about CaringBridge  |  home page  |  view guestbook  |  view photos  |  journal history  |  donate to CaringBridge

Click here to go back to the main page.

Thursday, October 2, 2008 10:14 AM CDT

Where do I begin??? things are going great. No news on the liver tumors..long story that is frustrating. Jared is in second grade and doing great. Happy, healthy, smart and in no pain. Therefore I have avoided the doctors for a while. He had two surgeries this summer and they could not get to any of the tumors to biopsy. Im going to avoid any more as long as he is feeling well. I know, not a smart choice, but the only one available without harming him more. Life is good..busy..fun...We live day by day, loving every moment..until the tumors overtake our lives..which may never happen???

Wednesday, June 18, 2008 10:53 AM CDT

Waiting on surgeons at U of M to let us know when to arrive for surgery.

Saturday, June 7, 2008 3:28 PM CDT

what a nightmare. jared has tumors in his liver...four of them. not biopsied yet, but probably nb. also lung involvement. we almost made it 5 years...i dont know what to do

Thursday, January 3, 2008 10:56 AM CST

WEll, it is the new year, and everything is going great. The kids had a great Christmas. They have turned into rock and rollers playing Rock Band and Guitar Hero. My house is always noisy now!!!
New Years was great. Jareds older brothers came over with their mom. He had sooo much fun with them. They are great kids and we are lucky to have them back in our lives!!! It has been years. Dylan had a couple of his friends over too. It wasnt anything exciting, but a great way to bring in the new year.
I pray this is another year of NED!!!

Saturday, December 22, 2007 9:41 AM CST

It is now Christmas break, and the kids are already BORED and fighting. Ok, it hasnt even been 24 hours kids, lighten up.I cant wait to give them their Christmas present so they lighten up a little!!! But I am being good and not giving it to them early.

Tuesday, December 11, 2007 11:31 AM CST

Jared says "Guitar Hero Rocks"...his favorite new past time. We have had it a week and of course both he and Dylan have beat the game already.
School is also going great. Apparently Jared had a substitute teacher on Friday(spelling test day) who assumed Jared took a different test than the others because he does different reading and math. He had been doing the same spelling all along. But she gave him a harder test(with words he didnt study because they arent the words his teacher gave him) and he got 100%-so he is off to a new level there too. He is amazing!!!

Tuesday, December 4, 2007 3:38 PM CST

We had a BIG scare last week. Jared was having severe side pain where his original tumor was.
Said it has been going on for a while. Did a CT and it didnt show anything though. Doesnt mean nothing is there, but sure is better than showing something is!!! Im just taking deep breaths and enjoying the moments!!!

Saturday, November 24, 2007 10:36 AM CST

What can I say..things are going good. Dylan got all A's!! And of course Jared had all the highest marks on his report card. We had a nice Thanksgiving. Went to a hotel/casino and stayed. The boys swam and watched a movie. Jared went to one of his favorite places..Kids Quest. Mom spent money she didnt have at the Casino. Oh well, it is worth it to see the smile on Jareds face!!! And Dylan enjoyed himself too. If I wasnt addicted to the slot machines we would of been great!!! Oh well, a true Thanksgiving..we donated to the Indians!!! I figure we owe them for the land our home is on!!!

Monday, October 29, 2007 3:03 PM CDT

Things are going good. But Jared found a lump on his belly this morning. I think it is scar tissue from one of his surgerys though. Im kind of freaked out. I know it has gotten larger...but I still think it has been there for a few years...

Thursday, October 18, 2007 11:50 AM CDT

Everything is just GReat!!! Jared is excelling in school now, and woke up in such a great mood this morning. He is finally feeling good!!!! He is reading and doing math WAY beyond first grade level. He is also becoming even more athletic. Flips and all.
Dylan is also doing great, although he struggles in math at school. He is still a wonderful kid and student. Growing more each and every day. They are both the most awesome boys imaginable. I am so lucky to be their mother.
I only wish I could be as great as them. At least I learn from them everyday, and am a better person for knowing them!!!

Thursday, October 11, 2007 11:09 AM CDT

Things are great. Jared is excelling in school, and in life
So is Dylan

Saturday, September 29, 2007 8:24 AM CDT

Jared has been sick..normal flu bug going around. He missed school a few days and hasnt wanted go go to the gym. I am starting to work at the Y in kids gym next weekend. Im so excited!!! I hope I do well with the kids. It is not my best attribute, working with kids. But Jared is also excited, and he will keep me in line!!!! Im waiting on school testing to see where Jared falls in reading. I know he is very advanced in math, but Im starting to think he is in reading to. The kid can read ANY word. If he doesnt know it he sounds it out. He is amazing!!! For a boy who had no interest in learing to read just over a year ago, he has come a LONG way!!
Life has been pretty uneventful. I hope it stays that way!!!

Thursday, September 13, 2007 1:59 PM CDT

it has been a long couple of weeks. Jared is liking school, but is tired and mean all the time. He is also bruising a lot. Hope it is nothing. Im always paranoid.

Monday, September 3, 2007 12:03 AM CDT

WEll, GREAT NEWS. All of Jareds tests are negative right now. He is still having weird pains in his head, so I am still very worried. At least there is no advanced disease anywhere.. Jared is supposed to start first grade tomorrow!!! Dylan started last week. Neither are thrilled about school this year. Jared is still wearing diapers. Im so afraid he will get picked on at school. Unfortunately we havent come up with a solution. I guess as long as he is here I dont care. He is happy and well adjusted otherwise.

Saturday, August 11, 2007 10:02 AM CDT

Jared is feeling a little better today. No fever. He has had a fever for 2 days around 99. I think the doctors are worried about his heart. He has an echo scheduled on the 23rd, and breathing test on the 24th. He has a murmur in his outgoing valve that may be getting worse. I actually hope that is it, and not NB. Hearts are fixable. As we all know, the NB beast is almost impossible to beat. I never thought 5 years ago I would be hoping for a faulty heart. Gosh, how perception changes when you have to deal with Neuroblastoma!!! What a horrible disease!!! Anyway, I cant wait to get home and see him!!!

Thursday, August 9, 2007 2:12 PM CDT

Jared started feeling "sick" again yesterday. Hopefully just the hot weather. We were out at the lake swimming for a while, then he got dizzy.

