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Click here to go back to the main page. Thursday, December 8, 2005 5:54 AM CST It has been a while since I updated her website. She is doing very well off treatment. She is also doing good in school. We have an appointment on December 21 for blood work. Thanks for taking the time to check up on Dianne to see how she is doing.
Thursday, July 5, 2005 11:56 AM CDT On June 28 Dianne ended her chemo. A wonderful journey has just begun. It will be filled with a lots of worries and happiness. We will take each steps as it comes. We are so thrilled about not taking any more chemo.
Wednesday, May 18, 2005 11:31 PM CDT We Have some good news to report. First the biggie. Dianne's last day of treatment will be on June 25, 2005.
Wednesday, May 18, 2005 11:31 PM CDT We Have some good news to report. First the biggie. Dianne's last day of treatment will be on June 25, 2005.
Thursday, April 28, 2005 2:36 PM CDT WBC-3.10
Thursday, March 10, 2005 9:18 PM CST These are Dianne counts from March 1, 2005
Wednesday, March 2, 2005 1:16 AM CST Today Dianne had her LP and her chemo treatments today. So far everything is good. On Dianne's right is Dr. Wiley, her oncologist and on her left is Dr. Aron, her anesthesiologist. Wednesday, February 23, 2005 6:10 PM CST Dianne is schedule for a lumbar puncture(LP) and chemo on March 1. The good news is, Dianne has 6 more months of treatments left. Since May 1, 2003, I never thought I would see the light at the end of this long tunnel. I feel very excited about this.
Monday, January 17, 2005 4:12 AM CST For the past week Dianne had a fever. We had her at the hospital couple times this week, but everything is coming back negative. I am so worried at this point. They want to see her today again. Dianne does complain of back pains and she has symptoms of having the flu. She did have her flu shot so I am hoping it's viral that is causing her to run this fever all week. I will let you know if there is any changes.
Tuesday, December 21, 2004 10:25 AM CST Dianne is doing so well now. She is excited about Santa coming. Santa on the other hand is not that excited.
Thursday, December 2, 2004 9:19 AM CST An update on Dianne. She is doing ok. she had developed an infection in her arm. We went to the oncologist and he had given her antibiotics. She will be going in for her spinal and MTX on December 7. Dianne will also get her vincristine through the IV.
Tuesday, November 2, 2004 10:49 AM CST Dianne is doing so well. Just looking at her you would never know she had cancer. She is so alive and full of energy. Dianne is making progress in school after missing so much last year. The teachers are so wonderful to her. Her next schedule appointment is on November 9. She will be getting her vincristine so it will be a short visit. Also to let you all know, Dianne had her flu shot and she was a brave girl. She did not even cry. I will try to keep up with this journal more often.
Monday, September 20, 2004 12:29 AM CDT Well, it is late Sunday night. Dianne went to the clinic on Friday and got her LP and her chemo. She also started her five days of steriods. So far she is doing great. This Sunday Dianne was complaining about headaches. It is most likely from the methotrexate she had received in the spine. The past few days, Dianne had gone to bed early. I am hoping that she will go to school this week. Thanks to all who had kept Dianne in their prayers .
Friday, September 3, 2004 9:45 AM CDT Dianne had just started school on August 30. She had entered the 2nd grade. So far, she had a good week. She said that she is having a good time and made a lots of friends.
Monday, August 23, 2004 12:46 AM CDT I am sorry I had not updated lately. Just to let you know Dianne is doing well. We went away August 7, to spend a week at the ocean. She had a good time. In the beginning of the week she cried for her grandmom who past away this past April. Grandmom was always with us on vacation. We were with granddad, Uncle George, Aunt Tina and cousins Marie and Stamati.
Saturday, July 10, 2004 0:31 AM CDT Today is Dianne's birthday. We will have a quiet celebration at home.
