In October I was diagnosed with a rare cancer called Retroperitoneal Liposarcoma. Only 1000 cases are diagnosed in the United States each year. It is a sneaky and slow growing cancer. My husband affectionately calls it the “blob” as it basically takes up whatever space it needs in my abdomen by pushing organs out of its way. In my case, it started up by my right kidney and is as far down as my pelvis (broad ligament/ovary). The mass is about 20 cm long and was really found quite accidentally, which I will share another time.
I am fortunate to be getting the best care by a Sarcoma Center with an amazing team consisting of a surgical oncologist, radiation oncologist and gyne-oncologist. The plan is for me to have 25 Radiation treatments, then 4-6 weeks later the big surgery to remove the mass, right kidney and total hysterectomy.
I am not sure what I will be writing about as there is just so many unknowns right now. I do think it will be best to share as much as I can and to be as real as I can be.
What I do know is that I am strong, healthy (other than stupid cancer) and surrounded by so many people who love and support us. I say “us” because this diagnosis has affected more than me. My husband and my son are my world. We are blessed with our amazing family and friends who are walking with us as we take this journey one step at a time.
Thank you for “checking in”, for the prayers and well wishes. If you are someone who has liposarcoma and you stumbled on my page I hope this helps you in some way.