Tuesday, August 7, 2007 1:16 PM CDT

What a busy few weeks. Having end of summer fun. Jared has been feeling better!!! We have lots of tests scheduled for the end of this month, but the doctors arent too worried. I guess with everything he has been through, headaches and pains are normal. His problems are minor compared to others who have been treated with such aggressive chemos, etc.
Unfortunately, no one knows what to do about his bowel problems. He cant wear diapers forever!!! I guess as long as he is alive, diapers are fine. I just worry about the teasing and stuff at school. And the expense, diapers take half my measly paycheck!!! Oh well, hes worth it!!! Neither boys are ready to start school. Although they fight from morning until night EVERY DAY!!! Im hoping they will be too busy with homework to fight too much during school!!!

If anyone out there knows how to change the pictures on this website, please EMAIL ME. I have no idea, and these are soooo old!!!

Monday, July 30, 2007 1:45 PM CDT

What a great vacation!!! We went to Double JJ Ranch and it was incredible!!1 The water park, and all the activities were so fun. And Jared loved the hammack outside of our cottage.
The downside is Jared has been having increasing head pain. Almost passed out at the video store the other day. His primary care physician isnt too worried yet. Thinks it could be migraines. I of course know more about NB, and I am extremely worried. But life goes on, and we are enjoying what is left of the summer.

Thursday, July 19, 2007 12:04 AM CDT

Counting down the days..4 until we see the doctors. I think Im losing it. Kids have been staying up VERY late, and I get up early. I have averaged 3 hours of sleep a night for a week. Not used to the lack of sleep anymore. At 130 last night(this morning) I just lost it with Jared. I feel like a horrible mom. Sometimes I am. I made him cry!!! Hating myself today. He is such a wonderful kid, so is Dylan. They are as close to perfect kids as you can get. Im so lucky and grateful for them. They are stuck with a moody mom though. Sometimes I yell for no reason. I work on controlling it, but am unsuccessful on occasion.
The Xbox broke, and I was trying to call XBOX at mmidnight, on hold for an hour. That is when jared started acting up. Then this morning my car was broken!! Cant wait to get home and hug them!!!

Thursday, July 12, 2007 2:36 PM CDT

It is going to be a long couple of weeks. Jared is having stabbing pains in various areas of his body...from head to foot. Please, please say extra prayers for him. It could just be growing pains, right?
We are getting ready to go see his transplant doctors on the 23rd, then off to Double JJ ranch for a couple of days of fun and swimming.

Saturday, July 7, 2007 10:36 AM CDT

Waiting for Jareds dr visit on the 23rd. Concerned. Jared has been doing good, but ornery.

Thursday, July 5, 2007 8:41 AM CDT

It was a good 4th. Went swimming, went to kids quest, and did some fireworks. Jared and Dylan both had fun. Of course I am watching Jared with worry. He has been having bowel problems for a long time, a different kind now. I realize what is going on now relates to active tumor growth in the abdomen. Or am I just being paranoid? Ijust dont know anymore. I always feel like there is a timebomb right next to us, but I dont know when it is going to go off. The timer has been set by God. I try not to let it get to me, but am usually unsuccessful. Jared is my heart and soul. Of course Dylan is too, but hes older and less needy. Jared and I still cant fall asleep without touching each other and feeling each others breath. I know, I know, hes getting old, but we cant seem to break the habit.

Tuesday, July 3, 2007 3:07 PM CDT

Gosh, I wish I knew how to change the pictures on this website without ruining Colleens beautiful artwork. Everyone please say prayers for Kaitlyn, as she is again entering the battle. She has been a silent hero for us for the past four years. Someone whom I thought NB wouldnt dare return to!!! But NB seems to return to all of our wonderful kids at some point. I hate it!! But it does remind me of how precious Jared is when he is being difficult!!! I would rather have a Jared who is horrible than not one at all. Although he doesnt misbehave too often(remember I said that Jared....lol)
He is so wonderful and bright and full of sunshine!!!
He tried karate last week, and loved it. We decided against enrolling him though, as it is expensive. There are other things he would rather do. I wish I could give him everything he wants. But I am still only working part time, with no plans to make money in the near future. Time with the kids is too precious, and I know it could end in a heartbeat. To start a new job somewhere would be difficult. I have been with my company for 13 years, and could take a leave if anything happens. Im sure I wouldnt have that option if I started somewhere new. And there are no full time positions with my company, with cutbacks and all. So we continue to get poorer, but stay happy. Today is the 4 year anniversary of when Jared entered the hospital to be diagnosed. It was official on the 4th, he had stage IV NB. Pray he remains NED. Im getting scared, as usual, of relapse!!! There isnt ever warning with any of these kids. One day its not there, then it is everywhere.

Monday, June 25, 2007 11:37 AM CDT

We just got back from North Carolina. It was a lot of fun. The boys had the most fun rafting. Jared is starting karate tomorrow, a trial period anyway. Things are good

Monday, June 11, 2007 10:32 AM CDT

Well, the school year is over. Both boys did great. Jared won reader of the year for the entire kindergarten, reading at 2nd grade level easily!! He did great in all other areas too. He is just happy for the reading awards, it was his final goal to obtain this year. Dylan also did great, getting "student spotlight" for June too. He already had it in January. I am so lucky to have such great boys!!! I was a trouble maker by the time I was Dylans age!!!
We had a good weekend. Jared helped me get a lot of stuff around the house done. He just enjoys doing everything sooo much(even work). We also went to the beach a couple of times and played in the water.
Jareds best bud Sandy is gone to Florida(I think). He had a bad friday, saying goodbye to his teacher and Sandy. I have never seen him so sad. But he will adjust. He went to kids gym Sunday and had fun with a new guy.
And we are heading to North Carolina friday to see Uncle John and Aunt Makiko. That will be fun for all of us.

Monday, June 4, 2007 3:53 PM CDT

What a weekend. Dylan got sick (again)(he was also sick last weekend) and Jared was in a bad mood most of the time. I think it is because Sandys last day at the gym was Sunday, and it is bothering him a lot. He has become so attached to her..and he knows she is moving far away. The good news is we got a new car, and the kids just LOVE it. What an improvement over what we were driving. Dont know how we are going to afford it, but it will be worth it in the long run. It drives much better that the old one. This is the past week of school...hope their moods get better or it will be a LONG summer

Saturday, June 2, 2007 10:46 AM CDT

A great week. Next week is Jareds last week of kindergarten. What a year!!! He has still been moody, but other than that he is feeling better. Hopefully it is nothing but normal 6 year old stuff. And I think Sandy leaving him is really bothering him. He just doesnt know how to express it.

