Can you support CaringBridge during our Fall giving campaign? Generous donors like you ensure that CaringBridge remains ad-free, private and protected.
Feb 24, 2018
As many of you know, I do not like speaking openly about my health issues. I will always act fine, will always speak as though everything is ok, and will stay home on the days that things are too much to deal with so that I can hide and pretend that all is well. This will be an outlet for my family and friends to know what is going on without me having to feel as though I need to constantly talk about it. It's also a journal for me to let go of the many emotions that go along with having undiagnosed, very painful, issues. For those of you that don't know, I have a 3 things wreaking havoc on my body....
1) I have been dealing with migraines since my teenage years. If you have never suffered from a true migraine, you are one lucky duck! A bad headache is not a migraine - migraine symptoms consist of vomiting, vertigo, your 5 senses are drastically heightened, numbness and pain in certain parts your body, and severe head pain, just to name a few. For the past 10 years, mine have become so constant that I have one to two migraines every day, seven days a week, 365 days a year. I have tried all preventative prescriptions available, but now have to take migraine aborting prescriptions every day - prescriptions that you are only supposed to take twice a week at the most. This is not good for my neurological system along with my cardiac system, but at this point, I have to choose the lesser of 2 evils to have a semi-normal life. 2) I have spinal arthritis, scoliosis, along with disk herniations and stenosis. I cannot sleep laying down and have to sleep on an incline - sometimes sitting straight up. Each night consists of waking every 2 hours to stretch along with changing out icepacks to numb the pain. If I'm not careful and I don't wake up in time to move, stretch, ice, the pinched nerves cause a full-blown migraine. Right now, I am working with a pain management group to try to get control over the pain. 3) Food sensitivities - I have come to find out that eating specific foods will trigger my migraines and gut issues - I am now gluten, soy, egg, and nut free and have been for over 4 years. More and more foods are causing issues to the point to where I’m not sure what I can ingest, at this point, that my body will not react to.
I can't help but think that all of my issues are an autoimmune response, but figuring out what auto immune disorder could be the culprit is the hard part. I am still trying to figure it out and will keep everyone updated through this site with the hopes of also being able to help others in a similar situation.
No matter what, I feel as though my body is slowly attacking itself from the inside out. My body is telling me that something is wrong but I have not found the best Dr. to help me dig to get to the root of the problems. I have seen neurologists, neurosurgeons, pain management clinics, chiropractors, had spinal taps, bloodwork, etc. with no help. Just remember, when you see me, I am in pain. If I act “off” or skip out of a meeting early, it isn't because I don't want to be there - I love my family and friends dearly, and would love to have a "normal" life with those around me! As I've gotten older, I have begun to realize that I can't keep this up. My body is struggling to keep up, blood pressure is through the roof (170/110 at times), I am very succeptable to having a stroke, and I need to focus on pinpointing the culprit head on before it’s too late. Please include me in any prayers you might send up - I am determined to make 2018 the year of answers and healing!! The Mayo Clinic is a possible option and hope to speak with them in the next few days to weeks. I love you all! Thank you to those close friends and family members (that know all of my demons) for your support the past few years - you mean the world to me!