We just found out that we are approved for Mikko to go to EB clinic up at Children's Hospital of Philadelphia (CHOP)! Mikko has a dark pigmentation spot on his cheek that is very concerning to his physicians. Mikko has never been seen by a physician that is experienced and trained in EB. This will make a huge difference in Mikko's plan of care!
Now the scary part... Trying to afford the trip on such short notice! Glenn will have to stay back and work, so my parents will be accompanying us to help with bandages, caring for Mikko, and being an additional set of ears to help me remember everything we learn.
As of right now we are planning on driving up. We will have a FULL week of appointments (7/22-7/26). We will need to be up there Sunday and will likely depart the following Saturday.
