On June 15, 2017, Reign was diagnosed with Pulmonary Vein Stenosis and while I (his mom) was elated to finally know what was going on with her baby boy the news was also trying. The following day a team at Nemours Children's Hospital successfully performed a procedure in which they ballooned three of the four pulmonary veins in Reign's heart (forth vein was perfect).
I have created this site to help keep everyone informed of his progress. Having been in the hospital since June 1st with many questions from family and friends a very kind, helpful and amazing nurse (thanks Claire!) recommended this site to keep everyone informed and alleviate some of the stress I was experiencing.
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.