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Saturday, April 23, 2011 4:53 PM CDT
We are missing you this Easter season as we do every day. It does help to know that you are healed and celebrating the resurrection of Jesus in heaven with so many.
Love you always,
Mom
Thursday, March 10, 2011 6:00 AM CST
There is so much I want to tell you. I miss you so much. Wish you were here,
Mom
Wednesday, December 29, 2010 10:04 PM CST
You know, so much happens here and life just keeps marching on. Our lives are full to say the least with activities- School, work, dance, an Eagle Project, and college searches… With so much going on it becomes easy to shove away the quiet time that so badly hurts sometimes. Then there are quiet nights like tonight when I am forced to revisit some of that sadness. The times that I wish for Tyler to be with us are immeasurable, and many times the grief catches me off guard and blindsides me. It still stuns me when those moments come, that the grief is as painful as it was right after his death. Somehow I manage to work through it, pick myself up, and get busy living life again. Over this passed year I think we have learned that we can be happy, have fun, and live with our joy and our grief hand in hand. I hope that Tyler is proud of how we are honoring his life and remembering him. Man do I miss him.
I am so thankful for Kirk and Sara and am so proud of them. Kirk has worked very hard these passed few months to complete his Eagle Project and keep good grades at school, all the while looking at colleges and trying to decide where he would like to go. Hopefully we will know for sure in the next month or so. Sara has learned how to manage high school honors classes, dance 10 hours a week, and take part in a school service club. I am so glad that she loves high school!
Todd has done a very good job of staying busy as he went from active duty to a traditional reservist these passed few months. Things are always changing in the military though, so back to active duty he has gone. He will be working with the 62nd Airlift Squadron (Little Rock AR) for the next four months in Iraq. It has been a long while since he has been deployed, but it’s kind of like riding a bike- you never really forget how to do it. We will be missing him, but we have plenty of things to get done over the next months that will help the time go by quickly.
We will always be grateful for so many of our family and friends that continue to support us with their friendship and their prayers. Wishing you all a happy, safe, and healthy new year!
Connie
Sunday, September 12, 2010 6:36 AM CDT Today Tyler will be honored on CURE Childhood Cancer's website. CURE features one child a day in September during their September fundraising initiative "Kids Conquering Cancer One Day At A Time". Please visit the site Monday, August 2, 2010 5:28 PM CDT So, just a few minutes ago I was reading a friend's blog about how having four children can be so chaotic and harried. She quoted the author of The Middle Place, and it was quite entertaining. She talked about how people don't expect you to volunteer for every little thing and are just impressed if you have both shoes on etc... Funny stuff. I laughed and started to type my reply, "Hey what's wrong with me then?? I have three children and I can't seem to keep up!" And that catch in my throat appeared, and my heart sank into the pit of my stomach. I only have to keep up with two children now. Still, I have three children... Only those that have lost one can really understand. Thursday, July 29, 2010 11:13 AM CDT Wow, has it been a long time since we have updated Tyler's site. This summer has provided us with a little of everything- down time, camps, exersizing, vacation, happy time and sad time. It has been short though; we are getting ready for school to start next week. With August approaching memories come, some okay, many sad and hard to get out of my head. The anticipation of marking the day Tyler died is terrible. We stay pretty busy and that is a help, but visions of Tyler's suffering still flood my mind and it can be quite hard. We miss him, a lot. Our lives are full, but how much more could be added to them if Tyler had survived. I wonder what he would be doing, what school he would be at or what kind of job he would have. I wonder if he would have one of those cool running prostheses. He wanted so badly to run and compete again. He was so competitive... wonder where he got that? ha Monday, March 22, 2010 7:04 AM CDT I wonder how Tyler would have spent his day yesterday... He would be thrilled that the Buckeyes advanced to the next round and probably would have picked them to be the overall winner! That's my boy! It seems that every year he won a decent amount of money in the March Madness pools!
Monday, February 22, 2010 7:02 PM CST Please pray for the King family. Wednesday, February 10, 2010 8:30 AM CST Today we will spend a quiet day at home together to mark Tyler's 21st birthday. Our visit to the cemetery will include a stop at Burger King for a frozen coke, a bouquet of sunflowers, and some sunflower seeds around his marker. It is always an emotional time visiting the cemetery, but also very peaceful since there is such a beautiful view from the mountain top. Life continues to march on as we try to live as Tyler did, one day at a time and as fully as we can. Enjoy a toast to living and to Tyler's life today to celebrate a great kid who loved God, his family, and his friends. Friday, January 15, 2010 8:29 AM CST Not a good day- missing him a lot. Friday, December 25, 2009 9:26 AM CST Merry Christmas to all! We miss Tyler so much this morning, but we know that he is rejoicing with the angels on this wonderful day to celebrate the birth of Jesus and his gift of salvation to the world.
Tuesday, December 8, 2009 10:25 AM CST Well it’s been a long, long time since we have updated Tyler’s site. Seriously, I think about doing it everyday, I just never seem to be able to collect my thoughts about how we are doing and what’s happening around here.
Thursday, October 1, 2009 3:35 PM CDT THE FOLLOWING ARTICLE WAS WRITTEN BY TODD FOR AMERICAN LEGION POST 134, ATLANTA, GEORGIA.
Thursday, September 3, 2009 12:20 AM CDT Dear friends,
Tuesday, August 25, 2009 8:19 AM CDT The past few weeks have been quite busy for us here in Hotlanta. I had surgery (gallbladder removed) on the 5th and spent the next week recovering at home. All the while, we made sure that Kirk and Sara were prepared for the first week of school and continuously thought of Tyler and what our journey was like this time last year. We weren't able to make it to the cemetery on the 7th because I was still feeling sick, but we did make it up there in the evening over that weekend. I absolutely love it up there even though I really hate the reason that I go there. So many of the memories of last year frequently run through my head both good and bad. I let them come, try to process them and move on. It is the only way that I know Tyler would want me to live the one life that I have. The anniversary of Tyler's death was certainly a sad time, but we made it through and are now fully into the school and after school activities. I am sad that school has to start so early here, but I am glad to have some things to occupy my thoughts and time.
Friday, July 31, 2009 7:17 PM CDT Friday August 1, 2008
Sunday, July 26, 2009 8:22 PM CDT Hello there people of the planet Earth! Tuesday, July 7, 2009 8:08 AM CDT Remembering my wonderful, sweet, funny, ornery boy today- 11 months since we kissed his face and hugged him. Saturday, June 27, 2009 7:51 PM CDT Well, things are definitely not slowing down around here! Todd and Kirk are off to Missouri on a canoe trip for a few days, Sara will be off to FCA leadership camp in St. Simons Island on Monday, and I will head to Florida for a few days with a friend! I really do wish that Tyler was here to go with me and hang at the resort for a few days! We have been to Star Island a few times as a family and I have great memories of ALL of us being together there. Anyway, prayers for safe travels for all of us would be appreciated.
Sunday, June 7, 2009 9:37 PM CDT It's been a long month, and I can't believe that it's already June. We are plugging away here at home with plenty of activities as usual. Todd has been away in England and France for the past few weeks working on the D-Day reenactments/remembrances/festivities. I haven't talked to him since he arrived in France but I am sure that he worked hard and has had a wonderful time. He is definitely in his element! Sara is now off to church camp for the week. Absolutely no worries about homesickness this year! She could not wait to get there and see who was there. And, happily she is in the exact same cabin as last year! That is good because it is air conditioned! Kirk is staying busy with friends hanging out, playing games, and going to six flags/Whitewater as much as possible. He will be taking it slow for a few days though since he is having his wisdom teeth taken out on Wednesday. I am doing the usual, driving kids places and all the usual mom stuff. It does seem that there is so much that I want to get done, but I am not having much luck motivating myself to do those things...hmmm...
Wednesday, May 13, 2009 8:45 AM CDT So many things.... so much suffering that I see right now. Missing Tyler for nine whole months, getting through Mother's day without one of my children here beside me, my best friend's sister with AML won't make it through the week. I HATE that she is having panic and pain... I hate that our new friends the Tracys are now mourning the loss of their son Matthew. Our little friend Ryan is having to travel to VT to try to get a grip on his pain, while his mother is at home fighting her own battle. My friend Michelle was just mugged and scared to death in broad daylight here in Atlanta. AND our friend's son Justin suffered a head injury Sunday evening and is in NICU downtown. Please, pray for these folks and their families. Ask God to surround them with his care and comfort them, strengthen them, and give them the peace that passes all understanding. Monday, April 27, 2009 12:30 AM CDT Happy Spring to everyone! Tuesday, April 14, 2009 8:44 AM CDT Hi everyone, Wednesday, April 1, 2009 4:14 PM CDT Just a quick note to ask for prayers for safe travel over the next week. Kirk will be leaving tomorrow to travel to Italy and Greece for 8 days with a group of students and teachers. Todd, Sara, and I will be spending our spring break in Florida volunteering at the Lighthouse Family Retreat! We are all excited to be going on these wonderful trips! We'll update when we return.
Wednesday, March 25, 2009 12:50 AM CDT Grief Monday, February 16, 2009 7:53 AM CST I see that it has been a month since I last updated- I come here everyday to see Tyler's picture and think that I will write something; words just don't really come to my mind well as to what to write. This last week was a big week for all of us as we crossed the 6 month milestone since Tyler left us. Of course I dreaded the day coming, but as usual, the anticipation was worse that going through it. We always find that life keeps us busy so that the days don't drag on forever. Friday, January 16, 2009 9:42 AM CST So, I never did update about our Christmas season and how we managed. Suffice it to say that we were a bit sad, but we made the most of it and tried to enjoy the day and weeks off with Kirk and Sara. We were in Siesta Key for a week with my mom and dad, and my sister's family. The weather was perfect every day and we all had a good time.
Wednesday, January 7, 2009 12:09 AM CST Hi everyone, Wednesday, December 24, 2008 10:55 PM CST Merry Christmas everyone- Wednesday, December 10, 2008 8:03 AM CST Hi everyone! Tuesday, December 2, 2008 11:11 AM CST This morning has been a bit tough on me. Todd got the Christmas tree out and set it up for me to 'fix'. I really should have waited for Kirk and Sara to help, but they are both very busy with school and activities that they probably wouldn't have been much help anyway. They like to get out all of the ornaments and see all of the ornaments that we buy for them each year. (We buy a family ornament and each of the kids a special ornament every year and they tend to match their interests of that year.) We have lots of them that have pictures of the kids on them. And since Tyler was the oldest we have more for him. It's funny how most of his yearly ornaments are ones with pictures of him. It was hard to get them out and look at each of them knowing that this would be all we will ever have of him with his picture on them. I also took on the task of filling the pockets on our Christmas calender with Kirk and Sara's favorite candies. Only two in each pocket this year- not any peppermint patties for Tyler. Frankly I can't wait for Christmas to be over with right now. I've already gotten out some of the other decorations but we have certainly scaled back on those this year, so we wouldn't have so much work to do after Christmas. We decided that we will go to Florida right after Christmas for a few days to visit with my sister and her family and Mom and Dad. I am praying that those days will be sunny and warm so that we will have a nice break from this cold weather.
Saturday, November 22, 2008 1:57 PM CST I've been having lots of Tyler moments this past week. Today we are watching the Buckeyes tromp on Michigan and really wishing that Tyler were here to root the Buckeyes on with us. I know that he is happy though and has the best seat in the house. We will be going to visit family in Ohio for Thanksgiving- we can't wait to see everyone and be together for a few days. (I can't wait to see my great nephew Luke!) We haven't seen him for a year now.
Thursday, November 13, 2008 9:11 AM CST I check in on Tyler's website a few times a day and each day I see that I haven't updated since the end of October. sigh... So much happens every day that I just can't wrap my head around trying to put all of my feelings into words. Anyway, I don't think that there are any words in our language that can accurately convey the feeling of loss, emptiness, and grief that we have. I can be fine one second and the next second, the trigger of a song, a smell, a picture, or a phrase, can bring me to my knees in grief. Of course, they can bring a smile and even hearty laughter too. But it's the sadness that cuts like a dagger through my soul. This week hasn't been too bad; last week was a different story. Mom and dad were in town for a few days over the Halloween weekend, and we had a good time together. We ate, visited, shopped a little, and made pumpkin rolls (22 to be exact- but that's small potatoes compared to the past few years!) I don't think that I have the energy to make and sell 100 this year! We attended church on All Saint's Day- that was a hard one. I am faced with Tyler's absence every second of the day, but I am usually alone when my grief spills over. It was a very painful time to sit and hear Tyler's name called out on the list of those who passed on this year, but I needed to go and hear it. I felt the need to be there to honor his life. Mom and dad visited the cemetery together. Todd and I were there this past Monday morning. Thanks to all who have offered to go with me, but I just need to be able to do that on my own. I can provide directions if anyone would like them, or you find it on the internet by looking for The Georgia National Cemetery. Monday, October 27, 2008 10:38 AM CDT I have come here several times with the intention of writing something- anything... The days go on and on, always something to do and something to get done. While we look like a 'normal' family getting on with life, it is far from that. We chug along because we don't really have a choice. (Well, if my kids heard me say that they would beg to differ, because I am always telling them they at the very least have a choice about how they react to what happens.) We've been making lemonade with the lemons that we've been given for a long long time. Frankly, I'm sick of lemonade and I'm sick of making it. But I am so thankful for a few friends for continuing to help me by adding the sugar to my lemonade- Waverly and my 'mensa' gals, and Diane, my far away friend, who continues without fail to send me thoughtful notes every week. Monday, October 13, 2008 5:13 AM CDT Yesterday there was a story in the Marietta Daily Journal about our local middle school and their Four Quarters for Research fundraiser in honor of our friend Alexa and in memory of Tyler. I have posted the two website addresses above. They are the first web addresses below Tyler's picture. I am so proud of the kids at LMMS for raising over $3,600 for Rally Foundation! I had gone to the school last week to drop Sara off and went in to see the posters and pictures and stories of Alexa, Tyler, and many other kids we know lining the hallways. I really thought it would send my heart over the edge, but thankfully God's mercy was there to keep me together. Many times during the day we have our little breakdowns with grief, but it isn't usually the big things that get us. The picture lined hallways gave me joy to see that others have not forgotten. I made it through church yesterday without crying. But it's the little things that hurt my heart and really get to me... Signing a card with just four names, seeing where we all fit in the car, seeing the confusing look on new friend's faces when I talk about Tyler and how he 'was' (not is).
