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Tuesday, December 21, 2010 12:58 AM CST

Wow....well I guess this page has been neglected long enough. We have been super busy.
Camble is now in 2nd grade. She is doing GREAT!! She is a very good student and continues to get great grades. She was blessed with a new cousin, Brynley, this year. Brynley is like a little Camble. It brings such joy to everyone to have a happy, healthy, baby around the house.
Brrynley just loooooooves Camble. They are bff's. Camble enjoys spending time with her as often as possible.
Camble is also on the swim team and does dance. She sure keeps busy.
We just got home from St Jude laste last night. Camble recieved an outstanding report!! That to me was the best christmas present ever.
Everyone is here is busy getting ready for christmas, brynley's 1st birthday, the arrrival of the new baby cousin, and my graduation. We have alot going on in the next couple of months.
Hope all is well with everyone!

(on a side note-this is the letter camble wrote to Santa. What an amazing kindhearted little girl she is)
Dear Santa, How are you? I wonder when its going to snow alot? How do you fly around the world in one night? I am not trying to be greedy but what I want is for Christmas is for Brynley to have a good one because it is her first! thank you! your friend, Camble.


Friday, June 26, 2009 1:37 PM CDT

Well, it has been just about a year since my Mommy updated my page. As you know I got to be a flowergirl in my Aunt Jenna's wedding last August. Now this August I get to be a flower girl in my Aunt Jami's Wedding along with my best friend McKenna. Our dresses are so pretty. I hope I get to wear a tiara too.

I have been doing better the past year. I had to get ANOTHER set of tubes put in my ears, and my tonsils out and my adenoids out. I was very sore for a week.

I am playing t-ball this summer. Its so much fun. I think I am a little tom-boy. I love snakes and bugs. I got an ant farm from the Easter bunny because that was what I really wanted. ANd I also LOVE picking Papa's tomoatoes, even if they are still green! I cant believe my birthday is in just a couple weeks. I am going to be 6.

My Nana and Papa are doing good just working alot. My Mommy is good too, she starts nursing school right after Aunt Jami's wedding. Oh I forgot to tell everyone, I am going to be a cousin FINALLY!!! My Aunt Jenna and Uncle Brad are having a baby in January. I hope its a little boy so I can name it Carson. Aunt Jenna says no though.

Well I have to go, I will try to update more often...

Love Camble

P.S. I have lost so many teeth I think I am going to be toothless for Aunt Jami's wedding.. Its going to look soo funny.


Tuesday, September 16, 2008 12:00 AM CDT

Hello and Happy September!!
Sorry it has been so long since I have updated.

Camble is doing wonderful!!! She has had quite a busy summer. In August she was the flower girl in Aunt Jenna's wedding. She has a blast. Of course, she had to wear a veil just like Aunt Jenna and high heels like the big girls.

Her and I ventured to Chicago a few weeks ago. We went to the Shedd aquarium and to the American Girl store. It was a great time.

She started school a few weeks ago. I can not believe she is in kindergarten already! wow where does the time go.
She is doing very well in school. She has been doign etter, the first few weeks she had to get adjusted. She was not the best listener. Now that we are past that, she is having a great time.

I moved back in w my parents a few weeks ago. This was a big adjustment for all of us. I am so much happier though. I am spending more time w Camble and I think that is what her and I both needed.
This morning Camble's dog ahd puppies. She is going to be so excited when she gets out of school this morning. She has been anxiously awaiting their arrival.

That's about it for now. I hope all is well w everyone.
Love Camble and Jaci


Tuesday, June 10, 2008 10:50 AM CDT

Wednesday, July 2

Well it is that time fo year again. Time for Camble to turn a yar older. It is hard to believe she will be 5 on friday. My little firecracker baby!!!
She is all ready to be 5 and to watch the fireworks!! She also has to stop sucking her thumb on friday. It was a deal she made w her nana because big girls do not suck their thumbs!!
Hope all have a great holiday!!

Love Jaci and Camble`the birthday girl!!


Wow this year just seems to be flying past.
Camble and I are both done with school for the summer.
What a relief that is. She is very excited to be starting a new school next year.

This summer she is going to be keeping pretty busy. She is in tumbling, t-ball, and soon dance. She loves more then anything to be outside playing on her swingset. She also enjoys riding her new 4-wheeler.

The last few weeks have been pretty busy and somewhat hectic for us. My dad (Camble's Papa) had a heart attack a few weeks ago. Luckily he was close to a great hospital so they got him fixed up and out the door in no time. We are definately count our blessings everyday and we are very happy that everything is ok w dad. Unfortunately, my grandpa died the exact same day that my dad had a heart attack. I guess you take the good with the bad. I know my grandpa is happy again to be w my grandma.

Camble's birthday is coming up. I can not believe she will be 5 in 3 weeks. WOW where does the time go. She keeps coming up w things she wants for her birthday. She is on a mission. She has to stop sucking her thumb when she turns 5, because big girls do not suck their thumbs. Last night she tied her arm to her bed so that she could not suck her thumb. Well she tied the ribbon a little to tight so she had to have papa come cut it off. I'll give it to her she is really really trying.

We have a busy summer ahead of us. My sisters wedding and all the events surrounding it are coming up. We also have several other weddings and events to attend this sumer.

Hope all is well.
Love Jaci and Camble!!


Friday, May 9, 2008 4:15 PM CDT

GOOD AFTERNOON TO ALL:
I realize that it has been awhile since the last up date and I am very sorry about that. With MOM in school and working andCamble in pre-school everyday it makes for a hectic schedule.
Camble is growing up to much and way to fast. She never, I mean never misses a trick and she is way to smart for her own good. Some of the things she comes up with are something. The other day she was talking to her PAPA and told him" We are not goint to have this conversation again". Wow talk about us laughing becasue it was at just the right moment that it fit the purpose. Then last week as we were on our way our for dinner with some friends and she was sitting in the backseat of Papa's truck she crossed her arms and said" I wanted to go for a walk at the park tonight and I see that isn't going to happen". Now how do you keep a straight face when she says things like that. Papa and I(nana) just busted up and told her that we would go later.
Pre-school will soon be out for the summer and Camble is really excited about this because whe will the turn 5 yes WOW a BIG 5 and then she will be in her Aunt Jenna's wedding as her flower girl. Now let me remind you that everything Aunt Jenna is wearing Camble has to wear also. Like a white dress, tiara and a veil. This is quite comical for us because we enjoy her to the moon and back. she will also be leaving for Flordia with her Great Aunt Mar, Aunt Jami and Jordy for a week. Sun, swimming, beach and fun. What more can you ask for on a vacation.
As you can see our life is full all the time and we are the most thankful that she is still here to share it all with us. God Bless you all for al the prayers over the years we appreciate them from the bottom of our hearts. She is a JOY and a BLESSING to our family.
Camie(Camble's Nana)


Thursday, March 6, 2008 7:37 PM CST

Well, SInce Jaci hasn't updated anyone lately I thought I would. Sunday marks a big milestone for us as well as Camble. It will be exactly 4 years ago she was diagnosed, and has been 2 years off of treatment. So only 8 more years to go!

Well, Camble has been doing wonderful. She just got over a week of the flu but all is well now. She is doing great in school and is too smart for her own good. She knows what is right and what is wrong most of the time anyways!! Ha.

She goes back for a check up in June. She thinks she is a big girl now because she doesnt have to sit on anyone's lap anymore when she gets blood drawn and she also doesnt cry. She is pretty proud of herself for that.

Well, I just thought I would update everyone on how she is doing. Thanks for all the continuous support!

Love, Jami
(Camble's Aunt)


Wednesday, January 30, 2008 8:36 PM CST

Hello!
Well lets begin by saying the weather here in illinois is just horrible!! I can not believe all this cold weather business. It is sheer crazyness.

Camble is doing well. She had a check up in Memphis 2 weeks ago. For the past several months we have been battling a few things with her counts. Her proteins, creatinine, and hemoglobin have been high. Well, they seemed to have fixed themselves. Dr Sandlund said that he could not be any happier with her labs and that she is healthier then most kids that have never been sick!! This was amazing news!! We do not go back until June. This will be the longest time span we have gone without being at St Jude.
While in Memphis, we did get to meet a few country singers. John Michael Montgomery, Blake Shelton, Jewel, and the Road Hammers to name a few. Camble had a blast with them. She just could not wait to sing to the, She also had a photo op with John Moses, CEO of ALSAC. Wow, that man jsut loves her to pieces!!!

Nothing else to exciting is going on. Camble and I are both still going to school. She made me some amazing cupcakes the other night!! She always tries to be so sweet!!

Hope all is well!
love,
Jaci and Camble


Monday, December 10, 2007 10:31 AM CST

Happy Holidays!
Well atleast we are getting close to that point. All is well in our house. Camble is getting ready for christmas. I am sure she is going to get way to many presents, but that is normal for her.
She is doing GREAT! She was sick about 2 weeks ago, she has a bout of tonsilitis but she seemed to get over it quickly. She never once even complained.
She is excited about her christmas program coming up. I believe she is singing 4 songs. I am not quite sure though. She likes to make up her own versions of the songs.
She has been very adamant about what she wants for christmas. Butterscotch is at the top of the list. For those of you who dont know, butterscotch is a toy horse. This is at the top of her priority list. I tlod her if she behaves that Santa might bring it to her.

Other then that, I am just trying to wrap up this semester. Today is my last day of classes and I have finals next week. Woo....I can not wait to b done for a month. Next semester is going to be pretty tough though.

My parents also got moved into their new house. It is very nice, and seems more like home then I expected it too. The only major change will b that Camble has to change schools next year. I am a little sad, and I am sure she will be too when she realizes she will have to meet all new friends. She is young and should be ok though.

We hope everyone has a happy holidays.
Love,
Jaci, Camble, and Family


Friday, November 2, 2007 2:30 PM CDT

Hello everyone!
Hope everyone is having a great fall! Camble is doing amazing! She is in pre-K again this year. She loves going to school and learning as much as she can. She cracks me up with some of the things she comes up with. I guess you could say that she is very precocious.
Health wise- she has been doing great! She had to get a flu shot that she did very well with. No crying! That's amazing that she is 4 and already has not problem with needles. I know i'm lucky!!
I have been busy with school and work. So i very seldom have a spare moment!
i posted some new pictures also. I hope you enjoy them!
Love Jaci


Friday, September 7, 2007 10:53 AM CDT

Hey everyone!!! Hope all is well. I am sure many of you have been pretty busy with school back in session.
Camble is back in pre-school. And loving it!! I am going to Bradley University, which i too am also loving.

I am not seeing Camble as much as I would like, however, I know long term it will be worth it.

As to Camble, she is doing GREAT!! Growing up so fast. I can not belive she is 4 already. The time has just flown by. Last night we watched the video of her no more chemo party. I think back to it and it was not that long ago. But looking back, she has grown into quite the little ldy.

She is coming to see me today. We are hanging out for my birthday!!! so i better go so i can get tsome things done!!!
god bless
Jaci and Camble


Saturday, June 16, 2007 10:59 AM CDT

Well... It seems to me that Jaci has been slacking on updating Cambles page, so today I am going to do it.

Camble has been doing great! I cant believe she turns 4 today!! BOY she is just getting too big...

She is smarter than her own good and she is 4 going on 24!!! She has a sassy attitude (You know she gets it from her mother)!!! Anyways.... she is healthy and doing great. We couldnt ask for anything better...

Hope everyone has a Happy and Safe 4th of July!!!

Camble says Thank You for all the birthday wishes!!!

Love, Jami
(Cambles aunt Jame-lo)


Monday, April 30, 2007 10:48 AM CDT

Hello!

well I thought I would take a few moments to vent. or whatever it is. i just need to get some stuff off my chest.

camble is truly amazing! and i am not just saying this because she is my daughter. she has been an instrumental part in so many lives it is unbelievable. she has went through more in her short lifetime than most people will do in a lifetime. cambel ahd to return to st jude this week for another checkup and to see the ENT doctor. conclusion was that she needs sugery on her ears AGAIN!! this is becoming a little bit tedious.

she seen her oncologist yesterday. he was concerned with her hemoglobin level. it seems to be high ona regular basis. this could be cause from numerous diferent things. he thinks it is important to figure out what is causing it.

yesterday she had tons of blood drawn for numerous different types of specialized blood tests, an abdominal ultrasound, an echo/ekg. UGH!! this poor girl!

we must go back in 3 weeks for the same battery of tests again and an MRI of her brain. I guess he is trying to rule out all possibilites.

the one thing I know for sure. the doctor assured me that the leukemia is not back! THANK GOD!!! however there could be something major or minor going on. and I hate wating to find out. the other bad thing is that the day she has to go back is the day i graduate from college! i can not do it without her. so i will not go throught ceremony is we are there. i know this is something i have worked hard for. but i have done it for her and i both and it would not be right for her to not be there.

ok thats enough

love jaci


Monday, March 12, 2007 8:49 AM CDT

WOW!! I can not even believe it.
Friday was one year ago that Cambloe got done with treatment. It was also the 3rd anniversary of her diagnosis. What a day. I can honestly say I was so excited friday. It is hard to believe we ahve made it this far, but Camble is amazing. She has an enduring strenght. I am so proud of her.
This is short but sweet I know.
Hope all is well.
Please say a few parayers for MAdelyn, Timmy, and Tyler!!!
Thanks so much
Love Jaci


Wednesday, February 28, 2007 6:52 PM CST

i like to play dress up
i like play mermaids
i like to read books
i love to make messes
and pick em up by myself[i wish]
i like to do puzzles
i like to get in trouble
i like to have bubbles in the bath tub
i like to play with my ariel vanity set and my ariel toys on the back of couch
i play with my kids(my dogs)
i like to eat chicken nuggets
i like sledding
i like swiming in the green water at brad's(at the lake)
i like to be with my ALL MY FAMILY!!
i like going to school
sometimes i'm crabby
sometimes i'm nice
sometimes i'm mean to bad guys
oh i like kitties too
i wanna be a cowgirl and animal doctor
and i wanna be ballerina
when i was a baby i had leukemia
then i had a no more chemo party
guess what
my nana made me a blue blankie
and randy sprayed slly string and confetti all over me
i eat confetti(no she does not)
i trick people
i like to wear big girl pajamas
i love my aunts
i love my mom
my birthday is on the 4th of July
ya can't keep a good dog down!