Tuesday, May 29, 2007 9:55 AM CDT

what a terrible weekend for the kids. Dylan got sick on my birthday(Sat) and by the middle of the night Sat I was deathly ill. Never been so sick in my life.
Didnt get out of bed at all until Mon night, and then just long enough to take a shower. Today I am at work feeling very weak, but surviving. I feel horrible I didnt take the kids to the movies, which I promised, or even to a park. They did nothing all weekend but watch me lay there miserable!!! I have a lot of making up to do this weekend!!! They are so great!!
And deserve so much more than they get out of life

Thursday, May 24, 2007 1:29 PM CDT

Rough couple of days. Jared has been throwing up a few times a day. And his left jaw looks swollen. Bad news since that is where he relapsed before. Hopefully I am just looking for trouble again. Hopefully his left side looks bigger because he is growing and his right jaw will never grow. They had a fathers day thing at school Monday. Grandpa went, but all the kids always ask why Jared doesnt have a dad. Jared has finally decided to make up a story...his dad lives in South America(where he came up with that I have no idea) He is so funny...makes me laugh every day... I hope he keeps his sense of humor as he grows up...hes not going to ever have an easy life. And I think it somewhat bothers him about his dad. I have been honest with him, without trying to be too negative. He doesnt need to know what kind of person his biological father is. It wouldnt help the situation.Anyway, praying for good health!!!

Monday, May 21, 2007 9:56 AM CDT

What a busy weekend. Jared turned 6!!!! We had a great party, although I was doing the neighborhood garage sale at the same time so was unable to enjoy the party part. Big mistake!!! Next year we will have to skip the garage sale. But the boys made enough to buy their Wii. What fun that is!!! Jared is doing great. He is happy to be six. He said last night it was the best weekend of his life. He was sooo tired, buy insisted on going to Kids Gym at the Y every night. His favorite person in the world...Sandy...is moving south in two weeks, so he is spending as much time as he can with her. Im scared of what affect her leaving is going to have on him. He is more attached to her then he has been to anyone. And he has lost so much already!!! Oh well, he is tough, so far he seems ok with it. School is almost out. Jared and Dylan have both excelled so much this year!!!! Dylan is straight A's, and Jared is reading at 2nd grade level already. Great considering he didnt even want to read at the beginning of the year!!! Im so lucky to have them both.

Thursday, May 10, 2007 12:32 AM CDT

things are going good..anxiously awaiting jareds bday party next weekend!!! And he is a POKER PRO!!!I never thought Id say this..but Im beginning to dislike poker immensely.

Tuesday, May 1, 2007 9:25 AM CDT

another scary day..jared woke up throwing up, and complains of headaches daily...other than that he is doing great..he is so incredibly smart and funny...his new thing is playing poker. Grandpa taught him last week and now he is obsessed. I am NOT HAPPY with grandpa. That is all he wants to do now. He knows all the games and language and everything already. His brain is like a computer chip with lots of memory. He is amazing. The world is a much better place with him here!!! I hope God realizes that!!!My stomach has been sick the past couple of days..the mothers intuition thing. I ALWAYS worry about him, but my gut hasnt felt like this since before he was diagnosed. I am praying I just have an overactive gut right now!!!

Tuesday, April 24, 2007 1:05 PM CDT

Jared is doing great...ready to celebrate 6 years old next month. He has had some really bad mood swings lately though. Gets really mean, so unlike him. I am so worried about the NB beast. So many kids have relapsed lately with no indication of disease, just flukes finding it. I worry and worry. They say the beast will come back someday..I keep hoping for a miracle. That it is gone forever. This kid is so amazing, so smart, so adorable. He deserves a chance to grow up!!!

Thursday, February 8, 2007 9:55 AM CST

same ole, same ole, things have been going ok. Jared is starting to worry me with lots of leg pain and lots of crying and whining for no reason...he is usually so positive and happy...Took him to the Doctor and his blood was normal and no swollen glands...but I know from the nature of the beast this doesnt mean there is no NB..guess time will tell, as the oncologists dont want to run any further tests right now...

Tuesday, January 30, 2007 8:55 AM CST

Thnigs have been hectic lately...and Jared has been extremely tired and moody. I have a call in to the doctor to run some labs, but havent heard back yet. Of course, Im always scared, waiting for the beast to return. He did go sledding with sandy saturday and had a great time. He wants to spend every saturday with her, he stalks the poor lady!!! But she is wonderful with him, and I am so thankful he has met such a good friend!!! I always wonder if she is an angel here on earth, because she is such an amazing person!!
Jared got his report card yesterday, and he is doing great in school. He tested above average in reading. They havent tested his math skills, I think he would be off the charts!!! He can figure out more complex problems than I can!!!
Dylan also got his grades....straight As!! A few were A minuses, but in my book its still an A.
They are both such great kids. Again, I wonder, How did I get so lucky?

Monday, January 22, 2007 11:08 AM CST

Jared had a rough weekend. I dont think he is feeling well, but he wont tell me what is wrong. He did everything he usually does, just not with a good attitude!!! Im praying for normal kid stuff!!!

Thursday, January 18, 2007 9:05 AM CST

Everything is going good.
dylan had a choir concert last night and Jared was awful all the way through it. I was kind of embarrassed. I know people around us were getting frustrated. But he is normally so good, I kind of laughed it off. Especially when he started dancing like an Egyptian. No one knows what he has been through, he is allowed some bad times!!! Dylan did awesome singing. Im so proud of them. Jared claims he is singing in a concert next Tuesday morning at 630 am. Im going to wake him up too!!!

Thursday, January 11, 2007 10:40 AM CST

things are going ok. Jared has been having a little pain, and his coloring has been off. other than that he is happy and healthy. I worry every day of course. dylan is getting ready for final exams. He is not studying, thinks he knows it all...we will see. His first semester ending at this new school.

Tuesday, January 2, 2007 10:58 AM CST

Happy New Year!!! We had a fun party, with some of Jareds friends and some of Dylans. They all behaved unbelievably well!!! Jared stayed up until 2, then until 12 last night. This is a kid that usually goes to bed at 8. Hope I can get him back on schedule before school starts next week. His Dr at U of M went well. Hopefully his problem will be corrected over time. My new years day started with a bang...my kitchen sink plugged up, probably the boys put something in there. I had to fix it myself, and learned really quick. When undoing the pipe, filthy water went all over my kitchen. It was gross and stunk. Of course had to happen when I have a house ful of hungry boys. They were patient and it got fixed though. Reminding me I can get through anything, as long as Jared stays healthy...and dylan too of course.

