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Hi Paulina-I am new to the mpsforum, and found this page. Just had to tell you that I am so sorry for your loss of such beautiful little man. Your son looks so much like mine. In fact, my other little boy saw Andrew's picture and said, "Is that Brandon?" Your page really hit home for me. Thank you for your words here. I am hoping I am as strong as you to go thru all of the stages when they happen. Hope you are doing well :o)Warmly,
Alisa Ballou <alisaballou@yahoo.com>
Douglas, MA United State - Wednesday, March 16, 2011 3:48 PM CDT
Thinking of you Paulina. Sending prayers to heal your heart.
Leslie Jurado <ijf@comporium.net>
Rock Hill, SC - Monday, January 10, 2011 8:39 PM CST
Thinking of you today Paulina and the rest of the family.
Many hugs.
Elizabeth Schuepbach
- Monday, January 10, 2011 7:54 AM CST
Just thinking of you guys...the piece of you that leaves when you lose your baby is never found.
Holly Zollman (Brookie's mom) <weddell2031@hotmail.com>
Vallonia, - Sunday, August 8, 2010 7:41 PM CDT
Andrew, there is not a moment that I do not think of you. It has been over a year and I am still lost without you by my side. You are and forever will be my sweet angel, I love you and miss you more than ever. I cannot wait to be with you in heaven.
Daddy
Colin <pjump@zoomtown.com>
Sparta , KY United States - Sunday, June 27, 2010 7:44 PM CDT
Hi Pauline, thinking of you today and wondering how you've been doing. I hope you are doing alright.

Joanne Huff~Sasha's Mom
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Monday, April 26, 2010 3:38 PM CDT
I always love that song -its so apt for are children!I hope your surviving hugs Laura and Will mps2
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, Eng;land - Friday, January 22, 2010 12:01 AM CST
Thinking of you and your family....and of course sweet Andrew.

(((HUGS)))
Iris and Nina
Iris Giega <jophiel@netcologne.de>
Leverkusen, NRW Germany - Thursday, December 24, 2009 7:07 AM CST
MY FIRST CHRISTMAS IN HEAVEN.. I see the countless Christmas Trees around the world below. With tiny lights, like heaven's stars, reflecting on the snow. The sight is so spectacular! Please wipe away that tear, for I am spending Christmas with Jesus Christ this year. I hear the many Christmas songs that people hold so dear, but the sounds of music can't compare with the Christmas choir up here. I have no words to tell you, the joy their voices bring, for it is beyond description to hear the angels sing. I know how much you miss me, I see the pain inside your heart, but I am not so far away, we really aren't apart. So be happy for me dear ones. You know I hold you dear and be glad I'm spending Christmas with Jesus Christ this year. I send you each a special gift from my heavenly home above.
I send you each a memory of my undying love.
After all "LOVE" is the gift, more precious than pure gold. It was always most important in the stories Jesus told. Please love and keep each other, as my Father said to do,
for I can't count the blessings or love He has for you. So, have a Joyous Christmas and wipe away that tear. Remember, I'm spending Christmas with Jesus Christ this year. ~~ Anonymous
Holly Bays
Kenton, ohio USA - Wednesday, December 9, 2009 11:43 AM CST
Hi Pauline,

I've been thinking about you today and just wanted to say hello. I hope you've been doing OK. Joanne (Sasha's Mom)
Joanne Huff <joannehff@yahoo.com>
Warren, NH - Thursday, November 5, 2009 10:19 AM CST
I just read your story for the first time today. I will look to the sky and think of your Angel Andrew. You can be assured that he is in Heaven and that he will never leave you. Don't lose faith, he is watching over you every day. Alex needs you now so please find a way to help yourself through the grief so that the three of you can live while you're here on earth with the assurance that the four of you will one day be together in eternity.
Lynne Brown <lrichardbrown@yahoo.com>
West Sacramento, CA USA - Monday, September 28, 2009 6:06 PM CDT
Colin, Your words are heart wrenching. I cannot imagine how you feel...I know one day I will. I wish that we could find a cure for tis devestating disorder. You are in my daily thoughts, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Saturday, July 4, 2009 9:54 AM CDT
Paulina, Colin and Alex,
I think of you every day! I've read your journal and it's helping me in my journey with Julie. I just wish it didn't have to end this way. I'm sorry that Andrew is gone and that you are missing him so much. I can't imagine the pain you are going through.
Laura Thorsrud
Decatur, GA United States - Thursday, June 25, 2009 6:04 PM CDT
Hi all, I wanted you to know that our comp. has been acting funny but good now, your in our prayers daily, wish I was there close so I could help you guys and give hugs, haven't got to meet you but your loss is ours as well. our hearts break for you! Keep your faith and He will carry you through!! love Ruth and Family and Joshua Murphy
Ruth Murphy <523murf@earthlink.net>
eustace, tx usa - Thursday, June 25, 2009 1:56 PM CDT
I think of you and will always think of you each and every day. Joanne, Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Friday, June 19, 2009 8:58 PM CDT
Dear Mr. and Mrs. Jump,

Andrew was a beautiful child. His life, and the strength, love, and caring you two have shown us in your parenting, will live on in our hearts long after Andrew's passing.
Donald Gilbert
Cincinnati, OH United States - Tuesday, June 16, 2009 9:41 AM CDT
Just sending love your way, I know the days have to be lonely and hard. XOXOXOX.

Love,
Patty
Pattyt <wordinedge@aol.com>
Balto, MD USA - Monday, June 8, 2009 8:04 AM CDT
paulina
your right life will never be the same but i want to tell you one thing that gets me through and it may not help right now but when i get really really down about katilynn being gone and its alot its been 2 yrs but it still is very hard but i image that katilynn is running and playing and doing all the things that she stoped doing down here i can picture her in my mind laughing and having such a wonderful time and i image her sitting on god lap and he is telling her storys and it makes me cry but its happy tears for all the things she can do and there is no more pain and no more tears for her or andrew just try to remember that i want to say that i know what ur feeling but i dont everyones pain is different and everyones grief is different also i want to tell you that i love you guys even though i havent met you but in my heart we have been friends forever through children try to hang on there and know that i am here if you need me hugs kathy
kathy and ^^katilynn^^ preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, June 4, 2009 9:28 AM CDT
My love and thoughts continue to be with you all...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, June 3, 2009 4:35 PM CDT
Dear Paulina and family, Our thoughts and love are with you, your special little man is now pain free. A little poem for you and your precious young man, God saw him getting tired and a cure was not to be, so he put his arms around him and whispered come to me. A Golden Heart stopped beating, hard working hands now rest, God broke your hearts to lose him and to prove He only takes the best.
We hope your little man Andrew has met up with our Angel Aaron somewhere over the rainbow pain free and happy x
Take care
love to you all
Michelle Aidie Ryan & Liam & Angel Aaron
www.caringbridge.org/visit/aaroncraig




Michelle Craig <craigboys@blueyonder.co.uk>
Birmingham, UK - Tuesday, June 2, 2009 3:30 PM CDT
Thinking of you all...
alyssa...godmother to Ciara, Hunter and ^Tommy^ <sabiemc@aol.com>
Chapel Hill, NC USA - Tuesday, May 26, 2009 6:48 PM CDT
I am lost for words. My family has been following your journey from the start. When my sister was diagnosed with this horrible disease, your journal was one of the first websites I found. Please know that you are not alone - our hearts are breaking with yours, our tears are pouring with yours, out thoughts are constantly with you. Be strong, Alex needs you now more than ever. He is the best little brother Andrew could have asked for.
Love the Horne Family.
Vanessa Horne <v.horne@camdenservices.com.au>
Brisbane, Qld Australia - Sunday, May 24, 2009 6:49 PM CDT
You and your family is constantly in my thoughts.
Sweet Andrew's life was shared with so many peoples today. Andrew will always remain within our hearts. We know that he is now with God in a better place with his suffering gone. I know how much his pain caused you sorrow and grief, and extremely difficult to bear it. But, God will never give us more than we can bear, and he is with you through every step in your life.
You and Collin are in my prayers. May GOD be with you and give you strength.

Abeerah, Khansa and Zahra (MPS III-B)

Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Saturday, May 23, 2009 11:32 PM CDT
I am so sorry for your pain Pauline.Praying for you,Collin and Alex
Sheryl & Family
Westville, NJ USA - Saturday, May 23, 2009 9:32 AM CDT
Just stopping by to let you know you've been in my thoughts and prayers constantly this week!!!
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Friday, May 22, 2009 11:13 PM CDT
I do not have words to express my profound sorrow. You are in my thougts and prayers, Misty
Misty Luthcke <mluthcke@netzero.com>
- Friday, May 22, 2009 9:21 PM CDT
Our Prayers are with you and your family. God be with you through these tough times. We love you and Andrew too! Respectfully, Lew Montgomery
Lew and Stacey Montgomery <lewmontgomery@aol.com>
Cedar Rapids, IA USA - Friday, May 22, 2009 3:04 PM CDT
Remembering Andrew. Today was track and field day at Lucas' school. Lucas' para surprised me. She had them call Lucas to the field. They announced over the intercom that Lucas worked hard on all of his events today, and that he dedicated all of his efforts to his friend Andrew who was 11 years old and passed away to MPS. I wanted to share this with you because I was then able to share with others all about Andrew. I wanted you to know he is always with us. Always in our memories, always in our heart.
http://www.caringbridge.org/visit/hopeforlucas
Stacey and Lucas MPSIIIB <lewNstacey@yahoo.com>
Cedar Rapids, IA - Thursday, May 21, 2009 9:19 PM CDT
Dear Paulina,
God is collecting his saints and Andrew is one of the most special ones God created. My thoughts and prayers are with you and your husband. I am so sorry for your pain and pray that God will bring you peace. May Our Most Holy Mother Mary comfort you too.
Love and prayers,
Rosemarie Veliz
Rosemarie and Chase 17 yrs old with hunters <rveliz@nac.net>
Newton, NJ USA - Thursday, May 21, 2009 6:37 PM CDT
I am so sorry for your loss. You and your family are in my thoughts and prayers.
Lisa Muller <lmuller612@gmail.com>
Marysville, OH USA - Thursday, May 21, 2009 4:49 PM CDT
As another Sanfilippo Mom, I want to tell you how much my heart is breaking for you. Please know there are so many people who are with you in their hearts and wish they could be right beside you. We all care about you so much and will be praying for you.
Nancy Burke <burkejlk@msn.com>
Belmont, MA - Thursday, May 21, 2009 4:14 PM CDT
Paulina and Family,
I am so sad right now. I just found out. I look at Andrew and I think of Lucas and my heart just breaks for all of us. WHy is the question of the day. Please e-mail or call if you need to talk. I am here for you. YOu were the best family for sweet Andrew. God bless you all.
Jill Valdez <valdezjill@hotmail.com>
Oshkosh, WI - Thursday, May 21, 2009 3:23 PM CDT
May GOD Bless you!!!
T.Bee
- Thursday, May 21, 2009 10:56 AM CDT
Dear Paulina, Colin & Alex,

Words can not express my thoughts and feelings at this time! My prayer is that God will provide you the strength, comfort and peace to get you through.

Andrew was a very loved and lucky little boy to have such caring parents! He is now at peace and Sanilfippo free!

May your memories help to fill the hole in your hearts! Know your family will be in our prayers! Remembering you all with much love ...
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Wednesday, May 20, 2009 10:51 PM CDT
I give you this one thought to keep --

I am with you still -- I do not sleep.

I am a thousand winds that blow,

I am the diamond glints on the snow,

I am the sunlight on ripened grain,

I am the gentle autumn rain.

When you awaken in the morning's hush

I am the swift, uplifting rush

of quiet birds in circled flight.

I am the soft stars that shine at night.

Do not think of me as gone --

I am with you still --- in each new dawn.
The Minacapilli Family <lminacapilli@comcast.net>
East Boston, Ma USA - Wednesday, May 20, 2009 6:46 PM CDT
Dear Jump Family,
I am a friend of Ruth Murphy (Josh's mom)and have heard so many wonderful thing's about your family. I'm praying God's healing grace over you and your family. May God Bless You Always, Tonya Jeremiah 29:11

Tonya <jtbe2@verizon.net>
Garland, Tx - Wednesday, May 20, 2009 4:31 PM CDT
Im sorry to hear about Andrew. I can hear him now laughing and playing with Jesus....huge smile on his face. My prayers are with you and your family.
Vickie
Rowlett, TX US - Wednesday, May 20, 2009 2:25 PM CDT
memory no one can steal
imikimi - Customize Your World!we wanted you to know we are thinking of you and we are so sorry for your loss of andrew he was a true super hero hugs kathy and the whole preston family
kathy and ^^ katilynn^^preston <katilynnsmom@yahoo.com>
TOMAHAWK, ky usa - Wednesday, May 20, 2009 12:42 AM CDT
Dear Paulina, Colin and Alex

I am so very sorry that you have had to say goodbye to Andrew. There will forever be a hole in your hearts. I am praying for God to comfort you and give you peace through the people He has placed in your lives. I am so grateful that Andrew had you all for 11 years. No one else could have loved him better.
Leslie Jurado <ijf@comporium.net>
- Wednesday, May 20, 2009 11:38 AM CDT
Dear Paulina, Colin and Alex,

I'm so sorry to read these sad news... Words are hard to find in these circumstanses... So I just wanted to give you a hug and that my thoughts and prayers are with you allways.

Love from Vibeke (Vibe from MPS/MLforum)
vibekehovd@hotmail.com <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, May 20, 2009 11:08 AM CDT
We are so sorry to hear about Andrew
Please know that our thoughts and prayers are with you
Anne and Sebastien
www.caringbridge.org/visit/sebastiencairns
Anne Cairns <buzz.cairns@sympatico.ca>
markham, ont Canada - Wednesday, May 20, 2009 10:39 AM CDT
I know I never signed this guestbook before, but I just wanted to say that I read your journal for long, and my thoughts and prayers were always with Andrew! It's a terrible loss for everyone, and a precious gain for heaven, because it has got the beautiful angel now! Our prayers are with you during this hard time, just know that people all around the world are praying for you and Andrew! Take care of yourself, and find strengh to carry on with you life! Andrew is in god's hands now! Love from Ireland! xxx
Andrejs, Svetlana, Karina, Julia and Nikita (9) MPS III b <k3ndy-karina@hotmail.com>
Dublin, Ireland - Wednesday, May 20, 2009 10:38 AM CDT
I'm so sorry please know that my thoughts and prayers are with you at this time. If you need to talk please PM me, I'm here for you. Hugs for you and your family..
Shawna
- Wednesday, May 20, 2009 10:18 AM CDT
Heaven now has the greatest Superman ever! Photobucket
Paulina you all are in our Thoughts and Prayers. If there is anything I can do for you please give me a call.
Hugs and Much Love to you all especially Andrew who is now flying MPS free.
Kim & ScottyPhotobucket MPS II <cottons@earthlink.nets>
Modesto, CA - Wednesday, May 20, 2009 8:16 AM CDT
I am so sorry I am praying for your entire family. I know Andrew is free now from this terrible disease and that is the only peace I can find in this.I feel so numb. I know we have never met But Andrew and your web site has helped me since Jared was Diagnosed.May GOD BLESS YOUR ENTIRE FAMILY. XO--REIA CONNOR
REIA CONNOR Mom to Jared MPS111B 4yrsold <lilphunk2@aol.com>
BOSTON, MA USA - Wednesday, May 20, 2009 8:02 AM CDT
Our thoughts and prayers are with you and your family.

Love the Grossmann Family
Stephanie Grossmann <stephkylie28@aol.com>
East Boston, MA US - Wednesday, May 20, 2009 7:43 AM CDT
Dear Paulina,
I am so sorry to hear about Andrew. I know you must be broken hearted and I am thinking of you and your family. Love, Anne
Anne Himes <arhimes@msn.com>
Boonsboro, md USA - Wednesday, May 20, 2009 7:33 AM CDT
Paulina, Colin, and Alex, I was shocked to see the notification. I was so sad and so empty. I know your hearts are breaking. Through you, Andrew has touched so many lives. Thank you for sharing his life and your lives with us. You are all incredible, dedicated, loving, and amazing people.
Laurie Bailey <laurie.bailey@cchmc.org>
Florence, Ky USA - Wednesday, May 20, 2009 6:37 AM CDT
Our prayers are with you and your family.
The Hall Family <govmonty@gmail.com>
Byfield, MA USA - Wednesday, May 20, 2009 5:53 AM CDT
Paulina and Family; heartfelt love, prayers and hugs to you. Andrew's wings will carry him to you each and every day, on every breeze, in each rain drop, in each snow flake, till you meet again.
Karen Sheaffer <tkesheaffer@yahoo.com>
Camp Hill, PA - Wednesday, May 20, 2009 1:58 AM CDT
Oh Paulina, I am so sorry. I'm praying for you and your family.
Kindall Nelson <nelsonhmc@gmail.com>
Galesburg, IL United States - Tuesday, May 19, 2009 8:44 PM CDT
Praying for your family. May God bless you and carry you!
Missy Morgan <missy@rollinghillsgin.com>
New London, NC USA - Tuesday, May 19, 2009 8:25 PM CDT
Paulina, Colin and Alex ~ My thoughts and prayers are with you...I am so sorry. May you all have may sweet memories of ^^Andrew^^ to comfort you in the days ahead.
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Tuesday, May 19, 2009 5:53 PM CDT
You are in my prayers, and I am wishing you peace.
Kimberly Noble Piper <kpiper@idph.state.ia.us>
- Tuesday, May 19, 2009 5:26 PM CDT
Paulina and Colin, I feel so empty inside ... please know we are thinking of you.
Angel Andrew Please watch over your MPS friends and welcome them into heaven when it is there time with your beautiful smile.
Stacey and Lucas MPSIIIB <lewnstacey@yahoo.com>
Cedar Rapids, IA USA - Tuesday, May 19, 2009 5:16 PM CDT
I am so sorry for the loss of your precious little boy. He is finally free of this terrible disease. My heart goes out to you and your family.
Liz Hindson <lizcon@yahoo.com>
Sc - Tuesday, May 19, 2009 4:38 PM CDT
May God make peace in your heart for the void that is there for Andrew. I am sorry and I cannot express the sorrow I feel for all of you. Andrew touched many people in his life as a boy, and will continue to touch the lives of others as an Angel. Many prayers and big hugs for all. Shelly, Ian, Tes, and Derrick.
Shelly Maddox <maddox83@yahoo.com>
Amarillo, Tx USA - Tuesday, May 19, 2009 3:52 PM CDT
My heart goes out to you. I cannot imagine...I am so sorry.
Tina
Tina <alericosmom@comcast.net>
- Tuesday, May 19, 2009 3:40 PM CDT
Paulina, Colin, and Alex,

I can't begin to express my sadness when I heard that Andrew had gained his wings. Many tears are being shed for him around the world. Thank you for sharing your beautiful boy with us all.
Love and prayers, Robin, Andy, Avery, Logan, and Kara Piefer
Robin Piefer
Oneonta, NY - Tuesday, May 19, 2009 3:09 PM CDT
Paulina, Colin and Alex,
I'm so sorry about your loss. I love the picture of Andrew on the caringbridge site today. It's wonderful to see his beautiful smile.
I know you'll miss him forever. He will be remembered.
Laura Thorsrud <laura.thorsrud@gmail.com>
Decatur, GA United States - Tuesday, May 19, 2009 1:51 PM CDT
I am so sorry to hear about Andrew but I am glad that he is pain free now and can be with his MPS friends in heaven. Today is truley a sad day for all that knew Andrew. Paulina, Colin and Alex, may you find peace in his memories and the pictures of his laughing face.


Aunt Barbara <bpryor2@columbus.rr.com>
Columbus, Oh USA - Tuesday, May 19, 2009 1:25 PM CDT
From our MPS family to yours, thinking of you and hurting from deep within.
Kris Kelly
Kris Kelly <coffeekris@msn.com>
Portland, OR USA - Tuesday, May 19, 2009 1:19 PM CDT
Colin-Paulina-Alex,
I'm so sorry to hear about Andrew this morning. I'm beside myself, not knowing what to say or do other than pray for you all and have others pray for you also. I know Alex is up in heaven looking down on you and he is pain free and in a new heavenly body! Thank you for being such great parents to this awesome little boy and letting us know him.
Andrea Longston - mother to Rachel (MPSIIIB) <andrea.longston@gmail.com>
green bay, wi - Tuesday, May 19, 2009 12:49 AM CDT
im sitting here in tears heart wrenched like he was my own it hits me just as hard with each an everyone of them please know i am sending u a big bear hug and so is my lil tony from above

theresa hinkelman (anthony hudson mom 11/18/90-3/12/05 <tnthudfl@aol.com>
new smyrna beach, fl usa - Tuesday, May 19, 2009 12:41 AM CDT
Andrew,

I wish I could have had the chance to meet you. Somehow, I feel like I did. There are no words for how much your parents will miss you. Look out for them wherever you may be. Joanne, Mom to Sasha
Joanne <joannehff@yahoo.com>
Warren, NH USA - Tuesday, May 19, 2009 12:11 AM CDT
Paulina, my heart is breaking for you and your family. Please know that you are in my thoughts and prayers. Many hugs.
Penny Lopez <journalist2005@yahoo.com>
- Tuesday, May 19, 2009 11:51 AM CDT
Sending my love and sympathy to your family. May God continue to hold you close.
Kathy Blackwelder <jkmm@comporium.net>
Rock Hill , SC - Tuesday, May 19, 2009 11:20 AM CDT
All our love and thoughts are with you...Andrew will be sadly missed.Terri and Blaise.xxxxxxxxxxx
terri rayner <terri.rayner1@ntlworld.com>
manchester, u.k - Tuesday, May 19, 2009 10:51 AM CDT
I feel blessed to have met Andrew and all of you. His life, though brief, was filled with love. You have touched so many others with your dedication and determination to give Andrew the best possible life and to keep balance in Alex's life. A more heroic family I have never met. May you feel the love of God and know that Heaven is being bombarded with prayers for you. Your precious angel will suffer no more.
Catherine Abernathy <cabernat@truvista.net>
Chester, SC - Tuesday, May 19, 2009 10:00 AM CDT
Dearest Andrew,

You will be forever missed but forever loved. You taught us all so much about love and life and this world is a better place because you were in it. Please watch over your family as they try to go on without you. I know you are with them every moment so please let them know that you are there.



Heaven's Child
I would want you not to cry, It's just a part of life to die.
I know you miss me and you're sad, But dying isn't something bad.
I'm only just beyond your sight, I've gone with Angles to the light.
I send to all of you my love, From Heaven's garden up above.
I like it here I'm having fun, And I'm with the holy one.
Right now I'm sitting on His knee, With Jesus watching over me.
So many ones I knew before, Were waiting here at Heaven's Door.
To welcome me with open arms, And keep me safe and warm.
So when you think of me please smile, For I will see you in a little while.
Trust the Lord He's told me why, He wants me here to paint the sky.
With rainbows, clouds, and shining lights, To brighten days and warm your nights.
Remember what I said before, Please don't cry for me anymore.
I'm Heaven's Child now you see, I play with Angles surrounding me.
I can fly with the speed of thought, To be with you when you need me most.
So just remember I love you, And I know you love me too.
And even now while we're apart, I'm still right here ... I'm in your heart.
Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, May 19, 2009 9:32 AM CDT
I'm so sorry...my heart breaks for all of you! I know all our ^^MPS Angels^^ are having another party this morning in heaven, sightseeing with all the moon flowers, ladybugs, rainbows and baseball games ~ can't you just see it now! My HOPE is for God to fill the void in your heart with sweet memories and dreams...love,
karen, lindsey (mps-iiia) & hannah efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
albemarle, nc usa - Tuesday, May 19, 2009 9:29 AM CDT
My heart is breaking for you. I am so so sorry. Andrew was a beautiful child and is now a beautiful angel. Praying for you all...
alyssa...godmother to Ciara, Hunter and ^Tommy^ <sabiemc@aol.com>
Chapel Hill, NC USA - Tuesday, May 19, 2009 9:05 AM CDT
I am completely heartbroken. I loved that sweet little boy! I am so fortunate to have had a chance to know him. If you need absolutely ANYTHING, let me know. Gallatin County Elementary sends their love and prayers.
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
Warsaw, KY - Tuesday, May 19, 2009 9:01 AM CDT
All our love and all our prayers. Our hearts are breaking.
Tom & Laura Catanzarite <lcatanzari@aol.com>
Wooster, OH - Monday, May 18, 2009 10:22 PM CDT
Many, many prayers are being sent your way. Please know that Andrew has touched many lives. Ones that have not even personally met him, but have followed him through his web-site. He is certainly a fighter, and an inspiration to so many.
Your family will continue to be in our prayers.

Traci Bosch
www.caringbridge.org/mi/danielbosch

Traci Bosch <Tbosch@perrigo.com>
- Monday, May 18, 2009 2:46 PM CDT
Many, many prayers are being sent your way. Please know that Andrew has touched many lives. Ones that have not even personally met him, but have followed him through his web-site. He is certainly a fighter, and an inspiration to so many.
Your family will continue to be in our prayers.

Traci Bosch
www.caringbridge.org/mi/danielbosch

Traci Bosch <Tbosch@perrigo.com>
- Monday, May 18, 2009 2:45 PM CDT
I'm praying for you Andrew, and for your precious family too.
Kelly Hollingsworth (Izzy Jurado's teacher) <kellyholly03@yahoo.com>
Rock Hill, SC - Monday, May 18, 2009 1:21 PM CDT
Hello,
My heart and prayers go out for you, Andrew and the rest of the family! At this time let's all reach out to God in prayer:

1 O God, you are my God,
earnestly I seek you;
my soul thirsts for you,
my body longs for you,
in a dry and weary land
where there is no water.

2 I have seen you in the sanctuary
and beheld your power and your glory.
3 Because your love is better than life,
my lips will glorify you.
4 I will praise you as long as I live,
and in your name I will lift up my hands.

Psalms 63:1-4 (NIV)


Carl Alleyne <hiphopempowerment@gmail.com>
Boston, MA USA - Monday, May 18, 2009 6:09 AM CDT
Don't Grieve For Me.
Author Unknown

Don't Grieve for me, for now I am free
I am following the path God laid for me,
I took his hand when I heard him call,
I turned my back and left it all.

I could not stay another day,
to laugh, ot love, to work or play,
Tasks left undone must stay that way,
I found that place at the close of the day,

If my parting has left a void,
Then fill it with remembered joy,
A friendship shared, a laugh, a kiss,
Ah, yes, these things, I too will miss.

Be not burdened with times of sorrow,
I wish you the sunshine of tomorrow,
My life's been full, I savored much,
Good friends, good times, a loved one's touch.

Perhaps my time seemed all to brief,
Don't lengthen it now with undue grief,
Lift your heart up and share with me,
God wanted me now, He set me free.

Many Prayers for Andrew. I am sorry that you all are having to go through this, I cannot imagine how hard the loss is going to be on the family. Andrew's wings will shine bright when he goes home to God, and he will be in peace and he will be free.

Andrew has given something special to my family, by just knowing him from afar. He has touched my heart, and I will forever hold a piece of him in my heart. Sendign you guys many hugs and praying that Andrew goes home to God painlessly and peacefully.


Selly Maddox-Adams <maddox83@yahoo.com>
Amarillo, TX USA - Monday, May 18, 2009 4:54 AM CDT
Our thoughts and prayers are with you at this time. We pray that Andrew is pain free. We share your pain. May it help to know that others do care.
Trish Dennis <prand1@optusnet.com.au>
Sydney , NSW Australia - Monday, May 18, 2009 1:36 AM CDT
Lifting you all in prayer and praying that you feel peace and comfort from above during this difficult time. I pray for Andrew to be pain free and to be as comfortable as possible. Please know that my heart and prayers are with you and your family.
God be with you all~
Jan aka Mimi to ^Makayla^ and Hailey ~ MPS 1

Jan Chapdelaine <jannyjo@cox.net>
Virginia Beach, VA - Monday, May 18, 2009 0:33 AM CDT
Paulina, thinking of Andrew and your family during this painful time...know that Andrew is near my heart.
May the days ahead be filled with beautiful memories!

Take care,
Jamie, Mom to Jack MPS II
Jamie
Denver, CO - Sunday, May 17, 2009 9:02 PM CDT
I have been folloeing little Andrew for a few years now, and my heart is aching right now knowing that his time on earth is almost over. I find comfort in knowing that angels are watching over him as he prepares to make his grand entrance to everlasting life.

Karen and Tabby West <karenpuddn@comcast.net>
- Sunday, May 17, 2009 7:54 PM CDT
Prayers for you tonight and for peace for Andrew. You are in my thoughts and prayers.
Liz Hindson <lizcon@yahoo.com>
SC - Sunday, May 17, 2009 7:36 PM CDT
Alicia called me to update me. I am so so sorry. Praying that Andrew passes peacefully....you are all in my prayers
alyssa...godmother to Ciara, Hunter and ^Tommy^ <sabiemc@aol.com>
Chapel Hill, NC USA - Sunday, May 17, 2009 7:30 PM CDT
You are in our prayers every minute of everyday. Since Jared's Diagnosis you Andrew have been a hero to him. We love you even though we have never met. I wish you peace as well as your whole family. Love -REIA CONNOR
REIA CONNOR <LILPHUNK 2@AOL.COm>
SAUGUS , MA USA - Sunday, May 17, 2009 7:24 PM CDT
Thinking of you every day...Joanne, Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Sunday, May 17, 2009 5:09 PM CDT
From the Ulery family. We love Andrew each and everyday. Our thoughts and prayers go out to you all.
Jason Ulery <julery2@yahoo.com>
Florence, KY USA - Friday, May 15, 2009 10:30 AM CDT
Our families have fought different battles. The only thing I can say is that I'm sorry for all that is happening. I hope your journey is peaceful. Just show Andrew that everyone will miss him and the three of you will be ok. Whisper all the love and prayers to him and sing to him. I'm 10 min. away, call if you need too.
Teresa Perkins <teresa132@zoomtown.com>
Glencoe, ky usa - Friday, May 15, 2009 7:39 AM CDT
My heart and thoughts are with you Paulina at this terrible time. Praying that Andrew is painfree and peaceful.
Much Love
Ria
Ria <riaheap@aol.com>
UK - Friday, May 15, 2009 7:25 AM CDT
We are sending love!!!
Kelli Boni <rdhdtrue@yahoo.com>
- Friday, May 15, 2009 6:28 AM CDT


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Friday, May 15, 2009 1:34 AM CDT
I love the laughing clip...remember the jouyful laughter. Keeping you in my constant thoughts and prayers, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Thursday, May 14, 2009 10:02 PM CDT
My heart is breaking for you. You have given this precious baby the best life possible with enough love to fill 100 years of living.
leslie jurado <ijf@comporium.net>
- Thursday, May 14, 2009 8:01 PM CDT
Praying!

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Thursday, May 14, 2009 4:30 PM CDT
Paulina -my love and thoughts are with you and all the family -I pray you all especially Andrew have peace many Hugs Laura
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, May 14, 2009 2:10 PM CDT
My heart is breaking, Im sending you all my thoughts and prayers. I pray that Andrew's passing is as easy on everyone as it can be. I completly understand about you not wanting him to be in pain any longer. All of our kids have to endure such a hard life but yet they all some how remain to be happy. Stay strong....
Shawna
- Thursday, May 14, 2009 11:56 AM CDT
Continuing to send my love, my prayers, my HOPE for PEACE and comfort to all of you...k
karen, lindsey & hannah efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
albemarle, nc usa - Thursday, May 14, 2009 11:40 AM CDT
I'm one of Karen Efird's friends. I've heard her speak of your family several times. She asked for prayers for your family on Lindsey's page. It's hard to think of comforting words at a time like this. May God be your comfort. May He wrap His arms around your family as well as Andrew. May Andrew be comforted in all ways. God bless you.
With love and prayers,
Missy
Missy Morgan <missy@rollinghillsgin.com>
New London, NC USA - Thursday, May 14, 2009 7:59 AM CDT
So sorry to hear about Andrew :o( My thoughts and prayers are with you as you walk this path.
Hugs,
Rebecca & Nathan MPSII
Rebecca
- Thursday, May 14, 2009 7:45 AM CDT
My heart aches, and I am praying for all of you. There are just no words beyond that right now.
Catherine Abernathy <cabernat@truvista.net>
Chester, SC - Thursday, May 14, 2009 7:01 AM CDT
My heart is breaking tonight...how I wish this was not the life you and Andrew were living. I cannot imagine your pain, your hopelessness, your grief...I am so deeply sorry. Five years ago I was told I had a couple months max with Lindsey and here we still are. I don't know why? I still wonder why? I planned her funeral seven years ago when she was diagnosed with MPS-IIIa (at age 4). I look at her tonight with a smile and tears streaming down my face because I know I could be in your shoes right now. I send you my love, my prayers, my hope...k
Karen, Lindsey and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, May 13, 2009 7:46 PM CDT
I just read your updates about andrew. My heart is breaking for you. I am so sorry your sweet angel and your family are going through this. I know the fear of losing your child but I do not know the reality of it, so all I can say is Im so sorry. I do not understand it! I do not think its fair that our children have been given this life. But i know that God must have a reason for it so I try to keep faith in that and I pray that you can do that too. I think that Andrew will have so many jewels on his crown in heaven. It will be so good for him to not hurt, walk, talk, run, laugh, and have fun like he always should have been able to. He will no longer have to suffer, but I know that you will. I just hope that these thoughts can maybe help you get through this some, but I know that if I was going through that right now that nothing said or done would help. I'm so sorry and if you need anything please dont hesitate to ask. I will keep saying prayers for Andrew! With love, Hali (from one mps mom to another)
Hali Bohannon <chickenhead617@bellsouth.net>
calhoun, ga Usa - Wednesday, May 13, 2009 2:26 PM CDT
Praying Paulina, many here in Albama are praying for you. I am so very sorry that this is happening. I am here for you.
Misty Luthcke <mluthcke@netzero.com>
- Wednesday, May 13, 2009 1:27 PM CDT
I wish I could help more, just want to wish all of you strength and peace, and no more pain. You're in my prayers.
Cathy B.
Toronto, Ontario Canada - Tuesday, May 12, 2009 10:29 PM CDT
My heart is breaking to read your latest update. Andrew has fought so long and hard. Please know that your family is constantly in my thoughts and prayers. I pray for peace and comfort for Andrew. Let me know if there is anything I can do for you guys. Hugs to all of you Paulina, Colin , Alex and Andrew.
Sharon, Patrick and Andrew Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Tuesday, May 12, 2009 9:38 PM CDT
So sorry to hear about what Andrew is experiencing. We will be praying for him and your family.

