Jordan Weber

First post: Jun 23, 2019 Latest post: Jun 29, 2019
As many of you know, I suffer from severe gout and kidney stone attacks, as a result of an enzyme deficiency called Kelley-Seegmiller. I decided to start this page so friends and family can stay up to date on the latest in my medical journey. 

Although I was diagnosed with this genetic ailment at a young age, the physical repercussions didn't start to manifest until about 8 years ago. Since then, the attacks have been increasing in frequency and intensity. I have been studied and treated by Children's Mercy, Johns Hopkins, and KU Medical Center. My current doctors feel like they have done all they can to help me, and have referred me to the Mayo Clinic.