Friday, October 3, 2008 3:16 PM CDT We've got a big weekend ahead! I am really glad it's
Monday, September 29, 2008 8:24 PM CDT Please pray for our friends the McDonald family. Jake is 19 and was in a car accident Saturday. He is in ICU at Atlanta Medical Center with multiple fractures and wounds. He has been through one surgery and will need several more in the coming days. His family has set up a caringbridge site to update family and friends on his condition. Please visit caringbridge.org/visit/jakemcdonald and leave them words of encouragement. Monday, September 29, 2008 5:56 AM CDT Please help out St. Jude Children's Research Hospital TODAY by eating at any Chili's restaurant. They will be donating 100 percent of their profits for the entire day to St Jude's in their commitment to help wipe out childhood cancer. Thursday, September 25, 2008 11:36 AM CDT Really missing him a lot today- Monday, September 15, 2008 9:45 AM CDT We have had a good few weeks since I last updated. Kirk and Sara are busy with school and extracurricular activities. Kirk has a few cross country races under his belt and is getting ready to go rock climbing this weekend with scouts. (This is one of his very favorite things to do, so he is excited about going.) Sara is dancing as usual and started her yearbook meetings after school too. Each of the kids seems to be prone to injury lately- we've been treating sore/injured ankles and knees, shins too for Kirk, and now Kirk is nursing a jammed right finger from playing ultimate frisbee last night at church. Both have already had the back to school yucky throat virus. Boy, I hope this won't be par for the course this school year!
Tuesday, September 2, 2008 8:13 AM CDT I have been wanting to update this site for a week or so but I just really didn't know what to say or where to begin, so I just didn't update. Today I figured that it was time to at least try. First of all, a simple thank you to everyone just doesn't seem enough to express my gratitude for all of your prayers, thoughts, cards, and love over the past few months. We feel very blessed to have such great support in our family and friends. We are making it one day at a time as we have for several years. Each of us has our moments of sadness and we are there for each other during those times. We miss Tyler terribly: it sometimes still seems so unreal- like he will come walking in the door after a long trip or something. Other times it seems very real and the grief is like a huge wave falling over us. Tuesday, August 19, 2008 4:32 AM CDT "AN ANGEL AMONG US" Sat, August 16, 2008 7:30 PM EDT NEW ARTICLE IS OUT...SEE WEBSITE BELOW.
Wednesday, August 6, 2008 0800 EST Friends and Family,
Saturday, July 26, 2008 7:51 PM EDT Hello there people of the planet Earth,
Saturday, July 19, 2008 7:01 PM EST Hey Everyone...so the article is actually out right now on ajc.com!!! Pick up the article in Saturday's First Edition of the Sunday paper, or simply pick up the normal paper tomorrow!!!
Sunday, July 15th, 2008 2:52 EST Hey everyone. There still isn't a lot going on. I have had a steady stream of visitors! I have also been getting out pretty much every day. Most of the time it is to Best Buy, the AT&T Store (I just got a new phone, a Motorola V3xx) or Wal*Mart and Target. Also I started going back to PT Solutions (physical therapy), and that is helping my back out a ton! Today I went to Best Buy and bought 4 or 5 movies that were on sale, that I saw through the Sunday Ad they put out. I am probably going to continue to watch out for the deals they have. I am trying to keep myself entertained most of the day when people aren't here. My typing has gotten a little better since the last post.
Sunday, June 29, 2008 1:39 PM CDT PLEASE SEE THE NOTE IN RED JUST ABOVE!!!!
Friday, June 27, 2008 5:58 AM CDT Hey there everyone! I can' type much...I am hanging in there. A lot of my fine motor skills aren't doing so hot (like typing!) Not doing so hot lately, but some of the meds are helping!!! Oxygen is really a lifesaver at this point!
Thursday, June 19, 2008 4:59 PM CDT So last night I was not doing very well. I end up coughing up a ton of blood. Like 64 ounces of bright red blood! My right lung was in horrible shape. I thought it had actually collapsed! I started to "air starve", which I mentioned a little bit to everyone in a past post, and continued for about 4 hours (It sucks, I hope nobody has to even go thru 5 minutes of it. You feel like you are drowning basically). It was very close to being bad news. I have no doubt without medical attention it would have been the end. It may not have been, but that is how I felt. So they called an ambulance and they started to help me right away. Turns out my blood pressure was so low that they couldn't find one on me... I end up in the Scottish Rite ER, and before you knew it I was out...
Tuesday, June 17, 2008 10:55 AM CDT Rally Across America is coming to Atlanta...and I am the poster child :-) You are welcome to come and have fun with us!
Saturday, June 14, 2008 9:00 EST I figured out that buying one makes no sense in my case!
Thursday, June 5, 2008 11:32 EST Hey. Horseshoelapalooza went great. I was tired, but overall I had a blast this weekend!
Friday, May 30, 2008 5:02 AM CDT Hello everyone, Wednesday, May 14, 2008 5:48 AM CDT I am taking on the challenge of a lifetime and I am writing today to ask for your help. By you donating, you help my fundraising efforts and help me reach my goal. Together we can help people with physical challenges realize their dreams. Your donation will go to the Challenged Athletes Foundation; an incredible 501(c)3 nonprofit organization that provides funding and inspiration to hundreds of physically challenged athletes each year so they can participate, compete and live life to the fullest.
Thursday, May 8, 2008 6:35 PM CDT Hey everyone. Still training hard for the triathlon (please donate below)...I also am doing a "May-mester" class. It consists of a semester's worth of work in 13 classes in 13 days...Crazy I know!
Monday, April 28, 2008 4:52 PM CDT I went and saw Bon Jovi last night in concert! It was fantastic! He still has it after all these years! Daughtry opened up for them and Chris Daughtry sang a duet with Jon Bon Jovi on "Blaze of Glory"...Hope everyone is doing well!
Tuesday, April 22, 2008 4:41 PM CDT Not alot going on. Had a minor fall on a bike again. Oh well. Nothing to big. Wednesday, April 16, 2008 3:20 PM CDT All is well here. Kirk, Sara and I got home Saturday evening; we had a great time in Florida- the weather was fabulous! Todd and Tyler managed just fine without us. Monday, March 31, 2008 4:00 PM EDT Not alot going on...Mom, Kirk and Sara went to FL for their Spring Break! Just me and dad when he is home. He is having to work during the day and then go to Rome for night drops...Trying to keep myself occupied to make the pain subside a little bit. Just going to school, working on school stuff, going to physical therapy, and relaxing from training a little bit. Not completely just not training to hard. Hope everyone is doing okay!
Thursday, March 27, 2008 6:25 PM EST SATURDAY MARCH 29, 9 AM
Saturday, March 22, 2008 9:38 AM CDT We are home. After 5 games, we saw quite a bit of fundamental baseball! Lots of exciting moments. Overall it was a good time! I will update some more later! Sunday, March 16, 2008 6:49 AM CDT Hey everyone.
Thursday, March 6, 2008 3:32 PM CST So I went and got my new socket today!!! And I put an IRONMAN "tattoo" on it. Basically just the logo on the new and improved socket! It is gonna take a day or two to get used to because its so radically different from walking with a pin/lock socket. This one is suction, and it has a valve to expel all the air. Since we are nearing St. Patrick's Day, all I have is a quote from a famous Irish beer's commercials (Guinness) "Brilliant"...that's how I describe the new concept.
Friday, February 15, 2008 6:41 PM CST ...Will update when something happens... Wednesday, February 6, 2008 7:01 PM CST I had another friend that passed away this morning on my birthday... RIP Herbert Shaw Jr.!!! I love ya Soulja Boy (Herbert)! You'll be missed buddy!
Friday, February 1st, 2008 9:35 AM EST So I am pretty sick. I am having one of the worst strings of asthma related stuff that I can ever remember. I feel like I have the flu, as everything that touches me is ultra sensitive. On top of that I have a nasty cold. So I have junk coming out of my lungs and my sinuses...Which gives me a head ache...which then is made worse by me wheezing every breath, and coughing up a lung every once in a while. And then I stinking ear drums are killing me because of the pressure on them and my sinuses...
Wednesday, January 23, 2008 6:03 PM CST
Tuesday, January 15, 2008 9:26 PM EST THERE ARE TWO KIDS THAT NEED EVERY PRAYER POSSIBLE OVER THEN NEXT FEW DAYS AND WEEKS!!!
Friday, January 11, 2008 5:14 PM EST Sorry for the incomplete last update. Go back in the history and read the full thing! Please?!?!
Wednesday, January 9, 2008 11:19 PM EST Here is how this update will go. Bad news, good news, bad news….
Sunday, January 6, 2008 3:44 PM CST I didn't say it directly but I was inpatient at Scottish Rite for about 36 hours or so. I didn't want people close to our family to be worried so I wasn't allowed to directly say so. I am at home now, and we have a solid plan in place to help deal with the pain I have been in. I arrived just before game time which was a big reason i wanted to be home tonight!!!
www.firstgiving.com/2010curekidtylercopley
and join the fight to find cures for our children!
So, for an update. We all seem to be doing well. School keeps Kirk and Sara busy, along with dance, boyscouts, school activities etc... We will have a fall break soon, and we are headed to the beach for a few days- can't wait to see the ocean and just hang out! Todd has been on leave for a few days- of course that doesn't mean that we are just sitting around. We had a few trees cut down, so we've been busy cleaning up the back yard... hard labor for sure! I still work after school a few hours each day. Can't say it's always fun, but in the long run I really do enjoy being with little kids. They can be so funny!
There are so many reminders of Tyler this time of year. Childhood Cancer Awareness month, baseball playoffs, and of course Ohio State football! I sure wish he was here with us to watch these games. I loved to see how excited he got about everything going on. Sure miss him.
So, in that competitive spirit that Tyler and I share, I will be participating in a Triathlon sprint in October. I will be raising money for Rally Foundation to help find a cure and better treatments for childhood cancer. Once I get my team registered completely, I will share the fundraising site and start asking you all to share it too. Thanks for hanging with us over the years.
Love to all,
Connie
And, I imagine that he would have a lot to say about the healthcare debate and the process/voting on C-SPAN. We do miss him so much in everyday life- he is never less that a few seconds from my mind...
www.caringbridge.org/visit/merrillking
Tyler got to know Merrill a few years ago at Camp Sunshine and adored her...
Connie
Thank you for continuing to be a part of our lives and for keeping Tyler's spirit alive by remembering him often.
Blessings to all,
Connie and Todd
So much has happened over the past few months. I am a bit irritated with myself that I didn’t take the time to write about our experiences as they happened. In early October our friend Dean, the girls who rode in Rally across America and a few folks from the Orthotics/Prosthetics dept. at CHOA participated in the Lake Lanier Triathlon Sprint. They raised money for Rally Foundation in Tyler’s memory, and did a fantastic job! I went to cheer them on and had a great time. Our little friend Jenna Rohrbach touched our hearts singing the National Anthem dedicating it to her sister Alexa and her friend Tyler. We also participated in the September initiative to raise much needed research money for CURE Childhood Cancer in Tyler’s memory. Thank you to all who donated and continue to help this cause. Sadly, we are not finding treatments or ways to prevent terrible long lasting side effects for our kids as fast as we need to. We do believe that together, we can make a difference in the lives of these kids! Lost Mountain Middle School (where Sara goes to school) also participated in 4 Quarters 4 Research and raised over $5000 in one week! They had a pep rally one morning where a few people spoke about Tyler and Alexa, and a few other kids that had gone to LMMS and had cancer. It was quite touching.
For Thanksgiving we went to Tennessee for the week and spent some time with Todd’s mom and dad. We stayed at Wilderness in the Smokies which is the new resort with all kinds of outdoor and indoor water parks. We had a great time visiting and swimming at the indoor water park every day. There is always a feeling that something is missing (and he is physically but not in spirit!) but we manage to enjoy out time together as a family.
Todd just finished stuffing and sealing our Christmas letters yesterday. We always have a little discussion about who will write something and who will find the pictures and get them on the computer etc… Todd usually loses. That is, he usually ends up doing it because I’m really good at procrastination and hum-hawing around about not knowing just what to say, blah blah blah… poor guy. So since he set it all up, got a few pictures, and then complained loud enough about Kirk and Sara not getting him a picture that they liked, I hustled up to Kirk’s room and told him to get one of him on his trip lickety-split. Then I found a picture of Sara on Facebook (that she probably hates!), and ta-da, Todd was semi-happy. I even wrote the paragraph. So that one thing is now done! I still really don’t like doing it, but I really enjoy seeing our friends pictures and receiving their Christmas cards/letters. I am glad that Todd is much more organized than me.
The house is semi-decorated with our years of collecting Christmas stuff (which translates to everything but our tree in the family room- had to buy a new one the other day! Arghh!) Tyler’s tree was the first thing up this year. It wasn’t as hard as I thought it would be to go through the process of opening the boxes and putting each ornament on the tree. (This is the tree that HHS Octagon club made for the CHOA festival of trees- appropriately named Tyler’s ESPN Sportcenter.) Of course reflecting on the memories behind the tree and the used game tickets that hang there is somewhat of a different story.
