May 16, 2017 Latest post:
Nov 12, 2017
When Junior was born he had a lump on the back of his head. His pediatrician said it could be a lymph node or a cyst. He said as long as it doesn't cause him problems we don't need to worry about it. Sometime last year in 2016 he was having headaches. The headaches lasted almost two months. We took him into the pediatrician. The pediatrician said he couldn't figure out if the bump was a cyst or lymph node. Depending on what it is it could be vauseing headaches. So he sent us to the ENT. Junior needed to go to the ENT anyways because he needed to get his tonsils and adenoids out. When we went to the ENT he verified that he needed his tonsils and adenoids out because he was 90% blocked for his Airways. He thought that the bump on the back of the head was just abnormal bone growth. Tony wasn't happy with that answer. So he sent us to do a CT scan. The night of the CT scan which was December 5th 2016. The ENT came in the hospital and told us it was abnormal. He told us we needed to do an MRI because the MRI has better features to contrast his brain to see what was going on. When we went to see do the MRI we also were taking out the tonsils and adenoids at that point. So we scheduled the MRI for January 13th 2017. They said it was rathke's cleft pouch cyst. It was 10mm X 16 mm x 12 mm. They told us we need to repeat it in four months and see if it has grown. So on April 24th 2017 we had another MRI. The new measurements 13 mm x 17 mm x 15 mm. So they said that they had grown so rapidly that we have to see the eye doctor because it was pushing on his optic chiasm. To see if he needed surgery or not. May 11th was the eye doctor exam. The doctor said he looks great right now. We will need to go back in 3 months to see if he thinks his vision has changed. But in the mean time unless something changes with his eye sight we don't need to see the eye doctor for 3 months.Eye doc said he would never know he has a cyst or tumor if he didn't know there were scans... so that is hopeful. Now we wait for the neurosurgeon to let us know what the next step is.