Wednesday, August 4, 2004 7:08 AM CDT

At about 10:30 last night Brandon, surrounded by love and prayer, went home to be with his heavenly father. I feel so blessed to have been a part of Brandon's life and to have been there when he walked home. Life will never be the same but I look forward to the day when I will be able to walk in heaven with him and see his smiling face once again.

Once funeral services have been determined I will keep everyone posted.

Please
PLEASE, don't ak us if we are over it yet.
We will never be over it.

PLEASE, don't tell us he's in a better place.
He isn't here with us.

PLEASE, don't say at least he isn't suffering.
We haven't come to terms with why he had to suffer at all.

PLEASE, don't tell us you know how we feel
unless you have lost a child.

PLEASE, don't ask us if we feel better.
Bereavement isn't a condtion that clears up.

PLEASE, don't tell us at least we had him for so many years.
What year would you choose for your child to die?

PLEASE, don't tell me God never gives us more than we can bear.

PLEASE, just say you are sorry.

PLEASE, just say you remember Brandon, if you do.

PLEASE, just let us talk about our precious son, brother, nephew, grandson, cousin, friend.

PLEASE, just let us cry.


We love all of you and appreciate all the prayers and support you have shown throughout this struggle. Please be mindful and respectful during this time of grieving and understand that sometimes we just want to be alone.

God Bless,
Susan

Tuesday, August 3, 2004 7:54 AM CDT

Brandon experienced complications just before surgery and was therefore unable to have the trach put in yesterday. I am at a loss for what to say....

Lord-
We just ask for guidance, clarity of thought, insight and peace for the direction needed. We are all feeling alone and abondoned. We all kow you are still beside us but help us to be more aware of your presence and what you might be trying to teach us through this crisis. You know how much we are all hurthing Lord and how afraid we are - we all need your strength and presence Lord.

Please continue to keep everyone lifted in prayer and understand that just because it is often very difficult to talk, we know everyone is praying for us and we sincerly appreciate the support and continued understanding that visitors are too much right now.

God Bless,
Susan

Sunday, August 1, 2004 7:17 PM CDT

Just a quick update to keep everyone in the loop. As you know, Brandon was unable to have the trach put in this past Thursday however, he will be going in for surgery tomorrow morning at 9:30 to have the procedure performed. He will also have the necessary catheters put in at the same time.
Although his kidneys are producing normal levels of urine they are not yet doing their full job of removing all toxins etc, from the body. Please continue to pray for the following:
1. Kidneys to continue getting stronger.
2. Successful surgery.
3. Lungs to get healthy and strong!!!
4. Peace and Faith for all.

Again, I am sorry to say that Brandon is still unable to receive visitors however your prayers, cards and web posts are more than appreciated. We all appreciate your understanding and support in this decision.
God Bless and Keep praying as I know God hears our prayers and we are only 1 miracle away from complete healing!
God Bless,
Susan

Thursday, July 29, 2004 9:25 AM CDT

The Doctors will be stopping the diaylsis machine today. All test indicate the kidneys are regaining normal function. So they feel its time to challenge the kidneys.

Due to some complications yesterday with the lungs, the surgery is cancelled for today. This will be addressed on a daily basis.

Specific prayer requests:
-kidneys to function well
-lab tests to be within normal limits
-lung function to improve
-wisdom for Doctors and Dawn and Steve
-for the family to feel Gods Love and Comfort
-WBC count to continue to go down
-Comfort for Brandon's body

Romans 8:28 "And we know that all things work together for good to them that love God, to them who are called according to his purpose."

In Christ Love,
Rachel

Monday, July 26, 2004 5:48 PM CDT

We Praise God for what He was done in Brandon's life and for what He will continue to do.

James 1:5 "If any of you lack wisdom, let him ask of God, that giveth to all men liberally."

The Family had some decisions to make and after lots of prayer they felt God leading them to have a tracheostomy put in to move Brandon forward in his care. This will allow the Doctors to wean Brandon off his sedation medication and will help with the healing process of his body.

Surgery for this procedure is Thursday, July 29th, at 2:00 pm. The Doctors will also be changing several of his lines to new sites. I ask everyone to be lifting Brandon, his family, and the Medical Staff up in prayer on Thursday at 2:00pm.

Praises:

-Liver Function test have decreased
-Blood Gases are improving
-Lungs sounds are improving
-Brandon had a good day today
-For the great care Brandon is receiving from the hospital staff
-tolerating the feeding tube well
-glucose levels are under control
-Blood Pressure remains stable

Specific Prayer requests:

-Continued strength for Dawn and Steve
-For Seth and Jordan as their family is not together
-Wisdom for the Doctors/care givers
-Brandon remain stable(and lab studies to keep improving)
-continue to be without fever
-That he be able to tolerate the ventalator pressures so some time after surgery they will be able to wean him of his sedation medication
-For his heart to continue to be strong
-For Gods protection during surgery
-for Kidneys to return to normal function

As each of you pray always remember:
Luke 1:37 "For with God nothing shall be impossible."

I would like to thank all family and friends for their prayers and support. It is greatly appreciated. Brandon is still not aloud to have visitors and I know it is hard to wait but it is for his health at this time. And I ask each of you "Wait on the Lord: be of good courage, and he shall strengthen thine heart: wait, I say, on the Lord" Psalms 27:14

God has performed many miracles in Brandons life and He's not finished yet!!! So Keep Praying!!!

In Christ Love,
Rachel

Friday, July 23, 2004 5:59 PM CDT

SPECIFIC PRAYER REQUEST:

LUNGS: Clean,Clear,Healthy & Strong with GREAT oxygen exchange!

Kidneys: FULLY functioning!

Nutrition: To benefit GREATLY from the feedings. This will help to make Brandon stronger!

Stable Blood Pressure, Stable Heart Rate, NO infections, viruses, germs, or fungus!

WISDOM from God in some decisions that need to be made

*WE DESIRE A MIGHTY BREAKTHROUGH AND MIRACLE NOW IN THE NAME OF JESUS!

The Bible says that the prayer offered in FAITH with heal the sick person and raise him up! We are standing on this for BRANDON!

Tuesday, July 20, 2004 10:09 AM CDT

Brandon has remained stable over the last 30 hours - Praise God!
Although Brandon is still very critical, Doctors are begining to look at next steps and moving his care forward- this is going to be a long HARD fight - please pray for strength!

Visitors are still not permitted to go back - we appreciate everyones prayers and thoughts and hope that everyone understands this decision. Brandon needs a fair chance to fight and introducing any germs or illness are too risky at this point. We will keep you posted as Brandon progresses and let you know when he can begin receiving visitors.

Dawn and Steve still need lots of prayer as the battle will not just be Brandon's - please pray for their continued strength and ability to focus on living by FAITH and not by sight. None of us want to see our children suffer and Brandon's fight will be difficult - please pray that they keep their eyes focused on the miracle God will provide.

God Bless,
Susan

Monday, July 19, 2004 10:59 AM CDT

Brandon still remains stable :)
Currently we are still fighting an infection which of courses leads to antibiotics and therefore, issues for the kidneys. Please continue to pray for the following:
1. Elimination of infection.
2. Return of normal kidney function.
3. Lungs to be clean and clear.
4. Strength of heart - the heart responds to the many curve balls currently thrown its way from the infections and the inbalance in electrolytes.
5. Keep his BP stable to the point the meds doing this are eliminated.

As many of you probably heard, yesterday we were told that Brandon's heart was begining to be compromised and we needed to face serious decisions. After having the opportunity to talk with the Doctor this morning, our current view is that Brandon is at risk for heart rhythm issues due to the fluctuations in the electrolytes. His heart is having to work harder to fight these fluctuations however, his heart does not currently have any damage as a result. However, we are still at risk for the rhythm issues and not all rhythm disorders are easily addressed. Please pray that Brandon's heart will be able to continue the battle with no damage and that no more rhythm fluctuations will occur.

As family and friends we continue to stand strong in the belief that God's miracle is in progress. EAch day we continue to take baby steps in the right direction. We just need the big steps backwards to cease!

Phillipians 4:6 - if there be any virtue, if there be any praise, focus on these things.
1. Heart not damaged.
2. Brandon is currently stable and has been since yesterday.
3. Brandon's BP is now stable.
4. Oxygen is down from 100% to 60%!
5. The main portal vein into the liver has 25% blood flow - it is not 100% clogged as most of us thought.

God Bless,
Susan

Monday, July 19, 2004 6:05 AM CDT

Brandon has had a very difficult weekend. Due to the kidney's not functioning, there is an inbalance with the electrolytes within his system. This has caused undue stress and strain on his heart. Please keep praying for that miracle I know is just around the corner.
The specific prayers continue to be:
1.) Return of normal kidney function.
2.) Clean and clear lungs.
3.) Heart remain stable and tolerate the pressure.
4.) Peace and FAITH for everyone.

Currently we have restricted the visitors back to his room to family only. Please understand and continue to pray.
God Bless,
Susan

Saturday, July 17, 2004 5:34 PM CDT

I am up visiting Brandon and he is resting comfortably on his stomach.

Specific Prayer requests and praises:
1. Continued urine output from the kidneys. The kidneys are taking baby steps in the right direction with small increases in urine output)
2. Continued prayer for the lungs - still fighting an unknown infection but improving.
3. Continued peace and faith.
4. Dawn and Steve need continued prayer to live by Faith and not by sight.

We all know the week has been somewhat of a roller coaster ride but remember:

As we all continue to pull together and pray for Brandon we continue to ask for specific concerns.. Philippians 4:6, "Be careful in nothing; but in everthing by prayer.....let your request be made known unto God." God is faithful and wants to know our specific needs.

Brandon may have periods of time which cause us all alot of pain and concern but we must remember to stand strong and focus on the times in which we are taking baby steps in the right direction and focus on the things of praise.

Philippians 4:8
Finally, brethren, whatsoever things are true, whatsoever things are honest, whatsoever things are just, whatsoever things are pure, whatsoever things are lovely, whatsoever things are of good report: if there be any virtue, and if there be any praise, think on these things.

Dawn and I shared a few thoughts today---
Alot of us pray and use the terms - if it is God's Will let it be so. Well, God's Will is healing - God's will is to be done on earth as it is in heaven (Matt 6:9-10). Heaven has no sickness! Therefore, it is not IF it is God's Will, it IS God's Will that there be no sickness.

Thanks again for everyone's love and support!!
God Bless,
Susan

Thursday, July 15, 2004 3:15 PM CDT

Brandon is having a better day today however, he is still very sick and needs continued prayer. Doctors continue to be optimistic and we all continue to know that God will carry us through this difficult time.