Ok so there is a lil bit about Camble from Camble.
she cracks me up.
We have been super busy. So I dont always remember to update her page.
Hope everyone is doing well.
March 10 is 1 year of no more chemo! I can not even believe it has been that long.
she continues to amaze me!

Camble says "God Bless everyone and make them feel better. And tyler, and madelyn, and timmy!"
God Bless
Love Jaci and Camble


Wednesday, January 3, 2007 12:17 AM CST

well happy new year to everyone!! I am so blessed to say that Camble is doing well and staying healthy! I love the feling of knowing she is doing well. Her make-a-wish trip went well. She had a blast. WE got to eat with Cinderella dn ehr fairy god mother and see the mice. She also got to meet Princess Aurora. I think the think she liked best was getting turned into Princess Ariel. WOW what a day that was. She looked amazing. I hope you ll enjoy the pictures!!!
Love Jaci and Camble


Tuesday, December 19, 2006 6:36 PM CST

So our adventure is about to begin. Early thursday morning we will head of to Orlando for Camble's make-a-wish trip. We are soooooo excited. Especially Camble. She has been talking about the princesses constantly.I can not for say that disney will ever be the same again. lol
For those of you who know our family you know what I mean. There will be 15 of us there. Nothing like a vacation from your family? lol
I did post a few new pictures. I hope you all enjoy them. I will have a bunch more after ouf trip.
I also want to thank my dad for doin the updating. School consumes most of my time so he has kinda taken over the responsibility. He does not know how to put up new pics though.
We hope everyone has a happy holiday season!!!
Love Jaci and Camble


Monday, December 11, 2006 12:24 AM CST

hello everyone this is papa. 14 more days till christmas and 10 more days till camble goes on her make-a-wish disney will probably never be the same when our crew is done there lol.camble is doing well, we got covered with snow on dec 1st. 14 inches to be exact. the weather this week is suppose to be in the 40"s so hopefully there wont be much left. camble did have a hey day out in it since she has never got to play in it before because of low counts. she would walk a couple steps then fall down and eat snow for a little while then get up and walk and fall and do it all over again. i do have a surprise for her when there isnt much snow on the ground. i got her uncle michael's snowmobile out of mothballs and a couple buddies got it running so when its down to a couple inches im going to take her out on it. it only goes about 12 miles an hour but thats plenty if im chasing her lol. well we hope everyone has a nice christmas and hopefully after disney we will have some new pics to post. thanks and god bless you all papa and camble


Saturday, November 25, 2006 8:33 AM CST

hello this is jim. camble is doing well with her ears. she is getting ready to go to memphis tommarow. nana is taking her and they are both excited. they will be home monday night. but they plan on visiting alot of people while they are there. camble said she wants to see tyler so he is 1st on the list. jaci is doing well in school and so is camble. camble had no time outs in school this week to our knowledge,lol.she did put her bottom tooth through her lip but that didnt effect her long. they had a little benefit for tyler last saturday and camble sang and danced. her new favorite song is the new Kayla LoCicero song the halls of st.jude she loves it. well time to go take care camble and her pappa


Wednesday, November 15, 2006 7:03 PM CST

hi this is camble's pappa since jaci is so busy at school i will be doing some updates. camble has been doing well she had tubes put in her ears a couple weeks ago and had her adnoids removed. that held her down for about 2 hours. she is a pretty wild child. she did have some drainage from her right ear this week so they put her back on ear drops. she is doing well at school. she has goten in trouble a few times for being a bully{ dont know where she gets that}. well thats all for now i will update again next week, there is one more thing a good friend of ours from kewanee tyler hulslander had been off chemo a year last month well unfortunateley he relapsed and is back in memphis please say a prayer for tyler. thanks agin jim{pappa}


Saturday, October 28, 2006 2:06 PM CDT

Hello everyone.

I hope all is well for you all. Camble is doing O.K. Finally feeling a little better. We have been battling a number of thins. But after about 35 days of antibiotics she seems to be ok. She is scheduled to have surgery on Monday morning bright and early. She is getting new tubes in her ears and possibly getting her adnoids out. So hopefully all goes well.

I'm not gonna lie. I am a little nervous. I know she will be fine but there is just this flashback sitting in the back of my mind. I will get over it though. I do need to ask for a favor. Please say a prayer for our dear friend Frankie. He is going through a rough time right now and I am not sure of all the deatils but I am sure his family would appreciate all the parayers they can get.

Well I am off for now. I will keep you posted!
Much Love

Jaci


Wednesday, September 13, 2006 11:56 AM CDT

Low and behold I am finally updating Camble's page. YEAH! Trust me there was no pressure from Papa.

Camble is doing GREAT!! sometimes a lil too good for her own well being. She started pre-school and and day care all in the same week, so that was a little bit of adjustment for her. Me too!!!

All of the new rules are slowly getting learned. Thank GOD! The first two weeks of school and day care she got qute a few letters sent home. Typically for being sassy. Lol I wonder where she got that from.

We got our paperwork from make-a-wish . We will be leaving 12/21 and coming home 12/27. Princesses here we come.

Other than that I can not think of too uch else going on.
I hope everyone enjoys the new pictures. Leave Camble a message.
Jaci


Sunday, July 30, 2006 1:26 AM CDT

Hello everyone!

Well we went back to Memphis this past week for Camble's first official off treatment check-up.

Christina, Camble, and I made the 7 hour drive. Wow cana 3 year old amuse you when your in the car that long.
Camble had had some issues with her labs lately. we are not exactly sure why but it will all get resolved.

Her hemoglobin is high and her platelets are low...so I am somewhat confused.

She did a photo shoot on tuesday with 3 other children, so I hope the pics turn out good.
Not to much else.
I hope you all enjoy the new pics of her. They are all from the hospital!


Tuesday, June 27, 2006 3:50 PM CDT

So here is the long awaited update that everyone has been asking about.

Camble is great!! She continues to amaze me everyday with her intelligence. It is hard to believe my baby will be 3 a week from today. Where has the time gone?!?! It has also been almost 4 whole months since she has been off chemo. So mch has changed since then.

Camble is beginning to try new foods finally! A doctor we know said she is probably getting her taste buds back. So she also has an obsession with licking everything!! My arm, my face, the carpet, all kinds of things! What a crazy girl.

She seems to be having a good time this summer. She loves swimming. Her favorite phrase is "don't dunk me!" She will do it herself though. She has goten pretty brave in the pool.

She also like to play in her sandbox and on her swingset. I have never seen her like to be outside so much.

As for me, I am taking sumer classes. Which puts me either at school or studying alot. So she is loving being with nana and papa. I can hardly ever get her to go home.
She will start preschool in August and she is very excited. It will be everyday for 2 and 1/2 hours. So hopefully she learns some social skills. She still lacks in that department just a little bit.

Last week Camble, Nana, Papa, and I went to Memphis for the annual ALSAC staff meetings. She was the featured patient. She was her typical outgoing self that everyone just has to fall in love with. We really enjoy going to the events and meeting new people.

Well I am off for now. I hope everyone enjoys the pictures. Leave us some comments in the guestbook!
Much Love
Jaci


Tuesday, May 30, 2006 6:07 PM CDT

So I see once agan I am neglecting cambles page!! I forget I am sorry.

She is doing very good. Growing like a weed and becoming quite the intelligent young lady. I can not belive we have been off treatment for almost 3 whole months. WoW how the time flies!
We will go back to St. Jude the end of July for a check up.
I hope to get some new pics on here soon. I have to get them scanned!
Love to all
Jaci


Friday, April 21, 2006 11:54 AM CDT

I have got to be the worst person in the world when it comes to updating Camble's web page. I don't really have an excuse I just forget.

Camble is doing well. She continues to amaze me everyday. She has quite the vocabulary and she knows how to use it. We have been playing outside alot which is something she has really never done, so she is having a good ole time.

The other day we got papers to get her screened for pre-school. She is very excited. She told the teacher her favorite thing to do is to read books.

Her oarty was on April 9th. All went well and we raised approximately $2400 for St Jude. We have not sent the money off yet. We are trying to figure out what we need to do to get Miss Camble a plaque on the wall like her Uncle Michael's.

Other than that there is not a whole lot to report. I wiill put some new pictures of her up as soon I get time!!

Hope everyone is well
Love Jaci and Camble


Friday, April 7, 2006 11:37 AM CDT

Well once again I have neglected my duties on updating Camble's page. There has just been a million and one things going on an dI have not really had a spare chance.

Camble is doing great. She was sick last week with all the viral stuff that is going around and then she got a ruptured eardrum but other that that she is is usual old self.. SSSSOOOO sassy! I don't even think I have ever seen a child with a mouth like that! IT is her way or no way. Or so she thinks at least.

Not much else to report. Although Sunday, the 9th of April. We are having a big NO MO CHEMO party for her. My dad has hired a band and we plan on having a good time celebrating her new life and her healhtiness.
If you want info let me know.
Thanks Jaci


Monday, March 20, 2006 5:55 PM CST

Wow, where do I even begin. The last two weeks have ben something else. I can not even begin to describe to you how happy and elated I am. Camble is fiished!! YEAH!

There were 14 of us that went to Memphis to celebrate her NO MO CHEMO party at the hospital. Her procedures went well that morning and it was time to celebrate. SHe was not quite sure what to think when they sprayed silly string all over her.

Dr Sandlund could nto be there that day but everything went well. We were all over powered with emotion, but I think it took a little longer for it to hit home with me that we were done.

So the 10th of March was her official last day of treatment. And then this past friday the 17th Camble and I returned to the Jude to have her line pulled out. We also got to see Dr. Sandlund that day. I think with having her line out and talking with her doctor things finally started to set into reality.

We did it. We beat the beast. I will never be able to thank St Jude enough. Dr Sandlund is one of the most wnderful people in the entire world with a heart that overflows wiht love. He saved my baby and for that I don't know if I can ever thank him enough. Thanks also to Miss Brenda and Miss Martha. Also to Gwen and all of our other nurses. and last but not least Randy. Camble could be in the crabbiest of moods and you sure could make her smile. You have lit up her life since the moment she met you two years ago and I know she has touched your heart. To all of you I did not mention do not take it personally. There are so many people we have met and they have all became our family. Thank you all so much!

I will contine to update you on what is going on with Lil Miss Camble. And keep you informed on her big party coming up!

Thank you everyone! To all of our friends and family, health care providers, to our community, and to all of the believers in miracles!
Love Jaci and Camble


Monday March 6,2006 5:30est

Hello to all our loyal fans,readers,believers and supporters over the past 2 years.

Well if this is not the week for EXCITMENT I am not sure when or, a better time it would be. It is hard to believe that in just 4 days from today will be out LAST CHEMO treatment. I pray that it will be forever but, no one really knows what forever holds for them. I believe that the Lord does work in mysterious ways and I believe with my whole HEART that Camble or Camble-ena (which ever you prefer) will be cured from this terrible monster that she has been treated for in the past 2 years.
If you would have told me 2 years ago that we would be enduring something like this again I would have said you are joking,or oh yeah right. Well since it did happen to us so many other things have happened to us also. We have met some really wonderful friends that are not just friends any more. It is amazing how close you become with complete strangers after you live with them for a few months. We have seen many families come and go in this time and each and everyone of them will remain in our hearts forever.
It is sometines hard to show excitment when someone else you know is not doing as well or has already earned their Angel Wings. But, God does have a greater plan for all of us if we want to understand it or not. We (I) have chosen to live one day at a time and to be THANKFUL for each and every day that we (I) have. There are so many other things to be thankful for also. Our continued good health, our love for each other and our love for the lord and his love for us. This is a few of the list that goes on and on and on.
Trust in the Lord with all your Heart and great things will happen.
Thank you again for all your prayers, encouragment,support and most of all your guestbook entries. We really appreciate everything. Please remember to say a extra prayer for all the chldren at St Jude or anywhere for that fact that are fighting this terrible monster. Give your chiildren a BIG HUG AND KISS and tell them you love them because you never know what the future holds for any of us. I pray each night that there will be a cure someday for all of us to never have to be treated for cancer but in the mean time just pray.

Love to you all Camble's nana Camie

Jaci and Camble's

Our Version of Normal

I can bull-shit anyone. I can sit all day long and tell stories and give all kinds of details. As I sit here and think about something I would like to describe to everyone, or at least those who would listen, I thought of several great ideas. My daughter is a major part of my life and the majority of the things I do revolve around her. Previously, I had related to you that my daughter, Camble, has leukemia. I thought that I would consume some time with the details and descriptions of what it has been like to raise my child with all the extra illnesses. Our story is far from the ordinary, but it is our version of normal.

I had what some might call a mother’s intuition when I was pregnant. I thought that something was going to be wrong with my baby. What made me think this, I have no idea. A new parent can expect sleepless nights, lots of diaper changes, and feedings. I was prepared for all of those things, but I was not prepared for all the extras, and by extras I mean illnesses. When Camble was two days old she was rushed to a Neonatal Intensive Care Unit. A NICU is a unit in the hospital where babies that have never left the hospital go. She had an abnormally low heart beat and some tests had to be done. Everything turned out fine and I though my life was back on track to the joys of normal parenting. Unfortunately, the definition of normal everyone else uses never fell into my vocabulary.

