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Monday, September 1, 2008 12:05 AM CDT
Wow, summer has surely been busy. It is hard to believe that school has already started. Hunter, Lauren, and I have been very busy this summer. We have been going to the park, pool, and ect. everyday this summer. Believe it or not, Lauren and I are actually tan. Lauren looks like a little California girl with her blond hair and blue eyes and tanned skin. We have spent the summer after work with many friends and have been having a blast. I have been working out every day since Feburary and I am down 40lbs and I feel great. It is a good feeling to be able to play with the kids without getting out of breath and tired. Thanks to each and evryone of you for your continued prayers. I believe in miracles, I look in the face of one each and every day. I love you all.
Debra Brigando
April 2008
Just a little update as it has been a while since I've updated. Lauren is doing great. She is finishing Kindergarten and absolutely loves it. She says she a boyfriend named Nicolas. When I tell her she is not allowed to date until she is much older she says "shh, don't tell daddy". Her last appointment went fabulous. She remains in remission. Three more years and we are considered cured. I thank God everynight before bed that she is doing so well. I am truly blessed. Lauren and I are busy finishing up daisy's right now then we go right into t-ball and pee wee's. Hunter and Lauren will not be on the same team this year and that means I get to coach two teams. That should take care of the whole spring, but that is alright as long as the kids are happy. Hunter continues to do great in school. It is effortless with him. Learning comes easy. He reminds me alot of my brother that way. Sean is a teenager and has his moments. Hard to believe he is considered a man in September. Thanks to each and everyone of you that check in on us. For those of you who are battleing this horrific cancer monster right now, I pray for treatment to be effective and remission to begin, for those who are in remission, I pray that you continue that journey, and for those of you whom have lost someone to this dreaded disease, I pray for peace in your hearts. I love each and everyone of you.
Debra Brigando
Friday, December 21, 2007 7:28 AM CST
Just wanted to each and everyone a great holiday season. Lauren continues to be a happy and healthy little girl. She got a early christmas present. We had a kitten come to the house and adopt her. She called and said "it is the most beautiful thing I'v ever seen." How could we say no. I am writing to tell you all to visit a website for us. His name is Jacob Galland. Just go to the new way to log in and visit jacobgalland (no spaces). He was just recently diagnosed with a tumor on the kidney which had extenders that have gone up into his lung. He is the great nephew of a friend of ours. Please visit and keep his family in your thoughts and prayers during this hard time for them. He is only 3 years old. Thanks for all you continued prayers. We appreciate each and everyone of you. Have a Merry Christmas and a Great 2008.
The Brigando Family
Tuesday, November 13, 2007 6:40 PM CST
Hey all. Just a little note to update everyone on Lauren. She has started a full day of kindergarten and she is loving it. Her teacher was Hunters teacher and the first thing she said at conferences was "What a difference, Lauren never shuts up." Thats my girl. She is doing great even though she is younger than the rest of the kids. Hunter is doing well in first grade. He is coming out of his shell and has lots of friends. Sean is doing well in school. He is having the usual teenage problems. His girlfriend told him yesterday that she had someone else. They have been dating for over a year. She hurt him bad. I cried too. It hurts so bad to see your children hurting. Rob and I are always busy either from working, girlscouts, colorguard, boyscouts, teeball, and ect. Lauren continues to be in remission. Next visit is not until February. Thanks to each and everyone of you that continue to visit. We love you all.
The Brigando Family
Sunday, June 10, 2007 5:45 PM CDT
I didn't realize how much time has gone by since I made a entry. Lauren is doing great. She has graduated from pre-K and starts a full day of kindergarten in the fall. It is amazing how big she is getting. The one thing I know is that she is well aware of how serious cancer is. The other day one of our friends lost his battle with brain cancer. She heard Rob and I discussing it. The first thing she asked was "will I die too?". It just made my heart break. We explained remission to her and told her that she is well now and the doctors think she will continue to stay that way. She then said "I remember I was a baby and they took the bad cancer monster out of my belly and they gave me chemo" (she was pointing to her scar where her port had been). It is amazing that she remembers all of that. She sure seems older than 4 years old. After she left the room, I just cried. They were tears of happiness because she is in remission and tears because one does not know what the future brings. Thanks for everyone who keeps Lauren in their prayers. She is truly a miracle and the most precious gift God could have given us.
Debra Brigando
December 25, 2006 11:03 PM CDT
Merry Christmas to each and everyone of you. Lauren is doing well. We now only have to go to the oncologist once every 6 months. She is doing so well. Lauren is in the Daisy Girl Scouts. She loves it very much. She was in a christmas parade and she dressed up like a present. She is getting so big, it is so hard to even believe she was ever sick. Sean has his drivers permit and continues to practice driving to work when the weather is good. Hunter is doing well in Kindergarden. He loves school and works very hard. Rob continues to travel to Tinley Park everyday for work. I am now the acting Director of Nursing until they hire someone. Our last one quit right before thanksgiving and things have been a little hectic. Well thats all for now. I hope everyone has a great holiday season. Thanks for all your prayers and continued support.
Debra Brigando
Sunday, August 6, 2006 10:42 AM CDT
Happy 4th Birthday Lauren. It is hard to believe it was 4 years ago when I first saw those beautiful blue eyes and red hair. I remember finding out I was pregnant with you. I had just started a job at a new place and they did a physical and drew some blood. About a week later they asked me if there was something I did not tell them when I was hired. When they told me I was pregnant, I could not believe it. When I found out she was a girl, we were really excited. The past 4 years have been a adventure. You are our beautiful, sweet, vibrant, and happy little girl. Happy birthday sweetie. Mommy, Daddy, Sean, and Hunter all love you very much. Yes sweetie, the dog and cats love you too.
Debra Brigando
Tuesday May 6, 2006 9:37 PM CDT
This is always the happiest day in our lives. Lauren is now 2 years in remission. I look at her and she is absolutely beautiful. If I did not tell people she was so sick before, they would never believe it. Thankyou God. She is truly a miracle. Thankyou for all of you who still come by and visit. We appreciate all the prayers and concern you have for our family. Thanks again. Love you all.
The Brigando Family
Sunday, February 19, 2006 4:20 PM CST
Hello all. Sorry, I did not realize I have not journaled in a while. Lauren's tests all came back fine. We are still in remission. (YEAH!) This weekend was our anniversary. We went out for the weekend to a hotel where we could swim and enjoy a hot tub. Of course, the kids went with. Hunter and Lauren both loved the swimming pool. They both think they are little fish. It makes me nervous. Thank God Rob is a lifeguard and knows how to swim well. Me, I loved the hot tub. I swam for a little bit, but perfer the warm water. The little kids are both doing well in school. Sean is still struggling, but trying to do better. Sean is working in the kitchen at the nursing home I work at. He just got his first paycheck and he likes the money alot. Rob and are are doing fine. Hunter had to go to the dentist this week and and has to have alot of fillings. I feel bad for him. Thanks for all your prayers. They work. God bless you all.
Debra Brigando
Saturday, January 28, 2006 5:53 PM CST
We finally made it to the oncologists office today. We got all the way there and they told me that my insurance will no longer pay for labs or imaging (ie CT scans, ultrasounds, X-rays) at Hope Childrens hospital. That made our day last forever. We seen the Doctor at Hope and then had to go back to Chicago Heights for labs, ultrasound, and a chest x-ray. The oncologist says she looks fine, but I won't get the results of all the tests until next week. You have to love HMO's, they always have to make things difficult. Otherwise, things are going well here. Lauren continues to grow and she is really talking alot lately. Hunter is learning alot of things at school. Sean is going through teenage stuff. He is doing well in school, dating, and has gotten a job where I work. Rob continues with his company. I sometimes wish he would find another job closer to home, but we are worried that another insurance company will not insure Lauren. I love my new job. Well that is it for now. Thanks for all the prayers for Lauren. I believe in miracles, I see one everyday. Love you all.
Debra Brigando
Saturday, December 24, 2005 1:41 PM CST
Merry Christmas to each and everyone of you. I just wanted to write and thank each and everyone of you for all the continued support and prayers. Lauren continues to be wonderful. I truly know that the power of prayer works. She is truly a miracle. I have been chasing her out of the Christmas tree all day. She is so excited. It is early and her and Hunter have already showered and have pj's on. Sean continues to do well. He has a girlfriend and he seems to be happier. Please keep my family in your prayers this time of year (especially my dad). Christmas day 2003 my mom had a heart attack and New Years Eve, she died. I have been crying so much lately. I miss her so much, I can't even imagine how my dad or my grandma must feel. Our next oncology appointment is in early Janurary. I am looking forward to seeing all the staff. They are always wonderful. Well thats all for now. I love you all.
Debra Brigando
Tuesday, November 22, 2005 7:48 AM CST
Hello to all. Sorry this has taken so long to update. Things are hectic around here. Lauren is doing great. She is getting so big and her hair now hits her shoulders. She loves to tell everyone "I have red hair." It amazes me everyday because it is hard to believe that she was ever sick. She continues to love school. They are doing thanksgiving there today. Hunter also loves school and is doing well. He turned 5 on Nov. 10. Sean is behaving better now. We had some troubles with experimenting with drugs and truancy at school and we are finally straightening up. It is a shame that it took dad to punish him to straighten him up. It is amazing how much more they open their eyes when dad takes control. I need to make Lauren's next oncologist appointment next month. Rob and I have been more involved in church lately. Last Saturday we volunteered in the nursing home and passed thanksgiving dinner to the residents and their families. This Sunday we give a free thanksgiving dinner at our church for all the senior citizens in the community. I think we has 120 people show up. Rob is still driving 60 miles each way to work. I am doing really well at the new job. I have been promoted to assistant director of nursing. I've been doing it for about 3 weeks now. I love the job. Well I'm going to close for now. I want to wish each and everyone of you a great thanksgiving. I love you all. Thanks for all your continued support to my family.
Debra Brigando
Monday, September 19, 2005 9:45 AM CDT
Just a little note to let you know what is going on in the princesses life. Our church just started a Sunday School for the kids. Lauren told me "I big cause I go to Sunday School". We just recently found a church out in the town we live in and joined. It is the Covenent Federated Church. The people are all very nice there. There were not alot of children so they did not have Sunday School until this week. Lauren and Hunter are in a class together and Sean is in the Jr/High school class. Lauren and Hunter said it was alot of fun. Sean is a man of few words, typical teenager. We have slacked in going to church the last few years because of Lauren being sick. I guess he will get used to going again. He is doing good in school this year. All A's and a B in reading. Alot better than last year. Lauren continues to get bigger and bigger. She is singing her ABC's and 123's. She is bouncing off the walls today because tomorrow is library day at preschool and she just loves Miss Judy (the librarian). I volunteered at both kids classes last week. Hunter is really focused and does whatever Miss Helen tells him to do. Lauren bounces all the time. They are 3 and 4 year olds in her class. Most of the kids are turning 4 and Lauren just turned 3 so she is the youngest. Miss Helen reassures me that she is just fine. When I went, she was sitting on the teachers lap alot. She is such a little snuggler. Rob and I are fine. Last week Rob was off on vacation and then I ended up getting really sick. I ended up in the ER for a sinus and upper respiratory infection. They have me on 4 medications. I can really sympathize with the people I take care of in the nursing home. No wonder they hate taking medication. On Friday, Rob woke up with a toothache and ended up having 2 wisdom teeth pulled. He said the dentist did not even hurt him. (Pretty amazing, Rob does not do well with needles or pain). This weekend, Hunter and Rob painted the deck. Hunter loves to help. Well thats it for now. Love you all. Keep the prayers coming for Miss Lauren. I believe in miracles, I see one everyday.