Thursday, December 28, 2006 8:51 AM CST

Jared is doing great. We head to U of M tomorrow for the gastro guy. Hopefully they will find some solution to his internal problems.
I want to thank everyone who donated to his giving tree/!!! He is so excited to have so many ornaments on his tree..so much so that he thinks he is lucky he has cancer to get the tree!!! Ok, so he still doesnt understand how serious cancer is..which is a good thing. He is just happy and enjoying life so much. Always smiling. Always making me smile. What a kid!!!

Tuesday, December 26, 2006 10:04 AM CST

A great christmas. Jared said it was the best Christmas ever!!!! He enjoys life so much. I felt bad because Dylan had a lot more presents than Jared, and he would ask why he didnt get it, but when I explained he was ok. We did go to rite aid and buy him a big musical christmas bear yesterday so he was happy with that.

Sunday, December 24, 2006 5:33 AM CST

I cant believe Christmas Eve is finally here. We had a pretty good week except Jared was sick the day of his school Christmas party. that devestated him. He was better by the afternoon but he still missed the big day. The teacher sent home treats for him though. On Wednsday the church group brought us over all kinds of presents and gift cards and food. the kids were so excited. I am still overwhelmed at all they have done for us. They even put presents under the tree for me. Last night Jared said, "mom, look, you have presents. How did that happen, that has never happened before" It was so funny, the look on his face. Way more important than any presents!!! Life is good, hope today I see more smiles. Ir is Christmas at my parents.

Tuesday, December 19, 2006 8:31 AM CST

What wonderful children I have!!! Jared is starting to insist on opening doors and carrying things for me. Dylan has always been polite like that. I just watch other kids and realize how lucky I am!!! I feel guilty about them not having a father in their lives, but maybe they are learning to respect women more than the typical male. I certainly dont pressure them to be like they are. I dont even ask. They just volunteer!! They are both excited about Christmas. Counting down the days. The funny thing is, neither is demanding much in presents. Our lives are so good right now, material things dont seem to matter. But there are some wonderful people that are giving them presents. Sandy and the boys already sent some home, and we opened them last night. She warned me about the whistle for Dylan. She didnt give me enough warning though, as my ears are still ringing!!! But I have to admit, we had lots of fun with it.
Jared sings at a restaurant again tomorrow. I cant wait. I wish I had a video camera to catch it all. Im hoping the teacher is somehow taping it. I have a camera, it just doesnt have a light on it, so it doesnt take good pictures. Plus the memory card has been full for a while. Oh well, the memories are instilled in my brain.

Monday, December 18, 2006 11:04 AM CST

What a great time of year!!! Jared sang 14 songs with the rest the kindergardeners on Friday. It was amazing. I couldnt stop crying. He knew every word to every song. I especially cry during God Bless the USA. Watching him is sooooo amazing. He is so wonderful, and courageous. There isnt a big enough number to count our blessings this year. I wouldnt even know where to begin. Im tearing up right now. A new friend from the gym this year, one of many who have changed our lives, Lori and Cormac, have taken up the cause to help Jared live a long life. Then there is Sandy and her family from the gym also, who have given more to our lives then I could ever describe in words. Then Sandys church, who continue to amaze us with their generousity. Apparently someone is going to donate us furniture!!! And help with a new patio door. I can never thank them enough!!!! And Jared is so happy and excited about Christmas. Our prayers are being answered tenfold this year!!!!

Thursday, December 14, 2006 10:50 AM CST

What a busy time of year!!! Jared is star of the week at school this week. He is so excited to go every day. Even more than usual. The poor kid has such bad luck though. On Monday, the day he had been looking forward to all year, he got sick. He was better by tuesday though. Tomorrow we go on a field trip to the mall to sing christmas carols. Jared loves singing. He is such a wonderful kid.
Dylan hid a big secret from me that Im not happy about. Apparently he failed a vision test at school about a month ago and never told me. I received a letter in the mail the other day. I feel like such a bad parent, I had no idea his vision was bad. He didnt tell me because he doesnt want to wear glasses. Im trying to find out if he has insurance to cover the cost. Of course he wants laser surgery, but I think he is too young. besides the fact that I could never afford it.
We are really looking forward to christmas. Our angel Sandy's church and a lovely lady named Anne have some furniture coming for our living room donated by a member I guess. Im so used to not having furniture there!!! Im feeling so blessed this year with all the other good things that have happened that I dont even care about things like that anymore. I used to be so obsessive about my house and stuff. Now its messy all the time and needs all kinds of repairs. Before Jareds illness you probably couldnt find a speck of dust or chipped paint anywhere. Now it seems like I need everything, but it doesnt bother me. Ok, sometimes it does, but I force it out of my mind because its too much to handle. Like our toilet overflowing weekly!!! The bathroom floor and ceiling below it are ruined. Usually I catch it but Dylan doesnt. My new years resolution is to get that fixed. I guess the church is going to have someone install a new patio door for us. Im going to insist on paying whoever does it though. that will help a lot in our repairing of our home. that was the biggy on my list!!! They are such wonderful and generous people!!! Im not sure how I will ever repay such kindness. anyway, back to work.
Missing my boys so much!!

Thursday, December 7, 2006 1:13 PM CST

Jareds doctor went well yesterday. Looks like they think it is some kind of fungus on his head. They said it doesnt look like a tumor. Still waiting for the neurologist on the spine though. I read the report and it doesnt look too bad to me.
I talked to my mom earlier, she took Jared to school this morning, as I am at work. She said on the way to school Jared asked if he would be here next Christmas. And my mom laughed and said, of course, where else would you be? He replied, "heaven". I hope it is just his age. He just says too many weird things like that, and me being the paranoid mom, I imagine the worst. I have to keep remembering what a miracle he is each and every day. Did I comment on how he can finally snap his fingers??? Hes so excited, he is snapping constantly. At the drs it was so funny..he was leaning back on the table, swinging one leg back and forth, snapping and whistling. He looked sooo funny. Like some cool guy out of a 60's movie.

Tuesday, December 5, 2006 9:19 AM CST

Tomorrow is Jareds clinic visit..Im not sure how much we will find out. The radiologist must still be on vacation. He is getting excited to be star of the week next week at school. dylan is upset because he dropped down to a B in one class. I try and tell him he is still doing wonderful, but he is so hard on himself!!! Anyway, pray for good results tomorrow!!!