Sheri Sowden
Tyler and Ethan Sowden-MPS IIIA
Sheri Sowden <sherisowden@yahoo.com>
Auburn, MI USA - Tuesday, May 12, 2009 9:19 PM CDT
Keeping you all in my prayers. Peace to you.
Kim Piper, State Genetics Coordinator for Iowa <ksnrn@mchsi.com>
Des Moines, IA USA - Tuesday, May 12, 2009 5:53 PM CDT
WE LOVE YOU !!!!!!!!!!! PRAYING FOR YOU SWEET , DEAR ANDREW.
Stacey Montgomery <lewnstacey@yahoo.com>
Cedar Rapids, IA - Tuesday, May 12, 2009 4:10 PM CDT
Dear Paulina,

I am overwhelmed with grief reading this latest post. You are an amazing mother and an incredible person. Not a day goes by when you are not far from my mind. Joanne, Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Tuesday, May 12, 2009 12:59 AM CDT
Dearest Jump Family,
Know that you are loved, and being lifted before our Father in heaven by many. Longing to give you real in-person hugs. Praying for your comfort and peace and that you feel the presence of Jesus holding your family close. We love you, sweet Andrew!
All our love,

Debbie Vanderpool <djvpool@frontiernet.net>
Rochester, NY - Tuesday, May 12, 2009 11:36 AM CDT
Praying for Andrew and his entire family. :(
Jessica Wellman
Indiana USA - Tuesday, May 12, 2009 10:02 AM CDT
My heart is breaking for your family. You are all in my thoughts and prayers. No more pain Lord.

www.caringbridge.org/visit/calebwaddell
Kelly Waddell <kellywaddell@hotmail.com>
Southaven, MS USA - Tuesday, May 12, 2009 9:36 AM CDT
Paulina --

You, Colin, Alex and Andrew are in our constant thoughts and prayers. We've asked our family and friends to remember Andrew and each of you during this difficult time. May you all find peace and comfort in knowing your family is being brought before the Lord by so many.

I wish there was something more I could do for you ... But know that, although we've never met, I do think of your family often!

With Love,
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Tuesday, May 12, 2009 9:06 AM CDT
Hugs Paulina, and sending the gentlest of hugs for Andrew. He has fought so hard, and so have you, I cannot imagine how you feel. I am praying for the gentlest and most pain free time left here on earth, know that sweet Andrew is loved by so many of us.
Erica T. www.caringbridge.org/wi/ericathiel <erica.thiel@charter.net>
Juneau, WI - Monday, May 11, 2009 11:53 PM CDT
Hi Paulina.
Just read your Journal entry and my heart broke knowing your pain. i am in tears. All i can say right now that you, Colin and Andrew are in my thoughts and prayers.
((((((HUGS))))))
Tayyaba Beg <Tayyaba@helpourgirls.com >
NJ - Monday, May 11, 2009 10:38 PM CDT
Sending all our love and prayers to you and Andrew. We are heart broken to hear the latest update. Please know that we are thinking about you.
Love Trish & Rhys(MPS1), www.caringbridge.org/visit/rhysboyd
Trish Boyd <boyd.trish@gmail.com>
Kendal, Ontario Canada - Monday, May 11, 2009 10:34 PM CDT
we are so heartbroken to read the last journal entry. we are praying that andrew will be pain free and that your time together will be peacefull. andrew is truely a very special boy with very loving family. you will all be in our thoughts and prayers.
krista burkett <kjlngb6166@hotmail.com>
fort riley, ks usa - Monday, May 11, 2009 9:51 PM CDT
I don't know what to say to ease this pain and sadness that you are feeling. Just know that our family too, is praying for peace and reassurance during this time. We are praying for pain free days for Andrew. You have worked so very hard to be the best advocate and voice for Andrew. You are wonderful, loving parents. And hearts all over are breaking with yours.
Amanda New <anewteacher08@yahoo.com>
- Monday, May 11, 2009 9:10 PM CDT
Paulina, wow I have no words for you, just a bunch of thoughts...of peace and love filled with tears. May Andrew be pain free as he spreads his wings and flies. Take care during this difficult time.
Jamie Fowler, Mom to Jack MPS II
Denver, CI USA - Monday, May 11, 2009 9:02 PM CDT
I just can't stop crying. I am praying for all of you to find peace in comfort in this horrible unfair world of MPS. Sorry doesn't seem like enough please know I am heart broken for you.
All of our LOVE,
Donna Kay and Tyler
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA usa - Monday, May 11, 2009 4:31 PM CDT
Praying so very hard for you all right now....my heart is breaking for you
alyssa...godmother to Ciara, Hunter and ^Tommy^ <sabiemc@aol.com>
Chapel Hill, NC USA - Monday, May 11, 2009 2:38 PM CDT
Forgive me for not writing in sooo long. I check in frequently, but not enough time in the days.

I'm so sorry Andrew is having discomfort and long sleeping spells. I know you miss the real Andrew, as I do my Lindsey.

Please know I hope Andrew receives peace and comfort soon, and most of all has wide open peepers and smiles for you soon.

My love and prayers to you...Happy Mother's Day!
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/visit/LindseyLu>
Albemarle, NC USA - Sunday, May 10, 2009 4:56 PM CDT
just want to let u know im praying for andrews comfort
theresa hinkelman (anthony hudson mom 11/18/90-3/12/05 <tnthudfl@aol.com>
new smyrna beach, fl usa - Thursday, May 7, 2009 1:48 PM CDT
Paulina and family,
Just wanted to add our prayers to the many folks who are praying for ya'll during this difficult time. May the concern and love of so many bring you strength and encouragement.

Much love to you all,
Ed and Cleta Burns
Cleta Burns <cletaburns40468@gmail.com>
Perryville, KY USA - Thursday, May 7, 2009 10:20 AM CDT
You and Andrew are so often in my thoughts and prayers. Thanks so much for updating, although I know it must hurt. Hugs to you all from us in Switzerland.
Elizabeth Schuepbach
Bern, Switzerland - Tuesday, May 5, 2009 2:34 PM CDT
Hi, Paulina! Just stopping by to check in on your family. You guys are in our constant thoughts and prayers! Hugs to you all ...
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Saturday, May 2, 2009 8:59 PM CDT
Just stopped by to check on Andrew and the family. Praying for strength and guidance thru this difficult time.

Anne <acealotts@yahoo.com>
Traverse City , MI - Thursday, April 30, 2009 9:20 AM CDT
Paulina,
I've been struggling for a while, trying to find the right words to say to you. I am heartbroken to hear about Andrew. Please know that all of you are always in my thoughts and prayers.
-Robin and Logan (MPS II)
Robin Piefer
Oneonta, NY - Thursday, April 30, 2009 8:09 AM CDT
(((Paulina))), Sending many prayers your way, My heart breaks for all of you :~(
Therese, Danielle, ^^Sara^^ <trid2b4@sbcglobal.net>
Morris, IL USA - Tuesday, April 28, 2009 9:30 AM CDT
Paulina,I am happy to hear that your back is not bothering you as much as you expected and pray that you will soon have permanent relief. Andrew has been on my mind so often lately, but especially now as Izzy's Legacy 5K quickly approaches. Even though Andrew will not physically be at the race, I assure you that he and all our precious Sanfilippo babies will be present in our hearts and in our prayers next Saturday. Although I know that the likelihood of a cure or effective treatment in Izzy and Andrew's lifespan is not there, I have hope that there will be a day when this ugly disease has been eliminated. Love to all of you.
Cathy Abernathy <cabernat@truvista.net>
Chester, SC 29706 - Sunday, April 26, 2009 4:43 PM CDT
Paulina, keeping you all in my prayers. Praying desperatly for Andrew to be pain free, Misty
Misty Luthcke <mluthcke@netzero.com>
- Sunday, April 26, 2009 4:24 PM CDT
we're so sorry to hear about and health prombles , please beware you;all are in our thought and paryers
kathy & johnny griffin <kathy.griffin@insightbb.com>
burlington, KY United States - Sunday, April 26, 2009 10:54 AM CDT
I've been meaning to get in touch with y'all for so long...I apologize. I'm so sorry to hear about all of Andrews health issues. I wish we knew what to do for our kids, wish the drs knew...please know as I sit here and take care of Lindsey, I think of you and your family - and all MPS kids who are deteriorating. I send you my love, thoughts and prayers - and especially hope for comfort for Andrew.
Karen Lindsey (MPS-IIIa) and Hannah Efird <www.caringbridge.org/visit/lindseylu (and) efirds4mps@ctc.net>
Albemarle, NC USA - Saturday, April 25, 2009 10:01 PM CDT
Thinking of you and your family often these days, Paulina.
Sarah White, Mom to Gracie MPS 1-H <skellyrealtor@gmail.com>
Lake City, FL - Saturday, April 25, 2009 5:09 PM CDT
Paulina --

Just stopping by to check on Andrew. Your family will continue to be in our prayers.
Mieke Embry (Mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Tuesday, April 21, 2009 5:26 PM CDT
So sorry to read that Andrew has been having such problems. Praying for his comfort. I hope that you get some relief with your back. Keeping you all in my thoughts, Misty
Misty Luthcke <mluthcke@netzero.com>
- Sunday, April 19, 2009 2:37 PM CDT
Praying for you and your friends family, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Saturday, April 4, 2009 10:22 AM CDT
Paulina, I am so so incredibly saddened to read your post about Andrew. I wish I had words that could offer you comfort now. Joanne, Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Thursday, April 2, 2009 12:14 AM CDT
I just read your blog......There are no words to express how my heart breaks for you right now....I will pray for Jehovah God to give you and your family the strength to get through this most difficult time. I hope that Andrew does not have to be in any more pain. Andrew is now in Jehovah's hands............
Gina Gonsalves <gina_gonsalves@verizon.net>
Laurel, MD USA - Monday, March 30, 2009 5:15 PM CDT
Praying for you all, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Thursday, March 26, 2009 10:11 PM CDT
we want you to know that we think of you often and that all of you are constantly in our hearts and prayers. Give Andrew a hug for us. We miss you guys. The Catanzarites, TJ, Tom, Laura, Anthony & Sarah
Tom Catanzarite <tomcattz@aol.com>
Wooster, OH USA - Thursday, March 26, 2009 2:56 PM CDT
J ust want to tell you that you and Andrew are in our prayers now more than ever before. It pains me very much so much to know what he and you are enduring. I have such a soft spot for Andrew. May the Lord lift you up and fold you in his loving arms.
Elizabeth Schuepbach
Bern, Switzerland - Thursday, March 26, 2009 3:25 AM CDT
I just wanted you guys to know I am thinking about you and you are in my prayers.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Wednesday, March 25, 2009 9:58 PM CDT
oh we are all thinking of you Superman. We love you so much!!!!
Jill Valdez <valdezjill@hotmail.com>
Oshkosh, WI - Wednesday, March 25, 2009 8:37 PM CDT
I am so sorry to hear about Andrew,it brings tears to my eyes. We will be praying for him and your family.


Sheri Sowden
Tyler and Ethan Sowden(MPS III-A)
Sheri Sowden <sherisowden@yahoo.com>
Auburn, MI USA - Wednesday, March 25, 2009 6:39 PM CDT
MY HEART IS BREAKING... PRAYING FOR YOU .....THINKING OF YOU...

STACEY AND LUCAS

STACEY MONTGOMERY <LEWNSTACEY@AOL.COM>
CEDAR RAPIDS, IA 52404 - Wednesday, March 25, 2009 6:24 PM CDT
Paulina --
I am so saddened to read your journal. We'll be thinking of you all and will keep your family in our prayers!
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/visit/lukeembry <embry10198@windstream.net>
Moody, AL USA - Wednesday, March 25, 2009 1:03 PM CDT
(((Paulina))) Oh God, I have no words but to say I'm so so sorry..:(:(..It just broke my heart to read your entry, Many many prayers for all of you, especially for your sweet Superman ...I HATE MPS...sob!!!
Therese, Danielle & ^^Sara^^ <trid2b4@sbcglobal.net>
Morris, IL USA - Tuesday, March 24, 2009 10:24 PM CDT
Keeping your family in my thoughts and prayers.
Kathy Blackwelder <jkmm@comporium.net>
Rock Hill , SC - Tuesday, March 24, 2009 9:39 AM CDT
Paulina, my heart goes out to you, Alex, Colin, and Andrew. May those who love and care for you all be there to support you. My thoughts and prayers are with you all.
Susan Reehill <susanatcreativecountertops@msn.com>
- Monday, March 23, 2009 11:52 AM CDT
My heart is breaking for you all....
alyssa...www.caringbridge.org/ca/bennettboys (my godchildren) <sabiemc@aol.com>
Chapel Hill, NC USA - Monday, March 23, 2009 10:28 AM CDT
Paulina,
I'm thinking about you and praying for all of you.
Much love,
Leslie
Leslie Phillips <philla5@wfu.edu>
Winston-Salem, NC USA - Monday, March 23, 2009 9:12 AM CDT
Paulina, thank you for the update. I been thinking of you all every day and praying that your meeting with the hospice team would bring you a little more peace of mind as you mentally and emotionally prepare yourselves for the days ahead. Love to all of you.
Cathy Abernathy <cabernat@truvista.net>
Chester, SC - Monday, March 23, 2009 8:57 AM CDT
Andrew is one of God's most priceless presents. I believe God loaned Andrew to you because of your caring, loving hearts. He is now preparing a wonderful place for Andrew so He can be with him forever. John 14:2 says "In my Father's house are many rooms. If it were not so I would have told you. I go there to prepare a place for you." God needed someone to take care of His prized possession just long enough to prepare this wonderful place for him.
Ona Garrison <ona_rae@yahoo.com>
Florence, KY 41042 - Monday, March 23, 2009 8:03 AM CDT
Paulina ~ tears are literlly just falling from my eyes after reading this. I don't really know what to say except that Andrew and your familiy are in my thoughts and prayers.
Penny <journalist2005@yahoo.com>
Lakewood, wa - Sunday, March 22, 2009 12:38 AM CDT
We are praying for you. I don't have any words to say to ease the pain that you are going through. I can't imagine that I would be feeling any differently than you are at this moment. We will continue to pray for your strength and for Andrew's peace and no pain.

The New Family <anewteacher08@yahoo.com>
- Friday, March 20, 2009 9:43 PM CDT
Hello Jumps,

I had not checked out the webpage in a while and was saddened to see the recent decline. I cannot comprehend how you must be feeling. I can only offer you my assurance that I will pray for you all every day. My friend's mother, who passed after a long battle with illness, said that death is the ultimate healing. I know it is not what any of us wants to think about but I found those words comforting. I am not sure how you will say goodbye, but I have to believe that God is with Drew all the time now and Drew will take His hand when he is ready.
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
- Friday, March 20, 2009 12:12 AM CDT
Paulina, my chest literally aches after reading your post. I so wish there were some words of wisdom or scripture that I could offer up to you to make this nightmare easier to endure. However, I know that surely there is no earthly salve to ease the pain of what you and Colin are facing. You look into the face of this precious treasure that is Andrew, and how could you ever want to let him go? My prayer is that when that time comes you will feel all the love that God and so many people have for your family and that a peace will settle over you knowing that Andrew is in a place where there no pain, just love.
Cathy Abernathy <cabernat@truvista.net>
Chester, SC - Wednesday, March 18, 2009 5:28 PM CDT
You are in our prayers.

Sheri Sowden
Tyler and Ethan MPS III_A
Sheri Sowden <sherisowden@yahoo.com>
Auburn, MI USA - Wednesday, March 18, 2009 3:18 PM CDT
I am so sorry to hear about Andrews decline, my thoughts & prayers are with Andrew & your family.
Missa
Kalamazoo, - Wednesday, March 18, 2009 7:04 AM CDT


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, March 17, 2009 7:46 PM CDT
My thoughts are so much with you and your family. I am a hospice cna and have helped lots of families in there time of need. The hardest part of my job was caring for the young ones and their famlies. One family I think about the most, was the family of a young lady 20 yrs (lung cancer)who lost her battle. The parents told me that yes it is very sad to lose her but God has plans for her and hes taking her home. It was a great lost for them and their family when she passed, but such a big honor for God to have her home, such a happy, charming, beautiful angel has come back home to him. So you see they told me that they didn't lose her, they were blessed to have had her be part of their lives. Eventhough she was only with them for a breif time, she had touched everyone with her love. She will always be in their hearts and their thoughts. For when it was time for them to go home to God she will be there to greet them. That was ten years ago and when I have to go to a family that needs me, I tell them that God needs his angel home but not to feel like its a lost but to feel like you have been blessed with one of his angels and that angel will always be with them forever. I'm so sorry for your lost but be strong and God bless you all.
Joanne <joanne00350@yahoo.com>
Wilmington, MA U S A - Sunday, March 15, 2009 2:53 PM CDT
Paulina,
I'm so sorry that Andrew is suffering. I hope the hospice doctor can give you help and guidance as you love Andrew through this hard time. I am thinking of you and sending you strength.


Laura Thorsrud <laura.thorsrud@gmail.com>
Decatur, GA United States - Sunday, March 15, 2009 10:52 AM CDT
Paulina,
I am sorry you are having to go through this pain. Words cannot take it way I know. Just know that we do think of you and Andrew daily, and you are always in our prayers. I pray that Andrew can be kept in comfort for however long he has left on this earth and that he doesn't have to be in pain anymore. XOXOXOXOX. I know that you are doing all that you can for him and he knows that too!!
Love,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Sunday, March 15, 2009 10:04 AM CDT
With all my heart & soul I wish I could spare your son his pain. Life is so unfair, especially when it comes to seeing children suffer. You, your son & family will always be in my prayers! Your Friend Always! You have my email now & know how to reach me on myspace... anytime you need a friend!
Susann Kutschenreuter <mrs.jdk1983@yahoo.com>
Gadsden, AL USA - Saturday, March 14, 2009 7:03 PM CDT
Paulina,
I am thinking of you and Andrew and I send my thoughts and prayers...
Love,
Donna Kay and Tyler
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA usa - Friday, March 13, 2009 2:54 PM CDT
Paulina,I hear you are having a hard time again .Ronald keeps me informed of whats going on with Andrew .I try to read as much as I can but my P.C. IS not working very well .Ron Smith is coming hear tonight to work on this thing .I go to church with a friend of your's I think... Her name is Tammy Mitchell. I didn't think there was people left like her she is as sweet as she can be.if you need me please call I don't want to be a worry wart ,you have enough on your plate SO I will say a EXTRA BIG PRAYER TONIGHT JUST FOR YOUR FAMILY, so you take care, an we WILL talk to you soon .
love you kiddo
Connie an Ronnie Haarman
CONNIE HAARMAN <seajay1@fuse .net>
Flornce, ky. u.s.a. - Wednesday, March 11, 2009 4:47 PM CDT
Thinking of all of you, Sending Big Hugs and many prayers your way
Therese, Danielle & ^^Sara^^ <trid2b4@sbcglobal.net>
Morris, IL USA - Wednesday, March 11, 2009 9:19 AM CDT
Hi Paulina, I just wanted to say hello and let you know I'm thinking of you and Andrew today. I am sorry that you both are having to endure so much. Many well wishes being sent your way. Joanne~Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Sunday, March 8, 2009 7:43 PM CDT
Paulina,
I was looking at your site this morning - just before you were looking at ours! I'm so sorry that Andrew is not doing well. We should chat sometime. I'd love your insight into helping siblings. I have an Alex, too! He's in 3rd grade.
Laura Thorsrud <laura.thorsrud@gmail.com>
Decatur, GA United States - Wednesday, March 4, 2009 12:09 AM CST
Hi Paulina,I was just going thru my email and came across this. i think I've seen it before but it will always be well worth another visit.I will keep your family in my thoughts and prayers. Love you Michele
michele <mlpeterson62@yahoo.com>
Florence, Ky USA - Monday, March 2, 2009 6:03 PM CST


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 28, 2009 8:50 PM CST
Praying for you all. I am so very sorry that Andrew is having such a difficult time, Misty
Misty Luthcke <mluthcke@netzero.com>
- Wednesday, February 25, 2009 12:44 AM CST


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, February 14, 2009 3:02 AM CST
Thoughts, prayers and support for you always.
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, pa us - Thursday, January 29, 2009 11:31 AM CST
Oh Paulina, I am so sorry to hear about Andrew's troubles. My thoughts and prayers are with you and your family.
Penny & Hannah Banana/ www.caringbridge.org/visit/hannahbanana4 <journalist2005@yahoo.com>
Lakewood, WA USA - Friday, January 23, 2009 10:38 PM CST
Paulina, I am so very sorry for Andrews recent problems. Maybe he is just tired from the pain that when he isn't in pain he catches up on sleep. I am so sorry to read about Collins Dad, please send him my prayers. Know that you are in my thoughts and prayers, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Friday, January 23, 2009 8:41 PM CST
Paulina, I am so sorry to read all of this about Andrew. I am at such a loss for words. It makes me so sad to think of him sleeping so much. Sometimes with Sasha I see a bad phase and then things can plateu, and so hopefully after he makes it through this spell, he will perk up again. Joanne, Mome to Sasha
Joanne <joannehff@yahoo.com>
Warren, NH USA - Thursday, January 22, 2009 6:19 PM CST
Happy New Year! I hope that the seizure activity that Andrew experienced will stop, hopefully you can adjust the meds and stop them. Praying for you all, Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Saturday, January 10, 2009 5:58 PM CST
MyHotComments.com
MyHotComments
hi guys sorry i havent been by in a while to check on you guys.its just hard to do sometimes i just really miss katilynn and sometimes its just easier not to go to the caringbridge site im sorry i hope andrew get well soon hugs kathy
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, KY USA - Tuesday, January 6, 2009 4:35 PM CST
I am so sorry to hear about Andrews siezure. I am not to familier with that area, but I am sure it mus have been scary for you. I hope your year gets better. You and your family are in my thoughts and prayers.

Take care and God Bless!

www.caringbridge.org/visit/hannahbanana4
Penny <journalist2005@yahoo.com>
Lakewood, wa usa - Sunday, January 4, 2009 3:00 AM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Wednesday, December 31, 2008 8:28 PM CST
I hope you all had a wonderful day! Merry Christmas, Misty
Misty Luthcke <mluthcke@netzero.com>
- Thursday, December 25, 2008 11:06 PM CST


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, December 23, 2008 9:53 AM CST
Paulina, I am so sorry that Andrews seizures are becoming so frequent. I do hope and pray that his bed has been delivered. Praying that you all have a Happy Holiday. With Love, Misty, Mom to Will www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Monday, December 15, 2008 5:03 PM CST
Paulina((HUGS)),Many prayers for Andrew, and all of you.I do hope Andrew gets his new bed. He certainly deserves it after all he's been through :( I will be thinking of you during this holiday season and may many blessing's come your way..GOD BLESS
Therese, ^^Sara^^ & Danielle <trid2b4@sbcglobal.net>
Morris, IL USA - Wednesday, December 10, 2008 9:27 AM CST
Paulina, I am so sorry to know that Andrews GI problems are still problems. I am so sorry for the sadness during the holidays, or anytime. Our children should not suffer so. I hope that you can get your back troubles under control. There is no rest for a Mother. Please know that you and your family are in my prayers. Misty, mom to Will, www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Saturday, November 29, 2008 5:07 PM CST

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, November 27, 2008 7:16 AM CST
Hi Paulina, I thought I'd check in on Andrew and you all and feel just so heartbroken after reading your latest journal entry. I hope there is a bright spot in your holiday season amongst the sadness. Joanne, Mom to Sasha
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Wednesday, November 19, 2008 3:50 PM CST
I'm another MPS mom,and I wanted to say that you're all in my prayers.
When times get tough just know you have so many people praying for your family.
Take care,
Amanda Green
Amanda <iluv63099@aol.com>
Orange Park, FL USA - Tuesday, November 18, 2008 4:07 PM CST
Paulina
The strength you have inspires many. Your family is in my thoughts and prayers.
Susan Clarke-Reehill <susanatcreativecountertops@msn.com>
Florence , KY 41042 - Tuesday, November 11, 2008 2:54 PM CST
Hey we met on the mps forum, i thought i would check out your site. Great to hear Andrew is doing good right now.I cannot imagine how hard this must be, it breaks my heart to see how much mps effects our children in so many ways. When we get over one hurdle another just pops right up. Know that you are not alone, hugs to your beautiful Andrew, God Bless you all and i will keep you in my prayers. I do hope your back heals fast and that the nurses job comes through, who better qualified for that job, then a family member, eh? Sending you a shamrock of Irish luck.. God Bless
Geraldine Smyth <geraldinesmyth@gmail.com>
Galway, Ireland - Sunday, November 9, 2008 10:30 AM CST

Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Friday, October 31, 2008 6:45 PM CDT
I know I signed earlier but I wanted to tell you from one MPS/ML mom to another MPS/ML mom that I totally relate to the back problems. As you already know, I have three herniated discs and have for 3 years now. Unfortunately, I have tried the gammut of therapies and I pray that the shots will help relieve some of your discomfort but I do want to add that for the same reasons I have not had surgery, you probably should not either. We are the sole caregivers (most of the time)for these boys and even if in this great day in age, what great day right, they are not any closer to pefecting spine surgeries and once you have one, odds are you'll keep needing more and more so don't hurry into anything surgical right away. Try PT, a chiropracter and shots before anything more serious. My cousin is an ortho surgeon and he was here last week and still thinks I'm better off without surgery. The medication did not work for me either, it made things worse by disguising the pain and then I would do more than I should have. Now that I don't take anything, I know when I absolutely can not pick up Zachie any more in a day and within a few days, I can grunt through it again. It is not better, but I can handle the pain. With all this said, I truly pray that yours is different and will be helped with some kind of therapy but knowing all I know and being a mom like you, I know you'd rather hear the truth than fluff so try all the other options FIRST!! I say all of this with only love and your best interest at heart, I know how very much you care for Andrew both emotionally and PHYSICALLY. It's more than a lot and it has definitely taken its toll on your body. Mine too but I would much rather deal with the pain than NOT be able to take care of him for one day. Its all I can give him so I do. I love you and hope that you find something that helps!!! HUGS!!!
Brenda Haggett, I-Cell/ML mom to Zachie <jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY usa - Thursday, October 30, 2008 3:45 PM CDT
OMG, Paulina, I just said the very same thing. The little things that everyone takes for granted are the most beautiful moments for us!! A Haircut by someone who actually gets it and is patient and understanding!! He looks as Dashing as Superman should!!! I hope that you now have some more answers as far as his kidney issue. Andrew has been through so much and he still keeps on going and fighting like a true hero does. We send our prayers daily and pray for his continued comfort, yours too mama!!! :-)
Brenda Haggett, I-Cell/ML mom to Zachie <jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, NY usa - Thursday, October 30, 2008 8:58 AM CDT
I think of you all often...I love the homepage photo - how handsome and sweet he still looks!!! My thoughts, prayers and love to each of you,
Karen Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, October 27, 2008 9:43 PM CDT
Paulina, I come here from time to time to check on sweet Andrew. I am so sorry about him having seizures on his birthday. I understand the emotions you felt with his haircut completely. And yes, he sure does look SO handsome. Big hugs to you and your family. Joanne, Mom to Sasha (MPS IIIA)
Joanne <joannehff@yahoo.com>
Warren, NH USA - Wednesday, October 22, 2008 1:04 PM CDT
Pauline, It's been a while since I have wrote to you. I am sorry to read on your myspace about your back. I miss my back and cant imagine how bad it's gonna get as these kids grow! Andrew is sooo handsome and I am proud of the little touper. Love to you all and i will email you an update on my kids another time.
Love, Valerie Barnett
Mom to Stef and Stevie (MPS IIIA)
Valerie Barnett <val429@gmail.com>
Bloomington, IL USA - Tuesday, October 21, 2008 8:41 PM CDT
Wow, the haircut is just gorgeous! (I like the tartan trousers too. Very cool). I'm sorry Andrew's birthday was marred with seizures. I do hope he can make up for it by having a long drawn out birthday with small celebrations over many days. Hope Alex's birthday was fun.
Always thinking about Andrew's difficulties and praying for him often.
Big hugs,
Elizabeth, Peter, Daniel, Sam, Anna

http://www.caringbridge.org/visit/danielschuepbach
Elizabeth Schuepbach
Bern, Switzerland - Thursday, October 16, 2008 12:55 AM CDT
I hope Andrew is feeling better soon and our thoughts and prayers will be with you at your kidney appt. His haircut makes him look so handsome, she did a great job. Clara says hi to Andrew. We went 8 days without electric due to IKE and Clara really needed her TV. Miss you guys I was hoping to see you Sat at Andrew C.'s walk but I understand.
jenifer gibson <jenifer@cinci.rr.com>
wilmington, oh usa - Tuesday, October 14, 2008 7:38 PM CDT
(((Paulina))) many hugs and prayers for all of you..Andrew does indeed look handsome with his new haircut xoxox..Will be praying that his Kidney appointment goes well.
Therese, Danielle & ^Sara^ <TRID2B4@SBCGLOBAL.NET>
Morris, Il USA - Tuesday, October 14, 2008 9:21 AM CDT
Photobucket
We hope Superman Andrew had a great birthday!
Hugs and Much Love,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Friday, October 10, 2008 10:50 PM CDT
My love and prayers for healing this hurdle...
Karen Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, October 10, 2008 6:57 PM CDT
Dear Pualina.
I am sorry to know Andrew's recent condition. I hope you can able to find him the bed that can provide him some comfort. Abeerah lays in bed most of the time now and get sore back. I know how hard for parent to watch their children suffer. Praying for Andrew's comfort and parent's strength.
Lot of love and (((HUGS)))your way.

Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Sunday, October 5, 2008 3:38 PM CDT
Praying you can find that bed for Andrew! I know some of the families have gotten private organizations to buy sleep number beds and temper-pedic beds on a frame similar to the hospital beds for the kids. I do think our medical pharmacy carries the temper-pedic. I will check next week to see who it is that they do it through. I know they will order in items many items for customers, even if they do not deal with these items regularly.
We are always thinking and praying for you all.
Love,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Sunday, September 28, 2008 7:24 AM CDT
Hi, I was unaware of your recent struggles. I am very sorry for you all. As always you will be in our prayers.Misty www.miracle4will.com
Misty Luthcke <mluthcke@netzero.com>
- Monday, September 22, 2008 10:15 AM CDT
Dear Paulina
I have two children twins with Sanfilipo Syndrome Eduardo 08-08-85 he died last November 26 2007, he is now an angel in heaven, and Maria Esperanza 08-08-85 is now 23 year old, God has truly blessed us and my prayers are that he will continue to bless you and your son.
Love
Lorena Ubilla <lopacu@hotmail.com>
NICARAGUA, - Sunday, September 21, 2008 10:11 PM CDT
Alex told me you guys had no power yesterday! Just wanted to check in and make sure you all made it through the "hurricane" on Sunday.
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
- Tuesday, September 16, 2008 2:06 PM CDT
Hey guys just wanted to let you know I will always be here for you guys forever and always you are my heroes give Andwew and Alex a kiss for me!!!!
NIKI <nikiandgang@insightbb.com>
- Wednesday, September 10, 2008 12:44 AM CDT
I'm sending my prayers to Andrew and I hope he recovers soon!

Mom to Sabrina MPS IIIB 9 y.o. 8/31/99
Luella Gabriel <lalagabriel@sbcglobal.net>
Fairfield, CA - Wednesday, September 10, 2008 2:52 AM CDT
My daughter Sara (2/6/1991) has Sanifilpo Syndrome also. We are looking forward to her 18th birthday! GOd has truly blessed us and my prayers are that he will continue to bless you and your beautiful son!
Kathy & Loren Anderson <a4mps@aol.com>
Duluth, Mn USA - Monday, September 8, 2008 6:54 PM CDT
Hi Paulina
I just wanted to check up on Andrew...I am so happy that he is feeling better. I hope you find some answers for the sleepless nights and if you do please share the info! It's 4 am here and Scotty and I have been up since 2:30. I pray that Andrew's medical team is able to brainstorm on a new care plan for him.
Many Hugs,
Kim & Scotty www.caringbridge.org/ca/friends <cottons@earthlink.net>
modesto, ca - Saturday, September 6, 2008 6:13 AM CDT
Hi Paulina, Just dropping by to check to see how Andrew is doing :( So sorry to hear that he is still so uncomfortable..Still praying hard for him and all of you xoxox...God Bless..
Therese, ^Sara^ & Danielle..MPS Forum <Trid2b4@sbcglobal.net>
Morris, Il USA - Tuesday, September 2, 2008 9:26 AM CDT

Christian Glitter by www.christianglitter.com

please know that your family is in my prayers and that i hope that andrew gets well very fast and that he can tolarate his feeds and that his blood pressure goes back to where it suppose to be hang in there hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky USA - Monday, September 1, 2008 0:34 AM CDT
Hey, just wanted to check in. With school starting, it has gotten really hectic. I see Alex all the time-- he seems very happy in his new classroom. I was glad to hear that Andrew's wound is healing well. Hopefully, he can start eating better.
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
- Friday, August 22, 2008 9:56 AM CDT
So glad to hear that Andrew is healing better. Hopefully you can find ways to manage SIADH that is suitable for Andrew, and get control of those seizures. Every time I see new pics of Alex, it just makes me smile! He is growing up so quick!!
Continuing prayers for Andrew and your family,
Love and hugs,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Tuesday, August 19, 2008 6:14 AM CDT
Comment Buddy
MySpace Hello Comments
MySpace Comments

Melissa Mann <mann1015@hotmail.com>
- Sunday, August 17, 2008 8:40 AM CDT
coming by to let you know that i am thinking of you guys and praying for you all hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, July 25, 2008 10:58 PM CDT
I AM GLAD TO HERE ANDREW IS HOME AN I HOPE HE IS FELLING BETTER YOU ARE IN MY PRAYERS ALL THE TIME AN I TRY TO KEEP THE CHURCH WITH UP DATES AS MUCH AS POSSIBLE SO YOU KNOW EVERYONE IS PRAYING FOR YOU AN THE CHILDREN SO HANG IN THERE GOD LOVES YOU AN SO DO WE
GOD BLESS YOU
CONNIE AN RONNIE HAARMAN
CONNIE HAARMAN <SEAJAY1@FUSE.NET>
Florence, Ky U.S. - Friday, July 25, 2008 9:27 PM CDT
May our God Almighty guide the hospital staff today and afterwards for a successful surgery and speedy recovery. I pray Andrew receives much needed and deserved relief. I love y'all...
Karen Lindsey (MPS-IIIa) and Hannah <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, July 23, 2008 9:30 AM CDT
Dear Paulina and family,

I just read that Andrew is going into surgery today, I hope all goes well. What a relief this will be for you all when this is behind you. Praying that Andrew does super well today and is home soon!!
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Wednesday, July 23, 2008 5:20 AM CDT

MySpace Graphics & MySpace Layouts

hey guys wanted to let you know that you guys are in our prayer hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, July 22, 2008 9:56 PM CDT
Hi Paulina & Andrew, just stopping by to say 'Hi'!! Hope all goes well for Andrew's surgery on Tuesday, sending loads & loads of love & hugs,
Louise & Georgia
xxxx
louise lewis (mum to Georgia) <lou_loo@msn.com>
chepstow, uk - Saturday, July 12, 2008 6:12 PM CDT
I wish you all the best of luck,hope things are going well for you,my daughter also has MPS3 and is now 18 years old,about 4 years ago was doing the same thing,and is now under control,wit Dilantin,Phenaborbitol,and Valium,email me if you need to know more information.good luck
Isabella Rodrigues <isa900@yahoo.com>
Naugatuck, CT. USA - Friday, July 4, 2008 0:23 AM CDT
Andrew and family are in my prayers.
http:/www.freewebs.com/prayerbears
http://heatherrain.livejournal.com
Jennifer <texasprayerbear@yahoo.com>
Bridgeport, Texas - Thursday, July 3, 2008 6:02 AM CDT

MySpace Comments - Thinking of You
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praying for you guys and i know god will take care of you all hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, June 23, 2008 10:05 PM CDT
So glad to hear that Andrew is home and doing better. Such great news!!! I hope he continues to make a speedy recover. Way to go, Andrew!!
Joanne Huff <joannehff@yahoo.com>
Warren, NH USA - Monday, June 23, 2008 3:29 PM CDT
im glad to hear andrew is home i hope he finds his comfy zone
THERESA HINKELMAN <TNTHUDFL@AOL.COM>
NEW SMYRNA BEACH, FL USA - Sunday, June 22, 2008 9:34 PM CDT
Paulina, Colin, Andrew, and Alex,
I'm praying for you guys and that the doctors can figure out what is going on with Andrew and why he is in such terrible pain. I am so sorry.
Much love,
Leslie
Leslie Phillips <philla5@wfu.edu>
Winston-Salem, NC USA - Wednesday, June 18, 2008 10:47 AM CDT
I hope you are having a nice weekend.

www.caringbridge.org/visit/quiltsofhope
Jaime <aquiltofhope@aol.com>
- Saturday, June 14, 2008 4:37 PM CDT
Hi, this is your Facebook friend, you're boy sure is a sweetheart.
Jodie Key <jodiekey@yahoo.com>
Boneville, GA USA - Thursday, June 12, 2008 10:24 AM CDT
My prayers are with you! Be strong superman!
My supergirl Sabrina (MPS IIIB) 8 years old now is flying right beside you!
Luella Gabriel <lalagabriel@sbcglobal.net>
Fairfield, CA USA - Wednesday, June 11, 2008 1:49 AM CDT
Just stopping by to say Hi. Letting you know we are thinking about you all. Hugs....Misty
Misty <mistyvp@hotmail.com>
Florence, ky US - Tuesday, June 10, 2008 8:45 PM CDT
I am so happy to know Andrew had gain 2 more pounds. Yipppppyyyyyy. I hope he continue to gain more. Abeerah is on the same Formula and did well in gaining back her old weight.
I hope Andrew's discomfort goes away completely. Always think of you and keep your family in my prayers. Also keeping Colin's dad in my prayers.