The Brigando family
Monday, September 12, 2005 7:15 PM CDT
CT Scan is clear. Dr. Salvi also talked to us for some length today. We were concerned because Lauren had some stomach aches in the last few weeks. He told us that if Wilm's presents itself again, it is usually not a stomach ache because it would have moved elsewhere. He also said that in children that have it originally in both kidneys, that it is less likely to happen. I guess the most serious time in Lauren's case was when they did the surgery to remove the left and repair the right kidney. He said that she has been in remission for almost 17 months and she will have appointments every 3 months and instead of CT scans she will have a ultrasound and chest x-rays. I felt like a big weight was off my shoulders. He is amazed how good she looks, how active, and how brave she is. (She had her blood drawn and an IV started and the staff all told her Dr. Salvi cried.) Lauren then says "He's a cry baby." They all laughed. Thank you for all your prayers. Lauren is a miracle and I am greatful for everyday we have with her. Thankyou God for my precious litte angel, for watching after her, and for good family and friends that keep her in their prayers. I love you all.
Debra Brigando
Wednesday, September 7, 2005 8:43 PM CDT
The princess had her first day of preschool yesterday. She just ran in and started playing with the kids. Talk about being independent, it is the first time she has been left with someone she does not know. The teacher said she is a little quiet. You are supposed to be three by June. Lauren just turned three last month and they let her go because Hunter went to preschool last year and she really wanted to go then. When I asked how her day went she said "I ate a orange." Definately my child, she loves to eat. Our CT scan is on Monday. Please keep her in your prayers. I get so nervous about these things. I have been checking on alot of kids I have met on caringbridge and I am amazed at how many kids die from Wilm's. The oncologists always call this the "easier" Cancers to treat. It saddens me to think of all the children that loose their battle to this "monster" inside them. Keep us in your prayers for Mondays CT scan. Love you all.
Debra Brigando
Monday, August 29, 2005 10:03 AM CDT
Hello all. Things have been fine here. Lauren is going for her next CT scan and appointment on Mon. Sept.12. I always get nervous before these. She starts preschool in September. I will probably cry on the first day. I can't believe she is getting so big. Thanks for all the kind words of support. I love you all. Please pray for clear CT scans.
Debra Brigando
August 6, 2005 12a.m. CST
Happy Birthday to you. Happy Birthday to you. Happy Birthday dear Lauren. Happy Birthday to you.
It is hard to believe she is now 3 years old. In some ways I can't believe she is that old and in another sense, it seems like she should be alot older. Thankyou God for giving me another year with my beautiful little angel, my princess, my sweet baby girl. Every day is a gift from God. I will never take that for granted. Well we are putting together her bike we got her. It is so cute it is a puple low rider. Thankyou for all the prayers and kind words. I love you all.
Debbie Brigando
Friday, July 22, 2005 11:03 AM CDT
Sorry so late. Our camping trip was great. Lauren was dirty the entire time. One night I gave her a shower and by the time I was done with mine it looked like she had rolled in the dirt. I will post the pictures soon. She loved the beach. Her lips were blue and we made her come out and she was screaming and crying because she wanted to swim. Such the little fish. Hunter had a great time too. He loved to be buried in the sand. Sean did not go because he did not want to miss summer school. I am glad to report today is his last day. He has a A in English and a B+ in math. I am glad he is finally taking school seriously again, but I missed him when we were camping. I had to ground him from some of his friends. Last week Sean was acting good and said after school "I'm going to grandma Sandy's to help her work on her house." Well after he left, I went grocery shopping. When I returned 2 hours later, my mother in law had called to see when Sean was coming over. Needless to say, I looked for him and found him drunk at his friends house. I called to police because all the kids were under age and the parent is oblivious to what is going on in her house. The next day, one of the kids there had decided to drink and take some pills and ended up in the hospital with a overdose. I have talked to the parents in the past and they were in denial. It is a shame it takes these kind of life lessons to make some people open there eyes. Sean is now restricted to whom he hangs out with. Otherwise all is good here. Thanks for all the prayers. I believe in miracles, I hold one in my arms everyday. Love you all.
The Brigando's
Sunday, June 26, 2005 7:42 PM CDT
Hello all! Hope everyones summer is going great. It has been about 100 degrees outside here for the last 3 days. Lauren has been enjoying the summer. She has been swimming alot and playing on a new swing set that papa bought her. Hunter and Lauren have also been going to the library with Grandma Sandy and Papa Leo. They are learning about pirates. She is a riot. She made a patch and when she puts it on her one eye, she closes the other. She growls like a pirate too. Sean has been doing well in summer school and he has had a busy social life. The whole teenager thing is a whole new experience. Rob and I have been working as usual. We are off the week of the fourth. We plan on going camping. Looking forward to some relaxation time. Will post pictures of the camping experience. This will be Lauren's firt time camping. Another milestone is that Lauren is potty training. She is really into fancy panties and she does not want to get them dirty. We went panty shopping 3 days ago and she has been using the toilet since. Thanks for all your prayers and support. It is friends and family that gets us all through this unexpected journey life has thrown us into. Sorry, I've been really bad about signing everyones guestbooks. I do visit frequently. I will visit and sign everyones when I'm on vacation. Love you all!
Monday, June 6, 2005 9:09 PM CDT
CT scan is clear. I've been so nervous. I know Lauren is doing well, but I always worry. Lauren has been throwing up frequently lately. They think she may have adhesions in her stomach from all the abdominal surgery. They say the adhesions can cause a upset stomach. Other than that we are all doing well. Sean passed the 8th grade. Hunter finished his first year of preschool and he loved it. Lauren continues to grow and get stronger every day. She is such a happy and good natured child. To look at her you would never know she was ever sick. I just want to thank everyone for all the prayers, words of comfort, and phone calls. It helps alot especially around time for CT scans. I get very nervous every time one is done. Love you all.
Tuesday, May 3, 2005 4:02 PM CDT
Thanks for all the prayers for Sean. It has been a few weeks and he is finally passing all his classes at school. We are giving him back some freedoms as he does better in school. He seems happier too. Lauren is doing wonderful. Her next appointment is June 3rd. She will have a CT scan of the abdomen and chest at that time. We celebrated my grandmothers 90th birthday on Saturday and Lauren actually had her hair up in two pig tails. She looked like Pippy Longstock. Today I volunteered at Hunters preschool. I helped the kids make theri mothers day presents. They forgot to give me a calander and they are doing a mothers day program on thursday. I am bumed out because I would rather be there than at work. We painted moldings of their hands. Hunter acts quiet when I'm there. I thought it was impossible for him to be quiet. Well Sunday is Mother's Day. Happy Mothers Day to all you mothers out there. I promise to come by and visit everyones site on Friday. Thanks for all your continued support. Love you all.
Debra Brigando
Wednesday, April 13, 2005 9:27 AM CDT
Lauren's appointment went well. It is hard to believe that next month is considered a year in remission. Another great milestone is that we now only have to go to the doctor every other month. Our next appointment is June 3rd. She will have a CT scan at that time also. I watch her every day and just can't believe that this kid was ever sick. She just loves the outdoors. My friends from high school Wendy and Dean came by for a visit. Rob offered to take their kids on a motorcycle ride. When Lauren saw the other kids getting on the motorcycle, she just had a absolute screaming fit. She truly believes that motorcycle is hers. (There goes that red head temper again). The children are good. Please keep our oldest child Sean in your prayers. I think he has made the wrong friends out here and it is affecting his grades in school. Sean is quiet and we have had alot going on in the past 2 years and I think rather than talking about it he keeps it all inside. I guess we just forget how hard it was being a teenager. Thanks for all your continued support. Love you all.
Debra Brigando
Sunday, April 3, 2005 7:18 PM CDT
Hey everyone. Finally, a new picture. Today I worked. Rob took these pictures on the way to the park. He sent them to my phone so when I took break I could see them. Lauren also made me a video. She was swinging and saying "Hi mom" "See you when you come home". It was so sweet. She loves to play outside and I know it is not a glam shot, but it is how Lauren likes to be (just like one of the boys). We have a appointment on Friday. Will journal more after the appointment. Love you all.
Debra Brigando
Tuesday, March 8, 2005 4:13 PM CST
Sorry this is late. Should have done this yesterday. Lauren had her portacath removed yesterday. She was very sweet and happy before the surgery. She was even kissing and hugging the nurse. After the surgery is a different story. She woke up and immediately tried to remove her own IV. She then proceeded to scream and cry. When we asked what was wrong she said "I'm hungry, eat now." We were out of the hospital about 30 minutes after she woke up. She then went out for pancakes. She ate hers, the apples off Robs, and my sausage (along with hers). She was not kidding about being hungry. Today is good except she wants to remove the steri strips over the incision. I had to buy some at the pharmacy in town and replace the two she removed. Lauren doesn't appear to be in pain. When she looks at the incision she says "No more chemo." It is amazing how much they know. Thanks for all your prayers. Love you all.
Debra Brigando
Wednesday, March 2, 2005 3:53 PM CST
Lauren's surgery to remove her port is scheduled for March 7th. She was adorable for her consultation. She brought her favorite stuffed animal which is a kitty. She made the surgeon examin kitty before her. She said "kitty has a boo boo." They kept telling be how good she looks and how beautiful her red hair is. They have not seen her in a year. She has grown alot since then. Thanks for the continued prayers. We need them for monday. Love you all.
Debra Brigando
Saturday, February 26, 2005 6:11 PM CST
Our oncology appointment was yesterday. Lauren is doing great. Remission is wonderful. Her portacath is still not working. We have a appointment on Tuesday for a consultation with surgeons to set up a day to remove it. There are some concerns that Lauren has been on antibiotic monthly for three months. Each time she has had a fever and 2 of the times, no other symptoms. The portacath lets them flush is without problems, but no blood return at all. They plan on taking it out as soon as possible. In some senses it is a relief. The last surgery, hopefully. In other ways I dread them taking her down for surgery, yet again. It is agony to watch them wheel your baby away from you and they are screaming "mommy". When she was byopsed, it was the first time she said "mom" and she was terrified. I remember my heart racing and not being able to catch my breath. I'm not looking forward to this. Thanks for all the continued prayers. Love you all.
Debra Brigando
Tuesday, February 8, 2005 4:19 PM CST
Sorry so long since the last journal. We are all fighting a cold and ear infections. Lauren is all updated on her vaccinations. It is a relief. She is doing really well. Lauren has been singing her ABC's this week. It is really cute. I cut her hair (bangs) last week. I then blow dried her hair. When I got done, Hunter says "Baby, you look like a girl". I said "She is a girl". Hunter replied "no way". Lauren then went to the little potty and sood over it and went pee. She thinks she is a boy. We have our next oncology appointment on Friday Feb. 18. Thanks for all the support and prayers. Love you all.
Debra Brigando
Friday, January 7, 2005 7:47 PM CST
I'm doing the happy dance, clear scans. Lauren was a little Angel today. Her portacath is flushing, but no blood return, so blood had to be drawn for the first time out of her arm. She was a brave girl as always. She dressed up in her Christmas dress and they thought she was a Angel. The clinic gave her a Strawberry shortcake doll that sings. One nurse said it was because she is a red head. Well sorry so short, but I know alot of you were waiting for the news. Your prayers continue to work. Love you all.
