Jul 11, 2018 Latest post:
Sep 24, 2019
Welcome to our CaringBridge website. We are using it to keep family and friends updated in one place. We appreciate your support and words of hope and encouragement. Thank you for visiting. On July 9, 2018 Cohen woke up in pain with a fever. We went to the er as this had progressed from just a fever the day prior, and now came with abdominal and chest pain around his left nipple. A chest x ray at Charlotte hugerford hospital revealed a concerning mass along his upper left chest wall. They recommended we go to ccmc, and that it was very concerning. In shock and disbelief I drove Cohen to children’s. This was the beginning of probably the hardest time of my life. I have never felt pain like being told your son has cancer. Cohen has had cat scans, pet scans, surgical biopsy, port placement, and bone marrow extractions. He had a collapsed lung and chest tube placement. He got his diagnosis on July 11. Ewing’s sarcoma. This is a rare and aggressive bone and soft tissue cancer. We are now 3 months into 2 week cycles of intense inpatient chemotherapy. My goofy little five year old now has anxiety and watches the clock. He has lost 8 pounds and all his hair. He spends more time on an iPad than he does playing with his brothers. This has been the saddest scariest journey.
we have been forced to adapt . Cancer and the eighth floor at ccmc is our new reality, juggling family life is even more challenging within the seclusion of immunosuppression.
Sharing on this journal allows me to feel a little less cut off from my community and friends. Thank you for all your prayers and energy as we fight to get our Cohen back.