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Parker's Page
Parker celebrates LIFE at the beach! (age 4) CA
On July 9, 2002 Parker was almost 3 years old when diagnosed with Philadelphia Positive Acute Lymphoblastic Leukemia. (Now 12 years old, August 5, 2011). Only 4% of ALL's are Philadelphia positive. This Philadelphia chromosome makes it a much more aggressive type of leukemia and requires a more intense chemotherapy regimen. A drug called Gleevec was given in the hopes that it would be a cure. However, doctors across the nation are now seeing patients relapse on this drug. The only cure now is a bone marrow transplant. On Feb 1, 2005, we jumped ship and headed to the University of Duke Medical Center in North Carolina for a 6/6 unrelated cord blood transplant. Parker received his new cells on March 23, 2005. Please read the daily journals below to see how Parker is doing.
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2005 Schedule for treatment: Feb. 22, start anibiotics Mar. 3, central line installed Mar. 14, day number -9, TBI began (total body radiation) Mar. 18, admitted into the hospital Mar. 19, day -4, begin chemo Mar. 21, Richard has surgery to get central line Mar. 23, day 0, TRANSPLANT Apr. 21, Richard has surgery to remove central line Apr. 26, Day 34 is last day in the hospital Jul. 15, Day 114 Parker has surgery to remove central line Jul. 27, Day 126 discharge from Duke Medical Center Aug. 3, Day 133 Back home for clinic at Children's Hospital of Central California Oct. 3, Day 194 Duke Medical Center for 6 month checkup Dec. 13, Day 262 Duke Medical Center for 9 month checkup
2006 Schedule for treatment: Apr. 4, Day 378 Duke Medical Center for 12 month checkup Apr. 11, Day 385 Duke Medical Center for continued 12 month checkup Oct. 11, Day 575 Duke Medical Center for 18 month checkup
2007 Schedule for treatment: Apr. 3, 2007 Day 741 Duke Medical Center for 24 month checkup Oct. 9, 2007 Day 923 Duke Medical Center for 30 month checkup
2008 Schedule for treatment: Mar. 18, 2008 Day 1098 Duke Medical Center for 36 month checkup Oct. 9, 2008 Day 1296 Duke Medical Center for 42 month checkup
2009 Schedule for treatment: Jan. 2009.....diagnosed with pre-cancerous skin Jan. 22, 2009 Day 1400 Duke Medical Center for 45 month checkup Feb. 2009.....begin traveling to UCSF to see dermatology experts Feb. 2009.....begin UV light and chemo treatments to sun exposed skin Jun. 23, 2009 Day 1553 Duke Medical Center for 50 month checkup Aug. 2009.....two biopsies reveal cancerous tumors in ear and lip Aug. 2009.....surgery to remove tumors and reconstruction to ear and lip
2010 Schedule for treatment: Feb. 9, 2010 Day 1784 Duke Medical Center for 5th year studies
2011 Schedule for treatment: Jun. 2, 2011 Day 2171 Duke Medical Center for 6th year studies
2012 Schedule for treatment: Oct. 9, 2012 Day 2757 Duke Medical Center for 7th year studies
Parker at his best.....
Parker's Story at the Jeff Gordon Foundation Website _________________ _ _ _ ____________________
Here is a list of children we've met that could use your prayers and support. Just click on the links below and when you get there, please consider leaving a few words of encouragement.
Audrey, Alex, Alexia, AJ, Amelia Grace, Bailey, Caleb, Courtney, Donovan, Evanosky Family, Grant, * Isaiah, * Joshua, * Jared, Karagin, Maddy, Mason, * Meredith, Micah Joshua, Micah, Michael, IronMike, Miranda, * Noah, Parker B., Rhyan, Ryan, Sherilyn, Spencer Rocket, Tatem Family, * Taylor,
* Same diagnosis as Parker
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Normal Range for Blood Counts: WBC=5.0-10.0 HGB=11.5-13.5 Plts=150,000-300,000 ANC= >1000
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New pictures 6/23/2010
Take me to.....Parker's Team - Fresno
Journal
Friday, February 11, 2011 11:14 AM CST Wow! It’s been a long time since I’ve updated! I wish I could say things have been uneventful over the past few months, but truth be told….Parker continues to fight hard with skin cancer issues. He’s had many spots removed, biopsied, chemo-ed…..on and on and on….. It is a battle without end. It’s so hard to watch him go through these painful treatments. Truly skin cancer has been way more painful than the leukemia ever was! Parker has also been battling stomach issues for months now. They’ve run every test that they can think of and even did a colonoscopy back in January. Everything has come back negative, which is a good thing for some of the stuff that they were testing for….The scariest of which was Graft Vs. Host Disease, which would have meant that he was rejecting his transplant in his gut. We were very happy that this was not the case. THAT would have been a hard fix! It would have been nice if something easy to fix had come back positive, but everything was negative and we still don’t have any answers, and he is still having tummy issues.
We are trying to figure out when to take Parker to Duke for his yearly studies. It’s probably going to get held off till June. He’s doing so well in school and we don’t want him to miss anything. He’s also on the school baseball team, is doing science fair, is in band, and placed 3rd with his Robotics Team this year. He’s trying out for club baseball on Saturday and we always try to squeeze in some family cycling here and there. We are also working with the plastic surgery specialist on how and when to reconstruct Parker’s mouth. Not sure where that surgery is going to fit into the busy life of Parker Fritsch! He really wants this surgery though, and is pushing us to get it done. Our charity cycling team is busy into a new season with some fabulous new members! We were so excited to present the Central CA Blood Center with a brand new blood mobile last week! We look forward to continue raising funds for charities and doing good in the community! Love to all! Thanks for your continued support over the years!
Keeping the FAITH!
Melissa, Richard, Parker, and Connor
Read Journal History
Hospital Information: Patient Room: Home
Links: http://www.cencalblood.org Central California Blood Center http://www.newhopechurch.net Parker's Church Web Site http://smilequilt.com/parker.html Smile Quilts
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