Debra Brigando
Monday, January 3, 2005 6:58 PM CST
Happy New Year to you all. Sorry I have not wrote in a while. The holidays were very busy, but great. Lauren was very excited about Christmas. We had to watch her carefully. She was constantly trying to open the presents. I think she had been snooping though. One day I asked what do you want for Christmas and she took my hand and pointed to my bedroom closet and said "a pony". We bought her a bouncing horse. She is getting big and doing well. She is running, climbing, laughing, dancing, and having temper tantrums like any 2 year old. Lauren has a appointment and CT scan on friday. I always get nervous about that CT scan. We started her immunizations again and she finishes them this month. I think we are going to sign Hunter up for preschool then. He needs to do something to feel special. I feel sorry for the kids because the have been confined to the house for over a year now. Sean is acting like a typical teenager. Alot of arguing especially about the importance of school. Otherwise all is well here. I was really concerned about my dad New Years Eve. (year anniversary death of my mom). He has been talking to this woman for about 4 months now. She is coming out to see him on the 14th. They have grown fond of each other. I hope it works out. He is lonley and needs some companionship. Well thats all for now. To all my caringbridge friends, lets hope 2005 is better than last year. Love you all.
Debra Brigando
Saturday, December 11, 2004 8:31 AM CST
We had our monthly appointment on Monday. Lauren is well. One bad thing, her portacath did not work. They said she looked so well they would wait until next month and try again. I hope it works then. Lauren does not mind when they take her blood because it does not hurt. If they have to stick her, I'm sure her attitude about the doctor will change. Otherwise all is well here. It is hard this holiday season. I miss my mom and we are almost at the year anniversary (New Years Eve). I heard on the news that Dick Clark had a stroke. They were playing previous years of him counting down to the new year and I just began to cry. The kids are excited about the holiday. They went and saw Santa at the local town hall. They also had a horse and carriage ride afterwards. The little ones gave the horse a apple. They just had a blast. Hope all is well with all of you. I have not visited in a while. I'm going to make time next week to visit all of you. Thanks for the kind words of encouragement. Love you all.
Debra Brigando
Friday, November 19, 2004 8:54 PM CST
Had to cancel Laurens CT scan today. I am so sick, I just couldn't take the chance of getting one of the kids at the clinic sick. I will reschedule on Monday and will let you all know what day it is. Well, I'm going to go to bed. The kids have all gotten over this bug, I am the only one left that is sick. Thanks for all the prayers. Keep them coming.
Debra Brigando
Wednesday, November 10, 2004 4:00 PM CST
Lauren scared us yesterday. I came home from work and I guess she wasn't eating and slept most of the day. We took her temperature and it was 102. Of course I thought the worst. I called the oncologists and they told me she has been off treatment long enough to see the regular peditrican. I called and they closed in 1 hour. It is a hour and a half there. I thought I could wait until morning then her fever rose to 103. That was it, we went to the closest ER. They are so nice out here. They could not believe her medical history. The doctor just patted our backs and said "she is beautiful, you would never know." That is are Lauren, a fighter. She is now 31 pounds. Growing like a weed. Now she is back to her old self and is sliding down the stairs. It is amazing how they bounce back. On a more positive note, Hunter is 4 today. We are having a party for him on Sunday and he is excited about it. Sean has adjusted well here. It is amazing, he is coming out of his shell. Rob and I still love the house. Well that is all for now. I will update after Lauren's CT scan the 19th. Keep the prayers coming for a continued remission. Love you all.
Debra Brigando
Sunday, October 31, 2004 3:22 PM CST
Happy Halloween everyone. We are all doing great. It took us longer than I thought to get the computer up and runing. The new email address is on the bottom of the page. The move was long and hard but well worth it. The house is so big that when the kids are yelling and fighting, it isn't even loud. Things move at a slower pace out here. I never realized how peaceful things could be. Lauren is doing well with the exception of a little cold her and Hunter so generously shared with me. They are running around, riding bikes, and going for lots of walks. They have adjusted well to the move. Sean had wanted to stay in his old school for a week and then last Monday decided he wanted me to come get him. He said everyone in school is very nice and all introduce themselves and welcome him. I am so relieved. Sean is a very sweet boy, but very shy. Well that is all for now. We are getting ready to go trick or treating. Lauren is a princess, Hunter is a ninja and Sean thinks he is too big to trick or treat. Sending our love to all of you for visiting our site. I have to call tomorrow and set up a appointment for Lauren's next CT scan in November. Will keep everyone updated.
The Brigando's
Friday, October 22, 2004 5:12 AM CDT
Here it is 5am and I can't sleep. Yesterday, I closed on the house we are at now. Today, we close on the home we are buying. It is exciting and scary all at the same time. I told the little ones that they were moving today. I then gave them a shower and Hunter said, "bye bye shower, I'll be taking showers at the blue house nowL" He is such a riot. Lauren will probably never remember this house. She is doing well. Definately in her terrible two's. She is so much worse than the boys ever were about climbing furniture and jumping. She loves to scare me to death. Lauren really likes the empty cabinets here. She keeps hiding in them and wanting someone to find her. I look at her everyday and am just in awe. How can a 2 year old have cancer? I'm greatful she is in remission, but why does this happen to kids? They are so innocent and precious and it doesn't seem fair. I have been spending some time and trying to journal in all of our frinds web pages. These kids are amazing and such little troopers. They endure more in the few years they have been alive than most of us will in a life time. I love you all and are praying for all of you. It will probably be about a week again before I journal because of the move. I will have a new e-mail address too, and I don't know what it will be. Thanks for checking up on us. Have a happy halloween.
The Brigando's
Debbie, Rob, Sean, Hunter, and of couse the princess Lauren
Monday, October 11, 2004 7:55 PM CDT
Today is the one year anniversary of the day we were told Lauren had cancer. Alot has happened since then. To look at her today, you would never know. Lauren had her oncology appointment this morning. They can not believe how big she is. She is 28.3lbs and 34 1/2 inches tall. Dr. Hayani stuck his tongue out at her and she curled her lips at him like a fish. She will do anything to make you laugh. Lauren of course had to tell them all about spiderman and spongebob squarepants. They are amazed that she is talking so much. She was a little angel and did not fight them at all. I am amazed how strong this little 2 year old is. She is truly a miracle. God has answered all my prayers and I don't take any moment for granted. I have learned to be thankful for all the little things we take for granted. (Even when she is screaming demands at her brothers) Thanks for all the words of encouragement and prayers. I love you all.
Debra Brigando
Sunday, September 26, 2004 2:51 PM CDT
Just a little update to let you all know Lauren has been doing wonderful. She is getting so big and beautiful. Her hair even has some red highlights again. We have been using the video camera alot lately. She is such a angel. Lauren has been mimicing anything we say. When daddy gets mad, he starts counting. If Rob points his finger at her she says "one, two, now you go night night daddy". She definately says whatever is on her mind. She gets that from my mom. Sorry, I have not written much lately. It has been so busy trying to cordinate the sell of one house and the purchase of another. Will make time soon. Love you all.
Debra Brigando
Friday, September 17, 2004 4:44 PM CDT
Our house sold yesterday. We are so excited. Now pray that all goes well. I'm excited, scared, and nervous all at the same time. Pray that things go well so we can close on both houses around the same time. Lauren is doing well. She is happy and playing outside alot lately. She loves to slide on her belly and swing in the backyard. I look at her and think how could she have cancer? She looks perfect and it is scary to think that the cancer could come back today, tomorrow, or 10 years from now. I am greatful for every moment with her. God has blessed us and I pray everyday that we continue to be blessed with the healthy child she is now. Thanks for all the words of encouragement, cards, and many phone calls from family and friends. Without all of you, I know I would have lost my sanity. Love you all.
Debra Brigando
Friday, September 3, 2004 8:14 PM CDT
Well this week has been hectic. Lauren refuses to take her antibiotic by mouth. So here we go again with antibiotics and fluids for hydration. She is better today and we only have 2 more days of antibiotics. I am glad because I am so tired from getting up in the middle of the night to give her medications and then go to work. At least I'm off work this weekend. We had hoped to go camping this weekend, but that is out of the question now. We have not been able to go all summer because either I worked, Rob worked, or now Lauren is sick. It is kind of ironic though, we like to camp at the Indiana dunes and I just heard they were closed this summer for renovations. A quiet weekend at home might be a good thing. Hunter has a earache too. I also haved managed to get a cold and sinus infection. Maybe I'll get lucky and the kids will sleep in (ha ha). I put a new picture of Lauren up on this site. She has gotten so big. I never realize how big the kids are getting until I look at photos. My sister in law is emailing me some new pictures of Lauren from her wedding about a month ago. As soon as I get them, I will put them on this site. Thanks to all for your prayers and wonderful words of encouragement. I have a friend I want you to pray for. His name is Dillion (otherwise known as boogieman). He and his mom Kimbra I met on this caringbridge site. Dillion is really sick and he needs everyones prayers. Please pray that he gets better and give Kimbra the strength and rest she needs to get through this difficult time. As we know from Lauren, the power of prayer really works. Well thats all for now. I love you all.
Debra Brigando
Friday, August 27, 2004 5:47 PM CDT
We are still in remission. Lauren's scans were all clear. Thank God. Keep her in your prayers. She has a earache. They started her on augmentin (antibiotic). Lets pray that she does not get a fever otherwise we will be back at the hospital. She has gotten so big. She is 26.3lbs and 34 inches tall. Thanks for the prayers. They continue to work. Well, she is a little warm so I'm going to take her temperature and give her some antibiotic. Love you all.
Debra Brigando
Thursday, August 26, 2004 4:01 PM CDT
Well tomorrow is her CT scan. It seems hard to believe she has been in remission for 3 months already. I am so nervous. She acts fine, but you just never know. Lauren and Hunter got a new babysitter this week. Her name is Kathy and for the first time Hunter said "I like her". His usual is "I don't like you, now leave". I can always count on Hunter to make me feel uncomfortable. We have had a few showings on our house this week. I want it to sell so bad. Sean has started school. It is amazing that next year he will be in high school. Lauren has become a little chatter box. She can say almost everything now. She is so sweet. Last night she didn't want to go to bed. She would come out and say "hi mommy". I couldn't even get mad at her. She is so cute. I figure she ought to be rotten by the time she starts school. Oh well, for what she has endured in her short life, she deserves it. Thanks for all the prayers and words of encouragement. Will journal again after CT scan tomorrow.
Debbie
Thursday, August 12, 2004 7:46 PM CDT
Lauren's CT scan and appointment have been postponed until August 27,2004. My throat is scratchy and I think I'm getting a cold and I don't want to share that with all the sick kids at the clinic. When I called the doctor he said it would be fine. I think I'm just worn out between working more and selling this house. Lauren is well though. She has started to learn to pedal her bike this week. She is learning so many new things lately. Lauren still loves her spiderman best. Sean has put a big picture of him on the computer so any time you open the laptop she starts screaming "Spiderman". Sean is getting ready for school. I'm registering him for school out here and then my inlaws will be moved into there house in October and if we haven't moved by then, he will stay with them to go to a better school. I hope we sell our house fast, I'm not used to being away from the kids. Hunter has been learning to do flips on the trampoline. He is quite impressed with himself. Rob has been working alot as usual. He is a network administrator and fixes major problems with the network at 3 factories. He is always needed for something it seems. Otherwise all is well here. Saturday August 14 would have been my moms 61st birthday. I miss her so much. They keep telling me this will get better. I would like to know when. My dad, grandma, and brother are all having a hard time this week. The other day Lauren got mad at me and pointed, shook her finger, and yelled at me just like my mom used to when my brother and I were little. It made me laugh. Thanks for your prayers and kind words of support. You all just don't know how much it helps us to know how many people are thinking of us. Love you all.