Alex, have a great vacation buddy.

Love and hugs your way.
Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Monday, June 9, 2008 1:48 AM CDT
I am so sorry to hear of Andrew's feeding tube problems and seizures. Ciara's seizures have increased lately too and I am pretty sure it is because puberty is starting and messing with her hormones, poor baby. I hope you can get everything straightened out and Andrew is happy and comfortable.



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, June 3, 2008 9:59 AM CDT
With all my love I send courage for your parents and a big big hug for GREAT ANDREW. Surely, Andrew has his Guardian Angel beside him, and all his effort has a sense in this life. We must learn from him. Kisses,CECILIA
CECILIA MEDRANO PIZARRO <cegab@cpacf.org.ar>
BUENOS AIRES, ARGENTINA - Tuesday, May 27, 2008 1:05 AM CDT
Hi Andrew. I want you to know that we had a wonderful turnout for Izzy's Legacy Race on Saturday. Around 450 people came for you, and Izzy, and all of your MPS friends. Although you could not be with us, I just wanted you to know that you were there with us in our minds and our hearts. God bless you, Sweet Andrew. .
Catherine Abernathy <cabernat@truvista.net>
Chester, SC - Monday, May 26, 2008 8:18 PM CDT
Hi Paulina
Sorry I haven't been on sites for so long - just read about Andrews gastric issues and seizures. My heart is with you xx
Ria
www.caringbridge.org/hi/jasminmay <riaheap@aol,.com>
England - Friday, May 23, 2008 0:31 AM CDT
Just stopping by to say "Hi" and check on Andrew. I hope you were able to enjoy Mother's Day! I will be praying that you get some answers next week from GI.
Love and prayers continuing for you and Andrew.
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Wednesday, May 14, 2008 5:46 AM CDT
Hi Pulina!
Thinking of you today. I hope you had a great Mother's Day with your boys today.
Mother's Day Glitter Graphics
You are Always in my prayers.

Abeerah, Khansa & Zahra
Tayyaba Beg <tayyaba@helourgirls.com>
NJ - Sunday, May 11, 2008 11:29 PM CDT
PAULINA
I HOPE YOU GUYS ARE DOING OK SORRY I HAVENT CAME BY IN A WHILE ITS STILL HARD FOR ME JUST REMEMBER THAT I AM HERE IF YOU EVERY NEED ANYTHING AT ALL YOU CAN CALL ME AT HOME MY NUMBER IS 606-298-0096 OR MY CELL IS 606-626-5223 IF YOU JUST NEED SOMEONE TO TALK TO I AM HERE AND KNOW THAT YOU GUYS ARE IN MY PRAYERS HUGS KATHY
kathy and ^^katilynn^^ preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, May 8, 2008 1:37 AM CDT
Thinking of you and your family and praying things will be better soon. I read about Andrew on my grandson's website who also has MPS (Luke Embry) I'll keep you in my prayers and check in often.

Doris McPherson <Dorismcpherson@bellsouth.net>
Morgantown, KY USA - Thursday, May 1, 2008 8:28 PM CDT
I am so sorry to hear that Andrew is in so much discomfort. I know how difficult that must be for you and him. We will be praying for some much needed relief. Misty, Mother to Will MPSlllA
Misty Luthcke <Mluthcke@netzero.com>
- Thursday, May 1, 2008 5:23 PM CDT
Hi, Paulina! I love Andrew's UK shirt in the homepage photo! Go Big Blue! We're so sorry to hear about Andrew's issues! We check on ya'll often, but are not good about always signing in to tell you so. Your family will continue to be in our thoughts and prayers. Maybe you'll get some answers at your upcoming appointments. Prayerfully,
Mieke Embry (mom to Luke, MPSIII-A) www.caringbridge.org/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Thursday, May 1, 2008 11:11 AM CDT
Paulina,
I am so sorry that Andrew is having a tough time again. I pray that you can find something to help him be free of pain. Many hugs for you all, especially Andrew.

Love,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Monday, April 28, 2008 7:48 PM CDT
Dear Andrew,
Just wanted to let you know youu have the two most brave and loving parents a boy coulld ask for they love and never give up on you and they truly are my heroes!!! I hope they know I would do anything for you guys in the whole world I am praying for you guys everyday love always.!!
Niki Ferguson <Nikiandgang@insightbb.com>
Hebron, KY US - Sunday, April 27, 2008 8:54 AM CDT
Hello Paulina. I'm a friend of Izzy Jurado and I've been checking on Andrew. I'm so sorry he's having a rough time. I'm praying for you guys!
Kelly Hollingsworth <kellyholly03@yahoo.com>
Rock Hill, SC USA - Friday, April 25, 2008 10:44 AM CDT

MySpace Graphics & MySpace Layouts

hi guys just wanted to come by and see how you guys are.i want you to know that i just stoped what i was doing and said a prayer for andrew and you all hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, April 24, 2008 9:59 AM CDT
My prayers are with you and your family, cherish each day you have your son, hold him close and never lose hope.
Mom of an angel
In memory of my son Matt
Sandi- mom of an angel <skneace4107@aol.com>
williamstown, ky - Sunday, April 20, 2008 6:40 AM CDT
I didn't realize Andrew was doing poorly with the feeds again Paulina. I am so sorry. I pray that the continuos feeds will help him with absorbption and weight gain.
Leslie Jurado <ijf@comporium.net>
Rock Hill, SC - Saturday, April 12, 2008 8:39 PM CDT
It breaks my to heart to know that Andrew is having such a tough time. Nothing in this world can be harder than watching your precious child suffer. I will be praying for all of you.
Cathy Abernathy <cabernat@truvista.net>
Chester, SC - Thursday, April 3, 2008 4:23 PM CDT
Hi, girl, you all are in our prayers! I so much wish i was there to give you a hug and to help you! My heart breaks for you and your family! I also am going to pray for better bm's and days! Tell andrew hello and josh is waving again!!! love Ruth and her family
ruth murphy <523murf@earthlink.net>
eustace, tx usa - Thursday, April 3, 2008 10:25 AM CDT
Hi Paulina.
Stop by to check on Andrew. My heart hurts for poor baby boy. It is very painful to watch your child suffering. I pray for better BMs and no more seizures. I also pray for your strength.
(((HUGS)))

Abeerah, Khansa & Zahra
Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Thursday, April 3, 2008 7:49 AM CDT
Dear Andrew,
I'm a friend of your Mom & Dad. I hope your world is blessed with angels by your side. I also have a prayer chain going up for you everyday. You have the bravest parents and little brother.
I know your Mom will read this to you, so keep bringing joy to their lives and remember that everything will be ok.
Now Mom & Dad, tell Alex that he is being watched over too by angels. I know that Andrew has brought them here for you guys. That is where your strength and courage comes from.
I haven't been down your road, but I know how it takes a toll on the heart taking care of your children.
May GOD bless all of you and take care,
Love Teresa
Teresa Perkins <theresa132@fuse.net>
Glencoe, Ky USA - Saturday, March 29, 2008 7:18 PM CDT
Hope you had a HAPPY EASTER!! We think and pray for you
guys all of the time!!!
SmileyCentral.com
Stacey and Lucas
http://www.caringbridge.org/visit/hopeforlucas
- Saturday, March 29, 2008 9:20 AM CDT

Have a Blessed Easter!
Love,
Patty and Jesse


Pattyt <wordinedge@aol.com>
Balto, MD USA - Saturday, March 22, 2008 7:38 PM CDT


Have a Blessed Easter!
Love,
Patty and Jesse

Pattyt <wordinedge@aol.com>
Balto, MD USA - Saturday, March 22, 2008 5:04 PM CDT
Photobucket
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, ca - Friday, March 21, 2008 8:02 PM CDT
HAPPY EASTER TO YOU ALL
With lots of Love
Ria & Jazzy
xxxxxx
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Friday, March 21, 2008 3:35 AM CDT
So sorry about these awful seizures Paulina. Will keep checking in to see how Andrew is. Lots of hugs from the Schüpbachs in Switzerland.
Elizabeth Schüpbach
Bern, Switzerland - Saturday, March 15, 2008 3:25 PM CDT
Stopping by to check on Andrew. Sorry to hear he continues to have seizures.Prayers that everything calms down soon. Hugs to everyone.
Sharon and Andrew Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Sunday, March 9, 2008 4:12 PM CDT
Andrew we love you so much! Hope you feel better real soon! Tell Alex we say hello too! Big hug to you!
Love,
Holly and Angel Brianna Bays
(your girlfriend)
Holly
Kenton, oh USA - Thursday, March 6, 2008 8:12 AM CST
Paulina,
My heart is with you. I know all too well how you are feeling with these seizures!! Seeing your child that way is one of the scariest things because there is so little we can do when this happening! (((HUGS))) I pray that these slow down and you don't have to go this often.
Love and prayers,
Patty and "Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Thursday, March 6, 2008 6:01 AM CST
No more seizure Mr. Andrew. Thinking and praying for you.
Stacey and Lucas
http://www.caringbridge.org/visit/hopeforlucas <LewnStacey@yahoo.com>
Cedar Rapids, IA - Wednesday, March 5, 2008 6:45 PM CST

Oh Paulina those seizures sound sooooo scary! I'm sorry Andrew is having such a bad time. I hope with spring coming he begins to feel better and you can get the poop issue under control. Give Andrew hugs for us.
Love,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Wednesday, March 5, 2008 6:33 PM CST
Praying that Andrew can keep those BM's coming!! Spring is just around the corner, holefully everyone will feel good by then!
Love and hugs,
Patty and Jesse
Pattyt <wordinedge@aol.com>
Balto, MD USA - Sunday, March 2, 2008 6:56 AM CST
JellyMuffin.com - The place for profile layouts, flash generators, glitter graphics, backgrounds and codes
hi paulina
i just thought i would come by and see how you guys are hugs kathy
kathy and ^^katilynn^^ preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, March 1, 2008 11:35 PM CST
Thinking of you and singing and dancing the dance for Andrew!
xo
Donna Kay and Tyler
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA US - Thursday, February 28, 2008 8:29 PM CST
We heard you are not feeling well Superman Andrew! We are sending up special prayers for you. Big Hugs!!!
The Montgomery's
Stacey and Lucas
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Thursday, February 28, 2008 5:42 PM CST
Hello to you all! Josh is here waving and says hi! I am so sorry you were feeling bad hope things arew better! I am putting you and your family on the prayer chain! Take care, love Ruth, Josh and family
ruth murphy <523murf@earthlink.net>
eustace, tx usa - Wednesday, February 20, 2008 7:44 PM CST
I just realized that it was awhile since I signed your guestbook.

I wanted you to know that I'm thinking of you today, and always.
Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Monday, February 18, 2008 4:49 PM CST

PRAYER BEARS WEBSITE


Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, February 14, 2008 9:48 AM CST
Hi Paulina & Andrew

I am so sorry to hear about Andrew's big seizure....I'm sure it had to of been the scariest thing for you to watch. I hope and pray there aren't any more. Please give Andrew big hugs for Scotty & I.
Hugs & Much Love,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Sunday, February 10, 2008 10:59 AM CST
Dear Paulina

I am so sorry that Andrew had a grand mal seizure. I know he has been having seizures for years but not to this extent. I pray that there will not be more. I think it was very smart to get the oxygen. I will ask my doctor about this for Izzy. Big hugs at all of you.
Leslie Jurado <ijf@comporium.net>
Rock Hill, - Saturday, February 9, 2008 7:03 PM CST
Dear Paulina

I am so sorry that Andrew had a grand mal seizure. I know he has been having seizures for years but not to this extent. I pray that there will not be more. I think it was very smart to get the oxygen. I will ask my doctor about this for Izzy. Big hugs at all of you.
Leslie Jurado <ijf@comporium.net>
Rock Hill, - Saturday, February 9, 2008 7:02 PM CST
JellyMuffin.com - The place for profile layouts, flash generators, glitter graphics, backgrounds and codes
paulina
i hope andrew gets well soon and we are praying for him just know that i am here if you ever need anything at all.just know that prayers are going up for andrew and im sure katilynn is watching over andrew hugs kathy
kathy and ^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, February 7, 2008 10:49 AM CST
You are so strong Paulina! God bless your whole family.
Andrew, we are thinking of you and sending lots of hugs and kisses your way.
Praying for you.
Donna Kay and Tyler
www.caringbrige.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA US - Wednesday, February 6, 2008 11:57 AM CST
Praying you won't need to use the oxygen..praying for "no more" seizures. Big hugs!
Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Wednesday, February 6, 2008 9:37 AM CST
Sending hugs from our family to yours today! We love you guys. XXX OOO

God Bless!
Debbie, Rich, Jon and Jason
Debbie Vanderpool <djvpool@frontiernet.net>
Rochester, NY USA - Saturday, February 2, 2008 8:35 AM CST
HUGE hugs from England to you Andrew and Paulina
Love
Ria & Jasmin
xxxxx

www.caringbridge.org/hi/jasminmay
Ria & Jazzy <riaheap@aol.com>
England - Wednesday, January 30, 2008 10:20 AM CST
I'm so sorry to hear about Andrew's walking. He as well as all of you are in our prayers and thoughts. Hope to see you all soon. Hugs..Misty,Chris and Natalie

Loving God, No matter what my befall my children, may they be so filled with hope that it prevents any despair from taking hold. With the apostle I pray that the "GOD of Hope" Romans 15:13 shall fill them with all joy and peace.


Misty Jump <Mistyvp@hotmail.com>
Florence, KY USA - Monday, January 28, 2008 8:58 AM CST
Hello, you don't know me but I had to put an entry here. My daughter Jessica is 9 years old-when she was 2 we were given a Dx of Sanfillipo, however after almost a year of testing it was finally discovered this was a misdiagnosis. After reading your journal about how you were told of your son's diagnosis, it brought all of the memories back...our stories are so much alike as to how we found out. I'm happy to report that Jessica is healthy today, although we are dealing with developmental delays,mental health issues and hearing loss. This is nothing in comparison to the horrible things that MPS does to these children's bodies! I just wanted to let you know that there are people out there who do care and want to lend support in whatever way possible. The experiences that I went through made me realize that life is so precious and not to be taken for granted. I am so greateful for the opportunity to have my daughter in my life every day. My prayers are with you and your son as you continue to struggle through this process.
Michelle Shelton <Michelle.Shelton@st-francis.org>
Arkansas City, KS USA - Friday, January 25, 2008 1:43 PM CST
I am so sorry to hear about Andrew's walking. It breaks my heart to hear this. I will continue to pray for you all especially for your strength and Andrew's comfort.
Way to go Alex, I know Andrew must be so proud as well as your whole family.
Hugs,
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Wednesday, January 23, 2008 7:47 PM CST
Wonderfull achievement at school, you are rightly so very proud if Andrew, i am too !

Hugz Missy xx
Missy <missybry@msn.com>
Prestatyn, Wales UK - Tuesday, January 22, 2008 2:48 PM CST
paulina
i am so sorry that andrew is no longer able to walk and i know it is hard on you and him but remember you guys r in my prayers and we love u guys and just try to hang in there i know that katilynn is watching over andrew and all the kids hugs kathy
kathy and angel^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, January 18, 2008 1:08 AM CST
Thank GOD for little Miracles!!! It is wonderful to hear that there has been a real difference with the new formula!
I too am so grateful for the wonderful friend you are to so many others and myself, without you and your support, this world with ML would stink much, MUCH more!!! Thanks for always being so kind!!Our prayers continue for Andrew and please tell Alex, we still think he's the BEST brother in the world!!!! I love the pic of them from X-mas, he is so wonderful and supportive of his brother, what more could you ask for!!
GOD BLESS YOU!!
Love, John, Brenda and Zachie
Brenda Haggett, mom to Zachie, Mucolipidosis/-I-Cell <Jhrufus@aol.com>
Syracuse, NY usa - Tuesday, January 15, 2008 8:53 AM CST
Glad to hear the new formula is working wonders. My hopes to you for the best year to come...
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, January 9, 2008 1:04 AM CST
Happy New Year to all the Jumps! I saw Alex this morning when he got off the bus and he said he had a great Christmas break. Love the pics on the front page! Looks like Drew really likes his new chair. So glad it worked out!
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
Florence, KY - Friday, January 4, 2008 8:26 AM CST
Wishing you all the best for 2008!

Karen and Tabby <karenpuddn@comcast.net>
- Thursday, January 3, 2008 9:13 PM CST
Happy New Year to you all!
Love all the pics, Andrew and Alex look Great!!
Hugs,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Thursday, January 3, 2008 7:20 AM CST
HAPPY NEW YEAR TO THE JUMP FAMILY..SO GLAD TO HEAR ANDREW IS DOING WELL..SOUNDS LIKE YOU HAD A WONDERFUL CHRISTMAS, LOVE THE NEW PICS...SENDING PRAYERS AND(((HUGS)))
THERESE, DANIELLE, AND ^^SARA^^ <TRID2B4@SBCGLOBAL.NET>
MORRIS, IL - Wednesday, January 2, 2008 11:05 PM CST
So glad to hear Andrew is doing better - hallelujah! I hope the New Year brings not only happiness, but days filled with no discomfort! My love to you all,
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, December 28, 2007 6:20 PM CST
Dear Jump Family!

Photobucket

Wishing your family a very Merry Christmas and may you have a very happy New Year.
I am so glad to know Andrew is doing better. I hope he continue to do great. Amen.

Abeerah, Khansa & Zahra
Tayyaba Beg <tayyaba@helpourgirls.com>
- Tuesday, December 25, 2007 11:49 PM CST
Merry Christmas!

Kisses from Hershey
Donna Kay and Tyler
http://www.caringbridge.org/visit/tylerlangan


Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Tuesday, December 25, 2007 9:15 PM CST
Just wanted to wish all a very Merry Christmas!

Hugs and prayers,
Patty and Jesse


Pattyt <wordinedge@aol.com>
Balto, MD USA - Monday, December 24, 2007 6:40 AM CST
Wanted to stop by to wish guys a Very Merry Christmas and a Happy New Year!! I am so glad that Andrew is doing so much better you have Been in My prayers Ricky and Kenny sending Andrew Hugs!!
Take Care and God Bless
Deon, Ricky and Kenny
www.caringbridge.org/visit/nelsonboys
Deon Nelson <thumpernel@sbcglobal.net>
Lawton, OK - Sunday, December 23, 2007 7:53 PM CST


MERRY CHRISTMAS!
Hugs,
Kim & Scotty
MPS II <cottons@earthlink.net>
Modesto, CA - Sunday, December 23, 2007 5:45 PM CST

Christian Glitter by www.christianglitter.com

merry christmas and i hope that the new year bring better health and happiness.i know that katilynn is watching over andrew and all the kids hugs kathy
kathy and angel^^katilynn^^preston <katilynnsmom@yahoo.com>
tomahawk, k usa - Wednesday, December 19, 2007 10:50 PM CST
Please know you are in my thoughts and prayers this holiday season and every day. May you be blessed in the New Year!
Love and Hugs,
Tami Slawson www.caringbridge.com/ca/slawson

Tami <TLSlawson@aol.com>
- Wednesday, December 19, 2007 5:43 PM CST
Yes!!! It is so wonderful to read that Andrew is doing better. Thank God!!!! Little Superman, you deserve to feel good and sleep good too.
Leslie Jurado <ijf@comporium.net>
- Wednesday, December 12, 2007 9:36 PM CST
So happy to hear that the new feed is doing well for Andrew!!!!!!! You will find that the amino acids will help in many other ways too. Praying you will see see a real turn around in every way for Andrew!!

Hugs and prayers,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Tuesday, December 11, 2007 5:38 PM CST
Heys guys it was great seeing you in Ohio this past weekend. We miss seeing you all and I'm so happy that Andrew is doing better on the new medicine! You all are AWESOME parents and Alex you're an awesome little brother!! Have a wonderful Christmas and I hope our families can get together next year!
Andrea Longston (www.caringbridge.org/visit/rachel) <andrea.longston@gmail.com>
Green Bay, wi - Tuesday, December 11, 2007 12:38 AM CST
Keeping you in my thoughts during the Holiday season and in my prayer's always.

Image and video hosting by TinyPic
Brenda MY CHRISTMAS ANGEL <brenda@shaw.ca>
Edmonton,Alberta/Canada, - Monday, December 10, 2007 12:03 AM CST
Hello Superman. Lucas wanted me to tell you that he has the exact same black and silver shirt. Wishing you all of the best thoughts we can send. We hope you feel comfort soon.
Jill Valdez <valdezjill@hotmail.com>
Oshkosh, WI - Wednesday, December 5, 2007 10:27 AM CST
Hello , OUR PRAYERS ARE with your family and ANDREW. I hope things get better for all of you and I hope that Andrew will feel better real soon.
Love from the Connor Family.
Jared Connor MPS111B ( almost 3yrs)www.Jaredsfight.org
REIA CONNOR <Lilphunk2@aol.com>
BOSTON, MA USA - Tuesday, December 4, 2007 10:29 PM CST
Hi Paulina,
I am crying by reading your jurney. I am so sorry about you also suffurring the hard time same as my sister. My sister's son, who is similar age as Andrew, lives in China. The medical systerm in China is much worse than the states. So she has no support at all, no specialist can help. We can do nothing but to watch the boy's condition become worse. Hope Andrew will not suffur too much pain and discomfortable!!
Betty <sbwqjz@hotmail.com>
Calgary, AB Canada - Tuesday, December 4, 2007 9:36 PM CST
Hello! It was great to see you guys! Wishing you a very Merry Christmas!!!
Melissa Mann <mann1015@hotmail.com>
Erlanger, ky - Sunday, December 2, 2007 8:52 PM CST
Keeping everyone in our prayers.
Keep strong Paulina, you are an inspiration.
Love from Hershey,
Donna Kay and Tyler
www.caringbridge.org/visit/tylerlangan
Donna Kay Langan <langandk@hotmail.com>
Hershey, PA 17033 - Saturday, December 1, 2007 6:04 PM CST
STILL PRAYING FOR ANDREW PAULINA, MANY(((HUGS))AND PRAYERS TO YOU ALL
THERESE <TRID2B4@SBCGLOBAL.NET>
MORRIS, - Friday, November 30, 2007 11:10 PM CST
I am so sorry to hear that Andrew is having such a difficult time right now. MPS is such a cruel and unrelenting disease. You are all in my prayers.
Izzy's Grandma
Catherine Abernathy <cabernat@chestertel.ocm>
Chester, SC - Friday, November 30, 2007 1:37 PM CST
Paulina,

So sorry to read that the new feed isn't being tolerated either, poor Andrew. They thought about the g-j tube for Jasmin when she was in ICU as she stopped digesting the food, so I have heard about what that is. At least there is another option there, allbeit a horrid thought, it is another possibility for Andrew to feed.

Please accept our love, thoughts and prayers
Ria and Jasmin xxx
www.caringbridge.org/hi/jasminmay
Ria <riaheap@aol.com>
UK - Friday, November 30, 2007 9:41 AM CST
My prayers are for Andrew and you tonight.
Kristin Dey <k.dey@mchsi.com>
Iowa City, IA USA - Thursday, November 29, 2007 7:27 PM CST
My thoughts and prayers are with you. I'm sorry Andrew is not doing well.
Lynne Travers <ltravers@cambridgebmg.com>
Malden, MA 02148 - Thursday, November 29, 2007 3:05 PM CST
Praying for Andrew, praying for answers , praying for comfort, praying for strength for Paulina and Colin.
I am thinking of you guys ALWAYS. I am at a loss for words right now because nothing I want to say seems to be able to flow into words. Paulina, send me an email, let me know what I can do. If you need a break from researching ....let me do it for you. Just tell me what I can do. I am so far away so there is nothing that I can do physically :-( !! Hug Andrew for us!
Stacey Montgomery
but let me know what I can do to help you.
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aol.com>
- Thursday, November 29, 2007 2:42 PM CST
OH PAULINA, I JUST WANTED TO STOP BY AND CHECK ON YOU AND WHEN I SEEN YOUR LAST UPDATE I JUST HAD TO CRY, I'M SO SORRY YOU ARE GOING THROUGH THIS RIGHT NOW, I FEEL YOUR DESPAIR((HUGS)) IN YOUR WORDS..SENDING MANY PRAYERS YOUR WAY...THINKING OF YOU
THERESE MPP SOC <TRID2B4@SBCGLOBAL.NET>
MORRIS, IL - Monday, November 26, 2007 1:32 PM CST
Dear Paulina.
I cry reading your Journal. MPS is a horrible disease. I am so sorry Andrew is not doing well. We are facing similar stuff with Abeerah so i know what you are going through and my heart goes out to you in your pains. I agree with Patty on changing the formula to soy base. Thats what we did with Abeerah when she did not accepted the regular milk one. If you have not try it yet then try.
I know what you mean when you talk about Alex. We are on same page and make each day holding our son and thanking GOD each moment for Bilal. He is a GOD send to us like Alex.
Sending lots of love and prayers your way. May GOD make things easier for you, Amen

Tayyaba Beg
NJ <tayyaba@helpourgirls.com>
- Sunday, November 25, 2007 10:29 PM CST
Sending prayers for Andrew and your family! Also have you tried any feeding formulas that are soy or protein based vs milk based? Maybe he is not tolerating milk based feeds. Just a thought... maybe it will help in some small way.
Love and prayers,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Sunday, November 25, 2007 6:12 PM CST
Sending lots of love and hugs your way Paulina XXX
Ria & Jasmin xxx www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Friday, November 23, 2007 9:01 AM CST

PRAYER BEARS WEBSITE



Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Thursday, November 22, 2007 8:49 AM CST
A Very Happy Thanksgiving

to you all!!!

Love and many prayers,

The Haggett's,

John, Brenda and Zachie!

www.caringbridge.org/visit/zachie



Brenda Haggett ML/I-Cell mom <jhrufus@aol.com>
Syracuse, NY usa - Wednesday, November 21, 2007 10:58 PM CST
paulina
just know that your family is in our prayers and i hope that andrew gets the healing that he deserves.if you need anything please let me know i know its hard on you to see him that sick but know that god pick you to be his mom and that you are truly a god send for andrew and i bet he is so proud that your his momma we love you guys and please try to have a happy thanksgiving hugs kathy
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, k 41262 - Wednesday, November 21, 2007 5:12 AM CST
hi paulina
i hope andrew is feeling better and give him hugs from me.hugs kathy
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, November 12, 2007 10:13 PM CST
Hi Paulina, just stopping by to say 'hi'!! So sorry to hear that Andrew is sick, praying that he gets well soon, much love to you all xxxx
Louise & Georgia xxxxx
Louise Lewis
Chepstow, Monmouthshire, UK - Friday, November 9, 2007 10:12 AM CST
HELLO JUMP FAMILY, JUST WANTED TO STOP BY AND SEE HOW EVERONE IS DOING. SO SORRY FOR ALL YOU ARE GOING THROUGH.PRAYING THEY FIND SOMETHING FOR ANDREW'S ULCERS, AND THAT ALEX CAN GET BACK TO SCHOOL..I WILL CONTINUE TO PRAY FOR ALL OF YOU..
THERESE <TRID2B4@SBCGLOBAL.NET>
MORRIS, IL USA - Saturday, November 3, 2007 6:10 AM CDT
Please post the pictures of Paulina in the Thomas the Tank engine custom Colin. I would enjjoy seeing that.

Praying that Andrew can get some sleep, get his BP under control, and be free from bowel issues.

Hugs to the Jumps.
Leslie Jurado <ijf@comporium.net>
Rock Hill, SC - Tuesday, October 30, 2007 8:24 PM CDT
Hi,Just dropping by to find out how the family is doing well I hope,We have been praying for your family.an some good news would be great.You are never alone the Lord is always with you.We will see you at the fund raiser.God Bless you an the family Connie an Ronnie
CONNIE HAARMAN <SEAJAY1@FUSE.NET>
Florence , ky u.s.a. - Saturday, October 27, 2007 0:30 AM CDT
Oh i am sorry. I am late here but still want to say out loud

Happy Birthday to you Andrew.


I hope super man had a supper day. Sending lots of hugs and much love your way.

Tayyaba Beg <tayyaba@helourgirls.com>
NJ - Wednesday, October 17, 2007 7:14 PM CDT
Happy Birthday Boys... praying it was an awesome day....

Melissa and hailee
http://www.caringbridge.org/az/hailee
melissa <angels4hailee@nc.rr.com>
westend, nc usa - Saturday, October 13, 2007 6:30 PM CDT
Happy Birthday Andrew and Alex.

Keeping you all in our prayers.

Traci Bosch
Traci Bosch <Tbosch@perrigo.com>
- Thursday, October 11, 2007 2:31 PM CDT
SmileyCentral.com
The Montgomery's <lewnstacey@aol.com>
Cedar Rapids, IA - Tuesday, October 9, 2007 4:37 PM CDT
Happy Birthday Andrew!!!
David and Amanda New <anew@midway.edu>
- Tuesday, October 9, 2007 12:51 AM CDT




Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy (MPS-III) BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, October 9, 2007 12:36 AM CDT
Happy Birthday Alex!!! You truly are a Superman and I hope you enjoyed your cake!!! (We won't tell anyone that mummy gave it to you.)
Vanessa Horne <v.horne@camdenservices.com.au>
Brisbane, Qld Australia - Tuesday, October 9, 2007 2:09 AM CDT
Hi, Paulina! While we've stopped by to visit, we haven't signed your guestbook in a while. Just wanted to let you know we're thinking of you and wishing all the best for Andrew and your family! Hopefully they can find a way to better deal w/ Andrew's seizures. Also ... we'll pray for good results for Alex and your hubby, as well. Hang in there ... and happy anniversary! We'll continue to keep your family in our prayers.
Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.org/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Monday, October 8, 2007 4:48 PM CDT
We are cotninuing to keep Andrew in our prayers. We check on him daily. He is very blessed to have such a wonderful, caring family.

Traci Bosch
www.caringbridge.org/mi/danielbosch

Traci Bosch <Tbosch@perrigo.com>
Plainwell, mi - Monday, October 8, 2007 3:03 PM CDT
Paulina ,just wanted you to know WE haven't forgotten about you an your family.We are stll praying for some good news from the DRS.Hang in there God won't let you down .So for now we all keep praying for the healing for !! Andrew, an for you an the family if you need me please call...God Bless You ...Connie
Connie Haarman <SEAJAY1@FUSE.NET>
FLORENCE, KY. U .S.A. - Tuesday, October 2, 2007 6:42 PM CDT
Hi Paulina,
So sorry to read about Andrew, I hope things settle soon for him and for your whole family. We will be saying lots of extra special prayers for you all
take care honey
love
Michelle
www.caringbridge.org/visit/aaroncraig

michelle craig <craigboys@blueyonder.co.uk>
birmingham, uk - Tuesday, October 2, 2007 5:21 PM CDT
Just wanted to stop an check on ANDREW an with you guys .I no it has to be very hard on you but leave it in the Lords hands an he will take care of you an the family love Connie & Ronnie Haarman
Connie Haarman <SEAJAY1@FUSE.NET>
FLORENCE, ky U .S.A. - Saturday, September 22, 2007 9:19 AM CDT
Paulina,
Sorry we have not been by in while. Andrew is in our
prayers...as always..
Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@yahoo.com>
- Thursday, September 20, 2007 4:30 PM CDT
paulina
i just wanted to come by and say hello and check on you and i am so sorry that the news from the doctor wasnt good but just know that god is the real doctor and that only he knows about andrew illness just turn everything over to him and he will take care of it all.its a hard thing for us to do but belive me it pays off.i know how you miss the way andrew use to be i remember the days when katilynn would run and play and have a good time and when she got real sick i would mourn those days so bad and still today i see little girls about katilynn age playing and it hurts so bad that she isnt here to play and do all these things but i know that even though im not seeing her playing i know she is in heaven.but if you ever need anything just let me know us ky girls have to stick together.sorry for rambling on hugs kathy i would love to meet you in person one day soon and andrew.hugs kathy
KATHY PRESTON AND ^^KATILYNN^^ <katilynnsmom@yahoo.com>
TOMAHAWK, KY USA - Thursday, September 20, 2007 10:36 AM CDT
Hi guys. This journey of ours just gets harder all the time doesn't it??!! I signed the guestbook some time ago now but I am always checking for updates on how Andrew is going. My sister has a mild form of this nasty disease but I still have hope as she is 27 (was only diagnosed when she was 25) but I miss the sister that I grew up with and the fun times we always had. We still have fun these days but only as much as this disease will allow as she doesn't really communicate any more. Some days are so much harder than others. Chin up guys and try to stay positive!!!! xxoo
Vanessa Horne <v.horne@camdenservices.com.au>
Brisbane, Qld Australia - Tuesday, September 18, 2007 6:13 PM CDT
I am a physiotherapist in England- working with children with this disease. i am learning about it. i have found this website very useful.
jo
- Tuesday, September 18, 2007 2:51 PM CDT
Paulina an COLIN,we are so sorry to hear of your news about Andrew may the good Lord be with you an guide you in your time of need .Please if there is anything that I can do please let me know,Paulina We are still praying for ANDREW OUR HEAVENLY FATHER MAY RESTORE ANDREW'S HEALTH AT ANY TIME AN I HOPE YOU BELIVE THAT,I'm,always hear if you need me. Connie
Connie Haarman <SEAJAY1@FUSE.NET>
FLORENCE, KY. U .S.A. - Monday, September 17, 2007 8:16 PM CDT
Paulina.. You know I'm always here for you! You guys are always in our thoughts and prayers. We love you guys!
MPS STINKS!!!!