Specific Prayer requests:
1. Kidney's continue the upward trend of urine output.
2. Continued good numbers on the liver function.
3. Brandon's lungs need time to heal after yesterday's bleed.
4. Continue to pray for identification of germ within the lungs so that the proper treatment can be applied.
5. Please continue to pray for steps in the right direction - we all really need a boost right about now.
6. Peace and the ability to walk by Faith and not by sight for EVERYBODY who loves Brandon so dearly.

Take care and God Bless,
Susan

Wednesday, July 14, 2004 3:07 PM CDT

Brandon had a good day and night yesterday. The procedure to remove the tube went well and his BP remained stable throughout the procedure. The kidneys started to "wake-up" on Sunday and have been producing small amounts of urine since then.

Today however, Brandon started the day off with a pulmonary hemorrage. Brandon's CF doctor indicated that this is not uncommon for patients with CF. Although we never like to see this, Brandon is now resting comfortably. Again, the dialysis he is on requires the blood thinner which puts him at increased risk for the bleeds. They are going to give him a break for the remainder of the day from the dialysis and the blood thinner. For this reason, please pray that the kidney's produce more output since the dialysis is not in play.

Currently Brandon is resting comfortably but still needs prayer for:
1. Kidneys
2. Peace and faith.
3. No more bleeds.
4. Continued stable BP and temperature.

As you can likely guess, this roller coaster ride is taking its toll on the family and everyone else could also use the prayer :)

Thanks to everyone for their continued support and prayers through these difficult and confusing trials.

Take care and God Bless,
Susan

Saturday, July 10, 2004 9:26 AM CDT

Sorry I have not kept everybody updated lately.

Last evening Brandon did have a bleed however, they were able to get it under control and he is now stable. As Brandon's kidney's have yet to regain normal function, the dialysis he is on requires the use of a blood thinner which increases his risk for bleeds. For this reason we would request that everyone continue to pray in earnest for Brandon's kidneys to regain normal function.

Despite the bleed, Brandon did have a good night and continues to remain stable.

Specific Prayer requests:
1. Regain normal function of the kidney's.
2. Peace and calmness for Brandon. Although he remains sedated, he does have periods of awareness. Due to the meds to keep him sedated, the periods of awareness are cloudy and confusing for him. It's like when you have a head cold and things just don't add up and you try to make sense of eveything and the pieces just don't fit.
3. No more bleeds. This speaks for itself.
4. For Brandon to come off the ventilator today. THey have been weening Brandon off the ventilator and hope to be completely off of it today. This will help with communication and help Brandon to better understand what is going on. Not to mention, it is one more step in the right direction.
5. Brandon is to have a tube removed from the liver (was used to help remove the blood clot) on Monday. Pray for a peaceful and succesful procedure.
6. Peace, rest and faith for the rest of the family.


Things to be thankful for:
1. The lungs remain clean and clear.
2. The liver continues to look good.
3. Although we have a hit a few bumps in the road, Brandon continues to take small steps in the right direction.
4. God has promised to never leave us nor forsake us and to this we hold on.
5. We had a very strong turn out for Brandon's prayer vigil and I just know Brandon, Dawn and Steve felt the love and peace sent their way.

Take care and God Bless.
Susan

Wednesday, July 7, 2004 11:25 AM CDT

Brandon continues to take small steps in the right direction. The doctors will begin introducing nutrition today to provide Brandon the calories and strength he needs to stay on the right path. The liver still looks good and the WBC continues to come down. The dialysis is going well and Brandons lungs remain clean and clear. All are obvious signs of answered prayers for which we are all grateful.
The doctors are begining to slowly decrease Brandon's dependence on the ventilator and hope to have him off as soon as possible.
Please continue to pray for:
1. Returned kidney function.
2. Continued clear lungs, no fever and decrease in WBC.
3. Removal of the ventilator.
4. Dawn is also in need of specific prayer for rest and to live by Faith and not by sight.

As always, we are all very grateful for the many prayers and words of encouragement!

Tomorrow night, July 8th, there will be a prayer vigil on Brandon's behalf in the Avenue United Methodist Parking lot at 7:30pm. Please make sure there are as many people possible to stand in the gap on behalf of Brandon and his family.

God Bless,
Susan

Monday, July 5, 2004 8:42 PM CDT

Brandon continues to take baby steps in the right direction. We all strongly believe that prayer and faith in God is what has gotten us all this far and we all sincerely appreciate the many prayer warriors whom stand beside us!
Brandon has now gone 24 hours without a fever - something the doctors are quite pleased with. Although Brandon's WBC continues to be high, it has begun to trend down - another small step in the right direction. Brandon is now on the more "gentle" form of dialysis which will begin to remove all the excess fluids and waste products from his body. In time, this will allow the doctors to add back the nutrition he so desperately needs. Again, we all believe, doctors included, that the dialysis is support only and Brandon's kidneys, through the power of prayer, will regain full function. Brandon is still sedated as this allows him to use all his energy to recover and repair vs. focusing on or feeling any level of discomfort.

Please continue to pray for:
1. Continued clear lungs and no fever.
2. Return of normal kidney function.
3. Resolution of the blood clot.
4. Emotional and physical for strength for Dawn, Steve and Mom (Stephanie) as they are on "duty" and surrounding Brandon with prayer and love!
5. Also, please pray for all family members which can not be with Brandon as often as they may like. It is often difficult to be so close yet so far away. The feelings of helplessness don't just haunt those in the hospital.

As always, I would like to count my blessings and remember to be thankful for how far God has carried all of us. Although we may refer to them as baby steps, every step in the right direction, no matter how small, is a blessing from God and is not to be overlooked. In addition, Jordan and Seth continue to hang in there despite having to put-up with their "favorite" aunt :)

Keep up the prayers as they are definately working.
God Bless,
Susan

Sunday, July 4, 2004 11:43 AM CDT

Happy 4th!!
Dawn is upstairs so you have to put up with me (Susan)again for today :)
This morning's update & blood work show we are making small baby steps in the right direction however, kidney function still has not returned. A new form of dialysis will be started today which is more "gentle" to the system and will allow the gradual addition of nutrition. Brandon is still in great need of specific prayer for -
1. Return of normal kidney function!! Without kidney function the fluids and body waste can not be removed without the aide of dialysis.
2. Continued clean and clear lungs. The more fluid building up due to lack of kidney function adds stress and concern around the lungs ability to remain clean and clear.
3. Decrease in white blood counts (wbc)- the wbc continue to rise for unknown reasons. All cultures come back negative so there is no explanation at this point on why the wbc continue to rise.
4. Blood clot to dissovle on its own. The blood clot is not the primary concern in the short term - we must first conquer the above issues and then address the blood clot so it does not create long term issues.
5. Physical strength and emotional faith for all family members.

Things to be thankful for:
1. The liver continues to look good.
2. Small baby steps in the right direction are certainly worth praise!
3. With the alternate form of dialysis, adding back of nutrition will provide the much needed calories the body requires to continue fighting.
4. We are blessed to have access to the best treatment and doctors possible to fight this battle.
5. God is on our side and with all the prayer warriors in action on Brandon's behalf, God is in this battle with us!

Thanks to all for the continued support and prayer.
God Bless,
Susan

Saturday, July 3, 2004 9:07 AM CDT

Goodmorning - Dawn and Steve are with Brandon right now but I (Susan)wanted to get a posting out so everyone knew where we were.
First let me start by expressing my sincerest appreciation for all the prayers yesterday! With so many prayers being lifted at once I know we had a direct line to God and were therefor surrounded by many angels of grace.

Yesterday was a difficult battle attempting to remove the blood clot from Brandon's portal vein. Procedures and meds necessary to remove the clot, led to complications with Brandon's kidneys. By late afternoon, the doctors at Christiana were pleased with the removal of the clot however, it immediately began to reclot and the kidneys were still of concern. Meds were left in place to dissolve this new clot overnight and Brandon was transferred back to AI for stablelization and review by a nephrologist. It was deemed that Brandon would need support for his kidneys and he began dialysis treatments last night. This is support only as it is expected his kidneys will rebound given time. As of this morning, the blood clot has not dissolved- for this we need specific prayer. Brandon's liver is getting adequate blood flow from accessory veins as is indicated by good liver function tests. For this reason, the doctors will not immediately address the blood clot as it is felt Brandon needs a little time to recover from the recent insults. M/T of next week they will review the blood clot again and determine next steps.
For now we are asking for the following specific prayers:
1. For the blood clot to completely dissolve and allow free blood flow.
2. For Brandon's lungs to continue to be healthy and clear.
3. For Brandon's kidney's to rebound as is expected.
4. For Brandon to continue with no fevers.
5. For Dawn and Steve - both need strength both physically and emotionally. Instead of "Got Milk?" - It's "Got God and Milk!"
6. For the Doctors, Nurses and Staff who so diligently take care of Brandon, Dawn and Steve.

I know this has been lengthy - and you all thought Dawn was the wordy one :) - but I know everyone has Brandon in their prayers and information and specific prayers are what is needed.
Again, words can not express the love and appreciation for all your support.
God Bless.

One last thing- don't forget the ecard web address- www.nemours.org/ecards----cards are always great support just when you need them most!!

Thursday, July 1, 2004 5:56 PM CDT

Today has been long. We have to go back to Christiana again tomorrow morning early. They were able to get 50f the clot taken care of and with something they are trying tonight, there are hopes that they will be able to get it all. Right now Brandon is still on the ventilator and will remain so until after tomorrow's try.

PLEASE PLEASE PLEASE PRAY that this clot will be taken care of and that NO shunt will have to be used. That his liver will return to good blood flow WITHOUT varicies. And that Brandon will have NO complications or bleeding tonight. That he will remain STABLE and WELL THROUGHOUT EVERYTHING!!!

Help us to continue to WALK BY FAITH and NOT by sight.

I am trying to remember...I WILL TRUST the Lord with ALL of my heart and LEAN NOT on my own understanding.

We Love You!!!

Wednesday, June 30, 2004 6:13 PM CDT

The Doctor at Christiana was unable to get the blood clot today. This means that we will go back tomorrow and they will have to go in through his carotid artery.

Right now Brandon is sleeping but has moments of pain and discomfort. Please pray that this will be SUCCESSFUL tomorrow and that the blood clot will be taken care of with no harm to the liver.

We are feeling very overwhelmed right now. On a personal note for me, I am asking that you would pray for me to keep my eyes fixed on Jesus and all that the Lord has accomplished. And to remember, that he is not a God of half way. But I have to be honest, I am struggling right now. I do not understand.

WE LOVE YOU!!!