Debra Brigando
Tuesday, August 10, 2004 5:20 PM CDT
Hello to all. Just a little journal to ask everyone to pray for Lauren. She has her CT scan this friday August 13. She has been feeling well and playing hard. She is getting so big. Since the chemo finished she has been growing so fast. Her hair is so blond it seems wierd to look at her. I was at toysrus the other day and a woman commented how cute her short haircut was. I just thanked her and laughed to myself. All is well here. Just waiting for our house to sell. I also wanted to write and ask for your prayers for someone we know. If you have been reading the journals, back in March we know another little girl from Hope who passed away from wilms, Savannah Olson. Her mother really needs some prayers now. The grieving is becoming overwhelming and she really needs her spirits lifted. Her web site is www.caringbridge.org/il/savannah. Amy is one of the most caring and sweet people I've ever met. She comforted me many times at clinic. Keep them in your prayers and if you could, visit there site. All the words of encouragement and prayers help. Thanks again and love you all.
Debra Brigando
Friday, August 6. 2004 1:26 PM CDT
Happy Birthday to you. Happy Birthday to you. Happy birthday Laurn Nicole. Happy Birthday to you. It is amazing she is only 2 years old. She seems so much older because she has endured so much. I thank God every day for allowing me to keep this precious Angel in my life. Lauren had some visitors in and out throughout the day. I am paranoid and will not let lots of people into the house at once. Too many germs for someone who still can't have her vaccinations. Her favorite gift is a 30 inch spiderman that her Grandpa got her. Most girls carry around a pretty doll, not Lauren. You can definately tell there are more boys in this house. Thank you all for continuing to pray for us. It helps to know there are so many people thinking of us. I haven't had time to write back lately. I will make time next week. Love you all.
Debra Brigando
Wednesday, July 28, 2004 3:31 PM CDT
Sorry I haven't journaled for a while. All is great here. Lauren continues to get bigger and she is turning into a toddler. She has hit the terrible two's. She is also talking alot lately. We are in the process of selling our house and buying a new house. We found a old beautiful Victorian home in the little town of Kentland Indiana. Everyone at work thinks we are nuts. It is a hour a way but the house is beautiful and the price is great. We are eager to sell our home but it is lots of work getting it ready to show. I have to set up a CT scan for Lauren next month. Her birthday is a week from Friday, August 6th. Hard to believe she will only be 2. She has endured so much in such a short time. I thank God everyday that she is doing so good. I feel that we are so blessed. Thanks for all the continued prayers. Love you all.
Debra Brigando
Friday, July 16, 2004 7:02 PM CDT
Just a little update to let everyone know all is going well with Lauren. I have to schedule a CT scan for next month. The POPS support group is having a picnic next weekend. It will be nice to see some people we have met through our journey. We went to my grandmas yesterday and met her minister. Her church has been praying for Lauren. He has wanted to meet her. The minister and his wife were really nice. They just played with her and Lauren loved all the extra attention. Laurens cousins were there too and it was nice to watch them all play together. The three of them are within 6 months apart in age. Lauren is the youngest. They talk a little better than her but she is the one that is the most active and the climber. She was teaching them boys how to get into alot of trouble. It is amazing, to look at her you would never know how sick she was. The power of prayer really works. Love you all. Don't forget to sign the guestbook. We love to hear from everyone.
Debra Brigando
Saturday, July 10, 2004 9:13 AM CDT
Lauren had a echogram yesterday. Everything looks normal. The doctors and nurses were all amazed to see how big Lauren is. She is 26 lbs now. The most shocking thing was they did not know she has went from a red head to a blond. She was showing them that she called her port "chemo". It was really good to see all of them. They have all become such a important part of our lives. Next appointment is in 6 weeks and they will do a CT scan of the abdomen and chest at that time. Well got to close for now. We are busy trying to get our house ready to sell. I think we are going to buy a house in the country. It is amazing how much more house you can buy with the money if your willing to do a little traveling. Love you all.
Debra Brigando
Friday, July 2, 2004 9:28 PM CDT
Well, I guess should have updated before now. Laurens next doctors appointment was rescheduled for July 9th. She is having a echogram at that appointment to make sure her heart was not damaged from the chemotherapy. Lauren has been doing great. She is no longer a red head, but a blond. Her hair is growing back very fast. She has a crew cut it looks like. She is as wild and tempermental as her brother Hunter. Nothing keeps this girl down. I believe she has entered the terrible twos early. She has been talking up a storm. The cutest thing she does is chase the cat screaming "Sybil". Sybil is a saint and lets Lauren hold her and lay on her. Sean has been spending most of his summer with his friends and with my dad. He keeps my dad company. Hunter has been socializing with the kids on the block. He is very outgoing. This week was the 6 month anniversary of my moms death. I wish she was here. It still does not seem real. I wake up most mornings and grab the telephone to call her. I never knew how much you could miss someone. Thanks to all of you for your support and continued prayers for our family. We love you all. Have a great fourth of July.
Debra Brigando
Monday, June 14, 2004 6:43 AM CDT
Lauren had a great weekend. She played outside alot and with her brothers. We had a little misfortune. We went for a ride looking at houses in the country. (A dream of ours once we unburry from me not working) Our van broke down. We had all the kids with us. It took about a hour to get a tow truck and about another hour and a half for poor Paige to find us. I felt bad for her, we were in the middle of no where and it is hard to give directions. Thank god though we all made it home ok. So our van is about 60 miles from home at a shop. They were not even home, so we had to leave the keys under the mat and write a note. I guess we will find out the damage today. I wonder, does it ever end. Love you all.
Debra Brigando
Tuesday, June 8, 2004 9:06 PM CDT
Good news today. The lump is a hernia. They are going to monitor it and if it stays the same, they will wait and repair it in a year when they remove the port. I am greatful. As long as it is not more cancer, I can handle it. Dr. Hayani also said he wants a echogram done in the next two weeks just to make sure that the chemo did not hurt her heart. I am glad they are making sure all is well. She has gained 5 lbs in 2 weeks. She also went up a whole size in shoes. I guess with the chemo out of her she is going to catch up on growing. She has never been really sickly thin but thin for being one of my children. All of you that know the kids know they all like to eat. We bought Lauren a pool. She is little fish and jumped right in. The funniest thing happened after her appointment. I took her to McDonalds with a play area. She played and then the other girls started rubbing her head. Lauren did not like that. She screamed "Mine". She definately has the red head attitude. Thanks for the prayers. I love you all.
Debbie
Monday, June 7, 2004 1:30 PM CDT
Not such a good day. Last night, Sean askes "Whats that lump on Lauren's belly". I paniced and called the oncologists. They said it is probably nothing except a hernia or a disolving stich that has got inflammed and not to worry unless she has a fever. This made me too nervous, last time we were told she had a hernia it was a tumor. I called the oncologists again this morning and I expressed my concerns and they said they would see me at 10am tomorrow. I'm scared to death and have been crying on and off all day. This scares the hell out of me. She is playing and acting normal and I know that in a instant it can all change. Please pray for us that this is nothing and I am just a overly concerned mom. Love you all.
Debra Brigando
Wednesday, June 2, 2004 8:43 PM CDT
Just a little update to let everyone all is good at the Brigando household. Lauren is already growing hair back. It looks like it is coming in blond. Too late though, lately she has the temper of a red head. (ha ha) This is going to sound funny but I miss going to the clinic every week. I miss the doctors and the nurses. I'll never forget one nurse in particular is LeeAnn. She always greeted you with a smile and when my mom died the next time I came in she just hugged me. Lauren also loved her to because she always sang the wheels on the bus to her when she was accessing her port. Lauren has been pointing to her portacath lately and saying "chemo". I think she realizes that we are not going. Her other wonderful nurses were Cindy who always had a kind word for us, Rita who was always very informative and made copies of lab results, and Fran who would always come in with a smile and listen if you needed to talk. Dr. Salvi always brought in a pen that flashes and let Lauren hold it and then he would look in her ears and ask "are there any carrots in there?". Dr. Heyani would always come in smiling and ask "how is our girl doing?" He was also the one that let me watch the CT scan with him as he was explaining what treatment would be for the cancer. Also both doctors and all nurses have been wonderful with the many calls both day and night from a very worried mom and dad. Marge the volunteer always gave Lauren and Hunter lollipops. She was a lifesaver on many days when Hunter was being a beast during office visits. I can't begin to express my gratitude to all staff at Hope for all they have done for my baby girl. If I forgot anyone, please know everyone has been wonderful. They were a strong support system for me during Lauren's treatment. God has blessed them with a special gift of taking care of children with cancer. They are all angels in my eyes. Lauren's appointment is June 25th. I look forward to seeing everyone at Hope. Love you all.
Debra Brigando
Monday, May 31, 2004 7:22 AM CDT
The weather has been lousy so far this memorial day weekend. Lauren keeps saying "outside". Anytime the rain stops, she is outside. Something new I learned this weekend, hair really protects your head. Lauren has two mosquito bites on her head and they look horrible. She still refuses to wear a bandana or hat. We have had to start putting mosquito repellent on her bald head. She is so active it is unreal. She has learned to take her socks of so she can climb the slide. I told you she was a monkey. I have just been watching her alot lately. It is truly a miracle that she is in remission and I feel very blessed. I know now that prayer works. Thanks to all of your prayers, we are on the road to being cured. Love you all.
Debra Brigando
Tuesday, May 25, 2004 8:34 PM CDT
Went back to work today. I had mixed feelings. I loved going back. Everyone is so supportive and ask about Lauren. I missed her terribly though. Her and Hunter loved Charlene the new babysitter. At first he gave her his usual line "I don't like you". By the time I got home, he was introducing me to Charlene "the nice babysitter". He is definately my defiant child. Thank God he is beautiful. Lauren takes to anyone. She is so used to meeting new people that nothing bothers her. We have a big picture window and she was sleeping in it waiting for me when I got home. Sean has a busy social life lately and is not home much. We are all feeling more relaxed this week because Lauren is in remission. Tonight, I just watched her play outside. Cancer definately makes you step back and enjoy all the little things we take for granted in life. She was jumping and singing "I love you" ( the barney song) I am amazed at her strength. Please keep us in your prayers. We are still in this for the long haul before she is cured. I love you all.
Debra Brigando
Friday, May 21, 2004 4:22 PM CDT
LAUREN IS IN REMISSION!!! It is the most beautiful day in my entire life. I was so happy I cried for 30 minutes after they told me. I feel like such a heavy weight has been lifted from my shoulder. Follow up appointments are going to be monthly for the first year. Then every other month for a while. Lauren's portacath will be in for the first year. Words can't even describe how happy we are. I keep looking at her and thank God that he has decided to let me keep my little Angel here on earth. Your prayers have all worked. I Love each and everyone for all the support. We still have a long road ahead of us. She will not be considered cured unless we remain in remission for 5 years. The kids and I are waiting for Rob to get home so we can celebrate. We definately have alot to be greatful for. I wish my mom was here to celebrate, but I know she was in heaven being Lauren's guardian Angel and making sure things were going to be fine for us. I miss and love you Mom. Love you all.