Friday, December 1, 2006 6:15 AM CST

Snow day for school..
dylan is thrilled. Jareds MRI results were kind of told to me yesterday. Apparently he has angiomas(blood vessel tumors) all around his spine. Im still waiting to hear from the neuorologist as to what that means. From my internet research it doesnt sound good. Of course that adds to the worries. I had an eye angioma they had never seen before several years ago. At the time they thought I may have Von Hippel Lindeau syndrome, which is a hereditary form of cancer(for lack of a better word) When Jared was in transplant they were going to do some research to see if it could be related to the NB, but the doctors never got around to it. Of course now that comes to the forefront of worries, on top of the NB. He had a new little lump on his head. Looks to me like some kind of wart or something, but I have never seen relapsed NB in the skull so of course Im worrying about that now. He has another HUGE lump from meeting with a car door at school yesterday. Im not so worried about that, because he always has some face injury. Hes an accident waiting for a place to happen. I love those injuries, they show how active he is. Ok, I dont actually love them, they worry me, but I know they will always go away. And what is another scar on Jared?? We definitely have a full body pattern going!!! Hes so beautiful just the way he is!!!
Im sure the boys are going to want a crazy breakfast day, to celebrate not going to school. Well, Dylan anyway, Jared is going to be dissappointed when I wake him up. He loves school.
Its friday, I hope Sandy can make it to the Y, as he will be inconsolable if he misses that too!!!But with the weather they may not even be open. Guess Ill worry about that later. Right now Im going to prepare a fun breakfast and wake him up with tickles. I love to hear his laugh first thing in the morning. Unfortunately hes grumpy lots. Definitely not a morning kid!!!

Saturday, November 25, 2006 9:24 AM CST

What a fabulous thanksgiving!!! Thanks to the Student Nurses Association of LCC we had the best turkey dinner. The kids even loved the pumpkin pie!!! They also gave us a gift card to buy Jared some of his every day supplies!!! What a wonderful gift!!! I still cant believe it!!! There are so many wonderful people in this world!!!
Jared and Dylan had so much fun with uncle john and aunt makiko too. They learned to play chess and Uncle John fixed their computer so they can now play the game they have been waiting to play for about a year now!!! Im stuck at work and cant wait to see them!!! Ok, its only been 2 hours, but I miss them. I know Jared is going to con me into playing chess with him-not my idea of fun!!! But Id do anything for him.
Lunch for Life time. Jared still only has one ornament!!! Of course I will add what I can with my next paycheck. But Im trying to lay a guilt trip on anyone reading this!!! Jared wants his Christmas tree to glow!!!

Tuesday, November 21, 2006 1:53 PM CST

Jareds MRI is tomorrow. Hope he will lay still for it!!! He has been doing good this week. He had a big Thanksgiving feast at school yesterday. He still doesnt like mashed potatoes or corn. He actually ate the turkey though. Again, I am reflecting on how thankful I am for our life these days!!! Dylan made the Holt newspaper for being on the Honor roll!!! I havent seen it yet but cant wait to. Im sure he will love it too, since Jared is usually the one getting the attention. I am sooo glad Dylan is in Holt this year. Ive probably said that a million times. Last year was such a nightmare. I hated dropping him off everyday. Lansing schools are terrible. Except for Mt Hope, where Jared goes. Everyone there is wonderful. Im hoping to not get the MRI results until after thanksgiving. I just want a peaceful day with no worries!!! Regardless, we have so much to be thankful for!!!

Saturday, November 18, 2006 12:57 AM CST

Yesterday was a bad day for Jared. He woke up with terrible head pain, but it went away quickly. We had a field trip to a local fire station. He had fun, but near the end a fireman asked if anyone had questions. All the boys raised their hands first. He called on everyone but Jared. Then the girls started raising their hands and he called on all of them too. He purposely skipped over Jared. Im not sure why. I can only guess he somehow knows the evil family that donated to Jareds biology. It broke my heart to watch his heart breaking. Then we got home and found out Sandy couldnt be at the Y. He cried for an hour. Luckily today is a better day. He was able to see Sandy this morning, then we bought his favorite cookies and rented some games. Then we get to go back and see Sandy tonight. How fun, I get to work out twice in one day!! He doesnt like me to sit in there with him too long, I cramp his style. He asks me not to come back to quick, so Im kind of forced to work out. Guess thats not all bad.
Thanksgiving is coming up this week. I have so much to be thankful for. Ill start with a summary, and probably go into detail tomorrow. Im sooo thankful for Dylan and Jared-my whole reason for breathing. Second on my list would be my mom and dad, who are always there for us 24 hours a day. Im thankful for both of my kids schools, who are full of wonderful people I trust with my kids. Im am thankful for the YMCA, and everyone there, for being a second home to go to. And last(for today) but not least, sandy, who puts a light in Jareds eyes every weekend. I could write a book on everything Im thankful for. This year we have been so blessed!!!

Sunday, November 12, 2006 6:43 PM CST

It has been a good weekend. Kind of boring, but no bad events at least. Except Jareds left side of his face seems to be swelling more. I may not be able to put off the blood tests much longer. He has an MRI scheduled next week, but they are only doing his spine. And I keep telling myself he is fine. Im just being paranoid!!!

It is LUNCH FOR LIFE time. Jareds giving tree code is 19147. If you donate 5 dollars and put in his name and the code, he will get double credit. Since we dont really have many people joining in the cause, I beg you to go to the site on his behalf. Last year he got so excited when he received ornaments, but was dissappointed that his tree had a lot less than most. Please HELP!!!

Thursday, November 9, 2006 2:14 PM CST

Jared has mastered the shoe tying already, and now tying everyones shoes at school, since we cant find him tie ones he likes anywhere. The kids come up to him on the playground and ask him to tie them now!!! He is so funny.
dylans conference went well yesterday...all A's so far. Pretty good for a new school and the fact that he didnt learn anything in 6th grade at the old school. The only complaint they had was he gets frustrated to easy. But that is part of the Aspergers syndrome. They should understand that!!!
Nothing else new...just trying to figure out what to get the boys for Christmas without a lot of cash. They dont care much about material things, but they deserve so much more than I am able to give them!!!
Im going to wait and have Jareds blood drawn the week after Thanksgiving. I dont want to know right now. A few weeks wont make much difference. He has been feeling pretty good, just getting really clingy with me and my mom.
Hopefully that is just a phase. Hope everyone out there has a great Thanksgiving. Just think of all we have to be thankful for.
People always ask me how I'm not angry at God for my childrens difficulties. I always think how lucky I am, and thank God every second of every day for giving me these beautiful children to begin with!!!!

