuesday, December 23, 2008 2:29 PM CST Hey Maria- It has been such a long time, but I wanted to check and see how Kylie has been. Congrats on baby #3. That is so exciting. I have a son who is 10 months old. Kids sure are amazing! Take care and good luck over the next few months. Jennifer Hentges (Burgett) <jjh0610@hotmail.com> Shakopee, MN USA - Friday, December 19, 2008 10:47 AM CST Maria- I have been reading about Kylie for a few years now (I used to work with Neil's mom) and I have to say after recently experiencing a seizure myself, you are a wonderful family with a truly amazing child. I wish you and your family a very Happy Holiday Kaija - Thursday, December 18, 2008 5:43 PM CST Just little old me…stopping by to wish you a very Merry Christmas and a Happy New Year. God Bless, Stacy Stacy Dvorak Shakopee, MN USA - Thursday, December 18, 2008 6:44 AM CST Dear Maria, I just got through listening to the radio interview and watching the TV spot on Shannon and all she and her family are doing for the families at Children's. I could not make it through either without tears, both of sorrow for the loss of Drew and McKenna, whom I remember every day, but also of joy for the generosity extended toward the Olson's efforts, and most of all, for the beautiful, compassionate friendship you have with her that brought all this about. Although what Shannon has lost is beyond measure, I am certain that she and Cam and Rand are so very thankful to have you and your family in their lives, and count you among their "top" blessings. May God bless you for reaching out to your friend -- and to so many others in the process -- in this way. I am so glad Kylie is back in school and that despite the crash of your Xmas tree, things seem to be headed toward a good holiday for the Gibbons household. The little stories of Ava and Kylie are just precious -- what an incredible bond between two sweet, adorable little girls. I'll keep checking in on you guys, but should I not get to your guestbook on Xmas Day, I wish you a very Merry Christmas filled with health and happiness for every member of your household. Most sincerely, Janet McCann Westin Dietz's ChemoAngel Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, December 9, 2008 10:33 PM CST I listened to your Xmas Wish for Shannon online and it was simply awesome. Theresa Calgary, AB Canada - Friday, December 5, 2008 10:32 AM CST hey, maria, you didnt sound like an a** - you did an awesome job on the radio - so happy that they will help shannon out - WAY TO GO SISTA!!!! keep up the great work - loves, hugs and prayers tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> hudson, wi - Tuesday, December 2, 2008 4:05 PM CST Maria~ You are such a wonderful person for what you shared with the listeners on KDWB this morning and your wish for Shannon. You move me everyday with your inspiration to provide the best friendship to those you have touched even in the worse situations. I have followed both of your families web pages for a long time however never commented until today. The tears of joy you brought to me on my ride in was overwhelming. I lost a nephew last year who was in and out of Children's from time to time and these donations are a wonderful distraction to all of the families during their journey. We began a tradition to donate new books and toys to Children's Hospital in memory of Noah on his birthday every September. My family really enjoys this outing and we have added more and more donations each year. I pray for Kylie and your family often. You are an amazing person and I believe your work here on earth will never be forgotten. Have a great holiday season and good luck with the new baby. Amy Sonnek <amyblinks@aol.com> Stillwater, MN - Tuesday, December 2, 2008 1:14 PM CST You are a very special person, as is Shannon & Abigail & all the other parents that have had to endure all that you have. You were awesome on the radio this morning. I sat at my desk crying & counting my blessings. You guys are a blessing to me. Merry Christmas! And Happy Birthday Jesus. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, December 2, 2008 9:13 AM CST Hi- My name is Kiara I am an RN at Minneapolis Children's- 6th floor which specializes in neurology. My sister is Katie Weyandt- I believe you know her through daycare. I have followed you for several months & I always find you extremely inspiring and very positive! This morning on my way home I heard your "KDWB Wish"- all I have to say is amazing. The first time I read McKenna & Drew's story I was so amazed- how can 1 mother endure so much pain. Through the pain of having very ill children- McKenna, Drew & Miss Kylie- you have truly shown your true colors- you are both amazing mothers & people! I will be thinking of you all on x-mas eve- as I hand out toys to the kids on my floor! Merry Christmas- you are both truly amazing. Kiara Magdik <kmkelleynurse@yahoo.com> White Bear Lake, MN - Tuesday, December 2, 2008 8:16 AM CST Maria-- You don't know me but I have been following Kylie. I found her page through the Olson's page and Kare 11. I heard you on KDWB this morning. What a beautiful thing for you to do! You are a wonderful person! I hope you have a Happy Holidays! Maggie Johnson <maggie_miller@hotmail.com> Bloomington, MN USA - Tuesday, December 2, 2008 8:08 AM CST It's almost time to celebrate Jesus' birthday! Tammy at Angel_Wings - Saturday, November 29, 2008 2:36 PM CST Hi sweet Kylie, I'm thinking of you and keeping you in my prayers. God bless you and your family, Tammy at Angel_Wings - Saturday, November 29, 2008 2:34 PM CST Happy Thanksgiving!! Keeping you in my thoughts and prayers, Dorine McNary Williston, ND - Thursday, November 27, 2008 8:56 AM CST Hello Kylie, Happy Thanksgiving to you and your best friend Ava (Anna). I am so happy you are Ava love each other so much. You are both so special and we love you both very much. GeeMaa and Poppa Karen Uealnd <klpu@aol.com> Saint Paul, Mn - Thursday, November 27, 2008 8:04 AM CST We are thankful for our friends... The Gibbons Family. Have a great Turkey Day! Love you guys! The Prudhommes <jody_prudhomme@yahoo.com> St. Paul, MN - Wednesday, November 26, 2008 8:35 PM CST Wishing you a very blessed and happy Thanksgiving Gibbons family! I am keeping you in my thoughts and prayers. Tammy at Angel_Wings - Wednesday, November 26, 2008 5:32 PM CST Praying for a blessed Thanksgiving for you and your beautiful family! Christine Engman <www.JourneyWithTheLord.blogspot.com; christinee@hosannalc.org> Burnsville, MN - Wednesday, November 26, 2008 2:13 PM CST Wishing you all a beautiful and bountiful Thanksgiving! Much love, Nena and boys www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Tuesday, November 25, 2008 8:02 PM CST Just checking in with you guys, Have a happy Thanksgiving!!! When i read about Eva biting her sister for no reason, it brings back memories of Neil . He was biter!!! For no reason he would run into the room and bite Kelly in the back !!! And i mean Hard!!!! He did finally stop after I bit him back....oops......The girls are looking beautiful as ever and have just found out that Shane is busy the night we were having our get together so we will have to change it to thursday night dec 18......hope to see you all!!!!!! jessie gibbons <jessieg@mayflowerdistributing.com> ST PAUL, MN USA - Tuesday, November 25, 2008 4:18 PM CST Happy Thanksgiving to you all! Hope the holidays are a blast with family. The girls are growing like weeds, Maria, but they are sure cuties! Hope you are doing well. Kim - www.caringbridge.org/ne/ryanm Lincoln, NE - Tuesday, November 25, 2008 11:30 AM CST We are sorry to hear about your cousin. He was so young - what a sad loss! Many prayers for your family. I bet you are excited to "sneak a peak" at baby #3 on your ultrasound on Wed. I know that everything will be just perfect. Thanks for sharing your cute stories about Ava and Kylie. They always make me smile!! Happy Thanksgiving!! Amy, Pete, Katelyn and Carson Woehnker <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Tuesday, November 25, 2008 8:35 AM CST Sorry to hear about your cousin, no platitudes-it just sucks sometimes. But I'm so happy that Kylie is doing better. Please have the best Thanksgiving ever!! You are such a blessing to me! Love & Hugs from the Tweets Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, November 25, 2008 8:15 AM CST I am so sorry for the loss of your cousin. Please know that we are praying for good ultrasound results for you and praying for Kylie and your family. God bless you Debbie/Angel_Wings - Monday, November 24, 2008 7:52 PM CST God bless you sweet family. I am so sorry about the sudden loss of your cousin. And I'll sure be praying for your upcoming ultrasound. Asking the Lord to meet you right where you are and to provide for your every need. Tracy/Angel_Wings <cougarmom12@gmail.com> - Monday, November 24, 2008 6:40 PM CST Hi Maria, I am new to Angel_Wings and this is my first visit to Kylie's CB. First, I want you to know how sorry I am to hear of the sudden loss of your cousin. I will be holding your family close in my heart and prayers. I pray our heavenly father holds each one of you in the palm of his hand and comforts your tender hearts as you grieve. I've been reading your journal and you have an amazing family. Kylie and Ava are so beautiful and I will be keeping your new little addition in my prayers as well. Please know I will be checking in on you often and will be keeping each of you in my prayers daily. God bless. Tammy at Angel_Wings - Monday, November 24, 2008 6:02 PM CST Hope you guys have a wonderful Thanksgiving! We will keep you all in our prayers and pray for a happy, healthy, exciting New Year. Take care and stay healthy! Lisa, Tori and Makenna Lisa Studiner <lstudiner@msn.com> Cottage Grove, MN USA - Monday, November 24, 2008 10:41 AM CST Oh Maria - I am so sorry about your cousin.... :-( UT OH... Ava is biting... she should already be out of that stage... YIKES!! Silly girl... CONGRATS ON THE POTTY TRAINING!!! GOOD LUCK ON WEDNESDAY!!! DEFINITELY BE THINKING OF YOU!!! HAPPY SHOPPING ON FRIDAY!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Monday, November 24, 2008 9:47 AM CST I love the new picture! How adorable!! Erika Huerta Cottage Grove, mn - Friday, November 21, 2008 10:15 AM CST Hey Guys...just checking in! Hoping things get better on the seizure front! The pictures of the girls are precious and I LOVE to hear the stories about Ava and Kylie. Ava really must love her big sister! I am always thinking about you!! Miss you tons, Nikki :) Nikki Sickmann <hownnik@hotmail.com> Farmington, mn - Thursday, November 20, 2008 10:27 AM CST LOVE the new picture......... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, November 20, 2008 7:04 AM CST Thinking of you guys tonight. Love the new picture. What fun to have such great sisters! Much love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Tuesday, November 18, 2008 9:40 PM CST Kylie, Oh how I love the new photo. It just goes to show how special it is to have a sister. You two will always have each other. That's wonderful! As always we continue to pray for you and we hope you are having a good night and a better rest of the week. Hugs and Kisses! Your friends, Jody & Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Tuesday, November 18, 2008 9:09 PM CST Thank you for sending out your prayer warriors for us . Even in the midst of your own daily struggles with the TS beast , you reach out to us . You are one helluva woman and friend . (((HUGS))) www.caringbridge.org/visit/gistboys Michele Gist - Tuesday, November 18, 2008 1:30 PM CST The girls are so sweet! I love hearing stories about how Ava takes care of Kylie, I'm usually in tears. I hate the seizure monster, I hate it!!! I hate that's it's making Kylie be afraid. Please give our sweet girls kisses & smooches & know that I am praying the monster stays away for good! Love those girls-Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, November 18, 2008 10:24 AM CST Chiropractic has much to contribute and is worth the investigation. Take little Ky to a credible Chiropractor and watch her development! Palmer College of Chiropractic educates doctors to teach individuals of ALL ages to properly and naturally re-educate their bodies to heal and bio-mechanically recuperate from such injuries and infirmities... Your little one is in our prayers and I hope that you would at the very least explore the possibility of Chiropractic in her (and your family's) life! God Bless. Kiera W Kents Store, VA USA - Monday, November 17, 2008 8:32 PM CST Hi Maria, Thank you so much for your kind words for our Thomas. Kylie is BEAUTIFUL and she seems like she's doing so well in spite of her challenges. It's so nice to get words of encouragement from a fellow TS mom. We need all the help we can get. Surgery is great when they can do it but SO stressful and scary. Hope to meet you all some day. Love, Cindy Cindy Hammerquist <caw@corcoran.com> Brooklyn, NY - Saturday, November 15, 2008 8:09 PM CST ATTENTION PRAYER WARRIORS!! PLEASE JOIN OUR PRAYER VIGIL WEDNESDAY NOVEMBER 19TH. 2008 BETWEEN THE HOURS OF 8-9 PM. EST. FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS. http://groups.yahoo.com/group/Angel_Wings/ Debbie/Ange_Wings - Saturday, November 15, 2008 5:32 PM CST Hi, I just stopped in to say hi and let you know you are still in my thoughts and prayers. I love the pictures, all of them! What beautiful girls! Hope you're feeling better. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove , MN USA - Friday, November 14, 2008 7:47 AM CST Holding you close in our hearts, our thoughts and our prayers. Trish, Mary Jane and Polly Angel_Wings Prayer Warriors polly from angel_wings prayer warriors - Thursday, November 13, 2008 8:49 PM CST Hi Kylie... i am honored to be on the front page with you. I love this picture! You have the most sweetest smile... you always do! You can give joy to anyone. I know you do to Nattie and I. We hope you enjoy your weekend and we will see you next week. Hugs and Kisses!! Jody & Nattie <Jody_Prudhomme@YAHOO.COM> St. Paul, MN - Saturday, November 8, 2008 1:18 AM CST Dear Maria, I hope everyone is feeling better, and that there are no more nasty "bottom clean-ups" to kick off that morning sickness. (Who named it morning sickness, anyway? It had to be a guy [probably the same one who invented mammography machines....)