Tuesday, June 29, 2004 6:36 PM CDT

Well our stay just keeps bringing different things. BUT, they ARE getting worked out. PRAISE GOD!!! Not to alarm anyone, but Brandon was admitted to ICU today for a few days. The reason for this is he needs a heparin drip (blood thinner) run and this is only done in the ICU. They have also found a blod clot in the right hepatic vein in his liver. This will be taken care of tomorrow at Christiana Hospital. After that procedure we will return to the ICU unit at duPont for a few days. Transplant team has reassured us that everything is OKAY. Of course I STILL know that GOD is in TOTAL CONTROL. And I praise him for the technology and the wisdom that he continues to give Brandon's GREAT DOCTOR'S & NURSES. We have truly been blessed by them!

I was hoping in a HUGE way that we would be home before the 4th, but that does not look like it will be the case. Oh well, the best for BRANDON is the MOST IMPORTANT!

Please keep those prayers coming not only for him, but for Steve, Jordan, & Seth. I MISS THEM SOOOOOO MUCH!

WE LOVE YOU!

Saturday, June 26, 2004 10:04 AM CDT

As of this morning's weight, Brandon gained a few pounds....YEAH!!! AND he woke up and said that he was a "little hungry", sooooo it's a start! PRAISE GOD for small steps!

Yesterday's scheduled consisted of:
1. CT scan
2. Upper GI & Swallow Study (YUCK!)
3. Getting his PICC line put back in

So as you can see it was a VERY busy day, but it did make time go by much faster.

On Tuesday Brandon is scheduled for a EGD(Scoping). Pray that this goes well with NO after effects. I know that it must be done, but it seems that since the last one which was done at two and a half weeks after surgery, was when the appetitite problems started. Could just be a coincidence though. But even still, I am praying for NO issues. The "TPN" was started last night, and this will help with getting in calories and gaining weight. Overall, the Transplant Team is STILL VERY PLEASED with the liver, and have COMPLETE CONFIDENCE that once Brandon gets over this "bump" he will be doing GREAT all around.

Which of course I STILL have a COMPLETE FAITH & KNOWLEDGE that ALL things will work out. It's just getting there! So keep those prayers coming.....it is ALWAYS what gets us through! And the Lord knows just what we need at just the right time......Last night a DEAR & WONDERFUL Christian lady named Gwen called to encourage and inspire us. We have never met personally but have emailed over the years. Her daughter Kyndall has CF and received her MIRACLE liver transplant in Jan. of 2001 (I think that is correct). So it was so great to hear of Kyndall's progress and to also know that this family has been "wrapping their prayers" around us as well. God is ALWAYS so good that way! I still can't believe sometimes the extent of which he goes just to show me that he is HERE with ME and holding our family in the palm of his hand! (SMILE)

WE LOVE YOU!

Thursday, June 24, 2004 12:36 AM CDT

Brandon is being re-admitted today. I am not even going to ask how long. There are a few possiblities as to why he is having such difficulty with eating and keeping things down. He will be getting an ultrasound later today and then a CT scan tomorrow.

After we get into a room he will be given some TPN to help with his nutrition. I also think some other possiblities will be discussed. As far as the liver numbers go....they are GREAT!!! Praise God for that!

I know that I don't have to ask, but please surround Brandon with your prayers. Also, Steve, Jordan, & Seth. Jordan is very dissapointed for Brandon that he needs to come back in. I know that this road has been very hard for them. Thank you! WE LOVE YOU!

Wednesday, June 23, 2004 9:07 PM CDT

Okay, so here we gooooo.....Brandon had an "okay" day today. He managed to get in about 1800 calories, which was a little less than yesterday. Even so, I am VERY PROUD of his efforts. I know that he is feeling very discouraged because of the way he feels, especially with how upset his stomache is always feeling. For the past two days he has had at least one meal that he has not been able to keep down. This is causing me to "wonder" what exactly is going on, and also to ask how long before Brandon feels REALLY good all of the time?

We originally did not have to go up to AI in thursday but because Brandon started running a fever tonight we will be making the drive up tomorrow morning. I know that Brandon is concerned that he is going to be admitted, which is something that we will OBVIOUSLY do, but he is hoping not to have to occur. There is a car show this weekend that he has been looking forward to him and his dad taking the chevelle to and being able to be there. Please pray that we will be headed in the right direction and that we can get over this "bump in the road". I continue to know and believe that God did NOT have this all line up just to have more problems later. We will continue to WALK by FAITH and NOT by sight!

WE LOVE YOU!

~~PS~~ For all of you nurses who receive "Advance for Nurses" (www.advanceweb.com)...That is Brandon's picture on the FRONT COVER! And other pictures in the magazine!!!

Tuesday, June 22, 2004 9:23 AM CDT

~~NEW UPDATE~~

Well after a VERY miserable night, the tube came out early this morning. Brandon was up all night very uncomfortable in a lot of pain. Also throwing up. So at 8:30 we spoke with Louise in transplant and she said that the tube should not be causing this much problems, so we could take it out.

The thing is....Brandon has GOT to get in at least 2500 calories in a day. So, he will be trying very hard to make this happen. So far this morning he has been able to eat breakfast AND keep it down. PRAISE GOD!!! We ask that you continue to pray for him and for to be able to accomplish what he must. Otherwise he will be readmitted and other options would be discussed. Many of which Brandon is not looking forward to. I know that he is GREAT, and that this is just another one of those "bumps" in the road. As I said before.......GOD is LARGE AND IN CHARGE!!! And I am reminded in Phillipians.....The HASTINGS can do ALL things through Christ who STRENGTHEN them! Hallelujah, YES & AMEN!

WE LOVE YOU!

~Oh by the way.....the liver is doing FABULOUS! The stomache issue has nothing to do with that. Well almost nothing, Brandon's Prograf (his anti-rejection medicne) is what is causing the severe decrease in appetite. Usually this is balanced out by the steroids that most patient's are on for a while, but Brandon needed to be taken off of them two and a half weeks after surgery. So I have COMPLETE FAITH that once we get over this tiny little bump, he will be MUCH better!

Monday, June 21, 2004 2:21 PM CDT

Well, where to start?............First the good news, we now only have to go to duPont once a week!!! YEAH!!! His labs are looking GREAT so this means the liver is doing exactly what it is supposed to. Just like God planned!

HOWEVER, Brandon is losing too much weight and he is NOT getting enough calories in each day. Soooo he had a ng tube put in today for night time feedings. He is VERY uncomfortable and says that his throat is hurting him a lot. Actually, as of this moment, I am waiting to hear back from AI on their plans. But I know that the tube is a must along with a medication that they are going to give him to try to stimulate his appetitite. All of this is weighing hard on Brandon, and I must admit, this is when it gets so difficult. Seeing him in extreme discomfort and feeling like this has been a mistake. We KNOW that it has not, and that no matter what we see, GOD IS LARGE AND IN CHARGE!!! Nothing he does is half way, and I know that he did not give Brandon a new liver only to have his health deteriorate more because of nutrition problems. I really feel that right now the key to his health is "jump starting" his stomache in being able to handle food.

With all of that said........PLEASE pray for him to feel TOTALLY surrounded by the prescence of the Lord. To be able to adapt to this tube and get in some MUCH needed calories and comfortable rest, and that Brandon would have the PEACE THAT PASSES ALL UNDERSTANDING. After all....the Bible says that NO weapon formed against him shall prosper! Thank you Thank you Thank you! WE LOVE YOU!

~PS~ Happy 1st Day of Summer....my FAVORITE time of year!

Saturday, June 19, 2004 1:08 PM CDT

Things are going well. Brandon's number's continue to look good and he got his picc line out on thursday! Yeah, no more lines or anything!

I do have another BIG prayer request though...........Brandon is struggling with trying to eat. He knows that he MUST try to get in a lot of calories during the day but it has been very difficult for him. He has NO appetitite. Also, his right side has really been bothering him. I continue to remind him that God has EVERYTHING in control. And that he does NOTHING half way. But as you can imagine, Brandon feels quite discouraged at times because he feels that he should be so much better. I believe that if we could just get him to eat, that things will start improving MUCH faster. I do know and see that he is doing better than he thinks. I really believe that the key is getting his nutrition status back up. So back to my request....

1. INCREASED Appetite
2. DECREASE in discomfort and pain
3. INCREASE in energy
4. For Brandon to feel TOTALLY surrounded by the Lord's prescence. Especially when he is discouraged.
5. We DO NOT have to go back into the hospital!!!

Thank you all so much.....WE LOVE YOU!

**Our buddy John is now home YEAH! Please continue to PRAY for his new liver soon and very soon! (www.caringbridge.org/pa/sportsfan)

Saturday, June 12, 2004 9:30 AM CDT

Please PRAY for our buddy John Maicher. He is back at duPont. Also, please check in with him on his website (www.caringbridge.org/pa/sportsfan) and send him an ecard (www.nemours.org/ecards). I know that they would appreciate it!
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

ONE MONTH!!! PRAISE YOU JESUS!!! I can hardly think where to start. As I have been sitting this morning, reading my devotional, Bible, and praying I started thinking back and then looking in my prayer journal to all of the prayers that I have prayed in regards to Brandon's new liver. So many times I felt that we MUST continue to walk by faith and not by sight. Even though at times what we were seeing was pretty scary. But I also see where God and his neverending FAITHFULNESS gave us something that got us to the very next step and moment. I know that I have said this to some of you many times but it was very difficult for me to pray for a new liver for Brandon because I knew what that meant for another family. And my heart ached for that. But again, I continued to confess that I was going to TRUST THE LORD with ALL of my HEART. That I knew that he was going to provide a new liver for Brandon some way.

Back on 2/23/04 this is what I wrote in my prayer journal...."Lord God, I desire to hear you today. That some decisions would be made regarding Brandon. You know that I don't want to get to a crisis point. I just really desire hat he wold get his transplant soon and very soon in JESUS' name. I ask that you bless Steve today. Let him feel your prescence. Also Jordan & Seth. Lord I know that sooo many people are praying for Brandon. Help me to understand the wait."

The significance I see in that is that the day before (2/22) is when JP had made his committment to what he felt the Lord has placed on his heart, to be Brandon's LIVE DONOR! And later in the day of 2/23 is when the Transplant Team met and came to us and said that they were ready to take the next step and did we know anyone who would want to be "worked up" to see if they could be the donor. What some people do not know is that the previous year and a half Transplant told us that "Live Donor" was not an option because of the risk to the donor. So this decision and timing we KNEW was ALL GOD!!!

So to say that I feel completely BLESSED is such an understatement. To see Brandon well and getting stronger everyday is such a MIRACLE and we will FOREVER be eternally GRATEFUL to JP for allowing himself to be used by GOD in providing Brandon with his MIRACLE and for SAVING HIS LIFE! So thoughts of rejection and problems do not concern me because I KNOW that God is NOT a God of half way. And that EVERYTHING that he does and orders has a plan and purpose.