Camble has always kept me on my toes. When she was about 6 weeks old, she developed pneumonia. Things were starting to get interesting. I had a baby that was coughing up some of the grossest looking material I had ever seen. The mucous was green, brown, and slimy. The texture of it was quite horrific. I was instructed to give her round the clock nebulizer treatments. Those who don’t know, a nebulizer is a machine that administers a mist of medicine to help open the airway and help clear the mucous from her lungs. Since she was only an infant, it was quite easy to give her the medicine. The round the clock treatments started to take a toll on my body. My muscles ached and my eyes were tired, but I had to keep going for my girl.

As time went on things never seemed to get better. Camble was diagnosed with Chronic Otitis Media, which is an inner ear infection. This type of ear infection is when fluid builds up behind the ear drum. She was also diagnosed with 3 other major things. She had Chronic Aspiration Pneumonia, Reflux, and Whooping Cough. Things just never seemed to stop coming our way. The aspiration pneumonia was a result of her reflux. Reflux is when the little flap on the esophagus does not close all the way, and the acid and fluid comes back up. Many children have reflux, but unlike most children, Camble did not spit it up. Camble would swallow the spit up and it would get trapped in her lungs, thus causing the aspiration pneumonia. It was an ongoing viscous cycle. Camble was diagnosed with whooping cough in February of 2004. Something the doctors say she probably had for a month or longer before it was detected. We battled the ear infections for six months until her doctor decided to put tubes in her ears to drain the fluid. The fluid that drained out of her ears was a nasty brown, green, and bloody, and it had a putrid smell that made me want to vomit. That was it, I was finally done. I thought my bad luck had finally hit rock bottom and it was nothing but smooth sailing from here. WRONG!

Camble’s surgery on here ears was on March 1, 2004. Approximately five days later she developed a fever. What is a fever? This was one thing Camble had never had. Camble had a fever for four days that would not break. I gave her Tylenol™, Motrin™, and many cool baths. Nothing seemed to help, so I thought I should take her back to the doctor. The doctor decided, since the fever had not went away, that we should admit her to the hospital for a routine workup. The doctor came into the room shortly after Camble’s blood work was drawn and sat down. This was when I knew something was horribly wrong. This was when my mother’s intuition came true.

As I sat blank faced staring at the doctor, his mouth slowly opened and put out the most horrifying words. “Camble has leukemia.” Time stopped, and so did my heart. I was like a deer in the headlights. Where do I go? What do I do? What is going to happen? Those are a few examples of what was going through my mind, and at this point I had still not spoken. The tears were free falling from my face. The sound of the huge alligator drops streaming from my face and hitting the floor left an echoing noise in the room, as I was hyperventilating. I was lost. This was the first time in my child’s life that I did not know what to do. I had no control. I just sat there crying, holding my baby, and asking myself why.
Slowly some of my questions were answered.

The next day, March 10th, 2004 Camble and I were flown on a private jet to St Jude Children’s Research Hospital in Memphis, Tennessee. Since everything was going so quickly, I still have a hard time remembering all of the details today. I remember sitting in an ICU room talking to a doctor and the air was stuffy. I remember I was not really talking, but just sitting there in a haze of confusion. I still did not understand what was going on. I tried as hard as I could to listen to the doctor, but the words just were not getting through to me clearly. I heard mumbling. The mumbling continued, and I had the sense that I was going to get sick. I wanted to scream. I wanted to blame someone, but who could I blame? There were only a few options and none of them were good. I decided that I needed to suck it up and take care of my baby.

I learned that Camble had Acute Lymphatic Leukemia, ALL. ALL is a blood cancer affecting thousands of children and adults every year. I learned that she would have to go through two years of treatment. The first four to six months being the most intense. After the intensive chemo, she would go through maintenance chemo. Since your body constantly produces blood, it is like a security measure to try to make sure the cancer does not come back.

The first course of her intensive treatment consisted of a bone marrow aspiration and a spinal tap with intrathecal chemotherapy. A bone marrow aspiration consists of a needle that is pushed through the hip bone into the middle where the fluid is at. A spinal tap is when a needle is put into your spine and the fluid drips out. When she got the spinal tap, a syringe was attached to the needle inside of her spine and chemotherapy was pushed inside of her. One might ask why she had to have chemotherapy in her spinal column when she has a blood cancer. Well, leukemia can also be in the spinal column in a version called CNS, central nervous system involvement. The next day she started steroid therapy. WOW did she get chubby! For 33 days she had to take steroids. High doses of steroids break down the leukemia cells, however, they also increase your appetite. Those leukemia cells are called blasts. When they were broke down her body went through tumorlysis. While going through this process she was given two different types of medicines to remove the broken down cells and fluid from her body so that she did not get sick. While she was on the steroids, she ate like food was going of style. She would eat eight to twelve ounces of formula every two hours on top of two jars of baby food. I am sure it was all good going down, but I reassure you that it was not good coming up. The one thing I had to get used to over the next few months was vomit, and lots of it.

Camble did not have very many complications, but the ones she had were somewhat major. In May of that year she ended up in the hospital with a pretty serious infection. She had a rash on her arms and legs for about two weeks that did not go away. She ended up having a staph and strep infection in her arms and legs. The infection caused her to have huge, puss filled blisters all over her arms and legs. She also had mucositis from her mouth all the way through her intestinal track. Mucositis is when you have seeping open wounds in your mouth and in your intestinal track. She was in sad shape. My baby just laid there and shook. It looked like she was having a seizure. Every time you changed her clothing blisters on her legs would burst open. Blisters had formed since I had last changed her. The pain she must have been in was indescribable. She was on a morphine pump to control pain since she had so many sores all over her body, including her mouth. I could sense the pain she was going through and my heart broke for her. I cried, and I should not have. I never wanted my child to see me cry, because I always wanted to be strong for her, to be her rock.

Everything else went pretty much as planned. We are finally coming to the point in her treatment where I can see the light at the end of the tunnel. Camble has five weeks of chemotherapy left. Five weeks is it. I would have never imagined two years ago at this time I would be where I am today. Camble being done with treatment is a scary thought. There are a lot of what ifs I am not sure about yet, but I know with time everything will be fine. I have learned so much in the past two years it would take me a novel to actually tell you all of it. I could have written a novel if I wanted to, but opted not to. I did not because I am so afraid I will leave out to many important details. The details are what have made me the person I am today, and the person I will always be.
No one ever said that parenting would be easy. I guess I never expected it to be. Things do not always go the way we want them to. We all hope for our perfect and normal child. Well, I got mine. I do not believe that anyone or anything is perfect without flaws, and I believe that normal means different things to different. I have decided I have the perfect child, flaws and all, and she and I fell into our version of normal. I tell people about my child everyday whether it be about her illnesses of her personality. I believe she is the person she is today because of me and what I have done for her. I hope that everything that Camble and I have been through can be an inspiration to someone. Hopefully one day someone else will be telling the detailed events of my daughter’s life so far.



Friday, February 10, 2006 11:49 AM CST

It is hard to believe that we are quickly approaching the 2 year mark of Camble’s diagnosis. 2 years! I can not believe it. Not only will it be the 2nd anniversary of the worst day of my life, but it will be the greatest day of my life because my daughter will be done with treatment.

2 years ago at this time I would have never imagined I would be where I am today. I would have never thought that I would have had to have Camble treated for leukemia, but I did.

The past 2 years has been rough. There have been many good times and lots of bad. I can say though that I would not be the person I am today, if this would not have happened. I am not saying I am happy this happened, but God has a plan for everyone and I believe this was his plan for me. Not only to take care of Camble, but to prove to myself and my family that we can beat this nasty monster called CANCER.

My family is strong. I could only wish that everyone had a family like Camble and I have. They would do anything for us and they have proved that to us. There will never be enough words to express how greatful I am to them.

We have made many friends along our journey and we have lost some as well. The people we have met have helped shape our lives and our beliefs. I can’t tell everyone personally, but generally, I would like to thank everyone for being a part of our lives.

To Camble:
You are the strongest most beautiful little girl I have ever known. I don’t know where I would be with out you. You are my rock and my reason for getting up every morning. I wish you nothing but happiness for your whole life!
I love you more than words can say!
Love Mom-mom

This is my best attempt at a heartfelt update for now. I will put some more soon. Thanks again for everything, everyone!
Love Jaci


Friday, February 3, 2006 5:14 PM CST

Hello!
I bet you all were wondering if ythis pag was ever going to get updated again. Well it was getting about time I got to it.

Camble just had her final trip before her final trip to Memphis. Everything was well. The eye doctor does not want to see her for about 4 months and Dr Sandlund said she looks wonderful.

It is so hard to believe that we are almost done. 5 weeks!! thats it 5 WEEKS!!!!! The time is certainly not going to bo quick enough. We are all very excited. Well I must go for now but I promise a wonderful update real soon.
Hope you all enjoy the new pictures!
Love Jaci


Monday, January 16, 2006 6:43 PM CST

HELLO TO ALL,

SORRY FOR THE DELAY IN UPDATING, BUT THINGS HAVE BEEN KIND OF HECTIC AROUND HERE.
FIRST OF ALL I WOULD LIKE TO WISH A BELATED WISH TO MY AUNT MARILYN FOR HER 50TH BIRTHDAY LAST FRIDAY. WAY TO GO AUNT WATERMYLIN( THAT IS WHAT CAMLBE CALLS HER) AND TO MAKE SURE SHE HAD A WONDERFUL TIME IN THE BEAUTIFUL LAS VEGAS. THAT IS HOW AUNT MAR SPENT HER 50TH BIRTHDAY WITH 18 WONDERFUL FAMILY AND FRIENDS OUT THERE. DID YOU BRING HOME ANY MONEY???

WELL ON TO THE NEXT, I STAYED WITH MY AUNT LISA AND UNCLE RARA(ROBERT) WHILE MY MOM WAS ON VACATION. I HAD A REALLY GOOD TIME WITH MCKENNA BUT I AM SURE THAT I WAS A LITTLE NAUGHTY A FEW TIMES. SORRY MCKENNA FOR HITTING YOU.AND IF I DID ANYTHING ELSE TO BE SORRY FOR I AM. I HAD A GREAT TIME WITH YOU AND THANK YOU SOOOOO VERY MUCH FOR KEEPING ME. I REALLY ENJOYED MY TIME WITH ANOTHER LITTLE GIRL LIKE ME. IT WAS GREAT. AND SOON I WILL BE ABLE TO GO TO PRE-SCHOOL AND BE WITH OTHER KIDS MY AGE. YEAH

MY MOM HAD A GOOD TIME IN LAS VEGAS ALSO. SHE MISSED ME A LOT AND I MISSED HER TOO FOR A WHILE, BUT I WAS HAVING A GOOD TIME PLAYING WITH MCKENNA AND HER TOYS.
MY NANA AND PAPA MISSED ME ALSO AND I MISSED THEM . I AM SO HAPPY THEY ARE HOME AND HAD A GOOD TIME.

MY MOM WAS EXCITED BECAUSE SHE GOT TO SEE ONE OF HER REALLY GOD FRIENDS THERE ALSO. HER NAME IS TARA AND SHE USED TO LIVE IN ILLINOIS CLOSE TO WHERE MY MY GREW UP. IT WAS NICE VISITING WITH HER

MEDICALLY I AM DOING GREAT AND ONLY HAVE 7 WEEKS MORE UNTIL I AM FINISHED. THAT IS 52 MORE DAYS UNTIL I AM DONE.

TAKE CARE GOD BLESS AND PLEASE PRAY OF ME AND ALL MY FRIENDS AT ST JUDE. CAMBLE


Saturday, January 7, 2006 8:04 AM CST

Hello to All,
We just returned from Memphis with a good check-up. Camble had to go back this time because her WBC's were running higher then the protocol required. Protocol range is from 2.5 to 3.5 and she was running 3.6 or higher. This week it was a whopping 5.7. WOW Last visit Dr Sandlund did a pharmacokenetics study on her 6-mp level(1 type of chemo she takes). It came back very low and so they raised her dose from 60mg per metered sq to 75mg per metered sq. Hopefully this does the trick. He was not worried that her Leukemia was comming back, she was just metabolizing her meds faster then normal. Then again Camble does not do anything in the normal range. She will have to go back to Memphis again in 4 weeks to check her levels again and make any adjustments if necessary.

We did get the OFFICIAL LAST CHEMO DATE yesterday.
Friday March 3rd will be her last day in Peoria
Friday March 10th will be her last day in Memphis where she will have a bone marrow aspirate and a spinal tap for hopefully the last time EVER. We are soooo very excited about this and it is hard to believe that in 8 1/2 short weeks it was when our lives turned upside down for the second time. I know that God is going to let Camble live through all of this because he told me so himself. Yes you read this right. When she was diagnoised just about 2 years ago he told me before the Dr what was wrong and that she was going to be OK. I have believed him form the very begining. Camble is a very lucky little girl to have come this far with all the Love and support from family and friends and from friends we have never met. Please continue to pray for her so that the complete healing I am counting on really does happen.

She still amazes us daily with the thing she comes up with. She is a typical 2 year old with the 2 year old attitude. She does get a little sassy at times and she really does know what a naughty spot is. It does not take much when you remind her that she will go to the naughty spot is she is not good. Nana sometimes is a little hard on her but it is relly for her own good.