The Brigando
Debra, Rob, Sean, Hunter, and Lauren
Monday, May 17, 2004 3:56 PM CDT
Had a CT scan this morning. We will find out the results on Friday. Now the waiting begins. The nurses and the technicans were all happy to see her. They are always amazed that she does not need sedation for the CT scan. It is beautiful outside today. Lauren was jumping on the trampoline this afternoon. She sings and dances on it. Well keep the prayers that friday we will be in remission. Love you all.
Debra Brigando
Saturday, May 15, 2004 10:04 PM CDT
The week was pretty good. Lauren had a fever for one day and was vomitting one night. Not bad, we usually have 3 days with a fever and 2 with vomitting. I hate it when she is sick. Other than that, all has been well. She has been playing outside whenever the weather permits. Too much rain this week. Monday is our CT scan. I am nervous and anxious all at the same time. I will find out the results on Friday. Rob and I will be taking pictures and updating her site tomorrow. He has been so busy at work. He worked from 7am friday until 11am on saturday. I hate that he has to work like that but his job provides the medical insurance and God knows that is important right now. Well the kids are all asleep and I think I will get caught up on some much needed sleep. I don't sleep well these days. I am constantly worrying about what the future holds for my baby girl. Hopefully friday we will hear the beautiful word remission. Thanks for the prayers and words of encouragement. Without all of you, I wouldn't have gotten through this. Love you all!
Debra Brigando
Monday, May 10, 2004 5:08 PM CDT
Mothers Day was good. Sean woke me up at 6:15am for breakfast in bed. Hunter slept in. Believe me that is a great mothers day gift. I wish I could bottle that kids energy and sell it. I would be rich. Then my dad, my brother, Ed, Rob, and kids took me to lunch at Applebees. It was nice to see everyone. I thought about my mom the whole day. I miss her so much. I think my brother is having a hard time too. He was very quiet and that is not like him. Lauren spent the day outside. She loves it outside. She runs, jumps on the trampoline, plays on the swings, slides, and played with Angel. She is so beautiful. I watch her and realize she has endured more in her 21 months of life than most of us do in a lifetime. Lauren is amazingly strong. She is truly an inspiration to me and I am in awe of how she just smiles and takes takes anything life throws her way with such ease. We just got the digital camera up and running again. I will put some new photos in very soon. That way everyone can see just how beautiful her bald head is. Thanks for all your encouraging words. I love you all.
Debra Brigando
Friday, May 7, 2004 10:14 AM CDT
Lauren is not feeling so well today. He has been whinning alot since last night and she feels a little warm. She was drinking some juice and fell asleep in her highchair. Lauren was looking in the mirror at us yesterday. She usually points and says "mama" and then points to herself and says "baby girl". She now points to me and still says "mama", but when she points to herself she doesn't say anything and lookes confused. I keep telling her "baby girl" and she says "no no". She doesn't recognize herself bald. If I put a hat on her, she recognizes herself. Well as far as her getting sick, at least I know it is the last time from the chemotherapy. Other than that and being tired all the time, things are ok here. Thanks for all the words of encouragement. I love you all.
Debra Brigando
Tuesday, May 4, 2004 7:04 PM CDT
Well Lauren has officially lost her hair. She may have about 10 hairs left on her head. We went shopping today. Something we have not done in a while. I found her 2 bandanas that have care bears on them. They look cute on her, but she does not want to keep it on. She has been playing outside alot lately. She likes to play with her puppy Angel. (Appropriately named from big brother Sean)
We have had her for about 2 weeks. She is a yellow lab and Lauren just loves her. Lauren always greets her with a big laugh followed by some panting. It is a riot to watch them together. Hunter is almost impossible to keep in these days. He loves to play out back and he thinks the puppy will protect him. (The puppy is only 10 lbs). The funny thing about that is our St. Bernard was 180lbs and he never said that about him. It has been a good day and I relaxed when I got home and watched the kids play. Cancer definatly makes us realize how lucky we are. Sean is doing well in school and has been busy riding his bike with his friends. Well that is all for now. I love all of you for the support and encouraging words.
The Brigando Family
Saturday, May 1, 2004 8:10 PM CDT
Lauren feels a little warm today and is whinny. I think she is aches from the chemotherapy. They gave her vincristine and adriamycin yesterday. It is the stronger chemo she recieves. It is also the one that has caused her to be sick and loose her hair. On a more positive note, we have found a babysitter and I will be able to return to work in a few weeks. I have mixed feelings. I love to work, but I now know how your life can change in an instant and don't want to miss out on any part of my childrens lives. I definately need to return for financial reasons. Thank God we have really good medical insurance. We spent most of the day with my grandmother today. She is 89 years old today. We were discussing how we both are not looking forward to mothers day. I miss my mother. She thought cancer was a death sentence. I wish she could be here after Laurens next CT scan and celebrate her remission with us. Thanks for all your words of encouragement. I love you all.
Debra Brigando
Friday, April 30, 2004 3:13 PM CDT
Last chemotherapy was given at 10:17a.m. She was great throughout the whole treatment. It was a long day, but so glad it is done. She has a CT scan May 17. We will follow up with the doctor on the 21st for the results. If that is clear, she will be considered in remission. Then she will have to follow up once a month with the oncologists. I am so greatful that the chemo is over. It is an awful feeling everytime they do it knowing that they are injecting poison into our baby. She is a survivor and we pray that the worst is now over. I also think we have found a babysitter. It would be great to get back to work soon. We never realized how much the money I made helped out around here. Well, I'm going to close for now. Thanks for all the support and prayers. We love you all.
The Brigando Family
Debbie, Rob, Sean, Hunter, and Lauren
Thursday, April 29, 2004 11:51 AM CDT
Lauren has been playing outside most of the morning. She is very active and eating and drinking like a champ. Tomorrow is it, last chemo. I feel relieved. She is such a little fighter. She is eating her favorite, a McDonalds cheeseburger as we speak. I need to ask all of you to pray for a friend of mine. His name is Marc and he is 19 years old with Prader Willi. He is experiencing a complication now. He was diagnosed with diabetes Type II and circulation problems causing osteomylitis to his leg. He had surgery 2 days ago and they opened the wound all the way to the bone. They are on a long road to recovery. I just want to thank everyone for signing the guestbook. It lifts my spirits. The prayers have worked. Tomorrow ends one journey and starts a new one. I am interested in seeing what lies ahead as far as follow up exams and testing. I love you all and will journal after chemo tomorrow.
Debra Brigando
Wednesday, April 28, 2004 4:47 PM CDT
Lauren had her stent removed. She did very well. She was in and out of surgery in less than a hour. She woke up and immediately wanted something to drink. We got to come home. I am so glad. It is beautiful outside and she is outside eating a icecream cone as we speak. All is going well here. We have to monitor for a fever tonight and start some antibiotics. Well going to go back outside. Will update again after chemo on friday. The last one. (Yeah) Love you all.
Debra Brigando
Saturday, April 24, 2004 8:25 PM CDT
We took Lauren to her cousin Brodrick's birthday party today. We stayed only 1 1/2 hours because she has been very crabby today. She loves to throw herself to the ground when she doesn't get her way. Afterwards we went to her great grandmother Prices house. She loves it there and she was good. Grandma does spoil her with cookies, nuts, popcorn, and chips though. Well, hopefully this is the last week of treatment. I pray many times a day for remission. We are afraid of relapse. Especially because she only has part of the right kidney. Well I am scheduled to work tomorrow night. I have only been scheduled to work 3 times since she was diagnosed in October. All the other times I just work when it is convenient for me. I don't know many places that would do that. I am eternally grateful to them. Well this will be a long week. Wednesday, surgery to remove stent. Friday, last chemo. I will update as soon as possible. Keep praying. I believe it is working. Love you all.
Debra Brigando
Wednesday, April 21, 2004 7:49 AM CDT
Lauren woke up this morning, got out of bed, and the Hunter got them both some cheese puffs and iced tea. Isn't that the breakfast of champions. This all happened while I took the garbage out this morning. Amazing how they bounce back so quickly. It is amazing how cancer humbles us. The thing that makes me the happiest in life now is Lauren eating, drinking, and playing like a normal child. In one week her stent will be removed and 2 days later her last chemo. I am excited about that. Things are going to get better soon. Thanks for all the words of encouragement and prayers. Love you all.
Debra Brigando
Tuesday, April 20, 2004 2:40 PM CDT
Long weekend. Saturday was great. Weather was hot and kids played outside all day. Sunday, we had a fever. Antiiotics started. Fever gone monday and then we went to Loyola for pre admission paperwork for stent removal. We got in the car to come home and Lauren started vomitting. I cried most of the night. It is so unfair that this happens to innocent children. She had the dry heaves all night. It would be easier if it was myself going through this. Will keep you updated. Love you all.
Debra Brigando
Thursday, April 15, 2004 10:24 PM CDT
Today is a good day. Lauren woke up and the fever had broke. We didn't even have to go to the clinic. I just need to keep her home for a couple days. We spent the day outside. I did yard work with my dad and the kids played on the trampoline. Lauren loves to jump and scream like a monkey. She has decided she loves her brothers and kisses them constantly. The sunshine and warm weather makes everything seem better. When you say your prayers tonight, say one for all kids battling cancer. I have been reading many stories at www.cancerkids.org. It happens more often than we know. The prayers are working. 13 days until the stent removal and 15 days until her last chemo. Life may get better soon. Love you all.
Debra Brigando
Wednesday, April 14, 2004 6:06 PM CDT
Fever back up to 102. Called Dr. Salvi. He said to bring her in the morning and they would do blood workup. I expressed that we really didn't want to be hospitalized. As long as she continues to eat, drink, and play they would try to let us treat her at home. Keep praying for Lauren.
Debra Brigando
Wednesday, April 14, 2004 6:10 AM CDT
Well, I spoke too soon. Lauren had 101.8 temperature last night. I did not call the oncologist yet. It has gone down to 101. That is a good thing. They like to put them in the hospital when it is 101.5 or higher. It is really strange, she is very active and eating and drinking well. Keep praying the fever goes down. Our other kids need us too. It is hard on them when we are away. I really miss my mom. I never had to worry when she was here. Love you all.
Debra Brigando
Monday, April 12, 2004 2:50 PM CDT
Laurens stent removal will be April 28. She is doing well today. She has been eating lots of easter candy. No side effects from the chemo so far. She got a wagon for easter and is taking a nap in it right now. She always sleeps in the wagons at Hope. Hope Childrens Hospital uses wagons for transportation for the kids. Thanks to everyone that signs the guest book. It really lifts my spirits to see how many people care and are praying for Lauren. Love you all.
Debra Brigando
Sunday, April 11, 2004 9:31 PM CDT
Hapy Easter everyone. Lauren is doing well today. She has been full of energy. She was playing with a big green ball this morning. It is fun to watch her acting like her old self. Grandma did a easter egg hunt with Hunter. He loved it. He made her hide the eggs 4 times. Things are going well here. Again, Happy Easter to everyone.
Debra Brigando
Friday, April 9, 2004 2:58 PM CDT
Long day. Lauren was scheduled for chemo at 8am. We didn't leave until almost noon. There was a problem in the lab and it took forever for the pharmacy to deliver the chemo. The kids were good, considering how long we were there. One more dose on April 30. I am so happy we are almost done. They are going to have to reschedule the stent removal. Dr. Salvi said that April 21 will be when her blood counts are low, so he wants it done a few days later. Unable to get in touch with urologist today. Will know more Monday. Hunter and Lauren have been sleeping since we got home. Love you all.