Tuesday, November 7, 2006 11:16 AM CST

What a week so far!!! I had Jareds conference last night, and he is doing really good in school. When we arrived home I received a call from the infamous Sandy, saying someone at her church is cooking us thanksgiving dinner!! My kids dont eat traditional thanksgiving stuff, but I am amazed at the generousity of strangers. If I havent said it before, Sandy and her family have been a Godsend to us!! They are the most amazing family. We are so blessed to have met them. Unfortunately they are moving away next year, and it is already stressing Jared out. They have become as important to him as me and my mom!!! I keep reassuring him we will be able to visit them again someday. But for a kid who has gone through so much, and lost so many friends in his life, it is hitting him hard. He looks forward to seeing Sandy every weekend. He counts down the days. We may have to follow her when she moves!!! Jared is determined to learn to tie his shoes. We spent about 3 hours practicing last night, and today he is insisting we go buy him tie shoes, since his are velcro. He is so amazing!!! So is Dylan. I am so lucky to have these two!!! Dylans conference is tomorrow, but I know I have nothing to worry about, he is an excellent student.

Tuesday, October 31, 2006 9:29 AM CST

It is Hallween. Im stuck at work while Jared is in the school parade as Batman. He was very excited to go to school today, as he is everyday. Except the first thing he said when I said it was halloween is, only 3 more days until I get to see Sandy at the kids gym. He is so obsessed with going there to see her. She invited him out to her house for dinner last night but I think he is kind of scared to go to someone elses house, even though it is his favorite person!!! Im just glad he has found someone he is so attached to. Before that he just had me and my mom, and of course his brother Dylan.
His LDH level has doubled in the past month. Not good news. Probably means there is some bad activity going on inside.

Tuesday, October 24, 2006 3:34 PM CDT

Jared is doing so many funny things these days. He makes me laugh many times a day. He also makes me cry. His pain seems to be getting worse. Im waiting for the dr to order some blood tests. It has been a couple of months since he has even had a cbc. Was going to wait until December, but think I would rather know.

Saturday, October 21, 2006 7:17 PM CDT

Im laughing, when I probably shouldnt be. Jared has been telling many tall tales lately. On our way home a few minutes ago he sai, "mom, I think Im becoming a liar, and I like it".
His first known lie was telling the kids at school that he eats cookies and brownies every day for breakfast. When that was a hit, he has exaggerated even further. He is now a 24 year old japanese man with a drivers license who plays orofessional baseball and gets up in the night to drink beer. Thats just one of his stories!!! Gotta give him credit for creativity.
There was an extremely sad moment today. He has never questioned the cancer or expressed any anger about it. Today in the car he started kind of balling his fists and saying, why did I have to get cancer, its not fair, why do I have scars all over my stomach, why is this happening to me. Im not sure where it came from. Its kind of scarey. I know he has been in some pain lately, and tired. He hasnt even had labs drawn in two months. Im kind of enjoying being away from it. He has been enjoying life and school so much. Right now I feel I dont want to know if it comes back. I dont want to live that horror right now. I remember the doctors telling me that a few months ago, and I guess it finally sunk in. You cant really win with this disease. Let him live life,and dont treat the cancer until it becomes more painful than the treatment itself. So that is what I am doing. Monitoring his aches and pains. And when I see him declining I will call for some labs to see where we are at.

Wednesday, October 11, 2006 6:46 PM CDT

Life is still going non stop. Jared absolutely loves school. He cant wait to go every day. It is amazing, because he has been waking up sick and in pain in the morning, but when I mention staying home he gets upset. He has so much determination. I watch him on the playground and am amazed at how energetic he is. I am soo glad he is living a normal life!!! And everyone at the school is so helpful and understanding.
Im not sure if i have mentioned before his love of sandy, a lady who works at kids gym at the Y. He just worships her. This past weekend she was unable to arrive at work and Jared was heartbroken all night. She even offered to come and pick him up for a while today, but he is ok waiting to see her for a couple of days now. She has been such a Godsend to us. As Jared only has me, my mom and dad, and Dylan as family. Jared has chosen her as part of our family, hope she doesnt mind!!! He also adores his teacher. I am feeling so blessed that Jared is finding new friends and people I can trust to leave him with. I didnt have that at all for five years.
Jared has been scaring me lately with a lot of talk about heaven and death and God. He tells me he is going to be five forever. Im hoping its just stuff hes seeing on TV and hearing other people talk. I cant, and wont, imagine my life without him. He is my best friend, my heart, my soul, my idol.

Wednesday, September 27, 2006 6:58 PM CDT

Life couldnt be better!! Jared is doing great at school. I am volunteering for lunch hours when Im not working and he doesnt even want me to acknowledge him!!! Thought 5 was a little young for that!!! I still enjoy watching him from afar. What a joy!Thank God for giving me the pleasure of each day I get to spend with Jared, and seeing him enjoy this life so much!!! Dylan is also doing great in his new school. I am so impressed with the staff there. They really seem to understand Aspergers syndrome. We are so blessed so far this year. Busier than I have ever been in my life with all this running, but loving every minute of it. I really need to find a full time job to stop going deeper and deeper into debt, but I just dont know how I will find the time!!! I dont want my mom to have to do all this running 5 days a week. The boys have such different school schedules, every day is non stop driving and volunteering at the schools!!!

Friday, September 8, 2006 3:15 PM CDT

Wow, its been a while. Life has been amazing. Jared started kindergarten on Tuesday, and so far loves it. He is feeling really good. His limp in his left leg is getting worse, but that is the only sign of what he has been through. We went to kids gym at the y last night, one he has never been to before. After a long day at school I thought he would last five minutes in a strange place. I came back after an hour and he was still going strong. The guy in there said, wow, Jared has boundless energy, how do you do it?? I laughed. This guy has no idea what Jared has been through. He thought he was a normal five year old, and I didnt tell him different. It was so nice to talk about him in a normal context, without even thinking of the word neuroblastoma. I feel so lucky, like that part of our lives may be finally over!!!

Friday, September 1, 2006 7:07 AM CDT

Wow, what a summer. Jared had a completely negative MIBG!!He is going to start kindergarden on Tuesday!! The bad news is he is starting with two black eyes. He had two seperate incidences at my moms while I was at work. His left eye is really bad, his right is a typical swollen black eye. Oh well, he is alive, and beautiful, and actually going to school!!! I couldnt be happier1

Tuesday, July 18, 2006 10:09 AM CDT

Waiting for test results. Jared has been doing better. The nite sweats arent as bad, although he is hardly sleeping long enough for them to start

Monday, June 26, 2006 10:03 AM CDT

What a great time we have been having!!! Jared is full of energy and attitude....could definitely do without the attitude though, but Ill take him as he is. He is so enjoying being outside this summer..his first year he can enjoy everything with no line and no chemo causing sun sensitivity!!!! For once I feel like the cancer is GONE!!! Lets hope it stays that way!!!