Please pray for all our friends that are going through with all of this and that someday we wil find a cure for everyone young and old. Please sign my guestbook we are keeping it on a disk to look back and remind us how greatful we really are to have such wonderful friends and family in our lives. Take care and God Bless each and everyone of you.
Camble's Nana Camie


Thursday December 29,2005

UPDATE----1200PM
At about 8 pm last night my Uncle Ralph was at the bowling alley doing what he loves we he had a heart attack. Thanks to the quick thinking of some of his good friends they started CPR immediately. The rescue squad got there and they had to shock him twice I believe. They got his pulse back and they were off to the hospital. Once at Kewanee Hospital a few test were run and he was to be sent to Methodist Hospital in Peoria. The weather here last night was very foggy so none of the helicopters were flying. With that they had to get a special team together to take hime down via ambulance. I want to thank everyone who helped. Dr. Jim Lindbom, Nurse Debi, and Respiratory therapist Anne. The doc said his friends quick thinking is probably what saved his life. He had to be intubateed and put on a avent over night. They removed the tube this morning and were going to do and echo and an ultrasound. The doctor does not think there is any permanent damage. I will let you know more as I know. Please keep my uncle, aunt, cousin, and family in your prayers as this is a difficult time right now!
Thanks for all of your support.
Jaci

*****HAPPY NEW YEAR*****
Well almost Happy New Year. This is a time to reflect back and remember all the things that have happened in the past year. We have all lost a few of our very close friends and we have also gained a few new friends that will remain near and dear to our hearts... They say time heals all wounds but sometimes I wonder how long it takes to heal them..... I can remember that it only felt like yesterday when Camble was first diagnosed with her Leukemia. Wow, what a blow to any family but to happen twice to the same family really is quite a shock. I can only remember that it was hard to believe it was us again. I know now that GOD only gives us what we can handle and I truley believe that this was meant to bring our family closer together.
Now here we are with only 10 more weeks of chemo to go can we really get through this. The excitment builds everyday a,s the counter ticks down. I am not sure if I am really ready for no more mid-night doses of chemo. No more Friday trips to Peoria, the weekly lab draws and of course the daily care of the central line. Wow this is alot of no mores. I can only continue to PRAY that this is the last time in the Heiser family that we have to go through this. But what makes us weak is also what makes you strong. Believe it or not.
Camble still amazes all of us on a daily basis with her wisdom. If only her Uncle Michael and her Grandma's could see her now. She has really grown into a beautiful little girl. Not just physically but emotionally and mentally too. She never misses a step with what goes on. Her Humor and whit are a constant reminder of just what a special little girl she really is.
Please pray for all the children that have to endure this monster and that someday there will be a cure for all these bad things that they have to go through.(chemo-nausea-vomiting-dairrhea-hair loss-you get the picture) Please hug your children and tell them that you love them and open there hearts to the LORD for this is all in his hands and we have to trust his wisdom and try to understand. I am a firm believer that Camble is going to make it through all of this and be a stronger person for it. She has already made me a stronger person for BELIEVING. Trust in the lord with all your heart.
Love and prayers to all of you for visiting Cambles sight over the last two years. It has meant alot to all of us to know that there are lots of people who care. Thanks again for everything. LOVE-HUGS AND KISSES ARE SENT YOUR WAY.
This is Camble's nana signing off for now and I hope that everyone has a very blessid New Year with lots of new and wonderful things to be Thankful for. Camie Heiser-heisercamie@yahoo.com


Monday, December 19, 2005 2:15 PM CST

Happy Holidays!!!

Well the Chistmas season is in full swing aound our house. Camble is counting down the days until Santa comes. I keep telling her that if she is a really good giirl that santa will bring her lots of presents.

I have soe new pics to put on the page but unforuatly nana has the cd so I can not put them on the page right now.

Camble is still battling pneumonia and a bad old so hopefully she kicks it by this weekend.
I will keep you all updated and be looking for new pics

Love
Jaci


Wednesday, December 7, 2005 4:29 PM CST

HELLO TO ALL,
WELL SORRY IT TOOK ME SO LONG TO UPDATE CAMBLE'S PAGE BUT THINGS HAVE BEEN A LITTLE CRAZY THE PAST COUPLE OF DAYS.

WE WERE AT ST JUDE LAST WEEK ON WEDNESDAY EVENING-SATURDAY MORNING. EVERYTING CHECKED OUT GOOD BUT DR SANDLUND WAS A LITTLE CONCERNED THAT HER WBC ARE CONSISTANTLY OVER THE HIGH END FOR HER PROTOCOL. THE RANGE IT CALLS FOR IS 2.5-3.5 AND HERS IS USUALLY OVER 3.6 AND UP. HE DID SAY NOTHING TO WORRY ABOUT BUT HE DREW A 6-MP LEVEL AND WANTED TO SEE HER BACK IN 4 WEEK WHICH WAS CHANGED TO 5 DUE TO THE HOLIDAYS. HER EYE EXAM WENT WELL AND EVERYTHING STAYED THE SAME.
PHYSICAL THERAPY WENT WELL, SHE HAS HER NEW BRACES AND THEY WERE REALLY IMPRESSED WITH THE WAY THEY FIT AND HOW SHE HAS HANDLED THEM. WAY TO GO CAMLBE.
WE SPENT THE NIGHT WITH ONE OF OUR FAVORITE NURSES AND HER FAMILY ON FRIDAY NIGHT WHICH WAS GREAT AND WE ALSO GOT TO SEE SOME OF OUR GREAT FRIENDS FROM NEW JERSEY. ROSE AND HER DAUGHTER MARISA SMITH. WAS NANA EVER GLAD TO SEE THEM. THEY HAVE BECOME SOME OF OUR FAVORITE FRIENDS AMONG OTHERS.
NANA CAME WITH US SO SHE HAD A GREAT TIME VISITING WITH THEM. ON THURSDAY NIGHT WE WENT TO DINNER WITH THEM WHILE MOMMY VISITED WITH ANOTHER ST JUDE FAMILY. JODI AND KALEIGH MCDONALD. THEY LIVE IN THE MEMPHIS AREA. MOMMY HAD A GREAT TIME ALSO.
CAMBLE HAS FOUND A NEW LOVE TO TEA PARTIES. SHE HAD A HAY DAY AT THE GRIZZLIE HOUSE POURING TEA FOR NANA AND ROSE. WHAT A HOOT TO SEE HER HAVING SOOOO MUCH FUN. SHE IS GROWING TO FAST FOR ME.LOL
ON OUR DRIVE HOME IT WENT REALLY WELL.WE STOPPED IN ST LOUIS AT THE CRACKER BARREL TO EAT. YUM YUM WAS IT GOOD.
ON SUNDAY MORNING CAMBLE DEVELOPED A LOW GRADE TEMP THAT WOULD NOT GO AWAY. WE GAVE HER DIMETAP AND STILL ON TUESDAY SHE HAD A LOW GRADE TEMP. DUE TO THE WEATHER (WHICH WAS YUCKY) WE HAD HER FAMILY DR AT HOME SEE HER AND SH ORDERED A CHEST X-RAY AND GUESS WHAT SHE HAS PNEUMONIA. SO DUE TO THE WEATHER SHE WAS ADMITTED TO OUR LOCAL HOSPITAL FOR ANTIBIOTICS AND NEBULIZER TREATMENTS. DOES THAT ALBUTEROL KEEP HER BOUNCING OFF THE WALLS. NO NAP TODAY.
OTHER THEN THAT SHE IS REALLY READY FOR CHRISTMAS. WHEN ASKED WHAT SHE WANTS SANTA TO BRING HER SHE REPLIES" 2 DUMBO TOYS" NOT SURE WHERE THIS CAME FROM. HER OTHER NEW THING IS CINDERELLA OR IN HER WORDS" CINDA-BRELLA".SHE LOVES THE 2 MICE JACK AND GUS-GUS. SO I GUESS IT MIGHT BE MOVE OVER DORA AND BOOTS HERE COMES CINDERELLA.
NOT REALLY SHE STILL REALLY LOVES DORA AND HER BEST FRIEND BOOTS. WELL THIS IS A LITTLE LENGTHY SO I WILL SIGN OFF FOR NOW. STOP BCK AND VISIT AGAIN. PLEASE PRAY FOR ALL MY ST JUDE FRIENDS AND FAMILIES. SEE YOU SOON. LOVE TO ALL
FOR CAMBLE.
CAMIE CAMBLE'S NANA


Tuesday, November 29, 2005 12:44 AM CST

WOW- It is really starting to get cold around here. There is no snow yet, but I am sure it is coming.

Tomorrow afternoon Camble, Nana, and I are heading off to Memphis. This should really be an uneventful trip. Thursday she has PT and the etye docotr. Nana is also going to donate platelets. We all know how much the hospital could use them.

It is hard to imaging that in 13 1/2 more weeks Camble will be done with treatment. I am so excited and scared all at the same time. We will see when the time comes.

Well I am off for now I have some packing to do. I will update you all after we get back from Memphis. Wish us luck!

Jaci


Monday, November 21, 2005 2:32 PM CST

Update Sunday 1:30 pm

Yesterday afternoon we lost a near and dear friend. At about 1:30 in the afternoon Miss Pamela Hensley earned her golden wings. Please keep her family in your prayers as they are going through a rough time right now.
www.caringbridge.org/tn/pamelahensley
I will update with more when I know
Jaci

Hello everyone, hope you all are enjoying this brisk fall season.

Camble is loving playying in the leaves. Everday when we go outside she has to play for atleast 5 minutes before I can get her into the car.

Everything is going pretty well. Next week we return to Memphis. It is hard to imagine that in just 14 1.2 more weeks we will be done. I will potentially have what one would call a "normal child". but what is normal? is normal not being on chemo? not having a line? with that aside I will still always worry about the what if's in the back of my mind. So what ever our normal might be, we will get there eventually.

Camble is getting very excited about christmas. She tells me everyday what she wants from Santa. I just tell her to wait and see.

I wuold like to ask all of you to send out some special prayers. Our friend Pamela is not doing very well. She was sent home a few weeks ago, the doctors had run out of options. Please pray for her and her family as they go through this enduring time.

Hope your Holiday Season is starting to kck off!

Jaci and Camble


Wednesday, November 9, 2005 4:01 PM CST

Hello everyone.

Well a ehctic day it has been but I am finally finding some time to update Cambles page.

Camble is doing well. She got fitted for her new braces last friday so we are hoping they will be in by this friday so that she can start wearing them again. Health wise she is doing phenomenal!

She has a new found love for Cinderella. I don't know how many times a day we watch either Cinderella or Cinderella 2. She is infatuated with the princesses.

Not a whole lot else has been going on. School is going well for me. Needless to say I am the only person in my english class getting an A, so I feel pretty proud.

Well off I go. There will be new pics soon!
Love Jaci and Camble


Wednesday, November 9, 2005 4:01 PM CST

Hello everyone.

Well a ehctic day it has been but I am finally finding some time to update Cambles page.

Camble is doing well. She got fitted for her new braces last friday so we are hoping they will be in by this friday so that she can start wearing them again. Health wise she is doing phenomenal!

She has a new found love for Cinderella. I don't know how many times a day we watch either Cinderella or Cinderella 2. She is infatuated with the princesses.

Not a whole lot else has been going on. School is going well for me. Needless to say I am the only person in my english class getting an A, so I feel pretty proud.

Well off I go. There will be new pics soon!
Love Jaci and Camble


Wednesday, November 2, 2005 12:19 AM CST

Hello everyone, Hope you all had a Happy Halloween. We sure did. Camble sure got alot of candy. That is one thing we definitly do not need at our house.

Clinic went well on friday. Not many kids showed up in their costumes, but Camble did. She sure got the use out of her Raggedy Ann cotume.

This week Camble gets fitted for her new braces. Hopefully all goes well. There is not a whole lot else to report. I will let you all know what is going on after we go to clinic this week.
Love Jaci


Tuesday, October 25, 2005 2:28 PM CDT

Happy Halloween! Well a little early but we have already started tick or treating.

Camble is doing well. She has gotten sick the last two mornings, but other than that she is good. She got her new glasses the other night. She sure looks cute in them. or as Mar tells her she looks "sexy".

We went trick or treating last night at the college. She was Raggedy Ann. Everyone commented on how cute her costume was/is. I was Raggedy Any when I was her age. So it will be fun to compare the pictures.

Well I am off for now. Hope you all enjoy the new pics!
Love
Jaci


Monday, October 17, 2005 6:55 PM CDT

Hello everyone! Sorry it has been so long since I updated you all. Hope I didn't leave you hangin for too long.

I was sick all last week with migraines so I was not able to update Cambles page. I am still not feeling a whole lot better but it will pass I am sure.

Camble and I ventured to Memphis last week. As we have suspected Camble needs glasses. We went on Saturday and picked them out. She has a stigmatism. One dr said for herage it is pretty bad and even with glasses her eyes will probably get worse. O well, we can deal with glasses. I told my mom she can be my little dork! lol

While we were in Memphis we has sometime to catch up with Tara, Chad, and Abby Clare. It was nice visiting with them we sure do miss deeing them all the time. Maybe they will get the hint and venture up to see us.

Everything else in Memphis went well. We are down to 20 weeks! YEAH!!!! I will let you all know we will be having one big ole party when she is done! I will be one proud and happy mama!

Today Camble and I went and got flowers for my mom. She has been having some bad days so we wanted to cheer her up. We got her 2 dozen yellow roses( nana they are michael michaels favorite!) and we ties to keys around the vase to let her know she holds the keys to our hearts. Although I did not get the reaction I hoped for I know she greatly appreciated it!

Well my head is killing me and I have to go get Camble. I am hoping to put new pics up tomorrow!

Love Jaci


Monday, October 17, 2005 6:55 PM CDT

Hello everyone! Sorry it has been so long since I updated you all. Hope I didn't leave you hangin for too long.

I was sick all last week with migraines so I was not able to update Cambles page. I am still not feeling a whole lot better but it will pass I am sure.

Camble and I ventured to Memphis last week. As we have suspected Camble needs glasses. We went on Saturday and picked them out. She has a stigmatism. One dr said for herage it is pretty bad and even with glasses her eyes will probably get worse. O well, we can deal with glasses. I told my mom she can be my little dork! lol

While we were in Memphis we has sometime to catch up with Tara, Chad, and Abby Clare. It was nice visiting with them we sure do miss deeing them all the time. Maybe they will get the hint and venture up to see us.

