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12/15/2016 Latest post:
Two years ago Kacie started itching during a visit to Florida. We attributed it to pregnancy symptoms as she was 3 months pregnant with our beautiful daughter. The itching never subsided and Kacie delivered our daughter early. The OB hoped that our daughters birth would cause Kacie's itching to end. The itching did not subside and after multiple visits to several medical specialists Kacie was diagnosed with non- Hodgkins Lymphoma (Primary Media Stinal B Cell Lymphoma (PMBCL)) in July 2015. After 6 week long chemotherapy treatments (3 week cycles) over 5 months, Kacie had a residual mass that showed cancer activity in December 2015. In February 2016 , specialist at the NIH reviewed the pathology of Kacie's tumor and her PET scans. The Lymphoma experts believed it was a non-cancerous side effect of chemotherapy commonly seen in PMBCL patients. Several subsequent scans showed minimal change to the residual mass until early September 2016, when a PET scan indicated increased growth and activity. This was confirmed by a subsequent CAT scan and biopsy. Furthermore, 2 smaller tumors began to grow. Kacie was diagnosed with a rare form of Lymphoma called Gray Cell Lymphoma, which means she has both Hodgkins and Non-Hodgkins Lymphoma. She recently underwent 2 cycles of RICE chemotherapy treatment beginning in November 2016 and we are preparing for a stem cell transplant beginning January 3rd, 2017.