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Nov 8, 2018 Latest post:
Nov 16, 2018
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
Some of you have known me from the start of my health battles others might not even know they exist. I am starting to page for two reasons first, it is therapeutic to tell my story and the to keep people informed less phone calls and text because that does drain my energy.
My story started in 2003 about 18 months after the arrival of our sweet Claire. I suffered complications from and ovary removal and which caused massive bleeding which lead to blood clots in my lungs it was a true mess and touch and go for a least week before I became stable. Then in 2005 I more surgerical complications followed by minor bumps in the road but went along with life until 2010 when I suffered a spontaneous subarachnoid hemorrhage. This was one of the most scary things I have experienced. Not only was it the worst headache anyone could ever imagine but I loss-ion and have seizures. It took a month to get my brain to slowly heal enough that I could start functioning And slowly return to my normal life. In 2015 is when the real bomb dropped. I was diagnosed with multiple sclerosis. This can be a very mild illness or much more significant. As usual I had to take the hard road and had multiple bumps in the road with new lesions. Since 2015 I have spent four weeks in rehab sometimes learning to walk, write read and speak appropriately again. I was fortunate enough to be put on a new MS medicine that seemed to put things into remission however that did not last long last week I developed a new lesion on my Thoracic spine. Which led to another round of heavy doses of steroids 3000 mg in three days talk about rage nothing like steroid rage. At least I had an excuse LOL. Then in the summer of 2018 I was diagnosed with a common variable immune deficiency my body literally had nothing to fight infection. So I had a port inserted and started every three weeks I VIG in hopes to some point get closer to a normal level a normal level is between 700 and1200 my first level was 150. But still things were not right thru direction of my fabulous primary care doctor Dr. Quigley she decided it was best for me to try and seek help at the Mayo Clinic where they can look at all the pieces of the puzzle put them together and get me on the right track. So tomorrow November 8, 2018 John and I start that journey we leave for a week at the Mayo Clinic.