Every now and then someone will bring up a story or mention something that happened in their life because of Tyler and his journey. I cannot tell you how much it means to me and to Todd when we hear these stories or how people’s lives were touched or changed because of Tyler being in their life. This is probably the one thing that helps to heal our hearts the most, because it shows us that Tyler didn’t go through all that suffering for nothing. So, if you are afraid that mentioning Tyler or a story will upset us, please realize that yes we may get emotional about it, but it is what we NEED, it blankets those profound feelings of grief that have cut through our hearts for so long. A friend and I were talking a few weeks ago and she accidently called Kirk Tyler. She was afraid that I would be upset, but I just laughed- I still do it all the time too. Funny story- a week or so ago I was at work (After School with 2nd graders) and I was a bit irritated with on of my boys named Tyler. A mom’s habits die hard as I proceeded to call out to him- Tyler Copley! Would you please listen and get in line with the other kids?! The poor boy was confused as ever. I don’t expect that to change anytime soon. So, bring on the stories, experiences, or thoughts of Tyler that have been a part of your lives! We cherish every one of them, and we thank you sharing your lives and experiences with us.
Blessing to all,
Connie
Don't forget about the Wreaths Across America this Saturday at Georgia National Cemetery at noon. It is a beautiful ceremony and sight to behold. We would love to see you there! If you can't make it Saturday but would like to see the cemetery decorated, the wreaths will be on the grave sites through the holidays. They are open every day until dusk.
WREATHS ACROSS AMERICA
What turned out in 1992 as a simple gesture by the Worcester Wreath Company to donate 5000 Christmas wreaths to the Arlington National Cemetery, has turned into a national push to honor the graves of veterans in cemeteries and memorials throughout the country and on foreign soil. Wreaths Across America (WAA) was born in 2006 out of a desire to honor and respect those American servicemen and women, with the wreath laying now held annually on the second Saturday of December.
Post 134’s involvement began on an individual basis early, when our commander and floral expert, Ramon Garcia, traveled to Arlington to participate in the national ceremonies before WAA was conceived. Other individuals like Glenn Hess, the Kapsaroff family, and the Copley family, lost a loved one in 2008, who are now buried in one of the most beautiful cemeteries I have ever seen, The Georgia National Cemetery (GNC) in Canton, GA. Out of respect for those now gone, I knew I had to be there for the ceremony. Winter had come early that December day, serving up a bone chilling 28°F, but cloudless sky. Over 100 motorcycles from the Patriot Riders showed up, braving the cold temperature and flying the American Flag on the back of their bikes. Upon dismount, they formed a gauntlet with the flags leading to the ceremony. Over 500 people showed at the GNC while the same ceremony was going on throughout the United States and overseas in 350 simultaneous ceremonies. At the conclusion of this event, one of my friends who has never served but has deep admiration for our military paid me the compliment, “This is the best Christmas gift I could have received.”
The Executive Committee has decided this year to make a contribution of $500 on behalf of the post for the purchase of wreaths at GNC. With over 2000 graves at that cemetery, I urge you to make individual donations of $15 per wreath as well. Post 134 will gather in mass for the December 12, 2009 ceremony, at noon. Mark your calendar today.
To donate online:
http://www.wreathsacrossamerica.org/
Click on bottom right of screen “Sponsor a Wreath” and follow directions. Do not forget to identify your cemetery (Georgia National or other cemetery of preference) and add the sponsoring organization (GACAP130) for GNC only. This will ensure your wreath(s) goes to the correct cemetery.
To donate via mail: (Same rules apply above)
Wreaths Across America
P.O. Box 256
Harrington, ME 04643
To view the 2007 ceremony:
http://www.youtube.com
SEARCH: Wreaths Across America, Canton, Georgia
When Tyler was diagnosed with childhood cancer in 2002, we were as frightened as any parents could be. We were not only terrified by the realization that our child had a disease that could prove terminal, but that there was no clear cut cure or plan of attack to follow. In the years since our child’s diagnosis, there has been little improvement. One of the factors for this is the severe lack of awareness of childhood cancer.
Did you know September is Childhood Cancer Awareness month? If you didn’t, you’re not alone. Many people do not know what the month signifies. Yet every day, two full classrooms of kids are diagnosed with cancer. And still, only 2 f federal funding for cancer research is directed at solving cancers that impact our children.
While doctors and researchers have made strides in the battle against so many other types of cancer, the lack of funding and awareness for our children has led to an insignificant improvement in survival rates for pediatric cancer over the past decade. As a result, cancer continues to be the number one disease killer of children in our country, more than asthma, diabetes, cystic fibrosis and pediatric AIDS combined! So how does childhood cancer become a priority cause in this country? The journey begins with each of us. We need your help to raise more funds and more awareness.
Throughout the month of September, we are participating in an initiative called “CURE’s Kids Conquer Cancer One Day at a Time.” On September 18th, Tyler will be honored. CURE Childhood Cancer will feature his story on its web site www.curechildhoodcancer.org, its blog www.curechildhoodcancerblog.wordpress.com, and on www.firstgiving.com/curekidtylercopley. Our goal is to raise $1,000 on Tyler’s day in his memory to help fund research that will lead to better treatments and cures for pediatric cancers.
We hope you will help and share Tyler's story with your friends and family on Sept. 18 and ask them to join you in donating in his memory. Together, we can make curing childhood cancer as urgently important as it should be.
Please feel free to copy this letter and forward it to other friends and familyover the next few weeks. Thank you for your friendship and for supporting the future of our children.
Connie and Todd Copley
I have posted some new links below for everyone to check out.
The first one is for Cure Childhood Cancer One Day at a Time initiative. September is Childhood Cancer Awareness month and they are featuring a child each day on their website. Tyler will be featured on Sept. 18. Their hope is to raise $1000 a day during the month. Please check out the site daily in September and read the children's stories; many are friends of ours.
The second link is a link to Tyler's fundraising page for Rally Foundation's Team Tyler! A few friends of ours are participating in a triahlon sprint on October 4, 2009 to honor Tyler's memory. All money raised will go directly to Rally Foundation for childhood cancer research. You can read the story about how this came about on the fundraising page.
Please donate to these worthy causes, so that doctors can offer other children and their families treatments that have better cure rates and less long term side effects.
Thanks for checking in and continuing on this journey with us.
Connie
I had no idea that it would be the last time that we would go out on one of our daily jaunts. I do remember just how difficult it was becoming though, and I feared that we were getting close to being homebound. We went to Blockbuster. It was sweltering outside, and Tyler had a very difficult time breathing, but he persevered and browsed the aisles for a movie to rent with me and his oxygen tank in tow. I do believe that Pouya was with us too- we didn't stay out long due to the heat. The next day he woke up in the morning for a bit and then slept for the better part of the day. I was glad to see him resting fairly well, but it was scary thinking that may be the way the rest of our days together would be. Fortunately, on Sun. the 3rd, he woke up, visited with friends and family- resting in between. He was happy to see each and every one of his visitors and tried really hard to be ‘up’ for them. His friend Hannah came by in the evening (at his request because he know she was going out of town for the week. He didn’t want her to wait until she returned home the next week because he didn’t think he would make it until then. I’m so glad that she was able to visit him…he slept well that night.
That is how Tyler opened his final entry on this website a year ago today. You can read what he wrote by clicking on the journal history link and scrolling down to July 26, 2008. Reading it, I can just hear him speaking those words. He was still upbeat then- talking about the movie that we had gone to see, his grandparents coming down again, etc... Though he used oxygen 24/7, he was still talking as usual, cutting up some, moving around with little help. We went out just about everyday just to do something. Usually it was Blockbuster, PT, Best Buy. Getting out was beginning to get quite difficult though. The weather was so hot last year; dragging that oxygen tank up and down the front steps and in and out of the car was a real pain for us both. He always wanted to go though. You could see how very difficult it was becoming for him as he huffed and puffed, and winced when his prosthesis became painful to walk on. But he never stopped. We did whatever he wanted to do. Then we came home, rested, watched tv, and surfed the internet. The further we get from his life here on earth and his death, the more amazed I am at his tenacity, his grit, to continue living to the fullest of his abilities with so many physical challenges AND knowing that his days were few here on this earth. What a great lesson for us all to learn from him.
Connie
On another note, I had a dream on Wednesday night with Tyler in it. It wasn't anything in particular- just that he was there too, alive, smiling, and walking around. He didn't say anything, he was just there. It was the first time since he died that I have had the pleasure of seeing him in my dreams. I have waited so long for that. Just wish it was longer.
So many things remind us of Tyler; he is never far from out thoughts. Songs that were heard at the Styx concert that he played a lot, smells (alcohol- ooh, he hated that!), and simple phrases like P-U! (such as when the hot sweaty dogs come walking in the door). He was little, two, and he would run around saying P-U bampa! and then laugh and laugh. Remember that mom and dad? Funny kid. Oh I really miss him. But I am so glad that I have these funny memories to make me laugh (even if it is through tears). :)
A few other folks have shared some funny stories with me recently that are soo Tyler. I love hearing things that others have shared with us. It also helps to see that some of his friends continue to post notes on his facebook account. I am so glad to know that they are remembering him and thinking of him.
Some families that we know would appreciate your prayers- the Morgans- Ryan and mom Missy are fighting uphill battles with cancer; the Kings- Tyler's friend Merrill has relapsed with leukemia, and John W.- Tyler's friend from middle GA, has also had a relapse with his cancer. Wow, when it rains it pours sometimes. And as always we also appreciate your prayers as we keep on keepin' on in our little part of the world.
Connie
We are all so happy though that it is summer and trying really hard to enjoy the freedom from schedules during the school year. I was able to clean out part of Tyler's closet last week. Not clothes, hats, etc... but all the 'stuff' that was at the bottom of the closet. We have so many medical supplies that I was overwhelmed by the amount of it and just what to do with it. I was so happy to find out that one of our acquaintances will be going on a medical mission trip to Guatemala in a few weeks. She is going to take everything that I can give her! It truly is amazing just how many things you can acquire within even a short amount of time and we have stuff piled up from a few years! Seriously, just how many heparin and saline pre-filled syringes do you really need!? I plan on calling the prosthetics clinic tomorrow too to see about donating Tyler's prosthesis too. We always planned too, it's just hard even now to think about it not being in there. Weird, I know, but it was a big part of him. But it is not doing anyone any good just sitting in there, so tomorrow's the day to get moving on that. We do miss Tyler so much. Ten months ago today...it just seems like forever.
Remembering God's words today.
“We are hard pressed on every side, but not crushed; perplexed, but not in despair; persecuted, but not abandoned; struck down but not destroyed.” 2 Corinthians 4:8-9
Jeremiah 29:11, "'For I know the plans I have for you,' declares the LORD, 'plans to prosper you and not to harm you, plans to give you hope and a future.'" Jeremiah 29:11
“Trust in the Lord with all your heart and lean not on your own understanding; in all your ways acknowledge Him, and He will make your paths straight.” Proverbs 3:5-6
"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away."
Revelation 21:4
"Blessed are those who mourn, for they will be comforted." Matthew 5:4
We had a beautiful weekend here in Georgia, and it was Sara's birthday yesterday, so it was filled with birthday events! We took Sara and a few friends out to eat and to a movie on Friday and then the girls spent the night. Later in the morning on Saturday they schemed a plan to have another mom take them to the local shopping area for the afternoon. They all had a good time but I'm sure they were tired because I don't think they did much sleeping at all on Friday night. Yesterday was the usual church and hanging out at home. What started to be straightening up the kitchen turned into cleaning out cabinets. I only got through a few though because I kept finding Tyler 'stuff'. Sara just happened to be in the kitchen too with the laptop playing Tyler's i-tunes lists. All the Bon Jovi songs came on and it became quite a chore to get through all the stuff without tears in the way. Tomorrow, April 28th a year ago, Tyler and I went to see Bon Jovi downtown and had the time of our lives! (or at least as much fun as a 19 year old can have going to a rock concert with your mom!) It was kind of funny because we saw lots of kids with their parents. Anyway, we seemed to have lots of Tyler moments this weekend. The NFL draft was on and we know Tyler would have been glued to the TV for that. Then the Red Sox played the Yankees and we watched the end of that too. (Red Sox won!!!) As usual, sometimes we smile and sometimes we cry- we just never know how something will affect us at that time.
We miss him so much.
We all finally returned home from our various trips this past week and are slowly getting back into a routine.
Kirk had an absolutely awesome time in Italy and Greece. (No, he did not get involved in the earthquake mess that happened there this past week. He was already on his way to Greece by then.) He saw and experienced more that most of us could ever hope for, and for that I am truly happy that we were able to send him on this trip. He was able to tour the Vatican on Palm Sunday, but they left before the Pope's Palm Sunday address. He took over 1200 pictures and they amazing!
Todd, Sara, and I returned from a week at the Lighthouse Family Retreat pretty tired but very happy and blessed beyond imagination. Todd and I worked with the production team which involved all of the set up, take down, and general organizing of the events that were planned. Sara family partnered with the Henessey family taking care of a family from Chicago all week. They had a 6 year old son and three year old triplets (2 boys, 1 girl). Oh how we fell in love with them and many of the retreat families for that matter. Sara loved those precious triplets and they loved her back. One of them wanted to put his car seat in Sara's car when it was time to go home! It was a wonderful way to spend Holy Week, caring for others who are walking the journey that we have walked for so long. It was quite healing to be able to serve in this capacity all week.
We all made it home by Easter and mom and dad were here to be with us for a few days on their way back to Ohio for the summer. Having such and emotional week before Easter actually made Easter much easier to handle without Tyler being here. In my heart I know that we is in the best place he can be for the celebration of Christ's resurrection.
In closing, I want to ask all to continue to pray for and visit those that are still on this cancer journey with their children and for all that are suffering for that matter. We know that God hears all of our prayers, but he also expects us to be his hands and feet, physically serving and loving them also.
Have a blessed week,
Connie
Connie
by Gwen Flowers
I had my own notion of grief.
I thought it was the sad time
That followed the death of someone you love.
And you had to push through it
To get to the other side.
But I'm learning there is no other side.
There is no pushing through.
But rather,
There is absorption.
Adjustment.
Acceptance.
And grief is not something you complete,
But rather, you endure.
Grief is not a task to finish
And move on,
But an element of yourself-
An alteration of your being.
A new way of seeing.
A new definition of self.
