We started this Caring Bridge back in 2018 when Ella was going through the incredibly difficult journey of what we would eventually diagnose as tethered cord. She would then move on to have spinal surgery in 2019 and make a full recovery. The outpouring of love and support during that time was priceless and we, to this day, are thankful for every single person who had an impact on our lives during that time.
Ella is again going through unexpected medical complications, so we are turning back to Caring Bridge. Our hopes are that not only does it update our loved ones with what is going on with her, but bring awareness to a disease that affects so many (#1in26).
Please feel free to share Ella’s story. Not only does this bring the necessary help for Ella but educates and provides hope for others who are experiencing similar medical journeys.