Wednesday, June 16, 2004 10:40 PM CDT Dianne contiues to show great progress. She had her LP done on June 14. She is doing great. Today was her last day of school. She will start second grade in September. This is a busy weekend for her and her brother Michael. They will spend the weekend away from me. They will leave on Friday to stay the weekend over our friends Rita and Spiros. They have two wonderful girls Elefteria and Georgina. Sundays evening Dianne Michael and the rest of the gang will go over Uncle george and Aunt Tina's house for a fathers day Dinner. Also, there will be graduation party for my nephew Stamati on Saturday. I don't think Dianne and Michael will attend the graduation party. It will be held at St. Demetrios Greek Orthodox Church. Thanks for checking up on Dianne.
Sunday, May 16, 2004 10:24 PM CDT Today was a wonderful day for her. Our church and many organizations in the church had a fundraiser for Dianne.The money they made off the luncheon will help to pay her medical bills.
Thursday, April 29, 2004 9:40 AM CDT Dianne is doing so well on her LTM. She is full of energy and life. I am so bless to have her as my daughter. She was diagnosed on May 1, 2003 with Leukemia and this Saturday will mark her one year anniversary. I will still have a cake for her and she will celebrate it quietly with her mom, dad, sister, brothers and her papou(grandfather). I know Dianne will be in good hands because her Yiayia(grandmother) earned her wings on April 5, 2004. Mom you will be missed so much. You will live forever in us.
Saturday, April 17, 2004 7:17 PM CDT I am sorry that I did not update Dianne's page sooner. My mom past away on April 5 and it has been a long two weeks. Dianne is doing good. She will go to the clinic for chemo treatments on Monday. I will keep you posted after the appointment.
Saturday, April 3, 2004 0:41 AM CST It is close to 2 in the morning. I am sorry I have not updated this week about the parade. On Monday my mother had a stroke. She has a long road ahead to recovery but with the love of her five kids and a terrific husband (also a terrific father) she will do just fine. She had already started physical therapy. Saturday, March 27, 2004 10:51 PM CST Today is Dianne's big day. She will be in a parade to celebrate the Greek Indepenence Day.
Monday, March 22, 2004 5:05 PM CST It is official. As of today, Dianne started her Long Term Maintenance (LTM). I will keep you posted as we go along. she is scheduled in two weeks for a complete blood count (CBC).
Thursday, March 18, 2004 7:44 AM CST Good morning. It is Thursday morning. Dianne had developed a fever last night. It went to 100.8 and she is complaining a lot about her legs and arms hurting. My main concern is she may have relapse but this is coming from a mother who thinks every pain she is having is due to a relapse. I called the clinic and they told me to wait a few hours to see how high her fever gets. If it gets to 101.0 then I would have to bring her in.
Monday, March 15, 2004 7:27 PM CST Well we went today to start her Long Term maintenance (LTM). Sunday, March 14, 2004 10:40 AM CST Well tomorrow is a very big day for Dianne. She will begin her Long Term Maintenance (LTM). She will Get her lumbar punture (LP) in her spine at 10:30 in the Morning. If her Bood counts are good, she will begin her last journey of her treatments. This journey will last her 1 year and three months. We are very excited to come to this point. Her one year anniversary is fast approaching, May 1, 2004. I will have a cake on this day to celebrate her beautiful life. Sunday, March 7, 2004 4:16 PM CST Dianne broke out in a rash on Thursday evening. I had made a call to her onc and he told me to bring her in Friday morning at 8:00. We thought it might be shingles. It turned out not to be shingles. At the moment we do not know what it is. Also they thought she might need a red blood transfusion because her HGB was 7.9 on Wednesday but Friday morning it was 8.2 so they told us it looks like it is coming up on its own. Her next appt. will be on March 15 for her lumbar puncture(LP). This is the first day of the beginning of long term Maintenance.
Wednesday, March 3, 2004 8:22 PM CST Today Dianne had her appt at the clinic an Sinai. She had her blood test today. Her counts are still dropping. Saturday, February 28, 2004 8:52 AM CST Well Dianne finally finished her Delayed Intesification (DI).