As Tyler's 20th birthday approached I was determined to not sit around all day and be miserable (Ok, I was a little bit miserable anyway), so I planned a small get together with family friends that know and love Tyler. Earlier in the day I visited the cemetery and took some sunflowers to his grave site. As always, it was beautiful on top of the mountain with the sun shining as bright as it could. Kirk was willing to get in on the birthday action, so he made up a fire/smoke display that was a very fitting way to light the bonfire we had that evening. We had lots of food and great fellowship time remembering Tyler and his life. We even shot off the potato gun for a while too. It was a great way to end the day.
I can't tell you how comforting it was to hear from others on Tyler's birthday. We rarely see many of his friends because they are all off at college and working hard at school and/or work. Many left notes on his facebook page on and around his birthday and for that I am so grateful! He had wonderful friends that we will always treasure.
The rest of the week was quite eventful too, since I decided on Tuesday night to plan a 16th birthday party for Kirk on Friday night. We ended up with about 15 teens hiding in the basement to surprise him when he walked in later that evening. He was really surprised, and they all had a good time just hanging out by the bonfire and eating pizza and cake! Today is his birthday and Todd has taken him and a friend up to Rocktown in NW Georgia for a day of rock climbing and bouldering. Since the boys are away for the day Sara and I will probably go out and spend some girl time together. That usually means shopping and spending money! I'm glad that SHE has some!
Thank you for continuing to come here to leave notes for us. It is a great comfort to hear from our friends and family as we continue on this journey of learning how to live without Tyler here with us.
Love to all,
Connie
Yesterday was a time for reflection of all we have been through these past seven years. Just about everyone can point to at least one time in their lives where they were clearly changed forever. Yesterday, seven years ago was one of them for our family. It was the most devastating day in my life up to that point. I had no idea that there would be so many more days like that one. I tend to be so goal oriented that I didn't really take the time to let it sink in that my child could actually die from what Dr. George was telling me about Tyler's disease. I was ready to begin fixing it- isn't that what moms do? I was ready to get to work getting Tyler cured. And that's what we did- one day at a time, one goal at a time. We had so many days where we were living one minute at a time- sometimes it was excruciating to see him so sick. But in all of that, we received so many blessings and so many moments that we would have never had if he had never had cancer. Don't get me wrong- I am NOT saying that this diagnosis was a 'blessing or gift'- that really burns me up to hear that come out of people's mouths! Being a 13 year old full of life and loving what you're doing and getting that diagnosis is not a blessing. It's wrong, horrible, and terrifying. What I am saying is that because of that, God found a way to nurture us, grow us, and let us feel his presence. All we had to do was be open to Him. We met so many other families that we have come to love and care about. Being able to help them and pray for them as they helped us has been an privilege and an honor. We learned that tomorrow may not come whether you have cancer or not, so it's best to live for today and make the most of each day we're given. We had so many great times together as a whole family- traveling to places that I never thought we'd get to go to.
As for Tyler, I can't really think of much that he didn't do in his short life. I could write a book about all the cool things that happened to him over the past seven years. And it wouldn't all be about going places or meeting famous people, (let's face it- that was pretty high in his book), but it would also include coming to love all of the kids and staff at Camp Sunshine, getting to spend so much time with the kids in the special ed. room at Harrison, loving playing with the little kids on 3North that were getting chemo too. He loved making them happy- and getting into mischief with them! No, we would likely have never done so many cool things had he not had cancer and yes, I occasionally think about what would have been if he had NOT had cancer, how many typical teenage things he would have gotten to do that he missed out on. But what I know is that you can't ever go back, and thinking about it too much won't ever change it to the way you think it should have been. So we move on and live for the day in front of us. Take the time to do the things you want to do because that chance may not be there tomorrow. We only get one life- and that can be much shorter that you think it will be as we have so painfully learned. I challenge you all to live as Tyler lived, for that day, to the fullest that you can- looking forward to each new day and not to the past.
Love and blessing to all,
Connie
PS. Yesterday I drove up to the cemetery as cold as it was! It was absolutely beautiful with the clear sky, sun shining, and the wreaths still on the grave sites. I enjoyed being there with Todd as he flew over, circling the cemetery and then a nice final pass right over me and Tyler's stone. Tyler would have thought it was so cool! I did too!
It's been a long few weeks and we are now back to the daily grind of school and work, dance and scouts, running here and there and everywhere it seems. I will try to update on how our Christmas went in a day or so, but for now I just wanted everyone to know that we are doing ok and glad to be home and into some sort of routine. These rainy, cloudy days have not been so fun; the sun finally peeked out a few minutes ago, and for that I am so grateful. I have actually gotten some cleaning done and it feels good to be sitting in a clean house. (At least until the dogs come in and roll on the floor and beg to be loved.)
One short story to share for now:
I was cleaning out the hall bathroom under the sink (gads!!) and it was becoming a difficult task as I sorted through the drawer with Tyler's toothbrush, razors, and various sundries that he like to have around. Why on earth a toothbrush and deodorant made the tears overflow is beyond me but just as I thought I could not take anymore, I found an empty toilet paper tube that had not found it's way to the trash can. I pulled it out to read in Tyler's writing, "You're in a lot of trouble now!" and in parenthesis- toilet paper is in the tub. I remember that he had written on the empty tube last summer and hid the other rolls of toilet paper in the tub. I got a good laugh out of it and have put the tube back under the sink so I can find it again and again when I need a Tyler fix.
Connie
Todd, Connie, Kirk, and Sara
We continue to stay quite busy especially with the holiday activities added in to the mix. This week has been much better than last when I was trying to get holiday decorations out. Todd has been in Augusta for a few days and will be home today- Yea! We both have been fighting the winter cough/yuckies, and now Kirk seems to be having the same issues- but we're making it through ok. The kids only have eight more days until Christmas break (yes I'm counting down because I can't wait!) It's raining like crazy here which is good I guess. I think it would have been even better if it had come during the cold temps, and we would have had snow and then a day or two off from school!
Mom and dad will be coming in this weekend to join us for a few ceremonies this weekend. Saturday at noon we will attend the wreaths across America at the Georgia National Cemetery. You can find information on this and the link under the second photo of the photo page. Anyone is invited to attend. Kirk's scout troop will be on standby to assist with the wreaths if needed. On Sunday we will attend the memorial service at CHOA-Scottish Rite for all the children who have passed away this year. Even though this will be hard, I am looking forward to being there. I have only been back to the hospital once since Tyler died, and that was to take Sara to the ER for her stomach issues. I didn't wander around the halls or visit the oncology unit. Perhaps we will on Sunday. So many people at the hospital were such a big part of our lives for almost seven years- it has been a weird adjustment to not see them and have them in our lives anymore. They are all such wonderful, loving, and compassionate people- not just the nurses and doctors, but the cafeteria staff, the volunteers, the cleaning staff- everyone- we love them all (and especially Morris!) I feel so fortunate to have had such wonderful care for Tyler and our whole family.
I would like to ask for you all to continue to remember our friends the Rohrbachs in your prayers as they face the future without Alexa here on earth. They are such a great and faithful family; we have been so blessed to be their friends. Also, our minister Jerry is in the process of a stem cell transplant- please pray for him and his wife Maryanne. He has been with us every step of the way in our cancer fight with Tyler, and they are both very special to us.
Thanks for checking in and for the words of encouragement. We love you all,
Connie
Just one more thing to update today- Our sweet friend Alexa passed away last week. Please pray for her parents Robin and Chris Rohrbach and her sister Jenna as they learn how to live without Alexa here on earth.
Thanks for checking in,
Connie
Anyway, I hope that you all have a wonderful week off and remember to take time to give thanks for all of your blessings. We all have so many when you really think about it. I am so thankful for each of you who continue to send us notes, call, visit, and pray for us as we learn to live without Tyler. It is so hard some days but I know that we will be ok because we have a Lord who cares and loves us so much.
Blessings to each of you,
Connie
We chug along every day with plenty to do! Kirk ran his last race of the season at the end of October, so he is enjoying a little more down time for now. He is finally able to be a bit more active in the other clubs that he is part of at school. Sara is always at the dance studio, but Monday night she strained her foot showing me her favorite tap step after dance class! She was NOT happy about that. It is still a bit swollen, and she is hobbling around the house irritated that it is hurting and she can't dance this week. So, no more tap dancing in ballet shoes on the carpet for her!
Todd and I were able to go out together and see Wicked at the Fox Theater which was great! Sara and I went to see Swan Lake a week or so ago. It was nice too, but I'm really looking forward to seeing Cirque Dreams in December! The whole family is going, so we have something different to look forward to during the holidays. We are going to Ohio for Thanksgiving. We are looking forward to seeing family and friends that live there. Give us a call if you want to plan some time to visit while we're there. Christmas is still up in the air. I so want to be home for Christmas as usual but am afraid of how difficult it will be this year. We haven't planned anything yet, so if you have any ideas that don't cost an arm and a leg, I up for hearing them!
Well, I feel like I at least accomplished something this morning by getting this updated. So now I'm off to get Sara to the Orthodontist.
Thanks for checking in on us and for sending us notes of encouragement and love.
Connie
I got on Tyler's facebook the other night and was so pleased to see that a few if his friends still write notes to him from time to time. It was good for me to read those notes because I know that they haven't forgotten. (Of course I probably freaked a few of them out when I sent them a note back from his facebook page.)
Hope you all have a good week,
Connie
Todd finished painting Tyler's bedroom last week and we had the carpets cleaned. We have gotten the bed back in there, and this week I will start deciding which pictures to put back up. I would like to keep it much the same as it was, but this will be a balancing act for me since this is now where guests will stay when they come to visit. (Kirk used to get kicked out of his bed every time someone came to visit.) It is a comfort for me to go into his room, but I am here all the time and those that are visiting will be facing Tyler's absence for the first time since his passing. I hope to make it a comfort to them as well.
Our lives continue to be as busy as ever with extracurricular activities and work. Todd will be in Augusta for a few days this week, so carting kids around will be a bigger job than usual for me. We are finding time to relax though too, and I am so thankful for our friends who continue to call and meet me for breakfast (or meet Todd at 'the Mac') etc... Being with others has really helped us keep moving and live the way Tyler would want us to. I take my time to grieve, but I am trying to be very conscientious about falling into despair- that would not be good for any of us. God's mercy and grace abound every single day that we wake up and for that I am most thankful.
Connie
friday because Sara has been home all week with stomach pain- we were at the dr. twice then to the ER because they sent us there, but they never really found out a specific thing that is wrong with her. Boo!! She is managing ok though and will see a GI dr. on tuesday.
This is Harrison's homecoming weekend and so Kirk is going to the game tonight and to the dance and after party tomorrow. Todd will have his hands full because I am typing this from Nashville TN where I am waiting for three of the most wonderful gals with the whole world to meet up with me. I can't wait to see them and spend the weekend just hanging out with them. I will be home Sunday evening just in time to get things rolling for the next school week.
I went to the cemetery on my way to TN to sit at Tyler's headstone. It would have been nice to be there as Todd flew over at 10:30 but I just couldn't get out the door. I think I cried pretty much the whole time I was there but was able to gather myself together and enjoy the peacefulness of the area and the sunshine on my face before I left. I imagine that it will get easier, but for now it's not.
Anyway, I am gonna scoot because I have to put the finishing touches on my surprise for my girls.
Thanks for checking in and as always we are so thankful for your prayers and phone calls.
Connie
Thanks,
Connie
(Jake was in Tyler's graduating class at Harrison High school.)
Chili’s has made a 10-year, $50 million commitment to St. Jude Children’s Research Hospital®. With this donation, the Chili’s Care Center, which houses the major treatment and research programs for brain tumor and bone marrow transplant patients, has become a reality. Go to www.chilis.com for more information and a restaurant near you. Hopefully Todd and I will get to go for lunch since our Monday evenings are so hectic.
Todd worked at the air show in Rome this weekend and is now in Montgomery for the week dropping new paratroopers at Ft. Benning. This will be good for him to get back in the plane since he hasn't flown much since Tyler passed away. We miss him when he's away (especially at carpool time!) but I know that he will enjoy his week doing what he loves to do.
I have started my job at ASP across the street and really like it! For the most part the kids are great and are fun to be around. I have learned how to cook early in the day and have it all ready by the time the kids and Todd get home. So far, it is working out nicely.
Our friend went up to the cemetery on Sept. 3rd and saw that they were working on putting Tyler's headstone in that day. He took a few pictures for us. We then went to the cemetery that Saturday. Wow, it was harder that I thought. The adrenaline that rushed through my body as we drove the long drive up the hill was almost overwhelming. But we made it and found his headstone among the rows and rows of identical crosses. The sod had been placed and everything was set- perfectly- beautiful- but sad, so sad, it's just not right to be there visiting our child's grave site. And among all the perfectly lined crosses, only one empty spot remains- the place where Todd and I will be laid to rest beside Tyler- they uncharacteristically allowed an empty space to remain to honor Tyler's wish to be beside us. For that I am so thankful.
Many have mentioned that they were trying to give me time, not sure what to say etc... Well, I am sad yes, but I am not so fragile as to fall apart at the mention of Tyler's name. I may cry but what's new about that?! In fact, we all enjoy talking about Tyler- and we do so many times a day- laughing about what he may have said or done in a certain situation, or remembering something he had done or said. Actually we chuckled at the thought of Tyler (in all of his OCDness about straight lines etc...) being so at peace to be buried in a cemetery with such perfectly lined rows, perfect from every way you look at them-even from above. So if you see us laughing- we are not 'over' the sadness because we will never be, but we realize that the world has not stopped. And I have to walk the walk that I have preached to my kids forever- that you can't always control what happens in this world, but you can control how you react to it- so I am choosing to continue to live and find as much joy in life that I can- because that's the best way I know how to honor Tyler's short life here on earth. So, I guess what I am trying to say is there is no need to hesitate calling, visiting, or just sending a note via the guestbook; we love hearing from all of our friends and family, because that is the only way we have made it through these trying years anyway! Thank you for continuing to check in on us and for all of your prayers.