Holly Bays
Kenton, Oh USA - Monday, September 17, 2007 1:19 PM CDT
You are always in my thoughts and prayers.
Anne Kinsman
Simpsonville, SC - Monday, September 17, 2007 10:24 AM CDT
Paulina,
Sorry I am so bad at signing guestbooks, but I wanted to tell you that I'm definitely thinking about you and praying for Andrew and your whole family.
Much love!
Leslie Phillips <philla5@wfu.edu>
Winston-Salem, NC USA - Sunday, September 16, 2007 12:55 AM CDT
We are praying for Andrew to have more strength and for you guys too-
Hang in there!
Thinking of you...
Karen and Tabby <karenpuddn@comcast.net>
- Saturday, September 15, 2007 8:05 PM CDT
We will be keeping Andrew in our prayers. We will also pray for knowledge of the doctors to treat Andrew so that he will feel well once again.

God Bless
Traci Bosch
www.caringbridge.org/mi/danielbosch
traci bosch <Tbosch@perrigo.com>
- Thursday, September 13, 2007 2:45 PM CDT
Dear Paulina and Colin,
You don't know me, but I feel as if I know you all. I have followed your journal for many months. I learned about Andrew's caring bridge site from Leslie Jurado. She is a friend from church. I have prayed many prayers for you all and will continue to do so. I hope that Andrew is doing better today. Take care.


peggy casey
Rock Hill, SC York - Wednesday, September 12, 2007 9:26 PM CDT
Paulina, I'm so sorry to hear your bad news. All I can think of is what do you say to someone. You know how I feel and ANYTIME you need a friend you can call on me and I'll be here to listen,give a shouder or try to give encouragement. I will pray for you and your family.
michele <mlpeterson62@yahoo.com>
Florence, Ky Boone - Tuesday, September 11, 2007 5:48 PM CDT
paulina
we are so sorry to hear that the doctors reports werent good and just remember its not what the doctors say its up to god so the doctors just guess so remember that your in our prayers and we wish you all the best hugs kathy and the preston family and i am sure angel katilynn is watching over all the mps kids
kathy and angel katilynn preston <katilynnsmom@Yahoo.com>
tomahawk, ky usa - Tuesday, September 11, 2007 2:31 PM CDT
Dear Paulina.
I am so sorry that Andrew is going through so much. Poor boy. I hope Drs. can figure out what is going on with Andrew and hope they can help him to get back to him self again. I will be praying for you and Andrew.
Love watching the baby pictures of Andrew. He is such a cute boy.
Sending lots of ((((HUGS)))) your way.

Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Tuesday, September 11, 2007 0:21 AM CDT
hi paulina
i am so sorry for what your family is going through there isnt very many people that knows how you are feeling but i think i have a good ideal.katilynn went from running and playing to stop walking and i miss that part of katilynn but she always laughed no matter what.but know that you guys are in my prayers and god is watching over you guys hugs kathy and the preston family
kathy and angel katilynn preston <katilynnsmom@Yahoo.com>
tomahawk, ky usa - Sunday, September 9, 2007 9:24 PM CDT
we are fostering a 9 yr old with Sanfilippo MPS111B, He came to us 3 weeks ago and I am searching for helpful info Thanks Sherry
Sherry Snodgrass <wssnodgrassjr@adamswells.com>
Bluffton, In USA - Friday, September 7, 2007 11:03 AM CDT
Hi Paulina
I still check at least weekly but dont often write as I am busy with the foundation. I am so happy to hear that Alex is doing well in full day school. You must be so terrified when Andrew gets to choking like you described. Our sweet innocent babies go through way too much with this disease. I am sorry for the streak of bad luck with things around the house. At least your sense of humor doesn't need fixin.
Leslie Jurado <ijf@comporium.net>
SC - Thursday, August 23, 2007 8:49 PM CDT
Hi Paulina
Just checking in on you and your boys. Sorry about the bowel prob with Andrew - Jasmin is the same - runs, runs, runs! Did have time of constipation but now constant runs?!?!?! Imodium - swear by it!
Take care, lots of love
Ria & Jazzy XXX
Ria & Jazzy www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
England - Thursday, August 23, 2007 2:02 PM CDT
paulina
just wanted to come by and check onyou guys sorry andrew isnt feeling well i will keep you guys in my prayers and just know that i am thinking of you guys hugs kathy mom to angel katilynn
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, August 21, 2007 10:24 PM CDT
My love, thoughts and prayers to all of you for better days to come very soon!
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net (and) www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, August 21, 2007 5:44 PM CDT
Andrew I love the picture with your girlfriend. She's pretty cute. Tell mommy and daddy hi and big hugs to you and Alex! Talk to you in a little bit Paulina.
Holly Bays
Holly Bays
Kenton, Oh USA - Monday, August 20, 2007 6:36 AM CDT
Paulina, just know that Tom and I are praying for you and your family!
Tom & Deb Ellis <ctsellis10@fuse.net>
Warsaw, KY USA - Sunday, August 19, 2007 8:20 AM CDT
Popping by to check up on Andrew and your family. Sounds like it's been a tough few weeks...here's hoping Alex adjust well to school and Colin continues to make As! :) Sneding hugs and prayers your way.


Michelle Wojtasiak Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Saturday, August 18, 2007 7:46 PM CDT
Colin, Paulina, Alex and Andrew,
We are glad the boys are feeling a little better. What Brave little soilders they are. Our thought and prayers are with you all. Hope to see you all this weekend. If not this weekend maybe next. We have some good news to share with you all. Talk soon. Lots of Love and Hugs....Misty, Chris, Natalie and JoJo
Misty Jump <Mistyvp@hotmail.com>
Florence , KY USA - Thursday, August 2, 2007 8:27 AM CDT
What a couple of brave boys -I so hope both are feeling better now? many Hugs Laura and Will xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, August 1, 2007 2:05 AM CDT
Hey big guy I hope you are feeling better today, an your little brother too .MOM an DAD HANG in thier, Our Father in Heaven is watching over you an your children,Don't lose your faith in him ask an you shall receive what you need.God Bless you .
Connie Haarman <SEAJAY1@FUSE.NET>
FLORENCE, KY. u.s.a. - Thursday, July 26, 2007 9:15 PM CDT
Hoping everything went well.
Holly Weddell <weddell2031@hotmail.com>
Vallonia, IN - Thursday, July 26, 2007 2:56 PM CDT
I am keeping Andrew and your family in my prayers.
Melissa Mann <mann1015@hotmail.com>
Erlanger, KY United States - Wednesday, July 25, 2007 9:30 PM CDT
Praying for the whole family. Please update when you can.
Holly <weddell2031@hotmail.com>
Vallonia, in usa - Tuesday, July 24, 2007 11:02 AM CDT
pauline
i am so sorry that you are having to go thur all of this really i am.if you ever need to talk or just vent feel free to call me or email me i have that on my phone where i can call any where in the 606 or 859 area code so if your number is one of those i can call you and it wont cost a thing.just remember to hang in there and put all your burden on god and he will get you through them i promise.i know what it feels like to have your child go from been so happy and running and playing to doing nothing cause thats what katilynn did also.but keep the faith.i love you guys hugs kathy
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, July 17, 2007 9:12 AM CDT
HELLO ANDREW HOPE YOU ARE FEELING BETTER TODAY I HOPE YOU ENJOYED THE 4TH.OF JULY FIREWORKS IHOPE THEY DIDN'T SCARE YOU.. WE PRAY ANDREW THAT THE LORD WILL HELP YOU AN ALL THE LITTLE CHILDREN THAT HAVE THIS OLD DISEASE SO ANDREW YOU HANG IN THERE AN JESUS WILL HEAL YOU AN ALL YOUR LITTLE FRIENDS ALL YOU NEED TO DO IS SING HIS SONG JESUES LOVE ME AN SING IT REAL REAL LOUD SO HE CAN HEAR YOU SING IT EVERY DAY ALL DAY LONG.I'LL SING IT TO WITH YOU AN MOM.YOU ARE ALWAYS ON MY MIND AN IN MY THOUGHTS AN PRAYERS LOVE YOU AN YOUR FAMILY.
CONNIE HAARMAN <SEAJAY1@FUSE.NET>
FLORENCE, ky u.s.a. - Friday, July 13, 2007 8:35 AM CDT
Know you guys are ALWAYS in our thoughts and prayers. Thinking of you Paulina.

Stacey and Lucas MPS IIIB
http://www.caringbridge.org/visit/hopeforlucas
- Saturday, July 7, 2007 8:37 PM CDT
OUR PRAYERS ARE WITH YOU NIGHT AN DAY IF i CAN HELP YOU IN ANYWAY PLEASE CALL.CONNIE
Connie Haarman <seajay1@fuse.net>
florence, ky u.s.a. - Wednesday, July 4, 2007 12:45 AM CDT
Hi there,
I am another MPS mom. My son has Hurlers syndrome and I was just checking up on the other MPS families and read what a terrible week you have had. Please know that my family and I will say a special prayer for Andrew and all of you. Sometimes it seems as though the trials just keep on a coming. I would say you should of had your fill by now. But do know that there are so many people routing your family on.

www.caringbridge.org/mi/danielbosch
Hang in there,
Traci and Squeek
Traci Bosch <Tbosch@perrigo.com>
- Tuesday, July 3, 2007 12:27 AM CDT
DEAR Heavenly Father, as I come to you today pleases be with these family's that are dealing with this diesesa ,with their small an loving children we ask for your healing Grace,an your Holy Sprit to lift them up close to your heart an minster to ther needs an your love an support to all the MOM 'S an DAD'S ,AMEN
Connie Haarman <SEAJAY1@FUSE.NET>
Florence, KY. U.S.A. - Monday, July 2, 2007 7:56 AM CDT
Just checking in. How is the summer going for Alex? Is he ready for KINDERGARTEN?!!! I hope you'll get the opportunity to come to K Camp on July 30.

Hope Drew is feeling better now. Who do you see at GI? I just took Tori there today for a consult. Long story--- she'll have ultrasound and endoscopy soon. We saw Denson. Wondered if you knew him and what your impressions are.

Lots of love to all of you! Tell Colin good luck with his classes. I think he'll make an awesome nurse!

Jo Ann <indigoquinn@fuse.net>
Florence, KY USA - Thursday, June 21, 2007 9:19 PM CDT
Thanks for sharing your story! We keep you in our prayers. God Bless,

Donna Kay Langan <langandk@hotmail.com>
Hershey, PA USA - Thursday, June 21, 2007 7:42 PM CDT
thinking of you an your family may the Lord bless you an keep you in his heart
Connie Haarman <SEAJAY1@FUSE.NET>
Florence, Ky. U.S.A. - Monday, June 18, 2007 5:30 PM CDT
hey guys! just wanted to stop in and say im thinking about you all! my thoughts and prayers are always with you! love you!
Kacey <Kacey_beierlein1@eku.edu>
- Sunday, June 10, 2007 8:09 PM CDT
hi guys
just wanted to come by and see how you guys are doing i hope everything gets better real soon send my love,prayers and hugs to you all love kathy mom to angel katilynn
kathy and angel katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky USA - Saturday, June 9, 2007 2:39 PM CDT
Hi all, would firstly like to thank you for your wishes for Aaron he is a little better thank God secondly so glad to read its only over granulation, Aaron has had his mickey button 2 year this September and he still gets a little now and again our doc said he must be a good healer!!
Lots of love n hugs to Andrew
take care
love Michelle Aidie Aaron Ryan & Liam
Michelle Craig <Craigboys@blueyonder.co.uk>
Birmingham, UK - Saturday, June 2, 2007 2:34 PM CDT
Good morning,
I happy to read that it is granulation! At least that is something you deal with simply for the most part.
We think of you often.
Love and prayers,
Patty and Jesse
New Blog Spot for Natural Therapies and Supplements
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, June 2, 2007 7:30 AM CDT
Hi I was online looking for information for my neighbor whos 2.5 yr old boy was just diagnosed with Sanfilippo Syndrome. Thank you for sharing Andrew's story it has really helped us to understand things better.
Holly Sandnes <shradr36@comcast.net>
Hershey, PA USA - Saturday, June 2, 2007 7:22 AM CDT
hey!!! just wanted to say hi and see how Andrew is doing... I love you P.J
Brandi Shields <shieldsb1@nku.edu>
Verona, Ky - Friday, June 1, 2007 11:56 PM CDT
Hi Just checked in to read the update hope all is ok... mail me! Love Amanda x
Amanda Nimmo <nnimmoamanda@aol.com>
Banbury, UK - Friday, June 1, 2007 11:18 AM CDT
Hello...stopped by to send you hugs SmileyCentral.com.

http://www.caringbridge.org/visit/hopeforlucas
Stacey and Lucas MPS III B <lewnstacey@aol.com>
- Wednesday, May 23, 2007 1:10 PM CDT
Hello Miss Paulina I would love to see you and the boys I miss you I phoned and spoke to Colin the day we were supposed to come out yet you were just returning from the hospital if the opportunity arrives please contact me so we can get together
Tara Bleier <Tara.Bleier@insightbb.com>
Dry Ridge, KY - Tuesday, May 22, 2007 10:50 AM CDT
I love the photo. I think of you often and keep you in my prayers. I have enjoyed the Christmas photocard and still have it on my fridge. Sending you love.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Tuesday, May 8, 2007 9:26 PM CDT
just wanted to come by and check on you guys.i hope andrew gets to feeling better hugs and kisses kathy
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, May 7, 2007 9:32 AM CDT
Hello guys-

It sounds like you guys have been very busy these days. I hope you can find some time to relax and be "bored". You are always in our prayers....
Tabby & Mom (Karen) <karenpuddn@comcast.net>
- Friday, May 4, 2007 3:31 PM CDT
Hey guys. Stopping in to see updates on the little man. Sorry about the swallowing test. Love the new pictures of the family. We are praying for you!
Andrea Longston <andrea.longston@gmail.com>
Green Bay, wi usa - Tuesday, May 1, 2007 10:35 AM CDT
Hi Paulina

I am so sorry that the swallow study showed further deterioration of his chewing and swallowing. As you know it is better to have this information so you can prevent aspiration. I love the picture of Andrew with Colin. You two are such good parents. The boys are very blessed to have you.
leslie jurado <lesliejurado@rhtc.net>
rock hill, sc - Saturday, April 21, 2007 12:00 AM CDT
HI FROM TURKEY MY ENGLIS IS NOT GOOD, BUT I SAY TO YOU,
Whatever a man prays for, he prays for a miracle. Every prayer reduces itself to this: "Great God, grant that twice two be not four." -- Ivan TURGENEV


RIFAT ÖZÇELIK <rifatozcelik@yahoo.com>
ANKARA, TURKEY - Thursday, April 19, 2007 2:28 PM CDT
Hi guys! We are sorry to hear about your not so good news with the swallowing test. We think of you often and keep you in our prayers! Hopefully warm weather is on it's way!!

Love ya!!
David, Amanda & Aubrey New <anew1324@fuse.net>
- Wednesday, April 18, 2007 1:33 PM CDT
Sorry from my lack of visits lately....we have just been busy!
I am sorry to hear Andrew is struggling so much lately. I hope things will get better for all of you soon! Hope you are getting some sushine today! You are never far from our thoughts....
Karen & Tabby <karenpuddn@comcast.net>
- Sunday, April 15, 2007 11:29 AM CDT
Hi Paulina & Andrew, just stopping by to say 'Hi'!
I really hope Andrew's sleep pattern settles, I know how hard that can be. Just want you to know that I'm thinking of you & sending lots of love your way,
Louise & Georgia
xx
Louise Lewis (mum to Georgia)
chepstow, uk - Saturday, April 14, 2007 5:10 PM CDT
Praying that Andrew soon has better days, and nights!


Have a Blessed Easter,
Love,
Patty and Jesse
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, April 7, 2007 5:42 PM CDT
Hope the bunny is good to you and Alex. He actually waved to me FIRST today-- I think maybe he has finally forgiven me for his haircut! Have a nice Spring Break.

Jo Ann <jmccaughan@gallatin.kyschools.us>
- Thursday, April 5, 2007 11:34 AM CDT
Stopping by to wish you a happy and blessed Easter and to let you know that Andrew as well as his entire family are in my thoughts and prayers.
Jennifer from the prayer bears <sassy_girl913@yahoo.om>
Bridgeport, Texas - Thursday, April 5, 2007 11:08 AM CDT
Hi Everyone. Just a wee note from Scotland to say we are thinking of you.

Take care. Lots of Love

The Broadleys

www.caringbridge.org/visit/lewisbroadley
Gordon Broadley <gordon_broadley@hotmail.com>
- Friday, March 30, 2007 11:50 AM CDT
Hello there just wanted to send our love to Andrew & you all. Andrew you are very handsome lots of love to you and your family
take care
love
Michelle Aidie Aaron Ryan & Liam xxx
Michelle Craig <Craigboys@blueyonder.co.uk>
Birmingham, UK - Sunday, March 25, 2007 4:31 PM CDT
Hi All Nice new pictures....! I have sent some easter sweets for the kids mail me when you get them!! I check by every other week! will show mum the new pics.
Amanda Nimmo <nnimmoamanda@aol.com>
banbury, England - Thursday, March 22, 2007 8:29 AM CDT
Hi Andrew and Family
My name is Jenna and I came across Andrew's site. He is an amazing boy, such a fighter. He is in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <fighter_smiley@yahoo.ca>
Kamloops, BC Canada - Tuesday, March 20, 2007 0:11 AM CDT
HOI andrew.
You look some much like my boy Tim (10) . He also has a loos teeth and needs to go to the dentist. We are also watching him during the night because he had epileptical activity.We are looking forward to the summer so we can bike and anjoy de sun outside.Tim can still walk a little but we have to take his hand (Sometimes he falls).


Marja <J.vanden.enden@hccnet.nl>
Honselersdijk, The netherlands - Monday, March 19, 2007 9:59 AM CDT
Praying that all went well today with the denistry.
Hugs to you all!
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Friday, March 16, 2007 4:21 PM CDT
Hello Superman! Doesn't sound like you are feeling well, we will keep praying that this changes soon. Thinking of you Paulina and Colin.
Stacey and Lucas
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aol.com>
cedar rapids, ia - Friday, March 16, 2007 3:28 PM CDT
Hello Andrew and Andrew's family.... My nephew was recently diagnosed with Sanfilippo Syndrome, MPSIIIB and I found some info about Pre-clinical studies at Columbus Children's Research Institute. Do you happen to have any info on this?
Lynne Travers <ltravers@cambridgebmg.com>
Malden, MA USA - Wednesday, March 14, 2007 9:30 PM CDT
our thoughts are with you guys we hope that andrew we hope that the seizure will leave him.hugs kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Sunday, March 11, 2007 10:05 PM CDT
Our prayers continue for Andrew and your family. I know you will make the best decision regarding CT testing.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, March 3, 2007 8:55 PM CST
Just stopping by to check on my favorite superman. I hope this virus clears up soon. Big hugs
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Saturday, March 3, 2007 6:59 AM CST

Hi Andrew
We wanted to stop by and say "Hi". Hope your congestion doesn't turn into anything.
Hugs,
Kim & Scotty <cottons@earthlink.net>
Modesto, CA - Wednesday, February 28, 2007 1:18 PM CST
I just wanted to stop by and say How cute I think that picture is of Andrew!!!! I am so glad that his Shunt is working and I hope the other things straighten out soon to!
Sending my love, Erica www.caringbridge.org/wi/ericathiel
Erica T <scheiecat@yahoo.com>
- Wednesday, February 28, 2007 11:07 AM CST
Just stopped by to check on Andrew. Hope things start looking up.
Holly Weddell <weddell2031@hotmail.com>
Vallonia, IN - Monday, February 26, 2007 4:04 PM CST
So happy to hear that his bowels are moving some days on his own with the Miralax at least. Still praying about the other issues. I can't say I blame you about not being sure of the Carpal Tunnel testing.. I too have had that done and it is quite painful. :-( I'm sure you will decide whatever is best for Andrew pending how bad off he seems in that area.
Hugs and prayers,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Sunday, February 25, 2007 2:43 PM CST
Sorry I've been gone so long...
Try giving a senna tablet each day, opposite the Miralax. For example, if he gets the capful of it at 9am, give the senna tablet at 9pm. I think you will see an improvement. AFO braces did wonders for Lindsey's balance and walking. I wish we had done them a year earlier than we did. Hope things continue to improve. Much love to y'all...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, February 25, 2007 2:25 PM CST
Hello Jump Family!!! We are always thinking of you guys. I hope things are getting better for Superman. Sending Prayers and Hugs your way!

Stacey and Lucas MPSIIIB
http://www.caringbridge.org/visit/hopeforlucas
- Saturday, February 24, 2007 3:10 PM CST
Hi Paulina,

So sorry to hear that poor Andrew has been ill - not been on sites for so long due to being in hopsital for 5 weeks with Jasmin - Thank you for your messages of love & pray for us, much appreciated.

I hope that all is ok now with Andrew, and that he has settled into a more regular sleep pattern - you need sleep!

Read through your guestbook (I'm a nosy devil! LOL!) and see you have English relative - Banbury where they live is about 1 hour from my house!

Much Love,
Ria & Jasmin XXX
www.caringbridge.org/hi/jasminmay <riaheap@aol.com>
Gloucestershire, England - Saturday, February 24, 2007 12:20 AM CST
Miss you little buddy! Now that the ice and snow are melting, y'all better watch out for the FLOOD!!! Just kidding! Hope I can come by soon-- I need a hug!
Jo <indigoquinn@fuse.net>
- Wednesday, February 21, 2007 7:47 PM CST
thank you for your website, I am about to start looking af ter a child in school with MPS 3 I was hoping to find some insight into how, as a teacher I could care, help and understand this child. I hope you all the very best. Regards Gay
Gay <gay.sherwood1@virgin.net>
Wales, UK - Wednesday, February 21, 2007 3:06 AM CST
Hey Drew,

Glad to hear you are on the upswing. Your parents know how to take care of you even if those doctors are clueless! Hope you are all staying warm.
Jo <indigoquinn@fuse.net>
- Friday, February 16, 2007 7:04 AM CST
Hi Colin Paulina Andrew and Alex, Sorry your having a tough time at the moment hope your feeling better as each day passes. I check in on you most days. See you soon Auntie Amanda xx
amanda nimmo <nnimmoamanda@aol.com>
banbury, England - Thursday, February 15, 2007 11:34 AM CST
Hi Paulina!
I stop to check on . Sad to know he is not feeling good. Poor Andrew. I hope he feels better soon and this won't happen again. I think of you often. Keeping you in my prayers. for Andrew.

Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Monday, February 12, 2007 8:25 AM CST
Oh poor Andrew, I'm sure he feels so weak and tired from all the bm's. Sure hope they can do something for him so he won't have to go through this experience again :o(
Hugs,
Rebecca & Nathan
www.caringbridge.org/visit/nathanbivens

Rebecca Bivens
- Sunday, February 11, 2007 1:22 PM CST
Just stopped by to check on Andrew. I will continue to pray for him and the whole family
Holly Weddell
Vallonia, IN USA - Friday, February 9, 2007 3:51 PM CST
hi guys
just wanted to stop by and check on andrew i hope he gets to feeling better real soon and gets to using the bathroom better give hugs from me and katilynn we will be back to check on you guys soon hugs and kisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky u - Wednesday, February 7, 2007 5:53 PM CST
Hey Buddy! Sucks that you can't poop! Hope y'all got home from the hospital before all this crazy snow started. It took me 2 hours to get home from school today!!! Stay warm!
Jo
- Tuesday, February 6, 2007 4:03 PM CST
Hi, Paulina! Sorry to hear of Andrew's issues. Hopefully you'll get the information you need to help him out. I know it can be miserable. Hang in there and know many are thinking of you guys and wishing you well!

Mieke Embry, mom to Luke (MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Tuesday, February 6, 2007 9:47 AM CST
Paulina
I am so sorry to hear that Andrew is having such a time with moving his bowels again. This must be so uncomfortable for him. How we take the simplest things for granted like just being able to poop before life with MPS. I hope that the Miralax works soon and that he doesn't continue to vomit and need to go back to the ER. You are in my prayers.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Monday, February 5, 2007 9:06 AM CST
Just stopping by to let you know that Andrew is in our prayers, I hope the new medicine will make a difference. MPS/ML SUCK!!! Love you. (((HUGS)))
The Haggett's, John, Brenda & Zachie
Brenda Haggett I-Cell mom <Jhrufus@aol.com or www.caringbridge.org/visit/zachie>
Syracuse, ny usa - Sunday, February 4, 2007 4:14 PM CST
Paulina,
I am sorry that I cannot be there to help you out somehow. I will be praying for Andrew and your family. I know it doesn't seem like much sometimes. But I know it does help!
Love and hugs,
Patty and Jesse MPS III
PattyT <wordinedge@aol.com>
Balto, MD USA - Sunday, February 4, 2007 10:41 AM CST
Hello anderw you know as well as I do. superman is a hero as you are mine. take care and we will talk soon.
tim w. allred <intimadator@bellsouth.net>
- Saturday, February 3, 2007 9:38 AM CST
I love kids. We are going to help your little boy by doing a poker run for him this summer. I wish you well and hope things get better for you.
Jean Lewis <lewisjeanm@hotmail.com>
Ewing, ky Fleming - Saturday, February 3, 2007 6:27 AM CST
Paulina!
Stop by to check on Andrew. He looks so cute as superman. I am so sorry he is having hard time. I can imagine how you must be feeling with his sleeping issues. I hope putting him back on seizure medication helps. I am praying hard for his comfort and your strength.

Photobucket - Video and Image Hosting

Tayyaba, Abeerah, Khansa & Zahra
NJ <mps_stinks@yahoo.com>
- Friday, February 2, 2007 10:50 PM CST
Hi Andrew! You sure are Superman!!! Your strength just amazes me. I'm sorry you are having such a hard time with sleep and the bathroom. Maybe you and Kraig can call each other and chat on your sleepless nights, as he seems to have them quite often, too.
Love, Kris and Kraiggy
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Thursday, February 1, 2007 7:04 AM CST
Hi Andrew, have just read your journal and sorry to hear you are not too good at the moment, I hope you feel better soon. Lots of hugs for you
love
michelle aidie aaron ryan & liamxxxx
michelle craig <craigboys@blueyonder.co.uk>
Birmingham, UK - Wednesday, January 31, 2007 4:26 AM CST
Hey Drew! I'm still at work and I thought i would see how you are doing. I miss your sweet smile! Tori has to have an EEG on Friday to rule out seizures so we may run into you at Neuro one day. I hear Alex's hair is getting awfully long... I'll have to drop by to visit and bring my clippers!
Jo <joann.mccaughan@gallatin.kyschools.us>
- Tuesday, January 30, 2007 3:27 PM CST
Paulina,
I am keeping Andrew in prayer. I was hoping to find a better report this week. Constipation sure can cause major problems for our guys! If you need another tea to try, there is one out there call "Smooth Move". It has Senna in it to move the bowels. Another mom gives it every other day to her son.
Love and hugs
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Saturday, January 27, 2007 6:05 PM CST
HELLO GUYS......I LIKE YOUR WED STIE!!!!!!!!!! WONDERFUL PICTURES......LOVE YOU ALL
CASEY HAWKINS <caseyfaye24@yahoo.com>
WARSAW, KY 41095 - Friday, January 26, 2007 2:58 PM CST
Dear Colin Pauline Andrew and Alex, Nanny has visited your web page and seen your photos, Colin your doing a good job the boys look happy and Alex looks cheeky! Looks after yourselves Lots of Love Mum and Nanny FROM ENGLAND
Janet Bullock <nnimmoamanda@aol.com>
Banbury, England - Sunday, January 21, 2007 6:16 AM CST
Dear Colin, Paulina, Alex, and lastly the special little boy ANDREW, your photos are very special and a way of showing me here in england, I am thinking of you, and if you check this today COLIN make sure your home when i call! I want to talk to you!! Lots of Love your sister Amanda, David, Sophie and Cameron xxxxx
Amanda Nimmo <nnimmoamanda@aol.com>
Banbury, , ..,/ ENGLAND - Sunday, January 21, 2007 3:16 AM CST
Just checking in. Want you all to know that you are always in my prayers!
Jo <indigoquinn@fuse.net>
- Saturday, January 20, 2007 6:22 PM CST
thinking of you and andrew!!!
much love,
kim and Ty
kim downham <momtoty@yahoo.com>
houston, - Sunday, January 14, 2007 11:19 PM CST
Heres hoping for a better 2007 for you. Hang in there. Will be keeping in touch.
Phil "Ghostrider" & Terri "Suicide Blonde" Maggard <Ghostrider52005@alltel.net>
Olive Hill, ky USA - Sunday, January 14, 2007 9:40 PM CST
I love the smiling picture of Andrew. He and Alex are both so handsome. I pray that 2007 will continue to go well for your family. You certainly are due for some easier times. You are such a sweet and caring person Paulina. Thanks for all your advice with Izzy.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Saturday, January 13, 2007 8:22 AM CST
Hey there Drew-- glad to hear you are feeling a little better. That pic on the front page looks so much like the Drew I remember! What an amazing smile!!!
Jo <indigoquinn@fuse.net>
- Friday, January 12, 2007 7:52 PM CST
HAPPY NEW YEAR!!!!! sO ELATED TO HEAR THE LATEST NEWS ABOUT ANDREWS'S SHUNT!!!! AMEN!!!!!!!
LOTS AND LOTS OF LOVE AND HUGS AND OF COURSE OUR PRAYERS,
LOVE, THE HAGGETT'S,
JOHN, BRENDA AND ZACHIE!!!!
Brenda Haggett <JHRUFUS@AOL.COM WWW.CARINGBRIDGE.ORG/VISIT/ZACHIE>
SYRACUSE, NY USA - Sunday, January 7, 2007 8:14 AM CST
Hello to the Jump Family!!

I am glad to hear Andrew is doing well. I hope you all have a much better and wonderful 2007.

Love,
Sheila and Shelby MPSIII
www.caringbridge.com/tx/shelby
Sheila George <sjgeorge1013@cox.net>
Edmond, OK USA - Saturday, January 6, 2007 11:15 PM CST
Hey Jump Family! We hope that the new year is less challenging for you. We love you guys! We think of you and pray for you often!

Love, The New Family <anew@midway.edu>
- Saturday, January 6, 2007 9:51 AM CST
Just popped in to check on my boy! Glad things are going better. Here's to another healthy week!!!!
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
- Friday, January 5, 2007 11:57 AM CST
Hi Paulina and Andrew,
Thank you for visiting Lewis' page. We would like to wish you all very best wishes and every happiness for 2007.
Take Care
The Broadleys
Norma Broadley <normabroadley@hotmail.co.uk>
Falkirk, Scotland - Thursday, January 4, 2007 7:48 AM CST
HAPPY NEW YEAR SUPERMAN!!!!!
PAULINA~ YOU ARE ALWAYS IN MY THOUGHTS AND PRAYERS
SmileyCentral.com

STACEY AND LUCAS MPS III~B
http://www.caringbridge.org/visit/hopeforlucas <lewnstacey@aim.com>
- Tuesday, January 2, 2007 2:32 PM CST
I'm praying that you and your family will enjoy a very blessed 2007.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Monday, January 1, 2007 3:27 PM CST
Dear Paulina, Andrew & family,

We wish you a very happy and stable 2007. We're praying for a breakthrough in MPS research for all the children suffering from this disease. We hope that Andrew will have a good 2007 without too many hospital visits! Our prayers are with you all.
Linda, Ad, Anthea, Stijn, Lucas and Julian van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Monday, January 1, 2007 4:37 AM CST
Image hosted by TinyPic.com
Happy new years… Praying it’s a healthy one
hailee

melissa <angels4hailee@nc.rr.com>
west end, nc usa - Sunday, December 31, 2006 12:45 AM CST
Dear Paulina & Andrew, just want to wish you all a very happy, healthy & Peaceful new year, lots of love, Louise & Georgia xxxxx
Louise Lewis <louise.lewis@udex.com>
chepstow, uk - Friday, December 29, 2006 3:41 PM CST
Hello! Hope you had a wonderful Christmas and hope your New Years is good too!

David, Amanda, & Aubrey New <anew@midway.edu>
- Friday, December 29, 2006 9:22 AM CST
MERRY CHRISTMAS ANDREW AND FAMILY
LOVE TOSHA AND SYDNEY VANHOOK
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYNIKOLEVANHOOK
TOSHA VANHOOK <HURLERMOM101@hOTMAIL.COM>
- Sunday, December 24, 2006 12:59 AM CST
Happy Christmas and I pray next year there are more answers then questions.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
london, Uk - Sunday, December 24, 2006 5:20 AM CST
Paulina/Andrew,
Hey guys! I love the picture with the matching shirts. Such handsome guys! I'm glad Andrew is feeling much better and is laughing more. Also, that you don't have to go out for Christmas! We are traveling a ways so it will be interesting! Give everyone a hug and we hope you have a MERRY CHRISTMAS. Praying for you guys!
Love from Green Bay!
Andrea, Shake your booty-Rachel, Chris and Zach <andrea.longston@gmail.com>
Green Bay, WI USA - Tuesday, December 19, 2006 3:47 PM CST
Paulina,

Thank you for your help. I love Andrew's site. He is a doll. I have learned so much about MPS through Andrea and Rachel. I will keep you posted on the "news", if we get any.

We will keep your entire family in our prayers, right next to Andrea and Rachel.