-- if memory serves, it lasts ALL day. I definitely will be praying that you don't have it all nine months like I did with my second one (let's just sum it up with he had me in the hospital twice before he was born, not counting the false labor alarm at the end). Kylie, your angel costume is precious!! You are such a cutie (yes, Ava, you are too! :)) I will be praying that you will both be feeling good for trick-or-treat night, and that mommy will be, too. Don't let your Daddy eat all the candy that you don't want, like at my house. I'll be saying my prayers for you in just a bit, sweet girl. Good night! Janet McCann Westin Dietz and Russell Bohannon's "Angel Janet" Janet McCann <janet@mccann-family.us> Austin, X - Monday, October 27, 2008 11:38 PM CDT I have a friend who lives in MI and SHE got the "s" word too..... you keep that on YOUR SIDE of the great lakes.... hee hee hee...... Did you seriously change a diaper outside? AAAAAAAAAAAAAA HA HA HA HA HA HA I hope you gave the girl a warm blanket to lay on at least........... ONLY YOU!!!!! I hope you are feeling better........... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Sunday, October 26, 2008 6:58 PM CDT Darn that freakin' seizure monster . My heart just sank as I read your update . I pray that the med change has helped and both the seizures and strep throat have said adios .(((HUGS))) www.caringbridge.org/visit/gistboys Michele - Saturday, October 25, 2008 9:57 PM CDT hey gibbons family, Hope the girls enjoyed the balloons and halloween bags i dropped off.I check the site and try to keep up on what's going on all the time. Sorry to hear about the seizures.......have a great weekend jessie gibbons <jessieg@mayflowerdistributing.com> st paul, mn usa - Friday, October 24, 2008 3:25 PM CDT Hi Kylie, I hope you are feeling better today. I just popped in to say hi! Love, hugs & giggles, Caron. Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Friday, October 24, 2008 8:06 AM CDT HI Ky! I hope that you are feeling better tonight. Thinking of you and sending many well wishes your way. Hugs and kisses to you all, Nena and Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Thursday, October 23, 2008 9:30 PM CDT Hi Kylie, I hope you are feeling better today. You are the sweetest little girl I know. Even when you are sick, you always have a smile on your face. You are the most amazing person, and I love you so much. You can throw up on me anytime. Love, Grandma Karen Karen Ueland <klpu@aol.com> Saint Paul, Mn - Thursday, October 23, 2008 7:26 AM CDT Your little Ava is a hoot! Years from now you will remember many of her antics and laugh! Just wanted to stop by and say how much I love Kylie's picture that you've had up. Your girls are beautiful! I keep you all in my prayers and I hope that seizure monster goes back in his cave to hibernate soon. Beverly Atkins <bevwalks@aol.com> Clayton, NC - Wednesday, October 22, 2008 8:04 AM CDT I have been following your page for a LONG time now. I have a 4 year old Kylie with Down Syndrome and a 2 year old also. I just laugh at how much alike our families are. My 2 year old is JUST like Ava. I am also pregnant in due in April. It is just amazing- its like reading about myself on your website- only we have different challenges with our Kylie. I hope Kylie has much success with the school year and stays healthy this winter!! Emmy Harvey <emmyjason@q.com> Rochester, MN USA - Tuesday, October 21, 2008 10:45 AM CDT Ava's antics are hysterical! She's just a hoot! And what a wonderful little sister to Kylie. But tt broke my heart when I read what she said about "seizures". I'm praying that the seizure monster will go away & stay away. Hugs & smooches to the girls & hoping you get some quality sleep. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, October 21, 2008 10:02 AM CDT HAPPY BIRTHDAY Kylie Jo!! The Gibbons Clan Kelly Gibbons <kelly@allbritesign.com> - Monday, October 20, 2008 3:31 PM CDT Happy times are ahead!!!!!!Kylie is doing so well and Ava is soooooo good with Kylie. Good FOR Kylie too! How can a pregnant woman have insomnia! Don't you know your suppose to sleep all the time....Thank you Lord for this healthy baby. Can hardly wait for the level 2. (I want to know if I should buy pink or blue) Love and Hugs Aunty Rose Aunty Rose - Sunday, October 19, 2008 6:48 PM CDT Keeping you in my daily prayers! Submit to God and be at peace with him; in this way prosperity will come to you. Job 22:21 Hugs, Elaine www.caringbridge.org/visit/johnshattuck www.caringbridge.org/visit/bettywilliams Elaine <eshattuck1@cox.net> - Friday, October 17, 2008 9:12 PM CDT Maria-Glad to hear that Kylie is doing well and that everything looks good with the baby. Hope that Ava gets to feeling better and that you enjoy your weekend! Always thinking about you guys! Steph Steph V <stephiebecker81@hotmail.com> Mounds View, MN - Friday, October 17, 2008 8:54 PM CDT God bless you Kylie. MJ sends her love. Her internet is down but I know as soon as she has it she'll stop by with a big angel (((HUG)))! You are loved. Tracy & MJ/Angel_Wings <cougarmom12@gmail.com> - Friday, October 17, 2008 6:52 PM CDT GOD BLESS AVA!!!! Im so glad Kylie has her around.... Hope the lil princess is feeling better.... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, October 16, 2008 5:44 PM CDT Hi Maria, I just wanted to drop in & say hi & let you know I was thinking about you. The Ava stories are hysterical...they always bring a smile. And Kylie is in our prayers every night-her smile makes my day. Love the pictures-Caron CARON TWEET <caron.tweet@transportamerica.com> COTTAGE GROVE, MN USA - Wednesday, October 15, 2008 10:55 AM CDT ATTENTION PRAYER WARRIORS: PLEASE JOIN OUR PRAYER VIGIL ON SUNDAY, October 19, 2008, BETWEEN THE HOURS OF 8-9 PM EST FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS. THANK YOU FOR JOINING US. Michelle Council/ Angel Wings <mcouncil@c-gate.net> Laurel, MS USA - Tuesday, October 14, 2008 11:11 PM CDT I love Ky's new pics ! I can't believe she is 4 already . Congrats on Gibbons #3 ...I'm seeing Carolina Tarheel Blue in the crystal ball ! Michele Gist - Monday, October 13, 2008 9:24 PM CDT Morning Sweet Kylie I am so happy that you are going to be a big sister again, what a blessing. Please know that I am thinking about you and keeping you in prayer always. Hugs special little girl MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Thursday, October 9, 2008 8:52 AM CDT Dear Maria, Boy, I go out of town to meet my buddy Westin (FINALLY!) and miss out on all the great news -- CONGRATULATIONS on baby number three!!!!! I will surely be praying that this baby will be healthy and TS-free, as I'm sure he/she will be. Who knows, maybe you'll get a boy this time around, and Neal won't be so outnumbered?! No matter what, it will be a lucky baby to be part of such a close, loving family! Congrats again, and hooray for Ky for doing so great with her speech!!!! Praying for your girls (and the new little one now!) each night, Janet McCann Janet McCann <janet@mccann-family.us> Austin, TX - Wednesday, October 8, 2008 9:37 PM CDT Congrats on baby # 3! Penny Tatman (Sinner) <sinner62@hotmail.com> St. Paul, MN - Wednesday, October 1, 2008 11:07 AM CDT Hi Kylie!! You were so great at Natties Birthday! I am soo proud of all the wonderful accomplishments you have made over the past few years! You are such an inspiration to others! I can't wait to watch you grow into the WONDERFUL woman you will be come!!! I'm excited for your family to add a new addition as well. You will be such a good help, and so will Ava! Well I will chat later ... April Ruud <ruud@umn.edu > Vadnais Heights , mn - Wednesday, October 1, 2008 8:16 AM CDT YAYAY... Baby #3 on the way. This is so exciting!! Another little one that Kylie can be a great big sister to and of course Ava now can too. I am so happy for your family. Love you guys! Jody, Jeff, and Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Tuesday, September 30, 2008 9:22 PM CDT Congrats!!! I'm so happy for you! And I love the pictures of the girls, they make me smile no matter what my day is like. I'm still praying for you guys. Can't wait to see a picture of pregnant mommy! Take care-Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Tuesday, September 30, 2008 1:49 PM CDT Yeah! Congratulations! I will keep your entire family in my prayers - no seizures, healthy baby, etc. Can't wait to meet the little one this spring! Michelle Lunders Blaine, MN USA - Monday, September 29, 2008 8:39 PM CDT I KNEW IT I KNEW IT I KNEW IT!!!!!! WOOT WOOT!!!! Congratulations Maria and Neil!!!!!! (who gets to break the news to Ava she's going to be a middle child!!) - HA!!! GOOD LUCK WITH THAT!!!! For Neil's sake - I will think BLUUUUUUUUUUUUUUE!! WOOT WOOT!! GOOD LUCK!!! I hope everything goes well for you!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Monday, September 29, 2008 6:37 PM CDT Morning Kylie the new pictures are just beasutiful!! I hope all is going well little one and you are having some wonderful days. Please know that you are surrounded with love and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Sunday, September 28, 2008 9:06 AM CDT Belated Happy, Happy Birthday to Beautiful Kylie! Your picture is beyond cute. What a photogenic Little Lady!! I love reading your Mom's updates. Keeping you in my prayers, Dorine McNary Williston, ND - Friday, September 26, 2008 12:23 AM CDT Hi Kylie, Thank you for having us at your fun Birthday Party. We had a great time at your princess party. You looked so pretty all dressed up on your special day. We hope you had a great day. I know your mommy is away and hopefully not missing you and Ava too much. I am sure you are so excited to see her and your Daddy. I miss you guys so much this week. We will see you this weekend though... can't wait!!! Love you and we will chat with you later! Your friend, Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, September 25, 2008 11:04 PM CDT Dear Kylie, Happy belated birthday!! Wow, I can't believe you are four! What a big girl! Your new picture at the top of your welcome page is GORGEOUS -- every picture your mommy puts up somehow seems more beautiful than the last -- I guess she's got pretty good subject matter, huh? :) I hope you had a great birthday party, and that it didn't rain, and more important, that you had the best present -- NO SEIZURES! You are an amazing little girl who works so hard and has come so far -- no wonder your family is so proud of you! Continuing to pray for you (I always include your sister, too!) each night, Janet McCann "Angel Janet" for Westin Dietz and Russell Bohannon P.S.: Tell your mommy I FINALLY get to meet my buddy Westin, who is 4 now like you, one week from tonight!!! I am going to fly across the country to spend a few days with him and his family, and I cannot WAIT! Ask your mommy to say a prayer for a safe trip, because I hate to fly. :) It will be a busy visit, as Westin is still cancer-free and full of energy -- you two would be quite a pair, I think! Happy (belated) birthday! Janet McCann <janet@mccann-family.us> Austin, TX - Wednesday, September 24, 2008 10:56 PM CDT Hey there...HAPPY BELATED BIRTHDAY KYLIE!! We hope you had a super wonderful birthday!! Hugs from our house to yours, Nikki and the Sickmann boys! :) Nikki Sickmann Farmington, mn - Wednesday, September 24, 2008 9:21 AM CDT HAPPY BIRTHDAY MISS KYLIE!!!!!!!!!! Your pictures are so beautiful! Love, Kim and Lydia Kim and Lydia Fiesel - Tuesday, September 23, 2008 9:16 PM CDT HAPPY BIRTHDAY KYLIE JO!!!!!!!!!!!!!!!!! Marie - the new pics of the girls are AMAZING!!! They are geting SOOOOOOOOOOOOOOOO BIG!!!!! AND OH SO BEAUTIFUL!!! Happy Anniversary Neil and Maria!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, September 23, 2008 1:33 PM CDT Kylie- We hope you had a super 4th Birthday!! Your princess party sounds so fun ... and NO rain on your special day - yeah! We hope this next year is filled with smiles and giggles. Much love- Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Monday, September 22, 2008 8:40 AM CDT Happy 4th Birthday Kylie! We can't believe how fast time flies. You are getting so big! We wish you many happy, healthy days to come. Lisa and Katelyn www.caringbridge.com/visit/katelynbragg - Sunday, September 21, 2008 3:16 PM CDT Happy 4th Birthday Kylie! We hope you had a wonderful day and many more! Kristie,Perry,Courtney,Ryan and Tyler Bredeson Kristie Bredeson <kbredeson_464@comcast.net> Bloomington, mn USA - Sunday, September 21, 2008 12:59 AM CDT Happy, happy birthday Kylie dear, May happy days come to you all year. If I had one wish, then it would be A happy, happy birthday to YOU from me! Polly@Angel_Wings Prayer Warriors - Saturday, September 20, 2008 9:48 PM CDT Happy Birthday Kylie!! Have a great day! Debbie/Angel_Wings - Saturday, September 20, 2008 2:31 PM CDT Happy bithday Kylie! Lisa and Laci will be there today to celebrate with you. Hope you have a wonderful day, Princess! Patti Kleven <lismorecor@aol.com> Cottage Grove, MN USA - Saturday, September 20, 2008 9:33 AM CDT Happy Birthday Kylie! What an absolutely beautiful picture of you on the home page and such a cute picture of you and Ava! What a perfect day for a party and hopefully the fact that you finally have nice weather for your b-day means this is the year for you! Love~ Christie Christie Fleischhacker <christie421@hotmail.com> - Saturday, September 20, 2008 9:29 AM CDT Happy Birthday Princess Kylie, You have always been and will always be Grandma's sweetie. What a joy you are! I am looking forward to a fun party and hope that this year will bring you many good things. Love, Grandm Karen Karen Ueland <klpu@aol.com> - Saturday, September 20, 2008 8:05 AM CDT HAPPY BIRTHDAY PRECIOUS LITTLE KYLIE I hope your day is filled with love and surprises. Big hugs birthday girl. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Saturday, September 20, 2008 6:25 AM CDT Morning Kylie I hope your seizures are more under control now. I know you are looking forward to a wonderful birthday. Please know that I am thinking about you and holding you close in prayer. Hugs little one. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Wednesday, September 17, 2008 7:25 AM CDT Princess Birthday Party.... absolutely fitting for Princess Kylie Jo Gibbons... dont you agree!!! Awwwwwwwww........... I cant believe she is going to be FOUR!!!! HAPPY 5th ANNIVERSARY Neil and Maria!!!!!!! WOOT WOOT!! I hope you have a GREAT vacation in Florida!! So........ does that mean baby Gibbons will be arriving in......... June/July 09? hee hee hee..... (Im so glad I live far away right now... YOU CANT SLAP ME!!) *MUAH* Happy Wednesday!