Noah's story begins when we found out at four months pregnant that our first born would have a birth defect called spina bifada. He was born on July 3, 2000 and spent two weeks in the NICU at St.Paul Children's Hospital. In addition to spina bifada, he was born with hydrocephalus, Arnold-Chiara malformation and an immune deficiency where he doesn't make his own B-Cells. These challenges have caused many delays both physically and mentally for Noah however his personality has always been fantastic.
Noah has had many surgeries along the way. I believe the count is up to seventeen. The most difficult to date was at three months old he had to have a shunt placed in his skull to take care of the hydrocephalus. Unfortunately during surgery he acquired a staff infection. That created a vicious cycle of removing the shunt, giving intense IV antibiotics and replacing the shunt . We did this three times until finally the shunt was moved to the other side.
Noah spent most of his first years in the hospital and he was such a happy easy baby that the nurses at St. Paul Children's would fight over him. Noah has always been a very smiling loving boy. He has a unique acceptance for everyone. He enjoys being around people and just hanging out with the family. His personality is easy going. Every morning he wakes up happy and ready to start the day.
Our precious Noah exudes love and one can't help to smile when you are around him! The simplicity and honesty of his words really make you think. The influence he has on others really makes one appreciate life and reminds us to live in the moment. I hope you have had the chance to really get to know our amazing boy Noah!
So welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.