Trent was diagnosed with Rhabdomyosarcoma in August 2005. We had been camping and his left leg swelled; I thought it was a bug bite or bee sting. Trent has always been a picture of health and no way was I prepared for the diagnosis of cancer.
He went through 10 months of very intense chemotherapy, plus 5 weeks straight of radiation to his abdominal area. We were in the hospital more often than not. Trent and I moved on strongly together...
In July 2006, he was declared in remission, he had surgery to get his port taken out in August.
In October, after many headaches in school and antibiotics for 'sinus infection,' he had a CT scan which showed a brain tumor the size of a tennis ball. It was removed the next day and he started with chemotherapy again. He had 4 straight weeks of radiation to the brain Nov 2006. We stopped the chemo for a few weeks and took his Wishes & More trip to DisneyWorld. The chemo regimen started when we got back and lasted thru July then 4 new brain tumors were found. His Oncologist was able to put him in a Phase II Study thru Dana Farber; in October, his scans showed the tumors had shrunk to half. Our excitement last until December 1; he had a seizure and his CT showed many more numerous tumors in his brain. He has been on every chemo made for man, they have done all that they can do.
This is so totally unfair; Trent has done everything asked of him. --------------------------------
Right now we are living everyday, putting forth as much love and happiness that we have and enjoying all our wonderful friends and family. Trent is SO excited for Christmas and is very busy doing projects with and for his sisters, parents, and extended family. We are ever so appreciative of all the people who are touching our lives, past and especially present. It is truly the best gift that we are embracing to the fullest. Thank you and keep praying for my little boy that he is happy and comfortable every day, and that he can enjoy each and every day that we are blessed to have him here in our arms to hug and hold. We love you. --------------
Trent passed away from this horrid cancer at 9:30am on Tuesday, February 26, 2008.