Through all of this we have felt surrounded by all of your prayers and love. And we ask that the LORD BLESS EVERYONE who has, prayed, donated, sent cards, made calls, headed up campaings, held events, or just asked "how's everyone". We also pray that through this we have been able to show God's LOVE, GRACE, & MERCY. May he get ALL OF THE GLORY.

You all have been such an important part in our lives and WE LOVE YOU!

Tuesday, June 8, 2004 9:46 PM CDT

Today has been a GREAT day! Brandon has felt really good, and he looks terrific also. It was nice to have a "normal" day at home and then to go to the ballpark to watch Seth and Jordan's games. From the looks on everyone's faces, they were getting the chance to see our "MIRACLE" firsthand!

We are just PRAISING GOD for each and every moment. And we are so honored and proud to be able to share this will all of you! WE LOVE YOU!!!

**Please don't forget:

John ~ www.caringbridge.org/pa/sportsfan
Zach ~ www.caringbridge.org/pa/zachary_morrison

Also, be sure to check out the changes on the "cotaforbrandonh" link

Monday, June 7, 2004 8:11 PM CDT

Lets try this again........YIPEEEEEE WE ARE HOME! We got home late this afternoon, and Brandon is looking soooooo GOOD! Ask Meding's ....we stopped by there on the way home so they could say HI! Brandon REALLY enjoyed getting to see everyone and chat for a moment. The look on everyone's face was PRICELESS!!

We will be back to our regular Transplant schedule which is to go to AI on Monday's and Thursday's. Everything is going so good with his new liver. They believe that an increase in one of his numbers show that it is REGENERATING!

I just can not say enough of how much your PRAYERS have kept us going. We have truly been able to feel you all praying all of this time. It has meant so much to us!

God has been SO GOOD, and his GRACE and MERCY has been endless! We feel TOTALLY BLESSED! Please feel free to call us at home, hopefully VERY SOON Brandon will be able to head on out to the ballpark to see Jordan and Seth play some baseball. Hope to see you soon! WE LOVE YOU!!!

Please don't forget our buddies....
John ~ www.caringbridge.org/pa/sportsfan
Zach ~ www.caringbridge.org/pa/zachary_morrison

Saturday, June 5, 2004 2:08 PM CDT

Today has been one of those lazy sleepy days. But that is good because Brandon is catching up on his rest (so am I). His appetite continues to improve, so I know that will also help him get stronger and feel better! As I said before, we continue to rest and know that we are in the palm of God's hand. So, please don't feel upset that we are in here again. We know that it is just "for a time", and I have NO DOUBT that we are on the road to recovery!

Keep the prayers coming though, it is what gets us through each moment of each day! WE LOVE YOU!

**Don't forget John ~ www.caringbridge.org/pa/sportsfan. I am standing in agreement with him, and his parents Albert & Sandy, that he would get his new liver soon and very soon. I just heard some good news that a family friend is going to be meeting with Transplant this week to see if she could be worked up to be the donor. I know that the Lord is bringing all of their plans together as well.

**Zach ~ www.caringbridge.org/pa/zach_morrison. He is looking so good, I am praying that his meds will be situated and that he NOT be facing a rejection. And Chris, Mandy, & Zach will be able to go home soon to be with the rest of their family.

THANK YOU all for sharing your prayers towards these two families who are on the same path with us!

Friday, June 4, 2004 3:58 PM CDT

Today has been MUCH better! PRAISE GOD!!! Brandon is feeling so much better, the iv fluids and iv anitobiotic's have really helped. He also looks like he feels better. The plan is to keep him through the weekend, we would be coming up Monday anyway for a checkup, so this way he will have extra "Tanking Up" as they say. He will be getting a blood transfusion later this evening as well. This is something that is not uncommon with transplant patient's. Some of the medicne that he is on prevents or slows the body from making new red blood cells. This is NOT looked at as anything wrong.

So, from a liver standpoint....they Remain VERY HAPPY! And from a respiratory standpoint...Dr. Padman said that she is PLEASANTLY PLEASED. His chest x-ray this morning was even better from the one on tuesday morning (which was better than the one before that and so on).

So we KNOW and SEE that ALL THINGS ARE WORKING TO THE GOOD OF THOSE THAT LOVE THE LORD! God has NEVER stopped working, and we rest in that!

As always....THANK YOU for your prayers! The ALWAYS work! WE LOVE YOU!!!

**Please continue to keep John Maicher in your prayers**
www.caringbridge.org/pa/sportsfan

Also, check on Zach @ www.caringbridge.org/pa/zachary_morrison

Thursday, June 3, 2004 7:33 AM CDT

**NEW UPDATE** 12:05pm
Brandon is NOT feeling well and he is a little dehydrated, therefore we are being admitted....atleast overnight. I am STILL beliving that these are just "things that need to be ironed out". Please pray for Brandon's emotions. He just wants to feel better, and being readmitted so soon is discouraging to him. I remind him that this is just a time and it will ALL BE WORTH IT in the long run. New medications will also be started. He will be needing a twice a day everyday infusion for a couple of weeks. Home Health will do this once we are home again. Also, please keep Steve, Jordan, & Seth lifted in prayer, I KNOW that this has been a long road for them. I'll post more later.
************************************************************

Well, 2 Complete nights at home so far! We are up at AI today in Day Medicne. Brandon will be getting his weekly cytogam infusion today along with some labs and a check up. Our days to come up will be Monday's and Thursday's, with thursday being the infusion day.

Brandon I BELIEVE is doing REALLY good. PRAISE GOD! He is a little frustrated because he feels that his appetite should be better and that he should be able to do more. I continue to remind him that it has only been 3 weeks, and he is getting STRONGER each day. That he needs to continue to WALK BY FAITH and NOT by sight! God is still LARGE AND IN CHARGE!!! Specific prayer requests from Brandon are:

1. Increased appetite
2. Increased energy (which I CAN see happening)
3. Patience, Patience, Patience (that is MY request for him)

THANK YOU all so much for your continued prayers....WE CAN NOT DO THIS WITHOUT ALL OF YOU! WE LOVE YOU!

Tuesday, June 1, 2004 3:27 PM CDT

YIPEEEEEEEEEE!!!! We are HOME! PRAISE GOD! We got home this afternoon, and we have already heard several horn beeps, by people that have passed by. Of course I quess they can tell by the HUGE WELCOME HOME sign on the front of the house!

Brandon is feeling really good and is looking EVEN BETTER! He is a little tired though. Please feel free to give us a call. We can't wait for everyone to get a chance to see him.....but we STILL have to be VERY CAREFUL! It will be a few weeks before he can be in enclosed spaces with people. So, my quess is that at the next ball game of either Seth or Jordan, he will be there to watch, so you can get your chances then to see him. Another thing, PLEASE NO HUGS, right now anyway. I know it will be hard, but just to see your smiling faces will be so good. And I know once you see his, it will be ALL GOOD!

THANK YOU EVERYONE FOR EVERYTHING!!!! WE LOVE YOU!!! Your prayers, calls, words of encouragement, and support have meant the WORLD!

Love,
Steve, Dawn, Brandon, Jordan, & Seth

Sunday, May 30, 2004 5:54 PM CDT

**Be sure to check out the new Photo's, and also look at the wonderful work that Allan, Susan, & Patty have done on the "Cotaforbrandonh" link

This weekend has gone well. Brandon is still improving each day. He was able to visit with some good friends on Saturday evening, and then on Sunday afternoon Steve, Jordan, & Seth came up for a long visit. It was so nice to be able to eat a meal together again as a family. I miss them so much! Brandon has been doing a lot of walking and today he even managed to go up the stairs from the 1st floor to the 2nd floor (that is actually 4 flights of steps!).

His liver numbers continue to look GREAT and his wbc is coming down nicely. He does however have a low grade fever. He says that he feels completely okay, but a blood culture was done earlier today to see where that could be coming from. They are NOT overly concerened as his liver #'s are good, and his lungs are sounding good also. As a matter of fact, with each day his lower lobe on his left lung is getting better and clearer. This was the lung that was probably the most compromised because of that HUGE spleen he had been carrying around.

All in all EVERYDAY is such a BLESSING, and we just CONTINUE TO PRAISE GOD for his faithfulness, perfect timing, and how he ALWAYS has his hand on our family. This has made us who we are, and I wouldn't trade the peace and comfort I have in knowing that we are resting in the Palm of the Lord's hand!

WE LOVE YOU!

**Please continue to keep John Maicher in your prayers**
www.caringbridge.org/pa/sportsfan

Also, check on Zach @ www.caringbridge.org/pa/zachary_morrison

Friday, May 28, 2004 1:58 PM CDT

Well we just got the word that we are NOT going home tomorrow. Brandon's Prograf levels are high. This is his anti-rejection medicne. So they will be holding tonight's dose as well as tomorrow morning's. We knew this was a possiblity and that it was not set in stone that we would be coming home. However, the next planned for date is tuesday. So we are REALLY praying that that is the day!

Aside from all of that, Brandon is doing REALLY good. He is a little wiped out from the endoscopy that was done yesterday, but I am believing that the effects from that will be totally gone by tomorrow.

So, it looks like a few more days of Charcoal Pit's milkshakes! Maybe not so bad? Anyway, please feel free to call him and give him someone else to talk to besides me. I am sure that he would enjoy that! Don't worry about disturbing him, I take the phone off of the hook when he is sleeping.

Keep up the prayers.....we APPRECIATE them so much, and we know that they are working! WE LOVE YOU!

**CONGRATULATIONS to ALL of the GRAUDUATES!!!**
Brandon is looking forward to attending some of those parties when he gets home!

* I have another prayer request for someone else...John Maicher is a patient that we came to know last fall. He needs a liver transplant. My prayer is, just as we prayed for Brandon, that John would get his liver soon and very soon! You can keep in touch with his website through: www.caringbridge.org/pa/sportsfan
I know that your prayers and encouragement would mean so much to them as it does to us!

Wednesday, May 26, 2004 6:23 PM CDT

**Check out the Birthday Photo's**

What a GREAT Birthday!!! Brandon has felt really good today. We got GREAT news regarding the biopsy....he is NOT having a rejection episode PRAISE GOD! He has a little colangitis (?). They are treating that now, and if everything goes like it has been.........we could be discharged on SATURDAY!!!

Also, THANK YOU to everyone who either sent him cards, or signed his guest book with birthday greetings or called him as well. The phone has been ringing ALL DAY!(SMILE) Brandon also had so many of the people who have taken care of him over the years give him some gifts and cards as well. The cafeteria sent up a birthday cake and then, he also had two more cakes arrive! Thanks to Dawn & AJ, and then Joan & Meghan.

This really has been a special day, and we appreciate it will all of our hearts.

WE LOVE YOU!

Wednesday, May 26, 2004 8:48 AM CDT

Today is Brandon's 19th BIRTHDAY!!! What a GREAT present JP GAVE him! PRAISE GOD!!!