Sunday, June 18, 2006 6:48 AM CDT

WE just got back from vacation down in North Carolina!! It was the best time!!!Gem Mining in the Blue Ridge Mountains was an experience the kids will never forget. We also had a lot of fun just hanging out with Uncle John and Aunt Makiko, who just moved to NC from California this year. The whole trip was fun, but we are glad to be home!!

Monday, May 22, 2006 11:20 AM CDT

We had a great weekend. Jared is still feeling good. We had a garage sale/lemonade stand, not too successful, because it was really cold. We made a whole $25 for cncf, but hey, better than nothing. Jared had fun. He is bruising quite a bit lately, which worries me. We go to the dr wednesday, and have lab draws, hopefully it is just him being active!!! He is continuing to master math. He is now adding and subtracting negative numbers. Not bad for a just turned 5 year old!!

Saturday, May 13, 2006 10:11 AM CDT

Today is a big day...Jareds birthday party. We had plans to be outside, but it is raining nonstop. OH Well, I am just glad he is here to celebrate!!! His birthday is actually the 19th, but we are having a garage sale/lemonade stand on that day. I cant believe he is turning 5!!!What a blessing he is. Everyday he continues to amaze me. I wish I could update this site with new pictures, but I dont know how!!!Hope everyone who reads this is as blessed as we are today

Saturday, May 6, 2006 8:53 AM CDT

Wow, we have had a great week. Jared is feeling better, has been full of energy. Both he and Dylan are growing up so fast!!! They have started helping so much around the house and stuff. Boy am I a lucky mom!!! Next Saturday we are having Jareds bithday party. His Birthday is actually on May 19th. I cant believe he is turning 5!!! I can remember vividly 3 years ago when they told me this day would never come. He is sooooo brave and strong. He is my idol. He wants a trampoline for his birthday, unfortunately it is not in the budget to get a big one, so Im trying to find one of those mini ones. I hate the fact that I cant give him what he wants. He never wants material items, both of my kids have been so understanding in that department, and they both deserve the world. Hopefully someday I will be able to give it to them.

Saturday, April 22, 2006 11:56 AM CDT

Jareds MIBG was negative!!!!! We are celebrating..he is also feeling better, he had an eye, ear, and throat infection.

Thursday, April 13, 2006 10:56 AM CDT

Jared is feeling better today!!! He didnt wake up with ANY pain. Please let it stay this way!!! We are doing constant easter egg hunts!!!

Tuesday, April 11, 2006 9:45 AM CDT

Things have been going ok since this morning, Jared woke up SCREAMING in pain. I am sooo scared! MIBG is next week, please let it be something else!!

Monday, April 10, 2006 12:43 AM CDT

Jared has been doing a little better, although last night he said he doesnt tell me when he hurts because he doesnt want to scare me. He is sooo amazing in every way. He is way smarter and more mature than I am. Sometimes I feel like he is the parent!!! He is teaching himself so much too. He is way beyond his age in EVERY area. From writing, math, art, thought processes, too many things to name. I have no idea where he learns everything. Dylan auditioned for his first play this week. We have never attempted anything like this, but since he has no other interests I thought we would give it a shot. He actually got three parts!!! He was amazing in the auditions. His aspergers syndrome give him the ability to act amazingly

Thursday, March 16, 2006 3:41 PM CST

Wow, things have been hectic. Jared is doing ok again. Ct showed spots on his liver and sinus cavities. They dont know if it is NB or not, and dont want to find out. They say I should just sit back and wait for the next MIBG, which should be the end of April. They said there is nothing they would treat him with even if it is NB. That I am causing him anxiety by wanting to treat him, and being too aggressive with the disease. I still think he can be saved!!! He is such a fighter!! But for now we must sit back and wait, and go on with life hoping for a miracle. I enrolled him for kindergarten starting in the fall. He is getting more comfortable with the idea. And that means I could go back to work full time, and start getting us out of debt!!! What a relief that would be. It has been 3 years since I have worked full time, and rarely even get child support. So having money to spend on my boys would be wonderful. Maybe a good Christmas next year. Although they are both soooo wonderful and understanding. Neither expects anything material, yet they are both so deserving!!!
They have both struggled so much in the past 3 years. I think I forget sometimes how much Dylan(my older one) has sacrificed. I am so blessed with these guys. I want to update pictures, but I dont want to ruin Colleens beautiful homepage. They have both grown so much since the pictures on here!!!

Tuesday, February 7, 2006 4:53 AM CST

It has been an awful week for Jared. All of a sudden, he cant get up in the morning. He hurts when he walks. And he is sleeping 3 times as much as usual. Im scared. It could be a virus, but he has no symptoms of anything else. We are doing a 24 hour urine starting today. The Drs are trying to come up with whqat else to do. He just had his MIBG 3 weeks ago, so that is not an option.

Thursday, January 19, 2006 2:30 PM CST

MIBG finished today, and nervously awaiting results. They did 2 extra scans on day 2, which really worries me. But Jared laid still for both days for well over an hour each day, what an amazing little boy I have!!! He is my hero. So is Dylan, my 11 year old, who has been such a support to me through all of this. Sometimes I forget how rough this is for him, as he keeps everything inside, always trying to please me.

Wednesday, January 11, 2006 6:12 AM CST

It has been a long time since I have written, as I dont have easy access to the internet anymore. Plus, life has been somewhat normal. Jared has been great for the most part, we had GREAT holidays. This week he has dropped a few pounds for no reason though. Next week is MIBG week..always a nervous time for us parents. He has felt so good Im not as worried as usual though...

Saturday, November 5, 2005 3:18 PM CST

It has been great lately...Jared has been feeling pretty good, although today he seems to be coming down with a bug...
His LDH level has increased a little, but is still within normal, it just worries me because it has been stable for over a year. Doing a 24 hour urine test as soon as I feel I can stay up all night. He is still not potty trained completely, so I have to wake him every hour to try and go...not going to be a fun night to say the least..He amazed me at the drs, again talking animatedly through his pokey...it doesnt even effect him anymore...Ive had blood drawn for 30 years now, and i still wince when they go to do it...He is such a brave and courageous boy, Im watching him now play video games, and I am in awe!!

Saturday, October 22, 2005 9:23 AM CDT

I havent actually seen it in writing yet, but according to the Dr. Jareds MIBG looked fine this time!!!! Yippeee..I cant believe it!!! He is doing good, eating like a horse. The pain he gets still bothers me, but I guess that is to be expected. Other than that he seems healthy.