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, September 17, 2008 6:02 AM CDT I haven't checked in on the website for awhile. The girls are absolutely adorable and so grown up. I so enjoyed working with your family. I learned so much from you and your girls! I think about you often - enjoy your much deserved anniversary get away! Take care! Maureen McGee <maureen.mcgee@isd623.org> Roseville, MN USA - Tuesday, September 16, 2008 4:51 PM CDT PLEASE JOIN OUR PRAYER VIGIL FRIDAY SEPT. 19TH. 2008 BETWEEN THE HOURS OF 8-9 PM. EST. FOR KYLIE AND ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS. Tracy/Angel_Wings Tracy/Angel_Wings <maverickmom08@sbcglobal.net> - Monday, September 15, 2008 7:26 PM CDT Just checking in on our sweet Kylie. You guys are in our prayers each & every day. I'll be thinking of all the 7940 moms & Frankies family tonight-everytime I think of Frankie it brings back the pain of losing Caroline, Muffin, Drew & Tori. We care about you guys so much-we feel like you're all famiy & we've never met. I did meet little Muffin at the fundraiser....and I'll meet all of our angels when I get to heaven. Thinking of you today......Caron Oops, almost forgot to tell you how adorable Kylie looked already for "school"! Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Monday, September 15, 2008 2:41 PM CDT Keeping Sweet Kylie & Family in my thoughts & prayers. I pray that the doctors will find a drug to help her. God bless you all. F.I.G.H.T. Faith In God's Healing Touch Love, Patricia / Angel Wings Patricia Bankston <patriciar@c-gate.net> Laurel, Ms U.S.A. - Monday, September 15, 2008 6:08 AM CDT Sorry to hear Kylie hasnt been feeling well... hope you got that monster put in his place!! (the seizures - not my sweet Kylie Jo!!) hee hee hee.......... *big sigh* on baby Frankie!! hugs to you my friend..... Ann Paradis <aparadis@travelers.com> Bristol, CT usa - Saturday, September 13, 2008 1:41 PM CDT UGG!!!! Never ending battle........ BUT.......... WHO is that GROWN UP YOUNG LADY when you open up this carepage? Awwwwwwwwwww........ Maria.... "OUR" lil girl is growing up!! hee hee hee..... Hope everything has calmed down a bit.... Hugs and kisses to everyone!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, September 9, 2008 11:39 AM CDT Hi Gibbons family! I'm sorry to hear Ky's been having a rough couple of days. I will keep praying for your sweetheart and that the Docs figure out what is causing this new string of seizures. Take care! Lots of hugs! Michelle Lunders Blaine, MN USA - Monday, September 8, 2008 9:56 PM CDT Bummer about the bad news! You're in our prayers, good luck getting rid of the seisure monster! Keep us posted. Kelly Gibbons & Clan <kelly@allbritesign.com> - Monday, September 8, 2008 2:29 PM CDT Just to let you know: we are regularly checking in!!! And OH how happy we are when we read GOOD news!!!! Sounds like indeed you all have a BUSY BUSY life, and Maria & Neil will be WONDERFUL for you to have a "just for two" vacation!!! Really LOVE to look at all the happy pictures, and each time we say :'those little girls are JUST SO VERY CUTE!!!!" Will keep checking in - - keeping you in our prayers!!! Take care!!!! Nordis Schrankler - Friday, September 5, 2008 4:50 PM CDT HAPPY FRIDAY!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, September 5, 2008 8:42 AM CDT Hi! I haven't signed in for awhile-but I always check to see how our girls are doing. And the four of you are always in my prayers. Just wanted to let you know I was thinking of you. I'm so excited that Kylie's doing well. Always-Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove , MN USA - Friday, September 5, 2008 7:39 AM CDT Girl, do you ever just stay home and RELAX!?!? Seems you are always on the GO GO GO! Must say I am so happy to hear that Ky is doing so well and up to going and having fun, and well, with little Miss Ava, I'm sure just staying put will never do with her :) Happy Labor Day! Hope you were able to get today off to ENJOY! Take care, good Luck Kylie with your first day of Preschool! Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Monday, September 1, 2008 10:39 PM CDT HAPPY LABOR DAY!!!!! Cant wait to see your first day of school pictures!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Monday, September 1, 2008 5:18 PM CDT Hi Kylie I am so thankful you are doing so well. I hope you had a wonderful time at the zoo this weekend. Sounds like your plans for school are coming togther very well and I am sure you are going to enjoy it. Hugs precious little girl, know that you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Monday, September 1, 2008 7:08 AM CDT Hi Guys...hope you are continuing to feel better! So glad to hear you are enjoying the fair...I was thinking about you when we were there last Sun. Good luck with school starting...talk to you soon, Nikki :) Nikki Sickmann Farmington, mn - Friday, August 29, 2008 9:49 AM CDT Hi Maria- I had a dream about you guys the other night. I dreamt you and Kylie were doing a commerical or public serivce annoucment for TS. Kylie was about 10 or 12 and had braces on her teeth. As for you Maria, you were pregnant. :) Sarah Boleen <slboleen@hotmail.com> WA - Wednesday, August 27, 2008 2:25 AM CDT HELLO LADIES!!!!! LOVE THE NEW PICTURES!!!!!!!! Hope everyone is feeling better......... XOXOXOX Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, August 26, 2008 6:55 PM CDT ahh kylie jo! i miss you and ava sooo much! i cant wait to see you guys this weekend! love you girls!! Auntie Kari <ueka0701@stcloudstate.edu> St.Cloud, mn - Monday, August 25, 2008 8:15 PM CDT Morning Sweet Kylie I am so sorry you werent feeling well and I pray you are much better now. I will be looking forward to hearing about your new school. Please know that I am thinking about you and keeping you close in prayer. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Saturday, August 23, 2008 7:33 AM CDT Dear Kylie, I'm so sorry to hear you're feeling yucky, and hope that since your mom's last post, things have improved for you. The new pictures of you and your sister, etc., are great -- you two are getting so grown up, and cuter than ever. I'm so glad that the golf tournament went so well -- you guys should give yourselves huge high-fives! I know today is your angel Drew's third angel anniversary, and I know your mommy will be right there for Drew's mommy as she misses her boy and her Muffin so much. My heart aches so much for that family, and I will never understand why both -- or even one -- of their babies had to leave so soon, but since I cannot change that, the least I can do is remember, and let them know that. They are lucky in having such good friends as you and your mommy to always be there for them when they need you, and I know God blesses you for that. Well, it's ridiculously late (couldn't sleep), so I will try again to sleep. I'll be sending up my prayers for you, including a big thanks for the strides you're making with your speech and other things -- you go, girl! Praying the seizure monster gives you a break and that you feel all better, Janet Janet McCann <janet@mccann-family.us> Austin, TX - Friday, August 22, 2008 3:26 AM CDT Hey Gibbons, I hope the golf event went well on Saturday. The weather certainly cooperated. Sorry I couldn't be there. Rachel Rachel Groess <rachmn@aol.com> Woodbury, MN USA - Monday, August 18, 2008 11:06 AM CDT Dear Maria, I'm sorry to read that Kylie is feeling poorly -- I'll definitely be saying prayers for her to feel better, and quickly. I hope you guys had a great day for your golf event, and that you had a good turnout and much support for this important cause. Please know your girls remain in my prayers each night. Most sincerely, Janet McCann Westin Dietz's and Russell Bohannon's "Angel Janet" Janet McCann <janet@mccann-family.us> Austin, TX - Sunday, August 17, 2008 10:52 PM CDT Hi- We hope the Kylie's Hope event went well yesterday!! You had such wonderful weather - much better than last year. Sorry we weren't able to make it, I was working all weekend. We were thinking of you guys. Hoping Kylie is feeling better...it seems that the summer "crud" is going around. I came home from work today to find Carson feeling miserable and resting on the couch. So much for getting a break from the colds in the summer!! Have a great week!! Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, - Sunday, August 17, 2008 5:28 PM CDT Hope all went well with the Tourney today and that you are relaxing a bit by now. What a BEAUTIFUL day for your event! Let Shannon and I know when we can come up for a Saturday or Sunday, SOON! Give those cute girls of yours some snuggles from me! See you later, ~Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Saturday, August 16, 2008 8:56 PM CDT Hi Kylie and Maria- We are really sorry that we can't be at the annual golf tourney. We really have enjoyed the last three years helping out. I hope you have fun and raise lots of money! We will be thinking of you! Maria that is a great picture of you and the girls! Love, Nicole Nicole Schueller <nicole.schueller@spps.org> Saint Paul, MN USA - Friday, August 15, 2008 9:11 PM CDT Hi Kylie... Are you getting geared up for your big tourney tomorrow? I know I am! Sounds like we are going to have a beautiful day too! It is such a pleasure for Nattie and I to get to see day-to-day. You are growing up so fast little lady and getting so smart. We love you very much! We pray for you always. Here's to a successful tournament tomorrow!!! Your friend Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Friday, August 15, 2008 9:29 AM CDT ATTENTION PRAYER WARRIORS: PLEASE JOIN OUR PRAYER VIGIL TUESDAY AUGUST 19TH. 2008 BETWEEN THE HOURS OF 8-9 PM. EST. FOR ALL THE FAMILIES ON OUR ANGEL_WINGS PRAYER LIST AND OUR ANGEL FAMILIES OF CHILDREN AND ADULTS WHO HAVE EARNED THEIR WINGS THANK YOU FOR JOINING US –Kim /Angel_Wings Kim <miller.k1971@yahoo.com> Lecompte, La USA - Wednesday, August 13, 2008 11:08 AM CDT Hey Girl! Let me know when to bring the cocktails and we can sort and fold while the kiddos play :-) Talk to you soon! ~Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Saturday, August 9, 2008 3:08 PM CDT Hi Kylie I am so thankful for the stable MRI. Praise the Lord for answered prayers. Know that I am thinking about you and keeping you close in prayer. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Friday, August 8, 2008 12:28 AM CDT HAPPY FRIDAY!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, August 8, 2008 9:17 AM CDT HI Kylie, I hope things go well tomorrow for you MRI. I know you will do great. You are always such a trooper. I love you! Grandma Karen Ueland <klpu@aol.com> Saint Paul, Mn - Sunday, August 3, 2008 11:14 PM CDT When my son put vicks in my daughters hair I was told to try dishliquid that cuts grease. It did do a great job a little drying thou. pam pamela curry <pammee@mchsi.com > e central , il - Saturday, August 2, 2008 3:20 PM CDT Kylie, I bet you are so excited to start school this fall!! You are going to have so much fun!! We'll be thinking of you as you go in for your MRI on Mon. Praying for good results- Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Friday, August 1, 2008 7:56 AM CDT I'm glad to hear that Kylie is doing so well! She's looking so big (as is Ava)! Oh, and I've heard dishsoap works on the vaseline :) Becca Andrews <andre149@msu.edu> Okemos, MI - Thursday, July 31, 2008 6:14 AM CDT I'm sorry that I am laughing about her hair...my daughters did the same thing, right before their dance pictures! I used a little cornstarch, patted it into their hair, then shampoo the hair with a clarifying shampoo. I did it twice, and it did a pretty good job! I used warm to hot water, as cold water doesn't help! I've also heard that a hair dryer can help too...it helps melt away the Vasoline! Good luck! Chris Rogers, MN - Wednesday, July 30, 2008 5:35 PM CDT I'm glad that our HERO is on his way home. Tell him a lady in South Dakota can't thank him enough. Hope your camping trip goes well. Prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD` USA - Saturday, July 26, 2008 5:21 PM CDT Morning Kylie I hope you have a wonderful time at the cabin. I will be praying for clean scans for you next month. Please know that you are always in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Friday, July 25, 2008 11:06 AM CDT Hi guys...looks like you have been having a great summer! The pictures are beautiful...what sweet looking little girls! Hope things are continuing to go well...talk to you soon, Nikki :) Nikki Sickmann <hownnik@Hotmail.com> - Tuesday, July 22, 2008 7:00 PM CDT The new pictures are adorable!!! The girls are beautiful. I continue to keep you guys in my prayers. Hugs & love, Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Monday, July 21, 2008 11:13 AM CDT HAPPY "belated" BIRTHDAY MARIA!!!!!!! I hope you enjoyed your special day!!! LOVE the new pictures of the girls!!! They are getting so big!! Ann Paradis <aparadis@travelers.com> Bristol, ct usa - Saturday, July 19, 2008 5:23 AM CDT Love, love, love the new pics. I don't think your girls (or their parents) could get any cuter. Looking forward to seeing you tomorrow! Love, Nena & Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Friday, July 18, 2008 3:11 PM CDT I have been reading your journal for a while now and your girls are so beautiful.... and i wish the best for them bonnie knutson <knutsonbonnie@yahoo.com> alden, mn usa - Thursday, July 17, 2008 12:03 AM CDT HAPPY BIRTHDAY MOMMY LOVE KYLIE AND AVA KYLIE JO AND AVA GRACE <KYLIEANDAVA@GIBBONS.COM> - Tuesday, July 15, 2008 12:54 AM CDT HAPPY BIRTHDAY MOMMY WE LOVE YOU YOUR ARE THE BEST LOVE KYLIE AND AVA KYLIE JO, AVA GRACE GIBBONS <KYLIEANDAVA@BESTSISTERS.COM> - Tuesday, July 15, 2008 10:59 AM CDT hey Kylie and family just wanted to say hi and Thank you for keeping up on how Molly is doing on her caring bridge site.I hope things continue to go well for you Scott and Molly Ksiazek <sdksiazek@gmail.com> - Monday, July 14, 2008 10:14 AM CDT ATTENTION PRAYER WARRIORS: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil on Saturday, July 19th between 8-9 P.M. EST for all of the children and adults on our prayer lists and our Angel Families. Please join us in prayer for these families. MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Monday, July 14, 2008 4:16 AM CDT ATTENTION PRAYER WARRIORS: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil on Saturday, June 19th between 8-9 P.M. EST for Kylie and all of the children and adults on our prayer lists and our Angel Families. Please join us in prayer for these families. MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Sunday, July 13, 2008 6:05 PM CDT Sounds like you are having a GREAT summer!! WOOT WOOT!!! HAPPY BIRTHDAY NEIL!!!!!!!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, July 11, 2008 2:12 PM CDT Hi Kylie and Family It sounds like you have some fun days ahead. I hope you have a wonderful time. Please know that you are always in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Thursday, July 10, 2008 8:35 PM CDT Stopping in to say Hi and send our hugs and prayers to our fav MN peeps :-) www.caringbridge.org/visit/gistboys Michele - Thursday, July 10, 2008 8:01 AM CDT Just checking in to see how everyone is doing..... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, July 9, 2008 12:22 AM CDT Happy birthday Daddy!! We love you SOOOOOOOO much! Love Ky and Ava your girlies <ky&av@gibbons.com> - Tuesday, July 8, 2008 7:07 PM CDT hey girlies, glad you had a good 4th, if you are ever in stillwater again, give us a call, we are right across the border - would love to meet for a lunch or playdate - - -loves, hugs and prayers tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Saturday, July 5, 2008 11:24 PM CDT HAPPY FOURTH OF JULY KYLIE !!! I hope your day is fulled with sun and fun. Please know that you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, Ma - Friday, July 4, 2008 5:40 AM CDT Happy 4th of July to two of my favorite lil girlies!!!! Ava - how is Dora doing? I hope she's been REAL HAPPY lately!! Im so proud of you and giving your paci to ^^McKenna^^ what a brave BIG GIRL you are!!! Kylie... I LOVE that new picture Mommy posted on you as you come onto your site!!! You are SUCH a beautiful lil girl!! I cant believe how BIG you have gotten too!!!! Im glad you are doing SO WELL in school too!!!! KEEP UP THE GREAT WORK!!!! I hope you girls have a GREAT day and enjoy some spectacular fireworks (I hope you arent afraid of them!) - just cover your ears on the really big booms!!! (thats what I do!!) *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, July 4, 2008 4:50 AM CDT Oh Kylie! I LOVE the pic of you, how beautiful! and miss Ava, I love your spirit girl! And I'm sure that Muffin is lovin' that paci you sent her, just because it's from you! Take care girls, and I hope to see you soon, maybe at the Twins game on the 19th???? Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Thursday, July 3, 2008 0:16 AM CDT Kylie, What a beautiful picture of you! I am so happy you have been doing so well and are learning so much even though you still have those nasty seizures from time to time. I was so proud to see you using your spoon at lunch the other day. You are making so much progress, it is fun to see. Love you, Grandms Karen Karen Ueland <klpu@aol.com> - Monday, June 30, 2008 11:26 PM CDT Hey Maria- I wanted to let you know that I talked with a family that have children that attend Holy Childhood. She was telling me what a tight knit community school and how she trust everyone. She was also letting me know that yes, they have a lot of parent vlounteers as she is one of them. She explained to me that the school is very loving and has really nice kids! She didn't know a whole bunch about the preschool teacher. The school is really hoping to bring more families in with this new program. The numbers are so low in each grade level. I think it would be a good fit for Kylie. Talk to you soon. Nicole Schueller <nicole.schueller@spps.org> Saint Paul, MN USA - Sunday, June 29, 2008 10:50 PM CDT Hi Ky I am so happy that you are doing so well and sounds like you are having some very happy time. Ava you are a big girl now !! Hugs special family know that you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, Ma - Thursday, June 26, 2008 7:17 AM CDT OH AVA - you ARE a big girl!!!!!!!!!!!! HOW SWEET OF YOU!!!!!!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, June 25, 2008 4:55 PM CDT Ava my sweets, I bet Muffin LOVES your paci! Take good care of your big sis. we love you and miss you! Cam, Shannon and Rand shannon olson <shannonolson914@yahoo.com> - Tuesday, June 24, 2008 6:02 AM CDT God, open my eyes so I may see And feel Your presence close to me ... Give me strength for my stumbling feet As I battle the crowd on life's busy street, And widen the vision of my unseeing eyes So in passing faces I'll recognize Not just a stranger, unloved and unknown, But a friend with a heart that is much like my own ... Give me perception to make me aware That scattered profusely on life's thoroughfare Are the best gifts of God that we daily pass by As we look at the world with an unseeing eye. ~ Helen Steiner Rice ~ Angel w/Angel_Wings Angel Venters, Moderator <angel2948@aol.com> Greenville, NC USA - Sunday, June 22, 2008 11:36 AM CDT hello kylie it was nice seeing you and the rest of your family at your aunts party you and your sister are sure growing up.I hope that you contiune to do better. Scott Ksiazek <sdksiazek@gmail.com> Saint Paul, - Saturday, June 21, 2008 12:44 AM CDT Morning Kylie I am so thankful that you are doing better now. Please know that you are in my thoughts and prayers always. Hugs special little girl MJ/Angel_Wings <marijeighn@gmail.com> Gardner, Ma - Wednesday, June 18, 2008 8:58 AM CDT Hi, I haven't stopped by for a bit, but I do pray for you. When Caroline got her angel wings I didn't think I'd quit crying. It's hard to understand why Jess, Muffin, Drew & Super C weren't healed when we prayed so hard. My best friend (my husband) reminded me that our little angels are happy with Jesus & that I may not ever understand the why, my part is to continue to lift you all up in prayer & help where we can. I laughed so hard when I read about Ava & Danielle's scuffle over bubbles. I realized how much I miss hearing about Ky & Ava. So I'll be checking in again. Thank you for helping me. Love, prayers & hugs always, Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Wednesday, June 18, 2008 7:48 AM CDT Happy Monday! Hope the girls had a good road trip to Fargo. I bought a picture from Jess's Dad a while ago and it is awesome. You all do so much for TS. God Bless you all. Aunty Rose Lakeland, Mn - Monday, June 16, 2008 4:32 PM CDT Happy Fathers Day Neil, Kylie and Ava are so lucky to have such a wonderful, involved,dad. You are amazing, and I am so happy to have you for my son in law. Love, Karen Karen Ueland <klpu@aol.com> - Sunday, June 15, 2008 10:25 PM CDT ATTENTION PRAYER WARRIORS: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil on Thursday, June 19th between 8-9 P.M. EST for all of the children and adults on our prayer lists and our Angel Families. PLEASE join us in prayer for these families. MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Sunday, June 15, 2008 2:46 PM CDT Gibbons: Beautiful, Beautiful, Beautiful photo shoot of Kylie and Ava. No more seizures, Kylie! Have a wonderful Summer! Your Friend at Children's, Youa <youa.thao@childrensmn.org> Saint Paul, MN USA - Saturday, June 14, 2008 10:21 PM CDT Hey Miss Kylie, so sorry that darn sz monster won't leave you alone! We'll pray that it goes away so you can enjoy the summer and so your Mom can have a break too! Miss you guys!! Love and hugs from us! Nikki <hownnik@hotmail.com> Farmington, mn - Thursday, June 12, 2008 9:55 AM CDT Hi Ky I am so sorry about all these seizures and I am praying they lessen soon. Please know that I am thinking about you and keeping you in prayer always. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Thursday, June 12, 2008 7:38 AM CDT I am loving all this good news. Kylie- you go girl! You are always in our thoughts and prayers! Vigabatrin. . . who would have thought? We have been on so many nasty drugs, and this one seems to be doing the trick by itself better than all the others combined! Gotta love those imported meds. Our girls have expensive taste! You guys give us hope. Hope that things will eventually get better! Enjoy these fun summer days! Lisa and Avery Hart Lisa Hart <lhart520@yahoo.com> Emporia, KS USA - Friday, June 6, 2008 5:39 PM CDT How wonderful to see your darling girl the way you knew she could be. You all have worked so hard, and kept going even when hope was hard to find, and here is your reward. I'm excited for all of you, and will continue to pray for progress. Katie <kfiebes@hotmail.com> - Thursday, June 5, 2008 1:12 PM CDT Morning Ky I am so thankful you are doing so well. Please know that I am thinking about you and keeping you in prayer always. Hugs special little girl MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Wednesday, June 4, 2008 9:05 AM CDT So happy to hear that you are doing so GREAT! I will continue to pray for your progress and God's blessings to rain down upon you! Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Tuesday, June 3, 2008 8:48 PM CDT Hi Kylie, It was so fun to finally meet you on Fri night! You are so cute! We hope you had a good time, hopefully we will see you out and about again! Rachele and Zach <rlaco2001@yahoo.com> Jordan, MN - Monday, June 2, 2008 11:28 AM CDT Morning sweet Kylie I so enjoyed looking at the new pictures. Please know that I am thinking about you and you are forever in my prayers. Hugs MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Saturday, May 31, 2008 6:30 AM CDT I can not believe how old Ky looks. She is turning into such a sweet little lady. Sounds like things are crazy in your house, but that's nothing new ;-) Hope to see you soon! Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Friday, May 30, 2008 8:37 PM CDT Good Morning Sleepy Head - The silken thread of a cobweb catches the first drops of morning dew. They hang like a string of jewels to sparkle in the first rays of the sun. The fragrance of an awaking rose whose scent wafts through the morning air, as its petals unfurl one by one to greet the morning sun. The chorus of the morning birds whose sweet song of praise, rejoice the waking of a brand new day, then alight to fly the freeways of the sky. Thinking of you today! God Bless, Stacy www.caringbridge.org/visit/stacydvorak Stacy Dvorak Shakopee, MN USA - Friday, May 30, 2008 7:52 AM CDT CONGRATULATIONS AUNTIE KARI!!!!!!!!! WOOT WOOT!!!!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, May 29, 2008 7:24 AM CDT hello kylie and family, I am glad that you are doing well we will keep praying for you all. Scott and Molly Ksiazek <sdksiazek@gmail.com> Saint Paul, Mn USA - Wednesday, May 28, 2008 10:19 AM CDT Morning Kylie and Family I am so thankful to hear you are doing so well and having some fun. Please know special little girl that you are always in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Gardner, MA - Wednesday, May 28, 2008 6:42 AM CDT AAAAAAAAAAAAAAAAAAA HA HA HA HA HA HA HA HA HA!! (sorry!) I JUST LOOOOOOOOOOOOOOVE AVA'S SPUNK!!!! hee hee hee......... so... tell me........ WHO does she take after??? Mommy or is it Daddy? hee hee hee.......... LOVE LOVE LOVE HER!!!!!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, May 21, 2008 11:59 AM CDT Morning Kylie and Family I have been away from the internet for awhile but please know that I have been keeping you in my thoughts and prayers. Hugs precious little girl, know you are surrounded with love. MJ/Angel_Wings <marijeighn@gmail.com> Gardner , Ma - Wednesday, May 21, 2008 5:56 AM CDT It was fun to hang out with you on Saturday! Ky you are doing awesome! I am so proud of you. Avs, when I got home I told Cam you were talking so good and he said he sure is going to miss your jibber jabber. Maria, you are amazing. You do so much for so many. Most people couldn't accomplish in a month what you do in day. Everyone should walk a day in your shoes, to learn to give more of themselves to help others, to learn to appreciate every day, to learn to love unconditionally. Good job my friend, I am proud to know you. shannon olson <shannonolson914@yahoo.com> lakeville, - Monday, May 19, 2008 6:23 AM CDT Just checking on the walk - hope you had a GREAT DAY!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Sunday, May 18, 2008 4:34 AM CDT Good Morning Kylie. I wanted to stop and let you that we are all praying for you sweet baby girl. I also wanted to let you know that your 'special angel MJ' has been away from the internet is gone longer than anticpated but is sending her love and prayers and missing you so. She is ok, just relocating.... Etta/Angel_Wings <grandmaettas@aol.com> - Saturday, May 17, 2008 9:45 AM CDT Attention Prayer Warriors: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil May 19th. between the hours of 8-9 pm.EST. for and all the children and adults on our Prayer List and our Angel Families.Please join us in prayer for these families.. Angel_Wings Etta Let Me Introduce You To My Lord..... El-Shaddai Etta/Angel_Wings <grandmaettas@aol.com> - Saturday, May 17, 2008 9:44 AM CDT Kylie, Sorry I can't be there for your walk but i will be thinking of you on that day. Scott Ksiazek <sdksiazek@gmail.com> Saint Paul, Mn - Thursday, May 15, 2008 9:42 PM CDT Hello you little cuties! Hooray for mastering two things in one day! You are an amazing little girl, Kylie! I am so sorry that my girls and I won't be able to join your walk on Saturday. Shayla and Cory both have soccer tournaments all day, we are all bummed to be missing your walk this year. Please know we will be there in spirit, cheering you on, wearing our "KYLIE"S HOPE" Tshirts! We love you so much and miss you so! Take care, Love you, Jen & Shayla Jen berkner <berknerjen@yahoo.com> Wanaming, MN - Tuesday, May 13, 2008 9:56 PM CDT Hi to the Gibbons Family Maria, I love reading your journal entries and I love the pictures of the girls (and the dog) eating the cake. Only one of the BEST mother's would let their kids do that. It is great. Congrat's to Kylie on using a straw. Any progress is so exciting. Good luck this weekend. I can't walk with you, but you will all be in my thoughts and my prayers and I will be making a donation. We need to get Kylie and all the other kids healthy. Happy Spring Jean Schrankler <jschrankler@aol.com> Stillwater, Mn - Tuesday, May 13, 2008 7:53 AM CDT Hapy Mothers Day Maria, You amaze me with all you do for so many and what a wonderful mother you are to your girls. They are lucky to have you. It is so nice to see Kylie making progress these days. What a sweet little girl who loves her "mommy" so much. Mom Karen Ueland <klpu@aol.com> - Sunday, May 11, 2008 8:43 AM CDT =======HAPPY MOTHERS DAY MOMMY======== kYLIE & AVA <KYLIEANDAVA@AOL.COM> - Sunday, May 11, 2008 8:30 AM CDT HAPPY MOTHERS DAY MARIA!!!!!!!!!!!!! XOXOXO Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Sunday, May 11, 2008 5:50 AM CDT HEY THERE SUNSHINES - SO GLAD TO HEAR ALL IS WELL AND WHAT A BIG GIRL KYLIE!!! SENDING MANY LOVES, HUGS AND PRAYERS TANYA - NICK www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Saturday, May 10, 2008 8:07 PM CDT How wonderful to know you are making progress - even if the steps may seem small. Hope this provided you all with a measure of relief as well as success, you deserve it. Can I teach her how to do spit balls now? Katie <kfiebes@hotmail.com> rosemount, mn - Thursday, May 8, 2008 12:41 AM CDT way to go Miss Kylie I sure and glad things are going well for you keep up the good work Scott Ksiazek <sdksiazek@gmail.com> Saint Paul, MN - Thursday, May 8, 2008 12:13 AM CDT Doing big ol' cartwheels of celebration here! Reese is sending you kissy faces, too. Way to go Ky! Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Tuesday, May 6, 2008 9:09 AM CDT YAY Miss Kylie!!!!! What a big girl you are! I can just see your mommy going crazy in the restaurant! What a huge accomplishment. Think of all that is to come! Love you, Kim and Lydia Kim Fiesel <ktfiesel@comcast.net> Lino Lakes, MN - Sunday, May 4, 2008 3:00 PM CDT Go Miss K! Way to go Kylie. That is a HUGE accomplishment! I'd have been yelling and clapping right along with mom. Sending many hugs and kisses, Nena and Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> - Sunday, May 4, 2008 7:31 AM CDT Ky, we are so excited for you. Big news! Maria, I bet you almost fell over when she did it. Wish I had been there. Cam can't wait to have you girls over again so come visit soon! Love you. shannon olson <shannonolson914@yahoo.com> lakeville, mn - Sunday, May 4, 2008 6:57 AM CDT (I just added a message to the Guest book - - and somehow it was sent into 'outer space' - -) SO: my message is: thank you for these neat updates to the Caringbridge site - - AND we will continue to 'check in' - - we will continue to add The Gibbons' family to our daily prayers, and What a SPECIAL COUPLE of sisters Kylie & Ava are!!! (Such BEAUTIFUL smiles) - - - Please know we are 'keeping in touch' - - - and we send GOOD GOOD Wishes - - - And 'talk' to you SOON!!! NS (& RS) Nordis - Friday, May 2, 2008 5:34 PM CDT Hi Kylie My name is Jenna and I came across your site. You are a beautiful little girl. Such a brave, courageous fighter and you will be in my thoughts and prayers. caringbridge.org/visit/champ291 Jenna <nevergiveup301@aol.com> Kamloops, BC Canada - Thursday, May 1, 2008 12:23 AM CDT Kylie,Just stopping by to say hi and to let you know we are thinking of you. God bless,love & hugs,Linn,Daniel & Ariel The Marrero's <gillinn7@msn.com> Port Orchard, wa usa - Wednesday, April 30, 2008 9:16 PM CDT Sending you and your family, love and hugs! I pray that the walk goes well. Kuddos to you for your initiative! Sarah & Lily, www.thelilyfoundation.org <SMKLCR@hotmail.com> Fort Collins, CO USA - Wednesday, April 30, 2008 9:08 AM CDT Hi Precious Kylie I am so thankful you are doing so well. I a keeping you in my thoughts and prayers little one. Hugs MJ/Angel_Wings <marijeighn@gmail.com> Athol, Ma - Friday, April 25, 2008 2:56 PM CDT Hey CUTE CUTE Pics!! WHat a nice little family you have!:) I just wanted to let you know that we won't be at the walk, we are going out of town to my niece's confirmation. Hope it goes well...give the girlies a hug! Talk to you soon! Nikki Sickmann <hownnik@hotmail.com> - Friday, April 25, 2008 1:11 PM CDT HAPPY FRIDAY GIBBONS GIRLS!!!!!!!!!! *muah* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, April 25, 2008 9:32 AM CDT Hi Maria, I love the picture of aunty with the kids. Just letting you know I'm still praying & thinking about you. Have a fantastic weekend. Caron Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, mn usa - Friday, April 25, 2008 6:35 AM CDT Hi Maria I check in once in a while to see your beautiful new pictures and to see how Kylie's doing. It sounds like all is well and that you have been very busy. Give Kylie and Ava a little squeeze from me. Pat Marcroft <kupuff5@hotmail.com> Shoreview, MN USA - Thursday, April 24, 2008 11:50 AM CDT Spring will be pretty…just give it a week, When flowers are blooming down by the creek. Bees will be buzzing as trees start to bud, But for the moment I'm covered with mud. Snow has been melting, since winter is through, Replacing the whiteness with puddles of goo. I stepped off the sidewalk and into the ooze. Next thing I knew, I stepped out of my shoes! Mud on my ankles and mud on my clothes. I stumbled face-first and got mud up my nose. Spring will be pretty, but I must confess, The first days of spring are a muckety mess! (Author Unknown) Just little old me…stopping by to check on you!! God Bless and Love, Stacy www.caringbridge.org/visit/stacydvorak Stacy Dvorak Shakopee, MN USA - Wednesday, April 23, 2008 6:05 PM CDT A couple of years ago a bomb threat was called in to our local WalMart (Mitchell, SD)right before Christmas (so the place was FULL) and nobody did anything, business went on as usual. At least Target got you out of the building so be glad for that. Prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD USA - Monday, April 21, 2008 9:12 PM CDT I sure hope Ava got her ICE CEEM after that incident!! (dont blame her for kickin and screamin!) SHE WANTED ICE CREAM!! HAPPY BIRTHDAY GRANDMA KAREN!!!! May you continue to enjoy to grandchildren each and every day for a long long long time!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Saturday, April 19, 2008 1:05 PM CDT *big sigh* never a dull moment.... I hope Ava is doing well.... poor beaner..... I guess that's good news on Kylie.... *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, April 16, 2008 8:47 AM CDT Attention Prayer Warriors:: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil Saturday April 19th. between 8-9 pm EST for and all the children and adults on our prayer list and our Angel Families. Please join us in prayer for these families.. Angel_Wings Etta <grandmaettas@aol.com> - Tuesday, April 15, 2008 5:46 AM CDT Stopping by to say hello and keeping you in my daily prayers. Elaine/Angel_Wings <eshattuck1@cox.net> - Sunday, April 13, 2008 6:27 PM CDT Kylie, You don't know me but I have a granddaughter who has a smile just like ours and she too has TSC. Abby is a very special little Angel brought to us from the good Lord just like yourself. I will keep you along with others with TSC in my prayers. I hope to see you/parents on May 17th for the walk. Keep smiling and keep on showing us how to live life. May God wrap His loving arms around you and guide you and protect all the days of your life. Nona Wood Nona Wood <crznluv@msn.com> Brooklyn Center, MN USA - Saturday, April 12, 2008 4:58 PM CDT Hey Ky, We hope that leg of yours get better We try and read your site everyday to see what you and your sisiter are up to. Scott and Molly ksiazek Saint Paul , Mn USA - Saturday, April 12, 2008 12:56 AM CDT Dear Maria, I'm glad you're feeling better, and hope Kylie's leg gets to feeling better very soon! I am in a rush but just had to say that the new pictures of the girls are awesome -- they are both growing up so quickly, and are so pretty!! I also plan to contribute to Kylie's Hope, and have a note by my PC to do so -- just have to talk to my husband to see how much we have to give. Gotta go. Hope you guys have a good weekend and everyone gets/stays well and warm (it's nearly 80 here -- yuck!!!) Janet McCann Westin D's ChemoAngel www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Friday, April 11, 2008 6:28 PM CDT OH Ky! I hope your leg feels better very soon. Stay warm this weekend. Hopefully the sun will melt all the snow we're getting! Love the new pics. Again, your girls couldn't get ANY cuter. Love Nena & Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, Mn 55811 - Friday, April 11, 2008 7:24 AM CDT Ouch Ky... what did you do to your leg sweetheart?? I hope you get better real soon!! Enjoy your day AND WEEKEND!! Hope the weather is nice so you can go play and run OUTSIDE!! Ava Grace... no flushing things down the toilet!! woops!!! HAPPY WEEKEND!!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, April 11, 2008 5:48 AM CDT I have read been reading your site for quite awhile. This is my first post. I absolutely love the pictures that you put up. I too have two daughters, only mine are 19 and 16 so it has been quite some time since we've had pics around like you do. We loved frosting the cake, they were so cute. My girls are both dancers, even the one in college so I really loved the dance class ones, too cute. Thanks so much for sharing them. Continuing to keep your family in prayers. Linda J White Bear Lake, MN USA - Thursday, April 10, 2008 3:53 PM CDT I love, love, love the pictures!!! The girls are growing up so fast! They are too adorable! Still praying, just checking in..... Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove, MN USA - Wednesday, April 9, 2008 6:48 AM CDT Just want to say I loved the new pictures the girls are growing up so fast! Scott Ksiazek <sdksiazek@gmail.com> st.paul, Mn - Tuesday, April 8, 2008 11:42 AM CDT ummmmmmmmmmmm - excuse me but...... WHO is that GROWN UP young lady you posted pictures of? HOLY MOLY!!! OUR lil Kylie Jo is growing up OH SO SWEETLY!!!!! Ava.... hee hee hee - I JUST LOVE HER GRIN!!!! *MUAH* (Im glad Im home "sick" so I could SEEEEEEEEEEE those pics!) hee hee hee........ Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, April 8, 2008 8:39 AM CDT LOVE the new pictures! Just checking in, letting you know I am thinking and praying for you all. Andrea Ueland - Tuesday, April 8, 2008 0:00 AM CDT Oh that darn flu bug is nasty! Praying for it to come and go quickly, so that none of you have to be down for a lengthy period of time. Glad that you and Shannon were able to make it up to Caroline's service on Monday. Wish I could've been there, sounds wonderful. Praying for them as well as for all of you 7940 mom's and kiddos. Sending you love, hugs, and many prayers! Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, m - Friday, April 4, 2008 7:53 PM CDT Kylie- I am so amazed at how much you can accomplish despite all of the setbacks you have encountered in your life!! You are so blessed to have such wonderful parents who provide all the best for you...and starting dance!! WOW!! Maria and the rest of the Gibbons clan- I hope all of you are feeling better soon and can enjoy this summer as you so deserve! Thinking of you guys often! Amy Quintana Mom to Sarah, 3 with TSC www.caringbridge.org/visit/sarahquintana Amy Quintana <amy212@bellsouth.net> Summerfield, NC - Friday, April 4, 2008 6:27 PM CDT Morning Kylie and Family I pray that everyone is feeling better now. As always you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Friday, April 4, 2008 6:42 AM CDT Love the cake mess. It is so wonderful to watch children, learn and explore. nancy gehrts <nancy.j.gehrts@aexp.com> maricopa, az - Thursday, April 3, 2008 1:56 PM CDT hello, we just wanted to right a note and hope everything is going good still and to wish you a happy April. Scott and Molly Ksiazek <sdksiazek@gmail.,com> saint Paul, Mn - Wednesday, April 2, 2008 2:52 PM CDT Glad you arrived safely home!! GOOD LUCK TODAY!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, April 1, 2008 6:21 AM CDT Wow Kylie is so cute just like C!!!!!! Love, Hailey Beitz Hailey Beitz <hal_hayhay@hotmail.com> Hillsboro, ND USA - Sunday, March 30, 2008 3:52 PM CDT Kylie,Just stopped by to say hi and to let you all know we're thinking of you. God bless,Love & hugs,Linn,Daniel & Ariel The Marrero's <gillinn7@msn.com> Port Orchard, wa usa - Sunday, March 30, 2008 10:54 AM CDT Dear Kylie, Just wanted to let you know that among the hundreds of pictures your mom has posted of you, I think the new one at the top of your welcome page is one of the most beautiful. Pretty in Pink, big-time! Say your prayers tonight for your friend, Caroline. Now you have another angel to watch over you..... Janet McCann ChemoAngel for Westin Dietz www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Friday, March 28, 2008 8:10 PM CDT Kylie, I love these pictures of you. It looks like your having so much fun. Never care how messy you get. That is half the fun. I am sorry to hear about your friend Caroline. Her family is in our prayers. We also hope that everything looks ok for your big appt. Keep on smiling! We love you! Your friends, Jody and Nattie <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, March 27, 2008 12:04 AM CDT "Kylie healthy" LOVE THE EXPRESSION!!!! *muah* Maria... do me a HUGE FAVOR PLEASE.... PLEASE give Abigail a REALLY BIG HUG & KISS FOR ME!!!!! *big sigh* I sure hope Caroline is having a GREAT TIME playing with Drew, Muffin, Jess and the other sweet angels!! (safe travels my friend!) *muah* I hope you get your answers real soon on Ky and her blood sugars... Thinking of you always and wishing you well...... Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, March 27, 2008 8:31 AM CDT Maria~ Just wanted to let you know that you, and all the other 7940 moms, are in my thoughts and prayers as Sweet Caroline has gone to heaven. I really don't know what to type....just wanted to let you know that I am thinking of you tonight. Kylie has another wonderful angel protecting her! Racqel Barthel <rbarthel@izoom.net> Becker, MN - Thursday, March 27, 2008 1:31 AM CDT What FUN! and YUMMY too! Love the pics, they are AWESOME! Hope you had a Blessed Easter, thinking of you today. Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, - Wednesday, March 26, 2008 8:35 AM CDT AAAAAAAAAAAAAAAA HA HA HA HA HA HA HA HA OMG - THE CAKE PICTURES ARE JUST THE BEST!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, March 25, 2008 7:22 PM CDT You look wonderful covered in chocolate, Kylie! You must have had a very fun time baking!!!! Susan/Angel_Wings <amdg31@yahoo.com> - Tuesday, March 25, 2008 5:28 PM CDT oh you Gibbons Girls!!! I can just hear you laughing and it fills my heart. I'm so glad you had a super day. hugs and kisses Josie Bemis <josiebemis@yahoo.com> Somerset , WI - Tuesday, March 25, 2008 8:51 AM CDT Love, love, love those pictures! What a fun day! Marianne/Angel_Wings <mjackson@wwhgd.com> Roswell, GA USA - Tuesday, March 25, 2008 8:43 AM CDT Oh my how these pictures just warm my heart. Thank you so much for sharing them with us. As always Kylie you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Tuesday, March 25, 2008 8:30 AM CDT I have tears running down my face I am laughing so hard!!! I love it!! You are Super Mom for letting those sweet girlies dig in and have fun. What precious and priceless memories. Thanks for bringing a smile to my face today- Amy <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Monday, March 24, 2008 3:54 PM CDT Those cake eating pictures are priceless. Sometimes you just have to say to H*#! with keeping things neat and tidy and just have some FUN! Messes are what make memories to laugh about for years to come. Sending you lots of love! Kim McClintick Lincoln, NE - Monday, March 24, 2008 2:43 PM CDT Happy Easter to Kylie and Ava, You girls are so much fun. What a mess you made with Muffin's birthday cake. I'm sure you will be much cleaner by Church today. Love, Grandma Karen Ueland <klpu@aol.com> - Sunday, March 23, 2008 8:35 AM CDT HAPPY EASTER!!!!! Wishing you a wonderful day!! LOVE the chocolate face Kylie.... I bet our sweet Muffin laughed when she saw that!!!! hee hee hee.... silly girl!! Happy Birthday in heaven McKenna!!! *MUAH* Hope the Easter Bunny leaves you lots of wonderful treats!! *MUAH* Ann Paradis <aparadis@travelers.com> - Sunday, March 23, 2008 6:49 AM CDT Happy Easter Gibbons Family! That has to be one of the CUTEST pictures ever! Sweet Kylie always puts a smile on peoples faces! We hope you have a wonderful Easter and a healthy and happy spring! (if it ever gets here!) Maria~thanks for being such a wonderful friend to me. I wouldn't be able to get through all of this TS "stuff" without you!! Love, Jim, Eileen and Mary Eileen Hable <ehable@hotmail.com> Lino Lakes, MN - Saturday, March 22, 2008 10:34 PM CDT
