Jessie Claire is currently battling Moyamoya, a rare brain disease that restricts blood flow to the brain. She also has brain tumors involving both optic nerves, chiasm, and hypothalamus. The week of Christmas 2008, we received the news that Jessie Claire has brain tumors. She was only 15 months old and began chemotherapy at 17 months old. After 10 weekly treatments of chemo, Jessie Claire's brain tumors had almost doubled in size. A couple of months after completing another 54 weekly treatments, the tumor involving the hypothalamus had grown 75%- to the size of a "large lime". By the age of 4, Jessie Claire had received 88 chemo treatments. We thank God everyday that Jessie Claire has been chemo free for about 6 years.
In February 2014, while in Kindergarten, Jessie Claire was diagnosed with Moyamoya. She had brain surgery in March to provide blood flow. A year later we learned the brain surgery had failed.
Fast forward to June 2019, Jessie Claire is looking forward to starting middle school... while facing more brain surgery-- a direct bypass and an indirect bypass.
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