Debra Brigando
Wednesday, April 7, 2004 0:31 AM CDT
Tuesday was beautiful and we spent the day playing hard outside. Hunter and Lauren are a riot. Hunter lets Lauren ride his tricycle and he rides on back scooting her. Sean has been sweet and giving Lauren a bath in which she gets washed and lotioned with bath and body products. She smells wonderful after he is done with her. All is quiet here. (Thank God for those few peaceful moments). Friday is her next to last Chemo. Last one scheduled for April 30th if all goes well. Her stent will be removed on April 21. It was going to be done on a outpatient basis on the 23rd, but our insurance will not pay for it unless she stays the night. Yet again, another hospital stay. Thankful this one is just one night. I feel a sence of relief this week and not so depressed. I see a light at the end of a very dark tunnel. I definately believe that the power of everyones prayers are working. Love you all!
Debra Brigando
Monday, April 5, 2004 10:01 AM CDT
Weekend was pretty good. Lauren played hard and ate like a champ. Her grandpa Leo, grandma Sandy, Great grandpa Muhm, and papa all visited. She had a fever last night of 102.7. Gave her some tylenol and started her antibiotic again (it was on hold due to vomitting), and this morning no fever. Thank God. Our friend Kathy got a puppy yesterday. Lauren just smiled and was talking to him. She has also decided to try and mimic everything we say. I think she is going to be quite the chatterbox. Thanks for the continued prayers and words of encouragement. Love you all.
Debra Brigando
Thursday, April 1, 2004 2:23 PM CST
It has been 24 hours since Lauren has been sick. She has eaten 2 silverdollar pancakes and 2 bananas. We had a followup with Dr. Hatch (surgeon). He said everything was fine and she was healing well after her surgery. She is schelduled for same day surgery on April 23,2004 to remove her stent. We don't know a time since. Lauren is playing, talking, and fighting with her brother. Hopefully no more sickness for a while. The prayers are working.
Debra Brigando
Wednesday, March 31, 2004 8:17 PM CST
Lauren has only gotten sick one time today. That means I only called the doctor once. Lauren is down to 20.8lbs. She was 25lbs before surgery and 22.8lbs afterwards. She loioks very thin. Dr. Salvi is a sweetheart. I said I was sorry he probablly thought I was crazy and he just reassured me I was just a concerned mom. I went to Savannah Olson's wake today. It doesn't seem fair. Why do children have to die. Her mom Amy is the sweetest thing. We went in and her first concern was Lauren didn't look well and that there was a doctor at the wake and should she get him. Amy is one of the kindest people. I cried at the wake. Not for Savannah, she is finally free, but for her mom, dad, sister, grandma, and entire family. Please keep there family in your prayers too. Well we have a early appointment with Doctor Hatch in the morning. Love you all.
Debra Brigando
Tuesday, March 30, 2004 9:51 PM CST
Rob and Lauren slept until 3pm after their all nighter in the emergency room. I forgot to write earlier that the reason Lauren can't shake the flu is because she is neutropenic. This means her neutriphil levels are almost none. They are the white blood cells that help fight off infections. She kept down gatorade today and I went and bought her some baby food and she ate that. She looks thin. She is very weak and sleeps alot. My heart aches to see her like this. Not my usual little monkey that is into everything. She has reverted back to the bottle. The doctors say that is normal and not to worry about it. She really looks and acts sick. I have been sleeping in the living room with her because I am afraid she will get sick and I won't hear her. Hunter, Sean, and I have shook the flu. Now if we can get Lauren better that would be wonderful. She has aches and pains and they don't want me to give her tylenol until her stomach settles. I feel helpless. I just pray that God makes our little angel better. It seems so unfair. She has endured more in her short 19 month life than others do in a lifetime.
Debra Brigando
Tuesday, March 30, 2004 8:36 AM CST
Lauren remains sick along with Sean, Hunter, and myself. Rob took her to the ER last night. No rooms open at Hope so they hydrated her in the ER and sent them home around 7am. Well we are all tired and will write more later.
Debra Brigando
Sunday, March 28, 2004 11:06 AM CST
Lauren has been sick all weekend. She has had a fever and been vomitting frequently. I thought it was from the chemotherapy but Hunter is sick now too. Now I am writing with a heavy heart. Last night God called home Savannah Olson. She has been fighting Wilm's for 3 years. Her mother Amy, I met during chemotherapy one friday. She was the strongest 6 year old I have ever met. Please keep their family in your prayers. Thanks all for your prayers. They are continuing to work. Love you all!
Debra Brigando
Friday, March 26, 2004 6:29 PM CST
Lauren went for her appointment today. Her CT scan of her lungs and abdomen are tumor free. Thank God. Lauren had to have 2 hours of IV fluids to replenish what she lost yesterday vomitting. Lauren is laying around. She looks sick today. I have to have my St. Bernard Apollo put to sleep tonight. I am writing to ask for you all to pray for a friend we made up at the clinic. Savannah Olson has Wilm's tumor too and has had some complications. Please pray for her family; Amy, Lance, and Jazzy. Love you all. Keep the prayers coming.
Debra Brigando
Thursday, March 25, 2004 9:44 AM CST
Not a good morning. Lauren has gotten sick 4 times so far. I just gave her some zofran, hopefully that will do the trick. Yesterday she learned to say "I love you". Tomorrow we get the CT results. Today Randy our minister is coming to visit. Talked to my sister in law Shellie today. She always has kind words of encouragement for us. Thanks Shellie, I needed it this week. My friend Paige has been an angel as usual. She had the refrigerator full of food when we got home from the hospital. Well Lauren has her pink blanket and is wanting to be rocked to sleep. Will update after Dr. appointment tomorrow.
Debra Brigando
Tuesday, March 23, 2004 6:27 PM CST
We came home from the hospital yesterday. Lauren is doing well. The UTI is cleared up but because she just had surgery, I am doing IV Ampicillin 500mg every 6 hours. She got to play outside for a little today. You won't believe but they found us a automatic B/P cuff. It is just like the one the hospital has. Everything is getting back to normal. Sean and Hunter are fighting as I write this. We had a CT scan yesterday of Laurens abdomen and chest. I will know the results friday. Will update the journal then.
Debra Brigando
Sunday, March 21, 2004 10:02 AM CST
Lauren had another fever once last night. She is up and walking all over the place. It is hard to keep up with her since she still has the IV's in place. She had Chemotherapy last night also. Tomorrow they plan to do a CT scan and see how things are. They told us yesterday that from the byopsy it looks like they removed all of the tumors. They said that the margins were clear of Cancer. It is nice to hear something positive. Rob has to go home tonight. I'll be at the hospital. Hopefully tomorrow we will come home. Keep the prayers coming. One thing funny, Lauren had a bag on her to collect a urine specimen. She attempted to walk and started grabbing herself and making the funnies facial expressions. She is a trooper throughout it all.
Debra Brigando
Saturday, March 20, 2004 1:00 PM CST
We were hoping to go home today, but the doctor said she needs more IV antibiotics. They changed the antibiotics due to what the preliminary lab reports said. Dr. Hayani said they need to be careful since she just had surgery. IV fluids are needed to make sure they flush out of her kidneys. Her fever is gone and that is a good thing. Lauren wants up and her IV's are keeping her down. I miss the boys and can't wait to come home.
Debra Brigando
Friday, March 19, 2004 7:10 PM CST
Lauren woke up with a fever this morning. We went for her appointment with the oncologists at noon. They decided to hospitalize her. They think she might have urosepsis which is a infection to her urine and blood. Could have been caused by her catheter. Will know more in the A.M. Right now she is on IV antibiotics and fluids to flush her system. Keep praying.
Debra Brigando
Thursday, March 18, 2004 5:22 PM CST
Today was a fight trying to get a B/P cuff. They brought me the wrong size and the machine did not work. After some research of my own, I now know they do not make automatic B/P cuffs for infants. They make them for children over 3. I guess since my insurance was going to pay for one they will send me a very good pediatric B/P cuff. Lauren has a low grade fever of 100.9 axillary. Probablly for them sticking her so many times to access her port yesterday. She has had tylenol, but is very crabby today. I called the oncologists and they said they will do blood work before chemo tomorrow. If she has a infection, chemo will be postponed. Pray the fever goes away.
Debra Brigando
Wednesday, March 17, 2004 4:21 PM CST
IVP done today. It was a trying day. We had a 9a.m. appointment. First they couldn't locate her referral. Had to call the clinic and have another one faxed. Then we got up to xray and they had a nurse try to access Laurens portacath. After 4 attempts unsucessful, I refused to let them attempt again. They then sent me to their cancer center where I waited 1 1/2 hours. They accessed her in 2 minutes. The nurses were wonderful with Lauren. They know Dr. Hayani (he worked at Loyola before Hope). Then we went back to Loyola and they did her IVP. We finally left at 3p.m. Long day, but great news. Laurens kidney is functioning properly and there are no leaks. Dr. Hatch's nurse April came over to the hospital and took out her Jackson Pratt drain. She felt bad that I had the run around all day long. Lauren was a angel throughout it all. She just lets them do whatever they have to do. The worst thing she did was whine at the end. Not bad since she couldn't eat or drink since last night at midnight. Well I'm exhausted. I'm going to take a nap. Love you all.
Debra Brigando
Tuesday, March 16, 2004 6:35 PM CST
Got a call from Loyola today. They want a IVP to be done tomorrow morning. They want to make sure the kidney is working at its optimal before the drain is removed. I'm a little scared. Not knowing is the hardest. Lauren was trying to remove her own JP drain earlier. She is back to climbing like a monkey and getting into everything. She is also talking alot more. She tries to mimick everything anyone says. Will know more tomorrow. Bye for now.
Debra Brigando
Monday, March 15, 2004 3:47 PM CST
We went to loyola today and had foley catheter removed. Thank God, Lauren has begun to play with all her tubes. She thinks the JP drain is a cup. She played hard today. Dr. Hatch (surgeon) just keeps saying "I can't believe she is doing so well." Lauren refuses to take a nap today. Hunter is playing gentle with her because he said "she has a boo boo because the doctor took the monster out and threw it away." Sean helped babysit so I could go grocery shopping. Tomorrow, no appointments. I'm thankful because I'm really tired. Lauren's blood pressure has been normal so she has not had any blood pressure medicine. I've been letting her play with the B/P cuff today and she is not afraid of it anymore. Our insurance has approved a automatic cuff so Rob can take it too. We should get it later this week. We are thankful to have insurance that has paid for all of the treatments, surgeries, and equipment. (Especially since whe have a HMO) Well that is all for now. I now know how much prayer works. Lauren continuing to get better is truely a miracle from God. I only wish my mom was here to see her doing so well. I miss her terribly. Thanks again for the prayers. Love you all!
Debra Brigando
Sunday, March 14, 2004 6:23 PM CST
We came home from the hospital friday evening. Lauren got sick Saturday at midnight and it continued until 5am. We found out she is allergic to tylenol #3. She was up vomitting 5 times. Saturday she pretty much rested the rest of the day. There is a foley catheter in place and a Jackson Pratt drain in her stomach. My grandma, uncle Chuck, Aunt Nancy, Uncle Tom, friend Sandy, and Dad all came to visit Saturday. Today is Sunday and Lauren woke up smiling and saying "Mama" with her tongue out. She then went into her room and played with her toys. Things seem back to normal. Hard to believe surgery was only a week ago. She is a strong little girl. We will be busy this week. Monday to loyola to have catheter removed, Wednesday to loyola for Jackson Pratt drain to be removed, and chemotherapy friday at Hope. Keep up the prayers. They are being answered. I love you all.