Everything else in Memphis went well. We are down to 20 weeks! YEAH!!!! I will let you all know we will be having one big ole party when she is done! I will be one proud and happy mama!

Today Camble and I went and got flowers for my mom. She has been having some bad days so we wanted to cheer her up. We got her 2 dozen yellow roses( nana they are michael michaels favorite!) and we ties to keys around the vase to let her know she holds the keys to our hearts. Although I did not get the reaction I hoped for I know she greatly appreciated it!

Well my head is killing me and I have to go get Camble. I am hoping to put new pics up tomorrow!

Love Jaci


Friday, September 30, 2005 3:52 PM CDT

HELLO ALL!!! TGIF!!!

Hope all finds you well. Camble is doing wonderful. She is soooo full of energy she has definately been keeping all of us on our toes.

Not a whole lot to report. Camble went to clinic on Wed. All was well there.

Today Camble went with me to get my hair done. She just cracks me up, alond with all the poeple in the saloon she was cracking up! She never ceises to amaze me.

I am on my way momentarily to meet my dad at our apartment. We finally have a dryer!!! YEAH!!!
That will be really nice!

Well the princess is in a wedding tomorrow. Her and two other 2 year olds are the flower girls. Hopefully all goes well and is not to disastorous. I will kepp you posted and put some new pics up after the weekend!

Gotta Go

Love Jaci


Friday, September 23, 2005 3:37 PM CDT

Hello-

Well where do I begin, it has been an eventful week.

Sunday we moved most of the rest of mine and Cambles stuff to our apartment. We got a washing machine from a friend. Which is nice, but I have to hang dry everythig for now. O well.

Yesterday Camble adn I made a trip to the emergency room. She had a rash that was somewhat unexplainable. Since she had a fever last week I wanted to rul out the chicken pox. Well it is not the chicken pox. It is viral exantham(sp?) The docot seems to think that the rash occured since her chemo amount got raised last week when she was in Memphis. The big jump in doses more than likely caused it.

Mom came over last night to help me go through Cambles clothes from last winter. Although she still weras the same size for the most part nithing fits because she is just to tall. So she has very limited clothing supply right now but we will make it.

Camble had clinic today all was well besides the rash. Tonight she is bonding with Papa while my mom and I go to a party. So she ought to have lots of fun. I am sure she won't get spoiled at all!!!

Well I must go for now!
Love Jaci


Tuesday, September 20, 2005 10:09 AM CDT

Hello everyone! Hope all is well.

Camble and I are doing just great.

Thursday Camble left for Memphis with Nana. Everythig went well. He chemo got raised because she gained weight. So she has been a little irritable but other than that she is her normal outgoing lil self.

There has not been a whole lot going on to report about. I have been keeping busy with school. FUN FUN! I have my first test on monday. wish me luck!

Well I will go for now but I promise there will be new pics later this week!
Love Jaci


Thursday, September 15, 2005 1:59 PM CDT

Hello everyone, once again I nhave neglected my updating duties. Believe me I have heard about.
This last week we have had several things going on. In my last update I believe my friend Shannon had told you that our friend Marc was not doing real well. Well on Monday at 120 pm he earned his wings after a very exhaustng battle. We know he is in a better place now and is not in any pain anymore.

Camble was sick on tuesday. She rana fever off and on all day. It seemed to subside itself though as yesterday morning she was back to her onry noraml self.

Camble, Nana, and Kimmie left this morning for Memphis. They will be home on Saturday. So hopefully all goes well. I am praying for you baby doll.

I will keep you all posted on what we find out. And one more thing please continue to keep Marcs family in your prayers as this time is very difficult for them.

Thanks and God Bless
Jaci


Thursday, September 8, 2005 11:11 AM CDT

ATTENTION!!!
I have information on Macrc Weirs Services.
His visitation is
Wednesday Evening from 5-7pm atGrant Funeral Home in Bradford, IL
The Funeral is Thursday morning at 10am.
In Lieu of flowers the family has asked taht donations be sent in memory of Marc to
St Jude Childrens Research Hospital
332 Lauderdale
Memphis, TN, 38105
---------------------------------------

Good afternoon, everyone! Jaci is out of town at the moment, so she asked me to update Camble's page for her.

Things have been pretty busy for the girls lately. Camble is doing well & becoming more like mommy every day! Stubborn, cocky, sweet & loving! And, of course, you all know how much the princess likes to show off her vast array of clothing! LOL! She could probably give J-Lo a run for her money!

Jaci has been doing the school thing & from the sounds of it, things are going well on that front. Now, if Jaci would just quit trying to pick up the young guys & focus on class, she might just accomplish something! LOL....love ya, Jaci! :)

The big news is that the girl's have their own apartment! (I'm sure Jim & Cami are partying it up at home right now!) But, seriously, they are settled in & sound very happy. Here's their address:

Jaci Heiser & Camble Kirkhove
1716 E. Fifth Street
Apt. B
Kewanee IL 61443

On a sad note, our friend, Little Mark, who has been fighting neuroblastoma for over a year now, is going to be joining the Lord soon. Unfortunately, the doctors cannot do anything more for him, other than try to ease his pain. Please keep the Weir family in your prayers. This breaks all of our hearts & makes us feel so helpless. Cancer sucks! Heather, Mark, Hayley, Cody & Little Mark, we love you & pray for you all!

Well, that should do for now! Please drop the girls a note & let them know you were here! (And, be sure to tell Jaci what a wonderful job I did! LOL)

Hugs & Blessings to all of you~
Shanon, mom of Collin, fellow St. Jude patient from Florida
http://www.caringbridge.org/fl/collinburke

PS ~ Be sure to say Happy Birthday to Jaci! She's getting to be an old lady according to her! Friday is her 24th birthday! Have a great day, girlfriend! Love ya!

PSS ~ If you haven't heard about it yet, check out http://www.createapepper.com, Chili's website. On September 26th, 100f their profits for the day will go to St. Jude Children's Research Hospital! Please, tell everyone you know & head out for lunch &/or dinner to support all of our St. Jude family!





Wednesday, August 24, 2005 3:29 PM CDT

Oh my gosh, how the time has flown. Things around here have been bery very busy, and the time seems to have gotten away from me.

So much has went on since my last update. Camble and I(along with Nana and Papa) participated in a Relay for Life walk. Camble wsa not in the "walking mood", so it was more like mommy walked and carried Camble. The first lap of the evening was for survivors and the 2nd lap was for survivors and the families. We had a good time that night. We visited with a fellow St Jude family. Tyler Hulslander is a fellow St Jude patient from Kewanee. He is suppose to be donw with treatment in Sept. but it seems that unfortunately he has relapsed. There is not a certain plan as of yet but please be sure to keep his family in your prayers.

On the 18th Camble and I made a trip to Memphis. What a long 24 hours it turned out to be. We left the airport at 445pm on thursday and returned to the airport by 410 on friday. Lets just say we had a long day. We seen Martha and Dr. Sandlund. The general consensus is Camble is doing wonderful! and that March 10th can no come soon enough. It will be a great day to remember Leukemia as in the past. Although we will never forget about it we will look forward with courage and pride.

Monday marked a new milestone in my life. I am now once again a college student. Since things have settled down around here there is a little bit of time for me. So on with life I am going. Lord only knows how long before I will be done, but one day it will all be worth it.

One last thing before I go. Yesterday Camble and I went to speak to some college freshman at the University of Illinois about St Jude and Up `til Dawn. Up `til Dawn is a charity organization made up of college students that raise money for St Jude. So of couse Miss Things showed off for everyone.

Well there is a brief overview of the last two weeks. I will put some new pics up! Hope you all enjoy.
Love Jaci


Friday, August 12, 2005 11:18 AM CDT

Good Morning everyone....This update may be a little ong winded who knows. I have not updated in a while.

As most of you know I went on vacation or 10-11 days. All by myself without Camble. I went to South Carolina to visit some of our extended family. I stayed with another St Jude family. It was very nice to get away. Although I missed Camble and my friends were a little upset that I did not bring he. But I think the break was just what I needed. We did not do a whole lot, alot of lounging around. Very relaxing. Camble seemed to stay busy the whole time I was gone. Between multiple shopping trips with her aunts and spending time with daddy nana and papa, her time was pretty mich consumed. So not much time to miss mommy. I sure was happy to see her when I got home.

We went to clinic yesterday. Everything went well. Last week she was neutropenic but her counts were back up this week. and next week we are heading back to Memphis. It will be a very quick trip. We leave thursday afternoon and we are home friday afternoon. It ought to be a long 24 hours.

Tonight we are gong to the Relay for Life walk. Camble will walk the first lap as a survivor. Although she is not done yet she will be soon enough. She should be the youngest survivor there.

Then tomorrow we have a family reunion to go to. FUN FUN! It will be at my great aunts house. It will be nice to seem some relatives that we don;t get to see that often. Since everyone is always wonering how Camble is then they actually get a chance to see her.

Well I hve to go. Camble is calling. I will let you know how our weekend goes
Love Jaci


Friday, July 29, 2005 3:07 PM CDT

Hello hello!
Hope all is well with everyone. Everything is good here. We have had a good week actually.
Camble is continuing to amaze me daily with her intelligence. She is always learning something new. She can almost spell her name now and she can recognize her name when she sees it. She also knows several nursery rhymes. She just is amazing.
We went to clinic today. Everything is well. She got sick in the morning. But then she was good to go. We had an intersting afternoon.
When your child looses all of their hair you are sad at first. Then you just can not wait for it to grow back. Well obcviously everyone around here does not like the way her hair grew back because there have been growing concerns about getting her hair cut. Well against my better judgement I went and got her bangs cut this afternoon. Withing seconds my little girl was gone! She now looks so much older atleast a year. Its hard to believe with just a teeny tiny lil bit of hair gone she looks so much different. Her face also looks very chubby now. I will take a pic so you all can see.

Other than that we are not up to much. I leave on Sunday morning for vacation. I sure think I am going to miss my Camble for 11 days but I will try to enjoy my time away. As I am sure she will be busy with everyone else.

Well I will go for now. I have some packing to do. I will be back soon.
Love Jaci


Wednesday, July 20, 2005 12:16 AM CDT

Hello everyone. Hope all is well with everybody.
Camble is doing well. Onry but well. We have not had to much going on. Just spending mommy daughter time together.
We were suppose to go back to St Jude next week but we were informed that we are not going back until August 19th. So we are getting quite a break. Which is nice.
I am leaving August 1st to go see my friend Jessica in South Carolina. I am very happy and excited. I am also a little bit scared and nervous. This will be the first time I have ever been away from Camble for that long. I hope to make the most of it though. Some much needed R&R for mommy.
Camble wants me to tell everyone "hi" She is watching me type and trying to hit the keys.
Well I am off for now it is time for lunch!
Love Jaci

PS......Aunt Mar hope you like the new pics!!!


Monday, July 11, 2005 11:04 AM CDT

Good Morning everyone! We hope you all had a wonderful weekend. Ours went well. We got home from Memphis on Saturday night. Quite ridiculous actually. Our flight from Memphis to Moline took 65 minutes. It then took 55 minutes to get our luggage off of the plane. What a mess.

I just got the results of Cambles MRI. Her hips and pelvis were fine. She had "TINY" spots of ANV on her knees but not to worry the dr. says. He says he has never seen the MRI say tiny before so she should be fine. Thak goodness.
Well I will go for now, I still have to unpack. I have been a bit lazy
Love Jaci


Sunday, July 10, 2005 11:51 PM CDT

Hello everyone...well this is just a wuick journal. We made it home from Memphis and tomorrow we should find out about Cambles MRI. I will update you later with all thedetails.
Love Jaci
ps once again I have posted new pics


Tuesday, July 5, 2005 1:17 AM CDT

Hello everyone!
What a long but wonderful day it has been. I can not believe my little girl is already 2!!! The time sure has flown bye. We had a party this afternoon and it was wonderful for Cambel to be home with her friends and family this year for her birthday. The weather could have been nicer, but hey we managed.

Camble sure made out like some kind of bandit today. Eveyone knows she loves Dora so we now have alot more Dora toys and accessories at out house then we already did.
We had a pinata for the kids. Camble knew what it was but most of the other kids did not. So when the candy dropped she was all over it like stink on you know what...haha. Shorty after she opened her presents she took a nap then tonight we went to see the fireworks. Although I thought she may cry she didn't. I was shocked. This is the frist year she got to see them. Last year she was in Memphis and she got put in the hospital right before the fireworks started.

So all went well and I am glad to say the day is over. It was very long. Actually the whole weekend was. We spent alot of time with my aunts this weekend. God love em they are the lifeline of our family. This was Cambles first birthday with out Grandma Joyce but I know she was here with us! Watching that baby get better, just the way she knew she would. and Mar dont worry I don't think she would have yelled at you to bad the other night for teaching us :the phrase". She knows how much you love us and want us to be happy. Well the other night you made Jenna Jami and I so happy for just being you! You will never know hom much you mean to us. ( Sorry I know you are probably crying by now!)

Well I will go for now but I hope you all enjoy the new pics of Camble!
Love Jaci


Saturday, June 25, 2005 9:09 AM CDT

Hi everyone. Hope you all had a fun filled week. For the most part ours was not.

Earlier in the week Camble got a bad cold. Which has happened to get better. Well thursday we had to go to Memphis. It was just a bad day. Camble got sick in her car seat on our way to the airport, then she got diahrrea in her cleann ouftit which made me have to go but a new outfit so she had clean clothes. Then to make things even worse our airplane had no air conditioning. I was not a happy camper if you can only imagine. By the time we landed in Memphis thursday night I had a full blown sinus migraine and was feeling sick. So a friend of mine came and got Camble and I and took us to Wal-greens. Thank GOD!

Onto Camble....She is doing well. She got her braces yesterday. She does not like them to much yet, but she will get use to them. We had to get new tennis shoes for her yesterday because the braces will not fit in her shoes. But other then that she is happy and healthy for the most part.

