Jay Nolan Turney

First post: 12/28/2016 Latest post: 1/9/2017
On May 20th, Shawn and I found out some very exciting news. We were pregnant! After finding out and telling family members, we began planning and getting things together to welcome our beautiful baby home. On October 31st, amidst the excitement of spending our Halloween together, we recieved the news that would replace excitement with fear and anxiety. My mother and I attended an appointment for a routine in depth ultrasound due to my diabeties at St. Vincent. There, we learned that baby Jay has a rare heart defect known as Right Hypoplastic Heart Syndrome. It is a condition where the right side of the heart does not develop properly and in turn, does not pump blood into the lungs as it should. Upon birth, he will be placed in the NICU on continuous IV medication for 5-7 days, at which point he will undergo a surgery to have a shunt placed in his heart. Recovery will take 4-6 weeks, give or take, and we will be able to welcome Jay home! At 6 months he will return to recieve the Glenn Shunt, the first of two open heart surgeries. At 3 years he will undergo the Fontan completion, the second and final open heart surgery.  While still excited, overjoyed, and already in love with our baby boy, we are very nervous for the birth and first few years of our sons life. We will keep this site regularly updated and try to keep everyone as informed as possible. We appreciate all the support, well wishes, and prayers we have recieved thus far and look forward to posting many happy updates and joyous milestones!!

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