Friday, October 7, 2005 11:47 AM CDT

Jared has bben doing pretty good. He has bben in a lot of pain though. Cries all night sometimes saying "owy""" Im hoping it is growing pains. We have an MIBG scheduled the 18, 19 and 20 and the doctors think we should wait for that. Hoping his weakness is due to allergies. He lays around in the morning but perks up and plays in the afternoon. And of course, is crazy and wild at bedtime. He has been wearing his spiderman halloween costume from last year for 4 days now. First thing he puts on over his clothes in the morning. I laugh everytime I look at him Glad he still likes it! although i must say he is much more of a superhero than spiderman in my book!!

Tuesday, September 27, 2005 9:56 AM CDT

Jared has been having difficulty lately, and I hope it is not due to new NB from being off the accutane. He is limping more, his eye is black and he is rubbing it all the time, and he is having nite sweats. Im hoping the eye is still due to the broken nose, and the nite sweats are just a fluke. But he hasnt had them for a long time.

Saturday, September 10, 2005 6:56 PM CDT

well, summer is over and school has begun for Dylan. Not a good year, having to go to public schools for Junior High. I never planned on being in Lansing this long, Jareds illness has gotten in the way of my finances(imagine that). We took a trip to Michigan Adventure two weeks ago, and Jared broke his nose within 15 minutes of being at the water park. It was such a nightmare in a strange city. I had them call an ambulance because he was bleeding profusely, and I wasnt sure where his platelet count was due to the accutane. The poor kid, he loves the water so much, and missed his last opportunity this year. But he reoovered rather quickly, even though his nose is no longer centered anywhere near the middle of his face. I tried to get him in school, but havent been successful. He doesnt qualify for special ed services, according to his drs, but the school wont take him because he still isnt potty trained. We found out last week there is something wrong with his bladder, we are waiting for a referral to a urologist to find out what is causing thickening of the bladder. Praying it isnt NB!!! Next MIBG is oct 18th. His limp is getting worse, but I think it is because he is growing. He has always had a slight one due to the tumors on his spine. He remains tough. We took him off accutane, as he was starting to have severe reactions. I told the Drs I would rather have him like he is than not at all, and if taking him off would risk that I didnt want to do it. But they asked me to take him off for just a month, and see what happens. I guess if the NB is that aggressive, that it takes over in a month, then we are fighting a losing battle anyway. For now, we are just enjoying life

Saturday, August 13, 2005 10:34 AM CDT

Vacation is over, back to reality...along with the next round of accutane which Jared seems to get worse and worse with. The Drs want to continue him on it forever, and the effects are scaring me. He is getting sooo violent and moody. But overall we had a great vacation. Jared was a little sick, so we didnt spend long days anywhere. Just a few hours at a couple of parks, and the attractions at Niagra Falls. He had a great time for not feeling so well. Big brother is starting back at school next week, and Jared has counted on him for entertainment all summer. Hope I can fill in the space and learn to play video games in a few weeks!!

Sunday, July 24, 2005 7:07 PM CDT

Wow, the conference in Chicago was amazing, as was everyone I met there, especially Pat Tullagan. What an incredible woman to do so much for all of us. I cant say I will be that strong if Jared becomes an angel. We had so much fun, and learned so much. Jared is doing well, except he is extremely moody due the the accutane. Im going to talk to the Dr this week about taking him off it, because it gets worse and worse every cycle, so he has developed some sort of toxicity to it beyond what he can handle. We are off to Toronto for a little vacation next week. The kids cant wait.

Saturday, July 9, 2005 9:40 AM CDT

Wow, what an exciting day...Jareds scans were negative!!!!Although, in finding that out they came back and said his April scan did show uptake that they did not see until they compared it to this scan!!! Whatever, I will take what I can get!!! He is NED for the moment, and we will live every second to the fullest until told otherwise!!!!Looking forward to our Chicago trip coming up this week, and meeting other amazing kids and parents!!!Jared said a few days ago that the cancer was back in his stomach, and it was going to his brain next..where he came up with that I dont know, he has always been psychic in the past, but I am going to continue to believe he is for once wrong!!!Hopefully he just heard something to that effect somewhere...He is so amazing, he even reminds me to give him his accutane now!!!along with other meds!!!Just wish he would decide to go to the bathroom in the potty...and give up that bottle once and for all...I think those are both his security blankets, and he just refuses to grow out of them...He has a dentist appt next week and Im not looking forward to the lecture...but who are they to judge???He is too strong minded to force or threaten him into giving either up, and figure it will happen when he is ready

Monday, June 20, 2005 9:26 AM CDT

Guess it again has been a while since I updated this. I keep promising myself I will, and never succeed. Jared has been a handful lately. The accutane makes him worse and worse with every dose. Im scared about the long term effects, since he has been on it sooo long. Scans coming up first week in July. Praying for good ones. I can never tell if it is the accutane or nb coming back because the symptoms are soo similar. I want to thank Colleen and Connie for always putting a smile on my face. I forgot how much that means since I havent visited the site in so long. Love all the extra spongebob pictures. I cant wait to get home from work and show them to Jared and Dylan!!!Somehow my website at work allowed me on here today. It usually doesnt. Im so looking forward to Chicago, and meeting all you wonderful people out there, who have given me more support than you ever realize.

Wednesday, May 11, 2005 12:36 AM CDT

Jared is doing well... being a wild man...the accutane is making him crazy half the time...but he is full of life!

Thursday, April 21, 2005 9:10 AM CDT

Thank you colleen for this wonderful new web page!!! Jared is doing well, getting a little irritable from the accutane, but still going strong all day long. He is so amazing, now teaching himself how to do math, and write his name. His line was remover yesterday without a problem. He has had an infection in it for a month. Right after the surgery, he was up and running. Nothing phases his anymore!!!

Saturday, April 16, 2005 7:21 PM CDT

Jared is once again NED. Starting accutane and getting his very infected line removed

Sunday, February 20, 2005 4:49 PM CST

Jared is in remission!!!

Monday, February 14, 2005 8:50 PM CST

Jared is officially in remission!!! All scans are clean. The only option we have for treatment now is accutane, but I think we are going to hold off for a month, and let him be a normal kid for the first time in almost two years!

Monday, December 27, 2004 11:24 AM CST

Still trying to find someone to help us treat this relapse. Disease has spread to femurs

Wednesday, September 15, 2004 10:36 PM CDT

Jared has relapsed...we are going on our make a wish trip to florida in 4 days, then we are going to come back and try a few rounds of chemo

Wednesday, October 29, 2003 2:08 AM CST

This page has just been created. Please check back for additional updates.

Click here to go back to the main page.

----End of History----