Connie
My goodness, I can't believe I forgot to tell you all about the monthly American Legion luncheon that I attended with Todd. Todd is a member of Post 134 down in Toco Hills. He has met many wonderful older vets and has become good friends with them too. Last week Todd and Mr. Hap Chandler gave the presentation for the lunch about their trip to 64th Anniversary celebration in Normandy, France. They did a fabulous job - but before the presentation Todd and I were called to the front of the room to listen to and receive a proclamation of a new scholarship that Post 134 will be starting in Tyler's name. It will be a "Constitutional Speech Contest" and will be known as the "William Tyler Copley Memorial Scholarship Fund." We were both floored, happy, and so overwhelmed with pride and appreciation for these wonderful men- to think so much of our family and of Tyler to begin this scholarship fund in his name.
Fortunately school has started and we have gotten into a busy routine quickly. Kirk and Sara are both busy with school work and a few extracurricular activities each. Kirk is running cross country after school every day and Sara is dancing after school every day. It will be interesting to see how we fare this week as I start to work at the after school program at our local elementary school today. Thank goodness we have worked out a few carpools!
We spent the weekend with family at our Aunt Mary and Uncle Jim's house in Tennessee. We all had a great time visiting and boating, swimming, and jet-skiing. It was a strange feeling to pack up, travel, and be there without Tyler- something we eventually will get used to I guess. The last time we were there at Memorial Day was the huge family reunion, and Tyler was feeling pretty ok then. He spent lots of time on the jet skis and had a great time. We have some wonderful memories of that weekend.
I guess that's about it for now. I have been slowly taking care of the things that need to be done now that Tyler is gone. Somethings are comforting, some are not. But we live like Tyler taught us to live- one day at a time- knowing that God's grace is there all the time.
Connie
Also, a few people have been asking about the scholarship fund that Tyler and I discussed before he passed away. We are in the process of getting that started and already had an account set up at the local United Community Bank. We will post the information on this as we get it organized.
I KNEW AN ANGEL HERE ON EARTH
A HEART OF GOLD, A SOUL AS PURE!
HE TOUCHED US ALL, WE KNEW IT THEN
HE SHOWED US LOVE, BEYOND ALL MEN
BEFORE TOO LONG IT WOULD SHOW
HIS FAITH WAS STRONGER THAN I KNOW
IN LIGHT OF PAIN, HE CONTINUED ON
AN ANGEL ON EARTH WE WOULD PART
HE BELONGED IN HEAVEN THIS WAS JUST HIS START
JESUS TOO HAD DIFFERENT PLANS
HE BELONGED IN HEAVEN IN GODS HANDS
HE WAS SUCH AN ANGEL WE SHOULD HAVE KNOWN
ONE DAY HE WOULD HAVE FLOWN
WE DIDNT WANT TO ACCEPT THAT DAY
HE WOULD GROW HIS WINGS AND FLY AWAY
HE IS GONE NOW AND WE MISS HIM SOO
HE'S IN A BETTER PLACE, THIS IN KNOW
IT WILL BE HARD TO ACCEPT HE'S GONE
ITS HARD TO SLEEP, AWAKE TILL DAWN
WE WILL GROW A TREE IN HIS BEHALF
AND REMEMBER HOW MUCH HE MADE US LAUGH
WE KNEW AN ANGEL THIS I KNOW
HIS MOTHER TOO THIS WILL SHOW.
"WE KNEW AN ANGEL HERE ON EARTH"
MICHAEL R. NIDY (Connie's Cousin)
He fought so young a battle here
Touching lives in endless flare
With belief in God and love for life
A battle came which he would fight
He fought so hard, his saber drawn
A valiant battle he had won
His foe was down but not for long
Praise of victory would soon be gone
The army rallied with canons glow
The fight was hard and surely slow
His armour pierced and beaten down
The victory flag would still be flown
Friends of he could then sigh
They thought the foe would ever lie
But some soldiers the enemy preys
A fatal blow, our soldier lays
In our hearts, he’s still won
In Heaven now the battle’s done
Love you Ty!
Keith Nidy (Connie's cousin)
All articles have been written by Bill Sanders, honoring Tyler's life. He's done a fine job, along with Pouya Dianat, who has been by Tyler's side the past year taking many photographs. Both Bill and Pouya are now related to the Copley family!
- Todd
http://www.ajc.com/search/content/living/stories/2008/08/17/tyler_copley_funeral.html
http://www.ajc.com/living/content/living/stories/2008/08/08/tyler_copley.html
http://www.ajc.com/search/content/metro/cobb/stories/2008/07/19/tyler_0720.html
Aug 7, 2008
Tyler passed away sometime between midnight and 1:00 am. May he be whole again as he walks with the Lord. We love him and miss him dearly.
The Copley Family
Please read below for donations in lieu of flowers.
We kindly ask that all visitation to the house be family only. Tyler's time is near. He's having a very hard time breathing, even though we are giving him all the oxygen we can. Please pray for Tyler, that his time suffering is short.
Todd & Connie
Monday, Aug 4, 2008
Hey everyone,
Thanks for all of your messages and prayers this week for us and especially for Tyler.
Tyler was able to get out most every day last week until Friday. It is just soooo hot here and it is so hard for him to breathe on these hot and humid days. He slept much of Saturday, sitting up to watch some tv and check out stuff on his computer. Sunday he actually stayed awake from 10am to 10 pm and visited with a few friends here and there. He rested in between visitors. Today he has needed more oxygen than previous days and has not been very comfortable. After a visit from the hospice nurse he finally fell asleep and is still sleeping for now. He is a real trooper!
Todd had drill this weekend and so he took today off for a few appointments, one of which was to get the dogs to the vet for their yearly shots etc... He'll definitely be needing a shower when he gets home! They totally spaz out when they see the crate go into the back of the truck! Kirk got to go with him for back up! Sara returned home from Gulf Shores,AL on Sunday afternoon. She had a great time and is as brown as a berry. I am staying home with Tyler everyday and doing all the usual mom stuff.
I want to thank everyone for all of the super meals, cards, calls, and prayers etc... we couldn't do this without all of our family and friends. We'll update as we can.
Connie
So my stump has been the source of most of my pain lately...there is a bone spur-ish thing on the left side. It is mostly because my quad has atrophy so bad that there is absolutely no muscle to pad my stump from when I walk with my prosthesis. There isn't any padding between the socket and my stump, and every time I step wrong, it feels like I am being stabbed with a knife...
In other news, we went to the movies to see "The Dark Knight" and I give it an A ...I was kind of disappointed because everyone says it was the best movie they had ever seen...but with me being a movie critic, it didn't take the top spot on my list, but it rests in the top 5 easily!!! It was great!
My Grandma and Grandpa Magley came down for a little bit, and it was great, as it always is. They helped out around the house, which I am sure my mom loved!!!
We also found a REALLY REALLY nice high-back office chair for mom to have in my room. It is a lot more comfy than the standard dinner table chair with a pad. It is one of those chairs you just melt in! Not to mention it was free!!! I am sure at 4am, it makes a huge difference...
Anyways, I am still hanging in there, and the steady stream of visitors helps out a bunch!
Thanks for the cards everyone!
-Tyler
____________________________________________________________
Hey there everybody! Here is the link to order the "Rally For Tyler" shirts...
http://www.active.com/donate/rallyathletes/copley
DON'T FORGET TO INDICATE YOUR T-SHIRT SIZE AND HOW MANY YOU WANT ($15 a piece minimum) IN THE COMMENT SECTION OF YOUR DONATION!
Thanks,
Tyler
Tissues are recommended!
Picture Gallery:
http://projects.ajc.com/gallery/view/living/tyler0720/
Article:
http://www.ajc.com/metro/content/metro/cobb/stories/2008/07/19/tyler_0720.html?cxntlid=homepage_tab_newstab
Thanks.
-Tyler
___________________________________________________________________
Hey guys...Don't forget that my big story is running in the AJC on Sunday. For you out of town people it will be on AJC.com
For everyone: There will be a big photo gallery of what had been going on. It will be located on AJC.com also.
I will link both of them when they come out.
My last article in October eventually was taken down, even from the archives. I will save the text part of it and maybe do a nice version we can send to people to keep, just like we did for my October article that we placed in our Christmas cards to everyone...
-Tyler
__________________________________________________________________
Hey there everybody! Here is the link to order the "Rally For Tyler" shirts...
http://www.active.com/donate/rallyathletes/copley
DON'T FORGET TO INDICATE YOUR T-SHIRT SIZE AND HOW MANY YOU WANT ($15 a piece minimum) IN THE COMMENT SECTION OF YOUR DONATION!
Thanks,
Tyler
_____________________________________________________________________________
Don't forget to check out the new photos on my "View Photos" page! Also pray HARD for Tyler's friend, Merrill King! She just relapsed with AML and the tumor is near her heart. Her site's link is at the bottom of the page!
_____________________________________________________________________________
We got Guitar Hero: Aerosmith for our Wii, and Kirk has been playing that a lot. I gotta try to play some myself, but my reaction time is slower due to the medicines and stuff. Oh well...I will just stay on Easy and try my best!
I am also watching a lot of movies. I saw Mrs. Doubtfire, which is always a great movie to watch. I also saw Its a Boy Girl Thing (it is kinda of like Freaky Friday. The star QB and a Yale bound girl, switch places). It was kind of a chick flick but it was okay. I just now finished watching Drillbit Taylor, which has Owen Wilson in it, and it was fantastic. I have a long list of movies from my Blockbuster Online membership. The great thing about the one I got is that once your done with your movie, instead of mailing it back like you would with Netflix, you simply take it to the store and you can pick out ANY movie in the store and exchange it for free. That way you never are without a movie!
I had my good friends from the restaurant I used to hang out at (Capo's), come and see me today. We just talked and broke out the potato gun. They were very amused at the sight of it haha!
I am hanging in there guys. I have my bad moments, and my good times. I am trying to keep myself entertained most of the day when people aren't here. My typing has gotten a little better since the last post. Please continue to pray and call me. Hope everyone had a fun 4th of July weekend!
AS OF RIGHT NOW, MY AJC ARTICLE IS SUPPOSED TO RUN NEXT SUNDAY (JULY 20TH)...BE ON THE LOOKOUT FOR IT...IT SHOULD BE A PRETTY BIG STORY ON ME!!!
Until next time...
-Tyler
404-395-6146 (Please call me!!!)
_____________________________________________________________________
Hey everyone. I can't type much. My typing skills have gone way down. I am still hanging tough. Not doing very well, but hanging in there. All my extended family came to see me this last week. First my mom's parents, Grandma and Grandpa Magley, and her sister Aunt Karen came to help out.
Then the Copley's hit town!!! My cousins Jen and Taylor came from Colorado with my Aunt Nancy, and my Uncle Mark flew to Columbus, Ohio from Syracuse, NY, and drove down with my Grandma and Grandpa Copley. Also my one of my favorite cousins of my Dad's, Mike Webb, came from Memphis, Tenn. and dropped by on his way to Fort Myers, FL.
It was good to see everyone!
I am still having a lot of hard times, especially when I can't breathe. I am still on a ton of meds and oxygen which is helping out a lot!!!
I am done with this update. I need to get some oxygen.
For those that keep asking about my AJC article and the photographer and reporter following me...I will update you about when the article(s) will run, just as soon as we find out!
Also for those that want to know what they can do to help me, just email me at wcopley@student.highlands.edu
Thanks!
-Tyler
Just wanted to say thank you for everyone that came to the Rally Across America dinner/fundraiser. We raised $4,000 and there is plenty more coming in...
I am off to go get a new cell phone :-) My other one has been horrible lately, and I am due for an update. I am going to get a really nice phone. It plays music, and you can access the internet and email through it! I can't wait to get started playing with it!
My grandparents and my aunt(mom's parents and sister) are in town and are being a huge help to our family! When they leave my Dad's parents and his brother's family comes to town! I am super excited!
I will try to update more, but it takes me forever because of my typing abilities going downhill :-(
Thanks for the prayers!
-Tyler
PLEASE SEE THE NOTE IN RED JUST ABOVE THE UPDATE.
So I wake up this morning at 9:30 in a hospital room and I was immediately going into air starvation. My heart rate was in the 230's , no idea on the blood pressure. Finally we get it under control with some pain meds and oxygen. I am on "inhalation morphine" because most pain meds don't work on the lungs unless they are inhaled. Finally it came to a point where I needed to make some decisions. I am now on "Hospice"...
But don't freak out at that word. I am simply on "Hospice" because it allows me to be at home, and have oxygen (only when needed) and it is the only way to get the inhaled pain meds outside of the hospital. I wanted to be at home, so this was pretty much the result!
I am doing better now. Not great, just better. It is not like I will die tomorrow. I will still be able to get up and get out of the house. But I can't drive, and my days of running around are probably over until I get to a point when I am able to resume. So, instead of meeting people places, please come visit me at my house if you would like. I really need you guys to pull through on this for me to keep me distracted from time to time by visiting me!
PLEASE KEEP ON PRAYING THAT I FEEL BETTER ASAP!!! Also, feel free to pass this on to whomever, so they can pray for me! But copy and paste it, word for word!
Please DO NOT call me 10 times. Just out of respect for me!!! One time if you want to come visit. If it is not a good time to come visit I will tell you…or if I need to you to step out while you are visiting, please respect that. Mostly because I want to shield you from some of the stuff going on. Not a whole lot of it, but if I need a moment, so be it. Then you can come back in when I am ready again!
PLEASE MAKE SURE TO CALL OR TEXT ME BEFORE YOU COME!
I won't be able to talk long because my lungs aren't able to. If you leave a message I will try to get back to you as soon as I can!!! Just don't expect a 10 minute conversation every time!
Texting is fine as long as it has a purpose to it...
My address for those that want to visit...Don't ask me for it down the road. Write it down if you think you might want to visit at some point, and keep it in a safe place!