I can not believe that a week from Monday she will be 2!! Wow hot the time flies. It seems like just yesterday I found out I was having her and now shes almost 2!! We have alot todo this week to get ready for her birthday so we can make it extra special. Since last year we were in Memphis for her birthday!

Well I am going to get going. My bed is yelling my name! Talk with you all soon!
Love Jaci


Monday, June 13, 2005 8:46 AM CDT

Hello everyone....Hope you all had a great weekend.

We made it home from Memphis safe and sound on Saturday afternoon. Things were pretty eventful while we were there. There was alot that went on in such a little bit of time.

We got in Wed. afternoon. Well we were getting off the elevator at the Grizzly house when we seen another family from Kewanee that we know very well. Julie and Aaron Andris were there also. They flew in. For those of you who don't know who that is here is a brief summary.....Julie was my moms best friend growing up and was there for my parents when Michael was sick. She has 3 children Autumn, Eric, and Aaron. Aaron is named after Michael his name is actually Aaron Michael. Well on my 19th b-day Aaron was diagnosed with Burketts Lymphoma.(I think thats what he had) So Julie then found herself in the same place as my parents. So then now Camble is a patient! Does it ever end. Well Aaron, Julie, Camble my mom and I went out to eat with some really GREAT nurses from the hospital then we went back to the Grizzly house.

Thursday morning Camble had PT and the eye dr. PT decided that it is time to try braces on Cambles legs. So her and I will go back in two weeks to get them. She has already been fitted for them. The eye dr said just to come back again in a few months. To check again then. Then Thurs afternoon mom and I both gave platelets. It is some what of a long process but well worth it. If you give platelets at St Jude the will put you on the national bone marrow registry for free. The usual fee is waved.

Friday Camble had procedures first thing in the morning. I am not very happy with the way things went. The NP who did the procedures could not get any fluid from the spinal and she proceeded in poking her 6 TIMES!!! plus she had a BMA. So her little back was very sore. The NP lied to us a little about the procedure so thats what makes me even madder. Nana ended up taking Camble to the medicine room around 9 pm to get codeine for her because she coulkd hardly move. Everything is better now though.

So we go back in two weeks for braces, then two weeks after that for an MRI. Her dr wants to rule out AVN. Then 3 weeks after that. We are going to be busy. Not to mention the lil princess has a birthday coming up really quick. It is so hard to believe she will be 2 already. WOW where does the time go.

Well I will go for now. I am going to lay back down because I thinI have a touch of the flu and I am not feeling real great. Talk with you soon!
Love Jaci

P.S. I just finished reading a book that I highly suggest to everyone. It is called My Sisters Keeper. Well worth your time and money!!! Just thought I would let you know!


Tuesday, June 7, 2005 10:53 AM CDT

Hello everyone. Sorry it has been a while. Things have been overly hectic around here. As most of you all know we were in the hospital all last week. I will go into all of that detail in a minute. First and formost I would like to all say that another little St Jude friend earned her wings yesterday. She was a beautiful 4 year old girl who had neuroblastoma. The sad part was she was cancer free. She had developed pneumonia and just got not get any better. I will never foget the day we met her. Her and Camble were just waking up from procedures and she asked if Camble got the milky stuff too! Sbhe then told me how she has chemo curls! Well just a few weeks ago her mother told me how much Camble rememinded her of Emma Grace. With thise bright blue eyes and all those chemo curls! She said that she will be just as lound and onry as Emma Grace. Emma Grace was one little girl who touched many poeples hearts. If you get a mniute please go to her web page and send your condolenses to her parents and family. Her page is www.caringbridge.org/ar/emmagrace

Onto Miss Camble. We spent all of last week in the hospital. She had fevers all week but we were never able to find out what was causing them. Late thursday night early friday morning she had what I thought was a seizure. Although the doctors disagreed. She has an eeg Friday morning and all it showed was short brain waves while sleeping. She was discharged Sat. morning. I was not happy with that decesion bt hey what can I do. She is still not quite herself. She is extremely tired most of the time and crabby! She is also having a difficult time walking. We are not sure as of right now what is going on but we leave for Memphis tomorrow morning so hopefully we can find some answers.

We have also had a friend in town from Texas for the past week. Unfortunately we did not get to spend as much time with her as we would have liked! We sure miss Quinn not being here all the time. Camble is with her Aunt Jami right now taking Quinn back to the airport. Well I will go for now! I hope you all enjoy the pics!
Love Jaci


Sunday, May 29, 2005 11:28 AM CDT

*** Thursday, June 2, 2005 2:30pm***
Well Hello everyone. Camble is starting to do a little bit better. Her counts dropped dramatically and we still do not know the cause. She was suppose to get out of the hospital today but she had a fever last night. She has not had one at all today. If she does not get one we will be able to get out of the hospital tomorrow morning. I will keep you all posted!
Love
Jaci


***May 30, 2005 10:30PM*** (Update posted by Shanon, family friend.)

Camble was admitted to the hospital yesterday evening for fever that didn't go away with tylenol. Cultures have been drawn twice, so far there is no growth. Her ANC Friday was 900 & was still 900 last night, but they expect that to be going down since her white count has already started to drop. She has no obvious signs of an infection or virus. Right now, it's a waiting game to see if cultures grow or she starts to show signs of a virus. Jaci or I will update again when we know more.

Also, little Mark is in the room next to Jaci & Camble. He was admitted with a line infection on Saturday & had the line removed early yesterday morning. He is scheduled to have a new line placed within the next week after they are sure the infection has cleared.

Please keep both children in your thoughts & prayers for speedy recoveries!
Shanon
_______________________

Hello everyone! Wow what a busy week it has been. So much to do with so little time.
Wednesday was the big vent in Chicago. The 4 Stars of Chicago to support St Jude. What a wonderful event it was and how blessed my family felt to know that we could help out St jude for all they have done for us. It was kinda nice to feel rich for a night! I was asked to give a speech and I was a little bit nervous. I have never spoke in front of that many people before. Needless to say I think I did alright. My mom brought Camble up on the stage while I spoke so that everyone could see her. I will type my sppech on here. I wish I has a clip to the video that was showed to everyone. I do have a VHS copy of it so I will try to find a way to possibly get a link to post to the page.
Here is my speech.

"Hello everyone, my name is Jaci Heiser not only am I am the mother of a St Jude patient but the sister of a former St Jude patient. I want to thank St Jude for giving my famliy the oppurtunity to be her tonight and I want to thank each and everyone of you for coming to support such a great cause.
First of all I want to tell you how my family became affiliated with St Jude.
My parents Jim and Camie first encountere St Jude almost 24 years ago with my older brother Michael. I was due to arrive at any time when my paretns were told the worst news any parent could ever here. "Your child has cancer". He had what is called Neuroblastoma. As hard as the news was their only mission was to make sure that he got the best possible treatment. St Jude was the place to make that happen. My parents then traveled 500 miles to Memphis , TN. The news the doctors gave my parents was not promising but they were willing to give anythign a try. Michael Recieved 6 months of intensive chemo and went into remission. Unfortunately he was not in remission long when his cancer came back. Michael lost his brave fight with cancer on Easter Sunday April 3, 1983. Although it was a sad ending to such a short innocent life, my parents never once doubted that he recieved the best possible car and treatment.
Our family has always beena big supporter of St Jude for waht they did for my brother and their continued research that is done.
Unfortunately as hard as it is to believe my daughter Camble(their grand-daughter) was diagnosed with ALL on March 9, 2004. Not oncce in a lifetime but twice did my parents have to hear that a child has cancer. WOW, what can I say but total devestation and disbelief. Not Me, Not Us, Not Again.
Before the dr. could even suggest a place to go, we were already telling him we wanted to go to St Jude. As hard as it was to hear theose words again we knew we were going to the right place and the best place in the world. You may ask yourself if it did not work the first time then why got there the second time. Well St Jude just happens to be the leading hospital for childhood cancer and other catastropic deiseases. So why not go to the best of the best. Once we arrived in Memphisthe ammount of caring and compassion was overwhelming. I never once questioned anything. The doctor explained everything that we were going to go through, what to expect, and what would be expected of us. They gave us every oppurtunity to ask questions and to take as much time as we needed before we we made any decesions. Our only decesion was to start treatment as soon as possible.
Camble was 8 months old when she started chemo. She has gone through 3 rounds of inteisive chemo, many spinal taps, bone marrow aspirations, and blood transfusions. Camble was declared in Remission on April 21, 2004. She is now in maintnence chemo and will finish treatment in March of 2006.
Without all of the contributions ans support of St Jude Camble might not be here with us today. So for all of the children of St Jude and their famliies thank you. Thank you very much from the bottom of our hearts."


So that was my speech. I did cry while giving it, but I tried to keep my composure. I am not sure of the exact figure but I am sure they raised a good amount of money for St Jdue the other night.
Unfortunately we did not get any pictures. But St Jude took some so when I get them I will post them on her page.

As of right nowwe ar ok. Camble ha had a fever all morning so we are wathing her right now. Hopefully she does not have to get admitted.
I will go for now.
Love Jaci


Sunday, May 22, 2005 10:41 PM CDT

Hello everyone! Sorry it has been so long since I have updated. Its not that I have not had time it is just that I have been really lazy. There has been so much going on.

Last weekend Camble and I went to Chicago to see my friend Karen. She graduated from college so we went up for her party. We took Camble to a Childrens Museum on Saturday. She had a blast. There was so much to do although she was still a little to young for some things.

This week we really didnt do much. I have been painting the house. So I have been pretty busy, and of course Camble wants to help, which is not good. So needless to say I had to paint and try to keep her occupied at the same time. That was FUN!!!

Yesterday was my Aunts Birthday! I won't discuss her age for fear of her killing me! But I hope she had a very happy birthday. My sister Jami and I went out with her and my other aunt to celebrate.

Not much today. Camble played outside for a while. The weather has been beautiful so its nice to be outside.

Onto her medical update. Her counts are slowly going back down. Which is good. Since they were still a little high. Her rash is not better at all. We go back to the dermatologist on June 1st so hopefully it will get better of they can give us another course of treatment.

This Wed is our big trip to Chicago. The 4 Stars event for St Jude. Camble got a "Princess" dress to wear. My mom says she should be the "Bell of the Ball" and I said I am sure she will be.

I will put some new pics on the page later this week after we get home!

Talk with you soon
Love Jaci


Wednesday, May 11, 2005 3:32 PM CDT

Hello Hello- Once again as many of you have reminded me it has been a while since my last update. I don't quite remember what the last update entailedd but I wil let you all know what has been going on in our lives.

Friday we went to clinic. Cambles counts were a bit high but she had been off chemo for a week. The rash that she has all over her body had not gotten any better so once again I raised some concerns. Well once again I was told not to worry about it. But you know me I worry about everything. After we left the clinic we went to my parents friends lake house for the night. I went fishing while Camble stayed in the house with nana. Needless to say we all went to bed a lil early that night.
Saturday Camble and nana went shopping while I stayed down at the lake to go fishing. Camble then went to her daddies house for the night so I got a night off. I went out with some friends and had alot of fun.

Sunday morning started out as some type of fiasco at our house but soon things calmed down. I went and picked Camble up and my whole family went out to eat for Mothers Day. Camble (via nana) got me a charm for my link braclet that says "Happy Mothers Day" ans she also got me a beaded braclet that says mom. She even managed with a little bit of help to sign the card all by herself.
Her and I went on a walk in the afternoon and then sunday evening we helping my parents plant flowers.

We went to tumbling Monday night. And boy does Camble ever bring new meaning to the word "BAD". SHe was very onry and did not pay attention at all. We ended up leaving early. So I was not very happy.

O yeah- I also forgot Camble has started sleeping in a big girl bed. Well a makeshift one. I took one of the rails off of her bed. She has done extremely well in it until last night. But since I am home most of the time I have been watching supernanney. So laast night I tried one of her techniques. It worked after two and a half hours. We will have to continue to work on that.

Today we went to clinic and to a dermatologist. Her counts are continug to go down a little. Which is good becasue they were a little high. Then on to the dermatologist. He said she has DYSHIDROSIS and ASTEATOTIC ECZEMA. I had to buy some stuff to treat it and get a Rx. So hopefully it helps. We have to go back in two weeks.
This weekend Camble and I will be going to Naperville. A suberb of Chicago for those of you who don't know. My friend graduated from college and she is having her party on Sunday so we are going up Friday to spend the weekend with her.

So thats about it. I will update you all after our weekend away!
Love
Jaci


Tuesday, May 3, 2005 4:41 PM CDT

Hello- once again sorry for not updating sooner. So many thigns have been going on around here. Keeping us all on our toes.
Not a whole lot to report for Camble. She is still battling with this rash that no one seems to know what it is. Something viral is the general concensus. Her cold is not getting any better, but not any worse either. So hopefully things start gettign a little better around here.

Thats about it but we do have a few prayer requests.

A little boy we know from Philly just got some discouraging news. He may have relapsed but they do not know for sure yet. Please keep his family in your prayers. He has a web page it is
www.caringbridge.org/pa/frankie.

Also a good family friend is suffering from some heart problems. I do not know all the paticulars but I believe she is going to have to have a pacemaker put it. I will keep you all updated.
Thanks for all your support.
Jaci


Thursday, April 28, 2005 8:43 AM CDT

Ok, so I am finally getting around to updating Cambles page. I is not that I haven't had time, I have just been very forgetful.
Everything went well in Memphis. We are still debating on wheter or not we are going to get glasses. We have another check up in a few months. The dentist said her teeth looked good. The only downside to our trip was we found out she was neutropenic. So she is suppose to be wearing a mask but we all know that is not going to happen.
Friday night while we were there we went over to a friends house for a birthday party! HAPPY BIRTHDAY TARA!!!
We also got to see Drew, Jodi, and Kayleigh. It was so nice to see some friends that we have not seen in a while. Kayleigh is getting sooooo big. That is a pic of her and Camble on the top. What a cutie!!!

