Jan 17, 2010 Latest post:
Nov 21, 2018
My name is Dejon, I'm 18 years old. November 21st 2003, I was diagnosed with a brain tumor(pilomyxoid astrocytoma). For more information read my background story.
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Mailing address ~ 3632 Union St. Elizabeth City, NC 27909
~ DONATIONS MADE HERE DO NOT GO TO DEJON ~
I'm Cassie, Dejon's mom. Dejon is an amazing 18 year old boy, who is funny, smart, honest and compassionate. He has a brother Darrien (17) and little sister Gianna (9).
Dejon was a normal, active 5 year old boy. After having 3 seizures back to back his doctor ordered an MRI.
November 21st, 2003 ~ Dejon was diagnosed with an Astrocytoma Glioma brain tumor (very slow growing). The tumor was the size of a golf ball. We immediately left for Fairview University Medical Center in Minneapolis, Minnesota.
December 11th, 2003 ~ 70% of the tumor was resected. The rest of the tumor is located in the center of his brain and is too deep to be surgically removed. The remaining tumor was stable for many years.
January 2010 ~ the headaches, dizziness and fatigue increased dramatically.
January 14th, 2010 ~ he went in for an MRI. Dejon's team of doctors informed us that the new growth was about the size of a quarter and in the area where they resected part of the first tumor.
January 19th, 2010 ~ Dejon underwent another brain surgery. They were able to resect most of the new growth but the rest still remains too deep to be surgically removed. The biopsy results revealed the tumor is actually a Pilomyxoid Astrocytoma. There isn't a lot known about these tumors as they are rare. They do know these tumors most always grow back. They are very unpredictable, sometimes growing back fast and sometimes slow. At this point, the team of specialist would like to hold off on chemo and radiation as long as possible.
July 2010 ~ I decided to continue Dejon’s care with Dr. Foreman at Denver Children’s Hospital in Aurora, Colorado.
November 2011 ~ we decided to move forward with epilepsy surgery, in hopes of stopping Dejon's seizures.
March 2012 ~ we learned Dejon's cancer had spread.
May 2nd, 2012 ~ Dejon had grids placed on his brain to locate the seizures.
May 11th, 2012 ~ Dejon had 70% of the new tumor and several areas of his frontal and temporal lobe resected.