Debra Brigando
Wednesday, March 10, 2004 4:21 PM CST
Lauren is up and walking today. The urologist is amazed at how well she is doing. She is able to eat clear liquids today. She even went down to the play group for pet therapy. They say if she continues to do well they will pull the catheter tomorrow and maybe go home on friday. I am anxious. I miss Sean alot. He has been with grandpa. Thanks Dad! Your prayers have gotten her through surgery and continued prayers will heal her of cancer. Love you all!
Debra Brigando
Monday, March 8, 2004 5:25 PM CST
Yesterday we had surgery. She is amazingly strong. Surgery was 7 1/2 hours long. They did a radical nephrectomy on the left (removal of whole kidney). They did a partial nephrectomy on the right. They removed 1/3 of the right kidney. Last night her blood count was low and she recieved blood donated by grandma Sandy. (yeah for grandmas) She had a 100.2 temp. and recieved IV antibiotics. She wakes up for short periods of time today. She is a fighter. They have her arms restrained so she doesn't pull out tubes. She managed to turn her head so often she pulled out her NG tube. Her urnie is no longer bloody. She has a jackson pratt drain in, a foley, IV fluids in her portacath, and a periferal line in her right foot for pain management. Nurses are very nice here. Her surgeon came back last night for emergency surgery and came in to see her at 1am and today at 4pm. Thankyou all for your prayers. I believe they have been answered. I know my mom is in heaven looking out after her. It is comforting knowing Lauren has her own personal angel. I love you all and will keep you updated as much as possible. We will probably be up here 7 days. If you call loyola at 216-9000 they can put you through to the room. Her room will probably change tomorrow. Thanks for everyones support.
Debra Brigando
Friday, March 5, 2004 1:57 PM CST
Lauren had her ultrasound today. The radiologist thinks there is a good chance that they may still be able to save part of the left kidney (the bad one). He sees about 50% of the kidney. He is the same radiologist that found the tumor on the right kidney (good kidney) the first time around. He remembers Laurens case and he said he has been following her CT scans and he is amazed how well she is doing and how well the tumors had responded to the chemotherapy. We have to be at loyola Sunday morning at 6am. I am getting all my errands done today. I want to spend the whole day enjoying Lauren tomorrow. She was driving her dad nuts today during her ultrasound. The minute he puts her down, she starts running around. I am so happy she is acting like a normal child, things like that don't bother me anymore. Lauren has also started calling her daddy "Robert". It is odd, Lauren and Hunter both call him that. (They start by calling him dad, but if he ignores them they call him by his first name.) Well Lauren is crying in her crib. Will keep everyone updated. Thanks for all the prayers and words of encouragement. We love all of you!
Debra Brigando
Thursday, March 4, 2004 5:23 PM CST
We got a call from the surgeon and oncologists. They called the Wilm's Tumor Study head doctor. They discussed Lauren's case and decided they need to do surgery asap. They are afraid the cancer will metastize if they do not do surgery now. So here we go again. Blood tests and a ultrasound tomorrow. Surgery sunday. I have been taking care of getting referals yet again. I am anxious to talk to oncologists tomorrow. They are always good about answering all our questions. Rob is very nervous about the surgery. I am too. Lauren and I have not slept well the last 2 nights. (It is like she knows something is going on) I just hold her at night and look at her. We take so many simple things in our lives for granted. I don't know what I would do if I couldn't hold her whenever I wanted to. Keep your prayers coming. We all need them. Seans grades were not very good on his progress report. He is having a hard time with this and does not know how to express it. Please keep him in your thoughts and prayers. We love you all.
Deb, Rob, Sean, Hunter, and Lauren Brigando
Wednesday, March 3, 2004 2:40 PM CST
Well here we go again. Surgery cancelled. An emotional rollarcoaster begins again. They say they are trying to save as much of the left kidney as possible. I'll write more on Friday after I talk to the oncologists.
Debra Brigando
Wednesday, March 3, 2004 8:22 AM CST
Well tomorrow is the big day. Rob and I are scared to death. We know she responds well to chemo and does fine with it. She did not do well after the last surgery and this is definately more difficult than just the byopsy they did last time. Lauren must know something is going on. She was a insominiac last night only sleeping 2 hours. (so much for getting to go into work for a few hours) We will be staying at the Ronald McDonald House near Loyola. We are told she will be in the hospital about 7 days. Will update later when I have a definate time. Love you all.
Debra and Robert Brigando
Friday, February 27, 2004 12:52 AM CST
Just got back from Lauren's CT scan and visit with oncologists. Lauren's tumor has shrunk a few more millimeters. They talked with Dr. Hatch at Loyola and surgery is set up for thursday morning. I will not know the time until the afternoon before. My mother in law is going to donate blood for the surgery. I also have some good news. They think they see some function in the left kidney, so they think they are going to try to save some of it. I cried when they told me. They said they can't be 100% sure until surgery. I truly believe all the prayers are working. Will update you as more information is available. Love you all.
Debra Brigando
Tuesday, February 24, 2004 3:47 PM CST
Just got a call from Loyola. They said Laurens case is so rare they are having a meeting next wednesday with a team of urologists, surgeons, and oncologists to determine what to do next. I feel like a yoyo. I thought Monday I was going to be given a date of surgery. I immediately called Dr. Salvi (oncologist at Hope). He seems upset too saying this should have been done some time ago. The not knowing is the worst. I also wanted to make sure they were going to continue Laurens cancer treatment after the surgery. He reassured me they would and that Loyola just wanted to do there own evaluation. Lauren is comfortable with the staff at Hope and we hope her treatment can continue there. I guess we will have to see what there evaluation says. On a more positive note, Lauren is playing hard today. She has climbed on the kitchen table many times. (a bad habit she was introduced to by my mother in law) Her dad wants a sweet innocent little girl. I hate to tell him she likes to dance on the table top. Thanks for the words of encouragement in the guest book. I'm amazed how many people have looked at her site. It is reassuring to know how many people care for Lauren and our family. I send my love to all of you.
Debra Brigando
Friday, February 20, 2004 10:03 AM CST
Had a few moments and wanted to write something positive. In January we took a 3 day weekend and took the kids to the Wilderness Hotel in Wisconsin Dells. Lauren played in all the water activities. She laughed and played so hard. She also liked the whirlpool tub in the room. She took a bubble bath in it. She also liked hiding in the curtains. She was so cute we bought a video camera and made a movie of the trip. Also I need to thank my family and friends for being so supportive throughout this whole ordeal. My mom and dad kept the boys and brought them to the hospital to see Lauren. Paige my dear friend helped me get to Hope the night lauren was diagnosed and took care of our house. our whole family for being there the day of surgery. Robs parents for bringing me a journal at the hospital. The many call, prayers, and words of encouragement from our family and friends. The flowers, cards, and stuffed animals you have all sent to Lauren. Again thanks to all. The visits to the house really help alot. I love you all.
Debra Brigando
Friday, February 20, 2004 9:29 AM CST
No chemo today. It was nice to sleep in. Lauren has lost half of her hair this week. She has also been sick twice. I had to call Dr. Salvi this week because she developed a rash. They said it can be caused by her blood counts being low. I am to watch it and if it get worse, they want to see her. Right now she is attempting to sit on a ball. She just doesn't quite understand why it keeps rolling away from her. My mother in law has been crocheting her hats. She is also trying to teach me to crochet. We went for a walk yesterday. It was about 40 degrees outside. Nice to get some fresh air. Things are well otherwise on the homefront. All the prayers you are all sending really help.
Debra Brigando
Friday, February 13, 2004
Lauren had chemo this morning. She was actually waving at nurses and blowing them kisses. CT scan is scheduled for Friday Feb. 27 and appointment with Dr. Hatch is scheduled for March 1st. She has been climbing on everything and fighting with Hunter alot this week. (Things seem back to normal.)
Debra Brigando
Monday , Feb. 9, 2004
Lauren saw Dr. Hatch today. He said tumor has shrunk a little and that he would like another dose of the stronger chemo and then he would schedule surgery. He actually took the time and showed me the CT scans and explained how the tumor was further away from the main vein. I feel a little better now. This has been an emotional rollarcoaster. Called Dr. Hayani and chemo is scheduled for friday.
Debra Brigando
Friday, Feb. 6, 2004
CT scan today. Dr. Hayani said it looks about the same as before. We are to see Dr. Hatch on Monday and we are going to schedule surgery again. Lauren is doing well. She is up to 25lbs. She is such a brave and strong little girl throughout this whole ordeal.
Debra Brigando
Friday, January 30, 2004
Lauren got sick once this week. She was also a little weak. She fell more when walking. She had just a checkup with oncologists. Otherwise all is as well as can be expected.
Debra Brigando
Friday, January 23, 2004
Called Dr. Hayani and scheduled chemo for noon. This chemo they are doing now is very strong and is hard on the heart. They did an echogram before they gave the chemo. She was good for the whole test. I feel like a yoyo. They have me coming and going all over the place. They have scheduled a CT scan for Feb.6 and to see Dr. Hatch again on Feb. 9. Keep the prayers coming. We need them.
Debra Brigando
Thursday, January 22, 2004
We are at Ronald McDonald house near Loyola University. At 9:30 pm Dr. Hatch calls and told us it is not yet safe to do surgery. I cried so hard. This is time two that surgery was scheduled and cancelled. I do not know why they waited until the last minute to decide this. Will Call Dr. Hayani in the morning.
Debra Brigando
Tuesday, January 13, 2004
Saw Dr. Hatch today. He needed to review her CT results. He called us later and surgery was scheduled for January 23, 2004. He would do it sooner but he is going out of town in the morning. Lauren cried alot at the visit. I think they are just not the familiar faces she is use to seeing. Will keep you updated.
Debra Brigando
January 12, 2004
Dr. Hayani called us and told us that surgery needed to be done at loyola instead. Surgeons at Hope don't feel they can do surgery safely because tumor is on the main vein going into the right kidney. We are meeting with a Dr. Hatch at Loyola in the morning.
Debra Brigando
Tuesday, January 6, 2004
Surgery scheduled for January 13. Now I am nervous about the surgery. No chemo is scheduled until after the surgery. They plan to remove the left kidney, remove tumor off right kidney, and lymph node sampling. Dr. Meller and Dr. Noel (urologist) are going to do surgery. My mother in law is scheduled to donate blood for surgery tomorrow.
Debra Brigando
Monday ,Janurary 5, 2004
CT scan shows more shrinkage to both tumors. Left tumor is still not functioning so it will have to be removed. We had chemo this morning and she did fine. We are to see the surgen Dr. Loeff tomorrow. Will keep you all updated.
Debra Brigando
Thursday, December 31, 2003
More bad news. My mom died tonight. She has been my biggest support person throught this whole ordeal with Lauren. What is really sad is that Lauren is too young and will not remember her grandma. Hunter and Sean are just devistated. She was our babysitter while I worked a couple days a week. Lauren is doing fine. Thank God she is too young to understand all of this. We have a CT scan scheduled for the 5th of Janurary. Will keep you all updated.