Wednesday, February 18, 2004 7:53 PM CST Well Dianne started her second half of her Delayed Intesification (DI). Yesterday we arrived at Sinia at 10 in the morning and this is when the long day began. Her port was accessed and blood was drawn. Her counts were good. She was scheduled for an Lumbar Puncture (LP) at 12:30. Dianne got her Methotrexate in the spine. They needed to start her on her IV to make sure she had enough fluids before she got her Cyclophosphamide (CPM). After her LP, she was sent to the clinic to get the rest of her chemo CPM and Cytarabine (ARAC). Before they gave her the CPM they had to check to see if she was dehydrated. It turned out that she was dehydrated and she could not get her chemo at that time. They gave her more fluids through the IV and still dehydrated. The bottom line is, we waited about 5 hours more to get her chemo. We ended up leaving the hospital at 8:15 in the evening. Dianne stayed home from school today because she was very tired.
Thursday, February 12, 2004 1:28 PM CST Well Dianne did not start her second half of her Delayed Intensification(DI) as planned. She had been complaining about her right arms. She could not use it to well. She was still having problems with her legs. When she got examined by her oncologist, she decided to do an MRI on her in fear that she might have a blood clot. We were told it is quite normal to have a blood clot after getting the Pegaspargases(PEG) shot. The MRI showed no clots. They come to the conclusion that it is from the chemo vincristine. Tuesday, February 3, 2004 1:44 PM CST Well Dianne will be starting her second half of her Delayed Intesification. Her appt. is on Feb.11 at 8:30 in the morning at the clinc at Sinai. Her LP is scheduled for 9:30. This is when they put her to sleep and remove fluids from the spine and also give her her chemo. She will get her port accessed and have her blood drawn. They will check her blood counts. If her ANC remains 1000 or more then she will go ahead and start the second half. If her ANC is below 1000 she will not get her chemo. The ANC is what helps fight infections. This is her treatment plan for the second half:
Wednesday, January 28, 2004 7:44 PM CST Today Dianne had her appt. for more chemo . As you all know, Dianne is in her second Delayed Intesification(DI). It has been rough on her. On Friday we had her in the hospital for a few hours due to bad leg pains. Let me tell you what happened that Friday morning. She got out of bed and fell to the floor. She was in a lot of pain. She could not stand on her legs. Well I was told by one doctor that it was cause by the chemo called Vincristine. Today when Dianne had her appt. I was told that steroids can cause these pains. She also suffered from heartburn and stomach cramping. Now today she got Vincristine IV push and Doxorubicin IV. Dianne will also begin another week of steroids. Her blood counts are good except her ANC (her ability to fight infections). A good ANC is 1000 and up. Her ANC today was 730. She is running a fever but it is holding at 99.2. If it goes to 101 she needs to be in the hospital.
Sunday, January 18, 2004 11:00 AM CST Since Dianne started her second Delayed Intensification (DI) and its been bad. Her steroids kicked in fast. She is screaming and yelling and very demanding. She is eating everything in sight. Sometimes I just can't keep a handle on it. Her first DI was a breeze.
Thursday, January 15, 2004 0:09 AM CST Well Dianne is really having a bad day. Her legs been hurting all day. I do believe it is coming from the vincristine. Since she came home from her treatments she has been vomiting. She had started her Dexamethasone last night but could not hold it down. I had decided to start it today. I crushed it up and put it in vanilla pudding. She took it ok. The evening was a little more difficult. I was out of pudding so I had to use apple sauce.
Tuesday, January 13, 2004 6:33 PM CST Dianne started her second delayed intensification today. We arrived at the hospital at 9:00 this morning. She was scheduled at 12 for her lumbar puncture (LP). I tell you, it was a very rough day. We did not leave until 5:30 this evening. Today she got vincristine and Doxorubicin through IV. She got Methotrexate in her spine (LP). Of course they put her to sleep. I am tired. I just want to go home and rest. She will also start her most famous Dexamethasone ( steriods) today. She will take this for seven days and then seven days off of it. Dianne did vomit a lot today. I feel awful when I see her like that because I can't do nothing for her. I will keep you post how she does for the rest of her DI.
