Join CaringBridge during this most important time of the year. Your support means that we can continue to provide free, secure websites all year long.
Welcome to our CaringBridge website. We've created it to keep friends and family updated about Steve's healing process. Get started by reading the introduction to our website, My Story. At the onset, it will be updated by me - Shari. I am Steve's sister.
Visit often to read the latest journal entries, and write us a note in Steve's guestbook. We look forward to hearing from you!
Hello! And thanks for visiting Steve's CaringBridge site. This is Shari - Steve's sister. I will do my best to explain Steve's diagnosis and journey. Feel free to leave questions on the site and I will get them answered!
Steve's journey actually started during the summer/fall of 2009. Too many details to describe here - I'd run out of characters if I typed it all!
In the spring of 2010 - and into that summer, Steve started feeling noticeably more fatigued, swelling in his abdomen, enlarged lymph nodes and loss of appetite. In early July, 2010, the swelling in his abdomen changed from uncomfortable to painful. And he could not eat as the food (actually, his body's processing of food) made his pain worse. Steve decided to get a second opinion regarding a previous lymph node diagnosis. Through that process, he found an amazing Dr. who ordered an immediate PET scan (unfortunately, one had not been ordered earlier.)
The PET lit up his lymph nodes like fireworks - which normally indicates lymphoma. Thus, a second lymph node biopsy was scheduled for Friday 8/6/2010, to confirm the lymphoma diagnosis. (At that point, the lymphoma diagnosis is actually only 80% confirmed by the oncologist - 95% confirmed by others.)
During the first week of August, 2010 - the pain was so unbearable so the Dr. recommended Steve go to the ER and be admitted to the hospital.
After another review of his PET scan, the Dr's discovered pressure on the ducts where the enzymes are released from the pancreas and the gall bladder. Thus, resulting in pancreatitus - enlargement of the pancreas. And that is the cause of the pain.
He was on morphine for the pain and had quite the controversial roommate. And that's all I will say about that!
As I originally wrote this, it was Thursday night, the night before the biopsy. We were expecting confirmation of lymphoma sometime early in the next week. There was much more information to learn from the biopsy, such as which type of lymphoma, to determine the actual treatment regimen. Unfortunately, it took over two weeks to get the diagnosis because his case is very complex. Thus, his chemo treatments were delayed. You can read more on the journal updates to see how his treatments finally progressed.
I found the following posted on a friend's Facebook page:
"You are connected to a loving source within you that provides divine well-being, infinite abundance and wisdom. You need only to tap into this energy within to draw on that feeling of love."
May we all feel the power of love and prayer from our God.