Oct 26, 2016 Latest post:
Nov 15, 2016
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting.
My story is rather lengthy, but to shorten it up a bit, I was diagnosed with colorectal melanoma cancer in May. With God's help and guidance, Bill and I found Cancer Treatment Centers of America, and our first initial 3 day evaluation turned into 10 days. My Oncologist, Dr Ahn, helped to develop the new immunotherapy, which is the newest form of cancer treatment. My Doctors back home basically sent me home and instructed me to call Hospice. Dr. Ahn on my first visit basically said to throw everything I had been told in the trash, and that he would help get me through this season in my life and expect to live a full life. Immunotherapy had come out of clinical trials about a year ago with good success. We decided to take my first treatment while on our first visit, and I have been getting treatments every two weeks since May 28. We were coming up to Zion, which is just above Chicago, every two weeks, and the trips were simply exhausting me. We made the decision in August that it would be better for me to stay up here for a while, and Dr. Ahn agreed. So I have been here for 3 weeks now, and don't know exactly how much longer I will stay. My potassium levels have been critically low, and they would like to get me more stable, and hopefully finish my treatments at home. But this may take awhile longer. My Addison disease has complicated the treatment process, and there are some days I can barley go., but am managing with God's help. I have so many wonderful experiences with God throughout this process that I simply don't have time to share. The people and staff here are tremendous, caring and loving. I can't say enough good things about this place other than to say that God has hand picked these people for this place. Every patient I talked with says the same things. Just angels everywhere.
Dr. Ahn is well pleased with my progress so far, but treatments will extend into next year, and that is why we are trying to get most of them done at home, and then come up hear every 3 months for a scan and progress report. It can get lonely at times, and I miss home and my Hubby so much. He comes up as much as he can, but still has to work. We have never been apart this long, and it is tough on both of us. I have so many wonderful stories to share, just don't have the time here, but can't wait to see everyone and share my experience. Love to you all, JANET