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Sign In to Show Your SupportNot a whole lot going on over the last few weeks; just waiting for her counts to come up. She's had some trouble with upper respiratory and tummy viruses which have kept her counts low and prevented her from getting any of her chemo so we're totally stalled there. She had a bone marrow and skin biopsy on Tuesday anyway to monitor her disease. The skin biopsy is to check for the possibility of a p53 gene mutation (aka Li-Fraumeni Syndrome). Results in a week or 10 days. We're also trying some experimental medications.
Went to the beach over the weekend though which was so nice; G hasn't been since she was a tiny baby. It was cool and breezy but of course the kids didn't care. It was nice and quiet; very few other people which was perfect for us.
Miss our friends at the hospital and our family!
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