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2/10/2014 Latest post:
Welcome to Chloe's CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.
As many of you know, Chloe has struggled most of her life with health issues deriving from McCune Albright Syndrome. This syndrome comes with many obstacles, one the largest being fibrous dysplasia. Most of Chloe’s skull is made of this diseased bone, which causes her a lot of pain. Along with the pain, it also causes disaster within her skull. Some of the fibrous dysplasia in her skull is currently growing around both of her optic nerves impacting her vision. On December 13th she will be undergoing a craniotomy on the right side of her head at Mayo clinic Rochester to remove the diseased bone that is growing around the right optic nerve. If all goes well, she will only need to spend 5-6 days in the ICU afterwards. During her recovery time her neurosurgeon hopes that her hemoglobin will rise enough to preform her second craniotomy on January 24th. Hopefully, she will not need a blood transfusion. If these surgeries are not done, the bone will continue to grow around both nerves until she goes permanently blind. The surgeries each hold a 5% chance of permanently blinding Chloe, so the doctors feel it is best to do one eye at a time. Chloe will be taking a semester off from classes and work to recovery fully at home.