Early this morning a biopsy was done on Brandon's new liver, we will have the results of that later today. He is LOOKING GOOD and FEELIN GOOD! I am so THANKFUL for EVERY new day that Brandon is getting. I KNOW that the LORD is STILL in COMPLETE control and he has such a MIGHTY plan!

Please feel free to call Brandon and wish him HAPPY BIRHTDAY!!! You also may send an ecard to:

www.Nemours.org/ecards

Thank you to everyone. WE LOVE YOU!

Tuesday, May 25, 2004 1:49 PM CDT

Today is good. Brandon is getting stronger and stronger PRAISE GOD! The CT scan he had yesterday was good, he may be needing a liver biopsy tomorrow. We will not know for sure until tomorrow. Overall the Transplant Team continue to be VERY pleased and happy with how well he is doing. Brandon does have a SPECIFIC prayer request.

1. That his liver is regenerating
2. He will be able to come home VERY SOON!

He is so ready to be home. On Thursday he will have been here for 1 month. I continue to remind him that this is all a "season" and that the Lord NEVER does any thing half way. I fully believe that this has ALL been directed by God and that he is a God of PLAN and PURPOSE!

Now for MY request.....May 26th is Brandon's 19th Birthday! I would love it if he were to get some "ecards" for his birthday. You can do that through:

www.Nemours.org/ecards

They will be hand delivered. I have already arranged for a cake to be sent up, and I know that MANY of the people who work here and have taken care of him have big plans for him throughout the day. We have truly been blessed by EVERYONE!
WE LOVE YOU!

Monday, May 24, 2004 6:51 PM CDT

What ANOTHER GREAT day! Brandon has felt so good today. This was also his first day eating an entire meal at dinner time. He wanted a Cheeseburger and Chocolate Milkshake from the Charcoal Pit, so of course that is exactly what he got. And he ate the whole thing and a bag of chips!

We got to visit with JP and Terry (JP's chauffer) this morning. It was nice to see how good JP is doing. I asked him if he felt a "strange twinge" in his side when he stood next to Brandon? Kind of like a magnet? It is just so amazing to me that the Lord had all of this planned, and that he gave the Doctor's the wisdom and knowledge to do it! And JP the peace and courage to put his body through surgery and the removal of 60% of his liver. As I have said before.....there will NEVER be enough years to thank him.

On another note, the night of Brandon's surgery, the Lord placed our family into the path of Chris & Mandy Morrison. Their 6 month old son Zachary needed a liver transplant. Well they are here now, and Chris will donate a piece of his liver to his son. Their surgery is scheduled for tomorrow starting at 7:30. Please surround them with your prayers just as you did for us. I know that gave our family the PEACE THAT PASSES ALL UNDERSTANDING during the whole day of surgery. Pray for strength for Mandy as she will be waiting on surgery for her husband and her son. Also, please be sure to check out their website and leave a message. I KNOW that it would mean a lot! www.caringbridge.org/pa/zachary_morrison.

I will post more as we go. WE LOVE YOU!

Saturday, May 22, 2004 7:45 PM CDT

**NEW PHOTO'S**
Brandon's days just keep getting better and better! Today was his best day yet, and I know that each day will have him stronger and feeling better. Early this morning Dr. Malatack and Dr. Dunn said that his liver was working perfectly and all of his labs are NORMAL! (with one exception, but that level continues to come down). The transplant team is VERY HAPPY. As a matter of fact, Dr. Dunn asked him..."So have you thought about what you are going to do with your life, since it is apparant that you are going to live now"!

Of course, we always knew that. No matter what, we have always believed that one way or another the Lord was going to provide Brandon with a new liver, and PRAISE GOD his timing was PERFECT!!!

Steve has now gone home and we are back to where we started almost 4 weeks ago.....Brandon has just me to talk to and look at (YIKES!!!). So, please feel free to give him a call, I am sure that new conversation will make him happy.

And don't forget our new family members...JP & Jennifer. We got to have one of our daily calls with JP earlier and he is doing great. He will be coming up on Monday for a check up, and then we will get to spend some time together. We are looking forward to that. It is funny to think that JP's liver is currently at two different locations! (smile).

Well, it's time to get back up to Brandon's room. THANK YOU everyone for your constant prayers. WE LOVE YOU!

**JP's address is:
John & Jennifer Herholdt
328 Weiner Avenue
Harrington, DE 19952
*Feel free to send him LOTS of encouraging letters. And please continue to keep him and his family lifted and surrounded by your prayers.

Friday, May 21, 2004 7:31 PM CDT

**CHECK OUT THE NEW PHOTO'S**
I have also put his NEW room # and phone# on

Today has been another GREAT day PRAISE GOD! All of the drains are now out and the only iv that Brandon has in is the PIC line, which we will go home with. He looks so good and is feeling STRONGER everyday! We are looking forward to visiting with his brothers tomorrow. They are going to be so surprised when they see him. He has made so much progress since they last saw him on Tuesday night.

More good news....there are high hopes that we could be discharged as early as the end of next week!!!! We were going to keep that a secret for a little while but we heard Brandon tell his Uncle Allan on the phone this evening, so now the secret is out!

I know that so many of you really want to see Brandon, and we can't wait for you to be able to but.....we are asking that anyone with any colds, cough's, fever's (even if they are so small) please give yourselves time to be TOTALLY healthy BEFORE seeing Brandon. Since he is now on immunosuppresants, he will not have a strong enough immune system to fight anything off. And it will also take him some time to build his strength up.

Other news:
JP's address is:
John & Jennifer Herholdt
328 Weiner Avenue
Harrington, DE 19952
*Feel free to send him LOTS of encouraging letters. And please continue to keep him and his family lifted and surrounded by your prayers.

Thank you all for your constant prayers. They are helping Brandon get stronger and stronger every day. And he can definitely feel you all praying! WE LOVE YOU!

Thursday, May 20, 2004 7:50 PM CDT

What a difference a day makes....ESPECIALLY when there are soooo many prayers! Today has been a REALLY good day! I am PRAISING GOD for the strength and endurance that he continues to give Brandon. He has been able to be out of bed a lot and was even walking down the halls today! The pain today has been very manageable. For breakfast he had a piece of bacon, a piece of toast with jelly, and a little chocolate pudding! Some breakfast huh!(smile). This has been his first solid food in 8 days, so he is still taking it really easy with his stomach.

So that he can get some rest tonight, they are going to give him something to help him sleep at about 10:00pm. The steroids that he is on are making him VERY fidgety. We did have some funny moments this afternoon with some of the dreams he was having, and talking out loud. But he is still not used to feeling sooooo hyper. It is as if he wants to sleep so bad, but his body is just to hyper. For a couple of hours this afternoon he could not sit still at all. No matter how hard he tried!

We just continue REJOICE for all that the Lord has done, and what we are seeing happen. And we are always feeling everyone's prayers. I KNOW that they are sustaining not only Brandon, Jordan, Seth & our families, but also EVERYONE who is praying for him! THANK YOU! WE LOVE YOU!

Wednesday, May 19, 2004 11:50 PM CDT

I have had so many emotions today. Starting with Jordan and Seth leaving to go home last night. There was a feeling of completeness and security that came with having all of my family with me. I am missing them so much.

Next, just the thought and knowing that just a week ago we were starting out on this path. I continue to see God's grace and mercy over all things. PRAISE GOD for all that he has done and continues to do! JP is now home resting and recovering. I am so happy for that. Please send him a note of encouragment. It is not often that we get the opportunity to come into contact with an "Eathly Angel". JP and Jennifer will forever be more than just friends. They are literally family now!

And for Brandon, today has been very hard. Although he is now out of ICU. PRAISE GOD!!! This has been I belive one of the hardest days since transplant. He has been in so much pain today. And it is very hard to see him in such agony at times. I KNOW in my head that everything is alright, and that in ALL things God works to the good of those who love the LORD. But getting it to my heart can be difficult, as I have said before. I am asking for specific prayer against:

1. Extreme pain
2. Not being able to get comfortable
3. Feeling of depression
4. Not being able to get sleep
5. Fluid buildup in his body

I have not doubt, and I continue to know and believe that God is a God of plan and purpose. That NO weapon formed against Brandon shall prosper. That Brandon, Jordan, & Seth have a mighty plan and purpose ordered by God! He is "LARGE and IN CHARGE"! Thank you for your constant prayers....we can definitely feel them! WE LOVE YOU!

Monday, May 17, 2004 8:46 AM CDT

Mini Update: 7:15pm
Both Brandon & JP had drains removed today. I think JP only had one, so therefore he no longer has one in. Brandon still has two more in. They will come out in time. They both had a really good day and we were looking forward to some visiting time this evening. However, after spending an hour up in the chair, Brandon is quite tired and also got sick. This is something that he is battling on and off. I called JP and let him know that it would not be a good night for a visit and he told me that he too had gotten sick but that he felt better afterwards (Please keep that lifted in your prayers). So, they will both be getting their MUCH needed rest tonight. But even with that....they are both doing sooooo good! I have continued to see and know that God has been so good and he NEVER gives up! We just PRAISE him for the strength, endurance, & peace that he continually gives Brandon & JP. Seeing them both is literally seeing scripture in action! PRAISE GOD for them!


************************************************

What a BEAUTIFUL day! Things are still going very good. Brandon is feeling more alert today, and he looks very good. He did have some problems with bad headaches and being sick over the weekend. But he is feeling better this morning. The thought behind that is some of the pain medicne that he was given on Saturday did not agree with him. Also, Dr. Malatak said that his FK levels were through the roof. This is from the anti-rejection medicne that he is taking. To get these levels down his anti-rejection medicne was witheld last night and this morning. This can be a typical thing as they are searching for the correct level for his body. So this is not a bad thing at all. His doctor's remain very pleased with his progress. One of his drains will be coming out today, which is good. So, each day will bring new things.

JP is now up on the 3rd floor which is very good for him. He is doing so good. He has been up walking around, and he looks GOOD! Brandon had me tell him this morning that he is looking forward to getting up there close to him. We will know more about that later.

I'll post more later today, THANK YOU THANK YOU for your continuous prayers, we KNOW that they are helping in such a mighty way! WE LOVE YOU!!!

Friday, May 14, 2004 12:23 AM CDT

5/14/04 @ 10:40pm Mini update...Brandon and JP continue to do well. JP is still in ICU, I believe primarily because there is no available room in the transplant suites yet. We are specifically asking prayer for:
1. Continued health and healing
2. A hedge of Spiritual Protection around Brandon, JP, and families
3. Continued PEACE that passes ALL understanding!!!