Dear Kylie, Hi, sweet girl! I've been checking in on you, but I keep forgetting to tell you how adorable the picture of you at PT is. I know the answer is yes, but is there EVER a time when you're not smiling? You can see the sunshine of your personality every single time you smile. No wonder you are such a charmer wherever you go! I wanted to wish you and your sister and mommy and daddy a Happy Easter. I hope you don't have to dig through the snow to find your Easter eggs.... :) I need to send your mommy an e-mail -- I have some questions about Kylie's Hope, especially about a donation and some other stuff, but my e-mail can only receive and not reply or send, so it may be a few days. Please tell her I haven't forgotten -- it will be coming up before we know it! I still owe her an e-mail from several weeks ago, too -- I just can't seem to catch up, especially now.....aaauugh! Tell her she keeps me amazed with all she and your daddy do for and with you girls, and that she cracks me up with her descriptions of both your antics -- especially Miss Ava! I saw the book, "Teeth are not for Biting," and laughed to myself about how it didn't go over so well with your sister.... Well, it's late, but I wanted to say hi before the busy weekend kicked in. I hope you get to feeling all the way better and that you have a wonderful Easter. I can't wait to see the pictures! Janet McCann Westin Dietz's ChemoAngel www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Friday, March 21, 2008 10:07 PM CDT Dear Gibbons family, I'm glad to hear Kylie is finally feeling better. Thank you for all the beautiful pictures you share. May you have a blessed Easter. Kathy (aunt of Jess Marie) Kathy Johnson <Kathleen.A.Johnson@Gmail.com> wyoming, MN USA - Friday, March 21, 2008 2:45 PM CDT Can you believe this crazy snow?! Oh well, at least it makes great snowmen and it will melt in a couple days. It sounds like Kylie had a great week at school and therapy. Way to go, Kylie!! I bet you and Ava are excited to get lots of goodies in your Easter baskets!! Jelly beans before church are always a great idea - ha! Happy Easter!! Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Friday, March 21, 2008 10:50 AM CDT Easter Reflections by : Helen Steiner Rice, With OUR EYES we see the beauty of Easter as the earch awakens once more... With OUR EARS we hear the birds sing sweetly to tell us Spring again is here... With OUR HANDS we pick the golden daffodils and the fragrant hyacinths... But only with OUR HEARTS can we feel the MIRACLE of GOD'S LOVE which redeems all men... And only with OUR SOUL can we make our 'pilgrimage to God' and inherit His Easter Gift of ETERNAL LIFE. I pray for a blessed Easter for your family MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Friday, March 21, 2008 8:55 AM CDT (Keep checking into this NEAT NEAT website - - and saying a prayer for Dear Kylie, and ALWAYS appreciating the neat family unit that is a part of her life) - SO: AGAIN: thank you for all of these 'updates' - - NOW we are heading into Spring and indeed a new season with MUCH MUCH promise!!! The WHOLE family is FOREVER in our prayers!!! Thank you for BEING YOU!!! Love, NS (& RS) Nordis Schrankler Stillwater, MN - Thursday, March 20, 2008 10:00 PM CDT Hope you all have a wonderful Easter! Perry, Kristie,Courtney, Ryan and Tyler Bredeson Kristie Bredeson <kbredeson_464@comcast.net> Bloomington, MN USA - Thursday, March 20, 2008 1:24 PM CDT hello everyone we just want to wish your family a very Happy Easter. Scott and Molly Ksiazek <sdksiazek@gmail.com> Saint Paul, Mn - Thursday, March 20, 2008 1:01 PM CDT Happy Easter to two of my favorite girls!! I sure hope the Easter Bunny brings you lots of neat treats!! XOXOXO Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, March 20, 2008 12:41 AM CDT Wishing you a wonderful Easter! Glad to see the girls doing well and keeping you on your toes. They sure grow up too fast and I miss the earlier years with my older three already although I do love their independence. I guess I have Ryan to keep me in those toddler years as he may never outgrow this stage. Sending you lots of love! Enjoy those Easter egg hunts and all the candy - yummy! Kim McClintick Lincoln, NE - Thursday, March 20, 2008 9:33 AM CDT Hi Kylie I am so glad you are feeling better and having a good time at school. Hope you enjoy you new friend. Have a wonderful Easter and know that I am thinking about you and praying for you always. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Thursday, March 20, 2008 8:22 AM CDT Happy St. Patrick's day, Gibbons! I love the new picture... Ky, those smiles are PRICELESS! God bless! Julie <Swimjulie9@aol.com> Burnsville, MN USA - Monday, March 17, 2008 10:26 PM CDT Happy St. Paddy's Day Kylie & Family!! Have a wonderful day! Lots of love & hugs coming your way from Cottage Grove! Caron Tweet <caron.tweet@transportamerica.com> Cottage Grove , MN USA - Monday, March 17, 2008 9:14 AM CDT Attention Prayer Warriors: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil March 19th. between the hours of 8-9 pm.EST. for and all the children and adults on our Prayer List and our Angel Families.Please join us in prayer for these families.. Angel_Wings Etta/Angel_Wings <grandmaettas@aol.com> - Saturday, March 15, 2008 12:02 AM CDT Hi Kylie, Are you feeling better yet? We hope so. We are praying for your friend Caroline and you of course as always. Hope you enjoyed this beautiful day! XOXOXO Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, March 13, 2008 4:39 PM CDT Hey Kylie we wanted to say hello to you and your family.Hope you feel better soon. Scott and Molly Ksiazek Saint Paul, Mn - Wednesday, March 12, 2008 9:49 AM CDT I remember that car accident very, very well. That was terrible. The family is incredible, though! Their faith in God is amazing! I'm so glad that you're feeling a lil better, Kylie! Woo hooo! Just think, spring will be here in nine days... perfect timing! Praying that ya'll have a good day! God bless! Julie <Swimjulie9@aol.com> - Tuesday, March 11, 2008 12:30 AM CDT Hope you are feeling better SOON Kylie!! Maria - interesting when you say you are going to listen to a speaker who lost three of her children days before her sons wedding and THAT puts YOUR LIFE into perspective..... HONEY - YOU ARE MY PERSPECTIVE!!!!!! You and the rest of my caringbridge FRIENDS!! DONT EVER THINK FOR A SECOND what you put into words here is for nothing!! GOD BLESS YOU!!!! Oh Ava.... those terrible two's... hee hee hee.... silly lil girl.... Since I cant be part of your "walk" YOU KNOW I'll be donating in Ky's honor AND would love the chance to WEAR THIS YEAR'S SHIRT!!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, March 11, 2008 11:42 AM CDT Kylie I am so sorry you are not feeling well. I am praying that you will recover very quickly. Please know you are surrounded with love and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Sunday, March 9, 2008 6:36 AM CDT Oh I'm sorry to hear that Kylie's not feeling good! I'm praying for you sweetie! God bless! "Praise be to the God and Father of our Lord Jesus Christ, the Father of compassion and the God of all comfort, who comforts us in all our troubles, so that we can comfort those in any trouble with the comfort we ourselves have received from God.”- 2 Corinthians 1:3-4 Julie <Swimjulie9@aol.com> MN USA - Saturday, March 8, 2008 1:04 PM CST Hey, just checking in with you. Sorry to hear of the illnesses invading your house. Prayers go out tonight that Ky starts to feel better soon. Good luck on your :) Nikki <hownnik@hotmail.com> - Friday, March 7, 2008 10:30 PM CST Hello Gibbons! I'm just checking in on all of you and hoping you're having a great day! Andrea Ueland St. Paul, - Thursday, March 6, 2008 6:17 PM CST Hi Kylie, I just wanted to jump in and say hi. Even though Nattie and I are really lucky to see all the time now. We hope that you are feeling better. Hopefully spring will be right around the corner. XOXOXOX Jody <jody_prudhomme@yahoo.com> St. Paul, MN - Thursday, March 6, 2008 1:17 PM CST Kylie -- I hope you're feeling better soon. Hopefully, the next increase of Vigabatrin will do the trick and kick the monster to the curb for days on end! High fives from Meghan! Best to all of you, Jennifer - Mommy to Meghan - 2 w/TSC www.caringbridge.org/visit/meghangracew Jennifer Weingarth Suwanee, GA - Thursday, March 6, 2008 7:19 AM CST Morning Kylie I am sorry about the stuffy nose and sinus problems. I hope you feel better very. As always you are in my thoughts and prayers. Hugs special little girl. MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Wednesday, March 5, 2008 10:40 AM CST GOTTA LOVE AVA!!! HA HA HA HA HA HA - you must not have ENOUGH excitement in your life!! hee hee hee.... Oh Grandma Karen..... GOD BLESS YOU!!!!!! (what a nice gentleman to stop and ask if you needed help) - Im sure you know most people would have RAN OUT SCREAMIN!!!! KEEP SMILIN SUNSHINE!!! I hope you have a SEIZURE FREE DAY!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, March 5, 2008 7:22 AM CST Hey Gibbons! I'm praying for all of you! God bless! "Have I not commanded you? Be strong and courageous. Do not be terrified; do not be discouraged, for the LORD your God will be with you wherever you go." Joshua 1:9 Julie <Swimjulie9@aol.com> MN USA - Tuesday, March 4, 2008 11:03 PM CST hey guys, just a note to say hello - sending many loves, hugs and prayers - tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Monday, March 3, 2008 4:25 PM CST Morning Kylie I am praying that fever is gone. I pray the Drs will have the answers for Kylies low blood sugars. As always sweet little girl, you are in my thoughts and prayers. Hugs MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Saturday, March 1, 2008 8:23 AM CST Dear Maria, I wanted to share what happened last night with Kylie and I. We went to Office Max to get a new stapler. As we walked in the door, and I was putting Kylie in the cart, a very friendly older man who worked there said hello to us. Kylie gave him her trade mark grin and proceded to go into a seizure ( not sure if coming in from the dark to bright lights set her off) As I comforted her and held her, he asked if she would be okay or if I needed help. I told him briefly that she has seizures and a brain tumor, and this a something we deal with but she is okay. She came out of the seizure and smiled at him again. He commented " no matter what, what a beautiful child you have there". I totally agreed and we went on with our shopping. Mom Karen Ueland <klpu@aoo.com> Saint Paul, Mn - Thursday, February 28, 2008 3:02 PM CST Glad to hear you guys had a GREAT sleepover!! LOVE the picture of you walking Sadie!! hee hee hee - what a GOOD GIRL!!! I cant believe Kylie and Ava are the SAME SIZE! Hope you all have a GREAT day!! XOXOXO Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Wednesday, February 27, 2008 5:55 AM CST Hi Kylie, I love the joy on your face when you took Sadie for a walk. You sure know how to have fun! I am glad you are doing better this week. Love, Grandma Karen Ueland <klpu@aol.com> - Tuesday, February 26, 2008 11:25 PM CST Hey, Kylie, Sounds like you're doing pretty well -- yay! I love the picture of you with your dog, but really, girl, who's walking who, here?:) I'm glad it's not quite so cold so that you can get outside a little bit. Your mommy would think I'm crazy, but I am jealous of your snow! I grew up in New England and lived in Milwaukee and North Carolina before here, and even NC had snow! Texas weather bites, er um, stinks (oops, forgot who I was "talking" to -- sorry!). I hope all goes well with the eye doctor -- I know it will be a long day for all, but I'll be praying that you get through it and that you get some (good) answers there and from your other appointments for this week. Tell your Mom I've seen some "Irish Princess" socks, shirts, etc., at Kohl's and I think Target, too, if she hasn't already gotten something for you and Miss Ava! Well, gotta wind down for the night. I'll be saying prayers for you in just a bit! Janet McCann Westin Dietz's ChemoAngel www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, February 26, 2008 10:37 PM CST Hey! I just read your entry and wanted to know if your little angel has started the rapamycin yet and if so, how its going? My son (1 yr old) also has TSC. I had hoped rapamycin would be the answer to our prayers. I didn't realize that as soon as they stopped the drug, the tumors would reappear. Please know that all your updates and entries are very much appreciated and cherished! I will pray for your little girl. christi davis <thechristi75@hotmail.com> columbia, sc usa - Tuesday, February 26, 2008 1:06 PM CST Glad to hear things are going ok with you guys. We're down in sunny Orlando where the temp is 85 and we're enjoying the princesses and the magical castle. Whoever made the slogan, the most magical place on earth obviously didn't have a 3 year old and a 13 year old!!! At least by reading your stories I know I'm not alone with a 3 year old having a tantrum int he parking lot! We will keep praying for you and your family and that Kylie gets stronger and stronger. Enjoy your heat wave and we'll enjoy ours down here for the next week, then back to reality in MN. We'll make some magical wishes at Cinderella's castle for Kylie! With Love - Lisa, Charlie, Tori & Makenna Lisa Studiner <lstudiner@msn.com> Cottage Grove, MN USA - Monday, February 25, 2008 5:51 PM CST hi kylie i heard you are doing good im very glad to hear that!! keep on hanging in there though. LOVE YA!!! shayla berkner shayla <shayla6397@hotmail.com> Wanamingo, Minnesota, mn USA - Sunday, February 24, 2008 1:19 PM CST Thats GREAT about the GOOD NEWS!!! As for the not so good news... *big sigh* XOXOXOXOX Hope you girls have a great weekend!