My address is:
47 Pritchett Lane
Powder Springs, GA 30127
Thanks everyone for the support!
-Tyler and the Copley Family
Still please come to the Rally dinner for me Tuesday (see invite above)!!!
See the photo above for the invitation! Please come if you are able!
-Tyler
But...
Does anyone have a WaveRunner that they would be willing to let me drive or loan. If not do you know somebody that does have one? I will fill up the gas, and give you a nice gift! I will be so happy if someone has one or knows someone that does! Please, contact me 404-395-6146 or wcopley@student.highlands.edu
or just send me a message via the guestbook!
Thanks!
-Tyler
____________________________________________-
The Copley family are at a good friend's lake house. Its really nice, and I rode a 1200 horse WaveRunner (Jet ski, SeaDoo, whatever you call it :-) Took my brother out for a little ride...twice, then took Sara out. Then me and my dad rode side by side for awhile. I am sure you know by now that I am an adrenaline junkie, so I was pulling all kinds of tricks and turn on a dime turns at 30 mph today, but I was very safe and I know the rules of boating :-)
Every stinking muscle is hurting in my body. Got a nasty blister on my throttle hand (I am right handed so it affected a lot more stuff also)...Still recovering from that nasty Brown Recluse bite I got last weekend. It's not as bad as people make it out to be. Chemo, in my honest opinion, is like a anti-venom, because your body is used to toxins, and now all that happens is the hair falls out, and as long as you take care of it, your fine. Little to no pain at all. But that dime sized blister that is open wasn't feeling so hot. Then I decided to take the pain and just do "it", Well "it" means I open up the good ole vinegar and pour just a little bit on it. I have a high pain tolerance (absurdly high by the way)...and I knew it would sting for about 20 seconds, but make it heal a lot quicker. Then after taking a shower I went first aid, and pour some hydrogen peroxide on the battle wounds. Basically vinegar and hydrogen peroxide have the same ingredient that makes it foam and burn. Well my leg was no big deal. I had been in lake water so it is to be expected some that it won't be clean...Then the "cleaning" to clear most of the risk of infections, on my hand started. It foamed like 30 seconds meaning it go rid of a lot of bad juju...Anyways, I will probably ride the WaveRunner again tomorrow to "test out" if I like the brand and that specific model.
I am having a blast with the complete family...I love this place and all the toys they have to "test out" and play with!
Until my next big adventure, I will see you later! You stay classy San Francisco (it's a movie quote from Anchorman)!
-Tyler
-Tyler
_______________________________________________
Hey everyone. It is Tyler...
So the last week has been rough. I had fun last weekend at a much needed and perfectly timed Camp sunshine Young Adult Retreat. I challenged myself all weekend, and did just fine. It was hot, but fun. I Kept my phone on Friday and Saturday because I was expecting some pretty big callers to give me a buzz. Long Story short (after 19 years I finally learned that Tyler Copley has learned to tell a long story short...crazy I know!), I got a call from Jim Tressel (Ohio State football coach). Then I got a call from a good friend of mine who goes to Georgetown. It wasn't her, but who she got to call me. John McCain called and we shot the breeze for a little bit after a quick conversation about what is going on and having strong will's to survive (he is obviously qualified haha)...Then I was told he would work something out, and about 30 minutes later I got a call from good ole Dubya...Talked sports and other stuff for a little bit...Then I had my good friend Courtney come hang out for Sunday and Monday.
This weekend is the annual Horseshoelapalooza at my buddies house. So it will be really fun.
I am doing better than expected. I have my moments where I am in horrible pain from coughing up blood, but in the end I tough it out, and find something to do!
Dad is still in France, and will get home on the 10th or so!
Thanks for the continued support and nice letters! I would write more but I am a little tired...I think I will get a pass on that!
Until next time..Adios Amigos!
-Tyler
P.S. If you want to see a good movie see "The Bucket List"..it is phenomenal and will change your outlook on life. It has eerie parallels to what is going on with me. It comes out on DVD on June 10th! I have been fufilling tasks on my Bucket List (things I wanna do before I kick the bucket :-)
By now many of our family and local friends have heard Tyler's news about his health status, but I just haven't had the time or energy to update this site for a few days. Tyler had a CT scan Tuesday that confirmed that his cancer is back in his lungs. He has been out for the past few days visiting with friends and living life as he should. I don't really know what to say right now- we're sad and mad- but not really shocked- we've been doing this for so long that nothing seems to surprise us anymore. For now there is no plan for chemotherapy or treatment. They will treat his symptoms as they arise and keep him as comfortable and as active as possible.
We are all quite busy here so that is very helpful- no time to sit and stew over this bad news for now. Todd is in Normandy, France for 10 days, Sara has dance and church camp in a week or so, Kirk has scout camp, and Tyler is going on a young adult retreat this weekend. Oh and that cooking camp I am planning at church too. So, we go on, living our lives as we should, one day at a time and leaving tomorrow in God's hands. And we will continue to stand, and wait patiently for God's guidance, knowing that he is in control and will never leave us.
We so appreciate all of your support and prayers over the past seven years and ask you to continue to pray for Tyler's strength and resolve to live each day with much life, laughter, comfort, and peace.
Love to all,
Connie
When I arrive at the 2008 15th Anniversary San Diego Triathlon Challenge Oct. 26th, I will bring my wetsuit, my bike and my running shoes. But the money I am raising, and the funds you are donating, will support athletes who can’t always get to the starting line: swimmers missing limbs, paraplegics who use handcycles to bikers and runners who race using artificial limbs. Just like me, these challenged athletes want to participate in athletics and feel the rush of competition, but they face a major obstacle. They do not lack fitness, desire or skills. It is only a lack of funding that stands in the way of their dreams.
High tech running prosthetics are very expensive. Learning to swim when you lack a limb (or limbs) requires special coaching, and handcycles can cost upwards of $2,500. With our help, challenged athletes can bridge the financial gap and overcome funding obstacles blocking their path to athletic achievement. That is why I am challenging myself to make a difference in their lives. Please partner with me by making a donation through my web site link below. Join me in making dreams come true for challenged athletes. Give the gift of sports and help get challenged athletes off the sidelines, and into the game.
Here is the site to donate:
https://www.kintera.org/faf/donorReg/donorPledge.asp?
ievent=263019&lis=1&kntae263019=3D7B30C3E41F4EA984099332ADF64C22&supId=213288584
Just highlight it then copy and paste! It is one link but on two lines!
Thank you for your support!!!
Tyler Copley
wcopley@student.highlands.edu
-Tyler
___________________________________________
I am taking on the challenge of a lifetime and I am writing today to ask for your help. By you donating, you help my fundraising efforts and help me reach my goal. Together we can help people with physical challenges realize their dreams. Your donation will go to the Challenged Athletes Foundation; an incredible 501(c)3 nonprofit organization that provides funding and inspiration to hundreds of physically challenged athletes each year so they can participate, compete and live life to the fullest.
When I arrive at the 2008 15th Anniversary San Diego Triathlon Challenge Oct. 26th, I will bring my wetsuit, my bike and my running shoes. But the money I am raising, and the funds you are donating, will support athletes who can’t always get to the starting line: swimmers missing limbs, paraplegics who use handcycles to bikers and runners who race using artificial limbs. Just like me, these challenged athletes want to participate in athletics and feel the rush of competition, but they face a major obstacle. They do not lack fitness, desire or skills. It is only a lack of funding that stands in the way of their dreams.
High tech running prosthetics are very expensive. Learning to swim when you lack a limb (or limbs) requires special coaching, and handcycles can cost upwards of $2,500. With our help, challenged athletes can bridge the financial gap and overcome funding obstacles blocking their path to athletic achievement. That is why I am challenging myself to make a difference in their lives. Please partner with me by making a donation through my web site link below. Join me in making dreams come true for challenged athletes. Give the gift of sports and help get challenged athletes off the sidelines, and into the game.
Here is the site to donate:
https://www.kintera.org/faf/donorReg/donorPledge.asp?ievent=263019&lis=1&kntae263019=3D7B30C3E41F4EA984099332ADF64C22&supId=213288584
Just highlight it then copy and paste!
Thank you for your support!!!
Tyler Copley
wcopley@student.highlands.edu
-Tyler
Other than that I am just finishing up school in the next week. Then I have a week's break and I go back to school for May and then June/July sessions.
-Tyler
Tyler has been doing the usual stuff- school, volunteering at HHS, PT, etc... The only snag for this week has been that on Saturday Tyler was walking and couldn't figure out what this crackling noise was. He soon realized that his socket had come apart at the base. Not totally- the carbon fiber outside came loose from the wooden base that attaches to the prosthesis. (They weren't too happy about this up at the clinic at Scottish Rite. They had sent Tyler's socket out to another company to have it finished because they got into a personnel jam during that time. Guess they won't be using that company again!) So, off to the clinic we went to have it fixed. They will have it ready tomorrow, and until then Tyler has been crutchin' it. He's not too happy about having to go to school without his prosthesis but he made it just fine.
Thanks for continuing to check in with us. We couldn't do it without all of you!
Connie
-Tyler
________________________________________________________________________
You can now write and go to the guestbook again! We got it taken care of (I think!).
Anyways, there’s not a lot going on. I just got up on an actual bicycle again. Mr. Paradiso, who does tours (think tour de france, basically races or rides), and I, are working on what will be best for me. It is all trial and error right now! Seeing what works best, getting the seat adjusted, what shoes are right, what kind of pedals, trying out a couple different styles of bikes, etc.! Right now it’s just in the parking lot at an elementary school near our house.
I was trying stuff out on Sunday, in 40 degree weather by the way! Anyways, after I was done, Mr. Paradiso asked if I wanted to ride the 0.2 miles from the parking lot to his house. I learned that on one side of the street there is sidewalks all the way down, but on the one I went on it ends at the first entrance of our subdivision. Well Mr. Paradiso was following me in my car, and I got to the end of the sidewalk and discovered there were about 5 cars behind him, so I told him go ahead and I would be there in a minute. Well as soon as the line passed me, I went to pedal and sort of wobbled. Well I fell right in the middle of the street with an SUV staring at me. I didn't get run over, but the SUV stopped about 15 feet short! It scared me a little bit. SHE backed up a little to give me some room to get up. The problem was my knee was in biking mode (no hydraulics) and it was also tied in with a theraband. It took me about 45 seconds to get up and over so people could go again. Worse of all, the lady honked at me as I struggled to get to the other sidewalk (12 feet away maybe), then she came as close as she could to me without hitting me. Mr. Paradiso obviously saw it in his rearview mirror and circled around to help me out. I bet 10 cars passed me and none of them offered to help me! Not even the people 20 feet away doing landscaping to the subdivision entrance. They just looked and stared at me!
Anyways, I hit my head (but had a good helmet on) so I have some whiplash symptoms to go along with my horribly sore back. Getting a massage on Thursday, but that seems a long time from now!
PT seems to think that if I swim the soreness will go away. And on that note I report...I have received my first piece of gear today in the mail. I got 2 cross-training flippers, so if there is anyone out there that is looking for 1 cross-training flipper, I have a spare! I may just rotate them so they don't get worn out as fast. Or swim with only one, and then use the other when I need a new stiff flipper to boost my training. I like that idea better than selling one haha. The wetsuit is already ordered and on its way, so I should be able to start training in my full swimming gear soon.
JUST REMEMBER...BE KIND TO CYCLISTS ON THE ROADS!!!
Please see the UPDATED announcement below regarding helping me in my journey to do triathlons! There are a lot of items that aren't ordered yet due to lack of funds! Anything you can do to help me out is appreciated!
Thanks!
Log
Biking- 50 miles
Swimming- 3 miles
-Tyler Copley
wcopley@student.highlands.edu
404-395-6146
__________________________________________________________________________
For those of you who are interested or have asked about how you can donate to my quest to do triathlons...well this is for you.
My first triathlon will be the San Diego Triathlon on October 26th. I will be the swimmer on our team (my prosthetist running, and our captain, a Californian prosthetist, doing the biking)
Obviously I live nowhere close to San Diego, and the only logical way to get there is to fly. Stuff adds up quick (airfare, hotel, etc.)
Plain and simple, doing triathlons is an expensive sport! I am prepared to do it anyways. It is a sport where you have to eat up a lot of costs. But once I do a couple triathlons, companies will want to sponsor me, and that's when I get all that stuff above for free basically, as I am on a team. Think about it. An amputee who is doing triathlons. Does that scream public advertisement or what? Companies are willing to eat up the costs if it brings them more money in the long run.
My physical therapist's company, PT Solutions, has a team and it looks like come triathlon season 2009 (May-November usually), I will may be on that
team, if I don't get a offer from another company. With the intent of either going to compete for Challenge Athletes Foundation (CAF), PT Solutions, or another team that's close to my heart. If I could raise a lot of money for CAF that would be fantastic! Same for PT Solutions, or some company that has helped me get this far. I am not really interested in competing for some company like Frosted Flakes, Crocs, Kellogg’s, M&M’s, FedEx, UPS, Kroger, etc. or big company teams...unless I can do triathlons professionally and then get the word out about CAF or PT Solutions and help them out like that.
Right now my biggest need is a wetsuit. They are predicting 56 degree water. For those that don't know water temps, that is downright freezing haha. I have already got a wetsuit ORDERED!!! (http://www.wetsuit.com/store/detail.cfm?product_id=512). Keep in mind I will be able to use the wetsuit in other triathlons, but there are a lot of "upfront" things that you need to start out with. I really need to get the wetsuit and other gear soon, so I can start training with them.
I am working with my physical therapist and Mr. Paradiso on trying to secure/buy biking items (bike, clip shoes, pretty much anything involving the biking part of triathlons). I also started practicing on a real bike that is rideable for me with a guy in our neighborhood, Mr. Paradiso. It’s tough to get used to but being it my first time with most of the equipment, I did phenomenal!!!
I am trying to fundraise as I want to EARN the donations. So I will be keeping a log and will update my totals frequently so you can follow my training.
