Feb 26, 2018 Latest post:
12 hours ago
I’m trying to answer everyone’s questions and find out everything that I can. If anyone knows something that I should ask, please feel free to let me know.
Ron had a stroke in November 2016. He had a really, really bad headache on the left side of his forehead (which affects your right side) and was having trouble seeing out of one eye, especially peripheral vision. He had it for hours and hours before he finally let me take him to Kaiser Urgent Care in Largo. He probably still wouldn’t have gone if it weren’t for his lifelong friend Trish Hill. She kept bugging him and bugging me thank goodness. She knew that he very rarely got headaches and suspected that something was wrong.
Kaiser did an MRI and said that he had a stroke. Neither one of us could believe it because we were sitting in the room talking to each other after the MRI. They immediately took him to Holy Cross Hospital. He had a hemorrhagic stroke (brain bleed) as opposed to a stroke caused by a blood clot. That’s the kind that you have to administer TCA in a certain timeframe. TCA is not given for a brain hemorrhage like Ron’s.
Last time Ron was a little out of it in the hospital but nothing like now, never unconscious. He stayed for 3 or 4 days and then came home.
That time the Neurologist told us that Ron had a BIG brain bleed and that it was in a weird place. They couldn’t give us any reason as to why it happened.
It took a while but he had pretty much recovered almost completely from the first stroke when he had his second stroke.
Then on 2/1/18 his mother passed away. She had not been doing well so it wasn’t a total surprise. We had her services on February 10. He seem to be handling everything pretty well. As I said in one of my updates, I’m glad that she is not around to see what her only child is going through.
On Saturday, 2/24/18 Ron got another really bad headache on the right side which affects the left side. Unlike before, he lost all use of his left side almost before the paramedics got there.
He was taken to MedSTAR Southern Maryland Hospital Center and would have been immediately flown to MedSTAR Washington Hospital Center but it was a rainy and foggy night and all helicopters were grounded. So they had to take him by ambulance.
He had an emergency Exploratory CRANIOTOMYC a few hours after he arrived at Medstar Washington Hospital Center (MWHC) which turned into a CRANIECTOMY. This is the definition that I copied - “Decompressive craniectomy is a neurosurgical procedure in which part of the skull is removed to allow a swelling brain room to expand without being squeezed. It is performed on victims of traumatic brain injury, stroke and other conditions associated with raised intracranial pressure”.
Once surgery started they discover that Ron had an AVM (Arteriovenous Malformation) and that’s what caused the huge brain bleed. It was explained to me as twisted veins in the brain. Most people that have it are born with it. Here is a paragraph I copied from Wikipedia - “Arteriovenous Malformation (AVM) is an abnormal connection between arteries and veins, bypassing the capillary system. This vascular anomaly is widely known because of its occurrence in the central nervous system (usually cerebral AVM), but can appear in any location. Although many AVMs are asymptomatic, they can cause intense pain or bleeding or lead to other serious medical problems”’
The doctors said that there is no way to know that someone has this and that there’s nothing he could’ve done to have caused this. And that is very rare and only happens in one in 10,000 people.
So they call this brain bleed VERY LARGE. and said that he was/is very, very, very, critical.
The origin of the AVM is the LEFT COMMON CAROTID. That caused the bleed in the RIGHT TEMPORAL LOBE. The bleed on the 2nd or 3rd day was SUBARACHNOID.