Love,

Anne
Anne Pelnar-Thayer <anne@pelnar.com>
Green Bay, WI - Tuesday, December 19, 2006 1:30 PM CST
Sorry to hear Andrew has had such a hard time recently. I'm glad the shunt is now working properly. I'll keep Andrew and the whole family in my prayers.
Christina
- Wednesday, December 13, 2006 11:14 PM CST
I just wanted you to know that I am praying for you today, Drew. Miss you!
Jo Ann <joann.mccaughan@gallatin.kyschools.us>
- Tuesday, December 12, 2006 7:06 AM CST
Praying that you get answers tomorrow when you go in for the MRI. Give Andrew some gentle hugs from us!
Love and prayers,
Patty and Jesse MPS III A
PattyT <wordinedge@aol.com>
Balto, MD USA - Monday, December 11, 2006 6:47 PM CST
Dear PAulina

I pray that Andrew is doing better than your last update as far as the vomiting is concerned. PLease know that I am praying that the doctors can determine the problem with the shunt with the MRI tomorrow and that all his issues will be resolved soon. I am so sorry that things continue to go so poorly with Andrew. I know that this has been a very difficult year for all of you. Hopefully 2007 will be a year of peace and joy spent with your superman!
Leslie Jurado <lesliejurado@rhtc.net>
- Monday, December 11, 2006 8:07 AM CST
I wish I knew some suggestions to offer...only my prayers and thoughts that things will improve. I'm sorry Andrew is feeling so bad and y'all are so frustrated. It's just not fair. All my love and support to you...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, December 10, 2006 4:22 PM CST
Paulina,
I am so sorry to hear this latest update. I tried to call you and could not get through- I don't know if I had the wrong number?? but it kept ringing busy??

Call me if you need anything- I am sorry I missed your call the other day!!
I am praying for Andrew and your whole family. Have faith, sweetie, we are thinking of you and saying many prayers.
Love,
Kim Downham <momtoty@yahoo.com>
Houston, TX - Friday, December 8, 2006 9:25 PM CST
Paulina,

Just checking in for an update on Andrew. I hope the new pressure setting worked out and his ventricles were looking smaller on the CT on the 28th. Thinking of all of you and praying for our little "Baby'at" Andrew!- also praying that his body is able to adjust to the shunt and that he will beging to show some real improvement.

Love,
Kim Downham <momtoty@yahoo.com>
Houston, - Friday, December 1, 2006 9:59 PM CST
Hi Paulina & Andrew! Love the photos, Andrew is just adorable! Just wanted to stop by & let you know that we're thinking of you.
Louise Lewis (mum to Georgia) <louise.lewis@udex.com>
chepsto, UK - Friday, December 1, 2006 2:59 PM CST
Thinking of your whole family.
Holly Weddell
Vallonia, IN USA - Tuesday, November 28, 2006 10:15 AM CST
Miss you guys! Hope you got the tree up and Drew got it back down! Does Alex need another haircut??? Tell him I'm ready when he is!
Jo Ann <indigoquinn@fuse.net>
- Sunday, November 26, 2006 1:22 PM CST
Hi Jump Family,
I'm so sorry to hear about Andrew. I'll pray that you will have the peace to know what's the right decision about surgery. We have to keep Nathan at home and not take out around family due to a behavior that the doctors haven't quite pinpoint, so I know what you mean about staying at home. We aren't even able to put a Christmas tree due to it making Nathan confused??
Make you & your family have a blessed Thanksgiving!
Hugs,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens

Rebecca Bivens
- Wednesday, November 22, 2006 8:59 AM CST
I hope and pray that Andrew's shunt problems can be corrected and that he will be feeling much better real soon. My prayers are with Andrew and his family this Thanksgiving.
Kathy <jkmm@cetlink.net>
Rock Hill , SC - Tuesday, November 21, 2006 3:56 PM CST
I am praying for Andrew's ventricles get smaller and that you all are able to have a happy Thanksgiving.
Jennifer from the prayer bears and ones who caree <sassy_girl913@yahoo.com>
Texas - Monday, November 20, 2006 11:33 PM CST
Tell Andrew to get better we want to hear how many times "superman" pulled down the Christmas tree this year!! Paulina, you are in our prayers during this difficult time. You have made me be thankful for the "little" things once again. Sometimes I lose sight and I want the easy way. For example, prior to reading your post I was debating putting our Christmas tree downstairs this year out of Lucas' grasp. I did not feel up to cleaning up the broken ornaments and picking up the tree out of the floor every day. But one day I might miss this~ so Lucas will be able to pull the tree down as many times as he wants!! Hugs to all of you. We love you guys!
Stacey and Lucas MPS IIIB www.caringbridge.org/visit/hopeforlucas
CedarRapids , IA - Monday, November 20, 2006 9:12 AM CST
Many prayers for Andrew.....I am so sorry to hear that he is not feeling so good, I hope they figue out the right pressure setting for him and he bounces back real soon..
Shannon Cherpes-mom to Payton-MPSll www.caringbridge.org/visit/paypay Alexis,Cheyenne and Hunter <cookie_sc2000@netzero.net>
Ionia, Mi United States - Saturday, November 18, 2006 1:37 PM CST
Sending Many prayers to that sweet Andrew, I'm so sorry he is having so many issues with the new shunt but we'll keep praying that his body will adjust to it and he will feel better soon.
Many Hugs to you Paulina and Colin, I know how hard it must be still worrying about the shunt.
Prayers, Prayers, Prayers!!!
Bren
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY usa - Thursday, November 16, 2006 9:28 AM CST
Dear Paulina,

I'm so sorry to hear about your great Superman. I hope he will feel better very soon again. Our thoughts and prayers are with you and your familiy. Give hugs and kisses to Andrew.

Love ,

Linda van der Wielen-Olman
Linda van der Wielen <linda.olman@planet.nl>
Amsterdam, The Netherlands - Thursday, November 16, 2006 6:24 AM CST
Hi, Paulina! Just checking in to see how Andrew is doing. Sorry to hear of his recent issues. Hopefully the adjustment will make a noticable difference. Hang in there! Many people are thinking of you guys and praying for you, as well!

Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Monday, November 13, 2006 4:02 PM CST
Paulina,
I'm hoping that this msg finds Andrew feeling better. I'm hoping you get some more information in the coming weeks.

Lots of love to you both,
Amy & Owen
http://www.savesweetpea.com
Amy Donaldson <kiwicaleb4@yahoo.com>
- Monday, November 13, 2006 3:41 PM CST
Thank you so much for signing Alerico's guestbook and for your prayers and encouragement. It does mean a lot. I will pray for Andrew also. I didn't realize he was having problems. God Bless you all!!!
Tina <alericosmom@comcast.net>
- Sunday, November 12, 2006 10:07 PM CST
Hi Paulina, I'm glad you told me about Andrew's page... its really neat! You are a great person all the things you go through... you are like my role model. Andrew is really lucky to have a mother like you, im sure he wouldn't ask for any one else! My prayers are with Andrew and your family!! YOU ROCK!!! i love you!! Brandi
Brandi Shields <shieldsb1@nku.edu>
Verona, kentucky - Sunday, November 12, 2006 1:21 AM CST
Sorry to hear the news on Andrew. Prayers coming from Indiana.
Holly weddell
Vallonia, IN - Friday, November 10, 2006 3:03 PM CST
Im so sorry to hear that Andrew is not doing well. I know it must take a toll on you seeing him so sick. Its not fair that these kids have to go through so much and still have this devastating disease. I am praying for Andrew to feel better and for strength for your family.
Liz Hindson (Izzy's aunt) <lizcon@yahoo.com>
- Friday, November 10, 2006 9:55 AM CST
I'm so sorry that Andrew still isn't feeling well!! I hope they find the cause of this so he can start feeling better soon!
I think of you guys all the time! I am continuing to keep Andrew in my prayers! I hope all goes well with the appt on the 17th!
Jenn Deskins <tylersmommy11304@yahoo.com>
- Thursday, November 9, 2006 11:36 AM CST
Great pic! So glad things are continuing to improve. Let me know when he starts asking for "she she" and I will be ther at the drop of a hat!


Jo Ann <indigoquinn@fuse.net>
- Wednesday, November 8, 2006 8:11 AM CST

I am so glad to see those smiles are still coming "Superman".

Stacey and SmileyCentral.com
http://www.caringbridge.org/visit/hopeforlucas
Cedar Rapids, IA - Monday, November 6, 2006 10:30 AM CST
I'm glad to read that Andrew is improving. My prayers continue for your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Thursday, November 2, 2006 11:23 PM CST
So glad that you are seeing some good results with Andrew since the surgery. Hopefully the sleep will improve as well in time! Either way, the eating, laughing and smiles, and being more alert has to be a joy to have again!! Praise God!!
Hugs and prayers for you all,
Patty and Jesse MPS III A

Patty T <wordinedge@aol.com>
Balto, MD USA - Thursday, November 2, 2006 7:20 PM CST
Yeah, we are glad to hear you are sharing you laughter again Andrew!!! Hope you enjoyed Halloween. We are just trying to stay warm our way!!!! SmileyCentral.com This is how Lucas looked this morning waiting for the bus hehehehe.
Keep sharing that laughter big guy!! We think of you guys often.
Stacey and SmileyCentral.com MPS III~B
http://caringbrige.org/visit/hopeforlucas

The Montgomery's
Cedar Rapids, IA - Thursday, November 2, 2006 12:09 AM CST
Glad Andrew is doing better.
Holly Weddell <weddell2031@hotmail.com>
Vallonia, IN - Thursday, November 2, 2006 9:55 AM CST
Hi Andrew,
Hope you got lots of goodies yesterday. I ate too many candybars and I've had a stomachache all day. Why you would think a mommy would know better than that. Nathan didn't go out yesterday but he helped me eat treats.

Have a good week Andrew! Sorry it took me so long to find your site.
Hugs From NC,
Rebecca & Nathan MPSII
www.caringbridge.org/visit/nathanbivens

Rebecca Bivens
- Wednesday, November 1, 2006 5:33 PM CST
Happy Halloween. :) We hope Andrew is feeling better. You are in our thoughts and prayers. With Love, Misty, Chris and Natalie
Misty <Mistyvp@hotmail.com>
Florence , ky USA - Tuesday, October 31, 2006 2:58 PM CST
colin I LOVE U!!!!! ur r my best buddy!!! and if u dont know this I will do anything for u!! Paulina dont mean to exclude u, but this is my man!!! hahaha!!
SERIOUSLY!!! I am there for u guys!!
cheryl
- Friday, October 27, 2006 5:53 PM CDT
Hey Jump Family,
I was just given the website and wanted to let you know that you were in our thoughts and prayers and hope everything is going well.
Josh, Stephanie & Canen Neale and Alivia Boots <stephboots8175@yahoo.com>
Sparta , Ky USA - Tuesday, October 24, 2006 3:17 PM CDT
Andrew you truly are a "super" boy! I pray you continue to gain strength and stability. Hope you are able to smile, laugh and play more and more soon! Much love to you and your family. k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, October 23, 2006 12:39 AM CDT

Andrew & Paulina
I'm so happy everything went well with Andrew's surgery. I know how difficult the decision to do it was for all of you. I love the new background! Andrew is SUPERMAN!
Thank you for checking up on Scotty during his hospital stay, it really meant a lot to us.
Hugs,
Kim & Scotty MPS II <cottons@earthlink.net>
Modesto, CA - Monday, October 23, 2006 9:15 AM CDT
So glad to see you guys are home already! Wishing Andrew a speedy recovery from the surgery.
Hugs,
Anita, Robb and Ricky
Anita Hodgkins <achodgkins@aol.com>
Houston, TX USA - Friday, October 20, 2006 10:27 PM CDT
As I read your update, I imagined my own thoughts back 2 1/2 years ago...it is awful seeing our children sick like this. So my heart goes out to you! I pray everything continues to go well and your little man is back to his happy little self again soon. Hang in there and know I love y'all...k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, October 20, 2006 10:39 AM CDT
Praying for Andrew and your family.
Liz Hindson (Izzy's aunt) <lizcon@yahoo.com>
Clemson, SC - Thursday, October 19, 2006 3:54 PM CDT
My thoughts and prayers are with all of you. Although I am now in South Carolina, a part of your family will always be wtih you.

Anne
Anne Kinsman <anne@kinsman.info>
Greenville, SC - Thursday, October 19, 2006 2:10 PM CDT
Lots of love & prayers! Calvary Christian Church is praying too. I am thankful for this website, I understand more now than I ever did before. Thanks you for being so brave to keep it updated! Lots of love, Jaime, Brian, Savannah & Hunter
Jaime Delaney <DfamDelaney@aol.com>
Independence, KY USA - Thursday, October 19, 2006 8:05 AM CDT
Just stopping by to let you know that Andrew and you and your whole family are in our prayers today! May everything go well today and Andrew be relived of the pain he has been in. I pray you see that happy guy you saw just only a year ago again.
Hugs and Love,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Wednesday, October 18, 2006 5:49 AM CDT
tomorrow will be rough for you. We are praying for you and hope that it all works out for the positive and for less pain for Andrew. We love your little family and are prayer warriers for you.


Love, David, Amanda & Aubrey New <anew@midway.edu>
- Tuesday, October 17, 2006 8:44 PM CDT
I will be praying tomorrow for Drew and for all of you. I hope this will bring him some relief. Call if you need anything at all.
Jo Ann <indigoquinn@fuse.net>
- Tuesday, October 17, 2006 8:40 PM CDT
Paulina & Colin: LOVE YOUR FAMILY PICTURE! YOU ALL LOOK GREAT. GOOD LUCK WITH SURGERY TOMORROW. I'LL BE PRAYING FOR YOU'S. I DON'T KNOW HOW YOU DO IT ALL AND WORK TOO. YOUR VERY STONG WILLED. KEEP YOUR CHIN UP! LET ME KNOW HOW THINGS GO. I'LL BE THINKING OF YOU'S.
DEBBIE D <www.dsmith4235@aol.com>
FLORENCE, KY USA - Tuesday, October 17, 2006 6:38 PM CDT
Paulina

I just love the family picture. I know tomorrow is the big day for surgery. I am praying that God will grant you peace as you wait, guide the surgeons hands, and that the shunt will provide a better quality of life for your baby. Thanks for signing Izzy's site. I feel guilty for complaining about the behaviors when you are facing much bigger issues. I will be praying very hard tomorrow morning. All my love
Leslie Jurado <lesliejurado@rhtc.net>
- Tuesday, October 17, 2006 9:49 AM CDT
Prayers coming your way from Indiana.
Holly Weddell <weddell2031@hotmail.com>
Vallonia, IN - Tuesday, October 17, 2006 7:45 AM CDT
I love the new family picture...it's great. I pray the surgery goes well and your happy boy returns soon! Much love to you and your family. k
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, October 16, 2006 4:28 PM CDT
Good Luck Andrew for he 18th we will be thinking of you sweetie!
SmileyCentral.com lots of love Laura and Will xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham , England - Thursday, October 12, 2006 3:09 PM CDT
Photobucket - Video and Image Hosting
Happy birthday, Andrew!!!
Happy birthday, Alex!!!
I am keeping you guys in my thoughts and prayers over the next few weeks. I know all of this is difficult, but I pray that you will have peace with every decision and know that you are not going through this alone.
I love you guys!
Leslie Phillips <Leslie42457@yahoo.com>
Winston-Salem, NC USA - Tuesday, October 10, 2006 8:32 AM CDT
HAPPY BIRTHDAY TO MY TWO FAVORITE KENTUCKY BOYS!! WE LOVE YOU GUYS!!
BRIAN,HOLLY,BRIANNA,CARTER,MAKENZIE BAYS
HOLLY BAYS <baysfmly@windstream.net>
KENTON, OH USA - Monday, October 9, 2006 7:44 PM CDT
Photobucket - Video and Image Hosting

I just wanted to send both Andrew and Alex a Happy Birthday Shout!!! I hope you both have good days to celebrate!!!
(((Hugs and Kisses)))
Patty and Jesse MPS III A

Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, October 9, 2006 6:00 AM CDT
Praying for all of you as you face Andrew's shunt surgery on the 18th. May God give you peace and calm in the coming days. Andrew is so blessed to have such a wonderful family, and you all are blessed to have this special angel in your midst.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, October 7, 2006 6:52 PM CDT
I know this was a huge decision for y'all...God is Good because he showed you the right direction for Andrew. Every MPS kid is different. We'll all pray this makes drastic improvements for Andrew...he deserves it! Much love to you and your family. kle
Karen, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Thursday, October 5, 2006 7:32 AM CDT
PAULINA, THINKING OF ALL OF YOU! ESPECIALLY AS ANDREWS BIRTHDAY APPROACHES. GIVE ANDREW A "LOVE TAP" FROM LUCAS, AND LET HIM KNOW THAT LUCAS HOPES HE HAS A "SPECIAL" B-DAY!! PRAYING FOR YOU....
STACEY MONTGOMERY <LEWNSTACEY@AIM.COM>
CEDAR RAPIDS, IA - Tuesday, October 3, 2006 12:18 AM CDT
paulina
just wanted to come by and check on you guys.i hope all goes well with andrew and you guys will be in our thoughts.we are sending lots of hugs and kisses u way.hugs andkisses kathy and katilynn
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Tuesday, October 3, 2006 2:12 AM CDT
Paulina,
I love the pictures from Andrew's earlier years! How precious they are! I will be keeping Monday in prayer as well as the weeks to come! Thanks for calling! :-)
Hugs and Love,
Patty and Jesse MPS III A

Patty Taormino <woridnedge@aol.com>
Balto, MD USA - Sunday, October 1, 2006 3:21 PM CDT
Hello Andrew and family,

We are praying for your momma and daddy as they make big decisions for you. You are very special to have such loving and awesome parents. We think about you often and pray for you every day. Colin and Paulina, we pray for your strength and faith. We love you guys!


David, Amanda, & Aubrey New <anew@midway.edu>
- Sunday, October 1, 2006 10:08 AM CDT
Hi Andrew! We've been thinking about you and wanted to stop by and see how you are doing. I know your mom and dad have a lot of big decisions to make for you, I wish you didn't have to go through all of this yucky stuff. We are praying for you!
Love, Kris, Kraiggy and Chels
Kris Klenke <kklenke@madisontelco.com * * * www.caringbridge.org/il/kraig/ * * *>
Worden, IL - Tuesday, September 26, 2006 6:43 PM CDT
I'm sorry that you have to make these hard decision (sp?), whatever you choose, its the right decision.

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, September 20, 2006 5:04 AM CDT
Paulina, I feel your heartache in your words. This disease stinks that is for sure. I have been in mourning mode myself lately and I am not facing such a decision. No one ever wants to be in this position and you certainly would never imagine when you bring your baby into the world that this will be where the journey leads you. You and Colin have showered Andrew with more love and affection than some people ever receive in a lifetime. Whatever you decide, God knows you are doing it with a loving heart. I wish I could ease you burden.
Leslie Jurado <lesliejurado@rhtc.net>
- Monday, September 18, 2006 9:46 PM CDT
Praying for Andrew and for wisdom for you all as you make the difficult decision regarding the shunt.
Jennifer a from the prayer bears and ones who care <sassy_girl913@yahoo.com>
Carrolton, Texas - Monday, September 18, 2006 2:20 AM CDT
What a difficult decision you are faced with right now. I pray that God will grant you a sense of peace as you decide what is best for Andrew. I am praying for your family.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, September 16, 2006 5:06 PM CDT
Hello Andrew & family! Your journal entry echos my thoughts these last few days!! It will be three years ago on Oct. 3 that we received Luke's diagnosis. A couple of weeks ago I found a photo of Luke in preschool working w/ one of his speech therapists dated just a few days before the diagnosis. I've kept it out, as it reminds me how ALMOST "normal" life used to be compared to now. This disease is something I wouldn't/couldn't wish upon my worst enemy! To watch the regression and be able to do nothing about it is so very hard and heartbreaking. I'm sure all parents can recall the day of diagnosis and that numb feeling. I hope it helps to know that you're certainly not alone! There are many of us who can empathize with you and the feelings you described! As always, your family and so many others affected by MPS are constantly in my heart, on my mind, and in my prayers. Hang in there. I know you'll make the best decision possible based on the information/research you have on shunting.
Mieke Embry, mom to Luke (MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@windstream.net>
Moody, AL USA - Wednesday, September 13, 2006 9:46 PM CDT
Yes Paulina, you write exactly what all "can" happen...I know, I've been there too. Shunting "could" help. Shunting "could" make it all worse. If you decide NOT to have the shunt placed, focus on other options to help with the head/crying/etc. If you decide you WILL shunt Andrew, have faith it will work. If at some point it doesn't, never second guess your decision.

I know this doesn't help...I just want y'all to know that you WILL do what you believe to be best for your baby. And we will all pray with you in either case. Just never look back or second guess yourselves. Much love and divine guidance sent your way...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, September 13, 2006 2:57 PM CDT
Oh poor mom...........We are going through what you are having to make desicions about with Andrew right now with Payton...the whole shunt ordeal...you can read in his journal all that we are dealing with... www.caringbridge.org/visit/paypay It is one of the hardest decisions you will have to make...no one has the right answer...you just have to hope that the decision you make is the best one...there are no guarentees and that is what makes it so hard....I will pray for you while you have to go through this, because I was just there...Shannon
Shannon Cherpes-mom to Payton-MPSll www.caringbridge.org/visit/paypay Alexis,Cheyenne and Hunter <cookie_sc2000@netzero.net>
Orleans, Mi United States - Tuesday, September 12, 2006 10:27 PM CDT
Hey there Andrew and Family!!
Thinking of you all today and hoping school has started off to a good start!! We're always thinking and praying for sweet Andrew and his mom, dad and #1 SUPER BROTHER as well!!!! WE LOVE YOU ALEX!!!!
Hope you have a wonderful weekend!!
Love, The Haggett's,
John, Brenda & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY usa - Thursday, September 7, 2006 3:22 PM CDT
So pleased that everything went well for Andrew. What a relief to have that day over with. Your family is always on my prayer list.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Saturday, September 2, 2006 7:51 PM CDT
Hello Paulina and Andrew,

Just dropped by to say Hi! Glad to hear everything went well.

Hugs,
Sheila and Shelby www.caringbridge.com/tx/shelby <sjgeorge1013@cox.net>
Edmond, OK - Wednesday, August 30, 2006 11:46 PM CDT
Glad to hear the surgery went well and Andrews eyes are doing well. Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, August 29, 2006 10:31 AM CDT
Good morning,
Just wanted to stop and let you know that I will keeping Andrew in prayer today as he goes through his procedure and exam! Praying for good outcomes for your little man!
Hugs to all,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Monday, August 28, 2006 9:33 AM CDT
My prayers continue for Andrew and your family. I'm sorry to read about the hydrocephalus. I know it can be hard to sit and wait for answers.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, August 23, 2006 7:36 PM CDT
May the Lord comfort you and your family. I cannot imagine the stress and pain that you endure on a daily basis. I pray God continues to send encouragers and strengthens to you all during your difficult journey.
Jeffrey Damron <jdamron@afwkids.org>
Columbus, OH USA - Monday, August 21, 2006 9:30 AM CDT
Missing you this morning and praying all goes well this week. I know how nervous you must be but know that GOD will be right next to Andrew and our prayers will be with you all that everything will go smoothly and Andrew will be back home recouperating asap. You each are in our prayers daily and I hope you feel them! You are so close to my heart and I'm not good at calling but know you are always on my mind!! I love you guys and will continue praying that all goes well for Andrew's procedures.
LOTS of LOVE and PRAYERS!
John, Brenda & Zachie XXX's & OOO's
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY USA - Sunday, August 20, 2006 10:22 AM CDT
Paulina,
Know that we have been saying a special prayer for Andrew and all of you every night, you know you guys are our family (smile). I still show Lucas Andrew's picture, he acts like he still remembers and taps his picture on the computer, so give Andrew a love tap from Lucas and a HUGE hug from me and the girls
Stacey Montgomery <montgo_family@mchsi.com>
Cedar Rapids, IA - Sunday, August 20, 2006 9:54 AM CDT
I am so sorry the news from the MRI was not good Paulina. I will keep you all in my prayers.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, August 19, 2006 4:52 PM CDT
Just stopping by to say I missed getting to see you at the conference this year!! But you certainly look wonderful in the pictures!! I will be keeping Andrew and you all in prayer!
Hugs and prayers,
Jesse MPS III A
Patty and
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, August 17, 2006 7:59 PM CDT
Glad you had a good time at the conference -Hope the appt went well! Hugs Laura and Will
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, August 16, 2006 4:00 PM CDT
Just checking in! Hope all is well with neuro visit.
Jo Ann
Florence, KY USA - Wednesday, August 16, 2006 9:29 AM CDT
HI,

ANDREW JUST KEEPS GETTING CUTER AND CUTER. GLAD THINGS ARE GOING WELL!
HERE'S OUR ARTICLE FOR YOU TO READ.

WWW.PANTAGRAPH.COM/HEALTH/

LOVE,

TOSHA AND SYDNEY VANHOOK

WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
TOSHA VANHOOK <HURLERMOM101@hotmail.com>
BLOOMINGTON, ILL - Tuesday, August 8, 2006 2:10 PM CDT
Hey Paulina!
I'm so bad about signing these things, but I wanted to let you know that I think of you guys very often and appreciate all that you do. You are a wonderful family and such an inspiration to me and so many other people. I will continue to keep you in my thoughts and prayers as you stay on the "up" side of things and try not to get pushed back when stuff gets overwhelming. It was wonderful to meet you all at the conference.
Much love,
Leslie Phillips <Leslie42457@yahoo.com>
Winston-Salem, NC USA - Sunday, August 6, 2006 5:09 PM CDT
WE MISS YOU GUYS ALREADY!! I AM ALREADY TRYING TO TALK LEW INTO ANOTHER ROAD TRIP (SMILE). HE ALWAYS DRIVES SO HE NONCHALANTLY ASKED IF I WAS GOING TO DRIVE THE 8+ HOURS EACH WAY!! IF IT MEANS ANOTHER ROAD TRIP, I THINK I CAN DO IT ~ WITH LOTS AND LOTS OF COCA COLA TO DRINK. HUGS THE BOYS, AND GIVE ANDREW AND LOVE PAT FROM LUCAS. TALK TO YOU SOON.

http://www.caringbridge.org/visit/hopeforlucas
Stacey Montgomery <lewnstacey@aol.com>
Cedar Rapids, IA - Thursday, August 3, 2006 4:04 PM CDT
Hey Paulina! Thanks for posting pictures of Rachel, Isabel, Joey, and TJ. Helped me to reminisce about the conference...wish we had been able to come. I miss seeing and being a part of the MPS Conf and family talks. I hope Andrew continues to do well. Much love and thoughts to you and your family...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Thursday, August 3, 2006 12:47 AM CDT
Hi Paulina!
What a wonderful time at the conference (not counting the HOT hallways!) We just loved getting to know you and your family a little better. Loved the pics...great memories. Hugs to you all, especially sweet Andrew and give Alex a high five from Miss Debbie! XXX OOO
Debbie Vanderpool <djvpool@frontiernet.net>
Rochester, NY - Thursday, August 3, 2006 8:41 AM CDT
Hi Paulina
It was so nice to meet your family last week. Andrew and Alex are so beautiful and you and Colin's devotion to them is very evident. They are blessed to have such amazing parents. I continue to pray for Andrew to stay well and out of the hospital. ALso praying for sleep for all of our MPS families. Can't wait to see you all again.
leslie jurado <lesliejurado@rhtc.net>
- Wednesday, August 2, 2006 7:53 AM CDT
Loved the PKI pix. If you saw Patrick Starfish that day, you probably met my nephew Joe in his alterego! Looks like you guys had a great time. I'm afraid I won't make it to the conference-- it kind of sneaked up on me and Tori is leaving for camp on Monday. It's also my bday this weekend and they have big plans-- Putt Putt and dinner!!! Can't wait to see Alex back at school. Tell him congrats on the trophy. Big hugs and kisses to Drew!!! Sounds like things are going along pretty well right now. I'll pray they stay that way!
Jo Ann
- Thursday, July 27, 2006 8:45 AM CDT
Hi, guys! Just a quick note to let you know you're thought of often. I check in at least once a week to see how things in Andrew's world are going. Just wanted to say, "Hi!"
Mieke Embry (mom to Luke, MPS-IIIA, caringbridge.com/al/lukeembry) <embry10198@wmconnect.com>
Moody, AL USA - Thursday, July 27, 2006 7:48 AM CDT
Just stopping by to say 'hello'! Love the photos, hope you all have a great time at the conference, wish we were coming! Paulina, I hope you get Andrew's sleep issues resolved, I know how hard it is, Georgia is not sleeping well either! Lots of love to you all xxxxx
Louise Lewis <louise.lewis@udex.com>
Chepstow, UK - Tuesday, July 25, 2006 7:50 AM CDT
Hi Paulina

I can't wait to meet you at the MPS conference!!! SEe you soon!
Leslie Jurado <lesliejurado@rhtc.net>
- Thursday, July 20, 2006 9:40 PM CDT
I'll be keeping Andrew in prayer today as you go through your visit with neurology. I pray you have answers soon for Andrew!
Hugs,
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, July 20, 2006 7:04 AM CDT
Looks like a good time at Kings Island!! That's great that Andrew got to ride a few rides!! :-) Have fun at the conference! I will miss seeing you this year, but I keep thinking about heat and humidity.. and just can't get myself to travel anywhere in the heat. It's so much easier not to pack and stay home when it is this hot and humid.

Hugs and prayers,
Patty and Jesse MPS III A
Patty Taormiono <wordinedge@aol.com>
Balto, MD USA - Sunday, July 16, 2006 8:19 AM CDT
Glad to hear Andrew is doing well. Looks like you had a good time at Kings Island. Can't wait to see you guys at the Conference.
Sharon Cochenour and Andrew <dcochenour@hotmail.com>
Clarksburg, OH USA - Saturday, July 15, 2006 12:00 AM CDT
Hi Andrew!

I have been thinking of you often and hope those Drs. get you feeling better real soon! Let us know what they say, I will check back soon. I am really, really excited to meet your Mommy and hopefully you in KY! Love and Hugs, Erica
Erica Thiel www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
- Wednesday, July 12, 2006 4:51 PM CDT
Praying that all goes well during Andrew's upcoming surgeries.
Jennifer A from the prayer bears and ones who care <csassy_girl913@yahoo.com>
Carrolton, Texas - Wednesday, July 12, 2006 12:39 AM CDT
I think of you often, especially Andrew and how he is doing. Much love and prayers to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Thursday, July 6, 2006 5:46 PM CDT
HAPPY 4th of JULY!!!!


Jenn Deskins
- Tuesday, July 4, 2006 6:50 PM CDT
Paulina
I am so sorry to hear that your mother's stroke was serious. It is very hard to understand why so many bad things are happening all at once. I know that you put your faith in the Lord that all things will work for his glory even if we don't understand how or why right now. I will continue to pray for sleep for Andrew as well as a solution to the GI problems. Hang in there and hang on to the Lord.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, June 24, 2006 10:06 AM CDT
Hope all went well with Andrew's GI today! Hope they can figure out something to get his system back on schedule!
I think of you guys all the time! and can't wait to see you soon! I love the new picture of Alex playing t-ball!! We have a t-ball team for the 3 and 4 year olds at my work, they LOVE it!
Keeping you guys in my prayers!

www.caringbridge.org/ky/tylerdeskins
Jenn Deskins <tylersmommy11304@yahoo.com>
- Friday, June 23, 2006 4:37 AM CDT
I hope all goes well today with the GI!! The stuff that is working well for BM's for Valerie is Essential Enzymes by "Source Naturals". She said one before each meal has been working wonders for Brandon when nothing else has!
Essential Enzymes


Also tell Alex he looks so good with that bat!! Maybe he'll be a pro one day!!!

Hugs to you all and prayers too for your mom!
Patty and Jesse MPS III A
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Thursday, June 22, 2006 4:08 PM CDT
Just want y'all to know I think of you every day and Hannah prays every night. Much love and thoughts to you and your family...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, June 20, 2006 11:23 AM CDT
Dear Colin, Paulina, Andrew and Alex,
Just stopping by to stay hello and that I am thinking of you all. You are all in my thoughts and prayers.
Misty Jump <Mjump@Owenelectric.com>
Florence , ky USA - Tuesday, June 20, 2006 9:50 AM CDT
Many Many prayers and Big HUGS coming your way!!!
I'm so sorry about your mom Paulina but pray that things will get better as time goes on.
Tell Holly we're still thinking and praying for Miss Brianna!!
Love, Brenda
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY USA - Monday, June 19, 2006 3:10 PM CDT
I just wanted to stop by and wish Colin a
HAPPY FATHER'S DAY!
Hugs and prayers,
Patty and
Jesse
MPS III A


Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, June 17, 2006 1:56 PM CDT
Stopping in for an update on all my MPS babies. Glad to hear Andrew is doing ok. We are praying for you guys.
Andrea - Mother of Rachel (MPS IIIB)-www.caringbridge.org/visit/rachel <andrea.longston@gmail.com>
Green Bay, WI - Thursday, June 15, 2006 4:51 PM CDT
Hi Paulina, just stopping by to say 'hello'. Glad to hear that Andrew is eating well & praying that you get some answers for the other issues. Give him a big hug & kiss, from me & Georgia xxxxxx
Louise Lewis <louise.lewis@udex.com>
Chepstow, UK - Thursday, June 15, 2006 4:04 PM CDT
My thoughts are with your whole family. My youger sister also suffers from Sanfilippo but communicates very little so it is hard for our family to tell if she is in pain. Does Andrew speak much?? Be strong and stick together!!!
Vanessa Horne <v.horne@camdenservices.com.au>
Brisbane, Qld Australia - Wednesday, June 14, 2006 1:30 AM CDT
Hey...so good to read an update. Back two years ago when Lindsey had this brain stem "injury?", they had to put Lindsey on medication for her blood pressure and heart rate - both were high. She was on it for about a year maybe, but no longer needs it. It was Clonidine (patches) and Inderal (tablets). Hope they get the little man straightened out soon. Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Saturday, June 10, 2006 2:29 PM CDT
Many loving thoughts to Andrew and your Mom...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, June 6, 2006 8:33 AM CDT
Just checking in on Andrew and your mom! I am keeping both in prayer daily! PLease let us know how things are when you can.
Hugs and prayers.
Patty and Jesse MPS III A


Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Tuesday, June 6, 2006 7:19 AM CDT
RachelJoy and I are slowly recovering from last week's drama. I'm praying that your family will enjoy a very blessed week.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Tuesday, June 6, 2006 0:16 AM CDT
I am so sorry that Andrew appears to be in pain. He looks so wonderful in the pictures. I do pray for all of you often. It must very difficult to know that something else is going on with him and to almost lose your mother too. How wonderful that she did survive the bowel obstruction. I pray that she will continue to recover. If she is like me, she doesn't want to lose a minute with her children and grandchildren.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Sunday, June 4, 2006 3:30 PM CDT
I am sending you much love and thoughts for yourselves, your Mother, and Andrew. Wish things were better for you all! Please take care...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Thursday, June 1, 2006 2:52 PM CDT
I am sorry to hear that your mom is so sick. I will add her to my prayers. The pix look like Drew had a great time on his trip to Bowling Green! I hope that they can figure out why he is in so much pain soon. Always in my thoughts...
Jo
- Wednesday, May 31, 2006 11:00 AM CDT
Jump family,
We always check in to see how you are doing. Sorry to hear about the pain Andrew is having, we will pray that God will take that away for the little guy. We will also pray that your momma gets better in a hurry.

