Jeramiya Ramos Jeramiya’sJourney

Let's begin exactly 6 months ago. On May 19,2019 a wonderful bundle of joy named Jeramiya was born . Although he was a little early he was still perfect to us. He weighed 7 pounds and 11 ounces. He was so precious and everyone loved him. Two days later The attending doctor from the NICU said he had low platelets but it was nothing serious. My husband and I were told it was a condition called NAIT . Neonatal alloimmune thrombocytopenia. And he would eventually grow out of it. Over a course of three weeks my sweet baby  received 4 platelet transfusions but his platelet count continued to drop . Eventually he was able to finally come home. Following up with a hematologists we thought he was fine. One night I knew something wasn't right so I decided to go to the emergency room just to make sure he was ok. The attending physician did several lab test and notified us he may potentially have leukemia. After a bone marrow biopsy the notified he had a genetic mutation and two potentially rare conditions . RALD Ras associated luekoproliverative disorder or JMML juvenile myeloid leukemia. The journey has been tough for my precious baby as well as his older sister Amiya . We have had several hospital stays,additional biopsy, and chemotherapy. The answers are still unclear but his symptoms are still present and the oncologists and hematologists are working to find the answers for my baby. The only for sure thing we know is he will need a bone marrow transplant sooner or later. We have been blessed so far with an amazing support team. My husbands family as well as my family have really come through and have helped us tremendously . Thank you everyone who has been here for us as we countinue on Jeramiya's Journey