Jan 13, 2008 Latest post:
Jan 14, 2008
On December 13, 2007, at the age of 4 yrs old, Jett was diagnosed with Idiopathic Thrombocytopenic Purpura-ITP. A blood disorder that causes low platelets. Normal platelet count is 150,000-400,000. His were at 4000! I am just hoping he gets over this and is not considered chronic.
How we found out was not by his pediatrician, but because of my husband & I KNEW something was wrong and demanded blood test! At the end of November (30th) Jett was sick, so I called the pedi. and they called in meds. Ok, well on Dec. 8th he woke up with a perforated ear! Now at this time he was still taking his antibiotics (was on the 8th/9th day of it). I called the pedi. answering service, they took my son's name, reason for calling, & phone #. So I patiently waited and waited for a phone call & didn't get one. So I'm thinking ok maybe it's not that big of a deal, afterall my nephew ends up with a perforated ear every single time he has an ear infection. So I call that Monday (Dec. 10th) got an appt at 10:15. Took him in and well at this time he had started getting bruises and petechiae real bad! We told the pediatrician our concerns bout the bruises as they all just seemed to appear within a week ALL over! Well, the pedi was nonchalantly checking Jett's stomache out, like he was checking for internal injuries! Than he goes on about how his perforated ear could have been caused by an open hand slap and was looking at my husband & I as if WE did it!! Now I was like ok we have had the same pedi since before my daughter was born!! I started going to him when my oldest was like 5-6 yrs old and he is 14 now! So basically he DID NOT know his patience or their parents at all because he literally pointed the finger at us!! Ok, so he is claiming he can't see in Jett's ear cuz it was too bloody and at this time I had shared with him that I called the answering service and didn't get a call back...well I basically got called a liar as he said you must not have called or else I would have called you. Ummm yeah ok, so I just called a random #, NOT, I have the dr's # on speed dial so no mistaken of dialing wrong, @@. Ok, so onto the ENT as the pedi made us go there. The ENT dr looked right in Jett's ear (amazing how he could see in there) and says yes he has a perforated ear drum CAUSED by an infection! Got new meds (Biaxin) and went home.
Next day (Dec. 11th) comes and we got a special visitor(s), known as CYS (children youth services). Yep my own pediatrician who I trusted called CYS on us! Well, there was a woman & a guy and they were kind of puzzled as to why this "person" called because they both said there clearly is NO abuse here whatsoever!! Yes he has bruises all over him, but the way the guy explained, they were not abuse bruises. And I had been keeping a chart on all his bruises and marked them down as new ones came. Which the CYS officers said, a person abusing their child does not keep a record on it! Of course not, cuz WE don't abuse them!! Like I have said if any of my kids would get beat it would be my 14 yo that thinks he is an adult with his mouth & attitude...lol. Also he is built like an adult also (@ 140lbs 5'4, bigger than me!) So we talked to them a little bit on our concerns and fears, they both were very supportive and let us know that our case was closed and they would back us up in whatever we do. So that's when we felt safe to call the pedi up and demanded some testing done.
So on Thursday (Dec. 13th) we took Jett to the lab in the hospital and I would say within 20 mins of walking in the door, his pedi called me telling me what they found (platelet count was 4000). He never once apologized for not looking into it further as he should have and basically told me over the phone that he could have leukemia!! Yeah what a great doc you are, NOT! I am so mad that I have trusted him for like over 9 yrs now! So he wanted us down Pittsburgh Children's Hospital (which we didn't mind at all as they are way better than our local hospital). YES we got rid of this quack and got a new pediatrician who I investigated before calling. He is highly recommended and quite a few of my friends have him as their pedi, so I feel comfortable.
Got down there, they ran a lot more test and wanted to rule out leukemia, so they finally told us oh around 9 PM that it wasn't leukemia but that it was ITP. We had no clue what that was, as we know NOONE with it or even have ever heard of it. Well he was in the hospital from Thursday (13th) til Saturday (15th) on steroids treatments. He was sent home with steroids to finish out his 4 day treatment. That nite he ended up with the flu and was sick til like Monday. Finally got over that and finished out his steroid treatment, he was doing great! His numbers have been up & down, but the dr's are ok with his numbers for now and we are on a watch & see. His next count is Jan 25th, which is fine with us as we were getting him checked like 2 x's a week and seeing his hematologist dr every single Friday in Pittsburgh! Which my husband would have to call off as I couldn't get my butt in or out of Pittsburgh...lol.