Camble ahs been getting a cold for the last few days and last night she did not sleep all night!! So needless to say we are all abit tired this morning. We are going to clinic today so we will check to see what her counts are. Hopefully they are back up but I am not betting on it.

Well I am going to get a few things done before we head out.
But please say a prayer for my mom. She goes to the neurologist today to find out about her neck. Hopefully everything goes well.
Love Jaci


Sunday, April 17, 2005 4:32 PM CDT

Hi all! Wow how this past week has flown by. We have so much to do before we go to Memphis. Well not really. Just some packing, which could take forever since the little princess always has to have cute little outfits to show off while we are there.

We went to clinic on friday. Everything went well. He counts we pack down into a more normal range so I was happy about that. Nana was with us and we went to a park to play for a while. Camble had a blast. A girl we nkow is taking a photo journalism class and she photographed Camble for it at the park. So as soon as I get some of the pics I will post them.

Not much else the rest of the weekend. I had a weekend off. haha Camble went out of town with nana and papa friday night. Then saturday night she stayed with her dad. So needless to say yes I had fun, but I missed her alot.

The PRAY 4 CAMBLE braclets have came in. The are $5 is anyone want one. Let me know. We have already sold about 75 so hopefully they sell quick and we may order more. WHO KNOWS!!!

Not to much else to report. Camble and I will be heading off to MEmphis on wed. A friend of mine is going with us. So we ought to try to have a good time.

I will go for now. I promise I will put some more new pics soon.

Love Jaci


Monday, April 11, 2005 2:36 PM CDT

Hello everyone! Wow how fast the weekend went by. Things don't ever seem to slow down a bit around here.

We went to clinic on Thursday. Cambles counts seem to be going through the roof!!! So we are watching them for now. The dr. does not want to do anything until we go back to Memphis next week. So hopefully all is good.

Camble has been feeling great. We went to my Aunt Marilyns house Friday night and stayed the night. We had a blast. It was nice to get some time away and spend it with the people we love. Aunt Mar spoils her rotten! She went and got her a new doll before she came home on Satudray. We all had agood laugh. The doll laughs hysterically. So we all did too. I slept in on Saturday so Mar got up with Camble. Well as those two sat at the kitchen table Camble drank 2 whole cups of coffee. So needless to say she did not take a nap for nana all day on saturday. O the joys of having hyper active little children!

Camble went home saturday but I stayed with my aunt and my two adopted aunts for the night!! We had a wonderful afternoon. We played cards and then went out for the night.

Yesterday Camble wanted to blow bubbles. So nana went to Wal-Mart to buy some. We blew bubble for quite a while outside. Then we watched Dora. Can't goa day without it ya know. Then last night it was bak to not wanting to go to bed. She finally layed down aout 10:30 and was up by 8 this morning.

She is just waking up from her nap so I better get going. We have to do a few thing before tumbling tonight.
Talk to you soon
Love Jaci


Friday, April 8, 2005 10:27 AM CDT

Hello everyone! Happy friday morning. Not a whole lot to report this week. It has been beautiful outside so Camble has taken advantage of the situation and played outside constantly. She looks like a battered child she has so many bruises from falling outside. But I am so glad it has been nice so she could get out. Its no fun to be cooped up all the time.

We went to clinic yesterday. Overall she is great. Once again her WBC is getting high again. So we have to just watch it for two more weeks until we go to Memphis and figure out a plan from there. I will keep you all posted.

Well no to much else. We are busy trying to get an overnight bag together to go to my aunts house. So we hope you all have a great weekend!!
Love Jaci and Camble


Monday, April 4, 2005 9:09 AM CDT

Hello everyone!
First off let me apologize for it being a few days since my last enrty. There was some personal stuff this weekend taht I will explain later in the update.

Hope you all had a wonderful weekend.
I know we did. The weather was beautiful so we got to enjoy some nice time outside. Yesterday Camble and I went with some friends for the afternoon. Man did she play. We went to the park with my friend Robin and her two sons then we went back to Robin's and let the kids play outside all day. I have never seen her more dirty in my life, but she had a blast.

As we speak she has just left with my dad to go see a train that is being worked on right outside of town and this afternoon if it is nice I might take her to the park again. I am assuming it will be, it is suppose to be about 75!!!

We go to clinic again on Friday. Hopefully all goes well. Her counts were ok last week. Her ANC was somewhat low so I am hoping it is back up. We leave in two and a half weeks for Memphis so please pray that she continues to stay healthy.

As to this weekend and why it was personal. Some of you know why and many of you don't. Yesterday, April 23, 22 years ago my rother passed away. WOW how the time passes. I don't actually remember him because I was only one and a half but I know I was the center of his world!
I was talking witha friend yesterday and was telling her when my mom told him he was going to go to heaven her asked her well who is going to take care of my baby sister Jaci? What 4 year old thinks like that? HE DID!
My families story started out in 1981 at St. Judes and here were are still today. But this time I know we are going to beat it. I think my brother is up there really watching over his precious little niece to make sure she gets better.

Aunt Mar: I want to tell you how much I love and appreciate everything you do for me and Camble, and for you entire family. You are truly an amazing person. The glue that hlds us all together. I know how hard it probably was for you to lay there and hold Michael as he took his final breath. To stand tall and have so much courange, you are an inspiration to me and CAmble! Thanks again for everything! I love you!!!!!

Well I must go for now, cleaning to be done! Like always!haha
I will be back a little later in the week to let you know any new news and I will put some new pics on here this week!
Love
Jaci


Tuesday, March 29, 2005 11:36 PM CST

Hello everyone! Hope you all had a wonderful Easter. I know we did. Camble does not seem to want to lose the spirit. We are still hiding "eggies" several times a day.
The bunny sure was nice to her. She got several movies, some Dora toys, and lots of candy.:Which I may add , she will never eat!)

Camble is doing much better now. Her fever went away Saturday morning, just in time to have a fun filled day. First thing we went ot the Fire Department where my cousin had an Easter egg hunt for Camble and his son Caden. Then we went to another cousins house and colored eggs with her cousin Lily. So all and all we ahd a great day.
Easter morning went well. We got up early and went to church. Very early I may add. Church was at 7am and for those of you who know me that is a rare occasion that I am up that early. But there was so much to be thankful for.
After church we came home for a while then went to my grandpas house where Camble had a good time playing with her cousins. She was still not much into eating so I did not really force the issue.

We went to clinic today. Her counts were good so they told us to start her chemo back up. So she will be getting her 6-MP as soon as I am done journaling.

I wanted to let you all know of a new song I heard that just really melts my heart. It is called "I See Me" by Travis Tritt. If you have not heard it I suggest you do. A friend of mine played it for me and I cried my eyes out. I then had one of those long deep conversations with them and asked them....
"Do you ever take for granted everything you have in your life?"
Response-"What do you mean?"
"Do you ever think of what you would do if tomorrwo you woke up and were told your child was sick or they were just gone?"
Response"Well then I guess I take everything for granted, that won't ever happen to me!"
OK so thats where I got angry. No one person knows what their life holds. No one knows if they will even wake up tomorrow. So plese, not for me, but for those you love. Tell them how much you love them. Tell them everyday! Because like the drop of a hat everything can change.

Well I am off to give some chemo! Thanks for checking in on us! Don't forget to sign her guestbook!
Love
Jaci for Camble


Thursday, March 24, 2005 11:20 PM CST

Hello everyone! Just here for a quick update. Well that is my intention but it could change.

Last night Camble was not feeling exactly "hot". She was acting like she was going to throw up. Well we went to clinic this morning only to find out that her ANC is 200. Yeah 200!! So we are not real excited avout that. After we left clinic we were on our way home when she started excessively vomiting. So right back we went. They told me jsut to "watch her". Wel we got ome and she took a nap then when she woke up she had a fever. I was some what alarmed but did nothing. I have come to he conclusion why waste my time with Peoria becaseu they will not do anything anyways. So I "watched" her all night. Her fever got up to 100.6 axillary. Which makes it 101.6 I put ehr to bed in hopes it will jsut go away. I know many of you are now thinking take her to the hospital, but it is a one hour drive and I know they will send us right back home. They have done it on several occasions. I will keep you all updated on what goes on with this situation though.

Her father and I went shopping today to finsih off all of her Easter shopping. I can't tell you what she got yet though. You will have to wait and see just like her! haha

This weekend will be somewhat bittersweet, as to me it always is. Camble will have her 1st Easter Egg hunt. Last year she ws too little and sick to participate. So I am very excited. This weekend although not the same date, is the "weekend" my brother passed away. He passed away Easter weekend of `83. This will also be my first Easter without my grandma. I kow they say time heals all pain but mine is not healing quickly enough. I think of her often and know she is watching over me and guiding me but I still miss her. As I sit here typing this the tears are puoing down my face. (Her goes my soap box) My grandma was one of the greatest women you could have ever met. I do not think she had a mean bone in her body.(although I think her children may argue that point! lol) She had enough love and compassion to go around for everyone. I look back and say to myself all of those "what if's" that you are not suppose to say. Waht is I would have told her I loved her more often, what if I could have been there more,I guess they are more of I wishes though. I wish she could have seen Camble beat this monster. I know in my heart she is seeing it but not the way I wanted her too. I wish we cold have spent more time with her. But I know what time we did spend with her we made the most of it!

Grandma-I love you and I miss you! PLease watch over Camble and make sure she gets better! Also please tell Michael we love and miss him also! Tell him we think of him everyday and we want Camble to be a great as he would have been!

Ok the tears won't stop coming so I am going to go for now! Happy Easter!
looking for love and support from above-
Love Jaci & Camble


Tuesday, March 22, 2005 10:32 AM CST

Good morning everyone. Hope you al had a great weekend. There was alot going on around here I know. Camble is continueing to keep my on my toes constantly. I have her coralled right now watching the Lion King so that I could do some updates on her page. She is bursting full of energy which is always a good thing. (Well I guess it is! :-) )
We have been invited to go be part of an early bird drawing on Thursday morning for the Peoria St Jude Dream Home. I don't think we ever have a spare moment anymore, we are constantly workig with ALSAC on some kind of project. Cambles big night in Chicago is quickly approaching and we could not be more excited. It is May 25. It is somewhat of an expensive event, but if anyone is interested in tickets please e mail me and let me know.
We are in the works of getting some of the rubber band bracelets made for Camble. We are going to donate all of the proceeds. So if anyone is interested just let me know. I am trying to get a tally on how many to order, so I don't oreder to many or not enough.
Thank you everyone for your continued support. We sure appreciate all of your prayers.
Our friend Marc is doing well overall right now. HE cameout of his surgery with the entire tumor removed. I talked with his mom this morning and they were getting ready to meet witha new doctor. They will do cranial radiation for the few spots left in his brain and will start chemo all over again. This family has been through alot, and I am very sad to see them have to start over. Please keep them in your prayers as they need them right now.
LEt me kow about the bracelets. We are going to order some of the youth size too.
Thanks
Love Jaci


Saturday, March 19, 2005 11:58 AM CST

Good morning everyone. Hope you have all had a good week. Ours has went well overall. Camble is sure showing me how much fun tunring 2 is going to be around this house. She is so rambuntios(sp) all the time. I don't know wehre this child gets all the energy from. I guess there is times when I realize why I am lucky to be a young mom! I have a little more energy i think.
Thursday morning we went to tumbling. I have not quite decided if Camble just gets bored and jdoes not have a large enough attention span or if she is just plain onry. But lets just say tumbling as always was an event. She did do well doing front rolls and jumping on the trampoline though. and they always play ring around the rosie whuch is her favorite part. Good thing that is at the beginning of class.
We had clinic yesterday. Things went well there. Cambles counts are finally coming down but her ANC dropped dramatically in a week. It went from 3400 to 500. So we are borderline neutropenic. O yeah! So with all the viruses going around around here I really have to watch her. But we can do that no problem.
Well thats about it. Today we are going to go watch the ILLINI game this afternoon. Hopefully they win. Although there is no doubt in my mind.
Also...we need some prayers for a friend of ours. Cambles friend Mark has neuroblastoma. He had a stem cell transplant in January and has been in remission since then. They had scans this week to find out how everything was going and found a tumor in his brain that was bleeding. He had emergency brain surgery this morning. The surgeons got the entire tumor, but told his parents if they had not done scans this week he would have dies. As of last night he had only about 48 hours left. I am so glad that the tumor was removed but now they once again have a tough road ahead of them. They will meet with his doctor on monday and determine the next step. But the scans also show spots on his liver, which take him right off of a BMT list. Please pray for this family. The could use all the support you have to give.
Leaning on him for answers.
Jaci


Monday, March 14, 2005 10:38 AM CST

Hello everyone. Hope you al had a great weekend. We sure did. My auny bought the Dumbo movie for Camble so Saturdy night her and I sat around and watched it. It was nice to sit around and be lazy.
Yesterday we went out to my cousins house so that Cambel and McKenna could play. THey had not seen each other ina while. They had a lot of fun. Camble just loves getting to play with other kids. We did not do to much other that that, so I really don't have much to report at this time.
We wil be back soon with something more exciting to share
Love JAci


Friday, March 11, 2005 3:29 PM CST

Hello everyone. Hope you have all had a good week. Ours has went pretty well overall. Camble had clinic this morning. All went well. I tried convining the dr to give her a port so that she could sim this summer but that is not going to happen I do not believe. Today was another big day though. Our whole last week has been full of them.
Last friday was her last spinal
The 9th was 1 year since she was diagnosed
The 10th was her 1 year since her first day of chemo
And today was her last i.v. chemo treatment.
So we have had alot going on.
Well we got home today to discover somthing very nice. A family we have never even met before sent Camble a care package in the mail. It was so sweet. I guess you find new friends all the time and I am glad that some one took the extra time to do something for her.
Well I am off for now I am going to nap while she is, we have had quie a day. Talk with you soon
Love in Christ
Jaci


