Marissa Faith Miao Burghart 9/19/95-9/20/03 Marissa was diagnosed 12/21/02 with a diffuse pontine glioma, an inoperable brain stem tumor. She went to be with Jesus on 09/20/03. Her favorite color was Purple & she loved the Lord. Marissa was an amazing artist & she loved to draw. Marissa means: Wonderful Gift from the sea, but we have always said that she was and is, a wonderful gift from God. Her Chinese name is Guo Miao & means: wonderful, beautiful, great & she is this & more to those that knew & loved her.


Pictures in the photos section to Celebrate Marissa's Life! See her art work to help orphaned and abandoned children in China at: http://www.lovewithoutboundaries.com/
Sale of her notecards help to pay for medical procedures and foster care for children waiting for their forever families.

Journal

Wednesday, December 23, 2015 9:55 AM CST

Wishing everyone a wonderful and blessed Christmas. Christmas is still really hard, but with 4 grandchildren now, we are making the best of it for them and for our other children, esp the 5 still at home. 13 years and 2 days ago, our lives were changed forever when our precious daughter was dxd with DIPG.

Our greatest wish is for a CURE for DIPG and other Childhood Brain Cancers to be found, to be debt free, to be able to replace all the windows in our home, as nearly all have black mold and to be able to finish replacing the flooring that needs to be replaced. We have already removed all of the carpet and have been walking on temporary flooring, or the sub-flooring for a while now. Our laundry room is still in a closet and there are 8 people living in our home. So much stress since Marissa was called home.

Thankful for the little blessings in our lives and for the ability to donate several of our puppies to families with special needs children, vets with PTSD and childhood brain cancer children. One day, my dream is to have a building where we can train service dogs for families, at a greatly reduced cost, that many trainers are charging, as there is such a great need and to finally finish writing our story.

Praying for peace for this broken world.

Merry Christmas from our family to yours

Links:

E-mail Author: 8hearts@sbcglobal.net

---

 

Your gift will help millions of people stay connected with friends and loved ones during challenging times.

---

 

This page has been viewed 99265 times.

Note: The foregoing information was authored by the patient, parent or guardian, or other parties who are solely responsible for the content. Such announcements or their content are not necessarily endorsed by CaringBridge, Inc. or any sponsoring agent.  This information does not confirm that anyone is or was actually a patient at any facility.