Thinkin' of you,
David, Amanda, & Aubrey New
Amanda New <anew@MIDWAY.EDU>
- Wednesday, May 31, 2006 10:16 AM CDT
Wonderful pictures!! Andrew looks so content (probably 'cos he's with 2 beautiful girls!), happy & well, so glad you all had a great day & I'm really pleased that Andrew is doing so well, a big hug to him from me & Georgia xxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Friday, May 26, 2006 2:01 PM CDT
Glad to see Andrew is doing better. He looks so happy in the pictures at the fundraiser. Can't wait to see you guys in Kentucky. Only two monthes.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Friday, May 26, 2006 10:55 AM CDT

Hi Paulina & Andrew
It's amazing what Andrew has been going through for so long and then you see him in the pictures and he looks as happy as can be! Must be the girls! I can't wait to meet you guys in KY! Please give Andrew hugs and kisses from Scotty & I.
Love,
Kim & ScottyMPS II <cottons@earthlink.net>
Modesto, CA - Wednesday, May 24, 2006 6:00 AM CDT
It was heart-warming seeing Andrew happy and content in these pictures. I hope he continues to improve with the stomach/bowel issues. Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Monday, May 22, 2006 11:29 AM CDT
Are kids are just too cute! We had such a blast seeing you guys! Cannot wait to see you in July!
Love you guys,
Holly
Holly Bays <bdaddy@dbscorp.net>
Kenton, Oh USA - Sunday, May 21, 2006 7:25 PM CDT
***Insert jumping bouncy guy here*** I'm so happy to hear Andrew is now home and I pray things begin to get better for your sweet and precious Andrew! You all have been through too much and now need this to be a time of healing and enjoyment! God Bless Jump Family!!!
ALL OUR LOVE!!!
The Haggett's :0)
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, NY USA - Saturday, May 20, 2006 12:33 AM CDT
Patti has kept me updated about little Andrew. So sorry there's been so much added stress about his condition. We've been praying for him (and y'all) each night, along with Ryan Mask. Hopefully everything will pan-out soon once he is back on track. Much love to each of you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, May 19, 2006 1:42 PM CDT
Prayers have been working. Praise God! At first Andrew was not doing well after his surgery, but once off the Morphine he is doing much better. You can read about the updates on the MPS Forum for now until Paulina returns home with her young man! There are three updates as of the time of this post.. so read through all three to see the progress.
Updates on Andrew Please continue to keep him and the family in prayer!
Love and prayers.
Patty and Jesse MPS III A


Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Friday, May 19, 2006 6:55 AM CDT
All our love sent to you Andrew you are a gift from Heaven a special Angel xxxx God Bless xxxx
Michelle Aidie Aaron Ryan and Liam <Craigboys@blueyonder.co.uk>
Birmingham, UNITED KINGDOM - Friday, May 19, 2006 3:41 AM CDT
Checking in on Andrew... Many prayers.
Sjon (dad to Kariem, MPS II)
The Netherlands - Thursday, May 18, 2006 7:32 AM CDT
I am friend of Lindsey Lu Efird, in North Carolina(Mark and Karen). Karen had posted that you guys are dealing with many of the same things that they did when I was involved with Lindsey. I just wanted to say that I am praying for your family as well. It seems so small in the grand scheme of your daily life, but please know that there are many that have you in their thoughts and prayers. Andrew is beautiful. I wish you happiness.
Trina J. Wenzel <ewenzel@ctc.net>
Albemarle, NC - Wednesday, May 17, 2006 8:49 PM CDT
Andrew~
We are praying for you! We hope that your surgery gets you feeling better. It's an awful thing when your belly hurts, so we hope it gets better real soon. Maybe you and Lucas will get to meet soon , I know you two will hit it off really well !

Paulina~
Thank you for stopping by Lucas’ website!

Your MPSIII-B family in Iowa,
Stacey,Lucas,Lew,Mariah,Chelsey, and Hailee
http://www.caringbridge.org/visit/hopeforlucas


The Montgomery's <lewnstacey@aol.com>
Cedar Rapids, IA 52404 - Wednesday, May 17, 2006 3:19 PM CDT
Praying for you....
Image Hosting by PicsPlace.to
~Tabitha's Page~

Karen & Tabby <karenpuddn@comcast.net>
- Tuesday, May 16, 2006 7:49 PM CDT
Much love and prayers to you all...kle
PS: check your eMail Paulina
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, May 16, 2006 9:28 AM CDT
Paulina and Colin,
I'm so sorry that Andrew has still not had a movement in all this time, I pray that the G-Tube will be an answer to many of Andrew's current issues, there is a lot of hope after hearing many other Sanfillipo families success with this, I PRAY this will soon be the case for sweet and precious Andrew, he has been through too much this year, as have all of you.
PLEASE KNOW you are all in our prayers and we will be thinking and praying extra hard on Wednesday.
God Bless,
Love Zachie and Family
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, NY USA - Monday, May 15, 2006 1:55 PM CDT
Hi Paulina, Andrew and Family! I just read your web site your mother has prepared for you, you are hansome boy! I love the picture of you and your grandma! Grandma's are special! Have a good day and God bless! Love another mom with an MPS child, Ruth
Ruth Murphy <523murf@earthlink.net>
Rowlett, tx USA - Monday, May 15, 2006 12:26 AM CDT
Dropping by with Mother's Day greetings, and to let you know that I'm praying for Andrew too.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Sunday, May 14, 2006 7:55 PM CDT
HAPPY MOTHER'S DAY!!!

Hope you have a wonderful day!

Jenn Deskins
- Sunday, May 14, 2006 1:55 PM CDT
I'm so sorry...I wish I knew something that would help. I know it's miserable - for all of you. It's just not fair. Hang in there and know I will pray. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Saturday, May 13, 2006 10:38 PM CDT
Paulina~ I just wanted to let you know that I am keeping Andrew in my thoughts and prayers. Happy mother's Day! You are a wonderful MOM!
Love,
Jennifer & Allison
Jennifer Restemayer <jennmarie@bis.midco.net>
Bismarck, ND USA - Saturday, May 13, 2006 10:08 PM CDT
Thinking of you. Have a happy mothers day! Keeping you in my prayers!
Amanda New
- Saturday, May 13, 2006 10:18 AM CDT
Image Hosted by ImageShack.us

LETTING YOU KNOW THAT YOUR THOUGHT OF ON MOTHER'S DAY.KEEPING YOU IN MY THOUGHTS AND IN MY PRAYER'S ALWAYS.
LOVE ALWAYS BRENDAMY LOVING DAD'S SITE <brurka@shaw.ca~~THE PRAYER BEARS~~>
EDMONTON ,ALBERTACanada, - Friday, May 12, 2006 10:51 AM CDT
just wanted to pop by and say hello,,hope all is well..lots of love Terri and Blaise.xx
terri rayner <terri.rayner1@ntlworld.com>
manchester , uk - Thursday, May 11, 2006 3:13 AM CDT
Glad to hear your'e trying the low fat diet. That's basically what we do with Jesse, at least most of the time, along with no wheat or glutton for the most part. I hope all that works well for you too.

Hooray!! For sleep, I pray that continues too!

I keep you guys in prayer daily.
Love,
Patty and Jesse
MPS IIIA



Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Sunday, May 7, 2006 6:13 PM CDT
What wonderful news that Andrew handled his stomach emptying test without much trauma and that the new med is helping him sleep. I check Andrew's site almost daily and keep you all in my prayers. Thank you for visiting my Izzy's page.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Sunday, May 7, 2006 2:28 PM CDT
You know we are always thinking of you all! Will is facing the G tube too and we are doing everything in our powers to avoid it!! Sounds like your getting the help you need now and some sleep! long may that last Hugs and Kisses Laura (mom to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, May 7, 2006 1:16 PM CDT
I'm so happy to hear that you and the little man finally have had some sleep the past few days, what a difference some sleep makes!! I'm praying the erythro works and there won't be a need for the g-tube and hopefully the tests will come back negative as well but mostly just praying Andrew may get some peace however way that is, you all too need a break from the stress, give Andrew and Alex hugs and kisses from us and hope we get the real ones in a few months!! :0) We love you all very much and pray Andrew settles into some comfortable months for a while!! XXX's & OOO's!!!! Love, The Haggett's, John, Bren & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse/Upstate, NY usa - Saturday, May 6, 2006 2:25 PM CDT
I am so happy to hear that the test provided some insight into Andrew's digestive issues. I will pray that the low fat diet helps significantly and the feeding tube will not be needed.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, May 6, 2006 1:34 PM CDT
Hope everything continues to improve and go well. Much love and thoughts to you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, May 5, 2006 7:20 PM CDT
Just wanted to stop in and say HI!! and let you guys know I'm thinking of you!!! Hope you have a wonderful week!!

www.caringbridge.org/ky/tylerdeskins

Jenn Deskins <tylersmommy11304@yahoo.com>
- Tuesday, May 2, 2006 3:07 PM CDT
I RALLY HATE TO HEAR TO HEAR THAT ANDREW MAY HAVE CELIAC, AS IF HE DOES NOT GO THROUGH ENOUGH!!! THE DIET ON CELIAC IS SOOO RESTRICTIVE THAT IT IS JUST NOT FAIR!!!
HOPE ALL THE TESTS COME BACK ALRIGHT !
I WILL KEEP CHECKING IN !
MIKI <brat77rh@yahoo.com>
- Monday, May 1, 2006 10:07 AM CDT
I just wanted you to know that we keep checking in on Andrew. I guess alot because so much of his journey reminds me of things we have been through with Tabitha. Many similarities! Just wanted to tell you if you ever need another mom to talk to, compare notes, vent, whatever! I'm just an e-mail away!
Hope you're having a good weekend!
Image Hosting by PicsPlace.to
~Tabitha's Page~

Karen & Tabitha <karenpuddn@comcast.net>
- Sunday, April 30, 2006 11:59 AM CDT
hi to you all. Our prayers and thoughts are with you. Remember the G-tube will keep Andrew well and he can still enjoy foods but safely. God Bless. Talk soon
Michelle Aidie Aaron Ryan and Liam (Craigs UK)
MICHELLE CRAIG <Craigboys@blueyonder.co.uk>
England, UNITED KINGDOM - Monday, April 24, 2006 5:03 AM CDT
Hi Paulina I have been thinking about your family and Andrew alot lately and you are and will always be in my prayers.



Jackie Arteno (Hensley) <blackwidow@fuse.net>
Hebron , KY USA - Sunday, April 23, 2006 6:31 PM CDT
Hey Jump Family. Glad to hear Andrew has some relief. Don't get your hopes TOO high about the biopsies and emptying study. Every possible GI/bowel test was run on Lindsey over a two year period and showed "healthy, working perfectly" results. It's just plain MPS obstacles! The g-tube was a great choice for us. Andrew will still be able to eat/drink on his own too - even with a g-tube. The following are things we do to help Lindsey's food move through...senna, mylicon, acidopholus, miralax, zantac. For her pressure we use Diamox (she's on half the dose of a year ago). Hope everything continues to improve! Much love and thoughts to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Sunday, April 23, 2006 3:24 PM CDT
Just stopping by to let you guys know I'm thinking of you!! I'm glad to hear Andrew is home! I hope the testing shows exactly what's causing this! I know how hard it must be for you guys...you are in my prayers!

www.caringbridge.org/ky/tylerdeskins

Jenn Deskins <tylersmommy11304@yahoo.com>
- Sunday, April 23, 2006 11:18 AM CDT
Contiuning prayers for Andrew and your family, that you find the right answers and what paths to take to have him doing well again! (((hugs)))
Patty and Jesse
Patty Taormino <woridnedge@aol.com>
Balto, MD USA - Sunday, April 23, 2006 6:41 AM CDT

Hi Paulina & Andrew
I have been thinking about you and wondering how Andrew was doing. I hope you get all your answers soon!
Hugs,
Kim & Scotty (MPS II) <cottons@earthlink.net>
Modesto, CA - Saturday, April 22, 2006 5:27 PM CDT
RachelJoy is out of the hospital and back home again. We are praising the Lord for each small improvement that she makes each day.
We are praying for you and your family too.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Friday, April 21, 2006 8:32 PM CDT
My love and prayers are with you all. Sorry Andrew is having a rough time. I pray all goes well with the tests and sickness. Thanks for keeping us updated. Take care...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Friday, April 21, 2006 12:17 AM CDT
Thinking of you and checking in for updates...
Michelle C <coughlinmichelle@yahoo.com>
Cincinnati, OH - Thursday, April 20, 2006 10:00 AM CDT
Paulina

I so hate to hear that Andrew is back in the hospital. I know you must be so scared, tired and frustsrated with all his recent medical issues. I can't lift all this worry off your shoulders but I know that God can. I will pray for the diarrhea to end and for him to be able to get in some liquids and be hydrated. Hopefully you will get some answers to make him feel better and get back home ASAP.
leslie jurado <lesliejurado@rhtc.net>
- Wednesday, April 19, 2006 9:22 PM CDT
Praying for Andrew and your family. I hope he can get out of the hospital and feel better soon.
Liz Hindson <lizcon@yahoo.com>
clemson, sc - Wednesday, April 19, 2006 6:09 PM CDT
I just wanted to stop by and let you know I'm thinking of you!!! and sending lots of prayers for Andrew!!!

www.caringbridge.org/ky/tylerdeskins
Jenn Deskins <tylersmommy11304@yahoo.com>
Georgetown, ky - Wednesday, April 19, 2006 1:35 PM CDT
Your family continues to be in my prayers. Get better, Andrew, so you can enjoy lots more hamburgers.
Catherine Abernathy <cabernat@chestertel.com>
Chester, SC - Tuesday, April 18, 2006 8:34 AM CDT
Thinking of you and your Family Paulina and hoping that the
Easter Bunny was good to sweet Andrew!! I will be saying extra prayers with the upcoming LP test and know I am here if you ever need anything. I Love you guys and am always thinking of you!!! Love, and Happy Easter!

Erica Thiel www.caringbridge.org/wi/ericathiel <scheiecat@yahoo.com>
Beaver Dam, WI USA - Sunday, April 16, 2006 11:29 PM CDT
HOPE YOU HAVE A HOPPY DAY!!!!
We're praying for some relief in the Jump household!!
HAPPY EASTER!!
LOVE AND MANY PRAYERS, THE HAGGETT'S, John, Brenda & Zachie
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <jhrufus@aol.com>
Syracuse, NY usa - Sunday, April 16, 2006 10:01 AM CDT
Happy Easter!


Image Hosting by PicsPlace.to
~Tabitha's Page~

Karen & Tabitha <karenpuddn@comcast.net>
- Saturday, April 15, 2006 8:10 PM CDT
Hi Paulina, just stopping by to say 'Happy Easter' to you all & let you know that I'm thinking of you & little Andrew, give him a big hug from me & Georgia xxxxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Saturday, April 15, 2006 3:52 PM CDT
happy easter


lots of love from Terri and Blaise.xxxxx
terri rayner <terri.rayner1@ntlworld.com>
manchester , uk - Saturday, April 15, 2006 3:37 AM CDT
Happy Easter

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Friday, April 14, 2006 10:01 AM CDT
We're still keeping Andrew in prayer. I hope things come together soon for you all with the next doctor visits. Praying they find answers to help make things better.
Hugs,
Patty and Jesse

Jesse's Ride to Wipe Out MPS!
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Tuesday, April 11, 2006 6:20 AM CDT
Still checking in, thinking of you guys, praying, and hoping all goes well. Much love to you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Monday, April 10, 2006 3:38 AM CDT


Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy - BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Saturday, April 8, 2006 1:44 AM CDT
thankyou for letting us read about Andrew. Our son Aaron has sanfilippo A. He recently had a gastrostomy and feeding is well estabilished. We live in UK and welcome contact via email. Will continue to read about Andrew and hope all goes well with the feeding tube. God Bless. Michelle and family
MICHELLE CRAIG <Craigboys@blueyonder.co.uk>
BIRMINGHAM, UNITED KINGDOM - Saturday, April 1, 2006 3:30 PM CST
I am a visitor from Izzy Jurado's site. My prayers and thoughts are with you as you continue to be strong, graceful parents to your little boy.

Dicksy W. Broadwater <broadwaterd@clover.k12.sc.us>
York, SC - Tuesday, March 28, 2006 10:19 AM CST
Thinking of you today. Hope all goes well at the surgeon visit and he eases some of your worries. Praying for you all. All our love, The Haggett's, John, Bren & Zachie

www.caringbridge.org/visit/zachie
Brenda Haggett mom to Zach ML II/III <jhrufus@aol.com>
Syracuse, NY Usa - Tuesday, March 28, 2006 9:08 AM CST
Hi, I came to your site from Izzy's to let you know that I am thinking of you and praying for your precious angel, Andrew! God is God and God is good! I pray that He will provide answers for you for all of those questions and uncertainties that I am sure you have. I cannot imagine what you and all of the other parents of MPS children must go through everyday of your lives but God has blessed you all with such grace and beauty! Thank you for being such an awesome testimony of His works!
Tammy Potter <tpotter@rock-hill.k12.sc.us>
Rock Hill, SC usa - Monday, March 27, 2006 9:52 PM CST
Hey Paulina and Colin. I'm sorry for your worries. Hopefully Andrew won't "notice" the G-tube in the sense that he won't mess with it/pull it out. It is freaky at first, I'll be honest. But hopefully your hospital is like ours in Chapel Hill w/Dr. Muenzer...they will teach you everything you need to know and also make you an "emergency G-tube kit" to keep at all times on outings.

With Lindsey we started with "bolus" feeds three times a day to supplement. Then we went to two small ones during the day and an all night feed. Now we are on continuous feeds 24 hours a day (at a smaller rate due to high residuals). It's sort of like a 4-6 month old baby learning how much to feed them, how often, etc. You'll get the hang of it soon, honestly. Make sure you vent the g-tube a LOT. I'm assuming they'll give Andrew a "nisen" (not sure how that's spelled). That's so they don't throw up, aspirate, etc. in the future. Therefore you need to "burp" them through the g-tube...venting.

I wish you could come to Chapel Hill to talk/meet with Dr. Muenzer. Maybe you could send him a history (in your spare time right) of Andrew's problems. Include the medications and procedures. Maybe Dr. M could suggest something different...I don't know. Just trying to help.

Hang in there...I know it's tough. Know that I think of you often, pray, and wish you nothing but happier days!!! Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Monday, March 27, 2006 11:30 AM CST
I was sent here from Izzy Jurado's site - please know we'll keep you in our prayers. What a scary time for you - we are praying hard for comfort for your sweet boy.
Mandy <mandyallbritton@carolina.rr.com>
Charlotte, NC USA - Sunday, March 26, 2006 1:49 PM CST
Paulina I am so sorry to hear that Andrew is still having problems with fluid intake. I pray that the feeding tube will help but I know you are worried about how to make all that work. I so wish I could make him and all the other sweet MPS babies better. I know you must be so exhausted. Sending my love and prayers.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, March 25, 2006 4:16 PM CST
I check on Andrew weekly. I keep you in my prayers daily! Keep your faith. God will provide.


Amanda, David, & Aubrey New <anew@midway.edu>
- Friday, March 24, 2006 11:13 AM CST
Just want to stop by and tell you that i am thinking of your family and keeping Andrew in my prayers. I can Imagine, how hard this must be for the parents. Sending a lots of hugs in your way.

www.helpourgirls.com
Tayyaba Beg
NJ - Thursday, March 23, 2006 8:01 AM CST
Just wanted you to know I've been praying that you and most of all Andrew find answers soon, this has to be so tiring for everyone as well as heartbreaking. Paulina, I pray for you often and hope you know how special you and your family are to us. God Bless,
The Haggett's
www.caringbridge.org/visit/zachie
Brenda Haggett mom to Zach ML II/III <Jhrufus@aol.com>
Syracuse, New York usa - Tuesday, March 21, 2006 8:40 AM CST
Just stopping by to say HI and let you guys know that I'm thinking of you all!!! I hope everything goes well with Andrew's tests! I'll say an extra prayer for him!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Sunday, March 19, 2006 3:36 AM CST
Just stopping by to let you know we think amd pray for you daily. I hope you find some answers for Andrew soon. Hugs and Prayer for you always!
Love,
Patty and Jesse
Ride to Wipe Out MPS!
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Saturday, March 18, 2006 4:01 PM CST
Happy St. Patrick's Day

You all are in my thoughts and Prayers. Hugs for Andrew!
Love, Kim & Scotty (MPS II)
www.caringbridge.org/ca/friends
Kim <cottons@earthlink.net>
- Friday, March 17, 2006 5:11 PM CST
I am so sorry to hear that Andrew is not doing any better. I pray that all goes well with the endoscopy and that you all are able to get some answers to Andrew's pain.
Izzy's Aunt Lizzie
Liz Hindson <lizcon@yahoo.com>
Clemson, Sc - Thursday, March 16, 2006 6:22 PM CST
I'm sorry Andrew has to endure this. Lindsey had it done also (among many other procedures trying to figure out what was wrong) and none of them "proved" anything was the culprit. I pray y'all get better news. A feeding tube (the Mic-Key button) is NOT bad at all - I promise. Please call me if you need to scream or cry or talk. Much love to all of you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Thursday, March 16, 2006 11:24 AM CST
Hey Jumps! Hpe Drew is feeling better or at least that there are more good days than bad ones. Congrats to Paulina on finishing your classes!!! And we ate at Bob's tonight and they told us that Colin was gone, so I thought I better stop by the website for an update. Sorry it has been so long.
Jo Ann <indigoquinn@fuse.net>
Florence, KY - Tuesday, March 14, 2006 7:19 PM CST
I check on you frequently and continue to keep all of you in my prayers. Hope Andrew's current problems are soon resolved.
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Monday, March 13, 2006 8:48 AM CST
Hello!

Just popping in to see how things are going. I am sorry that Andrew is having trouble again. Ciara had the same poopy problems, but now she gets one little can of prune juice a day and she has been going every day and she is so much happier! I don't know if Andrew will drink prune juice, but maybe it will help. We get her the little gerber juice bottles in the baby food aisle, they are apple and prune juice so maybe he might drink it.



Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Sunday, March 12, 2006 1:49 AM CST
I know all about BMs like Andrew is having...Lindsey was there several years ago. Miralax and Senna have been the ticket for her - we never miss the daily doses. I still say Diamox is the ticket for brain pressure - it has been for Lindsey. Zanaflex is a great drug for physical issues and it's wonderful sleep medicine. I know it's hard to see results when they are NOT immediate (I know), but please try these four things once again for at least 14 days straight. Please call Dr. Muenzer in Chapel Hill and he will advise also. Much love and prayers to you. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Saturday, March 11, 2006 11:35 PM CST
I am praying for Andrew.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, March 11, 2006 9:47 PM CST
Hi just wanted to pop by and say hello hope all is well lots of love from terri and blaise.xxxxxxx

terri rayner <terri.rayner1@ntlworld.com>
manchester , uk - Saturday, March 11, 2006 1:10 PM CST
hi guys
just wanted to stop by and check on you.i am sorry andrew is having some problems i hope it all gets better really soon.hang in there guys we love you all and sending hugs and kisses kathy and katilynn preston
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Friday, March 10, 2006 12:04 AM CST
Just checking in to see how Andrew and your family are doing. I think of you all often; you are always in my prayers.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Wednesday, March 8, 2006 2:51 PM CST
I do not you all, but I just wanted to share that my children and I pray for you and your family each night.
Gwen McCarthy <gwenbmcc@aol.com>
Locust, NC USA - Wednesday, March 8, 2006 1:32 PM CST
I am so proud of you. It's so hard just to make a living much less go to school too. Good luck I hope you get the job with the bigger bucks.CONGRATULATIONS!!!
Christina Lucero <alericosmom@comcast.net>
- Sunday, March 5, 2006 1:05 PM CST
Congrats on finishing up your course work Paulina. I will pray that you find a paying internship. Glad to hear that Andrew is still doing well and sleeping much better.
Leslie Jurado <lesliejurado@rhtc.net>
- Saturday, March 4, 2006 9:03 PM CST
Just stopping in to say Hi, and see how your little men are doing? I hope all is going well!
Love and Prayers,
Patty and Jesse
Ride to Wipe Out MPS
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Saturday, February 25, 2006 8:20 PM CST
Image hosting by Photobucket
Love, Kim & Scotty (MPS II)Image hosting by Photobucketwww.caringbridge.org/ca/friends
Modesto, CA - Saturday, February 25, 2006 3:52 AM CST
Hi, I'm sorry that I havent signed your guestbook for a while, but life is so busy right now.

Hope you are doing great!

Friendly

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Tuesday, February 21, 2006 1:11 PM CST
Hi, I'm sorry that I havent signed your guestbook for a while, but life is so busy right now.

Hope you are doing great!

Friendly

Love from Vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Tuesday, February 21, 2006 1:11 PM CST
I am glad to see Andrew is doing better and at home. I hope you enjoy your Barney movie. You and your family are in my prayers.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, February 19, 2006 5:40 PM CST
RachelJoy and I are praying for you today.

Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, February 18, 2006 5:04 PM CST
Hey Andrew buddy! I'm so glad you are making improvements...I pray they continue. We send you lots of love and prayers - kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Thursday, February 16, 2006 8:42 PM CST
Hi Paulina

I am so glad to hear that Andrew is feeling better. I hope that life is getting back to normal (whatever that is??) at your house. I love the new pictures. Andrew is so handsome and always looks like such a little gentleman. Thank you for always checking on Izzy. A year ago I never would have guessed I'd have a new family of friends like you and all the other MPS moms I am now blessed to know. I thank God so often for the internet. It has made me not feel so alone having a child with such a rare disorder. Thank you for your words of encouragement.
Leslie Jurado <lesliejurado@rhtc.net>
- Thursday, February 16, 2006 7:57 PM CST
Hi Paulina

I am so glad to hear that Andrew is feeling better. I hope that life is getting back to normal (whatever that is??) at your house. I love the new pictures. Andrew is so handsome and always looks like such a little gentleman. Thank you for always checking on Izzy. A year ago I never would have guessed I'd have a new family of friends like you and all the other MPS moms I am now blessed to know. I thank God so often for the internet. It has made me not feel so alone having a child with such a rare disorder. Thank you for your words of encouragement.
Leslie Jurado <lesliejurado@rhtc.net>
- Thursday, February 16, 2006 7:56 PM CST
came across your website from visiting another, will be adding you to your prayers, thanks for sharing and you have a beautiful child.
tanya - nicks mom www.caringbridge/visit/nicholasdeyo
tanya <myg@frontiernet.net>
prior lake, mn usa - Thursday, February 16, 2006 4:30 PM CST
Happy Valentine's Day to Drew, Alex, Paulina, and Colin from our family!
Jo Ann McCaughan <indigoquinn@fuse.net>
- Tuesday, February 14, 2006 5:01 PM CST
HAPPY VALENTINES DAY~~

Thanks for signing Emma's guestbook!! We will come back often to check for updates!!!
You all are in our thoughts and prayers~~
Have a great day!!!
Becky and Emma
www.caringbridge.org/canada/prettygirl
The Hardman's <bbjhardman@sympatico.ca>
Hanover, ONT Canada - Tuesday, February 14, 2006 9:39 AM CST
HAPPY VALENTINE'S DAY!!!!

Jenn Deskins
- Monday, February 13, 2006 6:10 PM CST
Image hosting by Photobucket
Love,
Patty and Jesse

Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Monday, February 13, 2006 5:55 PM CST
Hi Jump family!
So sorry I haven't been by in a while...our new addition to the family has been keeping me pretty busy. So sorry to hear that Andrew hasn't been well, but glad to see that he is out of the hospital and home again. Take care of yoursleves. As always, your family is in my prayers.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Sunday, February 12, 2006 8:32 PM CST
Hi Paulina, thinking of you all, really hope Andrew is getting better each day. Give him a big hug from me & Georgia xxxxx
Louise lewis (Georgia's mum) <starfish26@btinternet.com>
Chepstow, UK - Sunday, February 12, 2006 11:49 AM CST
Thinking of you today and hoping Andrew is doing a little better each day.
Prayers to you,
Brenda Haggett mom to Zach ML II/III www.caringbridge.org/visit/zachie <Jhrufus@aol.com>
Syracuse, NY USA - Friday, February 10, 2006 12:15 AM CST
I'm so glad that Andrew is back home. Our prayers continue for your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Wednesday, February 8, 2006 10:30 PM CST
I am so glad that Andrew is back at home and improving. I pray that he will continue to improve, to sleep well, and be free from pain, and that all of you will feel God's love and the love of those who keep you in their thoughts.
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Monday, February 6, 2006 8:17 PM CST
I am just soooo glad to hear that Andrew is out of the hospital! I will continue to check in and pray for the family! Have a great day!
Miki <brat77rh@yahoo.com>
- Monday, February 6, 2006 8:57 AM CST
Welcome home! I know it's Heaven on Earth to be under one roof. Just wanted you to know we've been thinking of y'all.

Oh I meant to tell you, one of Lindsey's hospital docs will be transferring to Cinn Children's Hosp this Summer. Isn't that the hospital y'all take Andrew too? Dr. Charles (Chip) Sampson has followed Lindsey for the past two years. I told him about Andrew. He is a great doctor.

Take care and hang in there. Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Monday, February 6, 2006 0:57 AM CST
Just checking in to see how Andrew is doing. Im glad he got to come home from the hospital. I can't imagine the frustration of not knowing what is causing your baby pain. I said a little prayer for him last night and will continue to pray for sweet Andrew and your family. Hope that knowing there are people out there praying for you and thinking of you at this time brings you comfort. Feel better Andrew!
Liz Hindson (Izzys aunt) <lizcon@yahoo.com>
Clemson, SC - Sunday, February 5, 2006 7:31 AM CST
Just checking in to see how things are going with you guys...I'm happy to hear that Andrew is home now. I hope things get back to "normal" soon!!!
Please know that you guys are in my thoughts and prayers! if you ever need anything please don't hesitate to call...I'm not too far from you guys, I can come up and help with anything you may need!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown, KY - Sunday, February 5, 2006 3:03 AM CST
Image Hosted by ImageShack.us
Image Hosted by ImageShack.us
LOVE ALWAYS BRENDA MY LOVING DAD'S SITE <brurka@shaw.ca>
EDMONTON,ALBERTA CANADA, - Saturday, February 4, 2006 1:19 AM CST
I read about Andrew on Isabel's site. I will say a prayer for him and for the whole family. I pray he will feel better soon. Have a blessed day.
Donna
Rock Hill, SC USA - Friday, February 3, 2006 2:14 PM CST
Checking in on you Andrew...and hoping you're feeling better a little each day. Hannah prays for you at night, along with her sissy and MPS kids/families. Tell Mommy, Daddy and brother Alex we said hello. Much love to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Friday, February 3, 2006 9:26 AM CST
Hi! I got this site off of Isabel's and wanted you to know I will pray for you all! I manage GI practices and have worked in a GI office for a total of 8 years now.. Not that I am diagnosing, but I have seen it all.. They may need to check to see if he has an infection in his colon such as colitis,diverticulitis,or Crohns. The mucous in the stool is a sign that he has something in his colon that is acting up. Please insist that his colon is evaluated to the most extent that it can be. All three of these problems are treatable , but cause a lot of pain for the person affected. I will keep in touch with you all and hope that they can help Andrew out soon!!!With love and prayers,
Miki <brat77rh@yahoo.com>
- Friday, February 3, 2006 7:46 AM CST
Andrew, I hope you get better real soon. ( and mom and dad get some rest too ! )
martha
Stoughton, Ma USA - Thursday, February 2, 2006 7:12 PM CST
My sister has told me that Andrew has not been doing well. I pray that things will get better and his health will improve. Keeping your family in my thoughts and prayers,
Izzy's Aunt Lizzie
Liz Hindson <lizcon@yahoo.com>
Clemson, SC - Thursday, February 2, 2006 8:24 AM CST
You are in our thoughts and prayers. I hope you get some rest and poor Andrew gets some relief from his pain. I'll be praying for his doctors to know what to do for him.



Susan (Isabel Jurado's aunt) <smdemchak@comporium.net>
Rock Hill, SC - Wednesday, February 1, 2006 8:45 PM CST
I too came here to see how Andrew was today.Hope he is feeling better.Continuing to pray for you and your family.I so hope you get some answers soon.
Sheryl & Family
Westville, NJ USA - Wednesday, February 1, 2006 8:37 PM CST
im sorry andrew isnt feeling well you and your family our in our thought and we hope andrew starts to eat soon.hugs and kisses kathy and katilynn preston
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Wednesday, February 1, 2006 7:46 PM CST
Just a note to let you know that you're in our thoughts & prayers, and hope lil Andrew is feeling better today.
Hugs,
Rebecca & Nathan
www.caringbridg.org/visit/nathanbivens
Rebecca Bivens
- Wednesday, February 1, 2006 12:32 AM CST
Just wanted to stop by and let you know that I am keeping you guys in my prayers! I know you are going through a hard time right now with Andrew...if you ever need anything please call me!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Tuesday, January 31, 2006 9:58 PM CST
Hey Andrew Buddy. I'm sorry you aren't feeling well. I know Mommy and Daddy are doing all they can...you know that too! You are just in one of those nasty MPS "rutz" but you'll pull through soon - even though it doesn't seem like it. Hopefully all the doctors/specialists will test and scan everything imaginable. Tell Mommy and Daddy to call Lindsey's Dr. Muenzer if they have problems/issues/questions. We love you and your Mommy and Daddy. We will keep praying for you cause we've been there! Tell little brother we said hello! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, January 31, 2006 8:48 PM CST
I am so sorry Andrew is having such a hard time. I know it even harder for you as his parents. My prayers are with you. Stay strong and follow your gut. You know him better than any doctor so if you think it is his head then keep telling them. Eventually someone has to listen. I hope the tests are helpful in figuring out the source of the pain. I pray that you have lots of friends and family surrounding you.
Leslie Jurado <lesliejurado@rhtc.net>
- Tuesday, January 31, 2006 8:33 PM CST
HI ANDREW!HOPE YOUR FEELING WELL.XOXO 4 U.LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
LATOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL - Tuesday, January 31, 2006 4:43 PM CST
I am so sorry to hear that Andrew has been having such a bad time, and it must be so difficult to not know the cause. I pray that the doctors will find the reason for his symptoms and get this turned around. You are all in my prayers.
Cathy (Isabel's Gandy)
Cathy Abernathy <cabernat@chestertel.com>
Chester, SC - Tuesday, January 31, 2006 4:17 PM CST
Just wanted ot let you we are keeping you and the family in prayer. I hope Andrew adjusts and gets back to a comfortable way of being soon!
Many hugs and prayers for you all!

Love,
Patty and Jesse


Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Friday, January 27, 2006 10:59 AM CST
WOW! Great news on the AAV therapy. Hopefully they will start a trial soon. Just heard that Andrew in the hospital and wanted to check for an update, but I am sure you all have your hands full. I'll try to call and check on him tomorrow.
Jo Ann <indigoquinn@fuse.net>
Florence, KY - Wednesday, January 25, 2006 5:28 PM CST
Hi Jump Family! Hope that January is treating you well and that Andrew is feeling great! Take care of you!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Friday, January 20, 2006 8:17 AM CST
Just stopping in to let you know that I'm thinking of you guys!!! Hope that all is going well!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Tuesday, January 17, 2006 4:04 PM CST
A hug is just a way to say,
I love you in a special way,
To tell that someone special,
I care about you in every way.