****************************************
We CONTINUE to PRAISE GOD for his Grace and MIGHTY hand! Brandon is doing good. He is very tired today but is "right on track" as his doctor's have said. He is slowly getting more and more tubes and iv's out. Although he still has an awful lot in! But the more he progresses, the faster things will be taken out and off of him. Dr. Casas said that today would be a day of "motion". They are planning on trying to get him to sit up. Please continue to pray against the pain. That has been one of the hardest things to bear when I see him in such pain. But typical Brandon.....he NEVER complains. He knows what he must endure and that this is all a part of recovery. Jordan and Seth have been so wonderful to their big brother. They sit with him and try to help him relax. As a matter of fact I think Seth is really getting in to this whole medical healing (Doctor in our midst perhaps???). They both are diligent about "gowning up and putting on gloves". And they are getting quite familiar with all of the monitors and what they mean, especially when they are beeping. Steve and I are so proud to be the parents of Brandon, Jordan, & Seth. To see the love that Jordan and Seth have shown their brother, and how Jordan and Seth have pulled together for Brandon is truly heart touching!!! No mom could ever be so proud and happy (smile).

We have been told that JP will leave ICU today to go upstairs to the transplant suites. We thought that it was going to be yesterday, but one more day never hurts! JP has been doing so good. He is however getting very "ansy". He wants to see Brandon sooooo bad. When he was told last night that he would see Brandon "tomorrow", he called Steve over and said....."at 12:01am, I'll need you to help me down a couple of rooms". I know that he is just so anxious to see a MIRACLE and how a piece of him is working and thriving inside of Brandon. Who could blame him for that! Again, we will NEVER be able to have enough years to thank JP and Jennifer for being the Lord's MOST obedient servants! I ask that you lift up Jennifer. She has been so strong and so amazing. And I know that she desperatly misses her children. She will be needing to go home today because her sister (who has been taking care of Johnathn, & Jessica) needs to get home. This I know will be hard for Jennifer. While she will be excited to see the kids, it will be so hard to leave JP. She has truly be his "helpmate".

Well, I had better go. I am supposed to be getting some much needed rest while Steve is staying with Brandon, so I guess I had better do that! Thank you EVERYONE for your constant prayers.....we feel them. WE LOVE YOU!
Love,
Steve, Dawn, Brandon, Jordan, & Seth
JP, Jennifer, Johnathn, & Jessica

Thursday, May 13, 2004 11:54 AM CDT

I have been at such a loss for words, but NEVER for prayers and PRAISING God!!! Even now, it is hard for me to get through this and just trying to put down what is in my heart(HUGE tears of joy). Brandon and JP are doing soooo good! JP has exceeded my expectations and I know that it is ALL because of prayer! Brandon has as well. He is now off of the ventilator and is wanting the ng tube (in his nose)taken out. That will come in time. He is doing so good. We are so very PROUD at how brave he has been. Seth and Jordan just got to spend time with him again and they are happy. JP will be moving from ICU today, which is VERY good. I ask that you continue to surround them in prayer. They both are in a lot of pain. I don't know if anyone checked yesterday, but the link at the bottom of this page was updated constantly. I believe that Allan is still doing that. As you will see, we got to see his spleen yesterday and WOW!!! I can not believe that was in him! The official weight was about 13 pounds with that holding 1/4 of his total blood volume!!! It truly was the size of a VERY BIG BABY! We will also see his liver today. We have been told that it is very scarred and nasty. I am still taking it all in that the MIRACLE that we have prayed for and waited for, for 5 1/2 years has been accomplished on 5/12/04 @ 10:45pm!!! There are no words for what our hearts feel for JP and Jennifer. We are very HONORED and PROUD to know you, and that you ANSWERED the LORD's call to save Brandon's life!!! There are not enough years to tell him THANK YOU AND WE LOVE YOU!!! You are such a MIGHTY MAN of GOD JP! I'll keep you updated, WE LOVE YOU ALL!!!
Love,
Steve,Dawn,Brandon,Jordan,& Seth

Wednesday, May 12, 2004 5:14 AM CDT

Wednesday, May 12, 2004 5:06 AM CDT
TRANSPLANT DAY!!!

This is the day that the Lord has made, let us be glad and rejoice in it! Hallelujah and PRAISE GOD! I KNOW that God set this day apart all those years ago when mom and Elaine first met at a Bible study. That a 9 year old christian boy named JP would save the life of a 18 year old christian named Brandon. Words can not express how our hearts are feeling right now. We will continue to put our TRUST and FAITH in God who is "big enough" and who has had his hand on this ALWAYS!!! I ask that you totally surround JP, Jennifer, Mike, Elaine, and the rest of their family with your constant prayers. That Dr's Dunn and Casas would be renewed ALL DAY with your prayers. I PRAISE GOD for the mighty WISDOM that he has given them! I also PRAISE GOD for the never ending FAITHFULNESS that he has shown my family. For the calm, quiet, steady PEACE that he has given Brandon! YES and AMEN! WE LOVE YOU ALL SO MUCH!

Love,
Steve, Dawn, Brandon, Jordan, & Seth

Wednesday, May 12, 2004 5:14 AM CDT

Wednesday, May 12, 2004 5:06 AM CDT
TRANSPLANT DAY!!!

This is the day that the Lord has made, let us be glad and rejoice in it! Hallelujah and PRAISE GOD! I KNOW that God set this day apart all those years ago when mom and Elaine first met at a Bible study. That a 9 year old christian boy named JP would save the life of a 18 year old christian named Brandon. Words can not express how our hearts are feeling right now. We will continue to put our TRUST and FAITH in God who is "big enough" and who has had his hand on this ALWAYS!!! I ask that you totally surround JP, Jennifer, Mike, Elaine, and the rest of their family with your constant prayers. That Dr's Dunn and Casas would be renewed ALL DAY with your prayers. I PRAISE GOD for the mighty WISDOM that he has given them! I also PRAISE GOD for the never ending FAITHFULNESS that he has shown my family. For the calm, quiet, steady PEACE that he has given Brandon! YES and AMEN! WE LOVE YOU ALL SO MUCH!

Love,
Steve, Dawn, Brandon, Jordan, & Seth

Monday, May 10, 2004 8:35 AM CDT

Well, as the Transplant Team just said.....the countdown is on! Only 2 more days! I know with every fiber in my body that the Lord is in complete control and I have continued to see just how he has had his hand on Steve, Brandon, Jordan, Seth, myself, and the rest of our family! Your prayers and words of encouragment has made each day possible. We truly could not have gotten this far without you all! I must admit though.....I am praying for the peace that passes ALL understanding. Just this morning my stomach is doing flip flops at times and I am feeling a little anxious. I will say it is a mix between a tiny bit of apprehension, but also A LOT of excitement (like when you were a child and looked forwad to your birthday). I humbly ask you all to continue to lift JP, Jennifer, Johnathn, Jessica, Mike, Elaine, Jennifer's parents & family, and all of JP's family in your prayers. Brandon has felt totally supported through prayer and concern by you all and would also like for JP's family to see just how WONDERFUL our friends and family are! PRAISE GOD for you all! We LOVE You!
Love,
Steve, Dawn, Brandon, Jordan, & Seth

Friday, May 7, 2004 12:45 AM CDT

The Lord CONTINUES to bless us and remind us that we are in his embrace! I have just been amazed sometimes at how God places the right people at the right times in our daily paths! PRAISE GOD for that! Everything is still running smoothly as we get closer to Wednesday. I continue to ask for prayer for JP and his family, as well as ours. Also, please contact Brandon ANYTIME. When he sleeps, I take the phone off of the hook. He got the opportunity yesterday to spend some time with good friends (thanks Meghan P. Joey P., Glen, Karen, Clay & Kate) and also talk with some friends on the phone (thanks to you also Meghan M. & Debbie (even after what you said about me....haha). Our family is very HONORED to be a part of such a WONDERFUL community. We truly have the best friends and family in all of the world! You are all tremendous blessings from God! We LOVE YOU ALL very much! I'll post more as we go!

**Be sure to check out the events on the new web page that is linked at the bottom of this page**

Monday, May 3, 2004 10:43 AM CDT

**Please continue to check out the ongoing "FUN"draisers!**

Transplant has been moved from the 11th to the 12th. There was a "conflict" that required the change but everything is still GOOD! I look at this as one extra day of antibiotics BEFORE transplant for Brandon. Also, one extra day for everyone else to get ready. Actually I think that this is more of a strain on JP than anyone else. Please commit to praying for him and his family. I want them to feel your prayers for them as much as we have felt you prayers for us! Brandon continues to feel good, he is getting a little bored though. Which is kind of a good thing because that means he feels well! I am sure that he is getting a little (or a lot) tired of seeing me ALL OF THE TIME! I continue to remind him that this is just the beginning! He gets to see my face for the next SEVERAL weeks 24 hours a day 7 days a week! YIKES! Please feel free to call the room anytime. Don't worry about waking him up, I take the phone off of the hook when he is sleeping. We would really WELCOME your calls and words of encouragement. Also, if you have any type of "funny stories" they are always good. The hospital address and room phone # are at the bottom of this page. Again, please don't hesitate to give him a call. I'll keep you all updated as the week goes. Thank you for your prayers and WE LOVE YOU!


Upcoming Fundraisers...."Bucs for Brandon" (Thanks Rose)!

Fundraiser Dinner
May 3, 2004: 3:00-9:00
Meding & Son Seafood: Advance tickets and Take-out available.
$20.00/Plate ALL Proceeds to COTA for Brandon
Menu: Chicken w/Crab Imperial, Beef Lasagna, Baked Cobbler, and Beverages
Susan Wagamon Hoffman: 422-9142

May 19th, 2004: Dr. Gary Morgan
Chiropractic Office: Milford Airpark Plaza
All profits from the days proceeds - ask Dr. Morgan for more details
424-2480 - Call for an appointment

All of May
ALL proceeds for IN SHOP massages will go to COTA for Brandon!
Denise Hill, Certified Massage Therapist 349-5949

Through June:
Pampered Chef Raffle: Professional Cook Set & Stir Fry Pan ($255.00 value)
Call For Tickets
Theresa Fisher: 422-8385
Susan Wagamon Hoffman: 422-9142

Through June:
Nantucket Basket ($350.00 value)
Call for Tickets
Renea Pommel 697-0578
Susan Wagamon Hoffman: 422-9142

Every Sunday Through June 6th:
ALL Proceeds from the SUNDAY BRUNCH!
Where: "All Occasions" in downtown Milford
Eugene Mills: 335-5202

6/13/04 - "3rd Annual Cancer Sandlot Softball Tournament" Sponsored by Milford Little League: $10.00/player.
PLAYERS AND TEAMS NEEDED! 8 players min/shoot for 10!
Registration starts at 11:00 am at Milford Little League Park
For more information contact:
George Luff 422-9699 (day)
422-1198 (night)
BBQ- Sponsored by Tidewater Bass Club

The Craft Show and Bake Sale at Ellendale Fire Hall was a HUGE SUCCESS! The Jr. Fireman did a wonderful job! THANK YOU SO MUCH!

