This planner is no longer available. We're actively working on enhancing ways for your friends and family to assist you. In the meantime, feel free to use journals to share your requests for help.

Add Request
Accepted
Export
List
Day
Week
Month
May 05-11

Week of May 05-11

Daniel hasn't added requests yet
Leave a Well Wish to encourage them to add to their planner or ask how you can help.

Latest Site Updates

Journal

Thank you for praying for our trip today. Everything went smoothly. 

Daniel's renal ultrasound looked "beautiful:" his kidneys had very good blood flow, and there was no fluid retention. 

His KUB x ray though did not look good. It was basically the same as the two he had pre-surgery. Unfortunately, the Gavilyte bowel cleanse was not as effective this time as after his ER visit. There is significant stool blockage. 

Dr. King said she has been involved in MACE maintenance at Riley's since 1985, and this situation is not uncommon. There are a handful of options we can try.

We're supposed to start with Ducolax dissolved in warm water through a syringe in his MACE opening 15 min before his normal flush, as well as increasing Miralax from one capful to two. She wants me to call on Monday to let her know how the weekend went, and then she'll decide what to do next.

We already have Daniel's annual Spina Bifida clinic appointment scheduled for July 2, with another renal ultrasound, and she said that's exactly when she would want to see him again. 

Prayer requests are to unblock the current stool blockage as the first step, and then to find the best maintenance solution to keep from getting this blocked again as the second. 

Thank you for continuing to pray. Have a good weekend! 🌞

Read the latest Journal Entry

11 Hearts • 4 Comments

SVG_Icons_Back_To_Top
Top