Any donations would be appreciated!!! Please email me at wcopley@student.highlands.edu OR call me at 404-395-6146 if interested.
Thanks a ton guys!
-Tyler
Unfortunately Tyler's site has been compromised by some crazies. So until I figure out how to increase the security level without having to send a password to the many supportive readers, I wouldn't even go to the guestbook at this time.
Your welcome to still email Tyler at the address below though!
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For those of you who are interested or have asked about how you can donate to my quest to do triathlons...well this is for you.
My first triathlon will be the San Diego Triathlon on October 26th. I will be the swimmer on our team (my prosthetist running, and our captain, a Californian prosthetist, doing the biking)
Obviously I live nowhere close to San Diego, and the only logical way to get there is to fly. Stuff adds up quick (airfare, hotel, etc.)
Plain and simple, doing triathlons is an expensive sport! I am prepared to do it anyways.
Right now my biggest need is a wetsuit. They are predicting 56 degree water. For those that don't know water temps, that is downright freezing haha. I have already got a wetsuit in mind (http://www.wetsuit.com/store/detail.cfm?product_id=512). Keep in mind I will be able to use the wetsuit in other triathlons, but there are a lot of "upfront" things that you need to start out with. I really need to get the wetsuit and other gear soon, so I can start training with them.
I am working with my physical therapist on trying to secure items (bike, clip shoes, pretty much anything involving the biking part of triathlons). I also started practicing on a real bike that is rideable for me with a guy in our neighborhood. Its tough to get used to but being it my first time with most of the equipment, I did phenominal!!!
I am trying to fundraise as I want to EARN the donations. So I will be keeping a log and will update my totals frequently so you can follow my training.
Any donations would be appreciated!!! Please email me at wcopley@student.highlands.edu OR call me at 404-395-6146 if interested.
Thanks a ton guys!
-Tyler
-Tyler
Having a great time in Florida still! We saw the Red Sox had a boycott going on today (for a good reason) and started about 70 minutes late. The game got started and it was a great one! Down in Fort Myers and have a night game tomorrow to see the Twins! After that we are headed home!
-Tyler
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We are down in Florida. We had a great time at the Wide World of Disney where we saw a great ball game between the Braves and the new "Rays"...Today we burnt up in the sun to see the Astros and the split squad New York Mets. We are sitting pretty at Grandma Magley's house with my cousin Carrie and her boyfriend Grant. Tommorow we see the Nationals take on the Mets. This time hopefully we will see some of the starters for the Mets. Plans have kind of changed so I don't know what we are doing afterwards. Tuesday is a travel day to Ft. Myers to see the Twins and Red Sox (Wednesday and Thursday). We are hoping to go deep sea fishing and possibly coming back over to Titusville Friday or Saturday to see Carrie's sister Katie, her husband Brian, and their son Luke.
Until then, Stay Class San Fransisco!
-Tyler
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Happy Palm Sunday to everyone! I believe that it is finally going to be a beautiful sunny day here in Atlanta. Hallelujah!
Todd and Tyler have gone to the sunshine state for a week of relaxation and BASEBALL! Spring training is in full swing and they intend to get in as much game time as they can. I imagine that Tyler will update sometime while he is on the road or soon after they return home. He can fill you in on all of the glorious details. For now, please pray for their safety and that they return safe and sound, happy and rested!
Connie
I also saw the orthopaedic people too. Turns out it is broken/fractured after all. We took the cast off and I am in a combo of 3 removable splints. So I won't have a cast while going to Florida, but will probably get one at the end of the month, but only for 3 weeks or so. I am hoping that it will be semi-healed at that point.
Oh and last night for St. Baldrick's, I got to shave one of my "hippy" friend's head. There was quite a bit of hair. I had some fun with it and I will post pictures soon.
Got nothing else for ya...
-Tyler
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The good news: I am in a waterproof cast so I won't be set back anytime on my quest to do triathlons.
Bad News: I thought I would be extra stupid and got it in black...just in time for me to head to Florida for some MLB Spring Training..Black
= extra hot...
-Tyler
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Anyone who has lived around us knows that SOMETHING is ALWAYS happening at our house. We've just gotten lazy about letting everyone else in on our happenings.
Let's see- since the 15th- Kirk had his 15th birthday complete with a few boys spending the night and getting into general 15 year old boy stuff- hours of guitar hero, running around the neighborhood and back woods, and lighting off Kirk's homemade smoke bombs. Who knew that some sugar and stump remover would make such a cool display for us?! (I think we have a chemical engineer on our hands.)
Todd celebrated his birthday on the 20th. Poor guy had to fly all night that night and for that matter all week. He's been busy at work!
Sara is still dancing all the time. Says her NEW pointe shoes are already too small- three months old and at $75 a pop she just gonna have to shove those growing feet into them anyway! She had a dance competition this weekend in Buckhead; we stayed at the Grand Hyatt over night. They looked great and earned high marks for their efforts. I am very proud of her hard work. She even participated in an audition- danced, sang, and spoke some lines by herself in front of 5 judges and about another 200 people! Yes, I am so proud of her for doing that!
Now for Tyler. He is still going to school twice a week, working at HHS twice a week when appointment schedules allow for it, and still going to physical therapy about three times a week- and going to the ymca too. He has his good days and his bad days with pain and muscle spasms. Getting his socket has been delayed by two weeks (bummer!) because they felt like they needed to make one more test socket and then one of the techs has been out of work this week, so…. That put us another week behind. We are praying the much of his spasms and pain are caused from the old socket not fitting well anymore, and that getting one that fits well and isn’t the locking mechanism type will help immensely. Tyler saw Dr. George last Wednesday morning for a general physical and to get his zometa. He thinks that since he has been on it for a year now and Tyler is still doing well cancer-wise, that he can get the zometa every three months now instead of every month. Yea!! He also told us that Tyler’s pulmonary function test showed some signs of decreased lung function with radiation to the lungs being the culprit. So now we’re starting to see the long term effects of all the crap that they put into his body to save him. Dr. George is supposed to be talking to a pulmonologist to review Tyler’s tests and see if he should be followed by them also. Oh yeah, another doctor to keep up with! I haven’t heard from Dr G. yet so I don’t know if that means that we don’t have to see a pulmonologist or if the good Dr G. is just to busy to get it done. I suppose I’ll be calling sometime next week if I haven’t heard from him.
So the excitement started after we got home from Dr. G’s office. Tyler walked into the garage and as he says, “his prosthesis gave out on him and he whiffed!” His right wrist was hurting but he got ready and went to the ymca anyway. While he was there he slipped getting into the hot tub! Then he was off to physical therapy where they determined that his wrist should be x-rayed because it was now swollen and black and blue. So off to urgent care we went. No signs of a break, but badly bruised and painful. Now when he goes to P.T. they work on his wrist too. And, just because we don’t have anything better to do Friday afternoon, we will see ortho at 3:45 to make sure that something isn’t torn in his wrist. (It’s not much better yet!) Can you hear the excitement in my writing that I get to drive downtown and come home about 5:30 pm?!?! Yeah, and you all thought that nothing was happening here in happyland USA.
By the way, that storm last Tueday morning… blew one of our 75 foot trees right toward our house at 6 am. God knows I could not have stood much more though so He let it fall right where there is a tree blocking Sara’s windows. It hit the other tree instead of Sara’s bedroom. Todd has finally gotten the tree cut up and stacked, but the rest of us have yet to pick up the other sticks that fell in the back yard. (I thought that Dakota and Shadow might figure out a way to drag them all to the fire pit for us to burn! I guess not. And as Forest would say, “That’s all I have to say about that.”
Hoping for a quiet weekend,
Connie
-Tyler
That makes two really good friends that have died or had a funeral on my birthday! I miss you Stephanie! Take care of my boy Herbert for me! I love you both!
Up until the news today, I was having a below average birthday anyways. I was going to actually go visit Herbert when I got the news!
I will be okay. Please pray for the Shaw family!
-Tyler
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So I tentativly am planning to be a swimmer on my prosthetist's team. I am going to need to do some major fundraising...more on that at a later date! It is on October 26th. It sounds like I am gonna need to plan on raising funds.
-Tyler
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I am almost over my breathing problems!!! The inhaler and breathing treatments I have been taking seem to help it out!
My 19th birthday is fast approaching (Feb. 10th) and I can't wait! My address is below for those who want to send a card.
Tyler Copley
47 Pritchett Lane
Powder Springs, GA 30127
I got to go to the Thrashers game last night with my camp counselor Scott. We had a phenomenal time, but a win would have made it a lot better. We got to go up to the press box, and then got to meet the players that weren't playing that night. I had never met Colin Stuart before (looks like he got sent back down to the minors today, but he will be back soon!). He was a really nice guy, and we talked mostly about hockey (he has 2 brothers that played with him at Colorado College, and now in the NHL).
I have met Mark Popovic before. I have been a fan of his for years now, even before I met him. Even when he wasn't in the Thrashers organization, but with the Mighty Ducks of Anaheim (I think he played the role of Adam Banks haha). He is still the same classy guy that I talked to when I met him during Hockey Fights Cancer night when I dropped the puck. We talked for a bit, and I told him about how I am training to do triathlons. He jumped on the support train, and was really supportive of the idea, and gave a more power to you type attitude. Like I said I have talked to him a couple times this year, and have picked his brain on hockey, and life in general! Mark if you are reading this, YOU ARE A GREAT ROLE MODEL, AND A CLASS ACT GUY!!!
Then I got to sit with my inside contact, Rob, for awhile. Thanks go out to him! He really did a great job, getting Scott and I up there to meet the guys.
On the other hand, I went to physical therapy today. It’s been 6 days since my fall. My right leg is still really sore, and the pain has been radiating upwards for the last few days. Anyways, my physical therapist seems to think my MCL is strained and possibly torn. I had just attributed the soreness to the splint I was in. Hopefully this won't set me back far in my quest to do part of a triathlon this summer.
It is tentative, but I may be going out to California to be a swimmer on my prosthetist team sometime this summer. It’s up in the air, but the plans are getting into place.
I am also getting a new socket finally! I will update more once we get the test socket made. The one I have now (the screw and lock) is not my favorite thing in the world. It is starting to make my stump turn purple at the end which is not good!!! The new socket will consist of a suction type socket. Its kind of a bridge, to a full on suction socket, which I will get sometime down the road!!!
Happy Mardi Gras everyone!
-Tyler
Please keep the family of Holly Young in your thoughts and prayers. The world lost another great person to Ewings sarcoma at the age of 22.
She played volleyball at the University of New Hampshire. She lived on Cape Cod, Mass., and naturally was a diehard Red Sox fan like I was. We kind of met by just being outspoken Ewings patients who rallied for research. Her dad sent me some research he's done as an engineer, on Ewings and Cape Cod today. "The Cape" probably has the worst epidemic of Ewings in all of history. The literature by Mr. Young is the most phenomenal independent research I have ever come across.
I encourage you to go to the following site (Red Sox player, Curt Schilling’s blog) to read his Jan. 30th entry. It is a letter Mr. Young addressed to whoever it may concern. The site is:
38pitches.com
Rest in Peace Holly!!! (12/6/1985-1/24/2008)
-Tyler
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Thank God it is February!!! After a rough January, I decided to change the look of the site, to see if that will help!!! I will see how it goes, and may go back to something else...
Hey everyone. We had another "fun night" last year in the Scottish Rite ER. (1/31/08, so January just had to get one punch in right before the bell (boxing metaphor)...
Back Story-
I had fallen asleep with Town House crackers in a bowl the night before, and there were a lot of crumbs when I woke up. I had appointments from 10am-5pm, so when I got home while Mom, Kirk, and Sara were gone for dinner I thought I would be responsible and sweep and change my sheets etc. (doing it one legged or without my prosthesis because the socket has been hurting me lately. I am getting a new socket in the next few weeks though!!!)
Last night at 6pm or so Until 1am-
Mom had taken Sara and Kirk out to eat after a long day when her and I were at ortho and prosthetics appointments from 10am until 5pm or so, plus a stop in at Olive Garden (yum). Anyways I was making up my bed, sitting in the middle and just putting the cover sheet on(without my prosthesis since I was in bed) and I stepped off awkwardly. I've made my bed like that before... I was sitting on the end of the bed, and stepped off my bed wrong with my right leg. I heard a snap and when you hurt your leg bad like that the natural reaction from my brain's point of view was to get off of it. Well I am obviously missing my left leg (but my brain still thinks it is there). So went to step on my left leg I whiffed and I fell towards the ground. To break my fall (no pun intended) I fell on my wrist. Mom wasn't home and the phones were on the other side of the bed. I was also having trouble breathing before this even happened (really wheezy). So eventually enough oxygen just didn't get to my head and I slowly passed out for 15 minutes or so. Mom came home to find me on the other side of the bed, and I think I woke up because the garage door was shaking my floor and it hurt. I was 99 percent sure I broke it and also worried about my wrist but wasn't sure about breaking it. So we had the fire department with the EMT's and then an ambulance came on out to join in on the fun.
The local firefighter (EMT) that showed up was the same guy as when I broke my left leg in August 2006, as was the guy riding in the back of the ambulance. Very eerie. There wasn't much going on in my head cancer wise, or any other way which is good! I was just being Tyler and distracting myself by talking with the guys.
The firefighters Lieutenant actually died of Ewings Sarcoma (age 31 which I don't know anyone that old that has survived it) a year or so ago...They back boarded me and put me on my new clean bed :-) ...Meanwhile I am still having trouble breathing due to bad wheezyness. The ambulance showed up and then they transferred me to the bed. Then into the ambulance where I finally got two nebulizer treatments (for those who keep score that's 4 albuterol inhaler puffs, and 3 nebulizer treatments total). It helped some but not much.
We were headed to Kennestone when they diverted me to Scottish Rite. The people there were really nice. They got me x-rayed (8 pictures, fingers, wrist and right leg (tibia/fibula)...It hurt like all ba-gee-bee's but I was very controlled as my high pain tolerance saved me from some of the pain.