In your hug is the circle of life.
A new begining to an endless day
A ray of hope to light your way.
Take a hug and pass it on
don't save them up it can't be done.

Big Hugs for you!!!

Image hosted by Photobucket.com

Love,
Patty and Jesse

Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Sunday, January 15, 2006 8:53 AM CST
Image hosted by TinyPic.com
The Prayer Bears
Hailee

sending bear prayers your way
melissa <angels4hailee@Cox.net>
cavecreek, az usa - Saturday, January 14, 2006 10:30 PM CST
Just dropped in to say "Hi". Love your new pictures. Andrew looked like he enjoyed Christmas. I didn't realize how close him and Scotty (9-29-97) were in age! Hope the Doctors appt. goes well on the 26th.
Love,
Kim & Scotty <cottons@earthlink.net>
Modesto, CA US - Wednesday, January 11, 2006 10:12 PM CST
Hi, Just want to wish you all a very happy new year, so glad that you enjoyed christmas. Great to hear that Andrew is doing well, give him a big hug from me & Georgia xxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Monday, January 9, 2006 4:24 PM CST
glad to hear you all had a great Christmas and Andrew laughing is fantastic , that is the greatest gift anyone could wish for
we are thinking of you from Australia and will be praying for you from now on
Sammy-Joe and family
http://www.caringbridge.org/ok/sammyjoe
http://www.vp-it.com.au/sammyjoe/
the Liistro family from Down under Australia
The Liistro Family <sammyjo2@bigpond.com.au>
craigieburn ,Melbourne, Vic Australia - Monday, January 2, 2006 5:30 AM CST
Glad to hear you guys had a great Christmas. Andrew's laughter is the best present.I hope the New Year will be good for everyone. Hugs from Me and Andrew and Patrick.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, January 1, 2006 10:01 PM CST
So glad to hear that Andrew has been laughing and feeling better. There is nothing sweeter to my ears than the sound of Izzy's laughter. Wishing you a peaceful and blessed 2006.
Leslie Jurado <lesliejurado@rhtc.net>
- Sunday, January 1, 2006 7:29 PM CST
So glad to hear that Andrew has been laughing and feeling better. There is nothing sweeter to my ears than the sound of Izzy's laughter. Wishing you a peaceful and blessed 2006.
Leslie Jurado <lesliejurado@rhtc.net>
- Sunday, January 1, 2006 7:29 PM CST
Jump Family,
Andrew sounds like he had a great Christmas!! That's always a blessing. Hope you and your family have a healthy and happy New Year.
Rebecca & Nathan
Rebecca Bivens <krbivens@bellsouth.net>
- Sunday, January 1, 2006 1:09 PM CST
Jump Family,
Andrew sounds like he had a great Christmas!! That's always a blessing. Hope you and your family have a healthy and happy New Year.
Rebecca & Nathan
Rebecca Bivens <krbivens@bellsouth.net>
- Sunday, January 1, 2006 1:00 PM CST
Happy New Year, may 2006 be a good year.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, January 1, 2006 5:28 AM CST
HAPPY NEW YEAR!
Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Sunday, January 1, 2006 0:15 AM CST
I hope you have a Wonderful year in 2006 and are Blessed with many Joys including Love, Peace and Happiness! I am sp glad I have had the chance to "know" your family and have been blessed with your help - I hope we will get the chance to meet next summer!!!
Erica Thiel <scheiecat@yahoo.com>
Beaver Dam, WI USA - Saturday, December 31, 2005 11:34 PM CST
May 2006 be a year of God's blessings for you and your family.
Stephanie and RachelJoy <mom2rj@comcast.net>
- Saturday, December 31, 2005 9:55 PM CST
HAPPY HEALTHY NEW YEAR!!!LOVE TOSHA AND SYDNEY.
WWW.CARINGBRIDGE.ORG/VISIT/SYDNEYVANHOOK
LATOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILL USA - Saturday, December 31, 2005 9:43 PM CST
It is great to hear that Andrew is doing well and that you and your family had a wonderful Christmas.

Wishing you a very HAPPY NEW YEAR!!
Sheila and Shelby George <sjgeorge103@cox.net>
Edmond, OK USA - Saturday, December 31, 2005 7:01 PM CST
Image hosted by Photobucket.com
Sjon (dad to Kariem, MPS II)
The Netherlands - Saturday, December 31, 2005 2:47 AM CST
HAPPY NEW YEAR!!!
Jenn Deskins
- Saturday, December 31, 2005 0:57 AM CST
So glad to hear you are feeling better, Andrew!! Hope you had a wonderful holiday with your family!!
Michelle C <coughlinmichelle@yahoo.com>
CIncinnati, OH - Tuesday, December 27, 2005 12:23 AM CST
just wanted to
stop by...

glad you are
starting to
feel better...

sending you lots of love

Craig, Lauren, and Helen

CRAIGGY
helen <trula1@comcast.net>
- Tuesday, December 27, 2005 7:48 AM CST
Hi Paulina
I hope you all had a very Merry Christmas. I check you s ite much more often than I sign it and I think of you often. Blessing to you and Andrew!
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, sc - Monday, December 26, 2005 5:37 PM CST
Thinking of you today. I hope you all have a blessed holiday! 



BEG GIRLS


Beg Family <Tayyaba@helpourgirls.com>
NJ - Sunday, December 25, 2005 9:20 PM CST
Merry Christmas
www.caringbridge.com/ma/abigail
- Sunday, December 25, 2005 1:24 PM CST
MERRY CHRISTMAS!
Jennifer Deskins
- Saturday, December 24, 2005 9:07 PM CST
HI GUYS
JUST WANTED TO STOP BY TO WISH YOU ALL A MERRY CHRISTMAS AND A HAPPY HEALTHY NEW YEAR
HUGS AND KISSES KATHY AND KATILYNN PRESTON.www.caringbridge.org/ky/katilynnmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Thursday, December 15, 2005 3:00 PM CST
Stopping by to check on the boys. I hope Andrew is felling better after the dental work. Prayers that you are seeing improvements and he doesn't need a shunt.
Sharon cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, December 12, 2005 9:59 PM CST
Hope you are all relaxing and staying warm!! Have a great day, Andrew!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Monday, December 12, 2005 10:17 AM CST
Hoping the teeth issues eases things and it not about a Shunt! Praying so hard for peace for you all especially Andrew! Hugs to clever Alex! Laura and Willxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, December 8, 2005 1:52 PM CST
Thinking of your family and checking in often! Take care of yourself, Paulina!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Wednesday, December 7, 2005 1:31 PM CST
Paulina, you are in my prayers and your in God's hands. He is close to the brokenhearted. I know he is close to you guys. Hang in there.

Valerie Patterson <valpatterson@knology.net>
Huntsville, AL Madison - Saturday, December 3, 2005 9:19 PM CST
Hate to hear that things are not getting better. Hope all went well with his dental surgery today. I'll call soon to reschedule our visit for as soon as Drew feels up to it.
Jo Ann McCaughan <indigoquinn@fuse.net>
Florence, KY - Wednesday, November 30, 2005 6:25 PM CST


Alicia, John, Ciara, Hunter & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Tuesday, November 29, 2005 1:37 PM CST
Sorry to hear Andrew has not improved. I pray he gets relief and you get answers soon. Don't be afraid or ashamed to ask for help at your church and employers. They are blessings! Constantly check with Social Services/Human Services/Family Services for assistance also. We know how you feel honestly. I'm sorry for all the stress, but know we will pray! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Sunday, November 27, 2005 2:45 PM CST
Stopping in to wish you a Happy Thanksgiving. I hope the doctors get everything fiqured out so Andrew isn't in pain anymore.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Oh USA - Saturday, November 26, 2005 3:27 PM CST
Just checking on Andrew! Any new plans? I keep you all in prayer daily! Hugs to all of you!
Patty and Jesse
Patty Taormino <wordinedge@aol.com>
Balto, MD USA - Saturday, November 26, 2005 1:58 PM CST
You are in my prayers, I hope there is nothing serious going on with Andrew

Andrea Van Ghle <andrea_vanghle@yahoo.com>
- Saturday, November 26, 2005 1:45 AM CST
HAPPY TURKEY DAY!I HOPE YOUR FEELING BETTER.I KNOW WHAT ITS LIKE TO STRUGGLE FINACIALLY.WE ARE RIGHT NOW.HANG IN THERE.LOVE TOSHA AND SYDNEY.
CARINGBRIDGE.COM/SYDNEYVANHOOK
LATOSHA VANHOOK <SFROBERTS@HOTMAIL.COM>
BLOOMINGTON, ILLINOIS USA - Thursday, November 24, 2005 6:41 PM CST
Happy Thanksgiving! I hope Andrew is feeling better soon.
Kim and Scotty
Kim Whitecotton <cottons@earthlink.net>
Modesto, ca - Thursday, November 24, 2005 5:19 PM CST
Paulina -you know I am paying for answers to ease your anxiety and Andrew's discomfort -we are always thinking of you all-Happy Thanks giving Hugs Laura xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, November 24, 2005 2:51 PM CST
Hope you can have a peaceful Thanksgiving today and try to forget about the other stuff, if only for today.
Sending you lots of hugs and prayers,
The Haggett's, JOhn, Bren & Zachie
Brenda Haggett mom to Zach ML II/III <jhrufus@aol.com http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie>
Syracuse, NY usa - Thursday, November 24, 2005 10:17 AM CST
HAPPY THANKSGIVING!!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
- Wednesday, November 23, 2005 11:17 PM CST
Hey Andrew...was checking to see how you were doing since I've not seen an update since Friday. I hope you are feeling much better and the doctors are getting you on the right track. Take care...much love to you and your family from ours - kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, November 22, 2005 10:04 AM CST

WE WANTED TO STOP BY AND WISH YOUR FAMILY A HAPPY THANKSGIVING.HUGS AND KISSES KATHY AND KATILYNN PRESTON
www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Monday, November 21, 2005 3:07 PM CST
I wanted to stop by and check on Andrew. Sorry he is not feeling well after the LP. Hopefully the caffine will help him feel better. I think about you all the time and just wanted you to know that. Hugs to everyone.
Sharon Cochenour (mom to Andrew) <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, November 20, 2005 9:58 PM CST
I am so glad that Andrew did well with the procedure. I am sorry he had a headache afterwards. It is so hard to keep a child still for that long when you cant make them understand. We (me and my extended family) are all praying for your family. We think of you often and wish we could make things better. I know you have had hard days lately but you have each other. Wishing you a Happy Thanksgiving!!!

Izzy's mom (MPSIIIa)
www.caringbridge.org/sc/isabel
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC - Sunday, November 20, 2005 12:39 AM CST
Lindsey has had these monitors several times before. It is risky, but worth the knowledge to decide what is next. Ask again about the Diamox. I would encourage a call to Dr. Muenzer in Chapel Hill, NC. Dr. Muenzer was the head of all of Lindsey's "team" approach (neurology, PICU, neurosurgery, GI, etc). He may can suggest something for you about Andrew's care. Hang in there and know that we feel for you all. Our prayers and love are with you...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Wednesday, November 16, 2005 1:58 PM CST
Hi Andrew-
So glad that your procedure went smoothly yesterday...and so sorry you'll need to have another procedure so soon! Hang in there, Andrew!
Michelle C <coughlinmichelle@yahoo.com>
Cincinnati, OH - Tuesday, November 15, 2005 8:55 AM CST
Hi Paulina, I am sorry, Andrew is not doing good. I heard from Patty at the conference about him and i am praying since then.I been thinking of you all day. I hope every thing did went well. May GOD make things easier for you guys.

http://www3.caringbridge.org/nj/helpourgirls/
Tayyaba Beg <tayyaba@helpourgirls.com>
NJ - Monday, November 14, 2005 10:04 PM CST
Hoping today that answers will be found and Andrew will feel better soon! Much love to you and your family from our Sanfilippo Family...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Monday, November 14, 2005 10:39 AM CST
Hi Andrew! Thinking of you today! Hope your procedure goes smoothly!!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Monday, November 14, 2005 9:46 AM CST
hi paulina
i just wanted to stop by and check on you and your family.i am hoping for the best monday for andrew and i hope things get better for your family soon.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, November 12, 2005 6:33 PM CST
Thanks for updating and keping us posted on how Andrew is doing. I will pray that the procedure goes smoothly.
Michelle Coughlin <coughlinmichelle@yahoo.com>
CIncinnati, OH - Friday, November 11, 2005 9:21 AM CST
Hi Jump family! So sorry to hear that Andrew is having a rough time again- I hope the nuerologist is able to give you some advice. Take care of yourselves.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Wednesday, November 9, 2005 8:40 AM CST
Sorry to hear about Andrew having problems with eating and drinking again... You're all in my thoughts.
Sjon
The Netherlands - Wednesday, November 9, 2005 8:01 AM CST
I will be praying for quick answers for Andrew. My thoughts and prayers are with you Paulina
Big Hugs from Houston
Love,
Kim
Kim, Caroline, and Ty <jdownham@earthlink.net>
Houston, TX - Tuesday, November 8, 2005 8:42 PM CST
Sorry to hear Andrew is having troubles again. Hopefully your Neurologist will have some answers. Hugs to everyone.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Tuesday, November 8, 2005 8:45 AM CST
Paulina,
Thank GOD Colin and Alex are safe, how very scary!!!
I just wanted to wish Alex and Andrew a Happy Halloween!!!
HOpe you have a fun evening!!
Love and prayers always, The Haggett's,
John, Brenda & Zachie ;0)
Brenda Haggett mom to Zach ML II/III http://www.caringbridge.org/cb/inputSiteName.do?method=search&siteName=zachie <Jhrufus@aol.com>
Syracuse, Ny Usa - Monday, October 31, 2005 11:07 AM CST
HAPPY HALLOWEEN!!!!!
Jenn and Tyler Deskins
- Monday, October 31, 2005 1:08 AM CST
Hey Andrew and family. So glad things have picked up lately for all of you. I check in everyday, but just don't take time to sign all the guestbooks. Know that you're thought of along with all the other MPS kids/families. Take care and God bless you all. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Sunday, October 30, 2005 4:15 PM CST
Hi Andrew! Just checking in to see how you are doing. I hope you and Alex had a really special birthday! I'm glad to hear that you are resting and eating better.
Love Ya,
Kris and Kraiggy
Kris Klenke <kklenke@madisontelco.com * * * www.caringbridge.org/il/kraig/ * * *>
Worden, IL - Wednesday, October 26, 2005 5:20 PM CDT
Hi Paulina!!!! I'm SOOOOO sorry I didn't get to meet up with you at the pumpkin patch!!! I feel so bad!! I hope Alex had a wonderful time!! and I hope that Andrew is still doing good!
Jennifer Deskins
Georgetown , KY ****www.caringbridge.org/ky/tylerdeskins*** - Friday, October 21, 2005 10:08 PM CDT
Hey Paulina! I feel like I haven't seen or talked to you in forever. How are things going? I hope everything is well. I feel horrible that I haven't talked to you in so long. How is Andrew? How about Alex? I read in the journal that he started preschool, I hope he is loving it, he's such an intelligent child. Well I'll try to keep in touch, I'm so busy with school, I'm taking 17 hours this semester, and hopefully will be graduating within the next 2 years. I'm praying for you and your family. Talk to you later!
Sarah Baumann <sbaumann@uky.edu>
Lexington, KY - Thursday, October 20, 2005 2:37 PM CDT
Hi just droppin in to say Hi and check out Andrew since the latest!! Hope the meds work fo him Hugs Laura (mum to Will mps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, October 18, 2005 4:14 PM CDT
Just wanted you to know that I just finished collecting the money for our Casual Dress day and we raised around $250 for MPS. I think next time I should make sure there is not a long break right before the event, because I think a lot of people forgot. Let me know how I get the money to them. I emailed someone at the MPS society, but haven't gotten a reply.
Jo Ann McCaughan <jmccaughan@gallatin.k12.ky.us>
Warsaw, KY - Monday, October 17, 2005 12:00 AM CDT
I'm so happy Diamox is coming! Lindsey has done much better since being on it since December. She is on 2 tsp twice a day (125mg/5ml) dosage. I hope it works for Andrew as well. Take care and much prayers/love sent your way...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Sunday, October 16, 2005 2:59 PM CDT
I'm so happy to hear that Andrew is doing better!!!!!
Be sure to call me to remind me you'll be at the pumpkin patch...I'll come out and see you guys! It's only 5 minutes from my house!!!

www.caringbridge.org/ky/tylerdeskins

Jennifer Deskins
Georgetown, KY - Saturday, October 15, 2005 6:28 PM CDT
Hi, all. I'm sorry to hear about all that has happened since I last saw you. I think of you all often and pray regularly for you. I'll see you all soon. God Bless and take care.
Billy Bussell
Billy Bussell <revbillybus@hotmail.com>
Florence, KY USA - Wednesday, October 12, 2005 11:03 AM CDT
I hope everything is continuing to go much better for Andrew. Hospitals can always be scary no matter what you think the circumstances may be. Lindsey's heart rate periodically goes into the 40s and at times her respirations are 6-10. So all kids can be different and "strong". They're amazing aren't they? You didn't mention an MRI or body scan while Andrew was sedated, so I hope the docs took advantage of the day and ran all they could to give you some answers. I pray Andrew has relief soon!

If you haven't or aren't on any government assistance, please apply and then appeal, appeal, appeal if necessary...Andrew deserves assistance so you and Colin don't have to get second jobs and stress yourselves out even more. It took Mark and I two years to 'accept' help, but it makes a huge difference emotionally, mentally and financially. We still struggle making ends meet each month with one income, but we make it work somehow. I will continue to pray for your family! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, October 11, 2005 7:45 AM CDT
***********************************************
HAPPY BIRTHDAY ANDREW!!!!!
***********************************************
Jennifer and Tyler Deskins <tylersmommy11304@yahoo.com>
- Monday, October 10, 2005 12:11 AM CDT
*****************************************
HAPPY BIRTHDAY ALEX!!!!!
*****************************************
Jennifer and Tyler Deskins
- Monday, October 10, 2005 12:10 AM CDT
Hi. My name is Stormy and Andrew is such a sweet boy. I have seen him once or twice in town and he is such a sweet kid. I attend that Gallatin Middle School and we are all having a dayu to donate money on the 17. I am going to donate some money, not because I want to wear a hat, but because I want to help Andrew so that he can enjoy all that life has to give.God bless you all and I hope that Andrew can get better soon.
Stormy <sweetnsassy_7@msn.com>
Glencoe, KY USA - Saturday, October 8, 2005 4:44 PM CDT
I hope all goes well with Andrew today our prayers are going your way
pat Matthews <matthewskenpo@comcast.net>
- Saturday, October 8, 2005 12:37 AM CDT
Hey guys! I just wanted you guys to know that I'm praying for you all!!! I hope everything goes good today with Andrew's LP!!! Lots of love!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins, - Saturday, October 8, 2005 0:35 AM CDT
Hey Paulina. Checking in again. It's stressful, but continue to pursue and push the doctors about GI issues. Beg them to try some acid-reflux meds. You'll know in two weeks time. Also, Lindsey has had numerous LPs. They are risky, but push for one of the best to do it so you can have some answers. A couple of Lindsey's saved her life (didn't know of infection until we did it). I know y'all are tired, beyond tired, and emotionally drained - it doesn't get better I don't think!? But know I care and continue to think of Andrew and how Lindsey used to be. I pray you get help soon for him. Much love and prayers to you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Wednesday, October 5, 2005 9:37 PM CDT
I am sorry to hear Andrew is still having pain. I hope they get some answers after the LP. I was also wondering about whole bowel and GI tract to see if any problems there? Does Andrew have reflux? They started my Andrew on meds for that. I could not put him through another Ph Probe, so we treat him as though he has reflux and it has helped. Glad to hear nobody was injured in the car accident. Hugs to everyone.
Sharon Cochenour (mom to Andrew MPS II) <scochenour@hotmail.com>
Clarksburg, Oh USA - Tuesday, October 4, 2005 9:55 AM CDT
I'm sorry to hear about the wreck, but relieved that Colin and Alex are ok!!! I'm so sorry that you guys are going through so much right now!
I hope Andrew's LP goes good next week! and thanks for defining everything!
I am definately keeping you guys in my thoughts and prayers!!!!!
Love, Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins , - Friday, September 30, 2005 10:13 PM CDT
Just wanted to stop by and let you all know that we are thinking about you. I have to agree with Karen on the GI issues. Kraig has MPS II, but we have been battling similar issues. Kraig still does not sleep the best, but he is resting much better. I haven't seen the constant aggitation (thankfully) since we've been giving him Miralax routinely, that has seemed to help his belly quite a bit. I'm just so sorry that Andrew is in such pain. (((HUGS))) and prayers are headed your way.
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005

Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Sunday, September 25, 2005 8:42 PM CDT
I guess because of Lindsey's past, I am compelled to tell you it's Andrews bowels/intestines/stomach. Dr. Muenzer said that MPS children have irritability, but NOT FROM these type issues...well Lindsey has MPS and all the doctors (including Dr. Muenzer) NOW agree she does indeed have problems/issues with this tract.

Lindsey takes acidopholus (good bacteria for the tract), Miralax, Senna, Mylicon - she has been on GI Meds in the past like Reglan, etc. I would definitely push to see if any of this helps. All of Lindsey's GI studies and tests were normal, so that's why it took us years to get them to finally believe what we've thought from day one. It's just a suggestion, but I do hope Andrew finds comfort very soon!

We think of you often...take care! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Sunday, September 25, 2005 1:09 PM CDT
Hi Paulina - just checking in to see how Andrew was and to say we are praying that the Doctors find some answers soon.
Hugs
Terri Klein
Whitmore Lake, MI USA - Saturday, September 24, 2005 10:30 PM CDT
Hello to all the Jumps!
I am checking in on my little Drew now that I don't get to see him on a regular basis. Now I have the privilege of seeing Alex nearly every day! :) My heart just breaks as I read the journal entries and hear about your suffering. I cannot imagine how difficult life is from day to day when you have a child with MPS. I hope that if there is ANYTHING my family can do to lighten the load you guys would let us know. I may not be there twice a week any more, but you are all constantly in my thoughts and prayers.
By the way, I am sending you an email about our Casual Dress for MPS event at school, so check your email in the next couple of days. Give Drew a big hug and kiss for me!
Jo Ann McCaughan <indigoquinn@fuse.net>
Florence, KY - Wednesday, September 21, 2005 5:54 PM CDT
Hi Colin, Paulina, Andrew and Alex,
We've been thinking about you guys and pray for you all. We wished that dinner the other night would have worked out, but we know only too well what it is like. You change your whole life around MPS and then in a second it's gone and your whole life changes again. Now we feel somewhat guilty because we can do the things that normal families do, but thats not what we want, we still want to be an MPS family. I know it is tough for you all, tougher than we ever had it, but God chooses special people for our special children and you guys are a special family. Have faith that God will help you all to endure your special life with Andrew and Alex. Once it's gone, you will never be the same so give your two beautiful boys a hug, look up at the stars and say "Thank you for giving us this special life." All our love and prayers, Tom, Anne, & Sarah Gniazdowski
Tom, Anne & Sarah Gniazdowski <tomg@fullservice.net>
Springboro, OH US - Friday, September 16, 2005 7:27 AM CDT
Image hosted by Photobucket.comA little birdie told me to stop in and say hi! You know we love you guys! I am happy Alex is liking school too. Hopefully Andrew's new med will help him and the rest of you to get some sleep.
(((HUGS))))
Patty and Jesse
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Wednesday, September 14, 2005 7:59 PM CDT
you guy's are the best and we pray for your family stop in and see me at cresent for dinner Imiss you guys I wish I could make it all better for your family I'llpray that it happens
JASON SMITH <hcjs5@msn.com>
COVINGTON, KY USA - Tuesday, September 13, 2005 11:12 PM CDT
Paulina,

Thinking of you always, and praying that these burdens your carry would be lifted so that you can find some peace and comfort. Karin E. gives some very sound advice! Paulina, my dad too, was an alcoholic. It is a very troublesome way for a child to be raised (or not raised, my mom became an alcoholic by the time I was 8 yrs old due I am sure to my father's drinking and abuse) I can understand your feelings about keeping it bottled up inside and having to be the caretaker, but that just wont do now. You need someone to take some of these burdens off your shoulders, and you need to be able to talk to a professional about your feelings. Believe me, this can be quite helpful. My phsycologist was able to steer me in the right direcction in regards to Ty's health problems a few times on top of helping me come to terms with my feelings and depression on several occasions. I wish some of us (including me) lived closer to you, it is so much better when you have a support system around you to offer much needed respite.
Keep praying, not only for guidance, but ask God to lift some of these burdens from you and I will pray that He do so, as well.

I love you,
Kim Downham <jdownham@earthlink.net>
Houston, TX - Saturday, September 10, 2005 9:47 AM CDT
Only an MPS Mom can say...I KNOW how you feel. And I do Paulina. Marriage is tough on its own...making your finances work out, add kids (healthy at that) and it's even more hard. But throw a kink in it with an MPS child, and it seems "when do you get a break". It sucks really, BUT no matter what, hang on to Hope and Pray for God to help. It truly makes a difference.

I'll be honest, we take meds to help us function (Paxil and Cymbalta). Counseling, therapy, and medications are there to help us and I'm not ashamed any more to say we have to have them now. I'm sorry you and Colin are going through such a rough time - been there, done that - it's hard!

Seek financial assistance through Social Security Administration and Social Services/Health and Human Services and Mental Health (programs and services that you qualify for because of MPS). Swallow your pride, like some of us have had to, and go ask how/what they can do to help you guys.

Also, write a detailed letter about your finances and MPS life...some medical expenses will be paid off for you through foundation money if you ask. We have been very blessed by this. It's worth a try to help you out financially.

Know that I think of you often, check in every week on the webpage, and will be praying for you all. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Thursday, September 8, 2005 0:52 AM CDT
I'm so sorry your feelin so low-This disease is so heartbreaking and any other thing that comes along well it can just be too much !I'm glad you have Andrews nurse to talk too -Don't be too strong -share the burden ! you are in my thoughts as are all the family especially Andrew Hugs Laura xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, September 7, 2005 4:37 PM CDT
It looks like Alex is enjoying school! He is so cute!
I'm sorry to hear that things have been so hard for you lately. I wish I could be there to help you and give you a big hug. You are a great mom! and such a strong person. I will keep you and your family in my prayers!
Jennifer Deskins <tylersmommy11304@yahoo.com>
www.caringbridge.org/ky/tylerdeskins , - Wednesday, September 7, 2005 9:04 AM CDT
Hi Jump family! I just wanted to let you know that I hope you guys have a great day and that I am thinking about you! Sending some big hugs your way!
Leslie <Leslie42457@yahoo.com>
NC USA - Saturday, August 27, 2005 11:05 AM CDT
just popping in to say Hello! I'm sorry about your job Paulina but I'm sure somethin right will come along. Alex will get used to school but its a hard time isn't it when they first go! love and Hugs Laura (mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Thursday, August 25, 2005 11:54 AM CDT
Just checking in to see how you guys are doing...I'm sorry you didn't get the job Paulina!!!
I hope Alex adjusts to school...so it will be easier on the both of you! Glad to hear Andrew got his staples out!! Thinking of you guys all the time!
Jennifer and Tyler Deskins <tylersmommy11304@yahoo.com>
- Wednesday, August 17, 2005 6:49 PM CDT
Hi Paulina! Sorry I haven't posted in a while; I do stop in to your page to see how Andrew - and all of you!- are doing often. I'm sure you are disappointed that you didn't get the position you applied for, but every interview is practice that makes you that much better prepared for the next one!! I have no idea how you have found the time and ENERGY to go to school and do everything else you do...you will always be such an inspiration to me. Take care of yourself and give Andrew a hug for me. :)
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, - Wednesday, August 17, 2005 6:17 PM CDT
Andrew and family, I wish happiness to you all and I now have one more family in my prayers. Love, Shannon
Shannon Cherpes <cookie_sc2000@netzero.net>
Ionia, Michigan United States - Wednesday, August 17, 2005 2:05 PM CDT
Paulina, Do not feel guilty about his head getting hurt,you love him. Accidents happen everyday. God bless you guys. You are a great mother to both Andrew and Alex. Good luck with school Alex!
Elizabeth Sams <eli22@fuse.net>
Southgate, Ky USA - Monday, August 1, 2005 6:55 PM CDT
I'm praying that your weekend is blessed.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Friday, July 29, 2005 11:37 PM CDT
Hi guys! I thought I would let you know that I stopped by to check on you all. Sending lots of great big hugs your way!!
Leslie (MPS/ML Forum) <Leslie42457@yahoo.com>
NC USA - Friday, July 29, 2005 12:52 AM CDT
Hey Andrew and Alex!!
Image hosted by Photobucket.com
I sure hope you got to enjoy your pool while the weather was hot!
I am keeping Andrew in prayer! I hope things get better soon for our little buddy!

((Hugs))
Patty and Jesse
Jesse


Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Thursday, July 28, 2005 6:49 PM CDT
You don't know me...but I wanted to let you know our prayers are with you. I have added your name to my son's web page so more people can pray. http://www.babiesonline.com/babies/b/bubble/
God Bless!
Julie Leonard <ajulie4u@yahoo.com>
Mocksville, NC USA - Monday, July 25, 2005 1:31 PM CDT
"He still is gagging and swallowing as if he wants to bring something up and cannot."

Ciara did this all the time, but since she has been on the soy, she hardly does it at all. Last week I didn't give her the soy for 5 days and she was back to coughing, gagging, and girgling but she has been back on the soy for 4 days and she isn't doing it hardly at all. Just thought I would pass that info on.

Alicia, John, Ciara, Hunter, & ^^Angel^^ Tommy BENNETT CHILDREN'S JOURNAL <mps3mom@hotmail.com>
- Monday, July 25, 2005 12:50 AM CDT
Paulina -I'm sorry Andrew has so many issues to deal with at the moment -I hope the appt on Monday helps Hugs Laura xxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, July 24, 2005 3:56 AM CDT
Have a nice weekend.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Saturday, July 23, 2005 2:01 PM CDT
Hi, I am Isabel Jurado's grandma, and I just want you to know that Andrew and your family are in my prayers. I have Izzy today, and she is napping now, so that gave me time to check on other MPS children whom I have grown to love from reading their sites. I am so sorry to hear that Andrew is having swallowing problems, but I hope that the thickeners will help. Take care and hang in there.
Cathy Abernathy <cabernat@cherstertel.com>
Chester, SC - Thursday, July 21, 2005 2:00 PM CDT
Just stopped by to see how you guys are doing. Sorry about the thickener in your liquids Andrew. YUCK! I'm sure you'll get used to it in time. Hope Andrew sleeps well tonight. Sleep deprivation is TOUGH!!! Yal hang in there. God Bless.
Isabel's Mom
www.caringbridge.org/sc/isabel
Leslie Jurado <lesliejuardo@rhtc.net>
Rock Hill, SC USA - Thursday, July 21, 2005 11:58 AM CDT
hi all
i just wanted to stop by and check in on you all.sorry it has been awhile since i have been here.i am also sorry about the news that the doctors gave you about andrew.we all go through things in life that isnt fair and we wonder why us.i know that we did the same thing when we were told katilynn has hurler syndrome when she was 24 months old and we just wanted to take off running and never come back and pull our hair out along the way.2 months ago we were told that katilynns air way was blocked 90% from hurlers and we were so devasated we didnt know what to do.but i just wanted to let you know that we are thinking of you and your family right now and just let you know that we here for you all.hugs and kisses kathy and katilynn preston www.caringbridge.org/ky/katilynnsmom
kathy and katilynn preston <katilynnsmom@yahoo.com>
tomahawk, ky usa - Saturday, July 16, 2005 11:53 PM CDT
I've been popping in to see how y'all are doing but have been lurking silently and haven't been saying hi! Naughty, I know. I'm glad you feel that you have some answers now for some of the difficulties Andrew has been facing.

I just love that black-and-white family photo...I'm sure I've seen it before, but you put it back up and I just love it. :)

Take care of you, Paulina! You and your family and always in my thoughts and my prayers.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Thursday, July 14, 2005 11:21 AM CDT
So sorry to hear about the aspiration problems. I am sure it is very hard to decide about the feeding tube. I know in some ways it can make life easier but I understand your fears about Andrew pulling it out. Hang in there. You are not alone in your journey. We pray for your family and all MPS families. God bless.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC USA - Wednesday, July 13, 2005 2:39 PM CDT
I honestly DO know how you feel...we've been there and done that with Lindsey. She regressed on swallowing and eating a few years ago. We started the cutting up food, then mashing it up, then processing it, tried the thickening, all of it. It's just part of the steps into the MPS funnel unfortunately. Hang in there, you'll do just fine. My only advice is to not wait too long for the feeding tube (Mic-key button or push button type) due to aspirating issues. One other advice...somehow, someway, find something positive in everything negative to pull you through the trial. I think of y'all everyday and check in on you too. Take care and God bless you all...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Wednesday, July 13, 2005 11:51 AM CDT
Hi Andrew!
hope you are doing great!
I'm just stopping by to give you this, i just fell in love in this :)
Froggie

Love from Vibeke


Vibeke <vibekehovd@hotmail.com>
Skaun, trondheim, Norway - Saturday, July 9, 2005 1:50 PM CDT
Just stopping in to say "hi"!! And let you guys know I'm thinking of you!! I hope that everything is going okay!!
Jennifer Deskins www.caringbridge.org/ky/tylerdeskins <tylersmommy11304@yahoo.com>
Georgetown, KY - Saturday, July 9, 2005 11:59 AM CDT
Just dropping by to see how Andrew is doing and to let you know I am thinking of all of you. I hope you get some oanswers from the tests soon, Hugs,
Sheila George <sjgeorge@sbcglobal.net>
Spring, TX USA - Friday, July 8, 2005 8:54 AM CDT
Love the pictures. I have been off work for the last two Fridays, but will come out to see Alex tommorrow afternoon. Keeping you in my thoughts and prayers.
Marshae <mohms@hospicebg.com>
Fort Thomas, KY 41075 - Thursday, July 7, 2005 2:17 PM CDT
Just wanted to let you know we will be praying for you today during your studies and tests. We love you guys!
Image hosted by Photobucket.com
Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Baltimore, MD USA - Thursday, July 7, 2005 7:07 AM CDT
Happy belated 4th of July
Kim, Stephen, Nicole and Jack Frye <drafrye@aol.com>
- Tuesday, July 5, 2005 11:47 AM CDT
Happy 4th of July. Sorry to hear about all of Andrew's testing, hope you get some answers. Hope to see you guys at the picnic.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, Ohio USA - Tuesday, July 5, 2005 0:33 AM CDT
Andrew and Family. Hello I got here through Jesse's web page and through Isabel Jurado's ( my niece ) web page. I just wanted to let you know that I think all this kids with MPS are very special to me. My Family and I have learned a lot about what loving, caring for others is. Thanks to all of you, my kids who are 12, 11 and 6 are seeing life in a different way now. Thanks and God bless you all. We will pray for you and for all of the children with special problem, at this time prayers are our only hope. Happy 4th of July.