Wednesday, March 9, 2005 7:30 PM CST

March 9! A day I don't think I will ever forget. I year ago today was when I found out that my precious little girl had leukemia. I just remember the words ringing through my head like a gun being fired. All of those thougths raced through my mind.
"This can't be real, Not my famliy again, I don't want to lose my daughter."
At that point in time I really did not know what to expect of what to do I knew was that I wanted to go to St. Judes.
I remember being scared and confused and did not even know which way to look other then up to God. Well let me tell you he has been the answer to all of our prayers.
I never imagained I would be where I am today and with out my friends and famliy with all of their love and support I don't think I would be. I am very blessed to have such wonderful people in mine and Cambles life.
I want to leave ona positive note for now. So just please remeber to keep Camble in your thoughts and prayers. We love you all.
Love Jaci


Saturday, March 5, 2005 9:10 AM CST

Hello everyone, Greeting from Memphis. Well we are all packed and ready to go. Nana and Papa left a little bit ago to drive home. Everything went well.
We got in Thursday night and went straight to the hospital to get Cambles labs drawn. I called back a while later to check on them and not to my suprise but her white count is still slowly climbing up.
Yesterday morning we met with Dr. Sandlund first thing. He agreed that we should raise Cambels methotrexate again. Hopefully this resolves the problem, if not the will raise her 6-MP next. They will wait until we are back in April to make that decision. Camble had a Spinal Tap after we met with the doctor alond with IT treatment. Well I don;t really know what the deal is but she has been getting very sick everytime she gets sedated anymore. So as we went over to the new St. Jude Gift Shop she christened the floor, several times. After that she took a small nap and was back to her old self in no time at all.
The rest of the afternoon was pretty uneventful. Nana and Papa had to be interviewed by ALSAC for somethings they are using Camble and Michael for. We did find out that they are not only using Camble for the Four Stars event in Chicago, but for the Dream Home advertising as well. The said that the footage they got of her was awesome. They will be sending me a cpoy oif it as soon as it is finished.
We went out to eat last night with a friend of ours that works at the hospital. We had a nice time getting out for a while. I think that is about it. I will go for now we have a few people to go say good bye to before we go home.
Thanks for all of your support.
Love Jaci and Camble


Wednesday, March 2, 2005 10:19 AM CST

Greetings Everyone! We hope you all had a wonderful weekend. We have been pretty busy around here. Lots of errands to run.
Yesterday was a busy day. camble had PT in the morning and they said she is doing extremely well. We may get to stop going in a few weeks. Yesterday was also my sister Jennas 21st birthday. So we had a small party for her last night. It was alot of fun for her to be surrounded by her friends and extended family.
We go back to Memphis tomorrow. Camble will have procedures and IV chemo on friday. So hopefully all goes well. I am sure it will.
Well onto the little miss herself. Camble has always done thinds extrodinarily fast for her age. With the exception of rolling over and walking.(She was a little slow with those two) But she advanced for her age in many aspects. She got her first tooth at 3 1/2 months and by age 11 months she had her first 16 baby teeth. Well two days ago as she was trying to bite me! :-) We found out that she now has to of her second molars. I don;t even think you are suppose to get those until your like 5? Unbelieveable. We are setting her up an appt. to see the Dentist when we are in Memphis to get her teeth cleaned and make sure everything is ok. Camble is also speaking alot. Normal children her age should have a vocabulary of about 20-30 words. Hers consists of about 50. She is sooo funny because she knows the difference between words with the same name...I.E.
She knows that NO-means no
But she knows that I dont know has a different meaning.
She also knows that Poop and CACA are the same thing
But she calls my friend Jessica CaCa.
Good thing she doesnt cll her poop!
SHe continues to amaze me with her strenght and for her thirst for knowledge. I feel so blessed that she is doing well and maturing on her own.
Well I am off for now, I will update you all after we get to Memphis.
Thanks and God Bless,
Jaci


Sunday, February 27, 2005 7:18 PM CST

Hello everyone, I bet you were all wondering if I was ever going to update this page again. Well we were busy. Vacation was fun. It was some much needed r&r. Let me tell you there is never a dull moment in our lives.
It all started the day we were supppose to leave. Our plane was 45 minutes late leaving. So we were not thrilled about that. Camble handled everything well though. We watched Dora the entire plane ride. I could pretty much recite each DVD by heart.
Well most of the week was uneventful. We went and stayed with another St Jude family for 2 days. It was so nice to see them. We had not seen them since we went home in August. Thanks Shanon, Collin, and Jay. You guys are great. We love you and we miss you bunches.
Everything was fine and dandy until Thursday. Camble got some spots on her so we had to rush her to an emergency room to rule out the chicken pox. Good news though, not the chicken pox. Thank you GOD!!!
We got home safe and sound on Saturday. We now have some much needed r&r to catch up on now from all that traveling. Well thats it for tonight. I will update tomorrow after we go to clinic.
Talk to you again soon.
Love Jaci
PS....I will post some new pics of Camble on vacation in the photo album


Wednesday, February 16, 2005 2:55 PM CST

Hello everyone. We hope you had a great Valentines day. We sure did. Not much new to report. Camble is doing great! Growing more and more each day. Her vocabulary is really expanding. I would say she says at least 30 words on a regular basis. We are getting already for vacation. We go to Florida first thing Saturday morning. So we wil hopefully get some much neede r&r. We are going to see my parents friends and go fishing. So is ought to be relaxing.
Not much else for now. I will have something more exciting soon. I promise.
Love to all
Jaci


Monday, February 14, 2005 9:41 AM CST

Happy Valentine's Day Everyone! Hope you all had a great weekend. I know we did. Yesterday morning was wonderful. We got to church early so that we could get Camble all settled in. Since we had to sit in the front row. Most of my family was there. At the beinning of the service the pastor does a childrens message. Well Camble toddled her way up there in her hugh poofy dress and sat next to another little girl that is about the same age as her. She then stole the little girls cereal. It was too funny. Because the pastors message to the kids was about sharing and so I guess the other little girl knew how to do that.
After the sermon was Cambles baptism. My sisters are her godmothers and she does not have a godfather. Well she was getting a little tired and wanted Nana. So as we sttod in fron of the congregation she was whining "NANA.....NANA" When the pastor put the water on her head she kept saying...."mom-mom water, mom-mom water" It was priceless. I had a feeling coe over me that I have never felt in my whole life. My friend says taht is the same feeling I will have when she gets married one day. I was sooooo proud.
The service went well. When it was time for communion they sang several songs. One of the songs was How great thou art. For thsoe of you who don't know. My grandma passed away in November. We sang that song at her funeral. So it was very touching. I cried, it was soo hard to not have her there with us yesterday. Well I know she was there in spirit though. She could not wiat until I got Camble baptised and I am soo glad we finally did.
The rest of the day was not much. We went out to eat after church and then my mom, sisters and Camble went shopping with my aunt and my cousins. So I got some much needed R&R.
Well I have pictures to put on her page but I have not gotten them uploaded onto the computer yet. As soon as I do I will let you all know.
Love Jaci


Saturday, February 12, 2005 9:40 AM CST

Helo everyone. Sorry it has been a few days since my last update. Things have been some what hectic around here. With everyone sick and all. Well we had clinic yesterday. Everything went well. Cambles coutns are finally starting to stay as low as they are suppose to. Thank you GOD!! We also seen the ENT for a 1 yr post surgery check up and all was well there also.
Mom and I went to talk on a St Jude radio thon yesterday. It was alot of fun. I was very nervous so I made mom go first. But it was not as bad as I thought it would be. During the hour that mom and I talked they raised $18,000. So we were very happy taht we could help out.
Tomorrow is Cambles big day. Cant wait. Hopefully she behaves in church, beings we have to sit in the front row.
Thats about it though. For those of you who don't kow our "BAD DAY" is coming up. March 9th will eb one year ago thac CAmble was diagnosed. Hopefully this one goes much better for us. I know it will.
Well I hope you all have a great weekend. And I will talk to you all soon.
Love Jaci

PS.....There is a link on the bottom for Cambles new Quilt of Love. Hope you all enjoy.


Wednesday, February 9, 2005 10:54 PM CST

Hello everyone!! Well by now you have all noticed I have updated Cambles page with new pics. We hope you all enjoy them. WE have been dabating if these are better then her birthday pics or not? Its a toss up.
Well not too much to report. Camble and I went with some friends last night to see Dora LIVE! It was a good time, Camble really enjoyed it. It was nice to get out for a while. That was until our way home when it started snowing.
O yeah also Camble is starting a tumbling class. She goes tomorrow to try it out and see how she likes it. If all goes well I am signing her up. It will get us both out of the house.
We have been some what busy getting ready for some upcoming events. Cambles baptism is Sunday, only 4 more days! And we leave on vacation a week from this saturday. Watch out Florida, here we come.
Well be sure to check out the phot album too. There are more new pics there! Hope to hear from you soon!
Love Jaci


Sunday, February 6, 2005 10:06 PM CST

Well hello everyone. Lets just say that the countdown has begun. Camble will be getting baptized next Sunday, Feb. 13. I can not wait. Only 7 more days. She is soo funny. You ask her...."Do you want to be in God's family?" and she says..."UH-HUH!!" Toooo CUTE. This day has been a long time coming and I am so glas we are finally getting it done.
Other than that not much. Our whole house is getting sick. Aunt Jenna, Aunt Jami, Nana, and Ryan are alerady sick and I think Camble and I are following quickly. So not so fun. She was very irritable today and I think that is why.
Well sorry this is sooo brief. I promise I will have a good update soon.
Loving the Lord and my baby girl,
Jaci


Sunday, February 6, 2005 10:06 PM CST

Well hello everyone. Lets just say that the countdown has begun. Camble will be getting baptized next Sunday, Feb. 13. I can not wait. Only 7 more days. She is soo funny. You ask her...."Do you want to be in God's family?" and she says..."UH-HUH!!" Toooo CUTE. This day has been a long time coming and I am so glas we are finally getting it done.
Other than that not much. Our whole house is getting sick. Aunt Jenna, Aunt Jami, Nana, and Ryan are alerady sick and I think Camble and I are following quickly. So not so fun. She was very irritable today and I think that is why.
Well sorry this is sooo brief. I promise I will have a good update soon.
Loving the Lord and my baby girl,
Jaci


Saturday, February 5, 2005 10:35 PM CST

Well hello. What a day it has been around here. Camble had decided that she wanted to beat her self today I think. LOL. The morning was uneventful but this afternoon it was something. Camble and nana went to wal-mart and when they got back Camble decided she did not want out of the truck. As she tried to jump away from nana she fell and got a black on(her right eye). So that was the first beating. Then tonight as she was wound for sound and bouncing off the walls she thought it would be fun to jump onto her rocking horse....(note: it is not a small rocking horse) Well she did and crack there went the second black eye. So now she looks so pretty all bruised up. I am sure poeple are going to be wondering what is going on?
We got her baptism dress about ready. We tried it on her tonight. She looks just like a little princess.
TOOOO CUTE!!!! I will have to get her pictures taken in it.
Well that all for now!
Loving my baby girl,
Jaci


Thursday, February 3, 2005 12:48 AM CST

Hello-
Well once again it has been a few days since my last update. I have been being a little lazy lately. Not much to report. She is just being a some what normal 19 moth old child. She is always into something and keeping me on my toes. She has started to learn quite a bit. for instance- She can say some of her abc's. As follows....
"A,B,C,D,E,G.She forgets a little but she does pretty well.
So other than that not much new is going on.
We leave for vacation in 3 weeks. We can't wait. We are going to Florida arond Orlando. Alothough we are not going to Disney World, we are going to Downtown Disney to buy some stuff I am sure.
Well not much else for now. I will update more soon, with something more exciting!
Love Jaci


Sunday, January 30, 2005 10:22 PM CST

So I bet everyone was wondering if I was ever going to update this page again. Well I was getting there. We have had a busy few days. Thursday afternoon Camble and I flew to Memphis. Let me tell you what........We had to wait at the airport for almost 2 hours before someone picked us up so I was not a happy camper about that one. When we got to the Grizzly House we were there long enough to put our bags in the room and then we had to go to the medicine room to have labs drawn.
While we waited for Cambles labs to come back we visited with some friends that we have not seen in a while. Little Jazmine is doing well. She is getting medicine twice a day right now for a viral infection she developed from her transplant but all in all she is great. Her page is www.caringbridge.org/il/jazmine
Well we finally got Cambles labs back and the first thing on my mind was, Well I wonder what they are going to aise her chemo too? Finally we headed off to bed around 11pm. Late night for the little princess and her mom-mom.
Friday morning was one of them days you just really don't want to get out of bed. We were both absolutely exhausted. We hit the snooze button several timeas before we actually got up. I have to get Camble ready for her fun filled day at the hospital with the camera crew.
For those fo you who do not know. There is an event in Chicago every spring to raise money and awareness for St. Judes. Well Camble and my brother(also for those of you who don't know , he passed away in 1983 fromneuroblastoma) are the featured patients this year. So for our past few visits we have had some company where ever we go. As always she was the Belle of the Ball. She sure knows how to turn some heads at such a young age.
The morning flew by. We met with Dr. Sandlund. He is so wonderful. I have more respect for him, than I think Icould ever have for any other dr. He just has that thing about him that shows you he truly cares.
Camble and Dr Sandlund ha d a hayday with stickers. They were every where. all over her, his shirt, his tie, you name is and it had a sticker. She was being somewhat stingy and would not open her mouth for him to look. So she then took the light thing and looked for herself. What a hoot.
After our morning we headed right back to the airport to come home. We were only gone