Saturday, January 3, 2004 8:19 PM CST Dianne has ended her second Interim Maintenance. She will go to the hospital for blood counts on January 7. If all goes well, she will begin her second Delayed Intensification in a week or two. This should last about 2 months. When this stage is over she will be heading into maintenance. This is the last part of her treatments which will last about 1 1/2 years.
Tuesday, December 2, 2003 9:46 AM CST I hope everyone had a wonderful Thanksgiving. Now the Christmas season has just began. She is doing very well on her treatments. Dianne is nearing the end of her second Interim Maintenance (#2IM). On November 24, that is a Monday and Thanksgiving week, she broke out in a rash on her left hip in the back. I left it alone because she did not run a fever. It did itch her a lot. She was scheduled for treatment on December 1, which is a Monday, to have Methotrexate by spinal, Methtrexate through her central line and vicristine. The oncologist saw her rash and postponed the treatments. It turned out Dianne had shingles (part of the chicken pox family). She will get her treatments on Monday December 8. I had told the doctor that she had been in school that week but he said because her shingles were covered by her pants and shirts there should be no problems with the other children. She had a mild case of it. If she had treatment it would have made her shingles go out of control and she would have ended up in the hospital.
Tuesday, November 4, 2003 9:16 AM CST Dianne had finished her Delayed Intensification #1. She did well on it but had a hard time when the nurse came to our home to give her chemo.She would begin to vomit when she got chemo. I think a lot of it was in her head because she started to get sick before the chemo was given. Dianne hates the taste of saline.It is injected through her port to flush out the port. She said it tastes very salty.
Monday, September 8, 2003 11:32 PM CDT Dianne had started her Delayed Intensification stage on August 27. On that day she got a spinal tap which included Methotrexate. After the spinal, She was given through IV Vincristine and Doxorubicin. These are the names of the Chemo she is currently on. For the next seven days she took Dexamethasone which is a form of steroids. On August 29 she received her Pegaspargase which was given to her in her muscles of both legs. That was very painful for Dianne. She said it felt like her leg was burning. On September 3 she received Vincristine and Doxorubicin through IV. For this week she is off steroids. Dianne's next appointment will be on September 10. On that day she will receive the two chemos through the IV and start her one week steroids.
Sunday, July 27, 2003 6:45 PM CDT Dianne is doing just fine. She is enjoying her summer so far. Dianne is on her new protocol and Arm D was chosen for her. That is the most intense arm. She will return to the hospital on Monday for more treatments. She will be put to sleep so they could do a spinal tap and inject methotrexate in her spine. This is chemo to kill the cancer cells around her brain. Her hair had thinned out some.
Saturday, June 28, 2003 9:56 PM CDT On Thursday, June 26, 2003 Dianne began her new protocol. The computer had to pick which arm she would be treated with. These would be the the chooses:
Wednesday, June 18, 2003 1:23 PM CDT Today was Dianne's last day of school. I took her to school today so she could see her friends and say goodbye to her teacher, Miss Covert. She was able to meet her first grade teacher today. This Friday she will go back to Sinai to have her spinal tap and blood counts. On Monday She started to cry because a girl teased her about her hair falling out. She also asked why she has cancer. I really couldn't give her an answer to that question. I just held her in my arms and told her she will be fine and that mommy loves her. Friday, June 13, 2003 11:09 PM CDT Dianne is doing so much better now that she is off steriods. Her energy level is high. We went to the clinic on Thursday and she did very good. She did not cry when they had to activate her port. She is beginning to know her doctors and nurses. Her blood counts are good. Her White cells are a little low but the doctor said they are not worried at this time. I thank all my family members and friends for all their support. Thursday, June 12, 2003 10:03 PM CDT Dianne is 5 years old. She will be 6 years old on July 10.
Thursday, June 12, 2003 8:48 PM CDT This page has just been created. Please check back for additional updates.
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