Sydney Burke Sydney’s Journey

Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.


We found out we were pregnant in May and were so excited to add another edition to our little family. We have one other daughter who is almost two, named Harper.


At our 20 week anatomy ultra sound we found out that our little baby girl was going to have some very serious, complex heart defects. We spent the remainder of the pregnancy going to specialist trying to determine exactly what was wrong with her heart and how to fix it. They did testing and determined it was not a genetic They are unsure why these defects happen. The doctors say it was nothing mom ate, drank or did; Its just a rare glitch that happens when the cells divide. The chances of this happening to anyone is 1 in 150. Her heart has one ventricle instead of two,  Meaning one side of her heart did not develop a condition that falls under hypoplastic heart. With this condition comes other heart defects and another condition called heterotaxy. Heterotaxy means that her organs aren’t in the same location as how they normally appear. It was a very emotional pregnancy and we are so thankful we have so much support from our family, friends and co-workers.