As many of you know, sweet Sierra was recently diagnosed with acute lymphoblastic leukemia (akute lymphatische Leukämie) and KMT2A (MLL) Gene Rearrangement, a disease that only 30-50 kids in her age group have in the entire country. There are many questions still unanswered and we appreciate everyone's patience as we learn where this journey will take us.
You guys are amazing and we want to thank you for all your love and support.
While we will try to connect individually, we will try to update this site with information as soon as we can in the "journal" section. If you are interested in visiting, contact Erin via email or phone (for some reason text messages don't always work...). Please be sure to be healthy (i.e. no runny nose or other symptoms), as Sierra's immune system is very weak. Also - flowers are not allowed on the oncology floor.
You can find ways to help by clicking on the "Ways to Help" link. We have set up a calendar where you can pick a day to visit the Johnson ladies or even better where you can choose dates to have food delivered to the hospital (there are options for those out of town, and pls know that Erin eats vegetarian food, and the fridge space we have is only allowed to store food for 48hrs and is not very big). You can also donate money using the gofundme link (make sure NOT to confuse the CaringBridge donation link). If you want to share research articles, please make sure they are relevant and current. As we figure out other ways in which Erin and Sierra can use help, we will add these to the list.