Bud & Bug Festival face painting was also another terrific success. The face paintings were literally WORKS OF ART!

The day at Sullivans was a great success. I am sure that the yards in Milford will look beautiful with all of the items from the Garden Center that were purchased. Although I hope that no one will be upset for the extra calories that they may now have! I heard that the bake sale was TREMENDOUS!

We now also have a PNC account set up for "COTA FOR BRANDON H". Account #6005372118

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes

Wednesday, April 28, 2004 9:15 PM CDT

**Be Sure to check out the the up-to-date fundraiser news**

God has continued to OPEN THE DOORS! JP called this afternoon with the positive confirmation that he is a match (like he always said he was)! PRAISE GOD! Brandon will be admitted on Thursday to start "TUNING HIM UP". Transplant is scheduled for Tuesday, May 11th. We continue to be so amazed at how God is working. I have truly cried tears of JOY today! As I know that so many other people who have prayed for us have done the same thing. We will continue to walk this path that the Lord is making for us, knowing that he HAS ALREADY made the way! Again I ask you to cover JP, Jennifer, Johnathan, Jessica, Mike, Elaine, and the rest of his family in prayer! That God would give them TOTAL peace and quiet rest. We ALL thank you so much for your constant prayers, and words of encouragement. I will keep you updated as we go! WE LOVE YOU! (HUGE smile).

Upcoming Fundraisers...."Bucs for Brandon" (Thanks Rose)!

May 1, 2004: 10:00-2:00
Bake Sale/Car Wash
Sullivan's Landscape and Garden Center
25 percent of the proceeds for the day go to Brandon's COTA account. For more information contact:
Susan Wagamon Hoffman - 422-9142
Laura Sullivan - 335-5137

Fundraiser Dinner
May 3, 2004: 3:00-9:00
Meding & Son Seafood: Advance tickets and Take-out available.
$20.00/Plate ALL Proceeds to COTA for Brandon
Menu: Chicken w/Crab Imperial, Beef Lasagna, Baked Cobbler, and Beverages
Susan Wagamon Hoffman: 422-9142

All of May
ALL proceeds for IN SHOP massages will go to COTA for Brandon!
Denise Hill, Certified Massage Therapist 349-5949

Through June:
Pampered Chef Raffle: Professional Cook Set & Stir Fry Pan ($255.00 value)
Call For Tickets
Theresa Fisher: 422-8385
Susan Wagamon Hoffman: 422-9142

Through June:
Nantucket Basket ($350.00 value)
Call for Tickets
Renea Pommel 697-0578
Susan Wagamon Hoffman: 422-9142

Every Sunday Through June 6th:
ALL Proceeds from the SUNDAY BRUNCH!
Where: "All Occasions" in downtown Milford
Eugene Mills: 335-5202

6/13/04 - "3rd Annual Cancer Sandlot Softball Tournament" Sponsored by Milford Little League: $10.00/player.
PLAYERS AND TEAMS NEEDED! 8 players min/shoot for 10!
Registration starts at 11:00 am at Milford Little League Park
For more information contact:
George Luff 422-9699 (day)
422-1198 (night)
BBQ- Sponsored by Tidewater Bass Club

The Craft Show and Bake Sale at Ellendale Fire Hall was a HUGE SUCCESS! The Jr. Fireman did a wonderful job! THANK YOU SO MUCH!

Bud & Bug Festival face painting was also another terrific success. The face paintings were literally WORKS OF ART!

We now also have a PNC account set up for "COTA FOR BRANDON H". Account #6005372118

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes

Monday, April 26, 2004 10:05 AM CDT

Well we have a DATE! As of now, May 11th is scheduled for TRANSPLANT! PRAISE GOD! JP still has his last test (CT Scan) on Tuesday 4/27. This will determine if his liver is going to be the one that God uses to heal Brandon! If everything looks good, then we will proceed towards transplant day. Also, as I am entering this new information, I am waiting to hear back from AI. Brandon could be admitted as early as Tuesday evening or Wednesday morning. WOW! They said that when this really started in gear that it would happen FAST. I ask that you keep not only Brandon and our family lifted in PRAYER but JP and his family need CONSTANT prayer! Words just can not expess what Steve and I are feeling for the gift that JP, Jennifer, and his family are giving! Again, please shower them with your prayers, and words of encouragment. THANK YOU again! I'll keep you all posted. LOVE YOU ALL!

Upcoming Fundraisers

May 1, 2004: 8:00 - 5:00
Bake Sale: 9:00-2:00
Sullivan's Landscape and Garden Center
25 percent of the proceeds for the day go to Brandon's COTA account. For more information contact:
Susan Wagamon Hoffman - 422-9142
Laura Sullivan - 335-5137

6/13/04 - "3rd Annual Cancer Sandlot Softball Tournament" Sponsored by Milford Little League: $10.00/player.
PLAYERS AND TEAMS NEEDED!
Registration starts at 11:00 am at Milford Little League Park
For more information contact:
George Luff 422-9699 (day)
422-1198 (night)
BBQ- Sponsored by Tidewater Bass Club

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes.

Monday, April 19, 2004 10:29 AM CDT

On Friday's return appointment to AI Brandon was MUCH better, so he did NOT have to be admitted. PRAISE GOD! Also, Brandon was very happy. It also gave us some more time together as a family to enjoy this beautiful spring weather. We continue to WALK BY FAITH, knowing that God has us in the palm of his hand and has it all in control. We are still lifting up our prayers that Brandon would get his new liver SOON and VERY SOON! I ask that you would pray in agreeement that this would happen BEFORE Brandon's birthday on May 26th! Still, I know that God has it worked out. Getting my time schedule to fall into place with his can be difficult for me sometimes though. But God is ALWAYS FAITHFUL! Again, THANK YOU so much for your prayers and ALL of the support you have given Brandon and our entire family. We LOVE YOU!

*4/20/04 6:30-8:30 - C.O.T.A. informational meeting @ Lincoln United Methodist Church. This is open to anyone who would like to sponsor events or just volunteer for one of the many coordinator positions that is needed. Feel free to invite friends!

Upcoming Fundraisers

4/24/04 10:00-2:00 Downtown Milford - Booth at "Bug & Bud Festival": COTA info and face painting

4/24/04 - 9:00-2:00 Ellendale Fire Hall - Craft Fair & Bake Sale

May 1, 2004: 8:00 - 5:00
Bake Sale: 9:00-2:00
Sullivan's Landscape and Garden Center
25 percent of the proceeds for the day go to Brandon's COTA account. For more information contact:
Susan Wagamon Hoffman - 422-9142
Laura Sullivan - 335-5137

6/13/04 - "3rd Annual Cancer Sandlot Softball Tournament" Sponsored by Milford Little League: $10.00/player.
PLAYERS AND TEAMS NEEDED!
Registration starts at 11:00 am at Milford Little League Park
For more information contact:
George Luff 422-9699 (day)
422-1198 (night)
BBQ- Sponsored by Tidewater Bass Club

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes.

Tuesday, April 13, 2004 8:06 PM CDT

Today's IV treatment was alot more routine than last weeks! However, we go back to AI on Friday, and if Brandon is not remarkably better, he will be "locked up" as Dr. Chidekel puts it. I do not actually see this as being a bad thing. I know that as drawn out as a hospitalization can be, that is for the best for Brandon. And, I know that a "tune-up" will be extremely necessary before he transplants. So, as I have said before, we continue to walk by faith, knowing with COMPLETE certainty that the Lord is ALWAYS in control! Thank you for you prayers, and also keep JP and his family in your hearts, thoughts, and prayers as well.

*4/20/04 6:30-8:30 - C.O.T.A. informational meeting @ Lincoln United Methodist Church. This is open to anyone who would like to sponsor events or just volunteer for one of the many coordinator positions that is needed. Feel free to invite friends!

Upcoming Fundraisers

4/24/04 10:00-2:00 Downtown Milford - Booth at "Bug & Bud Festival": COTA info and face painting

4/24/04 - 9:00-2:00 Ellendale Fire Hall - Craft Fair & Bake Sale

May 1, 2004: 8:00 - 5:00
Bake Sale: 9:00-2:00
Sullivan's Landscape and Garden Center
25f proceeds for the day go to Brandon's COTA account. For more information Call:
Susan Wagamon Hoffman - 422-9142
Laura Sullivan - 335-5317

6/13/04 - Sand Lot Ball Game sponsored by Milford Little League: $10.00/player.
PLAYERS AND TEAMS NEEDED!
BBQ- Sponsored by Tidewater Bass Club

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes.

Wednesday, April 7, 2004 12:54 AM CDT

Okay, so the routine IV treatment this week was not so routine! However, Brandon is doing MUCH better, and he has been given the go ahead to be released today! PRAISE GOD! We definetly KNOW that God is ALWAYS in control. NO MATTER what things may look like! And as always we continue to be overwhelmend by the support from our family, friends, and community. We can feel your prayers lifting us up and supporting Brandon! THANK YOU! We will continue to WALK by FAITH and NOT by sight! I'll keep you all informed of the direction that the Lord is taking us, and knowing that SOON and VERY SOON, Brandon will have a NEW LIVER! We LOVE YOU all SO MUCH!

Upcoming Fundraiser

May 1, 2004: 8:00 - 5:00
Sullivan's Landscape and Garden Center - for more information you may call Susan Wagamon Hoffman - 422-9142 or Laura Sullivan - 335-5317.

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes.

Friday, April 2, 2004 2:46 PM CST

Wow! What a busy couple of days! The IV treatment went as planned. Non eventful as it is on most days. We do however need to go back again on Tuesday (4/6). Brandon is still hanging tough. He has had more good days lately than bad days. PRAISE GOD for that! The chronicle did a fantastic article on him and we are so appreciative of that. Also this morning, WBOC came to do a tv interview. That will be played tonight on the 7:00 news. I hope it looks okay! Our entire family continue to be in AWE of the outpouring from so many WONDERFUL community members! It means so very much to us the way that you all have shown how you much you care for Brandon and the rest of family. Words simply do not express how our hearts feel!(smile). As I have said before, God has truly blessed us beyond measure with the people he has placed in our lives. We are very honored! Thank you again for your prayers!

Love,
Steve, Dawn, Brandon, Jordan, & Seth Hastings

Upcoming Fundraiser

May 1, 2004: 8:00 - 5:00
Sullivan's Landscape and Garden Center - for more information you may call Susan Wagamon Hoffman - 422-9142 or Laura Sullivan - 335-5317.

