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4/10/2016 Latest post:
Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and prayers during this time. However, please do not feel obligated to donate to the Caring Bridge website, which strictly goes to funding the technical aspect of the website. We were unaware of this option when we created it and desire your prayers alone.
Noah was born on February 16, 2003 with severe heart defects which resulted in heart failure and having open heart surgery at 8 days old. While in the CICU, he was diagnosed with DiGeorge Syndrome, a partial deletion of the 22nd chromosome. This condition involves numerous physical and mental issues for Noah. In 2010, we were told that Noah's aorta may need surgery because it was too large (aortic aneurysm) and could dissect. Every year he has been watched and measured closely by cardiologists. In February 2016, Noah's heart MRI showed more enlargement of the aortic root. The size is about 5 cm, which is a number surgeons intervene at for adults. We are referred to Phoenix Children's for cardio thoracic surgery for Noah. We believe Noah is definitely in God's hands. The timing of everything is amazing. We are back in Arizona and have secondary insurance for him. We will keep you posted on his health and appreciate your prayers.