Elizabeth Huth

"Its all in my head."  That is literally and figuratively. Lets go back to how this journey with cancer started.  In March of 2018 I was experiencing symptoms that required me to visit every women's favorite doctor. The symptoms I was experiencing required me to have a procedure. Pathology from that procedure revealed the word that no one ever wants to hear, cancer.  I was diagnosed with endometrial cancer. There was not tumor per say but only cells so we thought we caught it early.  After those words had time to sink in, I went in to have a total hysterectomy.  That surgery went well and I felt great.  I felt great until June 5th. (x-apple-data-detectors://9)  I was at work and I noticed that I was having difficulty typing.  I knew the letters but I could not get my fingers to hit the keys on the keyboard.  I was rushed to the ER where an MRI was completed.  There was a tumor on my brain.  I was scheduled for an immediate brain surgery to remove the tumor.  The surgery was a success.  The pathology report showed that the two cancers were related. I had one treatment with the gamma knife as a precaution and I would undergo 6 rounds of chemo.  Everything was going well after my brain surgery.  I went in to have a routine follow up MRI in September.  I was at the doctors office for 8 hours that day.  They found 5 more tumors. Needless to say the bottom fell out of my world.  My chemo was stopped and I started on a coarse of whole brain radiation.  After my whole brain radiation is complete I will go back to Minnesota to take the next steps in my treatment.  I am not sure what that step is but we will figure it out.


 

While I was starting my cancer journey, one of my sisters was on her own cancer journey.  The pathology for her cancer showed a genetic variance.  That simply means that there was a mutation and a missing gene.  Without any information on the variance,the specific variance is not documented any where in the world, so they are not exactly sure of the implications. Long story short, I am missing the same gene as my sister.  We are currently being studied by a genetics lab in California.