There are also three other ways you may donate if you would like to do so through the COTA account we set up for any of Brandon's medical expenses not covered by insurance. COTA oversee's the funds to see that they are used for this purpose only. Here's how:


1. Donate through the COTA web sight:
a. Go to www.cota.org
b. click on "patient campaigns"
c. click on "B" for Brandon
d. click on "Brandon Hastings's campaign"
e. click on "make a contribution"
f. type in contribution amount
g. enter personal information/method of payment

2. Call COTA at 1-800-366-2682 and provide your contribution information over the phone.

3. Mail a personal check/cashiers check/money order directly to COTA to the following address:
Childrens Organ Transplant Association
2501 COTA Drive
Bloomington, IN. 47403

Make check payable to: "COTA for Brandon H"
For payment methods 1-3, COTA will provide a tax receipt letter for tax deduction purposes.

Monday, March 29, 2004 7:27 PM CST

Tuesday will be another day at AI for IV treatment. I am hoping that while we are there we will hear some news about when a donor is going to be "worked-up". Brandon has been feeling pretty good here lately. Actually it's Jordan who has not been well! We are praying that Jordan will get over this quickly and that Brandon will NOT pick anything up! Nor Seth, Steve, or myself for that matter! I believe that there will be an article regarding Brandon in this week's Chronicle, and then from there I think it may also be in the State News (not sure when though). In the article will be information regarding "Fund-Raising". We have now set up an account with COTA (Children's Organ Transplant Association). I would greatly appreciate any input, ideas, or volunteer's from anyone that feels that on their heart. I will update everyone just AS SOON AS I hear that we have the "Go Ahead" with the work up. And as always, THANK YOU for your Prayers! On another prayer concern....please PRAY for the Delguidice family of Rehoboth. They lost their prescious son Vincent late saturday afternoon. I did not have the pleasure to meet his parents John and Karen, but I had the opportunity to talk and share with his Aunt Annie. They were quite an inspiring family to me, and I know that they REALLY need to be lifted up in prayer.

Thursday, March 25, 2004 4:02 PM CST

Prayers Answered! Blue Cross has agreed to coverage for the potential donor. This means that as soon as we get it in writting that we can go forward with a "work up". They are however saying that this is a "One time only" deal. Steve and I feel that we are to continue to WALK IN FAITH, and move forward with the path that the Lord is making. I can not begin to express my gratitude for all of the phone calls that were made to Blue Cross on behalf of Brandon. We are truly overwhelmed and BLESSED! I KNOW that we are on the verge of a BREAKTHROUGH and I PRAISE GOD for that! I will keep you all posted on all news! THANK YOU THANK YOU THANK YOU for keeping us in your prayers! WE LOVE YOU!

Wednesday, March 24, 2004 6:25 PM CST

Today was another day spent at AI for IV treatments. As for now, this will continue on a weekly basis or at least until Brandon's albumin level reaches a point where they feel okay to skip a week. For the last three days Brandon has really been feeling good. He has even felt well enough to "catch up" with some good friends for a few hours on Monday evening. I sooo look forward to the day when he feels good EVERY DAY! We are still waiting patiently (sometimes) for his new liver (the exact one that I know that the Lord has prepared for him), but I am asking for prayer specifically with our Insurance problems. As of yesterday (3/23) Blue Cross has stated that they have denied pre and post transplant coverage for any donor. This has prevented the work up that needs to be done on JP, or for any other "non-related living donor". As of right now, we are making calls and getting the word out while waiting for the actual denial letter to come so that we can then go through the appeals process. I have no doubt that Brandon WILL get a new liver! So again, we continue to fight against "time". Another prayer request would be that Brandon remain HEALTHY through this waiting time. That his lungs would stay strong and clear, and that the Lord would continue to minister to him and give him peace. He is just so ready to move forward along with all of us. I continue to be encouraged by the many family and friends that the Lord has blessed us with, and we are so appreciative of all of the help with trying to PUSH THROUGH with Blue Cross. We also continue to know that God STILL has his hand on this whole process, and that the Lord is "LARGE AND IN CHARGE"! Thank you again for helping us. We LOVE YOU all!

Saturday, March 20, 2004 4:19 PM CST

We are STILL hanging in there! Brandon is still battling his cough on and off, along with feeling really tired some of the time. But for the most part he is still good. I know I don't have to repeat it but.....THANK YOU for your prayers! We can definitely feel surrounded and uplifted by all the prayers! Speaking of, you all can pray specificaly that insurance would say YES and agree to allowing JP to be tested, or any other potential donor for that matter. It seems that we are kind of in "limbo" waiting for Blue Cross to make a decision. It can be hard sometimes in this waiting, but I continue to KNOW that the Lord has this ALL UNDER CONTROL! And that HIS TIME is not the same as my time. And that when we do actually get there, all of this will just be a "small thing". Thank you again, and I will update you all AS SOON AS I hear the word! Love you all!

Monday, March 15, 2004 5:22 AM CST

Brandon's cough has started increasing day by day. Already this morning he has been having a difficult time. We are going back to AI tomorrow (3/16) for more IV treatments. If he continues to have problems with the coughing and breathing, the plan would be to admit him again. I ask that you agree with us in prayer, that a liver would be found for him soon and very soon. I continue to remember that "this is just a season", and God has his hand on Brandon. We have seen that time and time again! Thank you for your prayers, and continue to PRAY THE ANSWER!

Tuesday, March 9, 2004 8:25 PM CST

Today was spent at AI getting an IV treatment. This is going to be done at least once a week, and we are scheduled to go back next Tuesday. Brandon is still feeling good, and going about normal day to day activities. I can tell you that we are enjoying being home together! As far as his college classes, we felt that the best thing was to drop this semester. His Doctor's agreeded that this would be the best thing for him right now. We continue to KNOW that we are in the palm of God's hand, and that his word says....ALL things work to the good of those who love the Lord! I do ask for continued prayer for not only Brandon, but for the potential donor as well. That there would be the "PEACE THAT PASSES ALL UNDERSTANDING"! Also, for the logistics with insurance to go smoothly and quickly. Thank you to EVERYONE for your support and most importantly your PRAYERS! Keep PRAYING THE ANSWER!!!

Wednesday, March 3, 2004 5:06 PM CST

Yippeeee! We are home! We were discharged from AI this afternoon, with improved PFT's (like I knew they would be). We do however need to go back once a week to have albumin and lasix run through IV. This will be done on Tuesday's at this point. Brandon is feeling really good and he is also looking good. I am sure though that he is ready for a break from being around me for 24 hours a day! That's okay, he is allowed to want a break. Actually, it will be nice to have the whole family together again, especially at the dinner table. I KNOW that Brandon and I both are ready for homecooked meals (even if I am the one cooking them)AND for our OWN beds! As I have said before, we are sooooo appreciative to EVERYONE, who has prayed, called, sent cards, cooked, and helped Steve with Jordan and Seth. We LOVE YOU ALL SO MUCH!!!

I ask that you continue to stand in agreement for Brandon's health, and also that this process would go quickly for WHOEVER the donor will be. We also need prayer, that my insurance company will agree to live donor and all that goes along with that entire process, from work up to transplant. I KNOW that God has it all under control, and that I MUST continue to give it ALL over to him! I will continue to keep this site updated whether we are home or back at AI. Keep PRAYING THE ANSWER!

Monday, March 1, 2004 6:58 PM CST

Another Month! The plan is still to shoot to go home on Wednesday, 3/3. Brandon is still feeling good, and he is eagerly awaiting going home! Albumin and Lasix is being run through his iv as I am updating this. This is to help with his albumin level and also with fluid build up. One of the doctor's from the transplant team told us today that most likely we will need to come up to AI once a week to have the albumin and lasix run. This would be done through day medicne, so he would only be here for the day. He should be having PFT's (pulmonary funtion test) either tomorrow or Wednesday. I am praying that the numbers will have improved from the last test which was done on the day he was admitted. I believe that his numbers WILL be better. We continue to know that the Lord is working ALL things out and that in "just a little while" Brandon will have a new liver! We thank you for everyone who has stood in agreement through prayer for Brandon's health, and who has continued to PRAY THE ANSWER! Thank you all so very much, you have blessed our lives!

Friday, February 27, 2004 4:36 PM CST

Today has seemed like such a long day! I guess that happens when you're really ready to go home. Brandon sure is! He is feeling good and looking good. Nothing really new to add. His belly is getting a little bigger every day, so they are watching that to determine when they may need to get fluid off. It is such a balancing act between having him not "too dry" but also not "to wet". Something that will change once he gets his new liver! I continue to know that God is working and his timing will be better than anything that I could have orchestrated. We continue to be in awe of all that God is doing, and the family and friends that we have (smile). We have enjoyed the messages of encouragement, prayers, and the jokes that you all have left on his website. Thank you so much for that! We LOVE YOU!
Love, Steve, Dawn, Brandon, Jordan, & Seth

Wednesday, February 25, 2004 10:11 PM CST

Today was pretty much the same. Although we did find out that a donor is now in the process of being worked up. That person is a wonderful longtime family friend. As a matter of fact my sister Susan and I are the closest thing to sisters that he will ever have!!! That person is John Herholdt. I ask that you keep him, his wonderful wife Jennifer, and their children Johnathn, and Jessica in your prayers. As well as his parents, Mike and Elaine Herholdt and the rest of his family. I know that after MUCH prayer and counseling that John, or as I and most everyone else calls him....JP, is being obedient as to what the Lord has laid on his heart. As you could imagine, Steve and I are so appreciative that he would even consider being screened. And that extends to all of the people who have "bombarded" the transplant unit with calls asking to be screened. We are just so overwhelmend by the generosity of all of our friends and family! God has truly blessed us beyond measure! I continue to see and KNOW with complete certainty that he is ALWAYS under control and that ALL things work to the good of him! Thank you again for your prayers and support! We LOVE you all so much, and are very honored!

Tuesday, February 24, 2004 6:02 PM CST

Another day! If you haven't already heard (which seems impossible)we have been given the okay to look for a "live donor"! We are so extrememly excited about this. Brandon is ready as well as Steve, Jordan, Seth and myself. It will be nice to see Brandon healthy and feeling GOOD! Hopefully this process will go quickly. I am not sure of everything involved but we have already had a few people call the transplant team (651-4000- Louise Flynn). I ask that you continue to keep Brandon lifted in your prayers as well as the potential donor and their family! I KNOW that God has everything timed out and worked out perfectly. Sometimes it is hard to remember that when I want things NOW. But I know, he is still in control. Thank you all for your prayers, calls, cards, and for offering help in anyway to either Steve or myself.

Tuesday, February 24, 2004 3:24 PM CST

We have created this page to keep all of our WONDERFUL family and friends updated. And also to let them know how they can PRAY for us!

Click here to go back to the main page.

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