The x-ray's came back "not guilty on all charges" PRAISE GOD!!! When I took the splint off my wrist it quickly stopped hurting as bad as it was. Its a little tender but good to do daily life things. As for my leg taking off the splint helped it also, but its really sore/sprained...so I will be off my legs (prosthesis included) as much as possible for the next few days to let it heal!
My right leg is my life line so I can't imagine what it would be like with an amputated left leg and a broken right tibia...Anyways it just hurts really badly, and I am going to be staying off it for the next few days! BUT I WILL BE UP AND AT 'EM SOONER THAN I EXPECTED!!! I gotta vote Tuesday you know, as do all of you in Super Tuesday states. Oh and the super bowl is Sunday!!! Time to make some money!!! :-)
I added a link to the bottom of my page. It is the fundraising page of a couple who is running the ING Marathon in honor of me. It’s a great charity, which gives 100 percent of the money to fund CHILDHOOD CANCER research, so please feel free to donate in my name! Thanks.
Please keep the family of Holly Young in your thoughts and prayers. The world lost another great person to Ewings at the age of 22.
Also please don't forget about my buddy Austin. He is at MD Anderson in Houston right now, where they found more tumors on his liver, lungs, spine and a couple other places. HE NEEDS LOTS AND LOTS OF PRAYERS!!!
Until next time...
-Tyler
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Just another quick update!
I had the time of my life at the NHL All Star Game!!! It was fantastic! Lots of goal scoring because there was no checking (except Kovy, but he is the hometown guy so he gets a pass!)
Just living life to the fullest! I am still training hard for those triathlons. Keeping busy with school and physical therapy! I am also seeing what I can pull off with my inside Thrashers source, regarding a game I am going to with one of my Camp Sunshine counselors. You never know what you’re going to get with me. I don't even know what I am in for yet! I am sure you will hear about it afterwards though (Feb. 5th is the game...also see below...Feb. 5th is Super Tuesday as well as Mardi Gras!)
I phoned people in Florida for the primary there today (1/29) on behalf of a certain candidate :-)...As if my endorsement on this site is equal to that of an endorsement of a major newspaper haha! Either way my mouth is shut, so my site doesn't spark political debates (because you know I would shoot back, esp. when it comes to politics haha!) I am sure that things will heat up politically come Super Tuesday! Be sure to vote in your Presidential primary, and don't complain if you decide not to vote!!!
-Tyler
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So I couldn't resist!
My unofficial endorsement goes to... Ron Paul...That's unofficial, and only if I happened to die at the booth haha!!! :-)
My OFFICIAL endorsement goes to John McCain!!!
McCain is most likely a one term president...Whoever wins this Nov. (Democrat or Republican) will be out of office come Jan. 2013...America will be sick of the people that are the ones that are most needed to run our country today (i.e.: Bush, McCain, Condoleezza Rice, Colin Powell and all the Generals plus the others in Washington DC on the same general train)...
Hopefully most of the issues will be at rest by then. Until then we need someone who can run America today, and not make fatal consequences (Hill..I mean Bill Clinton, Ron Paul). Barack Obama has an outside shot of not running the country into the ground!
It is sad that the GOP has to elect a president during war time, but McCain will trump anyone when it comes to being the "President during war time"! I realize the election is not all about the war, and so does McCain. Yes he has his issues just like everyone else, but he is probably the 3rd most influential person when it comes to this war and the foreign policies.
1. The President
2. Colin Powell (Bush still goes to him more than you think)
3. McCain
4. The Joint Chiefs of Staff
(Notice Dick Cheney is absent...like always haha)
McCain is independent of the cabinet though...he has his views on issues and he could only do so much as a senator. If he is elected there will be a lot of people hounding him for what he does, but honestly it is probably what is best for our country in the long term. People don't like that McCain has been so influential in the war, and that they think he "has been in Washington too long"...They also seem to not like that Bush has gone to him in the past regarding war. They are "sick of Bush, and everyone that is close to him"...
Harry Truman may not be one of the most famous presidents...but he reshaped the way America is viewed as a Military power. He was a "replacement of the most effective President"...yet he overtook FDR for the spot of most effective President, and has held off everyone but Reagan since.
America doesn't need a superstar, they need someone that can take over day one and not let the time lag between Presidencies affect them at all.
Huckabee has never held a job that has really meant much in my opinion.
Stick a fork in Rudy he is done... Romney will switch back to the Democratic party if he loses the primary vote :-) hopefully?!?!?...Romney won't ever represent the GOP in office again whether that is on a state or national level...if he loses the primaries I think he is done as a Politician...simply because he sits on $250 million and isn't the best politician to begin with (see John Kerry)
Whatever your views are, I encourage you to dig deep into the issues, make time to research stuff, and most importantly VOTE! If you don't vote then you can't complain...
McCain will be on the ticket come Nov. mark my words...whether as President or the VP, he will be on the ticket!
Any Republican candidate that wins in November will only be a one term President simply because come 2012, America will be different, and the USA will want change after 12 years of mostly wartime Presidents.
At this point, from a unbiased view, I am predicting a McCain/Giuliani ticket. Rudy gets the nomination in 2012/2016, depending on whether or not McCain wins the Presidency this year. Obviously if McCain wins in 2008, he will get the nomination in 2012 UNLESS he doesn't want re-election, which very well might happen!
I STRONGLY ENCOURAGE you to get out and Vote McCain 2008 next Tuesday (2/5/08) or whenever your Presidential Primary is!!!
-Tyler
All is well for now. I can't wait for the NHL All-Star Game and festivities come Saturday!!!
-Tyler
My buddy Herbert Shaw Jr. has medullablastoma (brain tumor to begin with), that I believe is now in his neck. He had relapsed in August and WAS about to undergo a Stem Cell transplant, but apparently pulled a "Tyler Copley" on that issue. They tried to get them out, and God led him another way, just like I was! Sounds like it was just a different plan. He is finishing up radiation while in the hospital. I guess there was another "relapse" recently!He is a dear friend, and I really need all you prayer warriors, to add him right after me or before me!
Also Cameron Street...he is a carbon copy of what I had with my fight with
cancer. Ewings Sarcoma when he was 13. Just relapsed at 14 on the spine
(possibly lungs also), and now is fighting a VERY uphill battle as I had to
do. Me being there myself at one point, there are alot of mind games you
play with yourself even though you won't show outward signs of it to others
and it doesn't relate to the cancer cells (depression and feeling helpless,
dealing with feelings and thoughts related to dying, etc.). He needs alot of prayers. For a STRONG will to defy impossible odds, peace of mind, and peace with death, specifically! He is going to have to look death in the eyes before any treatment will work unfourtunely...That's how it goes with relapsed Ewings...
I used every last one (prayer) that was offered up when I was fighting my
battle with Ewings and still do!!!
Herbert is my cabin best buddy, is also my age and we can confide in each other, are open with our faith, and have each other's back's .
Oh yeah and we are in the works of "writing a book"! :-) Right now its just a lot of stories (i.e.: My trip to Wisconsin with Grant Wistrom in 2003) and typing. We are just typing it out and will get together and edit it at some point. All at a later date...I am too OCD about editing and re-editing and editing again haha...I spent the whole weekend typing away then my OCD editing came into play :-( !!!
Herbert is a great kid! No doubt about that!
I was introduced to Cameron recently, but I know where he is standing at
mentally and cancer wise. It sucks (nicest way to say it)...I don't know Cameron personally (spoke over the phone) like I do Herbert.
And with Herbert, it ain't no walk in the park either :-)
Please keep them both in every prayer you pray over the next few weeks!!!
Especially prayers for Herbert to be able to sleep! He hasn't slept in days. I am going to send him the name of my pill that knocked me out while inpatient. Just to feed him the info and let him run with it. I will update more often and include him in my posts when I get the updates when talking to Soulja Boy (aka, Herbert)!!!
I will talk to him everyday and will update the next few days.
He has a CB site.
www.caringbridge.org/visit/herbertshawjr
It is new and isn't updated often...yet! He has been doing other stuff (i.e radiation). He will catch on. We spoke on the phone and he was in the process of updating it supposedly..
Thanks.
-Tyler
Caringbridge has this weird thing where if a percentage sign is in the update, it recognizes it as "the end" basically. Somewhere its encoded into a code to do that, but only on Caringbridge because that's what they use as "the end of the update" basically.
I had people freaking out and calling/texting me because they read it as if "I was still able to hit the brakes at like 95" (mph) ... instead of "I was still able to hit the brakes at 95 percent..." that's where it left off!
It was minor accident but left damage.
As for me, I am living life like I haven't been able to in years.
I am running around with my head cut off with class and homework, and dealing with the accident, fixing the car, AND HAVING TO RELY ON MY MOM FOR TRANSPORTATION AGAIN!!!
Having all that stress from NORMAL living is nice compared to medical stress...except for the lack of transportation right now for the next few days...
Another issue...
This is copied and pasted from the last entry to inform you:
"the end of my stump is dark purple and tissue cells are dying and there is a lot of flaky dead skin cells. Not sure what cause it exactly. Most likely the way my liner fit into the prosthesis or something along those lines (suction)."
Well I saw the prosthetist at CHOA-Town Center (Its closer to our house for you out of towners, finally an appt not downtown). Anyways first he measured and my leg is getting to big. So he suggested I take out the flexible plastic stuff in between my leg and the prosthesis to fit my leg. Unfortunately, that is also there to make the hard carbon fiber composite not dig into my skin!
Anyway due to the dark purple discoloration (aka prosthesis hickey haha) that I shouldn't wear my liners or prosthesis until it gets better. Fortunately, my physical therapist has me doing stuff to help it. It has changed a lot already. He is doing a massage ultrasound (it helps get blood flowing) and I had bought a gigantic "ice pack" (its filled with clay like stuff) before and now I am using to ice my stump cap every so often at home. We have to throw it in our deep freezer and boy does it get cold after sitting overnight! I hope to be on the prosthesis again Monday!
And I am back on crutches because of my ordered "prosthesis rest". It’s that or hopping and hopping gets old really quick (plus its unsafe)! It takes twice as long to do stuff on crutches. I was hoping to put the days of relying on them behind me for awhile...and I don't have my "crutches calluses" in my ribcage anymore, so my sides are sore!
The good thing is I am doing well and love this new found life of being busy. Compared to being in of my bed watching TV most of the day!
I am procrastinating on doing my homework...It is like I always like to say...
"Procrastinators UNITE!!! ...tomorrow!"
I was on the house phone from like 11am-3pm with a Camp Sunshine friend who's family is really good friends with a 14 year old that has relapsed Ewings.
I am the go to guy on that issue, so various phone calls needed to be made!
And texting people I was okay here and there at the same time...At this point, I will talk to you but in less than 5-10 minutes at this point...I have homework...I will text you if it is not going to be a conversation! Call me Sunday (1/13) if you want...I am headed to physical therapy tomorrow morning (Sat. 1/12), and a Thrashers game in the afternoon!!!
Later Gators...
-Tyler
1st the Bad News…
Unfortunately, my beloved Buckeyes lost in the championship game for the 2nd year in a row. Due to some bets, I may be seen in SEC clothing They are the most dominate conference top to bottom! No doubt about it!
Good news…
After missing my first day of college due to being in the hospital, I was able to go today! Yea! One more goal I have achieved that I fought so hard to be able to experience!!! I was running around with my head cut off though because I had so many questions that needed to answered… Needed to know where security, the library and bookstore were located…Talk to security about me being able to park in handicap spots. Provided him with my name. Then went and got my stuff from the bookstore. Talked to the professor in her office during office hours about what I missed etc. …then had to get crucial info I needed printed off in the library…then made it to class with 5 minutes to spare!!! Woo Hoo! Go Tyler!!!
Afterwards….Bad News…
I was headed to physical therapy and got in a MINOR wreck. Some SUV was stopped attempting to turn left and a Honda hit the SUV hard while talking on a cell phone...well I swerved and my non driving leg prosthesis went sliding and got stuck under the brake pedal but I was still able to hit the brakes at like 95 percent...I was way far behind the Honda...well then I hit the Honda at like 10-15 mph...the SUV had hardly any damage. The Honda had some front bumper and back bumper issues but were very little damage. Me...I have a Buick Century (aka, a brittle/breakable car)...My whole front end is messed up, 15 MPH!!!!
Boy when life hands me lemons...they just plain SUCK!!! If it’s not one thing it’s another. I could be in a hospital after the crash with bad injuries but dang, can I catch a break sometime in the near future...oh yeah and I get a "Following to Close" ticket which I won’t contest even though it was not the case due to a judge not buying my side of the story. Pay the fine and put it behind you…
I am okay compared to what I have dealt with lately. Pain is relative!!! Anyways my port is bruised from the seat belt strap…
Smile, Smile, Smile…All I can do is laugh!!!
Then I finally get to physical therapy and the end of my stump is dark purple and tissue cells are dying and there is a lot of flaky dead skin cells. Not sure what cause it exactly. Most likely the way my liner fit into the prosthesis or something along those lines.
Keep up the prayers. A lot were answered today when I set foot in that class room!!! They are still needed!
-Tyler
Thanks for everyone's support. I am now going to watch the Buckeyes beat LSU...it is on TiVo so i am a few minutes behind but Chris Wells on the Buckeyes just ran 65 yards for the first TD!!!
-Tyler
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So I am hoping to be home to watch the big game! Ohio State vs. LSU for the national championship! It would lift my spirits so much if Ohio State won. For all you people who are on the fence for who to root for...please pray that my beloved Buckeyes will pull out a win for my sake and my possible health. You never know what might help pull me thru and give me an extra boost of fight or will to live. I think an OSU win will help alot in my case, just like it did when they won in 2002 when I was battling the cancer then! We are against LSU, who is proably the best team in the nation, and I am the first to admit that! I really just want to get home as fast as possible so I can root them on from my own home compared to where I am now!
Please call or text me if you are reading this. I need people to distract me! Thanks!
GO BUCKEYES!!!
-Tyler
404.395.6146
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