Carmen J. Paez <cjpaez@hotmail.com>
Weston, FLA USA - Monday, July 4, 2005 12:08 AM CDT
Happy 4th of July!
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, July 3, 2005 10:35 AM CDT
I love you guys...still praying for you always.
Serina Ritchie <guild_acoustic3@hotmail.com>
Florence, KY US - Friday, July 1, 2005 8:25 AM CDT
I'm so sorry that you guys have to deal with this extra stress in your lives right now! I hope you find the answers soon! I will keep Andrew in my daily prayers! It was so nice seeing you guys again today...thanks for stopping in, it's always so nice to have company!
love, Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, June 30, 2005 11:38 PM CDT
Lots of prayers for Andrew today are coming from the forum family. We pray for God to give wisdom to the doctors to find solutions for what is causing Andrews problems.
Image hosted by Photobucket.com
Hugs.. lots of(((Hugs)))
Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Thursday, June 30, 2005 11:15 AM CDT
I am praying that you will be able to get the help you need for Andrew. It must be very, very frustrating for all of you.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Wednesday, June 29, 2005 9:21 PM CDT
Hi Andrew,
Just wanted to let you know we are thinking about you. Have a nice weekend.
Jaime caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Saturday, June 25, 2005 11:31 AM CDT
Hi Paulina, was thinking about Andrew, so thought I'd stop by to say 'hello'! I'm sorry that he's been poorly, I really hope you get some answers. Georgia's not well at the moment either, it makes life so much harder. Good luck for your degree, & job hunting! xxxxx
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Tuesday, June 21, 2005 3:11 PM CDT
Hi just wanted to stop by and let you know that I have been here. Even though I dont sign your guestvook often I stop by almost every day!

Hugs from your friend from Norway.
Vibeke's Journal
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Sunday, June 19, 2005 3:30 PM CDT
What an awesome advocate you are for Andrew!! I am so sorry to hear of the struggles he faces on a daily basis. Congratulations on your classes!! Always praying for you guys!!! P.S. Thank you for introducing me to this website, how incredible.
Alicia Leggett <aleggett@gallatin.k12.ky.us>
Independence, KY US - Monday, June 13, 2005 8:23 PM CDT
I'm glad to hear that you are in your last class!!! YEAH!!! Sorry to hear about the issues with Andrew...I hope that you find a hospital that will take care of him the way YOU want, so you can find some answers. You guys are in my thoughts and prayers!!!
Love, Jennifer Deskins <tylerdeskins11304@yahoo.com>
Georgetown , KY - Friday, June 10, 2005 3:00 PM CDT
Hey Little sister,
I thought I'd stop by and say "hey"... LOL! I am praying for dear Andrew daily! But meanwhile I am sending these fun kids Alex and Andrew's way to play!
Image hosted by Photobucket.com
(((Big Hugs)))
Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Baltimore, MD USA - Friday, June 10, 2005 9:42 AM CDT
Hi Andrew! Hi Alex! Please give your mom and dad big hugs for me!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Thursday, June 9, 2005 11:35 AM CDT
Stopping by to see what is new is Andrew's world. Hope everything is going well. Can't wait to see you guys in July at the picnic.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, June 6, 2005 11:20 PM CDT
Greetings from Cincinnati, Jump family! Hope you are getting ready for a relaxing weekend together. Mr. Andrew, I hope you are feeling well! i think of you often.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Friday, June 3, 2005 10:00 PM CDT
Paulina,

Your the greatest! Thank you so much for thinking of us and being our friend! You have put a smile on Sam's face and a thankful tear in my eyes. God Bless you sweetie!

Love and Hugs,
Tami <tlslawson@aol.com>
- Tuesday, May 31, 2005 2:11 PM CDT
I just want to let you know that my family and I are praying for you and the rest of your family. i know that the lord will work a merical out for you and your family. I just want to tell you that Andrews story has hit home with me and that I hope that andrew and his brother both will stay active like he is doing at home. My family will keep praying for you.
catherine porter <catport18@yahoo.com>
Rock Hill , sc 29732 USA - Monday, May 30, 2005 4:17 PM CDT
Hi Paulina -just stopping by to hello! Will is pretty much the same about going places he really just likes to be either at home or school now-his familiar places.I hope they get Andrews chair sorted so he is comfy love and HUgs Laura
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, May 29, 2005 4:03 PM CDT
Hi Jump Family!
Looks like you had a nice day for the zoo, judging by the picture! You are in my thoughts and prayers - I check in almost daily to see if there's an update on Andrew and the rest of your clan! Just know I'm sending lots of mental hugs your way!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Friday, May 27, 2005 8:08 PM CDT
Hi there sister :-)
I'm glad you all got out to the Zoo for a while. It's nice that Alex still gets to do these things. I will be keeping precious Andrew in prayer. I sure wished lived we lived closer to each other!
P.S. Alex ... take good care of your big kitty :-)

Lots of Hugs,
Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Balto, MD USA - Thursday, May 26, 2005 2:42 PM CDT
Love the new pictures! Your boys are VERY handsome!
Jennifer Deskins **(www.caringbridge.org/ky/tylerdeskins)** <tylersmommy11304@yahoo.com>
Georgetown , KY - Thursday, May 19, 2005 12:29 AM CDT
I popped and and checked out your new pictures- I love the new haircut, Paulina! You look fabulous! :)
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Wednesday, May 18, 2005 7:53 AM CDT
Paulina -I often have the same thoughts when I See children of Will's age -it breaks my heart too-My thoughts are with you love Laura (mum to Will MPS2)
lLaura Brodie <labro4will @yahoo.co.uk>
Birmingham, England - Thursday, May 12, 2005 3:05 PM CDT
Hi Andrew! We just stopped in to see how you are doing!
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, May 10, 2005 8:10 AM CDT
Happy Mother's Day
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Sunday, May 8, 2005 9:16 AM CDT
Hope you have a wonderful and relaxing Mother's Day, Paulina!
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Saturday, May 7, 2005 9:41 PM CDT
Hi, y'all. Enjoyed my visit this past Friday with Colin, Andrew and Alex. Sorry I missed you, Paulina. You all are always in my thoughts and my prayers.
Chaplain Billy B. (Hospice)
Billy Bussell <revbillybus@hotmail.com>
Florence, KY - Thursday, May 5, 2005 10:44 AM CDT
Hi Andrew,
Our prayers continue for you and your family.
Stephanie & RachelJoy <mom2rj@comcast.net>
- Tuesday, May 3, 2005 7:18 PM CDT
Hi Paulina- Hugs to you and your handsome little man! Thinking about you and checking in of the web site often to see how y'all are doing. Thinking about and praying for health and strength for all of you.
Hugs, Michelle
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Saturday, April 30, 2005 10:12 AM CDT
hi we hope you get some answers for Andrew, praying
Lee's family <matthewskenpo@comcast.net>
arlington, ma usa - Thursday, April 28, 2005 7:36 AM CDT
Paulina -I hope you get some answers soon for Andrew and I just Know Alex will have a great time at preschool! all our LOVE Laura xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Wednesday, April 27, 2005 2:37 PM CDT
I will be praying for Andrew and all the children and families struggling with MPS. We are in the process of having our daughter tested for MPS III A. She tested negative for IIIB but now we have to do the skin biopsy for IIIA. The waiting is agony. I had never heard of MPS until a month ago and now it is almost all I can think about. May God bless you and your family.
Leslie Jurado <lesliejurado@rhtc.net>
Rock Hill, SC 29732 - Tuesday, April 26, 2005 2:59 PM CDT
Hi Andrew,
I just wanted to say hi. I hope you are having a nice weekend.
Jaime www.caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, April 17, 2005 4:31 PM CDT
Hi Paulina and family!! It was SOOO nice to finally get to meet you guys in Cincinnati the other day! I hope Andrew is doing good! He is such a handsome boy! I can't get over how much him and Tyler look alike! It's their eyes! They are so beautiful!

Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY (www.caringbridge.org/ky/tylerdeskins) - Friday, April 15, 2005 11:11 PM CDT
Paulina- Wish I could give you a big hug today after reading your posting. My prayers today are all for Andrew and your family. Don't forget to take care of yourself too. Let me know if you can think of anything I can help with or if you need to vent.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Thursday, April 14, 2005 11:42 AM CDT
Sending lots of get well wishes and hugs to you Andrew...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, April 12, 2005 7:47 PM CDT
Paulina, Andrew, and family...
I just stopped in to say "HELLO!" and let you know that I will be thinking about you all as you go through additional testing. Hopefully it will all go well and Andrew will start feeling better again and you guys can get some rest and answers.
Much love,
Leslie (MPS Forum) <Leslie42457@yahoo.com>
NC USA - Sunday, April 10, 2005 3:31 PM CDT
Colin and Paulina,
I am really sorry to hear how Andrew is doing. It wasn't so long ago I remember he was doing good. By the way, my paper went good. I thanks you guys for helping me out. You guys hang in there. I'll be praying for you all. See you at the restaurant some time.
Paul Jarecky <JareckyP1@nku.edu>
- Wednesday, April 6, 2005 1:48 PM CDT
Hi,
I just came across your website. Sorry to hear that you're going through so much... will pray for you!

Joanne’s Corner
~Joanne’s Corner~

Bridge of Dreams

With love,
Joanne and the Dream Team
~Bridge of Dreams ~

Joanne <joanne173@gmail.com>
- Wednesday, April 6, 2005 8:34 AM CDT
Paulina and Colin,
I'm so sorry about this latest struggle you all are having to face. I can't begin to imagine all that you go through day in and day out. Please know you're in my prayers regularly.

Pastor Rick Conley <rickconley@fuse.net>
Sparta, KY USA - Wednesday, April 6, 2005 6:05 AM CDT
Hi all sorry to hear Andrew is not well,hope he feels better soon.
Terri and Blaise
Terri Rayner <terri.rayner1@ntlworld.com>
Manchester, United Kingdom - Wednesday, April 6, 2005 2:44 AM CDT
Colin, Paulina, Andrew, and Alex
I'm praying for all of you! Let me know if you need anything, you are in my thoughts.
Amanda <mullinsa1@nku.edu>
- Tuesday, April 5, 2005 4:45 PM CDT
Hi Paulina and family!
So sorry to hear about Andrew's condition this week. I am praying for you all. I pray God sends you strength. We love you, if you need anything, we are a minute away..

amanda new <dnew1324@aol.com>
- Tuesday, April 5, 2005 3:14 PM CDT
Just checked in...sorry to hear about Andrew. Insist on an MRI (head and spinal), a spinal tap and complete blood labs. The hospital was sooo thorough with Lindsey...they seemed to always check everything just to make sure. The admitted that MPS kids are so different they wanted to know for sure, thankfully. I hope all goes well. kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Tuesday, April 5, 2005 2:16 PM CDT
Hi Andrew,
I just wanted to say hi and let you know you are in our thoughts and prayers.
Jaime www.caringbridge.org/nj/jaimelynn <Jaime13042@aol.com>
nj usa - Sunday, April 3, 2005 11:46 AM CDT
Hi Andrew! We just stopped in to see how you are doing. I hope you and your brother had a nice Easter!
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Saturday, April 2, 2005 1:19 PM CST
Just stopping in to say "HI"...and seeing how things are going with you guys! Maybe we will see you in Cinci sometime!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY (www.caringbridge.org/ky/tylerdeskins) - Wednesday, March 30, 2005 11:39 PM CST
Hi Paulina- I was thinking about you and your family today, so I popped in to read an update and see Andrew's "smile" picture. :) Glad Andrew is getting some rest and hope the Easter Bunny spoiled your boys rotten! I'm sending warm thoughts and prayers your way.
Michelle Coughlin <coughlinmichelle@yahoo.com>
West Chester, OH - Tuesday, March 29, 2005 10:23 PM CST
Hi Andrew,
My name is Jenna and I came across your website. You are a real fighter, and an inspiration in life. You are in my thoughts and prayers.
www.caringbridge.org/canada/jenna
Jenna <hockeykid@telus.net>
Kamloops, BC Canada - Tuesday, March 29, 2005 5:11 PM CST
Happy Easter

hope your easter was fun
Pat,Crystal & Lee <matthewskenpo@comcast.net>
medford, - Monday, March 28, 2005 11:10 AM CST
Happy Easter

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London , UK - Thursday, March 24, 2005 7:38 AM CST
Hi ANdrew!!! I miss ya!!My mommy does not turn on the "puter" as much any more so that I can see all my "PBS" friends! I am have to git on her about that!!!!! I keep sayin' Andew Andew Shelby Fef- but she says "later buddy, after the laundry is done.... I'm tired of that stinky ole londry!
I hope you have a gud Easter!!!
Love,
Ty-Ty
Ty Downham <jdownham@earthlink.net>
Houston, - Sunday, March 20, 2005 2:40 PM CST
Hi ANdrew!!! I miss ya!!My mommy does not turn on the "puter" as much any more so that I can see all my "PBS" friends! I am have to git on her about that!!!!! I keep sayin' Andew Andew Shelby Fef- but she says "later buddy, after the laundry is done.... I'm tired of that stinky ole londry!
I hope you have a gud Easter!!!
Love,
Ty-Ty
Ty Downham <jdownham@earthlink.net>
Houston, - Sunday, March 20, 2005 2:39 PM CST
Hi.
Just want to stop by and see how are you doing. You are in my prayers always. Love the picture with micky.
(BIG HUG)

www.helpourgirls.com
Tayyaba Beg <Tayyaba@helpourgirls.com>
NJ - Saturday, March 19, 2005 9:47 PM CST
Just stopping in to see what is new. Hope everything is going well and you are getting some rest. Hugs to everyone.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Monday, March 14, 2005 11:27 AM CST
Paulina, thank you for the kind words. It has been a pleasure to get to know you, Colin, and your beautiful boys. You and Colin have taught me a great deal about what it means to be a parent. I hope someday I can be the kind of advocate for my children that you are for Andrew and Alex. My thoughts and prayers are always with you.
Michelle Coughlin <coughlinmichelle@yahoo.com>
Cincinnati, OH - Wednesday, March 9, 2005 9:24 PM CST
Hey Andrew,
I am glad the new sleep med is better then previous ones! I hope it works well for you and mommy too! We'll be praying for you little guy!
Love,
Patty and Jesse

Jesse's Page
Patty <wordinedge@aol.com>
Baltimore, MD USA - Wednesday, March 9, 2005 8:06 AM CST
Hey boy I hope you are doing well. I love you both
Casey Hawkins (Sister) <caseyfaye7@aol.com>
Warsaw, KY 41095 - Saturday, March 5, 2005 11:58 PM CST
Hi i came across your site through another site,i have a 7 year old son with type b sanfilippo and i was looking for other parents with children with sanfilippo that i could chat to and was surprised at how many people out there have sanfilipo children.i just thought i would say hi and hope that everyone is doing well.Terri
Terri Rayner
Manchester, United Kingdom - Wednesday, March 2, 2005 2:11 AM CST
HI!! Hope everything is going good with you guys! I think of you all the time! Hopefully one day we can get together and meet each other!!!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Tuesday, March 1, 2005 8:37 PM CST
Hi Paulina, just thought I'd say 'Hello'! Hope Andrew is sleeping a little better, give him a big hug from me! (Louise, Georgia's mum)
Louise Lewis <starfish26@btinternet.com>
Chepstow, UK - Saturday, February 26, 2005 10:50 AM CST
Hi, guys. I don't know if you'll remember me, but I'm Christina's best friend and I used to work with Colin and Paulina at Bob's in Florence. Stay strong and know that you're in my thoughts.
Jeff Martin
Chicago, IL USA - Friday, February 25, 2005 3:42 PM CST
Andrew, Alex, Paulina & Colin~ Hi! This is my first time signing the guest book. Just wanted you to know that your family is always in my prayers. Take care!
Christina McCaughan <mccaughan@fuse.net>
Florence, KY USA - Friday, February 25, 2005 2:34 PM CST
Hi ! Hope you're doing just fine, I'm thinking of you.

Hugs from your norwegian friend, Vibeke
www2.caringbridge.org/europe/vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Norway - Thursday, February 24, 2005 1:11 PM CST
How are things going in your part of KY? Just wanted to check in and tell you I'm thinking of you guys!

Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown, KY www.caringbridge.org/ky/tylerdeskins - Monday, February 21, 2005 9:56 PM CST
hi guys,
great site love the pictures
pat (Lee's dad) <matthewskenpo@comcast.net>
medford, ma - Monday, February 21, 2005 3:01 PM CST
Hi Andrew and Alex,
I know you had to get the kitty a new home because of allergies, so i thought I'd send you this one till I can find you another that you won't be allergic too! Love you guys.. be nice to mommy, she needs her rest!


Love,
Patty and Jesse
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Saturday, February 19, 2005 8:12 PM CST
Hey Faye,just wanted to say I LOVE YOU.No matter what else continues to go wrong, we have two beautiful boys to keep us going.They are and forever will be our strength.I love my boys.
Colin, Paulina, Andrew(MPS III B) and Alex http://hometown.aol.com/paulinajump/myhomepage/family.html <caljump@msn.com >
Sparta, Ky USA - Friday, February 18, 2005 9:50 AM CST
The pictures look great, I love the border. Sending our love.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Wednesday, February 16, 2005 3:56 PM CST
Hey Paulina...it's been a while since I've checked on all my dozen MPS kids too (sorry). I hope you get well soon too. Hope Andrew calms down and starts sleeping. That's got to be hard on him (and you guys). Alex is so much like Hannah...once our MPS kids are hospitalized it robs the siblings of "normalcy/family" at home. I hope Colin follows your advice (and mine), but give yourself two weeks. It's a blessing! Take care and much love to you guys...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4MPS@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle , NC USA - Wednesday, February 16, 2005 2:08 PM CST
Hi Paulina ,Andrew and Family -Happy Valentines Day -I hope you are feeling better Paulina? We are thinking of you all love Laura xxxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Tuesday, February 15, 2005 8:56 AM CST
I love all the new pictures in your journal, Andrew. Especially your new border! I hope you have a very special Valentines Day!
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Monday, February 14, 2005 9:10 AM CST
Prayers for Mommy, that she gets well soon!

Happy Valentines' Day to Andrew and Alex too! Love you guys!


Patty and Jesse
Jesse's Page
Patty and Jesse <wordinedge@aol.com>
Baltimore, MD USA - Monday, February 14, 2005 7:35 AM CST
Paulina,
I sure hope you are feeling better, or atleast on the road to recovery. It is so sweet of you to remember Ty in your post and in your prayers! I miss you guys, I am sorry I havn't been around the forum much lately, but I know you understand. Hugs and kisses to all of you! Love

Kim and Ty <jdownham@earthlink.net>
Houston, Tx - Sunday, February 13, 2005 11:40 PM CST
HAPPY VALENTINES DAY!!!
(Paulina, colds seem to be going around...Tyler is getting one too! :(. Hope you get better soon so that no one else in your house gets sick.)
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY - Sunday, February 13, 2005 7:22 PM CST
Just me stopping by to see your new Valentine background! How handsome! Will you be my Valentine? I am sorry to hear that mommy is under the weather though. :-( I will be keeping mommy in prayer for a speedy recovery, and that no one else gets sick either! Be kind to her while she's down, and take good care her!

Hugs and Kisses
Patty and Jesse
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Saturday, February 12, 2005 1:24 PM CST
Hi Andrew, just stopping by to say 'Hello'!! Great picture of you & Jesse at Disney. Have a great weekend, lots of love from Georgia (in the UK) XXXXX
Louise lewis <starfish26@btinternet.com>
Chepstow, south wales, UK - Friday, February 11, 2005 10:33 AM CST
HOORAY!!! I LOVE THE NEW LOOKS OF YOUR SITE!!!


Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Sunday, February 6, 2005 5:34 PM CST
Hello there,

Sorry I didn't get to call last night. It was a busy night, LOL! I glad the oven got fixed. When are we having dinner? Tell Alex I may send him another cat, one that Andrew won't be allergic too. Have a Good Day and enjoy the warm teaser weather! ((Hugs and Kisses))

Patty and Jesse
Jesse's Page
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Sunday, February 6, 2005 8:11 AM CST
Hello! I came across your website from another's guestbook. I noticed that you are from Kentucky. We are from Morgantown, near Bowling Green. We've been in Alabama for almost 4 years. Our son, Luke, also has Sanfilippo Syndrome (his is Type A). Luke will be 6 in June. We make it "home" to KY several times a year. Maybe sometime we'll have the opportunity to meet! Your family along with so many others dealing with this disease are in our thoughts and prayers! Take care ...

Mieke Embry (mom to Luke, MPS-IIIA) www.caringbridge.com/al/lukeembry <embry10198@wmconnect.com>
Moody, AL USA - Saturday, February 5, 2005 5:39 PM CST
I just wanted to stop in and say "hi"! Just wanted you to know I'm thinking of you guys!
Jennifer Deskins <tylersmommy11304@yahoo.com>
Georgetown , KY 40324 - Friday, February 4, 2005 4:40 PM CST
Hi Andrew and family. I came over from another site and wanted to say hello to all. I'm so impressed with your mechanical abilities, motivates me to try to figure some of this stuff out sometimes.
love, hope and courage
Carol Miller
Carol Miller (Reid's page) <dmill3@insightbb.com>
Bowling Green, KY - Wednesday, February 2, 2005 2:02 PM CST
Paulina,
Just stopped in to say "hi!" Hope you guys are doing well!!!
Leslie <Leslie42457@yahoo.com>
NC USA - Wednesday, February 2, 2005 8:38 AM CST
Paulina,
Just checking in on my little Andrew. I am glad to hear he is still doing well. Keep an eye on that swallowing and sleep pattern (the old hydro mother hen here. LOL)hopefully it is jsut a fluke and he will continue to do great!!!!! Hugs and kisses to all of you!!
Love,
Kim and Ty
Kim and Ty Downham <jdownham@earthlink.net>
Houston, - Wednesday, January 26, 2005 0:08 AM CST
Hi Paulina and Andrew! Just stopped by to check on you guys. That is a really cute picture of Andrew and Jesse together. I'm glad you got that furnace working again.
Love Ya,
Kris and Kraiggy
Kraig's Journal
Klenke Bowl 2005 for MPS
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Tuesday, January 25, 2005 9:04 PM CST
i wanted to thank you
for coming to Craig's
website. it's so
great to have new friends

sending you lots of love

craig, lauren, and helen

CRAIGGY
helen <trula1@comcast.net>
- Monday, January 24, 2005 6:41 PM CST
Hey,

The boys look great together in that picture! I'm praying that his sleep disruptions are only something simple, like the effects of the full moon this week! Wishful thinking anyway and hopefully right!

Love You!
Patty and Jesse

http://www.caringbridge.org/md/myjesse
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Monday, January 24, 2005 1:52 PM CST
Hi there everyone,

I was stopping in to visit on your new "Sponge Bob" look alike. LOL! I am glad to see Andrew is doing well and Alex keeping us all laughing. Good luck with the classes and hopefully more tips will come in soon!
Love,
Patty and Jesse

http://www2.caringbridge.org/md/myjesse
Patty Taormino <wordinedge@aol.com >
Baltimore , MD USA - Thursday, January 13, 2005 2:35 PM CST
Hi Paulina, Colin, Andrew and Alex!! Have been visiting the page for a while now. Glad to hear that Andrew is more animated and smiley. I will see you all soon.


Billy Bussell <revbillybus@hotmail.com>
Florence, KY - Tuesday, January 11, 2005 10:14 AM CST
My prayers are with you Andrew, and your family.
Laura Marksberry <marksberryml@cs.com>
Warsaw, KY 41095 - Monday, January 10, 2005 11:27 PM CST
Paulina,
So glad to hear that Andrew is doing better. If you think about it, stop by, we should be having some baby goats soon! The boys would love it! You are in our prayers all the time..

David, Amanda, Aubrey New <DNEW1324@aol.com>
Sparta, KY USA - Monday, January 10, 2005 11:22 PM CST
Paulina - I feel very much as you do at the moment -I am thinking of you and Andrew and hope he feels much better very very soon love Laura xxxx
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Sunday, January 2, 2005 1:49 PM CST
Hope Andrew is feeling better soon.

Hugs from Vibeke.

www2.caringbridge.org/europe/vibeke
Vibeke <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Saturday, January 1, 2005 5:15 PM CST
Hope Andrew is feeling better and has kicked his virus! Thinking of you in PA. Happy New Year!
Robin Piefer (www.caringbridge.org/pa/logan) <robin.h.piefer@verizon.net>
Philadelphia, PA - Saturday, January 1, 2005 3:18 PM CST
Great updates Paulina! I'll be praying for Andrew!
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Wednesday, December 29, 2004 11:09 AM CST
I pray that Andrew is improving. Please know we think of you all, especially our MPS babies! kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, December 28, 2004 9:50 PM CST
Hi Paulina.
I am sorry to hear that Andrew not feeling good. I am praying for him to get better. You are always in my thoughts.
((HUGS))

www.helpourgirls.com

Tayyaba Beg <Tayyaba_beg@hotmail.com>
NJ - Monday, December 27, 2004 1:27 PM CST
Paulina,

So sorry you all ended up at the hospital. I just wanted to let you know we are sending up more prayers today for Andrew, and Aunt Rhonda is posting on the forum for more prayers too for Andrew. I hope he gets to come home soon. ((Hugs and Kisses)) We love you!

Love,
Patty and Jesse
http://www.caringbridge.org/md/myjesse
Patty Taormino <Wordinedge@aol.com>
Baltimore, MD USA - Sunday, December 26, 2004 8:14 PM CST
Paulina -I was so sad just to meet you so briefly but so hope Andrew feels better now! Have a wonderful Christmas love Laura (mum to Will mps2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Friday, December 24, 2004 3:20 PM CST
Wishing you a Merry Christmas and Happy New Year!!!!

Love and Hugs,

Tami Slawson ( www.caringbridge.com/ca/slawson

tami <tlslawson@aol.com>
- Friday, December 24, 2004 10:05 AM CST
Happy Christmas + Happy New Year.
Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Thursday, December 23, 2004 1:47 PM CST
It was so nice to finally meet y'all. I wondered what happened to you when I didn't see you over the weekend. I'm sorry Andrew got sick. I wish we'd had more time to talk and get to know each other's families. I hope you have a blessed Christmas!
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net **and** www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Wednesday, December 22, 2004 1:12 PM CST
So happy to hear Andrew is doing better!! We are on the countdown for the conference! WOOHOOO! See you guys in a few days.

Jessica
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Friday, December 10, 2004 4:55 PM CST
The website is great!!! So glad that Andrew is doing better this week. Hope to see you yet this week. Bring back some sunshine from FL so we can have it during Jan and Feb
Judy Meyer
Ft. Thomas, KY USA - Tuesday, December 7, 2004 9:21 AM CST
Hey Guys! I am SO glad you let us know about this new site. I love it! That family picture on the home page is so full of love. Thats an awesome pic. You are in our prayers daily, because we know that is the cure for all, prayer and having Christ in your lives..I rely on prayers..Keep us posted, and we love ya! Hope your holidays are full of happiness, blessings and a peaceful heart.
David, Amanda & Aubrey New <DNEW1324@aol.com>
Sparta , KY USA - Sunday, December 5, 2004 10:42 PM CST
It is music to my ears to hear that Andrew is doing so well!! Give him big hugs from Ty and I. We will be thinking about you and missing you over the holiday. Hoping and praying that your trip to Disney is wonderful, relaxing, informative, and most of all fun!!!!

ps. congratulations miss smarty pants!!!! LOL LOL
Love,
Kim and Ty Downham <jdownham@earthlink.net>
Houston, - Saturday, December 4, 2004 8:30 PM CST
Paulina -Will be thinking of you all on the 7th and hope it goes well-I'm so glad he is happier at the moment -hugs and kisses to you all Laura (Mum to Will MPS2)
Laura Brodie <labro4will@yahoo.co.uk>
Birmingham, England - Saturday, December 4, 2004 1:16 AM CST
(((Paulina))) I am happy to hear that Andrew seems to be doing better! I hope he continues to improve and the 4 of you have a great trip to Disney! I will be thinking of you next week, with Andrew's LP and the birthday of your twins.
Love,
Jennifer
Jennifer Restemayer <jennmarie@bis.midco.net www.caringbridge.org/nd/allison>
Bismarck, ND USA - Thursday, December 2, 2004 9:35 AM CST
Good Morning Paulina,

Thanks for the "Breakfast at McDonald's"!! (((kisses)))
I am so glad Andrew is doing much better! I will be in touch either later today or ealry next week. As school starts again for me on Friday and straight on through the weekend! Oh.. you and my older son Stephen are two of kind... Both on the President's list at school.
Have a great day and give Andrew and Alex some Big hugs!!

Love,
Patty and Jesse

http://www.caringbridge.org/md/myjesse
Patty Taormino <wordinedge@aol.com>
Baltimore, MD USA - Thursday, December 2, 2004 7:08 AM CST
Hey Jump Family! Love the site! You guys look great in the pic! :) All my love and prayers are with you! *kisses
Katt Dee <dnbgirl6804@aol.com>
Florence, Ky - Wednesday, December 1, 2004 10:23 PM CST
Great website!! I love the pictures! Love you guys so much...you're in my prayers.
Serina Ritchie <guild_acoustic3@hotmail.com>
Florence, KY US - Wednesday, December 1, 2004 10:11 PM CST
Thinking of you from the PICU, here in Chapel Hill. Give Andrew a big hug from Lindsey. I hope all our MPS ^^Angels^^ watch over our babies here on Earth. Take care...kle
Karen, Mark, Lindsey (MPS-IIIa) and Hannah Efird <efirds4mps@ctc.net *and* www.caringbridge.org/nc/lindseysmpsjourney>
Albemarle, NC USA - Tuesday, November 30, 2004 7:29 PM CST
Dropping by to let you know you are in my thoughts and prayers! I hope you find the answers you need soon.

Jessica
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Tuesday, November 30, 2004 10:27 AM CST
Paulina,
I love the new website! And I love the family photo !!! It is beautiful. I am sorry Andrew is still having to deal with this pain- I am praying for a LP soon!!! Like yesterday.
Love,
Kim and Ty <jdownham@earthlink.net>
Houston, - Monday, November 29, 2004 3:08 PM CST
Hello,

I know how terrible and heart breaking it is to watch your child crying iand there is nothing you can do about it. We too are waiting for the testing to see what Ciara's pressure is. I hope that you get the LP soon and Andrew is finally comfortable again. We can't wait to finally meet you at Disney!
Alicia , Ciara, Hunter & ^^Angel^^ Tommy www.caringbridge.org/ca/bennettboys <Lumberhead@twinwolf.net>
- Monday, November 29, 2004 1:42 PM CST
What a beautiful family! Best wishes for a happy holiday from the First Steps Technical Assistance Team in Bowling Green!
Nan Slaughter <nan.slaughter@wku.edu>
Bowling Green, KY - Monday, November 29, 2004 1:28 PM CST
Great Website! I work with First Steps as a Parent Consultant in Lexington. Keep up the good work!
Connie Coovert <cccoov2@uky.edu>
Lexington, Ky USA - Monday, November 29, 2004 11:38 AM CST
Hey Girl,
So good to hear from you!!! Thank-you for sharing such an intimate part of yoru life with us! Please know that we are praying for you all. Love In Christ!
Becky and Eric Moore <bmoore@cfaith.com>
Warsaw, KY Gallatin - Monday, November 29, 2004 10:32 AM CST
Paulina--Awesome new site! I love the picture--It's amazing. You know all of you are always in my prayers and I love you!
Amanda <mullinsa1@nku.edu>
Florence, KY 41042 - Sunday, November 28, 2004 10:19 PM CST
I love the family picture. Sorry to hear Andrew is not feeling well, hope they find out what is bothering him.
Sharon Cochenour <scochenour@hotmail.com>
Clarksburg, OH USA - Sunday, November 28, 2004 8:28 PM CST
I'm praying for your son on a daily basis. I have 2 children with hurler syndrome. Please feel free to visit their web site.
http://www2.caringbridge.org/ca/reileneandnikkolas/
Gabrielle Rivas <gabbi_001@msn.com>
South El Monte, CA USA - Saturday, November 27, 2004 1:23 PM CST
Great site Paulina. Love those smiles.
Art Holbert <Artholb@aol.com>
Morgantown, Wv - Wednesday, November 24, 2004 3:26 PM CST
Paulina, Colin, Andrew and Alex,
The photo is wonderful. I think the new web site is great. You are in our thoughts and Prayers,
With Love, Misty and Christopher
Misty Jump <MistyJ@Fuse.net>
Florence, KY USA - Wednesday, November 24, 2004 2:17 PM CST
Andrew, your web-site is wonderful. I love the family picture. I'll be checking in to see how you are doing.
Love Ya,
Kris and Kraiggy
Kraig's Journal
Kris Klenke <kris@mpssociety.org ** www.caringbridge.org/il/kraig/ **>
Worden, IL - Wednesday, November 24, 2004 12:17 AM CST
It's a great page, great pictures.

hope you all are just fine!
Vibeke Hovd <vibekehovd@hotmail.com>
Skaun, Trondheim, Norway - Wednesday, November 24, 2004 12:05 AM CST
What a wonderful photo. I love The site.

Love Tina,Padraic,Amy+Sophie
Tina <tina@melroseroad.co.uk>
London, UK - Wednesday, November 24, 2004 12:00 AM CST
Love the new website!! Your picture is AWESOME!!! Jess is always first!!!
Kaitybug's Aunt Rhonda <rjapril@insightbb.com>
Jeffersonville , IN - Wednesday, November 24, 2004 11:22 AM CST
Jess won the prize, but I still made it! Love the new website!!!

Kelly Waddell <kellywaddell@hotmail.com>
Southaven, MS USA - Wednesday, November 24, 2004 10:44 AM CST
Paulina, this is great. What a wonderful family you have! Georgia, my little girl, also has Sanfilippo, so I know what you're going through! Lots of love xx Louise
Louise Lewis
UK - Wednesday, November 24, 2004 10:28 AM CST
Jess you always beat everyone :) LOL.
I love Andrews new site and I see something I have never seen before LOL.
Love Misty
Misty Van Nostrand <coreyvannostrand@netscape.net>
Lawrence, KS USA - Wednesday, November 24, 2004 10:22 AM CST
I’m first, I’m first!!
Paulina,
Thank you for starting a Caring Bridge Page for Andrew! I hope you enjoy writing in his journal and I truly believe it will be something that you will cherish looking back on for years and years. Please give beautiful Andrew a hug & kiss from me.

Jessica
Mom to Angel Kaity

Jessica Wellman <jessicalw@earthlink.net>
Crandall, IN USA - Wednesday, November 24, 2004 9:56 AM CST

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