Nicole Westphal

First post: Mar 8, 2019 Latest post: Dec 18, 2019
Nicole was initially diagnosed with a brain tumor in early 2019.  After seeking a second opinion, she was officially diagnosed with Erdheim-Chester disease, a rare type of blood cancer.  ECD is such a rare condition, for many years treatment options were minimal due to limited clinical data available. Due to recent advances in the field, the medical community has never been better equipped to identify and treat this disease. If you'd like to know more about ECD, better understand what Nicole is facing, and explore other ways to help in the larger fight against this disease, please visit the ECD Global Alliance at

We are filled with gratitude for our amazing family and friends who have surrounded us with love and generosity. We thought this site would be a great way for us to provide everyone with updates on her journey. We also want to create a space for all of you, near and far, to interact with her by posting your well wishes, pictures, favorite Nicole stories, and words of encouragement.

The words often used to describe Nicole: Kind. Thoughtful. Generous. Fun. Goofy. Wife. Friend. Mom. Daughter. Bestie. Sister. Neighbor. Family.

To those, we now add: Brave. Positive. Strong. Real. Courageous.