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, February 22, 2008 2:38 PM CST Sending up prayers for all your needs and complete healing, Love and prayers, Carol/Angel_Wings Carol Brothers <carolab7@comcast.net> - Thursday, February 21, 2008 10:32 PM CST Dear Maria, I did a little "hooray" as I began reading the MRI results on Kylie, thena bigger, "Oh S---!" when I read the rest. You are so right -- this disease does SUCK, and I am sorry beyond words that it has struck your child (I wouldn't wish it on anyone). Let me say that I think you are doing the absolute best for Kylie, always -- a good deal of her sunshine personality is definitely just "her," but don't discount the role you and Neal play in bringing about a good portion of the smiles and sweetness that you do get. No child can be happy with bad or mediocre parents, and a child who has been through and continues to go through things that your sweet Kylie has could not do so as well as she does without GREAT parents. You guys are probably her best -- definitely her most reliable! -- medicine. I will be praying extra hard that Kylie's future MRI's will show better results all-around, and as always, for treatment advancements and a cure that will benefit her and all others affected by this. Although I can't be there due to distance, please count me in on however I can help with Kylie's Hope. Just drop me an e-mail, anytime. Praying for a GOOD weekend for you guys, Janet McCann Westin Dietz's ChemoAngel www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Thursday, February 21, 2008 9:39 PM CST I'm so glad to hear you got some good results back, and am praying hard that they figure out the best treatments for you! Susan/Angel_Wings <amdg31@yahoo.com> - Thursday, February 21, 2008 3:48 PM CST Hi, Sweetheart, I see you really love that kitty! Surrounding you in an abundance of prayer. In Christ's love, Bud/Angel_Wings Bud West/Angel_Wings <budwest681@hotmail.com> - Thursday, February 21, 2008 2:35 PM CST Lots of prayers being said for you!! In His Service, Ginny/Angel_Wings www.caringbridge.org/ky/farmgirljoy ~~~~But they that wait upon the LORD shall renew their strength; they shall mount up with wings as eagles; they shall run, and not be weary; and they shall walk, and not faint. ~~~~Trust in the LORD with all thine heart; and lean not unto thine own understanding. In all thy ways acknowledge him, and he shall direct thy paths. Ginny/Angel_Wings <thejoyfulcottage@yahoo.com> Dunnville, KY USA - Thursday, February 21, 2008 8:47 AM CST Sending you lots of prayers and hugs. Carolyn Wing/Angel_Wings <carolyn_wing@yahoo.com> Carson City, MI - Thursday, February 21, 2008 7:59 AM CST NO! NO! NO! This disease SUCKS so bad! I am so sorry about this news. Kylie, I send you many hugs, kisses and tons of prayers for Jesus to bless you with a miracle of HEALING! You are such a trooper through all of this, a strong, beautiful little girl! So proud of you! Love you all, Jen Jen <berknerjen@yahoo.com> Wanamingo, MN - Thursday, February 21, 2008 7:54 AM CST Kylie and Family I am thankful for the positive tests results and will be praying for the Drs to find the right treatment for the Sega's. As always I will be keeping Kylie in my thoughts and prayers. Hugs special little girl. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Thursday, February 21, 2008 5:06 AM CST Many many prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD USA - Wednesday, February 20, 2008 11:21 PM CST I wish we had the results of the MRI. Waiting to hear is a pain........Kiss the girls and hug everyone in your family. Love Auntie Rose Auntie Rose - Wednesday, February 20, 2008 10:05 AM CST Goodmorning Kylie, Ava & Maria! Praying for a GREAT DAY! I have to say that I totally agree with Grandma's post, Kylie. You are an amazing little girl with a beautiful spirit and soul! I enjoyed spending some time with you and cuddling you! Thanks! Hope to see you all again soon! Have a fun time at your sleepover, enjoy the BIG TUB! And SPLASH SPLASH SPLASH! Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanaming, MN - Wednesday, February 20, 2008 6:54 AM CST Hello Kylie, I enjoyed having you spend the day with me today. You never cease to amaze me. You have the most beautiful spirit, soul and smile. You light up any room you are in. I wish people who read about you could actually meet you in person and see what I am talking about. We are so lucky to have you in our lives. Love, Grandma Karen Ueland <klpu@aol.com> Saint Paul, Mn - Tuesday, February 19, 2008 10:55 PM CST HAPPY SLEEPOVER!!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, February 19, 2008 6:38 PM CST Hope everything worked out so Kylie could have her MRI. Praying that the results are good!! Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Tuesday, February 19, 2008 7:05 AM CST Just thinking about you all!! Praying the MRI went well! Hugs fom our house, Nikki :) Nikki <hownnik@hotmail.com> Farmington, - Monday, February 18, 2008 8:10 PM CST Praying Kylie's MRI went smoothly, and is stable! Karen H Chippewa Falls, - Monday, February 18, 2008 6:16 PM CST Praying for Ky's MRI ( and the paperwork too) . Hoping to hear the words NO CHANGE . www.caringbridge.org/visit/gistboys Michele - Monday, February 18, 2008 7:46 AM CST Crossing my fingers that you got all the paperwork, Ky's feeling better and all goes smoothly today for her MRI. Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Monday, February 18, 2008 6:22 AM CST sorry to hear you guys havent had the best of days.... its always something - isnt it? Sure hope that seizure monster is being kinder to you..... Thinking of you ALWAYS!!!! XOXOXOX Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Saturday, February 16, 2008 1:20 PM CST Dear Kylie, I hope you are feeling better today, and I pray thatbeginning with next year, valentine's Day will be a GOOD day in the Gibbons household -- enough of this Valentine's curse!! It sounds like you and Miss Ava are keeping mom and dad busy, as usual -- I don't mean with the sicknes part, but with the cute parts! By the way, give me back my cat! :) I am just kidding, but your cat looks exactly like on of my cats, Louie (I have six). I know you're little, but he looks big, just like Louie, and true to cat form, he's totally in our way while you're trying to look at your book (but I bet you love him anyway!). Know I remember you in my prayers, and think of you often. You and your sister are ADORABLE, but I'm guessing you already know that -- you must hear it everywhere you go! Feel better, sweet girl, and tell Mom and Dad I'm praying for all of you each day. Janet McCann Westin Dietz's ChemoAngel www.caringbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Saturday, February 16, 2008 11:19 AM CST Morning Kylie I am praying you feel better today. I am keeping you in my thoughts and prayers little one. Hugs MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Saturday, February 16, 2008 7:58 AM CST Hope today finds you feeling better, Ky. Sending many "get out of there germies" thoughts your way. Feel better soon! Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Friday, February 15, 2008 6:52 AM CST Praying for a smooth evening and a brighter day ahead for you all! Thinking of you today and of your sweet angel friends, Muffin & Drew. Happy Valentine's Day! love you, Jen Jen Berkner <berknerjen@yahoo.com> wanamingo, mn - Thursday, February 14, 2008 9:11 PM CST I just don't think your girls could get any cuter. Nice work! No stroller is such a milestone when you have children, as is no nap time :). Aren't you excited for this summer when they can both run around outside and play? Ka tie <kfiebes@hotmail.com> Rosemount, - Thursday, February 14, 2008 7:04 PM CST Sorry to hear that you guys have the winter crud at your house. We've all been sick this week too. Poor Kylie, she gets a tiny break from the seizures, only to be sick. Hoping she feels well soon and that by some miracle she is OK for her MRI on Monday! Thinking of you and hope you are all feeling better soon!!! Sending hugs- Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, - Thursday, February 14, 2008 4:44 PM CST Hey Maria and Gang, Here's hoping your day has turned around. Happy Valentines Day to 2 of the sweetest little girls I know! Hugs and Kisses from our family, Nikki :) Nikki <hownnik@hotmail.com> Farmington, mn - Thursday, February 14, 2008 3:43 PM CST Happy Valentines Day to two little Princesses. Hearts full of hugs, love and kisses Love Auntie Rose Auntie Rose - Thursday, February 14, 2008 10:37 AM CST HAPPY VALENTINES DAY KYLIE !!! I hope today is filled with love and happiness. As always you are in my thoughts and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Thursday, February 14, 2008 9:54 AM CST Attention Prayer Warriors:: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil Tuesday, February 19th between 8-9 pm EST for and all the children and adults on our prayer list and our Angel Families. Please join us in prayer for these families.. Angel_Wings Etta/Angel_Wings <grandmaettas@aol.com> - Thursday, February 14, 2008 6:19 AM CST I lookat all the beatiful pictures of you and all of them you are smiling. I see you love your kitty, I love them too. I am praying for you and asking God taht your scans are clean. In Christ's love, Bud/Angel_Wings Bud West/Angel_Wings <budwest681@hotmail.com> - Wednesday, February 13, 2008 6:41 PM CST I like the picture of you cat too!!!!! My kitties names are Felix, Lexus, Agnes, Sebastian, Calie. These are my indoor cats. I have many moore outside. I will be praying for you tomorrow during your clinc visit and I pray your fever goes away. Hugs and prayers. Carolyn Wing/Angel_Wings Grandma to Laura Stage IV neuroblastoma carepage LauraVDB <carolyn_wing@yahoo.com> Carson City, m - Wednesday, February 13, 2008 1:09 PM CST Hi Kylie I love the picture of you with your cat, I love cats and mine looks a lot like yours. I will be praying that your check up tomorrow goes well. I hope your fever is gone and that Mom is feeling better too. Hugs precious little girl. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Wednesday, February 13, 2008 12:08 AM CST John 3:16-21 God so loved the world "God so loved the world that he gave his only Son, that whoever believes in him will not perish, but have eternal life. Sending Prayers and Love your way this Valentine’s Day! God Bless, Stacy www.caringbridge.org/visit/stacydvorak Stacy Dvorak Shakopee, MN USA - Tuesday, February 12, 2008 4:01 PM CST Sending you hugs and prayers. www.caringbridge.org/visit/johnshattuck www.caringbridge.org/visit/bettywilliams Elaine/Angel_Wings <eshattuck1@cox.net> - Monday, February 11, 2008 5:42 PM CST Thank you so much for sending in your registration, and of course for all those cute pictures! Please know I am praying for the seizures to cease and for the infection to clear. Never hesitate to let me know if there is anything we can do for you. My two little miracle nephews: www.caringbridge.org/visit/asherandjacob For Prayer Support: Laura Lynn <laurainsem@yahoo.com> Gettysburg, Pa - Monday, February 11, 2008 2:03 PM CST Hi Kylie just dropping by to say HI !! As always precious little girl you are in my thoughts and prayers. Hugs MJ/Angel_Wings <marijeighn@gmail.com> orlando, Fl - Saturday, February 9, 2008 1:32 PM CST Sounds like you girls have been BUSY!!!!! Ky... Im right there with you baby - I dont like the dentist either!!! BLAAAAAAAAAAAA!!! (although Im a good girl for xrays!) - I KNOW those dont hurt!!! (I dont like the cleaning part or the DRILL!!) BLAAAAAAAAA!!!!! Glad to hear you are both cavity free!! YAY!!!!!!!! EAT MORE CANDY!!! *muah* Those of us who cant join you on your Kylie's Hope walk.... are you doing t-shirts? CAUSE YOU KNOW I WANT ONE!!! WOOT WOOT!!!! Hope you enjoy the day and hope your weather is WARMING up!!! HA HA HA HA - yea riiiiiiiiiiiiight!!! Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Thursday, February 7, 2008 5:49 AM CST HI Gibbons Family.........hope Ava liked the balloons for her birthday...hop-e kylie is feeling great, she's such a little princess!!!!!!!!! Ava already 2!!! WOW time goes by fast!!! I'll be by with more balloons for valentines day. lova ya all jessie jessie gibbons <jessieg@mayflowerdistributing.com> st paul, mn usa - Monday, February 4, 2008 2:21 PM CST Happy Birthday Ava. You don't know me...and I don't even remember how I found your page. I so enjoy reading all the updates on how the girls are doing. Although I must admit....I almost had a seizure myself while reading with all the hearts moving around on the page! WILD!! Have a great week!! Kacee Jamison Clovis, CA - Monday, February 4, 2008 11:21 AM CST LOOOOOOOOOOOOOVE the birthday wink........ AAAAAAA HA HA HA HA HA HA HA Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Monday, February 4, 2008 7:17 AM CST Happy Birthday (a little late) Miss Ava!!! What a big girl you are!!! We love you. Hope you had a fun day!!!! Love, Kim and Lydia Kim Fiesel <ktfiesel@comcast.net> Lino Lakes, MN - Sunday, February 3, 2008 8:13 PM CST I know I'm a day late, but Happy Birthday Miss Ava! What a true joy you are! Love, Nena, Scott, Griffin and Reese www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Sunday, February 3, 2008 6:19 PM CST Happy, happy birthday Miss Ava Grace! You've grown up! Wow... 2 already?! "May the Lord bless you and make His face shine upon you this year." Cute picture... Praying for all of you and God bless! Julie <Swimjulie9@aol.com> Burnsville, MN USA - Saturday, February 2, 2008 11:28 PM CST HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY TO YOU HAPPY BIRTHDAY DEAR AVA, HAPPY BIRTHDAY TO YOU! WISHING YOU ALL THE BEST TODAY AND ALWAYS! HOPE TO SEE YOU TOMORROW AT THE OLSON'S! LOVE YOU, JEN & SHAYLA Jen & Shayla Berkner <berknerjen@yahoo.com> Wanaming, MN - Saturday, February 2, 2008 10:31 PM CST Happy Birthday Ava, You are such a fun little person to be with. You make all of us laugh with your antics. You are such a great little sister to Kylie. You make her laugh too. We love you so much. Grandma Karen Karen Ueland <klpu@aol.com> - Saturday, February 2, 2008 7:53 AM CST HAPPY 2nd BIRTHDAY AVA GRACE!!