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3/28/2017 Latest post:
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place for our little CHD Warrior.
At our 19 week ultrasound, nearly 2 years ago - we had no idea how the words of our doctor would affect our lives from that day forward. We were expecting to merely find out the sex of the twins, and we walked away in tears and astonishment knowing that Baby B (Parker) had a congenital heart defect (diagnosed at the time as AVSD - Atrioventricular Septal Defect) that would require open heart surgery to fix and repair. We prepared the best that we could for the already risky twin birth and the unknown of how Baby B would do. Luckily, the twins were born and all worked out great at Children's. Parker was put in the NICU, Andrew was put with mom. Parker, after an initial work-up and echo, was a thriving little guy that they said really didn't need any NICU time at all. We all went home after 3 days and started our rounds of check ups and cardiac echos to monitor Parker's heart. After one of our echos, shortly after birth, the doctor said one of the two holes DID close up, so now his diagnosis is ASD - Atrial Septal Defect (which correlates to basically one hole in the upper chamber of the heart that allows his oxygenated blood to mix in with the non-oxygenated blood and just makes his little heart work harder to pump good blood all over to his body). We then were put on a holding pattern to watch him grow as big as he could and to do regular echos to see when the right time would be to do his open heart surgery. Now, at 18 months, the time has come to fix him up. Surgery is scheduled for the morning of March 29th.
We appreciate your support and words of hope and encouragement. Thank you for visiting.