Debra Brigando
Monday ,December 29, 2003
Lauren went through Chemo well. Still doing fine. No sickness and all her hair intact. She has been playing with her many christmas gifts. The one she likes best is a princess castle that my mom and dad bought her. Things have been hectic between going to clinic for chemo and visiting my mom in the hospital. She is not doing so well. She is continuing to have chest pains even though nitro drip is continuous. Surgeons who did bypass surgery to see her later today. Thanks for all the calls this week and for our many friends who have come to the house and watched the kids for me so I could visit my mother in the hospital.
Debra Brigando
Thursday , December 25, 2003
Last night Santa Clause came to see the kids. Lauren was skeptic at first, but when the gifts were coming she warmed up to the idea. My mom and dad were there. We have had some other bad news to report. My mom had a heart attack this morning and is hospitalized. Rob and the kids are at his mom and dads and I am at the hospital with my dad. She seems to be doing ok. They have started her on some blood thinners and medicine for cholesterol. They said she should have been on it the whole time. (it would have been nice if they would have wrote the prescriptions for it) They say that 2 of the grafts are blocked by 60% and one is 100% blocked. Her bypass surgery was only 3 months ago. She is only 61 years old. Thanks for all the prayers. Keep them coming.
Debra Brigando
Friday, December 19, 2003
Lauren, Hunter, and Sean are looking forward to christmas. Sean has been reading christmas stories to his brother and sister. He also has been threatening Hunter if he doesn't behave that Santa will not come. We had to have one of our cats put to sleep this week. Tabby was Seans cat and he has had her since she was one. She was 12 years old and had heart failure. It was a hard week on Sean. He has been crying over the cat and his sister. He tells me he is afraid she will die too. We keep reassuring him that so far she is doing well and we have to keep praying for her. Lauren did fine at chemotherapy. Nurse LeAnn had decorated the railings with Garland and Lauren was trying to take it down for her. She is use to them now and even smiles at them when we go.
Debra and Robert Brigando
Friday, December 12, 2003
Chemo therapy week 7. Lauren still has all her hair and has not been sick this week. She had her christmas pictures taken. They are adorable. Will get them on this site soon. She is wearing a red hat. Of course Hunter decided at the last minute that he needed his pictures done too. Things are getting back to normal. I am a Nurse at Applewood Nursing and Rehab in Matteson, Il. I have been going in on midnights and doing paperwork whenever I want. They have been so supportive. Rob has continued to work Monday through Thursday and takes Fridays off for Chemotherapy. Thank God both his and my job have been so supportive. Lauren has now decided that she loves our cat Sybil. She tries to pick the cat up, but the cat is too heavy. Sybil is a gem and just keeps letting her do it. The other day Hunter put the cat in a stroller and then Lauren was pusing her around. That cat has the patience of a saint.
Debra and Robert Brigando
Monday, December 1, 2003
My mother and father in law had only our family over for thanksgiving. That was nice of them because they sacrificed seeing the rest of their family to spend it with us. Lauren loved cranberry sauce. We had our first CT scan this morning. Lauren's tumors have decreased in size by 50%. I am so happy that I am crying. God has listened to all our prayers. Lauren is more energetic each weak. Our regular pediatrican had thought Laurens distended abdomen was from an umbilical hernia. She was always a sweet and quiet baby. She also did not show much facial expression. I think the tumors were there all along. She is into everything now. You would think she was a baby monkey and not a baby girl. Thanks to all for the prayers. It is working. Please continue.
Debra and Robert Brigando
Friday, November 21, 2003
Lauren had her fifth dose of chemo today. Was a champ as usual. She has now met some other nurses. She met Fran and Rita. She is now used to going there and behaves better. Rita gave her a empty syringe today to play with while she gave her chemo. Lauren tapped her portacath with the syringe. It is amazing how much more they know than we give them credit for. Been kind of depressing this week. We usually go to my families for the holidays. Unable to expose Lauren to all those people and possible germs. Will figure out something for thanksgiving. Happy Thanksgiving to all.
Debra Brigando
Friday, November 14, 2003
This past weekend we had Laurens brother Hunters birthday party. Just a small party. Lauren loved the cake and seeing friends and family. She tires out easily though. She also got sick for the first time at the birthday party. I don't know if it was from the chemo or the fact that she ate alot and tried to drink a ton of chocolate milk. We gave her some Zolfran for the nausea and it seems to work well. Otherwise all is well on the homefront.
Debra and Robert Brigando
Friday, November 7, 2003
Week 3 chemotherapy. Still no side effects. This week we went for some walks. The weather was nice. We also went and visited her great grandmother. She made us dinner in which Lauren ate roast beef, macaroni and cheese, and numerous servings of green beans. It is amazing I actually think she eats better now. Oncologists are pleased that she is eating and has gained all her weight back.
Debra and Robert Brigando
Friday, October 31, 2003
Week 2 of Chemotherapy. Dr. Hayani was dressed up like a hippie with a large curley wig on. It scared Lauren. Chemo went fine today. Lauren has not been sick from chemo. She went to a halloween party at the clinic sponsored by POPS.(pediatriac oncology parents suppport)
She was dressed like Belle from Beauty and the Beast. Her brothers went with. Hunter and Sean were both spiderman. It was funny a big spiderman and a minature one. Hunters had muscles in the costume. It made his big brother jealous. This party was on Wednesday. Lauren ate pizza, candy, and drank pop. She is still shy around other people since being in the hospital. Her nurses were dressed as m&m's. They took lots of pictures. Things are getting better. To look at Lauren, you would never know she has cancer. So far she has all her beautiful red hair. I will add pictures soon so everyone can see what she looks like.
Debra and Robert Brigando
Friday, October 24, 2003
Lauren has continued to get stronger all week. She has had many visitors at the house. Today is the first week of chemo at the outpatient clinic. Lauren does not like it when they take her blood pressure. She throws such a fit that they are sometimes unable to get it. She goes through chemo it like a champ. We have met the oncology nurses LeAnn and Cindy. All are friendly at the clinic. I have seen so many kids with cancer. I never knew how many kids had cancer. There positive outlooks are what keeps them strong. The kids are lucky, they don't know to feel sorry for themselves. Lauren cries only when they have to hold her down to infuse the chemo. Otherwise she is walking again and fighting with Hunter. Her big brother Sean has been paying alot of attention to her. I hear him cry sometimes at night. This has affected the whole family. My mother had quadruple bypass surgery on Sept. 18, 2003 (just 3 weeks before lauren was diagnosed). My dad says she cries all the time. I'm worried about her. My dad and my mother and father in law are all optimistic that Lauren will be fine. My husband and I are still crying alot. His work is being wonderful and letting take time off and paying him. Thanks to everyone for all the calls, visits, and prayers of support. Without all of you, I don't know how we would get through this.
Saturday, October 18, 1003
Lauren slept well throughtout the night. We are going home this morning. The nurses at Hope Childrens hospital have been wonderful. Angels do exist. She did not get sick from her chemotherapy. She does not like the hospital food. When we got home we were greeted by both sets of grandparents. I made lasagna and Lauren ate a whole piece. She is trying to walk, but falls because she is weak. In a weaks time she has went from 21lbs to 19lbs. She lays around alot. She smiles at her brothers. Her brother Hunter has brought her toys to play with while she lays on the floor. It still doesn't seem real that she has cancer. Please continue with all the prayers.
Debra and Robert Brigando
Friday, October 17, 2003
Lauren is weak but was eating some and playing in her crib today. Her great grandma, uncle Ed, and aunt Jackie came to see her today. She had her first Chemotherapy today. She acted like it was nothing. It is sad to know that I have to let them inject my beautiful baby with poison (Chemo) in order to make her better. I just pray to God that she gets better. Earlier today, my mom and dad came so we could take hunter to Chuckie Cheese. He asked me on the phone if I didn't like him anymore since I didn't ever come home. My mom stayed with lauren while we went.
Debra and Robert Brigando
Thursday, October 16, 2003
Byopsy results in. Laurens Wilms tumor is stage V favorable histology. It is stage V because it is on both kidneys. They then staged each kidney individually and they are both Stage I favorable histology. Plan of treatment is to do 18 weeks of chemotherapy. At week 6, they will do a CT scan. They will do another CT scan on week 12 and then schedule surgery to remove left kidney and repair right kidney. That will be followed up by 6 weeks of chemotherapy. Her tumor on left side is 11cm x 10cm. Tumor on right side is 6cm x 5cm. Dr. Hayani let me see disc of CT scan. I don't how something that big could be in such a little girl. She was awake a little more today. She watched movies. Can't wait to see her walking around again. She ate some jello today. Lauren loves to eat.
Debra and Robert Brigando
Wednesday ,October 15, 2003
Lauren slept all day today. She would open her eyes for a minute. When we would talk to her, she would immediately close her eyes again. No news about byopsy yet. Lauren pulled out her NG tube about 11p.m.
Debra and Robert Brigando
Tuesday, October 14, 2003
Surgery was today. Lauren did well. She had some problems with her blood pressure being high after surgery. They told us because tumors are on the kidneys, that is normal. Both sets of our parents, my brother, friend Ed, and our minister were all there for the surgery. We are blessed with a very good support system. Lauren has an epidural for pain and she is resting comfortably. She is pale and has many tubes coming out of her. I'm almost afraid to touch her. Now the wait for byopsy results.
Debra and Robert Brigando
Monday, October 13, 2003
More bad news. We went for CT scan. Lauren was good. She just watches the lights. Afterwards, we went for a ultrasound. When the tech was done he said "Did you know she has a tumor on the right side too?" We both just cried and cried. I felt like there was no hope. We were taken back to the room where we had a conference with Dr. Hayani and Dr. Salvi (oncologists) and Dr. Loeff and Dr. Meller(pediatriac surgeons). New game plan. They are going to do surgery tomorrow. They will byopsy tumors on both kidneys and lymph node sampling. Survival rate for bilateral Wilm's tumor is between 80-85%. Our family and friends have all been very supportive. Keep all your prayers coming. I know God is watching out for Lauren.
Debra and Robert Brigando
Sunday October 12, 2003
Today we met with Dr. Salvi (oncologist). He told us that this type of Cancer has a 95% survival rate. We were told that they would do there own CT scan of Laurens abdomen tomorrow, do a ultrasound, meet with surgeons. He told us that treatment would be to remove the left kidney, lymph node sampling, and byopsy of tumor. We cried alot today. This just seems unreal. Our other children are Sean 13 and Hunter 3. Hunter just doesn't understand. Sean is very upset about all of this. Will know more tomorrow.
Debra and Robert Brigando
Saturday October 11, 2003
This morning our children were at there grandparents house. Lauren (14 months old) was not very playful today. My husband Rob went and picked up the kids. Lauren had a distended abdomen for about 5 days now. On the way home, Rob called me at work and said to meet him at the ER because he felt a mass on her left side. After eight hours in the ER, many labs, multiple x-rays, and a CT scan nothing would have prepared us for what they said. We were told our daughter had cancer. Wilm's tumor to left kidney. We were devistated. It seems so unfair. I felt as if someone ripped my heart from my chest, threw it on the ground, and began stomping it. We were at Olympia Fields Hospital. Our pediatrican was called and suggested Hope Childrens Hospital. The transport team from Hope came and transferred her. Once we arrived, they told us we would meet the oncologists would meet us in the morning.
Thursday, February 19, 2004 7:56 PM CST
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