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Friday, February 1, 2008 12:42 AM CST Kylie, I hope you get better seizure control and Happy 2nd Birthday, Ava. Kylie and Ava keep smiling Allison Fochs <afochs@yahoo.com> Bloomington, MN - Wednesday, January 30, 2008 11:16 PM CST Morning Kylie I am praying for things to get better very quickly. I can't even imagine it being that cold. I lived in New England for much of my life but am spoiled now from living in Florida Hugs precious little girl, stay warm and cuddly MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Wednesday, January 30, 2008 8:00 AM CST GO KYLIE!! I sure hope the sz's slow down! Good luck with the continued wean and good luck with the improved tone and gait. I pray that this is the first of many steps in the right direction! Kylie truly is an amazing little girl and her smile not only lights up her face but the entire room that she's in. Hope you are well and survived the weekend! LOve tons, Nikki :) Nikki <hownnik@hotmail.com> farmington, - Sunday, January 27, 2008 10:40 PM CST Gibbons Family. :] Just wanted to say I hope things start to get better. Kylie and Ava are so cute and it is unbelievable how big they are getting. It must be a joy to see them everyday. Well I hope your seizures go away soon. Keep Smiling. :] Love you all. Kiley Jo Gibbons <sevengibbs@msn.com> Circle Pines, MN United States - Saturday, January 26, 2008 11:42 AM CST Hi Kylie, This is Julia, Molly Raths' best friend. Hope you get better! P.S. your website is really cute!! Julia Weyandt <jujbee1124@gmail.com> St. Paul, mn United States of America - Friday, January 25, 2008 10:35 AM CST Hi kylie, How are you doing? i know you cannot email me back but hope you are doing ok! I cannot wait to see you again i dont know when but maybe soon. My family is praying for you so we will keep trying. And make those Seziere Monster go AWAY!!!!!!!!!!!!! your friend, Molly Raths Molly Raths <mollymouse777@gmail.com> St.Paul, MN USA - Thursday, January 24, 2008 9:37 PM CST you so make me laugh, isnt that typical, the tallest person in the world sitting in front of you - i hate it.. glad you enjoyed sesame street - sounds wonderful!!! hope you all have a great week!!! loves, hugs and prayers tanya nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Tuesday, January 22, 2008 8:39 AM CST Glad to hear you had a GREAT time at Sesame Street Live!! Sorry to hear about the seizure.... I guess after all you have been through - a lil seizure surely was NOT going to stop YOU from watching that show..... me?? Id'a turned around and ran out that door OH SO FAST!! GOD BLESS YOU!! Did you happen to take pictures? I WANNA SEE!!! What? Camera? kids? seizures? yea... what am I thinking... woops! HAPPY BIRTHDAY UNCLE ANDY!!! HURRY HOME SAFE!!! THANK YOU FOR DEFENDING US!!!! *MUAH* Ann Paradis <aparadis@travelers.com> Bristol, CT USA - Tuesday, January 22, 2008 6:47 AM CST I'm praying for ya'll! I still can't get over how beautiful the main picture is... she's just gorgeous! Happy (late) birthday, Andy! Thanks for serving our country! God bless! Julie <Swimjulie9@aol.com> Burnsville, MN USA - Monday, January 21, 2008 11:55 PM CST Attention Prayer Warriors:: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil Saturday Jan/19th. between 8-9 pm EST for Kylie and all the children and adults on our prayer list and our Angel Families. Please join us in prayer for these families.. MJ/Angel_Wings MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Saturday, January 19, 2008 11:33 AM CST Hi Kylie and Ava I am so glad you enjoyed the Sesame Street Live show sounds like you had a lot of fun!! HAPPY BIRTHDAY ANDY, thank you so much for serving our country. I will be praying for a good Drs visit. As always you are in my thoughts and prayers. Hugs MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Saturday, January 19, 2008 10:38 AM CST I'm glad Kylie and Ava had a good time at Sesame Street. I'm praying that Kylie will do better with the medication revamps. Tell your brother Andy, Happy Birthday, he's one of our HEROES! I am praying for him and all of our military. Tell him THANK YOU for keeping all of us free. Many prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD USA - Friday, January 18, 2008 11:08 PM CST Dear Kylie, I was so happy to get to go to Sesame Street Live with you and Ava. It was a joy to watch the excitement on your faces. Kylie I loved how you would point at the characters and smile and lean over and kisss my cheek from time to time. You are simply the most amazingly sweet little person I have ever met. Even though you didn't feel good, fell a few time walking in, had a seizure, you still smiled, and give so much love. We are so lucky to have you and Ava in our lives. Ava with her antics keeps us laughing, she has is so cute and funny. I know she makes you laugh too. I love you both so much. Love, Grandma Karen Karen Ueland <klpu@aol.com> Saint Paul, - Friday, January 18, 2008 6:59 AM CST oh, you mean smarties are not a food group? they sure are here too - loves, hugs and prayers, ENJOY ELMO And company tonite!!! tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Wednesday, January 16, 2008 8:48 AM CST Oh, the sparkle in the eyes! Did you ever know that it was so precious until it disappeared?!? I remember when Sylvie's came back, and it was literally the best feeling I've ever had. I'm sooooo happy for you!!! Squeeze that sweet girl and give her a kiss from me! Much love, Jenny (: www.caringbridge.org/visit/sylviehagarty Jenny Hagarty <sylviesmom@mchsi.com> Waverly, IA USA - Wednesday, January 16, 2008 1:51 AM CST Dear Maria, I am so very happy to read that Kylie is doing so well! I also have to laugh at your take on your daughters' shenanigans, but then again, I don't have to clean up after them! :) I'm glad you and Neil each got some time to chill, too -- you need it to stay sane!! I will keep on praying that this new med works for Kylie -- I know how important that is to you. Remembering you and your girls in prayer each night, Janet McCann Westin Dietz's ChemoAngel Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, January 15, 2008 12:30 AM CST Sending prayers to keep those nasty seizures away! Keep smiling, Kylie! Lisa and Katelyn Lisa Linquist - Sunday, January 13, 2008 9:52 PM CST PRAY PRAY PRAY that this is the med that takes the yuckiness away! Oh Guys...hope this keeps up! I am so glad for the last few days. Here's prayers to many MANY more like this! Love, Nikki Nikki <hownnik@hotmail.com> - Saturday, January 12, 2008 9:04 PM CST Attention Prayer Warriors:: The Prayer Warriors at Angel_Wings will be having a Prayer Vigil Saturday Jan/19th. between 8-9 pm EST for Kylie and all the children and adults on our prayer list and our Angel Families. Please join us in prayer for these families.. Trish/Angel_Wings <Boyerangeltrish@aol.com> Kingston, TN USA - Saturday, January 12, 2008 8:43 AM CST Praying, praying, praying for Kylie! Praying she keeps improving! Many prayers from South Dakota. Becki Solberg <bslbg@hotmail.com> Mitchell, SD USA - Friday, January 11, 2008 10:54 PM CST So happy to hear things are looking up for little Kylie! We will keep praying for good health and seizure free days. Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Friday, January 11, 2008 6:31 PM CST I am so happy to hear that Kylie's seizures are staying at a minimum!!! Maybe the Vigab is the key to getting her some relief. I bet you guys are overjoyed to hear her "chatting" again and making such wonderful strides!! Way to go, Kylie!! Sending hugs and prayers- Amy and Katelyn <awoehnker@comcast.net www.caringbridge.org/visit/katelynw> Cottage Grove, MN - Friday, January 11, 2008 1:25 PM CST Kylie, It has been a pleasure for me that I get to see your bright cheery face in the mornings. You are getting so big... you're growing up kid! I can't believe it. I just wanted to say today how wonderful you are. You are always in our prayers. Love ya! Jody <jody_prudhomme@yahoo.com> St. Paul, MN USA - Friday, January 11, 2008 12:31 AM CST Praise God! That's great news! Wow Kylie! Keep it up girl! Praying for you! God bless! Julie <Swimjulie9@aol.com> Burnsville, MN USA - Friday, January 11, 2008 12:24 AM CST Dear Maria, This is AWESOME news!! If memory serves, this is the med you had to get from Canada -- what the heck is wrong with our FDA?!! I am so happy for what your girl has been experiencing these past three days, and am keeping those prayers going up for her and her sister (you gotta include MIss Ava!) every night. I am so happy for this hope, this chance for Kylie to have a better quality of life and let more of herself shine through. I pray, pray, pray that it continues with very few, better yet, NO, setbacks. Your girls are the sweetest, and so beautiful. Drew, McKenna and Jess, you know you're in my prayers each night, too. Please keep whispering in God's ear to have this work for your buddy Kylie!!! Crossing fingers, toes, and praying, praying, praying, Janet McCann Westin D's ChemoAngel www.caingbridge.org/visit/westindietz Janet McCann <janet@mccann-family.us> Austin, TX - Thursday, January 10, 2008 10:46 PM CST What wonderful news! Doing a big old happy dance for Ky! Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, Mn 55811 - Thursday, January 10, 2008 9:43 PM CST My thoughts are with you guys..........i hope kylie continues to do better....have lots more balloons to bring over ...hope your holidays were wonderful......Jamaica was ALL WORK no play....but got alot done......i drop off balloons for the kids soon.......bless jessie gibbons <jessieg@mayflowerdistributing.com> ST PAUL, MN USA - Thursday, January 10, 2008 4:18 PM CST Woo-Hoo let's keep this seizure free streak going! Rachel Rachel Groess <rachmn@aol.com> Woodbury, MN USA - Thursday, January 10, 2008 7:45 AM CST Yay! Praying that this is the one! Love, Kim and Lydia Kim Fiesel <ktfiesel@comcast.net> Lino Lakes, MN - Thursday, January 10, 2008 7:17 AM CST Morning Sweet Kylie I am praying that your new meds are exactly what you need. It is wonderful to hear that you are talking more !! Hugs and Angel Kisses precious little girl, as always you are in my heart and prayers. MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Thursday, January 10, 2008 6:47 AM CST Hoping, praying and hoping this is the miracle you need for your girl : ) Christie Fleischhacker <christie421@hotmail.com> Greefield, MN - Wednesday, January 9, 2008 10:10 PM CST Hoping, hoping, hoping that this is the answer for sweet Ky. Love, Nena www.caringbridge.org/visit/reesejohnson <nenaelise@yahoo.com> Hermantown, MN 55811 - Wednesday, January 9, 2008 9:40 PM CST I'm so happy to see that the past two days have gone so well on the new med. Praying that things continue to look up for you guys, and will pray for good news regarding the MRI in Feb. Thinking of you guys always! Steph <stephiebecker81@hotmail.com> Mounds View, MN - Wednesday, January 9, 2008 9:32 PM CST I wish you a Happy and Healthy New Year with the beautiful Kylie Jo and Ava. What Cuties Allison Fochs <afochs@yahoo.com> Bloomington, MN - Tuesday, January 8, 2008 10:20 PM CST Dear Gibbons family, Praying, praying, praying that you have found your magic bullet for Kylie!!! I am so glad for you that you can feel hope again -- to day you deserve it is an understatement! Well, gotta hit the hay early. Praying for your girls each night, Janet McCann Janet McCann <janet@mccann-family.us> Austin, TX - Tuesday, January 8, 2008 10:06 PM CST Hi Neil & Maria, Best wishes for Happy & Healthy New Year!! Every time I feel a little overwhelmed by having 5 in hockey, I look to this site for a reminder of what's really important. You guys are my inspiration! Our prayers are always with you. The Gibbons Clan Kelly Gibbons <kelly@allbritesign.com> - Tuesday, January 8, 2008 4:10 PM CST Hey there Gibbons Family, PRAYING for the Vigabatrin to work. Stay away you YUCKY seizure monster! Here's to a Happy and Healthy New Year! Hugs from Farmington, Love, Nikki :) Nikki <hownnik@hotmail.com> Farmington, - Tuesday, January 8, 2008 8:29 AM CST hey there ms. kylie and family, you girls are too cute - so glad you had a good new years and Christmas, glad you were able to pass you swallow study test - hoping you have a happy and healthy 2008!!!! loves, hugs and prayers tanya - nick www.caringbridge.org/visit/nicholasdeyo tanya <todddeyo@sbcglobal.net> - Monday, January 7, 2008 8:55 AM CST Hey, Kylie, So glad to hear you passed your swallow test -- what's up with the choking on the way home, though, silly girl?!! I can tell you just like to keep your mama on her toes! I can't believe you like Barium -- I have had it, and let's say I didn't suck it down like you did, brave girl! I'll be praying you get in for those MRIs, and that they provide useful information for Dr. Frost to help you. I know your mom says you're impulsive, but that's OK -- you can't help it, like she said, and your sweet smile shows your true spirit! you're a very special girl who stays in my prayers, and for whom I hope life takes a permanent up-swing, ASAP. You have awesome parents, extended family and special friends, not to mention some precious angels, all of whom love you very much, and want only the best for you. I pray that will be what this New Year begins with, and continues with -- enough of the Jan/Feb seizure monster pattern. Remembering you and Miss Ava in prayer each night, Janet McCann Westin Dietz's ChemoAngel www.caringbridge.org/visit/westindietza (Check him out -- he's a cutie and he even has hair now, and he's just your age, Miss Kylie.... ) Janet McCann <janet@mccann-family.us> Austin, TX - Thursday, January 3, 2008 6:03 PM CST Yeah!! Thanks, Jason Somewhere, USA - Thursday, January 3, 2008 3:11 PM CST Hi Gibbons Family! I was just thinking of you all and wanted to check in. Kylie and Ava are both so precious!! I pray the new year will bring true all of your wishes. May you finally get the answers you have been so desperately looking for. You are an amazing mother. Hang in there and keep trudging forward! PS - the Vitamin B6 works great for Sarah with her Keppra...just our experience! Amy Quintana - mom to Sarah - almost 3 with TSC www.caringbridge.com/visit/sarahquintana Amy Quintana <amy212@bellsouth.net> Summerfield, NC - Thursday, January 3, 2008 10:04 AM CST Maria, I was wondering if it would be possible for you to update this site with 10 or so new pictures every day. It would be greatly appreciated. I look forward to all the new pictures of your beautiful girls. Jason Somewhere, USA - Wednesday, January 2, 2008 4:07 PM CST Happy New Years! I'm praying that this year will be blessed, for your family that is serving in the military (thanks!), and I'm praying for good health! God bless! Julie <Swimjulie9@aol.com> MN USA - Wednesday, January 2, 2008 12:11 AM CST Happy New Year Gibbons Family! Praying for a healthy year for you all! Love you, Jen Jen Berkner <berknerjen@yahoo.com> Wanamingo, MN - Tuesday, January 1, 2008 5:04 PM CST Morning Sweet Little Kylie I pray you had a restful healing night and that today, the first of 2008 will be a bright and shiny one for you. I am praying for your complete healing in 2008. As always precious little girl, you are in my heart and prayers. Happy New Year Kylie and Family !! MJ/Angel_Wings <marijeighn@gmail.com> Orlando, Fl - Tuesday, January 1, 2008 6:04 AM CST Click here to sign the guestbook. | |||||||||||
|